the current newsletter as a .PDF - Joslin Diabetes Center

More documents

Recommendations

Info

PAGE 4 NEWSLETTER OF THE PEDIATRIC, ADOLESCENT, & YOUNG ADULT SECTION Research Opportunities at Joslin T1D Exchange Description: The Type 1 Diabetes (T1D) Exchange is a nationwide registry collecting information about children and adults with type 1 diabetes. The purpose of the registry is to gather information about people with type 1 diabetes to help better understand the natural course of type 1 diabetes and the effectiveness of current treatments. Participation in the registry involves completion of a questionnaire about medical and family history including diabetes diagnosis and treatment and laboratory test results. Annual updates of information are also part of the registry. Recruiting: At the Joslin, individuals being followed in the Pediatric, Adolescent and Young Adult Section may be eligible to participate in this registry. Contact: Camille Ratliff at (617) 309-4477 or camille.ratliff@joslin.harvard.edu RESEARCH UPDATE Several members of the Pediatrics staff attended the 2011 ADA Scientific Sessions in San Diego, CA, where they presented results of research accomplished here at Joslin. The well-attended oral and poster presentations described the range of family and social supports that promote better blood glucose control. These include having regular contact with a case manager who educates and supports the young person with diabetes (M. Katz); having a “Medical Home”, i.e. care that is accessible, family-centered, continuous, compassionate, and culturally effective (M. Katz); and parent goal-setting for A1c and blood glucose levels (M. Boot et al). The presentations also addressed the impact of diabetes on families with a survey to measure the burden of diabetes care (J.Markowitz); and looked at the impact of starting an insulin pump on disordered eating patterns (J. Markowitz). Another presentation reviewed changing patterns of prescribing medications to treat type 2 diabetes (S. Mehta). One of the many interesting sessions at the four-day meeting included a progress report on the Artificial Pancreas, where closed-loop systems using insulin pumps and glucose sensors respond to high or low blood glucose levels by increasing or decreasing insulin delivery respectively. There are many ongoing studies around the globe designing and evaluating versions of an “artificial pancreas.” There was also a major session on transitions in care from pediatric to adult diabetes specialists, organized and chaired by Joslin’s Dr. Lori Laffel. -Alyne Ricker, MD CGM Improve Diabetes Study Description: The purpose of this study is to find out how to make it easier for children and teens with type 1 diabetes to use continuous glucose monitors (CGM) over a long period of time. The study involves 12 visits over a 24-month period with additional phone contacts between visits. The extra three visits occur during the first six months of the study: the rest of the visits will occur at routine clinic visits. Families randomized to the intervention group will receive a family based behavioral intervention providing support and education regarding use of the CGM. Families in the usual care group will receive this information at the end of the study. Youth in both groups will wear a CGM device throughout the study. Families will be asked to complete surveys at various intervals over the course of the study and labwork will be collected for the youth in the study. Recruiting: Children and teens, ages 8-17 years, who have had type 1 diabetes for at least 1 year and who are receiving care at Joslin and their parents or legal guardians Contact: Emily Fisher at 617-309-4644 or emily.fisher@joslin.harvard.edu The Tolerance Study Can Glucose Monitoring Improve CGMi Study Description: This study is trying to help us better understand what causes type 1 diabetes to help find new ways to prevent or reverse the disease. The study is being done with researchers at Harvard Medical School and is funded by the Juvenile Diabetes Research Foundation. The study visit includes the completion of questionnaires and a blood draw. Recruiting: Individuals, ages 18 years and older, both with and without type 1 diabetes Contact: Roxanne Phillips at 617-309-2481 or roxanne.phillips@joslin.harvard.edu Type 1 Diabetes Risk Assessment The Natural History Study — TrialNet Description: This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes. It involves a single blood test. People who test positive will be eligible for further testing and may be eligible to participate in prevention trials. Recruiting: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes Contact: Hui Zhang at 617-309-4739 or hui.zhang@joslin.harvard.edu
VOLUME 7, ISSUE 4 PAGE 5 Recipe: Cheesy Pizza Poppers Nutrition Facts: Ingredients: Per serving (1/4th of 1/3 cup low fat ricotta recipe, 3 poppers) 1/2 cup light shredded mozzarella 136 calories 1 1/2 tsp tomato paste 3.6 g fat 1/2 tsp dried minced onion 5.6 g protein 12 small wonton wrappers 16.25 g carb 12 sprays of butter spray 1 tbsp grated parmesan cheese Dipping sauce: 1/8 tsp garlic powder; 1/2 cup canned crushed tomatoes; 1/8 tsp Italian seasoning Directions: Preheat oven to 375 degrees; spray baking sheet with non-stick spray and set aside. In medium bowl, combine ricotta, mozzarella, tomato paste and minced onion. Mix thoroughly and set aside. Lay wrappers on a clean, dry surface. Spoon filling into the center of each wrapper, fold over to make a triangle. Gently pinch the edges to seal. Place each popper on the baking sheet. Spray with butter spray and sprinkle with parmesan cheese and garlic powder. Bake in the oven until golden brown, about 10 minutes, flipping after 5 minutes. Combine crushed tomatoes with Italian seasoning in a microwave safe bowl. Stir well. heat for 1 minute. Serve with poppers for dipping. “Healthy Holiday Eating” continued from p.1 stick, 1/4 cup of nuts, or ½ sandwich) and a glass of water to stay well hydrated before you leave for the holiday party. Avoid Overeating: Stay at least an arm’s length away from the food table before and after eating to prevent nibbling Choose small portions of your favorite foods and eat slowly; savor the flavor! Wait a few minutes before going for seconds. It takes 15 minutes for the signal to go from belly to brain to say, “hey wait, I’m pretty full!” Keep track of nibbling - put a small portion of crackers or chips or pretzels on a plate and walk away from the bowl If planning on dessert, take less starches at the main meal – fill your plate with salad and vegetables Food Choices: Try to choose more vegetables, fruits and whole grains Limit fried foods Have dessert-but keep it small; and remember it’s nice to share! You can always split a dessert with your friends or family Physical Activity Remember to move! -Start a family tradition: Take a walk between dinner and dessert Have a game of flag football Break out the croquet set Toss a ball around Enjoy holiday decorations by foot after a meal -Heidi Quinn, MS, RD, LDN and -Laurie Higgins, MS, RD, LDN, CDE Check out these resources for optimizing care at school: 1. diabetes.org/schooldiscrimination Provides links for the following information: Legal protections for your child Training resources Special school-related considerations and challenges 2. diabetes.org/assets/pdfs/schools/dmmp-form.pdf Sample Diabetes Medical Management Plans (DMMP). DMMP is a plan created by the child’s health care team, which outlines the specific needs of your child’s care while at school. 3. diabetes.org/504plan Sample of 504 plan, which is a written plan that makes sure that the child with diabetes has all the same opportunities and education available as children without diabetes to prevent discrimination. 4. diabetes.org/safeatschool Information about ADA’s Safe at School Campaign, which is designed to ensure that children with diabetes will be medically safe at school and be offered the same opportunities as children without diabetes 5. diabetes.org/zip For finding your local ADA office. 6. http://ndep.nih.gov/publications/ PublicationDetail.aspx?PubId=97#main The National Diabetes Education Program’s Helping the Student with Diabetes Succeed: A Guide for School Personnel. 7. There are more resources on the Joslin website: http://blog.joslin.org/2011/08/back-to-school-withdiabetes-the-basics/ ; http://www.joslin.org/info/ school_lunch_and_diabetes_meal_planning.html -Ashley Atkins, RN, MSN, CPNP Get Connected The Joslin discussion boards are moderated by Joslin staff and offer a safe place to ask questions about diabetes and to interact with other parents or teens living with diabetes. Teens boards: http://forums.joslin.org/ JoslinDiscussionBoards/41.aspx Parent boards: http://forums.joslin.org/ JoslinDiscussionBoards/42.aspx Joslin Blog: http://blog.joslin.org/ If you would like to find a support group in your area, you can check your local American Diabetes Association chapter (contact: Anna Floreen, afloreen@diabetes.org) or your local Juvenile Diabetes Research Foundation chapter (contact: Lauren Shields, lshields@jdrf.org). If you are a college student living with diabetes, you may want to join the College Diabetes Network at www.collegediabetesnetwork.org/ to connect with other students living with diabetes.
Page 1 and 2: Newsletter of the Pediatric, Adoles
Page 3: VOLUME 7, ISSUE 4 PAGE 3 Upcoming E

the current newsletter as a .PDF - Joslin Diabetes Center

Create successful ePaper yourself

Delete template?

Save as template?