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CONGO FAMILY<br />

As you watch 4-year-old Sara Congo play with<br />

her big sister, Hailey, you would never have a<br />

clue that she has fought for her life.<br />

Joel and Karey Congo were living in Salmon<br />

Arm, BC, while they were expecting their<br />

second daughter. At their 19 week ultrasound,<br />

the radiologist couldn’t see the heart well<br />

enough. A second ultrasound showed Ebstein’s<br />

anomaly, a condition where the 4 th chamber of<br />

the heart forms very low and does not pump<br />

blood effectively to<br />

the right side of the<br />

body and lungs.<br />

Sara & Joel Congo<br />

They arrived in<br />

Edmonton one<br />

month prior to their<br />

baby’s due date.<br />

Doctors decided to<br />

deliver the baby by<br />

cesarean section to<br />

avoid possible heart<br />

failure. Sara was<br />

born January 16,<br />

2009, five weeks early at 5 pounds 3 ounces.<br />

The Congos were told about Ronald McDonald<br />

House® Northern Alberta (RMHNA) as an<br />

option for future visits to the doctors. At<br />

the time, RMHNA was undergoing a major<br />

expansion.On September 1, the family arrived<br />

back in Edmonton for Sara’s second surgery.<br />

This time, RMHNA was ready to welcome the<br />

Congos. Karey said that until they met the<br />

House, they had never really enjoyed Edmonton.<br />

The opportunities from community donors gave<br />

the Congos a chance to experience Edmonton<br />

as a family. The tickets to the waterpark, the<br />

rodeo, Oilers and Rush<br />

games, and Fort Edmonton<br />

Park gave them family<br />

time with a change of<br />

scenery.<br />

Thankfulness isn’t the right word,<br />

”<br />

it’s<br />

more than that. We are grateful.<br />

-Karey Congo<br />

Sara Congo<br />

The House was a refuge for the Congos. They<br />

loved making meals and the comfort provided<br />

when groups came to prepare Home for Dinner<br />

meals. It also helped connect them to other<br />

House families.<br />

It made a difference in their family life that as<br />

Sara was critically ill, big sister Hailey’s needs<br />

for friendship, community and support were also<br />

met. There was always a friend for Hailey to play<br />

with and something to do at RMHNA.<br />

On November 23, Sara’s doctor came into her<br />

hospital room and the family was told that there<br />

was a heart for Sara.<br />

“It was like the whole ward lit up. Prior to our<br />

meeting, the nurses all knew that Sara’s heart was<br />

available, but couldn’t share the news with us.<br />

After the meeting happened they were downright<br />

giddy, and it all made sense,” remembers Karey.<br />

Open to read the full story<br />

The Congos<br />

arrived at<br />

the Stollery<br />

in the early<br />

morning to<br />

Congo Christmas Card<br />

learn that<br />

the surgery<br />

had been a success. The family was home three<br />

weeks post-transplant, just in time to celebrate<br />

a quiet and restful Christmas together. It was a<br />

relief to be home. They were anxious to enjoy<br />

family togetherness.<br />

Sara comes back to Edmonton for appointments<br />

and procedures every few months. The family<br />

misses their community of friends at RMHNA,<br />

but are embracing their new life in Entwistle, AB.<br />

“We are thankful most that God brought us<br />

through it all,” said Karey. “And we are thankful<br />

for RMHNA, the Stollery and all of the doctors<br />

and nurses for their care. Thankfulness isn’t the<br />

right word, it’s more than that. We are grateful.”

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