here - Little Hearts Matter

These ideas were almost universallyendorsed. In the answers to thesequestions, your frustrations about lackof understanding came across, andalso about living with a hiddencondition. "Every person we comeacross [...] always assumes it's a holein the heart - if only!"The question about whether youwould be happy for us to use scars as avisual factor to explain the children'sjourney was received fairly positively,but there were some more mixedreactions. Three-quarters of the replieswere positive. "Big emotional impact,and quite shocking to see on a child.""Every scar tells a different story andjourney, and who better than the oneswith the scars to tell you how it is!", "Ascardiac children appear normal, I thinkit's important to show just how serioussingle ventricle heart conditions are."Concerns included that it isn't specificto single ventricle conditions and it"suggest[s] a past event", Familieswere also concerned that the extent ofthe children's problems would not becommunicated simply using the scar asa visualisation. "The children are muchmore than scars, which are the least oftheir problems. [...] The real problem isthat their difficulties are usually notobvious, therefore can be forgotten."These concerns will be taken intoaccount as we work to developawareness plans.What does this all mean toLHM?We are so very grateful to you all foryour replies and sharing your personalexperiences. We will use thisinformation as we develop our newproject plans, and as we continue toseek funding for these projects. Wehave already used some of thisinformation as part of our presentationto Glaxo SmithKline and the King'sFund, where we were shortlisted for anImpact Award in the autumn of 2010.The results were announced at thebeginning of March this year, and wewere delighted to have received aHighly Commended award. We couldnot have done this without your support- thank you.0% 80% 100%Impact of our ServicesPositive impactNegative or not understoodNo reply or N/ABase 67, 70, 70iDirect Debit FormIf you would like to make a donation to Little Hearts Matter please fill out yourdetails below and send to:Little Hearts Matter, 11 Greenfield Crescent Edgbaston, Birmingham, B153AUI enclose the sum of £ __________ cash/cheque made payable to 'LittleHearts Matter'; Date: ____/____/____or:I wish to make a regular donation of £__________ per month from by Bank orBuilding Society account:Bank Name and Address:________________________________________________________________________ Payee details:____________________________________ Little Hearts MatterBarclays Bank Plc_______________ Postcode _____________Colmore RowSort code: _________________________ BirminghamAccount no: _________________________ 20 - 07 - 71Date to start: _________________________ 6304 6257Name: _________________________Thank youSigned: _________________________Email:_________________________We greatly value your support and would like to keep you informed through marketing literatureby post or email about our work or events.Please tick the box if you would prefer not to receive marketing literature.Add 25% to the value of your gift simply by filling in your full name, addressand postcode - we'll do the rest (please ensure you tick the relevant box):I am a UK taxpayer - I want Little Hearts Matter to claim back the taxon this, my enclosed gift, from the Inland RevenueI am a UK taxpayer - I want Little Hearts Matter to claim back the taxon this and all future donations until further notice.Name: __________________________________________________Address: ____________________________________________________________________________________________________Postcode: __________________________________________________Note: You must pay tax on your income at least equal to the amount LittleHearts Matter will reclaim.25