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First report on the reliability and validity of speech handicap index in ...

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patients with<strong>in</strong> <strong>the</strong> first six m<strong>on</strong>ths <strong>of</strong> <strong>in</strong>itial treatment <strong>and</strong> those over 80 years <strong>of</strong> age<br />

were also excluded from <strong>the</strong> study.<br />

Questi<strong>on</strong>naires<br />

The development <strong>of</strong> <strong>the</strong> Dutch versi<strong>on</strong> <strong>of</strong> <strong>the</strong> Speech H<strong>and</strong>icap Index (SHI) was largely<br />

based <strong>on</strong> <strong>the</strong> widely used <strong>and</strong> popular voice-specific scale <strong>the</strong> ‘Voice H<strong>and</strong>icap Index’<br />

(VHI) 32 by R<strong>in</strong>kel et al. 2 C<strong>on</strong>sequently, our English versi<strong>on</strong> <strong>of</strong> SHI (Appendix) is <strong>on</strong> <strong>the</strong><br />

same l<strong>in</strong>es. 32 It has 30 well-c<strong>on</strong>structed questi<strong>on</strong>s to evaluate <strong>the</strong> patient’s <strong>speech</strong> <strong>and</strong><br />

psycho-social functi<strong>on</strong>s. These questi<strong>on</strong>s were adapted from <strong>the</strong> orig<strong>in</strong>al manuscript <strong>of</strong><br />

<strong>the</strong> development <strong>and</strong> validati<strong>on</strong> <strong>of</strong> <strong>the</strong> Dutch versi<strong>on</strong> <strong>of</strong> <strong>the</strong> SHI. Here <strong>the</strong> questi<strong>on</strong>s were<br />

translated <strong>and</strong> <strong>the</strong>n back-translated by expert pr<strong>of</strong>essi<strong>on</strong>al translators to ensure that words<br />

<strong>and</strong> nuances are correctly matched as was c<strong>on</strong>firmed by <strong>the</strong> Dutch group. Our English<br />

versi<strong>on</strong> <strong>of</strong> <strong>the</strong> SHI is based <strong>on</strong> a Likert five- po<strong>in</strong>t scale with resp<strong>on</strong>se categories as never<br />

(0); almost never (1); sometimes (2); almost always (3) <strong>and</strong> always (4). Total SHI score is<br />

calculated by add<strong>in</strong>g all <strong>the</strong> resp<strong>on</strong>se numbers <strong>and</strong> can range from 0-120; higher scores<br />

<strong>in</strong>dicate more severe <strong>speech</strong>-related problems. In additi<strong>on</strong> to <strong>the</strong>se 30 questi<strong>on</strong>s, <strong>the</strong>re is a<br />

global questi<strong>on</strong> which rates <strong>the</strong> patient’s overall <strong>speech</strong> quality. Here <strong>the</strong>re are four<br />

resp<strong>on</strong>se categories: excellent; good; average <strong>and</strong> bad which are scored as 0, 30, 70 <strong>and</strong><br />

100. Higher scores aga<strong>in</strong> <strong>in</strong>dicate a greater <strong>speech</strong> problem.<br />

For <strong>the</strong> purpose <strong>of</strong> <strong>validity</strong>, we have utilized <strong>the</strong> UWQOL V.04 as a comparative QOL<br />

scale. This is a validated, widely-used, self-adm<strong>in</strong>istered head <strong>and</strong> neck cancer-specific<br />

questi<strong>on</strong>naire with 12 doma<strong>in</strong>s for evaluati<strong>on</strong>, <strong>speech</strong> be<strong>in</strong>g <strong>on</strong>e <strong>of</strong> <strong>the</strong>m. O<strong>the</strong>r doma<strong>in</strong>s<br />

<strong>in</strong>cluded are pa<strong>in</strong>, appearance, activity, recreati<strong>on</strong>, swallow<strong>in</strong>g, chew<strong>in</strong>g, shoulder<br />

5

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