in control first phase report 2003-2005

ContentsF Foreword . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1I Introduction .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 A new system of social care .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 52 A new Operating System .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 153 7 steps to being in Control .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 254 Evaluation – self-determination . . . . . . . . . . . . . . . . . . . . . . . . . . . 395 Evaluation – direction .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 496 Evaluation – money .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 617 Evaluation – home . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 738 Evaluation – support .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 799 Evaluation – community life .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8910 The future for in Control .. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 97A Appendix 1 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 105List of tables, charts and graphs1. Key terms of the Independent Living and InclusionMovements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.32. in Control’s system of Self-DirectedSupport . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.103. Care managers’ preference for total systemchange . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.114. Care managers’ preference for a change to thecare management role . . . . . . . . . . . . . . . . . . . . . . . . . p.125. The role of in Control’s Operating System . . . . . p.176. The development of a Resource AllocationSystem through four versions . . . . . . . . . . . . . . . . . . p.187. Outcomes in the six in Control pilots . . . . . . . . . . p.208. Professional Gift Model of social care . . . . . . . . . p.279. Citizenship model – Self-Directed Support . . . . p.2810. The in Control System . . . . . . . . . . . . . . . . . . . . . . . . . . p.2811. Planning Support . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.3112. Measures of a good support plan . . . . . . . . . . . . . p.3213. Managing Personalised Budgets . . . . . . . . . . . . . . . p.3314. Organising Support . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.3415. Support arrangements available to people withPersonalised Budgets . . . . . . . . . . . . . . . . . . . . . . . . . . . p.3516. Do you make important decisions inyour life? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.4217. Who is the major decision-makerin your life? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.4318. Are you happy with the control youhave over your life? . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.4319. Who is the most appropriate manager? . . . . . . . p.4520. Changes desired and achieved . . . . . . . . . . . . . . . . p.5121. Are you happy with your plans? . . . . . . . . . . . . . . . p.5222. Who is the best planner? . . . . . . . . . . . . . . . . . . . . . . p.5223. Are you happy with your money? . . . . . . . . . . . . . . p.6324. Care managers’ views on whether people fit inControl’s Resource Allocation System . . . . . . . . . p.6525. Profile of needs across 150 cases – 50 ineach of 3 London boroughs . . . . . . . . . . . . . . . . . . . . p.6626. Possible resource allocation compared tocurrent spend in one London borough . . . . . . . . p.6627. Efficiencies produced by the application ofthe RAS in 5 authorities . . . . . . . . . . . . . . . . . . . . . . . . p.6728. Typical local authority expenditure- learning disability . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.6829. Where people lived before and afterbeing in control . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.7530. Are you happy with your home? . . . . . . . . . . . . . . . p.7631. Changes in support used . . . . . . . . . . . . . . . . . . . . . . . p.8132. Are you happy with your support? . . . . . . . . . . . . p.8233. Partners for Inclusion – key principles . . . . . . . . . p.8434. Are you happy with yourcommunity life? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . p.9235. in Control’s structure and functions . . . . . . . . . p.101 Contents