Instrument Name: - NINDS Common Data Elements

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NINDS CDE Notice of CopyrightShort Form 36-Item Health Survey (SF-36) Component of Multiple Sclerosis Quality of LifeInventory (MSQLI)Short Description ofInstrument:Construct measured: Health-related quality of lifeGeneric vs. disease specific: GenericMeans of administration: Interview or Self-AdministeredIntended respondent: Patient# of items: 36# of subscales and names of sub-scales: 8 – Physical Functioning, Role –Physical, Bodily Pain, General Health, Vitality, Social Functioning, Role-Emotional, Mental Health# of items per sub-scale: VariesRecommended Instrument in MS, Stroke, PD, FA, Headache, ALS, HD, NMD, MG and SMAPage 2 of 6
NINDS CDE Notice of CopyrightShort Form 36-Item Health Survey (SF-36) Component of Multiple Sclerosis Quality of LifeInventory (MSQLI)Comments/Specialinstructions:Scoring: The scoring system for the SF-36 is relatively complex andgenerates subscale scores for physical functioning, role limitations due tophysical problems, bodily pain, general health perceptions, vitality, socialfunctioning, role-limitations due to emotional problems, and mentalhealth. There is no single overall score for the SF-36, instead, It generates8 subscales and two summary scores. Two summary scores can also bederived from the SF-36: the physical component summary and themental component summary.Scoring corresponds to the use of the instrument. For SF-36 v1, scoringinstructions are publically available from the Rand Corporation (PLEASECLICK HERE FOR MORE INFORMATIONFor assessment of multiple sclerosis, question order varies from theoriginal version but content is included in the MSQLI and MSQOL-54instruments with additional content that must be presented and scoredto validate its use. Instructions and instruments for MS are publicallyavailable from the National Multiple Sclerosis Society (PLEASE CLICKHERE FOR MORE INFORMATIONRecommended Instrument in MS, Stroke, PD, FA, Headache, ALS, HD, NMD, MG and SMAPage 3 of 6
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Instrument Name: - NINDS Common Data Elements

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