2010 Annual Report - US TOO International

Us TOO International 

Prostate Cancer Education & Support Network 

2010 

ANNUAL REPORT 

From Passion to Action 

Celebrating TwentyYears

US TOO'S BOARD 

Us TOO’s 1990 Founders 

Us TOO’s 2010 Board of Directors 

EXECUTIVE COMMITTEE 

• Chairman: Fred Mills - San Antonio, TX 

• Vice-Chair: Kay Lowmaster - Pittsburgh, PA 

• Secretary: Carl Frankel - Pittsburgh, PA 

• Treasurer: David Houchens, PhD - Columbus, OH 

• Assistant Secretary/Treasurer: Ridge Taylor - Lake Oswego, OR 

• President & CEO: Thomas N. Kirk - Northfield, IL 

The five men who founded Us TOO back in 1990, 

L to R: John DeBoer, John Moenck, 

Edward von Holst, Edward C. Kaps, Vincent Young 

L to R Front: Fred Mills, Jack Shaff, Carl Frankel, Jerry Hardy, Jean Jeffries, Thomas Kirk. 

Back Row: Rick Lyke, Greg Bielawski, Kay Lowmaster, David Houchens, Jim Rieder, Ridge Taylor. 

( * not pictured) 

The first meeting of Us TOO in February, 1990 

US TOO'S MISSION 

Be the leading 

prostate cancer organization 

helping men and their families 

make informed decisions 

about prostate cancer 

early detection and treatment 

through 

support, education and advocacy 

DIRECTORS 

• Gregory Bielawski - Wheaton, IL 

• Jerry Hardy - Detroit, MI 

• Jean Jeffries - Meridian, ID 

• David Lubaroff, PhD - Iowa City, IA* 

• Rick Lyke - Charlotte, NC 

• James L. Rieder - Powell, OH 

• Dexter C. Rumsey, III - Irvington, VA* 

• Jack Shaff - Portland, OR 

DIRECTORS EMERITUS 

• Co-Founder: John De Boer - Elmhurst, IL 

• Co-Founder: Edward C. Kaps - Fountain Hills, AZ 

• Immediate Past Chairman: Jim Kiefert, EdD - Olympia, WA 

Us TOO’s Board Leadership Roles 

• Executive Committee Chairman: Fred Mills 

• Board Membership Committee Chairman: Carl Frankel 

• Finance Committee Chairman: Greg Bielawski 

• Program Committee Chair: Kay Lowmaster 

• Development Committee Chairman: David Houchens 

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FROM PASSION TO ACTION 

In Review, During 2010 Us TOO... 

■ Added new members to the Us TOO Board of Directors 

and increased core committee activities in the Program 

and Development areas as outlined in the Us TOO 

Strategic Plan. 

■ Organized and conducted a successful 20th Anniversary 

Prostate Cancer Summit, Symposium and 

Celebration,“From Passion to Action: Us TOO at 20.” 

2010 Staff 

Thomas Kirk : 

Pamela Barrett : 

Terri Gibbons : 

Jackie Konieczka : 

Ryan Maguire : 

From Passion 

To Action : 

UsTOO at 20 

The UsTOO International 

Summit, Symposium & Celebration 

August 20 - 21, 2010 

Chicago, Illinois 

Hyatt Regency O’Hare 

President & CEO 

Development Director 

Program Manager, Chapter Services 

Office Manager 

Communications Coordinator 

■ Held two meetings of the Us TOO Prostate Cancer 

Business Leadership Council which was initiated during 

2009. 

■ Reached new levels of collaboration with other prostate 

cancer organizations in the public policy area in the 

U.S. working as the Prostate Cancer Roundtable. 

■ Deepened the International Prostate Cancer 

collaborations with the World Wide Prostate Cancer 

Coalition, incorporated in 2010. 

■ Awarded a third round of the Edward C. Kaps Hope 

Awards to recognize a group of outstanding volunteers. 

■ Added new community support groups to work with the 

Us TOO home office to expand support, education 

and advocacy services. 

■ Conducted our 6th Annual SEA Blue Greater Chicago 

Prostate Cancer Walk and Run to raise awareness and 

much needed program funds. 

■ Conducted an educational Webinar/Teleconference 

“Understanding Diagnostic Testing for Prostate Cancer” 

through the Us TOO University. 

■ Teamed up to launch the “My Prostate Cancer Roadmap” 

to serve men and their families dealing with advanced 

prostate cancer. 

■ Conducted another education session during the 

Us TOO December 2010 Annual Meeting in Chicago. 

Pam, Ryan, Tom, Terri and Jackie 

■ Improved our financial position for a second year after 

the 2008 global economic downturn. 

2010 Annual Report 

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A MESSAGE FROM THE CHAIRMAN OF THE BOARD AND PRESIDENT & CEO 

2010 was Us TOO’s 20th Anniversary year. It was our second year as a leadership team – Fred’s second as 

Chairman of the Board and Tom’s sixth year as President & CEO. We remained committed to implementing 

our second year of our Strategic Plan which was approved at the end of 2008 and provided a direction for us 

through 2011. 

When we look back on the events of 2010, we are struck with the number of significant events that made up 

the year. First, we recognize the passing of Stu Porter in May of 2010 who was with us at our December 

2009 Annual meeting and fighting to battle his metastatic prostate cancer. He was so close to many of us 

and his death recommitted us to the seriousness of our fight. 

Fred Mills 

Chairman 

of the Board 


So many things happened in 2010 that will make the difference for the millions of men like Stu. First, there 

were several new developments in the search for new treatment options such as FDA approval of Provenge ® 

and Jevtana ® but the fight did not stop with approval. In 2010 we had to continue the fight during the year to 

support, inform and speak up. 

Because 2010 was an anniversary year, much planning had gone into the August “From Passion to Action: 

Us TOO at 20: Summit, Symposium and Celebration” event during 2009 

to implement a significant and valuable event. That planning paid off as 

approximately 250 people attended the event. 

Tom Kirk 

President 

and CEO 


As we committed in the Strategic Plan, we continued to build the Board and 

were very pleased to add new members Jim Rieder, Dexter Rumsey and 

Jack Shaff to the Board in 2010 and we had to say farewell to retiring Board 

members Greg Bielawski and Carl Frankel. Thank you again Greg and Carl. 

During our December Annual Meeting we were pleased to be able to hold 

our third meeting of the Us TOO Prostate Cancer Business Leadership 

Council, recognize both Greg and Carl, present another round of Edward 

Kaps “Hope Awards”, as well as hear Rabbi Ed Weinsberg present the Bill 

Blair Memorial Lecture : “Not Tonight 

Dear – Sex After Prostate Cancer.” 

Thanks to all for your ongoing support 

and hopefully the following Annual 

Report will show our highlights for 

a truly significant year in our 

organizational history. 

Rabbi Ed Weinsberg 

Sincerely, 

Greg Bielawski 

Fred Mills, Chairman 

Thomas Kirk, President & CEO 

Carl Frankel 


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WHAT DID WE TRY TO ACCOMPLISH IN 2010? 

The Us TOO Corporate Plan developed and approved by the Board of Directors in 2008 with its 

focus through 2011 best reflects what we are trying to accomplish. It addresses nine areas: 

1 Board Development 

The vision is for Us TOO to have an informed, proactive and balanced Board made up of 

men and women directly affected by prostate cancer who have competencies in business, 

fundraising and public relations. The Board Members should be willing to speak publicly 

about prostate cancer and Us TOO and its mission. 

2 Mission Statement 

Our 2008-2011 plan called for us to examine our Mission Statement. The Board 

approved the recommended modification of the Mission Statement in July 2009 to read: 

20th Year 

Celebration! 

Be the leading prostate cancer organization helping men and their 

families make informed decisions about prostate cancer early detection 

and treatment through support, education and advocacy. 

The Mission Statement made it clear we are trying to help men and their families make 

informed decisions through support, education and advocacy. Us TOO’s SEA Blue 

approach is evident in the updated Mission Statement. 

3 Chapters/Support Groups 

Communication with the hundreds of group leaders and volunteers is a high priority. 

The role of the home office is to be a facilitator and provide standards and resources 

for the independent local groups. Working with more groups is a goal. 

4 Awareness and Marketing 

The overall desired vision is to have Us TOO recognized as the organization to turn to 

who supports people at risk for prostate cancer and the men and their families dealing 

with prostate cancer and to be an active player to beat this disease. 

5 Education 

Us TOO views education as a form of empowerment of patients, their families and 

volunteers. The immediate focus during 2009 and 2010 was on the 20th Anniversary event 

while enriching and expanding the educational services of the organization such as its 

newsletters, social communities, the Helpline and educational webinars and teleconferences. 

6 Minority and Underserved Populations 

With the completion of the five year Minority and Underserved Outreach Pilot Program with 

CDC in the fall of 2008, Us TOO will plan for next steps and continue to utilize contacts 

and materials developed during the project. Us TOO is committed to the Circles of Love 

program to support women affected by prostate cancer. 

7 Advocacy 

Continue to work in collaboration with other groups to move forward to priorities 

developed in the advocacy plan. 

8 Fundraising and Resource Development 

Develop and implement a broad range of options for donors to support Us TOO’s mission. 

9 Collaboration 

Develop further the collaborations with other groups nationally and internationally to 

leverage Us TOO’s resources. 


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From Passion To Action :UsTOO at 20 

The UsTOO International Summit, Symposium & Celebration 

for Men and their Families Battling Prostate Cancer 

AUGUST 20 - 21, 2010 • CHICAGO, ILLINOIS 

Designed for over a year, the August 2010 event featured a pre-symposium advocacy summit, a major symposium, 

exhibitors, awards and a celebration to recognize our 20 years of peer support, education and advocacy. 

It featured prominent leaders, prestigious faculty and valued staff and volunteers from partnering organizations. 

It was supported by more than two dozen corporate sponsors and drew approximately 250 people from the U.S. 

and several other countries as well. It was a major accomplishment for Us TOO and resulted in 

video resources placed on the Us TOO website. 

Pre-Symposium Summit Registration at Hyatt Regency O’Hare 

Advocacy Summit 

The room was “PACKED” 

Moving Beyond the Confusion 

About Prostate Cancer Screening, 

Diagnosis and Treatment 

Featured faculty addressed new Prostate Cancer Guidelines from 

NCCN, ACS and AUA, as well as efforts to develop improved imaging 

with a reactor panel of members representing prostate cancer 

organizational members of the Prostate Cancer Roundtable. 

Looking forward, members of the session spent considerable 

time planning strategies to “move beyond the confusion.” 

continued... 


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Advocacy Summit ...continued 

Moving Beyond the Confusion About Prostate Cancer Screening, Diagnosis and Treatment 

James L. Mohler, MD 

Don Lynam - Us TOO Advocacy Chaiman 

FEATURED PRESENTERS: 

James L. Mohler, MD 

Roswell Park Cancer Institute and Chair of the 

NCCN Guidelines Panel for Prostate Cancer 

Durado Brooks, MD, MPH, 

Director of Prostate and Colorectal Cancers 

at the American Cancer Society 

Paul F. Schellhammer, MD, FACS 

Survivor, Past Chairman, American Urological Association 

Faina Shtern, MD 

President and CEO, AdMeTech Foundation 

REACTOR COMMENTS FROM: 

Skip Lockwood and Kevin Johnson 

ZERO - The Project to End Prostate Cancer 

Tom Ferrington 

Prostate Health Education Network (PHEN) 

Mike Scott 

Prostate Cancer International 

Scott Williams 

Men’s Health Network 

Lew Musgrove 

National Alliance of State Prostate Cancer Coalitions (NASPCC) 

Wendy Poage 

Prostate Conditions Education Council (PCEC) 

Durodo Brooks, MD MPH 

Lew Musgrove 

Tom Kirk 

Dr. Faina Shtern, MD 

Dr. Kandusi 

Craig Pynn 

Kathie and Dave Houchens 

Bill Seidel 

Wendy Poage 


6




Advocacy Summit ...continued 

Group Discussion: Moving Beyond the Confusion About Prostate Cancer Screening, Diagnosis and Treatment 


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Us TOO University 

Education Symposium 

Us TOO University Education Symposium 

session featured presentations and panel 

sessions featuring outstanding faculty, 

a leadership panel and exhibits. 

Fred Mills 

Chairman of the Board, Us TOO International 

Tom Kirk 

President & CEO, Us TOO International 

Kay Lowmaster, MSW, LCSW 

Vice-Chair, Program Committee Chair, Us TOO International 

Kick-Off Presentation 

Where Do We Stand 

with Prostate Cancer Today 

in Illinois and Nationwide? 

Damon T. Arnold, MD, MPH 

Director, 

Illinois Department of Public Health, Survivor 

Current and Newsworthy 

Prostate Cancer Info 

You Need To Know 

Jonathan McDermed, PharmD 

Director of Scientific and Clinical Affairs, 

IRIS Diagnostics 


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Exhibits and Meet the Authors 

Event Supporters and Exhibitors 

Diamond 

Amgen 

Dendreon 

sanofi-aventis 

Platinum 

Endo Pharmaceuticals 

Genentech 

Sapphire 

Centocor Ortho Biotech 

Millennium Pharmaceuticals 

Gold 

GlaxoSmithKline 

Silver 

American Medical Systems 

Aureon Biosciences 

Dominick's 

Hollister 

Veridex 

Bronze 

Ferring Pharmaceuticals 

GTx 

Exhibitor 

Abbott 

Accuray Cyberknife 

Cancer Treatment Centers of America 

Congressionally Directed Medical Research Program 

Dattoli Cancer Center 

Hitachi Medical Systems America 

iCAD 

Theragenics Corporation 

UroPartners 

Info Table 

“Meet the Authors” book signings 


SEA Blue Prostate Cancer 5K run/3K walk 

Conquer Prostate Cancer leather wristbands 

Prostate Cancer Research Institute (PCRI) 

Wellness Place 

Cancer Legal Resource Center 

Time of Your Life Players presents: 

A life affirming musical about prostate cancer 


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It’s Time to Paint the Town... BLUE!! 

20 Year Gala Dinner 


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Us TOO Leadership Panel and Awards 

Us TOO 

20 Years Later: 

Still Relevant. Still Involved. 

Discussing Us TOO’s early, middle, current 

and future years. 

Moderators 

Fred Mills 

Current Chairman of the Board, Us TOO International 

Kay Lowmaster 

MSW, LCSW, Vice-Chair, 

Program Committee Chair, Us TOO International 

Tom Kirk 

President & CEO, Us TOO International 

Panelists 

Edward C. Kaps 

Director Emeritus, Co-Founder, 

Past Chairman, Us TOO International 

Gerald Chodak, MD 

Founding Physician Organizer, 


Jim Kiefert, EdD 

Director Emeritus, 

Us Immediate TOOPast Awards Chairman, Us Presentations 

TOO International 

Lew Musgrove 

Past Chairman, Us TOO International 

Collaborative Organization Award 

Wellness Place 

Family Action Award 

Trinco Family 

Business Initiative Award 

Chris Lockett, Dendreon Corporation 

Collaborative Chapters Award 

Us TOO Washington: 

Olympia, Seattle, Shelton, and Tacoma 

Outstanding Advocate Award 

Fred Gersh 

Angel Award 

To the families of Ronald L. Gabriel, 

Arthur G. Davis and Tomlin Braxton Horsley, Jr. 

Outstanding Corporate Development Award 



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Saturday’s Symposium 

Fad Diets, Dietary Supplements and Rx 

for Prostate Cancer: 

What Works and What Is Worthless From A to Z 

Mark A. Moyad, MD, MPH 

Department of Urology, 

University of Michigan Medical Center, Jenkins/Pokempner 

endowed Director of Preventative & Alternative Medicine 

Taking Action Against Recurrence and Advanced 

Disease with Second Line Hormonal Therapy 

Charles “Snuffy” Myers, MD 

President, Foundation for Cancer Research & Education (FCRE), 

Survivor 

Radiation Therapy for Prostate Cancer: 

It’s Evolutionary, It’s Revolutionary 

Michael J. Dattoli, MD 

Founder and Physician in Chief, Dattoli Cancer Center 

& Brachytherapy Research Institute 

Update on the DOD Prostate Cancer Research 

Program & Consumer Reviewers 

Captain E. Melissa Kaime, MD 

Director of the Congressionally Directed 

Medical Research Programs (CDMRP) 

Us TOO Awards Presentations 

The Changing Landscape of 

Prostate Cancer Treatment 

Paul F. Schellhammer, MD 

FACS, Survivor, Past Chairman, 

American Urological Association 

Meeting the Challenges of Intimacy 

and Incontinence – Panel Discussion 

John P. Mulhall, MD 

Director, Sexual and Reproductive Medicine Program, 

Division of Urology, Memorial Sloan-Kettering 

Cancer Center 

David and Kathie Houchens 

Survivor and Spouse 

Dennis Holt 

Survivor and Advocate 

Panel Session: Taking Passion to Action 

Support & Education + Awareness & Advocacy = 

Empowerment & Action 

Shuttle departs hotel for 

Pints for Prostates Fundraising Event 


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WHAT WERE OUR 2010 AREAS OF ACTIVITY AND FOCUS? 

CHAPTER SERVICES 

Five editions of the 

Chapter News! to highlight 

volunteer activities and 

increase idea sharing. 

Core to Us TOO’s mission of helping people is having motivated, 

passionate and active volunteers providing peer-to-peer support 

and education at the community level through the 325 support groups, 

working with Us TOO throughout the world. 

Hope Awards 

Awarded at the 2010 Annual Meeting, the third year 

Edward C. Kaps Hope Awards were presented to 

volunteers who showed outstanding commitment 

for people living with prostate cancer. 

Rex Zeiger, 2009 Edward C. Kaps Hope Award 

Winner, Ed Kaps, one of the founders of Us TOO 

International, Ralph Valle 2008 recipient of the 

Edward C. Kaps Hope Award, & Jim Kiefert, Director 

Emeritus of Us TOO all join to honor Rex Zeiger! 

Bill Whitmore 

Yummy Cake! 

Mmmmmm... 

Recipients for 

2010 Hope Award: 

• Willie Cotton, AZ 

• George Melton, IL 

• Henry Plunkett, TX 

• Craig Schmidt, NY 

• Judi Sumoski, PA 

• Bill Whitmore, MA 

NEW 2010 

CHAPTERS / SUPPORT GROUPS 

SOUTHEAST 

Us TOO Florida Gulf Coast – Naples, FL 

Tom Kirk, Us TOO Pres/CEO, Craig Schmidt, 

Terri Gibbons Chapter Services Program 

Manager, and Shirley Schmidt 

George Melton and his wife Sara 

MIDWEST 

Us TOO AUA Prostate Cancer Center – Joliet, IL 

Us TOO Wauwatosa, WI 

EAST COAST 

Us TOO/ Man to Man Johnston County – 

Clayton, NC 

NORTHWEST 

Us TOO Friday Lunch/Advanced Group – 

Florence, OR 

Us TOO Upper Williamette Valley – 

McMinnville, OR 

INTERNATIONAL 

Us TOO 50 Plus Campaign – 

Tanzania, Africa 

Us TOO Grand Bahamas – 

Freeport, Grand Bahama 

Willie Cotton, 

Terri Likowski 

and Tom Kirk 

Henry 

Plunkett 

Members of the Us TOO Lancaster 

Pennsylvania Support Network donated a tree 

to Judi and Tom Sumoski (pictured center 

from left to right) in memory of Judi’s brother 

Paul who passed away from Prostate Cancer 


13


CHAPTER SERVICES 

(continued) 

One of the 

founding members 

Charles Sands 

starts the meeting. 

Love the shirt, Charles! 

US TOO 

GRAND BAHAMAS 

IN FREEPORT, 

GRAND BAHAMAS 

Chapter Leader Valentine Maura talk to a group of 30 men about 

prostate cancer awareness and the need for early detection. 

Several men and their familes from the 

Us TOO Freeport, Grand Bahama Chapter 

walked through town together to promote 

prostate cancer awareness in their 

community. They did not have 1,000 men, 

but it is their goal to grow this event every 

year in order to promote well needed 

awareness and education throughout 

the island about prostate cancer and the 

need for early detection. 


BILL BLAIR 

CHAPTER 

IN PALATINE, 

ILLINOIS 

US TOO PAHRUMP 

IN PAHRUMP, NEVADA 

Bill Blair Chapter Steering Committee meeting. 

(l to r): Rich Wysocki, Geoff Iverson, Randy Drymiller, Russ Gould, 

Harvey Orlov, and Shirley Grey. Not pictured Cliff Whall 

(Front row from left to right): Jim Stein, Bob Vodde, Laine Seidel. 

(Back row, from left to right): Fred Barnes, Larry Kumfer, 

Mel Smith, Bill Seidel, and Paul Blanks. 


FORT WAYNE 

IN 

FORT WAYNE, INDIANA 

The Us TOO chapter in Fort Wayne, IN, 

sponsored by Cancer Services of 

Northeast Indiana, supported a free 

PSA screening. The screening was 

provided by Parkview Hospital. Us TOO 

provided volunteers to handle 

registration and to direct applicants 

through the local baseball stadium to 

the testing area. . The tee shirts with 

blue ties are part of Cancer Services’ 

annual prostate cancer awareness 

and educational events called 

“Tie 1 on 4 Prostate Cancer” © . 

Dr. Vogelzang speaks at the 

Pahrump Nevada Senior Center. 

(l to r): Jim Gregory, Chairman Us TOO Pahrump, 

Dr. Vogelzang, Tom Waters, Recorder, Jim Terrell, 

Historian, George Mapes, Treasurer, Dr. John Socey, 

board member and Jim Grownmann, 

President Senior Center Board. 

Sample of new chapter logo coming soon 


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AWARENESS 

In 2010, Us TOO again partnered with Wellness Place to conduct the 6th Annual SEA Blue Prostate 

Cancer Walk & Run in Lincoln Park in downtown Chicago. The event proceeds fund expanded prostate 

cancer awareness, support and education services through Wellness Place and Us TOO. 

Nearly 1,300 people were in attendance on September 19, 2010. Including event founders Myrna Porter, 

Shirley Grey, and Russ Gould, as well as Us TOO founder Ed Kaps. 


15


AWARENESS 

(continued) 


16


AWARENESS 

(continued) 

Pints for Prostates, founded in late 2008 by Us TOO Board member and prostate cancer 

survivor, Rick Lyke, with the mission of “Reaching men through the universal language of beer” is 

now an independent 501(c) 3 organization which continued to support Us TOO with donations 

and collaborate with Us TOO’s home office and affiliated support groups and chapters. 

During 2010 Us TOO's home office and local groups were active organizing and 

attending awareness events throughout our Anniversary year including during the 

20th Anniversary celebration. 

SECOND 

YEAR! 

GREATEST 

AWARENESS CAMPAIGN! 


17


AWARENESS 

(continued) 

ROCK OUT 4CANCER 

CHICAGO, ILLINOIS 

Hard Rock Café Chicago opened its doors 

and hosted a great event for four charities. Rock 

Out 4 Cancer was a huge success. 

It was a first for all 4 charities to come 

together for this type of event complete 

with celebrities from TV, Music and Sports. 

(l to r) Johnny Immerman from Immerman’s Angels, Ed Randall from Fans for the Cure, 

Laurie Dimakos from Fans for the Cure, Tom Kirk from Us TOO International and 

Tom Leonhardt from St. Baldrick’s Childrens Foundation. 

Launched in 2010 by 

volunteers Jan Brown and 

designer Joseph Bruno to raise 

awareness of prostate cancer 

and all the proceeds are 

donated exclusively to 

Us TOO International. 

CONQUER 

PROSTATE CANCER 

BLACK LEATHER WRISTBAND 

WITH BLUE RIBBON MEDALLION 

COMMUNITY HEALTH FAIR 

LANCASTER, OHIO 

50 PLUS CAMPAIGN 

TANZANIA, AFRICA 

Rev. Canon Kandusi (center) founder of the 

Tanzania 50 Plus Campaign and Us TOO leader 

share a two hour visit with President Alhaj Ali 

Hassan Mwinyi. (far left) Presidnet Mwinyi is a 

patron to the Tanzania 50 Plus Campaign. The 

Campaigns goal is to reduce the sufferings and 

deaths caused by prostate cancer in Tanzania. 

(l to r): Ray and Linda Hoetger, 

Bill Stevens, Tom Smith, Keith 

Stought and Clarence Coffey 

from the Us TOO Lancaster 

Ohio Chapter man an Us TOO 

table at their annual 

Community Health Fair. The 

event included 80 vendors and 

over 1000 were in attendance! 

PROSTATE CANCER AWARENESS DAY 

DOVER, DELAWARE 

From left to right: Pete Tutroni 

from SanofiAventis, Facilitator of 

the Us TOO Dover Chapter, 

David Sauls , survivor and community 

health outreach educator 

and Us TOO Leader, Michael 

Zaragoza MD, Mrs. Zaragoza 

and Denise Clemens. Eden Hill 

Medical Center sponsored a 

Prostate Cancer Awareness 

Day in September. 

HEALTH FAIR 

SHELTON, WASHINGTON 

Folks form the Mason-Shelton Chapter in 

Washington man a booth at a health fair. 

(l to r): Hal Parks, Joan Prastka and attendee 

Karl Ostheller. Not pictured, Bill Prastka 

Chapter leader shares that their goal is to 

raise community awareness regarding 

incidence, early detection and the benefits 

of early treatment for prostate cancer 

through-out their community. 

PATIENT INFORMATION 

MONTHLY NEWSLETTER 

The Us TOO 

monthly HotSheet 

provides the 

latest information 

to tens of 

thousands 

of people 

each month. 

NEW 

RESOURCES 

During 2010, Us TOO 

expanded our teleconference 

efforts by continuing a 

webinar approach and 

conducted a session on 

Understanding Diagnostic 

Testing for Prostate 

Cancer Patients. 


18 

Us TOO collaborated with 

Centocore Otho Biotech on 

the development and launch 

of the new “My Prostate 

Cancer Roadmap” for men 

and their families who have 

Advanced Prostate Cancer.


EDUCATION 

Nearly 5.5 million hits were recorded 

during 2010 on the Us TOO website. 

Education and support was available 

through the News You Can Use section, 

the new in 2009 Prostate Cancer Inspire 

Community which grew by over 100% 

totalling 750 members in 2010. 

Prostate Pointers continued with nearly 

11,000 subscribers posting nearly 5,000 

posts and the Wiki services also saw 

growth in the number of subscribers. 

Us TOO Prostate Cancer Support Community 

Providing education and support 

for family members through the 

Circles of Love Program which 

provided articles on diet and 

psychological issues for the 

Chapter News! throughout 

the year in 2010. 

PUBLICATION DISTRIBUTION 

Us TOO has developed a large inventory of education and awareness materials 

which are available in the Information Request Center. More than 1,000 individuals 

requested our 89,000 pieces of awareness and educational material in 2010. 

ADVOCACY 

Fred Gersh (left) is presented 

the Us TOO “OUTSTANDING 

ADVOCATE AWARD” by 

President/CEO Tom Kirk at the 

Us TOO 20 Year Anniversary 

Gala Dinner 

Us TOO continued to be active in its commitment to advocating 

for action on prostate cancer in 2010 and collaborating with other 

organizations and groups. 

In 2010: 

• Volunteers representing Us TOO attended meetings in 

Washington, DC of The Career Leadership Council and 

One Voice Against Cancer. 

• Volunteers and staff of Us TOO were active in the developing 

Prostate Cancer Roundtable. 

• Volunteers and staff of Us TOO worked in collaboration with 

PCRI and Dr. Mark Moyad to develop a petition regarding the 

Federal coverage of Dendreon’s Provenge ® for men with 

advanced disease. Nearly 4,200 petition signatures were 

gathered and presented by the end of 2010. 

• Volunteers and staff of Us TOO also attended and presented 

testimony at the November 2010 Medicare Evidence Development 

and Coverage Advisory Commitee (MEDCAC) in Baltimore, MD. 

On May 28, 2010 Dendreon officials and 

prostate cancer advocates including 

Russ Gould from the Bill Blair Chapter and 

Us TOO President & CEO Tom Kirk 

rang the NASDAQ Opening Bell to celebrate 

the approval of Provenge ® to treat men 

with advanced prostate cancer. 


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COMMUNITY FUNDRAISING AND AWARENESS 

Survivors Participate in QUAD CITIES 

MARATHON AND RELAY 

Over 4,700 participants in the 

...AND CAR SHOW 

26 mile run, Half Marathon, 5 mile race, & Walk. WITH MRS. ILLINOIS! 

VALVOLINE SUPPORTS 

US TOO AWARENESS 

IN OREGON AND WASHINGTON STATE 

Bill Palos’s (right) with Michele Beckwith, 

at the Quad Cities Car Show. Mrs. Illinois 

The Prostate Cancer Survivor Team won 

2008 is from the Quad Cities. Her father 

second place in their division for the best time. 

died from prostate cancer, and she 

Front Row: Frank Bay and Gary Loy. 

volunteered to be a spokesperson for 

Back row: Daryl Reitz, Jim Vinton & John Thompson. 

Us TOO International. 

BASS TOURNAMENT 

IN TEXAS 

PADDLING FOR PROSTATES 

IN CHICAGO, ILLINOIS 

Mike Jones, Us TOO Austin Texas Support 

Group Leader gets “big hugs” and thanks for 

organizing the Fish for the Cure Charity Bass 

Tournament & Fish 

Fry in Canyon Lake, 

Texas. 

Mike Jones and 

some of the 

fisherman hold the 

Us TOO Banner 

with pride! We 

heard the biggest 

fish caught was 

bigger than the Us 

TOO banner...? 

BOISE IDAHO BEER FESTIVAL 

US TOO TREASURE VALLEY 

Us TOO Board Member 

Jean Jeffries takes her idea 

for “Pretzels for Prostates” 

to the bank! 

“Ride the River” for prostate 

cancer awareness was a 

BLAST! 

CHECK AWARDED 

FROM DOMINICK’S FOOD STORES IN CHICAGO, ILLINOIS 

The Us TOO SEA Blue Prostate Cancer 

team participated in the relay portion 

of the Chicago Kayak Marathon. Each 

team had four paddlers, and each 

paddler completed one leg of the race. 

Team members were: 

(left to right): Shirley Grey, Donna Salvatore, 

Maria Wilder and Pam Barrett from the Us TOO staff. 

Shirley Grey 

Tom Kirk, President & CEO, Us TOO International, (center) receives a $5,000 

check from Dominick’s President and prostate cancer survivor, Don Keprta, (far 

left) in support of Us TOO patient education and support programs and services, 

at the Dominick’s & The Chicago White Sox Strike Out Prostate Cancer Program, 

held Wed, June 9, 2010 in Chicago, IL. Bob Jordan WGN anchor (far right) MC’d 

the event. Bob Jordan has also been the MC for the Chicago SEA Blue Run/Walk 

the past few years. 


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FINANCIALS 

Us TOO International Revenue and Expense Statement 

Year Ended December 31, 2010 Us TOO International Us TOO Chapters Total 

REVENUE 

Grants and Contributions $ 1,051,616 $ 0 $ 1,051,616 

Events, Net $ 97,377 $ 0 $ 97,377 

Chapter Revenues $ 34,077 $ 10,973 $ 45,050 

Other Income $ 24,831 $ 0 $ 24,831 

Total Support and Revenue $ 1,207,901 $ 10,973 $ 1,218,874 

EXPENSES 

Program Services 

Awareness and Patient Info $ 228,359 $ 0 $ 228,359 

Advocacy $ 31,266 $ 0 $ 31,266 

Chapter Services $ 246,037 $ 519 $ 246,556 

Education Programs $ 359,028 $ 0 $ 359,028 

Total Program Expenses $ 864,690 $ 519 $ 865,209 

SUPPORTING SERVICES 

Fund Raising $ 74,319 $ 0 $ 74,319 

Management and General $ 124,647 $ 0 $ 124,647 

Total Supporting Services $ 198,966 $ 0 $ 198,966 

Total Expenses $ 1,063,656 $ 519 $ 1,064,175 

Change in Net Assets $ 144,245 $ 10,454 $ 154,699 

The Us TOO Chapter Revenue and Expenses, for the most part, are not included in the Us TOO International, Inc. financial audit conducted by John Kopczyk, 

Ltd., Certified Public Accountants. The majority of Us TOO chapters are small community groups that do not solicit or raise finds. Information was received from 

38 chapters reporting for the calendar year 2010 ending December 31, 2010. The groups in Houston,TX, Greenville,SC, East Amherst, NY and New York City, NY 

reported revenues and expenses that appear in the 2010 audit under Chapter Revenue and Expense. 

The unaudited reports submitted by the chapters summarize the revenue and expense activity of their group. The compilation report was compiled from the 

34 groups reporting income and expenses and was combined into a report by the Us TOO staff for management reporting purposes and are listed above under 

Us TOO Chapters. The accounting practices of the local Chapter groups are not necessarily the same practices followed by the Us TOO International office. 


21

FINANCIALS 

STATEMENT OF ACTIVITIES 

Year ended December 31, 2010 and 2009 

PUBLIC SUPPORT AND OTHER REVENUES 

Direct Public Support 

Special Events – Net Expenses 

Chapter Revenues 

Sales 

Interest and Other 

Total Revenues 

EXPENSES 

Program Services 

Fund Raising 

Management and General 

Total Expenses 

Change in Net Assets 

Net Assets Beginning of Year 

Net Assets End of Year 


$ 1,051,616 

$ 97,377 

$ 45,050 

$ 2,631 

$ 22,200 

$ 1,218,874 

$ 865,209 

$ 74,319 

$ 124,647 

$ 1,064,175 

$ 154,699 

$ 829,645 

$ 984,344 

2009 

$ 941,964 

$ 72,950 

$ 149,555 

$ 5,194 

$ 67,652 

$ 1,237,315 

$ 721,043 

$ 110,397 

$ 113,105 

$ 944,545 

$ 292,770 

$ 536,875 

$ 829,645 

STATEMENT OF FINANCIAL POSITION 

As of December 2010 and 2009 

ASSETS 

Cash 

Investments 

Grants Receivable 

Other Receivable 

Prepaid Expenses 

Security Deposit 

Furniture and Equipment 

Leasehold Improvements 

Less Accumulated Depreciation 

Total Assets 

LIABILITIES 

Accounts Payable 

Accrued Expenses 

Total Liabilities 

NET ASSETS 

Unrestricted 

Temporarily Restricted 

Permanently Restricted 

Total Net Assets 

Total Liabilities and Net Assets 


$ 50,801 

$ 1,020,539 

$ 0 

$ 16,329 

$ 6,723 

$ 2,150 

$ 26,102 

$ 11,398 

$ (32,736) 

$ 1,101,306 

$ 37,751 

$ 79,211 

$ 116,962 

$ 696,811 

$ 287,533 

$ 0 

$ 984,344 

$ 1,101,306 

2009 

$ 131,368 

$ 827,045 

$ 4,944 

$ 1,029 

$ 6,689 

$ 2,150 

$ 21,412 

$ 11,398 

$ (31,727) 

$ 974,308 

$ 17,841 

$ 126,822 

$ 144,663 

$ 519,742 

$ 309,903 

$ 0 

$ 829,645 

$ 974,308 


22

FINANCIALS 

REVENUE 

Total 2010 Public Support & Other Revenue: $ 1,218,874 

■ Grants and Donations: 86.3% 

0.2% 

■ Chapter Revenue: 3.7% 

■ Special Fundraising Events, Net: 8% 

■ Interest and Other Income: 1.8% 

■ Sales of Education Material Merchandise: 0.2% 

1.8% 

3.7% 

8% 

86.3% 

EXPENSES 

Total 2010 Functional Expenses: $ 1,064,175 

■ Total Program Areas: 81.3% (broken out below) 

• Chapter Services: 23.2% 

• Awareness, Patient Information: 21.4% 

• Education Programs: 33.7% 

• Advocacy: 3% 

11.7% 

7% 

■ Management and General: 11.7% 

■ Fundraising: 7% 

81.3% 

Us TOO International meets the requirements of the National Health Council Standards of Excellence Certification Program, 

full compliance was originally achieved in September 2006 for three years and in 2009 for another three years. 


23

DONORS 

Over $100,000 

Estate of Tomlin Braxton Horsley, Jr. 

$99,999 to $50,000 

Amgen USA 

Dendreon Corp. 

ENDO Pharmaceuticals 

Estate of Ronald L Gabriel 

Genentech 

Millennium Pharmaceuticals, Inc. 


$49,999 to $25,000 

Centocor Ortho Biotech 

Pints for Prostates, Inc. (Rick Lyke) 

Veridex, LLC 

$24,999 to $10,000 

Aureon Laboratories 

GlaxoSmithKline 

Mediaplanet Publishing House Inc. 

$9,999 to $5,000 

American Medical Systems, Inc. 

Anonymous Individual 

Dominick's Charitable Foundation 

Hollister, Inc. 

K& R Lube, Inc. 

Peck, David 

State of New Mexico 

$4,999 to $2,500 (continued) 

Ferring Pharmaceuticals, Inc. 

Prostate Cancer Research & Education Foundation 

Taylor, Ridge 

Us TOO Marin Prostate Cancer Support Group 

ZS Associates 

$2,499 to $1,000 

Alaska Men's Run 

Bielawski, Greg 


Dattoli Cancer Center 

Enterprise Holdings 

Frankel, Carl B. 

Gillette, Mr. & Mrs. Richard F. 

GTx, Inc. 

Hardy, Jerry and Jo Anne 

Houchens, David P & Kathleen A. 

Human Service Charities of America 

ICAD, Inc 

John Deere Classic 

Kirk, Thomas & Margaret 

Lowmaster, Kay & Dennis 

Mills, Fred 

Moen, Eric 

Price Financial Group LLC 

Revolution Pizza & Pub, Inc. 

The National Bank 

Theragenics Corp 

Walt, Matthew 

Winfield Foundation 

Zeiger, Rex M. 


24

DONORS 

$999 to $500 

Bidgood, Richard 

Capital Triumph Register 

C. R. Bard Foundation, Inc. 

Give with Liberty 

Horney, Robert R. 

Idaho Institute 

Jeffries, Wendell R. 

Lubaroff, David M. 

Main Street Mile Men's Health Fund 

Mark Krueger & Assoc., Inc. 

National Cinemedia 

Nelson, Chelle 

Olsson, MD, Carl 

Palos, William & Sandra 

Rieder, James L. 

Ross III, John D. 

Rothfelder, Ernest 

Seidel, William 

Sutter East Bay Hospitals 

The Lash Group, Inc 

Tunon, Lynda 

Us TOO PSA North Of England 

Weidener, James 

Weinstein, Steven P. 

Weiss, Stephen L. 

$499 to $200 

Adams, Elroy & Blanche 

Baxter International Foundation 

Bersh, Brad 

Booth, Matt 

Cannon, Pau 

Capitol Beverage Co. 

$499 to $200 (continued) 

Carroll, Paula 

Centex Beverage, Inc. 

Chamberland, Donald 

Collins, Kerry 

Davidson, Arthur 

Disabled American Veterans Chapter 15 

Doahue, John D. 

Fidoten, PhD, Robert 

Finkel, Rose Ann 

Fish Tale Brew Pub 

Folta, Gerald V. 

Freshour, Richard 

Gersh, Frederick S. 

Healey, Kevin 

Heiner, Jared & Jan 

Kelner, Douglas 

Kerr, Patricia J. 

Kumar, Ravindra 

Little, Chad JU. 

Maine Coalition to Fight Prostate Cancer 

Marks, Steven 

Moon DDS, Peter 

Nason, Carol A. 

Pfeiff, William 

Prolo, Beverly 

Raney, Robert & Sadie 

Rockow, Renee 

Ryder, Kelli 

Silver Creek Capital Management LLC 

Schauer, Mr. & Mrs. Robert & Michael 

Schmidt, Craig L. 

Shelton, MD, Artie L. 

St. Luke's Regional Medical Center 

South Texas Health System 

Summerhill Estates, Inc. 


25

DONORS 


Sysco Idaho Inc 

The Hartford Insurance 

The Lockwood Grroup LLC 

The Tackle Box 

Tichenor, Michael 

Us TOO Modesto 

Us TOO of WNY 

Us TOO Bert Chamberland 

Us TOO Silicon Valley 

Us TOO South Austin 

Walsh, Raymond 

Washington State PC Coalition 

Weipert, Gerald 

Wice, Cathy 

Wilberg, Amanda 

$199 to $100 

Abbott Laboratories Employee Giving 

Badenell, Edward 

Ballard, William E. 

Bastian, Richard A. 

Bourque, Karl 

Brown, Raymond & Tammie 

Burns, William 

Campbell, Bernard E. 

Claiborne, David 

Clancy, Cynthia 

Clark, Franklin 

Cline, Robert 

Condon, John 

Corbin, Jan 

Covell, Richard K. 

Currell, Daniel 


Curry, Royal & Stella 

Dagg, John L. 

DeBoer, John & Edith 

DeBose, George 

DeWulf, James 

Dilling, Lt Col Roger 

Dunphy, Mark L. 

Erlander, Lesley 

Fagin, MD, Randy 

Freeborn, Robert A. 

Finberg, Stanley 

Fronczek, Kelly 

Gadson, Julius & Thelma 

Gaines, John & Josephine 

Gee, Russell 

Gerhardt, Alvin 

Gilmore, Jane & Charles 

Gooch, Catherine 

Gottschalk, Charles 

Graham, Clifford 

Graves, Friend 

Hall, Clint 

Hammack, James C. 

Harvest, Joseph & Jacqueline 

Healy, Dennis P. 

Healey, Kevin M. 

Heist, John A. 

Hernandez, Ruben 

Hesson, Tim 

Hill, Karen 

Hill, Timothy 

Holdredge, Phara R. 

Horney, Robert 

Horton, Vince & Gail 

Inflexxion, Inc. 


26

DONORS 


Jones, Jr., Mr. & Mrs. Clarence 

Jones, William A. 

Jubera, Raymond 

Kakareka, A. R. 

Kaplan, Mark 

Kilcullen, Richard 

Korek, Michael 

Kreidler, John M. 

Kuzel, Tim, MD 

Lawson, Richard 

Leisering, Patsy 

Lind, Jon U. 

Loeb, Jr., Charles G. 

Loring, Keith Wilson 

Lynn, Tom 

MacFarland, Jr., Lanning 

Macquarie Group Foundation 

Manion, Thomas 

Marcus, Myles 

McMahon, James 

McRae, Bernice 

Meaker, John 

Medical Products Sales, Inc. 

Merrill, Stephen 

Moore, Randall 

Morgan Stanley 

Muser, Jean 

Nahorski, James 

Nylen, Per 

Otis, John 

Pantleo, Phillip & Julia 

Passailaigue, Emma C. 

Patel, Dushyant 

Peress, Nancy 

Peterson, Mark A. 


Pisani, Robert 

Porterfield Family Foundation 

Presbury, Graylin 

Price, Donald 

Ramsey, James 

Rankin, Scott 

Reece, Jeffrey 

Reynolds, Fred & Elizabeth 

Riccio, Scott D. 

Rizner Backs, Janet 

Robertson, Ernest L. 

Rodgers, Jr.H Clarke & Maria A. 

Rubino, Frances & Robert 

Sachdev, Satish K. 

Saint Alphonsus Health System 

Schellhammer, Paul F. 

Schecter, Rod 

Schram, Edward J. 

Seaman, John 

Shields, Barry 

Sidbury, Barbara 

Smith, Stanford M. 

Sobel, Michael A. 

Soden, Brendan 

Sonja, Marchantm A. 

Spencer, Craig R. 

Stelly, John 

Teal, Jesse 

Thomas, James R. 

Timblin, Charles G. 

Tishman, Lonnie 

Trinco, Debra J. 

Us TOO Arrowhead 

Us TOO Brainerd, MN 

Us TOO Buffalo Metro 


27

DONORS 


Us TOO Dr. John B. Sawyer 

Us TOO Fairfield County 

Us TOO Lake Superior 

Us TOO Las Vegas, NV 

Us TOO Mason County - Shelton 

Us TOO Salem 

Us TOO Sheboygan County 

Us TOO Southern Maryland Hospital 


Us TOO Southern New Mexico 

Us TOO Wellness Community 

Walker, D. Stephen 

Ware, Xenia K. 

Webster, Mr. & Mrs. David 

Williams, Sam & Carolyn 

Wooten, Coby 

Yasenchak, Paul A. 

2010 SEA Blue Walk & Run Supporters 

$25,000 and Over 

Abbott Laboratories 

Foglia Family 

$24,999 to $10,000 

Dendreon 

$9,999 to $5,000 

UroPartners LLC 

University of Illinois 

Millenium 

Home Run Inn Pizza 

$4,999 to $2,500 

BlueCross/BlueShield Assoc. 

American Medical Systems 

Aureon 


$2,499 to $1,000 

American Eagle Packaging 

Benham, Maribeth 

Branch, James 

Gentry, Hank 


28

DONORS 

2010 SEA Blue Walk & Run Supporters 

$2,499 to $1,000 (continued) 

Kirk, Thomas & Margaret 

Paul & Marc’s Enterprises 

Porter, Myrna D. 

ProCure 

Sanofi Oncology 

SportClips 

Sprenzel, John 

$999 to $500 

Berns, Roland 

Bielawski, Greg & Nancy 

C. R. Bard Foundation, Inc. 

Galway's Bar & Grill 

Golfnutz, d' 

Koeppen, Sr., Paul & Karen 

Koeppen, Karen 

Marshall, Jr., Keith C. 

Marcussan, Maxine 

Porcaro, Mark 

Schwartz, Marc 

Stryczek, Suzanne E. 

Stryczek, Suzanne 

Weiner, Michelle 

$499 to $200 

Baxter International Foundation 

Bishop, Annette M. 

Carrales, Steve 

Cartwright, Robert 

Colovos, Peter 

Colovos, Peter & Joan 

Davenport, Don 

DeWitt, Gregory 


Dewitt, Nicholas 

D'Onofrio, Michael 

Drendel's Corner, Inc. 

Eyerly, Charles 

Fastabend, Janet 

Foresters, Harvey Branch 

Godziszewski, Michael 

IOF, Harvey Branch 

Italian American Club, D 

Krause, Mary Ann 

Krygowski, Christine 

Lee, Chung 

Lic, Stanley 

Maguire, Carole 

Oniac Foundation 

Poindexter, Yvonne 

Pulver, Don 

Pynn, Craig 

Pynn, Ward 

Robinson, Rebecca 

Ryan, Donetta 

Schwartz, Marc 

Seth Whitman Elementary School Staff Pack 

Shevrin, Daniel 

Stadler, Walter 

Thompson, Margaret 

Tooredman, Kathryn 

Veltkamp, Jody 

Vinaja, Delfina Aneira 

Vinaja, Jaclyn 

Westerhoff, Marilyn 

Westerhoff, Madeline 

Wolkin, Carl 


29

Thank You! 

Although some may not be listed by name, we wish to say 

“Thank You” 

to the numerous people and organizations that contributed 

and donated time, expertise, resources and money. 

Our appreciation to those who ordered and used 

Us TOO blue prostate cancer items, 

contributed to Us TOO through 

the Sneakers@Work Day Campaign, 

at the Quad Cities Marathon, 

through Rick Lyke’s Pints for Prostates 

and those who donated to (and joined in) 

the Sixth Annual SEA Blue Walk in Chicago’s Lincoln Park. 

All of us who contribute time and resources to assist Us TOO 

are vital to our continued growth and expanded reach. 


30


Prostate Cancer Education & Support Network 

5003 Fairview Avenue 

Downers Grove, IL 60515-5286 (USA) 

Phone: (630) 795-1002 • Fax: (630) 795-1602 

PCa Support Helpline: (800) 80-Us TOO (800-808-7866) 

Email: ustoo@ustoo.org • www.ustoo.org

2010 Annual Report - US TOO International

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