Programme (PDF) - (NCRI) Cancer Conference 2013 - National ...
Programme (PDF) - (NCRI) Cancer Conference 2013 - National ...
Programme (PDF) - (NCRI) Cancer Conference 2013 - National ...
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1. Clinical Research and Development<br />
2. Drug Discovery & Pre-Clinical Research and Development<br />
3. Marketing and Sales<br />
4. Policy and Information<br />
5. Medical/Scientific Affairs and Outcomes Research<br />
Data linkage and long-term follow up of clinical trials<br />
14.30-15.30<br />
Hosted by David Forman 1 and David Cameron 2<br />
1 <strong>National</strong> <strong>Cancer</strong> Intelligence Network (NCIN), UK; 2 <strong>National</strong> <strong>Cancer</strong> Research<br />
Network (NCRN), UK<br />
The long-term follow-up of patients recruited into clinical trials is of enormous value<br />
in understanding the late consequences of treatment. This is, however, a time<br />
consuming and resource intensive process when carried out by trials offices on a<br />
trial by trial basis.<br />
This Workshop will consider how linkage between clinical trial patient datasets and<br />
routine NHS data sources held within the NCIN <strong>National</strong> <strong>Cancer</strong> Data Repository<br />
offers the potential to provide such follow-up in a rapid and cost efficient manner.<br />
Results from early pilots using this process, including the MRC CLASICC and CR07<br />
studies, will be presented together with protocols for the iBreast and other similar<br />
trials.<br />
The Targeted Therapies Nurses Forum<br />
14.30 – 15.30<br />
Hosted by Lynette Lane 1 and Lynda Pyle 2<br />
1 Velindre <strong>Cancer</strong> Centre, Cardiff, UK; and<br />
2 Royal Marsden Hospital, London, UK<br />
This workshop aims to highlight common side effects and their management for<br />
patients receiving targeted therapies, focusing on those drugs used in renal and<br />
gastrointestinal stromal tumour (GIST) cancers.<br />
These drugs are extending peoples lives and have altered patients’ outlook and life<br />
expectations. Using Maslow’s theory on hierarchy of needs, we aim to develop a<br />
nursing tool, to enhance patients’ quality of life.<br />
o Lynette Lane<br />
Velindre <strong>Cancer</strong> Centre, Cardiff, UK<br />
Introduction<br />
Breakout groups<br />
Each table will discuss one of the following side effects:<br />
1. Skin<br />
2. Fatigue<br />
3. GI disturbances<br />
4. Hypertension and hypothyroidism<br />
5. Compliance, expectations and attitudes to taking oral therapies<br />
o Linda Pyle<br />
Royal Marsden Hospital, London, UK<br />
Discussion, feedback and summary<br />
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