SPINAL NETWORK NEWS
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to see more sports articles and 20.9% wanted to see more<br />
music and art/s stories.<br />
Survey respondents also gave us lots of very valuable<br />
comments regarding the topics they want to see more of in<br />
the SNN. These include more articles on health issues related<br />
to having an SCI; more personal stories about how people<br />
with an SCI live and manage their daily lives in the community;<br />
practical travel advice; information about SCI research and<br />
employment/study; and, how to find a balance between being<br />
a partner and a carer. The following is a sample of some of the<br />
comments you gave us:<br />
• “…articles on chronic pain and spasms, more health<br />
related articles”;<br />
• “More about what’s happening in the medical and scientific<br />
areas concerning help for people with SCI”;<br />
• “How people are dealing with the workplace”;<br />
• “More stories for family members …how to create a<br />
balance between being a partner and a carer”;<br />
• “More stories about what high-level tetraplegics achieve in<br />
their life”;<br />
• “Perhaps more Internet links for disabled travel. Perhaps<br />
also, you could get readers to rate the disabled rooms in<br />
hotels they have used and build up a list of good ones!”<br />
As mentioned above, many respondents wanted more articles<br />
that explore the personal, lived experience of SCI and want<br />
to know how others manage their lives. Hearing how others<br />
do things and knowing that others face similar problems<br />
was important to respondents. Here are some more of the<br />
comments we received:<br />
• “ …going back to basics for people with an SCI…<br />
regardless of how long a person has had an SCI, it’s good to<br />
be reminded of the basic issues and the journey”;<br />
• “…there are few to no tips and suggestions of how to<br />
cope with everyday life: attitudes to life, etc.”;<br />
• “...biographies of others with an SCI and their new lives”;<br />
• “It’s always good to read and see how others manage their<br />
SCI. It has taken me 10 years and I am still finding new<br />
ways to manage things. Getting ideas from others is always<br />
good.”<br />
A further issue that we have been aware of for some time<br />
now, is the need for more nation-wide stories. The majority<br />
of the New Zealand Spinal Trust’s operations are based in<br />
Christchurch, which can lead to an imbalance: with more<br />
articles orientated towards this end of the country. Readers<br />
commented that:<br />
• “Interesting, but too many Ch-Ch items”;<br />
Question 3<br />
After you read the SNN do you usually<br />
Question 4<br />
Overall, do you find the stories in the SNN interesting<br />
Keep it 54.5%<br />
Lend it to others 20.0%<br />
Dispose of it 19.0%<br />
Other 6.4%<br />
Yes, all the time 60.5%<br />
Sometimes 37.6%<br />
No, hardly ever 1.8%<br />
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