Summer 2007 - Arkansas Children's Hospital

CONTENTSACH Cystic Fibrosis CenterTeamwork HelpsPatients and FamiliesWhile treating CF patients andkeeping them as healthy aspossible, team members in theACH Cystic Fibrosis Centerhave successfully created amodel program that focuseson enhanced communicationwith families and bettertreatment for patients.ACH Ambassador Anna Katherine Greenshows off a copy of her ACH All Star card. Thecards feature each Ambassador’s story and areused to hand out at speaking engagements.Pat and Jim McClelland, members of the ArkansasChildren’s Hospital delegation of Children’s Circleof Care, enjoyed a clambake dinner held in Boston.Pat is chairman of the ACH Board of Directors,while Jim serves on the ACH Foundation board.The CF team includes: (front row, from left)Thomas Wilkins, Amelia Harris, Heather Barkley,Lauren Willis, (second row) Mary Jo Chambers,Patty Burge, Kathy Robinson, Penny Ward, (backrow) Dr. Dennis Schellhase, Sandy King, LisaBylander, Kenneth Myers.2007 ACH AmbassadorsSharingTheir StoriesACH Ambassadors are a group of currentand former Arkansas Children’sHospital patients who are giving hopeand inspiration to other patient families,donors and volunteers by sharingtheir stories. The Ambassadors aretrue examples of the care, love andhope that ACH provides.2007 CCC North AmericanLeadership ConferenceCelebratingP hilanthropyand GivingChildren’s Circle of Care (CCC)members from across NorthAmerica recently visited Bostonfor the 2007 CCC LeadershipConference. ArkansasChildren's Hospital was representedby 23 CCC members.ARKANSAS CHILDREN’S HOSPITALBOARD OF DIRECTORSPat McClelland, ChairmanM. Edward Drilling, Vice ChairmanTom Baxter, SecretaryDorsey Jackson, TreasurerWhit Hall M.D., Chief of StaffHarry C. Erwin III, Past ChairmanJonathan Bates, M.D., President & CEOJohn Bale, Jr.Ron ClarkDale CookHaskell DickinsonSkip FrantzPaul R. HartBryan HillJ. French HillJudge Marion HumphreyRichard F. Jacobs, M.D.Michael JoshuaDiane MackeyBarbara MooreACH RESEARCH INSTITUTERon Clark, ChairmanJonathan Bates, M.D.,Vice Chairman for Finance & Admin.Debra Fiser, M.D., Vice Chairman for ResearchRobert Porter, M.D., Secretary/TreasurerRichard F. Jacobs, M.D., PresidentKanwaljeet “Sunny” Anand,M.B.B.S., D.PhilM. Edward DrillingJames GastonEllen GrayACH FOUNDATIONJonathan Bates, M.D., ChairmanCharles B. Whiteside III, Vice ChairmanJohn E. Bel, PresidentPat AllenJohn Bale, Jr.Tom BaxterFrances BuchananWilliam ClarkJames CobbRobert G. CressDon EdmondsonHarry C. Erwin IIIRobin GeorgeBarbara HannaAnne HickmanRay HobbsRoss HoneaBeverly KeenerMark LarsenBeverly MorrowEduardo Ochoa, M.D.Skip RutherfordMark SaviersKate SchafferPhilip SchmidtRobert L. ShultsBonnie Taylor, M.D.Everett Tucker IIIRick WatkinsCharles B. Whiteside IIII. Dodd Wilson, M.D.Tommy HillmanRoger Rank, Ph.D.Mark SaviersRobert ShultsI. Dodd Wilson, M.D.Diane MackeyAlice MahonyMark McCaslinJim McClellandJeffrey NolanRobert Porter, M.D.Steven RansdellSara M. RichardsonVicki SaviersPhilip SchmidtWitt Stephens, Jr.Marianne ThompsonSue TrotterKim WilliamsTom WomackACHiever StaffEditor:Chris McCreightDesign:Lori Barlow, The Graphic Design Shop, Inc.Photographers:Kelley Cooper, ACH Foundation StaffContributors:Alyssa Anderson, John Gregan, Kila OwensTHE ACHIEVERis published by Arkansas Children HospitalFoundation for friends of ACH.800 Marshall St., Slot 661,Little Rock, AR 72202-3591(501) 364-1476 • FAX (501) 364-3644TDD (hearing imparired) 364-1184www.archildrens.org

Cystic Fibrosis Team isHelping Children andFamilies Breathe EasierHOSPITAL PROGRAMSCameron and CarterWilkins have bothbeen CF patientsalmost since birth.Their father, Thomas,is very active in theACH CF FamilyAdvisory Board.■ Kila OwensAs a parent, being told your child has a life-threatening illness canbe heart-breaking. Imagine having to hear it twice.Thomas and Karena Wilkins have two sons, 4-year-old Cameronand 1-year-old Carter, and both have been diagnosed with cystic fibrosis(CF).In CF patients, the cells that line airway tubes and other passagewaysin the body do not secrete normal, free-flowing fluid. Instead, adefective gene causes the body to produce abnormally thick, stickysecretions that block airway tubes and other passageways, particularlyin the lungs and intestines, interfering with vital functions such asbreathing and digestion.Cystic fibrosis is a genetic or inherited disease, beginning at conceptionfrom a defect or gene abnormality.Cameron and Carter have been visiting the ACH Cystic FibrosisCenter almost since birth. The CF Center meets the many needs of CFpatients across the region, from initial diagnosis to ongoing treatment.The CF program’s staff is an interdisciplinary team of individuals,including representatives from the full spectrum of health care —physicians, specialty nurses, social workers, respiratory therapists, nutritionists,child life specialists and chaplains, among others.“It takes a multidisciplinary team to care for patients with CF,” saysLauren Willis, respiratory therapist. “We really have a fantastic group offolks who meet regularly, work very well together and are committedto providing the highest quality of care.”The CF Center is always working to improve the level of care providedto patients. Thanks to the team’s hard work, many great thingshave been achieved recently. One such accomplishment is the creationof a CF Center Family Advisory Board (FAB). The board, comprisingparents of CF children, was spearheaded by social worker Mary JoChambers.“Since CF patients are not allowed to socialize together, due to theneed to avoid infections, parents and families felt isolated,” Chamberssays. “We wanted to bring these parents together to discuss manyissues — how they felt, how they thought we were doing, how wecould improve.”The program has been a great success. Communication betweenparents and the CF team has been greatly enhanced with FAB-driven projects,such as a quarterly newsletter and online bulletin board. The programis being used as an example for other ACH departments, and Chamberswas asked to present about the FAB at the North American CFFoundation conference. In fact, because of the team’s successes this pastyear, several members were asked to present information at the conference.Another new development is the recent commitment by the ArkansasDepartment of Health to screen newborns for CF (and a number of otherdiseases) beginning in July 2008. According to Dr. Dennis Schellhase*,director of the ACH CF Center, implementing newborn CF screening willbe a challenge, but the benefits will be substantial.“The earlier you can make a diagnosis, the more opportunities you haveto begin early treatment of the child’s nutritional problems and lung disease,”says Schellhase.The outlook for young CF patients is bright, due to many advances inmedicine. Twenty years ago, the life expectancy of a CF patient was barelyout of adolescence. Today, the median life expectancy is 37 years andincreasing.Members of the ACH CF team feel a family-centered approach is integralto providing quality care.“We develop very close relationships with our patient families,”Schellhase says. “We see the kids so often, it’s like we become a member oftheir family.”Wilkins is thrilled with the care his children receive from the ACH CFteam. It is hard having one child with CF, much less two, but he says thesupport from the team is unparalleled.“They have great respect and love for their patients and their families,”he says. “The support they offered to us when our children were diagnosedwas amazing. They gave us information about the disease and let us knowwe were going to fight it together.”*Dennis Schellhase, M.D., is director of the Cystic Fibrosis Center at ACHand associate professor in the department of pediatrics, UAMS College ofMedicine.3

RyanGarrettAnnaKatherineGreenKeelyKeenomCadeMcCredyRyan Garrett, 4, El DoradoRyan was diagnosed with an inguinal hernia shortlyafter birth, and at 5 weeks old, he was diagnosedwith intussusception, a condition in which part ofhis intestine folded inward and into itself.Doctors were able to perform a simple, non-surgicalprocedure that relieved his intussusceptionsymptoms. Ryan also had outpatient surgery atACH a few months later to repair his inguinalhernia. His mother describes him as a sweetchild who loves exploring his surroundings.Anna Katherine Green, 5, Little RockAnna Katherine had her first heart surgery when shewas just 1 day old. After the first surgery, a “kink”was discovered in her intestines, so another surgerywas necessary to repair her small intestine. Sevenmonths later, Anna Katherine had her second heartsurgery at ACH. In early 2007, she was back in thehospital with pancreatitis, a disease that normallydoes not affect children. Today, Anna Katherinevisits ACH every six months to monitor herheart condition. In June 2007, she had her thirdand final heart surgery. Anna Katherine currentlytakes piano lessons, dance and gymnastics classes, and sheloves to swim.Keely Keenom, 8, ViloniaKeely was born with a rare birth defect that requiredsurgery at Arkansas Children’s Hospital when she wasonly 1 day old. She was diagnosed with tracheoesophageal fistula/esophageal atresia, a condition inwhich her esophagus connected to her tracheainstead of to itself. She spent a month at ACHbefore going home for the first time and was backin the hospital a few more times that year for outpatientsurgeries to repair her esophagus.Though the surgeries improved Keely’s condition,she still suffers from tracheomalacia, or a“floppy” trachea. Because of this, even a common coldcan often result in pneumonia. Keely is a charming, wellmanneredgirl who loves sports — especially softball —and her family.Cade McCredy, 2, FayettevilleCade was born 10 weeks early and was diagnosed withan abnormal development of lung tissue common inpremature babies. He was moved from a hospital inMissouri to Washington Regional Medical Center(WRMC) in Fayetteville. At WRMC, Cade was underthe care of an Arkansas Children’s Hospital neonatologistwho is on staff at WRMC. The WRMC neonatalintensive care unit is an extension/satellite ofACH. After going home, Cade remained on oxygenfor eight months and had monthly visits to theneonatology clinic at ACH in Little Rock. Cade is nowa happy, laid-back child who loves playing with balls andcars and enjoys imitating his big sister.Cole Nash, 6, MonticelloAt age 2 ½, Cole became sick to his stomach andbruises began appearing all over his body. Thefamily consulted a doctor, who took a bloodsample and immediately sent Cole and his familyto Arkansas Children’s Hospital. Once at ACH,Cole was diagnosed with acute lymphocyticleukemia. He began chemotherapy immediately.Within six weeks, Cole was in remission.His treatment continued for three years, andhe never had a relapse. He still visits ACH once amonth for tests to monitor his remission. Cole wantsto be an animal doctor when he grows up.Lindsey Taylor, 6, Little RockLindsey began her life with serious heart problems.The day after her birth, Lindsey’s pediatricianheard a heart murmur and promptly sent her toACH for further testing. At ACH, Lindsey wasdiagnosed with transposition of the great arteries,pulmonary stenosis, cleft mitral valve and aventricle septal defect. She has had three surgeriesat ACH, and with each surgery has becomestronger and healthier. Lindsey continues totake medication and receive regular check-upsfrom her cardiologist. She is involved in cheerleadingand choir at her church.Jacob Wells, 6, SearcyJacob was flown to ACH immediately after birth,where doctors diagnosed him with tetrology of fallotwith absent pulmonary valve. This heart defectalso damages the lungs and upper airway. Heunderwent two open-heart surgeries and when itwas determined he was not breathing on his own,doctors performed a tracheostomy to assist hisbreathing. Jacob relied on a ventilator to helphim breathe for three years. He continues tovisit ACH for check-ups and will eventuallyrequire another heart surgery. Today, he is ahappy, healthy child who talks non-stop andenjoys playing with trains and watching themovie “Cars.”Sadie Wood, 14, FayettevilleOne wouldn’t know that just a few years ago Sadiewas diagnosed with a disease that could have endedher competitive swimming career. In April 1998,Sadie was referred to ACH where she was diagnosedwith juvenile rheumatoid arthritis, a chroniccondition that causes joint inflammation, pain,swelling, redness and stiffness. Although she is avery active teenager, Sadie has experienced somepermanent effects of the arthritis and still visitsACH regularly for checkups. Her future goalsinclude qualifying for the junior nationalswimming championships, obtaining a collegeswimming scholarship and entering the nursing fieldafter graduation.ColeNashLindseyTaylorJacobWellsSadieWood5

RESEARCHACHRI Research isTreating Pain,Tracking Impact■ John GreganThe cry of a child stirs the emotions of anybody in earshot.When the suffering child is a premature baby, hearts and thoughtsgo out to the tiny newborn.Invasive machinery and various medical procedures are neededto keep these children alive and growing, separating them fromtheir mothers. There is no maternal touch, only clinical forms ofstimulation. Without a calming connection, the most vulnerable ofpediatric patients are exposed to increasing stress or pain. Thealternative to is alleviate the pain by using powerful drugs — acontroversial and difficult choice.In June 2000, Laura Anderson was faced with this choice fornot just one child, but for two premature babies.“I had an emergency C-section,” she recalls. “Cameron andCarlie were born at 27 weeks, and neither had lung development.They were just so small, 2 pounds, and they needed respirators.”At this time, the two babies were enrolled in a neonatal painstudy. Babies in the study were given either morphine to controlpain or a placebo. The study explored questions about babies treatedwith painkillers: Would stress decrease? Would survival increase?Would conditions such as cerebral palsy, cognitive delay and bleedingin the brain decrease?Remembering the first time she saw her children, Laura says,“Cameron was telling it; he was loud. Carlie was out of it: quiet,calm, still.”During their two months at ACH, the babies grew stronger.“Cameron was strong enough to pull out his tube three or fourtimes, but he wasn’t strong enough to breathe without the tube,”his mother says. “Staff members at ACH cared about the kids andwere considerate of the kids’ and parents’ feelings. They explainedeverything to us.”Cameron and Carlie were among the children involved in theNEurologic Outcomes and Preemptive Analgesic In Neonates(NEOPAIN) study — the study of pediatric pain management innewborns. Dr. Sunny Anand* directed this National Institutes ofHealth-funded research project centered at ACH. It involved 16centers (12 in the US and four in Europe) from 1999 to 2002.The study revealed a decreased pain response in babies receivingmorphine but did not show a change in effects such as brain damage.Some of the babies with higher morphine doses had sideeffects similar to those of adults using morphine — a fact not previouslydocumented for premature babies.Five years later, NIH has agreed to fund a follow-up study tobegin later this year on the babies in the NEOPAIN study. Themain objective is to learn the long-term impact on the babies, nowCameron and Carlie Anderson, now 7, are vibrant andhealthy as they jump on a trampoline. Thanks toresearch like that of Dr. Sunny Anand, children likeCameron and Carlie have better hope for the future.ages 6 to 8. At age 8, Dr. Anand’s team will give these childrenoutpatient tests regarding behavior, cognition, stress response,executive brain function, growth, vision, hearing and visualmotorcoordination.“Science continues to push the boundaries of understanding.Facts that were accepted as dogma in years past, suchas ‘babies do not feel pain, and it has no long term effect,’ arebeing questioned again,” says Dr. Richard F. Jacobs*, presidentof Arkansas Children’s Hospital Research Institute (ACHRI).“Dr. Anand’s work is key to opening those doors of scientificunderstanding of pain in babies and whether or not there areeffects from those experiences. It could potentially impact severalareas of neonatal medicine and how we manage babies inthe future.”In preparation for the follow-up study, Dr. Anand has conductedpreliminary studies with 20 local patients from the originalstudy. Cameron and Carlie have each returned to ACH forthis testing. Dr. Anand’s initial results show that NEOPAINchildren who received morphine may have increased cognitionand behavior scores compared to children who received theplacebo. He hopes to learn if there are differences later in life,with increased IQ or decreased atypical behaviors among prematurebabies receiving analgesia.The treatment of Laura’s family was only one influence in herdecision to enroll her children in the follow-up and in anyfuture studies.“Most of all,” she states, “The more research, the more wecan learn. If it will help anybody else you know, you don’tmind.”*Kanwaljeet J.S. “Sunny” Anand, MBBS, D. Phil, FAAP, FCCM,FRCPCH, is a physician in critical care medicine at ACH; holdsthe Morris & Hettie Oakley Endowed Chair of Critical CareMedicine; is a professor in the UAMS departments of pediatrics,anesthesiology, pharmacology, neurobiology and developmentalsciences; and is director of the ACHRI Pain NeurobiologyLaboratory.*Richard F. Jacobs, M.D., FAAP, is president of ACHRI, physicianin pediatric infectious disease at ACH, the Horace C. CabeProfessor of Pediatrics and the interim chairman of the departmentof pediatrics, UAMS College of Medicine.6

Billingsley enjoys dinner with ACHpresident and CEO Dr. Jonathan Batesduring the recent Circle of CareLeadership Conference in Boston.DONORSCircle of Care Member BoyceBillingsley Gives to ACH BecauseShe’s ‘A Sucker for Kids’■ Alyssa AndersonBoyce Billingsley, of Bella Vista, never had a child who needed theservices of Arkansas Children’s Hospital. She never had a grandchild whoneeded ACH. But when her late husband, George, decided to make a largedonation to the University of Arkansas in 2001, Billingsley told him,“That’s fine, but I’ve got a little something I want to donate to.”That’s when she established a charitable remainder trust (CRT) andmade ACH the beneficiary.“I just read about the hospital and knew they did very good work,”Billingsley began, “and I’m a sucker for kids!”A CRT is an arrangement in which property or money is donated to acharity such as ACH, but the donor continues to use the property and/orreceive income from it while living. Billingsley says her decision to donatespecifically through a CRT was based on advice from the couple’s financialadvisor.“I’m not that brainy,” she laughs. “I certainly had some help with whatto do.”Born and raised in Arkansas, Billingsley is proud of what ArkansasChildren’s Hospital does for the state and is excited about the hospital’sgrowing presence in northwest Arkansas. Although she has not yet touredthe new Center for Children in Lowell, she says, “It’s nice that it’s justright here. Those families don’t have to go all the way to Little Rock.”Billingsley was born in West Memphis, where her father, John Cooper,Sr., was a farmer for many years. When Billingsley was in college, herfather envisioned and created Cherokee Village in Hardy in 1954, and laterBella Vista in 1965 and Hot Springs Village in 1970. Today, CooperCommunities is involved in projects across eight states. Through its subsidiaries,the company develops timeshare resorts and planned communities,owns and manages more than 3.5 million square feet of commercialproperty and is Arkansas’ largest homebuilder with more than 11,000homes built.“It was a nice ride,” Billingsley said of the creation of CooperCommunities. “It’s been very good to us and to our family.”George Billingsley, was in charge of sales for the company for about25 years before retiring. Later, after encouragement from his tennis buddy,Sam Walton, he started Pacific Resources Export Limited (PREL). Thecompany, which started in China and later spread around Asia and intoIndia and South America, sold exports to Wal-Mart for 10 years.“At the end of the 10 years, the contract expired, and that was goodbecause George had become sick then,” Billingsley said. George Billingsleypassed away in July 2002.While George was still living, the couple enjoyed being involved inactivities at Arkansas Children’s Hospital, especially the Children’s Circle ofCare. Circle of Care is a giving society in the United States and Canada thathonors individuals and family foundations who give $10,000 or more a yearto their local children’s hospitals. Every year, a different city hosts a leadershipconference, medical symposium and gala, which brings together Circleof Care members from across the continent. Conference attendees are treatedto world-class entertainment and a special look at the exciting work beingdone by pediatric hospitals.“I’ve gone to a lot of the conferences and listened to the doctors speak,”Billingsley says. “Dr. Jim Aronson from our hospital spoke one year, and hewas amazing. I was so proud of him and Arkansas and our hospital.”Billingsley says as long as she’s able, she will continue supportingArkansas Children’s Hospital and will encourage others to do the same.GOLFING “FORE” KIDS BENEFITS ACHThis past spring, family, friends and employees of DeanCrowder Construction, Inc., raised more than $53,000during the 2007 “Golfing ‘Fore’ Kids” Golf Tournament atthe Big Sugar Golf Course in Pea Ridge, Ark. The tournamentwas held in honor of 8-year-old Lindsey DrueCrowder, of Bentonville, a cancer patient at ACH who isin remission. Crowder Construction employees picturedare: (front row, from left) Tim Brewer, Reece, Lindseyand Dawson Crowder (siblings), Cassie Webb and JustinCummings. Back row, from left: Brian Pickett, MelissaKing, Diana Whitsell, and Lindsey’s parents, Lisa andTodd Crowder.7

HOSPITAL NEWSGov. Mike Beebe, alongwith ACH and UAMSleaders and other friendsand supporters werejoined by children servedby the center for the ceremonialribbon-cutting toofficially open the Centerfor Children in Lowell.Center for Children in Lowell First Step in Effortsto Bring Pediatric Health Care Closer to HomeThe Center for Children in Lowell celebrated its grand openingin mid-May as part of a collaborative project of ArkansasChildren’s Hospital and the University of Arkansas for MedicalSciences (UAMS). The new facility provides developmental andsubspecialty medical care by physicians from ACH and UAMS tochildren in northwest Arkansas.The center houses the Schmieding Developmental Center, theSchmieding KIDS FIRST program and various regional clinics, allpreviously located in Fayetteville and Springdale.“With this new, shared outreach, thousands of families will nothave to make the long trip to Little Rock for their child’s initialevaluation or clinic visits for follow-up medical attention,” says Dr.Jonathan Bates, ACH president and CEO.During 2006, patients from northwest Arkansas made nearly14,000 visits to ACH. The extension of services in Lowell isexpected to improve the flow of appointments in Little Rock,which will help children from all areas of Arkansas.The statewide working collaborative between ACH and theUAMS Department of Pediatrics is collectively called Centers forChildren and includes the Lowell location. The collaborative wasformed to enhance access to pediatric subspecialty care acrossArkansas and strengthen and expand the 24 existing regional clinicslocated in El Dorado, Fort Smith, Harrison, Helena/WestHelena, Jonesboro, Mountain View and Texarkana.Pediatric subspecialty services offered in Lowell include adolescentmedicine, allergy, cardiology, endocrinology, gastroenterology,nephrology, neurology, pulmonology and rheumatology.The center is expected to offer 298 clinics in the next year.NEWLY ELECTED —Photo comingfrom ACHACH BoardSkip FrantzChairman,Windstream Corp.Little RockACH BoardWhit Hall, M.D.ACH Chief of Staff,Neonatology professorand director of intensivecare nursery at UAMSACH BoardKate SchafferState BoardPresident-electCircle of FriendsHot SpringsACH FoundationSteven RansdellFinancial Consultant, MetropolitanInvestment ProfessionalsPresident,Committee for the FutureLittle Rock8

TheQuietANONYMOUS DONORS:Heroesof ACHGIVING■ Alyssa AndersonWhen a gift is made to Arkansas Children’s Hospital, staffmembers in the ACH Foundation do their best to appropriatelypublicize and recognize the contribution. In addition to anyexternal publicity the donor may receive, all donors who give$1,000 or more annually are listed on the Wall of Honor in themain hospital lobby and are published in the Donor Roll in theACHiever magazine.“We always hope we can recognize donors’ gifts publiclybecause it’s another way their gift helps us,” says Libby Smith,senior vice president of the ACH Foundation. “We ride on theshoulders of our good friends, and our reputation is enhancedby friendships with people whose reputations are admired. It’salso an encourager for others who know them to think, ‘Well,if my friend can make such a gift to Arkansas Children’sHospital, maybe I can do something similar.’”But not all donors are interested in receiving publicity fortheir gifts to the hospital. Many of these donors choose to giveanonymously – they are quiet heroes.At Arkansas Children’s Hospital, anonymous donors don’tfall into any specific “category” of giving. Some are big givers,some are small givers, some give to specific programs, somegive undesignated gifts. Among the programs/areas supportedby anonymous gifts in 2006 year were research, cancer, endowmentand child life.One donor who gives anonymously to ACH says she andher husband support the hospital because their child has beena long-time patient.“Over the years, we have come to love this place, and weare thankful we are able to help,” she says. “The doctors, nursesand staff truly love our child. The care and respect that ourchild – and our entire family – receives consistently exceedsour expectations.”Their reason for giving anonymously is a humble one:“The Lord has blessed our family in so many ways and hasprovided for us amazingly. God is the one to be recognized forany gifts we are able to give, and we are happy to be able topass the blessings on to help others.”The largest donation from an anonymous donor last year –$745,330 – was made in support of the autism research currentlybeing done by Dr. Jill James*, director of the AutismMetabolic Genomics Laboratory at the Arkansas Children’sHospital Research Institute (ACHRI). The donor is an out-ofstateparent of an autistic child that Dr. James had workedwith previously. The gift will fund a three-year autism study.“We hope to determine whether targeted nutritional supplementationwill normalize the metabolic imbalance in these childrenand whether improving their metabolism will also improvetheir behavior,” says James. “The major gift from this donormakes such a big difference in what we are able to do for thechildren.”Not all anonymous donors support Arkansas Children’sHospital because of a personal experience. One donor recentlymade a very generous gift in honor of work partners to whomhe credited his business success. The donor had never needed theservices of ACH, but some of his employees had been involvedin a volunteer group that raised money for the hospital. Thedonor was so private about the gift that he asked his partners topresent it to ACH, rather than present it himself.Whatever their reason for giving anonymously, Smith says theArkansas Children’s Hospital Foundation takes great care in protectingthe identity of its anonymous donors.“Certainly we don’t publish the gift on our donor wall. Wedon’t publish it in any of our publications. We don’t discuss it inthe company of others. Any staff member who may know aboutthe gift is pledged to confidentiality. We would even be carefulabout inviting the donor to events,” Smith says. “Regardless ofhow much we might wish to publicly recognize the donor, wewill not do it. We will safeguard that confidentiality.”*Jill James, Ph.D., is director of the ACHRI Autism MetabolicGenomics Laboratory; professor of pediatrics at UAMS College ofMedicine; and a member of the Arkansas Center for Birth DefectsResearch and Prevention.Miracle Ball— December 8, 2007 —The second annual Miracle Ball,hosted by the ACH Auxiliary, will be heldSunday, Dec. 8 at 6:30 p.m.at Children’s Hall on the ACH campus.For more information on the Miracle Ball,contact Robin Rhoades, 501-364-1491.9

GIVINGChildren’sCircle of CareMembers CelebrateGiving, PhilanthropyFor a few days in May, a group of ArkansasChildren’s Hospital Children’s Circle of Care (CCC)members experienced the sights, sounds and tastes ofBoston while attending the 2007 North AmericanLeadership Conference.At the conference, ACH delegates were joined bynearly 1,400 CCC members from across NorthAmerica. Children’s Circle of Care members are individualsand family foundations who make annual giftsof $10,000 or more to their local children’s hospital.To kickoff the two-day conference, ACH guestswere treated to a reception and clambake dinner. Thedinner was held with delegates from All Children’sHospital in St. Petersburg, Fla.During the medical symposium, physicians fromacross the U.S. gave movingand innovative presentationsabout pediatric AIDS, fetalcardiac intervention and pediatricinterventional radiology.Other events at the conferenceincluded a roundtablephilanthropy discussion withthe wives of local sportsteam owners, and a black-tiegala dinner to celebrate thegiving spirit of CCC members.Conference attendees wereentertained with a performanceby Elton John and aconcert by the Boston PopsOrchestra. Tours of Boston landmarks also were availableto CCC members.Children’s Circle of Care is an organization of 23North American children’s hospitals. Locally in 2006,104 CCC members gave $3.8 million to ACH and theACH Research Institute.For more information about Children’s Circle ofCare, or to become a member, contact Libby Smith at501-364-5309.Legendary singer EltonJohn performs for conferenceattendees after thegala dinner.10Everyone is all smiles as the Arkansas Children’s Hospital delegationgathers at the conference gala dinner. Attendees included: (front row,from left) John Bel, Tip Pugh, Dr. Tim Martin, (second row) Judy Bel,Suzanne Pugh, Melanie Frueauff, Pat McClelland, Sara Richardson,(third row) David Frueauff, Pam English, Marilyn Bogle, BoyceBillingsley, Lesley Roberts, Cheryl Jaquiss, Frances Buchanan, PatAllen, Libby Smith, (last row) Jim McClelland, Sam Buchanan, Dr.Jonathan Bates, Sam Richardson, Pete Allen, Dr. Jake Jaquiss, Dr.Sally Bates. Attending the conference, but not pictured: Helen Sharpe.Founding Sponsors:Costco WholesaleThe Oki FoundationSignature PresentingSponsors:Cushman and Wakefield ofMassachusetts, Inc.Fidelity InvestmentsHarrah’s Entertainment, Inc.Tudor Investment CorporationSilver Sponsors:AJ GallagherBank of America CorporationBentz Whaley FlessnerGoldman SachsThe H.N. and Frances C.Berger FoundationKinteraNixon Peabody LLPOpus Search PartnersTsoi/Kobus & AssociatesThe Westin Boston Waterfront

HOSPITAL NEWSDr. John Carroll shares his specialday with wife Tiziana, motherLillian Carroll, and daughtersMaddy, Molly and Maggie.Carroll Named First Recipient ofthe James H. Hamlen, II, EndowedChair in Pediatric PulmonologyDr. John L. Carroll* was recently installed by Arkansas Children’sHospital as the first holder of the James H. Hamlen, II, EndowedChair in Pediatric Pulmonology.At the investiture ceremony, Carroll’s longtime friend and associate,Dr. Gerald Loughlin, offered collegial remarks. He commented onCarroll’s ambition, drive and love of his field.“When John does something, he does it full-tilt, be it research trialsor clinical care,” said Loughlin, professor and chairman of the departmentof pediatrics at New York Presbyterian Hospital. “With a leaderlike John, the future is very bright for Arkansas Children’s Hospital.”The endowed chair creates a fund set aside in perpetuity with theearnings dedicated to the support of the chairholder. Endowed chairssupport a designated program and help with retention and recruitmentof doctors.Since 2000, Carroll has been co-director of the ACH Sleep andBreathing Disorders Center and director of the ACH Asthma CareCenter.*John Carroll, M.D., is director of pediatric pulmonary medicineat ACH, co-director of the ACH Sleep and BreathingDisorders Center, director of the ACH Asthma Care Centerand a professor in the pediatrics and physiology departmentsat UAMS College of Medicine.Audiology and Speech PathologyEndowed Fund AnnouncedThe James H. Hamlen, II, Endowed Fund for Audiology andSpeech Patholgy recently was created thanks to a gift to ArkansasChildren’s Hospital through Mr. Hamlen’s estate.The endowment will support the work of the audiology andspeech pathology departments at ACH.The audiology department provides services that include the identificationand measurement of hearing loss, therapies for children withhearing impairment and parent counseling.Continued on page 15Patti Martin (center),ACH director of audiologyand speech pathology,was joined at theHamlen Endowed Fundcelebration by her parents,Pat and WesFreemyer, along withother ACH team members,doctors and boardmembers.James H. Hamlen, II, andHis Last, Best Gift to ACHJames H. Hamlen, II, became interested in ArkansasChildren’s Hospital almost 27 years ago, when thedaughter of an employee received surgery at ACH.Hamlen’s largest lifetime gift to the hospital was adonation of 476 acres of timberland in 1995, whichhe designated to the construction of the ArkansasChildren’s Nutrition Center and for endowment forthe Arkansas Children’s Hospital Research Institute.Hamlen died in 2004 and left a bequest to ACH inexcess of $4 million, the largest bequest in the hospital’shistory. The Hamlen bequest created endowedchairs in otolaryngology, endocrinology and pulmonology,along with a permanent endowment forthe audiology and speech pathology program.“James Hamlen set a great tradition of giving, andthrough his giving, was a great example to others,”says Dr. Jonathan Bates, president and CEO of ACH.11

CHILDREN’S MIRACLE NETWORKWal-Mart/Sam’s Club Celebrates20-Year Anniversary HelpingChildren Across AmericaIn May, Wal-Mart and Sam’s Clubs nationwide were recognized byChildren’s Miracle Network (CMN) for 20 years of fundraising in support ofchildren’s hospitals.To commemorate the milestone anniversary, Wal-Mart and Sam’s Clubassociates set a goal of raising $10 million for CMN in the month of May.The goal was reached, and $292,604 was raised by Wal-Mart and Sam’s Clubassociates, customers and members in the ACH market. This includes 135locations across Arkansas, north Louisiana, east Texas and east Oklahoma.Miracle Balloons were sold for $1 during the month-long campaign, and eachdollar raised locally benefits the patients and families at ACH.“Wal-Mart and Sam’s Club associates continue to be amazing partnerswith Arkansas Children’s Hospital,” said Jennifer Selig, ACH Children’sMiracle Network director. “The enthusiasm of associates to raise funds forACH during the May campaign was truly inspiring. We couldn’t help so manychildren without the support of our friends at Wal-Mart and Sam’s Club.”This year, Wal-Mart and Sam’s Club associates have already raised morethan $551,000 for Arkansas Children’s Hospital.In 1987, moved by a desire to impact the medical needs of children, SamWalton, founder of Wal-Mart, partnered with CMN. In total, Wal-Mart associateshave raised more than $387 million for children’s hospitals since 1987.As one of the celebration activities for the 20thanniversary of CMN and Wal-Mart/Sam’s Club,XM Kids Radio hosted a traveling road show.The station visited 12 children’s hospitals acrossthe country in 20 days. The goal of the roadshow was to help promote the Wal-Mart andSam’s Club $10 million goal. XM Kids stafftoured the hospital and interviewed caregiversand patients, including Shelby Clinton, who ispictured here with Robby Schaefer (left) andJinx, XM Kids on-air personalities.Miracle Mile Participants Walk for ChildrenPeople from all over the region came togetherMay 5 to raise funds and awareness forArkansas Children’s Hospital at the third annualMiracle Mile Walk, a one-mile walk thatstretched from the Arkansas Capitol to theACH campus in downtown Little Rock.More than 400 people participated in theevent, which was open to representatives fromChildren’s Miracle Network national sponsors,including Wal-Mart/Sam’s Club, ArkansasFederal Credit Union, Log a Load for Kids andothers.Food and festivities for the event were providedby Coca-Cola, On the Border, PapaJohn’s and Coleman Dairy.ACH supporters of all ages walked in the 2007 Miracle Mile event,which led participants from the Capitol to the ACH campus. Allproceeds from the event benefited ACH.12

CHILDREN’S MIRACLE NETWORKLisa Martin (Nevada County Picayune)The South Central chapter of Log a Load for Kids hosted anevent in June at the Nevada County fairgrounds that raised$120,000 for ACH. One of the event activities was a turtle racefor children. Here, children show off their prize-winning turtles.Log A Load for Kids RaisesRecord Amount for ACHLog a Load for Kids, a national sponsor of Children’s MiracleNetwork (CMN), is an organization of loggers and people in theforest products industry who raise funds for local children’s hospitalsassociated with CMN, including Arkansas Children’s Hospital. TheArkansas chapter of Log a Load for Kids has been busy the past fewmonths raising $215,000 for a pediatric imaging endowment at ACH.Several events were held:■ In May, the Central Arkansas Log A Load chapter hosted a golftournament in Pine Bluff. More than 160 golfers attended the event,which raised more than $16,000.■ The Molnaird Brothers annual Fish Fry in Strong raised morethan $11,000 for ACH and Log A Load for Kids.■ The Bradley County Log A Load event was held in May andraised more than $43,000.■ In April, a dinner and auction to benefit ACH and Log A Loadfor Kids was held at the In Woods Expo event in Hot Springs. Theevent raised $25,000 and entertainment for the evening was ChuckLeavell, keyboardist for the Rolling Stones.■ The South Central Log A Load event was held in June at theNevada County Fairgrounds in Prescott. This year’s event raised arecord $120,000, which makes it one of the single, largest Log ALoad events in the country.F.O.E. 2006 Donation toBenefit Kidney ResearchThe Fraternal Order of Eagles (F.O.E.) recently presented ACHwith a $43,700 donation designated for kidney research. All F.O.E.chapters throughout Arkansas contributed to the gift, which willbenefit children like 13-year-old Hunter Clark, a kidney transplantrecipient. Hunter’s kidney came from his father, Rick Clark. Hunteris now happily recovering from the transplant surgery, and he isexcited to get back to being a normal kid.Because of the giving spirit of F.O.E. members, Hunter Clarkand many others have better hope for the future. The F.O.E. 2007statewide project will be pediatric cancer research.Will Fish For Kids:Fishing Fun fora Good CauseTooth fairies were flying in Rogers earlier this year,when the Will Fish For Kids bass tournament was held tobenefit Arkansas Children’s Hospital.Proceeds from the event totaled $126,054, which directlyassists the ACH Dental Clinic. Will Fish For Kids isorganized annually by a volunteer group of Wal-Mart vendors.This year, businesses and individuals across northwestArkansas were asked to become “tooth fairies” for ACHas part of Will Fish For Kids. “Tooth fairies” collectedchange from customers and employees to contribute tothe total amount raised by the tournament. Sixteen businessesand individuals participated, and the program raisedmore than $3,000.The ACH Dental Clinic provides dental care for hospitalin-patients, children treated in the outpatient clinics andchildren who cannot receive care at a regular dentist due totheir special needs and medical conditions. Currently, thereare approximately 900 patient visits per month in theclinic. Those patients came from 70 Arkansas counties.“Will Fish For Kids, in conjunction with great partnerslike Wal-Mart vendors and the FLW tour, allows our dentalclinic to perform state-of-the-art dental services for allchildren, regardless of their medical or developmentalissues,” says James Koonce, DDS, MSD, director of theACH Dental Clinic. “Will Fish For Kids will soon affordour patients the opportunity for more accessible dentalcare in many communities in Arkansas through a mobiledental care program.”13

AUXILIARY GROUPSCircle of Friends (COF) board members BeverlyKeener, president (left), and Kim Williams, president-elect,show off a check representing theCOF fundraising total to John Bel, ACHFoundation president. COF members now haveeven more to celebrate – June fundraising totalswere better than expected, and the actual totalraised by COF over the past year was $738,982.Celebrating aYear of Growth: Circle of Friends State ConferenceIn 2007, Circle of Friends (COF) had a recordfundraising year, held more outreach projects thanever before and prepared a special report to showcaseCOF’s many accomplishments and goals. Theseachievements were highlighted at the 2007 Circle ofFriends State Conference held in June and attendedby more than 100 members.At the conference, which took place on the ACHcampus, a new slate of COF state board officers wasapproved, and the total amount raised for 2007 wasannounced. A special “Report to Our Community”was also presented to members. The report, whichreveals the COF fundraising totals and goals for thefuture, and highlights the group’s funding priorities,will be used as a recruitment tool for the organization. To view the report visitwww.archildrens.org/circleoffriends.Members also heard from Mary Cantrell, director of the PULSE Center, andreceived tours of the PULSE Center, the neonatal intensive care unit, CampWannaplay (playroom in hospital) and the cardiovascular intensive care unit.The day concluded with an awards ceremony to recognize the chapters whoexcelled over the past year. Highlights of the awards presented:■ Highest per capita revenue, population more than 50,000 – Northwest Arkansas■ Highest per capita revenue, population less than 50,000 – Harrison■ Highest dollars raised overall – Northwest Arkansas■ Outreach award – Spring River■ Outstanding growth award – Northwest Arkansas■ Volunteer award – Spring River■ Member of the Year – Clara Sims, Harrison■ Chapter Chair of the Year – Cristy Smith, NWACommittee for the FutureCelebrates SuccessesCommittee for the Future (CFF)recently celebrated 20 years of supportingArkansas Children’s Hospital with ananniversary party.Held at the Clinton School of PublicService, members both past and presentheard from Skip Rutherford, currentdean of the Clinton School and firstpresident of CFF.“The anniversary party was a reallygreat opportunity for members from thepast 20 years to come together and celebrateour successes,” says StevenRansdell, president of CFF. “It was interestingto see how far we have come andto look ahead at the next 20 years.”In 1987, CFF was founded by a groupContinued on page 15ACH Auxiliary Has Banner Fundraising YearThe ACH Auxiliary recently presentedthe hospital with the organization’slargest donation to date —$525,000. The main focus of thegroup’s funding is the Jerry Jones,M.D. — ACH Auxiliary EndowedChair in Child Maltreatment.Other projects being funded bythe Auxiliary’s 2007 donationinclude the ACH ResearchInstitute, the Good Mourning program,PalCare and Comfort Foods.The Auxiliary raised the fundsthrough four fundraisers: StarACHievers volunteer program,Arkansas a la Carte, the HolidayCard project and the Miracle Ball.Auxiliary president Sue Cooper presents the acheck representing the $525,000 the groupraised last year to Dr. Jonathan Bates, ACHpresident and CEO.The Playaway Gift Shop, located in the hospital, also contributed $200,000 of the Auxiliarydonation.For more information about the ACH Auxiliary, contact Robin Rhoades at 501-364-1490.14

GIVINGThanksto You!The following individuals, businesses, foundations andorganizations held fundraising events or made specialgifts to benefit Arkansas Children’s Hospital during the lastquarter. The time, talents and true acts of generosity fromthese special people help us in our mission to provide care,love and hope to patients and families.The Alicia Rose “Victorious” Foundation recently donated a42” plasma television, a DVD/CD player, 50 DVDs and a digitalcamera with a photo printer for the teen room in the hospital.The foundation, which was established in memory of ateenage girl who died of cancer in a children’s hospital, is alsodonating a $5,000 grant for the Child Life and Educationdepartment to use in the teen room.Ash Grove Cement Company raised more than $31,000 forACH during a golf tournament at the Texarkana Golf Ranch.A team of Ash Grove Cement Company employees and volunteersorganize the tournament each year.Aven Dunlap, of Jonesboro, recently completed the CountryMusic Marathon in Nashville, Tenn., in memory of her stepdaughter,Meagan. Aven’s run resulted in donations totaling$5,000 for the ACH cancer program.At the 2007 Blevins Benefit Barbecue, $7,294 was raised forACH. Community volunteers have organized the event for 21years.In April, ExxonMobil Corporation hosted its annual“Pumping Miracles” cardstock campaign, which raised morethan $28,000. Cards were sold for $1 at participating Exxonlocation across Arkansas.The Hot Springs Firefighters recently held a golf tournamentat Belvedere Golf Course in Hot Springs. The golf tournamentwas a fundraiser for Camp Sunshine, a camp for young burnvictims. The event raised more than $2,000.Lacy Coyote Pen & Fox Hunters recently held their annualhunting event in Bradley County. The event raised $12,000 forACH.The Little Rock Firefighters recently hosted a golf tournamentat Eagle Hills Golf Course in Little Rock, raising $9,000for the burn unit at ACH.A wild game supper, sponsored by Southeast Arkansas DeltaMen’s Association, raised $30,000 to fund research and otherspecial programs in autism at ACH.In June, RE/MAX locations throughout Arkansas gathered for aMiracle Day awards ceremony and luncheon to celebrate the$68,000 they raised for ACH in 2006. Several offices and agentsreceived awards for their outstanding efforts and generosity.COMMITTEE FOR THE FUTUREContinued from page 14of eight ambitious men who wanted to support ACH.Since its beginning, the group has raised more than$4.2 million in support of many different ACH projects,including the Committee for the Future Endowment Fund,Angel One Program, Parent Resource Library and theArkansas Children’s Hospital Research Institute.Committee for the Future is an organization of youngprofessionals and community leaders in the centralArkansas area who support ACH through fundraising, educationand community projects. For more informationabout CFF, please contact Heather Cass at cassh@archildrens.orgor 501-364-7231.AUDIOLOGY ENDOWMENTContinued from page 11Speech pathology services for infants, children and adolescentsinclude assessment and treatment of a wide varietyof disorders including problems with speech, language andfeeding.“The Hamlen gift is remarkable,” says Patti Martin, Ph.D.,director of audiology and speech pathology at ACH. “It willpush us to the next level in the work we are all so passionateabout, helping us support kids and their families around thestate.”15

Gov. Mike Beebe Helps Introduce Natural Wonders,Comprehensive Report on Arkansas Children’s HealthIn July, Governor Mike Beebe was joined by several young Arkansans as he presented NaturalWonders: The State of Children’s Health in Arkansas during a press conference at ACH. Natural Wondersis the first-ever comprehensive report of the overall health of children in the state.The report, which was initiated and funded by Arkansas Children’s Hospital, was the result ofa partnership of health care providers, state agencies and other organizations concerned aboutthe health status of Arkansas children. The report opens the discussion on children’s health byproviding a full range of data about issues children face and offers strategies for improving healthfor the state’s youngest citizens.“This report is really about the future of Arkansas and the future of our children,” saysDr. Jonathan Bates, president and CEO of ACH. “Natural Wonders should serve as an agenda forchildren’s health. It is a way for all of us to work together instead of scattering our efforts.”The complete Natural Wonders report is available online at www.archildrens.org or by calling501- 364-9916.Arkansas Children’s Hospital Foundation800 Marshall Street/Slot 661Little Rock, AR 72202-3591Address Service RequestedNonprofitOrganizationU.S. POSTAGEPAIDLittle Rock, ARPermit No. 1441If you receive more than one copy of The ACHiever,please pass the extras along to a friend.Please write to us if you wish to have your name removed fromthe list to receive the ACHiever magazine from the ArkansasChildren’s Hospital Foundation in the future. ArkansasChildren’s Hospital Foundation, ACHiever magazine,800 Marshall St., Slot 661, Little Rock, AR 72202.