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Review of Dementia Services in Westminster December 2009

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4 <strong>Review</strong> <strong>of</strong> <strong>Dementia</strong> <strong>Services</strong> <strong>in</strong> Westm<strong>in</strong>ster by the Health Policy and Scrut<strong>in</strong>y Sub-Committee Westm<strong>in</strong>ster City Council <strong>Review</strong> <strong>of</strong> <strong>Dementia</strong> <strong>Services</strong> <strong>in</strong> Westm<strong>in</strong>ster by the Health Policy and Scrut<strong>in</strong>y Sub-Committee Westm<strong>in</strong>ster City Council 5<br />

Lead Member’s Introduction<br />

I am delighted to <strong>in</strong>troduce this report. As members<br />

<strong>of</strong> the post war baby boom, we are probably better<br />

<strong>in</strong>formed than any generation <strong>of</strong> the consequences<br />

<strong>of</strong> old age, whilst the new 60s is now considered to<br />

be the old 40s.<br />

Scarcely a day goes by where there<br />

is not a press report or television<br />

programme about the problems<br />

encountered by those suffer<strong>in</strong>g<br />

from dementia either at home<br />

or <strong>in</strong> care homes. In many cases<br />

people and their families suffer<br />

<strong>in</strong> silence just blam<strong>in</strong>g advanc<strong>in</strong>g<br />

years until a serious crisis presents<br />

itself. Early diagnosis and a care<br />

plan with help from services such<br />

as the new Memory Service and<br />

appropriate day centres to enable<br />

carers, particularly if they are a<br />

close relative, to have a break<br />

are all essential. Appropriate care<br />

homes or respite care are also<br />

alternatives.<br />

This report, which covers the visits<br />

made and group sessions attended,<br />

is an attempt to address dementia<br />

issues <strong>in</strong> Westm<strong>in</strong>ster. I enjoyed<br />

meet<strong>in</strong>g the patients, carers and<br />

pr<strong>of</strong>essionals dur<strong>in</strong>g late summer<br />

and autumn <strong>2009</strong> and hope that<br />

the f<strong>in</strong>d<strong>in</strong>gs and recommendations<br />

<strong>in</strong> this report will help <strong>in</strong> the<br />

treatment and future well-be<strong>in</strong>g<br />

<strong>of</strong> those <strong>in</strong> all stages <strong>of</strong> dementia.<br />

My thanks goes to Jude Sweet<strong>in</strong>g<br />

for help<strong>in</strong>g to coord<strong>in</strong>ate all the<br />

various strands and my best<br />

wishes go to all who so will<strong>in</strong>gly<br />

contributed to this report which<br />

I hope will help to <strong>in</strong>crease our<br />

knowledge base.<br />

Councillor Frances Blois<br />

Lead Member on the <strong>Review</strong><br />

<strong>of</strong> <strong>Dementia</strong> <strong>Services</strong> <strong>in</strong><br />

Westm<strong>in</strong>ster<br />

Health Policy and Scrut<strong>in</strong>y<br />

Sub-Committee<br />

<strong>December</strong> <strong>2009</strong><br />

Executive Summary<br />

As part <strong>of</strong> <strong>in</strong>creas<strong>in</strong>g media attention and <strong>in</strong> response to the National<br />

<strong>Dementia</strong> Strategy (NDS) our Westm<strong>in</strong>ster Health Policy and Scrut<strong>in</strong>y<br />

Sub-Committe has undertaken a review <strong>of</strong> dementia services provision<br />

across the city. The review has looked at a cross section <strong>of</strong> service <strong>of</strong>fered<br />

by the council, the Central and North West London (CNWL) NHS<br />

Foundation, NHS Westm<strong>in</strong>ster and our partner organisations.<br />

With<strong>in</strong> Westm<strong>in</strong>ster dementia services are<br />

<strong>of</strong>fered by the council, NHS Westm<strong>in</strong>ster,<br />

the Central and North West London NHS<br />

Foundation, a number <strong>of</strong> third sector partners<br />

and agencies and other volunteer groups.<br />

A wide range <strong>of</strong> services are <strong>of</strong>fered by these<br />

agencies to those liv<strong>in</strong>g with dementia and<br />

their family carers. <strong>Services</strong> <strong>in</strong>clude respite and<br />

peer support services for family carers while<br />

those liv<strong>in</strong>g with dementia are <strong>of</strong>fered diagnosis,<br />

treatment and therapies, as well as on-go<strong>in</strong>g<br />

care support and day centres.<br />

The review outl<strong>in</strong>es that 70% <strong>of</strong> people<br />

liv<strong>in</strong>g with dementia <strong>in</strong> Westm<strong>in</strong>ster rema<strong>in</strong><br />

undiagnosed and this number is set to <strong>in</strong>crease<br />

from 1,648 to 2,567 by 2025. Whilst this<br />

rema<strong>in</strong>s 7% <strong>of</strong> the expected population, the<br />

comb<strong>in</strong>ation <strong>of</strong> a high percentage <strong>of</strong> older<br />

people liv<strong>in</strong>g alone and a number <strong>of</strong> hard to<br />

target groups means that the need for care<br />

packages will <strong>in</strong>crease greatly.<br />

The review has focused on the experiences<br />

<strong>of</strong> service users, both family carers and those<br />

liv<strong>in</strong>g with dementia, and <strong>in</strong> l<strong>in</strong>e with the NDS,<br />

the f<strong>in</strong>d<strong>in</strong>gs are organised around the three<br />

key objectives <strong>of</strong>:<br />

1 Knowledge and Awareness<br />

2 Early Diagnosis<br />

3 Good Service Provision<br />

Our review shows that dementia care <strong>in</strong><br />

Westm<strong>in</strong>ster is already at a high standard,<br />

however the research has also recognised<br />

some service gaps. Specifically it is noted<br />

that Westm<strong>in</strong>ster fits the national context <strong>of</strong><br />

provid<strong>in</strong>g services only at the po<strong>in</strong>t <strong>of</strong> crisis<br />

and the review makes a strong argument that<br />

early diagnosis and referrals are vital.<br />

Look<strong>in</strong>g to the future it is imperative that the<br />

new Westm<strong>in</strong>ster Memory Service succeeds.<br />

More widely, the potential for transform<strong>in</strong>g<br />

exist<strong>in</strong>g services and develop<strong>in</strong>g hub based<br />

dementia provision should be explored<br />

through bold and <strong>in</strong>novative approaches.

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