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Summit Education SA - Malnormags.co.za

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Epilepsy South Africa has for over 40 years<br />

provided services to South Africans with epilepsy<br />

and those affected by the <strong>co</strong>ndition. During<br />

their recent Annual General Meeting held at the<br />

Western Cape Branch in Lansdowne, the newly<br />

registered Eastern Cape Office in East London<br />

was officially re<strong>co</strong>gnised as a formal branch of<br />

the organisation.<br />

This re<strong>co</strong>gnition follows from three years of hard work<br />

in the Eastern Cape to introduce the organisation to<br />

<strong>co</strong>mmunities, do needs assessments with persons with<br />

epilepsy in the province and develop services ac<strong>co</strong>rding<br />

to the needs assessed.<br />

Most notably, challenges in the Eastern Cape province were<br />

stated by <strong>co</strong>mmunities as: a lack of proper healthcare<br />

services (especially regarding specialist epilepsy treatment);<br />

a lack of information and therefore awareness about the<br />

<strong>co</strong>ndition which is in many Eastern Cape <strong>co</strong>mmunities still<br />

viewed as evil spirits or demon possession; challenges<br />

regarding access to medication; limited or no nutrition,<br />

sanitation and hygiene; severe stigma and discrimination<br />

towards persons with epilepsy and the endemic proportions<br />

of epilepsy in rural <strong>co</strong>mmunities mostly due to tape worm<br />

infection that leads to epileptic seizures.<br />

Epilepsy South Africa established services in the province<br />

during 2010 and has to date implemented a number<br />

of initiatives and projects to support persons with the<br />

<strong>co</strong>ndition. Of immediate <strong>co</strong>ncern was direct psychosocial<br />

support to beneficiaries and support groups were<br />

established at healthcare centres in Port Eli<strong>za</strong>beth, East<br />

London and Mthatha.<br />

Inclusive<br />

education<br />

Epilepsy<br />

moves in the Eastern Cape<br />

The successful Mobile Neurological Clinics model developed<br />

by the South Cape & Karoo Branch of the organisation was<br />

replicated in the Eastern Cape and implemented from<br />

November 2012 in the rural East London region. These<br />

clinics not only provide clinical care, but also educate both<br />

persons with epilepsy and their caregivers about the many<br />

aspects of the <strong>co</strong>ndition.<br />

A vegetable garden project was piloted in the village of<br />

Mhlabathi, just south of Mthatha, to initiate <strong>co</strong>mmunity<br />

participation in the development of nutritional food that has<br />

a vast influence on the effectiveness of medication. The<br />

pilot project was joined with entrepreneurial development<br />

training to provide the opportunity to be<strong>co</strong>me selfsustainable<br />

and less dependent.<br />

Further awareness talks and epilepsy training was<br />

established, especially at schools where our young<br />

generation, both children with and without epilepsy, are<br />

educated about the <strong>co</strong>ndition to promote more inclusive<br />

education, but also acceptance of one another regardless of<br />

our personal challenges.<br />

Epilepsy South Africa is proud to announce the opening of<br />

this new branch and would like to invite the Eastern Cape<br />

<strong>co</strong>mmunities to get involved in this progressive move to<br />

provide vital care to thousands of people in the province.<br />

The sustainability of this branch also depends on the<br />

support of the Eastern Cape <strong>co</strong>mmunity. l<br />

Should you wish to <strong>co</strong>ntact the branch, please <strong>co</strong>ntact<br />

Mr Madlala at 078 362 1078, or the National Office at<br />

021 595 4900.<br />

22131 Educ 02/2013<br />

<strong>Education</strong> Southern Africa | November 2013 11

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