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Hepatitis: Blah Blah Blah - CDC Viral Hepatitis Action Coalition

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Workforce Development for <strong>Viral</strong> <strong>Hepatitis</strong><br />

Screening and Care: <strong>CDC</strong> Perspective<br />

Alycia Downs, MPH<br />

Cynthia Jorgensen, DrPH<br />

<strong>Viral</strong> <strong>Hepatitis</strong> <strong>Action</strong> <strong>Coalition</strong> Meeting – AASLD<br />

October 31, 2010


Institute of Medicine’s Report<br />

Key Finding<br />

There is a lack of<br />

knowledge and<br />

awareness about chronic<br />

viral hepatitis on the part<br />

of the health care<br />

providers which impedes<br />

current efforts to prevent<br />

and control these<br />

diseases.


IOM Recommendation<br />

• Recommendation 3-1. The Centers for Disease<br />

Control and Prevention should work with key<br />

stakeholders to develop hepatitis B and<br />

hepatitis C educational programs for healthcare<br />

and social-service providers.


<strong>CDC</strong> Challenges<br />

• Resources<br />

• Mission of <strong>CDC</strong> vs. other federal agencies<br />

• Public health covers a broad spectrum of issues<br />

and audiences<br />

– Clinicians<br />

– Public health workforce<br />

– Consumers<br />

– Persons at risk<br />

• Traditional public health audiences vs. everyone<br />

– “low hanging” fruit vs. underserved and most at need


How can <strong>CDC</strong> implement this<br />

recommendation to increase<br />

knowledge and awareness of<br />

health care providers


What <strong>CDC</strong> Has Done and Can Do<br />

• Select <strong>CDC</strong> Examples – reaching health care<br />

providers<br />

– Immunization Education and Trainings<br />

– Clinician Outreach and Communication Activity<br />

– STD Training in Medical School Curriculum<br />

– NCHHSTP Training Overview<br />

• What Division of <strong>Viral</strong> <strong>Hepatitis</strong> is currently doing<br />

– Cooperative Agreements with Educational Institutions<br />

– State and local government<br />

– Professional Tools, Trainings & Resources<br />

– Other groups


<strong>CDC</strong> Examples


Immunization Education & Training<br />

• Immunization courses<br />

– Several formats: broadcasts, webcasts, DVD, CD ROM<br />

and web-based<br />

• Epidemiology & Prevention of Vaccine-<br />

Preventable Diseases Course<br />

– Principles of vaccination, recommendations, immunization<br />

strategies, vaccine-preventable diseases and vaccines<br />

• NetConferences: Current Issues in Immunization<br />

– Live, 1-hour presentations with question and answer session<br />

• On-Site Training<br />

– Live course by <strong>CDC</strong> trainers, available for a state or region.<br />

• Podcasts<br />

– Download to desktop and portable music/video player


Clinician Outreach and<br />

Communication Activity (COCA)<br />

• <strong>CDC</strong>’s Emergency Communication System<br />

• Partner with over 180 clinician organizations<br />

• Connect directly with clinicians<br />

• Work collaboratively in times of emergency &<br />

preparedness<br />

• Provide tools, training and consultation<br />

• Evaluation data show direct impact on clinical<br />

practice


Medical School Curriculum<br />

• National Center for HIV, <strong>Viral</strong> <strong>Hepatitis</strong>, STDs and<br />

TB Prevention (NCHHSTP) worked to integrate<br />

comprehensive STD training into medical school<br />

curriculum<br />

• IOM report advocates for development of improved<br />

curricula to ensure graduates are knowledgeable<br />

about chronic viral hepatitis<br />

– Prevalence, risk factors, preventive actions, appropriate<br />

diagnostics, screening recommendations, appropriate<br />

follow-up for chronically infected and those susceptible to<br />

infection


NCHHSTP Training Overview<br />

• Division of HIV/AIDS Prevention & Division of STD<br />

Prevention jointly fund the Prevention Training<br />

Centers<br />

– Part I: STD Clinical Training - 10 regional sites<br />

– Part II: Behavioral Interventions – 4 regional sites<br />

– Part III: Partner Services & Program Support Training –<br />

4 regional sites<br />

• Division of Tuberculosis Elimination funds the TB<br />

Regional Training and Medical Consultation<br />

Centers<br />

– 4 regional sites


The Federal Training<br />

Centers Collaboration (FTCC)<br />

• The purpose of the FTCC is to increase<br />

collaboration among DHHS funded training<br />

centers involved in educating health care<br />

workers about HIV/AIDS and other comorbidities<br />

that affect similar populations<br />

• Primary focus on HIV/AIDS due to funding<br />

• There are no viral hepatitis “training centers”<br />

– Represent two training cooperative agreements


Division of <strong>Viral</strong> <strong>Hepatitis</strong><br />

Examples


HepWebStudy.org<br />

• University of Washington<br />

– Purpose: To educate clinicians on prevention,<br />

management and treatment of hepatitis A,B, and C<br />

– Format: interactive, clinically-relevant case studies.<br />

– Free CME and CNE credits available<br />

– Audience: Physicians, other clinicians<br />

– Web-based trainings to reach the maximum numbers<br />

– Funded at $150,000/year


Know<strong>Hepatitis</strong>.org<br />

• University of Alabama, Birmingham<br />

– Purpose: To enhance knowledge and skills by providing<br />

practice-focused opportunities on viral hepatitis<br />

prevention and control<br />

– Format: distance learning<br />

– Target Audience: Frontline workers in community based<br />

organizations and clinics–those in direct contact with<br />

people who are at risk for viral hepatitis<br />

– Actual Audience: Frontline workers and health care<br />

providers (physicians and nurses)<br />

– Funded at $150,000/year


Adult <strong>Viral</strong> <strong>Hepatitis</strong> Prevention<br />

Coordinators<br />

• One <strong>CDC</strong> funded position per state/territory and<br />

select cities<br />

• Coordinators provide the technical expertise for<br />

activities directed toward prevention of viral<br />

hepatitis infections and integration of prevention<br />

services into health care settings and public health<br />

programs


<strong>CDC</strong> – Web Based Resources<br />

• <strong>Viral</strong> <strong>Hepatitis</strong> Serology Training<br />

– Target Audience: Physicians, Registered Nurses, Public<br />

Health Professionals<br />

– Objectives:<br />

• Understand the different serologic tests for hepatitis<br />

• Understand the serological diagnosis of hepatitis,<br />

acute and chronic<br />

• Understand the meanings of serologic markers and<br />

interpret serologic test results<br />

• Professional Tools and Cheat Sheets<br />

– Professional Resource Center


www.cdc.gov/hepatitis


Medscape<br />

• <strong>CDC</strong> Expert Commentary Series<br />

– Dr. Ward - Screening Asian Patients for Chronic<br />

<strong>Hepatitis</strong> B<br />

• CME activity based on <strong>CDC</strong>’s chronic hepatitis B<br />

testing guidelines


Next Steps:<br />

A National Education Campaign


Our Vision for a National Campaign<br />

Goal: Decrease the disease burden of<br />

viral hepatitis<br />

• Raise awareness<br />

• Engage opinion leaders, policy makers,<br />

media, & the public<br />

• Change perceptions & decrease stigma<br />

• Educate providers & build capacity<br />

• Encourage testing<br />

• Save lives with early intervention


Campaign Strategies<br />

• Implemented in 3 overlapping phases<br />

• Multi-media strategies tailored for each phase<br />

• Provider education strategically planned prior<br />

to the direct-to-consumer component<br />

• Separate public campaigns for hepatitis B<br />

and hepatitis C<br />

• Supplemented by education and community<br />

mobilization grants<br />

• Pilot tested in 3 different cities


Campaign Phases<br />

Phase I Opinion Leaders, Policy Makers, Media,<br />

Healthcare Providers, General Public<br />

Raise<br />

Awareness<br />

Support<br />

<strong>Action</strong><br />

Phase II<br />

Educate<br />

About<br />

<strong>Hepatitis</strong> &<br />

Guidelines<br />

Build<br />

Capacity to<br />

Screen,<br />

Refer, Treat<br />

Healthcare Providers<br />

Phase III Populations at Risk<br />

Encourage Testing


Community<br />

Mobilization<br />

Spheres of Influence<br />

General Public<br />

Opinion<br />

Leaders<br />

&<br />

Policy<br />

Makers<br />

Healthcare Providers<br />

Populations at Risk<br />

B C


Proposed Communication Channels<br />

Opinion<br />

Leader<br />

Outreach<br />

News/Media<br />

Advocacy<br />

Digital &<br />

Social Media<br />

Professional<br />

Education<br />

National<br />

Education<br />

Campaign<br />

Public Service<br />

Advertising<br />

(earned &<br />

paid if<br />

possible)<br />

Community<br />

Mobilization<br />

& Outreach<br />

Special<br />

Events<br />

Public-<br />

Private<br />

Partnerships<br />

Collateral<br />

Materials


Potential Campaign Messages<br />

• Millions of Americans are living with hepatitis –<br />

many don’t know it<br />

• <strong>Hepatitis</strong> is a leading cause of liver cancer<br />

• Early intervention can save lives<br />

• 1 in 12 Asian Americans has<br />

hepatitis B<br />

• Protect your loved ones<br />

• New treatments are helping<br />

people live longer, healthier lives<br />

Phase I<br />

Provider Education and Capacity Building<br />

Phase II<br />

Educate about <strong>Viral</strong> <strong>Hepatitis</strong> &<br />

Existing & Upcoming Recommendations<br />

Phase III<br />

•1 in 30 Baby Boomers has hepatitis C<br />

• 3 of every 4 people with this disease<br />

may not know they are infected<br />

• If you are at risk, get tested<br />

•Treatment can eliminate the virus


Campaign Planning Process<br />

• News media outreach - ongoing<br />

• Formative or Market Research<br />

– Providers<br />

– Public<br />

• Strategies and Material Development<br />

– Developed and vetted<br />

– Tested in controlled settings<br />

– Implemented in pilot cities<br />

• Roll out of National Campaign


Findings from the Literature<br />

Provider Knowledge and Attitudes<br />

• Inadequate knowledge<br />

– Risk factors ─ Screening/Testing<br />

– Disease progression ─ Treatment<br />

• Stigma associated with disease<br />

• Perceptions about treatment efficacy are not<br />

current<br />

Provider Practices<br />

• Risk assessment often not done<br />

• Screening often not performed


Findings – con’t<br />

Clinical Features<br />

• Infection goes unnoticed until symptoms of<br />

advanced liver disease develop<br />

Patient Factors<br />

• Patients avoid disclosing risk behaviors due to<br />

stigmatization<br />

System Issues<br />

• Lack of coverage or reimbursement may hinder<br />

screening<br />

• Screening guidelines inconsistent


Resulting in…<br />

• Lack of screening<br />

• Confusion over guidelines<br />

• Patients failing to receive:<br />

– Risk assessment<br />

– Screening<br />

– Vaccination<br />

– Clinical testing<br />

– Treatment


<strong>CDC</strong>’s Response<br />

• Issuance of guidelines/recommendations<br />

• Formative research<br />

• Intervention research and evaluation<br />

• Technical assistance<br />

• Support/funding for medical education<br />

• Development and dissemination of trainings<br />

• Fostering collaborations and partnerships


Proposed Research Questions<br />

Primary Care Providers<br />

• Do they screen for viral hepatitis Why or why not<br />

• What influences their screening behavior<br />

– Knowledge levels<br />

– Patient preference<br />

– System or organizational influences<br />

• Are they aware of <strong>CDC</strong>’s guidelines<br />

– Chronic <strong>Hepatitis</strong> B vs. <strong>Hepatitis</strong> C<br />

• What can we learn from awareness of <strong>CDC</strong>’s<br />

chronic B guidelines to help in planning for new<br />

hepatitis C guidelines<br />

• Which organizations/guidelines have the most<br />

influence and credibility


Thank you<br />

For more information, please contact the Centers for Disease Control and Prevention<br />

Division of <strong>Viral</strong> <strong>Hepatitis</strong><br />

1600 Clifton Rd, Mail Stop G-37<br />

Atlanta, Georgia 30333<br />

404-718-8596<br />

www.cdc.gov\hepatitis

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