2012 Nov The Best of Both Worlds Palliative Care and dementia ...
2012 Nov The Best of Both Worlds Palliative Care and dementia ...
2012 Nov The Best of Both Worlds Palliative Care and dementia ...
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End <strong>of</strong> Life Bibliography <strong>2012</strong>3 rd Canadian Consensus Conference on Diagnosis <strong>and</strong> Treatment <strong>of</strong> Dementia (2006).Clinical practice guidelines for severe alzheimer’s disease. Topic 6: Clinical practiceguidelines for severe alzheimer’s disease, 20‐21.Albinsson, L., & Strang, P. (2002). A palliative approach to existential issues <strong>and</strong> death inend‐stage <strong>dementia</strong> care. Journal <strong>of</strong> <strong>Palliative</strong> <strong>Care</strong> 18(3), 168‐174.Allen, R.S., Burgio, L.D., Fisher, S. E., Hardin, J. M., Shuster, J.L. (2005). Behaviouralcharacteristics <strong>of</strong> agitated nursing home residents with <strong>dementia</strong> at the end <strong>of</strong> life.<strong>The</strong> Gerontologist, (45(5), 661‐666.Alzheimers Society <strong>of</strong> BC. (2010). Caring for people with <strong>dementia</strong> at end <strong>of</strong> life: puttingpeople first. 1‐4.Alzheimer’s Association. (2007). Dementia <strong>Care</strong> Practice: Recommendations forassisted living residences <strong>and</strong> nursing homes phase 3 end‐<strong>of</strong>‐life care. Retrievedfrom: http://www.alz.org/Downloads/Dementia<strong>Care</strong>PracticeRecommendations.pdfBadger, F., Thomas, K., & Clifford, C. (2007). Raising st<strong>and</strong>ards for elderly people dying incare homes. European Journal <strong>of</strong> <strong>Palliative</strong> <strong>Care</strong>, 14(6), 238‐241.Blagrave, P. (2010). To feed or not to feed – that is the question. Canadian Nursing Home,21(3), 22–25.Birch, D. & Draper, J. (2008). A critical literature review exploring the challenges <strong>of</strong>delivering effective palliative care to older people with <strong>dementia</strong>. Journal <strong>of</strong> ClinicalNursing, 17, 1144‐1163.Davidson, K. M., & Schoenfelder, D.P. (2011). Family preparedness <strong>and</strong> end‐<strong>of</strong>‐life supportbefore the death <strong>of</strong> a nursing home resident: evidence‐based practice guideline.Journal <strong>of</strong> Gerontological Nursing, 37(2), 11‐16Di Giulio, P., Toscani, F., Villani, D., Brunelli, C., Gentile, S., & Sp<strong>and</strong>in, P. (2008). Dyingwith advanced <strong>dementia</strong> in long‐term care geriatric institutions: a retrospectivestudy. Journal <strong>of</strong> <strong>Palliative</strong> Medicine, 11(7), 1023‐1028.BCS EOL Bibliography September <strong>2012</strong>
Doody, R. S., Pavlik, V., Massman, P., Rountree, S., Darby, E., & Chan, W. (2010).Predicting progression <strong>of</strong> alzheimer’s disease. Alzheimer’s Research <strong>and</strong> <strong>The</strong>rapy,2(2), 1‐9.GSF <strong>Care</strong> Home Briefing Paper (2009). <strong>The</strong> gold st<strong>and</strong>ards framework in care homes: aframework to enable a gold st<strong>and</strong>ard <strong>of</strong> care for all people nearing the end <strong>of</strong> life,1‐8.Gabany, J. M. (2000). Factors contributing to the quality <strong>of</strong> end‐<strong>of</strong>‐life care. Journal <strong>of</strong> theAmerican Academy <strong>of</strong> Nurse Practitioners, 12, 472‐474.Gaw<strong>and</strong>e, A. (2010, August 2). Letting go: what should medicine do when it can’t saveyour life? <strong>The</strong> New Yorker, 36‐49.Gibson, M.C., Gutmanis, I., Clarke, H., Wiltshire, D., Feron, A., & Gorman, E. (2008). Staffopinions about the components <strong>of</strong> a good death in long‐term care. InternationalJournal <strong>of</strong> <strong>Palliative</strong> Nursing, 14( 8), 374‐381.Hancock, K., Chang, E., Johnson, A., Harrison, K., Daly, J., Easterbrook, S., Noel, M., Luhr‐Taylor, M., & Davidson, P. (2006) <strong>Palliative</strong> care for people with advanced<strong>dementia</strong>: <strong>The</strong> need for a collaborative, evidence‐based approach. Alzheimer’s <strong>Care</strong>Quarterly, 7(1), 49‐57.Hays, N.P., & Roberts, S. B. (2006). <strong>The</strong> anorexia <strong>of</strong> aging in humans. Physiology <strong>and</strong>Behavior, 88, 257‐266.Hewison, A., Badger, F., Clifford, C., & Thomas, K. (2008). Delivering gold st<strong>and</strong>ards inend‐<strong>of</strong>‐life care in care homes: a question <strong>of</strong> teamwork? Journal <strong>of</strong> Clinical Nursing,18, 1756‐1765.Herman, N., & Gauthier, S., & Lysy, P.G. (2007). Clinical practice guidelines for severealzheimer’s disease. Alzheimer’s & Dementia, 385‐397.Johnson, A., Chang, E., Harrison, K., Daly, J., Noel, M., Hancock, K., & Easterbrook, S.(2009). <strong>The</strong> communication challenges faced in adopting a palliative approach inadvanced <strong>dementia</strong>. International Journal <strong>of</strong> Nursing Practice, 15, 467‐474.Jones, C. B., Speck, V.M., Tookman, A., & King M. (<strong>2012</strong>). Spiritual <strong>and</strong> religiousinterventions for well‐being <strong>of</strong> adults in the terminal phase <strong>of</strong> disease (review).<strong>The</strong> Cochrane Collaboration. 5, 1 – 52BCS EOL Bibliography September <strong>2012</strong>
Kim, K.Y., Yeaman, P.A., & Keene, R.L. (2005). End‐<strong>of</strong>‐life care for persons withalzheimer’s disease. Practical Geriatrics: Psychiatric Services, 56(2) 139‐141.Kruse, R. L. et al. (2004). Does hospitalization impact survival after lower respiratoryinfection in nursing home residents? Medical <strong>Care</strong>, 42(9), 860‐870.Levy, C., Morris, M., & Kramer, A. (2008). Improving end‐<strong>of</strong>‐life outcomes in nursinghomes by targeting residents at high‐risk <strong>of</strong> mortality for palliative care: programdescription <strong>and</strong> evaluation. Journal <strong>of</strong> <strong>Palliative</strong> Medicine, 11(2), 217‐225.Lloyd‐Williams, M., Kennedy, V., Sixsmith, A., & Sixsmith, J. (2007). <strong>The</strong> end <strong>of</strong> life: aqualitative study <strong>of</strong> the perceptions people over the age <strong>of</strong> 80 on issues surroundingdeath <strong>and</strong> dying. Journal <strong>of</strong> Pain <strong>and</strong> Symptom Management, 34(1), 60‐66.Long, C. (2009). <strong>Palliative</strong> <strong>Care</strong> for advanced <strong>dementia</strong>. Journal <strong>of</strong> Gerontological Nursing,35(11), 19‐24.Koopmans, R.T.C.M., van der Sterren, K. J., & van der Steen, J. T., (2007). <strong>The</strong> naturalendpoint <strong>of</strong> <strong>dementia</strong>: death from cachexia or dehydration following palliativecare? International Journal <strong>of</strong> Geriatric Psychiatry, 22, 350‐355.Mitchell, S. L., Kiely, Miller, S.C., Connor, S.R., Spence, C., & Teno, J.M. (2007). Hospicecare for patients with <strong>dementia</strong>. Journal <strong>of</strong> Pain <strong>and</strong> Symptom Management. 34(1),7‐15.Mitchell, S.L., et al. (2010). <strong>The</strong> clinical course <strong>of</strong> advanced <strong>dementia</strong>. <strong>The</strong> New Engl<strong>and</strong>Journal <strong>of</strong> Medicine, 361(16), 1529‐1538.Morely, J.E., Thomas, D. R., & Wilson, M.G. (2006). Cachexia: pathophysiology <strong>and</strong> clinicalrelevance. American Journal <strong>of</strong> Clinical Nutrition, 83, 735‐43.Munn, J.C., Hanson, L.C., Zimmerman, S., Sloane, P.D., Mitchell, C. M. (2006). Is hospiceassociated with improved end‐<strong>of</strong>‐life care in nursing homes <strong>and</strong> assisted livingfacilities? Journal <strong>of</strong> the American Geriatrics Society, 54(3), 490‐495.Namba, NM., Morita, T., Imura, C., Kiyohara, E, & Hirai, K. (2007). Terminal delirium;families experience. <strong>Palliative</strong> Medicine, 21, 587‐594.NHS National End <strong>of</strong> Life care Programme. (2010). <strong>Care</strong> toward the end <strong>of</strong> life for peoplewith <strong>dementia</strong>: an online resource guide. Author. Retrieved from:www.end<strong>of</strong>lifecareforadults.nhs.uk/publicationsBCS EOL Bibliography September <strong>2012</strong>
NHS National End <strong>of</strong> Life <strong>Care</strong> Programme. (2007). Building on firm foundationsimproving end <strong>of</strong> life care in care homes: examples <strong>of</strong> innovative practice. Author.Retrieved from:www.end<strong>of</strong>lifecareforadults.nhs.uk/publicationsNational Council for <strong>Palliative</strong> <strong>Care</strong>. (2009). End <strong>of</strong> life care for people with <strong>dementia</strong>,1‐17.Peacock, S. (2008). <strong>The</strong> moral challenges involved in palliative end‐<strong>of</strong>‐life <strong>dementia</strong> care.<strong>Palliative</strong> Dementia <strong>Care</strong>, 19(3), 11‐15.Pleschberger, S. (2007). Dignity <strong>and</strong> the challenge <strong>of</strong> dying in nursing homes: the residentsview. British Geriatrics Society, Age <strong>and</strong> Ageing, 36, 197‐202.Poehlman, E. & Dvorak, R. V. (2000). Energy expenditure, energy intake, <strong>and</strong> weight lossin alzheimer disease. American Journal <strong>of</strong> Clinical Nutrition, 71, 650S‐5S.Powers, B.A., & Watson, N. M. (2008). Meaning <strong>and</strong> practice <strong>of</strong> palliative care for nursinghome residents with <strong>dementia</strong> at end <strong>of</strong> life. American Journal <strong>of</strong>Alzheimers Disease<strong>and</strong> Other Dementias, 23(4), 319‐325.Ruder, S. (2009). Incorporating spirituality into the care <strong>of</strong> persons with alzheimer’sdisease. Alzheimer’s <strong>Care</strong> Today, 10(4), 221‐227.Rutman, D. & Parke, B. (1992). <strong>Palliative</strong> care needs <strong>of</strong> residents, families <strong>and</strong> staff in longtermcare facilities. Journal <strong>of</strong> <strong>Palliative</strong> <strong>Care</strong>, 8(2), 23‐29.Savina, C., Donini, L. M. & Cannella, C. (2007). Anorexia <strong>of</strong> aging. <strong>Nov</strong>a Publishers, 139‐151.Small, N. (2007). Living well until you die: quality <strong>of</strong> care <strong>and</strong> quality <strong>of</strong> life in palliative <strong>and</strong><strong>dementia</strong> care. School <strong>of</strong> Health Studies, University <strong>of</strong> Bradford, UK, 194‐203.Tilly, J. Reed, P., Gould, E., & Fok, A. (2008). End‐<strong>of</strong>‐life care practice recommendations forassisted living residences <strong>and</strong> nursing homes serving individuals with <strong>dementia</strong>.Alzheimer’s <strong>Care</strong> Today, 9(2), 113‐119.Todd, D. (2010). Dementia: how to help those cursed with living only in the moment forthe rest <strong>of</strong> their lives. Vancouver Sun, pp. 1‐3.BCS EOL Bibliography September <strong>2012</strong>
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