Instrument Name: - NINDS Common Data Elements

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NINDS CDE Notice of CopyrightShort Form 36-Item Health Survey (SF-36) Component of Multiple Sclerosis Quality of LifeInventory (MSQLI)Rationale/Justification:Strengths/ Weaknesses:The SF-36 is easy to administer, covers a broad range of domains ofhealth-related quality of life, and is among the most widely used of suchmeasures. Availability of population-based normative data makes the SF-36 useful for comparative purposes. The availability of several subscalesmaybe useful to investigators interested in testing hypotheses concerningthese different areas of function.Psychometric Properties: In an MS population, the Cronbach's alphas forthe various subscales of the SF-36 range from .67 to .94. There isconsiderable evidence for the validity of the SF-36 in a variety ofpopulations including MS. (Vickrey et al, 1995) In Vickrey's study, thephysical functioning and role limitations due to physical problemssubscales were the ones that best discriminated between MS patientsand the normative U.S. population.data can be compared to the US normative population and acrossdisease states. To keep the instrument brief, some health statusconcepts are missing, e.g. family functioning, sexual functioning,cognitive functioning, sleep disorders. Suitable for self-administration,computerized administration or administration by a trained interviewerin person or by telephone.Administration: Administration time is approximately 10 minutes. TheSF-36 is a structured, self-report questionnaire that the patient cangenerally complete with little or no intervention from an interviewer.However, patients with visual or upper extremity impairments may needto have the SF-36 administered as an interview. Interviewers should betrained in basic interviewing skills and in the use of this instrument.Recommended Instrument in MS, Stroke, PD, FA, Headache, ALS, HD, NMD, MG and SMAPage 4 of 6
NINDS CDE Notice of CopyrightShort Form 36-Item Health Survey (SF-36) Component of Multiple Sclerosis Quality of LifeInventory (MSQLI)References:Hays, RD (1994). The Medical Outcomes Study (MOS) Measures ofPatient Adherence. Retrieved April 19, 2004, from the RAND Corporationweb site: PLEASE CLICK HERE FOR MORE INFORMATIONMcHorney CA, Ware JE, Raczek AE. The MOS 36-Item Short-Form HealthSurvey (SF-36®): II. psychometric and clinical tests of validity inmeasuring physical and mental health constructs. Med Care 1993;31(3):247-63.Ware, J.E., Kosinski M. SF-36 Physical and Mental Health SummaryScales: A Manual for Users of Version 1, Second Edition. Lincoln, RI:QualityMetric Incorporated, 2001.Ware J.E., Kosinski M., Dewey J.E. How to Score Version Two of the SF-36Health Survey. Lincoln, RI: Quality Metric, Incorporated, 2000.Ware JE, Kosinski M, Keller SK. SF-36® Physical and Mental HealthSummary Scales: A User's Manual. Boston, MA: The Health Institute,1994.Ware JE, Sherbourne CD. The MOS 36-Item Short-Form Health Survey(SF-36®): I. conceptual framework and item selection. Med Care 1992;30(6):473-83.Recommended Instrument in MS, Stroke, PD, FA, Headache, ALS, HD, NMD, MG and SMAPage 5 of 6
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Instrument Name: - NINDS Common Data Elements

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