Gaucher Community News - National Gaucher Foundation

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IN HONOR OF • Mathew Rinaldi--Kinser/Rinaldi Ironman Competition from Ms. Cynthia Frank, Mr. Lars-Erik Asbjornsen, Mr. & Mrs. Steve Rinaldi, Mr. & Mrs. David Sauer, Mr. & Mrs. Charles Kinser, Mr. and Mrs. Robert Kinser, Ms. Mary Rafferty, Mr. Al Rinaldi, Mr. George Kinser, Mr. & Mrs. Koss Kinser, Mr. Thomas Kinser, Mr. & Mrs. Thomas Miller, Mr. and Mrs. Donald Carpenter, Mr. & Mrs. Ronald Rahorn, Mr. & Mrs. Larry Kinser, Mr. and Mrs. Richard Kinser, Mr. & Mrs. James Curtis, Mr. & Mrs. Dominic Rinaldi, Mr. Andrew Kroymann, Mr. and Mrs. Thomas Rose, Ms. Sandra Pate, Ms. Jane Nachtman, Mr. and Mrs. Anthony Chiodini, Mr. and Mrs. Bill Kirk, Pizza Ranch-Roscoe, Mr. and Mrs. John Kinser, Mr. Kristopher Kinser, Ms. Elizabeth Lindahl, Mr. James Kinser, Mr. and Mrs. Bruce Gordon, Mr. C. Kinser, Ms. Molly Peterson, Mr. and Mrs. Mike Clark, Ms. Sandra Fink, Ms. Vicki Rinaldi, Mr. and Mrs. Jon Rinaldi, Ms. Sandra Lathrop, Ms. Bette Thornburg, Ms. Ann Overton, Mr. Joseph Reister, Mr. Justin Kinser, Ms. Jill Caldwell, Ms. Tamee Browning, Mr. Lowell Larson, Mr. Jeremy Carpenter • Robert & Jennifer Roback’s wedding from Steven & Susie Schneiderman • Linda Rubenstein from Anonymous, Mr. & Mrs. Pliny Jewell • Mathew Rubin from Robert Mann • Cathie Salamone from James & Lisa Radcliffe • Mary Schechter from Dick & Beverly Fink, Jennifer Stern • Mr. and Mrs. Jeff Redisch for hosting a wedding party for Rachel Denbo and Marc Labovitz from Mr. & Mrs. Joel Denbo • Madelyn Rendelman Schloss from Sherryl Amoyal, Marie Gussio, Keith & Kim Steller, Laurel Zemil, David & Nadine Hazman • Mr. and Mrs. Jay Rogal's 50th wedding anniversary from Mr. & Mrs. Robert Gaynes and anonymous • Anthony Rossi from Anonymous • The Salamone Family from Mr. & Mrs. James Radcliffe • Jenny Schloss for Mother’s Day from Gina Millstein • Barbara Schubiner from Steven & Elizabeth Schubiner • Jamie Seaver from Michael & Valerie Seaver • Baby Ezra Shere from Michael & Nori Klar • Mr. and Mrs. Bill Shinn for hosting a wedding party for Rachel Denbo and Marc Labovitz from Mr. & Mrs. Joel Denbo • Chris Sorrentino from Ms. Shelley Beban • Melissa Steinman from Thomas Landau • Harold & Susan Streem for a happy, healthy Chanukah from Jean Malkin • Dr. Rick Sukov’s 65th Birthday from Ms. Rona Kaufman • Isha Tohill from Leo Tohill & Irene Komor • Roberta Randall & Ken Towers marriage from Alan & Carole Kushnir • Kevin Thomas from Ms. Pamela Filkins • Ann Trauth from Cathleen Finley • Emil Trombino from Douglas & Wendy Friedrich • Dominick & Julia Trombino from Nina Harlan, Vincent & Kathryn Scotton, Robert & Andrea Trombino • Marilyn F. Vanvick from Mr. William Page • Michaela Wagner from Loretta Falk • Edward Wagner from Michael Goldfine • Brian & Alison Waldman from Jan & Sue Guben • Gregg Warren’s 45th birthday from Muriel Warren 18
IN HONOR OF • Mr. and Mrs. Larry Weaver for hosting a wedding party for Rachel Denbo and Marc Labovitz from Mr. & Mrs. Joel Denbo • Sara Weinfeld’s Bat Mitzvah from Mr. & Mrs. Mark Klar • Bill Weinlood's birthday from Mr. & Mrs. Richard Radford • Marv & Elaine Weiss for a happy, healthy Chanukah from Jean Malkin • Mike Weissman's 75th birthday from Ms. Judy Dragin, Mr. Howard Kline, Mr. & Mrs. George Aronoff • Jonathan Wilmore from Larry Simeral • The naming of baby Hailey Bart Winston from Stanley & Carol Alpert, Ilene Asner, Jack & Gail Baylin, Keith & Lisa Carswell, Joel & Harriet Charkatz, Ross & Heather Charkatz, Michael & Shelley David, Marv & Sandy Glass, Gary & Bonnie Greenwald, Robert & Nancy Greenwald, Susan Imber, John & Rose Kenzora, Lawrence & Margot Lessans, Adam Levitt, Ron & Sherry Luria, Jeffrey Maass, Tali Raphaely, Jordan Resnick, Danny & Robyn Riter, Phil Schleider & Rita Valpak, Jenny & Adam Schloss, William & Shirley Sutton, Annette Winn, Bruce & Sharon Winston • Adam Wolf from Mr. & Mrs. Jeffrey Wolf • Helen Wrubel’s 100th birthday from Chuck & Diane Kaufman • Benjamin Young's birth from Mr. & Mrs. Mark Klar • Arianna Zallik from Marc & Roslyn Lessem, Jacqueline Sabath IN MEMORY OF • Carolina Alhanati from Robbin Cooper • Patricia Baber from Richard & Norma Beard • Moseh Ben-Barouch from Mr. & Mrs. Ilan Koren • Janet Bender from David & Barbara Bender, Lipton <strong>Foundation</strong>/Robert & Barbara Agar • Celeste Benrend from Harriet Greenberg • Sandy Berman from Mr. & Mrs. Kit Woolsey • Abigail Dianne Berweiler from Paul & Lana Berweiler • Marion Black from Richard & Betsy Haubrich, Ted & Susan Klastorin, Lisa Perlmutter • Gilmer Blackburn from Mr. & Mrs. Joel Denbo • Gary Blum from Ms. Lynne Fisher, Mr. Joshua Friedman, Ms. Jessica Resnick • Rita Boudouris from Gregg & Eileen Warren • Betty Brown from Anonymous • William Buckingham from Lee & Martha Beninghove • Rita M. Champagne from Mr. & Mrs. Paul Busfield, Mr. & Mrs. Andrew Trainer, Mrs. Lenore Trimmel, Ms. Pamela Jordan, Ms. Karen Jordan, Ms. Mary Duncan, Perkiomen Service Building, Ms. Trish Branagh, Ms. Faith Butt, Ms. Theresa Smith, Mr. and Mrs. Victor Puia, Ms. Phyllis Fleming, Mr. and Mrs. Dennis Hydrick, Mr. Reuben Champagne • Ronald Christians from Laurence & Sharon Spiwak • Joseph Cirkus from Jeffrey & Marcia Wolf • Herbert Clofine from Robert & Carole Braunfeld, Eileen & Stanford Glanzberg • Les Cohn & Harry Bassin from Morris & Eva Tulchinsky • Joel Coltoff from Elsa-Lu and Arnold Berkowitz • John Cook from Joel & Sara Denbo • Randy Cooper from Robbin Cooper 19
Page 1 and 2: Gaucher Community News Fall/Winter
Page 3 and 4: Emily’s New Adventure Emily’s N
Page 5 and 6: Dear Gaucher community, Shire HGT I
Page 7 and 8: Neuronopathic Gaucher Disease Gauch
Page 9 and 10: To our children who are still fight
Page 11 and 12: The intense part of her marathon tr
Page 13 and 14: NGF STATEMENT OF PUBLIC SUPPORT REV
Page 15 and 16: IN HONOR OF • Luvenia Corbin for
Page 17: IN HONOR OF • Izzy McFalls Walk f
Page 21 and 22: IN MEMORY OF • Herbert Kaufman fr
Page 23 and 24: More Patients on Zavesca® (miglust
Page 25 and 26: 4) Q: I’ve been reading your arti
Page 27 and 28: In this issue of Gaucher Community
Page 29 and 30: I’ve always felt in debt to many
Page 31 and 32: Pfizer and Protalix Announce Partne

Gaucher Community News - National Gaucher Foundation

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