a handbook for parents of children with autism spectrum disorders

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Pennsylvania Parents and Caregivers Resource NetworkPO Box 4336, Harrisburg, PA 17111-0336, 717-561-0098Autism Organizations and WebsitesDPW Bureau of Autism Services, http://www.dpw.state.pa.us/ServicesPrograms/AutismResources, trainings, and general information.Autism Society of America, www.autismweb.com/resourcesIncludes information on Applied Behavior Analysis and the diagnostic criteria for Autism andother Pervasive Developmental Disorders.Autism Information, www.autisminfo.comEducation, resources, and advocacy.Autism Network for Dietary Intervention (ANDI), www.autismndi.comProvides help and support for families using a casein/gluten-free diet in the treatment of Autismand related disorders.Autism Speaks, www.autismspeaks.orgAutism Speaks aims to bring the Autism community together as one strong voice to urge thegovernment and private sector to listen to concerns and take action.Autism Today, www.autismtoday.comAutism directory, forum, events, and information about interventions.Autism Research Institute (also home of Defeat Autism Now!), www.autism.com/ariAutism Research Network, www.autismresearchnetwork.orgProvides information about the networks supported by the National Institute of Health and theresearch they conduct.Autism Society of America, www.autism-society.orgEducation, resources, and advocacy.Applied Behavior Analysis Resources (Richard Saffran’s Website), rsaffran.tripod.comInformation on treatment and therapy (including applied behavior analysis, behavioralintervention, behaviors modification, and discrete trial training), special education, earlyintervention, and child disability resources.Autism Connection, www.autism-connection.orgA nonprofit providing information and resources about Autism and other developmentaldisabilities.
Dr. Carbone (Verbal Behavior), www.drcarbone.netVerbal behavioral therapy.Center for Excellence in Autism Research (CeFAR),http://www.wpic.pitt.edu/research/CeFAR/default.htmThis Pittsburgh based Center of Excellence under the direction of Nancy J Minshew, MD, aninternationally recognized expert in Autism, is the among the top three CPEA’s in the country.Dr. Minshew is working with a team of scientists from Carnegie Mellon University as well as theUniversity of Illinois at Chicago, to search for the genetic, cognitive, and neurological basis forAutism.Centers for Disease Control, http://www.cdc.gov/ncbddd/autism/Autism information.Christina Burk, www.christinaburkaba.comApplied Verbal BehaviorCure Autism Now, www.canfoundation.orgAn Autism Speaks website.Dana’s View from the Inside, www.danasview.netMessage board links and stories of recovery.Dan Marino’s Childnettv, www.childnet.tvDan Marino’s Foundation, www.danmarinofoundation.orgDefeat Autism Now, www.autism.com/ariARI, a non-profit organization, publishes the Autism Research Review International, a quarterlynewsletter covering biomedical and educational advances in Autism research.Developmental Delay Resources, www.devdelay.orgA nonprofit organization dedicated to meeting the needs of those working with children whohave developmental delays in sensory motor, language, social, and emotional areas. DDRpublicizes research into determining identifiable factors that would put a child at risk andmaintains a registry, tracking possible trends. DDR also provides a network for parents andprofessionals and current information after the diagnosis to support children with special needs.Do 2 Learn, www.do2learn.comOffers ASD information and picture schedules.
Page 1 and 2:
AHANDBOOKFORPARENTSOF CHILDRENWITHA
Page 3 and 4: INTRODUCTIONDevelopmental delays ca
Page 5 and 6: What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 16 and 17: across several settings and across
Page 18 and 19: What should I look for when selecti
Page 20 and 21: ANSWERS TO YOUR QUESTIONSWhat does
Page 22 and 23: ANSWERS TO YOUR QUESTIONSWhat can I
Page 24 and 25: ANSWERS TO YOUR QUESTIONSWhen shoul
Page 26 and 27: ANSWERS TO YOUR QUESTIONSWho can I
Page 28 and 29: ANSWERS TO YOUR QUESTIONSWhat is a
Page 30 and 31: ANSWERS TO YOUR QUESTIONSWhen will
Page 32 and 33: APPENDIX A:DIAGNOSTIC CRITERIA -AUT
Page 34 and 35: APPENDIX C:DIAGNOSTIC CRITERIA -PER
Page 36 and 37: APPENDIX D:GLOSSARYPositive waystha
Page 38 and 39: APPENDIX E:LEVELS OF CARE/TREATMENT
Page 40 and 41: APPENDIX F:COMPLAINT PROCESSWhat is
Page 42 and 43: APPENDIX F:COMPLAINT PROCESSWhat ha
Page 44 and 45: APPENDIX G:BUREAU OF AUTISM SERVICE
Page 46: - Page 44 -
Page 49 and 50: NE Autism ResourcesBHRS ResourcesAu
Page 51 and 52: Scranton Counseling Center326 Adams
Page 53: The Arc of Wyoming County86 East Ti
Page 57 and 58: Yahoo! Groups - www.yahoo.comOver 7
Page 59 and 60: Susquehanna County Assistance Offic
Page 61 and 62: HospitalsLUZERNE COUNTYGeisinger Wi
Page 63 and 64: DIR- Floortime, http://www.floortim
Page 65 and 66: Mental Health AssociationLuzerne/Wy
Page 67 and 68: Residential/Group HomeDevereux Foun
Page 69 and 70: State Departments/Agencies/Programs
Page 71 and 72: Department of Public WelfareHealth
Page 73 and 74: groups.yahoo.com/group/VerbalBehavi
Page 75 and 76: DEA Regulations, http://www.wrights
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