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One in Four - Niace

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<strong>One</strong> <strong>in</strong> <strong>Four</strong><strong>One</strong> <strong>in</strong> <strong>Four</strong> is the second publication <strong>in</strong> the NIACE Voices series. It has been part-funded bythe European Social Fund and created <strong>in</strong> partnership with Survivors’ Poetry. We have been<strong>in</strong>undated with stunn<strong>in</strong>g writ<strong>in</strong>g and artwork, so what is collected here represents just afraction of what might have been. We want to thank everyone who sent us contributions, notleast those whose work we have <strong>in</strong>cluded.The title <strong>One</strong> <strong>in</strong> <strong>Four</strong> refers to the fact that one <strong>in</strong> four of the population – people from allwalks of life – experiences some form of mental distress at any one time. The number of those<strong>in</strong> Brita<strong>in</strong> currently experienc<strong>in</strong>g mental health difficulties has replaced unemployment asbe<strong>in</strong>g of greatest concern to the country’s health and well-be<strong>in</strong>g. But although mental distresstouches all of us, there is still shame, taboo and stigma attached to the discussion of causes,treatments and implications. This publication, written and illustrated by those who know fromtheir own experience about many of these issues, is a tribute to the wisdom, talent, everydaycourage and humour of extraord<strong>in</strong>ary people, <strong>in</strong> ways that also raise awareness about thebenefits of creativity and education <strong>in</strong> the process of recovery.An important dimension of recovery is the belief that <strong>in</strong>dividuals are more than the sumtotal of their illnesses. Everyone can discover ways of liv<strong>in</strong>g both satisfy<strong>in</strong>g and mean<strong>in</strong>gfullives, despite some of the limitations caused by illness. This often <strong>in</strong>cludes us<strong>in</strong>g personalexperiences to help others. Mental distress can create additional skills, <strong>in</strong>sights and strengthsalong the way. Many people expla<strong>in</strong> what has happened to them as a source of growth anddevelopment. And education can help <strong>in</strong> this process of discovery.Two qualities are crucial <strong>in</strong> mak<strong>in</strong>g the journey: hope and opportunity. Without hope peopleare unable to see the possibility of a decent future. Without opportunity and access to theexperiences that give life mean<strong>in</strong>g, the journey can seem futile. Recovery <strong>in</strong>volves <strong>in</strong>dividualstak<strong>in</strong>g greater control of their lives, tak<strong>in</strong>g risks and mak<strong>in</strong>g choices. The writ<strong>in</strong>g and artworkcollected here reflect the contribution that support groups, user-led organisations andeducational projects can make to encourag<strong>in</strong>g people to learn about their illness, ga<strong>in</strong> <strong>in</strong>sightand understand<strong>in</strong>g, and to speak out, with the authority of experience, about what is needed.There is also much to be learned from what our contributors have to say – both by those <strong>in</strong>similar circumstances and by those who work alongside them <strong>in</strong> a professional capacity.It is very unlikely that that you will rema<strong>in</strong> unmoved by what follows. We hope you will be ableto share this publication with those who want to make a difference <strong>in</strong> ways that both createopportunities and re-k<strong>in</strong>dle hope.Jane ThompsonPr<strong>in</strong>cipal Research OfficerNIACE


Will SaxtonSelf Portrait


Mart<strong>in</strong> ColemanAdmissionI have been suffer<strong>in</strong>g with mental health problems for a number of years. When it was firstdiagnosed I refused to believe it. Then one day I walked <strong>in</strong>to the park look<strong>in</strong>g for somewhereto rest. When I sat down on the bench it was light but when I got up to leave after whatseemed to me to be only a few m<strong>in</strong>utes, it was turn<strong>in</strong>g dark. I looked at my watch – I hadbeen sitt<strong>in</strong>g there for two and a half hours. This f<strong>in</strong>ally made me admit to myself that I hada problem. I remember try<strong>in</strong>g to expla<strong>in</strong> this to the doctor and th<strong>in</strong>k<strong>in</strong>g he would not believeme. Thankfully he was very understand<strong>in</strong>g and when he spoke he put me at my ease.It took two years before I told anyone what I was suffer<strong>in</strong>g from. I was scared of be<strong>in</strong>glabelled a freak. I was also embarrassed because I felt those closest to me would feel that I hadlet them down.It’s now been seven years s<strong>in</strong>ce I was first diagnosed. In that time I have had good and badspells. Most of the bad spells were when I was fight<strong>in</strong>g and refus<strong>in</strong>g to accept certa<strong>in</strong> aspectsof my illness and try<strong>in</strong>g to carry on as normal. At my worst I suffered severe panic attacks. Ithas taken a long time to realise certa<strong>in</strong> aspects of my life needed chang<strong>in</strong>g. Now I have startedto address these issues and my mental health has improved. I have not had a severe panicattack for about a year.Try<strong>in</strong>g to f<strong>in</strong>d a new me is the hardest th<strong>in</strong>g I have ever done but it’s been very reward<strong>in</strong>g.I have discovered a new hobby <strong>in</strong> read<strong>in</strong>g and writ<strong>in</strong>g poetry. This has helped me expresssome of my hidden demons and has given me a new outlook on life.


Kiki WalkerSilent Scream


Sheena SchofieldDepressionEmpty, panicky, guilty, self-hatred, self disgust, alone, weird, sad, hopelessness…are some ofthe words that I would use to describe my experience of depression.I’ve suffered from it for at least 16 years (probably longer, though, dat<strong>in</strong>g back to when I wasa child). People who say, “Oh I’m so depressed” <strong>in</strong> a blasé way often have no concept of whatdepression really is. It’s all-consum<strong>in</strong>g, can be life-threaten<strong>in</strong>g and it saps away your energy,spirit and zest for life.My depression bubbled away underneath the surface for many years. Even after be<strong>in</strong>gdiagnosed and medicated it cont<strong>in</strong>ued to smoulder. I was an expert at hid<strong>in</strong>g what was go<strong>in</strong>gon <strong>in</strong>side by creat<strong>in</strong>g a façade of strength and productivity by us<strong>in</strong>g education as a crutch togive me a reason for carry<strong>in</strong>g on. I’d done such a good job at hid<strong>in</strong>g how bad th<strong>in</strong>gs were thatwhen I f<strong>in</strong>ally broke down many of my closest friends and family were shocked.Many couldn’t understand how th<strong>in</strong>gs had reached such a crisis po<strong>in</strong>t so quickly anddramatically. The truth was they didn’t; it had been build<strong>in</strong>g up for a long time.I truly believe that for me hav<strong>in</strong>g a breakdown was a positive and <strong>in</strong>evitable th<strong>in</strong>g. It had tohappen <strong>in</strong> order for me and my life to change. It has given me the opportunity to rebuildmyself from scratch and learn lessons from the mistakes that I’d made.I no longer (<strong>in</strong> fact can’t) keep my worries to myself. I always talk about anyth<strong>in</strong>g that isworry<strong>in</strong>g me. I’ve learned from my previously self-destructive behaviour to respect myself.And I’ve learned, perhaps most importantly, that it’s ok, not to be perfect (no one is!) and stillbe a worthwhile person.


Emily MitchellThe Bounce Girl


John O’DonoghueFrom An Asylum DiaryThe staff arrive at about six-thirtyWake us at seven. I still feel dirty,Though the sheets are clean, though I bathed last night,Dregs of dreams still dra<strong>in</strong><strong>in</strong>g from my pop-eyedBra<strong>in</strong>, body sore as if from frantic fight.Another day starts, the ward stirs, we’re pliedWith candy-coloured drugs to stop us fromSee<strong>in</strong>g life as candy-coloured. We comeDown the stairs after breakfast hung-overFrom tedium, the stra<strong>in</strong> of this mad life.The black girl wishes it was all over,Will try to slash her wrists with a sneaked knife.The ward is quiet. Undercurrents are rife.Occupational therapy starts atN<strong>in</strong>e. I’m on the gardens, pass a black catOn my way to the hut. My wellies clumpAnd shudder as I stride along. The restAre already sat dr<strong>in</strong>k<strong>in</strong>g tea, a slumpOf a paddy and a cockney possessedBy some manic devil. Gaunt as a pressedLeaf he cannot keep still. Not at his bestToday, off form, cagey, Pat’s growl<strong>in</strong>g(Side effects) and I’m an <strong>in</strong>terloperListen<strong>in</strong>g to his tales, how he built, scowl<strong>in</strong>gNow, half the fuck<strong>in</strong>’, country, a pauperHere, <strong>in</strong> for life, what they call a ‘no-hoper’.The green fields always br<strong>in</strong>g release. We keepThem short as lawns, potter about half asleep,Filch<strong>in</strong>g litter <strong>in</strong>to floppy black plasticBags, rak<strong>in</strong>g leaves, trimm<strong>in</strong>g the edges onThe long, stone-lipped swathe of grass (fantasticPanorama from up here) which sweeps sun-Lit up to the ma<strong>in</strong> entrance, purposeful,Pretend<strong>in</strong>g to control, to be useful.The boss, a Pole, has told us of his wife, whoDied last spr<strong>in</strong>g. Already grief has startedTo dim<strong>in</strong>ish and disfigure him, toRem<strong>in</strong>d us all that the broken-heartedAre like us, live too close to be parted.10


John O’DonoghueSectioned – A MemoirThe smoke is com<strong>in</strong>g out of the wall. Only I can see it, only I know what is go<strong>in</strong>g on.Everyth<strong>in</strong>g is s<strong>in</strong>k<strong>in</strong>g <strong>in</strong> heav<strong>in</strong>ess: I am heavy, this chair with its frame of black metal rods andfake black leather is heavy, the formica d<strong>in</strong><strong>in</strong>g table I’m sitt<strong>in</strong>g at has a hard three-<strong>in</strong>ch deeptable-top and is so heavy it could have fallen from a dwarf star. Gravity is collaps<strong>in</strong>g, press<strong>in</strong>gdown on me with a force I can withstand only because my own heav<strong>in</strong>ess acts as a balanceto the dark and majestic compression at work <strong>in</strong> the universe. This is why the smoke is com<strong>in</strong>gout of the wall, this is why only I can see it.I’d been <strong>in</strong> Claybury for four months before I was given ECT. I was 16. The day I went for itI was wear<strong>in</strong>g a striped hospital dress<strong>in</strong>g gown and yellow pyjamas. I’d been given The LastRites, and had come round a day or two before I had my treatments.Lee persuaded me to sign the consent form and he took me down. It was a long walk throughthe corridors of Claybury, the smell of shag tobacco and soggy hospital food hang<strong>in</strong>g thick <strong>in</strong>the gloomy, dusty air.We came at last to the place and Lee left me there. I waited with a bunch of long-stay patients<strong>in</strong> a little wait<strong>in</strong>g area. Quite a few of the long-stays looked like they had ECT on a regularbasis. <strong>One</strong> man – white-haired, square-headed, a crimp <strong>in</strong> his forehead – couldn’t stop mov<strong>in</strong>ghis legs and twitch<strong>in</strong>g. His tongue slavered and his mouth twisted as we waited. He madeyearn<strong>in</strong>g noises and looked at me.My turn came. A pretty dark-haired nurse led me through a door and over to an operat<strong>in</strong>gtable. I laid down on the table and a bright yellow light shone <strong>in</strong> my eyes. My psychiatrist, asoft-voiced Scottish blonde <strong>in</strong> her thirties, told me I could say anyth<strong>in</strong>g before she <strong>in</strong>jected mewith muscle relaxant and the electrodes were placed at my temples.“Is this like a sexual ceremony to you?” I asked. I th<strong>in</strong>k I was try<strong>in</strong>g to shock her, to sound likeI was up on my Freud. Of course, I hadn’t read a word of Freud.“No,” she answered. She was taken aback, and I felt ashamed of myself. “Now I want you tocount down from ten as I give you this <strong>in</strong>jection.”The needle went <strong>in</strong>to a ve<strong>in</strong> <strong>in</strong> my hand. I counted. 10...9...8. I was out.I am still miss<strong>in</strong>g three days <strong>in</strong> my life which the ECT has blotted out. Nurses asked me didI remember them feed<strong>in</strong>g me. I couldn’t remember anyth<strong>in</strong>g. I’m puzzled by these miss<strong>in</strong>gmemories. Into this black hole burnt <strong>in</strong>to my bra<strong>in</strong> a roll<strong>in</strong>g mist of fantasy and speculation hasdrifted over the years. I need to know. I need to remember.12


Will SaxtonFast EnoughThis picture speaks of the struggle to exist on a manic depressive spectrum and my belief that divert<strong>in</strong>g ourself-destructive energies <strong>in</strong>to art is the best medication.


Beryl IzzardBlack and BlueIn my m<strong>in</strong>d I was a little matchstick personWith sk<strong>in</strong>ny arms outstretched,Hands slipp<strong>in</strong>g on the sides of a sticky t<strong>in</strong>;Scrabbl<strong>in</strong>g for all I was worthTo stop myself from fall<strong>in</strong>g l said my blue was <strong>in</strong>digoAnd that was true.But this time it was deep black,So deep I thought that it would smother me.Wrapp<strong>in</strong>g round me like a thick cloakMak<strong>in</strong>g me choke deep down with anxietyAnd struggle for breath <strong>in</strong> a panicInto the dark treacle below.Or I was hang<strong>in</strong>g on by my f<strong>in</strong>gernailsTo a fast-crumbl<strong>in</strong>g cliff.Rocks were fall<strong>in</strong>g on my headAs I struggled to stay <strong>in</strong> the same place,Let alone reach the safety of a treeLook<strong>in</strong>g oh so solid and reassur<strong>in</strong>g above my head.I wailed, but my endless tearsWould not wash the black away:There was no light at the tunnel’s end.14


Beryl IzzardTime is of the EssenceYou sit there all powerful, Mr. ConsultantBeh<strong>in</strong>d your threaten<strong>in</strong>gly large desk;Suited and booted as if for an eventAnd I creep <strong>in</strong>, flustered and out of breathSpread<strong>in</strong>g confusion with my anxiety.You give me no greet<strong>in</strong>g, don’t <strong>in</strong>troduce yourself,And hardly look<strong>in</strong>g, tersely ask what’s my problem thenIf I’d been well would have said,Have you got half an hour?But feel<strong>in</strong>g very ill, I burst <strong>in</strong>to tearsOf anguish and weep<strong>in</strong>g misery.I cannot say what’s wrong.I feel so dreadful I need help, is what I want to say.All you ask is how I’m sleep<strong>in</strong>g,And look<strong>in</strong>g at your classy watch (It’s latish on a Friday afternoon)Write a prescription, just for sleep<strong>in</strong>g pillsAnd glanc<strong>in</strong>g at your watch aga<strong>in</strong> and not at meYou stand as if to go.So I am left lament<strong>in</strong>g,Wait<strong>in</strong>g <strong>in</strong> a strange place, for an expensive taxiTo take me home, to be alone with my unhapp<strong>in</strong>ess.15


Barry TebbOur SonQuarter to three: I wake aga<strong>in</strong> at the hour of his birth thirty years ago and now he pacescorridors of dark, <strong>in</strong> nightmares of self-condemnation, where random thoughts besiege hisfevered imag<strong>in</strong>ation – England’s imm<strong>in</strong>ent destruction, his own, the world’s…Sixty to eighty cigarettes a day, unavail<strong>in</strong>g depot <strong>in</strong>jections. Failed abscond<strong>in</strong>gs, failedeveryth<strong>in</strong>g: Eton and Balliol hold no sway on ward one. Nor even be<strong>in</strong>g ‘a six language master,’here madness is the only qualification. There was the ‘shav<strong>in</strong>g <strong>in</strong>cident’ at school, which madehim ready to walk out at fifteen. The alcohol defences at Oxford which shut us out thenpetered out dur<strong>in</strong>g the six years <strong>in</strong> India, study<strong>in</strong>g Bengali at Shant<strong>in</strong>iketan. He tottered fromthe plane, penniless and unshaven, to hide away <strong>in</strong> the seediest bedsit Beeston could boast.Where night turned to day and vaguely he applied for jobs as clerk and court usher and drank<strong>in</strong> pubs with yobs.When the crisis came – ‘I feel my head com<strong>in</strong>g off my body’ – I was ready and unready,mak<strong>in</strong>g the necessary calls to get a bed, to keep him on the ward, to visit and reassure us boththat some way out could be found.The Care Home was the next disaster, try<strong>in</strong>g to cure schizophrenia with stick<strong>in</strong>g plaster:“We don’t want carers’ <strong>in</strong>put, we call patients ‘residents’ and <strong>in</strong>sist on chores not medication”.Then the letters of terrible abuse, the f<strong>in</strong>d<strong>in</strong>g of a flat, the discharge <strong>in</strong>to the community.His key worker was the key worker from hell: the more Isaiah’s care fell apart, the more sheencouraged him to blame us and “make his life his own”. Vital signs of decl<strong>in</strong>e ignored orconsigned to files. Confidentiality reigned supreme.Insidiously the way back to the ward unveiled, over pa<strong>in</strong>ful months, the self-neglect, the<strong>in</strong>appropriate remarks. In pubs, the neglected perforated eardrum, keep<strong>in</strong>g company with hisfeckless cous<strong>in</strong>s between their bouts <strong>in</strong> prison. The po<strong>in</strong>tless team meet<strong>in</strong>gs he was pattedthrough. My abrupt dismissal as carer at the key worker’s <strong>in</strong>stigation. The admission we knewnoth<strong>in</strong>g of, the abscond<strong>in</strong>gs we were told of and had to sort out. Then the phone call fromthe social worker. “We are about to section your son for six months, have you any comment?”Then the f<strong>in</strong>al abscond<strong>in</strong>g to London from a fifteen m<strong>in</strong>ute escape, to face his brother’sdrunken abuse. The police were k<strong>in</strong>dness itself as they drove him to the secure unit. Twonurses came by taxi from Leeds the next day to collect him. This place like a hotel – <strong>in</strong>formalityand first class treatment. Beh<strong>in</strong>d the locked doors he freezes before and whispers “Daddy,I was damned <strong>in</strong> hell but now I am God’s friend.”16


John SheehySelf Portrait


Franc<strong>in</strong>e JacobUnderstand<strong>in</strong>gThe pa<strong>in</strong>, the anger and hurt just build until each space <strong>in</strong>side your head is filled.The pressure builds and builds, at some po<strong>in</strong>t someth<strong>in</strong>g has to blow.There is no valve you can release and so you seek another way, my peace.The first cut is the deepest, people often say,but when you take up the glass its not always the way.It often starts with scratches which draw dots of red,but evolves <strong>in</strong>to slashes, deep to make you dead.Though it has to be acknowledged, death is not always the aim.There is a physical release of anger and pa<strong>in</strong>.An external expression of pa<strong>in</strong> felt deep with<strong>in</strong>.Pa<strong>in</strong> you can no longer handle and so your harm beg<strong>in</strong>s.You sit listen<strong>in</strong>g to music, a pen grasped <strong>in</strong> your hand,you take a t<strong>in</strong>y slither of glass – a blade – the whole th<strong>in</strong>g has been planned.Adrenal<strong>in</strong>e takes over, pa<strong>in</strong> is rarely felt.The buzz just keeps on grow<strong>in</strong>g with every blow that’s dealt.And as you watch red droplets drip down towards the floor,you feel a strange release, and f<strong>in</strong>d your peace once more.It does not matter what you say, they can never understandthe need you felt to cut yourself, serv<strong>in</strong>g some <strong>in</strong>ner demand.As you make each cut, you f<strong>in</strong>d your release.The valve blows, the pressure flows and your m<strong>in</strong>d empties.In the numb blank state <strong>in</strong>to which you enter, you f<strong>in</strong>d your serenity.They say to you that it destroys your soul,but to you it seems to relieve, it br<strong>in</strong>gs you calm and peace.Someth<strong>in</strong>g others f<strong>in</strong>d hard to believe.So you tend to your wounds, nurture them and watch them heal.Leav<strong>in</strong>g you a scarlet scar to rem<strong>in</strong>d you of what you feel.You wear your heart and your hurt and your pa<strong>in</strong> on your arm.So private, so public, such chaos, no calm.They look and what they see as a scarbut they have expressions of who they are.They are fat, they are th<strong>in</strong>, they may dress way-outbut it is all an external expression of what they are about.What you wear are your memories of what you’ve been through.Perhaps only scars to them, but essentially you.As you watch red droplets drip down to the floor,releas<strong>in</strong>g the dirt and evil once more,they would see pa<strong>in</strong> if they looked and knew you well –if all they see are scars, let them go to hell.18


Gail CampbellPeace Offer<strong>in</strong>gWhen I pa<strong>in</strong>ted this I was long<strong>in</strong>g to visit South America, dream<strong>in</strong>g of llamas and ancient festivals.I did not prime the wood, so the smiles showed through on the surface; I used oil pa<strong>in</strong>t, then scored thesurface <strong>in</strong> parts.


Helen HudspithA Change of MedicationShe reads(upside down from the Doctor’s report),that the last time, she wasappropriately dressed.This,apparently,was good.In the realms of the <strong>in</strong>saneforgetcomplex psychological theories.No,aslid<strong>in</strong>g sartorial scaletells themeveryth<strong>in</strong>gthey need to know.This timeshe ispresent<strong>in</strong>gas an emergency.It’sthe pillsthat need to change.After all, she’s done so well<strong>in</strong> the communityall this time.(Must be her skills ofappropriate dress<strong>in</strong>g).Andshe wondersto herself,(to the voices<strong>in</strong> her head)What exactlyisthe dress codefor a breakdownthese days?Begg<strong>in</strong>g for safety, for solacefrom the hum <strong>in</strong> her head,from the great need to cut.But they decideshe does not need the comfortof locked doors.20


Helen HudspithThe 53rd ReasonThe Conversation – A TerzanelleHe was wear<strong>in</strong>g green andI wasI waswear<strong>in</strong>g blue, and we were closeclose as love or death, I don’t know whichAnd I wasHe was soft sometimes, a warm soil smell,but mostlymostly hard and strong. Like walls,or mounta<strong>in</strong>s maybe.And II gathered upmy weight and felt the s<strong>in</strong>ews <strong>in</strong> my armslegs, taut but trembl<strong>in</strong>gand particular like plucked str<strong>in</strong>gsand pushpushpushed with my hands,my little hands, spread question<strong>in</strong>g on hischest,and all my fear.But I did notEvenBreak the surface of his will.And he did not everth<strong>in</strong>k,even for a second, ever to stop.You cannot verify the claim was m<strong>in</strong>e,my NI number isn’t <strong>in</strong> your file.I did not send the form back <strong>in</strong> on time.You’ll have to put my call on hold a while,this claim has only just passed on to you.My NI number isn’t on your file.I didn’t answer question 6, part two,my doctor’s note is signed <strong>in</strong> the wrong place.This claim has only just passed on to you,I’ll have to come and see you face-to-face.I have to say exactly why I’m sick,my doctor’s note is signed <strong>in</strong> the wrong place.I haven’t told you which box you should tick,There are limits to the money I can earn,I have to say exactly why I’m sick.Incomplete forms will have to be returned.You cannot verify the claim was m<strong>in</strong>e,There are limits to the money I can earn,I didn’t send the form back <strong>in</strong> on time.Or listenBecause I wasnot strong andalone andafraid.AndI wasthere.21


Giuls DriverJust a littlePa<strong>in</strong>tedIf I were half a stone lighterJust a little half stoneI would be betterI would be more successfulI’d have a better jobLive <strong>in</strong> a better flatWear noth<strong>in</strong>g but PradaIf I were half a stone lighterJust a little half stoneHe’d love me.Pa<strong>in</strong>ted SmilePa<strong>in</strong>ted ConversationLaugh<strong>in</strong>gJok<strong>in</strong>gBe<strong>in</strong>g NormalBig PersonalityIn a too short skirtGoes HomeAloneAnd pa<strong>in</strong>ts her bathroom s<strong>in</strong>kWith her supper.22


Rachel StudleyVoicesThis is sometimes how it feels to be <strong>in</strong>side my head. There are voices that hate me, voices that th<strong>in</strong>k I’mstupid and voices that want me to die. It can feel like my head is an open <strong>in</strong>vitation party – there’s so muchgo<strong>in</strong>g on <strong>in</strong> there. It’s hard to expla<strong>in</strong> what it feels like – hence the artwork. I didn’t have to speak <strong>in</strong> straightl<strong>in</strong>es, I didn’t have to use just one layer.


Padrika TarrantMrs Thomas VanishesThread<strong>in</strong>g her way through supermarket crowdsshe began to wonder if she was entirely visible,when her ankle was smacked by a trolley, pushedby a man too rude to apologise.She made herself a carapace from a stout camel coat,and wore a large and tasteless hat; even sothe next week, queu<strong>in</strong>g timidly for cheese,she found that she could not get served at all.She discovered that she could shout at people,or sunbathe <strong>in</strong> the garden, wear<strong>in</strong>g not a stitch;but when she went to town, the heavy feetof shoppers battered her half to death.Then her cat, ignor<strong>in</strong>g coax<strong>in</strong>gs and sard<strong>in</strong>esstalked off to live with the family next door,and quiver whiskered slight grey micedanced on her bedspread all night long.<strong>One</strong> day, she peered <strong>in</strong>to her hallway mirrorand wondered who it was she came to look for.That was the week the men arrived to clear the house,whilst she flapped and screamed about them, outraged and unheard.24


Paula AlcantreSelf PortraitI was shattered go<strong>in</strong>g through mental health. Now thanks to the course I’m on, I am feel<strong>in</strong>g more confidentand look<strong>in</strong>g forward to a brighter future. I am now do<strong>in</strong>g a City and Guilds qualification – Introduction toCare – as well as act<strong>in</strong>g as a community volunteer with Lambeth College’s Return to Learn scheme.


Margaret Theresa CarneyThe <strong>One</strong> I looked ForHe seemed to me when I was youngYoung, and schizophrenia was all aroundDemons and Angels, a world I foundIn my lonel<strong>in</strong>ess and darknessIn the shadows, child with no motherHe seemed to me to be golden – Love and chanceHe appeared at a club, asked me for a dance.In his suit he was break<strong>in</strong>g freeFrom bad marriage, kids – just like me.He was sexual, he was fun, I felt alive.When mental illness took meI phoned from the unit and we laughedI haven’t seen him for four yearsBut I phone and speak – he grows boredBut he says the sex was good.My illness got better, I got older,The children left, I didn’t lean on his shoulder –So much or so oftenHe was the one I looked forJust a bloke <strong>in</strong> a suit a bit small,Just a work<strong>in</strong>g man –Other girls like his dark sad eyes,His hair is grey now, his parents diedBut he is part of meMellowed out, chilled outI grew up beside himBut on the day that he diesPart of me will go tooBecause he was the one actuallyLove, just pass<strong>in</strong>g through.26


David MartynWhen the Blues Bite IOn a good day I amBrightEfficientIntelligentCreativeI can beWarmTactileLov<strong>in</strong>gSensitiveBut when the blues bite ILie <strong>in</strong> bedCurled upClutch<strong>in</strong>g myselfTo myselfWant<strong>in</strong>gto die.27


SueUnder My Sk<strong>in</strong>Taken from the award-w<strong>in</strong>n<strong>in</strong>g exhibition Under My Sk<strong>in</strong>. A partnership between Start <strong>in</strong> Manchester,Benchmark, Manchester Art Gallery and Manchester Learn<strong>in</strong>g Disability Partnership arranged for threeStart students to tra<strong>in</strong> <strong>in</strong> teach<strong>in</strong>g through help<strong>in</strong>g six learn<strong>in</strong>g-disabled artists to make an exhibition offashion accessories. This hat is an example of the beautiful and high quality artworks created by the artists.Students from Start’s textile group helped to make up the accessories from the artist’s designs. Two ofthe Start tra<strong>in</strong>ee teachers obta<strong>in</strong>ed nationally-recognised teach<strong>in</strong>g qualifications as a result of this workexperience project.Below: Sue wear<strong>in</strong>g her cloche hat; Opposite: Rosie Clarke (professional model) modell<strong>in</strong>g Sue’s cloche hat. Photos Cathy Fortune


Sue BarrowSevenSeven is good, seven is bad,Seven should be lucky, at seven I was sad.At seven I was a little girl, that had to be so big,The th<strong>in</strong>gs my Uncles did to me, shouldn’t happen to a kid.The day times they were not so good,but the night-times were horrific.I’d lie awake and watch the door,the dirty yellow pa<strong>in</strong>twork.I’d watch the wood brown handle, I’d watch for it to turn.My heart would be pound<strong>in</strong>g so loud I could not hear.My body it was shak<strong>in</strong>g, shak<strong>in</strong>g with the fear.30


John ExcellAnother CountryThere is another country, Not far away,In fact it is very near.Mental Health Professionals learn all they can about this other country,Talk to people, its observers and residents, But mostly its observers.Read books and papers about it,Attempt to learn its language,But its borders are closed to most of them,They cannot visit it.They meet us at the border.We tell them about our country,But they do not believe us.They say, “This is not true, it is all delusion.”But remember, they have never visited our country.We say there are wonders there,And horrors too.Heaven and Hell.But they do not believe us.They say, “This is all delusion.”We have very little <strong>in</strong>dustry or commerce <strong>in</strong> our country.Only art, fantastic art, <strong>in</strong>sight and our own peculiar wisdom.They take pity on us.They give us food and shelter.But they expect us to obey the rules of their country,Like some benevolent conqueror.They want us to learn their <strong>in</strong>dustry and commerce,But this is the death of some of us.We are far happier produc<strong>in</strong>g our fantastic art,Or simply dream<strong>in</strong>g.They would like us to becomeLike the residents of their country,Like them,But many of us are not <strong>in</strong>terested <strong>in</strong> play<strong>in</strong>g their games.We often escape back to our own country,Where life is easier, less pressured, more <strong>in</strong>vit<strong>in</strong>g.Then they try to coax us back,Full of good <strong>in</strong>tentions and well-mean<strong>in</strong>g,But we are often far happier <strong>in</strong> our home.There is another country, Not far away,In fact it is very near.32


Bob HoulstonMIND <strong>in</strong> Dacorum (detail)


Maureen OliverThe Nutter on the BusI am that celebratedNutter on the bus,Clutch<strong>in</strong>g my pass IClimb aboard.Midst nervous coughs andShuffl<strong>in</strong>g feetI seat myself next toA grey-haired woman withA k<strong>in</strong>dly face,And start to chat‘bout weather and stuff.But she shifts awkwardly andNervously submitsThe misty, ra<strong>in</strong>-spattered, w<strong>in</strong>dowPane to an alarmedStare.I must be that famous nutter becauseNow I am mumbl<strong>in</strong>g under my breath.Just another trick ofThe senses –I merely thought someone wantedTo speak to me.Sometimes I forgetI am justThat celebrated, almost famous,Nutter on the bus.34


Jim ShepherdFigurative Panel (detail)


Joe BidderDrummer BoyThe drummer boy comes once more,Prances downstreet <strong>in</strong>to my life.Captive to his magic rhythmI dismiss caution, grab some sticksTo beat <strong>in</strong> slavish syncopation.The drummer boy subvertsSycophantic fellow travellers,Slyly advances the downbeat,Increases tempo, demands obedience.And like a vassal, I follow.The drummer boy runs amok,Clashes cymbals and high-hats,Pounds tom-tom and timpaniUntil life is a scream<strong>in</strong>g wall.And like a vassal, I follow.The drummer boy has left town,Torn down the symbols of time,Leav<strong>in</strong>g chaos and creationIn bizarre symbiosis.Gone the delicious frenzyGone the ecstatic high.The road is strewn with ticker-tape and t<strong>in</strong>selEvidence that someone had a good time.Now I stare at drumsticks and snares,Trapped <strong>in</strong> lazy cross-rhythms.I remember the drummer boy,The excitement of danc<strong>in</strong>g on the altar,Frightened of his returnWhen like a vassal, I will follow.36


Tom GilesMusiciansMy thoughts are trapped. I am the jailer of my self’s poetical imag<strong>in</strong>ation. I release it through my pa<strong>in</strong>t<strong>in</strong>gs.Due to mental illness, my artwork helps me to reflect on my moods.


Jacqui LewisMy World


Jacqui LewisMy WorldShadow ChildrenLiv<strong>in</strong>g <strong>in</strong> a dual worldBe<strong>in</strong>g <strong>in</strong> two or more placesIn space and timeExact timeSee<strong>in</strong>g, hear<strong>in</strong>g, feel<strong>in</strong>gBothWith such prist<strong>in</strong>e sharpnessDifferentiation becomes impossibleFear becomes a constant companionOf be<strong>in</strong>g noticedBut whereThere or hereWhich is which?Poor tangled bra<strong>in</strong>Cannot decide unaidedBlood would writeThe pa<strong>in</strong> of not be<strong>in</strong>g wholeOf be<strong>in</strong>g so manySeparate piecesDesire is to leave the past beh<strong>in</strong>dIn its rightful placeThe mouth opens to engulfA multitude of scream<strong>in</strong>g partsAll clamour<strong>in</strong>g for attentionAcknowledg<strong>in</strong>g those voicesAttracts labels of madnessThe <strong>in</strong>evitableInseparable companionsDenial is obliterationTime will f<strong>in</strong>d a way!On the other side of colourOn the far side of the mirrorStand the shadow childrenHands and faces pressed aga<strong>in</strong>st the glassthat no one sees.Their dark eyes see allTheir lips speak noth<strong>in</strong>g.For this is the place of fear and darknessWhere no one would venture will<strong>in</strong>gly.But to rescue the children you must be brave,Take a candle and light their way.Their stories may chill youTheir cries may haunt youBut once hav<strong>in</strong>g seen themYou can’t turn back.39


Yvonne Mabbs FrancisThe Stages of HospitalisationIn 1969 Yvonne Mabs Francis experienced a nervous breakdown after the death of her father.She was 24 years old and admitted herself as a voluntary patient to the Warneford Hospital <strong>in</strong>Oxford for a period of three months. There she experienced a wall of silence by all the medicalstaff about her condition. These pa<strong>in</strong>t<strong>in</strong>gs form part of a series begun <strong>in</strong> 1998 to breakthat silence.


Yvonne Mabbs FrancisThe Third MonthI thought I could see two lockers <strong>in</strong> which my body was kept. At first I was <strong>in</strong> a tall locker and had growntall and th<strong>in</strong>. The second figure of me is <strong>in</strong> a very low locker where I had tried to grow and formed whatresembled a toffee apple head. To my horror, the third me is not <strong>in</strong> a locker. In the third month of my stay<strong>in</strong> hospital I had become a severed head which swung from side to side <strong>in</strong> order to waddle down thepassageway. My long hair caught under the bleed<strong>in</strong>g neck and pounded aga<strong>in</strong>st the hard corridor floor,mak<strong>in</strong>g a squeak<strong>in</strong>g noise that I remember to this day.


Bev PaytonMad PoemCatch this coat tail and let it take you,Take you to madness. Let sanity be lockedUp so you can fly with the thistledown outFrom the dense underbelly of normality.Live this year with your feet off the ground;Th<strong>in</strong>k only <strong>in</strong>complete thoughts <strong>in</strong> a crowdThat muddles the bra<strong>in</strong> and fractions factFrom fiction, fractures fantasy <strong>in</strong>f<strong>in</strong>itely.Let noth<strong>in</strong>g be ordered, either <strong>in</strong> a numberedOr alphabetical sequence. Scatter methodOut of the w<strong>in</strong>dow for the w<strong>in</strong>d to take.Uncork variance undiluted; allow discordTo thrash untrammelled <strong>in</strong> the rivers. ScourDreams, strip from them cos<strong>in</strong>ess and sleep.Let them stark and feral will magic fromA long near dead heart, chant anthems toDissonance from a coma’d threadbare bra<strong>in</strong>.I would madness was here; the touch<strong>in</strong>g andUntouch<strong>in</strong>g of souls. For surely <strong>in</strong> madnessThe unth<strong>in</strong>kable is thought, the unsayableSaid; the undonable done, the uns<strong>in</strong>gableSung, the unpayable paid, the undesignableDesigned, the unpoemable poemed.Described for posterity by an illegible hand –In man’s madness death can be lived to the full.42


Steven JewVickie NelsonI f<strong>in</strong>d that I enjoy pa<strong>in</strong>t<strong>in</strong>g because it gives me satisfaction – striv<strong>in</strong>g to achieve and aim, hopefully. I want tocapture a free flow of m<strong>in</strong>ds with<strong>in</strong> the delights of imag<strong>in</strong>ation.


Mark OckwellBreakdown<strong>One</strong> night <strong>in</strong> the crisis home I couldn’t sleep. I had really bad thoughts and flashbacks. I wanted to talk aboutit but I couldn’t, so I just pa<strong>in</strong>ted the picture.


AcknowledgementsEditor: Jane Thompson, Pr<strong>in</strong>cipal Research Officer, NIACEDesign: Oliver NewberyDesign Associate: Newbery & EnglandAdvisory Group: Roy Birch, Survivors’ Poetry; Kathryn James, NIACE; Jay Mullard, Totton College.Contributors: Poetry and Prose, Sue Barrow, Joe Bidder, Margaret Theresa Carney, Mart<strong>in</strong> Coleman, Giuls Driver, John Excell,Helen Hudspith, Beryl Izzard, Franc<strong>in</strong>e Jacob, Jacqui Lewis, David Martyn, Emily Mitchell, John O’Donoghue, Maureen Oliver,Bev Payton, Sheena Scofield, Padrika Tarrant, Barry Tebb; Artworks, Paula Alcantre ,Gail Campbell, Cathy Fortune,Yvonne Mabbs Francis, Tom Giles, Andrew Hood, Bob Houlston, Steven Jew, Jacqui Lewis, Anthony Milner, Emily Mitchell,Mark Ockwell, Amanda Riley, Will Saxton, John Sheehy, Rachel Studley, Jim Shepherd, Sue <strong>in</strong> Manchester, Kiki WalkerStart <strong>in</strong> Manchester helps people to improve, ma<strong>in</strong>ta<strong>in</strong> and protect their mental well-be<strong>in</strong>g. Start students are all recover<strong>in</strong>g froma period of serious and long- term mental ill-health. They use art and garden<strong>in</strong>g to build confidence, self-esteem and practicallife skills. For more <strong>in</strong>formation go to www.startmc.org.ukNIACE wishes to thank Survivors’ Poetry for a terrific work<strong>in</strong>g relationship <strong>in</strong> the creation of this publication. For more<strong>in</strong>formation go to www.survivorspoetry.comThis collection published by NIACE 2006National Institute of Adult Cont<strong>in</strong>u<strong>in</strong>g Education (England and Wales)21 De Montfort StreetLeicesterLE1 7GEwww.niace.org.ukCompany Registration no. 2603322Charity Registration no. 1002755This collection © NIACE 2006Copyright <strong>in</strong> the writ<strong>in</strong>g and artwork resides <strong>in</strong> the authors and artists. No reproduction, copy or transmission of any part ofthis publication may be made without the written permission of the publishers, authors and artists, save <strong>in</strong> accordance with theprovisions of the Copyrights, Designs and Patents Act 1988, or under the terms of any licence permitt<strong>in</strong>g copy<strong>in</strong>g issued by theCopyright Licens<strong>in</strong>g Agency.The production of this publication has been part-funded by the European Social Fund (ESF). The ESF is a European <strong>in</strong>itiative topromote educational and employment opportunities for all. The ESF helps people improve their skills and develop their potentialfor work. This publication will be used to promote educational provision aimed at mental health users dur<strong>in</strong>g Adult Learners’Week and Sign Up Now. For more <strong>in</strong>formation about ESF go to www.esf.gov.uk. For more <strong>in</strong>formation about ALW and Sign UpNow go to www.alw.org.ukThe views expressed are those of the authors and do not necessarily reflect those of the ESF.For more copies of this publication, contact:Sue Park<strong>in</strong>sNIACE21 De Montfort StreetLeicester LE1 7GETelephone 0116 204 4247Email susan.park<strong>in</strong>s@niace.org.uk45


“This is a very brave, honest, and above all hopeful book – a book everyone should read.”Barbara Follett MP1 86201 310 1978 1 86201 3100Voices 2

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