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Page thirteen - Living with Fibromyalgia: What Helps MeTaking the self-help follow-up courses and participatingin the alumni group - I participate in two groups offered tograduates of the CFIDS & Fibromyalgia Self-Help class: followup courses and an alumni group. The follow up courses focuson helping people reach short-term goals. Despite knowingwhat I need to do to manage fibromyalgia, putting it intopractice is not always easy. The follow up courses have beenone of the best opportunities for putting knowledge intopractice through making weekly targets. Even when I don’tmeet my targets, I learn more about myself and what I cando to manage this condition. The alumni group provides anopportunity for on going support plus discussion of topicsrelated to living with chronic illness. We all continue to learnfrom each other through our responses. We also can keep upwith one another through the monthly “check-ins” with ourresponses.Making a NOT TO DO list - I pick up up this wonderful ideafor me from the program’s site! It helped to know what thingsI consciously wanted to avoid.Over all, my quality of life has improved dramatically usingthe strategies I’ve described. I rate myself currently at 90on the CFS & Fibromyalgia Rating Scale. I am not back to“normal,” but I’ve learned that that is OK. I don’t want to beas driven as I was before getting fibromyalgia. I have a clearerunderstanding now of my boundaries and I do well as longas I stay inside them. It took some time, but I finally learnedthat I have to respect and honour my body, and listen to themessages it gives me. The messages are to slow down, tolearn to “be” and not just “do,” and to focus on what is reallyimportant.[Editor’s Note: Kathy Gamble, a fibromyalgia patientfrom Florida and graduate of the CFIDS/FibromyalgiaSelf-Help course, works full-time as a nurse.] To order telephone 01202 259155Self-Help Course for CFS/ME & FibromyalgiaLearn practical skills for managing your illness and share supportwith fellow patients in a low-cost six-week self-management course,conducted via emailThe class explains how to manage your symptoms, and discusses pacing,stress management, relationships, emotions and loss.Offered by US charity CFIDS & Fibromyalgia Self-Help Program, which hasconducted several hundred groups since 1998.For more information and to register, see: http://www.cfidsselfhelp.org/The Fibromyalgia Magazine. Year 12 Issue 6 April 2012. www.ukfibromyalgia.com
The Cyclo-ssage Pro Personal 7-day Fibromyalgiaproduct trial started in January this year, and Iam pleased to announce that they have had anoverwhelming response from UK Fibromyalgia readersvolunteering to take part.To meet demand for the 7-day trial Cyclo-ssage haveextended the Trial from 3 months to 12 months to tryto cater for as many FM sufferers and Focus groupsas possible. They have also had to develop a mini trialallowing individuals who are unable to participate inthe 7-day trial the opportunity to give feedback from 2therapy sessions in the comfort of their own home.Cyclo-ssage has designed The System with home use inmind. The infra-red heat areas have 3 heat adjustmentsand the Therapy motors are also adjustable in intensityfor comfort. The System has 5 Manual Therapy Settingsand 9 Medical Programs. One of the medical settings(medical program 4) has been developed to benefitthe sufferers of Fibromyalgia and M.E, by relaxingthe muscle spasm commonly experienced and thusalleviating the all over ache that plagues most people.At the same time it will also stimulate both Blood andLymphatic circulation and bearing in mind that 80% ofall ailments affect the circulatory system, you shouldautomatically feel a physical benefit, whilst enjoyingvastly increased energy levels!With regular twice daily use of the System it wouldappear that one’s quality of life can be greatlyimproved.Preliminary results shown below are from participantsfrom various parts of the UK that have seenimprovements after just 2 x 15 minute therapytreatments. Pain levels significantly drop and some veryfortunate FM sufferers have seen their pain disappearaltogether with effects lasting over 12 hours.All Trial volunteers will be contacted during this comingyear but as Cyclo-ssage are trying to conduct this Trialalongside their usual busy work schedule it mightbe sometime before they are able to arrange a Trialwith all FM sufferes who have volunteered. Howeveras you can see from the preliminary results table theaverage reduction in pain scores of nearly 50% arevery encouraging.www.cyclo-ssagetrials.com Email: admin@cyclo-ssagetrials.comAlternately contact Mr. Mark Stephenson 07919 146239Individual Pain score before Pain score after Pain score after Pain score after1st treatment 1st treatment 2nd treatment 2nd treatmentMrs. R (Hale) 6 4 4 3Mrs. S (Corby) 9 5 5 3Mrs. L (Ipswich) 9 7 7 6Mrs. P (Llanelli) 6 6 6 6Mrs. C (Swansea) 5 3 5 3Mrs. G (Port Talbot) 8 6 6 4Mrs. B (Norwich) 6 4 4 3Mrs. D (Warickshire) 7 5 5 5Mrs. D (Norwich) 3 2 3 2Mrs D (Norwich) 5 3 4 3Mrs. S (Norfolk) 5 5 5 5Mrs. J (Dudley) 8 7 6 5Mrs. D Rugby 9 5 6 4Mrs. H (Harvington) 5 5 5 0Mrs. P (kidderminster) 5 4 4 1Mrs. E (Atherton) 8 5 5 4Mrs. E (Birmingham) 7 3 3 2Mr. H (Pershore) 5 2 2 0Mrs. G (Oldbury) 8 6 6 6Mrs. T (Wolverhampton) 4 2 2 0Mrs. B (nottingham) 3 0 0 0Mrs. B (Nottingham) 7 5 5 3Mrs. D (Milton Keynes) 7 2 2 0Mrs. P (Notts) 8 5 5 2Mrs. B (Kent) 3 2 2 1.5Mrs. F (Milton Keynes) 4 2 2 1Mrs. H (Notts) 4 0.5 0.5 0Mrs. M (Kent) 6 7 7 6Mrs. W (Bexhill) 8 7 7 5Mrs. S (Conwy) 5 2 2 1Mrs. L (Shrewsbury) 8 7 8 6Mrs. B (Oswestry) 7 6 6 5Mrs. M (Kent) 7 0 1 0Average 6.21 4.08 4.26 2.89Percentage decrease in pain score after the 1st treatment –52.12%Percentage decrease in pain score after the 2nd treatment - 47.2%Page fourteen - CyclossageThe Fibromyalgia Magazine. Year 12 Issue 6 April 2012. www.ukfibromyalgia.com
Page 1: Year 12 Issue 6 April 2012SEVEN TYP
Page 5 and 6: Foods to Avoid By JB BardotDiscover
Page 7 and 8: THE DREADED BROWN ENVELOPE!!By Hele
Page 9 and 10: Keep Energy Levels HighCoping with
Page 11 and 12: ASKBRIANBrian Barr is a solicitor a
Page 13: I know now there is no single panac
Page 17 and 18: Fibromyalgia Medications: Trazodone
Page 19 and 20: Unlock the fibro brain-fog with ace
Page 21 and 22: Letters continuedDear EditorI am wr
Page 23 and 24: FaMily Phone Friends- Make a new fr

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