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Programme (PDF) - (NCRI) Cancer Conference 2013 - National ...

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1. Clinical Research and Development<br />

2. Drug Discovery & Pre-Clinical Research and Development<br />

3. Marketing and Sales<br />

4. Policy and Information<br />

5. Medical/Scientific Affairs and Outcomes Research<br />

Data linkage and long-term follow up of clinical trials<br />

14.30-15.30<br />

Hosted by David Forman 1 and David Cameron 2<br />

1 <strong>National</strong> <strong>Cancer</strong> Intelligence Network (NCIN), UK; 2 <strong>National</strong> <strong>Cancer</strong> Research<br />

Network (NCRN), UK<br />

The long-term follow-up of patients recruited into clinical trials is of enormous value<br />

in understanding the late consequences of treatment. This is, however, a time<br />

consuming and resource intensive process when carried out by trials offices on a<br />

trial by trial basis.<br />

This Workshop will consider how linkage between clinical trial patient datasets and<br />

routine NHS data sources held within the NCIN <strong>National</strong> <strong>Cancer</strong> Data Repository<br />

offers the potential to provide such follow-up in a rapid and cost efficient manner.<br />

Results from early pilots using this process, including the MRC CLASICC and CR07<br />

studies, will be presented together with protocols for the iBreast and other similar<br />

trials.<br />

The Targeted Therapies Nurses Forum<br />

14.30 – 15.30<br />

Hosted by Lynette Lane 1 and Lynda Pyle 2<br />

1 Velindre <strong>Cancer</strong> Centre, Cardiff, UK; and<br />

2 Royal Marsden Hospital, London, UK<br />

This workshop aims to highlight common side effects and their management for<br />

patients receiving targeted therapies, focusing on those drugs used in renal and<br />

gastrointestinal stromal tumour (GIST) cancers.<br />

These drugs are extending peoples lives and have altered patients’ outlook and life<br />

expectations. Using Maslow’s theory on hierarchy of needs, we aim to develop a<br />

nursing tool, to enhance patients’ quality of life.<br />

o Lynette Lane<br />

Velindre <strong>Cancer</strong> Centre, Cardiff, UK<br />

Introduction<br />

Breakout groups<br />

Each table will discuss one of the following side effects:<br />

1. Skin<br />

2. Fatigue<br />

3. GI disturbances<br />

4. Hypertension and hypothyroidism<br />

5. Compliance, expectations and attitudes to taking oral therapies<br />

o Linda Pyle<br />

Royal Marsden Hospital, London, UK<br />

Discussion, feedback and summary<br />

41

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