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Page thirteen - Living with <strong>Fibromyalgia</strong>: What Helps MeTaking the self-help follow-up courses and participatingin the alumni group - I participate in two groups <strong>of</strong>fered <strong>to</strong>graduates <strong>of</strong> the CFIDS & <strong>Fibromyalgia</strong> Self-Help class: followup courses and an alumni group. The follow up courses focuson helping people reach short-term goals. Despite knowingwhat I need <strong>to</strong> do <strong>to</strong> manage fibromyalgia, putting it in<strong>to</strong>practice is not always easy. The follow up courses have beenone <strong>of</strong> the best opportunities for putting knowledge in<strong>to</strong>practice through making weekly targets. Even when I don’tmeet my targets, I learn more about myself and what I cando <strong>to</strong> manage this condition. The alumni group provides anopportunity for on going support plus discussion <strong>of</strong> <strong>to</strong>picsrelated <strong>to</strong> living with chronic illness. We all continue <strong>to</strong> learnfrom each other through our responses. We also can keep upwith one another through the monthly “check-ins” with ourresponses.Making a NOT TO DO list - I pick up up this wonderful ideafor me from the program’s site! It helped <strong>to</strong> know what thingsI consciously wanted <strong>to</strong> avoid.Over all, my quality <strong>of</strong> life has improved dramatically usingthe strategies I’ve described. I rate myself currently at 90on the CFS & <strong>Fibromyalgia</strong> Rating Scale. I am not back <strong>to</strong>“normal,” but I’ve learned that that is OK. I don’t want <strong>to</strong> beas driven as I was before getting fibromyalgia. I have a clearerunderstanding now <strong>of</strong> my boundaries and I do well as longas I stay inside them. It <strong>to</strong>ok some time, but I finally learnedthat I have <strong>to</strong> respect and honour my body, and listen <strong>to</strong> themessages it gives me. The messages are <strong>to</strong> slow down, <strong>to</strong>learn <strong>to</strong> “be” and not just “do,” and <strong>to</strong> focus on what is reallyimportant.[Edi<strong>to</strong>r’s Note: Kathy Gamble, a fibromyalgia patientfrom Florida and graduate <strong>of</strong> the CFIDS/<strong>Fibromyalgia</strong>Self-Help course, works full-time as a nurse.] To order telephone 01202 259155Self-Help Course for CFS/ME & <strong>Fibromyalgia</strong>Learn practical skills for managing your illness and share supportwith fellow patients in a low-cost six-week self-management course,conducted via emailThe class explains how <strong>to</strong> manage your symp<strong>to</strong>ms, and discusses pacing,stress management, relationships, emotions and loss.Offered by US charity CFIDS & <strong>Fibromyalgia</strong> Self-Help Program, which hasconducted several hundred groups since 1998.For more information and <strong>to</strong> register, <strong>see</strong>: http://www.cfidsselfhelp.org/The <strong>Fibromyalgia</strong> <strong>Magazine</strong>. Year 12 Issue 6 April 2012. www.ukfibromyalgia.com

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