TCRC Tri-Line Newsletter - Winter 2008 - Tri-Counties Regional ...
TCRC Tri-Line Newsletter - Winter 2008 - Tri-Counties Regional ...
TCRC Tri-Line Newsletter - Winter 2008 - Tri-Counties Regional ...
You also want an ePaper? Increase the reach of your titles
YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.
A Publication of <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center | <strong>Winter</strong> <strong>2008</strong><br />
Cover Story<br />
01 One Mom’s Positive<br />
Message<br />
One Mom’s Positive Message<br />
Featured Articles<br />
03 A Community Works<br />
Together<br />
04 New Developments in<br />
Pharmacotherapy for<br />
Autism<br />
05 (Dis)ability through<br />
Education and Action<br />
08 “If You Want Happiness<br />
for a Lifetime, Help<br />
Somebody”<br />
09 Advocating for my Child<br />
and Others<br />
09 Think you are Getting<br />
Sick? How to Tell<br />
10 A Perfect Match<br />
Continued on page 3<br />
Vision: Persons with<br />
developmental disabilities live<br />
fully and safely as active and<br />
independent members of their<br />
community.<br />
Mission: <strong>TCRC</strong> provides<br />
person and family centered<br />
planning, services and supports<br />
for individuals with developmental<br />
disabilities to maximize<br />
opportunities and choices for<br />
living, working, learning and<br />
recreating in the community.<br />
Miah enjoys a book with her sister Morgan<br />
Miah and her mother Kerri<br />
As a parent of a child served by <strong>Tri</strong> <strong>Counties</strong> <strong>Regional</strong> Center (<strong>TCRC</strong>) and a staff member<br />
of a service provider for <strong>TCRC</strong>, Kerri Emmons has a unique and powerful perspective. In a<br />
recent interview, she explained her quest to demonstrate to other parents that learning of<br />
a child’s developmental disability can be an opportunity for an enriched family life.<br />
In her role as an early intervention specialist with Abbott and Burkhart Therapy, Kerri<br />
educates families about what to expect for the achievement of developmental milestones<br />
in early childhood. She teaches strategies for learning through play. To emphasize her<br />
positive and inspirational experiences as a parent, she often brings four year old Miah<br />
along with her. Parents have the opportunity to learn from Kerri through her instruction<br />
and observe her interactions with her own child. “Demonstrating for<br />
continued on pg 3<br />
Santa Barbara | Ventura | San Luis Obispo | www.tri-counties.org
From the Executive Director<br />
by Omar Noorzad, Ph.D.<br />
The end of the calendar year is<br />
a good time to celebrate results<br />
as well as review goals that<br />
require further work. The seven<br />
Focus Areas of the <strong>Tri</strong>-<strong>Counties</strong><br />
<strong>Regional</strong> Center (<strong>TCRC</strong>) 2007-<br />
2009 Strategic and Performance<br />
Plan form the cornerstone for the<br />
achievement of the mission and<br />
vision of the organization. The<br />
plan, aligned with the Performance<br />
and Compliance contract with the<br />
Department of Developmental<br />
Services (DDS), guides staff and<br />
leadership to achieve strategic<br />
goals, ensure basic assurances such<br />
as health and safety and enhance<br />
quality of life for persons served by<br />
<strong>TCRC</strong>.<br />
The Focus Areas of the plan offer<br />
specific objectives that consider all<br />
of these efforts. For example, as we<br />
address Family Services, progress<br />
is being made around informing<br />
new families about regional center<br />
services and planning for treatment<br />
of autism. Dr. Steven Graff, Clinical<br />
Director, along with Autism<br />
Coordinator, Colleen Duncan is<br />
spearheading this work.<br />
Addressing the Health needs of<br />
the persons we serve has been high<br />
on our list of priorities. Concerned<br />
about the resources available for<br />
medical and dental services, we<br />
have increased our efforts around<br />
development of dental resources<br />
and have partnered with CenCal to<br />
provide information about available<br />
medical services. CenCal provides a<br />
semi-annual update to the provider<br />
list for Santa Barbara and San Luis<br />
Obispo <strong>Counties</strong>. Go to the <strong>TCRC</strong><br />
web site for more information<br />
(http://www.tri-counties.org/<br />
programs-services/servicegeneric/).<br />
<strong>TCRC</strong>’s Training and Development<br />
Plan addresses in-service<br />
education and orientation for<br />
new employees as well as more<br />
in-depth training for new service<br />
coordinators. Leadership training<br />
and development has become a<br />
core topic as well. Other efforts<br />
in this area have included <strong>TCRC</strong><br />
hosting the first Southern California<br />
Gathering in partnership with<br />
East Los Angeles <strong>Regional</strong> Center<br />
in early October to promote<br />
learning around person centered<br />
thinking (PCT). The growth of the<br />
PCT initiative continues within<br />
the agency as well as through<br />
collaboration with other regional<br />
centers and service providers.<br />
<strong>TCRC</strong> staff introduced PCT to the<br />
regional center Chief Counselors<br />
Group this fall in an effort to<br />
influence state wide adoption of<br />
the principles. We are beginning<br />
to see a measurable impact of the<br />
PCT efforts. In response to the <strong>TCRC</strong><br />
2007 Services and Supports Survey,<br />
persons served reported feeling<br />
more in control of the IPP and the<br />
plan for their life than ever before.<br />
Certain analysis suggests that this<br />
shift in outlook is linked to the PCT<br />
initiative.<br />
Much progress has been made<br />
in the development of efforts<br />
to support <strong>TCRC</strong>’s affordable<br />
Housing Focus Area. I am pleased<br />
to announce that Mr. Marc Belfortti<br />
accepted the position of Executive<br />
Director of the <strong>Tri</strong>-<strong>Counties</strong><br />
Community Housing Corporation<br />
(TCCHC), a non-profit housing<br />
organization recently established<br />
by <strong>Tri</strong>-Countes Association for the<br />
Developmentally Disabled (TCADD).<br />
View the press release and the <strong>TCRC</strong><br />
Five Year Housing plan at http://<br />
www.tricountieshousing.org. This<br />
fiscal year, TCCHC will purchase<br />
two homes in Ventura County to<br />
be held in perpetuity for persons<br />
with developmental disabilities<br />
served by <strong>TCRC</strong>. These purchases<br />
will mark the beginning of the<br />
effort to secure 500 units of housing<br />
throughout the tri-counties area<br />
by 2013, benefiting approximately<br />
1500 people.<br />
Supported Employment<br />
service providers are working in<br />
collaboration with regional center<br />
staff to address the barriers to<br />
employment for persons served<br />
by <strong>TCRC</strong>, especially in the current<br />
economic environment. In an<br />
ongoing effort to enhance Life<br />
Activities, progress has been made<br />
toward defining alternative models<br />
for individualized<br />
day services,<br />
programs that increase choice and<br />
opportunities in the community.<br />
Need for effective Autism services<br />
continues to grow. One recent<br />
enhancement is the provision of<br />
in-home services to provide parents<br />
and families with education and<br />
training about effective behavior<br />
intervention strategies. This has<br />
given many families the additional<br />
tools necessary to keep their child<br />
at home. The Autism Taskforce will<br />
remain active in 2009 guided by<br />
recommendations from the Blue<br />
Ribbon Commission regarding best<br />
practices to support individuals<br />
with autism.<br />
In response to the proposed midyear<br />
cuts in the California state<br />
budget, actions around Advocacy<br />
are being taken. The TCADD Board<br />
of Directors passed a “Resolution<br />
of Solidarity”. This document is<br />
intended to serve as a call for action<br />
to advocates and advocacy groups<br />
to protect the rights of persons<br />
with developmental disabilities<br />
and to continue the promise of<br />
the Lanterman Act in spite of the<br />
current tough fiscal challenges<br />
facing the State. The resolution<br />
states that the proposed reductions<br />
“will jeopardize the safety, well<br />
being, civil rights, and freedom<br />
of people with developmental<br />
disabilities” and should be opposed.<br />
Additionally, The Leadership<br />
Project, a group of local selfadvocates<br />
and family advocates has<br />
also been re-established to organize<br />
advocacy efforts. View additional<br />
information on the budget at http://<br />
www.tri-counties.org/news-events/<br />
hot-topics.htm.<br />
As we reflect on the<br />
accomplishments of the past year,<br />
we look forward to meeting the<br />
challenges that lie ahead. In 2009<br />
we will be celebrating the 40th<br />
anniversary of the formation of<br />
TCADD. We will be acknowledging<br />
the history of TCADD and <strong>TCRC</strong><br />
– with a glance back in time as<br />
there is much to celebrate about<br />
the progress made to help people<br />
we serve to live fully and safely as<br />
active and independent members<br />
of their community.<br />
Wishing you a safe New Year,<br />
2009 is the 40th<br />
anniversary of<br />
TCADD. A special<br />
“Anniversary Issue”<br />
of the <strong>Tri</strong><strong>Line</strong><br />
will celebrate<br />
staff, community<br />
partners and<br />
stakeholders<br />
who have helped<br />
<strong>TCRC</strong> maximize<br />
opportunities for<br />
individuals with<br />
developmental<br />
disabilities.<br />
Continued from the cover page<br />
Recurring Topics<br />
02 From the Executive<br />
Director<br />
06 Calendar of Events<br />
09 Health & Safety<br />
01 <strong>TCRC</strong> Staff News<br />
01 Greetings from the<br />
President<br />
2 | tri-line WINTER <strong>2008</strong>
A Community Works Together<br />
by Dan Van Keuren, Service Provider II, Oxnard<br />
Residing on her own in South Oxnard, Pat Briden enjoys her independence.<br />
Her mobile home offers privacy and a great place to<br />
create arts and crafts. Pat is known for her wonderful crocheted<br />
blankets and scarves and<br />
regularly receives ribbons from<br />
the Ventura County Fair. The<br />
SAGE Supported Living Agency<br />
and Lynn Anderson RN from<br />
Arc Ventura County, help her<br />
out at home when she is not<br />
attending the Oceanview Day<br />
Program in Port Hueneme.<br />
Pat with weekly volunteer, Jack Levy When Pat transitioned to a<br />
four point walker last spring, the five steps leading up to her home<br />
went from a challenge to a hazard. It became evident that a ramp<br />
was necessary. According to contractors, the steps and front porch<br />
would have to be demolished. The cost of the project was estimated<br />
to be between $10,000 - $15,000!<br />
The three of us met at Pat’s home and it was determined that Pat<br />
qualified for assistance through Rebuilding Together. Mrs. Prince<br />
contacted a licensed contractor. She secured funds for the construction<br />
materials through a grant from the Changing Life Foundation.<br />
She also coordinated a volunteer work force from Calvary<br />
Christian Church in Westlake Village.<br />
On July 5th, 20 volunteers demolished the steps and porch and built<br />
a twenty-four foot ramp. The volunteers also made some minor<br />
repairs to Pat’s mobile home. Some of Pat’s neighbors came over<br />
and requested assistance with their home - - and some neighbors’s<br />
homes were repaired that day. A few volunteers even mentioned<br />
coming back in the future to paint Pat’s home, all free of charge.<br />
Thanks to collaboration and some outstanding volunteers, Pat now<br />
can enjoy safe access to and from her home.<br />
With primary income from Social Security, Pat could not afford the<br />
ramp that would enable her to continue her independent lifestyle.<br />
After appealing to a variety of community organizations including<br />
the Area Agency on Aging, the Action Foundation and Habitat for<br />
Humanity, I got a lead on another agency. I called Frances Prince of<br />
Rebuilding Together and was relieved to hear “of course, I think we<br />
can be of help”.<br />
Pat using her ramp<br />
Special appreciation to Lynn Anderson, RN consultant for ARC of<br />
Ventura County, Cindy Armstrong, Director of Oceanview, all the<br />
staff of the SAGE SLS Program, and Pat’s Service Coordinator, Dan<br />
Van Keuren. Their persistence and collaboration led to action which<br />
enhanced the quality of Pat’s life.<br />
One Mom’s Positive Message continued from pg 1<br />
by Heather Wennergren, Media Coordinator<br />
parents the positive realities of nurturing a child with a<br />
developmental disability is an important part of my work”.<br />
Kerri emphasizes the possibilities, rather than the potential<br />
disadvantages of living with a child with a developmental<br />
disability.<br />
Recalling the first moments she learned of Miah’s disability,<br />
Kerri reflects upon thoughts clouded by fears about the<br />
experiences that her daughter might have, or might not be<br />
able to have. Having now enjoyed four years with Miah, Kerri<br />
asks herself “what the heck was I thinking? I have hopes for<br />
Miah to do many things. She may live on her own some day,<br />
have the power to make her own choices, make her own<br />
mistakes - - and learn from them.” Kerri describes the impact<br />
that Miah has had on her family, “Miah has changed all of our<br />
lives. We all see the world very differently now. We enjoy our<br />
time together each day and have hope for our future.”<br />
The opportunity to observe Kerri and Miah provides a ‘reality check’ for many parents in terms<br />
of positive approaches to intervention. Miah has been part of Early Start services through <strong>TCRC</strong><br />
and now participates in Special Day Preschool, a language based program offered through the<br />
public school system.<br />
Miah lives with her mom Kerri, dad Jacob, and two sisters, Mckenna age 8 and Morgan age 11.<br />
Kudos to Kerri on her enduring effort to raise awareness of the abilities of every child as she provides inspiration and guidance to families.<br />
WINTER <strong>2008</strong> tri-line | 3
NEW DEVELOPMENTS IN PHARMACOTHERAPY FOR AUTISM<br />
by Dr. James O’Hanlon, Psychopharmacologist<br />
Research for developing safer and more<br />
effective treatments for developmental<br />
disorders is a constant, ongoing process.<br />
Current treatments were mainly developed<br />
to minimize disruptive symptoms<br />
but in the future a better understanding<br />
of innate deficits should lead to treatments<br />
that increase individual abilities.<br />
Emerging trends in research for achieving<br />
this goal are apparent in the list of ongoing clinical trials provided by<br />
National Institutes of Health (NIH) at their website, www.Clinical<strong>Tri</strong>als.<br />
gov. The list, stratified by sponsor, disorder and intervention, includes<br />
all federally funded clinical trials and most supported privately in the<br />
USA with a smattering of those in progress elsewhere. <strong>Tri</strong>als concerned<br />
with autism have quadrupled over the last five years until now, 132 are<br />
in progress or completed but not yet reported. Most (74%) deal with<br />
testing the efficacy of particular treatments:<br />
• Pharmacological (42%)<br />
• Behavioral (10%)<br />
• Dietary restrictions or supplements (8%)<br />
• Acupuncture/acupressure (5%)<br />
• Hyperbaric oxygen (4%)<br />
• Other (5%)<br />
Pharmacological trials may be further divided between the majority<br />
dealing with well-established drugs like Risperdal and Prozac and a<br />
minority concerning novel agents that have shown promise in preliminary<br />
studies. Some among the latter may emerge as pharmacotherapy<br />
of the future and are discussed here for that reason.<br />
SOME INNOVATIVE STRATEGIES<br />
MINOCYCLINE<br />
There is evidence that an innate neuroimmune<br />
reaction causes chronic inflammation in the<br />
autistic brain. Investigators at National Institute<br />
of Mental Health (NIMH) are currently testing<br />
the effects of minocycline, an antibiotic with<br />
strong anti-inflammatory properties, in children<br />
with autism with the hope of achieving<br />
global behavioral improvement.<br />
INTRANASAL OXYTOCIN<br />
Intranasal oxytocin is being administered to<br />
children with autism in a trial at Mount Sinai<br />
School of Medicine. Oxytocin is a naturally<br />
occurring brain hormone that promotes social<br />
bonding in all mammalian species and a<br />
pilot study suggested that it might have the<br />
same effect in autism.<br />
D-CYCLOSERINE<br />
D-cycloserine was developed for treating<br />
tuberculosis. Then it was discovered that the<br />
drug attenuates excitatory neurotransmission<br />
in the brain. Preliminary studies have shown<br />
its benefit in schizophrenia and also autism<br />
where it reduced social withdrawal. Two trials<br />
with d-cycloserine, led by world-class experts<br />
in autism, Drs. David Posey and Chris Mc-<br />
Dougle, are underway at Indiana University.<br />
N-ACETYLCYSTEINE<br />
Posey and McDougle are also conducting<br />
a study with N-acetylcysteine (NAC), which<br />
increases glutathione, the body’s primary<br />
defense against toxic free radicals (‘oxidative<br />
stress’). The causes, effects and extent of<br />
oxidative stress in the autistic population are<br />
a matter of hot debate but there is reasonable<br />
evidence that it causes immune abnormalities,<br />
associated with deficient glutathione, in<br />
a sizable proportion.<br />
ARICEPT, RAZADYNE AND EXELON<br />
Drugs that increase the acetylcholine neurotransmission in the brain by inhibiting the enzyme<br />
that inactivates the transmitter – Aricept, Razadyne and Exelon – are 1st-line therapy for Alzheimer’s<br />
disease. Small scale studies with each of the drugs have provided an indication that they improve<br />
receptive and expressive language in children with either autism or Down syndrome. The<br />
manufacturer of Aricept has now launched an extensive trial series with the apparent purpose of<br />
registering the drug for the indication of cognitive dysfunction in children with Down syndrome.<br />
Controlled trials with Aricept and Razadyne for autism are also being conducted at NIMH and the<br />
University of Medicine, New Jersey, respectively.<br />
PERSON CENTERED THINKING<br />
TRAINING<br />
“Introduction to Person Centered<br />
Thinking” is a 10-hour training that<br />
teaches a set of ideas, skills and<br />
strategies to assist individuals who<br />
use services to achieve greater control<br />
and influence over their lives leading<br />
to positive community participation<br />
and value. There are several upcoming<br />
opportunities to attend this<br />
training. Trainings are hosted by<br />
different agencies and all trainers use<br />
a standard curriculum that has been<br />
approved by the Learning Community<br />
for Person Centered Practices.<br />
*Training dates, times and locations<br />
are subject to change.<br />
Training Dates*<br />
(Must attend all<br />
dates in series)<br />
Time Location For more information and to<br />
register contact:<br />
2/4, 2/11, 2/18 1:00pm-4:00pm <strong>TCRC</strong>, San Luis<br />
Obispo Office<br />
2/12, 2/19, 2/26 9:30am-1:00pm Santa Maria,<br />
Grogan Park<br />
Assembly<br />
2/17, 2/24, 3/3 9:30am-12:30pm Santa Maria<br />
(location to be<br />
announced)<br />
4/9, 4/16, 4/23 9:30am-1:00pm Santa Maria,<br />
Grogan Park<br />
Assembly<br />
3/6, 3/13, 3/20 9:30am-1:00pm Ventura County<br />
(location to be<br />
announced)<br />
Karen Moore<br />
805-782-8890 ext 16<br />
karenmoore@pathpoint.org<br />
Lauren Connelly<br />
805-489-9472 ext 201<br />
Karen Moore<br />
805-782-8890 ext 16<br />
karenmoore@pathpoint.org<br />
Lauren Connelly<br />
805-489-9472 ext 201<br />
Vi Nguyen<br />
805-884-7206<br />
vnguyen@tri-counties.org<br />
4 | tri-line WINTER <strong>2008</strong>
(Dis)ability Through Education and Action<br />
by Jennifer L. Dwyer, Peer Advocate, San Luis Obispo<br />
Being a participant in Partners in Policymaking®, is a little like looking<br />
at my favorite painting. At first, as people from all over central<br />
California file into the large conference room of the Bakersfield<br />
Inn and Suites, the larger picture remains<br />
out of focus; if looked at too closely, it<br />
appears to be a mass of unconnected,<br />
slightly dizzying dots. However, over<br />
time, the people that began the journey<br />
as virtual strangers, have, through the<br />
experience they shared, gained a little<br />
perspective. United in a common purpose,<br />
like any family, we gathered for a weekend<br />
that, while challenging, felt an awful like a<br />
Sunday in the Park.<br />
“Partners in Policymaking has given me<br />
the practical tools to use to speak up for<br />
those who cannot speak for themselves,”<br />
Esther Bautista, mother of 5-year-old<br />
Bethany, a person served by <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center, Santa<br />
Maria, said. “It’s high time that someone speaks out for the injustice<br />
they have suffered and work to promote a more accessible<br />
world.”<br />
Partners in Policymaking (PIP) is an internationally recognized<br />
training program designed to empower people with disabilities,<br />
their families, and other members of their immediate support<br />
network. Through a series of eight weekend-long seminars,<br />
participants learn about the contemporary lives of the one in five<br />
Americans that, like their loved one, find themselves disabled in<br />
some way. They also learn about the historically discriminating<br />
treatment that spurred the earliest disability rights’ activists into<br />
action. Like those who came before them, it is believed that Partners<br />
in Policymaking graduates, once armed with the educational<br />
tools, will actively work to change the perception of a “life with a<br />
disability.”<br />
The program, funded by a 2006 State Council on Developmental<br />
Disability grant, is intended to teach those with disabilities—and<br />
the people who love, live, and work with them—how to advocate<br />
for individual, social, and legislative change.<br />
“Half of our participants are ‘self-advocates’, or those who have<br />
disabilities themselves,” Linda Landry, of the Family Resource<br />
Centers Network of California (FRCNCA) said. “The other half is<br />
made up of those who love and [emotionally and physically]<br />
support them.”<br />
Jennifer Dwyer receives Graduation Certificate<br />
time in 13 years, on October 18, the 40-member class of <strong>2008</strong><br />
graduated from the program. Parents, personal assistants, and selfadvocates<br />
received diplomas and lapel pins as a symbols of their<br />
collective achievement.<br />
“Through education, we have become more<br />
aware of how to properly demonstrate respect<br />
toward people with disabilities,”<br />
Denise Martinez, a self-advocate from San<br />
Luis Obispo, said.<br />
Monthly, participants—affectionately<br />
dubbed “PIP peeps” by me—converged<br />
upon the Doubletree. Coming from as far<br />
away as Madera and San Mateo, participants<br />
did everything from learning about the appropriate<br />
use of assistive technology devices,<br />
to staging a mock legislative hearing at the<br />
state Capitol. With over 100 hours of learning<br />
behind the newly graduating class, the energy in the room was<br />
one that, thanks to the knowledge gained, removed the ‘dis’ in<br />
“disability”, and shifted the focus to abilities, instead.<br />
“This graduation represents another class of advocates ready to<br />
act on issues important to the disabilities community,” Jim Lockwood,<br />
coordinator of PIPCA, said. “Next year, Partners in Policymaking<br />
California will be training our third class of advocates in<br />
the southern California region,” he said. “This will mean that, in<br />
three years, PIPCA will have trained more than 100 advocates<br />
from across the state of California.”<br />
Participants’ expenses-about $8,000 each-included lodging and<br />
attendant care costs, if needed. The California State Council on<br />
Developmental Disabilities funds the entire cost of the program<br />
through a grant to the aforementioned members of the California<br />
Collaborative. The Collaborative organizations commit staff<br />
time and resources to the oversight and implementation of the<br />
Partners in Policymaking program.<br />
Originally modeled after a curriculum generated by the Governor’s<br />
Council of Minnesota 21 years ago, Partners California has<br />
not had an easy road. Thanks to the dedication of many organizations<br />
— including People First of California, the American<br />
Association of Intellectual and Developmental Disability, and the<br />
Family Resource Centers Network of California— for the second<br />
Partners in Policymaking Graduating Class<br />
WINTER <strong>2008</strong> tri-line | 5
calendar of events<br />
Parents helping parents - family resource CENTER<br />
email: php@ucp-slo.org<br />
San Luis Obispo Office Atascadero Office<br />
800.456.4153 x3277 805.461.7415<br />
805.543.3277<br />
PHP SCHOLARSHIP PROGRAM<br />
August <strong>2008</strong> – May 2009<br />
For families of children with a developmental disability who currently receive<br />
services from San Luis Obispo’s <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center. Attending a specialized<br />
conference or training can help further parenting skills, knowledge and<br />
confidence when raising a child with special needs. With prior approval, up to<br />
$300 of the conference registration fee may be reimbursed. For an application,<br />
Contact: Parents Helping Parents, 543-3277<br />
Parents Helping Parents’ Educational Playtime Resource Library for your children<br />
with special needs. To inspire your child’s senses, stop by and check out a toy!<br />
PHP Family Resource Center Library: New arrival: On the Spectrum, a Film by Jeff<br />
Grinta, is a documentary about people successfully coping with Asperger Syndrome<br />
and Autism. Parents, doctors, therapists, psychologists and children talk<br />
about Asperger’s and their challenges and victories. Meet Jonathan, voted out<br />
of class by his classmates, and beaten up daily, he is now a successful professional<br />
bass player. Meet Matt, a 29 year old who struggled with Asperger’s through<br />
high school and is now a highly sought after peer support counselor for children<br />
with Asperger’s and Autism.<br />
Parents of Children 0-10 years Down Syndrome Support Group<br />
Coming soon! Contact PHP for details. 805.543.3277 or email php@ucp-slo.org.<br />
HOUSING OPTIONS FOR YOUNG ADULTS WITH DISABILITIES<br />
Would you be interested in learning about future housing options for your<br />
young adult children with special needs? Please contact the Parents Helping<br />
Parents Library to place your name on an interest list for this upcoming event,<br />
time and date to be announced.<br />
Contact: PHP 805.543.3277 or email php@ucp-slo.org.<br />
UCP KIDS CLUB, 6 – 12 YEAR OLDS OR TEEN CLUB FOR 13 – 17 YEAR OLDS<br />
Community recreation for kids or teens with special needs, including transportation,<br />
supervision and fun activities. Contact: Tessa 543-7102, youthservices@<br />
ucp-slo.org<br />
UCP SLO LIFE WITHOUT LIMITS WEEK EVENTS<br />
April 29, 2009: Adult Employment Open House<br />
April 30, 2009: Abilities Fair<br />
May 2, 2009: Paul Wolf Access Advocacy Awards<br />
Contact: Karl Winkler 541-8751 or kwinkler@Ride-On.org.<br />
ONGOING:<br />
SAN LUIS OBISPO County<br />
NORTH COUNTY AUTISM SPECTRUM SUPPORT GROUP<br />
3rd Friday of every other month, 7 - 9:00 pm, Paso Robles.<br />
Contact: Becky: 471-1354 or ncautismsupportgroup@charter.net or contact@<br />
autismspectrumcenter.com.<br />
SOUTH COUNTY AUTISM SUPPORT GROUP<br />
2nd Tuesday of every month, 12 – 1:30 pm, Grover Beach<br />
Contacts: Leslie 904-9212 or sweeters@digitalputty.com.<br />
INDEPENDENT LIVING RESOURCE CENTER’S PEER SUPPORT MEETING FOR INDI-<br />
VIDUALS WITH DISABILITIES<br />
1st Monday of every month, 1:30-2:30, SLO, Contact: Denise Martinez 593-0667.<br />
POSTPARTUM DEPRESSION SUPPORT GROUP<br />
2nd Saturday of the month, 9 - 10:30 am, Cost: $20, Contact: Joan Fusco, LCSW,<br />
phone: 801-3127.<br />
THIRD SUNDAYS AT THE PASO ROBLES CHILDREN’S MUSEUM<br />
3rd Sunday of the month, 10 am – 12 pm, For families of children with special<br />
needs, Paso Robles, Cost: $7 for Adults; $6 for children 1 – 13 years; $5 for Seniors<br />
aged 65 and over<br />
Contact: 238-7432.<br />
6 | tri-line WINTER <strong>2008</strong><br />
SANTA BARBARA County<br />
ALPHA RESOURCE CENTER - Family Resource Center<br />
email: info@alphasb.org / www.alphasb.org<br />
Santa Maria Office Santa Barbara Office<br />
805.347.2775 877.414.6227<br />
805.683.2145<br />
SAVE THE DATE<br />
Feb 18th - Early Start<br />
Call Alpha for details<br />
Alpha Resource Center offers a wide variety of services and supports to encompass the needs<br />
of individuals with disabilities of all ages and at all stages of life.<br />
Children & Family Services ~ Family First assists parents of children with special needs<br />
to gain the knowledge and skills to enable their children to be all they can be. Parentto-parent<br />
and family support, parent-professional collaboration, resource meetings and<br />
workshops, information & referral, transition, future planning, and much more!<br />
Resource Libraries ~ offer over 2000 titles on developmental and other disabilities.<br />
Located at <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center offices in Santa Maria and Santa Barbara. Mobile<br />
library services are available. Call for hours or specialized assistance.<br />
Katie’s FUNd ~ provides social and recreational opportunities for teens with developmental<br />
disabilities. Contact: Amy Buesker at 683-2145 x127 or abuesker@alphasb.org.<br />
Alpha Adult Services ~ provides a broad spectrum of services for adults with developmental<br />
disabilities. Each participant assists in the development of individualized services<br />
tailored to achieve his or her personal goals. 805.964.3547<br />
Parent-to-Parent Support<br />
Sponsored by Special Needs Network. Meets third Thursday of every month,<br />
9:00 am at Coffee Diem, 505 S. McClelland Street in Santa Maria.<br />
Contact: Diana 805.937.8756.<br />
City of Santa Barbara Parks & Recreation Department<br />
Check out what they have to offer. Contact: Adapted Programs 805.564.5421.<br />
Family First at alpha resource connections<br />
A family resource center and parent network. Provides parent-to-parent and<br />
family support, parent-professional collaboration, parent and family workshops,<br />
and information and referral. Contact: North County 805.347.2775 / South<br />
County 805.683.2145.<br />
Something for the Siblings<br />
The Special Needs Network is a new club for the siblings of individuals with<br />
disabilities. The club will consist of several fun activities and will be a chance to<br />
get away and relax with others who also have siblings with disabilities. Contact:<br />
Laura King, 805.344.1403.<br />
Santa Maria Special Education & Support Information<br />
Kathy Rowley has started a Yahoo Group for parents of children with special<br />
needs who live in Santa Maria. To join go to http://groups.yahoo.com/group/<br />
santamariasupport.<br />
Autism Society of America - Santa Barbara Chapter (ASASB)<br />
Contact: Marcia or Sandy at 805.560.3762 or info@asasb.org, www.asasb.org.<br />
Santa Maria Autism Support Group<br />
Has an online support group for parents of children diagnosed with autism.<br />
There is also a weekly playgroup that meets at a local park. Contact: 805.714.1187<br />
or email begeasykr@yahoo.com.<br />
Lompoc Autism Support Group<br />
A support group for parents and other caregivers of children diagnosed with<br />
autism. Contact: Polly Bleavins 805.347.2775 or email pollyb@alphasb.org.<br />
P.O.S.E. Parents of Special Education<br />
This parent support group meets the third Wednesday of every month at 9:30<br />
a.m. The group also fundraises to provide additional educational materials for<br />
special education programs in Santa Barbara. For meeting locations and fund<br />
raising events, contact Jennifer Griffin, 805.967.0371 (jenagrif@verizon.net) or<br />
Cathy Abarca, 805.448.6431 (cat736@aol.com).<br />
TALK ABOUT CURING AUTISM (TACA)<br />
Meets 3rd Saturday of the Month, 11:00 am - 1:00 pm “The Loft” Above Sur La<br />
Table in Paseo Nuevo. This is a support group meeting for caretakers for those<br />
with special needs. Contact Kathleen_reish@tacanow.org, www.tacanow.org.<br />
SBATA@YAHOOGROUPS.COM<br />
Online group for parents of special needs children, email hosseini58@cox.net.
Ventura County<br />
Rainbow Connection - Family Resource Center<br />
email: rainbow@tri-counties.org<br />
Oxnard Office<br />
Simi Valley Office<br />
800.332.3679 800.517.2524 x2325<br />
805.485.9643 805.823.2325<br />
Rainbow Connection provides many activities for children and families. Here is<br />
a list of on-going support groups:<br />
SIBCLUB<br />
First Friday of the month, 6:30 - 8:00 pm<br />
Games, Fun, Activities, for 5 - 14 years old siblings of children with<br />
developmental disabilities in Oxnard.<br />
CEREBRAL PALSY SUPPORT GROUP (ENGLISH & SPANISH)<br />
Third Monday of the month, 9:30 - 11:00 am<br />
Groups meet separately in English and Spanish<br />
Join other parents to talk about issues related to raising children with cerebral<br />
palsy and share resources and information.<br />
SPECIAL PARENTS NETWORK (ENGLISH)<br />
Third Wednesday of the month, 6:30 - 8:30 pm, Oxnard<br />
Third Thursday of the month, 9:30 - 11:00 am, Simi<br />
Come and join us for a cup of coffee, learn about our resources and talk about<br />
issues related to raising children with special needs.<br />
DOWN SYNDROME SUPPORT GROUP (ENGLISH)<br />
Second Thursday of the month, 6:30 - 8:30 pm, Oxnard<br />
Families have open discussions about raising children with Down syndrome.<br />
DOWN SYNDROME SUPPORT GROUP (SPANISH)<br />
Second Thursday of the month, 6:30 - 8:30 pm, Oxnard<br />
Families have open discussions about raising children with Down syndrome.<br />
AUTISMO SUPPORT GROUP (SPANISH)<br />
Second Thursday of the month,10:30 - 12:00 pm, Oxnard<br />
First Thursday of the month, 7:00 - 8:30 pm, Oxnard<br />
Families have discussions on issues related to raising children with autism.<br />
RAINBOW MOMS CONNECTING - OXNARD (SPANISH)<br />
Third Friday of the month, Oxnard<br />
Come and enjoy time with other mothers of children with special needs and<br />
have a relaxing time. For more information or to RSVP please call Rainbow.<br />
CONNECTING WITH RAINBOW - FILLMORE (SPANISH)<br />
Third Friday of the month, 5:00 - 7:00 pm, Dr. Neil Schmidt Family Resource<br />
Center. Families of children and adults who receive services from <strong>TCRC</strong> are<br />
assisted in navigating the healthcare system as well a variety of other issues.<br />
They can also make an apt. in advance to make a Health Care Notebook.<br />
TEDDY BEAR BRIGADE<br />
Third Saturday of the month (except for summer) 1-3:00 pm, Thousand Oaks<br />
For children 3 -13 years old with special needs and their siblings. It includes<br />
stories, sensory themes, crafts and music. Visit www.bearsandcompany.com<br />
to register. Parents meet separately for social and networking time.<br />
SANTA CLARA SUPPORT GROUP (SPANISH)<br />
Third Monday of the month. Families meet to share the experiences they’ve<br />
had with their children with special needs and learn about resources.<br />
SANTA PAULA SUPPORT GROUP (ENGLISH)<br />
Families meet to share the experiences they’ve had with their children with<br />
special needs and learn about resources. Meets 4th Monday of the month.<br />
SANTA PAULA SUPPORT GROUP (SPANISH)<br />
Families meet to share the experiences they’ve had with their children with<br />
special needs and learn about resources. Meet 1st Monday of the month.<br />
RAINBOW MOMS CONNECTING - FILLMORE (ENGLISH)<br />
Third Monday of the month. Moms of children with special needs meet to<br />
share and learn new information.<br />
RAINBOW MOMS CONNECTING - VENTURA COUNTY (ENGLISH)<br />
Meeting dates and times vary. Come and enjoy a night out with other mothers<br />
of children with special needs.<br />
NICU SUPPORT GROUP (ENGLISH & SPANISH)<br />
Third Wednesday of the month, 6:30 - 8:00pm, Oxnard<br />
Groups meet separately in English & Spanish. Meet other families and share<br />
ideas of coping, photos, info, joy and triumphs. Pizza will be served! Families<br />
with babies in the NICU and NICU grads welcome.<br />
G-TUBE/J-TUBE/NG-TUBE NETWORKING (ENGLISH & SPANISH)<br />
Third Thursday of the month, 6:30 - 8:00 Oxnard<br />
Does your child have a G-tube, J-tube, or NG-tube? Has it been suggested that<br />
your child get a tube? We look forward to sharing our stories of frustrations,<br />
fears, and successes (large and small).<br />
SOCIAL TIME FOR ADULTS SERVED BY <strong>TCRC</strong><br />
Last Saturday of the month (RSVP a must), 12:30-2:30 pm, Oxnard<br />
Come and join other adults for refreshments, conversation, browsing in the<br />
library, and enjoy a movie and popcorn at Rainbow Connection in Oxnard.<br />
Direct care or supervision is not provided.<br />
OTHER COMMUNITY SUPPORT GROUPS:<br />
MEETUP GROUP FOR FAMILIES WITH KIDS WITH ASPERGER’S<br />
NEW GROUP, ages 5 - 12 years. RSVP at the link to the MeetUp site: http://<br />
parents.meetup.com/636/<br />
BRANDON’S BUDDIES (ENGLISH)<br />
First Saturday of the month, Calabasas. A free play date for children of all<br />
abilities. To RSVP call Dina Kaplan 818.222.8118 or brandonsbuddies@pacbell.<br />
net.<br />
AUTISM SPECTRUM DISORDER (ASD) PARENT SUPPORT GROUP (ENGLISH)<br />
Second Wednesday of the month at Rainbow Connection, 7:00 - 9:00 pm,<br />
Oxnard. For more information contact Tera Marquez or Karen Bobo at<br />
asdparentsupportgroup@gmail.com.<br />
SUPPORT GROUP FOR PARENTS OF KIDS WITH AUTISM<br />
Last Monday of the month, 6:30 pm<br />
We provide child care. The address is 2697 Lavery Ct., Suite 17 Newbury Park.<br />
Contact Leila Silva at 805.480.9039 or 805.341.3089.<br />
SPECIAL PARENTS CAFE<br />
Third Saturday of each month. Spanish speakers welcome, Silvia, 805.530.0315.<br />
LET’S GO HIKING<br />
First Saturday of the month, Bob Charney and his son Michael, who has<br />
Autism, invite other dads and their sons with developmental challenges to go<br />
hiking. If you’re interested in participating, call Bob Charney at 818.735.7331 or<br />
818.789.1586 x223.<br />
MOM’S NIGHT OUT THOUSAND OAKS (ENGLISH)<br />
Third Tuesday of the month. For contact information call Rainbow.<br />
DAD’S NIGHT OUT THOUSAND OAKS (ENGLISH)<br />
Fourth Tuesday of the month. For contact information call Rainbow.<br />
VENTURA COUNTY AUTISM SOCIETY (ENGLISH)<br />
For more information call Ventura County Autism Society at 805.496.1632.<br />
HAPPY FRIENDS CLUB<br />
Alternate Tuesdays, 6:30 pm - 8:00 pm, Camarillo<br />
Support group for adults & teens with mental/physical challenges. Speakers,<br />
games, arts & crafts, round table discussions, occasional community outings.<br />
Contact: Jean McGuire 805.816.2319 or email: bobbyjean2@mac.com.<br />
With each issue of the <strong>Tri</strong>-<strong>Line</strong>, we provide information on some of the resources<br />
available to families within the <strong>Tri</strong>-<strong>Counties</strong> area. Please call to confirm dates<br />
and times of events. Check with your service coordinator for information on other<br />
resources available to you in your area.<br />
WINTER <strong>2008</strong> tri-line | 7
TO OUR VOLUNTEERS<br />
THANK YOU<br />
FOR BRINGING THE HOLIDAYS TO<br />
THOSE WHO MAY NOT HAVE HAD<br />
THEM WITHOUT YOUR HELP<br />
Angels Bearing Gifts Staff<br />
Mary met Evelynn at a support group for parents<br />
of special needs children that Evelynn, a licensed<br />
therapist, was facilitating and is grateful that Evelynn<br />
founded “her Angels group” as it is “clearly one that is<br />
needed in the community.” Angels Bearing Gifts serves<br />
beneficiaries from Carpinteria to Paso Robles.<br />
In her wallet, Mary keeps a Chinese proverb which concludes with<br />
the line “If you want happiness for a lifetime, help somebody.” (Volunteers<br />
seem to instinctively know this.)<br />
“If You Want Happiness for a Lifetime, Help<br />
Somebody”<br />
by Jill Davis, Angels Bearing Gifts<br />
Volunteers—what would we do without them? Not nearly as much<br />
as we can do with them. One passionate volunteer is worth more<br />
than a dozen clock-watchers someone once said. This may have<br />
been the same person who said if you want something done give<br />
it to a busy person.<br />
Mary Watts and Holly Sherwin, two working moms in Santa Barbara,<br />
for whom a 24-hour day surely can’t be enough, are living<br />
examples of this viewpoint. Interestingly enough, working mothers<br />
with school-age children volunteer more hours than any other<br />
demographic in America according to U.S News & World Report.<br />
“I have done it all my life. It was instilled in me by my parents and<br />
in my husband from his parents,” says Mary. “So it is sort of second<br />
nature to us.”<br />
“It is so easy to get<br />
caught up in our<br />
everyday routines<br />
and forget about or<br />
just put off doing<br />
something for others,”<br />
says Holly.<br />
Both women chose<br />
Angels Bearing Gifts<br />
to introduce their<br />
children to volunteering<br />
and to the<br />
Mary with her son Ben<br />
lessons that volunteering conveys. Mary’s son, Ben, and Holly’s son,<br />
Alec, have special needs (as does Angels founder Evelynn Smith’s<br />
daughter, Michelle) so it is a match that works well on several<br />
levels.<br />
“It was an eye-opening experience for Alec,” says Holly. “A bit scary<br />
at first, but I think he got it. We were able to have a great discussion<br />
about the importance of helping our fellow human beings.”<br />
And she adds: “Volunteering as a family made the experience so<br />
much richer.”<br />
Holly and Lanny with their son Alec<br />
“I don’t always live up to it the best that I can,” says Mary, “but it is<br />
something I usually strive for.”<br />
Volunteering as a family and, at this time of year, as a family<br />
holiday tradition, is what feels right to so many in our community.<br />
It’s giving back. It’s making a difference. It’s an “active lesson” in<br />
compassion for children.<br />
“As Alec gets older, I hope the extent of our volunteering grows<br />
and through it, we also will continue to grow as a family and a<br />
community,” says Holly.<br />
Both the Sherwin and Watts families are hands-on volunteers for<br />
Angels Bearing Gifts, wrapping and delivering holiday gifts to individuals<br />
with developmental disabilities who don’t have families.<br />
They also sponsor beneficiaries through financial contributions,<br />
ensuring that they are remembered on their birthdays, Valentine’s<br />
Day as well as Chanukah and Christmas.<br />
Volunteers, we need you. We can’t do much without you, and we<br />
appreciate everything you do.<br />
And if you want to know more about Angels Bearing Gifts and<br />
the ways you can help developmentally disabled people without<br />
families celebrate the holidays, please call 884.7222 or email info@<br />
angelsbearinggifts.com. It’s not too late to volunteer!<br />
8 | tri-line WINTER <strong>2008</strong>
Advocating for My Child and Others<br />
by Linda Miyahira, M.S, Service Coordinator, Simi Valley team<br />
The word “advocacy” is thrown around more than ever these days. As<br />
parents of children with special needs, we are advised to become an<br />
advocate by every doctor and therapist we meet. So, what exactly<br />
does it mean?<br />
Advocacy, according to the dictionary, is the act of pleading or giving<br />
verbal support for a cause. To be an advocate means you must<br />
become that voice. This is easy enough if you have been trained to<br />
speak or have a natural gift for speaking up. For<br />
many parents, this is not the case, and it is a<br />
scary role that we are suddenly expected to<br />
step into immediately for our children.<br />
Generally, you are not alone in this process<br />
if your child is born with a condition that<br />
requires the assistance of doctors, therapists,<br />
and service coordinators. However, if your<br />
child has a condition that is not immediately<br />
obvious to anyone but family and friends,<br />
a parent’s world can feel like a dark chasm<br />
swirling with a myriad of possible diagnoses<br />
(thanks to the Internet) and professionals<br />
without names. For those of us involved with the regional center<br />
system and our local school districts, some of that confusion has been<br />
eliminated, but that does not end our advocacy. It is a lifelong role for<br />
many parents. So, where can a parent learn more?<br />
Rainbow Connection Family Resource Center is a wonderful support<br />
network that is run by parents of children in the <strong>Regional</strong> Center<br />
system. They have a lending library and a number of support group<br />
Think you are Getting Sick? How to Tell. . .<br />
By Louis Cassano, RN Nurse Specialist<br />
affiliates, provide regular trainings for parents and caregivers (which<br />
include the development of effective advocating with your regional<br />
center and school district), as well as a basic understanding of your<br />
child’s rights on both state and federal levels.<br />
It is necessary for parents to know when they are ready to advocate.<br />
Sometimes a parent must jump in and learn along the way when<br />
there is urgency. However, as a service coordinator and a parent, I<br />
have seen a number of parents with good intentions<br />
create huge rifts with the very people their<br />
children need in their lives. They burn bridges<br />
where there needs to be a smooth path for children<br />
to receive every necessary service to reach<br />
their potential.<br />
We all go through the grieving process (denial,<br />
anger, bargaining, depression, acceptance),<br />
and it is important to know where you are in<br />
that process before going about the business<br />
of advocating for your child or someone else’s<br />
child. It is also important to make sure that what<br />
is being advocated for is in the best interest of<br />
the child and not to satisfy a parent’s personal need (or subconscious<br />
vendetta). It requires much self-reflection and introspection, which<br />
is a brave act in itself. By doing this exercise, we can see more clearly<br />
and take a more objective approach.<br />
Advocacy is about building bridges and forming links that will give<br />
parents and their children appropriate support and access to every<br />
service that will help them both on their journey to a fulfilling life.<br />
health & safety<br />
If you have developed a few symptoms, but are unsure if<br />
you have a cold or allergies, the matrix below may help. It<br />
lists the symptoms of cold, flu, sinusitis and allergic rhinitis.<br />
symptoms COLD FLU SINUSITIS ALLERGIC RHINITIS<br />
FEVER<br />
Rare in adults and older<br />
children, may be high<br />
in infants and small<br />
children<br />
Usually high (102-104)<br />
and can last for 3-4 days,<br />
fever and chills<br />
HEAD ACHE Rare Sudden Onset, may be<br />
severe<br />
MUSCLE ACHES<br />
Possibly mild<br />
Yes, often severe<br />
TIREDNESS / WEAKNESS Mild Yes, may last two or<br />
more weeks<br />
EXHAUSTION Never Sudden onset, may be<br />
severe<br />
NASAL DISCHARGE Watery to thick, cloudy Sometime watery to<br />
or white<br />
cloudy or white<br />
Spotlight on the Web<br />
Not usual, fever may<br />
indicated infection<br />
Yes, may have facial or<br />
eye pain<br />
Not usual<br />
Mild<br />
Never<br />
Thick yellow-green sinus<br />
congestion<br />
Not usual, fever may<br />
indicate infection<br />
Possible<br />
Not usual<br />
Not usual<br />
Never<br />
Thin, watery, itchy eye<br />
SNEEZING Often Sometimes Sometimes Sometimes<br />
SORE THROAT Often Sometimes Not usual Often<br />
COUGH / CONGESTION Mild hacking, a lot of clear, Usual, may be severe. Especially at night Possible<br />
yellow or green phlegm A lot of clear, yellow or<br />
may indicate infection. If green phlegm may indicate<br />
infection. If wheez-<br />
wheezing, notify your doctor.<br />
If cough lasts 14 days ing, notify your doctor.<br />
or more, see your doctor.<br />
WINTER <strong>2008</strong> tri-line | 9
A Perfect Match<br />
by Athena Meisheid, Associate Director, Community Options, Inc. (COI)<br />
Some people with developmental disabilities have never had the<br />
opportunity to benefit from the many rewards family home life<br />
brings. Others desire to participate in family home life again. For<br />
the past thirteen years, Community Options, Incorporated (COI -An<br />
Adult Family Home Agency - AFHA ) has offered unique opportunities<br />
for adults with developmental disabilities to live in a home in their<br />
community with a family carefully matched to meet their needs and<br />
preferences. The culture that they are accustomed to is carefully<br />
considered.<br />
Estela doesn’t need medication to sleep any more. Best yet - - Estela<br />
is often laughing and smiling! She is invited and participates in all the<br />
Dela Vega’s large extended family events and is an integral part of the<br />
family holidays and traditions. When Kahlia was born, Estela was there<br />
at the hospital with all of the family. There are weddings, showers,<br />
birthdays with piñatas, and Estela is there for it all!<br />
Family Home Provider, Jessica says, “I don’t know how you figured out<br />
the match, but Estela really fits with our family, she really feels like a<br />
part of my family.”<br />
Estela near her bed<br />
Estela and her home life situation is just one example of many<br />
wonderful matches that have occurred through COI. For the past<br />
four years, Estela has lived with the Dela Vega Family in Santa Maria,<br />
which includes Family Home Providers Jessica, Carlito, their daughter<br />
Vanessa, and two year old granddaughter Kahlia. The Dela Vega<br />
family became certified to provide care, supervision, and support<br />
through COI, completing a rigorous process that includes information<br />
gathering about their family, on-going training, background<br />
clearances, and maintenance of their home according to COI<br />
standards.<br />
Estela previously lived in a care home that did not meet her cultural<br />
preference. Although good quality care was delivered, Estela<br />
appeared frustrated. She would sometimes cry and hit her head with<br />
her hand to express her unhappiness. Specialized care and cultural<br />
considerations were difficult to accommodate at this home due to<br />
regulatory restrictions that impede the ability to customize care and<br />
support. For example, growing up in her family home, Estela was<br />
accustomed to sleeping on the floor and often crawled out of her bed<br />
to do so. It was common for Estela and her family to sleep on the floor<br />
together. At her previous care home, Estela slept in a high hospital<br />
bed and was in danger of injury on nights when she attempted to lay<br />
on the floor. Due to these “nocturnal behaviors”, Estela was treated<br />
with medication to deter her from leaving the bed at night.<br />
The previous care provider suggested that the quality of Estela’s life<br />
may improve if she lived with a family who spoke her native tongue<br />
and could more readily accommodate her cultural and physical living<br />
preferences.<br />
Through a regional center referral to COI, Estela was able to move into<br />
a Spanish speaking home, where foods she was accustomed to were<br />
lovingly prepared and familiar music was heard. Accommodations<br />
and adaptations to the environment were made to meet Estela’s needs<br />
and preferences. The Dela Vega family welcomed Estela with her own<br />
specially made bed, one that fit her petite frame, was cozy, and had<br />
modified legs to lower the bed. The Dela Vega family home also had<br />
soft carpeting and padding on the floor to accommodate Estela when<br />
she preferred to sleep there.<br />
10 | tri-line WINTER <strong>2008</strong><br />
Estela with Jessica Dela Vega<br />
In addition to the Dela Vega family, Estela also receives the support<br />
of Community Living Coordinator, Kim Burt, who helps to coordinate<br />
medical and other supports, oversees quality assurance for the<br />
home, and helps to provide whatever Estela needs to be successful at<br />
home and in the community. Respite supports are also provided by<br />
COI to the Dela Vega family. This provides a break for the Dela Vega<br />
family and provides Estela with<br />
opportunities to do fun activities<br />
at home or in the community with<br />
an additional member to her circle<br />
of support. COI contracts with<br />
consultants that provide practical<br />
and technical expertise in helping<br />
her become as independent as<br />
possible.<br />
Ingrid Rushing, COI President/<br />
CEO states, “When it comes to<br />
the process of creating a home<br />
for ourselves and building our<br />
circle of people we want to share<br />
our home and personal life with,<br />
that process is a very thoughtful,<br />
unique, and intimate one. What<br />
may be defined as the “comforts<br />
Estela with Kahlia<br />
of home” for one person will certainly be different for the next. This<br />
is why at COI we believe that facilitating, developing, and matching<br />
supports with one person at a time is what quality service is all about.<br />
Thoughtful considerations, watching, listening, and collaboration are a<br />
part of the success!”<br />
For more information about becoming a state certified Adult Family<br />
Home Provider or to inquire about COI’s services, please contact<br />
Athena Meisheid at (805) 481-7329- ext. 201.
awards<br />
<strong>TCRC</strong> staff news<br />
Please note that the Fall <strong>2008</strong> <strong>Tri</strong><strong>Line</strong> included a misprint in the Awards section. The correct information for all Spirit of<br />
Excellence Award winners is printed below.<br />
In our continued commitment to recognize employees for outstanding work, some exciting changes have<br />
been made to the Spirit of Excellence award program. The award acknowledges employees who demonstrate<br />
teamwork, good citizenship, service to the people we serve, morale building, quest for quality and<br />
above and beyond dedication to their work. The new program will be instituted the fourth quarter of <strong>2008</strong>.<br />
Employees are nominated quarterly by their colleagues. Two quarterly winners are selected from each of the<br />
larger Oxnard and Santa Barbara offices and one from each of the remaining offices. A nomination committee<br />
comprised primarily of <strong>TCRC</strong> employees selects the quarterly winners. All nominees receive a $20 gift<br />
certificate. Quarterly winners receive an award certificate, temporary possession of the lovely, stone Dolphin<br />
Award and a chance to become one of the two annual winners.<br />
At the end of the year, the accomplishments of all quarterly winners are reviewed by the Director’s team and<br />
two employees are selected to receive the Annual Spirit of Excellence award. Annual winners receive a $300<br />
gift card, public acknowledgement, and a Dolphin Award engraved with their names.<br />
SPIRIT OF EXCELLENCE AWARDS<br />
3rd Quarter<br />
2007<br />
SPIRIT OF EXCELLENCE AWARDS<br />
4th Quarter<br />
2007<br />
SPIRIT OF EXCELLENCE AWARDS<br />
1st Quarter<br />
<strong>2008</strong><br />
SPIRIT OF EXCELLENCE AWARDS<br />
2nd Quarter<br />
<strong>2008</strong><br />
DENISE rENNA<br />
Service Coordinator II, Atascadero<br />
Summer Beasley-Hoffman<br />
Service Coordinator II, San Luis Obispo<br />
Cynthia Camacho<br />
Service Coordinator II, Santa Maria<br />
Rosemary Rice<br />
Service Coordinator I, Santa Barbara<br />
darcy bishop<br />
Service Coordinator II, Atascadero<br />
bruce powers<br />
Psychologist, San Luis Obispo<br />
karen wissig<br />
Service Coordinator II, Santa Barbara<br />
matt lorden<br />
Human Resources Associate, SB<br />
David mulvey<br />
Service Coordinator II, Atascadero<br />
Andrea Schacht<br />
Service Coordinator II, San Luis Obispo<br />
Genevieve soto-berry<br />
Service Coordinator II, Santa Barbara<br />
Vi Nguyen<br />
Organizational Development Associate, SB<br />
Alisa Welsch<br />
Service Coordinator II, Atascadero<br />
Shilo Freer<br />
Service Coordinator I, San Luis Obispo<br />
Sally Mendoza<br />
Service Coordinator I, Santa Barbara<br />
Cathy Berry<br />
Executive Assistant, Santa Barbara<br />
Phil Stucky<br />
Controller, Santa Barbara<br />
Anabelle Cordero<br />
Service Coordinator II, Oxnard<br />
Danielle Gonzalez<br />
Secretary III, Simi Valley<br />
Lars Eacott<br />
Service Coordinator II, Simi Valley<br />
dan van keuren<br />
Service Coordinator II, Oxnard<br />
violeta pulido<br />
Secretary III, Oxnard<br />
gary riewer<br />
Service Coordinator II, Simi Valley<br />
Megan Bovenzi<br />
Service Coordinator II, Oxnard<br />
Zeke Vargas<br />
Service Coordinator II, Oxnard<br />
Uvence Garcia<br />
Service Coordinator II, Simi Valley<br />
Dalia Ruiz<br />
Service Coordinator II, Santa Maria<br />
San Luis Obispo<br />
County<br />
Atascadero<br />
Hotel Park Business Center<br />
6005 Capistrano, Suite E<br />
Atascadero, CA 93422-7219<br />
805.461.7402<br />
FAX 805.461.9479<br />
San Luis Obispo<br />
3450 Broad Street, Suite 111<br />
San Luis Obispo, CA<br />
93401-7102<br />
805.543.2833<br />
800.456.4153<br />
FAX 805.543.8725<br />
Santa Barbara County<br />
Santa Barbara<br />
520 East Montecito Street<br />
Santa Barbara, CA<br />
93103-3278<br />
805.962.7881<br />
800.322.6994<br />
FAX 805.884.7229<br />
Santa Maria<br />
1234 Fairway Dr.<br />
Santa Maria, CA 93455<br />
805.922.4640<br />
800.266.9071<br />
FAX 805.922.4350<br />
welcome<br />
new employees<br />
Jessica Osuna<br />
Service Coordinator II<br />
Rebecca Luden, Service Coordinator II<br />
Regina Kentner, Psychologist I<br />
promotions<br />
Anne Baltzer<br />
from SC II to Early Start Manager<br />
Megan Bovenzi<br />
from SC II to SC II with Masters<br />
Alison Forsyth<br />
from SC II to SC II with Masters<br />
SUMMER BEASLEY<br />
from SC II to with SC II with Masters<br />
COLLEEN DUNCAN<br />
from Resource Developer to Autism<br />
Coordinator<br />
Ventura County<br />
Oxnard<br />
2401 Gonzales Road, Suite<br />
100<br />
Oxnard, CA 93030-2119<br />
805.485.3177<br />
800.664.3177<br />
FAX 805.988.9521<br />
TCCHC<br />
TCCHC ANNOUNCES NEW<br />
EXECUTIVE DIRECTOR<br />
<strong>Tri</strong>-<strong>Counties</strong> Community Housing<br />
Corporation (TCCHC) Board of Directors<br />
is pleased to announce that Marc<br />
Belfortti has accepted the position of<br />
Executive Director.<br />
Mr. Belfortti brings to this new position<br />
over twenty years of experience<br />
in banking and financial services, project<br />
feasibility and affordable housing.<br />
Prior to joining TCCHC, he served as<br />
First Vice President and CRA Officer<br />
for IndyMac Bank, Pasadena.<br />
TCCHC’s mission is to enhance the<br />
quality of lives for people with<br />
developmental disabilities served<br />
by <strong>Tri</strong>-<strong>Counties</strong> <strong>Regional</strong> Center by<br />
creating quality, affordable housing<br />
options in inclusive communities.<br />
For more information, visit www.<br />
tri-countieshousing.org.<br />
Simi Valley<br />
1900 E. Los Angeles Ave.<br />
Simi Valley, CA 93065<br />
805.522.8030<br />
800.517.2524<br />
FAX 805.522.8142<br />
WINTER <strong>2008</strong> tri-line | 11
<strong>Tri</strong>-<strong>Counties</strong> Association<br />
for the Developmentally Disabled<br />
520 E. Montecito Street<br />
Santa Barabara, CA 93101<br />
NONPROFIT ORG.<br />
U.S. Postage<br />
PAID<br />
Santa Barbara<br />
CA 93101<br />
Permit No. 359<br />
The <strong>Tri</strong>-<strong>Counties</strong> Association<br />
for the Developmentally<br />
Disabled Inc. (TCADD) Board<br />
of Directors is comprised of<br />
volunteers, including business<br />
people, professionals, family<br />
members and persons served.<br />
Many board members wear<br />
multiple “hats” – for example<br />
one may be both a professional<br />
and have a family member<br />
who is served by <strong>Tri</strong>-<strong>Counties</strong><br />
<strong>Regional</strong> Center (<strong>TCRC</strong>). Board<br />
members bring a dedicated<br />
and informed approach<br />
to their work, especially<br />
in their activities in board<br />
committees. This year has<br />
been particularly challenging<br />
for the Administration and<br />
Executive Committees around<br />
monitoring the impact of the<br />
delay in the passage of the<br />
State budget in California,<br />
which affects delivery of<br />
services and supports by<br />
<strong>TCRC</strong>. Of equal import, we<br />
have been vigilant around the<br />
Call for Volunteers for the TCADD Board<br />
Greetings from the President<br />
By Stan Deakin, TCADD Board Director<br />
potential impact on our staff<br />
and management. I am proud<br />
of our leadership and how they<br />
are handling the continuing<br />
fiscal crisis. Funds have been<br />
well managed, resulting in little<br />
or no impact on persons served<br />
as well as staff. We know that<br />
there is much work ahead<br />
and expect a state budget<br />
for the remainder of this fiscal<br />
year and next that will most<br />
likely be further affected by<br />
economic conditions. We will<br />
not pause in our continued<br />
advocacy efforts to ensure the<br />
best outcomes for our regional<br />
center’s fiscal health.<br />
Monitoring the progress<br />
for the <strong>TCRC</strong> Strategic and<br />
Performance Plan is a critical<br />
duty of the TCADD Board.<br />
We support the efforts of our<br />
Executive Director, Dr. Omar<br />
Noorzad and the <strong>TCRC</strong> staff<br />
as they work hard to meet the<br />
objectives in the plan. A copy<br />
of the plan can be accessed<br />
on the <strong>TCRC</strong> web site at<br />
www.tri-counties.org/abouttcrc/strategic-performance/.<br />
I want to in particular note<br />
the great strides that have<br />
been made in the area of<br />
housing this year. TCADD<br />
board members and staff have<br />
played important and integral<br />
roles in the development of<br />
the <strong>Tri</strong>-<strong>Counties</strong> Community<br />
Housing Corporation (www.<br />
tri-countieshousing.org), a<br />
non-profit housing corporation<br />
set up by our regional center<br />
to focus solely on affordable<br />
housing for persons with<br />
developmental disabilities.<br />
<strong>TCRC</strong>’s 40th anniversary is<br />
upon us! It is a time to reflect<br />
upon the history of <strong>TCRC</strong>, to<br />
appreciate and learn from<br />
the early beginnings of the<br />
regional center’s work and to<br />
acknowledge the progress<br />
made in the delivery of<br />
services and supports. We are<br />
so pleased to be part of the<br />
work of our regional center<br />
and we are sure that despite<br />
daily challenges faced by staff<br />
and the roller coaster ride of<br />
state budget crises, we will all<br />
work together to maximize<br />
opportunities and choices for<br />
living, working, learning and<br />
recreating in the community<br />
for those with developmental<br />
disabilities.<br />
Have a wonderful holiday<br />
season!<br />
Potential members have business management, public relations, education or other business<br />
or non-profit experience. Family members of persons served by <strong>TCRC</strong> are encouraged to apply.<br />
Make a rewarding contribution to TCADD and help improve the quality of life for persons with<br />
developmental disabilities. Please contact Nancy Kavin at nkavin@mwdh2o.com for more information,<br />
or visit our web site: http://www.<strong>Tri</strong>-<strong>Counties</strong>.org/tcrc4/about-tcrc/tcadd/membership/<br />
Cover Design: Heather Wennergren | Editor & Design: Heather Wennergren<br />
Translation: Carlos Cerecedo | Photography: Wendy Guerrero<br />
<strong>Tri</strong>-<strong>Counties</strong><br />
<strong>Regional</strong> Center<br />
Headquarters<br />
520 E. Montecito Street<br />
Santa Barabara, CA 93101<br />
805.962.7661 Tel<br />
800.322.6994 Toll-Free<br />
www.tri-counties.org<br />
Board of Directors<br />
Stan Deakin<br />
President<br />
Sandra Aldana<br />
Secretary<br />
Robyn Adkins<br />
Justine Blevins<br />
Bob Cobbs<br />
Charles Devlin<br />
Cathy Farrar<br />
Nancy Kavin<br />
Julie Kahn<br />
Donna Moore<br />
Shanti Nadiminti<br />
Kathleen Redmond<br />
Kathy Reed<br />
Board Meetings<br />
in Santa Barbara<br />
Jan 30th ..................... 6:00 pm<br />
March 14th................. 9:30 am<br />
May 2nd ..................... 9:00 am<br />
Town Hall Meetings<br />
Scheduled for 2009<br />
Jan 21st ...... San Luis Obispo<br />
April 15th....... Santa Barbara<br />
May 20th............... Simi Valley<br />
July 15th............. Santa Maria