Travel Guide - Haemophilia Care
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<strong>Travel</strong> <strong>Guide</strong><br />

for People with <strong>Haemophilia</strong><br />

Global directory 2011

Baxter wishes to thank<br />

the World Federation of <strong>Haemophilia</strong><br />

for kindly allowing the use of information<br />

contained in their directory of treatment centres.<br />

You can access this directory online<br />

at www.wfh.org for changes and updates.

Table of contents<br />

General information about <strong>Haemophilia</strong><br />

Nederlands/Dutch 6<br />

English 12<br />

Français/French 18<br />

Deutsch/German 24<br />

/Greek 30<br />

Italiano/Italian 36<br />

Português/Portuguese 42<br />

Español/Spanish 48<br />

Türkçe/Turkish 54<br />

<strong>Haemophilia</strong> treatment centre address information<br />

Argentina 62<br />

Australia 63<br />

Austria 66<br />

Belgium 68<br />

Brazil 71<br />

Bulgaria 78<br />

Canada 79<br />

Colombia 85<br />

Croatia 87<br />

Czech Republic 88<br />

Denmark 90<br />

Ecuador 91<br />

Estonia 92<br />

Finland 93<br />

France 94<br />

Germany 104<br />

Greece 120<br />

Hungary 121<br />

Iceland 124<br />

Ireland 125<br />

Israel 127<br />

Italy 128<br />

Japan 140<br />

Korea 142<br />

Latvia 144<br />

Lithuania 145<br />

Luxembourg 146<br />

Mexico 147<br />

Montenegro 151<br />

Morocco 152<br />

Netherlands 153<br />

New Zealand 157<br />

Norway 159<br />

Peru 160<br />

Philippines 161<br />

Poland 162<br />

Portugal 168<br />

Puerto Rico 172<br />

Romania 173<br />

Russia 176<br />

Serbia 177<br />

Slovakia 180<br />

Slovenia 181<br />

South Africa 182<br />

Spain 186<br />

Sweden 195<br />

Switzerland 196<br />

Taiwan 200<br />

Thailand 201<br />

Turkey 202<br />

United Kingdom 205<br />

USA 222<br />

Venezuela 261

General Information<br />

about <strong>Haemophilia</strong> and<br />

<strong>Travel</strong> Checklists

Nederlands<br />

/Dutch<br />

Algemene<br />

informatie over<br />

hemofilie<br />

Hierbij presenteren wij u de vernieuwde<br />

Reisgids 2010. Deze Hemofilie reisgids<br />

is bedoeld voor mensen met hemofilie<br />

en hun familie die van plan zijn om<br />

op vakantie te gaan of verwoede<br />

globetrotters zijn. Baxter is begaan met<br />

de gezondheid en welzijn van hemofilie<br />

patienten. Daarom is het van belang<br />

dat u in het buitenland weet waar u<br />

terecht kan voor spoedgevallen. Deze<br />

gids bevat adressen van hemofiliecentra<br />

in 52 vakantiebestemmingen. In<br />

de 7de editie hebben wij de meest<br />

voorkomende vakantiebestemmingen<br />

vermeld, zoals Australië, Canada, Europa,<br />

het Verre Oosten, Mexico, Zuid-Afrika,<br />

Zuid-Amerika, het Caribische gebied<br />

en de VS. Zo bent u verzekerd van een<br />

goede zorg en kunt u veilig op reis.<br />

6<br />

Hoe gebruikt u deze gids?<br />

We hebben het gebruik van de gids<br />

zo eenvoudig mogelijk gehouden.<br />

Via de inhoudsopgave kunt u uw<br />

vakantiebestemming opzoeken. Het<br />

volledige adres en de contactinformatie<br />

van de verschillende hemofiliecentra<br />

van het land, vindt u in alfabetische<br />

volgorde van de steden waar de centra<br />

zich bevinden. Deze introductie is<br />

vertaald vanuit het Engels in Frans,<br />

Duits, Grieks, Italiaans, Portugees,<br />

Spaans, Turks en Nederlands. Indien<br />

u zich in een land bevindt waar Engels<br />

of één van deze talen weinig of niet<br />

gesproken wordt, en u dringend<br />

medische hulp nodig heeft, gebruik dan<br />

het schema op pagina 7. Hiermee kunt<br />

u de dokter uitleggen dat u hemofilie<br />

heeft, welk type en hoe ernstig. U kan<br />

hierbij gebruik maken van de<br />

tekeningen om aan te geven waar<br />

u bloedt.<br />

Voor u vertrekt.<br />

Neem altijd uw doktersverklaring<br />

en medisch paspoort mee. Indien<br />

u naar het buitenland gaat zal het<br />

nuttig zijn als deze in het Engels is<br />

opgesteld, of nog beter, in de taal van<br />

het te bezoeken land. Zoek uit waar<br />

de dichtstbijzijnde centra zijn op uw<br />

reis en uw eindbestemming. Indien u<br />

zichzelf of uw zoon factor toedient,<br />

moet u de factor meenemen. De<br />

meeste producten voor de behandeling<br />

van bloedingen of profylaxe kunnen<br />

tegenwoordig voor een bepaalde tijd<br />

op kamertemperatuur bewaard worden<br />

(maximaal 25ºC). Indien u naar het<br />

buitenland reist, adviseren wij u om uw<br />

factor mee te nemen. Raadpleeg de<br />

bijsluiter van uw factor en overleg met<br />

uw dokter.

Belangrijk!<br />

Elke bloeding in zacht weefsel of in<br />

gewrichten moet zo snel mogelijk<br />

worden behandeld om een groot<br />

hematoom te voorkomen. Hoe sneller<br />

de hemorragie wordt gestopt, hoe<br />

sneller het lekkende bloed wordt<br />

geabsorbeerd.<br />

Doseringen staan aangegeven in de<br />

bijsluiter.<br />

Voor de behandeling van pijn mogen<br />

nooit acetylsalicylzuurhoudende<br />

middelen gebruikt worden! Volgende<br />

middelen kunnen wel toegediend<br />

worden:<br />

– Paracetamol<br />

– Pentazocin<br />

– Dextropropoxyfeen-HCI<br />

– Tilidin<br />

Ik heb hemofilie:<br />

A (FVIII deficiëntie)<br />

B (FIX deficiëntie)<br />

Mijn hemofilie is<br />

ernstig (0 – 2%)<br />

matig (2 –5%)<br />

mild (> 5%)<br />

Ik bloed aan:<br />

7

Nederlands<br />

/Dutch<br />

Checklist reizen<br />

Een grote reis plannen is vaak een leuke uitdaging, maar je moet ook aan<br />

veel denken. Daarom kan deze checklist nuttig zijn bij je voorbereiding.<br />

• Heb ik de nodige reisdocumenten ingepakt?:<br />

8<br />

Geldig paspoort<br />

Geldige werkvergunning/<br />

reisvisum<br />

Artsenverklaring en medisch<br />

paspoort (liefst in de landstaal,<br />

anders Engels)<br />

Kopie van artsenverklaring in<br />

handbagage en bagage<br />

in het ruim<br />

• Voorbereidingen voor een langeafstandsvlucht:<br />

Heb ik genoeg factor bij voor<br />

de hele vlucht/overstap/tijd<br />

tussen de vluchten?<br />

Heb ik een kopie bij van<br />

mijn artsenverklaring (liefst<br />

in de landstaal, anders<br />

Engels) die ik meteen aan<br />

de veiligheidsdiensten<br />

op de luchthaven/het<br />

vliegtuigpersoneel kan tonen?<br />

Verzekeringspolis of<br />

reisverzekering<br />

Lijst met instructies in<br />

noodgevallen<br />

Contactgegevens van partner<br />

of familielid<br />

Reisgids<br />

Is mijn factor veilig<br />

opgeborgen met de infusieset<br />

zodat ik alles aan het<br />

vliegtuigpersoneel kan geven<br />

om het veilig te bewaren?<br />

Is mijn behandelprotocol<br />

up-to-date voor ik op<br />

reis vertrek?

• Factor en materiaal voor behandeling terwijl ik weg ben<br />

Heb ik:<br />

Factor voor<br />

routinebehandeling<br />

Factor voor bijkomende<br />

profylaxe<br />

Factor voor noodgevallen<br />

• Mijn factor bewaren:<br />

Heb ik een koeltas voor<br />

het reizen?<br />

Heb ik een geschikte tas om<br />

de factor te vervoeren als<br />

handbagage?<br />

Kan ik in mijn kamer/hotel<br />

mijn factor koel bewaren?<br />

Kan ik een deel van mijn<br />

factor op kamertemperatuur<br />

bewaren (maximaal 25 °C)?<br />

Het juiste aantal infusiesets<br />

Extra benodigdheden:<br />

naaldcontainer,<br />

vlindernaalden, zoutoplossing,<br />

gaas, enz.<br />

Een EHBO-basisset<br />

Als dat kan, hoelang dan?<br />

Wat doe ik als ik een flesje<br />

met factor verlies of breek?<br />

Waar haal ik meer factor als ik<br />

mijn eigen voorraad niet meer<br />

kan gebruiken?<br />

9

Nederlands<br />

/Dutch<br />

• Medische verzekering:<br />

Heb ik de details van<br />

mijn polis?<br />

Heb ik de contactgegevens van<br />

de verzekeringsmaatschappij<br />

als ik hen moet bereiken?<br />

Wat dekt mijn polis?<br />

• Noodplan:<br />

10<br />

Heb ik mijn reisgids bij<br />

de hand, zodat ik kan<br />

opzoeken of er een<br />

hemofiliebehandelcentrum is<br />

op mijn bestemming?<br />

Heb ik mijn doktersverklaring<br />

en medisch paspoort bij me?<br />

Wat dekt mijn polis niet?<br />

Dekt mijn medische<br />

verzekering me als ik naar<br />

het ziekenhuis moet?<br />

Weten ze dat ik aan<br />

hemofilie lijd?<br />

Zijn mijn reispartners<br />

op de hoogte van mijn<br />

aandoening? Weten zij bij<br />

wie ze terechtkunnen bij een<br />

noodgeval (bv. plaatselijk<br />

hemofiliebehandelcentrum uit<br />

de reisgids)?<br />

Kunnen ze mij indien nodig<br />

factor medicatie geven<br />

en toedienen?

Noteren<br />

11

General<br />

information<br />

about<br />

<strong>Haemophilia</strong><br />

We’re pleased to introduce to you<br />

an updated version of the <strong>Travel</strong><br />

<strong>Guide</strong> 2010. This guide was written<br />

for people living with haemophilia and<br />

their families, who plan to go away on<br />

holidays or are keen globetrotters.<br />

At Baxter we care about your well<br />

being, and want you to know where<br />

to get help in case of emergency.<br />

This guide is comprised of addresses<br />

of haemophilia centres in 52 holiday<br />

destinations. In this 7 th edition, we have<br />

expanded the travel guide and included<br />

the most popular holiday spots such<br />

as Australia, Canada, Europe, Asia,<br />

Mexico, South Africa, South America,<br />

the Caribbean and the US to give you<br />

reassurance wherever you go.<br />

12<br />

English<br />

How to use this travel guide<br />

We’ve done our best to keep it<br />

as simple as possible. The table of<br />

contents will help you find your<br />

holiday destination. Full addresses and<br />

contact information of the dedicated<br />

haemophilia centres can be found<br />

in alphabetical order of the cities for<br />

every country included in the table<br />

of contents. This introduction is<br />

translated into Dutch, French, German,<br />

Greek, Italian, Portuguese, Spanish<br />

and Turkish. If you happen to be in a<br />

country where neither English nor one<br />

of the above languages is spoken, and<br />

you need immediate medical help,<br />

please use the scheme on page 13 to<br />

help explain to the local doctor about<br />

your haemophilia type (severity), and<br />

show where you are bleeding.<br />

Before you leave<br />

Take the <strong>Haemophilia</strong> Information Card<br />

wherever you go. If you are travelling<br />

abroad it will be most helpful if the<br />

details are in English or, even better,<br />

in the language of the country you are<br />

visiting. Find out where the nearest<br />

centres are along your route and at<br />

your final destination. If you inject<br />

yourself, or if you inject your son, you<br />

can probably take the factor with you.<br />

Most modern preparations used for the<br />

treatment of bleeds and for prophylaxis<br />

can be stored at room temperature (up<br />

to 25°C) for quite a while. If you travel<br />

abroad you should seriously consider<br />

taking your factor with you. Check<br />

the patient information leaflet for your<br />

factor and talk to your doctor.

Important Note!<br />

Every bleed into soft tissue or joints<br />

should be treated as early as possible,<br />

in order to avoid a large haematoma.<br />

The more quickly the haemorrhage<br />

is stopped, the more rapidly the<br />

extravasated blood is absorbed.<br />

For dosing recommendations, please<br />

see your product’s package insert.<br />

Analgesics given must not contain<br />

acetylsalicylic acid. The following<br />

analgesics may be administered:<br />

– Paracetamol<br />

– Pentazocine<br />

– Dextropropoxyphen-HCI<br />

– Tilidine<br />

I have haemophilia<br />

A (FVIII deficiency)<br />

B (FIX deficiency)<br />

My haemophilia is<br />

severe (0 – 2%)<br />

moderate (2 – 5%)<br />

mild (> 5%)<br />

I am bleeding:<br />

13

English<br />

<strong>Travel</strong> checklist<br />

Planning any big trip is exciting although there can be a lot to<br />

remember. You might find it useful to use this checklist to help you<br />

prepare.<br />

• Have I packed the travel documents I need?:<br />

14<br />

Up to date passport<br />

Valid working permit/<br />

travel visa<br />

Medical letter (in English or<br />

ideally in local language)<br />

Copy of prescription for both<br />

hand and stowed luggage<br />

Do I have enough factor with<br />

me for the duration of the<br />

flight/connection/transfer<br />

time?<br />

Do I have a copy of my<br />

medical letter in English<br />

ready to show airport<br />

security/airline staff?<br />

Insurance policy or<br />

travel insurance<br />

List of things to do in<br />

an emergency<br />

Friend’s or family’s<br />

contact details<br />

<strong>Travel</strong> guide<br />

• Preparations I need to make for a long haul flight:<br />

Is my factor packed securely<br />

with the infusion kit ready to<br />

hand to the airline staff for<br />

safe storage?<br />

Is my treatment/prophylaxis up<br />

to date before travelling?

• Factor and equipment for treatment while I’m away.<br />

Do I have:<br />

Factor for routine treatment<br />

Factor for additional<br />

prophylaxis<br />

Factor for emergencies<br />

• Storing my factor:<br />

Do I have a cool box<br />

for travel?<br />

Do I have a suitable bag<br />

for storing factor as<br />

hand luggage?<br />

Will there be refrigeration<br />

facilities in my room/hotel?<br />

Can I store any of my factor<br />

at room temperature<br />

(up to 25°C)?<br />

The correct number of<br />

infusion kits<br />

Extra supplies: tourniquet,<br />

needles, saline, gauze etc.<br />

A basic first aid kit<br />

If so, how long can I store<br />

it for?<br />

What will I do in the event I<br />

lose or break a factor bottle?<br />

Where will I obtain more<br />

factor if my supply<br />

becomes unusable?<br />

15

16<br />

English<br />

• Medical insurance:<br />

Do I have my policy details?<br />

Do I have the contact number<br />

of the insurance company<br />

should I need to contact them?<br />

What does the policy cover<br />

me for?<br />

• Emergency/contingency plan:<br />

Do I have my travel guide at<br />

hand so I can check if there’s<br />

a haemophilia centre where I<br />

am going?<br />

What does it not cover<br />

me for?<br />

Will my medical insurance<br />

cover me in the event I go<br />

to a hospital?<br />

Are they aware that I have<br />

haemophilia?<br />

Are my travelling companions<br />

aware of my condition?<br />

Do they know who to contact<br />

in case of emergency<br />

(e.g. local <strong>Haemophilia</strong> Centre<br />

from the <strong>Travel</strong> <strong>Guide</strong>)?<br />

Can they give me my factor<br />

if need be?

Notes<br />

17

Français/<br />

French<br />

Informations<br />

générales sur<br />

l’hémophilie<br />

Nous sommes heureux de vous<br />

communiquer la version mise à jour<br />

du <strong>Travel</strong> <strong>Guide</strong> (<strong>Guide</strong> de Voyage)<br />

2010. Ce guide a été élaboré pour les<br />

hémophiles et leur famille, qui partent<br />

en vacances ou qui voyagent beaucoup.<br />

Les laboratoires Baxter sont soucieux<br />

de votre bien-être, et veulent vous faire<br />

connaître les centres où vous adresser<br />

en cas d’urgences. Ce guide comprend<br />

les adresses de Centre de Traitement<br />

de l’Hémophilie se situant sur 52 lieux<br />

de vacances. Dans cette 7 ème édition,<br />

nous avons complété le <strong>Travel</strong> <strong>Guide</strong> en<br />

incluant les lieux de vacances les plus<br />

visités tels que l’Australie, le Canada,<br />

l’Europe, l’Extrême-Orient, le Mexique,<br />

l’Afrique du Sud, l’Amérique du Sud,<br />

les Caraïbes et les Etats-Unis, afin de<br />

vous rassurer, quel que soit l’endroit<br />

où vous alliez.<br />

18<br />

Comment utiliser ce<br />

travel guide?<br />

Nous avons fait de notre mieux afin<br />

de le rendre le plus simple possible. La<br />

table des matières vous aidera à repérer<br />

votre lieu de vacances. Les adresses<br />

complètes et les contacts des Centres<br />

de Traitement de l’Hémophilie ont été<br />

classés par ordre alphabétique des villes<br />

de chaque pays inclus dans la table des<br />

matières. Cette introduction est traduite<br />

en Hollandais, Français, Allemand, Grec,<br />

Italien, Portugais, Espagnol et Turc.<br />

S’il vous arrive d’être dans un pays où<br />

l’Anglais ou une de ces langues n’est<br />

pas parlé, et que vous avez besoin<br />

d’une aide médicale immédiate,<br />

utilisez le schéma de la page 19 afin<br />

d’expliquer au médecin que vous êtes<br />

hémophile, le type et la sévérité de<br />

votre hémophilie et utilisez la figure<br />

pour montrer où vous saignez.<br />

Avant de partir<br />

Où que vous vous rendiez, assurez vous<br />

d’avoir sur vous votre carte d’hémophile.<br />

Si vous voyagez à l’étranger, il est<br />

préférable que ces informations soient<br />

en Anglais ou, mieux encore, dans la<br />

langue du pays que vous visitez.<br />

Identifiez les centres les plus proches de<br />

votre itinéraire et de votre destination<br />

finale. Si vous vous perfusez vous-même,<br />

ou si vous perfusez votre fils, vous devrez<br />

certainement prendre votre (son) facteur<br />

anti-hémophilique avec vous. La plupart<br />

des facteurs actuels utilisés pour le<br />

traitement des hémorragies et pour la<br />

prophylaxie peuvent être conservés à<br />

température ambiante (jusqu’à 25ºC)<br />

pendant une certaine période.* Si vous<br />

voyagez à l’étranger, vous devez<br />

sérieusement envisager de prendre votre<br />

facteur anti-hémophilique avec vous.<br />

* Vérifiez la notice d’utilisation de votre facteur<br />

(conditions de conservation notamment) et<br />

parlez-en à votre prescripteur.

Remarque importante!<br />

Toute hémorragie au niveau des tissus<br />

mous ou des articulations doit être<br />

traitée le plus tôt possible pour éviter un<br />

gros hématome. Plus vite l’hémorragie<br />

sera stoppée, plus vite le sang extravasé<br />

sera absorbé.<br />

Pour les recommandations relatives à la<br />

posologie, veuillez consulter la notice de<br />

votre produit.<br />

Ne pas prendre d’analgésique à base<br />

d’acide acétyl-salicylique (aspirine).<br />

En revanche on peut administrer les<br />

produits suivants:<br />

– Paracétamol<br />

– Pentasocine<br />

– Dextropropoxyphène-HCI<br />

– Tilidine<br />

Je suis hémophile:<br />

A (Déficit en FVIII)<br />

B (Déficit en FIX)<br />

Mon hémophilie est:<br />

sévère à modérément sévère (0 – 2%)<br />

modérée (2 – 5%)<br />

mineure (> 5%)<br />

Je saigne:<br />

19

Français/<br />

French<br />

Liste de vérification pour<br />

le voyage<br />

Organiser un grand voyage est excitant même s’il peut y avoir beaucoup<br />

de choses à ne pas oublier. Vous trouverez peut-être utile d’utiliser cette<br />

liste de vérification pour vous aider dans les préparatifs.<br />

• Ai-je pris les documents de voyage dont j’ai besoin?:<br />

20<br />

Passeport en cours de validité<br />

Visa de travail / vacances valide<br />

Un certificat médical (en<br />

anglais ou, idéalement, dans<br />

la langue locale)<br />

Copies de l’ordonnance pour<br />

le bagage en cabine et le<br />

bagage en soute<br />

Ai-je suffisamment de facteur<br />

sur moi pour la durée du vol/<br />

de l’escale/du transfert?<br />

Ai-je une copie de mon<br />

certificat médical (en anglais<br />

ou, idéalement, dans la langue<br />

locale) prête à être présentée<br />

aux agents de sécurité de<br />

l’aéroport/au personnel de la<br />

compagnie aérienne?<br />

Justificatif d’assurance<br />

personnelle ou assurance<br />

de voyage<br />

Liste de choses à faire en cas<br />

d’urgence<br />

Coordonnées d’un(e) ami(e)<br />

ou membre de la famille<br />

<strong>Guide</strong> de voyage<br />

• Préparations que je dois faire pour un long voyage en avion:<br />

Mon facteur est-il emballé<br />

correctement avec le dispositif<br />

de perfusion, prêt à être remis<br />

au personnel navigant pour un<br />

rangement en lieu sûr?<br />

Mon traitement/ma<br />

prophylaxie est-il/elle à jour<br />

avant le départ?

• Facteur et matériel pour le traitement pendant mon déplacement<br />

Ai-je :<br />

Le facteur pour le traitement<br />

de routine<br />

Le facteur pour une<br />

prophylaxie supplémentaire<br />

Le facteur pour les urgences<br />

• Conservation de mon facteur:<br />

Ai-je une glacière de voyage?<br />

Ai-je un sac adapté pour y<br />

ranger le facteur en bagage<br />

à main?<br />

Y aura-t-il un réfrigérateur<br />

dans ma chambre/mon hôtel?<br />

Puis-je conserver une partie<br />

de mon facteur à température<br />

ambiante (jusqu’à 25 °C)?<br />

Le bon nombre de dispositifs<br />

de perfusion<br />

Des accessoires<br />

supplémentaires : garrot,<br />

aiguilles, solution saline,<br />

gaze, etc.<br />

Une trousse de premiers<br />

secours classique<br />

Si oui, combien de temps<br />

puis-je le conserver ainsi?<br />

Que ferai-je si je perds ou<br />

casse un flacon de facteur?<br />

Où trouverai-je plus de<br />

facteur si mon stock devient<br />

inutilisable?<br />

21

Français/<br />

French<br />

• Assurance rapatriement:<br />

22<br />

Ai-je les informations de ma<br />

police d’assurance?<br />

Ai-je le numéro de téléphone<br />

de la compagnie d’assurance<br />

au cas où j’aurais besoin de<br />

les contacter?<br />

Que couvre la police<br />

d’assurance?<br />

• Plan d’urgence/de secours:<br />

Ai-je mon guide de voyage à<br />

portée de main pour pouvoir<br />

vérifier s’il y a un centre de<br />

traitement de l’hémophilie à<br />

l’endroit où je me rends?<br />

Que ne couvre-t-elle pas?<br />

Mon assurance médicale<br />

avancera-t-elle les frais<br />

nécessaires si je suis<br />

hospitalisé(e)?<br />

Savent-ils que je<br />

suis hémophile?<br />

Mes compagnons de voyage<br />

sont-ils au courant de ma<br />

maladie? Savent-ils qui<br />

contacter en cas d’urgence<br />

(par ex. Centre de Traitement<br />

de l’Hémophilie local figurant<br />

dans le guide de voyage)?<br />

Peuvent-ils m’administrer mon<br />

facteur si nécessaire?

Noter<br />

23

Deutsch/<br />

German<br />

Allgemeine<br />

Informationen<br />

über Hämophilie<br />

Wir freuen uns, Ihnen die Hämophilie-<br />

Reisebroschüre in der aktualisierten<br />

Version 2010 anbieten zu können. Sie<br />

soll Ihnen dabei helfen, in Notfällen<br />

auch auf Reisen bzw. im Urlaub ein<br />

Hämophilie-Behandlungszentrum in der<br />

Nähe Ihres Aufenthaltsortes zu finden.<br />

Die Reisebroschüre beinhaltet Adressen<br />

und Telefonnummern von Hämophilie-<br />

Zentren in 52 Ländern und führt die<br />

Namen der jeweiligen Ansprechpartner<br />

bzw. der behandelnden Ärzte auf. In<br />

der nun schon 7. Auflage finden Sie<br />

wieder die beliebtesten Urlaubsländer<br />

und Regionen, wie Europa, den Fernen<br />

Osten, Australien, Süd-Afrika, Mexiko,<br />

Süd-Amerika, die Karibik, Kanada und<br />

die USA.<br />

24<br />

Wie Sie diese Reisebroschüre<br />

benutzen<br />

Damit Sie sich schnell zurechtfinden,<br />

haben wir die Reisebroschüre so<br />

einfach wie möglich gestaltet. Im<br />

Inhaltsverzeichnis sind die Länder<br />

alphabetisch aufgeführt. Für jedes Land<br />

sind die Städte mit Hämophilie-Zentren<br />

ebenfalls alphabetisch aufgelistet. Zu<br />

jedem Behandlungszentrum finden Sie<br />

die kompletten Adressen, Telefon- und<br />

Fax-Nummern sowie die Namen der<br />

Ansprechpartner. Falls Sie sich in einem<br />

Land aufhalten, dessen Sprache Sie<br />

nicht sprechen, können Sie einem Arzt<br />

mit Hilfe der in mehreren Sprachen<br />

abgefassten Erläuterungen auf Seite<br />

25 erklären, welche Art und welcher<br />

Schweregrad der Hämophilie bei Ihnen<br />

diagnostiziert wurde.<br />

Wenn Sie auf Reisen gehen<br />

Bitte nehmen Sie immer einen<br />

Notfallausweis mit, in dem auf Ihre<br />

Hämophilie hingewiesen wird. Ermitteln<br />

Sie die nächstgelegenen Zentren<br />

entlang Ihrer Reiseroute und an Ihrem<br />

Zielort. Wenn Sie sich das Medikament<br />

selbst injizieren oder Ihrem Sohn,<br />

so können Sie wahrscheinlich das<br />

Faktorkonzentrat bei sich führen. Die<br />

Mehrzahl der modernen Präparate kann<br />

über einen längeren Zeitraum hinweg<br />

bei Raumtemperatur (bis zu 25°C)<br />

gelagert werden. Für Auslandsreisen<br />

sollten Sie ernsthaft in Betracht ziehen,<br />

das Faktorkonzentrat bei sich zu führen.<br />

Falls Sie größere Mengen an Konzentrat<br />

bei einem Grenzübertritt mitführen<br />

müssen, sollten Sie sich vorher<br />

eine „Zollbestätigung“ besorgen

und von Ihrem Arzt unterschreiben<br />

lassen. Auf diesem Formblatt wird in<br />

mehreren Sprachen bestätigt, dass<br />

das mitgeführte Medikament nur zur<br />

eigenen Behandlung dient. Lassen Sie<br />

sich von Ihrem Arzt zu allen kritischen<br />

Aspekten Ihrer Reise beraten.<br />

Gute Reise!<br />

Wichtiger Hinweis!<br />

Jede Blutung ins Weichteilgewebe<br />

oder in die Gelenke sollte so früh wie<br />

möglich behandelt werden, um ein<br />

großes Hämatom zu vermeiden. Je<br />

schneller die Blutung gestoppt wird,<br />

desto rascher wird das extravasale<br />

Blut resorbiert.<br />

Zu Dosierungshinweisen lesen Sie bitte<br />

die Packungsbeilage Ihres Produktes.<br />

Schmerzbehandlungen nicht mit<br />

Acetylsalicylsäurehaltigen Analgetika!<br />

Es können verabreicht werden:<br />

– Paracetamol<br />

– Pentazocin<br />

– Dextropropoxyphen-HCI<br />

– Tilidin<br />

Ich habe Hämophilie<br />

A (FVIII-Mangel)<br />

B (FIX-Mangel)<br />

Meine Hämophilie ist<br />

schwer (0 – 2%)<br />

mittelschwer (2 – 5%)<br />

leicht (> 5%)<br />

Ich blute:<br />

25

Deutsch/<br />

German<br />

Checkliste für Reisen<br />

Eine große Reise zu planen ist aufregend, man muss dabei jedoch an<br />

viele Dinge denken. Möglicherweise kann Ihnen unsere Checkliste bei<br />

der Vorbereitung hilfreich sein.<br />

• Habe ich alle erforderlichen Reiseunterlagen eingepackt?<br />

26<br />

Gültiger Reisepass<br />

Gültige Arbeitserlaubnis/Visum<br />

Arztbrief (auf Englisch oder<br />

besser noch in der jeweiligen<br />

Landessprache)<br />

Kopie des Rezepts sowohl<br />

im Handgepäck als auch im<br />

aufgegebenen Koffer<br />

Habe ich ausreichend<br />

Faktorkonzentrat für die<br />

Dauer von Flug/Anschlussflug/<br />

Transfer bei mir?<br />

Habe ich eine Kopie des<br />

Arztbriefs greifbar (auf<br />

Englisch oder besser noch in<br />

der jeweiligen Landessprache),<br />

um ihn den Mitarbeitern<br />

der Flugsicherheit/Airline<br />

vorzulegen?<br />

Versicherungsschein oder<br />

Reiseversicherung<br />

Liste der Notfallmaßnahmen<br />

Kontaktanschrift von Freunden<br />

oder Familie<br />

Reiseführer<br />

• Erforderliche Vorkehrungen für einen Langstreckenflug:<br />

Ist mein Faktorkonzentrat<br />

mit Infusionsset gut<br />

verpackt, damit ich es den<br />

Flugbegleitern zur sicheren<br />

Lagerung übergeben kann?<br />

Habe ich meine Behandlung/<br />

Prophylaxe vor Antritt der<br />

Reise auf den aktuellen Stand<br />

gebracht?

• Faktorkonzentrat und Behandlungsausrüstung während meiner<br />

Abwesenheit. Folgendes habe ich bei mir:<br />

Faktorkonzentrat zur<br />

Routinebehandlung<br />

Faktorkonzentrat für die<br />

zusätzliche Prophylaxe<br />

Faktorkonzentrat für Notfälle<br />

• Lagerung von Faktorkonzentrat:<br />

Habe ich eine Kühlbox für<br />

die Reise?<br />

Habe ich eine geeignete<br />

Tasche zum Transport<br />

des Faktorkonzentrats im<br />

Handgepäck?<br />

Gibt es Kühlmöglichkeiten in<br />

meinem Zimmer/Hotel?<br />

Kann ich mein<br />

Faktorkonzentrat bei<br />

Raumtemperatur lagern<br />

(bis 25°C)?<br />

Eine ausreichende Menge<br />

an Infusionssets<br />

Extravorräte: Stauschlauch,<br />

Nadeln, Kochsalzlösung,<br />

Mull etc.<br />

Grundausstattung für die<br />

erste Hilfe<br />

Falls ja, wie lange kann ich<br />

es lagern?<br />

Was werde ich tun, wenn<br />

ich eine Flasche verliere oder<br />

zerbreche?<br />

Wo erhalte ich<br />

Faktorkonzentrat, wenn mein<br />

Vorrat unbrauchbar wird?<br />

27

Deutsch/<br />

German<br />

• Krankenversicherung:<br />

28<br />

Habe ich meine<br />

Versicherungsdaten zur Hand?<br />

Habe ich die Telefonnummer<br />

der Versicherungsgesellschaft,<br />

falls ich dort nachfragen muss?<br />

Was übernimmt meine<br />

Versicherung?<br />

• Notfall-/Ausweichplan:<br />

Habe ich meinen Reiseführer<br />

zur Hand, damit ich<br />

überprüfen kann, ob es in der<br />

Nähe meines Urlaubsorts ein<br />

Hämophilie-Zentrum gibt?<br />

Was übernimmt die<br />

Versicherung nicht?<br />

Bin ich versichert, falls ich ins<br />

Krankenhaus muss?<br />

Ist ihnen bekannt, dass ich an<br />

Hämophilie leide?<br />

Sind meine Reisebegleiter<br />

über meine Krankheit<br />

informiert? Wissen sie, an wen<br />

sie sich im Notfall wenden<br />

können (z.B. das lokale<br />

Hämophilie-Zentrum aus dem<br />

Reiseführer)?<br />

Können Sie mir gegebenenfalls<br />

mein Faktorkonzentrat<br />

verabreichen?

Notizen<br />

29

Greek<br />

30

I have haemophilia<br />

A (FVIII deficiency)<br />

B (FIX deficiency)<br />

My haemophilia is<br />

severe (0 - 2%)<br />

moderate (2 - 5%)<br />

mild (> 5%)<br />

I am bleeding:<br />

31

ελληνική<br />

/Greek<br />

Λίστα ελέγχου ταξιδιού<br />

Η προετοιµασία για ένα µεγάλο ταξίδι είναι µια πολύ ευχάριστη διαδικασία,<br />

υπάρχουν ωστόσο πολλά που πρέπει να θυµηθεί κανείς. Η παρακάτω λίστα<br />

ελέγχου µπορεί να σας φανεί χρήσιµη στην προετοιµασία σας.<br />

• Έχω πάρει µαζί µου τα ταξιδιωτικά έγγραφα που χρειάζοµαι;:<br />

32<br />

Έγκυρο διαβατήριο<br />

Έγκυρη άδεια εργασίας/<br />

τουριστική βίζα<br />

Ιατρική επιστολή (στα αγγλικά<br />

ή καλύτερα στην τοπική γλώσσα)<br />

Αντίγραφο της συνταγής, τόσο<br />

για τη χειραποσκευή όσο και για<br />

τις αποσκευές που θα παραδώσω<br />

Έχω αρκετό Παράγοντα µαζί µου<br />

για τη διάρκεια της πτήσης/<br />

αναµονής/ανταπόκρισης;<br />

Έχω µαζί µου ιατρική επιστολή<br />

(στα αγγλικά ή καλύτερα στην<br />

τοπική γλώσσα) που θα<br />

επιδείξω στο προσωπικό<br />

ασφάλειας/προσωπικό της<br />

αεροπορικής εταιρείας ;<br />

Ασφαλιστήριο συµβόλαιο –<br />

ταξιδιωτική ασφάλιση<br />

Λίστα ενεργειών στην<br />

περίπτωση επείγουσας ανάγκης<br />

Στοιχεία επικοινωνίας φιλικού<br />

προσώπου ή οικογένειας<br />

Ταξιδιωτικός οδηγός<br />

• Απαραίτητες προετοιµασίες για πολύωρη πτήση:<br />

Έχει συσκευαστεί µε ασφάλεια ο<br />

Παράγοντας µε το σετ έγχυσης<br />

για να είναι έτοιµος για<br />

παράδοση στο προσωπικό της<br />

αεροπορικής εταιρείας για<br />

ασφαλή φύλαξη;<br />

Είναι η θεραπεία/προφύλαξή<br />

µου σε άψογη κατάσταση<br />

πριν από το ταξίδι;

• Παράγοντας και εξοπλισµός θεραπείας για όσο θα λείπω<br />

Έχω:<br />

Παράγοντα για θεραπεία<br />

ρουτίνας;<br />

Παράγοντα για πρόσθετη<br />

προφύλαξη;<br />

Παράγοντα για επείγουσες<br />

περιπτώσεις;<br />

• Φύλαξη του Παράγοντα:<br />

Έχω ψυχρό κουτί για το ταξίδι;<br />

Έχω κατάλληλη τσάντα για τη<br />

φύλαξη του Παράγοντα ως<br />

χειραποσκευή;<br />

Το δωµάτιο/ξενοδοχείο θα<br />

διαθέτει ψυγείο;<br />

Μπορώ να φυλάξω κάποια<br />

ποσότητα του Παράγοντα σε<br />

θερµοκρασία δωµατίου (έως 25°C);<br />

Το σωστό αριθµό σετ έγχυσης;<br />

Έξτρα προµήθειες: λάστιχο<br />

αιµοληψίας, βελόνες, ορό,<br />

γάζες κτλ.;<br />

Βασικό κιτ πρώτων βοηθειών;<br />

Εάν ναι, για πόσο διάστηµα;<br />

Τι θα πρέπει να κάνω στην<br />

περίπτωση που χάσω ή σπάσω<br />

ένα φιαλίδιο Παράγοντα;<br />

Που θα βρω περισσότερο<br />

Παράγοντα εάν η προµήθεια<br />

µου καταστεί ακατάλληλη<br />

για χρήση;<br />

33

ελληνική<br />

/Greek<br />

• Ιατρική ασφάλιση:<br />

34<br />

Έχω τις λεπτοµέρειες του<br />

ασφαλιστήριου συµβολαίου;<br />

Έχω το τηλέφωνο της<br />

ασφαλιστικής εταιρείας σε<br />

περίπτωση που χρειαστεί να<br />

επικοινωνήσω µαζί τους;<br />

Τι καλύπτει το συµβόλαιο;<br />

Έχω τον ταξιδιωτικό οδηγό ανά<br />

χείρας για να µπορώ να ελέγξω<br />

εάν υπάρχει κέντρο<br />

αιµορροφιλίας εκεί που πηγαίνω;<br />

Τι δεν καλύπτει το συµβόλαιο;<br />

Θα µε καλύψει η ιατρική µου<br />

ασφάλιση αν χρειαστεί να<br />

επισκεφθώ νοσοκοµείο;<br />

Γνωρίζει η ασφαλιστική<br />

εταιρεία ότι έχω αιµορροφιλία;<br />

• Σχέδιο επείγουσας ανάγκης/απροόπτου ενδεχόµενου:<br />

Γνωρίζουν οι συνταξιδιώτες µου<br />

για την πάθησή µου; Γνωρίζουν<br />

µε ποιον να επικοινωνήσουν σε<br />

περίπτωση επείγουσας ανάγκης<br />

(π.χ. Τοπικό κέντρο<br />

αιµορροφιλίας από τον<br />

Ταξιδιωτικό οδηγό)<br />

Μπορούν να µου χορηγήσουν<br />

τον Παράγοντα εάν χρειαστεί;

Σημειώσεις<br />

35

Italiano/<br />

Italian<br />

Informazioni<br />

generali<br />

sull’emofilia<br />

Siamo lieti di presentare la versione<br />

aggiornata di <strong>Travel</strong> <strong>Guide</strong> 2010.<br />

Questa guida è stata scritta per i<br />

pazienti emofilici ed i loro familiari che<br />

desiderano andare in vacanza girando<br />

il mondo. Dal momento che noi di<br />

Baxter abbiamo molto a cuore il vostro<br />

benessere, vogliamo farvi sapere dove<br />

potete trovare assistenza per eventuali<br />

emergenze. La guida riporta gli indirizzi<br />

dei centri di emofilia in 52 luoghi di<br />

vacanza. Questa settima edizione<br />

presenta una guida più completa<br />

che include le più popolari località<br />

di vacanza quali Australia, Canada,<br />

Europa, Estremo Oriente, Messico,<br />

Sud Africa, Sud America, Caraibi e<br />

USA in modo da farvi sentire tranquilli<br />

ovunque andiate.<br />

36<br />

Come utilizzare questa guida<br />

Abbiamo fatto del nostro meglio<br />

per renderla il più semplice possibile.<br />

L’indice vi aiuterà a trovare la vostra<br />

destinazione preferita. Gli indirizzi<br />

completi e le informazioni per<br />

contattare centri emofilia dedicati sono<br />

riportati secondo l’ordine alfabetico<br />

delle città per ciascun Paese. Questa<br />

introduzione è stata tradotta in<br />

olandese, francese, tedesco, greco,<br />

italiano, portoghese, spagnolo e turco.<br />

Se vi dovesse capitare di trovarvi in<br />

un Paese dove la lingua inglese o<br />

un’altra di questa lingue viene parlata a<br />

malapena, e vi serve assistenza medica<br />

immediata, potete utilizzare lo schema<br />

riportato a pagina 37 per spiegare al<br />

medico che siete affetti da emofilia, di<br />

quale tipo e gravità, utilizzando la figura<br />

per mostrare la sede dell’emorragia.<br />

Prima di partire<br />

Portate una <strong>Haemophilia</strong> Information<br />

Card ovunque andiate. Se vi recate<br />

all’estero, sarebbe preferibile che i<br />

dettagli fossero in lingua inglese o,<br />

meglio ancora, nella lingua del Paese<br />

interessato. Informatevi dove si trovano<br />

i centri più vicini lungo il vostro percorso<br />

e presso la destinazione finale. Se<br />

praticate l’autoinfusione, o la praticate<br />

a vostro figlio, probabilmente siete in<br />

grado di portarvi dietro il fattore. La<br />

maggior parte dei moderni preparati<br />

utilizzati a scopo di terapia o di<br />

profilassi antiemorragica possono essere<br />

conservati a temperatura ambiente<br />

per un certo periodo di tempo (fino a<br />

25ºC). Per i viaggi all’estero, vi conviene<br />

assolutamente portare il fattore con<br />

voi. Controllate il foglietto riportante<br />

le informazioni per il paziente che<br />

troverete nella confezione e consultate<br />

il vostro medico.

Nota importante!<br />

Tutte le emorragie nei tessuti molli o<br />

nelle articolazioni vanno trattate il più<br />

presto possibile, in modo da evitare la<br />

formazione di ematomi estesi. Quanto<br />

più è rapido l’arresto dell’emorragia,<br />

tanto più velocemente viene assorbito il<br />

sangue stravasato.<br />

Per le raccomandazioni per la<br />

somministrazione si veda il foglietto<br />

illustrativo del rispettivo prodotto.<br />

Gli analgesici non devono contenere<br />

acido acetilsalicilico. E’ possibile<br />

somministrare i seguenti analgesici:<br />

– Paracetamolo<br />

– Pentazocina<br />

– Destropropossifene-HCI<br />

– Tilidina<br />

Sono affetto da emofilia<br />

A (deficit di FVIII)<br />

B (deficit di FIX)<br />

La mia emofilia e<br />

grave (0 – 2%)<br />

moderata (2 – 5%)<br />

lieve (> 5%)<br />

Ho un’emorragia<br />

in atto:<br />

37

Italiano/<br />

Italian<br />

Checklist di viaggio<br />

La pianificazione di ogni grande viaggio è entusiasmante, anche se vi sono<br />

molte cose da ricordare. Questa checklist potrebbe rivelarsi utile ed essere<br />

d’aiuto durante i preparativi.<br />

• Ho messo in valigia i documenti di viaggio di cui ho bisogno?:<br />

38<br />

Passaporto aggiornato<br />

Permesso di lavoro / visto di<br />

viaggio validi<br />

Lettera del medico (in inglese<br />

oppure, meglio, nella lingua<br />

nazionale)<br />

Copia della prescrizione per il<br />

bagaglio a mano e per quello<br />

da stivare<br />

• Preparativi da effettuare per un volo transoceanico:<br />

Ho con me una quantità di<br />

fattore sufficiente per la durata<br />

del volo/del collegamento/del<br />

trasferimento?<br />

Ho una copia della lettera del<br />

mio medico (in inglese oppure,<br />

meglio, nella lingua nazionale)<br />

da mostrare agli addetti della<br />

sicurezza aeroportuale/al<br />

personale di bordo?<br />

Polizza assicurativa o<br />

assicurazione di viaggio<br />

Elenco delle misure da<br />

adottare in caso d’emergenza<br />

Dati di un amico o di un<br />

familiare da contattare<br />

Guida di viaggio<br />

Il fattore è confezionato<br />

in modo adeguato, con il<br />

kit di infusione pronto da<br />

consegnare al personale di<br />

bordo affinché lo conservi in<br />

un luogo sicuro?<br />

Il mio trattamento/la mia<br />

profilassi è aggiornata prima<br />

del viaggio?

• Fattore e sistema di trattamento mentre sono lontano<br />

Elenco di ciò di cui ho bisogno:<br />

Fattore per il trattamento<br />

di routine<br />

Fattore per la profilassi<br />

aggiuntiva<br />

Fattore per emergenze<br />

• Conservazione del fattore:<br />

Ho un contenitore refrigerato<br />

per il viaggio?<br />

Ho una borsa adatta per<br />

conservare il fattore come<br />

bagaglio a mano?<br />

Il mio hotel/la mia stanza è<br />

dotata di un frigorifero?<br />

Posso conservare parte<br />

del fattore a temperatura<br />

ambiente (fino a 25°C)?<br />

Numero corretto di kit<br />

di infusione<br />

Dotazioni extra: laccio<br />

emostatico, aghi, soluzione<br />

fisiologica, garza, ecc.<br />

Un kit di base per<br />

pronto soccorso<br />

In tal caso, per quanto tempo?<br />

Che cosa devo fare se perdo o<br />

rompo un flacone di fattore?<br />

Dove posso avere altro fattore<br />

se la mia scorta diventa<br />

inutilizzabile?<br />

39

Italiano/<br />

Italian<br />

• Assicurazione sanitaria:<br />

40<br />

Ho tutti i dati della mia<br />

polizza?<br />

Ho il numero della compagnia<br />

assicuratrice da contattare in<br />

caso di bisogno?<br />

Che cosa copre esattamente la<br />

mia polizza?<br />

• Piano di contingenza/emergenza:<br />

La mia guida di viaggio è a<br />

portata di mano, in modo da<br />

potere controllare se nel luogo<br />

in cui intendo recarmi esiste<br />

un centro di emofilia?<br />

Che cosa non copre<br />

esattamente la mia polizza?<br />

La mia assicurazione sanitaria<br />

copre il mio eventuale ricovero<br />

in ospedale?<br />

La compagnia assicuratrice è al<br />

corrente che soffro<br />

di emofilia?<br />

I miei compagni di viaggio<br />

sono al corrente della mia<br />

malattia? Sanno chi contattare<br />

in caso di emergenza (Ad es.<br />

il Centro di Emofilia locale<br />

riportato sulla Guida<br />

di viaggio)?<br />

Possono somministrarmi il<br />

fattore in caso di necessità?

Note<br />

41

Português/<br />

Portuguese<br />

Informações<br />

gerais sobre<br />

hemofilia<br />

Temos o maior prazer em apresentarlhe<br />

a versão actualizada do Guia de<br />

Viagem 2010. Este guia foi escrito para<br />

pessoas com Hemofilia e seus familiares,<br />

que estejam a pensar ir de férias ou<br />

sejam viajantes frequentes. Como nós<br />

na Baxter, nos preocupamos com o seu<br />

bem estar, queremos que saiba onde<br />

obter ajuda em casos de emergência.<br />

Este Guia contém endereços de Centros<br />

de Hemofilia em 52 destinos de férias.<br />

Nesta 7ª edição, introduzimos melhorias<br />

no guia de viagem e incluímos alguns<br />

dos mais populares destinos de férias<br />

tal como Austrália, Canadá, Europa,<br />

México, África do Sul, Caraíbas,<br />

América do Sul e Estados Unidos para<br />

lhe proporcionar uma maior segurança<br />

onde quer que vá.<br />

42<br />

Como utilizar este Guia<br />

de Viagem<br />

Fizemos o possível para tornar este guia<br />

o mais simples possível. O índice ajudálo-á<br />

a encontrar o seu destino de férias.<br />

Os endereços e contatos dos Centros<br />

de Hemofilia estão por ordem alfabética<br />

dos estados ou províncias por país<br />

incluídos no índice. Esta informação<br />

está traduzida em Holandês, Francês,<br />

Alemão, Grego, Italiano, Português,<br />

Espanhol e Turco.<br />

Se estiver num país onde o Inglês<br />

ou uma destas línguas forem pouco<br />

conhecidas e necessitar de ajuda<br />

médica urgente, por favor, use o<br />

esquema da página 43 para explicar<br />

ao médico que é um paciente com<br />

hemofilia, identificando o seu tipo e a<br />

gravidade. Utilize a figura para mostrar<br />

qual o local de hemorragia.<br />

Antes de viajar<br />

Leve um Cartão de Identificação da<br />

Hemofilia sempre que viajar. Se vai<br />

viajar para fora do país será mais útil se<br />

as informações estiverem em Inglês ou,<br />

ainda melhor, na língua do país que for<br />

visitar. Descubra onde são os centros<br />

mais próximos ao longo da sua viagem<br />

e no seu destino. Se administra factor<br />

ao seu filho ou faz auto-administração<br />

deverá provavelmente levar o factor<br />

consigo. Os mais recentes produtos<br />

usados no tratamento de hemorragias<br />

e em profilaxia podem ser armazenados<br />

à temperatura ambiente durante algum<br />

tempo (até 25ºC). Se vai viajar para fora<br />

do país deverá pensar sériamente em<br />

levar o seu factor consigo. Verifique as<br />

instruções de uso (bula) do seu factor e<br />

consulte o seu médico.

Nota Importante!<br />

Qualquer hemorragia em tecidos moles<br />

ou articulações deve ser tratada tão<br />

precocemente quanto possível para<br />

evitar hematomas maiores. Quanto<br />

mais depressa se pára a hemorragia,<br />

mais rapidamente é absorvido o<br />

sangue derramado.<br />

Para informação sobre a dosagem<br />

recomendada, consulte o folheto<br />

informativo do seu produto.<br />

Os analgésicos a prescrever não devem<br />

conter ácido acetilsalicílico. Os seguintes<br />

analgésicos podem ser administrados:<br />

– Paracetamol<br />

– Pentazocina<br />

– Dextropropoxifeno-HCI<br />

– Tilidina<br />

Eu tenho Hemofilia<br />

A (Deficiência de FVIII)<br />

B (Deficiência de FIX)<br />

A minha Hemofilia é<br />

grave (0 – 2%)<br />

moderada (2 – 5%)<br />

ligeira/leve (> 5%)<br />

Tenho uma<br />

Hemorragia:<br />

43

Português/<br />

Portuguese<br />

Lista do que devo fazer em caso<br />

de viagem<br />

Planear uma viagem grande é excitante, mas há sempre muito a lembrar. Talvez<br />

considere útil utilizar a seguinte lista de controlo para preparar a sua viagem.<br />

• Levo comigo todos os documentos de viagem necessários:<br />

44<br />

Passaporte válido<br />

Autorização de trabalho / visto<br />

válido<br />

Carta médica (em inglês ou,<br />

de preferência, na língua local)<br />

Cópia descrevendo os limites<br />

da bagagem de mão e da<br />

bagagem a despachar<br />

• Preparativos a fazer para voos de longa distância:<br />

Levo factor suficiente para<br />

o tempo que dura o voo / a<br />

ligação / o transfer?<br />

Levo uma cópia da carta<br />

médica (em inglês ou, de<br />

preferência, na língua local)<br />

para mostrar ao pessoal de<br />

segurança no aeroporto /<br />

pessoal da companhia aérea?<br />

Apólice de seguro ou seguro<br />

de viagem<br />

Lista do que fazer em caso<br />

de emergência<br />

Contactos de amigos ou<br />

familiares<br />

Guia<br />

O meu factor vai bem<br />

guardado junto ao kit<br />

de perfusão, para que o<br />

possa entregar ao pessoal<br />

da companhia aérea para<br />

armazenamento seguro?<br />

Fiz os tratamentos / as<br />

profilaxias necessários antes<br />

de viajar?

• Factor e equipamento para tratamento durante a estadia no<br />

estrangeiro Eu tenho:<br />

Factor para tratamento<br />

de rotina<br />

Factor para profilaxia adicional<br />

Factor para casos de<br />

emergência<br />

• Como guardar o meu factor:<br />

Tenho mala térmica para levar<br />

na viagem?<br />

Tenho mala adequada para<br />

transportar o factor como<br />

bagagem de mão?<br />

Há frigorífico/refrigerador no<br />

quarto/Hotel?<br />

Posso guardar qualquer factor<br />

à temperatura ambiente<br />

(até 25°C)?<br />

O número correcto de kits<br />

de perfusão<br />

Equipamento extra: torniquete,<br />

agulhas, soro fisiológico,<br />

compressa de gaze, etc.<br />

Um kit básico para primeiros<br />

socorros<br />

Sendo o caso, quanto tempo<br />

o posso fazer?<br />

O que devo fazer se perder ou<br />

partir o frasco de factor?<br />

Onde posso obter mais factor<br />

se o meu se tornar inutilizável?<br />

45

Português/<br />

Portuguese<br />

• Seguro de saúde:<br />

46<br />

Tenho os dados do meu<br />

seguro?<br />

Tenho o número de contacto<br />

da seguradora caso necessite<br />

de a contactar?<br />

O que está coberto<br />

pelo seguro?<br />

• Plano de emergência:<br />

Tenho o meu guia à mão para<br />

verificar se existe um centro<br />

de hemofilia no local para<br />

onde vou?<br />

O que não está coberto<br />

pelo seguro?<br />

O tratamento num hospital<br />

está coberto pelo meu seguro<br />

de saúde?<br />

A companhia de seguro sabe<br />

que tenho hemofilia?<br />

Os meus companheiros de<br />

viagem conhecem a minha<br />

situação? Eles sabem quem<br />

devem contactar em caso de<br />

emergência (p.ex. centro de<br />

hemofilia indicado no guia)?<br />

Eles podem dar-me factor em<br />

caso de necessidade?

Notas<br />

47

Español/<br />

Spanish<br />

Información<br />

general sobre<br />

hemofilia<br />

Nos complace presentar la versión<br />

actualizada de la Guía de Viaje 2010.<br />

Esta guía ha sido confeccionada para<br />

las personas hemofílicas y sus familias,<br />

tanto si tienen intención de viajar sólo<br />

en vacaciones como si son auténticos<br />

viajeros. Puesto que en Baxter nos<br />

preocupa su bienestar, queremos<br />

que sepan dónde pueden conseguir<br />

ayuda en caso de emergencia. Esta<br />

guía incluye direcciones de centros de<br />

hemofilia en 52 destinos de vacaciones.<br />

En esta séptima edición, hemos<br />

ampliado la guía de viaje incluyendo<br />

las zonas de vacaciones más populares,<br />

como Australia, Canadá, Europa, Lejano<br />

Oriente, México, Sudáfrica, Sudamérica,<br />

el Caribe y los Estados Unidos, para que<br />

se sientan seguros vayan donde vayan.<br />

48<br />

Cómo usar esta guía de viaje<br />

Nos hemos esforzado en hacer esta<br />

guía lo más sencilla posible. El índice<br />

le ayudará a encontrar su destino<br />

de vacaciones. Allí verá, por orden<br />

alfabético, las direcciones completas<br />

e información de contactos en las<br />

ciudades de cada país incluido en el<br />

índice. Esta introducción se encuentra<br />

traducida al neerlandés, francés,<br />

alemán, griego, italiano, portugués,<br />

inglés y turco. Si se da el caso de que<br />

se encuentra en un país en el que el<br />

castellano o una de estas otras lenguas<br />

apenas se habla, y necesita asistencia<br />

médica inmediata, utilice el esquema<br />

de la página 49 para comunicarle al<br />

médico que usted padece hemofilia, su<br />

tipo y gravedad. Utilice la figura para<br />

mostrarle en qué lugar sufre la lesión.<br />

Antes de salir de viaje<br />

Lleve consigo una Tarjeta Informativa<br />

sobre Hemofilia allí donde vaya. Si<br />

está viajando por el extranjero, le será<br />

más útil que la información esté en<br />

castellano o, mejor todavía, en el idioma<br />

del país que está visitando. Busque los<br />

Centros más cercanos a lo largo de su<br />

itinerario y en su destino final. Si debe<br />

usted infundirse factor, o infundírselo<br />

a su hijo o hija, probablemente pueda<br />

llevar consigo el factor. La mayor parte<br />

de preparaciones modernas usadas para<br />

el tratamiento de hemorragias y para<br />

la profilaxis pueden conservarse cierto<br />

tiempo a temperatura ambiente (máx<br />

25ºC). Si viaja usted por el extranjero,<br />

deberá plantearse seriamente la<br />

posibilidad de llevar consigo su factor.<br />

Vea el folleto informativo del paciente y<br />

hable con su médico.

¡Nota importante!<br />

Toda hemorragia que se produzca en<br />

partes blandas o articulaciones debe<br />

tratarse lo antes posible, para evitar<br />

la aparición de grandes hematomas.<br />

Cuando antes se interrumpa la<br />

hemorragia, más rápidamente se podrá<br />

absorber la sangre extravasada.<br />

Para recomendaciones sobre la<br />

dosificación consulte el prospecto de<br />

su producto.<br />

Los analgésicos administrados no deben<br />

contener ácido acetilsalicílico. Pueden<br />

administrarse los analgésicos siguientes:<br />

– Paracetamol<br />

– Pentazocina<br />

– Dextropropoxifeno-HCI<br />

– Tilidina<br />

Padezco hemofilia<br />

A (deficiencia FVIII)<br />

B (deficiencia FIX)<br />

Mi hemofilia es<br />

grave (0 – 2%)<br />

moderada (2 – 5%)<br />

leve (> 5%)<br />

Tengo<br />

molestias en:<br />

49

Español/<br />

Spanish<br />

Lista de planificación de viajes<br />

Planificar un gran viaje es una aventura emocionante, pero hay muchas cosas<br />

que no se pueden olvidar. La siguiente lista le ayudará a prepararse.<br />

• ¿He metido en el bolso o la maleta los documentos que necesito<br />

para el viaje?:<br />

50<br />

Pasaporte vigente<br />

Permiso de trabajo vigente/<br />

visado para el viaje<br />

Informes médicos (en inglés o<br />

mejor en el idioma local)<br />

Copia de la receta en el<br />

equipaje de mano y en<br />

el facturado<br />

¿Me llevo factor suficiente<br />

para la duración del vuelo, los<br />

vuelos de conexión o<br />

los traslados?<br />

¿Tengo preparada una copia<br />

de mi informe médico (en<br />

inglés o mejor en el idioma<br />

local) para mostrarlo al<br />

personal de seguridad<br />

del aeropuerto o de la<br />

compañía aérea?<br />

Póliza de seguros o seguro<br />

de viaje<br />

Lista de cosas para hacer en<br />

caso de emergencia<br />

Datos de contacto de amigos<br />

o familiares<br />

Guía de viajes<br />

• Cosas que tengo que preparar para un vuelo a larga distancia:<br />

¿He empaquetado mi factor<br />

de forma segura con el<br />

estuche para infusión, listo<br />

para entregarlo al personal de<br />

la compañía aérea para que lo<br />

guarde en un lugar seguro?<br />

¿Mi tratamiento o profilaxis<br />

están actualizados antes<br />

del viaje?

• Factor y materiales para el tratamiento mientras estoy fuera de casa<br />

¿Tengo…:<br />

Factor para el tratamiento<br />

habitual<br />

Factor por si necesito<br />

aumentar la profilaxis<br />

Factor para emergencias<br />

• Factor guardado:<br />

¿Tengo el envase fría para<br />

el viaje?<br />

¿Tengo la bolsa adecuada<br />

para guardar el factor como<br />

equipaje de mano?<br />

¿Habrá posibilidad de guardar<br />

el material refrigerado en mi<br />

habitación o en el hotel?<br />

¿Puedo guardar parte de mi<br />

factor a temperatura ambiente<br />

(máx 25°C)?<br />

Número necesario de estuches<br />

para infusión<br />

Otros materiales: torniquete,<br />

agujas, solución salina,<br />

gasas, etc.<br />

Estuche básico para<br />

primeros auxilios<br />

Si es así, ¿durante cuánto<br />

tiempo?<br />

¿Qué puedo hacer en caso<br />

de que pierda o se rompa<br />

un vial de factor?<br />

¿Dónde podré obtener<br />

más factor, si el que llevo<br />

queda inutilizado?<br />

51

Español/<br />

Spanish<br />

• Seguro médico:<br />

52<br />

¿Llevo los datos de la póliza?<br />

¿Llevo los datos de contacto<br />

de la compañía de seguros,<br />

por si necesitara comunicarme<br />

con ella?<br />

¿Qué me cubre esta póliza?<br />

• Planes de emergencia para contingencias:<br />

¿Llevo mi guía de viaje a mano<br />

para poder comprobar dónde<br />

hay un centro de tratamiento<br />

de hemofilia en mi lugar<br />

de destino?<br />

¿Qué no me cubre esta póliza?<br />

¿Me cubrirá mi seguro médico<br />

si necesitara ir al hospital?<br />

¿Saben que tengo hemofilia?<br />

¿Las compañías que<br />

se encargan de mis<br />

desplazamientos conocen mi<br />

situación? ¿Saben con quién<br />

deben contactar en caso de<br />

urgencia (p. ej., centro local<br />

de hemofilia según la guía<br />

de viajes)?<br />

¿Me pueden administrar el<br />

factor en caso necesario?

Notas<br />

53

Türkçe/<br />

Turkish<br />

Hemofili<br />

hakkında<br />

genel bilgi<br />

Seyahat Rehberi 2010’un yenilenmiş<br />

versiyonunu sizlerle paylaşmaktan<br />

gurur duyuyoruz. Bu rehber, tatile<br />

çıkmayı planlayan, sık seyahat eden ve<br />

tüm dünyayı gezmeye niyetli hemofili<br />

hastaları ve aileleri için hazırlanmıştır.<br />

Sizlerin sağlığı konusunda çok hassas<br />

olan Baxter ailesi olarak, acil durumlarda<br />

nerelerden yardım alabileceğiniz<br />

konusunda sizleri bilgilendirmek<br />

istiyoruz. Bu rehber 52 tatil yerindeki<br />

tüm hemofili merkezlerinin adresini<br />

içermektedir. Bu 7. baskıda, rehberi<br />

genişlettik ve dünyanın neresine<br />

giderseniz gidin sizlerin sağlığını ve<br />

rahatlığını sağlayabilmek için Avustralya,<br />

Kanada, Avrupa, Uzak Doğu, Meksika,<br />

Güney Amerika, Güney Afrika,<br />

Karayipler ve ABD gibi en gözde tatil<br />

mekanlarını ilave ettik.<br />

54<br />

Seyahat Rehberini Nasıl<br />

Kullanacaksınız?<br />

Rehberi mümkün olduğunca<br />

basitleştirmek için büyük çaba<br />

gösterdik. İçerikler tablosu, tatil<br />

hedeflerinizin belirlenmesinde size<br />

yardımcı olacaktır. Şehirlerin alfabetik<br />

sırayla yer aldığı bu tabloda, uzman<br />

hemofili merkezlerinin açık adreslerini<br />

ve bu merkezlerle ilgili bilgileri<br />

bulabilirsiniz. Bu önsöz Flemenkçe,<br />

Fransızca, Almanca, Yunanca, İtalyanca,<br />

İspanyolca, Portekizce ve Türkçe’ye<br />

çevrilmiştir. Eğer İngilizcenin veya söz<br />

konusu diğer dillerin konuşulmadığı bir<br />

ülkede seyahatte iseniz ve acil bir tıbbi<br />

yardıma ihtiyacınız olursa, lütfen şemayı<br />

kullanarak doktora hangi tip hemofili<br />

hastası olduğunuzu ve hastalığınızın<br />

ciddiyet derecesini açıklayınız.<br />

Kanamanızın nerede olduğunu<br />

göstermek için de ilgili şekli kullanınız.<br />

Ayrılmadan Önce.....<br />

Nereye giderseniz gidin Hemofili<br />

Bilgi Kartiniz yanınızda olsun. Eğer<br />

yurtdışında seyahat ediyorsanız kart<br />

detaylarınızın ingilizce veya daha<br />

da iyisi, ziyaret ettiğiniz ülkenin<br />

dilinde olması size yardımcı olacaktır.<br />

Rotanız üzerindeki ve varacağınız<br />

yerdeki en yakın merkezleri öğreniniz.<br />

Kendinize veya çocuğunuza enjeksiyon<br />

yapıyorsanız, yanınıza faktör<br />

preparatınızı alabilirsiniz. Kanamaların<br />

tedavisinde ve kanamayı önleyici<br />

profilaktik tedavide kullanılan en<br />

son geliştirilmiş modern preparatlar,<br />

oda sıcaklığında belli bir süre<br />

saklanabilmektedir (25ºC’ye kadar).<br />

Yurtdışında seyahat ediyorsanız<br />

faktörünüzü yanınıza almayı<br />

düşünmelisiniz. Faktörünüz için<br />

hasta bilgi broşürünü inceleyin ve<br />

doktorunuzla görüşün.

Önemli Not!<br />

Büyük hematomların oluşmasını<br />

önlemek için yumuşak dokunun veya<br />

eklemlerin içinde gerçekleşen bütün kan<br />

sızıntılarının bir an önce tedavi edilmesi<br />

gerekmektedir. Hemoraj ne kadar<br />

çabuk durdurulursa damar dışına sızmış<br />

olan kan da o kadar çabuk emilir.<br />

Dozaj önerileri için lütfen ürününüzün<br />

ambalaj prospektüsüne bakınız.<br />

Ağri kesici, asetilsalisilik asit<br />

içermemelidir. Yalnızca aşağıda<br />

listelenmiş olan analjezikler hastaya<br />

verilebilir.<br />

– Paracetamol<br />

– Pentazocine<br />

– Dextropropoxyphen-HCI<br />

– Tilidine<br />

Hemofili hastasıyım<br />

A (Faktör VIII eksikliği)<br />

B (Faktör IX eksikliği)<br />

Hemofili hastalığım<br />

(faktör seviyesine göre)<br />

ağir (0 – 2%)<br />

orta (2 – 5%)<br />

hafif (> 5%)<br />

Kanamam var:<br />

55

Türkçe/<br />

Turkish<br />

Yolculuk Kontrol Listesi<br />

Büyük bir yolculuğu planlamak tatlı bir heyecan verir, ancak bir yandan da<br />

pek çok şeyi düşünmek gerekmektedir. Bu kontrol listesinin hazırlıklarınıza<br />

yardımcı olacağını düşünüyoruz.<br />

• I . htiyacım olan yolculuk belgelerini yanıma aldım mı?:<br />

56<br />

Güncel pasaport<br />

Geçerli çalışma izni/vize<br />

Tıbbi mektup (İngilizce dilinde<br />

veya ideal olarak yerel dilde)<br />

Bagaja ve el (kabin) bagajına<br />

koymak üzere reçetenin<br />

2 ayrı kopyası<br />

Yanımda uçuş/bağlantı/<br />

aktarma süresi için yeterli<br />

miktarda faktör var mı?<br />

Havaalanı güvenlik/havayolu<br />

personeline göstermek<br />

üzere tıbbi mektubumun<br />

(İngilizce dilinde veya ideal<br />

olarak yerel dilde) bir kopyasını<br />

yanıma aldım mı?<br />

Sigorta poliçesi veya<br />

yolculuk sigortası<br />

Acil bir durumda yapılması<br />

gerekenlerin listesi<br />

Dostlarımın veya ailemin<br />

iletişim bilgileri<br />

Yolculuk rehberi<br />

• Uzun bir uçak yolculug˘ u için yapmam gereken hazırlıklar:<br />

Faktörümü ve infüzyon kitimi<br />

güvenli bir yere yerleştirmeleri<br />

için havayolu personeline<br />

vermek üzere sağlam bir<br />

şekilde ambalajladım mı?<br />

Yolculuk öncesinde tedavim/<br />

profilaksim güncellendi mi?

• Yolculuk sırasındaki tedavim için faktör ve uygulama seti<br />

S¸ unlar yanımda mı:<br />

Rutin tedavi için faktör<br />

İlave profilaksi için faktör<br />

Acil durumlar için faktör<br />

• Faktörümün muhafazası:<br />

Yolculuk için soğutucu çantam<br />

var mı?<br />

Faktörümü el bagajı dolabına<br />

yerleştirmek için uygun bir<br />

çantam var mı?<br />

Kalacağım odada/otelde<br />

soğutma olanağı var mı?<br />

Faktörümün birazını oda<br />

sıcaklığında muhafaza edebilir<br />

miyim (25°C’ye kadar)?<br />

Doğru sayıda infüzyon kiti<br />

İlave teçhizat: turnike, iğneler,<br />

salin, sargı bezi vs.<br />

Temel bir ilk yardım kiti<br />

Eğer edebilirsem, ne kadar<br />

süreyle?<br />

Eğer bir faktör şişesi kaybolur<br />

ya da kırılırsa ne yaparım?<br />

Eğer yanımda getirdiklerim<br />

kullanılmaz hale gelirse,<br />

nereden faktör temin<br />

edebilirim?<br />

57

Türkçe/<br />

Turkish<br />

• Sag˘ lık sigortası:<br />

58<br />

Poliçe detaylarım yanımda mı?<br />

Eğer sigorta şirketiyle temasa<br />

geçmem gerekirse, iletişim<br />

bilgileri yanımda mı?<br />

Poliçe beni nelere karşı<br />

koruyor?<br />

• Acil/beklenmedik durum planı:<br />

Gideceğim yerde bir hemofili<br />

merkezi olup olmadığını<br />

öğrenmek için yanımda bir<br />

yolculuk rehberi var mı?<br />

Poliçe beni nelere<br />

karşı korumuyor?<br />

Eğer hastaneye yatmam<br />

gerekirse, sağlık sigortam<br />

bunu kapsıyor mu?<br />

Hemofili hastası olduğumu<br />

biliyorlar mı?<br />

Yolculuk arkadaşlarım<br />

durumumdan haberdar<br />

mı? Acil bir durumda kime<br />

başvurmaları gerektiğini<br />

biliyorlar mı (örn. Yolculuk<br />

Rehberinde belirtilen yerel<br />

Hemofili Merkezine)?<br />

Gerekirse bana faktör<br />

verebilecekler mi?

Not<br />

59

<strong>Haemophilia</strong> Treatment Centre<br />

Address Information

Argentina<br />

Buenos Aires<br />

Hemophilia Centre<br />

of Beunos Aires<br />

Soler 3485<br />

Capital Federal, 1425<br />

Dr. Miguel Tezanos Pinto<br />

Dr. Raúl Pérez Bianco<br />

Tel: +54 11/4963 1755<br />

Córdoba<br />

Hemophilia Centre of Córdoba<br />

Belgrano 56<br />

Córdoba, 5000<br />

Dr. Bordone Raúl<br />

Dr. Bepre Hector<br />

Tel: +54 351/421 7041<br />

Tel: +54 351/421 7045<br />

Mendoza<br />

Hemophilia Centre of Mendoza<br />

O’Brien 488<br />

San Jose-Guaymallen<br />

Mendoza, 5521<br />

Dra. SilviaYañez<br />

Tel: +54 261/445 4367<br />

62<br />

Rosario<br />

Hemophilia Centre of Rosario<br />

Urquiza 3101<br />

Rosario, 2000<br />

Dra. Rescia Virginia<br />

Tel: +54 341/437 5506<br />

Tucumán<br />

Hemophilia Centre of Tucumán<br />

Estados Unidos 61<br />

S. M. Tucumán, 4002<br />

Dra. Guerrero Maria Virginia<br />

Dr. Hugo Medici<br />

Tel: +54 381/422 5551<br />

Mar del Plata<br />

Hemophilia Centre<br />

of Mar del Plata<br />

Castelli 2459<br />

Mar del Plata, 7600<br />

Dra. Gabriela Sliba<br />

Tel: +54 223/472 9781

NEW SOUTH WALES<br />

Sydney<br />

Royal Prince Alfred Hospital<br />

Missenden Road<br />

Camperdown, NSW 2050<br />

Tel: +61 (0)2 9515 7013<br />

Fax: +61 (0)2 9515 6133<br />

Westmead Children’s Hospital<br />

Hawkesbury Road<br />

Westmead, NSW 2145<br />

Factor Zone<br />

Tel: +61 (0)2 9845 1138<br />

Fax: +61 (0)2 9845 3489<br />

Sydney Children’s Hospital<br />

High Street<br />

Randwick, NSW 2031<br />

Tel: +61 (0)2 9382 1240<br />

Fax: +61 (0)2 9382 1789<br />

Newcastle<br />

Newcastle Mater<br />

Misericordiae Hospital<br />

Edith Street<br />

Waratah, NSW 2298<br />

Tel: +61 (0)2 4921 1240<br />

Fax: +61 (0)2 4960 1197<br />

AUSTRALIAN CAPITAL<br />

TERRITORY<br />

Canberra<br />

The Canberra Hospital<br />

Yamba Drive<br />

Garran, ACT 2606<br />

Tel: +61 (0)2 6244 2929<br />

Fax: +61 (0)2 6285 2031<br />

NORTHERN TERRITORY<br />

Darwin<br />

Royal Darwin Hospital<br />

Rocklands Drive<br />

Tiwi, NT 0810<br />

Tel: +61 (0)8 8922 7634<br />

Fax: +61 (0)8 8922 8286<br />

Australia<br />

63

Australia<br />

QUEENSLAND<br />

Herston<br />

Royal Brisbane &<br />

Women’s Hospital<br />

Herston Road<br />

Herston, QLD 4029<br />

QLD<br />

Level 4, Joyce Tweddell Building<br />

Tel: +61 (0)7 3636 5727<br />

Fax: +61 (0)7 3636 4221<br />

Royal Children’s Hospital<br />

Hertson Road<br />

Hertson, QLD 4029<br />

Banksia Ward<br />

Woolworths Medical Building, Level 3<br />

Tel: +61 (0)7 3636 9030<br />

Fax: +61 (0)7 3636 7215<br />

64<br />

SOUTH AUSTRALIA<br />

Adelaide<br />

Royal Adelaide Hospital<br />

North Terrace<br />

Adelaide, SA 5000<br />

Tel: +61 (0)8 8222 5017<br />

Fax: +61 (0)8 8222 5963<br />

Women’s & Children’s Hospital<br />

72 King William Road<br />

North Adelaide, SA 5006<br />

Tel: +61 (0)8 8204 7411<br />

Fax: +61 (0)8 8204 6567<br />

TASMANIA<br />

Hobart<br />

Royal Hobart Hospital<br />

48 Liverpool Street<br />

Hobart Tasmania 7000<br />

Tel: +61 (0)3 6222 8045<br />

Fax: +61 (0)3 6222 8900

VICTORIA<br />

Melbourne<br />

Royal Children’s Hospital<br />

Flemington Road<br />

Parkville<br />

Melbourne, VIC 3052<br />

Tel: +61 (0)3 9345 5099<br />

Fax: +61 (0)3 9945 6524<br />

The Alfred<br />

Commercial Road<br />

Prahran<br />

Melbourne, VIC 3181<br />

Tel: +61 (0)3 9276 2178<br />

Fax: +61 (0)3 9276 3021<br />

WESTERN AUSTRALIA<br />

Australia<br />

Subiaco<br />

Princess Margaret Hospital<br />

Roberts Road<br />

Subiaco, WA 6008<br />

Tel: +61 (0)8 9340 8222<br />

Tel: +61 (0)8 9340 8682<br />

Fax: +61 (0)8 9340 8117<br />

Fremantle<br />

Fremantle Hospital<br />

Alma Street<br />

Fremantle, WA 6160<br />

Tel: +61 (0)8 9431 3333<br />

Fax: +61 (0)8 9431 2281<br />

Perth<br />

Royal Perth Hospital<br />

Kirkman House<br />

Murray Street<br />

Perth, WA 6000<br />

Tel: +61 (0)8 9224 2937<br />

Fax: +61 (0)8 9224 8475<br />

65

Austria<br />

Feldkirch<br />

Landeskrankenhaus Feldkirch<br />

Carinagasse 47<br />

6807 Feldkirch<br />

Interne Medizin<br />

OA Dr. Alois Lang<br />

Tel: +43 (0)5522/3030 2300<br />

Graz<br />

Universitätskliniken<br />

Auenbruggerplatz 15<br />

8036 Graz<br />

Medizinische Abteilung der<br />

Universitätsklinik Klinische<br />

Abteilung für Hämatologie<br />

Prof. Dr. P. Neumeister<br />

OA Dr. Franz Bauer<br />

Tel: +43 (0)316/385 4049<br />

Universitätsklinik für Kinder – und<br />

Jugendheilkunde (Hämophilieambulanz)<br />

Prof. Dr. Eugen W. Muntean<br />

Prof. Dr. S. Gallistl<br />

Tel: +43 (0)316/385 2635<br />

Tel: +43 (0)316/385 3718<br />

66<br />

Innsbruck<br />

Universitätskliniken Tirol<br />

Anichstraße 35<br />

6020 Innsbruck<br />

Universitätsklinik für Innere Medizin<br />

(Hämatologie Ambulanz)<br />

Prof. Dr. Ch. Pechlaner<br />

Tel: +43 (0)512/504 24035<br />

Universitätsklinik für Kinder – und<br />

Jugendheilkunde (Ambulanz)<br />

Prof. W. Streif<br />

Tel: +43 (0)512/504 81182<br />

Tel: +43 (0)512/504 23483 (Ambulanz)<br />

Klagenfurt<br />

Landeskrankenhaus Klagenfurt<br />

St. Veiter Straße 47<br />

9020 Klagenfurt<br />

Medizinische Abteilung<br />

OA Dr. Max Heistinger<br />

Tel: +43 (0)463/538 29311<br />

Tel: +43 (0)463/538 29070<br />

(Notfallambulanz)<br />

Abteilung für Kinder – und<br />

Jugendheilkunde<br />

OA Dr. Ewald Pichler<br />

Tel: +43 (0)463/538 29500

Linz<br />

Hämophiliezentrum für<br />

Erwachsene<br />

Krankenhausstraße 7<br />

4017 Linz<br />

Blutzentrale Linz<br />

OA Dr. G. Schuster<br />

Tel: +43 (0)732/777 000<br />

Tel: +43 (0)732/777 207<br />

Landes-Kinderklinik Linz<br />

Krankenhausstraße 26<br />

4020 Linz<br />

Landes–, Frauen– und Kinderklinik Linz<br />

Hämophiliezentrum für Kinder<br />

OA Dr. R. S. Schwarz<br />

Tel: +43 (0)732/6923 2346<br />

Tel: +43 (0)50 554 63-24230<br />

(Entwicklungsambulanz)<br />

Salzburg<br />

Landeskrankenhaus Salzburg<br />

Müllner-Hauptstraße 48<br />

5020 Salzburg<br />

Universitätsklinik, Innere Medizin III<br />

OA Dr. Sabine Rosenlechner<br />

Tel: +43 (0)662/4482 3407<br />

Universitätsklinik für Kinder –<br />

und Jugendheilkunde<br />

OA Dr. Neil Jones<br />

OA Dr. Regina Jones<br />

Tel: +43 (0)662/4482 4776 (Ambulanz)<br />

Tel: +43 (0)662/4482 2690 (Station)<br />

Austria<br />

St. Pölten<br />

Landesklinikum St. Pölten<br />

Probst-Führer-Straße 4<br />

3100 St. Pölten<br />

Kinderabteilung<br />

Prim. Prof. Dr. K. Zwiauer<br />

(Oder diensthabender OA)<br />

Tel: +43 (0)2742/300 13525<br />

Wien<br />

Medizinische<br />

Universitätsklinik Wien<br />

Währinger Gürtel 18-20<br />

1090 Wien<br />

Innere Medizin 1 / Hämatologie<br />

Station 18 I<br />

Univ.-Prof. Dr. Ingrid Pabinger-Fasching<br />

Univ.-Prof. Dr. Paul Kyrle<br />

Tel: +43 (0)1/40 400 4474 (Station)<br />

Tel: +43 (0)1/40 400 4497 (Ambulanz)<br />

Universtäts-Kinderklinik<br />

Univ.-Prof. Dr. Christoph Male<br />

Tel: +43 (0)1/40 400 3229 (Ambulanz)<br />

St. Anna Kinderspital<br />

Kinderspitalgasse 6<br />

1091 Wien<br />

OA Dr. Hans Wank<br />

Tel: +43 (0)1/40 170 2022<br />

67

Belgium<br />

Antwerpen<br />

Universitair Ziekenhuis<br />

Antwerpen (U.Z.A.)<br />

Wilrijkstraat 10<br />

2650 Edegem<br />

Coördinatieëenheid Hematologie en<br />

Bloedtransfusie (CEHB)<br />

Dr. M. Van Der Planken<br />

Pr. Dr. A. Gadisseur<br />

Pr. Dr. W. Schroyens<br />

Tel: +32 (0)3/821 30 00<br />

AZ Middelheim<br />

Lindendreef, 1<br />

2020 Antwerpen<br />

Hematology Dept.<br />

Dr. P. Maes (Children)<br />

Tel: +32 (0)3/280 21 65<br />

Algemeen Centrumziekenhuis<br />

Antwerpen (Stuivenberg)<br />

Lange Beeldekensstraat 267<br />

2060 Antwerpen<br />

Internal Medecine – Hematology Dept.<br />

Dr. P. Zachee<br />

Dr. D. Breems<br />

Tel: +32 (0)3/217 71 11<br />

68<br />

Brugge<br />

AZ St. JAN<br />

Ruddershove 10<br />

8000 Brugge<br />

Hematologie<br />

Dr. A. Van Hoof<br />

Tel: +32 (0)50/45 23 20<br />

Brussels (Bruxelles)<br />

Cliniques Universitaires<br />

St. LUC (UCL)<br />

Avenue Hippocrate 10<br />

1200 Bruxelles<br />

Unité Hémostase-Thrombose /<br />

Unité Hématologie Pédiatrique<br />

Prof. Dr. C. Hermans<br />

Dr. C. Lambert<br />

Prof. Dr. Ch. Vermylen (Children)<br />

Tel: +32 (0)2/764 17 40<br />

Brugmann University Hospital<br />

Place Arthur Van Gehuchten 4<br />

1020 Bruxelles<br />

Hématologie<br />

Dr. M-A. Azerad<br />

Tel: +32 (0)2/477 28 80

Hopital Universitaire des<br />

Enfants Reine Fabiola<br />

Rue Jean Crocq straat 15<br />

1020 Bruxelles<br />

Dr. A. Ferster<br />

Dr. P-Q. Lê<br />

Tel: +32 (0)2/477 31 13<br />

Akademisch Ziekenhuis VUB<br />

Laarbeeklaan 101<br />

1090 Bruxelles<br />

Dienst Hematologie en Immunologie<br />

Prof. K. Jochmans<br />

Tel: +32 (0)2/477 50 70<br />

Charleroi<br />

C.H.U. de Charleroi (Vésale)<br />

Rue de Gozée 706<br />

6110 Montigny-le-Tilleul<br />

Biologie Clinique<br />

Dr. Ph. Cauchie<br />

Tel: +32 (0)71/92 47 20<br />

Belgium<br />

Ghent (Gand)<br />

Universitair Ziekenhuis Gent<br />

De Pintelaan 185<br />

9000 Gand<br />

Hematologie, Bloedstolling<br />

Dr. A. Vantilborgh<br />

Tel: +32 (0)9/332 21 25<br />

Dr. V. Mondelaers (Children)<br />

Dr. K. Hunninck (Children)<br />

Tel: +32 (0)9/332 24 16<br />

Leuven<br />

Universitair Ziekenhuis<br />

Gasthuisberg – K.U.L.<br />

Herestraat 49<br />

3000 Leuven<br />

Thrombose en Vasculair Centrum<br />

Prof. Dr. K. Peerlinck<br />

Tel: +32 (0)16/34 35 33<br />

Prof. Dr. C. Van Geet (Children)<br />

Tel: +32 (0)16/34 38 34<br />

69

Belgium<br />

Liège<br />

Centre Hospitalier<br />

du Sart-Tilman<br />

Domaine du Sart-Tilman B35<br />

4000 Liège<br />

Unité Thrombose-Hémostase<br />

Dr. P. Péters<br />

Tel: +32 (0)4/366 75 36<br />

C.H.R. Citadelle<br />

Blvd du Douzième de Ligne 1<br />

4000 Liège<br />

Hematologie Pédiatrique /<br />

Laboratoire Hémostase<br />

Dr. M-F. Dresse (Children)<br />

Tel: +32 (0)4/225 89 80<br />

E. Collard-Ronge<br />

Tel: +32 (0)4/225 67 72<br />

C.H.C. Espérance<br />

Rue Saint-Nicolas 447-449<br />

4420 Montegnée<br />

Pédiatrie<br />

Dr. N. Francotte (Children)<br />

Tel: +32 (0)4/224 91 39<br />

70<br />

Namur<br />

Cliniques Universitaires UCL<br />

(Mt Godinne)<br />

Avenue Dr Gaston Therasse 1<br />

5530 Godinne<br />

Hématologie<br />

Dr. V. Mathieux<br />

Dr. Ch. Doyen<br />

Tel: +32 (0)81/42 38 31

Acre – Rio Branco<br />

HEMOACRE – Centro de<br />

Hemoterapia e Hematologia<br />

do Acre<br />

Av. Getúlio Vargas, 2787<br />

V. Ivonete<br />

69914-500<br />

Dra. Rita do Socorro Uchoa da Silva<br />

Nurse: Elineida Bezerra de Araújo<br />

Tel: +55 (0)68/3228 1494<br />

Tel: +55 (0)68/3228 8050<br />

Alagoas – Maceió<br />

HEMOAL – Centro de<br />

Hematologia e Hemoterapia<br />

de Alagoas<br />

Av. Jorge de Lima, nº 58<br />

Trapiche da Barra<br />

57010-300<br />

Dr. Paulo Medeiros<br />

Nurse: Maria Cícera S.do Nascimento<br />

Tel: +55 (0)82/3315 2106<br />

Tel: +55 (0)82/3315 2103<br />

Brazil<br />

Amapá – Macapá<br />

HEMOAP – Centro de<br />

Hemoterapia e Hematologia<br />

do Amapá<br />

Av. Raimundo Álvares da Costa, s/nº<br />

Jesus de Nazaré<br />

68908-170<br />

Dra. Luciana Campos Costa de Souza<br />

Nurse: Wiltânia do S. Cardoso<br />

Tel: +55 (0)96/3212 6139<br />

Tel: +55 (0)96/3223 4129<br />

Amazonas – Manaus<br />

HEMOAM – Centro de<br />

Hemoterapia e Hematologia<br />

do Amazonas<br />

Av. Constantino Nery, 4397<br />

Chapada<br />

69050-002<br />

Dr. Eudes Oliveira<br />

Nurse: M. do Carmo da S. Assunção<br />

Tel: +55 (0)92/3656 4020<br />

Tel: +55 (0)92/3656 2066<br />

Bahia – Salvador<br />

HEMOBA – Centro de<br />

Hematologia e Hemoterapia<br />

da Bahia<br />

Av. Vasco da Gama, s/nº<br />

Rio Vermelho<br />

40240-090<br />

Dra. Anelisa Costa Streva<br />

Nurse: Katia Silva<br />

Tel: +55 (0)71/3357 0900 (Ext. 218)<br />

71

Brazil<br />

Ceará-Fortaleza<br />

HEMOCE - Centro de<br />

Hematologia e Hemoterapia<br />

do Ceará<br />

Av. José Bastos, 3.390<br />

Rodolfo Teófilo<br />

60435-160<br />

Dr. Rosangela de Albuquerque Rua Holanda<br />

Nurse: Micheli Saraiva<br />

Tel: +55 (0)85/3433 4364<br />

Tel: +55 (0)85/3433 4367<br />

Distrito Federal – Brasília<br />

IHTC – Centro Internacional<br />

de Tratamento em Hemofilia<br />

Setor de Grandes Áreas Isoladas Norte<br />

(SGAIN)<br />

Lote 04<br />

72620-000<br />

Dra. Jussara Almeida<br />

Dra. Maria Nazaré Petrucelli<br />

Tel: +55 (0)61/3342 2320<br />

Tel: +55 (0)61/3347 7097<br />

Espírito Santo – Vitória<br />

HEMOES - Centro de<br />

Hemoterapia e Hematologia<br />

do Espírito Santo<br />

Av. Marechal Campos, 1468<br />

Maruípe<br />

29040-090<br />

Dra. Alessandra Prezoti<br />

Nurse: Maria Cristina França<br />

Tel: +55 (0)27/3137 2466<br />

Tel: +55 (0)27/3137 2455<br />

72<br />

Goiás – Goiânia<br />

HEMOG - Centro de<br />

Hematologia e Hemoterapia<br />

de Goiás<br />

Av. Anhanguera, 5195<br />

Setor Coimbra<br />

74535-010<br />

Dr. Celio Almeida<br />

Nurse: Nara Leticia<br />

Tel: +55 (0)62/3291 5020<br />

Tel: +55 (0)62/3233 5803<br />

Maranhão – São Luiz<br />

HEMOMAR - Centro de<br />

Hematologia e Hemoterapia<br />

do Maranhão<br />

Rua 5 de Janeiro, s/nº<br />

Jordoa<br />

65040-450<br />

Dra. Ligia Gonçalves<br />

Dr. Dario Nicolau<br />

Tel: +55 (0)98/3216 1100<br />

Mato Grosso – Cuiabá<br />

HEMOMAT – Matto Grosso<br />

Hemocentro<br />

Rua 13 de Junho, 1055<br />

Centro<br />

78005-100<br />

Dr. Sylvia Thomas<br />

Nurse: Maria Lúcia Pinheiro Perri<br />

Tel: +55 (0)65/3623 0044<br />

Tel: +55 (0)65/3321 9623

Mato Grosso do Sul –<br />

Campo Grande<br />

HEMOSUL – Centro de<br />

Hematologia e Hemoterapia<br />

do Mato Grosso do Sul<br />

Hemonúcleo do Hosp.<br />

Univesitário<br />

Av. Senador Cilinto s/nº<br />

Centro<br />

79800-190<br />

Dra.Rosania Baseggio<br />

Nurse: Gleide Freitas<br />

Tel: +55 (0)67/3345 3168<br />

Tel: +55 (0)67/3345 3169<br />

Tel: +55 (0)67/3312 1502<br />

Minas Gerais – Belo Horizonte<br />

HEMOMINAS – Centro de<br />

Hematologia e Hemoterapia<br />

do Minas Gerais<br />

Alameda Ezequiel Dias, 321 – Sta.<br />

Efigênia<br />

30130-110<br />

Dra. Mitiko Murao<br />

Nurse: Anna Maria A. Cerqueira<br />

Tel: +55 (0)31/3248 4500<br />

Tel: +55 (0)31/3248 4506<br />

Tel: 0800 31 01 01<br />

Brazil<br />

Pará – Belém<br />

HEMOPA – Centro de<br />

Hematologia e Hemoterapia<br />

do Pará<br />

Trav. Padre Eutiquio, 2109<br />

Batista Campos<br />

66033-000<br />

Dra. Sandra Lobato<br />

Nurse: Cecília Bezerra<br />

Tel: +55 (0)91/3242 6905<br />

Tel: +55 (0)91/3242 9100<br />

Tel: +55 (0)91/3225 2944<br />

Paraíba – João Pessoa<br />

HEMOIBA – Centro de<br />

Hematologia e Hemoterapia<br />

da Paraíba<br />

Av. D. Pedro II, 1119<br />

Torre<br />

58040-013<br />

Dra. Sandra Cibele Figueiredo<br />

Tel: +55 (0)83/3218 7610<br />

Tel: +55 (0)83/3222 4754<br />

Paraná – Curitiba<br />

HEMEPAR – Centro de<br />

Hemoterapia e Hematologia<br />

do Paraná<br />

Trav. Jõao Prosdócimo, 145<br />

CEP<br />

80060-220<br />

Dra. Claudia Lorenzato<br />

Nurse: Suzana (Setor de Hematologia)<br />

Tel: +55 (0)41/3281 4000<br />

73

Brazil<br />

Pernambuco – Recife<br />

HEMOPE – Fundação de<br />

Hematologia e Hemoterapia<br />

de Pernambuco<br />

Rua Joaquim Nabuco, 171<br />

52011-000<br />

Dra. Fátima Alves de Araújo<br />

Dr. Aderson Araújo<br />

Enf. Lúcia de Fátima or P. Pinheiro Teles<br />

Tel: +55 (0)81/3416 4600<br />

Tel: +55 (0)81/3416 4688<br />

Tel: +55 (0)81/3421 6946<br />

Piauí – Terezina<br />

HEMOPI – Centro de<br />

Hematologia e Hemoterapia<br />

do Piauí<br />

Rua Álvaro Mendes, 1988<br />

Centro<br />

59015-350<br />

Dra. Karina Nava de Almeida<br />

Nurse: Euclides Carvalho<br />

Tel: +55 (0)86/3221 4989<br />

Tel: +55 (0)86/3221 4927<br />

74<br />

Rio de Janeiro – Rio de Janeiro<br />

HEMORIO – Instituto Estadual<br />

de Hematologia Arthur de<br />

Siqueira Cavalcanti<br />

Rua Frei Caneca, 08<br />

20211-030<br />

Dr. Mônica Cerqueira Hermida<br />

Nurse: Sônia Saragoza<br />

Tel: +55 (0)21/2242 6080<br />

Tel: +55 (0)21/2509 1290<br />

Rio Grande do Norte – Natal<br />

HEMONORTE – Centro de<br />

Hematologia e Hemoterapia<br />

do RN<br />

Av. Adm. Alexandrino de Alencar, s/nº<br />

Tirol<br />

59015-350<br />

Dra. Irian Farkatt<br />

Tel: +55 (0)84/3232 6702<br />

Tel: +55 (0)84/3232 6767<br />

Rio Grande do Sul –<br />

Porto Alegre<br />

HEMORGS – Centro de<br />

Hemoterapia e Hematologia<br />

do Sul<br />

Av. Bento Gonçalves, nª 3.722<br />

90650-001<br />

Dra. Dayane Catelli<br />

Nurse: Andreia<br />

Tel: +55 (0)51/3362 6755

Rondônia – Porto Velho<br />

HEMERON – Centro de<br />

Hematologia e Hemoterapia<br />

de Rondônia<br />

Av. Circular II, s/nº<br />

Setor Industrial<br />

78900-970<br />

Dra. Rosângela Lacerda<br />

Nurse: Marilza dos Santos Brandão<br />

Tel: +55 (0)69/3216 5489<br />

Tel: +55 (0)69/3451 3931<br />

Roraima – Boa Vista<br />

HEMORAIMA – Centro de<br />

Hematologia e Hemoterapia<br />

de Roraima<br />

Av. Brigadeiro Eduardo Gomes, s/nº<br />

69304-650<br />

Dr. Mauro Shosuka Asato<br />

Tel: +55 (0)95/3623 1990<br />

Tel: +55 (0)95/3623 2634<br />

Santa Catarina – Florianópolis<br />

HEMOSC – Centro de<br />

Hemoterapia e Hematologia<br />

de Santa Catarina<br />

Av. Othon Gama Deça, 756<br />

Praça D.Pedro I - Centro<br />

88015-240<br />

Dra. Denise Linhares<br />

Dra. Andrea Hoetters<br />

Tel: +55 (0)48/3251 9700<br />

Tel: +55 (0)48/3251 9742<br />

Brazil<br />

São Paulo – Botucatu<br />

Universidade Estadual Paulista<br />

Júlio de Mesquita Filho (UNESP)<br />

Faculdade de Medicina de Botucatu<br />

Distrito Rubião Junior, s/nº<br />

18600-000<br />

Divisão de Hemocentro<br />

Dr. José Mauro Zanini<br />

Dr. Luis Henrique<br />

Nurses: Laura /Adriana<br />

Tel: +55 (0)14/3811 6041<br />

São Paulo – Campinas<br />

Hemocentro Regional<br />

de Campinas<br />

Rua Carlos Chagas, 480<br />

Cidade Universitária Prof. Zeferino Vaz<br />

13081-970<br />

Dra. Margareth Ozzelo<br />

Dr. Erich V. de Paula<br />

Nurse: Andréa Sambo<br />

Tel: +55 (0)19/3788 8715<br />

Tel: +55 (0)19/3788 8756<br />

Tel: +55 (0)19/3788 8760<br />

Tel: +55 (0)19/3788 8750<br />

75

Brazil<br />

São Paulo – Marília<br />

Hemocentro Regional<br />

de Marília<br />

Rua Lourival, nº 240<br />

Fragata<br />

17519-050<br />

Dra. Roseli N. S. Antunes<br />

Nurse: Ana Cristina C. V. França<br />

Tel: +55 (0)14/3421 1868<br />

São Paulo – Ribeirão Preto<br />

HEMORP – Centro de<br />

Hemoterapia e Hematologia<br />

do de Ribeirão Preto<br />

Rua Tenente Catão Roxo, nº 2501<br />

Monte Alegre<br />

14051-140<br />

Dra. Carolina Pintão<br />

Dra. Andréia Garcia<br />

Nurse: Andreia<br />

Tel: +55 (0)16/3963 9311<br />

76<br />

São Paulo – São Paulo<br />

Fundação Pró Sangue-<br />

Hemocentro de São Paulo<br />

Av. Enéas Carvalho Aguiar, 155 1º andar<br />

Pinheiros<br />

05403-000<br />

Dr. Élbio D’amico<br />

Dra. Paula Villaça<br />

Dr. Jorge Carneiro<br />

Nurse: Eliane Sandoval<br />

Tel: +55 (0)11/3061 5544 – (Ext. 330/287)<br />

Tel: +55 (0)11/3085 9484<br />

Hospital Brigadeiro-Unidade<br />

de Hemofilia<br />

Av. Brig.Luis Antônio,2651<br />

São Paulo<br />

01401-000<br />

Dra. Nívia Foschi<br />

Dr. Ernani Teixeira<br />

Tel: +55 (0)11/3285 3731<br />

Hospital São Paulo – UNIFESP<br />

Rua Napoleão de Barros,611<br />

São Paulo<br />

04024-002<br />

Serviço Hemofilia<br />

Dra. Sandra Valin Antunes<br />

Nurse: Ana Claudia Acarbi Vrabic<br />

Tel: +55 (0)11/5539 6829<br />

Santa Casa de Misericórdia<br />

de São Paulo<br />

Rua Dr. Cesário Mota Junior,112<br />

São Paulo<br />

01220-020<br />

Dr. Ernani Teixeira<br />

Tel: +55 (0)11/3224 0122

Sergipe/Aracaju<br />

HEMOSE – Centro de<br />

Hematologia e Hemoterapia<br />

de Sergipe<br />

Av. Trancredo Neves, s/nº<br />

Centro Adm. Gov. Augusto Franco<br />

49080-470<br />

Dra. Ana Patricia Santana<br />

Nurse: Maria Lúcia Cosme de Brito<br />

Tel: +55 (0)79/3259 3033<br />

Tel: +55 (0)79/3259 3191<br />

Tocantins – Palmas<br />

HEMOTO – Centro de<br />

Hematologia e Hemoterapia<br />

de Tocantins<br />

301 Norte Conj. 02 Lote I<br />

Centro Palmas<br />

77030-010<br />

Dr. Calixto Ismael D.Libera<br />

Nurse: Valéria Sampaio<br />

Tel: +55 (0)63/3218 3284<br />

Tel: +55 (0)63/3218 3282<br />

Brazil<br />

77

Bulgaria<br />

Pleven<br />

UMBAL “Georgi Stranski”<br />

8A, “G. Kotchev” str.<br />

5800 Pleven, Bulgaria<br />

Ass. Prof. Nikolai Zvetkov<br />

Dr. Antonio Antonov<br />

Dr. Daniela Penkova<br />

Dr. Svetla Kostova - children<br />

Tel: +359 (0) 64 886 392<br />

Tel: +359 (0) 64 886 335<br />

Plovdiv<br />

UMBAL “St. George” EAD<br />

15A, “Vassil Aprilov” blvd.<br />

4002 Plovdiv, Bulgaria<br />

Dr. Angelina Stoianova - children<br />

Dr. Veselina Goranova<br />

Dr. Ekaterina Sapunarova<br />

Dr. Denka Kostova<br />

Tel: +359 (0) 32 602 298<br />

Russe<br />

UMBAL Russe<br />

2,”Nezavisimost” str.<br />

7000 Russe, Bulgaria<br />

Dr. Katalina Marinova-Jekova<br />

Tel: +359 (0) 82 887 368<br />

78<br />

Sofia<br />

National Institute of<br />

Hematology and Transfusiology<br />

6, “Plovdivsko pole” str.<br />

1756 Sofia, Bulgaria<br />

Dr. Antoaneta Zarkova<br />

Tel/Fax: +359 (0) 2 970 1104<br />

UMBAL Alexandrovska<br />

1,”Georgi Sofiiski”str.<br />

1431 Sofia, Bulgaria<br />

Dr. Radost Kabakchieva - children<br />

Tel: +359 (0) 2 923 0357<br />

Stara Zagora<br />

Regional Center of<br />

Transfusiology and Hematology<br />

2, “Gen. Stoletov” blvd.<br />

6000 Stara Zagora, Bulgaria<br />

Dr. Shtilianova<br />

Tel: +359 (0) 42 611 415<br />

Varna<br />

“UMBAL St. Marina” EAD<br />

1, “Hristo Smirnenski” blvd.<br />

9010 Varna, Bulgaria<br />

Ass. Prof. Liana Gercheva<br />

Dr. Jeliazkova<br />

Dr. Stavrev<br />

Ass. Prof. Valeria Kaleva - children<br />

Dr. Elina Peteva - children<br />

Tel: +359 (0) 52 978 266

ALBERTA<br />

Calgary<br />

Alberta Children’s Hospital<br />

2888 Shaganappi Trail N.W.<br />

Calgary, AB T3B 6A8<br />

Dr. MacGregor Steele<br />

Sheri Vangunst<br />

Tel: +1 (403) 955 3035<br />

Tel: +1 (403) 955 2643<br />

Fax: +1 (403) 955 3055<br />

Foothills Hospital<br />

1403 29th Street N.W.<br />

Calgary, AB T2N 2T9<br />

Division of Hematology and<br />

Hematologic Malignancies<br />

Dr. Man-Chiu Poon<br />

Morna Brown<br />

Carol Spitzer<br />

Trudy Sale<br />

Tel: +1 (403) 944 1564<br />

Tel: +1 (403) 944 4057 (Nurses)<br />

Fax: +1 (403) 944 2102<br />

Canada<br />

Edmonton<br />

University of Alberta Hospital<br />

8440 – 112th Street<br />

Edmonton, AB T6G 2H7<br />

Division of Hematology/Oncology<br />

4-71 Medical Science Building<br />

Dr. Bruce Ritchie<br />

Dr. Nancy Dower<br />

Tel: +1 (780) 492 3550<br />

Fax: +1 (780) 492 0886<br />

Wilma McClure<br />

Tel: +1 (403) 407 6588<br />

BRITISH COLUMBIA<br />

Vancouver<br />

BC Children’s Hospital<br />

4480 Oak Street<br />

Vancouver, BC V6H 3V4<br />

Dr. John Wu<br />

Erica Purves<br />

Tel: +1 (604) 875 2406 (Ext. 2406)<br />

Tel: +1 (604) 875 2345 (Ext. 5334)<br />

St. Paul’s Hospital<br />

1081 Burrard Street<br />

Vancouver, BC V6Z 1A5<br />

Hematology, Adult Patients<br />

Dr. Linda Vickars<br />

Dr. Shannon Jackson<br />

Deb Gue<br />

Kam McIntosh<br />

Tel: +1 (604) 684 5794<br />

Tel: +1 (604) 806 8855<br />

Fax: +1 (604) 684 5705<br />

79

Canada<br />

MANITOBA<br />

Winnipeg<br />

Health Sciences Centre,<br />

Bleeding Disorders Program<br />

840 Sherbrook Street<br />

Winnipeg, MB R3E 1M4<br />

Dr. Sara Israels<br />

Dr. Pat McCusker<br />

Dr. Jason Stoffman<br />

Rose Jacobson (Nurse)<br />

Nora Schwetz (Nurse)<br />

Kathy Mulder (Physio)<br />

Grieg Blamey (Physio)<br />

Tel: +1 (204) 787 2465 (Nurses & Physical)<br />

Tel: +1 (204) 787 4135 (Doctors)<br />

Fax: +1 (204) 787 1743<br />

Fax: +1 (204) 787 2265 (Physio)<br />

Pager: +1 (204) 787 2071 (Ext. 3346)<br />

NEW BRUNSWICK<br />

Moncton<br />

South-East Regional Health<br />

Authority Hemophilia Clinic<br />

135 MacBeath Avenue<br />

Moncton, NB E1C 6Z8<br />

Dept. of Hematology<br />

Dr. Sheldon Rubin<br />

Dr. Nizar Abdel Samad<br />

Dorine Belliveau<br />

Tel: +1 (506) 857 5465<br />

Fax: +1 (506) 857 5464<br />

Pager: +1 (506) 558 7158<br />

80<br />

Saint John<br />

St. John Regional Hospital,<br />

Inherited Bleeding<br />

Disorder Clinic<br />

400 University Avenue<br />

Saint John, NB E2L 4L2<br />

Dept. of Hematology<br />

Dr. Sean Dolan<br />

Dr. Terrance Comeau<br />

Louise Bedard<br />

Tel: +1 (506) 648 7286<br />

Fax: +1 (506) 648 7379<br />

NEWFOUNDLAND<br />

St. John’s<br />

Newfoundland and Labrador<br />

Hemophilia Program<br />

300 Prince Phillip Dr., Room 2J755<br />

St. John’s, NFLD A1B 3V6<br />

Dept. of Pediatric Hematology<br />

Dr. Lynette Bowes<br />

Dr. Jack Hand<br />

Charlotte Sheppard<br />

Tel: +1 (709) 777 4388<br />

Fax: +1 (709) 777 4292<br />

Dept. of Hematology<br />

Dr. Mary Frances Scully<br />

Charlotte Sheppard<br />

Tel: +1 (709) 777 4388<br />

Fax: +1 (709) 777 4292

NOVA SCOTIA<br />

Halifax<br />

IWK Grace Health Centre,<br />

Pediatric Bleeding<br />

Disorder Clinic<br />

5850 University Avenue<br />

Halifax, NS B3J 3G9<br />

6th Floor Hematology<br />

Dr. Victoria Price<br />

Dr. Eileen McBride<br />

Sue Ann Hawes<br />

Tel: +1 (902) 470 8752<br />

Tel: +1 (902) 470 8819<br />

Fax: +1 (902) 470 7208<br />

Queen Elizabeth II<br />

Health Sciences Centre,<br />

Hereditary Bleeding<br />

Disorders Program<br />

1278 Tower Road<br />

Halifax, NS B3H 2Y9<br />

Hematology Clinic Room 0184, South<br />

Dr. Sue Robinson<br />

Sue van Oosten<br />

Tel: +1 (902) 473 5612<br />

Fax: +1 (902) 473 7596<br />

Pager: +1 (902) 473 2220 or 2226<br />

ONTARIO<br />

Canada<br />

Hamilton<br />

McMaster University<br />

1200 Main Street West<br />

Hamilton, ON L8N 3Z5<br />

Hamilton Health Services,<br />

Hemophilia Program<br />

Dr. Irwin Walker<br />

Dr. Anthony Chan<br />

Kay Decker<br />

Rebecca Goldsmith<br />

Tel: +1 (905) 521 2100 (Ext. 75978)<br />

Fax: +1 (905) 974 2080<br />

Kingston<br />

Kingston General Hospital<br />

76 Stuart Street<br />

Kingston, ON K7L 2V7<br />

Regional Hemophilia Program<br />

c/o The Blood Bank<br />

Dr. David Lillicrap<br />

Dr. Mariana Silva<br />

Dr. Paula James<br />

Sherry Purcell<br />

Tel: +1 (613) 549 6666 (Ext. 4683)<br />

Fax: +1 (613) 548 1356<br />

81

Canada<br />

London<br />

London Health Sciences Centre<br />

South Western Ontario Regional<br />

Westminster Campus<br />

800 Commissioners Road East<br />

London, ON N6A 4G5<br />

Hemophilia Program Room E4-201<br />

Dr. Lawrence Jardine<br />

Dr. Ian Chin-Yee<br />

Dr. Leonard Minuk<br />

Lori Laudenbach<br />

Tel: +1 (519) 685 8500 (Ext. 53582)<br />

Fax: +1 (519) 685 8477<br />

Pager: +1 (519) 685 8500 (Ext. 15358)<br />

Ottawa<br />

Children’s Hospital of<br />

Eastern Ontario<br />

401 Smyth Road<br />

Ottawa, ON K1H 8L1<br />

Hematology & Bleed Disorder Clinic<br />

Dr. Robert Klaassen<br />

Diane Bissonnette (Nurse)<br />

Tel: +1 (613) 737 7600 (Ext. 2210)<br />

Tel: +1 (613) 737 7600 (Ext. 2368)<br />

Fax: +1 (613) 738 4828<br />

Ottawa Hospital,<br />

General Campus<br />

501 Smyth Road, Box 248<br />

Ottawa, ON K1H 8L6<br />

Regional Comprehensive <strong>Care</strong> Centre<br />

Dr. Allan Tinmouth<br />

Lucy Lacasse (Nurse)<br />

Tel: +1 (613) 737 8899<br />

Tel: +1 (613) 737 8252<br />

Fax: +1 (613) 739 6151<br />

82<br />

Sudbury<br />

Laurentian Site of HRSRH,<br />

41 Ramsey Lake Road<br />

Sudbury, ON P3E 5J1<br />

Sudbury Hemophilia Program<br />

Dr. Kulwant Gill<br />

Betty-Ann Paradis<br />

Tel: +1 (705) 522 2200 (Ext. 3264)<br />

Tel: +1 (705) 671 5155 for Ambulatory <strong>Care</strong><br />

Fax: +1 (705) 523 7077<br />

Thunder Bay<br />

Thunder Bay Regional Health<br />

Services – Ambulatory <strong>Care</strong><br />

980 Oliver Road<br />

Thunder Bay, ON P7B 6V7<br />

Hemophilia Program<br />

Dr. Nicole Laferriere<br />

Karen Roberts<br />

Tel: +1 (807) 684 7251<br />

Fax: +1 (807) 684 5807<br />

Toronto<br />

Hospital for Sick Children<br />

555 University Avenue<br />

Toronto, ON M5G 1X8<br />

Hemophilia Program<br />

Dr. Victor Blanchette<br />

Dr. Manuel Carcao<br />

Ann Marie Stain<br />

Tel: +1 (416) 813 5871<br />

Fax: +1 (416) 813 7221<br />

Pager: +1 (416) 377 9716

St. Michael’s Hospital,<br />

30 Bond Street<br />

Toronto, ON M5B 1W8<br />

Comprehensive Hemophilia <strong>Care</strong> Centre<br />

Dr. Jerry Teitel<br />

Dr. Bernadette Garvey<br />

Georgina Floros<br />

Tel: +1 (416) 864 5129<br />

ER Tel: +1 (416) 864 5431<br />

Fax: +1 (416) 864 5310<br />

Pager: +1 (416) 685 9404 or 9478<br />

PRINCE EDWARD ISLAND<br />

Charlottetown<br />

Queen Elizabeth Hospital<br />

60 Riverside Drive, PO Box 6600<br />

Charlottetown, PEI C1A 8T5<br />

Dept. of Hematology<br />

Dr. Faraz Khan<br />

Dorine Belliveau<br />

Tel: +1 (902) 894 2328<br />

Fax: +1 (902) 894 2415<br />

QUEBEC<br />

Canada<br />

Montréal<br />

Hôpital Ste-Justine<br />

Quebec Reference Centre for Patients<br />

with Inhibitors<br />

3175 Chemin Côte Ste-Catherine<br />

Montréal, PQ H3T 1C5<br />

Tel: +1 (514) 345 2360<br />

Fax: +1 (514) 345 4828<br />

Clinique Du’Hématologie<br />

Dr. Georges Rivard<br />

Claudine Amesse<br />

Claude Meilleur<br />

Tel: +1 (514) 345 4831 (Clinic)<br />

Tel: +1 (514) 345 4931<br />

Tel: +1 (514) 345 4931 (Ext. 6031 Meilleur)<br />

Fax: +1 (514) 345 4828<br />

Montreal Children’s Hospital<br />

2300 Tupper Street<br />

Montréal, PQ H3H 1P3<br />

Regional Hemophilia Centre<br />

Dr. Blair Whittemore<br />

Dr. Margaret Warner<br />

Catherine Sabourin<br />

Tel: +1 (514) 412 4322<br />

Tel: +1 (514) 934 1934 (Ext. 36138 Warner)<br />

Fax: +1 (514) 412 4338<br />

Fax: +1 (514) 843 1721<br />

83

Canada<br />

Québec<br />

Hôpital de l’Enfant Jesus<br />

1401 18ème Rue<br />

Québec, PQ GIJ 1Z4<br />

Centre D’Hémophilie<br />

Dr. Christine Demers<br />

Dr. Cloutier<br />

Hélène Néron<br />

Tel: +1 (418) 649 5624<br />

Fax: +1 (418) 649 5996<br />

Pager: +1 (418) 521 9449<br />

Sherbrooke<br />

CHUS, Hôpital Fleurimont<br />

3001 – 12ème Avenue Nord<br />

Sherbrooke, PQ J1H 5N4<br />

Clinique D’Hémophilie<br />

Dr. Mariette Lepine-Martin<br />

Dr. Josée Brossard<br />

Louisette Baillargeon<br />

Tel: +1 (819) 346 1110 x13147 (Ext.14816)<br />

Fax: +1 (819) 820 6492 or 564 5434<br />

(Hematology)<br />

84<br />

SASKATCHEWAN<br />

Saskatoon<br />

Royal University Hospital<br />

103 Hospital Drive<br />

Saskatoon, SK S7N 0W8<br />

Saskatchewan Bleeding Disorders<br />

Adult Program<br />

Dr. Robert Card<br />

Dr. Brian McSheffrey<br />

Colleen Buehler<br />

Maureen Mills<br />

Tel: +1 (306) 966 7900<br />

Tel: +1 (306) 655 6424<br />

Fax: +1 (306) 966 7955<br />

Fax: +1 (306) 655 6426

Bogota<br />

Liga Colombiana de Hemofilia<br />

Calle 66 No. 15-97<br />

Bogota<br />

Tel: +57 1/5471162<br />

Tel: +57 1/24941419<br />

Hospital de San José<br />

Calle 10 No. 18-75<br />

Bogota<br />

Tel: +57 1/2775573<br />

Tel: +57 1/2470008<br />

Hospital de La Misericordia<br />

Av. Caracas No. 1-13<br />

Bogota<br />

Tel: +57 1/2465849<br />

Tel: +57 1/2468821<br />

Fundación Santa Fe de Bogotá<br />

Calle 119 No. 9-33<br />

Bogota<br />

Tel: +57 1/6290766<br />

Tel: +57 1/2147905<br />

Colombia<br />

Medellin<br />

Hospital Manuel Uribe Angel<br />

Dg. 31 No. 36 A Sur 80<br />

Envigado<br />

Tel: +57 4/3394800<br />

Hospital General de Medellín<br />

Cra. 48 #32-102<br />

Medellin<br />

Tel: +57 4/3847300<br />

Cali<br />

Fundación Valle del Lili<br />

Av. Simon Bolivar Cra. 98, No. 18-19<br />

Cali<br />

Tel: +57 2/3317474<br />

Tel: +57 2/3316724<br />

Centro Medico Imbanaco<br />

Cra. 38A No. 5A-108<br />

Cali<br />

Tel: +57 2/5588355<br />

Barranquilla<br />

Clinica General del Norte<br />

Calle 70 48-35<br />

Barranquilla<br />

Tel: +57 5/3564455<br />

85

Colombia<br />

Cartagena<br />

Clinica Blas de Lezo<br />

Carrt. El Bosque Tr. 54 47-57<br />

Cartagena<br />

Tel: +57 5/6632604<br />

Santa Marta<br />

Clinica La Milagrosa<br />

Calle 22 No.13 A-09<br />

Santa Marta<br />

Tel: +57 5/4217807<br />

Bucaramanga<br />

Fundacion Oftalmologica<br />

de Santander<br />

Autopista Florida<br />

Urb. El Bosque<br />

Bucaramanga<br />

Tel: +57 7/6386000<br />

86

Zagreb<br />

University Hospital Rebro,<br />

<strong>Haemophilia</strong> Centre<br />

Kišpaticstr 12<br />

10 000 Zagreb<br />

Division of Haematology,<br />

Dept of Internal Medicine<br />

Dr. Silva Zupancic-Šalek<br />

Tel: +385 1/23 88 175<br />

Tel: +385 1/23 88 277<br />

Fax: +385 1/33 24 650<br />

National <strong>Haemophilia</strong><br />

Organisation, Croatian<br />

<strong>Haemophilia</strong> Society<br />

Kišpaticstr 12<br />

10 000 Zagreb<br />

President: Tomislav Raguž<br />

Tel: +385 1/34 70 548<br />

Fax: +385 1/33 24 650<br />

Croatia<br />

87

Czech Republic<br />

Brno<br />

University Hospital, Institute<br />

of Clinical Hematology<br />

Jihlavská 20<br />

625 00 Brno – Bohunice<br />

Institute of Hematology<br />

Prof. MUDr. Miroslav Penka, CSc. (Head of<br />

OKH)<br />

email: m.penka@fnbrno.cz<br />

Tel: +420 532 233 063<br />

Children's University Hospital<br />

Brno<br />

Černopolní 9<br />

613 00 Brno<br />

MUDr. Jan Blatný, Ph.D. (Head of Dept. of<br />

Clinical Haematology, Centre for Thrombosis<br />

and Haemostasis, Children's University<br />

Hospital Brno)<br />

email: jblatny@fnbrno.cz<br />

Tel: +420 532 234 244<br />

Hospital České Budějovice<br />

Boženy Němcové 54<br />

370 87 České Budějovice<br />

Department of Hematology<br />

Child Hematology / Child Department<br />

Prim. MUDr. Ivan Vonke, MBA (Head of<br />

Dept. of Clinical Hematology)<br />

email: vonke@nemcb.cz<br />

MUDr. Nadía Seifertova<br />

MUDr. Pavel Timr<br />

MUDr. Yahia Jabali<br />

email: hematologie@nemcb.cz<br />

Tel: +420 387 873 558<br />

88<br />

Pilsen (Plzeň)<br />

Charles University<br />

Hospital Pilsen<br />

Alej Svobody 80<br />

305 99 Plzeň Lochotín<br />

Children Clinics<br />

MUDr. Zdeňka Černá<br />

(Head of Children Department)<br />

Tel: +420 377 104 692<br />

Institute of Clinical Biochemistry<br />

and Hematology<br />

MUDr. Jitka Šlechtova<br />

(Deputy Director for Clinical Hematology)<br />

email: slechtova@fnplzen.cz<br />

Tel: +420 377 104 998<br />

Olomouc<br />

University Hospital<br />

I.P. Pavlova 6<br />

775 20 Olomouc<br />

Hemato-Oncology Department<br />

Prof. MUDr. Karel Indrak, DrSc. (Head of<br />

Hemato-Oncology Department)<br />

email: karel.indrak@fnol.cz<br />

Ass. Prof. MUDr. Tomáš Papajík, CSc.<br />

Tel: +420 588 444 305<br />

Children Hemato-Oncology<br />

Assoc. Prof. MUDr. Dagmar<br />

Pospišilova, Ph.D.<br />

Tel: +420 68/558 442 798

Ostrava<br />

University Hospital<br />

17. Listopadu 1790<br />

708 52 Ostrava – Poruba<br />

Children Hematology<br />

MUDr. Bohumir Blažek<br />

Tel: +420 597 373 631-2<br />

email: bohumir.blazek@fno.cz<br />

Blood Centre<br />

MUDr. Zuzana Čermáková, Ph.D.<br />

(Head of Blood Centre)<br />

Tel: +420 597 374 420<br />

email: zuzana.cermakova@fno.cz<br />

Usti nad Labem<br />

Masaryk Hospital<br />

Sociální péče 12A<br />

401 13 Usti nad Labem<br />

Children Hematology<br />

MUDr. Daniela Prochazkova<br />

Tel: +420 477 112 353<br />

Hematology Department<br />

MUDr. Jiří Libiger<br />

(Head of Hematology Department)<br />

Tel: +420 597 374 420<br />

email: jiri.libiger@mnul.cz<br />

Czech Republic<br />

Liberec<br />

Hospital Liberec<br />

Husova 10, 460 63 Liberec 1<br />

Hematology Department<br />

MUDr. Lenka Walterova<br />

(Head of Hematology Department)<br />

Tel: +420 485 312 591<br />

email: lenka.walterova@nemlib.cz<br />

Hradec Kralove<br />

University Hospital<br />

Sokolska 408<br />

500 05 Hradec Kralove<br />

Hematology/Oncology Department<br />

Assoc. Prof. MUDr. Petr Dulíček, PhD<br />

Prof. MUDr. Jaroslav Maly, CSc.<br />

Tel: +420 495 833 843<br />

Prague<br />

University Hospital Motol<br />

V Uvalu 84<br />

150 06 Praha 5<br />

Children Hematology<br />

MUDr. Vladimir Komrska, CSc.<br />

Tel: +420 224 436 403<br />

email: vladimir.komrska@fnmotol.cz<br />

Institute of Hematology<br />

and Blood Transfusion<br />

U Nemocnice 2094/1<br />

128 02 Praha 2<br />

Clinical Department<br />

MUDr. Peter Salaj<br />

Tel: +420 221 977 284<br />

email: info@uhkt.cz<br />

89

Denmark<br />

Copenhagen (København)<br />

Hæmatologisk klinik 4 –<br />

Rigshospitalet<br />

Afsnit 4222<br />

Blegdamsvej 9<br />

DK-2100 København Ø.<br />

Overlæge Dr. Andrea Landorph<br />

Tel: +45 35 453 545<br />

Århus<br />

Centre for Hæmofiliog<br />

Trombose<br />

Århus Universitetshospital Skejby<br />

Brendstrupgårdsvej 100<br />

DK-8200 Århus<br />

Overlæge Lone Hvitfeldt Poulsen<br />

Tel: +45 89 495 566<br />

90

Quito<br />

Hospital de Especialidades<br />

Eugenio Espejo<br />

Av. Gran Colombia y Yaguachi<br />

Quito<br />

Hematología<br />

Dr. Carlos Carrera<br />

Dr. Patricio Hidalgo<br />

Tel: +593 2/2507 919<br />

Tel: +593 2/2507 925<br />

Mobile: +593 (0)98907690<br />

Guayaquil<br />

Hospital Pediatrico Francisco<br />

Icaza Bustamente<br />

Av. Quito y Calle Gomez Rendon<br />

Guayaquil<br />

Hematología<br />

Dra. Mercy Maldonado<br />

Dr. Jose Suarez<br />

Tel: +593 4/2452 700<br />

Mobile: +593 (0)93017895<br />

Cuenca<br />

Hospital Vicente Corral<br />

Moscoso<br />

Av. 12 de Abril y Paraiso<br />

Cuenca<br />

Hematología<br />

Dr. Miguel Peñafiel<br />

Dr. Jorge Carranza<br />

Tel: +593 7/4096 701<br />

Mobile: +593 (0)982933339<br />

Ecuador<br />

91

Estonia<br />

Tallinn<br />

Tallinn Children’s Hospital<br />

Tervise 28<br />

EE-13419 Tallinn<br />

Dr. Kadri Saks<br />

Tel: +372 697 7242<br />

North Estonia Regional<br />

Hospital<br />

Sütiste Tee 19<br />

EE-13419 Tallinn<br />

Dr. Ines Vaide<br />

Tel: +372 617 2174<br />

Tartu<br />

Tartu University Clinics,<br />

Clinic of Hematology<br />

and Oncology<br />

L. Puusepa 8<br />

EE-50406 Tartu<br />

Dr. Ain Kaare<br />

Dr. Marju Hein<br />

Tel: +372 7/319 562<br />

Tel: +372 7/319 662<br />

92

Helsinki<br />

Helsinki University Central<br />

Hospital<br />

Meilahti Hospital<br />

Haartmaninkatu 4<br />

00290 Helsinki<br />

Dr. Riitta Lassila (Adults)<br />

Tel: +358 09/4711 (Switchboard)<br />

Helsinki University Central<br />

Hospital<br />

Children’s Hospital<br />

Stenbäckinkatu 11<br />

00290 Helsinki<br />

Dr. Anne Mäkipernaa (Children)<br />

Tel: +358 09/4711 (Switchboard)<br />

Kuopio<br />

Kuopio University Hospital<br />

Puijonlaaksontie 2<br />

70210 Kuopio<br />

Dr. Tapio Nousiainen (Adults)<br />

Dr. Pekka Riikonen (Children)<br />

Tel: +358 017/173 311<br />

Oulu<br />

Oulu University Hospital<br />

Kajaanintie 50<br />

90220 Oulu<br />

Dr. Merja Möttönen (Children)<br />

Dr. Timo Siitonen (Adults)<br />

Tel: +358 08/315 2011<br />

Finland<br />

Tampere<br />

Tampere University Hospital<br />

Teiskontie 35<br />

33520 Tampere<br />

Dr. Mikko Arola (Children)<br />

Dr. Outi Laine (Adults)<br />

Tel: +358 03/311 611<br />

Turku<br />

Turku University Central<br />

Hospital<br />

Kiinamyllynkatu 4-8<br />

20520 Turku<br />

Dr. Päivi Lähteenmäki (Children)<br />

Dr. Kari Remes (Adults)<br />

Tel: +358 02/313 0000<br />

93

France<br />

RÉGION PARISIENNE<br />

Paris<br />

Hôpital Necker Enfants Malades<br />

149, rue de Sèvres<br />

75743 Paris Cedex 15<br />

Centre de Traitement de l’Hémophilie<br />

François Josso<br />

Dr. C. Rothschild<br />

Dr. M. F. Torchet<br />

Dr. A. Aouba<br />

Tel: +33 1/44 49 52 73<br />

Hôpital Cochin<br />

27, rue du Faubourg Saint Jacques<br />

75674 Paris Cedex 14<br />

Centre d’Accueil et de Traitement<br />

de l’Hémophilie et des Maladies<br />

Hémorragiques<br />

Dr. N. Stieltjes<br />

Dr. V. Roussel-Robert<br />

Dr. S. Albini<br />

Dr. N. Ounnoughene<br />

Tel: +33 1/58 41 20 13<br />

Fax: +33 1/46 33 97 08<br />

Versailles<br />

Centre Hospitalier de Versailles<br />

2, rue J.L. Forain, B.P. 122<br />

78157 Le Chesnay Cedex<br />

Centre de Traitement des Hémophiles<br />

Dr. J. Peynet<br />

Dr. B. Bastenaire<br />

Dr. E. de Raucourt<br />

Tel: +33 1/39 63 87 45<br />

94<br />

Le Kremlin Bicêtre<br />

Centre Hospitalier de Bicêtre<br />

78, rue Général Leclerc<br />

94275 Le Kremlin Bicêtre Cedex<br />

Centre de Traitement des Hémophilies /<br />

Laboratoire d’Hématologie<br />

Dr. Th. Lambert<br />

Dr. R. D’Oiron<br />

Dr. A. Rafowicz<br />

Tel: +33 1/45 21 21 67 (Jours Ouvrables<br />

09h-17h)<br />

Tel: +33 1/45 21 21 21 (Nuits, Week-end,<br />

Fêtes)<br />

Montmorency<br />

Groupement Hospitalier<br />

Eaubonne-Montmorency<br />

1, rue Jean Moulin<br />

95160 Montmorency<br />

Hôpital Simone Veil<br />

Centre de Traitement des Hémophiles<br />

Dr. A. Hassoun (Pédiatrie)<br />

Dr. M. Smahi (Adultes-Laboratoire de Biologie)<br />

Tel: +33 1/34 06 61 93 (Pédiatrie)<br />

Tel: +33 1/34 06 65 30 (Adultes-Laboratoire<br />

de Biologie)

RÉGION NORD<br />

Lille<br />

Hôpital Cardiologique<br />

Boulevard du Pr Jules Leclercq<br />

59037 Lille Cedex<br />

Centre d’Hémophiles – Laboratoire<br />

d’Hématologie B<br />

Pr. J. Goudemand<br />

Dr. A. Marey<br />

Dr. C. Narboux<br />

Dr. B. Wibaut<br />

Dr. N. Trillot<br />

Tel: +33 3/20 44 48 45<br />

Amiens<br />

C.H.R.U. Hôpital Nord<br />

Place Victor Pauchet, B.P. 3006<br />

80054 Amiens Cedex 1<br />

Laboratoire d’Hématologie, Centre<br />

Régional de Traitement des Hémophiles<br />

Dr. V. Li Thiao Te<br />

Dr. A. L. Voyer (Adultes)<br />

Dr. B. Pautard (Enfants)<br />

Tel: +33 3/22 66 84 55 (Adultes)<br />

Tel: +33 3/22 66 82 72 (Enfants)<br />

RÉGION NORMANDIE<br />

France<br />

Caen<br />

C.H.R.U. Côte de Nâcre<br />

Avenue de la Côte de Nâcre<br />

14033 Caen Cedex<br />

Laboratoire d’Hématologie,<br />

Centre de Traitement de l’Hémophilie<br />

Dr. A. Borel-Derlon<br />

Dr. P. Gautier<br />

Tel: +33 2/31 06 48 49<br />

Rouen<br />

C.H.R.U. Charles Nicolle<br />

1, rue Germont<br />

76031 Rouen<br />

Laboratoire d’Onco-Hématologie<br />

Pédiatrique<br />

Pr. J. P. Vannier<br />

Tel: +33 2/32 88 67 35<br />

Laboratoire d’Hématologie<br />

Dr. J. Y. Borg<br />

Dr. V. Le Cam-Duchez<br />

Dr. P. Chamouni<br />

Tel: +33 2/32 88 81 33<br />

95

France<br />

RÉGION EST<br />

Besançon<br />

C.H.R.U. Jean Minjoz –<br />

Etablissement Français du Sang<br />

de Bourgogne-Franche Comté<br />

Boulevard Fleming<br />

25020 Besançon Cedex<br />

Centre d’Hémophiles<br />

Dr. M. A. Bertrand<br />

Tel: +33 3/81 61 56 84<br />

Tel: +33 3/81 66 84 02 (24h/24 Urgences,<br />

Nuits, Week-end)<br />

Fax: +33 3/81 61 56 60<br />

Mulhouse<br />

Hôpital Hasenrain<br />

87, avenue d’Altkirch<br />

68501 Mulhouse Cedex<br />

Pédiatrie<br />

Dr. M. Peralta<br />

Tel: +33 3/89 64 68 98<br />

Hôpital Emile Muller –<br />

Hémovigilance<br />

20, rue du Dr. René Laënnec<br />

68070 Mulhouse Cedex<br />

Dr. A. Brunot-Ojeda<br />

Tel: +33 3/89 64 77 41 (Urgences)<br />

Tel: +33 3/89 64 67 64<br />

96<br />

Nancy<br />

C.H.U. Nancy – Hôpital d’adultes<br />

de Brabois<br />

Rue Morvan<br />

54511 Vandoeuvre les Nancy<br />

Centre d’Hémophiles – Laboratoire<br />

d’Hématologie<br />

Dr. M. E. Briquel<br />

Dr. E. André<br />

Tel: +33 3/83 15 37 84<br />

Tel: +33 3/83 15 30 30<br />

Reims<br />

C.H.R.U. Robert Debré<br />

Rue Alexis Carrel<br />

51092 Reims<br />

Centre d’Hémophiles – Laboratoire<br />

d’Hématologie<br />

Pr. P. NGuyen<br />

Dr. N. Hezard<br />

Dr. B. Lartigue<br />

Tel: +33 3/26 78 77 89<br />

Tel: +33 3/26 78 78 78<br />

American Mémorial Hospital<br />

47, rue Cognacq Jay<br />

51092 Reims Cedex<br />

Dr. A. M. Munzer<br />

Dr. S. Gorde<br />

Tel: +33 3/26 78 75 16 (Enfants)

Strasbourg<br />

C.H.U. Hôpital de Hautepierre<br />

Avenue Molière<br />

67098 Strasbourg Cedex<br />

Centre d’Hémophiles<br />

Dr. A. Faradji (Onco-Hématologie Adultes)<br />

Pr. P. Lutz (Onco-Pédiatrie)<br />

Tel: +33 3/88 12 71 24 (Onco-Hématologie<br />

Adultes)<br />

Tel: +33 3/88 11 67 68 (Onco-Pédiatrie)<br />

RÉGION SUD-OUEST<br />

France<br />

Bordeaux<br />

C.H.U. Bordeaux Pellegrin<br />

Place Amélie Raba-Léon<br />

33076 Bordeaux Cedex<br />

CRTH – Laboratoire d’Hématologie<br />

Dr. V. Guérin<br />

Dr. M. Micheau<br />

Dr. P. Lauroua<br />

Dr. A. M. Ferrer<br />

Tel: +33 5/56 79 48 79 (9h00-16h30)<br />

Tel: +33 6/82 57 63 56 (Nuits, Week-end,<br />

Jours Fériés)<br />

Toulouse<br />

Pavillon Sénac C.H.R.U. Purpan<br />

Place du Docteur Baylac<br />

31059 Toulouse Cedex<br />

CRTH – Laboratoire d’Hématologie<br />

Dr. S. Claeyssens<br />

Dr. M. F. Thiercelin<br />

Tel: +33 5/61 77 68 18<br />

Tel: +33 5/61 77 68 03<br />

C.H.R.U. Rangueil<br />

1, avenue du Pr Poulhès<br />

31054 Toulouse Cedex<br />

Laboratoire d’Hématologie<br />

Pr. P. Sié<br />

Dr. S. Voisin<br />

Dr. F. Guerrero<br />

Tel: +33 5/61 32 28 17<br />

97

France<br />

RÉGION OUEST<br />

Angers<br />

C.H.R.U. d’Angers<br />

4, rue Larrey<br />

49933 Angers Cedex<br />

Centre de Traitement de l’Hémophilie<br />

Dr. P. Beurrier<br />

Tel: +33 2/41 35 54 53<br />

Brest<br />

Centre Hospitalier Augustin<br />

MORVAN<br />

5, avenue Foch<br />

29268 Brest Cedex<br />

Laboratoire d’Hématologie – Centre de<br />

Traitement de l’Hémophilie<br />

Dr. B. Pan Petesch<br />

Pr. J. F. Abgrall<br />

Tel: +33 2/98 22 36 37<br />

Le Mans<br />

Centre Hospitalier du Mans<br />

194, avenue Rubillard<br />

72037 Le Mans Cedex<br />

Centre d’Hémophiles<br />

Dr. P. Moreau (Médecine Interne)<br />

Dr. O. Pouille (Pédiatrie)<br />

Tel: +33 2/43 43 43 60 (Médecine Interne)<br />

Tel: +33 2/43 43 43 20 (Pédiatrie)<br />

98<br />

Nantes<br />

C.H.U. Hôtel Dieu<br />

30, boulevard Jean Monnet<br />

44093 Nantes Cedex 01<br />

Laboratoire d’Hématologie – Centre de<br />

Traitement de l’Hémophilie<br />

Dr. M. Trossaert<br />

Dr. M. Sigaud<br />

Dr. M. Fouassier<br />

Dr. A. Le François<br />

Dr. C. Ternissien<br />

Tel: +33 2/40 08 74 68<br />

Tel: +33 2/40 08 33 33<br />

Poitiers<br />

C.H.U. La Milétrie<br />

350, avenue Jacques Coeur, BP 577<br />

86021 Poitiers Cedex<br />

Centre de Traitement de l’Hémophilie<br />

Service d’Hémovigilance<br />

Dr. E. Benz-Lemoine<br />

Tel: +33 5/49 44 45 01<br />

Rennes<br />

C.H.U. Pontchaillou<br />

Rue Henri le Guillou<br />

35033 Rennes Cedex<br />

Centre d’Hémophiles – Laboratoire<br />

d’Hématologie<br />

Dr. B. Guillet<br />

Dr. S. Bayard<br />

Dr. P. Gueret<br />

Tel: +33 2/99 28 24 10

Tours<br />

C.H.R.U. Hôpital Trousseau<br />

Route de Loches<br />

37044 Tours Cedex<br />

Centre de Traitement de l’Hémophilie –<br />

Service d’Hématologie Hémostase<br />

Pr. Y. Gruel<br />

Dr. B. Fimbel<br />

Dr. J. B. Valentin<br />

Tel: +33 2/47 47 46 15<br />

Tel: +33 2/47 47 81 20 (Garde)<br />

RÉGION CENTRE<br />

Limoges<br />

Hôpital Mère-Enfant<br />

8, avenue D. Larrey<br />

87042 Limoges Cedex<br />

Centre de Traitement de l’Hémophilie<br />

Dr. C. Oudot<br />

Dr. S. Girault<br />

Tel: +33 5/55 05 68 01<br />

RÉGION BOURGOGNE<br />

France<br />

Dijon<br />

Hôpital du Bocage<br />

2, boulevard de Lattre de Tassigny<br />

21034 Dijon Cedex<br />

Centre d’Hémophiles – Laboratoire<br />

d’Hématologie<br />

Dr. E. De Maistre<br />

Dr. F. Volot<br />

Dr. F. Dutrillaux<br />

Tel: +33 3/80 29 32 57<br />

Nevers<br />

Hôpital de Nevers<br />

1, avenue Colvert<br />

58033 Nevers<br />

Centre d’Hémophiles – ETS<br />

Dr. M. Roche<br />

Tel: +33 3/86 68 37 83<br />

99

France<br />

RÉGION RHÔNE ALPES<br />

Annecy<br />

EFS Rhône-Alpes<br />

La Ravoire<br />

74370 Metz Tessy<br />

Dr. M. Bianchin<br />

Tel: +33 4/50 66 96 96<br />

Chambéry<br />

Centre Hospitalier Général<br />

de Chambéry<br />

7, square Massalaz, B.P 1125<br />

73011 Chambéry<br />

CTH – Hémovigilance<br />

Dr. V. Gay<br />

Tel: +33 4/79 96 61 83<br />

100<br />

Grenoble<br />

C.H.R.U. Hôpital A. Michalon<br />

B.P 217<br />

38043 Grenoble Cedex 9<br />

Centre d’Hémophilie – Laboratoire<br />

d’Hématologie<br />

Pr. B. Polack<br />

Dr. G. Pernod<br />

Dr. C. Barro<br />

Dr. P. Pouzol (Service Hémovigilance)<br />

Tel: +33 4/76 76 54 87<br />

Tel: +33 4/76 76 58 55<br />

(Service Hémovigilance)<br />

Lyon<br />

C.H.R.U. Hôpital Edouard<br />

Herriot<br />

Place d’Arsonval<br />

69437 Lyon Cedex 08<br />

Centre Régional de Traitement<br />

de l’Hémophilie – Pavillon E<br />

Pr. C. Négrier<br />

Dr. A. Lienhart<br />

Dr. S. Meunier<br />

Dr. A. Durin<br />

Tel: +33 4/72 11 73 38<br />

Tel: +33 4/72 11 73 11

Saint-Etienne<br />

C.H.U. Hôpital Nord<br />

Avenue Albert Raimond<br />

42270 St Priest en Jarez<br />

Laboratoire d’Hématologie<br />

Dr. B. Tardy (Adultes)<br />

Tel: +33 4/77 82 83 63<br />

Service de Pédiatrie-Hôpital de jour<br />

Dr. C. Berger (Enfants)<br />

Tel: +33 4/77 82 80 24 (Enfants)<br />

Valence<br />

C.H.G. de Valence<br />

179, Boulevard Maréchal Juin<br />

26953 Valence Cedex 9<br />

Service d’Hémovigilance<br />

Dr. B. Arnuti<br />

Tel: +33 4/75 75 72 42<br />

RÉGION PROVENCE<br />

France<br />

Marseille<br />

C.H.R.U. La Timone<br />

Boulevard Jean Moulin<br />

13385 Marseille Cedex 05<br />

Centre Régional de Traitement<br />

de l’Hémophilie<br />

Pr. H. Chambost (Onco-Hématologie<br />

Pédiatrique)<br />

Dr. C. Falaise (Onco-Hémato-Pédiatrie)<br />

Dr. K. Pouymayou (Laboratoire d’Hémostase)<br />

Tel: +33 4/91 38 67 82<br />

(Onco-Hématologie Pédiatrique)<br />

Tel: +33 4/91 38 67 76<br />

(Laboratoire d’Hémostase)<br />

101

France<br />

RÉGION LANGUEDOC –<br />

ROUSSILLON<br />

Montpellier<br />

C.H.R.U. Hôpital Saint Eloi<br />

80, avenue Augustin Fliche<br />

34295 Montpellier Cedex 5<br />

Centre Régional de Traitement<br />

de l’Hémophilie<br />

Pr. J. F. Schved<br />

Dr. C. Biron-Andréani<br />

Dr. D. Donadio<br />

Dr. R. Navarro<br />

Tel: +33 4/67 33 77 71<br />

Nîmes<br />

C.H.U.<br />

Place du Professeur Robert Debré<br />

30029 Nîmes Cedex<br />

Laboratoire d’Hématologie<br />

Dr. G. Lissalde-Lavigne<br />

Dr. J.C. Gris<br />

Tel: +33 4/66 68 32 11<br />

Osséjà<br />

La Perle Cerdane Unité<br />

de Rééducation<br />

Rue du Carlit<br />

66344 Osséjà Cedex<br />

Fonctionnelle Spécialisée pour<br />

Hémophiles<br />

Dr. G. Dirat<br />

Tel: +33 4/68 30 72 36<br />

102<br />

RÉGION CÔTE D’AZUR<br />

Nice<br />

Hôpital de L’Archet<br />

151, Rte de St. Antoine Ginestière, BP 3079<br />

06202 Nice Cedex 2<br />

Médecine Interne Hématologie –<br />

ARCHET 1<br />

Dr. F. Sanderson<br />

Tel: +33 4/92 03 58 61<br />

Service Pédiatrie – ARCHET 2<br />

Dr. F. Monpoux<br />

Dr. A. Deville<br />

Tel: +33 4/92 03 60 74<br />

RÉGION AUVERGNE<br />

Clermont Ferrand<br />

C.H.U. Estaing<br />

1, Place Lucie Aubrac<br />

63003 Clermont Ferrand Cedex 1<br />

Centre Régional de Traitement<br />

de l’Hémophilie<br />

Dr. A. Marques-Verdier (Adultes)<br />

Dr. V. Cacheux (Adultes)<br />

Dr. P. Gembara (Pédiatrie B)<br />

Dr. E. Doré (Pédiatrie B)<br />

Tel: +33 4/73 75 18 05

CORSE<br />

Ajaccio<br />

Hôpital de la Miséricorde<br />

Avenue de l’Impératrice Eugénie<br />

20000 Ajaccio<br />

Service Pédiatrie – Urgences<br />

Dr. J. B. Fieschi<br />

Tel: +33 4/95 29 90 69<br />

Bastia<br />

Centre Hospitalier Général<br />

Furiani<br />

Route Impériale<br />

20604 Bastia<br />

Service Pédiatrie – Urgences<br />

Dr. O. Pincemaille<br />

Tel: +33 4/95 55 10 27<br />

France<br />

DEPARTEMENTS OUTRE-MER<br />

Guadeloupe<br />

C.H.U. des Abymes<br />

Pointe-à-Pitre<br />

97100 Guadeloupe<br />

Dr. E. Beltan<br />

Tel: +33 590/89 10 10<br />

Martinique/Guyane<br />

C.H.U. La Meynard<br />

BP. 632<br />

97200 Fort de France<br />

Dr. S. Pierre-Louis<br />

Tel: +33 596/60 63 23<br />

La Réunion<br />

Hôpital Félix Guyon<br />

Allée des Topazes<br />

97405 Saint-Denis de la Réunion<br />

Centre d’Hémophiles – Hématologie<br />

Dr. T. Henni<br />

Tel: +33 262/90 53 80<br />

103

Germany<br />

Bautzen<br />

Praxis für Hämatologie und<br />

Internistische Onkologie/<br />

Hämostaseologie<br />

Taucherstraße 26<br />

02625 Bautzen<br />

Frau A. Freidt<br />

Tel: +49 3/591 40 424<br />

Mobile: +49 (0)172 351 2156<br />

Fax: +49 3/591 340 426<br />

Berlin<br />

Vivantes Klinikum im<br />

Friedrichshain<br />

Landsberger Allee 49<br />

10249 Berlin<br />

Zentrum für Gefäßmedizin<br />

Klinik für Innere Medizin<br />

Angiologie und Hämostaseologie<br />

Hämophiliezentrum<br />

Dr. R. Klamroth<br />

Frau Dr. S. Gottstein<br />

Tel: +49 30/130 23 1623<br />

Tel: +49 (0)151 126 08481 (24h-Notfall)<br />

Fax: +49 30/130 23 1313<br />

104<br />

Universitätsmedizin Berlin,<br />

Universitätsklinikum Charité<br />

Campus Charité-Mitte<br />

Institut für Transfusionsmedizin<br />

Gerinnungsambulanz (CCM)<br />

Luisenstraße 11-13<br />

10117 Berlin<br />

PD Dr. J. Koscielny<br />

Dr. U. Kalus<br />

PD Dr. O. Meyer<br />

Tel: +49 30/450 525 157 (Ambulanztermine<br />

13-15 Uhr)<br />

PD Dr. J. Koscielny<br />

Tel: +49 30/450 525 181<br />

Dr. U. Kalus<br />

Tel: +49 30/450 525 126<br />

Tel: +49 30/450 577 044 (Notfall+Hotline)<br />

Fax: +49 30/450 525 913<br />

Charité Campus Virchow-Klinikum<br />

Augustenburger Platz 1<br />

13353 Berlin<br />

Medizinische Klinik mit Schwerpunkt<br />

Hämatologie, Hämostaseologie<br />

und Onkologie<br />

Charité Centrum für Tumormedizin<br />

Charité Comprehensive Cancer Centre<br />

Prof. Dr. H. Riess<br />

Tel: +49 30/450 55 3112<br />

Tel: +49 30/450 55 3013<br />

Mobile: +49 (0)177 242 7483<br />

Fax: +49 30/450 55 3901<br />

Pädiatrie mit Schwerpunkt Onkologie/<br />

Hämatologie Hämophilieambulanz<br />

Frau Dr. S. Holzhauer<br />

Tel: +49 30/450 66 6004<br />

Tel: +49 30/450 66 6215<br />

Fax: +49 30/450 66 6903

Bonn<br />

Universitätsklinikum Bonn<br />

Sigmund-Freud-Straße 25<br />

53127 Bonn<br />

Institut für Experimentelle Hämatologie<br />

und Transfusionsmedizin<br />

Hämophiliezentrum<br />

Prof. Dr. J. Oldenburg<br />

Tel: +49 228/287 5188<br />

Braunschweig<br />

Städtisches Klinikum<br />

Braunschweig gGmbH<br />

Holwedestraße 16<br />

38118 Braunschweig<br />

Klinik für Kinder und Jugendmedizin<br />

Kinderaufnahme<br />

Dr. W. Eberl<br />

Tel: +49 531/595 1325<br />

Tel: +49 531/595 1220 (Pforte)<br />

Bremen<br />

Klinikum Bremen-Mitte gGmbH<br />

St.-Jürgen-Straße 1<br />

28177 Bremen<br />

Prof. Hess-Kinderklinik<br />

Dr. G. Auerswald<br />

Frau Dr. C. Moorthi<br />

Frau Dr. A. Bade<br />

Tel: +49 421/497 5410<br />

Tel: +49 421/497 3655 (Ambulanz)<br />

Tel: +49 (0)176 101 13362 (Notfallhandy)<br />

Fax: +49 421/497 4631<br />

Germany<br />

Chemnitz<br />

Klinikum Chemnitz gGmbH<br />

Krankenhaus Küchwald<br />

Bürgerstraße 2<br />

09113 Chemnitz<br />

Klinik für Innere Medizin III,<br />

Abt. für Hämatologie, Haus 37,<br />

Tagesklinik<br />

Frau Dr. A. Hänel<br />

Tel: +49 371/333 43017<br />

Tel: +49 371/333 43045<br />

Fax: +49 371/333 43047<br />

Klinikum Chemnitz gGmbH<br />

Flemmingstraße 4<br />

09116 Chemnitz<br />

Klinik für Kinder und Jugendmedizin<br />

Abteilung Hämatologie und Onkologie<br />

Dr. A. Hofmann<br />

Tel: +49 371/333 24302<br />

Tel: +49 371/333 24124<br />

Fax: +49 371/333 24102<br />

105

Germany<br />

Cottbus<br />

Hämatologisch-Onkologische<br />

Schwerpunktpraxis<br />

Bahnhofstraße 63<br />

03046 Cottbus<br />

Dr. U. von Grünhagen<br />

Tel: +49 355/797 170<br />

Fax: +49 355/791 454<br />

Carl-Thiem-Klinikum gGmbH<br />

Thiemstraße 111<br />

03048 Cottbus<br />

Klinik für Kinder und Jugendmedizin,<br />

Abt. Hämatologie/Onkologie<br />

Frau Dr. E. Holfeld<br />

Tel: +49 355/462 332<br />

Fax: +49 355/462 176<br />

106<br />

Dresden<br />

Universitätsklinikum<br />

Carl Gustav Carus<br />

Fetscherstraße 74<br />

01307 Dresden<br />

Klinik und Poliklinik für Kinder<br />

und Jugendmedizin, Bereich<br />

Hämatologie/Onkologie<br />

PD Dr. R. Knöfler<br />

Tel: +49 351/458 3487<br />

Tel: +49 351/458 2267<br />

Fax: +49 351/458 5788<br />

Medizinische Klinik und Poliklinik<br />

Hämatologische Ambulanz<br />

PD Dr. U. Platzbecker<br />

Tel: +49 351/458 2583<br />

Tel: +49 351/458 2221<br />

Fax: +49 351/458 4373<br />

Gemeinschaftspraxis<br />

Hämatologie und Onkologie<br />

Arnoldstraße 18<br />

01307 Dresden<br />

PD Dr. H. Wolf<br />

Dr. Th. Wolf<br />

Tel: +49 351/441 9725<br />

Mobile: +49 (0)176 610 13075<br />

Fax: +49 351/441 9726

Duisburg<br />

Gerinnungszentrum<br />

Rhein-Ruhr<br />

Königsstraße 13<br />

47051 Duisburg<br />

Frau Dr. S. Halimeh<br />

Frau Dr. H. Rott<br />

Tel: +49 203/348 3360<br />

Fax: +49 203/348 33636<br />

Düsseldorf<br />

Universitätsklinikum<br />

Düsseldorf<br />

Moorenstraße 5<br />

40225 Düsseldorf<br />

Institut für Hämostaseologie<br />

und Transfusionsmedizin<br />

Prof. Dr. R. Scharf<br />

Frau Dr. B. Bomke<br />

Tel: +49 211/811 7344 (Sekretariat)<br />

Tel: +49 211/811 7105 (Hämophilie-<br />

Ambulanz)<br />

Fax: +49 211/811 6221<br />

Fax: +49 211/811 9563<br />

Kinderklinik, Klinik für Kinder-Onkologie,<br />

Hämatologie und Klinische Immunologie<br />

Dr. H. J. Laws<br />

Dr. S. Weinspach<br />

Tel: +49 211/811 8590<br />

Germany<br />

Erfurt<br />

Helios Klinikum Erfurt<br />

Nordhäuser Straße 74<br />

99089 Erfurt<br />

Klinik für Innere Medizin<br />

Frau Dr. Ch. Schubert<br />

Tel: +49 361/781 72469<br />

Tel: +49 361/781 5290<br />

Fax: +49 361/781 5291<br />

Klinik für Kinder und Jugendmedizin<br />

Prof. Dr. A. Sauerbrey<br />

Tel: +49 361/781 4500<br />

Fax: +49 361/781 4502<br />

Erlangen<br />

Universitätsklinikum Erlangen<br />

Loschgestraße 15<br />

91054 Erlangen<br />

Kinder und Jugendklinik<br />

Prof. Dr. Rascher<br />

Dr. H.G. Topf<br />

Tel: +49 9131/853 3118<br />

Flensburg<br />

Kinderärztliche<br />

Gemeinschaftspraxis<br />

Süderhofenden 12<br />

24937 Flensburg<br />

Dr. P. K. Gildberg<br />

Tel: +49 461/17403<br />

Mobile: +49 (0)175 202 3171<br />

107

Germany<br />

Frankfurt/Main<br />

Klinikum der Johann-Wolfgang-<br />

Goethe-Universität<br />

Theodor-Stern-Kai 7<br />

60590 Frankfurt/Main<br />

Klinik für Kinder und Jugendmedizin III<br />

PD Dr. W. Kreuz<br />

Frau Dr. C. Heller<br />

Frau Dr. C. Escuriola-Ettinghausen<br />

Tel: +49 69/6301 6334<br />

Tel: +49 69/630 6432 (Ambulanz)<br />

Tel: +49 (0)172 617 7000 (Handy 24h)<br />

Fax: +49 69/630 6491<br />

Zentrum der Inneren Medizin<br />

Medizinische Klinik III<br />

Dr. W. Miesbach<br />

Frau Dr. S. Alesci<br />

Tel: +49 69/6301 5051<br />

Tel: +49 69/6301 7410 (24h Notdienst)<br />

Tel: +49 (0)160 476 4572 (Handy 24h)<br />

Fax: +49 69/6301 6738<br />

Praxis und Labor zur<br />

Diagnostik und Therapie von<br />

Blutgerinnungsstörungen<br />

Gartenstraße 134<br />

60596 Frankfurt<br />

Dr. W. Mondorf<br />

Frau Dr. C. Mondorf<br />

Dr. R. Mahnel<br />

Tel: +49 69/605 0130<br />

Tel: +49 (0)172 671 7243 (Handy)<br />

Fax: +49 69/605 01320<br />

108<br />

Frankfurt/Oder<br />

Hämophiliezentrum<br />

Frankfurt/Oder<br />

Am Kleistpark 1<br />

15232 Frankfurt/Oder<br />

Frau Dr. A. Nimtz-Talaska<br />

Tel: +49 335/533 101<br />

Mobile: +49 (0)170 409 7096<br />

Fax: +49 335/537 560<br />

Freiburg<br />

Universitätsklinikum Freiburg<br />

Hugstetter Straße 55<br />

79106 Freiburg<br />

Klinik für Innere Medizin I,<br />

Hämatologie und Onkologie<br />

Dr. J. Heinz<br />

Tel: +49 761/270 3401<br />

Tel: +49 761/270 3749<br />

Tel: +49 761/270 3779<br />

Fax: +49 761/270 3664<br />

Klinische Chemie<br />

Dr. U. Geisen<br />

Tel: +49 761/270 3401<br />

Zentrum für Kinderheilkunde<br />

und Jugendmedizin<br />

Mathildenstraße 1<br />

79106 Freiburg<br />

Klinik 1 - Allgemeine Pädiatrie<br />

Frau Prof. Dr. B. Zieger<br />

Tel: +49 761/270 4300<br />

Fax: +49 761/270 4582

Gießen<br />

Universitätsklinikum Gießen<br />

und Marburg GmbH<br />

Interdisziplinärer Schwerpunkt für<br />

Hämostaseologie<br />

Klinikstraße 36<br />

35392 Gießen<br />

Frau Prof. Dr. B. Kemkes-Matthes<br />

Dr. R. Fischer<br />

Tel: +49 641/99 42 726<br />

Tel: +49 641/99 42 112 (Pforte 24h)<br />

Fax: +49 641/99 42 728<br />

Kinderheilkunde und Jugendmedizin<br />

Pädiatrische Hämatologie<br />

und Onkologie<br />

Feulgenstraße 12<br />

35392 Gießen<br />

Frau Dr. R. Blütters-Sawatzki<br />

Tel: +49 641/99 43 532<br />

Tel: +49 641/99 43 400 (Pforte)<br />

Göttingen<br />

Georg-August-Universität<br />

Göttingen<br />

Robert-Koch-Straße 40<br />

37075 Göttingen<br />

Universitätsklinikum-Kinderklinik,<br />

Abt. Pädiatrie I/Hämatologie und<br />

Onkologie<br />

Prof. Dr. M. Lakomek<br />

Frau Dr. I. Kühnle<br />

Dr. S. Hütker<br />

Tel: +49 551/39 6240<br />

Tel: +49 551/39 6239 (Leitstelle)<br />

Tel: +49 551/39 6202 (Sekretariat)<br />

Fax: +49 551/39 6231<br />

Germany<br />

Greifswald<br />

Internistische Praxis für<br />

Hämatologie und Onkologie<br />

Lange Reihe 89a<br />

17489 Greifswald<br />

Dr. B. Meyer<br />

Tel: +49 3834/509 308<br />

Halle<br />

Martin-Luther-Universität,<br />

Halle-Wittenberg<br />

Ernst-Gruber-Straße 40<br />

06120 Halle<br />

Universitätsklinik und Poliklinik<br />

für Kinder und Jugendmedizin<br />

Frau PD Dr. Ch. Mauz-Körholz<br />

Tel: +49 345/557 2053<br />

Tel: +49 345/557 5860<br />

Fax: +49 345/557 2033<br />

Universitätsklinik und Poliklinik<br />

für Innere Medizin IV<br />

Dr. H.-H. Wolf<br />

Dr. A. Tcherkes<br />

Tel: +49 345/557 2391<br />

Mobile: +49 (0)179 293 7202<br />

Fax: +49 345/557 3359<br />

109

Germany<br />

Hamburg<br />

Universitätsklinikum<br />

Hamburg-Eppendorf<br />

Martinistraße 52<br />

20246 Hamburg<br />

Medizinische Klinik und Poliklinik II,<br />

Abt. Onkologie/Hämatologie,<br />

Gerinnungsambulanz<br />

Frau Dr. B. Eifrig (Oberärztin)<br />

Dr. F. Langer<br />

Frau Dr. K. Holstein<br />

Dr. B. Lentz<br />

Tel: +49 40/7410 52453 (Ambulanz)<br />

Fax: +49 40/7410 55193<br />

Klinik und Poliklinik für Pädiatrische<br />

Hämatologie und Onkologie<br />

Prof. Dr. R. Schneppenheim<br />

Fr. Dr. J. Schrum<br />

Dr. W. Hassenpflug<br />

Tel: +49 40/7410 54270 (Sekretariat)<br />

Tel: +49 40/7410 53796 (Ambulanz)<br />

Tel: +49 40/7410 52725 (Notfallnummer<br />

außerhalb der Dienstzeit)<br />

Fax: +49 40/7410 54601<br />

Onkologische<br />

Schwerpunktpraxis<br />

Ballindamm 3<br />

20095 Hamburg<br />

Dr. K. Verpoort<br />

Dr. W. Zeller<br />

Tel: +49 40/3571 7770<br />

Fax: +49 40/3571 7771<br />

110<br />

Hamm<br />

Evangelisches Krankenhaus<br />

Hamm<br />

Werler Straße 110<br />

59063 Hamm<br />

Medizinische Klinik,<br />

Abt. Hämatologie/Onkologie - Zentrum<br />

für Hämostaseologie<br />

Frau Dr. E. Lange<br />

Tel: +49 2381/589 1902 (Sekretariat)<br />

Fax: +49 2381/589 1905<br />

Tel: +49 2381/5890 (Dr. Lange)

Hannover<br />

Medizinische Hochschule<br />

Hannover<br />

Carl Neuberg Straße 1<br />

30625 Hannover<br />

Medizinische Klinik<br />

Abt. für Hämatologie,<br />

Hämostaseologie, Onkologie und<br />

Stammzelltransplantation<br />

Prof. Dr. A. Ganser<br />

Frau Dr. R. Eisert<br />

Dr. A. Tiede<br />

Tel: +49 511/532 4147 (Ambulanz)<br />

Tel: +49 511/532 2519 (Wochenende und<br />

nachts)<br />

Tel: +49 (0)178 402 4962 (Notfallhandy)<br />

Fax: +49 511/532 4146<br />

Klinik für Kinderheilkunde, Päd.<br />

Hämatologie und Onkologie<br />

Prof. Dr. K-W. Sykora<br />

Frau Dr. C. Wermes<br />

Tel: +49 511/532 3220 (Pforte)<br />

Tel: +49 511/532 3214 (Ambulanz)<br />

Fax: +49 511/532 8215<br />

Werlhof-Institut für<br />

Hämostaseologie GmbH<br />

Schillerstraße 23<br />

30159 Hannover<br />

PD Dr. M. von Depka-Prondzinski<br />

Tel: +49 511/790 0179<br />

Tel: +49 (0)172 892 0180 (Notfallhandy)<br />

Fax: +49 511/790 0180<br />

Germany<br />

Heidelberg<br />

SRH Kurpfalzkrankenhaus<br />

Heidelberg GmbH<br />

Bonhoefferstraße 5<br />

69123 Heidelberg<br />

Innere Medizin, Ambulanz für<br />

Gerinnungsstörungen<br />

Frau Dr. A. Huth-Kühne<br />

Dr. J. Findeklee<br />

Dr. P. Lages<br />

Dr. P. Staritz<br />

Tel: +49 6221/88 4010 (Zentrale 24h)<br />

Tel: +49 6221/88 4004<br />

Fax: +49 6221/88 4087<br />

Homburg/Saar<br />

Universitätsklinikum des<br />

Saarlandes<br />

Kirrbergerstraße<br />

66421 Homburg/Saar<br />

Hämophilie - Zentrum (Erwachsene)<br />

Prof. Dr. H. Eichler<br />

PD Dr. J. Schenk<br />

Dr. J. Groß<br />

Tel: +49 6841/162 2532 (Hämophilie<br />

Ambulanz)<br />

Tel: +49 6841/162 2530 (Sekretariat)<br />

Tel: +49 6841/163 0001 (24h Notdienst)<br />

Fax: +49 6841/162 2555<br />

Hämophilie - Zentrum (Kinder)<br />

Prof. Dr. N. Graf<br />

Frau Dr. S. Heine<br />

Tel: +49 6841/162 8409 (Pädiatrischhämostaseologische<br />

Ambulanz)<br />

Tel: +49 6841/162 8399 (24h Notdienst)<br />

Fax: +49 6841/162 8453<br />

111

Germany<br />

Jena<br />

Universitätsklinikum Jena<br />

Klinik für Kinder und Jugendmedizin<br />

Kochstraße 2<br />

07745 Jena<br />

Dr. K. Kentouche<br />

Tel: +49 3641/938 426 (Hämatologische<br />

Ambulanz)<br />

Tel: +49 3641/938 253<br />

Fax: +49 3641/938 418<br />

Klinik für Innere Medizin II,<br />

KMT Ambulanz<br />

Erlanger Allee 101<br />

07740 Jena<br />

Frau Dr. K. Schilling<br />

Tel: +49 3641/932 4260<br />

Fax: +49 3641/932 4262<br />

Köln<br />

Praxis–Labor für<br />

Transfusionsmedizin<br />

Aachener Straße 313<br />

50931 Köln/Lindenthal<br />

PD Dr. J. Kadar<br />

Tel: +49 221/420 6875<br />

Fax: +49 221/420 6876<br />

Gemeinschaftspraxis<br />

für Onkologie<br />

und Hämatologie<br />

Sachsenring 69<br />

50677 Köln<br />

Dr. K. Severin<br />

Tel: +49 221/931 8220<br />

Mobile: +49 (0)178 204 3413<br />

Fax: +49 221/931 8229<br />

112<br />

Leipzig<br />

Labor Dr. Reising-Ackermann<br />

und Partner<br />

Zentrum für Blutgerinnungsstörungen<br />

Strümpelstraße 40<br />

04289 Leipzig<br />

Frau Dr. U. Scholz<br />

Frau Dr. R. Schobeß<br />

Tel: +49 341/656 5127<br />

Tel: +49 341/656 5745<br />

Mobile: +49 (0)163 765 6510<br />

Fax: +49 341/656 5128<br />

Universitätsklinikum Leipzig<br />

AöR<br />

Universitätsklinik u. Poliklinik<br />

für Kinder und Jugendliche,<br />

Gerinnungssprechstunde<br />

Liebigstraße 20 A<br />

04103 Leipzig<br />

Prof. Dr. H. Lenk<br />

Dr. L. Fischer<br />

Tel: +49 341/972 6246<br />

Tel: +49 341/972 6242<br />

Tel: +49 341/972 6114<br />

Fax: +49 341/972 6099<br />

Zentrum für Innere Medizin; Mediz.<br />

Klinik u. Poliklinik II; Abt. Hämatologie/<br />

Onkologie/Hämostaseologie<br />

Johannisalle 32 A<br />

04103 Leipzig<br />

Frau Dr. L. Braunert<br />

Tel: +49 341/971 2835<br />

Mobile: +49 (0)151 122 34113

Lichtenstein<br />

DRK Krankenhaus Lichtenstein<br />

gGmbH<br />

Hartensteinerstraße 42<br />

09350 Lichtenstein<br />

Klinik für Kinder und Jugendmedizin<br />

Dr. H. Sirb<br />

Tel: +49 37204/32 3082<br />

Tel: +49 37204/32 3090<br />

Fax: +49 37204/32 3081<br />

Fax: +49 37204/32 2023<br />

Lübeck<br />

Universitätsklinikum<br />

Schleswig-Holstein<br />

Campus Lübeck<br />

Ratzeburger Allee 160<br />

23538 Lübeck<br />

I. Medizinische Klinik (Hämatologie/<br />

Onkologie/Hämostaseologie)<br />

Tel: +49 451/500 2668<br />

Tel: +49 451/500 3441<br />

Tel: +49 451/500 6461<br />

Tel: +49 451/500 2352 (24h Notfall)<br />

(Rufdienst)<br />

Kinderärztliche<br />

Gemeinschaftspraxis<br />

Stresemannstraße 9<br />

23564 Lübeck<br />

Dr. S. Gutsche<br />

Tel: +49 451/791 726<br />

Mobile: +49 (0)178 729 6195<br />

Germany<br />

Magdeburg<br />

Schwerpunktpraxis für<br />

Gerinnungsstörungen<br />

und Gefäßkrankheiten<br />

Halberstädterstraße 49<br />

39112 Magdeburg<br />

PD Dr. D. Franke<br />

Tel: +49 391/625 410<br />

Fax: +49 391/625 4116<br />

Universitätsklinikum<br />

Magdeburg<br />

Leipzigerstraße 44<br />

39120 Magdeburg<br />

Universitätskinderklinik Bereich<br />

Pädiatrische Hämatologie<br />

und Onkologie<br />

Dr. V. Aumann<br />

Tel: +49 391/672 4103<br />

Tel: +49 391/672 4233<br />

Fax: +49 391/672 9079<br />

113

Germany<br />

Mainz<br />

Universitätsmedizin Mainz<br />

Langenbeckstraße 1<br />

55131 Mainz<br />

III. Medizinische Klinik<br />

Hämatologische Ambulanz<br />

Frau Prof. Dr. I. Scharrer<br />

Frau Dr. C. von Auer<br />

Tel: +49 6131/176 004<br />

Marburg<br />

Universitätsklinikum Gießen<br />

und Marburg GmbH<br />

Baldingerstraße<br />

35043 Marburg<br />

Interdisziplinärer Schwerpunkt<br />

für Hämostaseologie<br />

Frau Prof. Dr. B. Kemkes-Matthes<br />

Dr. R. Fischer<br />

Tel: +49 6421/586 6283<br />

Tel: +49 6421/586 6282<br />

Tel: +49 6421/586 4491 (24h Dienste)<br />

Fax: +49 6421/586 5655<br />

114<br />

München<br />

Klinikum der Ludwig –<br />

Maximilians-Universität<br />

München<br />

Klinik für Anästhesiologie<br />

Abt. für Transfusionsmedizin<br />

und Hämostaseologie<br />

Ziemssenstraße 1<br />

80336 München<br />

Prof. Dr. W. Schramm<br />

Tel: +49 89/5160 2286<br />

Tel: +49 89/7095 3700 (Großhadern)<br />

Fax: +49 89/7095 2148<br />

Kinder-und Polikinderklinik im<br />

Dr. von Haunerschen Kinderspital<br />

Abt. Hämostaseologie<br />

Lindwurmstraße 4<br />

80337 München<br />

Frau PD Dr. K. Kurnik<br />

Dr. C. Bidlingmaier<br />

Dr. M. Olivieri<br />

Tel: +49 89/5160 2853<br />

Tel: +49 89/5160 2811 (Pforte)<br />

Fax: +49 89/5160 4453

Münster<br />

Ambulanzzentrum<br />

an der Raphaelsklinik<br />

Hämophiliezentrum<br />

Loerstraße 19<br />

48143 Münster<br />

Dr. H. Pollmann<br />

Tel: +49 251/620 4200<br />

Fax: +49 251/620 4216<br />

Universitätsklinikum Münster<br />

Albert-Schweitzer-Straße 33<br />

48149 Münster<br />

Hämophilie-Zentrum (Erwachsene)<br />

Medizinische Klinik A Ebene 05 Ost<br />

Prof. Dr. R. Mesters<br />

Tel: +49 251/834 8012<br />

Tel: +49 251/834 8001 (Pforte Ost -24 STD)<br />

Hämophilie-Zentrum (Kinder)<br />

Pädiatrische Hämatologie/Onkologie<br />

Ebene 15 A West<br />

Tel: +49 251/834 7783<br />

Tel: +49 251/834 8001 (Pforte Ost -24 STD)<br />

Germany<br />

Neubrandenburg<br />

Dietrich Bonhoeffer Klinikum<br />

Neubrandenburg<br />

Salvador-Allende-Straße 30<br />

17039 Neubrandenburg<br />

Klinik für Innere Medizin<br />

Hämophiliezentrum<br />

Dr. B. Berthold<br />

Tel: +49 395/775 2713<br />

Tel: +49 395/775 2711 (Sekretariat)<br />

Fax: +49 395/775 2709<br />

Klinik für Kinder – und Jugendmedizin<br />

Prof. Dr. H-J. Feickert<br />

Tel: +49 395/775 2901<br />

Tel: +49 395/775 2902 (Sekretariat)<br />

Fax: +49 395/775 2903<br />

Nürnberg<br />

Klinikum Nürnberg Süd<br />

Gerinnungsambulanz<br />

Breslauerstraße 201<br />

90471 Nürnberg<br />

Frau Dr. R. Sebiger<br />

Tel: +49 911/398 2939<br />

Tel: +49 911/398 5701<br />

Fax: +49 911/398 5239<br />

Fax: +49 911/398 5711 (außerhalb der<br />

Dienstzeit)<br />

Klinikum Nürnberg Nord<br />

Prof. Ernst-Nathan-Straße 1<br />

90419 Nürnberg<br />

Dr. N. Klier<br />

Tel: +49 911/398 3737<br />

Tel: +49 911/3980 (Pforte)<br />

115

Germany<br />

Potsdam<br />

Klinikum ‘Ernst von Bergmann’<br />

Charlottenstraße 72<br />

14467 Potsdam<br />

Medizinische Klinik Abt. für<br />

Hämatologie und Onkologie<br />

Dr. F. Breywisch<br />

Tel: +49 331/241 6042<br />

Tel: +49 331/241 6051<br />

(Gerinnungssprechstunde)<br />

MVZ für Blut und<br />

Krebserkrankungen<br />

Kurfürstenstraße 20<br />

14467 Potsdam<br />

Dr. G. Günther<br />

Frau Dr. A. Sauer<br />

Frau Dr. A. Gerhardt<br />

Tel: +49 331/505 890<br />

Fax: +49 331/505 8929<br />

Kinderarztpraxis<br />

Konrad-Wolf-Allee 1-3<br />

14480 Potsdam<br />

Frau Dr. B. Schmeltzer<br />

Tel: +49 331/613 325<br />

Fax: +49 331/600 6007<br />

Regensburg<br />

Klinikum der Universität<br />

Regensburg<br />

Franz-Josef-Straße Allee 11<br />

93053 Regensburg<br />

Kinder und Jugendmedizin<br />

Dr. J. Schelling<br />

Tel: +49 941/944 2081<br />

116<br />

Rostock<br />

Universität Rostock<br />

Klinik für Innere Medizin III –<br />

Hämatologie, Onkologie,<br />

Palliativmedizin<br />

Ernst-Heydemann-Straße 6<br />

18057 Rostock<br />

Prof. M. Freund<br />

Dr. M. Leithäuser<br />

Frau E. Respondek-Dryba<br />

Tel: +49 381/494 7421<br />

Tel: +49 381/494 7420<br />

Tel: +49 318/494 7548<br />

Tel: +49 381/494 74269 (Notfall)<br />

Fax: +49 381/494 7422<br />

Klinik für Kinder-und Jugendmedizin-<br />

Onkologie, Hämatologie, Immunologie<br />

Rembrandtstraße 16/17<br />

18057 Rostock<br />

Frau Dr. U. Kyank<br />

Tel: +49 381/494 7255<br />

Tel: +49 381/494 7264<br />

Fax: +49 381/494 7261<br />

Südstadtklinikum<br />

Südring 81<br />

18059 Rostock<br />

Onkologisches Zentrum<br />

Frau Dr. B. Krammer-Steiner<br />

Tel: +49 381/4401 8512<br />

Tel: +49 381/4401 6100 (Sekretariat)<br />

Fax: +49 381/4401 6199

Praxis für Innere Medizin,<br />

Hämatolgie und Intern.<br />

Onkolgie<br />

Trelleborgerstraße 10b<br />

18107 Rostock<br />

Prof. Dr. O. Anders<br />

Frau Dr. P. Bruhn<br />

Tel: +49 381/459 1244<br />

Fax: +49 381/459 1233<br />

Schwerin<br />

Helios Kliniken Schwerin<br />

Wismarschestraße 393-397<br />

19049 Schwerin<br />

Zentrum für Innere Medizin<br />

Abt. Hämatologie und Onkologie<br />

Dr. D. Hähling<br />

Tel: +49 385/520 4430<br />

Tel: +49 385/520 3500 (Sekretariat)<br />

Fax: +49 385/520 4473<br />

Praxis für Kinder<br />

und Jugendmedizin<br />

Goethestraße 63<br />

19053 Schwerin<br />

Dipl. med. R. Schumacher<br />

Tel: +49 385/565 191<br />

Germany<br />

Stadtroda<br />

Asklepios Fachklinikum<br />

Stadtroda<br />

Bahnhofstraße 1A<br />

07646 Stadtroda<br />

Gerinnungsambulanz<br />

PD Dr. G. Syrbe<br />

Tel: +49 36428/561 0 (Telefonzentrale)<br />

Tel: +49 36428/561 486<br />

Fax: +49 36428/561 267<br />

Stuttgart<br />

Olgahospital,<br />

Pädiatrisches Zentrum der<br />

Landeshauptstadt Stuttgart<br />

Bismarckstraße 8<br />

70176 Stuttgart<br />

Klinik für Kinder und Jugendmedizin,<br />

Pädiatrie 5 – Hämatologie-Onkologie<br />

Prof. Dr. S. Bielack<br />

Dr. F. Schilling<br />

Dr. E. Maaß<br />

Tel: +49 711/2787 2740<br />

Tel: +49 711/2787 2510 (Wochenende)<br />

117

Germany<br />

Tübingen<br />

Universitätsklinikum Tübingen<br />

Hoppe-Seyler-Straße 3<br />

72076 Tübingen<br />

Klinik für Kinderheilkunde<br />

und Jugendmedizin –<br />

Pädiatrische Intensivstation<br />

Frau Dr. M. Girisch<br />

Frau Dr. G. Wiegand<br />

Tel: +49 7071/298 5801 (24h Notdienst)<br />

Fax: +49 7071/295 127<br />

Ulm<br />

Universitätsklinikum Ulm<br />

Albert-Einstein-Allee 23<br />

89081 Ulm<br />

Innere Medizin III,<br />

Sektion Hämostaseologie<br />

Frau Dr. S. Struve<br />

Tel: +49 731/455 01<br />

Tel: +49 731/455 01<br />

Tel: +49 731/500 0 (außerhalb der<br />

Dienstzeit)<br />

Fax: +49 731/500 24492<br />

Fax: +49 731/500 26701<br />

118<br />

Wiesbaden<br />

Deutsche Klinik für Diagnostik<br />

Aukammallee 33<br />

Wiesbaden<br />

Abt. Hämostaseologie/<br />

Hämophiliebehandlungszentrum<br />

für Kinder und Erwachsene<br />

PD Dr. C. M. Kirchmaier<br />

Frau Dr. M. Krause<br />

Tel: +49 611/577 452<br />

Tel: +49 611/577 616<br />

Tel: +49 611/5770 (24h)<br />

Mobile: +49 (0)173 305 7148 (Handy)<br />

Würzburg<br />

Universitätsklinikum Würzburg<br />

Kinderklinik und Poliklinik<br />

Josef-Schneider-Straße 2<br />

97080 Würzburg<br />

Dr. A. Sturm<br />

Dr. O. Andres<br />

Frau Dr. V. Wiegering<br />

Tel: +49 931/201 27915<br />

Zentrum Innere Medizin, Institut für<br />

Biochemie u. Pathobiochemie mit<br />

Bereich Zentrallabor<br />

Oberdürrbacher Straße 6<br />

97080 Würzburg<br />

Dr. U. Steigerwald<br />

Dr. K. Brunner<br />

Dr. J. Kößler<br />

Tel: +49 931/201 45911<br />

Tel: +49 931/201 45450 (24h Notdienst)<br />

Fax: +49 931/203 6313

Zwickau<br />

Heinrich-Braun-Klinikum<br />

Zwickau gGmbH<br />

Karl-Keil-Straße 35<br />

08060 Zwickau<br />

Klinik für Innere Medizin III<br />

Frau Dr. U. Kreibich<br />

Tel: +49 375/512 429<br />

Tel: +49 375/512 333<br />

Mobile: +49 (0)173 968 1113<br />

Fax: +49 375/511 505<br />

Germany<br />

119

Greece<br />

Athens<br />

Laikon General Hospital<br />

17 Ag.Thoma Str.<br />

115 27 Goudi, Athens<br />

Comprehensive <strong>Haemophilia</strong> <strong>Care</strong><br />

Centre, 2nd Regional Blood<br />

Transfusion Centre<br />

Dr. Anna Kourampa<br />

Dr. Olga Katsarou (Director)<br />

Tel: +30 210/74 56 204<br />

Tel: +30 210/74 56 794<br />

Fax: +30 210/77 79 774<br />

email: btchemoph@laiko.gr<br />

Ippokrateion General Hospital<br />

114 Vas.Sofias Str.<br />

115 27 Goudi, Athens<br />

1st Regional Blood Transfusion and<br />

<strong>Haemophilia</strong> Centre<br />

Dr. Vassilios Tsevrenis<br />

Dr. George Theodosiadis (Director)<br />

Tel: +30 213/20 88 248<br />

Tel: +30 213/20 88 120<br />

Fax: +30 210/77 02 959<br />

email: gdtheod@hippocratio.gr<br />

Aghia Sofia Children’s Hospital<br />

M. Asias & Thivon Str.<br />

115 27 Goudi, Athens<br />

<strong>Haemophilia</strong>-Haemostasis Unit<br />

Dr. Eleni Pergantou<br />

Dr. Eleni Platokouki (Director)<br />

Tel: +30 213/20 13 756<br />

Tel: +30 213/20 13 768<br />

Fax: +30 210/77 96 405<br />

email: eplatokouki@paidon-agiasofia.gr<br />

120<br />

Thessaloniki<br />

Ippokrateion Hospital of<br />

Thessaloniki<br />

50 A. Papanastasiou & 49<br />

Konstantinoupoleos Str.<br />

546 42 Thessaloniki<br />

<strong>Haemophilia</strong> Centre of Northern Greece<br />

(for Adults)<br />

Dr. Sophie Vakalopoulou<br />

Prof. Vassiliki Garypidou (Director)<br />

Tel: +30 2310/89 20 69<br />

Tel: +30 2310/89 26 49<br />

Fax: +30 2310/89 20 69<br />

email: gariplina@yahoo.gr<br />

<strong>Haemophilia</strong> Centre of Northern Greece<br />

(for Children)<br />

Dr. Marina-Kelly Economou<br />

Prof. Miranta Athanasiou – Metaxa (Director)<br />

Tel: +30 2310/85 71 11<br />

Fax: +30 2310/85 71 11<br />

email: miranda@med.auth.gr

Budapest<br />

State Health Centre<br />

Entrance: Pap Károly u. 1<br />

Róbert Károly krt. 44<br />

Budapest 1134<br />

National <strong>Haemophilia</strong> Centre and<br />

Haemostatis Department<br />

Dr. László Nemes<br />

Dr. Zsuzsanna Szélessy<br />

Dr. Ágnes Róna-Tas<br />

Tel: +36 1/465 1976<br />

Madarász Children Hospital<br />

Madarász Viktor u. 22-24<br />

Budapest 1131<br />

Department of Haematology<br />

Dr. Anikó Marosi<br />

Dr. Marianna Zombori<br />

Tel: +36 1/450 3700 (Ext. 3816)<br />

Szent László Hospital<br />

Gyáli út 5-7<br />

Budapest 1097<br />

Department of Haematology and<br />

Stem-Cell Transplantation<br />

Dr. Imre Bodó<br />

Tel: +36 1/455 8100 (Ext. 8447)<br />

Tel: +36 30/450 4483<br />

Hungary<br />

Békéscsaba<br />

Réthy Pál Hospital<br />

Gyulai út 18<br />

Békéscsaba 5600<br />

Outpatient department of Haematology<br />

Dr. Erzsébet Erdődy<br />

Tel: +36 66/555 531<br />

Debrecen<br />

DEOEC, University of Debrecen,<br />

Medical and Health<br />

Science Centre<br />

Nagyerdei krt. 98<br />

Debrecen 4032<br />

Second Department of Internal<br />

Medicine, Department of<br />

Haemostaseology<br />

Prof. Dr. Zoltán Boda<br />

Dr. Ágota Schlammadinger<br />

Tel: +36 52/255 601<br />

Gy´ór<br />

Regional Blood Transfusion<br />

Centre of Hungarian National<br />

Blood Transfusion Service<br />

Magyar u. 8<br />

Győr 9023<br />

Dr. Katalin Vörös<br />

Tel: +36 96/411 975<br />

121

Hungary<br />

Kaposvár<br />

Kaposvár Blood Blank of<br />

Hungarian National Blood<br />

Transfusion Centre<br />

Tallián Gyula u. 20-34<br />

Kaposvár 7400<br />

Dr. Ildikó Németh<br />

Tel: +36 82/512 146<br />

Kecskemét<br />

Bács-Kiskun County Hospital<br />

Nyíri út 38<br />

Kecskemét 6000<br />

Second Department of Internal Medicine<br />

Dr. Mihály Gurzó<br />

Tel: +36 76/516 700 (Ext. 6711)<br />

Miskolc<br />

Semmelweis Hospital<br />

Csabai kapu 9-11<br />

Miskolc 3529<br />

Second Department of Internal Medicine<br />

Dr. Gáspár Radványi<br />

Tel: +36 46/555 667<br />

Nyíregyháza<br />

Nyíregyháza Blood Bank of<br />

Hungarian National Blood<br />

Transfusion Service<br />

Szent István u. 68<br />

Nyíregyháza 4400<br />

Dr. Erzsébet Fodor<br />

Tel: +36 42/461 169<br />

122<br />

Pécs<br />

University of Pécs,<br />

Medical Faculty<br />

Ifjúság u. 13<br />

Pécs 7624<br />

First Department of Internal Medicine<br />

Dr. Ágnes Nagy<br />

Tel: +36 72/536 000 (Ext. 1323)<br />

Sopron<br />

Sopron Blood Bank of<br />

Hungarian National Blood<br />

Transfusion Service<br />

Gyõri út 15<br />

Sopron 9400<br />

Dr. Judit Őrs<br />

Tel: +36 99/523 147<br />

Szeged<br />

SZTE ÁOK, University of<br />

Szeged, Medical Faculty<br />

Somogyi u. 2<br />

Szeged 6720<br />

Department of Transfusiology<br />

Dr. Klára Vezendi<br />

Tel: +36 62/544 963

Székesfehérvár<br />

Székesfehérvár Blood Bank<br />

of Hungarian National Blood<br />

Transfusion Service<br />

Seregélyesi u. 3<br />

Székesfehérvár 8000<br />

Dr. Zsuzsanna Steiner<br />

Tel: +36 22/535 706<br />

Szolnok<br />

Hetényi Géza County Hospital<br />

Tószegi út 21<br />

Szolnok 5000<br />

First Department of Internal Medicine<br />

Dr. Éva Szabó<br />

Tel: +36 56/503 164<br />

Tel: +36 56/503 165<br />

Szombathely<br />

Szombathely Blood Bank of<br />

Hungarian National Blood<br />

Transfusion Service<br />

Horváth B. krt. 38<br />

Szombathely 9700<br />

Dr. Rita Jáger<br />

Tel: +36 94/515 536<br />

Hungary<br />

Tatabánya<br />

Tatabánya Blood Bank of<br />

Hungarian National Blood<br />

Transfusion Service<br />

Semmelweis u. 2<br />

Tatabánya 2800<br />

Dr. Cecília Bercsényi<br />

Tel: +36 34/323 135<br />

Veszprém<br />

Regional Blood Transfusion<br />

Centre of Hungarian National<br />

Blood Transfusion Service<br />

Mártirok ut. 5<br />

Veszprém 8200<br />

Dr. Mária Gancsev<br />

Dr. Szvetlana Horváth<br />

Tel: +36 88/556 790<br />

Zalaegerszeg<br />

Zalagerszeg Blood Bank of<br />

Hungarian National Blood<br />

Transfusion Service<br />

Zárda u. 4<br />

Zalaegerszeg 8900<br />

Dr. Tímea Dancza<br />

Tel: +36 92/311 436<br />

123

Iceland<br />

Reykjavik<br />

Landspitalinn National<br />

University Hospital<br />

Landspitalinn<br />

101 Reykjavik<br />

[P.O. Box 10<br />

121 Reykjavik]<br />

Dept. of Hematology<br />

Dr. Pall T. Onundarson<br />

Tel: +354/543 1000<br />

124

REPUBLIC OF IRELAND<br />

Dublin<br />

St. James’ Hospital<br />

Dublin 8, Ireland<br />

National Centre for Hereditary<br />

Coagulation Disorders<br />

Dr. James O’Donnell (Director)<br />

Ms. Anne Grogan<br />

(<strong>Haemophilia</strong> Clinical Nurse Manager)<br />

Tel: +353 1/416 2141<br />

Our Lady’s Children’s Hospital<br />

Crumlin<br />

Dublin 12, Ireland<br />

<strong>Haemophilia</strong> Centre<br />

Dr. Beatrice Nolan<br />

(Consultant Haematologist)<br />

Ms. Mary Kavanagh (Paediatric <strong>Haemophilia</strong><br />

Clinical Nurse Specialist)<br />

Ms. Imelda Kelly<br />

Tel: +353 1/409 6913<br />

Ireland<br />

Cork<br />

Cork University Hospital<br />

Wilton<br />

Cork, Ireland<br />

Dr. Susan O’Shea<br />

(Consultant Haematologist)<br />

Ms. Helen Browne<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Ms. Norma Collins<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Ms. Brid Booth-Fleming<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Ms. Anne Marie Ryan-Hall<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Tel: +353 21/454 6400<br />

Tel: +353 21/492 2545<br />

(Consultant’s Secretary)<br />

Ask for “Bleep 719” – <strong>Haemophilia</strong> Clinical<br />

Nurse Specialists<br />

Galway<br />

University College Hospital<br />

Newcastle Road<br />

Galway, Ireland<br />

Dr. Margaret Murray<br />

(Consultant Haematologist)<br />

Prof. Michael O’Dwyer<br />

(Consultant Haematologist)<br />

Dr. Amjed Hyatt<br />

(Consultant Haematologist)<br />

Dr. Patrick O’Dwyer<br />

(Consultant Haematologist)<br />

Ms. Maura Sweeney<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Tel: +353 91/524 222<br />

Ask for “Bleep 673” – <strong>Haemophilia</strong> Clinical<br />

Nurse Specialist<br />

125

Ireland<br />

NORTHERN IRELAND<br />

Belfast<br />

Belfast City Hospital<br />

Lisburn Road, Belfast<br />

BT9 7AB, Northern Ireland<br />

Northern Ireland <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. Gary Benson (Director)<br />

Ms. Colette McAfee<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Ms. Margaret O’Donnell<br />

(<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Tel: +44 28/9026 3737<br />

Royal Belfast Hospital<br />

For Sick Children<br />

180 Falls Road, Belfast<br />

BT12 6BE Northern Ireland<br />

Paediatric Comprehensive <strong>Care</strong> Centre<br />

Dr. Christine Macartney<br />

(Consultant Haematologist)<br />

Ms. Fionnuala Diamond (Paediatric<br />

<strong>Haemophilia</strong> Clinical Nurse Specialist)<br />

Tel: +44 28/9063 2402 (Ward)<br />

Tel: +44 28/9063 3631<br />

(Consultant’s Secretary)<br />

126

Tel-Hashomer<br />

Sheba Medical Centre<br />

Tel-Hashomer<br />

52621 Israel<br />

National Centre for Hemophilia<br />

Prof. Martinowitz Uriel (Head of<br />

Department)<br />

Bashari Dalia Bashari (Head Nurse)<br />

Tel: +972 3/530 2409<br />

Tel: +972 3/530 2120 (24 hours)<br />

Mobile: +972 (0)52 666 7184 (Prof. Uriel)<br />

Mobile: +972 (0)52 666 7187 (Head Nurse)<br />

Fax: +972 3/535 1806<br />

Ramat Efal<br />

Aleh – The Israeli Hemophilia<br />

Association<br />

P.O. Box 9013 Ramat Efal<br />

52190 Israel<br />

Idit Avivi (Executive Director)<br />

Tel: +972 3/903 1444<br />

Mobile: +972 (0)52 388 7000<br />

Fax: +972 3/903 1444<br />

Email: idit@hemophilia.org.il<br />

Israel<br />

127

Italy<br />

Alessandria<br />

Azienda Ospedaliera<br />

“Santi Antonio e Biagio<br />

e Cesare Arrigo”<br />

Via Venezia, 16<br />

15100 Alessandria<br />

Dipartimento di Ematologia<br />

Dr.ssa Laura Contino<br />

Dr. Santi Roberto<br />

Tel: +39 0131/206 972<br />

Fax: +39 0131/206 859<br />

email: lcontino@ospedale.al.it<br />

email: rsanti@ospedale.al.it<br />

email: emostasi@ospedale.al.it<br />

Arezzo<br />

Ospedale San Donato<br />

Cap Via Pietro Nenni, 8<br />

52100 Arezzo<br />

Sezione di Ematologia<br />

Dr.ssa Arianna Accorsi<br />

Tel: +39 0575/2551<br />

email: a.accorsi@usl8.toscana.it<br />

128<br />

Bari<br />

Azienda Ospedaliera<br />

Policlinico Bari<br />

Piazza Giulio Cesare, 11<br />

70124 Bari<br />

Centro Emofilia – Policlinico<br />

Dr. Cosimo Ettorre<br />

Dr. Renato Marino<br />

Dr. Giuseppe Malcangi<br />

Tel: +39 080/559 4028<br />

Tel: +39 080/559 2129<br />

Fax: +39 080/559 3113<br />

email: cosimo.ettorre@policlinico.ba.it<br />

email: emocoag@cimedoc.uniba.it<br />

Medicina Interna Universitaria<br />

“Cesare Frugoni”<br />

Dr. F. A. Scaraggi<br />

Tel: +39 080/559 2788<br />

Tel: +39 080/559 3073<br />

email: a.scaraggi@hemoph.uniba.it<br />

Bologna<br />

Policlinico S. Orsola-Malpighi<br />

Via Pietro Albertoni, 15<br />

40138 Bologna<br />

Servizio di Angiologia e Malattie<br />

della Coagulazione<br />

Prof. G. Palareti<br />

Dr.ssa Giuseppina Rodorigo<br />

Dr.ssa Leila Valdre’<br />

Tel: +39 051/636 2694<br />

Tel: +39 051/636 2537<br />

email: grodorigo@aosp.bo.it<br />

email: dhmalattiemorragiche@orsolamalpighi.med.unibo.it

Bolzano<br />

Ospedale San Maurizio,<br />

Divisione Ematologia<br />

Via Boehler, 5<br />

39100 Bolzano<br />

Ambulatorio Malattie Emorragiche<br />

e Trombotiche<br />

Dr. A. Billio<br />

Dr. Pescosta<br />

Dr. Amadii<br />

Tel: +39 0471/908 111<br />

Tel: +39 0471/908 388<br />

Tel: +39 0471/908 309<br />

Fax: +39 0471/908 382<br />

email: abilio@hotmail.com<br />

Brescia<br />

Azienda Ospedaliera<br />

“Spedali Civili di Brescia”<br />

P. le Spedali Civili, 1<br />

25123 Brescia<br />

Dipartimento di Oncoematologia<br />

Pediatrica<br />

Prof. Alessandro Plebani<br />

Dr.ssa Lucia Notarangelo (Responsabile<br />

Centro Emofilia)<br />

Tel: +39 030/399 5711<br />

Tel: +39 030/399 6288<br />

Tel: +39 030/399 5705<br />

Fax: +39 030/399 5041<br />

email: lucinot@tin.it<br />

Dipartimento di Ematologia<br />

Dr. Giuseppe Rossi (Primario)<br />

Dr.ssa Chiara Remiddi (Emofilia)<br />

Tel: +39 030/399 5438<br />

Tel: +39 030/399 6747<br />

Tel: +39 030/399 6569<br />

Cagliari<br />

Ospedali Riuniti<br />

Via Jenner<br />

09100 Cagliari<br />

Ospedale Microcitemico<br />

Centro Emofilia<br />

Dr. Roberto Targhetta<br />

Dr.ssa Brigida Aru<br />

Tel: +39 070/609 5537<br />

Tel: +39 650/659 686<br />

Fax: +39 070/609 5540<br />

email: targhetta@tiscalinet.it<br />

email: ab.aru@altavista.it<br />

Italy<br />

Castelfranco Veneto<br />

Centro Malattie del Sangue –<br />

Ospedale di Castelfranco<br />

Veneto<br />

Via Ospedale, 18<br />

31033 Castelfranco Veneto (TV)<br />

Centro Emofilia “Emilio Tosatti”<br />

Servizio Transfusionale<br />

Dr. Giuseppe Tagariello<br />

Dr. Paolo Radossi<br />

Tel: +39 0423/732 336<br />

Tel: +39 0423/732 341 (Anche<br />

Servizio Notturno)<br />

Fax: +39 0423/732 346<br />

email: tagariello@ulssasolo.ven.it<br />

129

Italy<br />

Catania<br />

Ospedale Ferrarotto –<br />

Università di Catania<br />

Via S. Citelli, 6<br />

95124 Catania<br />

Clinicizzata di Ematologia<br />

Dr. R. Musso<br />

Dr.ssa D. Cultrera<br />

Tel: +39 095/743 6275<br />

Tel: +39 095/743 5912<br />

Tel: +39 095/743 6278<br />

Fax: +39 095/365 174<br />

email: rmusso.ematol@tiscalinet.it<br />

email: talassemia@ao-ve.it<br />

Catanzaro<br />

Azienda Ospedaliera<br />

“Pugliese-Ciaccio”<br />

Viale S. Pio X<br />

88100 Catanzaro<br />

Centro Emofilia, Servizio Emostasi<br />

Dr.ssa Rita Santoro<br />

Dr. P. Iannaccaro<br />

Tel: +39 0961/883 296<br />

Tel: +39 0961/883 092<br />

email: ritasant@interfree.it<br />

email: centroemofilia@aocatanzaro.it<br />

130<br />

Cesena (FO)<br />

Ospedale Bufalini<br />

Viale Ghirotti, 286<br />

47023 Cesena (FO)<br />

Centro Emofilia Medicina Trasfusionale<br />

Dr.ssa C. Biasoli<br />

Tel: +39 0547/352 920<br />

Tel: +39 0547/352 927<br />

Fax: +39 0547/352 924<br />

email: sit@ausl-cesena.emr.it<br />

Cosenza<br />

Ospedale Annunziata<br />

Via Migliori, 1<br />

87100 Cosenza<br />

Centro Emostasi e Trombosi<br />

Dr.ssa Vincenza Rossi<br />

Dr.ssa Filomena Daniele<br />

Dr.ssa Caterina Santoro<br />

Tel: +39 0984/681 501<br />

Tel: +39 0984/681 249<br />

email: fildaniele@libero.it

Ferrara<br />

Azienda Ospedaliero-<br />

Universitaria – Arcispedale<br />

S.Anna<br />

Corso Giovecca, 203<br />

44100 Ferrara<br />

Centro Studi Emostasi e Trombosi –<br />

Servizio di Fisiopatologia della<br />

Coagulazione<br />

Prof. Scapoli<br />

Dr. S. Moratelli<br />

Dr.ssa M. L. Serino<br />

Tel: +39 0532/237 290<br />

Tel: +39 0532/237 291<br />

Fax: +39 0532/209 010<br />

Fax: +39 0532/237 496<br />

email: scpglg@unife.it<br />

email: emotromb@yahoo.it<br />

Firenze<br />

Azienda Ospedaliera <strong>Care</strong>ggi<br />

Viale Morgagni, 85<br />

50134 Firenze<br />

Centro Emofilia<br />

Prof. M. Morfini<br />

Dr.ssa Silvia Linari<br />

Tel: +39 055/427 7587<br />

Tel: +39 055/427 7032<br />

Fax: +39 055/427 7794<br />

email: m.morfini@dfc.unifi.it<br />

email: segreteriace@dfc.unifi.it<br />

Italy<br />

Genova<br />

Instituto Scientifico<br />

Giannina Gaslini<br />

Largo Gaslini, 5<br />

16148 Genova<br />

Centro Emofilia, Reparto di<br />

Ematologia e Oncologia Pediatrica<br />

Dott. Claudio Molinari<br />

Tel: +39 010/563 6590<br />

Tel: +39 010/563 6421<br />

Tel: +39 010/563 6204<br />

Fax: +39 010/563 6286<br />

email: aclaudiomolinari@ospedalegaslini.ge.it<br />

email: ped4-dh@ospedale-gaslini.ge.it<br />

email: ped4.pohematol@ospedalegaslini.ge.it<br />

Ivrea<br />

Ospedale Civile Di Ivrea<br />

Piazza Credenza, 2<br />

10015 Ivrea (TO)<br />

Centro Trasfusionale<br />

Dr. Mauro Girotto<br />

Dr.ssa Grazia Delios<br />

Dr. Berardino Pollio<br />

Tel: +39 0125/414 389<br />

email: trasfusionale@asl.ivrea.to.it<br />

131

Italy<br />

L’Aquila<br />

Ospedale Civile San Salvatore<br />

Via Vetoio, 1<br />

67100 Coppito (AQ)<br />

Centro Emofilia e Trombosi Ematologia<br />

Prof. Gugliemo Mariani<br />

Dr.ssa Maria Santa Napolitano<br />

Tel: +39 0862/368 343<br />

Fax: +39 0862/368 761<br />

email: emofilia.aq@cc.univaq.it<br />

email: gmariani@cc.univaq.it<br />

Latina<br />

Ospedale Santa Maria Goretti<br />

Via Antonio Canova, 2<br />

04100 Latina<br />

Unità Operativa di Ematologia<br />

Dr. Carlo Ciabatta<br />

Dr.ssa Raffaella Marzano<br />

Tel: +39 0773/655 710<br />

Tel: +39 0773/655 064<br />

Tel: +39 0773/655 815<br />

Fax: +39 0773/655 718<br />

email: ematolt@tin.it<br />

email: emato@online.latina.it<br />

email: carlociabatta@libero.it<br />

email: asllat.emofilia@libero.it<br />

132<br />

Lecce<br />

Presidio Ospedale Ignazio<br />

Veris Delli Ponti<br />

Via delli Ponti<br />

73020 Scorrano<br />

Centro Emofilia e Trombosi U.O<br />

Medicina Interna<br />

Dr. Mario Schiavoni<br />

Dr.ssa Coluccia<br />

Tel: +39 0836/420 523<br />

email: marioschiavoni@gmail.com<br />

Macerata<br />

Ospedale Civile Macerata<br />

Piazza Santa Lucia, 2<br />

62100 Macerata<br />

Centro Emofilia<br />

Dr.ssa M.T. Carloni<br />

Dr.ssa Isabella Cantori<br />

Tel: +39 0733/257 331<br />

Tel: +39 0733/257 475<br />

Fax: +39 0733/257 232<br />

email: mtcarloni@asl9.marche.it

Milano<br />

Fondazione IRCCS Ca’ Granda –<br />

Ospedale Maggiore Policlinico<br />

Via Pace, 9<br />

20122 Milano<br />

Centro Emofilia e Trombosi<br />

Angelo Bianchi Bonomi<br />

Prof. Piermannuccio Mannucci<br />

Dr.ssa Elena Santagostino<br />

Dr.ssa Maria Elisa Mancuso<br />

Tel: +39 02/5503 5328<br />

Tel: +39 02/5503 5423<br />

Fax: +39 02/551 6093<br />

Fax: +39 02/545 7074<br />

email: pier.mannuccio.mannucci@unimi.it<br />

email: e_santagostino@hotmail.com<br />

email: hemophilia_ctr@policlinico.mi.it<br />

email: hemophilia_ctr@polic.cilea.it<br />

Azienda Ospedaliera Niguarda<br />

Cá Granda<br />

Piazza Ospedale Maggiore, 3<br />

20162 Milano<br />

Divisione Ematologia – Servizio<br />

Emostasi e Trombosi<br />

Dr.ssa Maria Teresa Caimi<br />

Dr. Mauro Mostarda<br />

Tel: +39 02/6444 2451<br />

Tel: +39 02/6444 2970<br />

Fax: +39 02/6444 2033<br />

Fax: +39 02/6444 3948<br />

email: teresa.caimi@ospedaleniguarda.it<br />

Italy<br />

Modena<br />

Ospedale Policlinico<br />

Via del Pozzo, 71<br />

41100 Modena<br />

Centro Emofilia – Divisione<br />

di Ematologia<br />

Dr. Marco Marietta<br />

Tel: +39 059/422 4640<br />

Fax: +39 059/424 549<br />

email: marietta@unimo.it<br />

email: mariett.m@policlinico.mo.it<br />

Naples (Napoli)<br />

Ospedale San Giovanni Bosco<br />

Via Fillipo Maria Briganti, 255<br />

80144 Capodichino Napoli<br />

Centro Emofilia e Trombosi –<br />

Centro delle Microcitemie<br />

Divisione Ematologia<br />

Dr.ssa Angiola Rocino<br />

Tel: +39 081/254 5299<br />

Tel: +39 081/254 5343<br />

Tel: +39 081/254 302<br />

Fax: +39 081/254 5301<br />

email: angiolar@tin.it<br />

133

Italy<br />

Naples (Napoli)<br />

Policlinico Universitàrio<br />

Federico II<br />

Via S. Pansini, 5 – Edificio 1<br />

80131 Napoli<br />

Centro per le Emocoagulopatie<br />

e l’Emofilia<br />

Prof. Giovanni Di Minno<br />

Dott. Antonio Coppola<br />

Dr.ssa Anna Maria Cerbone<br />

Tel: +39 081/743 2317<br />

Tel: +39 081/746 2060<br />

Fax: +39 081/546 6152<br />

Fax: +39 081/746 2060<br />

email: diminno@unina.it<br />

email: antocopp@unina.it<br />

email: ancerbon@unina.it<br />

Orvieto<br />

Ospedale di Orvieto<br />

Località Cigonia<br />

05018 Orvieto<br />

Divisione di Medicina Generale –<br />

Centro Emofilia<br />

Dr. Mauro Berrettini<br />

Tel: +39 0763/307 229<br />

Tel: +39 0763/307 274<br />

Fax: +39 0763/307 395<br />

email: umuhhbe@tin.it<br />

134<br />

Padova<br />

Ospedale Civile di Padova –<br />

Clinica Medica II<br />

Via Giustiniani, 2<br />

35100 Padova<br />

Centro Emofilia<br />

Dr. Ezio Zanon<br />

Tel: +39 049/821 2660<br />

email: ezio.zanon@unipd.it<br />

Palermo<br />

Ospedale dei Bambini<br />

“G. Di Cristina”<br />

Via Benedettini, 1<br />

90134 Palermo<br />

Clinica Pediatrica, Centro Emofilia<br />

Dr. Fabio Gagliano<br />

Tel: +39 091/6666 129<br />

Tel: +39 091/6666 014<br />

Tel: +39 091/6666 354<br />

Fax: +39 091/421 630<br />

Fax: +39 091/682 213<br />

email: fabiogagliano@tele2.it<br />

email: fabio.gagliano@poste.it<br />

Università Palermo<br />

Via Del Vespro, 129<br />

90144 Palermo<br />

Cattedra di Ematologia Az.<br />

Ospedaliera Policlinico<br />

Prof. Sergio Siragusa<br />

Dr.ssa Alessandra Malato<br />

Tel: +39 091/655 4400<br />

Tel: +39 091/655 4431<br />

Fax: +39 091/655 4402<br />

email: sergio.siragusa@tiscali.it

Parma<br />

Azienda Ospedaliera di Parma<br />

Via Antonio Gramsci, 14<br />

43100 Parma<br />

Centro Emostasi e Cura dell’Emofilia –<br />

Divisione Medica, Malattie Metaboliche<br />

e Vascolari<br />

Dr.ssa Annarita Tagliaferri<br />

Dr.ssa Franca Rivolta<br />

Tel: +39 0521/703 971<br />

Tel: +39 0521/702 233<br />

Tel: +39 0521/702 239<br />

Tel: +39 0521/702 264<br />

Tel: +39 0521/702 084<br />

Fax: +39 0521/702 256<br />

email: atagliaferri@ao.pr.it<br />

email: grivolta@ao.pr.it<br />

Pavia<br />

Fondazione I.R.C.C.S. Policlinico<br />

“San Matteo”<br />

Piazzale Golgi, 2<br />

27100 Pavia<br />

Centro Emofilia e Coagulopatie<br />

Congenite, Clinica medica III<br />

Prof.ssa Gabriella Gamba<br />

Tel: +39 0382/502 748<br />

Tel: +39 0382/502 174<br />

Fax: +39 0382/502 560<br />

Fax: +39 0382/526 223<br />

email: gamba@smatteo.pv.it<br />

Italy<br />

Perugia<br />

Policlinico Universitario<br />

di Perugia<br />

Via E. dal Pozzo, 1<br />

06126 Perugia<br />

Centro Emofilia Sezione di Medicina<br />

Interna e Cardiovascolare<br />

Dr. Alfonso Iorio<br />

Dr.ssa Emanuela Marchesini<br />

Tel: +39 075/572 2905<br />

Tel: +39 075/573 0855<br />

Tel: +39 075/578 3898<br />

Fax: +39 075/572 2011<br />

email: iorioa@unipg.it<br />

Pescara<br />

Ospedale Civile dello<br />

Spirito Santo<br />

Via Fonte Romana, 8<br />

65125 Pescara<br />

Dipartimento di Ematologia,<br />

Azienda USL 105<br />

Dr. Alfredo Dragani<br />

Tel: +39 085/425 2501<br />

Tel: +39 085/425 2489<br />

Tel: +39 085/425 2971<br />

email: aldragani@tin.it<br />

email: ematologia.emostasi@ausl.pe.it<br />

135

Italy<br />

Piacenza<br />

Ospedale Civile<br />

Via Taverna, 49<br />

29100 Piacenza<br />

Centro Emofilia – Serv. Immunologia<br />

e Trasfusione<br />

Dr.ssa Maria Cristina Arbasi<br />

Tel: +39 0523/337 970<br />

Tel: +39 0523/302 361<br />

email: m.arbasi@ausl.pc.it<br />

Pisa<br />

Clinica Universitaria<br />

Santa Chiara<br />

Via Roma, 67<br />

56100 Pisa<br />

Reparto di Oncoematologia Pediatrica<br />

Dott. Claudio Favre<br />

Dott.ssa Margherita Nardi<br />

Dott.ssa Sheila Bernasconi<br />

Tel: +39 050/993 427<br />

email: c.favre@med.unipi.it<br />

email: s.bernasconi@ao-pisa.toscana.it<br />

Ravenna<br />

Presidio Ospedale di Ravenna<br />

Viale Randi, 5<br />

48100 Ravenna<br />

Centro Emofilia, Medicina Trasfusionale<br />

Dr.ssa Silvia Macchi<br />

Tel: +39 0544/285 524<br />

Tel: +39 0544/285 575<br />

Fax: +39 0544/285 751<br />

email: ra.transfusionale@ausl.ra.it<br />

136<br />

Reggio Calabria<br />

Azienda Opedaliera<br />

“Bianchi Melacrino Morelli”<br />

Via Melacrino<br />

89127 Reggio Calabria<br />

Centro Emofilia, Servizio Emostasi<br />

e Trombosi – Divisione Ematologia<br />

Dr.ssa Caterina Latella<br />

Dr. Gianluca Sottilotta<br />

Dott. Vincenzo Oriana<br />

Tel: +39 0965/397 615<br />

Tel: +39 0965/397 619<br />

Tel: +39 0965/397 620<br />

Tel: +39 0965/397 111<br />

Fax: +39 0965/397 913<br />

Fax: +39 0965/397 620<br />

Reggio Emilia<br />

Arcispedale Santa Maria Nuova<br />

Viale Umberto I, 50<br />

42100 Reggio Emilia<br />

Centro Emostasi e Trombosi,<br />

Dipartimento Area Medica I<br />

Prof. Marco D’Incà<br />

Dr. Angelo Ghirarduzzi<br />

Tel: +39 0522/296 876<br />

Tel: +39 0522/295 916<br />

Tel: +39 0522/296 622<br />

Tel: +39 0522/296 535<br />

Fax: +39 0522/296 853<br />

email: dinca.marco@asmn.re.it<br />

email: ghirarduzzi.angelo@asmn.re.it

Roma<br />

Ospedale Pediatrico<br />

Bambin Gesù<br />

Piazza S. Onofrio 4<br />

00165 Roma<br />

Divisione di Ematologia Servizio<br />

Emostasi e Trombosi<br />

Prof. Locatelli<br />

Dr. Matteo Luciani<br />

Tel: +39 06/6859 2392<br />

Tel: +39 06/6859 2129<br />

Tel: +39 06/6859 2391<br />

Fax: +39 06/6859 2292<br />

email: luciani@opbg.net<br />

Università la Sapienza<br />

Via Benevento, 6<br />

00161 Roma<br />

Ematologia Dipartimento<br />

Biotecnologie Cellulari ed Ematologia<br />

Prof.ssa Maria Gabriella Mazzucconi<br />

Dr.ssa Francesca Biondo<br />

Dr.ssa Erminia Baldacci<br />

Tel: +39 06/857 951<br />

Tel: +39 06/857 954<br />

Tel: +39 06/857 952<br />

Fax: +39 06/4424 1984<br />

email: mazzucconi@bce.med.uniroma1.it<br />

Italy<br />

Policlinico Universitario Gemelli<br />

Largo A. Gemelli, 8<br />

00168 Roma<br />

Servizio Malattie Emorragiche<br />

e Trombotiche<br />

Prof. Raffaele Landolfi<br />

Dr. Raimondo De Cristofaro<br />

Dr.ssa Ilaria Lazzareschi<br />

Tel: +39 06/3015 4438<br />

Tel: +39 06/3015 5915<br />

Fax: +39 06/3015 5915<br />

Fax: +39 06/3015 7968<br />

email: rlandolfi@rm.unicatt.it<br />

email: rdecristofaro@rm.unicatt.it<br />

Sassari<br />

Ospedale SS Annunziata – ASL 1,<br />

Presidio per I Difetti Ereditari<br />

della Coagulazione<br />

Via E. De Nicola<br />

07100 Sassari<br />

Servizio Malattie della Coagulazione,<br />

Centro Emofilia e Trombosi<br />

Dr. Gavino Piseddu<br />

Dr.ssa Lucia Anna Mameli<br />

Dr.ssa Nicolina Ardu<br />

Tel: +39 079/206 1518<br />

Tel: +39 079/206 1000<br />

Tel: +39 079/206 1082<br />

Fax: +39 079/206 1518<br />

email: gavinopiseddu@tiscalinet.it<br />

email: emofilia.trombosi@asl1.ss.it<br />

137

Italy<br />

Torino<br />

Azienda Ospedaliera “Ospedale<br />

Infantile Regina Margherita –<br />

Santa Anna”<br />

Piazza Polonia 94<br />

10126 Torino<br />

Centro Emofilia, Centro di Referimento<br />

per le Malattie Emorragiche e<br />

Trombotiche Ereditarie in età Pediatrica<br />

Dr.ssa Maria Messina<br />

Tel: +39 011/313 5215<br />

Tel: +39 011/313 5652<br />

Tel: +39 011/313 5653<br />

Fax: +39 011/313 5589<br />

Fax: +39 011/313 5595<br />

email: maria.messina@oirmsantanna.<br />

piemonte.it<br />

Azienda Ospedaliero<br />

Universitaria Molinette<br />

“San Giovanni Battista<br />

di Torino”<br />

Corso Bramante, 88<br />

10126 Torino<br />

Centro di Riferimento per le Malattie<br />

Emorragiche e Trombotiche Ereditarie<br />

dei Pazienti Adulti – Ematologia<br />

Dr.ssa Piercarla Schinco<br />

Dr.ssa Eloise Beggiato<br />

D.ssa Alessandra Borchiellini<br />

Tel: +39 011/633 6729<br />

Tel: +39 011/633 6685<br />

Fax: +39 011/633 6729<br />

email: pcschinco@hotmail.com<br />

email: ebeggiato@hotmail.com<br />

email: alesandre@libero.it<br />

138<br />

Trento<br />

Ospedale di Trento Santa Chiara<br />

Largo Medaglie d’Oro, 9<br />

38100 Trento<br />

Centro Emofilia Servizio di<br />

Immunoematologia e Trasfusionale<br />

Dr.ssa Gina Rossetti<br />

Tel: +39 0461/903 388<br />

Tel: +39 0461/903 204<br />

Tel: +39 0461/903 086<br />

Tel: +39 0461/902 477<br />

Fax: +39 0461/903 554<br />

email: rossetti@tn.apss.tn.it<br />

Udine<br />

Azienda Ospedaliera S. Maria<br />

della Misericordia<br />

Piazza della Misericordia, 13<br />

33100 Udine<br />

Immunoematologia e Medicina<br />

Trasfusionale, Centro Emofilia<br />

Dr. Giovanni Barillari<br />

Dr.ssa Marina Turello<br />

Tel: +39 0432/5521 (Centralino)<br />

Tel: +39 0432/552 341<br />

Tel: +39 0432/552 345<br />

Fax: +39 079/552 342<br />

email: barillari.giovanni@aoud.sanita.fvg.it<br />

email: medici.trasfusionale@aoud.sanita.fvg.it

Vallo Lucania<br />

Ospedale S. Luca – USL 59<br />

Via F. Cammarota<br />

84078 Vallo della Lucania (SA)<br />

Servizio di Immunoematologia e<br />

Trasfusione – Centro Regionale<br />

per le Coagulopatie<br />

Dr. Giulio Feola<br />

Tel: +39 0974/750 50<br />

Tel: +39 0974/750 20<br />

Tel: +39 0974/711 258<br />

Fax: +39 0974/750 20<br />

email: feolag@speme.com<br />

email: a.cat@speme.com<br />

Verona<br />

Ospedale Policlinico/Azienda<br />

Osp. VR<br />

Piazzale L. A. Scuro, 10<br />

37134 Verona<br />

Servizio di Immunoematologia e<br />

Trasfusionale – Centro Emofilia<br />

Dr. Giorgio Gandini<br />

Dr.ssa Giuffrida Annachiara<br />

Tel: +39 045/807 4321<br />

Tel: +39 045/807 4305<br />

Tel: +39 045/807 4324<br />

Fax: +39 045/807 4626<br />

email: giorgio.gandini@mail.azosp.vr.it<br />

Centro Oncoematologia Pediatrica<br />

Dr. Simone Cesaro<br />

Dr.ssa Elisa Bonetti<br />

Dr.ssa Balter<br />

Tel: +39 045/812 4594<br />

Tel: +39 045/821 1111<br />

email: cesarosimone@azosp.vr.it<br />

Italy<br />

Vicenza<br />

Ospedale San Bortolo<br />

Viale Ridolfi, 37<br />

36100 Vicenza<br />

Centro per lo Studio delle Malattie<br />

Emorragihce e Trombotiche Ematologia<br />

Dr. Francesco Rodeghiero<br />

Dr. Giancarlo Castaman<br />

Tel: +39 0444/993 679<br />

Tel: +39 0444/993 947<br />

Tel: +39 0444/920 550<br />

Fax: +39 0444/993 922<br />

email: rodeghiero@hemato.ven.it<br />

email: castaman@hemato.ven.it<br />

139

Japan<br />

Aichi<br />

Nagoya University Hospital<br />

65 Tsurumai-cho, Showa-ku<br />

Nagoya City<br />

Aichi 466-8560<br />

Department of Internal Medicine<br />

Dr. Tadashi Matsushita<br />

Tel: +81 52/741 2111<br />

Fukuoka<br />

University of Occupational &<br />

Environmental Health<br />

1-1 Iseigaoka, Yahatanishi-ku<br />

Kitakyushu City<br />

Fukuoka 807-8555<br />

Department of Pediatrics<br />

Prof. Akira Shirahata<br />

Tel: +81 93/603 1611<br />

Hiroshima<br />

Hiroshima University Hospital<br />

1-2-3 Kasumi, Minami-ku<br />

Hiroshima City<br />

Hiroshima 734-8551<br />

Department of Pediatrics<br />

Prof. Masao Kobayashi<br />

Tel: +81 82/257 5555<br />

Hokkaido<br />

Sapporo Tokushukai Hospital<br />

18-4-10 Sakaedori, Shiroishi-ku<br />

Sapporo City<br />

Hokkaido 003-0021<br />

Pediatrics Hematology<br />

Dr. Toshiaki Oka<br />

Tel: +81 11/851 1110<br />

140<br />

Hyogo<br />

Hyogo College of Medicine<br />

1-1 Mukogawa<br />

Nishinomiya City<br />

Hyogo 663-8501<br />

Department of Internal Medicine<br />

Dr. Satoshi Hikasa<br />

Tel: +81 798/456 111<br />

Kanagawa<br />

St. Marianna University,<br />

Yokohama City Seibu Hospital<br />

2-16-1 Sugao, Miyamae-ku<br />

Kawasaki City<br />

Kanagawa 216-8511<br />

Department of Pediatrics<br />

Prof. Masashi Taki<br />

Tel: +81 44/977 8111<br />

Kyoto<br />

Rakusai New Town Hospital<br />

3-6 Oe-higashi Shinbayashi-cho<br />

Nishikyo-ku<br />

Kyoto 610-1142<br />

Department of Internal Medicine<br />

Dr. Yoshihiro Ueda<br />

Tel: +81 75/332 0123

Nagano<br />

Nagano Children’s Hospital<br />

3100 Toyshina, Toyoshina-machi<br />

Minamiazumi-gun<br />

Nagano 399-9288<br />

Division of Hematology and Oncology<br />

Dr. Eizaburo Ishii<br />

Tel: +81 263/736 700<br />

Fax: +81 263/735 432<br />

Nara<br />

Nara Medical University Hospital<br />

840 Shijyo-cho, Kashihara<br />

Nara 634-8522<br />

Department of Pediatrics<br />

Prof. Midori Shima<br />

Tel: +81 744/223 051<br />

Fax: +81 744/249 222<br />

Osaka<br />

Higashi-Osaka City Central<br />

Hospital of Pediatrics<br />

3-4-5 Nishiiwata<br />

Higashiosaka City<br />

Osaka 578-8588<br />

Dr. Seiji Kinoshita<br />

Tel: +81 66/781 5101<br />

Japan<br />

Shizuoka<br />

Shizuoka Children’s Hospital<br />

860 Urushiyama<br />

Shizuoka City<br />

Shizuoka 420-8660<br />

Division of Hematology and Oncology,<br />

Shizuoka Hemophilia Centre<br />

Dr. Kazuko Kudo<br />

Tel: +81 54/247 6251<br />

Tokyo<br />

Tokyo Medical<br />

University Hospital<br />

6-7-1 Nishi-Shinjyuku<br />

Shinjyuku-ku<br />

Tokyo 160-0023<br />

Department of Laboratory Medicine<br />

Prof. Katsuyuki Fukutake<br />

Dr. Kagehiro Amano<br />

Dr. Kazuhiko Kagawa<br />

Dr. Takashi Suzuki<br />

Tel: +81 3/3342 6111<br />

Ogikubo Hospital<br />

3-1-24 Imagawa, Suginami-ku<br />

Tokyo 167-0035<br />

Hematology<br />

Dr. Hideji Hanabusa<br />

Tel: +81 3/3399 1101<br />

Teikyo University School<br />

of Medicine<br />

2-11-1 Kaga, Itabashi-ku<br />

Tokyo 173-8606<br />

Department of Medicine<br />

Dr. Juzo Matsuda<br />

Dr. Kazuo Kawasugi<br />

Tel: +81 3/3964 1211<br />

141

Korea<br />

Seoul<br />

Seoul National University,<br />

Hospital Jongno-gu<br />

28 Yeon Kwon-dong<br />

Seoul 110-799, Korea<br />

An, Hyosub (PED)<br />

Park, Sunyang (IM)<br />

Tel: +82 2/2072 2114<br />

Kyung Hee University Hospital<br />

1 Dongdaemun-gu, Hoegi-dong<br />

Seoul 130-702, Korea<br />

Yun, Huijoong (IM)<br />

Cho, Yoon-Jae (OS)<br />

Tel: +82 2/958 8114<br />

East-West Neo Medical Centre<br />

149 Sangil-dong, Gangdong-gu<br />

Seoul, Korea<br />

Yu, Myung-Chul (OS)<br />

Park, Young-Sil (PED)<br />

Tel: +82 2/440 7463<br />

Korea Hemophilia<br />

Foundation Clinic<br />

1628-26 Seocho-gu, Seocho-dong<br />

Seoul 137-072, Korea<br />

Choi, Yong-Mook (PED)<br />

Yoo, Ki-Young (PED)<br />

Tel: +82 2/3473 6104<br />

142<br />

Suwon<br />

Ajou Medical Centre<br />

San 5, Yeongtong-gu, Wonchon-dong<br />

Suwon 443-721, Korea<br />

Lee, Hyun-Woo (IM)<br />

Park, Jun-Eun (PED)<br />

Tel: +82 31/219 4311<br />

Daejeon<br />

Ulgi University Hospital<br />

24-14 Jung-gu, Mok-dong<br />

Daejeon 301-726, Korea<br />

Yoo Chul-Woo (PED)<br />

Tel: +82 42/259 1000<br />

Busan<br />

Korea Hemophilia<br />

Foundation Busan Clinic<br />

3rd Floor, 53-3 Jurye-dong, Sasang-ku<br />

Busan 617-010, Korea<br />

Lee, Soon-Yong (PED)<br />

Tel: +82 51/328 6611<br />

Inje University Paik Hospital<br />

633-165 Jin-gu, Gaegum-dong<br />

Busan 614-735, Korea<br />

Park, Ji Kyung (PED)<br />

Tel: +82 51/890 6114

Daegu<br />

Kyungbuk Univerisity Hospital<br />

2-10 Jung-gu, Samduk-dong<br />

Daegu 700-721, Korea<br />

Lee, Kun-Soo (PED)<br />

Tel: +82 53/422 1141<br />

Daegu Catholic University<br />

Medical Centre<br />

3056-6 Daemyung-4 dong, Nam-gu<br />

Daegu 705-718, Korea<br />

Choi, Eun-Jin (PED)<br />

Tel: +82 53/650 3000<br />

Ulsan<br />

Ulsan University Hospital<br />

290-3 Dong-gu, Cheonha-dong<br />

Ulsan 682-714, Korea<br />

Park, Sang-Gue (PED)<br />

Tel: +82 52/250 7000<br />

Korea<br />

Gwangju<br />

Cheonnam National University<br />

Hwasun Hospital<br />

160 Ilsim-ri Hwasun-eup,<br />

Hwasun-gun, Jeonnam, 519-890, Korea<br />

Hwang, Tai-Ju (PED)<br />

Baek, Hee-Jo (PED)<br />

Tel: +82 61/379 8599<br />

Korea Hemophilia<br />

Foundation Clinic<br />

4th Floor, LG Household & Health <strong>Care</strong> B/D<br />

417-31 Nongsung-dong, Seo-ku<br />

Gwangju 502-811, Korea<br />

Chun, Young-Soo (PED)<br />

Tel: +82 62/351 6100<br />

Chonbuk<br />

Presbyterian Medical Centre<br />

300 Jungsan-dong, Wansan-gu,<br />

Chonbuk, 560-750, Korea<br />

Jin, So-Hee (PED)<br />

Tel: +82 63/230 8114<br />

143

Latvia<br />

Riga<br />

Riga Eastern Clinical<br />

University Hospital<br />

Clinic Linezers National Centre<br />

of Hematology<br />

Linezera street 6<br />

LV 1006, Riga<br />

Prof. Sandra Lejniece<br />

Dr. Gunta Kluce<br />

Tel: +37 167 040 285<br />

Tel: +37 167 040 355<br />

University Children's Hospital<br />

Vienibas gatve 45<br />

LV 1004, Riga<br />

Dr. Zanna Kovalova<br />

Tel: + 37 167 064 420<br />

144

Vilnius<br />

Vilnius University,<br />

Children’s Hospital<br />

Santariskiu 4<br />

LT 08406 Vilnius<br />

Assoc. Prof. Lina Rageliene (Children)<br />

Sonata Saulyte-Trakymiene<br />

Tel: +370 5/249 2400<br />

Tel: +370 5/249 2402<br />

Vilnius University<br />

Santariskiu Hospital<br />

Santariskiu 2<br />

LT 08661 Vilnius<br />

Dr. Vilija Kiuberiene (Adults)<br />

Tel: +370 5/236 5077<br />

Kaunas<br />

Kaunas Medical University<br />

Hospital<br />

Eiveniu 2<br />

LT 50009 Kaunas<br />

Assoc. Prof. Rasa Griniute<br />

Assoc. Prof. Rolandas Gerbutavicius<br />

Tel: +370 37/326 779<br />

Tel: +370 37/326 954<br />

Klaipeda<br />

Seamen’s Hospital<br />

Liepojos 45<br />

LT 92288 Klaipeda<br />

Dr. Romualdas Jurgutis<br />

Ligita Malciute<br />

Neringa Gailiute<br />

Tel: +370 46/385 381<br />

Tel: +370 46/491 102<br />

Lithuania<br />

145

Luxembourg<br />

Luxembourg<br />

Croix Rouge Luxembourgeoise<br />

Bld. Joseph II 42-44<br />

2014 Luxembourg City<br />

Dr. P-L. Courrier<br />

Tel: +352 45/02 02 1<br />

Centre Hospitalier du<br />

Luxembourg<br />

Rue Ernest Barblé 4<br />

1210 Luxembourg<br />

Prof. Dr. M. Dicato<br />

Tel: +352 44/11 31 03<br />

146

Mexico DF City<br />

IMSS, Centro Médico Nacional<br />

Siglo XXI<br />

Av. Cuauhtémoc No. 530<br />

Col. Doctores<br />

Banco de Sangre<br />

Dra. Malva Mejía<br />

Dr. Raúl Ambriz Fernández<br />

Tel: +52 55/5627 6900<br />

IMSS, Centro Médico Nacional<br />

La Raza<br />

Calzada Vallejo Esq. Jacarandas S/N<br />

Col. La Raza<br />

Hospital Especialidades<br />

Dr. Jaime García Chávez<br />

Tel: +52 55/5724 5900<br />

Tel: +52 55/5782 1088<br />

Instituto Nacional de Pediatria<br />

Insurgentes Sur No. 3700-C<br />

Col. Insurgentes Cuicuilco<br />

Delegación Coyoacán<br />

Banco de Sangre<br />

Dra. Amalia Bravo Lindoro<br />

Dr. Rogelio Paredes<br />

Tel: +52 55/1084 0900<br />

Hospital Infantil Federico<br />

Gómez<br />

Dr. Márquez, Cuauhtémoc<br />

Col. Doctores<br />

Hospital de Pediatría<br />

Dra. Itamar González Avila<br />

Dr. Abel Bello<br />

Tel: +52 55/5228 9917<br />

Mexico<br />

Aguascalientes<br />

HGZ No. 1 IMSS<br />

Boulevard José Ma. Chávez #1202,<br />

Col. Lindavista,<br />

CP 20270<br />

Dr. Alfredo Bribiesca<br />

Dra. Norma Flores Ruiz<br />

Tel: +52 449/913 90 50<br />

Guadalajara, Jalisco<br />

CMNO Pediatría, IMSS<br />

Belisario Domínguez 735, entre Sierra<br />

Morena y Salvador Quevedo y Zubieta,<br />

Col. Independencia<br />

Dra. Janet Soto Medina<br />

Dr. Roberto Garibaldi<br />

Dr. Luis Toro<br />

Tel: +52 333/617 00 60<br />

HGR No. 110 IMSS<br />

Circunvalación Oblatos no 2208,<br />

Sector Libertad, CP 44700<br />

Dr. Cesar Hernández Guadarrama<br />

Dr. Roberto Rico<br />

Tel: +52 333/645 58 00<br />

Hospital Regional del ISSSTE,<br />

Valentín Gómez Farías<br />

Av. Soledad Orozco No. 203,<br />

Col. El capullo Zapopan, CP 45100<br />

Dr. Carlos Aguilar Luna<br />

Tel: +52 333/836 06 50<br />

147

Mexico<br />

Leon, Guanajuato<br />

IMSS, UMAE T1<br />

Boulevard A. López Mateos,<br />

esq. Paseo de los Insurgentes S/N,<br />

Col Los Paraísos, CP 37320<br />

Dr. Gustavo Reyes Brenan<br />

Dr. Pablo Vega<br />

Dr. Francisco Orozco<br />

Tel: +52 477/717 48 00<br />

Tel: +52 477/717 30 04<br />

IMSS, UMAE T48<br />

Boulevard A. López Mateos,<br />

esq. Paseo de los Insurgentes S/N,<br />

Col Los Paraísos, CP 37320<br />

Dr. Hilario Barajas<br />

Dra. Rosario Miranda<br />

Dr. Sebastián Cibrian<br />

Dra. Erika Alatoma<br />

Tel: +52 477/717 50 76<br />

Hospital Regional del ISSSTE<br />

Av. Pradera 1101,<br />

Col. Azteca,<br />

León Gto, CP 37520<br />

Dr. Gustavo Reyes Brenan<br />

Dr. Francisco Orozco<br />

Tel: +52 477/711 53 77<br />

Mérida, Yucatán<br />

IMSS, CMN<br />

“Ignacio Garcia Téllez”<br />

Calle 34 No. 439 Por 41<br />

Col. Industrial<br />

Dr. Jorge Pérez Osorio<br />

Tel: +52 999/922 56 56<br />

148<br />

Monterrey<br />

IMSS, UMAE 25<br />

Calle Lincon y Gonzalitos S/N<br />

Col. Mitras Norte<br />

Monterrey. Nuevo León.<br />

Hospital Especialidades<br />

Dra. Ma.Teresa Pompa Garza<br />

Dra. Ma. Guadalupe González Villarreal<br />

Tel: +52 81/8371 4100<br />

Morelia, Michoacán<br />

HGR No. 1 IMSS<br />

Av. Héroes de Nocupetaro SN<br />

Col. Centro, CP 58000<br />

Dra. María Mora Torres<br />

Tel: +52 443/312 28 80<br />

Clínica Hospital del ISSSTE,<br />

Uruapan<br />

Estocolmo No 688,<br />

Fovissste Uruapan, CP 60160<br />

Dra. Angelina Soto<br />

Tel: +52 452/523 98 44<br />

Morelos<br />

IMSS, Hospital HGR No.1<br />

Av. Plan de Ayala<br />

Esq. Av. Central S/N<br />

Col. Cuahunauac<br />

Jose de Jesus Figueroa Carbajal<br />

Tel: +52 777/315 50 00 (Ext. 1961)

Puebla<br />

IMSS, CMN HE<br />

“Manuel Avila Camacho”<br />

2 Norte Entre 20 y 22 Oriente<br />

Col. Centro<br />

Dr. J. Alejandro Limón Flores<br />

Dra. Uendy Pérez Lozano<br />

Tel. +52 222/242 45 20<br />

(al 29 Puebla, Pue)<br />

San Luis Potosí<br />

HGZ No. 1, IMSS<br />

Nicolás Zapata no. 203,<br />

Col. Centro, CP 78230<br />

Dr. Rafael Miranda<br />

Dra. Graciela Silos<br />

Tel: +52 444/812 41 31<br />

Hospital Gral, SS<br />

Carlos Diez Gtz no 915<br />

Col. Julián Carrillo, CP 78340<br />

Dr. Oscar Peréz<br />

Tel: +52 444/815 40 23<br />

Tabasco<br />

IMSS, Hospital General<br />

de Zona No. 46<br />

Av. 8 de Julio y Lázaro Cárdenas<br />

Carretera Villahermosa<br />

Frontera, Col. Casa Blanca<br />

Dr. Efraín Zurita Sarracino<br />

Tel: +52 993/357 35 92<br />

Mexico<br />

Tamaulipas<br />

HGR No. 6, IMSS<br />

Boulevard Adolfo López Mateos y Av.<br />

Zapotal, Cd Madero Tamaulipas,<br />

CP 89210<br />

Dra. Beatriz Rangel Guzmán<br />

Tel: +52 833/215 22 20<br />

Veracruz<br />

IMSS, HE CMN<br />

“Adolfo Ruiz Cortinez”<br />

Av. Cuahtemoc S/N<br />

Esq. Cervantes Y Padilla<br />

Col. Formando Hogar<br />

Dr. Agustin Ocejo<br />

Dr. Mario Martinez<br />

Dra. Concepción Martinez<br />

Dr. Hermenegildo Villegas<br />

Tel: +52 229/934 20 31<br />

Tel: +52 229/934 20 33<br />

Tel: +52 229/934 20 34<br />

Tel: +52 229/934 20 60<br />

Zacatecas<br />

Hospital Gral del ISSSTE<br />

Boulevard Adolfo López Mateos,<br />

esq. Callejón de Ruiz S/N,<br />

Col. Centro, CP 98000<br />

Dr. Jorge Santoyo<br />

Tel: +52 492/922 20 30<br />

HGZ No. 1, IMSS<br />

Interior Alameda No. 45,<br />

Col. Centro, CP 98000<br />

Dr. Mario Estrada<br />

Tel: +52 492/922 63 73<br />

149

Mexico<br />

Xxxxx<br />

PRIVATE HOSPITALS<br />

México City<br />

Hospital Ángeles del Pedregal<br />

Camino a Santa Teresa No. 1055<br />

Col. Héroes de Padierna<br />

Tel: +52 55/5652 2011<br />

Hospital ABC<br />

Calle Sur 136 No. 116<br />

Col. Las Americas<br />

Tel: +52 55/5230 8000<br />

Monterrey<br />

Hospital San José<br />

Av. Ignacio Morones Prieto No. 3000 Pte.<br />

Col. Los Doctores.<br />

Monterrey, Nuevo León.<br />

Tel: +52 81/8347 1010<br />

Guadalajara, Jalisco<br />

Hospital Bernardette<br />

Av. Hidalgo No. 930<br />

Sector Hidalgo<br />

Tel: +52 33/3825 4365<br />

150

Podgorica<br />

KBC Podgorica<br />

Kruševac bb<br />

81000 Podgorica<br />

Dr. Anka Popovic<br />

Dr. Milena Dapcevic<br />

Dr. Vesko Vujicic<br />

Tel: +382 20/412 412<br />

Montenegro<br />

151

Morocco<br />

Casablanca<br />

Hôpital 20 Août de Casablanca<br />

Boulevard Ibn Rochd<br />

Casablanca<br />

Service d’Hematologie<br />

Prof. Benchekroun Saad (Chef de service<br />

d’Hematologie Adulte)<br />

Tel: +212 522/48 30 30<br />

email: agir@wanadoopro.ma<br />

Hôpital d’enfant Ibn Rochd<br />

Rue Mohamed El Fidouzi<br />

Casablanca<br />

Pediatrie 3, Department 3<br />

Prof. Haj Khalifa (Chef de service<br />

d’Hematologie Enfant)<br />

Tel: +212 522/48 40 41<br />

Tel: +212 522/48 40 42<br />

Fax: +212 522/27 17 18<br />

Rabat<br />

Hôpital d’enfant, CHU Rabat<br />

Boulevard Ibn Roshd<br />

Rabat<br />

Prof. EL Khorassini Mohamed (Chef de<br />

sevice d’Hematologie Pediatrique)<br />

Tel: +212 537/67 02 94<br />

Fax: +212 537/67 02 24<br />

152

Amsterdam<br />

Academisch Medisch Centrum<br />

(AMC)<br />

Meibergdreef 9<br />

1105 AZ Amsterdam (Zuid-Oost)<br />

Dr. P. W. Kamphuisen<br />

C. Valk (Nurse)<br />

Tel: +31 20/566 5964<br />

Tel: +31 20/566 9111<br />

www.amc.nl/hemofiliebehandelcentrum<br />

Emma Kinderziekenhuis<br />

(Paediatric Hospital) AMC<br />

Meibergdreef 9<br />

1105 AZ Amsterdam (Zuid-Oost)<br />

Dr. M. Peters (Paediatric)<br />

Dr. C. H. van Ommen<br />

M. Beijlevelt (Nurse)<br />

K. van Leeuwen (Nurse)<br />

Tel: +31 20/566 5964<br />

Tel: +31 20/566 9111<br />

email: hemofilie@amc.uva.nl<br />

V. U. Ziekenhuis<br />

De Boelelaan 1117<br />

1081 HV Amsterdam<br />

Prof. Dr. P. C. Huijgens (Adults)<br />

Dr. S. Zweegman (Adults)<br />

Dr. W. A. Kors (Paediatric)<br />

Tel: +31 20/444 4444<br />

Tel: +31 20/444 0859<br />

Netherlands<br />

Breda<br />

Amphia Ziekenhuis<br />

Location Molengracht<br />

Molengracht 21<br />

4818 CK Breda<br />

Dr. G. J. Goverde (Adults)<br />

M. de Jongh-Nagel (Nurse)<br />

Tel: +31 76/595 3022<br />

Tel: +31 76/595 4047<br />

email: hemofiliecentrum@amphia.nl<br />

www.amphia.nl/hemofilic<br />

Amphia Ziekenhuis<br />

Location Langendijk<br />

(Paediatric Hospital)<br />

Langendijk 75<br />

4819 EV Breda<br />

Dr. M. H. Jonkers (Paediatric)<br />

Tel: +31 76/595 4107<br />

Tel: +31 76/595 2508<br />

153

Netherlands<br />

Eindhoven<br />

Catharina Ziekenhuis<br />

Michelangelolaan 2<br />

5623 EJ Eindhoven<br />

Dr. N. Dors (Paediatric)<br />

Dr. W. Hofhuis<br />

V. van Kan (Nurse)<br />

Tel: +31 40/239 7250<br />

Tel: +31 40/239 9111<br />

email: hemofiliekinderen@cze.nl<br />

Maxima Medisch Centrum<br />

Ds Th. Fliednerstraat 1<br />

5631 BM Eindhoven<br />

Dr. M. R. Nijziel (Adults)<br />

Dr. L. W. Tick<br />

D. Duis (Nurse)<br />

Tel: +31 40/888 5320<br />

Tel: +31 40/888 8811<br />

email: hbc@mmc.nl<br />

‘S Gravenhage<br />

Haga Ziekenhuis<br />

Location Leijenburg<br />

Leijweg 275<br />

2545 CH Den Haag<br />

Drs. P. F. Ypma<br />

Drs. Y. Koopman-Keemink<br />

M. Lorsheijd (Nurse)<br />

Tel: +31 70/210 2620<br />

Tel: +31 70/210 2664<br />

154<br />

Groningen<br />

UMC Groningen<br />

Hanzeplein 1<br />

9713 EZ Groningen<br />

Adults<br />

Dr. K. Meijer<br />

M. Voskuilen (Nurse)<br />

Tel: +31 50/361 2791<br />

Tel: +31 50/361 6161<br />

Paediatric<br />

Dr. R.Y.J. Tamminga<br />

Dr. E. de Bont<br />

M. Zijlstra (Nurse)<br />

Tel: +31 50/361 2740<br />

Tel: +31 50/361 6161<br />

email: hemofilie@bkk.umcg.nl<br />

Haarlem<br />

Kennemer Gasthuis<br />

Boerhaavelaan 22<br />

2035 RC Haarlem<br />

Lokatie Elisabeth Gasthuis<br />

Dr. P. W. G. van der Linden (Adults)<br />

T. W. Slok (Paediatric)<br />

Tel: +31 23/545 3003<br />

email: pw.vdlinden@kg.nl

Heerlen<br />

Atrium Heerlen<br />

Henri Dunantstraat 5<br />

6401 CX Heerlen<br />

Dr. P. Voogt (Adults)<br />

Dr. P. M. V. M. Theunissen (Paediatric)<br />

Tel: +31 45/576 6578<br />

Tel: +31 45/576 6666<br />

Leiden<br />

LUMC<br />

Albinusdreef 2<br />

2333 ZA Leiden<br />

Adults<br />

Dr. F. van der Meer<br />

Dr. H. C. J. Eikenboom<br />

Tel: +31 71/526 3589<br />

email: f.j.m.van_der_meer@lumc.nl<br />

Paediatric<br />

F.J. Smiers<br />

K.C.L.M. Kraal<br />

Tel: +31 71/526 9111<br />

email: f.j.smiers@lumc.nl<br />

Netherlands<br />

Maastricht<br />

Academisch Ziekenhuis<br />

Maastricht (AZM)<br />

P. Debeyelaan 25<br />

6202 AZ Maastricht<br />

Dr. K. Hamulyak (Adults)<br />

Dr. B. Granzen (Paediatric)<br />

Dr. M. Brands<br />

Tel: +31 43/387 4797<br />

Tel: +31 43/387 4791<br />

email: kham@sint.azm.nl<br />

Website: www.hbc.azm.nl<br />

Nijmegen<br />

UMC St. Radboud<br />

Geert Grootplein Zuid 8<br />

6525 GA Nijmegen<br />

Adults<br />

Dr. B. Laros-Van Gorkom<br />

H. van Wanrooij (Nurse)<br />

M. Amtari (Nurse)<br />

Tel: +31 24/361 0926<br />

Tel: +31 24/361 5041<br />

email: hemofilie-BC@CIS.umcn.nl<br />

Paediatric<br />

Dr. P. Brons<br />

C. Liem (Nurse)<br />

Tel: +31 24/361 6928<br />

Tel: +31 24/361 1111<br />

155

Netherlands<br />

Rotterdam<br />

Erasmus Medisch Centrum<br />

(EMC)<br />

s-Gravendijkwal 230<br />

3015 CE Rotterdam<br />

Prof. Dr. F. Leebeek (Adults)<br />

M. J. H. A. Kruip<br />

F. Balkesteijn (Nurse)<br />

G. Mulders (Nurse)<br />

M. van der Linden (Nurse)<br />

Tel: +31 10/704 0113<br />

Tel: +31 10/704 0704<br />

email: hemofilie@erasmusmc.nl<br />

www. erasmusmc.nl/hemofilie<br />

Sophia Kinderziekenhuis<br />

van het EMC<br />

Dr. Molewaterplein 60<br />

3015 GJ Rotterdam<br />

Dr. A. de Goede-Bolder<br />

Dr. A. Beijshuizen<br />

Dr. M. H. Cnossen<br />

M. Scholten (Nurse)<br />

A. de Bruin (Nurse)<br />

Tel: +31 10/703 6157<br />

Tel: +31 61/294 5960<br />

156<br />

Utrecht<br />

Van Creveldkliniek<br />

Heidelberglaan 100<br />

3584 CX Utrecht<br />

Dr. R. E. G. Schutgens (Adults)<br />

Dr. G. Roosendaal (Adults)<br />

Dr. E. P. Mauser-Bunschoten (Adults)<br />

Dr. K. Fischer (Paediatrics)<br />

N. de Heusden<br />

H.E.L. de Jonge-Harkema<br />

S. Verbeek<br />

Tel: +31 88/755 8450<br />

Tel: +31 88/755 5555<br />

www.vancreveldkliniek.nl

NATIONAL OFFICE<br />

<strong>Haemophilia</strong> Foundation<br />

of New Zealand<br />

4 Washington Way<br />

Sydenham, Christchurch<br />

Mr. Deon York (President)<br />

Tel: +64 3/371 7477<br />

Fax: +64 3/371 7479<br />

email: info@haemophilia.org.nz<br />

Website: www.haemophilia.org.nz<br />

Auckland<br />

Auckland Hospital<br />

Park Road<br />

Grafton, Auckland 1<br />

<strong>Haemophilia</strong> Centre<br />

Dr. Lochie Teague (Paediatrics)<br />

Dr. Nyree Cole (Paediatrics)<br />

Dr. Paul Ockelford (Adults)<br />

Ms. Mary Brasser (Clinical Nurse Specialist)<br />

Ms. Judy Gilmour (Clinical Nurse)<br />

Tel: +64 9/307 4949 (Ext. 25285)<br />

Tel: +64 9/379 7440 (After hours phone for<br />

on call Haematology Registrar)<br />

email: akhaem@adhb.govt.nz<br />

New Zealand<br />

Christchurch<br />

Christchurch Hospital<br />

Riccarton Avenue<br />

Christchurch<br />

Dr. Mark Smith<br />

Ms. Alison Inder (Clinical Nurse Specialist)<br />

Ms. Pauline Connors (Clinical Nurse)<br />

Ms. Christine MacKay (Clinical Nurse)<br />

Tel: +64 3/364 0640 (Ext. 81246)<br />

Fax: +64 3/364 0750<br />

email: alison.inder@cdhb.govt.nz<br />

email: mark.smith@cdhb.govt.nz<br />

Wellington<br />

Wellington Hospital<br />

Riddiford Street<br />

Private Bag 7902<br />

Wellington<br />

Haematology Department<br />

Dr. Julia Philips<br />

B.J. Ramsay (Clinical Nurse Specialist)<br />

Tel: +64 4/385 5567<br />

Fax: +64 4/385 5984<br />

email: brian.ramsay@ccdhb.org.nz<br />

157

New Zealand<br />

Hamilton<br />

Waikato Hospital<br />

Pembroke Street<br />

P.O.Box 934<br />

Hamilton<br />

Dr. Julie-Anne Bell<br />

Ms. Maureen Hayes (Clinical Nurse Specialist)<br />

Tel: +64 7/839 8899<br />

Fax: +64 7/839 8733<br />

email: hayesma@waikatodhb.govt.nz<br />

Palmerston North<br />

Palmerston North Hospital<br />

Heretaunga Street<br />

P.O.Box 2056<br />

Palmerston North<br />

Haematology Department<br />

Dr. Paul Harper<br />

Ms. Daryl Pollock (Clinical Nurse Specialist)<br />

Tel: +64 6/350 8550<br />

Fax: +64 6/350 8568<br />

email: daryl.pollock@midcentraldhb.govt.nz<br />

158<br />

Dunedin<br />

Dunedin Hospital<br />

201 Great King Street<br />

Dunedin<br />

Dr. James Faed<br />

Ms. Steph Halford (Nurse – Adults)<br />

Ms. Claire Hagglund (Nurse – Paediatrics)<br />

Ms. Angela Milner (Nurse – Paediatrics)<br />

Tel: +64 3/474 0999<br />

email: jim.faed@nzblood.co.nz

Oslo<br />

Senter for sjeldne diagnoser<br />

Oslo Universitetssykehus<br />

Forskningsveien 3B<br />

N-0027 Oslo<br />

Dr. Anders Glomstein (Pediatrics)<br />

Dr. Pål André Holme (Adult)<br />

Tel: +47 23 07 53 40<br />

Seksjon for blodsykdommer<br />

Oslo Universitetssykehus<br />

Sognsvannsveien 20<br />

N-0027 Oslo<br />

Dr. Pål André Holme<br />

Dr. Geir Tjønnfjord<br />

Tel: +47 23 07 04 60<br />

Norway<br />

159

Peru<br />

Lima City<br />

Hospital 2 de Mayo,<br />

Centro Referencial<br />

Av. Grau s/n, Cuadra 13<br />

Barrios Altos<br />

Dra. Loayza<br />

Tel: +51 1/328 0028 Anx. 279<br />

Hospital del Niño,<br />

Centro de Tratamiento<br />

Hemofílico para Pediatricos<br />

Av. Brasil 600<br />

Breña<br />

Dra. Marina Perez<br />

Tel: +51 1/330 0066 Anx. 277<br />

Hospital Rebagliati<br />

Av. Edgardo Rebagliati 490<br />

Jesús María<br />

Dra. Gloria Chumpitaz<br />

Tel: +51 1/265 4901 Anx. 3266<br />

Cell: +51 1/(0)9519 2159<br />

Hospital Almenara<br />

Av. Grau 800<br />

La Victoria<br />

Dra. Izaguirre<br />

Tel: +51 1/324 2983 Anx. 4103<br />

160

Manila<br />

National Hemophilia Centre<br />

of the Philippines, University<br />

of Santo Tomas Hospital<br />

Espana Avenue<br />

Sampaloc, Manila<br />

Metro Manila, Philippines<br />

Division of Pediatrics,<br />

Section of Hematology<br />

Dra. Mary Chua<br />

Tel: +63 2/749 9704<br />

Philippines<br />

161

Poland<br />

Bialystok<br />

Provincial Clinical Hospital,<br />

Hematology Clinic of<br />

Medical University<br />

st. Sklodowskiej-Curie 24A<br />

15-276 Bialystok<br />

Prof. Dr. Janusz Kloczko<br />

Dr. Jaroslaw Sokolowski<br />

Tel: +48 85/745 05 00<br />

Children’s Clinic of<br />

Medical University<br />

st. M. Sklodowskiej-Curie 26<br />

15-278 Bialystok<br />

Prof. Maryna Krawczuk-Rybak<br />

Dr. Lucja Dakowicz<br />

Tel: +48 85/712 16 21<br />

Regional Blood Centre<br />

st. Sklodowskiej-Curie 23<br />

15-950 Bialystok<br />

Dr. Piotr Radziwon<br />

Tel: +48 85/744 70 62<br />

Bielsko-Biala<br />

Hospital of Province<br />

1st Internal Department<br />

st. Armii Krajowej 101<br />

43-300 Bielsko-Biala<br />

Dr. Joanna Basa<br />

Tel: +48 33/810 20 00<br />

162<br />

Bydgoszcz<br />

University Hospital No 2<br />

Clinic of Hematology and Oncology<br />

st. Ujejskiego 75<br />

85-168 Bydgoszcz<br />

Dr. Grazyna Gadomska<br />

Tel: +48 52/365 52 54<br />

Pediatric Clinic of Hematology &<br />

Oncology Children’s Hosp. No.1<br />

st. M. Sklodowskiej-Curie 9<br />

85-094 Bydgoszcz<br />

Prof. Mariusz Wysocki<br />

Dr. Andrzej Koltan<br />

Tel: +48 52/585 48 60<br />

Regional Blood Centre<br />

st. Makwarta 8<br />

85-015 Bydgoszcz<br />

Dr. Danata Dubianowska-Boguszynska<br />

Tel: +48 52/322 18 71<br />

Chorzow<br />

Pediatric Centre<br />

Hematology and Oncology Department<br />

st. Truchana 7<br />

41-500 Chorzow<br />

Dr. Maria Wieczorek<br />

Tel: +48 32/349 00 81<br />

Czestochowa<br />

United Hospital of Province<br />

Internal Diseases Department<br />

st. PCK 1<br />

41-118 Czestochowa<br />

Dr. Elzbieta Morawiec-Szymonik<br />

Tel: +48 34/325 48 21

Specialist Hospital of<br />

Province Sainte Vierge,<br />

Children’s Department<br />

st. Bialska 10<br />

41-118 Czestochowa<br />

Dr. Malgorzata Klimza<br />

Tel: +48 34/322 71 21<br />

Tel: +48 34/322 71 43<br />

Gdansk<br />

Medical Academy,<br />

st. Debinki 7<br />

80-211 Gdansk<br />

Clinic of Children's Diseases<br />

Prof. Anna Balcerska<br />

Dr. Marek Wlazlowski<br />

Tel: +48 58/349 2230<br />

Hematology Clinic<br />

Prof. Dr. Andrzej Hellman<br />

Dr. Andrzej Mital<br />

Tel: +48 58/349 22 30<br />

Regional Blood Centre<br />

st. Hoene – Wronskiego 4<br />

80-210 Gdansk<br />

Dr. Jolanta Juscinska<br />

Tel: +48 58/520 40 20<br />

Gorzow-Wielkopolski<br />

Specialist Hospital of Province<br />

Hematology Department<br />

st. Deckerta 1<br />

65-048 Gorzow Wielkopolski<br />

Dr. Andrzej Moskwa<br />

Tel: +48 68/329 62 00<br />

Katowice<br />

Regional Hematology<br />

Outpatient Clinic<br />

st. Powstancow 31<br />

40-038 Katowice<br />

Dr. Malgorzata Krawczyk-Kulis<br />

Dr. Andrzej Baranski<br />

Tel: +48 32/209 11 36<br />

Poland<br />

Provinical Clinical Hospital<br />

Medical Academy<br />

Hematology Clinic<br />

st. Reymonta 8<br />

40-029 Katowice<br />

Prof. Slawomira Kyrcz-Krzemien<br />

Tel: +48 32/259 12 00<br />

Regional Blood Centre<br />

st. Raciborska 15<br />

40-074 Katowice<br />

Dr. Bozena Drybanska<br />

Tel: +48 32/208 73 00<br />

Tel: +48 32/208 73 01<br />

Kielce<br />

Provincial Children’s Hospital<br />

Hematology and Oncology Dept<br />

st. Langiewicza 2<br />

25-381 Kielce<br />

Dr. Grazyna Karolczyk<br />

Tel: +48 41/361 58 86<br />

163

Poland<br />

Oncology Centre<br />

Hematology Dept<br />

st. Artwinskiego 3<br />

25-734 Kielce<br />

Dr. Maria Nowakowska-Domagala<br />

Dr. Arkadiusz Drobiecki<br />

Regional Blood Centre<br />

st. Jagiellonska 66<br />

25-956 Kielce<br />

Dr. Zdzislawa Sitarz-Zelazna<br />

Tel: +48 41/355 94 00<br />

Krakow<br />

Jagiellonian University<br />

Medical College<br />

st. Kopernika 17<br />

31-501 Krakow<br />

Prof. Aleksander Skotnicki<br />

Dr. Joanna Zdziarska<br />

Tel: +48 12/421 36 93<br />

Medical Academy<br />

Children Hematology<br />

and Oncology Clinic<br />

st. Wielicka 265<br />

30-522 Krakow<br />

Prof. Walentyna Balwierz<br />

Dr. Danuta Pietrys<br />

Tel: +48 12/658 20 11<br />

Regional Blood Centre<br />

st. Rzeznicza 11<br />

31-540 Krakow<br />

Dr. Jolanta Ras<br />

Dr. Beata Mazurek<br />

Tel: +48 12/261 88 20<br />

164<br />

Lublin<br />

Public Clinical Hospital No.1<br />

Hemato-Oncology Clinic and<br />

Bone Marrow Transplantation<br />

Ul. Staszica 16<br />

20-081 Lublin<br />

Prof. Anna Dmoszynska<br />

Dr. Magdalena Gorska-Kosicka<br />

Tel: +48 81/742 52 03<br />

Children‘s Clinical Hospital<br />

Hematology and Oncology<br />

Clinic<br />

st. Chodzki 2<br />

20-093 Lublin<br />

Prof. Jerzy Roman Kowalczyk<br />

Dr. Irena Woznica-Karczmarz<br />

Tel: +48 81/743 00 10<br />

Regional Blood Centre<br />

st. Armii WP 8<br />

20-078 Lublin<br />

Dr. Hanna Radwan-Wieczorek<br />

Dr. Magdalena Hempel<br />

Tel: +48 81/532 62 75<br />

Lodz<br />

Medical University<br />

Hematology Dept.<br />

st. Ciolkowskiego 2<br />

93-510 Lodz<br />

Prof. Tadeusz Robak<br />

Prof. Krzysztof Chojnowski<br />

Dr. Jacek Trelinski<br />

Tel: +48 42/689 50 00

Clinical Hospital of Medical<br />

Academy Hematology<br />

Outpatients Clinic<br />

st. Sporna 36/50<br />

91-738 Lodz<br />

Prof. Wojciech Mlynarski<br />

Dr. Beata Zalewska-Szewczyk<br />

Dr. Magdalena Kostrzewska<br />

Tel: +48 42/656 50 50<br />

Regional Blood Centre<br />

st. Franciszkanska 17/25<br />

91-438 Lodz<br />

Dr. Dioniza Marciniak-Bielak<br />

Tel: +48 42/616 14 00<br />

Olsztyn<br />

Provincial Hospital<br />

st. Zolnierska 18<br />

10-561 Olsztyn<br />

Pediatric – Hematology & Oncology<br />

Dr. Wanda Badowska<br />

Dr. Elzbieta Stasiak-Zajac<br />

Tel: +48 89/539 33 95<br />

Hematology Department<br />

Dr. Malgorzata Wojciechowska<br />

Dr. Radoslaw Bogucki<br />

Tel: +48 89/538 63 92<br />

Regional Blood Centre<br />

st. Hanki Sawickiej 27<br />

10-247 Olsztyn<br />

Dr. Jaroslaw Zwierzynski<br />

Tel: +48 89/526 01 56<br />

Opole<br />

Regional Hospital<br />

Hematology Dept.<br />

st. Katowicka 64<br />

45-061 Opole<br />

Dr. Dariusz Woszczyk<br />

Tel: +48 77/443 31 06<br />

Regional Blood Centre<br />

st. Katowicka 64<br />

45-061 Opole<br />

Dr. Iwona Rajca-Biernacka<br />

Tel: +48 77/443 31 06<br />

Poland<br />

Poznan<br />

J. Strusia Hospital<br />

st. Szkolna 8/12<br />

61-833 Poznan<br />

Department of Internal Medicine<br />

and Hematology<br />

Prof. Dr. Krystyna Zawiska<br />

Dr. Witold Kruger<br />

Tel: +48 61/858 56 36<br />

Specialist Children's Hospital<br />

Hematology Department<br />

st. B Krysiewicza 7/8<br />

61-825 Poznan<br />

Dr. Halina Bobrowska<br />

Tel: +48 61/850 62 78<br />

Regional Blood Centre<br />

st. Marcelinska 44<br />

60-354 Poznan<br />

Dr. Hanna Skalisz<br />

Tel: +48 61/867 99 49<br />

165

Poland<br />

Rzeszow<br />

Provincial Specialist Hospital,<br />

Children's Diseases Clinic<br />

st. Lwowska 60<br />

35-301 Rzeszow<br />

Dr. Bartosaz Korczowski<br />

Dr. Monika Radwanska<br />

Tel: +48 17/866 40 00<br />

Provincial Specialist Hospital<br />

Internal Diseases and<br />

Hematology Dept.<br />

st. Szopena 2<br />

35-055 Rzeszow<br />

Dr. Jolanta Starzak-Gwozdz<br />

Alicija Wysocka<br />

Regional Blood Centre<br />

st. Wierzbowa 14<br />

35-310 Rzeszow<br />

Dr. Urszula Bzdek<br />

Tel: +48 17/853 65 77<br />

Szczecin<br />

Independent Public Clinical<br />

Hospital No. 1<br />

st. Unii Lubelskiej 1<br />

71-252 Szczecin<br />

Department of Hematology<br />

Prof. Barbara Zdziarska<br />

Tel: +48 91/425 33 98<br />

Pediatric – Hematology & Oncology<br />

Prof. Tomasz Urasinski<br />

Dr. Tomasz Ociepa<br />

Dr. Sebastian Wozniak<br />

Tel: +48 91/425 33 47<br />

166<br />

Regional Blood Centre<br />

al. Wojska Polskiego 80/82<br />

70-482-Szczecin<br />

Dr. Eva Kochanowicz<br />

Tel: +48 91/422 18 98<br />

Warsaw<br />

Institute of Hematology<br />

and Blood Transfusion<br />

st. Indiry Gandhi 14<br />

00-776 Warsaw<br />

Hematology Disorders<br />

& Outpatient Clinic<br />

Dr. Jerzy Windyga<br />

Dr. Ewa Stefanska - Windyga<br />

Tel: +48 22/349 61 00<br />

Medical University of Warsaw<br />

st. Marszalkowska 24<br />

00-576 Warsaw<br />

Pediatric – Hematology & Oncology<br />

Prof. Michal Matysiak<br />

Dr. Anna Klukowska<br />

Dr. Pawel Laguna<br />

Tel: +48 22/522 74 19<br />

Regional Blood Centre<br />

st. Saska 63/75<br />

03-958 Warsaw<br />

Dr. Bozena Sobecka<br />

Tel: +48 22/619 19 47

Wroclaw<br />

Medical University of Wroclaw<br />

st. Pasteura 4<br />

50-367 Wroclaw<br />

Hematology Clinic<br />

Prof. Maria Podolak-Dawidziak<br />

Prof. Kazimierz Kuliczkowski<br />

Prof. Malgorzata Kuliszkiewicz-Janus<br />

Tel: +48 71/784 01 12<br />

Medical University of<br />

Children’s Diseases<br />

st. Bujwida 44<br />

50-345 Wroclaw<br />

Department of Children’s Hematology<br />

& Oncology<br />

Prof. Alicja Chybicka<br />

Dr. Grzegorz Dobaczewski<br />

Tel: +48 71/328 20 40<br />

Regional Blood Centre<br />

st. Czerwonego Krzyza 5/9<br />

50-345 Wroclaw<br />

Dr. Malgorzata Szymczyk-Nuzka<br />

Tel: +48 71/371 58 00<br />

Tel: +48 71/371 58 10<br />

Poland<br />

Zabrze<br />

Pediatric Centre of Silesia<br />

Children's Hematology Clinic<br />

st. 3 Maja 13-15<br />

41-800 Zabrze<br />

Prof. Tomasz Szczepanski<br />

Dr. Anna Janik-Moszant<br />

Tel: +48 32/271 12 61<br />

Zielona Gora<br />

Provincial Specialist Hospital<br />

st. Zyty 26<br />

65-048 Zielona Gora<br />

Internal Medicine Dept.<br />

Dr. Alina Swiderska<br />

Tel: +48 68/329 62 00<br />

Children’s Hospital<br />

Dr. Kazimiera Kucharska-Barczyk<br />

Dr. Dariusz Wasinski<br />

Tel: +48 68/329 62 00<br />

Regional Blood Centre<br />

st. Zyty 21<br />

65-048 Zielona Gora<br />

Dr. Monika Fabisz-Kolodzinska<br />

Tel: +48 68/329 83 60<br />

167

Portugal<br />

Algarve<br />

Hospital Distrital de Faro<br />

Serviço de Imuno-Hemoterapia<br />

Rua Leão Penedo<br />

8000-386 Faro<br />

Dra. Maria João Melo<br />

(Director of Dept.)<br />

Tel: +351 289/803 411<br />

Açores Island<br />

Hospital Distrital de<br />

Ponta Delgada<br />

Grotinha – Arrifes<br />

9500-370 Ponta Delgada<br />

Dra. Ana Luisa Araujo<br />

Tel: +351 296/203 000<br />

Fax: +351 296/203 090<br />

Hospital Santo Espirito<br />

de Angra do Heroísmo<br />

Rua do Barreiro<br />

9700-856 Angra do Heroísmo<br />

Dr. Jácome Armas<br />

Tel: +351 295/212 122<br />

Tel: +351 295/628 081<br />

Fax: +351 295/214 992<br />

168<br />

Aveiro<br />

Hospital Infante D. Pedro<br />

Av. Dr. Ravara Aveiro<br />

3810-096 Aveiro<br />

Dra. Lucia Borges (Director of Dept.)<br />

Tel: +351 234/378 300<br />

Braga<br />

Hospital de São Marcos<br />

Largo Carlos Amarente<br />

4701-965 Braga<br />

Serviço de Imuno-Hemoterapia<br />

Dr. Madalena Calheiros<br />

Dr. Anabela Rodrigues Correia<br />

(Clin. Dir. of the Hospital & Dir. of Dept.)<br />

Tel: +351 253/209 019<br />

Castelo Branco<br />

Hospital Amato Lusitano<br />

Av. Pedro Alvares Cabral<br />

6000-085 Castelo Branco<br />

Dr. Luis Francisco Araújo<br />

Tel: +351 272/322 133<br />

Tel: +351 272/000 178

Coimbra<br />

Centro Hospitalar de Coimbra,<br />

Hospital dos Covões<br />

S. Martinho do Bispo<br />

3040-853 Coimbra<br />

Serviço de Hematologia<br />

Dra. Natália Martins<br />

Prof. Letícia Ribeiro (Dir. of Dept.)<br />

Tel: +351 239/800 116<br />

Tel: +351 239/800 159<br />

Fax: +351 239/810 070<br />

email: hemostase@chc.min-saude.pt<br />

Website: www.chc-hematologia.org<br />

Hospital Pediátrico de Coimbra<br />

Av. Bissaia Barreto<br />

3000-076 Coimbra<br />

Serviço de Hematologia<br />

Dra. Natália Martins<br />

Prof. Letícia Ribeiro (Dir. of Dept.)<br />

Tel: +351 239/800 116<br />

Tel: +351 239/800 100<br />

Fax: +351 239/810 070<br />

email: hemostase@chc.min-saude.pt<br />

Website: www.chc-hematologia.org<br />

Hospitais da Universidade<br />

de Coimbra<br />

Av. Bissaya Barreto e Praceta Prof. Mota Pinto<br />

3000-075 Coimbra<br />

Serviço de Hematologia Clínica<br />

Dra. Rosa Maia<br />

Dra. Adriana Teixeira (Dir. of Dept.)<br />

Tel: +351 239/400 637<br />

Tel: +351 239/400 430<br />

Fax: +351 239/828 807<br />

email: hematologia@huc.min-saude.pt<br />

Website: www.hematologia-huc.org<br />

Portugal<br />

Covilhã<br />

Centro Hospitalar da Cova<br />

da Beira<br />

Quinta do Alvito<br />

6200-251 Covilhã<br />

Dr. Luis Francisco Araújo<br />

Tel: +351 275/330 000<br />

Évora<br />

Hospital do Espirito Santo<br />

Largo Senhora Pobreza<br />

7000-811 Évora<br />

Dr. Francisco Ferro<br />

Dr. Álvaro Beleza (Dir. of Dept.)<br />

Tel: +351 266/740 132<br />

Tel: +351 266/740 100<br />

Fax: +351 266/740 124<br />

169

Portugal<br />

Lisbon (Lisboa)<br />

Centro Hospitalar de Lisboa<br />

– Zona Central (Hospital de<br />

São José)<br />

Rua António José Serrano<br />

1150-199 Lisboa<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Ema Margarida Antunes<br />

Dra. Maria Dias<br />

Dra. Maria João Diniz (Dir. of Dept.)<br />

Tel: +351 21/884 1736<br />

Tel: +351 21/884 1273 (Emergency)<br />

Fax: +351 21/884 1058<br />

email: dirsangue@hsjose.min-saude.pt<br />

Hospital de Santa Maria<br />

Av. Prof. Egas Moniz<br />

1649-035 Lisboa<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Alice Lopes Tavares<br />

Dra. Cristina Catarino<br />

Dr. Miguel Galvão (Dir. of Dept.)<br />

Tel: +351 21/780 5184<br />

Tel: +351 21/780 5185<br />

Tel: +351 21/780 5000<br />

Fax: +351 21/780 5610<br />

email: alice.tavares@hsm.mariasaude.pt<br />

Hospital D.Estefanía,<br />

Pediatric Hospital<br />

Rua Jacinto Marto<br />

1169-045 Lisboa<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Teresa Almeida<br />

Dr. Lino Rosado (Dir. of Dept.)<br />

Tel: +351 21/312 6622<br />

Tel: +351 21/312 6600<br />

Fax: +351 21/312 6602<br />

170<br />

Madeira Island<br />

Centro Hospitalar do Funchal<br />

Av. Luis de Camões<br />

9004-514 Funchal<br />

Dra. Mafalda Antunes<br />

Tel: +351 291/742 111<br />

Fax: +351 291/742 545<br />

Portimão<br />

Centro Hospitalar do<br />

Barlavento Algarvio<br />

Sitio do Poço Seco<br />

8500-338 Portimão<br />

Dr. Roger Oliveira<br />

Tel: +351 282/450 300<br />

Fax: +351 282/450 340

Porto<br />

Hospital Geral de<br />

Santo Antonio<br />

Largo Prof. Abel Salazar<br />

4099-001 Porto<br />

Serviço de Hematologia<br />

Dra. Sara Morais<br />

Dra. Loida Corbillon<br />

Dr. Manuel Campos (Dir. of Dept.)<br />

Tel: +351 22/600 4808<br />

Fax: +351 22/600 4808<br />

Hospital S. João<br />

Alameda Prof. Hernani Monteiro<br />

4202-451 Porto<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Manuela Carvalho<br />

Dra. Regina Pereira (Dir. of Dept.)<br />

Tel: +351 22/507 4280<br />

Tel: +351 21/551 2100<br />

Tel: +351 22/507 4292 (Emergency)<br />

Fax: +351 22/507 4299<br />

email: sih@hsjoa.min-saude.pt<br />

Website: www.hsjoao.min-saude.pt<br />

Portugal<br />

Viana do Castelo<br />

Centro Hospitalar do<br />

Alto Minho<br />

Estrada de Santa Luzia<br />

4901-858 Viana do Castelo<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Maria João Fonseca<br />

Dr. Miguel Jorreto<br />

Dr. Dilson Teixeira (Dir. of Dept.)<br />

Tel: +351 258/802 100<br />

Tel: +351 258/802 294<br />

Fax: +351 258/829 094<br />

Viseu<br />

Hospital de São Teotónio –<br />

Viseu<br />

Largo Dr. Eduardo Correia<br />

3500 Viseu<br />

Serviço de Imuno-Hemoterapia<br />

Dra. Marina Costa (Dir. of Dept.)<br />

Tel: +351 232/420 530<br />

Tel: +351 232/420 500<br />

Fax: +351 232/420 591<br />

171

Puerto Rico<br />

San Juan<br />

University of Puerto Rico<br />

School of Medicine<br />

Puerto Rico Hemophilia Treatment Centre<br />

Box 5067<br />

San Juan, PR 00936-5067<br />

HTC 053, Region II<br />

Department of Pediatrics<br />

Dr. P. Santiago Borrero<br />

Tel: +1 787 777 3535 (Ext. 7013/4)<br />

Tel: +1 787 777 3535 (Ext. 7215)<br />

Fax: +1 787 756 8907<br />

Department of Adults<br />

Aitsa Jimenez<br />

Tel: +1 787 777 3535 (Ext. 7013/4)<br />

Tel: +1 787 777 3535 (Ext. 7215)<br />

Fax: +1 787 756 8907<br />

172

Bras¸ ov<br />

County Clinical Emergency<br />

Hospital Brasov<br />

25-27 Calea Bucuresti St.<br />

500326 Brasov<br />

Hemophilia Centre<br />

Mr. Gheorghe Emanuil, M.D. Ph.D.<br />

Tel: +40 268/33 36 66<br />

Mobile: +40 (0)722 383 721<br />

Fax: +40 268/33 01 40<br />

email: emanuil.gheorghita@yahoo.com<br />

Bucharest (Bucures¸ ti)<br />

National Institute of<br />

Transfusion Hematology<br />

2-8 Constantin Caracas St.<br />

Sector 1<br />

011155 Bucureşti<br />

Hemophilia Centre<br />

Mrs. Luminita Rusen, M.D. Ph.D.<br />

Tel: +40 31/425 12 30<br />

Mobile: +40 (0)727 227 437<br />

Fax: +40 21/319 17 79<br />

email: hemtransro@b.astral.ro<br />

email: luminita_rusen@yahoo.com<br />

Romania<br />

Fundeni Clinical Institute,<br />

Hematology Departament<br />

258 Sos. Fundeni St.<br />

Sector 2<br />

022328 Bucureşti<br />

Clinical Laboratory<br />

Mrs. Valentina Uscatescu, M.D. Ph.D.<br />

Tel: +40 21/318 04 00<br />

Tel: +40 21/318 04 14<br />

Mobile: +40 (0)726 386 631<br />

Fax: +40 21/318 04 00<br />

email: uscatescu@gmail.com<br />

Buzias¸<br />

Medical Clinical Centre Buzias<br />

18 Avram Iancu St.<br />

305100 Buzias<br />

Hemophilia Recovery Centre<br />

Mrs. Alina Lacatusu, M.D. Ph.D.<br />

Tel: +40 256/32 20 80<br />

Mobile: +40 (0)727 762 498<br />

Fax: +40 256/32 23 90<br />

email: alinamara_lacatusu@yahoo.com<br />

173

Romania<br />

Cluj-Napoca<br />

Children's Clinical Emergency<br />

Hospital Cluj<br />

68 Motilor St.<br />

400001 Cluj-Napoca<br />

Children Hemophilia Centre II<br />

Mr. Gheorghe Popa, M.D. Ph.D.<br />

Tel: +40 264/59 83 61<br />

Mobile: +40 (0)722 364 154<br />

Fax: +40 264/59 35 18<br />

email: ghitapopa2000@yahoo.com<br />

Oncology Institute<br />

“Prof. Dr. I. Chiricuta” Cluj<br />

34-36 Republicii St.<br />

400015 Cluj-Napoca<br />

Adult Hemophilia Centre<br />

Mr. Liubomir Petrov, Prof. M.D. Ph.D.<br />

Tel: +40 264/59 77 06<br />

Mobile: +40 (0)745 592 404<br />

Fax: +40 264/59 76 73<br />

email: hemato@iocn.ro<br />

Constanta<br />

County Clinical Emergency<br />

Hospital Constanta<br />

22 Decebal St.<br />

900665 Constanta<br />

Hemophilia Centre<br />

Mrs. Adriana Apostol, Prof. M.D. Ph.D.<br />

Mrs. Mihaela Ghinea, Prof. M.D. Ph.D.<br />

Tel: +40 241/60 64 65<br />

Mobile: +40 (0)722 795 716 (Apostol)<br />

Mobile: +40 (0)740 312 914 (Ghinea)<br />

Fax: +40 241/61 92 60<br />

email: aposadri@hotmail.com<br />

email: ghinea_mihaela_maria@yahoo.com<br />

174<br />

Craiova<br />

County Clinical Emergency<br />

Hospital Craiova<br />

1 Tabaci St.<br />

200642 Craiova<br />

Children Hemophilia Centre<br />

Mrs. Polixenia Stancu, Prof. M.D. Ph.D.<br />

Tel: +40 251/50 22 02<br />

Mobile: +40 (0)721 148 353<br />

Fax: +40 251/50 24 45<br />

email: stancu.poli@yahoo.com<br />

Ias¸ i<br />

County Clinical Emergency<br />

Hospital “Sf Spiridon” Iasi<br />

1 Independentei Blvd.<br />

700111 Iasi<br />

Hemophilia Centre<br />

Mrs. Cristina Burcoveanu, Prof. M.D. Ph.D.<br />

Tel: +40 232/24 08 22<br />

Mobile: +40 (0)745 042 055<br />

Fax: +40 232/21 77 81<br />

email: cristina_burco@yahoo.fr<br />

Children's Clinical Emergency<br />

Hospital “Sf. Maria” Iasi<br />

62 Vasile Lupu St.<br />

700309 Iasi<br />

Children Hemophilia Centre I<br />

Mrs. Ingrid Crenguta Miron, Prof. M.D. Ph.D.<br />

Tel: +40 232/26 42 66<br />

Mobile: +40 (0)744 212 883<br />

Fax: +40 232/25 43 31<br />

email: lncmir@gmail.com<br />

email: ingridmiron@hotmail.com

Oradea<br />

Children's Clinical Hospital<br />

Oradea<br />

12 Corneliu Coposu St<br />

410469 Oradea<br />

Children Hemophilia Centre<br />

Mrs. Gabriela Miculschi, M.D. Ph.D.<br />

Tel: +40 259/44 18 44<br />

Mobile: +40 (0)722 129 656<br />

Fax: +40 259/44 26 87<br />

email: protejaticopiii@yahoo.com<br />

Mr Ladislau Ritli, Prof. M.D. Ph.D.<br />

Mobile: +40 (0)721 148 353<br />

email: ritli_ladislau@yahoo.com<br />

Sibiu<br />

Pediatric Clinical Hospital Sibiu<br />

2-4 Corneliu Coposu Blvd.<br />

550245 Sibiu<br />

Children Hemophilia Centre<br />

Mr. Sorin Iurian, M.D. Ph.D.<br />

Tel: +40 269/21 50 50<br />

Mobile: +40 (0)723 195 281<br />

Fax: +40 269/21 54 34<br />

email: iurian_sorsab@hotmail.com<br />

Romania<br />

Târgu Mures¸<br />

County Clinical Emergency<br />

Hospital Targu Mures<br />

50 Gheorghe Marinescu St.<br />

540136 Targu Mures<br />

Children Hemophilia Centre<br />

Mrs. Despina Baghiu, Prof. M.D. Ph.D.<br />

Tel: +40 265/21 21 11<br />

Mobile: +40 (0)724 306 405<br />

Fax: +40 265/21 57 68<br />

email: baghiu@orizont.net<br />

Adult Hemophilia Centre<br />

Mr. Galafteon Olteanu, Prof. M.D. Ph.D.<br />

Tel: +40 265/21 21 11<br />

Mobile: +40 (0)722 771 065<br />

Fax: +40 265/21 57 68<br />

email: galolteanu@yahoo.com<br />

Timis¸ oara<br />

Clinical Emergency Children's<br />

Hospital “Louis Turcanu”<br />

Timisoara<br />

2 Iosif Nemoianu St.<br />

300011 Timisoara<br />

Hemophilia Centre<br />

Mrs. Margit Serban, Prof. M.D. Ph.D.<br />

Mrs. Laura Pop, M.D. Ph.D.<br />

Mrs. Delia Maria Mihailov Prof. M.D. Ph.D<br />

Tel: +40 256/29 59 77<br />

Mobile: +40 (0)753 017 257 (Serban)<br />

Mobile: +40 (0)745 127 143 (Pop)<br />

Mobile: +40 (0) 723 028 428 (Mihailov)<br />

Fax: +40 256/29 59 78<br />

email: mserban@spitalcopiitm.ro<br />

email: laura.pop@gmail.com<br />

email: delimar@rdslink.ro<br />

175

Russia<br />

Moscow<br />

Hematological<br />

Research Centre<br />

Novosykovsky proezd 4A<br />

Moscow 125167<br />

Hemophilia Department<br />

Prof. Vladimir Zorenko<br />

Tel: +7 495/613 2469<br />

Fax: +7 495/656 0658<br />

Moscow Pediatric<br />

Hemophilia Centre<br />

Verhnaya Pervomayskaya St. 48/15<br />

Moscow 105027<br />

Dr. Vladimir Vdovin<br />

Tel: +7 495/465 6083<br />

Tel: +7 495/465 2319<br />

St. Petersburg<br />

Republican and<br />

St. Petersburg’s<br />

Hemophilia Centre<br />

Gorokhovaya St. 6<br />

St. Petersburg 119186<br />

Dr. Tatiana Andreeva<br />

Tel: +7 812/315 4871<br />

176<br />

Barnaul<br />

Altay State Medical University<br />

Lenin St. 40<br />

Barnaul 656099<br />

Department Pathology of Hemostasis<br />

Prof. Andrey Momot<br />

Tel: +7 3852/41 4504<br />

Kirov<br />

Kirov’s Research Institute of<br />

Hematology and Transfusiology<br />

Derendyaeva 84<br />

Kirov 610027<br />

Hemophilia Centre<br />

Dr. Tatiana Chernova<br />

Tel: +7 8332/67 5519

Belgrade<br />

VMA - Clinic of Hematology<br />

Crnotravska bb<br />

Prof. Dr. Slobodan Marjanovic<br />

Tel: +381 11 2661 122<br />

Clinic of Hematology (Clinical<br />

Center of Serbia)<br />

Koste Todorovića 2<br />

Prof. Dr. Biljana Kostic Mihaljevic<br />

Tel: +381 11 3663 713<br />

University Children’s Hospital<br />

Tiršova 10<br />

Prof. Dr. Dragana Janić<br />

Tel: +381 11 2060 690<br />

Mother and Child Institute<br />

Dr. Vukan Cupic<br />

Radoja Dakića 6<br />

Dr. Milos Kuzmanovic<br />

Tel: +381 11 3108 245<br />

Čačak<br />

Medical Center<br />

Dr. Dragiše Mišovića 11<br />

Dr. Olivera Stojcic<br />

Tel: +381 32 3742 22<br />

Jagodina<br />

General Hospital Children’s<br />

Hematology<br />

Karad-jord-jeva 4<br />

35000 Jagodina<br />

Dr. Vesna Jakić Rajkin<br />

Tel: +381 64 1134 137<br />

Kikinda<br />

General Hospital<br />

Djure Jaksica 110<br />

Dr. Srbislava Drndarski<br />

Tel: +381 23 0235 18<br />

Kragujevac<br />

Clinical Center of Kragujevac<br />

Zmaj Jovina 30<br />

Dr. Nebojsa Andjelkovic<br />

Dr. Zoran Igrutinovic<br />

Tel. +381 34 505 050<br />

Kraljevo<br />

Medical Center<br />

Jug Bogdanova 112<br />

Dr. Milan Tasic<br />

Tel: +381 36 301 783<br />

Serbia<br />

177

Serbia<br />

Krusˇevac<br />

Medical Center<br />

Kosovska 16<br />

Dr. Milutin Kamatović<br />

Tel: +381 37 414 037<br />

Leskovac<br />

General Hospital<br />

Svetozara Markovica 116<br />

Dr. Mirjana Mladenovic<br />

Tel: +381 16 3452 500<br />

Nis<br />

Hematology Clinic<br />

Bulevar Dr Zorana Djindjica 48<br />

Prim. Dr. Tomislav Vukićević<br />

Prim. Dr. Gordana Kostic<br />

Tel: +381 18 506 900<br />

Novi Sad<br />

Clinical Centre of Vojvodina<br />

Hajduk Veljkova 1<br />

Prof. Dr. Stevan Popović<br />

Tel: +381 21 4843 484<br />

Institute for Child & Youth<br />

Health <strong>Care</strong><br />

Hajduk Veljkova 10<br />

Prof. Dr. Nada Konstantinidis<br />

Tel: +381 21 6615 200<br />

178<br />

Pancevo<br />

Medical Center<br />

Milosa Trebinjca 11<br />

Tel: +381 12 319 900<br />

Pirot<br />

General Hospital<br />

Vojvode Momcila bb<br />

Tel: +381 10 333 101<br />

Požarevac<br />

General Hospital<br />

Jovana Serbanovica 10-12<br />

Dr. Zoran Mirkovic<br />

Tel: +381 12 223 056<br />

Sombor<br />

General Hospital<br />

Vojvodanska 45<br />

Dr. Radojka Škorić<br />

Tel: +381 25 220 33<br />

Subotica<br />

Medical Center<br />

Izvorska 3<br />

Dr. Gustav Takacč<br />

Tel: +381 24 555 222

Uzice<br />

General Hospital<br />

Milosa Obrenovica 17<br />

Dr. Branka Bajic<br />

Tel: +381 31 562 442<br />

Vranje<br />

Medical Center<br />

J.J Lunge 1<br />

Tel: +381 17 421 550<br />

Vrsac<br />

Medical Center<br />

Abraseviceva bb<br />

Tel: +381 13 839 383<br />

Zrenjanin<br />

Medical Center<br />

Dr. Vase Savica 5<br />

Dr. Lana Stojicevic<br />

Tel: +381 23 513 282<br />

Serbia<br />

179

Slovakia<br />

Bratislava<br />

The National Hemophilia<br />

Centre (NHC)<br />

Institute of Hematology and Blood<br />

Transfusion, University Hospital<br />

Antolská 11<br />

811 03 Bratislava<br />

Ass. Prof. Dr. A. Bátorová<br />

Dr. D. Jankovičová<br />

Tel: +421 2/6867 3340<br />

Tel: +421 2/6867 3341<br />

Fax: +421 2/5363 1454<br />

email: batorova@npba.sk<br />

email: batorova@hotmail.sk<br />

Banská Bystrica<br />

F. D. Roosevelt’s Hospital<br />

Banská Bystrica<br />

Nám. L. Svobodu 1<br />

975 19 Banská Bystrica<br />

Department of Hematology<br />

Dr. A. Wild<br />

Dr. M. Žarnovičanová<br />

Tel: +421 48/441 2180<br />

Tel: +421 48/472 6502<br />

email: awild@nspbb.sk<br />

Teaching Pediatric Hospital<br />

Banská Bystrica<br />

Nám. L. Svobodu 4<br />

974 09 Banská Bystrica<br />

Department of Hematology<br />

Dr. E. Bubánska (Children)<br />

Tel: +421 48/472 6502<br />

Fax: +421 48/472 6549<br />

email: ebubanska@dfnbb.sk<br />

180<br />

Koˇsice<br />

Teaching Hospital Košice<br />

Tr. SNP 1<br />

040 01 Košice<br />

Department of Hematology<br />

Dr. E. Švorcová<br />

Dr. I. Duľová<br />

Tel: +421 55/640 4423<br />

Teaching Pediatric Hospital Košice,<br />

Department of Hematology<br />

Dr. K. Trebuňová<br />

Dr. N. Galóová<br />

Tel: +421 55/640 2256<br />

Tel: +421 55/640 3999<br />

Martin<br />

Martin’s Faculty Hospital and<br />

Jesenius School of Medicine,<br />

Comenius University<br />

National Centre for Haemostasis<br />

and Thrombosis<br />

Kollárova 2<br />

036 59 Martin<br />

Prof. Dr. Peter Kubisz, D.Sc.<br />

Dr. I. Plameňová (Children)<br />

Tel: +421 43/420 3806<br />

Tel: +421 43/420 3519

Ljubljana<br />

Nacionalni Center<br />

za Hemofilijo Slovenije<br />

Bohoriceva 20<br />

1000 Ljubljana<br />

Dr. Majda Benedik Dolnicar<br />

Tel: +386 1/522 9305<br />

Fax: +386 1/522 9294<br />

email: hemofilija@siol.net<br />

Zavod RS za<br />

Transfuzijsko Medicino<br />

Slajmerjeva 6<br />

1000 Ljubljana<br />

Dr. Dragoslav Domanovic<br />

Tel: +386 1/543 8100<br />

Fax: +386 1/230 2224<br />

email: dragoslav.domanovic@ztm.si<br />

Slovenia<br />

181

South Africa<br />

SOUTH AFRICA<br />

Cape Town<br />

Red Cross Children’s Hospital<br />

Cnr Klipfontein & Milner Road<br />

Rondebosch, 7700<br />

Dr. Ferida Desai<br />

Dr. Alan Davidson<br />

Dr. Marc Hendriks<br />

Dr. Paddy Hartley (Director)<br />

Tel: +27 (0)21 658 5297<br />

Tel: +27 (0)21 686 7860<br />

Groote Schuur Hospital<br />

Health Park<br />

Main Road<br />

Observatory, 7925<br />

Department of Haematology, E5<br />

Prof. Navitsky<br />

Dr. Cecille du Toit<br />

Dr. Andrew Macdonald<br />

Mr. Bradley Rayner<br />

Tel: +27 (0)21 404 3084<br />

Tel: +27 (0)21 404 9111<br />

Tygerberg Hospital<br />

Fransie van Zyl Ave.<br />

Bellville, 7505<br />

Department of Paediatrics<br />

Block X<br />

Prof. Hessling<br />

Dr. A Dippenaar<br />

Dr. Bassa<br />

Dr. Gerhard Sissolak<br />

Prof. Glynn Wessels (Director)<br />

Tel: +27 (0)21 938 5888<br />

Tel: +27 (0)21 938 4911<br />

182<br />

Port Elizabeth<br />

Livingstone Hospital<br />

Stanford Road<br />

Korsten<br />

Port Elizabeth, 6020<br />

Dr. Allam<br />

Tel: +27 (0)41 405 9111<br />

Tel: +27 (0)41 406 4312<br />

Provincial Hospital<br />

46 Newington Road<br />

Port Elizabeth, 6000<br />

Dr. Neil Littleton<br />

Dr. Hilda-Marie Nel<br />

Tel: +27 (0)41 392 3535<br />

Tel: +27 (0)41 392 3911<br />

Dora Nginza Hospital<br />

Spondo St.<br />

Swide<br />

Port Elizabeth, 6201<br />

Dr. R. Mitchel<br />

Tel: +27 (0)41 406 4111

Mthata (Umtata)<br />

Walter Sisulu University<br />

Rural Clinic Only<br />

Sibangweni A/A<br />

Mthata<br />

Department of Haematology<br />

Prof. Adam Targonski<br />

Prof. Basil Orgunsanwo<br />

Dr. N. Tjonjeni<br />

Tel: +27 (0)47 502 4769<br />

Bloemfontein<br />

Netcare Universitas Hospital<br />

University of the Freestate<br />

1 Logeman St.<br />

Bloemfontein, 9301<br />

Department of Paediatrics<br />

Dr. F. Pienaar<br />

Prof. David Stones (Director)<br />

Tel: +27 (0)51 405 2820<br />

Department of Haemotology,<br />

Adults G2<br />

Dr. P. Jooste<br />

Prof. Marius Coetzee (Director)<br />

Tel: +27 (0)51 405 3116<br />

GAUTENG<br />

Johannesburg<br />

Chris Hani<br />

Baragwanath Hospital<br />

R68 Old Potchefstroom Road<br />

Soweto<br />

Johannesburg, 2013<br />

Dr. Vanitha Phillip<br />

Dr. Linda Wainwright<br />

Prof. Moosa Patel<br />

Dr. Poyidas<br />

Tel: +27 (0)11 938 1454<br />

Tel: +27 (0)11 933 8000<br />

Life Flora Clinic<br />

William Nicol Drive<br />

Floracliffe, Florida<br />

Johannesburg, 1709<br />

Dr. Karen Gunther<br />

Tel: +27 (0)11 475 8451<br />

Tel: +27 (0)11 470 4777<br />

Johannesburg Hospital<br />

Queens Road<br />

Parktown<br />

Johannesburg 2000<br />

<strong>Haemophilia</strong> Clinic, Ward 294<br />

Dr. Rosemarie Schwyzer<br />

Prof. Johnny Mahlangu<br />

Tel: +27 (0)11 488 3294<br />

Tel: +27 (0)11 488 4911<br />

South Africa<br />

183

South Africa<br />

Pretoria<br />

University of Limpopo<br />

Medunsa University Campus<br />

Mogoloketsi St.<br />

Medunsa<br />

Pretoria, 0204<br />

Dr. Gary Culligan<br />

Dr. Dennis Mimbulu<br />

Dr. Vinola Naidoo<br />

Tel: +27 (0)12 521 5793<br />

Tel: +27 (0)12 521 4111<br />

Pretoria Academic Hospital<br />

Doctor Savage Road<br />

Pretoria, 0001<br />

Department of Paediatrics,<br />

Level D3<br />

Dr. Potgieter<br />

Dr. Karodia<br />

Dr. Johannes Opperman<br />

Dr. M. Esterhuizen<br />

Dr. Logan Naidoo<br />

Tel: +27 (0)12 319 2187<br />

Tel: +27 (0)12 354 1000<br />

184<br />

KWA-ZULU NATAL<br />

Durban<br />

Inkosi Albert Lethuli<br />

Central Hospital<br />

800 Bellair Road<br />

Cator Manor<br />

Mayville, 4091<br />

Dr. Yasmin Goga<br />

Dr. Singh<br />

Dr. N. Sewpersad<br />

Dr. Rampersadt<br />

Prof. V. Jogessar<br />

Tel: +27 (0)31 240 1536<br />

Tel: +27 (0)31 240 1000<br />

Netcare Parklands Hospital<br />

75 Hopelands Road<br />

Overport<br />

Durban, 4001<br />

Oncology / Paediatric Haematology<br />

Dr. M. Vaithilingum<br />

Dr. Dya Moodley<br />

Tel: +27 (0)31 209 2212<br />

Tel: +27 (0)31 242 4000<br />

King Edward VIII Hospital<br />

Cnr Sydney & Rick Turner Road<br />

Congella<br />

Durban<br />

Department of Paediatrics and Adults<br />

Dr. Rampiti<br />

Dr. R. Thejpal (Director)<br />

Tel: +27 (0)31 360 3093<br />

Tel: +27 (0)31 360 3021

Pietermaritzburg<br />

Grey’s Hospital<br />

Townbush Road<br />

Pietermaritzburg<br />

Dr. Jim Muller<br />

Tel: +27 (0)33 897 3000<br />

Mobile: +27 (0)82 807 3362<br />

Polokwane (Pietersburg)<br />

Polokwane Mankweng<br />

Hospital Complex<br />

Polokwane Hospital<br />

Cnr of Hospital & Dorp St.<br />

Polokwane<br />

Dr. Nancy Shipalana<br />

Dr. Chris Sutton (Director)<br />

Tel: +27 (0)15 287 5432<br />

Tel: +27 (0)15 287 5000<br />

South Africa<br />

KINGDOM OF LESOTHO<br />

Queen Elizabeth II Hospital<br />

Kingsway Main Road<br />

Lesotho<br />

Dr. Grace Phiri<br />

Dr. Alexander Mojeni<br />

Tel: +266/62 700 700<br />

BOTSWANA<br />

Gaborone<br />

Princess Marina Hospital<br />

Cnr Nelson Mandela & Khama Road<br />

Gaborone<br />

Botswana<br />

Tel: +267/362 1798<br />

185

Spain<br />

ANDALUCIA<br />

Almeria<br />

Hospital “Torre Cárdenas”<br />

Pasaje Torre Cárdenas, s/n<br />

04009 Almeria<br />

Hematología<br />

Dra. Gracìa Vilegas Maldonado<br />

Dr. Francisco Jiménez<br />

Tel: +34 950/21 21 00<br />

Tel: +34 950/01 68 15<br />

Cadiz<br />

Hospital Universitario<br />

“Puerta del Mar”<br />

Avenida Ana de Viya, 21<br />

11009 Cadiz<br />

Hematología<br />

Dra. Carmen de Cos<br />

Dra. Reyes Jiménez Bárcenas<br />

Tel: +34 956/31 07 50<br />

Tel: +34 956/00 21 00<br />

Cadiz (Jerez)<br />

Hospital de Jerez de la Frontera<br />

Ronda Circunvalacion, s/n<br />

11407 Jerez de la Frontera<br />

Cádiz<br />

Hematología<br />

Dra. Rosa Campos<br />

Dr. Eddy Jean Paul<br />

Tel: +34 956/03 20 00<br />

186<br />

Córdoba<br />

Hospital “Reina Sofia”<br />

Avenida Menéndez Pidal, s/n<br />

14004 Córdoba<br />

Hematología<br />

Dr. Antonio Torres Gómez<br />

Dr. Francisco Velasco<br />

Tel: +34 957/21 70 00<br />

Tel: +34 957/01 03 80<br />

Granada<br />

Hospital “Virgen de las Nieves”<br />

Avenida de las Fuerzas Armadas, 2<br />

18012 Granada<br />

Servicio de Hematología-Hemoterapia<br />

Dra. Mª José Gutierrez Pimentel<br />

Dra. Margarita Gómez Morales<br />

Dr. Manuel Jurado Chacón<br />

Dr. Javier Perán Mesa<br />

Dra. Eufemia Sánchez Arcos<br />

Tel: +34 958/02 02 98 (Emergency)<br />

Huelva<br />

Hospital Juan Ramón Jiménez<br />

Ronda Norte, s/n<br />

21005 Huelva<br />

Hematología<br />

Dr. Antonio Amián<br />

Tel: +34 959/01 67 84

Jaen<br />

Hospital Ciudad de Jaen<br />

Avenida del Ejército Español, 10<br />

23007 Jaen<br />

Hematología<br />

Dra. Mª del Mar Nieto Hernandez<br />

Tel: +34 953/00 80 00<br />

Málaga<br />

Hospital General Carlos Haya<br />

Avenida Carlos Haya, s/n<br />

29010 Málaga<br />

Hematología<br />

Dra. Anabel Heiniger Mazo<br />

Dra. Eva Mingot<br />

Dra. Angeles Palomo Bravo<br />

Tel: +34 95/129 11 68<br />

Materno Infantil<br />

Arroyo de los Angeles, s/n<br />

29011 Málaga<br />

Hematología<br />

Dra. Mª Angeles Palomo Bravo<br />

Tel: +34 95/129 00 00<br />

Sevilla<br />

Hospital “Virgen del Rocio”<br />

Avenida Manuel Siurot, s/n<br />

41013 Sevilla<br />

Hematología<br />

Dra. Rosario Pérez<br />

Dr. Ramiro Nuñez<br />

Tel: +34 95/501 22 23<br />

ARAGON<br />

Spain<br />

Zaragoza<br />

Hospital “Miguel Servet”<br />

Paseo Isabel La Católica, 1-3<br />

50009 Zaragoza<br />

Servicio de Hematología<br />

Dr. Jose Felix Lucía<br />

Tel: +34 976/76 55 00<br />

ASTURIAS<br />

Oviedo<br />

Hospital Central de Asturias<br />

Celestino Villamil, s/n<br />

33006 Oviedo<br />

Hematología<br />

Dra. Carmen Rodríguez Pinto<br />

Dra. Inmaculada Soto<br />

Dr. Angel Bernardo Gutiérrez<br />

Dr. José Ramón Cueto<br />

Dra. Mª Angeles Fernández<br />

Tel: +34 98/510 80 15<br />

187

Spain<br />

BALEARES<br />

Palma de Mallorca<br />

Hospital “Son Dureta”<br />

Andrea Doria, 55<br />

07014 Palma de Mallorca<br />

Hematología<br />

Dra. Mariana Canaro<br />

Dr. Bernat Galmes<br />

Dr. Guiomar Puget<br />

Dr. Joan Besalduch Vidal<br />

Dr. Vicente Cortina<br />

Tel: +34 971/17 50 00<br />

CANARIAS<br />

Las Palmas de Gran Canaria<br />

Hospital “Dr. Negrín”<br />

Angel Guimerá, 93<br />

3500 Las Palmas de Gran Canaria<br />

Servicio de Hematología<br />

Dra. Ina Balda<br />

Dra. Teresa Molero<br />

Tel: +34 928/45 00 00<br />

Tel: +34 928/44 93 93 (Emergency<br />

Admission)<br />

188<br />

Santa Cruz de Tenerife<br />

Hospital “Nuestra Señora<br />

de Candelaria-Ofra”<br />

Carretera del Rosario, s/n<br />

38010 Santa Cruz de Tenerife<br />

Servicio de Hematología<br />

Dr. Juan García Talavera<br />

Dra. Carmen Marrero<br />

Dr. Antonio León<br />

Dra. Mercedes Trujillo<br />

Tel: +34 922/60 20 00<br />

CANTABRIA<br />

Santander<br />

Hospital Marqués de Valdecilla<br />

Avenida Valdecilla, s/n<br />

39008 Santander<br />

Servicio de Hematología<br />

Dra. Carmen Sedano<br />

Tel: +34 942/20 25 73<br />

CASTILLA LEON<br />

Avila<br />

Hospital “Nuestra Señora<br />

de Sonsoles”<br />

Ctra. De Madrid, KM109<br />

50001 Avila<br />

Hematología<br />

Dr. Abelardo Barez<br />

Dra. Mª Paz Martínez<br />

Tel: +34 920/35 80 00

Burgos<br />

Hospital General Yagüe<br />

de Burgos<br />

Avenida Del Cid, 96<br />

90005 Burgos<br />

Hematología<br />

Dr. M. Prieto<br />

Tel: +34 947/28 18 00<br />

León<br />

Complejo Asistencial de León<br />

Altos de Nava, s/n<br />

24071 León<br />

Hematología<br />

Dra. Mª Jesús Moro<br />

Dra. Belén Pérez<br />

Dr. Ignacio García<br />

Tel: +34 987/23 74 00<br />

Palencia<br />

Hospital “Río Carrión”<br />

Avenida Ponce de León, s/n<br />

34005 Palencia<br />

Hematología<br />

Dr. Fernando Ortega Rivas<br />

Tel: +34 979/72 29 00<br />

Tel: +34 979/16 10 00<br />

Spain<br />

Salamanca<br />

Hospital “Clinico Universitario”<br />

Pso. San Vicente, 108-182<br />

37007 Salamanca<br />

Hematología<br />

Dr. Ignacio Alberca<br />

Dr. Jesús Sanmiguel<br />

Dr. José Ramón González<br />

Tel: +34 923/29 11 10<br />

Segovia<br />

Hospital de Segovia<br />

Ctra. De Avila, s/n<br />

40002 Segovia<br />

Hematología<br />

Dra. Mª José Calmuntia<br />

Dra. Rosa Fisac Herrero<br />

Tel: +34 921/41 90 75<br />

Soria<br />

Hospital de Santa Bárbara<br />

Paseo Santa Barbara, s/n<br />

42002 Soria<br />

Hematología<br />

Dr. Carlos Aguilar<br />

Tel: +34 975/23 43 00<br />

Valladolid<br />

Hospital “Rio Hortega”<br />

Cardenal Torquemada, s/n<br />

47010 Valladolid<br />

Hematología<br />

Dr. Tortosa<br />

Dr. García Frade<br />

Tel: +34 983/42 04 00<br />

189

Spain<br />

CASTILLA-LA MANCHA<br />

Albacete<br />

Hospital General de Albacete<br />

C/ Hermanos Falcó, 37<br />

02006 Albacete<br />

Hematología<br />

Dra. Montserrat Maicas<br />

Dr. Juan Carlos Gómez García<br />

Tel: +34 967/59 72 32<br />

Ciudad Real<br />

Hospital de Ciudad Real<br />

C/ Obispo Rafael Torija, s/n<br />

13005 Ciudad Real<br />

Hematología<br />

Dra. Mercedes Tomas<br />

Tel: +34 926/27 80 00<br />

Guadalajara<br />

Hospital de Guadalajara<br />

Donantes de Sangre, s/n<br />

19002 Guadalajara<br />

Hematología<br />

Dra. Blanca Pinedo<br />

Dra. Isabel López Sanromán<br />

Tel: +34 949/20 92 00<br />

190<br />

Toledo<br />

Hospital “Virgen de la Salud”<br />

Avenida Barber, 30<br />

45080 Toledo<br />

Hematología<br />

Dr. Jorge Cuesta Tovar<br />

Dra. Rosario Velasco Arribas<br />

Tel: +34 925/26 92 00<br />

CATALUNA<br />

Barcelona<br />

Hospital Traumatología<br />

Vall D’Hebron<br />

Paseo Valle de Hebrón<br />

08035 Barcelona<br />

Unidad de Hemofilia<br />

Dr. Rafael Parra<br />

Dra. Carmen Altisent<br />

Dr. Francisco Vidal<br />

Dra. Cristina Barrenetxea<br />

Dra. Marta Martorell<br />

Tel: +34 93/427 20 00<br />

Hospital Clínico y Provincial,<br />

Unidad de Hemofilia<br />

Villarroel 170<br />

08036 Barcelona<br />

Servicio de Hemoterapia y Hemostasia<br />

Dr. J. Monteagudo<br />

Dr. Juan Carlos Reverter Tarrés<br />

Tel: +34 93/4546 000 (Ext. 2087)

Gerona<br />

Hospital “Alvarez de Castro”<br />

Ctra. de Francia, s/n<br />

17080 Gerona<br />

Hematología<br />

Dr. Vila<br />

Tel: +34 972/20 27 00<br />

Hospital Josep Trueta<br />

Avenida De Francia, s/n<br />

17007 Gerona<br />

Hematología<br />

Dra. Ana Bustins<br />

Tel: +34 972/94 02 00<br />

Lerida<br />

Hospital “Arnau de Vilanova”<br />

Avenida Alcalde Rovira, 80<br />

25080 Lerida<br />

Hematología<br />

Dr. Carmen Araguas<br />

Dra. Ainara Ferrero<br />

Dra. Cristina Marzo<br />

Dra. Judith Sánchez<br />

Dra. Mª Angeles Zarco Gómez<br />

Tel: +34 973/24 81 00<br />

Tarragona<br />

Hospital “Juan XXIII”<br />

Dr. Mallfré Guash, 4<br />

43080 Tarragona<br />

Hematología<br />

Dra. Arantxa Ugarriza<br />

Tel: +34 977/21 15 54<br />

EXTREMADURA<br />

Spain<br />

Badajoz<br />

Hospital “Infanta Cristina”<br />

Avenida de Elvas, s/n<br />

06080 Badajoz<br />

Hematología<br />

Dr. Ramon Vaca<br />

Dra. Nieves Alonso<br />

Dr. Roberto Bajo<br />

Dra. Rosario Rincón<br />

Tel: +34 924/21 81 00<br />

Caceres<br />

Hospital “S. Pedro de Alcantara”<br />

Avda. Millán Astray, s/n<br />

10080 Caceres<br />

Hematología<br />

Dra. Nuria Bermejo<br />

Dr. Juan Berguas<br />

Tel: +34 927/25 62 00<br />

191

Spain<br />

GALICIA<br />

La Coruña<br />

Complejo Hospitalario<br />

Universitario A Coruña<br />

Ctra. de Las Jubias de Arriba, 84, s/n<br />

15006 La Coruña<br />

Hematología<br />

Dr. Javier Batlle<br />

Dra. Mª Fernanda López<br />

Dra. Almudena Pérez Rodríguez<br />

Dra. Angela Rodríguez Trillo<br />

Dra. Esther Láurez Fraga<br />

Tel: +34 981/17 80 00<br />

Lugo<br />

Complejo Hospitalario<br />

Calle Premio Nobel Doctor Ochoa<br />

27004 Lugo (Galicia)<br />

Xeral Calde, Pedrosa Posada<br />

Dr. D. Miguel Angel González López<br />

Dra. Dolores Alvarez López<br />

Tel: +34 982/29 60 00<br />

Pontevedra<br />

Hospital Montecelo<br />

Rua Mourente s/n<br />

36071 Pontevedra<br />

Hematología<br />

Dra. Mª Jose Allegue<br />

Dra. Maria Ferreiro<br />

Tel: +34 986/80 00 00<br />

192<br />

Santiago de Compostela<br />

Clínico Universitario de<br />

Santiago de Compostela<br />

C/ Galeras s/n<br />

15705 A Coruña<br />

Hematología<br />

Dr. JM. Couselo<br />

Dra. Susana Pérez Crespo<br />

Dr. Manuel Vázquez<br />

Tel: +34 981/58 52 00<br />

Vigo<br />

Hospital “Xeral Cies”<br />

Pizarro, 22<br />

36204 Vigo, Pontevedra<br />

Servicio de Hematología<br />

Dra. Rosario González Boullosa<br />

Dr. Alejandro Martínez Dalmau<br />

Dra. Ana Margarita Martínez Castro<br />

Dra. Laura Fuentes<br />

Tel: +34 986/81 60 00

MADRID<br />

Madrid<br />

Hospital “La Paz”<br />

Pso. de la Castellana, 261<br />

28046 Madrid<br />

Hematología, Centro de<br />

Coagulopatias Congenitas<br />

Dr. Victor Jimenez Yuste<br />

Dra. Mª Teresa Alvarez Román<br />

Dra. Monica Martin Salces<br />

Tel: +34 91/72 77 000<br />

MURCIA<br />

Murcia<br />

Hospital Universitario<br />

“Virgen de la Arrixaca”<br />

Carretera Madrid-Cartagena, s/n<br />

30120 El Palmar, Murcia<br />

Hematología<br />

Dr. Manuel Moreno<br />

Dr. Faustino García<br />

Dr. Alfonso Morales<br />

Tel: +34 968/36 95 00<br />

NAVARRA<br />

Spain<br />

Pamplona<br />

Hospital “Virgen del Camino”<br />

Calle Irunlarrea, 4<br />

31008 Pamplona, Navarra<br />

Hematología<br />

Dra. María José Paloma<br />

Dra. Margarita Redondo<br />

Tel: +34 948/42 94 00<br />

Tudela<br />

Hospital Reina Sofía<br />

Ctra. Tarazona, km.<br />

31500 Tudela (Navarra)<br />

Dr. José Domingo Morera<br />

Tel: +34 948/81 70 00<br />

PAIS VASCO<br />

San Sebastian<br />

Hospital de Donostia<br />

Paseo Doctor Beguiristain, s/n<br />

20014 San Sebastian<br />

Guipuzcoa<br />

Servicio de Hematología<br />

Dr. Antonio Mendibil<br />

Dra. Carmen Arratibel<br />

Dra. Arantxa Aguirre<br />

Dr. José Ramón Furundarela<br />

Dra. Nerea Uresandi<br />

Tel: +34 943/44 70 00<br />

193

Spain<br />

Vitoria-Gasteiz<br />

Hospital “Txagorritxu”<br />

Calle José Atxotegui, s/n<br />

01009 Vitoria-Gasteiz<br />

Alava<br />

Servicio de Hematología<br />

Dr. Carlos Pérez Calusell<br />

Dr. Roberto Hernandez<br />

Dr. José Guinea de Castro<br />

Tel: +34 945/24 26 00<br />

Vizcaya-Bilbao<br />

Hospital “De Cruces”<br />

(Baracaldo)<br />

Plaza de Cruces<br />

48080 Bilbao<br />

Hematología<br />

Dra. Gemma Iruin<br />

Dr. Juan Carlos García Ruíz<br />

Tel: +34 94/485 00 86<br />

LA RIOJA<br />

Logroño<br />

Hospital “San Pedro”<br />

Piqueras, 98<br />

26006 Logroño<br />

Hematología<br />

Dra. Pilar Rabasa<br />

Dr. José María La Peña<br />

Tel: +34 941/29 45 00<br />

194<br />

COMUNIDAD VALENCIANA<br />

Alicante<br />

Hospital “General”<br />

Maestro Alonso, 109<br />

03080 Alicante<br />

Hematología<br />

Dr. Marcos Vera Pascual<br />

Tel: +34 96/59 08 300<br />

Castellon<br />

Hospital “General”<br />

Avda. Benicasim, s/n<br />

12080 Castellon<br />

Hematología<br />

Dr. Guillermo Cañigral<br />

Tel: +34 964/21 10 00<br />

Valencia<br />

Hospital “La Fe”<br />

Avda. Campanar, 21<br />

46009 Valencia<br />

Hematología<br />

Dr. J. Antonio Aznar<br />

Dr. Saturnino Haya<br />

Dra. Ana Cid<br />

Dr. Felipe Querol<br />

Dra. Mª Angeles Dasí<br />

Tel: +34 96/38 62 700

Göteborg<br />

Sahlgrenska University Hospital<br />

Per Dubbsgatan 15<br />

41345 Göteborg<br />

Hemophilia Centre<br />

Dr. Fariba Baghaei<br />

Dr. Michael Damgaard<br />

Dr. Anna Olsson<br />

Tel: +46 (0) 31-342 10 00<br />

Malmö<br />

University Hospital MAS<br />

Södra Förstadsgatan 101<br />

20502 Malmö<br />

Dept. for Coagulation Disorders<br />

Dr. Erik Berntorp<br />

Dr. Jan Astermark<br />

Dr. Rolf Ljung (Pediatric)<br />

Tel: +46 (0) 40-33 10 00<br />

Stockholm<br />

Karolinska University Hospital<br />

Karolinska Way<br />

Solna<br />

17176 Stockholm<br />

Coagulation Unit, Dept. of Hematology<br />

Dr. Margareta Holmström<br />

Dr. Pia Petrini (Pediatric)<br />

Dr. Tony Frisk (Pediatric)<br />

Tel: +46 (0) 8-517 700 00<br />

Sweden<br />

195

Switzerland<br />

Aarau<br />

Kantonsspital Aarau<br />

Tellstrasse<br />

CH-5001 Aarau<br />

Erwachsenen Hämophilie-Zentrum<br />

Zentrum für Onkologie/Hämatologie<br />

und Transfusionsmedizin<br />

Dr. M. Heizmann<br />

Tel: +41 62/838 60 50 (Bürozeiten,<br />

Hämophilie-Verantwortlichen verlangen)<br />

Tel: +41 62/838 41 41 (Notfall/<br />

Telefonzentrale, Dienstarzt Onkologie/<br />

Hämophilie)<br />

Fax: +41 62/838 60 52<br />

email: marc.heizman@ksa.ch<br />

Kinder Hämophilie-Zentrum<br />

Dr. R. Angst<br />

Tel: +41 62/838 49 11<br />

Tel: +41 62/838 49 19 (Notfall)<br />

Fax: +41 62/838 47 09<br />

email: regula.angst@ksa.ch<br />

Basel<br />

Universitätsspital Basel<br />

Petersgraben 4<br />

CH-4031 Basel<br />

Hämophilie-Behandlungszentrum<br />

für Erwachsene/Hämatologie<br />

Prof. Dr. D.A. Tsakiris<br />

Tel: +41 61/265 57 47<br />

Tel: +41 61/265 25 25 (Notfall/<br />

Telefonzentrale, Dienstarzt Hämostase)<br />

Fax: +41 61/265 42 50<br />

email: dtsakiris@uhbs.ch<br />

196<br />

Universitätskinderspital<br />

beider Basel<br />

Römergasse 8<br />

CH-4005 Basel<br />

Kinder Hämophilie-Zentrum<br />

Abteilung Onkologie, Hämatologie<br />

Prof. Dr. Th. Kühne<br />

Tel: +41 61/685 65 65<br />

Tel: +41 61/685 62 72 (Notfall/ Station<br />

Pädiatrie Diensthämatologen)<br />

Fax: +41 61/685 65 66<br />

email: thomas.kuehne@ukbb.ch<br />

Bern<br />

Inselspital,<br />

Universitätsspital Bern<br />

Freiburgstrasse<br />

CH-3010 Bern<br />

Erwachsenen Hämophilie-Zentrum<br />

Poliklinik für Hämatologie<br />

Prof. Dr. B. Lämmle<br />

Dr. K. Peter<br />

Tel: +41 31/632 33 01<br />

Tel: +41 31/632 11 52<br />

Tel: +41 31/632 21 11 (Notfall/<br />

Hämatologischen Dienstarzt)<br />

Fax: +41 31/632 93 66<br />

email: bernhard.laemmle@insel.ch<br />

email: kristiina.peter@insel.ch<br />

Kinder Hämophilie-Zentrum<br />

Kinderklinik G7N<br />

Prof. Dr. A. Hirt<br />

Prof. Dr. K. Leibundgut<br />

Tel: +41 31/632 04 64<br />

Tel: +41 31/632 93 72 (Notfall/ Hämatologie-<br />

Oberarzt)<br />

Fax: +41 31/632 04 63<br />

email: andreas.hirt@insel.ch<br />

email: kurt.leibundgut@insel.ch

Kinder Hämophilie-Zentrum<br />

Seftigenstrasse 240<br />

CH-3084Wabern<br />

Praxis Dr. R. Kobelt / Facharzt für<br />

Kinder & Jugendliche<br />

Dr. R. Kobelt<br />

Tel: +41 31/961 61 15<br />

Tel: +41 31/961 61 15 (Notfall)<br />

Fax: +41 31/961 60 51<br />

email: haemophilie@haemolager.ch<br />

Chur<br />

Erwachsene und Kinder<br />

Kantonsspital Graubünden<br />

Loestrasse 170<br />

CH-7000 Chur<br />

Blutspendezentrum SRK<br />

Dr. Th. Schulzki<br />

Tel: +41 81/353 15 54<br />

Tel: +41 81/256 61 11 (Notfall)<br />

Fax: +41 81/353 12 80<br />

email: thomas.schulzki@ksgr.ch<br />

Genève<br />

Hôpitaux Universitaires<br />

de Genève<br />

Rue Gabrielle-Perret-Gentil 4<br />

CH-1205 Genève<br />

Unité d’Hémostase Hémophilie Adulte<br />

Prof. Dr. Ph. de Moerloose<br />

PD Dr. F. Boehlen<br />

Tel: +41 22/372 97 54<br />

Tel: +41 22/372 33 11 (24 Heures/ Service<br />

d’Angiologie-Hémostase)<br />

Fax: +41 22/372 98 91<br />

email: philippe.demoerloose@hcuge.ch<br />

email: francoise.boehlen@hcuge.ch<br />

Switzerland<br />

Hôpital des Enfants Genève<br />

RueWilli-Donzé 6<br />

CH-1205 Genève<br />

Policlinique de Pédiatrie<br />

PD Dr. A. H. Ozsahin<br />

Tel: +41 22/372 47 31<br />

Tel: +41 22/382 45 55 (24 Heures/<br />

l’Hématologue Pédiatrique)<br />

Fax: +41 22/382 47 20<br />

email: ayse.h.ozsahin@hcuge.ch<br />

Lausanne<br />

Centre Hospitalier Universitaire<br />

Vaudois (CHUV)<br />

Rue du Bugnon<br />

CH-1011 Lausanne<br />

Centre d’Hémophilie Adulte<br />

Service d’Hématologie<br />

Prof. Dr. A. Angelillo-Scherrer<br />

Tel: +41 21/314 11 11 (l’Hématologue)<br />

Tel: +41 21/314 42 59 (24 Heures)<br />

Fax: +41 21/314 41 80<br />

email: anne.angelillo-scherrer@chuv.ch<br />

Centre d’Hémophilie Enfants<br />

Service de Pédiatrie, Unité<br />

d’Onco-Hématologie<br />

PD Dr. N. von der Weid<br />

Dr. M. Beck-Popovic<br />

Tel: +41 21/314 35 90<br />

Tel: +41 21/314 37 38 (24 Heures/<br />

Spécialiste de garde pour l’Hématologie péd.)<br />

Fax: +41 21/314 33 32<br />

email: nicolas.von-der-weid@chuv.ch<br />

email: maja.beck-popovic@chuv.ch<br />

197

Switzerland<br />

Luzern<br />

Luzerner Kantonsspital<br />

Spitalstrasse<br />

CH-6004 Luzern<br />

Erwachsenen Hämophilie-Zentrum<br />

Abteilung Hämatologie<br />

Prof. Dr. W.Wuillemin<br />

Dr. P. Raddatz Müller<br />

Tel: +41 41/205 51 47 (Dienstarzt<br />

Hämatologie)<br />

Tel: +41 41/205 11 11 (Notfall Nachts/<br />

Dienstarzt Hämatologie)<br />

Fax: +41 41/205 52 97<br />

email: walter.wuillemin@ksl.ch<br />

email: pascale.raddatz@ksl.ch<br />

Kinder Hämophilie-Zentrum<br />

PD Dr. J. Rischewski<br />

Dr. P. Imahorn<br />

Tel: +41 41/205 11 11 (Notfall Nachts/<br />

Dienstarzt Pädiatrie)<br />

Fax: +41 41/205 31 90<br />

email: johannes.rischewski@ksl.ch<br />

email: patrick.imahorn@ksl.ch<br />

198<br />

St. Gallen<br />

Kantonsspital St. Gallen<br />

Rorschacherstrasse 95<br />

CH-9007 St. Gallen<br />

Erwachsenen Hämophilie-Zentrum<br />

Institut für Klinische Chemie und<br />

Hämatologie<br />

PD Dr. W. Korte<br />

Dr. L. Schmid<br />

Tel: +41 71/494 39 04<br />

Tel: +41 71/494 11 11 (Notfall)<br />

Fax: +41 71/494 39 00<br />

email: wolfgang.korte@ikch.ch<br />

email: luzius.schmid@ikch.ch<br />

Ostschweizer Kinderspital<br />

Claudiusstrasse 6<br />

CH-9006 St. Gallen<br />

Kinder Hämophilie-Zentrum<br />

Hämatologie und Onkologie<br />

Dr. J. Greiner<br />

Dr. H. Hengartner<br />

Tel: +41 71/243 71 11<br />

Tel: +41 71/243 71 50 (Notfall)<br />

Mobile: +41 (0)79 816 88 29 (Hämatologie<br />

Notfall)<br />

Fax: +41 71/243 73 90<br />

email: jeanette.greiner@kispisg.ch<br />

email: heinz.hengartner@kispisg.ch

Zürich<br />

Universitätsspital Zürich<br />

Rämistrasse 100<br />

CH-8091 Zürich<br />

Erwachsenen Hämophilie-Zentrum<br />

Ambulatorium für Gerinnung AUFN D17<br />

Dr. B. Brand<br />

Tel: +41 44/255 30 97<br />

Tel: +41 44/255 22 94<br />

Tel: +41 44/255 11 11 (Notfall/ Dienstarzt<br />

Hämatologie)<br />

Fax: +41 44/255 45 45<br />

email: brigit.brand@usz.ch<br />

Kinderspital Zürich<br />

Universitäts-Kinderkliniken<br />

Steinwiesstrasse 75<br />

CH-8032 Zürich<br />

Kinder Hämophilie-Zentrum<br />

PD Dr. M. Schmugge<br />

PD Dr. M. Albisetti<br />

Tel: +41 44/266 71 11<br />

Tel: +41 44/266 71 11 (Notfall/ Hämophilie-<br />

Hintergrunddienst)<br />

Fax: +41 44/266 71 71<br />

email: markus.schmugge@kispi.uzh.ch<br />

email: manuela.albisetti@kispi.uzh.ch<br />

Switzerland<br />

199

Taiwan<br />

Taipei<br />

NTUH (National Taiwan<br />

University Hospital)<br />

1 Chung-Te Street<br />

Taipei 100<br />

Hemophilia Treatment Centre<br />

Dr. Woei Tsay<br />

Ms. Ruth Ke<br />

Tel: +886 2/2312 3456 (Ext. 62896)<br />

Tel: +886 2/2356 2896<br />

TSGH<br />

(Tri-Service General Hospital)<br />

325 Chenggong Road, Sec. 2<br />

Neihu District, Taipei 114<br />

HCRC<br />

(Hemophilia <strong>Care</strong> & Research Centre)<br />

Dr. Shin-Nan Cheng<br />

Dr. Yeu-Chin Chen<br />

Ms. Hsiao-Chuan Lee<br />

Tel: +886 2/8792 1038<br />

Tel: +886 932 207 231<br />

Fax: +886 2/8792 1192<br />

SKMH (Shin Kong Wu Ho-Su<br />

Memorial Hospital)<br />

95 Wen Chang Road<br />

Shih Lin District, Taipei City<br />

Hemophilia Treatment Clinic<br />

Dr. Ka-Ee Ling<br />

Ms. Yu-Yun Huang<br />

Tel: +886 975 307 232<br />

200<br />

Changhua<br />

CCH<br />

(Changhua Christian Hospital)<br />

135 Nanhsiao Street<br />

Changhua 500<br />

Hemophilia & Thrombosis Centre<br />

Dr. Ming-Ching Shen<br />

Tel: +886 4/723 8595<br />

Kaohsiung<br />

KMUH (Kaohsiung Medical<br />

University Hospital)<br />

100 Tzyou 1st Road<br />

Kaohsiung 807<br />

Special Service for Hereditary<br />

Hematological Diseases<br />

Dr. Tai-Tsung Chang<br />

Tel: +886 7/3121 101 (Ext. 7075)<br />

San-An Hospital<br />

177 Meishu E. 2nd Road<br />

Gushan District<br />

Kaohsiung City 804<br />

Hemophilia Treatment Centre<br />

Dr. Shih-Bin Tseng<br />

Tel: +886 921 570 266

Bangkok<br />

Faculty of Medicine,<br />

Ramathibodi Hospital<br />

Mahidol University<br />

270 Rama VI Road<br />

Ratchathewi<br />

Bangkok 10400<br />

Bangkok International Hemophilia<br />

Training Centre<br />

Dr. P. Angchaisuksiri (Adults)<br />

Prof. A. Chuansumrit (Director/Paediatrics)<br />

Tel: +66 2/201 1748<br />

Tel: +66 2/201 1749<br />

Fax: +66 2/201 1850<br />

email: raajs@mahidol.ac.th<br />

Thailand<br />

201

Turkey<br />

Ankara<br />

Gazi University<br />

Besevler Ankara<br />

Department of Pediatric Haematology<br />

Prof. Dr. Turkiz Gursel<br />

Tel: +90 312/213 4970<br />

email: turkiz@gazi.edu.tr<br />

Ankara Hemophilia Society<br />

Prof. Dr. Turkiz Gursel<br />

Tel: +90 505/452 6272<br />

Istanbul<br />

Istanbul University<br />

Cerrahpasa Faculty of Medicine<br />

34098, Cerrahpasa<br />

Istanbul<br />

Department of Pediatric Haematology<br />

Prof. Dr. Bulent Zulfikar<br />

Tel: +90 212/215 6161<br />

Tel: +90 532/650 8590<br />

email: bzulfikar@superonline.com<br />

Department of Haematology<br />

Prof. Dr. Zafer Baslar<br />

Tel: +90 212/414 3280<br />

202<br />

Turkish Society of Hemophilia<br />

Zeyrek Mah. Atatürk Bulvarı Kendir Sk.<br />

(SSK Binaları Arası) No: 9/B<br />

34083 Unkapanı, Fatih<br />

Istanbul<br />

Prof. Dr. Bulent Zulfikar<br />

Tel: +90 212/524 0645<br />

Tel: +90 212/621 1199<br />

Tel: +90 533/467 9201<br />

email: info@turkhemoder.org<br />

email: turkhemoder@hotmail.com<br />

website: www.turkhemoder.org<br />

Marmara Hemophilia Society<br />

Prof. Dr. Zafer Baslar<br />

Prof. Dr. Omer Devecioglu<br />

Tel: +90 532/447 4247<br />

Tel: +90 532/233 2547<br />

Izmir<br />

Ege University<br />

Faculty of Medicine<br />

35100 Bornova<br />

Izmir<br />

Department of Pediatric Haematology<br />

Prof. Dr. Kaan Kavakli<br />

Tel: +90 232/390 1017

The Federation of the<br />

Hemophilia Societies<br />

275/11 Sokak No:23 B-Blok 7/1 75<br />

Yıl Sitesi Zemin Kat<br />

Manavkuyu<br />

Bornova, Izmir<br />

Ege Hemophilia Society<br />

Prof. Dr. Kaan Kavakli<br />

Tel: +90 232/348 5750<br />

Tel: +90 232/388 9900<br />

Tel: +90 542/432 8738<br />

email: kaan.kavakli@ege.edu.tr<br />

email: info@hedef-tr.org<br />

Website: www.egehemoder.org<br />

Website: www.hedef-tr.org<br />

Antalya<br />

Akdeniz University Hospital,<br />

Faculty of Medicine<br />

Dumlupinar Bulvari<br />

Antalya<br />

Department of Pediatric Haematology<br />

Prof. Dr. Akif Yesilipek<br />

Tel: +90 242/227 4343 (Ext.33511)<br />

Akdeniz Hemophilia Society<br />

Prof. Dr. Akif Yesilipek<br />

Ass. Prof. Dr. Alphan Kupesiz<br />

Tel: +90 532/283 6237<br />

Tel: +90 532/701 6033<br />

email: yesilipek@akdeniz.edu.tr<br />

email: akupesiz@akdeniz.edu.tr<br />

Turkey<br />

Adana<br />

Cukurova University Hospital<br />

Faculty of Medicine<br />

Adana<br />

Department of Pediatric Haematology<br />

Prof. Dr. Yurdanur Kilinc<br />

Tel: +90 322/338 6060 (Ext. 3117)<br />

Cukurova Hemophilia Society<br />

Prof. Dr. Yurdanur Kilinc<br />

Prof. Dr. Bulent Antmen<br />

Tel: +90 532/627 9373<br />

Tel: +90 532/234 8164<br />

email: kyurdnur@cu.edu.tr<br />

email: bantmen@cu.edu.tr<br />

Kocaeli<br />

Kocaeli University Hospital<br />

Faculty of Medicine<br />

Umuttepe Merkez Yerleşkesi<br />

41380 Umuttepe<br />

Kocaeli<br />

Department of Pediatric Haematology<br />

Prof. Dr. Nazan Sarper<br />

Tel: +90 262/303 7216<br />

Kocaeli Hemophilia Society<br />

Yahya Kaptan Hanımeli<br />

Kültür Merkezi<br />

Izmit<br />

Prof. Dr. Nazan Sarper<br />

Tel: +90 542/232 8884<br />

email: nazan_sarper@hotmail.com<br />

Website: www.kocaelihemofili.org<br />

203

Turkey<br />

Samsun<br />

Ondokuz Mayis<br />

Hemophilia Society<br />

Kurupelit<br />

Samsun<br />

Department of Pediatric<br />

Haematology Oncology<br />

Ass. Prof. Dr. Tunc Fisgin<br />

Tel: +90 362/312 1919 (Ext. 3658)<br />

Tel: +90 506/508 5577<br />

email: fisgint@yahoo.com<br />

204

ENGLAND<br />

Ashford<br />

Haematology Laboratory<br />

Ashford Hospital<br />

London Road<br />

Ashford<br />

Middlesex, TW15 3AA<br />

Dr. A. S. Laurie<br />

Tel: +44 (0)1784 884 497<br />

Barnstaple<br />

North Devon District Hospital,<br />

Department of Haematology<br />

Raleigh Park<br />

Barnstaple<br />

Devon, EX31 4JB<br />

North Devon <strong>Haemophilia</strong> Centre<br />

Dr. B. Attock<br />

Sr. M. Bowyer<br />

Tel: +44 (0)1271 322 322<br />

Tel: +44 (0)1271 322 577 (After Hours/<br />

Emergency)<br />

Fax: +44 (0)1271 322 328<br />

United<br />

Kingdom<br />

Basingstoke<br />

North Hampshire Hospital<br />

Uplands House, Aldermaston Road<br />

Basingstoke<br />

Hampshire, RG24 9NA<br />

The North Hampshire<br />

<strong>Haemophilia</strong> Centre<br />

Dr. S. Rangarajan<br />

Sr. Y. Stebbings<br />

Tel: +44 (0)1256 314 793<br />

Tel: +44 (0)1256 314 202 (After Hours)<br />

Fax: +44 (0)1256 313 420<br />

Bath<br />

Royal United Hospital<br />

Coombe Park<br />

Bath, BA1 3NG<br />

Bath <strong>Haemophilia</strong> Centre,<br />

Area Central Laboratory<br />

Dr. C. Knechtli<br />

Tel: +44 (0)1225 428 331<br />

Tel: +44 (0)1225 824 700<br />

Fax: +44 (0)1225 461 044<br />

Bedford<br />

Bedford General Hospital<br />

(South Wing)<br />

Kempston Road<br />

Bedford, MK42 9DJ<br />

Bedford <strong>Haemophilia</strong> Centre,<br />

Department of Pathology<br />

Dr. D. T. Howes<br />

Dr. V. Neil<br />

Tel: +44 (0)1234 355 122<br />

Tel: +44 (0)1234 792 145 (DDI)<br />

Fax: +44 (0)1234 792 161<br />

205

United<br />

Kingdom<br />

Birmingham (Adults)<br />

Queen Elizabeth Hospital<br />

<strong>Haemophilia</strong> Centre<br />

3rd Floor<br />

Edgbaston<br />

Birmingham, B15 2TH<br />

West Midlands Region Adult<br />

Dr. J. T. Wilde<br />

Dr. W. Lester<br />

Sr. T. Dunkley<br />

Tel: +44 (0)121 627 2353<br />

Tel: +44 (0)121 472 1311 (After Hours – ask<br />

for on call haematologist)<br />

Fax: +44 (0)121 697 8497<br />

Birmingham (Children)<br />

The Birmingham Children’s<br />

Hospital NHS Trust<br />

Steelhouse Lane<br />

Birmingham, B4 6NH<br />

Paediatric <strong>Haemophilia</strong> Centre<br />

Dr. M. D. Williams<br />

Dr. J. Motwani<br />

Sr. D. Marshall<br />

Sr. P. Nyatanga<br />

Tel: +44 (0)121 333 9150 / 9153<br />

(<strong>Haemophilia</strong> Unit)<br />

Tel: +44 (0)121 333 9999<br />

(After Hours – ask for on call haematologist)<br />

Tel: +44 (0)121 333 9843<br />

(DDI: Sec. to Dr. M. D. Williams)<br />

Fax: +44 (0)121 333 9841<br />

(Haematology Dept.)<br />

206<br />

Blackburn<br />

Blackburn Royal Infirmary<br />

Bolton Road<br />

Blackburn<br />

Lancashire, BB2 3LR<br />

Department of Haematology<br />

Dr. D. A. Newsome<br />

Tel: +44 (0)1254 263 555<br />

Tel: +44 (0)1254 294 105<br />

Fax: +44 (0)1254 687 310<br />

Bournemouth/Poole<br />

Poole Hospital,<br />

Department of Haematology<br />

Longfleet Road<br />

Poole, BH15 2JB<br />

Bournemouth and Poole<br />

<strong>Haemophilia</strong> Centre<br />

Dr. J. Mainwearing<br />

Tel: +44 (0)1202 704 790<br />

Tel: +44 (0)1202 303 626 (Ext. 4722)<br />

(After Hours/Emergency)<br />

Fax: +44 (0)1202 448 659

Bradford<br />

Bradford Royal Infirmary<br />

Duckworth Lane<br />

Bradford<br />

West Yorkshire, BD9 6RJ<br />

Bradford <strong>Haemophilia</strong> Centre<br />

Dr. S. Ackroyd<br />

Dr. A. Minford<br />

Sr. S. Smith<br />

Tel: +44 (0)1274 364 203<br />

(<strong>Haemophilia</strong> Secretary)<br />

Tel: +44 (0)1274 364 366 (Adults)<br />

Tel: +44 (0)1274 382 311<br />

(Childrens – After Hours/Emergency)<br />

Fax: +44 (0)1274 364 268<br />

Brighton<br />

Royal Sussex County Hospital<br />

Eastern Road<br />

Brighton<br />

Sussex, BN2 5BE<br />

Brighton <strong>Haemophilia</strong> Centre<br />

Dr. J. Duncan<br />

Tel: +44 (0)1273 664 658<br />

Tel: +44 (0)1273 696 955 (After Hours – ask<br />

for on call haematologist)<br />

Fax: +44 (0)1273 664 792<br />

United<br />

Kingdom<br />

Bristol (Adults)<br />

Bristol <strong>Haemophilia</strong> Centre,<br />

Bristol Oncology Centre,<br />

Avon Haematology Unit<br />

Level G<br />

Horfield Road<br />

Bristol, BS2 8ED<br />

Dr. A. Mumford<br />

Dr. A. Clark<br />

Sr. E. Franklin<br />

Tel: +44 (0)117 928 3470<br />

Tel: +44 (0)117 928 2255<br />

Tel: +44 (0)117 928 3174 (After Hours – ask<br />

for on call haematologist)<br />

Fax: +44 (0)0117 928 4036<br />

Bristol (Children)<br />

Royal Hospital for Sick Children<br />

Upper Maudlin Street<br />

Bristol, BS2 8BJ<br />

Dr. O. Tunstall<br />

Sr. A. Farrell<br />

Tel: +44 (0)117 342 8721<br />

Tel: +44 (0)117 927 6998 (After Hours – ask<br />

for on call haematologist)<br />

Fax: +44 (0) 117 928 4036<br />

207

United<br />

Kingdom<br />

Cambridge<br />

Clinical Haematology,<br />

Addenbrooke’s Hospital<br />

Hills Road<br />

Cambridge, CB2 2QQ<br />

Addenbrooke’s <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. T. Baglin<br />

Dr. D. Perry<br />

Mr. K. Lawrence<br />

Tel: +44 (0)1223 257 039 (DDI)<br />

Tel: +44 (0)1223 245 151 (Bleep 152626 –<br />

After Hours / Emergency)<br />

Fax: +44 (0)1223 217 017<br />

Canterbury<br />

Kent and Canterbury Hospital<br />

Ethelbert Road<br />

Canterbury, CT1 3NG<br />

Kent <strong>Haemophilia</strong> Centre<br />

Dr. M. Winter<br />

Dr. G. Evans<br />

Sr. D. Wakelin<br />

Tel: +44 (0)1227 783 166<br />

Tel: +44 (0)1227 766 877 (After Hours /<br />

Emergency – ask for on call haematologist)<br />

Fax: +44 (0)1227 783 158<br />

208<br />

Carlisle<br />

Cumberland Infirmary<br />

Newton Road<br />

Carlisle<br />

Cumbria, CA2 7HY<br />

Carlisle <strong>Haemophilia</strong> Centre,<br />

Department of Pathology<br />

Dr. H. O’Brien<br />

Tel: +44 (0)1228 23444<br />

Chichester<br />

St. Richard’s Hospital<br />

Spitalfield Lane<br />

Chichester<br />

West Sussex, PO19 4SE<br />

St Richard’s <strong>Haemophilia</strong> Centre<br />

Dr. S. Janes<br />

Dr. P. C. Bevan<br />

Tel: +44 (0)1243 788 122 (Ext. 1415)<br />

Tel: +44 (0)1243 788 122 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)1243 831 413<br />

Colchester<br />

Colchester General Hospital<br />

Turner Road<br />

Colchester<br />

Essex, CO4 5JL<br />

Colchester <strong>Haemophilia</strong> Centre<br />

Dr. M. Wood<br />

Sr. S. Hunter<br />

Tel: +44 (0)1206 742 357<br />

Tel: +44 (0)1206 747 474 (After Hours /<br />

Emergency – ask for on call haematologist)<br />

Fax: +44 (0)1206 746 581

Coventry<br />

University Hospital Coventry<br />

and Warwickshire<br />

Clifford Bridge Road<br />

Walsgrave<br />

Coventry, CV2 2DX<br />

Coventry <strong>Haemophilia</strong> Centre<br />

Dr. O. Chapman<br />

Sr. K. Marshall<br />

Tel: +44 (0)2476 965 394<br />

Tel: +44 (0)2476 965 386 (After Hours –<br />

Adults)<br />

Tel: +44 (0)2476 966 934 (After Hours –<br />

Children)<br />

Fax: +44 (0)2476 535 002 (After Hours)<br />

Derby<br />

Derbyshire Royal Infirmary<br />

London Road<br />

Derby, DE1 2QY<br />

Derby <strong>Haemophilia</strong> Centre<br />

Dr. A. McKernan<br />

Sr. K. Welch<br />

Tel: +44 (0)1332 347 141<br />

Fax: +44 (0)1332 295 652<br />

United<br />

Kingdom<br />

Eastbourne<br />

Eastbourne District<br />

General Hospital<br />

Kings Drive<br />

Eastbourne<br />

East Sussex, BN21 2UD<br />

Eastbourne <strong>Haemophilia</strong> Centre<br />

Dr. R. Grace<br />

Sr. C. Trulock<br />

Tel: +44 (0)1323 417 400<br />

Tel: +44 (0)1323 414 927<br />

Exeter<br />

Royal Devon & Exeter Hospital<br />

(Wonford)<br />

Barrack Road<br />

Exeter<br />

Devon, EX2 5DW<br />

Exeter <strong>Haemophilia</strong> Centre<br />

Dr. R. Lee<br />

Tel: +44 (0)1392 402 468 (DDI)<br />

Tel: +44 (0)1392 411 611 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)1392 402 915<br />

Hereford<br />

County Hospital<br />

Union Walk<br />

Hereford, HR1 2ER<br />

Hereford <strong>Haemophilia</strong> Centre<br />

Dr. S. Willoughby<br />

Sr. S. Middleton<br />

Tel: +44 (0)1432 355 444<br />

Fax: +44 (0)1432 351 396<br />

209

United<br />

Kingdom<br />

Hull<br />

Hull Royal Infirmary<br />

Anlaby Road<br />

Hull<br />

East Yorkshire, HU3 2JZ<br />

Hull <strong>Haemophilia</strong> Centre<br />

Dr. D. Allsupp<br />

Sr. P. Woods<br />

Tel: +44 (0)1482 675 986<br />

Tel: +44 (0)1482 328 541 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)1482 675 001<br />

Ipswich<br />

The Ipswich Hospital<br />

Heath Road<br />

Ipswich, IP4 5PD<br />

Ipswich <strong>Haemophilia</strong> Centre<br />

Dr. I. Whalley<br />

Dr. I. Chalmers<br />

Dr. N. J. Dodd<br />

Sr. S. Kazmika<br />

Tel: +44 (0)1473 703 394<br />

Tel: +44 (0)1473 712 233 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)1473 703 720<br />

210<br />

Great Yarmouth<br />

James Paget Hospital<br />

Haematology Department<br />

Lowestoft Road<br />

Goriston, Great Yarmouth<br />

Norfolk, NR31 6LA<br />

James Paget <strong>Haemophilia</strong> Centre<br />

Dr. J. Braithwaite<br />

Tel: +44 (0)1493 453 134<br />

Tel: +44 (0)1493 452 017 (After Hours /<br />

Emergency – Ward 17)<br />

Isle of Man<br />

Nobles Hospital<br />

The Strang<br />

Braddon<br />

Isle of Man, IM4 4RJ<br />

Dr. J. Wardle<br />

Tel: +44 (0)1624 650 634<br />

Tel: +44 (0)1624 650 000 (After Hours)<br />

Fax: +44 (0)1624 651 317<br />

Isle of Wight<br />

St Mary’s Hospital<br />

Parkhurst Road<br />

Newport<br />

Isle of Wight, PO30 5TG<br />

Dr. R. Joshi<br />

Tel: +44 (0)1983 524 081

Lancaster<br />

Royal Lancaster Infirmary<br />

Ashton Road<br />

Lancaster<br />

Lancashire, LA1 4RP<br />

Lancaster <strong>Haemophilia</strong> Centre<br />

Dr. C. L. Kozlowski<br />

Tel: +44 (0)1524 65944 (Ext. 2702}<br />

Fax: +44 (0)1524 846 346<br />

Leeds<br />

St. James’ University Hospital<br />

<strong>Haemophilia</strong> Unit<br />

Bexley Wing<br />

Beckett Street<br />

Leeds<br />

West Yorkshire, LS9 7TF<br />

Leeds <strong>Haemophilia</strong> Comprehensive<br />

<strong>Care</strong> Centre<br />

Dr. B. A. McVerry<br />

Sr. A. Westoby<br />

Tel: +44 (0)113 206 4510<br />

Tel: +44 (0)113 206 7067<br />

Tel: +44 (0)113 206 4538 (After Hours /<br />

Emergency)<br />

Tel: +44 (0)113 206 5710 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)113 206 4805<br />

Children’s Day Hospital<br />

Department of Paediatric Haematology<br />

Dr. M. Richards<br />

Sr. S. Buckham<br />

Tel: +44 (0)113 243 6295<br />

Tel: +44 (0)113 206 4538<br />

Tel: +44 (0)113 206 5710 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)113 206 4805<br />

United<br />

Kingdom<br />

Leicester<br />

Leicester Royal Infirmary<br />

Level 2, Osborne Building<br />

Infirmary Square<br />

Leicester, LE1 5WW<br />

Leicester <strong>Haemophilia</strong> Comprehensive<br />

<strong>Care</strong> Centre<br />

Dr. S. Pavord<br />

Dr. P. Mensah<br />

Mr. R. Dattani<br />

Tel: +44 (0)116 258 6500<br />

Tel: +44 (0)116 254 1414 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)116 258 6120<br />

Lincoln<br />

Lincoln County Hospital<br />

<strong>Haemophilia</strong> Centre<br />

Greetwell Road<br />

Lincoln, LN2 5QY<br />

Department of Haematology<br />

Dr. M. Adelman<br />

Sr. A. Whyatt<br />

Tel: +44 (0)1522 573 751<br />

Fax: +44 (0)1522 573 757<br />

211

United<br />

Kingdom<br />

Liverpool (Adults)<br />

Royal Liverpool<br />

University Hospital<br />

Prescot Street<br />

Liverpool, L7 8XP<br />

The Roald Dahl Haemostasis<br />

and Thrombosis Centre<br />

Prof. C. H. Toh<br />

Dr. V. Martlew<br />

Sr. J. Keaney<br />

Tel: +44 (0)151 706 3390<br />

Tel: +44 (0)151 706 4322<br />

Tel: +44 (0)151 706 4329 (Nurse)<br />

Fax: +44 (0)151 706 5904<br />

Liverpool (Children)<br />

Royal Liverpool Children’s<br />

Hospital (Alder Hey)<br />

Eaton Road<br />

Liverpool, L12 2AP<br />

Liverpool Paediatric <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. R. Keenan<br />

Sr. N. Mackett<br />

Sr. C. Benfield<br />

Tel: +44 (0)151 228 4811<br />

Tel: +44 (0)151 252 5079 (DDI)<br />

Fax: +44 (0)151 252 5073<br />

212<br />

London<br />

Hammersmith Hospital<br />

2nd Floor, Gary Weston Centre<br />

Du Cane Road<br />

London, W12 0HS<br />

Hammersmith Hospital <strong>Haemophilia</strong><br />

Prof. M. Laffan<br />

Sr. W. Hargrove<br />

Sr. S. Alavian<br />

Tel: +44 (0)208 383 4345 (Direct Line<br />

& Answer phone)<br />

Tel: +44 (0)208 383 1000 (After Hours /<br />

Emergency)<br />

Fax +44 (0)208 383 2175<br />

Royal London<br />

Homeopathic Hospital<br />

5th Floor, Great Ormond Street<br />

London, WC1N 3JH<br />

Great Ormond Street <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. R. Leisner<br />

Dr. M. Mathias<br />

Sr. K. Khair<br />

Tel: +44 (0)207 405 9200<br />

Tel: +44 (0)207 829 8846 (DDI)<br />

Fax: +44 (0)207 829 8872<br />

The Royal London Hospital<br />

1st Floor, West Wing<br />

Whitechapel Road<br />

London, E1 1BB<br />

Royal London <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Prof. J. Pasi<br />

Tel: +44 (0)207 377 7000<br />

Tel: +44 (0)207 377 7455 (DDI)<br />

Fax: +44 (0)207 377 7182

The Royal Free Hospital<br />

Pond Street<br />

London, NW3 2QG<br />

Royal Free <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Prof. E. Tuddenham<br />

Dr. T. Yee<br />

Sr. C. Harrington<br />

Tel: +44 (0)207 794 0500<br />

Tel: +44 (0)207 830 2068 (DDI)<br />

Tel: +44 (0)207 830 2557 (DDI)<br />

Fax: +44 (0)207 472 6759<br />

Lewisham Hospital<br />

Lewisham High Street<br />

London, SE13 6LH<br />

<strong>Haemophilia</strong> Centre<br />

Dr. M. Thanigaikumar<br />

Sr. C. Tombs<br />

Tel: +44 (0)208 333 3000<br />

Fax: +44 (0)208 333 3006<br />

St. Thomas’ Hospital<br />

Lambeth Palace Road<br />

Lambeth<br />

London, SE1 7EH<br />

<strong>Haemophilia</strong> Reference Centre<br />

Dr. D. Bevan<br />

Sr. E. Dunn<br />

Tel: +44 (0) 207 188 2781<br />

Tel: +44 (0) 207 188 7188 (After Hours – ask<br />

for the on-call haematologist)<br />

Fax: +44 (0) 207 401 3125<br />

United<br />

Kingdom<br />

St. George’s Hospital<br />

Jenner Wing<br />

Blackshaw Road<br />

Tooting<br />

London, SW17 0QT<br />

St George’s <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. S. Austin<br />

Sr. H. Greensmith<br />

Tel: +44 (0)208 725 1255<br />

Tel: +44 (0)208 872 50763 (DDI)<br />

Fax: +44 (0)208 725 5442<br />

Manchester (Adults)<br />

University Department of<br />

Haematology, Manchester<br />

Royal Infirmary<br />

Oxford Road<br />

Manchester, M13 9WL<br />

Manchester <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. C. R .M. Hay<br />

Dr. P. Bolton-Maggs<br />

Sr. L. Birtwistle<br />

Sr. P. Mohan<br />

Tel: +44 (0)161 276 4810 (Hospital<br />

Switchboard)<br />

Tel: +44 (0)161 276 4810 (Nurses)<br />

Tel: +44 (0)161 276 1234 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)161 276 4814<br />

213

United<br />

Kingdom<br />

Manchester (Children)<br />

Royal Manchester<br />

Children’s Hospital<br />

Hospital Road<br />

Pendlebury<br />

Nr. Manchester, M27 4HA<br />

Royal Manchester Children’s<br />

<strong>Haemophilia</strong> Comprehensive<br />

<strong>Care</strong> Centre<br />

Dr. A. Will<br />

Dr. J. Grainger<br />

Sr. A. Hague<br />

Sr. T. Bloodworth<br />

Tel: +44 (0)161 701 8444<br />

Tel: +44 (0)161 701 9113 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)161 701 8410<br />

Milton Keynes<br />

Milton Keynes General Hospital<br />

Standing Way<br />

Eaglestone, Milton Keynes<br />

Buckinghamshire, MK6 5LD<br />

Milton Keynes <strong>Haemophilia</strong> Centre<br />

Dr. E. J. Miller<br />

Tel: +44 (0)1908 660 033<br />

Fax: +44 (0)1908 243 502<br />

214<br />

Newcastle Upon Tyne<br />

Royal Victoria Infirmary<br />

Queen Victoria Road<br />

Newcastle Upon Tyne<br />

Tyne and Wear, NE1 4LP<br />

Newcastle <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. J. Hanley<br />

Dr. K. Talkes<br />

Sr. J. Vowles<br />

Tel: +44 (0)191 282 4170<br />

Tel: +44 (0)191 282 4772 (Nurses)<br />

Tel: +44 (0)191 282 5005 (After Hours /<br />

Children)<br />

Tel: +44 (0)191 282 5008 (After Hours /<br />

Children)<br />

Fax: +44 (0)191 230 0651<br />

Norwich<br />

Norfolk and Norwich<br />

University Hospital<br />

Colney Lane<br />

Norwich, NR4 7UY<br />

Norfolk & Norwich <strong>Haemophilia</strong><br />

Centre, Colney Centre<br />

Dr. G. E. Turner<br />

Sr. A. Hutchins<br />

Tel: +44 (0)1603 286 286 (Ext. 5979)<br />

Tel: +44 (0)1603 286 286 (After Hours – ask<br />

for on-call haematologist)<br />

Fax: +44 (0)1603 286 918

Nottingham<br />

University Hospital Queen’s<br />

Medical Centre<br />

Derby Road<br />

Nottingham, NG7 2UH<br />

Nottingham <strong>Haemophilia</strong><br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. G. Dolan<br />

Dr. K. Forman<br />

Sr. L. Trower<br />

Tel: +44 (0)115 924 9994<br />

Tel: +44 (0)115 924 9924 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)115 970 9186<br />

Oxford<br />

Churchill Hospital<br />

Old Road<br />

Headington<br />

Oxford, OX3 7LJ<br />

Oxford <strong>Haemophilia</strong> & Thrombosis<br />

Comprehensive <strong>Care</strong> Centre<br />

Dr. D. M. Keeling<br />

Dr. P. L. F. Giangrande<br />

Sr. L. Oyesiku<br />

Tel: +44 (0)1865 225 300 (Main<br />

Switchboard)<br />

Tel: +44 (0)1865 225 316 (DDI)<br />

Fax: +44 (0)1865 225 608<br />

United<br />

Kingdom<br />

Peterborough<br />

Peterborough District Hospital<br />

Thorpe Road<br />

Peterborough, PE3 6DA<br />

Peterborough <strong>Haemophilia</strong> Centre<br />

Dr. K. Hoggarth<br />

Tel: +44 (0)1733 874 000<br />

Fax: +44 (0)1733 875 818<br />

Plymouth<br />

Derriford Hospital<br />

Level 7, Derriford Road<br />

Crownhill, Plymouth<br />

Devon, PL6 8DH<br />

Plymouth <strong>Haemophilia</strong> Centre<br />

Dr. T. Nokes<br />

Dr. M. D. Hamon<br />

Sr. J. Malinowski<br />

Tel: +44 (0)1752 792 673<br />

Tel: +44 (0)1752 792 679 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)1752 792 400<br />

Salisbury<br />

Salisbury District Hospital<br />

Odstock Road<br />

Salisbury<br />

Wiltshire, SP2 8QX<br />

Salisbury <strong>Haemophilia</strong> Centre<br />

Dr. T. Everington<br />

Mr. R. Dear<br />

Tel: +44 (0)1722 336 262<br />

Tel: +44 (0)1722 452 066<br />

Fax: +44 (0)1722 333 933<br />

215

United<br />

Kingdom<br />

Sheffield (Adults)<br />

Royal Hallamshire Hospital<br />

Glossop Road<br />

Sheffield, S10 2JF<br />

Sheffield <strong>Haemophilia</strong><br />

& Thrombosis Centre<br />

Dr. M. Makris<br />

Dr. E. Hampton<br />

Sr. J. Farnsworth<br />

Sr. C. Lockley<br />

Tel: +44 (0)114 271 3211<br />

Tel: +44 (0)114 271 1900 (After Hours /<br />

Emergency)<br />

Tel: +44 (0)114 271 2500 (Secretary)<br />

Fax: +44 (0)114 275 6126<br />

Sheffield (Children)<br />

The Children’s Hospital<br />

Western Bank<br />

Sheffield, S10 2TH<br />

The Roald Dahl Paediatric<br />

Haematology Centre<br />

Dr. J. Payne<br />

Dr. J. Welch<br />

Sr. V. Vidler<br />

Tel: +44 (0)114 271 7329<br />

Tel: +44 (0)114 271 7322 (After Hours – ask<br />

for on-call haematologist)<br />

Fax: +44 (0)114 276 2289<br />

216<br />

Shrewsbury<br />

Royal Shrewsbury Hospital<br />

Mytton Oak Road<br />

Shrewsbury<br />

Shropshire, SY3 8XQ<br />

Department of Pathology<br />

Dr. A. Powell<br />

Tel: +44 (0)1743 261 000 (Ext. 3541)<br />

Fax: +44 (0)1743 261 488<br />

Southampton<br />

Southampton General Hospital<br />

Mailpoint 8, Tremona Road<br />

Southampton<br />

Hampshire, SO16 6YD<br />

South Hampshire Haematology Centre<br />

Dr. R. Kazmi<br />

Sr. C. Harris<br />

Tel: +44 (0)2380 777 222<br />

Tel: +44 (0)2380 794 047 (DDI)<br />

Fax: +44 (0)2380 794 134<br />

St. Leonards-on-Sea<br />

Conquest Hospital<br />

The Ridge<br />

St. Leonards-on-Sea<br />

East Sussex, TN37 7RD<br />

East Sussex <strong>Haemophilia</strong> Centre<br />

Dr. J. Beard<br />

Tel: +44 (0)1424 755 255<br />

Fax: +44 (0)1424 758 022

Stoke-on-Trent<br />

University Hospital<br />

of North Staffordshire<br />

Central Pathology Laboratory<br />

Hartshill Road<br />

Hartshill, Stoke-on-Trent<br />

Staffordshire, ST4 7PX<br />

North Staffordshire <strong>Haemophilia</strong> Centre<br />

Dr. D. Chandra<br />

Dr. S. Thompson<br />

Tel: +44 (0)1782 715 444<br />

Tel: +44 (0)1782 672 642 (DDI)<br />

Tel: +44 (0)1782 672 201 (DDI)<br />

Fax: +44 (0)1782 555 286<br />

Taunton/Yeovil<br />

Taunton and Somerset Hospital<br />

Musgrove Park Hospital<br />

Taunton<br />

Somerset, TA1 5DA<br />

Department of Haematological Medicine<br />

Taunton & Somerset <strong>Haemophilia</strong> Centre<br />

Dr. S. V. Davies<br />

Tel: +44 (0)1823 333 444<br />

Tel: +44 (0)1823 342 009 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)1823 271 023<br />

United<br />

Kingdom<br />

Thornton Heath<br />

Mayday Hospital<br />

London Road<br />

Thornton Heath<br />

Surrey, CR7 7YE<br />

Mayday <strong>Haemophilia</strong> Centre<br />

Dr. J. Maitland<br />

Dr. C. M. Pollard<br />

Tel: +44 (0)208 401 3026<br />

Tel: +44 (0)208 401 3000 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)208 401 3126<br />

Torquay<br />

Torbay Hospital<br />

Lawes Bridge<br />

Torquay<br />

Devon, TQ2 7AA<br />

Haematology Department<br />

Dr. N. Rymes<br />

Sr. F. Dooley<br />

Tel: +44 (0)1803 655 270<br />

Tel: +44 (0)1803 614 567 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)1803 655 248<br />

217

United<br />

Kingdom<br />

Truro<br />

Royal Cornwall Hospital<br />

Treliske<br />

Truro<br />

Cornwall, TR1 3LJ<br />

Truro <strong>Haemophilia</strong> Centre<br />

Dr. M. D. Creagh<br />

Sr. S. Johns<br />

Tel: +44 (0)1872 252 501<br />

Tel: +44 (0)1872 252 524 (DDI)<br />

Tel: +44 (0) 1872 252 524 (After Hours)<br />

Fax: +44 (0)1872 253 237<br />

Whitehaven<br />

West Cumberland Hospital<br />

Hensingham<br />

Whitehaven<br />

Cumbria, CA28 8JG<br />

Dr. N. C. West<br />

Tel: +44 (0)1946 693 181<br />

Worcester<br />

Worcester Royal Hospital<br />

Department of Haematology<br />

Charles Hastings Way<br />

Worcester, WR5 1DD<br />

Dr. N. Pemberton<br />

Tel: +44 (0)1905 760 635<br />

Tel: +44 (0)1905 760 760 (After Hours – ask<br />

for on-call haematologist)<br />

Fax: +44 (0)1905 733 213<br />

218<br />

York<br />

York District Hospital<br />

Wigginton Road<br />

York, YO3 7HE<br />

York <strong>Haemophilia</strong> Centre<br />

Dr. M. R. Howard<br />

Dr. Smith<br />

Sr. J. Igoe<br />

Tel: +44 (0)1904 631 313<br />

CHANNEL ISLANDS<br />

Jersey<br />

The General Hospital<br />

Gloucester Street<br />

St. Helier<br />

Jersey, JE2 3QS<br />

Dr. C. Mattock<br />

Tel: +44 (0)1534 442 000<br />

Guernsey<br />

Princess Elizabeth Hospital<br />

Le Vauquiedor<br />

Guernsey, GY4 6UU<br />

Tel: +44 (0)1481 725 241<br />

(Ask for on-call haematologist)

SCOTLAND<br />

Aberdeen<br />

Aberdeen Royal Infirmary<br />

Department of Haematology,<br />

Anchor Unit Foresterhill<br />

Aberdeen, AB9 2ZB<br />

Grampian Area <strong>Haemophilia</strong> Centre<br />

Dr. H. G. Watson<br />

Sr. J. Rae<br />

Tel: +44 (0)1224 553 357<br />

Tel: +44 (0)845 456 6000 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)1224 685 307<br />

Dundee<br />

Ninewells Hospital<br />

Ninewells Avenue<br />

Dundee, DD1 9SY<br />

Dundee <strong>Haemophilia</strong> Centre<br />

Dr. R. Kerr<br />

Sr. J. Ward<br />

Tel: +44 (0)1382 632 225<br />

Tel: +44 (0)1382 660 111 (After Hours /<br />

Emergency)<br />

Fax: +44 (0)1382 632 492<br />

United<br />

Kingdom<br />

Edinburgh<br />

Royal Infirmary of Edinburgh<br />

51 Little France Crescent<br />

Edinburgh, EH16 4SA<br />

Edinburgh <strong>Haemophilia</strong><br />

& Thrombosis Centre<br />

Prof. C. A. Ludlam<br />

Sr. S. Hook<br />

Tel: +44 (0)131 536 1000<br />

Tel: +44 (0)131 242 1270 (DDI)<br />

Fax: +44 (0)131 242 1275<br />

Royal Hospital for Sick Children<br />

9 Sciennes Road<br />

Edinburgh, EH9 1LF<br />

Department of Haematology<br />

Dr. A. E. Thomas<br />

Tel: +44 (0)131 536 0000<br />

Tel: +44 (0)131 536 0433 (DDI)<br />

Fax: +44 (0)131 536 0430<br />

Glasgow (Adults)<br />

Glasgow <strong>Haemophilia</strong> &<br />

Thrombosis Comprehensive<br />

<strong>Care</strong> Centre<br />

Ground Floor<br />

Medical Block<br />

84 Castle Street<br />

Glasgow, G4 0SF<br />

Prof. G. D. O. Lowe<br />

Dr. I. D. Walker<br />

Dr. C. Tait<br />

Sr. I. McDougall<br />

Tel: +44 (0)141 2114 000<br />

Tel: +44 (0)141 211 5127<br />

Tel: +44 (0)141 211 4840 (DDI)<br />

Fax: +44 (0)141 211 0472<br />

219

United<br />

Kingdom<br />

Glasgow (Children)<br />

Royal Hospital for Sick Children<br />

Children’s Scheihallion Day Centre<br />

Yorkhill<br />

Glasgow, G3 8SL<br />

Glasgow <strong>Haemophilia</strong> Comprehensive<br />

<strong>Care</strong> Centre (Children)<br />

Dr. E. A. Chalmers<br />

Sr. A. Gibson<br />

Tel: +44 (0)141 201 0000<br />

Tel: +44 (0)141 201 9305 (DDI)<br />

Tel: +44 (0)141 201 0317 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Fax: +44 (0)141 201 9303<br />

Inverness<br />

Raigmore Hospital<br />

Old Perth Road<br />

Inverness, IV2 3UJ<br />

Inverness <strong>Haemophilia</strong> Centre<br />

Dr. W. Murray<br />

Sr. C. Worsley<br />

Tel: +44 (0)1463 704 576 (Ext. 4258)<br />

Fax: +44 (0)1463 705 878<br />

220<br />

WALES<br />

Bangor<br />

Bangor <strong>Haemophilia</strong> Centre<br />

Alaw Unit<br />

Ysbyty Gwynedd<br />

Penrhosgrnedd, Gwynedd<br />

Bangor<br />

North Wales, LL57 2PW<br />

Dr. J. R. C. Seale<br />

Dr. M. Hamilton<br />

Sr. L. Edge<br />

Tel: +44 (0)1248 384 384 (After Hours /<br />

Emergency – ask for on-call haematologist)<br />

Tel: +44 (0)1248 384 008<br />

Fax: +44 (0)1248 384 505<br />

Cardiff<br />

University Hospital of Wales<br />

Heath Park<br />

Cardiff, CF4 4XW<br />

Arthur Bloom <strong>Haemophilia</strong> Centre<br />

Dr. P. Collins<br />

Dr. R. Rayment<br />

Sr. C. Loran<br />

Tel: +44 (0)2920 748 278<br />

Tel: +44 (0)2920 747 747 (After Hours – ask<br />

for on-call haematologist)<br />

Fax: +44 (0)2920 745 442

Swansea<br />

Singleton Hospital<br />

Sketty<br />

Swansea<br />

West Glamorgan, SA3 5EF<br />

Swansea <strong>Haemophilia</strong> Centre<br />

Dr. S. Al-Ismail<br />

Sr. J. Thomas<br />

Tel: +44 (0)1792 205 666 (Ext. 5648)<br />

Fax: +44 (0)1792 285 537<br />

United<br />

Kingdom<br />

221

ALABAMA<br />

Birmingham<br />

University of Alabama<br />

Birmingham Medical Centre<br />

School of Medicine<br />

VHL 205<br />

Zip: 35233<br />

Adult Hematologist<br />

C. W. Scott<br />

Tel: +1 205 934 5677<br />

Children’s Hospital of Alabama<br />

1600 Seventh Avenue, South<br />

Zip: 35233<br />

Pediatric Hematologist<br />

Raymond Watts<br />

Tel: +1 205 939 9285<br />

Fax: +1 205 975 6377<br />

Mobile<br />

Children’s<br />

Rehabilitation Services<br />

1870 Pleasant Avenue<br />

Zip: 36617-3299<br />

Adult Hematologists<br />

Felicia Wilson<br />

Yih-Ming Yang<br />

Tel: +1 334 471 7335<br />

Fax: +1 334 450 5037<br />

222<br />

USA<br />

ALASKA<br />

Anchorage<br />

Alaska Hemophilia<br />

Treatment Centre<br />

Children’s Blood & Cancer Centre<br />

Pediatrics Subspecialty Clinic<br />

The Children’s Hospital at Providence<br />

Zip: 99517<br />

Pediatric Hematologist<br />

Laura Schulz<br />

Tel: +1 907 261 4824<br />

Fax: +1 907 743 2780<br />

Alaska Hemophilia<br />

Treatment Centre<br />

Alaska Oncology & Hematology, LLC<br />

2841 Debarr Road<br />

Zip: 99508<br />

Adult Hematologist<br />

Verneeda Spencer<br />

Tel: +1 907 279 3155<br />

Fax: +1 907 258 7215<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

ARIZONA<br />

Tucson<br />

Arizona Hemophilia and<br />

Thrombosis Centre – Tucson<br />

University of Arizona Health Sciences Centre<br />

1515 N. Campbell Ave.<br />

Zip: 85724<br />

Adult Hematologist<br />

Alison Stopeck<br />

1515 N. Campbell Ave.<br />

Zip: 85724<br />

Tel: +1 520 626 2816<br />

Fax: +1 520 626 3754<br />

Pediatric Hematologist<br />

Brenda Wittman<br />

1501 N. Campbell Ave.<br />

Zip: 85724<br />

Tel: +1 520 626 8278<br />

Fax: +1 520 626 4220<br />

USA<br />

Phoenix<br />

Arizona Hemophilia and<br />

Thrombosis Centre at Phoenix<br />

Children’s Hospital<br />

1919 E. Thomas Road<br />

Zip: 85016<br />

Pediatric Hematologist<br />

Christine Knoll<br />

Tel: +1 602 546 0920<br />

Fax: +1 602 546 0276<br />

Little Rock<br />

Arkansas Centre<br />

for Bleeding Disorders<br />

Arkansas Children’s Hospital<br />

Hemophilia Centre of Arkansas<br />

800 Marshall Street<br />

Zip: 72202<br />

Pediatric Hematologists<br />

David Becton<br />

Kimo Stine<br />

Tel: +1 501 364 1494<br />

Fax: +1 501 364 3634<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

223

USA<br />

CALIFORNIA<br />

Duarte<br />

City of Hope National<br />

Medical Centre<br />

Hemophlia Treatment Centre<br />

1500 E. Duarte Road, MOB 4<br />

Zip: 91010<br />

Pediatric Hematologist<br />

Nadia Ewing<br />

Tel: +1 626 301 8426<br />

Fax: +1 626 301 8978<br />

La Jolla<br />

University of California,<br />

San Diego<br />

UCSD Medical Centre, Perlman<br />

9500 Gilman Drive<br />

Zip: 92093-0960<br />

Adult Hematologist<br />

Kenneth Herbst<br />

Tel: +1 858 657 6790<br />

Fax: +1 858 657 6837<br />

224<br />

Los Angeles<br />

Children's Hospital Los Angeles<br />

Hematology/Oncology<br />

4650 Sunset Blvd. #54<br />

Zip: 90027<br />

Pediatric Hematologists<br />

Guy Young<br />

Tom Coates<br />

Tel: +1 323 361 4628<br />

Tel: +1 323 361 4141<br />

Fax: +1 323 361 6655<br />

Adult Hematologist<br />

Tom Hofstra<br />

Tel: +1 323 361 4141<br />

Fax: +1 323 361 6655<br />

Orthopaedic Hospital<br />

of Los Angeles<br />

Hemostasis and Thrombosis Program<br />

2400 S. Flower Street<br />

Zip: 90007<br />

Adult Hematologists<br />

Doris Quon<br />

Lawrence Logan<br />

Tel: +1 213 742 1357<br />

Tel: +1 213 742 1402<br />

Fax: +1 213 742 1355<br />

Fax: +1 213 742 1103<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Madera<br />

Children’s Hospital<br />

of Central California<br />

Hematology/Oncology<br />

9300 Valley Children’s Place<br />

Zip: 93636<br />

Pediatric Hematologist<br />

Robert Mignacca<br />

Tel: +1 559 353 5480<br />

Fax: +1 559 353 5490<br />

Oakland<br />

Children’s Hospital Oakland<br />

Division of Hematology/Oncology<br />

747 52nd Street<br />

Zip: 94610-4131<br />

Pediatric Hematologist<br />

Alison Matsunaga<br />

Tel: +1 510 428 3286<br />

Fax: +1 510 450 7953<br />

USA<br />

Orange<br />

Children’s Hospital<br />

of Orange County<br />

Department of Hematology/Oncology<br />

455 South Main Street<br />

Zip: 92868<br />

Pediatric Hematologists<br />

Diane Nugent<br />

Geetha Puthenveetil<br />

Loan Hseih<br />

Tel: +1 714 532 8459<br />

Tel: +1 714 532 4374 (Ext. 8459)<br />

Tel: +1 714 532 8744<br />

Fax: +1 714 532 8771<br />

Fax: +1 714 532 8371<br />

Palo Alto<br />

Stanford University<br />

Medical Centre<br />

Division of Hematology/Oncology<br />

1000 Welch Road, Suite 300<br />

Zip: 94304<br />

Pediatric Hematologists<br />

Bertil Glader<br />

Michael Jeng<br />

Wendy Wong<br />

Tel: +1 650 723 5535<br />

Fax: +1 650 723 5231<br />

Adult Hematologist<br />

Pradip Rustagi<br />

Tel: +1 650 324 1250<br />

Fax: +1 650 324 2557<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

225

USA<br />

Sacramento<br />

University of California<br />

at Davis<br />

Department of Pediatrics<br />

2360 Stockton Blvd., Suite 1100<br />

Zip: 95817<br />

Adult Hematologist<br />

Jerry Powell<br />

Tel: +1 916 734 8664<br />

Fax: +1 916 734 7946<br />

Pediatric Hematologist<br />

Jonathan Ducore<br />

Tel: +1 916 734 2782<br />

Fax: +1 916 451 3014<br />

San Diego<br />

Rady Children’s Hospital<br />

San Diego<br />

Hemophilia Program<br />

3020 Children’s Way, MC 5035<br />

Zip: 92123<br />

Pediatric Hematologists<br />

Amy Geddes<br />

Amy Lovejoy<br />

Tel: +1 858 576 1700 (Ext. 5428)<br />

Tel: +1 858 966 5811<br />

Fax: +1 858 966 8035<br />

226<br />

San Francisco<br />

University of California,<br />

San Francisco<br />

UCSF School of Medicine<br />

505 Parnassus Avenue, Room M648<br />

Zip: 94143-0106<br />

Pediatric Hematologist<br />

James Huang<br />

Tel: +1 415 476 4901<br />

Fax: +1 415 502 4372<br />

University of California,<br />

San Francisco<br />

UCSF Hemophilia Program<br />

350 Parnassus Avenue, Room 407<br />

Zip: 94117<br />

Pediatric Hematologist<br />

Marion Koerper<br />

Tel: +1 415 476 1280<br />

Fax: +1 415 476 3301<br />

University of California,<br />

San Francisco<br />

The Faculty Practice at UCSF<br />

505 Parnassus Avenue<br />

Box 1270<br />

Zip: 94143<br />

Adult Hematologist<br />

Patrick Fogarty<br />

Tel: +1 415 476 9608<br />

Fax: +1 415 476 0624<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

COLORADO<br />

Aurora<br />

Mountain States<br />

Regional Hemophilia<br />

& Thrombosis Centre<br />

University of Colorado at Denver<br />

& Health Sciences Centre<br />

13001 E. 17th Place, WG109<br />

Zip: 80045<br />

Pediatric Hematologist<br />

Marilyn Manco-Johnson<br />

Tel: +1 303 724 0365<br />

Fax: +1 303 724 0947<br />

Denver<br />

Mountain States<br />

Regional Hemophilia<br />

and Thrombosis Centre<br />

University of Colorado at Denver<br />

and Health Sciences Centre<br />

Department of Internal Medicine<br />

4200 E. Ninth Ave, B-170<br />

Zip: 80262<br />

Adult Hematologist<br />

Sally Stabler<br />

Tel: +1 303 315 8474<br />

Fax: +1 303 315 8477<br />

CONNECTICUT<br />

USA<br />

Farmington<br />

UCONN Hemophilia<br />

Treatment Centre<br />

University of Connecticut Health Centre<br />

263 Farmington Avenue<br />

Zip: 06030-2250<br />

Adult Hematologist<br />

Robert Bona<br />

Tel: +1 860 714 4676<br />

Fax: +1 860 679 4451<br />

UCONN Hemophilia<br />

Treatment Centre<br />

University of Connecticut Health Centre<br />

University Cancer Centre<br />

Zip: 06030-1628<br />

Adult Hematologist<br />

Susan Burroughs<br />

Tel: +1 860 679 2100<br />

Fax: +1 860 679 4451<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

227

USA<br />

Hartford<br />

UCONN Hemophilia<br />

Treatment Centre<br />

Connecticut Children’s Medical Centre<br />

Hematology/Oncology, Suite 2J<br />

282 Washington St.<br />

Zip: 6106<br />

Pediatric Hematologist<br />

Arnold Altman<br />

Eileen Gilliam<br />

J. Nathan Hagstrom<br />

Tel: +1 860 545 9630<br />

Fax: +1 860 545 9622<br />

New Haven<br />

Yale University School<br />

of Medicine<br />

Department of Pediatrics, LMP 4087<br />

333 Cedar Street<br />

Zip: 06520-8064<br />

Pediatric Hematologist<br />

Diana Beardsley<br />

Tel: +1 203 785 4640<br />

Fax: +1 203 737 2228<br />

228<br />

DELAWARE<br />

Newark<br />

Christiana <strong>Care</strong> Health Services<br />

Christiana <strong>Care</strong> Centre/Hospital<br />

4755 Ogletown-Stanton Road<br />

Box 6001<br />

Zip: 19718<br />

Adult Hematologist<br />

Philip Blatt<br />

Tel: +1 302 737 7700<br />

Fax: +1 302 733 3679<br />

DISTRICT OF COLUMBIA<br />

Washington<br />

Children’s National<br />

Medical Centre<br />

Hemophilia Treatment Centre<br />

Pediatric Hematologists<br />

111 Michigan Avenue, NW<br />

Zip: 20010<br />

Michael Guerrera<br />

Naomi Luban<br />

Tel: +1 202 476 2800<br />

Fax: +1 202 476 5685/2007<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Georgetown<br />

University Hospital<br />

Lombardi Cancer Centre, Podium A<br />

3800 Reservoir Road, NW<br />

Zip: 20007<br />

Adult Hematologist<br />

Craig Kessler<br />

Tel: +1 202 444 8676<br />

Fax: +1 202 444 1229<br />

FLORIDA<br />

Jacksonville<br />

Nemours Children’s Clinic<br />

Division of Pediatric Hematology/Oncology<br />

807 Children’s Way<br />

Zip: 32207<br />

Pediatric Hematologist<br />

Cindy Gauger<br />

Tel: +1 904 390 3793<br />

Fax: +1 904 390 3792<br />

USA<br />

Miami<br />

Miami Comprehensive<br />

Hemophilia Centre – Pediatrics<br />

ACC-W Bldg, 5th Floor Clinic 5A,<br />

PO Box 016960<br />

Dept. of Pediatrics (R-131),<br />

Div of Ped Hem/Onc<br />

1611 NW 12th Ave.<br />

Zip: 33101<br />

Pediatric Hematologist<br />

Joanna Davis<br />

Tel: +1 305 585 5635<br />

Fax: +1 305 325 8387<br />

Miami Comprehensive<br />

Hemophilia Centre – Pediatrics<br />

Sylvester Cancer Centre<br />

1475 NW 12th Avenue<br />

Suite 3300 D8-4<br />

Zip: 33101<br />

Adult Hematologist<br />

Thomas Harrington<br />

Tel: +1 305 243 6626<br />

Fax: +1 305 585 7414<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

229

USA<br />

St. Petersburg<br />

All Children’s Hospital<br />

Hemophilia Treatment Centre<br />

All Children’s Hospital<br />

Pediatric Hematology/Oncology Associates<br />

880 6th Street South Suite 140<br />

Zip: 33701<br />

Pediatric Hematologists<br />

Irmel Ayala<br />

Jerry Barbosa<br />

Karol Kerr<br />

Tel: +1 727 767 4176<br />

Tel: +1 727 892 4231<br />

Fax: +1 727 767 4379<br />

Tampa<br />

University of South<br />

Florida – Adult<br />

James A. Haley V.A. Hospital<br />

Hematology-111-R<br />

13000 Bruce B. Downs Boulevard<br />

Zip: 33612<br />

Adult Hematologist<br />

Benjamin Djulbegovic<br />

Hussain Saba<br />

Tel: +1 813 396 2349<br />

Tel: +1 813 972 7582<br />

Fax: +1 813 903 4862<br />

230<br />

GEORGIA<br />

Atlanta<br />

Children’s Healthcare of<br />

Atlanta at Scottish Rite<br />

Scottish Rite Children’s Medical Centre<br />

5455 Meridian Mark Road, Suite 400<br />

Children’s Medical Centre Professional Bld.<br />

Zip: 30342<br />

Pediatric Hematologists<br />

Amy Dunn<br />

Carolyn Bennett<br />

Cassandra Josephson<br />

Tel: +1 404 325 6011<br />

Tel: +1 404 727 1339<br />

Tel: +1 404 785 4553<br />

Fax: +1 404 325 2067<br />

Fax: +1 404 785 3619<br />

Emory University Hemophilia<br />

Program Office<br />

2015 Uppergate Dr. NE<br />

Zip: 30322<br />

Adult Hematologists<br />

Christine Kempton<br />

Maria Riberio<br />

Tel: +1 404 727 1608<br />

Tel: +1 404 727 7680<br />

Fax: +1 404 727 3681<br />

Fax: +1 404 329 2237<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Emory University Hemophilia<br />

Program Office<br />

69 Butler Street, SE<br />

Zip: 30303-3033<br />

Adult Hematologist<br />

Sidney Stein<br />

Tel: +1 404 616 3631<br />

Fax: +1 404 616 3823<br />

Augusta<br />

Medical College of Georgia –<br />

Adult<br />

Medical College of Georgia<br />

Dept of Adult Hematology/Oncology<br />

1120 15th Street<br />

Zip: 30912-3125<br />

Adult Hematologist<br />

Kavita Natarajan<br />

Tel: +1 706 721 0870<br />

Fax: +1 706 721 8302<br />

Medical College of Georgia<br />

Pediatric Hemophilia Program<br />

Department of Pediatric Hematology/<br />

Oncology<br />

1446 Harper Street BG 2013<br />

Zip: 30912-3730<br />

Pediatric Hematologist<br />

Afshin Ameri<br />

Tel: +1 706 721 3626<br />

Fax: +1 706 721 2643<br />

USA<br />

Savannah<br />

Backus Children’s Hospital<br />

4700 Waters Avenue<br />

P.O. Box 23089<br />

Zip: 31403-3089<br />

Pediatric Hematologist<br />

Cynthia Gonzales<br />

Tel: +1 912 350 8194<br />

Fax: +1 912 350 5697<br />

HAWAII<br />

Honolulu<br />

Hemophilia and Thrombosis<br />

Centre of Hawaii<br />

Kapi’olani Medical Centre,<br />

1319 Punahou Street<br />

Zip: 96826<br />

Pediatric Hematologist – PAU 2nd Floor<br />

Darryl Glaser<br />

Desiree Medeiros<br />

Tel: +1 808 983 8551<br />

Fax: +1 808 983 8005<br />

Women’s Clinic Adult Hematologist<br />

Jonathan Cho<br />

Tel: +1 808 983 8551<br />

Fax: +1 808 983 8005<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

231

USA<br />

IDAHO<br />

Boise<br />

Idaho Regional<br />

Hemophilia Centre<br />

Pediatric Hematology/Oncology at MSTI<br />

St. Luke’s Regional Medical Centre<br />

100 East Idaho St.<br />

Zip: 83712-6297<br />

Pediatric Hematologists<br />

Eugenia Chang<br />

Martin Johnston<br />

Nicholas Camilo<br />

Tel: +1 208 381 2782<br />

Fax: +1 208 381 3172<br />

Adult Hematologist<br />

Ted Walters<br />

Tel: +1 208 381 2711<br />

ILLINOIS<br />

Chicago<br />

Northwestern University<br />

Northwestern Centre for Bleeding Disorders<br />

676 N. St. Clair Suite 850/21-100<br />

Zip: 60611<br />

Adult Hematologists<br />

Anaadriana Zakarija<br />

Brandon McMahon<br />

David Green<br />

Tel: +1 312 695 6180<br />

Fax: +1 312 695 6189<br />

232<br />

John H. Stroger, Jr. Hospital<br />

of Cook County<br />

Stroger Hospital of Cook County<br />

Dept. of Peds-Hem/Onc. 11th Floor<br />

Admin. Bldg 1900 W Polk St<br />

Zip: 60612<br />

Adult Hematologist<br />

Margaret Telfer<br />

Tel: +1 312 864 7266<br />

Fax: +1 312 864 9002<br />

Children’s Memorial Hospital<br />

2300 Children’s Plaza, Box 30<br />

Zip: 60614<br />

Pediatric Hematologists<br />

Alexis Thompson<br />

Kyle Mack<br />

Robert Liem<br />

Tel: +1 773 880 4583<br />

Tel: +1 773 880 4562<br />

Fax: +1 773 880 3223<br />

Fax: +1 773 880 6989<br />

Fax: +1 773 880 6987<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Rush University Medical Centre<br />

Rush Children’s Hospital<br />

1725 W. Harrison Street<br />

Zip: 60612-3833<br />

Section of Pediatric Hematology/<br />

Oncology, Pediatric Hematologist –<br />

Suite 718 PBI<br />

Emily Czapek<br />

Leonard Valentino<br />

Tel: +1 312 942 8114<br />

Tel: +1 312 942 3569<br />

Fax: +1 309 699 1878<br />

Fax: +1 312 563 2317<br />

Dept. of Medicine Section of<br />

Pediatric Hematology/Oncology,<br />

Adult Hematologist – Suite 809<br />

Lisa Boggio<br />

Tel: +1 312 942 5157<br />

Fax: +1 312 563 4101<br />

Stroger Children’s Hospital of<br />

Cook County<br />

Pediatric Hematology<br />

700 S. Wood St., Room 7206<br />

Zip: 60612<br />

Pediatric Hematologist<br />

LIlly Matthew<br />

Lisa Giordano<br />

Tel: +1 312 864 4342<br />

Fax: +1 312 864 9911<br />

USA<br />

Peoria<br />

Comprehensive Bleeding<br />

Disorders Centre<br />

4727 N. Sheridan Road<br />

Zip: 61614<br />

Pediatric Hematologist<br />

Michael Tarantino<br />

Tel: +1 309 688 1345<br />

Fax: +1 309 688 0917<br />

INDIANA<br />

Indianapolis<br />

Indiana Hemophilia and<br />

Thrombosis Centre<br />

8402 Harcourt Road, Suite 420<br />

Zip: 46260<br />

Pediatric Hematologists –<br />

Suites 420 & 500<br />

Amy Shapiro<br />

Anjali Rampersad<br />

Anjali Sharathkumar<br />

Tel: +1 317 871 0000<br />

Tel: +1 317 871 0011<br />

Tel: +1 317 871 0011 (Ext. 351)<br />

Fax: +1 317 871 0010<br />

Fax: +1 317 870 4551<br />

Adult Hematologist – Suite 420<br />

Anne Greist<br />

Tel: +1 317 871 0000<br />

Fax: +1 317 871 0010<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

233

USA<br />

IOWA<br />

Iowa City<br />

University of Iowa Hospitals<br />

& Clinics<br />

Internal Medicine<br />

Zip: 52242<br />

Adult Hematologist – C32-F GH<br />

Donald Macfarlane<br />

Tel: +1 319 356 2527<br />

Fax: +1 319 353 8383<br />

Adult Hematologist – C303 GH<br />

Steven Lentz<br />

Tel: +1 319 356 4048<br />

Fax: +1 319 353 8383<br />

KENTUCKY<br />

Lexington<br />

University of Kentucky<br />

Hemophilia Treatment Centre<br />

Adult Program<br />

CC 413 Markey Cancer Centre<br />

800 Rose Street<br />

Zip: 40536-0093<br />

Adult Hematologist<br />

Ed Romond<br />

Tel: +1 859 257 6033<br />

Fax: +1 859 257 9822<br />

234<br />

University of Kentucky<br />

Hemophilia Treatment Centre<br />

UK-HTC, J457 Kentucky Clinic<br />

740 South Limestone Street<br />

Zip: 40536-0284<br />

Pediatric Hematologist<br />

Vlad Radulescu<br />

Tel: +1 859 257 6033<br />

Fax: +1 859 257 9822<br />

Louisville<br />

Norton Kosair Children’s<br />

Medical Centre<br />

200 E. Chestnut Street<br />

Zip: 40492<br />

Pediatric Hematologist<br />

Salvatore Bertolone<br />

Tel: +1 502 629 7750<br />

Fax: +1 502 629 7784<br />

Norton Kosair Children’s<br />

Medical Centre<br />

Pediatric Hematology/Oncology<br />

601 S. Floyd St., Suite 402<br />

Zip: 40202<br />

Pediatric Hematologist<br />

Vinod Balasa<br />

Tel: +1 502 562 2902<br />

Fax: +1 502 562 6811<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Brown Cancer Centre<br />

Hemophilia Treatment Centre<br />

James Graham Brown Cancer Centre<br />

529 South Jackson Street, Room B3C21<br />

Zip: 40202<br />

Adult Hematologist<br />

Vivek Sharma<br />

Tel: +1 502 852 6219<br />

Fax: +1 502 562 4053<br />

LOUISIANA<br />

New Orleans<br />

Louisiana Centre for Bleeding<br />

and Clotting Disorders<br />

1430 Tulane Avenue<br />

Tulane University Medical Centre<br />

Hematology/Medical Oncology TB-31<br />

Zip: 70112-2699<br />

Adult Hematologist<br />

Cindy Leissinger<br />

Rebecca Kruse-Jarres<br />

Tel: +1 504 588 5433<br />

Fax: +1 504 588 5483<br />

Fax: +1 504 988 3508<br />

MAINE<br />

Bangor<br />

Maine Medical Centre<br />

Eastern Maine Medical Centre<br />

Hematology/Oncology Clinic<br />

489 State Street<br />

Zip: 4401<br />

Adult Hematologist<br />

Thomas Openshaw<br />

Harvey Segal<br />

Tel: +1 207 973 7474<br />

Maine Medical Centre<br />

Webber Building<br />

417 State Street Suite 305<br />

Zip: 04401-6613<br />

Pediatric Hematologist<br />

Judeth McGann<br />

Tel: +1 207 973 7520<br />

Fax: +1 207 973 7674<br />

Adult Hematologist<br />

Judith Allen<br />

Tel: +1 207 973 7520<br />

Fax: +1 207 973 7674<br />

USA<br />

Portland<br />

Maine Medical Centre<br />

Maine Hemophilia Treatment Centre<br />

19 Bramhall Street<br />

Zip: 4102<br />

Adult Hematologist<br />

Marjorie Boyd<br />

Tel: +1 207 774 5662<br />

Fax: +1 207 772 1249<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

235

USA<br />

Scarborough<br />

Maine Medical Centre<br />

Maine Children’s Cancer Program<br />

Unit 107<br />

100 US Route 1, Unit 104<br />

Zip: 04074-9308<br />

Pediatric Hematologist<br />

Ann Rossi<br />

Tel: +1 207 885 7585<br />

Fax: +1 207 885 7577<br />

MARYLAND<br />

Baltimore<br />

Johns Hopkins University<br />

Medical Centre<br />

1125 Ross<br />

720 Rutland Avenue<br />

Zip: 21205<br />

Pediatric Hematologist<br />

Jim Casella<br />

Tel: +1 410 955 6132<br />

Fax: +1 410 955 8208<br />

Adult Hematologist<br />

Michael Strieff<br />

Tel: +1 410 614 0727<br />

Fax: +1 410 502 5114<br />

236<br />

MASSACHUSETTS<br />

Boston<br />

Boston Hemophilia Centre –<br />

Children’s Hospital<br />

Children’s Hospital Wolbach 17<br />

300 Longwood Ave<br />

Zip: 2115<br />

Pediatric Hematologist<br />

Ellis Neufeld<br />

Tel: +1 617 355 6101<br />

Fax: +1 617 730 0934<br />

Boston Hemophilia Centre –<br />

Children’s Hospital<br />

Children’s Hospital Boston<br />

300 Longwood Ave<br />

Zip: 2115<br />

Division of Hematology<br />

Pediatric Hematologist<br />

Thomas Saxena<br />

Tel: +1 617 355 7203<br />

Fax: +1 617 730 0018<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Boston Hemophilia Centre –<br />

Brigham and Women’s<br />

75 Francis Street<br />

Division of Hematology<br />

BWH Mid Campus 3<br />

Zip: 2115<br />

Pediatric Hematologist<br />

Ellis Neufeld<br />

Tel: +1 617 732 5409<br />

Fax: +1 617 732 5706<br />

Adult Hematologist<br />

Judith Lin<br />

Tel: +1 617 732 5844<br />

Fax: +1 617 732 5706<br />

Worcester<br />

New England<br />

Hemophilia Centre<br />

UMASS Memorial Hospital<br />

New England Hemophilia Centre<br />

119 Belmont Street<br />

Zip: 1605<br />

Pediatric Hematologist<br />

Christopher Keuker<br />

Tel: +1 508 853 6088<br />

Adult Hematologist<br />

Doreen Brettler<br />

Tel: +1 508 334 6276<br />

Fax: +1 508 334 6920<br />

MICHIGAN<br />

USA<br />

Ann Arbor<br />

University of Michigan<br />

Hemophilia and Coagulation<br />

Disorders<br />

1500 East Medical Centre Drive<br />

F2480 Mott Hospital Box 0235<br />

Zip: 48109-0235<br />

Pediatric Hematologists<br />

Jordan Shavit<br />

Steven Pipe<br />

Tel: +1 734 936 6393<br />

Fax: +1 734 936 5953<br />

Adult Hematologist<br />

Paula Bockenstedt<br />

Tel: +1 734 936 6393<br />

Fax: +1 734 936 5953<br />

Detroit<br />

Children’s Hospital of Michigan<br />

Hemostasis and Thrombosis Centre<br />

3901 Beaubien Blvd.<br />

Zip: 48201<br />

Pediatric Hematologists<br />

Jeanne Lusher<br />

Madhvi Rajpurkar<br />

Meera Chitlur<br />

Michael Callaghan<br />

Tel: +1 313 745 5515<br />

Tel: +1 313 745 5392<br />

Tel: +1 248 953 5250<br />

Fax: +1 313 745 5237<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

237

USA<br />

Henry Ford Hospital Adult<br />

Hemophilia & Thrombosis<br />

Treatment Centre<br />

Henry Ford Health System<br />

2799 W. Grand Boulevard, CFP-5 Hem/Onc<br />

Zip: 48202-2689<br />

Adult Hematologist<br />

Philip Kuriakose<br />

Tel: +1 313 916 2772<br />

Fax: +1 313 916 7911<br />

DMC Karmanos<br />

Cancer Institute<br />

Comprehensive Centre for Bleeding<br />

Disorders and Thrombosis<br />

4100 John R 4 Hudson Webber<br />

Zip: 48201<br />

Adult Hematologist<br />

Judith Andersen<br />

Tel: +1 313 576 8707<br />

Fax: +1 313 576 8764<br />

East Lansing<br />

Michigan State University<br />

Centre for Bleeding Disorders<br />

& Clotting Disorders<br />

2900 Hannah Blvd Room 202<br />

Zip: 48823<br />

Pediatric Hematologists<br />

Ajovi Scott-Emuakpor<br />

Elna Saah<br />

Renuka Gera<br />

Tel: +1 517 353 9385<br />

Fax: +1 517 353 9421<br />

238<br />

Michigan State University<br />

Centre for Bleeding Disorders<br />

& Clotting Disorders<br />

B236 Clinical Centre<br />

Zip: 48824<br />

Adult Hematologist<br />

John Penner<br />

Tel: +1 517 353 9385<br />

Fax: +1 517 353 9421<br />

Michigan State University<br />

Centre for Bleeding Disorders<br />

& Clotting Disorders<br />

B216 Clinical Centre<br />

Zip: 48824<br />

Pediatric Hematologist<br />

Roshni Kulkarni<br />

Tel: +1 517 353 9385<br />

Fax: +1 517 355 8312<br />

Flint<br />

Eastern Michigan Hemophilia<br />

Treatment Centre<br />

Genesys Hurley Cancer Institute<br />

302 Kensington Avenue<br />

Zip: 48503<br />

Adult Hematologist<br />

Joyce Fahrner<br />

Tel: +1 810 762 8400<br />

Fax: +1 810 762 8118<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Eastern Michigan Hemophilia<br />

Treatment Centre<br />

Hurley Medical Centre<br />

One Hurley Plaza<br />

Zip: 48503-5993<br />

Pediatric Hematologist<br />

Nkechi Onwuzurike<br />

Susumu Inoue<br />

Tel: +1 810 762 7303<br />

Fax: +1 810 760 9972<br />

Eastern Michigan Hemophilia<br />

Treatment Centre<br />

Genesee Hematology Oncology PC<br />

302 Kensington Avenue<br />

Zip: 48503<br />

Adult Hematologist<br />

Paul Adams<br />

Tel: +1 810 762 8200<br />

Fax: +1 810 760 8202<br />

Grand Rapids<br />

DeVos Children’s Hospital<br />

Coagulation Disorders Program<br />

100 Michigan Street, N.E., MC #85<br />

Zip: 49503<br />

Pediatric Hematologist<br />

Deanna Mitchell<br />

Tel: +1 616 391 2086<br />

Fax: +1 616 391 9266<br />

USA<br />

Kalamazoo<br />

West Michigan Pediatric<br />

at Bronson<br />

MSU/KCMS Clinic Pediatric Hematology/<br />

Oncology<br />

601 John St, Suite M-005<br />

Zip: 49007<br />

Pediatric Hematologist<br />

Jeffrey Lobel<br />

Tel: +1 269 341 8518<br />

Fax: +1 269 341 8580<br />

Hemophilia Clinic of West<br />

Michigan Cancer Centre<br />

MSU/KCMS Pediatric Hematology/Oncology<br />

601 John Street Suite E-300<br />

Zip: 49007<br />

Pediatric Hematologist<br />

Jeffrey Lobel<br />

Tel: +1 269 341 6350<br />

Fax: +1 269 341 8580<br />

Hemophilia Clinic of West<br />

Michigan Cancer Centre<br />

200 North Park Street<br />

Zip: 49007<br />

Adult Hematologist<br />

Glen Heggie<br />

Tel: +1 269 382 2500<br />

Fax: +1 269 373 7478<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

239

USA<br />

Traverse City<br />

Munson Medical<br />

Centre Northern<br />

Regional Bleeding Disorder Centre<br />

Munson Medical Centre<br />

1105 Sixth Street<br />

Zip: 49684<br />

Adult Hematologist<br />

Richard Kosinski<br />

Tel: +1 231 935 0700<br />

Fax: +1 231 935 0704<br />

MINNESOTA<br />

Minneapolis<br />

Children’s Hospitals<br />

& Clinics of Minnesota<br />

2525 Chicago Ave., S, Suite 4150<br />

Zip: 55404<br />

Pediatric Hematologist<br />

Margaret Kurth<br />

Tel: +1 612 813 5940<br />

Fax: +1 612 813 6325<br />

University of Minnesota<br />

Medical Centre, Fairview<br />

MMC 713 Room B-549<br />

420 Delawaare St SE<br />

Zip: 55455<br />

Adult Hematologist<br />

Mark Reding<br />

Tel: +1 612 625 1104<br />

Fax: +1 612 625 6919<br />

240<br />

Rochester<br />

Mayo Comprehensive<br />

Hemophilia Centre<br />

200 First St. SW Hilton 106<br />

Zip: 55905<br />

Adult Hematologist<br />

Rajiv Pruthi<br />

Tel: +1 507 284 2677<br />

Fax: +1 507 284 8286<br />

Pediatric Hematologist<br />

Vilmarie Rodriguez<br />

Tel: +1 507 284 2695<br />

Fax: +1 507 538 6803<br />

St. Paul<br />

Children’s Hospitals<br />

& Clinics of Minnesota<br />

345 Smith Ave N<br />

Zip: 55102<br />

Pediatric Hematologist<br />

David Slomiany<br />

Tel: +1 651 220 7732<br />

Fax: +1 651 220 6005<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

MISSISSIPPI<br />

Jackson<br />

University of Mississippi<br />

Medical Centre<br />

Pediatric Hematology/Oncology<br />

2500 North State Street<br />

Zip: 39216-4505<br />

Pediatric Hematologist<br />

Rathi Iyer<br />

Tel: +1 601 984 2710<br />

Fax: +1 601 984 5279<br />

MISSOURI<br />

Columbia<br />

Hemophilia Treatment Centre<br />

University of Missouri Hospitals & Clinics<br />

One Hospital Drive, DC058.00<br />

7W12 K-Department of Child Health<br />

Zip: 65212<br />

Pediatric Hematologist<br />

Barbara Gruner<br />

Nasrollah Hakami<br />

Tel: +1 573 882 3961<br />

Fax: +1 573 884 4277<br />

Kansas City<br />

Kansas City Regional<br />

Hemophilia Centre<br />

The Children’s Mercy Hospital<br />

2401 Gillham Road<br />

Zip: 64108<br />

Pediatric Hematologist<br />

Brian Wicklund<br />

Shannon Carpenter<br />

Tel: +1 816 234 3508<br />

Fax: +1 816 802 1270<br />

Kansas City Regional<br />

Hemophilia Centre<br />

Truman Medical Centre<br />

2301 Holmes Road<br />

Zip: 64108<br />

Adult Hematologist<br />

William Jennings<br />

Tel: +1 816 235 1924<br />

Fax: +1 816 556 4124<br />

USA<br />

St. Louis<br />

The John Bouhasin Centre<br />

for Children with Bleeding<br />

Disorders<br />

Cardinal Glennon Children’s Hospital<br />

1465 South Grand Blvd.<br />

Zip: 63104<br />

Pediatric Hematologists<br />

Chris Hugge<br />

John Puetz<br />

Tel: +1 314 577 5332<br />

Fax: +1 314 577 5309<br />

Fax: +1 314 577 5665<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

241

USA<br />

Saint Louis University<br />

Centre for Bleeding and<br />

Thrombotic Disorders<br />

St. Louis University Hospital, West Pavillion<br />

3655 Vista Avenue, 3rd Floor<br />

Zip: 63110-2539<br />

Adult Hematologist<br />

Ganesh Kudva (Associate Director, CBTD)<br />

Joachim Reimers<br />

Tel: +1 314 577 8854<br />

Fax: +1 314 773 1167<br />

NEBRASKA<br />

Omaha<br />

Nebraska Regional<br />

Hemophilia Treatment Centre<br />

Department of Pediatrics<br />

982168 Nebraska Medical Centre<br />

Zip: 68198-2168<br />

Pediatric Hematologist<br />

James Harper<br />

Tel: +1 402 559 7257<br />

Fax: +1 402 559 6782<br />

Nebraska Regional<br />

Hemophilia Treatment Centre<br />

Department of Internal Medicine<br />

987680 Nebraska Medical Centre<br />

Zip: 68198-7680<br />

Adult Hematologist<br />

Sandeep Rajan<br />

Tel: +1 402 559 5166<br />

Fax: +1 402 559 6520<br />

242<br />

NEVADA<br />

Las Vegas<br />

Hemophilia Treatment<br />

Centre of Las Vegas<br />

Children’s Centre for Cancer and<br />

Blood Disorders<br />

1090 East Desert Inn Road, Suite 200<br />

Zip: 89109<br />

Pediatric Hematologist<br />

Jonathan Bernstein<br />

Tel: +1 702 732 1493<br />

Fax: +1 702 732 3225<br />

NEW HAMPSHIRE<br />

Lebanon<br />

Dartmouth-Hitchcock<br />

Hemophilia Centre<br />

Hematology Laboratory<br />

One Medical Centre Drive<br />

Zip: 3756<br />

Pediatric Hematologist<br />

Alan Rozycki<br />

Tel: +1 603 650 8654<br />

Fax: +1 603 650 4979<br />

Adult Hematologist<br />

Deborah Ornstein<br />

Tel: +1 603 650 6763<br />

Fax: +1 603 650 6786<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

NEW JERSEY<br />

New Brunswick<br />

UMDNJ-Robert Wood Johnson<br />

University Hospital<br />

One Robert Wood Johnson Place,<br />

Room #378C, CN-19<br />

New Jersey Regional Hemophilia Program<br />

Division of Hematology<br />

Zip: 08903-0019<br />

Adult Hematologist<br />

Claire Philipp<br />

Tel: +1 732 235 7682<br />

Fax: +1 732 235 7115<br />

Pediatric Hematologist<br />

Lisa Michaels<br />

Tel: +1 732 235 6542<br />

Fax: +1 732 235 6462<br />

Newark<br />

St. Michael’s Medical Centre<br />

Nadeene Brunini Comprehensive Hemophilia<br />

<strong>Care</strong> Cent<br />

111 Central Avenue<br />

Zip: 7102<br />

Pediatric Hematologists<br />

Frances Flug<br />

Steve Diamond<br />

Tel: +1 973 877 5340<br />

Fax: +1 973 877 5466<br />

Adult Hematologist<br />

Gunwant Guron<br />

Tel: +1 973 877 5340<br />

Fax: +1 973 877 5466<br />

USA<br />

St. Michael’s Medical Centre<br />

UMDNJ / NJ Medical School<br />

Medical Sciences Building, F540<br />

185 South Orange Avenue<br />

Zip: 7103<br />

Pediatric Hematologist<br />

Franklin Desposito<br />

Tel: +1 973 972 0673<br />

Fax: +1 973 877 5466<br />

Newark Beth Israel<br />

Medical Centre<br />

Comprehensive Hemophilia Treatment Centre<br />

201 Lyons Avenue at Osborne Terrace<br />

Zip: 7112<br />

Pediatric Hematologist<br />

Alice Cohen<br />

Tel: +1 973 926 6511<br />

Fax: +1 973 926 9568<br />

Voorhees<br />

Children’s Hospital of<br />

Philadelphia Speciality Centre<br />

Hemophilia Program<br />

1012 Laurel Oak Rd<br />

Zip: 8043<br />

Pediatric Hematologist<br />

Susan Travis<br />

Tel: +1 856 435 7502<br />

Fax: +1 856 627 2183<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

243

USA<br />

NEW MEXICO<br />

Albuquerque<br />

Ted R. Montoya<br />

Hemophilia Centre<br />

Hemophilia Program<br />

1 University of New Mexico<br />

MSC10 5590<br />

Zip: 87131-5311<br />

Adult Hematologist<br />

Edward Libby<br />

Tel: +1 505 272 2104<br />

Fax: +1 505 272 8699<br />

Pediatric Hematologist<br />

Prasad Mathew<br />

Tel: +1 505 272 5551<br />

Fax: +1 505 272 8699<br />

244<br />

NEW YORK<br />

Albany<br />

The Regional Comprehensive<br />

Hemophilia & von Willebrand<br />

Treatment Centre<br />

Albany Medical College<br />

47 New Scotland Avenue<br />

Zip: 12208<br />

Adult Hematologist<br />

Alan Rausch<br />

Tel: +1 518 262 5839<br />

Fax: +1 518 262 6320<br />

Pediatric Hematologist<br />

Joanne Porter<br />

Tel: +1 518 262 5827<br />

Fax: +1 518 262 6320<br />

Buffalo<br />

Hemophilia Centre of<br />

Western New York – Adult<br />

Erie County Medical Centre<br />

462 Grider Street, 1sr. Fl., Suite 20<br />

Zip: 14215<br />

Adult Hematologist<br />

Zale Bernstein<br />

Tel: +1 716 896 2470<br />

Fax: +1 716 898 5537<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Hemophilia Centre of<br />

Western New York – Pediatric<br />

Children’s Hospital of Buffalo<br />

219 Bryant St.<br />

Zip: 14222<br />

Pediatric Hematologist<br />

Mary Jane Petruzzi<br />

Tel: +1 716 878 7446<br />

Fax: +1 716 888 3801<br />

Johnson City<br />

UHSH Blood Disorder Centre<br />

UHS Wilson Hospital<br />

33057 Harrison Street<br />

Zip: 13790<br />

Adult Hematologist<br />

Serazul Khan<br />

Tel: +1 607 763 6436<br />

Fax: +1 607 763 5514<br />

New Hyde Park<br />

Long Island Jewish<br />

Medical Centre<br />

Hemophilia Treatment Centre<br />

270-05 76th Avenue, Room 358<br />

Zip: 11040<br />

Adult Hematologist<br />

Richard Lipton<br />

Tel: +1 718 470 7380<br />

Fax: +1 718 347 8903<br />

USA<br />

Long Island Jewish<br />

Medical Centre<br />

Schneider Children’s Hospital, Room CH27<br />

269-01 76th Avenue<br />

Zip: 11040<br />

Pediatric Hematologist<br />

Suchitra Acharya<br />

Tel: +1 718 470 7380<br />

New York<br />

Weill Medical College<br />

of Cornell University<br />

New York Weill Cornell Centre<br />

Reg Comp Hemophilia Diag & Trmt Centre<br />

525 East 68th Street Rm P-695<br />

Zip: 10021<br />

Pediatric Hematologist<br />

Donna DiMichele<br />

Tel: +1 212 746 3418<br />

Fax: +1 212 746 8986<br />

Mount Sinai School of Medicine<br />

1184 5th Avenue<br />

Box 1208<br />

Zip: 10029<br />

Pediatric Hematologist<br />

Anne Hurlet<br />

Tel: +1 212 241 7022<br />

Fax: +1 212 360 6921<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

245

USA<br />

Mount Sinai School of Medicine<br />

19 East 98th St. 9d<br />

Box 1078<br />

Zip: 10029<br />

Adult Hematologist<br />

Christopher Walsh<br />

Tel: +1 212 241 8303<br />

Fax: +1 212 722 6079<br />

Rochester<br />

Mary M. Gooley Hemophilia<br />

Centre, Inc.<br />

Rochester General Hospital<br />

Hematology/Oncology<br />

1425 Portland Avenue<br />

Zip: 14621<br />

Adult Hematologists<br />

Peter Kouides<br />

Ronald Sham<br />

Tel: +1 585 922 5700<br />

Tel: +1 585 544 3630<br />

Fax: +1 585 922 4622<br />

Fax: +1 585 338 2347<br />

246<br />

Syracuse<br />

SUNY Upstate<br />

Medical University<br />

Adult Program<br />

Regional Oncology Centre<br />

750 E. Adams Street<br />

Zip: 13210<br />

Adult Hematologist<br />

Tom Coyle<br />

Tel: +1 315 464 8200<br />

Fax: +1 315 464 8206<br />

SUNY Upstate<br />

Medical University<br />

Pediatric Program<br />

c/o Centre for Children with Cancer<br />

and Blood Disorders<br />

750 E. Adams Street Room 5400<br />

Zip: 13210<br />

Pediatric Hematologist<br />

Gloria Kennedy<br />

Tel: +1 315 464 7545<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

NORTH CAROLINA<br />

Chapel Hill<br />

University of North Carolina<br />

at Chapel Hill<br />

Hemophilia Diagnostic and Treatment Centre<br />

Physicians Office Building<br />

170 Manning Drive/CB #7016<br />

Zip: 27599-7016<br />

Adult Hematologist<br />

Alice Ma<br />

Harold Roberts<br />

Tel: +1 919 966 4736<br />

Fax: +1 919 962 8224<br />

University of North Carolina<br />

at Chapel Hill<br />

Comprehensive Hemophilia Diagnostic<br />

and Treatment Centre<br />

Medical School Wing E<br />

Room 128/CB #7016<br />

Zip: 27599-7035<br />

Adult Hematologists<br />

Nigel Key<br />

Stephan Moll<br />

Tel: +1 919 966 3311<br />

Tel: +1 919 966 4736<br />

Fax: +1 919 966 7639<br />

Fax: +1 919 962 8224<br />

Pediatric Hematologist<br />

Paul Monahan<br />

Tel: +1 919 966 4736<br />

Fax: +1 919 962 8224<br />

USA<br />

Greenville<br />

East Carolina University<br />

The Brody School of Medicine at<br />

East Carolina University<br />

Pediatric Hematology/Oncology<br />

600 Moye Blvd.<br />

Zip: 27834-4354<br />

Pediatric Hematologist<br />

Charles Daeschner<br />

Tel: +1 252 744 4676<br />

Fax: +1 252 744 8199<br />

Winston-Salem<br />

Wake Forest University<br />

School of Medicine<br />

Pediatric Hematology/Oncology<br />

Dept. of Pediatrics<br />

Medical Centre Boulevard<br />

Zip: 27157-1081<br />

Pediatric Hematologists<br />

Hernan Sabio<br />

Natalia Dixon<br />

Tel: +1 336 716 4324<br />

Fax: +1 336 716 3010<br />

Wake Forest University<br />

School of Medicine<br />

Hematology/Oncology, Section<br />

of Internal Medicine<br />

Medical Centre Boulevard<br />

Zip: 27157-1081<br />

Adult Hematologist<br />

Mary Ann Knovich<br />

Tel: +1 336 716-5687<br />

Fax: +1 336 716 3010<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

247

USA<br />

NORTH DAKOTA<br />

Fargo<br />

Merit<strong>Care</strong> Hospital DBA<br />

Roger Maris Cancer Centre<br />

Hemophilia & Thrombosis Treatment Centre<br />

820 Fourth Street North<br />

Zip: 58122<br />

Pediatric Hematologist<br />

Nathan Kobrinsky<br />

Tel: +1 701 234 7544<br />

Fax: +1 701 234 7577<br />

OHIO<br />

Akron<br />

Children’s Hospital Medical<br />

Centre of Akron<br />

Akron Hemophilia Treatment Centre<br />

One Perkins Square<br />

Zip: 44308-1062<br />

Pediatric Hematologist<br />

Jeffrey Hord<br />

Tel: +1 330 543 8732<br />

Fax: +1 330 543 3220<br />

248<br />

Cincinnati<br />

Cincinnati Children’s Hospital<br />

Medical Centre<br />

Hemophilia Treatment Centre<br />

3333 Burnet Avenue<br />

Zip: 45229<br />

Pediatric Hematologist<br />

Ralph Gruppo<br />

Tel: +1 513 636 4269<br />

Fax: +1 513 636 5599<br />

University of Cincinnati<br />

Medical Centre<br />

231 Bethesda Avenue<br />

P.O. Box 670562<br />

Zip: 45267-0562<br />

Adult Hematologist<br />

Joseph Palascak<br />

Tel: +1 513 558 4233<br />

Fax: +1 513 558 2203<br />

Cleveland<br />

UHHS Cleveland<br />

Ireland Cancer Centre<br />

11100 Euclid Avenue Mail Stop 5055<br />

Zip: 44106<br />

Adult Hematologist<br />

Bernard Silver<br />

Tel: +1 216 844 8220<br />

Fax: +1 216 844 7400<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

UHHS Cleveland<br />

Rainbow Babies and Children’s Hospital<br />

11100 Euclid Avenue<br />

Zip: 44106<br />

Pediatric Hematologist<br />

Sanjay Ahuja<br />

Tel: +1 216 844 4888<br />

Fax: +1 216 844 5431<br />

Columbus<br />

Ohio State University<br />

Medical Centre<br />

Hemophilia Treatment Centre<br />

A-434b Starling Loving<br />

320 W. 10th Avenue<br />

Zip: 43210<br />

Adult Hematologist<br />

Eric Kraut<br />

Tel: +1 614 293 8723<br />

Fax: +1 614 293 3799<br />

Nationwide Children’s<br />

Hospital Hemostasis and<br />

Thrombosis Centre<br />

Hematology/Oncology Clinic<br />

700 Children’s Drive<br />

Zip: 43205<br />

Pediatric Hematologist<br />

Bryce Kerlin<br />

Tel: +1 614 722 3564<br />

Fax: +1 614 722 3271<br />

USA<br />

Dayton<br />

Dayton Children’s<br />

Medical Centre<br />

West Central Ohio Hemophilia Centre<br />

One Children’s Plaza<br />

Zip: 45404-1815<br />

Pediatric Hematologist<br />

James French<br />

Tel: +1 937 641 3111<br />

Fax: +1 937 641 5878<br />

Toledo<br />

Northwest Ohio Hemophilia<br />

Treatment Centre<br />

Toledo Children’s Hospital<br />

2150 W. Central Avenue<br />

Zip: 43606<br />

Pediatric Hematologist<br />

Crawford Strunk<br />

Tel: +1 419 471 2210<br />

Fax: +1 419 479 3258<br />

Adult Hematologists<br />

Dagmar Stein<br />

Howard Ritter<br />

Tel: +1 419 291 2210<br />

Fax: +1 419 479 3258<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

249

250<br />

USA<br />

Youngstown<br />

Forum Health, Youngstown<br />

Hemophilia Centre<br />

Regional Referral Centre<br />

500 Gypsy Lane<br />

Zip: 44501<br />

Adult Hematologist<br />

Chris Knight<br />

Tel: +1 330 884 4176<br />

Fax: +1 330 884 0509<br />

Pediatric Hematologist – 3rd Floor<br />

Saleh Aymen<br />

Tel: +1 330 884 3955<br />

Fax: +1 330 884 3861<br />

OKLAHOMA<br />

Oklahoma City<br />

Oklahoma Centre<br />

for Bleeding Disorders<br />

Pediatric Hematology/Oncology<br />

940 N.E. 13th Street<br />

PO Box 26307<br />

Zip: 73104<br />

Pediatric Hematologist – Room 1B160<br />

Charles Sexauer<br />

Tel: +1 405 271 5311<br />

Fax: +1 405 271 3756<br />

Adult Hematologist – Room 3008<br />

Phillip Comp<br />

Tel: +1 405 271 3661<br />

Fax: +1 405 271 3756<br />

OREGON<br />

Portland<br />

Oregon Hemophilia<br />

Treatment Centre<br />

Adult Hematology/Oncology<br />

3181 S.W. Sam Jackson Park Road<br />

MNP 3210/L486<br />

Zip: 97239-3098<br />

Adult Hematologist<br />

Danny Greenberg<br />

Thomas DeLoughery<br />

Lynn Boshkov (Director)<br />

Tel: +1 503 494 8534<br />

Tel: +1 503 494 7610<br />

Fax: +1 503 494 3257<br />

Fax: +1 503 494 8148<br />

Oregon Hemophilia<br />

Treatment Centre<br />

CDRC/DCH/OHSU<br />

707 S.W. Gaines Road<br />

Zip: 97207-0574<br />

Pediatric Hematologist<br />

Gregory Thomas<br />

Tel: +1 503 494 8716<br />

Fax: +1 503 494 2721<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

Oregon Hemophilia<br />

Treatment Centre<br />

Oregon Health Sciences Centre<br />

Doernbecher Children’s Hospital<br />

707 S.W. Gaines Road<br />

Zip: 97239-2901<br />

Pediatric Hematologists<br />

Lawrence Wolff<br />

Michael Recht<br />

Trisha Wong<br />

Tel: +1 503 494 9131<br />

Tel: +1 503 494 8716<br />

Tel: +1 503 494 3298<br />

Fax: +1 503 494 2721<br />

Fax: +1 503 494 0714<br />

PENNSYLVANIA<br />

Allentown<br />

Lehigh Valley Hospital<br />

Hemophilia Treatment Centre<br />

1240 South Cedar Crest Blvd<br />

Zip: 18105-1556<br />

Adult Hematologist<br />

Lloyd Barron II<br />

Tel: +1 610 402 0640<br />

Fax: +1 610 402 0644<br />

USA<br />

Hershey<br />

Hemophilia Centre<br />

of Central Pennsylvania<br />

The Milton S. Hershey Medical Centre<br />

500 University Drive,<br />

PO Box 850<br />

Zip: 17033<br />

Pediatric Hematologist<br />

David Ungar<br />

Tel: +1 717 531 7468<br />

Fax: +1 717 531 0647<br />

Adult Hematologist – H046<br />

Elaine Eyster<br />

Tel: +1 717 531 8399<br />

Fax: +1 717 531 0647<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

251

USA<br />

Philadelphia<br />

Children’s Hospital<br />

of Philadelphia<br />

Suite 439, Children’s Seashore House<br />

34th Street & Civic Centre Boulevard<br />

Zip: 19104<br />

Pediatric Hematologists<br />

Char Witmer<br />

Leslie Raffini<br />

Tel: +1 267 426 7302<br />

Tel: +1 267 426 5029<br />

Fax: +1 215 590 3992<br />

Penn Hemophilia and<br />

Thrombosis Program<br />

3400 Spruce Street<br />

3rd floor Dulles Building<br />

Zip: 19104<br />

Adult Hematologists<br />

Adam Cuker<br />

Tami Bach<br />

Elaine Chiang<br />

Suman Sood<br />

Tel: +1 215 615 6555<br />

Tel: +1 215 615 8017<br />

Tel: +1 215 615 8016<br />

Fax: +1 215 615 6599<br />

Fax: +1 215 615 6596<br />

252<br />

Thomas Jefferson<br />

University Hospital<br />

Cardeza Foundation Hemophilia Centre<br />

1015 Chestnut Street, Suite 1020<br />

The Jefferson Building<br />

Zip: 19107<br />

Adult Hematologist<br />

Steve McKenzie<br />

Tel: +1 215 955 8435<br />

Pittsburgh<br />

Children’s Hospital<br />

of Pittsburgh<br />

Division of Pediatric Hematology/Oncology<br />

3705 Fifth Avenue<br />

Zip: 15213-2583<br />

Pediatric Hematologist<br />

A. Kim Ritchey<br />

Tel: +1 412 692 5055<br />

Fax: +1 412 692 7693<br />

Hemophilia Centre<br />

of Western Pennsylvania<br />

3636 Boulevard of the Allies<br />

Zip: 15213<br />

Adult Hematologist<br />

Franklin Bontempo<br />

Margaret Ragni<br />

Tel: +1 412 209 7322<br />

Tel: +1 412 209 7288<br />

Fax: +1 412 209 7281<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

RHODE ISLAND<br />

Providence<br />

Rhode Island Hospital<br />

Hasboro Children’s Hospital<br />

Pediatric Rehabilitation 1st Floor<br />

593 Eddy Street<br />

Zip: 2903<br />

Divison of Pediatric Hematology/<br />

Oncology, Pediatric Hematologists<br />

Geoffrey Allen<br />

Sandra Meech<br />

Tel: +1 401 444 5171<br />

Adult Hematologist<br />

Claire Schwartz<br />

Tel: +1 401 444 8250<br />

Fax: +1 401 444 6104<br />

Rhode Island Hospital<br />

George Building 3rd floor<br />

593 Eddy Street<br />

Zip: 2903<br />

Adult Hematologist<br />

Anita Kestin<br />

Tel: +1 401 444 5395<br />

SOUTH CAROLINA<br />

USA<br />

Columbia<br />

Palmetto Health Richland<br />

7 Richland Medical Park, Suite 7215<br />

Zip: 29203<br />

Pediatric Hematologist<br />

Kevin McRedmond<br />

Tel: +1 803 434 3533<br />

Fax: +1 803 434 3094<br />

SOUTH DAKOTA<br />

Sioux Falls<br />

South Dakota Centre<br />

for Blood Disorders<br />

Sanford Children’s Speciality Clinic<br />

1600 W. 22nd St<br />

Zip: 57117-5039<br />

Pediatric Hematologists<br />

Michael Sprehe<br />

Charlie Peters<br />

Tel: +1 605 312 1000<br />

Fax: +1 605 333 1944<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

253

254<br />

USA<br />

TENNESSEE<br />

Knoxville<br />

East Tennessee Comprehensive<br />

Hemophilia Centre<br />

Medical Office Building B, Suite 214<br />

1928 Alcoa Highway<br />

Zip: 37920-6999<br />

Adult Hematologist<br />

Wahid Hanna<br />

Tel: +1 865 544 9170<br />

Fax: +1 865 544 9876<br />

Memphis<br />

University of Tennessee –<br />

Memphis<br />

Hemophilia Treatment Program<br />

920 Madison, Suite 822 N.<br />

Zip: 38103-3446<br />

Adult Hematologist<br />

Marion Dugdale<br />

Tel: +1 901 448 6454<br />

Fax: +1 901 448 7929<br />

University of Tennessee –<br />

Memphis<br />

66 N. Pauline, Suite 381<br />

Zip: 38103<br />

Adult Hematologist<br />

Syed Haider<br />

Tel: +1 901 448 1529<br />

Fax: +1 901 448 7929<br />

St. Jude Children’s<br />

Research Hospital<br />

332 N. Lauderdale<br />

Zip: 38105<br />

Pediatric Hematologist<br />

Ulrike Reiss<br />

Tel: +1 901 495 4753<br />

Fax: +1 901 495 2952<br />

Nashville<br />

Vanderbilt University<br />

Medical Centre<br />

1301 22nd Avenue South<br />

2665 TVC<br />

Zip: 37232-5505<br />

Adult Hematologist<br />

Anne Neff<br />

Tel: +1 615 936 1803<br />

Fax: +1 615 343 3694<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

TEXAS<br />

Austin<br />

South Texas Comprehensive<br />

Hemophilia Centre<br />

Children’s Hospital of Austin<br />

Specially for Children Hem/Onc Clinic<br />

One Children’s Place, 1400 North IH 35<br />

Zip: 78701<br />

Pediatric Hematologist<br />

Linda Shaffer<br />

Tel: +1 512 628 1900<br />

Fax: +1 512 628 1901<br />

Dallas<br />

North Texas Hemophilia<br />

and Thrombosis Program –<br />

Pediatric Program<br />

Children’s Medical Centre<br />

Hematology/Oncology Clinics<br />

1935 Motor Street<br />

Zip: 75235<br />

Pediatric Hematologists<br />

Cindy Neunert<br />

George Buchanan<br />

Janna Journeycake<br />

Shelley Crary<br />

Tel: +1 214 456 6133<br />

Tel: +1 214 456 2379<br />

Fax: +1 214 456 5097<br />

USA<br />

North Texas Comprehensive<br />

Hemophilia Centre –<br />

Adult Program<br />

University of Texas Southwestern<br />

Medical School<br />

Seay Biomedical Building<br />

5323 Harry Hines Blvd.<br />

Zip: 75390-8852<br />

Adult Hematologist<br />

Yu-min Shen<br />

Cynthia Rutherford<br />

Tel: +1 214 648 5177<br />

Tel: +1 214 648 4180<br />

Fax: +1 214 648 4105<br />

Fort Worth<br />

Fort Worth Comprehensive<br />

Hemophilia Centre<br />

Cook Children’s Medical Centre<br />

Dept. of Hematology/Oncology<br />

901 Seventh Avenue,<br />

Zip: 76104<br />

Pediatric Hematologist – Suite 200/220<br />

Donald Beam<br />

Marcela Torres<br />

Joann Sanders<br />

Tel: +1 682 885 7388<br />

Tel: +1 682 885 4018<br />

Fax: +1 682 885 1712<br />

Fax: +1 682 885 3914<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

255

USA<br />

Galveston<br />

University of Texas<br />

Medical Branch<br />

Galveston Hemophilia Program<br />

Route E-65<br />

Zip: 77555-0565<br />

Adult Hematologist<br />

Jack Alperin<br />

Tel: +1 409 772 1164<br />

Fax: +1 409 772 3533<br />

Houston<br />

Gulf States Hemophilia<br />

and Thrombophilia Centre<br />

6655 Travis, Suite 400<br />

Zip: 77030<br />

Pediatric Hematologists<br />

Deborah Brown<br />

Nidra Rodriguez<br />

Tel: +1 713 500 8360<br />

Fax: +1 713 500 8364<br />

Adult Hematologist<br />

Miguel Escobar<br />

Tel: +1 713 500 8360<br />

Fax: +1 713 500 8364<br />

256<br />

Texas Children’s Hemophilia<br />

and Thrombosis Centre<br />

Clinical <strong>Care</strong> Centre, 14th Floor<br />

6621 Fannin<br />

Zip: 77030<br />

Pediatric Hematologists<br />

Donald Yee<br />

Donald Mahoney<br />

Tel: +1 832 822 8240<br />

Tel: +1 832 822 4861<br />

Fax: +1 832 825 4649<br />

San Antonio<br />

South Texas Comprehensive<br />

Hemophilia Centre<br />

University of Texas Health Sciences<br />

Centre – San Antonio<br />

Dept of Pediatric Hematology/Oncology<br />

333 N. Santa Rosa St., Suite B8208<br />

Zip: 78207<br />

Pediatric Hematologist<br />

Gail Tomlinson<br />

Tel: +1 210 704 3111<br />

Fax: +1 210 704 2396<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

UTAH<br />

Salt Lake City<br />

Mountain States Regional<br />

Hemophilia Centre – Utah<br />

University of Utah Medical Centre<br />

Department of Internal Medicine<br />

Hematology-Oncology<br />

Zip: 84132<br />

Adult Hematologist<br />

George Rodgers<br />

Tel: +1 801 581 3229<br />

Fax: +1 801 585 3432<br />

Mountain States Regional<br />

Hemophilia Centre – Utah<br />

Primary Children’s Medical Centre<br />

100 N. Medical Dr.<br />

Zip: 84113<br />

Pediatric Hematologist<br />

Hassan Yaish<br />

Tel: +1 801 662 2116<br />

Fax: +1 801 662 2114<br />

VERMONT<br />

USA<br />

Burlington<br />

Vermont Regional<br />

Hemophilia Centre<br />

University of Vermont College of Medicine<br />

A123 Given Medical Building, Pediatrics<br />

Zip: 5405<br />

Pediatric Hematologist<br />

Alan Homans<br />

Tel: +1 802 656 2296<br />

Fax: +1 802 656 2077<br />

Vermont Regional<br />

Hemophilia Centre<br />

Fletcher Allen Health <strong>Care</strong><br />

111 Colchester Ave<br />

Main Pavilion, Level 2<br />

Zip: 5401<br />

Adult Hematologist<br />

Chris Holmes<br />

Tel: +1 802 847 3827<br />

Fax: +1 802 847 5946<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

257

USA<br />

VIRGINIA<br />

Charlottesville<br />

University of Virginia Hospital<br />

Barringer 4th floor, Room 4383<br />

Hospital Drive<br />

PO Box 800386,<br />

Zip: 22908<br />

Pediatric Hematologist<br />

Peter Waldron<br />

Tel: +1 434 924 5105<br />

Fax: +1 434 982 1927<br />

University of Virginia Hospital<br />

Adult Hemophilia Program<br />

UVA Health Science Centre<br />

Jordan Hall, Room 2352<br />

Zip: 22908<br />

Adult Hematologist<br />

B. Gail Macik<br />

Tel: +1 434 243 5809<br />

Fax: +1 434 982 4186<br />

Norfolk<br />

Children’s Hospital<br />

of the King’s Daughters<br />

Bleeding Disorders Centre of<br />

Hampton Roads<br />

601 Children’s Lane<br />

Zip: 23507<br />

Pediatric Hematologist<br />

Eric Werner<br />

Tel: +1 757 668 7243<br />

Fax: +1 757 668 7811<br />

258<br />

Richmond<br />

Virginia Commonwealth<br />

University<br />

CSS Hemophilia Program<br />

Box 121, MCV Station<br />

Zip: 23298-0121<br />

Pediatric Hematologist<br />

Gita Massey<br />

Tel: +1 804 828 9605<br />

Fax: +1 804 828 6455<br />

Virginia Commonwealth<br />

University<br />

VCU/VCUHS Station<br />

PO Box 980461<br />

Zip: 23298<br />

Adult Hematologist<br />

John Christian Barrett<br />

Tel: +1 804 828 9802<br />

Fax: +1 804 692 0291<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.

WASHINGTON<br />

Seattle<br />

Puget Sound Blood Centre<br />

& Program<br />

Hemophilia Program<br />

921 Terry Avenue<br />

Zip: 98104-1256<br />

Adult Hematologist<br />

Neil Josephson<br />

Tel: +1 206 292 6507<br />

Fax: +1 206 292 8030<br />

Seattle Children’s<br />

Hematology/Oncology 6D-1<br />

4800 Sand Point Way NE<br />

PO Box C5371<br />

Zip: 98105<br />

Pediatric Hematologist<br />

Dana Matthews<br />

Tel: +1 206 987 1038<br />

Fax: +1 206 987 3946<br />

Spokane<br />

Providence Sacred Heart<br />

Children’s Hospital<br />

Pediatric Hematology /Oncology<br />

Research Centre<br />

PO Box 2555<br />

Zip: 99220<br />

Pediatric Hematologists<br />

Angela Trobaugh-Lotrario<br />

Judy Felgenhaur<br />

Tel: +1 509 474 2777<br />

Fax: +1 509 474 6222<br />

WEST VIRGINIA<br />

USA<br />

Charleston<br />

Charleston Area Medical Centre<br />

830 Pennsylvania Ave, Suite 104<br />

Charleston, WV 25314<br />

Zip: 25302<br />

Pediatric Hematologists<br />

Elizabeth Kurczynski<br />

Sarita Joshi<br />

Tel: +1 304 388 1540<br />

Fax: +1 304 388 1577<br />

Charleston Area Medical Centre<br />

David Lee Cancer Centre<br />

3100 MacCorkle Avenue<br />

Zip: 25304<br />

Adult Hematologist<br />

Steven Jubelirer<br />

Tel: +1 304 388 8380<br />

Fax: +1 304 388 8323<br />

Morgantown<br />

West Virginia University<br />

Medical Centre<br />

Hemophilia Treatment Centre<br />

Robert C. Byrd Health Sciences Centre<br />

Mary Babb Randolph Cancer Centre,<br />

Room G843<br />

Zip: 26506-9162<br />

Adult Hematologist<br />

John Rogers<br />

Tel: +1 304 293 4980<br />

Fax: +1 304 293 2519<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

259

USA<br />

WISCONSIN<br />

La Crosse<br />

Gundersen Clinic<br />

1900 South Avenue<br />

Zip: 54601<br />

Pediatric Hem/Onc EB2-002<br />

Pediatric Hematologists<br />

Antoinette Peters<br />

Robert Ettinger<br />

Tel: +1 608 782 7300 (Ext. 51210)<br />

Tel: +1 608 782 7300 (Ext. 52421)<br />

Fax: +1 608 775 1205<br />

Adult Hematology EB2-001<br />

Adult Hematologists<br />

Craig Cole<br />

John Farnen<br />

Ron Go<br />

Wayne Bottner<br />

Tel: +1 608 782 7300 (Ext. 51208)<br />

Tel: +1 608 782 7300 (Ext. 52664)<br />

Tel: +1 608 782 7300 (Ext. 52139)<br />

Tel: +1 608 782 7300 (Ext. 59080)<br />

Fax: +1 608 775 6627<br />

This information is from the Centre of Disease Control and Prevention homepage http://www2.cdc.gov/ncbddd/htcweb/<br />

index.asp. Accessed on 3/29/2010, and lists hemophilia treatment centres that are part of the federally funded HTC<br />

network. No information has been edited or changed from the web-site.<br />

260<br />

Madison<br />

UWHC Comprehensive Program<br />

for Bleeding Disorders<br />

600 Highland Ave<br />

Zip: 53792<br />

K4/436 Clinical Services Centre<br />

Pediatric Hematologist<br />

Carol Diamond<br />

Tel: +1 608 265 5399<br />

Fax: +1 608 265 9721<br />

H4/540 CSC Adult Hematology<br />

Adult Hematologist<br />

Eliot Williams<br />

Tel: +1 608 263 1836<br />

Fax: +1 608 262 1982<br />

Milwaukee<br />

Comprehensive Centre for<br />

Bleeding Disorders<br />

The Blood Centre of Wisconsin<br />

PO Box 2178<br />

Zip: 53201-2178<br />

Pediatric Hematologist<br />

Joan Gill<br />

Tel: +1 414 257 2424<br />

Fax: +1 414 937 6580<br />

Adult Hematologist<br />

Ken Friedman<br />

Tel: +1 414 937 6494<br />

Fax: +1 414 933 6803

Caracas<br />

Hospital Vargas<br />

Esquina de Pirineos Parroquia San José<br />

Piso 3, Banco Municipal de Sangre del<br />

Distrito Capital<br />

Caracas<br />

Centro Nacional de Hemofilia<br />

(National Hemophilia Centre)<br />

Dra. Apsara Boadas (Clinical Chief)<br />

Dra. Arlette de Sáez (Coagulation<br />

Laboratory Chief/Director)<br />

Tel: +58 412 223 9926<br />

Tel: +58 416 629 9427<br />

Tel: +58 212 562 2325<br />

Fax: +58 212 562 8945<br />

Asociación Venezolana<br />

para la Hemofilia<br />

Carolina Sotillo (President)<br />

Mr. Cesar Garrido<br />

Mrs. Antonia Garrido<br />

Tel: +58 412 794 5781<br />

Tel: +58 416 631 8014<br />

Tel: +58 414 329 3438<br />

Fax: +58 212 562 9804<br />

Venezuela<br />

Lara<br />

Asociación Venezolana para<br />

la Hemofilia – Filial Lara<br />

Hospital Universitario Antonio Maria Pineda<br />

Av. Las Palmas con Av. Vargas<br />

Barquisimeto, Estado Lara<br />

Medico Dr. Robert Andrade (Chief)<br />

Mrs. Maritza Hernandez (Co-ordinator)<br />

Mrs. Ana Tulia Quintero (Co-ordinator)<br />

Tel: +58 416 455 6503<br />

Tel: +58 414 508 4045<br />

Tel: +58 414 527 6362<br />

Tel: +58 251 251 8223<br />

Tachira<br />

Asociación Venezolana para<br />

la Hemofilia – Filial Andina<br />

Barrio Santa Teresa Calle 2, No. 2-145<br />

San Critobal, Tachira<br />

Sr. Jose Monsalve (Co-ordinator)<br />

Dr. Juan Carlos Serrano<br />

Dr. Irisluz Rojas<br />

Dra. Maria Cristina Quevedo<br />

Tel: + 58 414 708 8529<br />

Tel: + 58 414 711 4334<br />

Tel: + 58 414 475 1254<br />

Tel: + 58 416 672 0598<br />

261

Venezuela<br />

Bolivar<br />

Asociación Venezolana para<br />

la Hemofilia – Filial Guayana<br />

Urb. Gran Sabana<br />

Manzana 34, Casa No. 5<br />

Puerto Ordaz, Bolivar<br />

Sr. Juan Arocha (Co-ordinator)<br />

Dra. Sonia Cardenas<br />

Dra. Yelitza Aguirre<br />

Dra. Ana Bastardo<br />

Tel: +58 416 394 6508<br />

Tel: +58 416 686 4337<br />

Tel: +58 416 685 0627<br />

Tel: +58 416 708 6881<br />

Aragua-Guarico<br />

Asociación Venezolana para la<br />

Hemofilia – Filial Aragua<br />

Hosp. Central de Maracay<br />

Av. Fuerzas Armadas<br />

Maracay, Edo Aragua<br />

Dra. Paula Marina Pérez<br />

Tel: +58 416 643 1358<br />

Tel: +58 414 516 3665<br />

Nueva Esparta<br />

Asociación Venezolana para la<br />

Hemofilia – Filial Nueva Esparta<br />

Hosp. Luis Ortega<br />

Porlamar<br />

Isla Margarita<br />

Dra. Luisa Narvaez<br />

Dra. Yadira Rojas<br />

Tel: +58 416 695 8498<br />

262

AustriA<br />

Baxter Healthcare GmbH<br />

Stella-Klein-Löw-Weg 15<br />

A-1020 Vienna<br />

Tel: +43 1 71120 0<br />

Belgium<br />

Baxter Belgium SPRL<br />

Boulevard d’Angleterre 2-4<br />

B–1420 Braine l’Alleud<br />

Belgium<br />

Tel: +32 2 650 17 11<br />

BulgAriA<br />

Trade Representation<br />

Baxter AG Bulgaria<br />

45, Bulgaria Blvd<br />

Building ‘Bulgaria Tower’<br />

Office 2, Floor 2<br />

1401 Sofia<br />

Tel: +359 29808482<br />

CzeCh repuBliC<br />

Baxter Czech spol. s r.o.<br />

Karla Engliše 3201/6<br />

150 00 Praha 5<br />

Tel: +420 225 774 111<br />

DenmArk<br />

Baxter A/S<br />

Gydevang 43<br />

DK-3450 Allerod<br />

Tel: +45 48 16 6400<br />

FinlAnD<br />

Baxter Oy<br />

Valimotie 15 A<br />

(Visitors’ entrance at Valimotie 17)<br />

PL 270, 00381 Helsinki<br />

Tel: +358 09 862 1111<br />

FrAnCe<br />

Baxter S.A.S<br />

6, avenue Louis Pasteur<br />

B.P.56<br />

F-78311 Maurepas<br />

Tel: +33 1 34 61 50 50<br />

germAny<br />

Baxter Deutschland GmbH<br />

Edisonstraße 4<br />

D-85716 Unterschleißheim<br />

Tel: +49 89 31701 0<br />

greeCe<br />

Baxter Hellas EPE<br />

Ethnarhou Makariou 34<br />

& Athinodorou Str.<br />

GR-16341 Ilioupoulis (Athens)<br />

Tel: +30 210 99 87 000<br />

Baxter Healthcare SA, Thurgaustrasse 130,<br />

8152 Glattpark/Opfikon, Switzerland<br />

www.baxter.com<br />

hungAry<br />

Baxter Hungary Kft<br />

22 Nepfurdo Str<br />

Duna Tower<br />

H-1138 Budapest<br />

Tel: +36 12021980<br />

irelAnD<br />

Baxter Healthcare Ltd<br />

7 Deansgrange Business Park<br />

Blackrock<br />

Co Dublin<br />

Tel: +353 01 206 55 00<br />

itAly<br />

Baxter Italia<br />

Piazzale dell’Industria, 20<br />

I-00144 Roma<br />

Tel: +39 06 3249 11<br />

lAtviA<br />

Baxter AG<br />

Dzelzavas iela 117<br />

1021 Riga<br />

Tel: +371 6778478<br />

netherlAnDs<br />

Baxter B.V.<br />

Kobaltweg 49<br />

NL-3542 CE Utrecht<br />

Tel: +31 30 2488 911<br />

norwAy<br />

Baxter AS<br />

Gjerdrumsvei 11<br />

0484 Oslo<br />

Tel: +47 22 58 48 00<br />

polAnD<br />

Baxter Polska Sp. z o.o.<br />

ul. Kruczkowskiego 8<br />

PL-00-380 Warszawa<br />

Tel: +48 22 4883 777<br />

portugAl<br />

Baxter Médico Farmacêutica, Lda<br />

Sintra Business Park, Edificio 10<br />

P-2710-089 Sintra<br />

Tel: +351 21 925 25 00<br />

russiA<br />

Baxter International Inc<br />

10-1 Rosanova 5th Floor<br />

123007 Moscow<br />

Tel: +77 95 956 3839<br />

slovAkiA<br />

Baxter AG o.z<br />

Dubravska cesta 2<br />

84104 Bratislava 4<br />

Tel: +421 259418455<br />

sloveniA<br />

Baxter d.o.o<br />

Zelezna Cesta 8<br />

1000 Ljubljana<br />

Tel: +386 14201680<br />

spAin<br />

BAXTER, S.L.<br />

Parque Empresarial San Fernando<br />

Edificio Londres<br />

28830 San Fernando - Madrid<br />

Tel: +34 916789300<br />

sweDen<br />

Baxter Medical AB<br />

Torshamnsgatan 35<br />

Box 63, S-164 94 Kista<br />

Tel: +46 8 632 64 00<br />

switzerlAnD<br />

Baxter Schweiz AG<br />

Müllerenstrasse 3<br />

CH-8604 Volketswil<br />

Tel: +41 44 908 50 50<br />

turkey<br />

Eczacıbaşı-Baxter Hospital<br />

Supply Inc.<br />

Cendere Yolu<br />

Pırnal Keçeli Bahçesi<br />

Ayazağa 34390 Istanbul<br />

Tel: +90 212 329 62 00<br />

uAe<br />

Baxter AG<br />

Dubai Healthcare City<br />

Al Razi Building – Block C<br />

Office 2024<br />

PO Box 64332<br />

Dubai<br />

Tel: +971 44298100<br />

uk<br />

Baxter Healthcare Ltd<br />

Wallingford Road<br />

Compton, Newbury<br />

Berkshire, RG20 7QW<br />

Tel: +44 1 635 206000<br />

Baxter is a trademark of Baxter International Inc.<br />

Date of preparation December 2010 BS-CO-732

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