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A Publication of <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center | <strong>Winter</strong> <strong>2008</strong><br />

Cover Story<br />

01 One Mom’s Positive<br />

Message<br />

One Mom’s Positive Message<br />

Featured Articles<br />

03 A Community Works<br />

Together<br />

04 New Developments in<br />

Pharmacotherapy for<br />

Autism<br />

05 (Dis)ability through<br />

Education and Action<br />

08 “If You Want Happiness<br />

for a Lifetime, Help<br />

Somebody”<br />

09 Advocating for my Child<br />

and Others<br />

09 Think you are Getting<br />

Sick? How to Tell<br />

10 A Perfect Match<br />

Continued on page 3<br />

Vision: Persons with<br />

developmental disabilities live<br />

fully and safely as active and<br />

independent members of their<br />

community.<br />

Mission: <strong>TCRC</strong> provides<br />

person and family centered<br />

planning, services and supports<br />

for individuals with developmental<br />

disabilities to maximize<br />

opportunities and choices for<br />

living, working, learning and<br />

recreating in the community.<br />

Miah enjoys a book with her sister Morgan<br />

Miah and her mother Kerri<br />

As a parent of a child served by <strong>Tri</strong> <strong>Counties</strong> <strong>Regional</strong> Center (<strong>TCRC</strong>) and a staff member<br />

of a service provider for <strong>TCRC</strong>, Kerri Emmons has a unique and powerful perspective. In a<br />

recent interview, she explained her quest to demonstrate to other parents that learning of<br />

a child’s developmental disability can be an opportunity for an enriched family life.<br />

In her role as an early intervention specialist with Abbott and Burkhart Therapy, Kerri<br />

educates families about what to expect for the achievement of developmental milestones<br />

in early childhood. She teaches strategies for learning through play. To emphasize her<br />

positive and inspirational experiences as a parent, she often brings four year old Miah<br />

along with her. Parents have the opportunity to learn from Kerri through her instruction<br />

and observe her interactions with her own child. “Demonstrating for<br />

continued on pg 3<br />

Santa Barbara | Ventura | San Luis Obispo | www.tri-counties.org


From the Executive Director<br />

by Omar Noorzad, Ph.D.<br />

The end of the calendar year is<br />

a good time to celebrate results<br />

as well as review goals that<br />

require further work. The seven<br />

Focus Areas of the <strong>Tri</strong>-<strong>Counties</strong><br />

<strong>Regional</strong> Center (<strong>TCRC</strong>) 2007-<br />

2009 Strategic and Performance<br />

Plan form the cornerstone for the<br />

achievement of the mission and<br />

vision of the organization. The<br />

plan, aligned with the Performance<br />

and Compliance contract with the<br />

Department of Developmental<br />

Services (DDS), guides staff and<br />

leadership to achieve strategic<br />

goals, ensure basic assurances such<br />

as health and safety and enhance<br />

quality of life for persons served by<br />

<strong>TCRC</strong>.<br />

The Focus Areas of the plan offer<br />

specific objectives that consider all<br />

of these efforts. For example, as we<br />

address Family Services, progress<br />

is being made around informing<br />

new families about regional center<br />

services and planning for treatment<br />

of autism. Dr. Steven Graff, Clinical<br />

Director, along with Autism<br />

Coordinator, Colleen Duncan is<br />

spearheading this work.<br />

Addressing the Health needs of<br />

the persons we serve has been high<br />

on our list of priorities. Concerned<br />

about the resources available for<br />

medical and dental services, we<br />

have increased our efforts around<br />

development of dental resources<br />

and have partnered with CenCal to<br />

provide information about available<br />

medical services. CenCal provides a<br />

semi-annual update to the provider<br />

list for Santa Barbara and San Luis<br />

Obispo <strong>Counties</strong>. Go to the <strong>TCRC</strong><br />

web site for more information<br />

(http://www.tri-counties.org/<br />

programs-services/servicegeneric/).<br />

<strong>TCRC</strong>’s Training and Development<br />

Plan addresses in-service<br />

education and orientation for<br />

new employees as well as more<br />

in-depth training for new service<br />

coordinators. Leadership training<br />

and development has become a<br />

core topic as well. Other efforts<br />

in this area have included <strong>TCRC</strong><br />

hosting the first Southern California<br />

Gathering in partnership with<br />

East Los Angeles <strong>Regional</strong> Center<br />

in early October to promote<br />

learning around person centered<br />

thinking (PCT). The growth of the<br />

PCT initiative continues within<br />

the agency as well as through<br />

collaboration with other regional<br />

centers and service providers.<br />

<strong>TCRC</strong> staff introduced PCT to the<br />

regional center Chief Counselors<br />

Group this fall in an effort to<br />

influence state wide adoption of<br />

the principles. We are beginning<br />

to see a measurable impact of the<br />

PCT efforts. In response to the <strong>TCRC</strong><br />

2007 Services and Supports Survey,<br />

persons served reported feeling<br />

more in control of the IPP and the<br />

plan for their life than ever before.<br />

Certain analysis suggests that this<br />

shift in outlook is linked to the PCT<br />

initiative.<br />

Much progress has been made<br />

in the development of efforts<br />

to support <strong>TCRC</strong>’s affordable<br />

Housing Focus Area. I am pleased<br />

to announce that Mr. Marc Belfortti<br />

accepted the position of Executive<br />

Director of the <strong>Tri</strong>-<strong>Counties</strong><br />

Community Housing Corporation<br />

(TCCHC), a non-profit housing<br />

organization recently established<br />

by <strong>Tri</strong>-Countes Association for the<br />

Developmentally Disabled (TCADD).<br />

View the press release and the <strong>TCRC</strong><br />

Five Year Housing plan at http://<br />

www.tricountieshousing.org. This<br />

fiscal year, TCCHC will purchase<br />

two homes in Ventura County to<br />

be held in perpetuity for persons<br />

with developmental disabilities<br />

served by <strong>TCRC</strong>. These purchases<br />

will mark the beginning of the<br />

effort to secure 500 units of housing<br />

throughout the tri-counties area<br />

by 2013, benefiting approximately<br />

1500 people.<br />

Supported Employment<br />

service providers are working in<br />

collaboration with regional center<br />

staff to address the barriers to<br />

employment for persons served<br />

by <strong>TCRC</strong>, especially in the current<br />

economic environment. In an<br />

ongoing effort to enhance Life<br />

Activities, progress has been made<br />

toward defining alternative models<br />

for individualized<br />

day services,<br />

programs that increase choice and<br />

opportunities in the community.<br />

Need for effective Autism services<br />

continues to grow. One recent<br />

enhancement is the provision of<br />

in-home services to provide parents<br />

and families with education and<br />

training about effective behavior<br />

intervention strategies. This has<br />

given many families the additional<br />

tools necessary to keep their child<br />

at home. The Autism Taskforce will<br />

remain active in 2009 guided by<br />

recommendations from the Blue<br />

Ribbon Commission regarding best<br />

practices to support individuals<br />

with autism.<br />

In response to the proposed midyear<br />

cuts in the California state<br />

budget, actions around Advocacy<br />

are being taken. The TCADD Board<br />

of Directors passed a “Resolution<br />

of Solidarity”. This document is<br />

intended to serve as a call for action<br />

to advocates and advocacy groups<br />

to protect the rights of persons<br />

with developmental disabilities<br />

and to continue the promise of<br />

the Lanterman Act in spite of the<br />

current tough fiscal challenges<br />

facing the State. The resolution<br />

states that the proposed reductions<br />

“will jeopardize the safety, well<br />

being, civil rights, and freedom<br />

of people with developmental<br />

disabilities” and should be opposed.<br />

Additionally, The Leadership<br />

Project, a group of local selfadvocates<br />

and family advocates has<br />

also been re-established to organize<br />

advocacy efforts. View additional<br />

information on the budget at http://<br />

www.tri-counties.org/news-events/<br />

hot-topics.htm.<br />

As we reflect on the<br />

accomplishments of the past year,<br />

we look forward to meeting the<br />

challenges that lie ahead. In 2009<br />

we will be celebrating the 40th<br />

anniversary of the formation of<br />

TCADD. We will be acknowledging<br />

the history of TCADD and <strong>TCRC</strong><br />

– with a glance back in time as<br />

there is much to celebrate about<br />

the progress made to help people<br />

we serve to live fully and safely as<br />

active and independent members<br />

of their community.<br />

Wishing you a safe New Year,<br />

2009 is the 40th<br />

anniversary of<br />

TCADD. A special<br />

“Anniversary Issue”<br />

of the <strong>Tri</strong><strong>Line</strong><br />

will celebrate<br />

staff, community<br />

partners and<br />

stakeholders<br />

who have helped<br />

<strong>TCRC</strong> maximize<br />

opportunities for<br />

individuals with<br />

developmental<br />

disabilities.<br />

Continued from the cover page<br />

Recurring Topics<br />

02 From the Executive<br />

Director<br />

06 Calendar of Events<br />

09 Health & Safety<br />

01 <strong>TCRC</strong> Staff News<br />

01 Greetings from the<br />

President<br />

2 | tri-line WINTER <strong>2008</strong>


A Community Works Together<br />

by Dan Van Keuren, Service Provider II, Oxnard<br />

Residing on her own in South Oxnard, Pat Briden enjoys her independence.<br />

Her mobile home offers privacy and a great place to<br />

create arts and crafts. Pat is known for her wonderful crocheted<br />

blankets and scarves and<br />

regularly receives ribbons from<br />

the Ventura County Fair. The<br />

SAGE Supported Living Agency<br />

and Lynn Anderson RN from<br />

Arc Ventura County, help her<br />

out at home when she is not<br />

attending the Oceanview Day<br />

Program in Port Hueneme.<br />

Pat with weekly volunteer, Jack Levy When Pat transitioned to a<br />

four point walker last spring, the five steps leading up to her home<br />

went from a challenge to a hazard. It became evident that a ramp<br />

was necessary. According to contractors, the steps and front porch<br />

would have to be demolished. The cost of the project was estimated<br />

to be between $10,000 - $15,000!<br />

The three of us met at Pat’s home and it was determined that Pat<br />

qualified for assistance through Rebuilding Together. Mrs. Prince<br />

contacted a licensed contractor. She secured funds for the construction<br />

materials through a grant from the Changing Life Foundation.<br />

She also coordinated a volunteer work force from Calvary<br />

Christian Church in Westlake Village.<br />

On July 5th, 20 volunteers demolished the steps and porch and built<br />

a twenty-four foot ramp. The volunteers also made some minor<br />

repairs to Pat’s mobile home. Some of Pat’s neighbors came over<br />

and requested assistance with their home - - and some neighbors’s<br />

homes were repaired that day. A few volunteers even mentioned<br />

coming back in the future to paint Pat’s home, all free of charge.<br />

Thanks to collaboration and some outstanding volunteers, Pat now<br />

can enjoy safe access to and from her home.<br />

With primary income from Social Security, Pat could not afford the<br />

ramp that would enable her to continue her independent lifestyle.<br />

After appealing to a variety of community organizations including<br />

the Area Agency on Aging, the Action Foundation and Habitat for<br />

Humanity, I got a lead on another agency. I called Frances Prince of<br />

Rebuilding Together and was relieved to hear “of course, I think we<br />

can be of help”.<br />

Pat using her ramp<br />

Special appreciation to Lynn Anderson, RN consultant for ARC of<br />

Ventura County, Cindy Armstrong, Director of Oceanview, all the<br />

staff of the SAGE SLS Program, and Pat’s Service Coordinator, Dan<br />

Van Keuren. Their persistence and collaboration led to action which<br />

enhanced the quality of Pat’s life.<br />

One Mom’s Positive Message continued from pg 1<br />

by Heather Wennergren, Media Coordinator<br />

parents the positive realities of nurturing a child with a<br />

developmental disability is an important part of my work”.<br />

Kerri emphasizes the possibilities, rather than the potential<br />

disadvantages of living with a child with a developmental<br />

disability.<br />

Recalling the first moments she learned of Miah’s disability,<br />

Kerri reflects upon thoughts clouded by fears about the<br />

experiences that her daughter might have, or might not be<br />

able to have. Having now enjoyed four years with Miah, Kerri<br />

asks herself “what the heck was I thinking? I have hopes for<br />

Miah to do many things. She may live on her own some day,<br />

have the power to make her own choices, make her own<br />

mistakes - - and learn from them.” Kerri describes the impact<br />

that Miah has had on her family, “Miah has changed all of our<br />

lives. We all see the world very differently now. We enjoy our<br />

time together each day and have hope for our future.”<br />

The opportunity to observe Kerri and Miah provides a ‘reality check’ for many parents in terms<br />

of positive approaches to intervention. Miah has been part of Early Start services through <strong>TCRC</strong><br />

and now participates in Special Day Preschool, a language based program offered through the<br />

public school system.<br />

Miah lives with her mom Kerri, dad Jacob, and two sisters, Mckenna age 8 and Morgan age 11.<br />

Kudos to Kerri on her enduring effort to raise awareness of the abilities of every child as she provides inspiration and guidance to families.<br />

WINTER <strong>2008</strong> tri-line | 3


NEW DEVELOPMENTS IN PHARMACOTHERAPY FOR AUTISM<br />

by Dr. James O’Hanlon, Psychopharmacologist<br />

Research for developing safer and more<br />

effective treatments for developmental<br />

disorders is a constant, ongoing process.<br />

Current treatments were mainly developed<br />

to minimize disruptive symptoms<br />

but in the future a better understanding<br />

of innate deficits should lead to treatments<br />

that increase individual abilities.<br />

Emerging trends in research for achieving<br />

this goal are apparent in the list of ongoing clinical trials provided by<br />

National Institutes of Health (NIH) at their website, www.Clinical<strong>Tri</strong>als.<br />

gov. The list, stratified by sponsor, disorder and intervention, includes<br />

all federally funded clinical trials and most supported privately in the<br />

USA with a smattering of those in progress elsewhere. <strong>Tri</strong>als concerned<br />

with autism have quadrupled over the last five years until now, 132 are<br />

in progress or completed but not yet reported. Most (74%) deal with<br />

testing the efficacy of particular treatments:<br />

• Pharmacological (42%)<br />

• Behavioral (10%)<br />

• Dietary restrictions or supplements (8%)<br />

• Acupuncture/acupressure (5%)<br />

• Hyperbaric oxygen (4%)<br />

• Other (5%)<br />

Pharmacological trials may be further divided between the majority<br />

dealing with well-established drugs like Risperdal and Prozac and a<br />

minority concerning novel agents that have shown promise in preliminary<br />

studies. Some among the latter may emerge as pharmacotherapy<br />

of the future and are discussed here for that reason.<br />

SOME INNOVATIVE STRATEGIES<br />

MINOCYCLINE<br />

There is evidence that an innate neuroimmune<br />

reaction causes chronic inflammation in the<br />

autistic brain. Investigators at National Institute<br />

of Mental Health (NIMH) are currently testing<br />

the effects of minocycline, an antibiotic with<br />

strong anti-inflammatory properties, in children<br />

with autism with the hope of achieving<br />

global behavioral improvement.<br />

INTRANASAL OXYTOCIN<br />

Intranasal oxytocin is being administered to<br />

children with autism in a trial at Mount Sinai<br />

School of Medicine. Oxytocin is a naturally<br />

occurring brain hormone that promotes social<br />

bonding in all mammalian species and a<br />

pilot study suggested that it might have the<br />

same effect in autism.<br />

D-CYCLOSERINE<br />

D-cycloserine was developed for treating<br />

tuberculosis. Then it was discovered that the<br />

drug attenuates excitatory neurotransmission<br />

in the brain. Preliminary studies have shown<br />

its benefit in schizophrenia and also autism<br />

where it reduced social withdrawal. Two trials<br />

with d-cycloserine, led by world-class experts<br />

in autism, Drs. David Posey and Chris Mc-<br />

Dougle, are underway at Indiana University.<br />

N-ACETYLCYSTEINE<br />

Posey and McDougle are also conducting<br />

a study with N-acetylcysteine (NAC), which<br />

increases glutathione, the body’s primary<br />

defense against toxic free radicals (‘oxidative<br />

stress’). The causes, effects and extent of<br />

oxidative stress in the autistic population are<br />

a matter of hot debate but there is reasonable<br />

evidence that it causes immune abnormalities,<br />

associated with deficient glutathione, in<br />

a sizable proportion.<br />

ARICEPT, RAZADYNE AND EXELON<br />

Drugs that increase the acetylcholine neurotransmission in the brain by inhibiting the enzyme<br />

that inactivates the transmitter – Aricept, Razadyne and Exelon – are 1st-line therapy for Alzheimer’s<br />

disease. Small scale studies with each of the drugs have provided an indication that they improve<br />

receptive and expressive language in children with either autism or Down syndrome. The<br />

manufacturer of Aricept has now launched an extensive trial series with the apparent purpose of<br />

registering the drug for the indication of cognitive dysfunction in children with Down syndrome.<br />

Controlled trials with Aricept and Razadyne for autism are also being conducted at NIMH and the<br />

University of Medicine, New Jersey, respectively.<br />

PERSON CENTERED THINKING<br />

TRAINING<br />

“Introduction to Person Centered<br />

Thinking” is a 10-hour training that<br />

teaches a set of ideas, skills and<br />

strategies to assist individuals who<br />

use services to achieve greater control<br />

and influence over their lives leading<br />

to positive community participation<br />

and value. There are several upcoming<br />

opportunities to attend this<br />

training. Trainings are hosted by<br />

different agencies and all trainers use<br />

a standard curriculum that has been<br />

approved by the Learning Community<br />

for Person Centered Practices.<br />

*Training dates, times and locations<br />

are subject to change.<br />

Training Dates*<br />

(Must attend all<br />

dates in series)<br />

Time Location For more information and to<br />

register contact:<br />

2/4, 2/11, 2/18 1:00pm-4:00pm <strong>TCRC</strong>, San Luis<br />

Obispo Office<br />

2/12, 2/19, 2/26 9:30am-1:00pm Santa Maria,<br />

Grogan Park<br />

Assembly<br />

2/17, 2/24, 3/3 9:30am-12:30pm Santa Maria<br />

(location to be<br />

announced)<br />

4/9, 4/16, 4/23 9:30am-1:00pm Santa Maria,<br />

Grogan Park<br />

Assembly<br />

3/6, 3/13, 3/20 9:30am-1:00pm Ventura County<br />

(location to be<br />

announced)<br />

Karen Moore<br />

805-782-8890 ext 16<br />

karenmoore@pathpoint.org<br />

Lauren Connelly<br />

805-489-9472 ext 201<br />

Karen Moore<br />

805-782-8890 ext 16<br />

karenmoore@pathpoint.org<br />

Lauren Connelly<br />

805-489-9472 ext 201<br />

Vi Nguyen<br />

805-884-7206<br />

vnguyen@tri-counties.org<br />

4 | tri-line WINTER <strong>2008</strong>


(Dis)ability Through Education and Action<br />

by Jennifer L. Dwyer, Peer Advocate, San Luis Obispo<br />

Being a participant in Partners in Policymaking®, is a little like looking<br />

at my favorite painting. At first, as people from all over central<br />

California file into the large conference room of the Bakersfield<br />

Inn and Suites, the larger picture remains<br />

out of focus; if looked at too closely, it<br />

appears to be a mass of unconnected,<br />

slightly dizzying dots. However, over<br />

time, the people that began the journey<br />

as virtual strangers, have, through the<br />

experience they shared, gained a little<br />

perspective. United in a common purpose,<br />

like any family, we gathered for a weekend<br />

that, while challenging, felt an awful like a<br />

Sunday in the Park.<br />

“Partners in Policymaking has given me<br />

the practical tools to use to speak up for<br />

those who cannot speak for themselves,”<br />

Esther Bautista, mother of 5-year-old<br />

Bethany, a person served by <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center, Santa<br />

Maria, said. “It’s high time that someone speaks out for the injustice<br />

they have suffered and work to promote a more accessible<br />

world.”<br />

Partners in Policymaking (PIP) is an internationally recognized<br />

training program designed to empower people with disabilities,<br />

their families, and other members of their immediate support<br />

network. Through a series of eight weekend-long seminars,<br />

participants learn about the contemporary lives of the one in five<br />

Americans that, like their loved one, find themselves disabled in<br />

some way. They also learn about the historically discriminating<br />

treatment that spurred the earliest disability rights’ activists into<br />

action. Like those who came before them, it is believed that Partners<br />

in Policymaking graduates, once armed with the educational<br />

tools, will actively work to change the perception of a “life with a<br />

disability.”<br />

The program, funded by a 2006 State Council on Developmental<br />

Disability grant, is intended to teach those with disabilities—and<br />

the people who love, live, and work with them—how to advocate<br />

for individual, social, and legislative change.<br />

“Half of our participants are ‘self-advocates’, or those who have<br />

disabilities themselves,” Linda Landry, of the Family Resource<br />

Centers Network of California (FRCNCA) said. “The other half is<br />

made up of those who love and [emotionally and physically]<br />

support them.”<br />

Jennifer Dwyer receives Graduation Certificate<br />

time in 13 years, on October 18, the 40-member class of <strong>2008</strong><br />

graduated from the program. Parents, personal assistants, and selfadvocates<br />

received diplomas and lapel pins as a symbols of their<br />

collective achievement.<br />

“Through education, we have become more<br />

aware of how to properly demonstrate respect<br />

toward people with disabilities,”<br />

Denise Martinez, a self-advocate from San<br />

Luis Obispo, said.<br />

Monthly, participants—affectionately<br />

dubbed “PIP peeps” by me—converged<br />

upon the Doubletree. Coming from as far<br />

away as Madera and San Mateo, participants<br />

did everything from learning about the appropriate<br />

use of assistive technology devices,<br />

to staging a mock legislative hearing at the<br />

state Capitol. With over 100 hours of learning<br />

behind the newly graduating class, the energy in the room was<br />

one that, thanks to the knowledge gained, removed the ‘dis’ in<br />

“disability”, and shifted the focus to abilities, instead.<br />

“This graduation represents another class of advocates ready to<br />

act on issues important to the disabilities community,” Jim Lockwood,<br />

coordinator of PIPCA, said. “Next year, Partners in Policymaking<br />

California will be training our third class of advocates in<br />

the southern California region,” he said. “This will mean that, in<br />

three years, PIPCA will have trained more than 100 advocates<br />

from across the state of California.”<br />

Participants’ expenses-about $8,000 each-included lodging and<br />

attendant care costs, if needed. The California State Council on<br />

Developmental Disabilities funds the entire cost of the program<br />

through a grant to the aforementioned members of the California<br />

Collaborative. The Collaborative organizations commit staff<br />

time and resources to the oversight and implementation of the<br />

Partners in Policymaking program.<br />

Originally modeled after a curriculum generated by the Governor’s<br />

Council of Minnesota 21 years ago, Partners California has<br />

not had an easy road. Thanks to the dedication of many organizations<br />

— including People First of California, the American<br />

Association of Intellectual and Developmental Disability, and the<br />

Family Resource Centers Network of California— for the second<br />

Partners in Policymaking Graduating Class<br />

WINTER <strong>2008</strong> tri-line | 5


calendar of events<br />

Parents helping parents - family resource CENTER<br />

email: php@ucp-slo.org<br />

San Luis Obispo Office Atascadero Office<br />

800.456.4153 x3277 805.461.7415<br />

805.543.3277<br />

PHP SCHOLARSHIP PROGRAM<br />

August <strong>2008</strong> – May 2009<br />

For families of children with a developmental disability who currently receive<br />

services from San Luis Obispo’s <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center. Attending a specialized<br />

conference or training can help further parenting skills, knowledge and<br />

confidence when raising a child with special needs. With prior approval, up to<br />

$300 of the conference registration fee may be reimbursed. For an application,<br />

Contact: Parents Helping Parents, 543-3277<br />

Parents Helping Parents’ Educational Playtime Resource Library for your children<br />

with special needs. To inspire your child’s senses, stop by and check out a toy!<br />

PHP Family Resource Center Library: New arrival: On the Spectrum, a Film by Jeff<br />

Grinta, is a documentary about people successfully coping with Asperger Syndrome<br />

and Autism. Parents, doctors, therapists, psychologists and children talk<br />

about Asperger’s and their challenges and victories. Meet Jonathan, voted out<br />

of class by his classmates, and beaten up daily, he is now a successful professional<br />

bass player. Meet Matt, a 29 year old who struggled with Asperger’s through<br />

high school and is now a highly sought after peer support counselor for children<br />

with Asperger’s and Autism.<br />

Parents of Children 0-10 years Down Syndrome Support Group<br />

Coming soon! Contact PHP for details. 805.543.3277 or email php@ucp-slo.org.<br />

HOUSING OPTIONS FOR YOUNG ADULTS WITH DISABILITIES<br />

Would you be interested in learning about future housing options for your<br />

young adult children with special needs? Please contact the Parents Helping<br />

Parents Library to place your name on an interest list for this upcoming event,<br />

time and date to be announced.<br />

Contact: PHP 805.543.3277 or email php@ucp-slo.org.<br />

UCP KIDS CLUB, 6 – 12 YEAR OLDS OR TEEN CLUB FOR 13 – 17 YEAR OLDS<br />

Community recreation for kids or teens with special needs, including transportation,<br />

supervision and fun activities. Contact: Tessa 543-7102, youthservices@<br />

ucp-slo.org<br />

UCP SLO LIFE WITHOUT LIMITS WEEK EVENTS<br />

April 29, 2009: Adult Employment Open House<br />

April 30, 2009: Abilities Fair<br />

May 2, 2009: Paul Wolf Access Advocacy Awards<br />

Contact: Karl Winkler 541-8751 or kwinkler@Ride-On.org.<br />

ONGOING:<br />

SAN LUIS OBISPO County<br />

NORTH COUNTY AUTISM SPECTRUM SUPPORT GROUP<br />

3rd Friday of every other month, 7 - 9:00 pm, Paso Robles.<br />

Contact: Becky: 471-1354 or ncautismsupportgroup@charter.net or contact@<br />

autismspectrumcenter.com.<br />

SOUTH COUNTY AUTISM SUPPORT GROUP<br />

2nd Tuesday of every month, 12 – 1:30 pm, Grover Beach<br />

Contacts: Leslie 904-9212 or sweeters@digitalputty.com.<br />

INDEPENDENT LIVING RESOURCE CENTER’S PEER SUPPORT MEETING FOR INDI-<br />

VIDUALS WITH DISABILITIES<br />

1st Monday of every month, 1:30-2:30, SLO, Contact: Denise Martinez 593-0667.<br />

POSTPARTUM DEPRESSION SUPPORT GROUP<br />

2nd Saturday of the month, 9 - 10:30 am, Cost: $20, Contact: Joan Fusco, LCSW,<br />

phone: 801-3127.<br />

THIRD SUNDAYS AT THE PASO ROBLES CHILDREN’S MUSEUM<br />

3rd Sunday of the month, 10 am – 12 pm, For families of children with special<br />

needs, Paso Robles, Cost: $7 for Adults; $6 for children 1 – 13 years; $5 for Seniors<br />

aged 65 and over<br />

Contact: 238-7432.<br />

6 | tri-line WINTER <strong>2008</strong><br />

SANTA BARBARA County<br />

ALPHA RESOURCE CENTER - Family Resource Center<br />

email: info@alphasb.org / www.alphasb.org<br />

Santa Maria Office Santa Barbara Office<br />

805.347.2775 877.414.6227<br />

805.683.2145<br />

SAVE THE DATE<br />

Feb 18th - Early Start<br />

Call Alpha for details<br />

Alpha Resource Center offers a wide variety of services and supports to encompass the needs<br />

of individuals with disabilities of all ages and at all stages of life.<br />

Children & Family Services ~ Family First assists parents of children with special needs<br />

to gain the knowledge and skills to enable their children to be all they can be. Parentto-parent<br />

and family support, parent-professional collaboration, resource meetings and<br />

workshops, information & referral, transition, future planning, and much more!<br />

Resource Libraries ~ offer over 2000 titles on developmental and other disabilities.<br />

Located at <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center offices in Santa Maria and Santa Barbara. Mobile<br />

library services are available. Call for hours or specialized assistance.<br />

Katie’s FUNd ~ provides social and recreational opportunities for teens with developmental<br />

disabilities. Contact: Amy Buesker at 683-2145 x127 or abuesker@alphasb.org.<br />

Alpha Adult Services ~ provides a broad spectrum of services for adults with developmental<br />

disabilities. Each participant assists in the development of individualized services<br />

tailored to achieve his or her personal goals. 805.964.3547<br />

Parent-to-Parent Support<br />

Sponsored by Special Needs Network. Meets third Thursday of every month,<br />

9:00 am at Coffee Diem, 505 S. McClelland Street in Santa Maria.<br />

Contact: Diana 805.937.8756.<br />

City of Santa Barbara Parks & Recreation Department<br />

Check out what they have to offer. Contact: Adapted Programs 805.564.5421.<br />

Family First at alpha resource connections<br />

A family resource center and parent network. Provides parent-to-parent and<br />

family support, parent-professional collaboration, parent and family workshops,<br />

and information and referral. Contact: North County 805.347.2775 / South<br />

County 805.683.2145.<br />

Something for the Siblings<br />

The Special Needs Network is a new club for the siblings of individuals with<br />

disabilities. The club will consist of several fun activities and will be a chance to<br />

get away and relax with others who also have siblings with disabilities. Contact:<br />

Laura King, 805.344.1403.<br />

Santa Maria Special Education & Support Information<br />

Kathy Rowley has started a Yahoo Group for parents of children with special<br />

needs who live in Santa Maria. To join go to http://groups.yahoo.com/group/<br />

santamariasupport.<br />

Autism Society of America - Santa Barbara Chapter (ASASB)<br />

Contact: Marcia or Sandy at 805.560.3762 or info@asasb.org, www.asasb.org.<br />

Santa Maria Autism Support Group<br />

Has an online support group for parents of children diagnosed with autism.<br />

There is also a weekly playgroup that meets at a local park. Contact: 805.714.1187<br />

or email begeasykr@yahoo.com.<br />

Lompoc Autism Support Group<br />

A support group for parents and other caregivers of children diagnosed with<br />

autism. Contact: Polly Bleavins 805.347.2775 or email pollyb@alphasb.org.<br />

P.O.S.E. Parents of Special Education<br />

This parent support group meets the third Wednesday of every month at 9:30<br />

a.m. The group also fundraises to provide additional educational materials for<br />

special education programs in Santa Barbara. For meeting locations and fund<br />

raising events, contact Jennifer Griffin, 805.967.0371 (jenagrif@verizon.net) or<br />

Cathy Abarca, 805.448.6431 (cat736@aol.com).<br />

TALK ABOUT CURING AUTISM (TACA)<br />

Meets 3rd Saturday of the Month, 11:00 am - 1:00 pm “The Loft” Above Sur La<br />

Table in Paseo Nuevo. This is a support group meeting for caretakers for those<br />

with special needs. Contact Kathleen_reish@tacanow.org, www.tacanow.org.<br />

SBATA@YAHOOGROUPS.COM<br />

Online group for parents of special needs children, email hosseini58@cox.net.


Ventura County<br />

Rainbow Connection - Family Resource Center<br />

email: rainbow@tri-counties.org<br />

Oxnard Office<br />

Simi Valley Office<br />

800.332.3679 800.517.2524 x2325<br />

805.485.9643 805.823.2325<br />

Rainbow Connection provides many activities for children and families. Here is<br />

a list of on-going support groups:<br />

SIBCLUB<br />

First Friday of the month, 6:30 - 8:00 pm<br />

Games, Fun, Activities, for 5 - 14 years old siblings of children with<br />

developmental disabilities in Oxnard.<br />

CEREBRAL PALSY SUPPORT GROUP (ENGLISH & SPANISH)<br />

Third Monday of the month, 9:30 - 11:00 am<br />

Groups meet separately in English and Spanish<br />

Join other parents to talk about issues related to raising children with cerebral<br />

palsy and share resources and information.<br />

SPECIAL PARENTS NETWORK (ENGLISH)<br />

Third Wednesday of the month, 6:30 - 8:30 pm, Oxnard<br />

Third Thursday of the month, 9:30 - 11:00 am, Simi<br />

Come and join us for a cup of coffee, learn about our resources and talk about<br />

issues related to raising children with special needs.<br />

DOWN SYNDROME SUPPORT GROUP (ENGLISH)<br />

Second Thursday of the month, 6:30 - 8:30 pm, Oxnard<br />

Families have open discussions about raising children with Down syndrome.<br />

DOWN SYNDROME SUPPORT GROUP (SPANISH)<br />

Second Thursday of the month, 6:30 - 8:30 pm, Oxnard<br />

Families have open discussions about raising children with Down syndrome.<br />

AUTISMO SUPPORT GROUP (SPANISH)<br />

Second Thursday of the month,10:30 - 12:00 pm, Oxnard<br />

First Thursday of the month, 7:00 - 8:30 pm, Oxnard<br />

Families have discussions on issues related to raising children with autism.<br />

RAINBOW MOMS CONNECTING - OXNARD (SPANISH)<br />

Third Friday of the month, Oxnard<br />

Come and enjoy time with other mothers of children with special needs and<br />

have a relaxing time. For more information or to RSVP please call Rainbow.<br />

CONNECTING WITH RAINBOW - FILLMORE (SPANISH)<br />

Third Friday of the month, 5:00 - 7:00 pm, Dr. Neil Schmidt Family Resource<br />

Center. Families of children and adults who receive services from <strong>TCRC</strong> are<br />

assisted in navigating the healthcare system as well a variety of other issues.<br />

They can also make an apt. in advance to make a Health Care Notebook.<br />

TEDDY BEAR BRIGADE<br />

Third Saturday of the month (except for summer) 1-3:00 pm, Thousand Oaks<br />

For children 3 -13 years old with special needs and their siblings. It includes<br />

stories, sensory themes, crafts and music. Visit www.bearsandcompany.com<br />

to register. Parents meet separately for social and networking time.<br />

SANTA CLARA SUPPORT GROUP (SPANISH)<br />

Third Monday of the month. Families meet to share the experiences they’ve<br />

had with their children with special needs and learn about resources.<br />

SANTA PAULA SUPPORT GROUP (ENGLISH)<br />

Families meet to share the experiences they’ve had with their children with<br />

special needs and learn about resources. Meets 4th Monday of the month.<br />

SANTA PAULA SUPPORT GROUP (SPANISH)<br />

Families meet to share the experiences they’ve had with their children with<br />

special needs and learn about resources. Meet 1st Monday of the month.<br />

RAINBOW MOMS CONNECTING - FILLMORE (ENGLISH)<br />

Third Monday of the month. Moms of children with special needs meet to<br />

share and learn new information.<br />

RAINBOW MOMS CONNECTING - VENTURA COUNTY (ENGLISH)<br />

Meeting dates and times vary. Come and enjoy a night out with other mothers<br />

of children with special needs.<br />

NICU SUPPORT GROUP (ENGLISH & SPANISH)<br />

Third Wednesday of the month, 6:30 - 8:00pm, Oxnard<br />

Groups meet separately in English & Spanish. Meet other families and share<br />

ideas of coping, photos, info, joy and triumphs. Pizza will be served! Families<br />

with babies in the NICU and NICU grads welcome.<br />

G-TUBE/J-TUBE/NG-TUBE NETWORKING (ENGLISH & SPANISH)<br />

Third Thursday of the month, 6:30 - 8:00 Oxnard<br />

Does your child have a G-tube, J-tube, or NG-tube? Has it been suggested that<br />

your child get a tube? We look forward to sharing our stories of frustrations,<br />

fears, and successes (large and small).<br />

SOCIAL TIME FOR ADULTS SERVED BY <strong>TCRC</strong><br />

Last Saturday of the month (RSVP a must), 12:30-2:30 pm, Oxnard<br />

Come and join other adults for refreshments, conversation, browsing in the<br />

library, and enjoy a movie and popcorn at Rainbow Connection in Oxnard.<br />

Direct care or supervision is not provided.<br />

OTHER COMMUNITY SUPPORT GROUPS:<br />

MEETUP GROUP FOR FAMILIES WITH KIDS WITH ASPERGER’S<br />

NEW GROUP, ages 5 - 12 years. RSVP at the link to the MeetUp site: http://<br />

parents.meetup.com/636/<br />

BRANDON’S BUDDIES (ENGLISH)<br />

First Saturday of the month, Calabasas. A free play date for children of all<br />

abilities. To RSVP call Dina Kaplan 818.222.8118 or brandonsbuddies@pacbell.<br />

net.<br />

AUTISM SPECTRUM DISORDER (ASD) PARENT SUPPORT GROUP (ENGLISH)<br />

Second Wednesday of the month at Rainbow Connection, 7:00 - 9:00 pm,<br />

Oxnard. For more information contact Tera Marquez or Karen Bobo at<br />

asdparentsupportgroup@gmail.com.<br />

SUPPORT GROUP FOR PARENTS OF KIDS WITH AUTISM<br />

Last Monday of the month, 6:30 pm<br />

We provide child care. The address is 2697 Lavery Ct., Suite 17 Newbury Park.<br />

Contact Leila Silva at 805.480.9039 or 805.341.3089.<br />

SPECIAL PARENTS CAFE<br />

Third Saturday of each month. Spanish speakers welcome, Silvia, 805.530.0315.<br />

LET’S GO HIKING<br />

First Saturday of the month, Bob Charney and his son Michael, who has<br />

Autism, invite other dads and their sons with developmental challenges to go<br />

hiking. If you’re interested in participating, call Bob Charney at 818.735.7331 or<br />

818.789.1586 x223.<br />

MOM’S NIGHT OUT THOUSAND OAKS (ENGLISH)<br />

Third Tuesday of the month. For contact information call Rainbow.<br />

DAD’S NIGHT OUT THOUSAND OAKS (ENGLISH)<br />

Fourth Tuesday of the month. For contact information call Rainbow.<br />

VENTURA COUNTY AUTISM SOCIETY (ENGLISH)<br />

For more information call Ventura County Autism Society at 805.496.1632.<br />

HAPPY FRIENDS CLUB<br />

Alternate Tuesdays, 6:30 pm - 8:00 pm, Camarillo<br />

Support group for adults & teens with mental/physical challenges. Speakers,<br />

games, arts & crafts, round table discussions, occasional community outings.<br />

Contact: Jean McGuire 805.816.2319 or email: bobbyjean2@mac.com.<br />

With each issue of the <strong>Tri</strong>-<strong>Line</strong>, we provide information on some of the resources<br />

available to families within the <strong>Tri</strong>-<strong>Counties</strong> area. Please call to confirm dates<br />

and times of events. Check with your service coordinator for information on other<br />

resources available to you in your area.<br />

WINTER <strong>2008</strong> tri-line | 7


TO OUR VOLUNTEERS<br />

THANK YOU<br />

FOR BRINGING THE HOLIDAYS TO<br />

THOSE WHO MAY NOT HAVE HAD<br />

THEM WITHOUT YOUR HELP<br />

Angels Bearing Gifts Staff<br />

Mary met Evelynn at a support group for parents<br />

of special needs children that Evelynn, a licensed<br />

therapist, was facilitating and is grateful that Evelynn<br />

founded “her Angels group” as it is “clearly one that is<br />

needed in the community.” Angels Bearing Gifts serves<br />

beneficiaries from Carpinteria to Paso Robles.<br />

In her wallet, Mary keeps a Chinese proverb which concludes with<br />

the line “If you want happiness for a lifetime, help somebody.” (Volunteers<br />

seem to instinctively know this.)<br />

“If You Want Happiness for a Lifetime, Help<br />

Somebody”<br />

by Jill Davis, Angels Bearing Gifts<br />

Volunteers—what would we do without them? Not nearly as much<br />

as we can do with them. One passionate volunteer is worth more<br />

than a dozen clock-watchers someone once said. This may have<br />

been the same person who said if you want something done give<br />

it to a busy person.<br />

Mary Watts and Holly Sherwin, two working moms in Santa Barbara,<br />

for whom a 24-hour day surely can’t be enough, are living<br />

examples of this viewpoint. Interestingly enough, working mothers<br />

with school-age children volunteer more hours than any other<br />

demographic in America according to U.S News & World Report.<br />

“I have done it all my life. It was instilled in me by my parents and<br />

in my husband from his parents,” says Mary. “So it is sort of second<br />

nature to us.”<br />

“It is so easy to get<br />

caught up in our<br />

everyday routines<br />

and forget about or<br />

just put off doing<br />

something for others,”<br />

says Holly.<br />

Both women chose<br />

Angels Bearing Gifts<br />

to introduce their<br />

children to volunteering<br />

and to the<br />

Mary with her son Ben<br />

lessons that volunteering conveys. Mary’s son, Ben, and Holly’s son,<br />

Alec, have special needs (as does Angels founder Evelynn Smith’s<br />

daughter, Michelle) so it is a match that works well on several<br />

levels.<br />

“It was an eye-opening experience for Alec,” says Holly. “A bit scary<br />

at first, but I think he got it. We were able to have a great discussion<br />

about the importance of helping our fellow human beings.”<br />

And she adds: “Volunteering as a family made the experience so<br />

much richer.”<br />

Holly and Lanny with their son Alec<br />

“I don’t always live up to it the best that I can,” says Mary, “but it is<br />

something I usually strive for.”<br />

Volunteering as a family and, at this time of year, as a family<br />

holiday tradition, is what feels right to so many in our community.<br />

It’s giving back. It’s making a difference. It’s an “active lesson” in<br />

compassion for children.<br />

“As Alec gets older, I hope the extent of our volunteering grows<br />

and through it, we also will continue to grow as a family and a<br />

community,” says Holly.<br />

Both the Sherwin and Watts families are hands-on volunteers for<br />

Angels Bearing Gifts, wrapping and delivering holiday gifts to individuals<br />

with developmental disabilities who don’t have families.<br />

They also sponsor beneficiaries through financial contributions,<br />

ensuring that they are remembered on their birthdays, Valentine’s<br />

Day as well as Chanukah and Christmas.<br />

Volunteers, we need you. We can’t do much without you, and we<br />

appreciate everything you do.<br />

And if you want to know more about Angels Bearing Gifts and<br />

the ways you can help developmentally disabled people without<br />

families celebrate the holidays, please call 884.7222 or email info@<br />

angelsbearinggifts.com. It’s not too late to volunteer!<br />

8 | tri-line WINTER <strong>2008</strong>


Advocating for My Child and Others<br />

by Linda Miyahira, M.S, Service Coordinator, Simi Valley team<br />

The word “advocacy” is thrown around more than ever these days. As<br />

parents of children with special needs, we are advised to become an<br />

advocate by every doctor and therapist we meet. So, what exactly<br />

does it mean?<br />

Advocacy, according to the dictionary, is the act of pleading or giving<br />

verbal support for a cause. To be an advocate means you must<br />

become that voice. This is easy enough if you have been trained to<br />

speak or have a natural gift for speaking up. For<br />

many parents, this is not the case, and it is a<br />

scary role that we are suddenly expected to<br />

step into immediately for our children.<br />

Generally, you are not alone in this process<br />

if your child is born with a condition that<br />

requires the assistance of doctors, therapists,<br />

and service coordinators. However, if your<br />

child has a condition that is not immediately<br />

obvious to anyone but family and friends,<br />

a parent’s world can feel like a dark chasm<br />

swirling with a myriad of possible diagnoses<br />

(thanks to the Internet) and professionals<br />

without names. For those of us involved with the regional center<br />

system and our local school districts, some of that confusion has been<br />

eliminated, but that does not end our advocacy. It is a lifelong role for<br />

many parents. So, where can a parent learn more?<br />

Rainbow Connection Family Resource Center is a wonderful support<br />

network that is run by parents of children in the <strong>Regional</strong> Center<br />

system. They have a lending library and a number of support group<br />

Think you are Getting Sick? How to Tell. . .<br />

By Louis Cassano, RN Nurse Specialist<br />

affiliates, provide regular trainings for parents and caregivers (which<br />

include the development of effective advocating with your regional<br />

center and school district), as well as a basic understanding of your<br />

child’s rights on both state and federal levels.<br />

It is necessary for parents to know when they are ready to advocate.<br />

Sometimes a parent must jump in and learn along the way when<br />

there is urgency. However, as a service coordinator and a parent, I<br />

have seen a number of parents with good intentions<br />

create huge rifts with the very people their<br />

children need in their lives. They burn bridges<br />

where there needs to be a smooth path for children<br />

to receive every necessary service to reach<br />

their potential.<br />

We all go through the grieving process (denial,<br />

anger, bargaining, depression, acceptance),<br />

and it is important to know where you are in<br />

that process before going about the business<br />

of advocating for your child or someone else’s<br />

child. It is also important to make sure that what<br />

is being advocated for is in the best interest of<br />

the child and not to satisfy a parent’s personal need (or subconscious<br />

vendetta). It requires much self-reflection and introspection, which<br />

is a brave act in itself. By doing this exercise, we can see more clearly<br />

and take a more objective approach.<br />

Advocacy is about building bridges and forming links that will give<br />

parents and their children appropriate support and access to every<br />

service that will help them both on their journey to a fulfilling life.<br />

health & safety<br />

If you have developed a few symptoms, but are unsure if<br />

you have a cold or allergies, the matrix below may help. It<br />

lists the symptoms of cold, flu, sinusitis and allergic rhinitis.<br />

symptoms COLD FLU SINUSITIS ALLERGIC RHINITIS<br />

FEVER<br />

Rare in adults and older<br />

children, may be high<br />

in infants and small<br />

children<br />

Usually high (102-104)<br />

and can last for 3-4 days,<br />

fever and chills<br />

HEAD ACHE Rare Sudden Onset, may be<br />

severe<br />

MUSCLE ACHES<br />

Possibly mild<br />

Yes, often severe<br />

TIREDNESS / WEAKNESS Mild Yes, may last two or<br />

more weeks<br />

EXHAUSTION Never Sudden onset, may be<br />

severe<br />

NASAL DISCHARGE Watery to thick, cloudy Sometime watery to<br />

or white<br />

cloudy or white<br />

Spotlight on the Web<br />

Not usual, fever may<br />

indicated infection<br />

Yes, may have facial or<br />

eye pain<br />

Not usual<br />

Mild<br />

Never<br />

Thick yellow-green sinus<br />

congestion<br />

Not usual, fever may<br />

indicate infection<br />

Possible<br />

Not usual<br />

Not usual<br />

Never<br />

Thin, watery, itchy eye<br />

SNEEZING Often Sometimes Sometimes Sometimes<br />

SORE THROAT Often Sometimes Not usual Often<br />

COUGH / CONGESTION Mild hacking, a lot of clear, Usual, may be severe. Especially at night Possible<br />

yellow or green phlegm A lot of clear, yellow or<br />

may indicate infection. If green phlegm may indicate<br />

infection. If wheez-<br />

wheezing, notify your doctor.<br />

If cough lasts 14 days ing, notify your doctor.<br />

or more, see your doctor.<br />

WINTER <strong>2008</strong> tri-line | 9


A Perfect Match<br />

by Athena Meisheid, Associate Director, Community Options, Inc. (COI)<br />

Some people with developmental disabilities have never had the<br />

opportunity to benefit from the many rewards family home life<br />

brings. Others desire to participate in family home life again. For<br />

the past thirteen years, Community Options, Incorporated (COI -An<br />

Adult Family Home Agency - AFHA ) has offered unique opportunities<br />

for adults with developmental disabilities to live in a home in their<br />

community with a family carefully matched to meet their needs and<br />

preferences. The culture that they are accustomed to is carefully<br />

considered.<br />

Estela doesn’t need medication to sleep any more. Best yet - - Estela<br />

is often laughing and smiling! She is invited and participates in all the<br />

Dela Vega’s large extended family events and is an integral part of the<br />

family holidays and traditions. When Kahlia was born, Estela was there<br />

at the hospital with all of the family. There are weddings, showers,<br />

birthdays with piñatas, and Estela is there for it all!<br />

Family Home Provider, Jessica says, “I don’t know how you figured out<br />

the match, but Estela really fits with our family, she really feels like a<br />

part of my family.”<br />

Estela near her bed<br />

Estela and her home life situation is just one example of many<br />

wonderful matches that have occurred through COI. For the past<br />

four years, Estela has lived with the Dela Vega Family in Santa Maria,<br />

which includes Family Home Providers Jessica, Carlito, their daughter<br />

Vanessa, and two year old granddaughter Kahlia. The Dela Vega<br />

family became certified to provide care, supervision, and support<br />

through COI, completing a rigorous process that includes information<br />

gathering about their family, on-going training, background<br />

clearances, and maintenance of their home according to COI<br />

standards.<br />

Estela previously lived in a care home that did not meet her cultural<br />

preference. Although good quality care was delivered, Estela<br />

appeared frustrated. She would sometimes cry and hit her head with<br />

her hand to express her unhappiness. Specialized care and cultural<br />

considerations were difficult to accommodate at this home due to<br />

regulatory restrictions that impede the ability to customize care and<br />

support. For example, growing up in her family home, Estela was<br />

accustomed to sleeping on the floor and often crawled out of her bed<br />

to do so. It was common for Estela and her family to sleep on the floor<br />

together. At her previous care home, Estela slept in a high hospital<br />

bed and was in danger of injury on nights when she attempted to lay<br />

on the floor. Due to these “nocturnal behaviors”, Estela was treated<br />

with medication to deter her from leaving the bed at night.<br />

The previous care provider suggested that the quality of Estela’s life<br />

may improve if she lived with a family who spoke her native tongue<br />

and could more readily accommodate her cultural and physical living<br />

preferences.<br />

Through a regional center referral to COI, Estela was able to move into<br />

a Spanish speaking home, where foods she was accustomed to were<br />

lovingly prepared and familiar music was heard. Accommodations<br />

and adaptations to the environment were made to meet Estela’s needs<br />

and preferences. The Dela Vega family welcomed Estela with her own<br />

specially made bed, one that fit her petite frame, was cozy, and had<br />

modified legs to lower the bed. The Dela Vega family home also had<br />

soft carpeting and padding on the floor to accommodate Estela when<br />

she preferred to sleep there.<br />

10 | tri-line WINTER <strong>2008</strong><br />

Estela with Jessica Dela Vega<br />

In addition to the Dela Vega family, Estela also receives the support<br />

of Community Living Coordinator, Kim Burt, who helps to coordinate<br />

medical and other supports, oversees quality assurance for the<br />

home, and helps to provide whatever Estela needs to be successful at<br />

home and in the community. Respite supports are also provided by<br />

COI to the Dela Vega family. This provides a break for the Dela Vega<br />

family and provides Estela with<br />

opportunities to do fun activities<br />

at home or in the community with<br />

an additional member to her circle<br />

of support. COI contracts with<br />

consultants that provide practical<br />

and technical expertise in helping<br />

her become as independent as<br />

possible.<br />

Ingrid Rushing, COI President/<br />

CEO states, “When it comes to<br />

the process of creating a home<br />

for ourselves and building our<br />

circle of people we want to share<br />

our home and personal life with,<br />

that process is a very thoughtful,<br />

unique, and intimate one. What<br />

may be defined as the “comforts<br />

Estela with Kahlia<br />

of home” for one person will certainly be different for the next. This<br />

is why at COI we believe that facilitating, developing, and matching<br />

supports with one person at a time is what quality service is all about.<br />

Thoughtful considerations, watching, listening, and collaboration are a<br />

part of the success!”<br />

For more information about becoming a state certified Adult Family<br />

Home Provider or to inquire about COI’s services, please contact<br />

Athena Meisheid at (805) 481-7329- ext. 201.


awards<br />

<strong>TCRC</strong> staff news<br />

Please note that the Fall <strong>2008</strong> <strong>Tri</strong><strong>Line</strong> included a misprint in the Awards section. The correct information for all Spirit of<br />

Excellence Award winners is printed below.<br />

In our continued commitment to recognize employees for outstanding work, some exciting changes have<br />

been made to the Spirit of Excellence award program. The award acknowledges employees who demonstrate<br />

teamwork, good citizenship, service to the people we serve, morale building, quest for quality and<br />

above and beyond dedication to their work. The new program will be instituted the fourth quarter of <strong>2008</strong>.<br />

Employees are nominated quarterly by their colleagues. Two quarterly winners are selected from each of the<br />

larger Oxnard and Santa Barbara offices and one from each of the remaining offices. A nomination committee<br />

comprised primarily of <strong>TCRC</strong> employees selects the quarterly winners. All nominees receive a $20 gift<br />

certificate. Quarterly winners receive an award certificate, temporary possession of the lovely, stone Dolphin<br />

Award and a chance to become one of the two annual winners.<br />

At the end of the year, the accomplishments of all quarterly winners are reviewed by the Director’s team and<br />

two employees are selected to receive the Annual Spirit of Excellence award. Annual winners receive a $300<br />

gift card, public acknowledgement, and a Dolphin Award engraved with their names.<br />

SPIRIT OF EXCELLENCE AWARDS<br />

3rd Quarter<br />

2007<br />

SPIRIT OF EXCELLENCE AWARDS<br />

4th Quarter<br />

2007<br />

SPIRIT OF EXCELLENCE AWARDS<br />

1st Quarter<br />

<strong>2008</strong><br />

SPIRIT OF EXCELLENCE AWARDS<br />

2nd Quarter<br />

<strong>2008</strong><br />

DENISE rENNA<br />

Service Coordinator II, Atascadero<br />

Summer Beasley-Hoffman<br />

Service Coordinator II, San Luis Obispo<br />

Cynthia Camacho<br />

Service Coordinator II, Santa Maria<br />

Rosemary Rice<br />

Service Coordinator I, Santa Barbara<br />

darcy bishop<br />

Service Coordinator II, Atascadero<br />

bruce powers<br />

Psychologist, San Luis Obispo<br />

karen wissig<br />

Service Coordinator II, Santa Barbara<br />

matt lorden<br />

Human Resources Associate, SB<br />

David mulvey<br />

Service Coordinator II, Atascadero<br />

Andrea Schacht<br />

Service Coordinator II, San Luis Obispo<br />

Genevieve soto-berry<br />

Service Coordinator II, Santa Barbara<br />

Vi Nguyen<br />

Organizational Development Associate, SB<br />

Alisa Welsch<br />

Service Coordinator II, Atascadero<br />

Shilo Freer<br />

Service Coordinator I, San Luis Obispo<br />

Sally Mendoza<br />

Service Coordinator I, Santa Barbara<br />

Cathy Berry<br />

Executive Assistant, Santa Barbara<br />

Phil Stucky<br />

Controller, Santa Barbara<br />

Anabelle Cordero<br />

Service Coordinator II, Oxnard<br />

Danielle Gonzalez<br />

Secretary III, Simi Valley<br />

Lars Eacott<br />

Service Coordinator II, Simi Valley<br />

dan van keuren<br />

Service Coordinator II, Oxnard<br />

violeta pulido<br />

Secretary III, Oxnard<br />

gary riewer<br />

Service Coordinator II, Simi Valley<br />

Megan Bovenzi<br />

Service Coordinator II, Oxnard<br />

Zeke Vargas<br />

Service Coordinator II, Oxnard<br />

Uvence Garcia<br />

Service Coordinator II, Simi Valley<br />

Dalia Ruiz<br />

Service Coordinator II, Santa Maria<br />

San Luis Obispo<br />

County<br />

Atascadero<br />

Hotel Park Business Center<br />

6005 Capistrano, Suite E<br />

Atascadero, CA 93422-7219<br />

805.461.7402<br />

FAX 805.461.9479<br />

San Luis Obispo<br />

3450 Broad Street, Suite 111<br />

San Luis Obispo, CA<br />

93401-7102<br />

805.543.2833<br />

800.456.4153<br />

FAX 805.543.8725<br />

Santa Barbara County<br />

Santa Barbara<br />

520 East Montecito Street<br />

Santa Barbara, CA<br />

93103-3278<br />

805.962.7881<br />

800.322.6994<br />

FAX 805.884.7229<br />

Santa Maria<br />

1234 Fairway Dr.<br />

Santa Maria, CA 93455<br />

805.922.4640<br />

800.266.9071<br />

FAX 805.922.4350<br />

welcome<br />

new employees<br />

Jessica Osuna<br />

Service Coordinator II<br />

Rebecca Luden, Service Coordinator II<br />

Regina Kentner, Psychologist I<br />

promotions<br />

Anne Baltzer<br />

from SC II to Early Start Manager<br />

Megan Bovenzi<br />

from SC II to SC II with Masters<br />

Alison Forsyth<br />

from SC II to SC II with Masters<br />

SUMMER BEASLEY<br />

from SC II to with SC II with Masters<br />

COLLEEN DUNCAN<br />

from Resource Developer to Autism<br />

Coordinator<br />

Ventura County<br />

Oxnard<br />

2401 Gonzales Road, Suite<br />

100<br />

Oxnard, CA 93030-2119<br />

805.485.3177<br />

800.664.3177<br />

FAX 805.988.9521<br />

TCCHC<br />

TCCHC ANNOUNCES NEW<br />

EXECUTIVE DIRECTOR<br />

<strong>Tri</strong>-<strong>Counties</strong> Community Housing<br />

Corporation (TCCHC) Board of Directors<br />

is pleased to announce that Marc<br />

Belfortti has accepted the position of<br />

Executive Director.<br />

Mr. Belfortti brings to this new position<br />

over twenty years of experience<br />

in banking and financial services, project<br />

feasibility and affordable housing.<br />

Prior to joining TCCHC, he served as<br />

First Vice President and CRA Officer<br />

for IndyMac Bank, Pasadena.<br />

TCCHC’s mission is to enhance the<br />

quality of lives for people with<br />

developmental disabilities served<br />

by <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center by<br />

creating quality, affordable housing<br />

options in inclusive communities.<br />

For more information, visit www.<br />

tri-countieshousing.org.<br />

Simi Valley<br />

1900 E. Los Angeles Ave.<br />

Simi Valley, CA 93065<br />

805.522.8030<br />

800.517.2524<br />

FAX 805.522.8142<br />

WINTER <strong>2008</strong> tri-line | 11


<strong>Tri</strong>-<strong>Counties</strong> Association<br />

for the Developmentally Disabled<br />

520 E. Montecito Street<br />

Santa Barabara, CA 93101<br />

NONPROFIT ORG.<br />

U.S. Postage<br />

PAID<br />

Santa Barbara<br />

CA 93101<br />

Permit No. 359<br />

The <strong>Tri</strong>-<strong>Counties</strong> Association<br />

for the Developmentally<br />

Disabled Inc. (TCADD) Board<br />

of Directors is comprised of<br />

volunteers, including business<br />

people, professionals, family<br />

members and persons served.<br />

Many board members wear<br />

multiple “hats” – for example<br />

one may be both a professional<br />

and have a family member<br />

who is served by <strong>Tri</strong>-<strong>Counties</strong><br />

<strong>Regional</strong> Center (<strong>TCRC</strong>). Board<br />

members bring a dedicated<br />

and informed approach<br />

to their work, especially<br />

in their activities in board<br />

committees. This year has<br />

been particularly challenging<br />

for the Administration and<br />

Executive Committees around<br />

monitoring the impact of the<br />

delay in the passage of the<br />

State budget in California,<br />

which affects delivery of<br />

services and supports by<br />

<strong>TCRC</strong>. Of equal import, we<br />

have been vigilant around the<br />

Call for Volunteers for the TCADD Board<br />

Greetings from the President<br />

By Stan Deakin, TCADD Board Director<br />

potential impact on our staff<br />

and management. I am proud<br />

of our leadership and how they<br />

are handling the continuing<br />

fiscal crisis. Funds have been<br />

well managed, resulting in little<br />

or no impact on persons served<br />

as well as staff. We know that<br />

there is much work ahead<br />

and expect a state budget<br />

for the remainder of this fiscal<br />

year and next that will most<br />

likely be further affected by<br />

economic conditions. We will<br />

not pause in our continued<br />

advocacy efforts to ensure the<br />

best outcomes for our regional<br />

center’s fiscal health.<br />

Monitoring the progress<br />

for the <strong>TCRC</strong> Strategic and<br />

Performance Plan is a critical<br />

duty of the TCADD Board.<br />

We support the efforts of our<br />

Executive Director, Dr. Omar<br />

Noorzad and the <strong>TCRC</strong> staff<br />

as they work hard to meet the<br />

objectives in the plan. A copy<br />

of the plan can be accessed<br />

on the <strong>TCRC</strong> web site at<br />

www.tri-counties.org/abouttcrc/strategic-performance/.<br />

I want to in particular note<br />

the great strides that have<br />

been made in the area of<br />

housing this year. TCADD<br />

board members and staff have<br />

played important and integral<br />

roles in the development of<br />

the <strong>Tri</strong>-<strong>Counties</strong> Community<br />

Housing Corporation (www.<br />

tri-countieshousing.org), a<br />

non-profit housing corporation<br />

set up by our regional center<br />

to focus solely on affordable<br />

housing for persons with<br />

developmental disabilities.<br />

<strong>TCRC</strong>’s 40th anniversary is<br />

upon us! It is a time to reflect<br />

upon the history of <strong>TCRC</strong>, to<br />

appreciate and learn from<br />

the early beginnings of the<br />

regional center’s work and to<br />

acknowledge the progress<br />

made in the delivery of<br />

services and supports. We are<br />

so pleased to be part of the<br />

work of our regional center<br />

and we are sure that despite<br />

daily challenges faced by staff<br />

and the roller coaster ride of<br />

state budget crises, we will all<br />

work together to maximize<br />

opportunities and choices for<br />

living, working, learning and<br />

recreating in the community<br />

for those with developmental<br />

disabilities.<br />

Have a wonderful holiday<br />

season!<br />

Potential members have business management, public relations, education or other business<br />

or non-profit experience. Family members of persons served by <strong>TCRC</strong> are encouraged to apply.<br />

Make a rewarding contribution to TCADD and help improve the quality of life for persons with<br />

developmental disabilities. Please contact Nancy Kavin at nkavin@mwdh2o.com for more information,<br />

or visit our web site: http://www.<strong>Tri</strong>-<strong>Counties</strong>.org/tcrc4/about-tcrc/tcadd/membership/<br />

Cover Design: Heather Wennergren | Editor & Design: Heather Wennergren<br />

Translation: Carlos Cerecedo | Photography: Wendy Guerrero<br />

<strong>Tri</strong>-<strong>Counties</strong><br />

<strong>Regional</strong> Center<br />

Headquarters<br />

520 E. Montecito Street<br />

Santa Barabara, CA 93101<br />

805.962.7661 Tel<br />

800.322.6994 Toll-Free<br />

www.tri-counties.org<br />

Board of Directors<br />

Stan Deakin<br />

President<br />

Sandra Aldana<br />

Secretary<br />

Robyn Adkins<br />

Justine Blevins<br />

Bob Cobbs<br />

Charles Devlin<br />

Cathy Farrar<br />

Nancy Kavin<br />

Julie Kahn<br />

Donna Moore<br />

Shanti Nadiminti<br />

Kathleen Redmond<br />

Kathy Reed<br />

Board Meetings<br />

in Santa Barbara<br />

Jan 30th ..................... 6:00 pm<br />

March 14th................. 9:30 am<br />

May 2nd ..................... 9:00 am<br />

Town Hall Meetings<br />

Scheduled for 2009<br />

Jan 21st ...... San Luis Obispo<br />

April 15th....... Santa Barbara<br />

May 20th............... Simi Valley<br />

July 15th............. Santa Maria

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