Volume 2, July 2006 - EHC

Volume 2, July 2006Chairman’s reportDear reader of the EHC-Newsletter, dear friend of theEuropean HaemophiliaConsortium !Our Members Meeting inVancouver was one of the majorchallenges this year, and all of youwho attend know why, and howcomplicated the situation of a volunteerpatient- organisationsumbrella organisation can be.Therefor we are very happy tohave completed the new EHC- Statutes in Englishand French (according to Belgium law) and translatedthem into Russian for our friends in Centraland Eastern Europe.It is a big honour and personal pleasure to congratulateour distinguished friends and supporters,the host of the EHC- Annual Conference 2004,Mrs. Dr. Angelika BATOROVA to the election as amedical member, and my predecessor as a chairmanof EHC´s Steering Committee, Mr. GordonCLARKE to his re- election as a lay member of theExecutive Committee of the World Federation ofHemophilia.Angelika is known as a hard- working and veryseasoned personand we are veryproud and happy“that she made it”,Gordon, despite ofhis actual physicalrestrictions, is a wellknown, acknowledgedchampion inpatient representation.The whole SteeringCommittee wants toexpress the deeplyfelt congratulations to this importantfunctions and congratulatesand thanks all other elected volunteersfor their engagement inthe improvement of HaemophiliaCare all over the world.Unfortunately there are still bigdifferences and intentions withinthe Russian Haemophilia Society,President Yuri Zhulyov decidednot to host the EHC- AnnualAssembly in 2008 despite thepresentation of the St.Petersburgchapter, and we are again looking for a hostcountryin this part of Europe.The EHCs website (www.ehc.eu, www.hemophilia.eu,www.haemophilia.eu, www.hemophilia.eu,www.hemophilie.eu) to be finalised in this daysand we will be “on air” very soon after the acceptionof the new Statutes by the MembersAssembly in Sofia. Wyeth- France was a littlefaster (minutes) than we withwww.hemophilie.eu, but Dr.Ralph Carter fromWyeth promised to intervene for us to get thisdomain “back”.Again it is to thank Edmond SECQ, Jean Houssiauand the Belgium Haemophilia Society for theirintensive input anddedication.The 19th AnnualAssembly, Sofia,Bulgaria, September22nd to 24thThe SecondAnnouncement willbe distributed aswell as posted at theConference- website- www.ehc2006-bg.org please regis-3