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CONGO FAMILY<br />
As you watch 4-year-old Sara Congo play with<br />
her big sister, Hailey, you would never have a<br />
clue that she has fought for her life.<br />
Joel and Karey Congo were living in Salmon<br />
Arm, BC, while they were expecting their<br />
second daughter. At their 19 week ultrasound,<br />
the radiologist couldn’t see the heart well<br />
enough. A second ultrasound showed Ebstein’s<br />
anomaly, a condition where the 4 th chamber of<br />
the heart forms very low and does not pump<br />
blood effectively to<br />
the right side of the<br />
body and lungs.<br />
Sara & Joel Congo<br />
They arrived in<br />
Edmonton one<br />
month prior to their<br />
baby’s due date.<br />
Doctors decided to<br />
deliver the baby by<br />
cesarean section to<br />
avoid possible heart<br />
failure. Sara was<br />
born January 16,<br />
2009, five weeks early at 5 pounds 3 ounces.<br />
The Congos were told about Ronald McDonald<br />
House® Northern Alberta (RMHNA) as an<br />
option for future visits to the doctors. At<br />
the time, RMHNA was undergoing a major<br />
expansion.On September 1, the family arrived<br />
back in Edmonton for Sara’s second surgery.<br />
This time, RMHNA was ready to welcome the<br />
Congos. Karey said that until they met the<br />
House, they had never really enjoyed Edmonton.<br />
The opportunities from community donors gave<br />
the Congos a chance to experience Edmonton<br />
as a family. The tickets to the waterpark, the<br />
rodeo, Oilers and Rush<br />
games, and Fort Edmonton<br />
Park gave them family<br />
time with a change of<br />
scenery.<br />
Thankfulness isn’t the right word,<br />
”<br />
it’s<br />
more than that. We are grateful.<br />
-Karey Congo<br />
Sara Congo<br />
The House was a refuge for the Congos. They<br />
loved making meals and the comfort provided<br />
when groups came to prepare Home for Dinner<br />
meals. It also helped connect them to other<br />
House families.<br />
It made a difference in their family life that as<br />
Sara was critically ill, big sister Hailey’s needs<br />
for friendship, community and support were also<br />
met. There was always a friend for Hailey to play<br />
with and something to do at RMHNA.<br />
On November 23, Sara’s doctor came into her<br />
hospital room and the family was told that there<br />
was a heart for Sara.<br />
“It was like the whole ward lit up. Prior to our<br />
meeting, the nurses all knew that Sara’s heart was<br />
available, but couldn’t share the news with us.<br />
After the meeting happened they were downright<br />
giddy, and it all made sense,” remembers Karey.<br />
Open to read the full story<br />
The Congos<br />
arrived at<br />
the Stollery<br />
in the early<br />
morning to<br />
Congo Christmas Card<br />
learn that<br />
the surgery<br />
had been a success. The family was home three<br />
weeks post-transplant, just in time to celebrate<br />
a quiet and restful Christmas together. It was a<br />
relief to be home. They were anxious to enjoy<br />
family togetherness.<br />
Sara comes back to Edmonton for appointments<br />
and procedures every few months. The family<br />
misses their community of friends at RMHNA,<br />
but are embracing their new life in Entwistle, AB.<br />
“We are thankful most that God brought us<br />
through it all,” said Karey. “And we are thankful<br />
for RMHNA, the Stollery and all of the doctors<br />
and nurses for their care. Thankfulness isn’t the<br />
right word, it’s more than that. We are grateful.”