Winter News 2013 - Beating Bowel Cancer

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Health policy What’s your experience of the NHS? Patients sharing their experiences of their local NHS services – good or bad – are essential and really valuable in helping to improve the patient experience. We know this because health services and the NHS tell us how they have improved services as a direct result of feedback from their patients. So we have partnered with the online patient experience website Patient Opinion to give you the chance to share your own stories and suggestions on how your local services could be made better for all bowel cancer patients. If you’re a patient, carer, family member or friend, we’d like to hear from you. Whether you feel there could be vital improvements at your local hospital or you want to say thank you to the staff that treated you, this is your opportunity to share your thoughts with the people that can make a difference to how your local services are delivered. You can tell your story on our website by filling in the online form www.beatingbowelcancer. org/patient-opinion A gold standard for care and treatment B eing diagnosed with bowel cancer is a frightening experience. Many patients don’t know what to expect when they start going through treatment or what level of service they are entitled to. To improve the experience we will be launching a Service Pledge for Bowel Cancer, which will outline the ‘gold’ standard of care and treatment we believe every bowel cancer patient should have the right to expect. At our forthcoming Be Loud Be Clear parliamentary reception we will be asking all MPs to sign the pledge, as a commitment to ensuring improvements to their local services. In the coming months we will be developing local campaigns helping bowel cancer patients voice what matters to them about their bowel cancer services. Look out for how you can take part in the project. 6 www.beatingbowelcancer.org
New symptoms page If you happened to have visited our website lately, you may have seen the symptoms page looking very different. We know that the majority of people visiting our website look at the symptoms page, so we’ve redesigned it to make it easier to use and more interactive. Michael Ingram, Digital Development Manager, said: “We’ve also made the symptoms page compatible with mobile phones, so people can look at it on the go. Since we made these changes the time mobile users spend on the page has increased significantly. The next stage is to get the whole of the website compatible to view on your mobile phone.” 1 in 4 video Through some research we commissioned last year, we found that one in four people in the UK are affected by bowel cancer either directly, or someone they know. We produced a film, called 1 in 4, to showcase the work we do and how people can benefit from our support. It shows Debbie, who was diagnosed at 29, Goff, who lost his wife Sheila to bowel cancer, and Alison, who has advanced bowel cancer. Their stories are both moving and inspiring. You can see the film by visiting our website: www.beatingbowelcancer.org/why-support-us We would like to express our heartfelt thanks to Debbie, Alison and Goff for sharing their stories, and to Procreation, who kindly produced this wonderful film at no charge. Online community Facebook groups We are currently piloting ten bowel cancer support groups on Facebook. The groups are managed by Bowel Cancer Voices. They are for patients or former patients to get in touch with others in their local area to exchange experiences and support each other. Following the pilot, we hope to recruit volunteers to run similar groups all around the country. Please visit www.beatingbowel cancer.org/facebook supportgroups for more information. Don’t forget to tell us what you think We still want to hear your feedback on what you think of News. Please fill in this short survey to let us know what you’d like to see more of. www.beatingbowelcancer. org/AutumnNewsletter Survey www.beatingbowelcancer.org 7
Page 1 and 2: News The magazine from Beating Bowe
Page 3 and 4: Highlights What’s inside… 5 - P
Page 5: Insurance solutions Bowel cancer pa
Page 9 and 10: Care and support Patient Services N
Page 11 and 12: New members of staff Meet the team
Page 13 and 14: Get involved A Beardy thank you! We
Page 15 and 16: Regional Fundraising Update In the

Winter News 2013 - Beating Bowel Cancer

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