Winter 2012 newsletter.pub - Joslin Diabetes Center

More documents

Recommendations

Info

PAGE 4 NEWSLETTER OF THE PEDIATRIC, ADOLESCENT AND YOUNG ADULT SECTION Research Opportunities at Joslin The BodiMojo Study Description: The BodiMojo study will explore how to help adolescents and young adults set lifestyle goals and follow through with them. The study requires one visit that can be on the same day as an already scheduled clinic appointment. During this visit, youth and parents will be asked to fill out questionnaires, and youth will set exercise and nutrition goals. The intervention group will also receive daily text messages for the span of one month. These messages will encourage healthy living and ask if the participant is meeting their goals. The usual care group will receive an informational packet with tips to improve health through nutrition and exercise. After one month, both groups will receive questionnaires via email that can be completed online. Recruiting: Individuals 16-21, who have either type 1 or type 2 diabetes, have a cell phone, and receive care at Joslin. Contact: Alan Schultz at 617-309-4510 or alan.schultz@joslin.harvard.edu Type 1 Diabetes Risk Assessment The Natural History Study — TrialNet Description: This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes. It involves a single blood test. People who test positive will be eligible for further testing and may be eligible to participate in prevention trials. Recruiting: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes Contact: Hui Zhang at 617-309-4739 or hui.zhang@joslin.harvard.edu Research on DNA and Type 2 Diabetes in Youth We are looking for people who were diagnosed with Type 2 Diabetes when they were less than 18 years of age to participate in a National Institutes of Health Study, entitled “TODAY Genetics Study”, to help scientists better under type 2 diabetes in youth. This study requires one visit to the Joslin Diabetes Center that will last about 1 hour and includes a blood draw and an interview about your family and medical story. Eligible participants must have been diagnosed with type 2 diabetes when they were less than 18 years old and meet the following criteria: �� Diagnosis of Type 2 Diabetes by American Diabetes Association (ADA) criteria �� Patients under 18 must have a family member or guardian willing to be involved in the consent process If you have any questions about this study or are interested in taking part in the study please contact Maureen at: 1-800- 322-6323 or Today@joslin.harvard.edu CGM Improve Diabetes Study Description: The purpose of this study is to find out how to make it easier for children and teens with type 1 diabetes to use continuous glucose monitors (CGM) over a long period of time. The study involves 12 visits over a 24-month period with additional phone contacts between visits. The extra three visits occur during the first six months of the study: the rest of the visits will occur at routine clinic visits. Families randomized to the intervention group will receive a family based behavioral intervention providing support and education regarding use of the CGM. Families in the usual care group will receive this information at the end of the study. Youth in both groups will wear a CGM device throughout the study. Families will be asked to complete surveys at various intervals over the course of the study and labwork will be collected for the youth in the study. Recruiting: Children and teens, ages 8-17 years, who have had type 1 diabetes for at least 1 year and who are receiving care at Joslin and their parents or legal guardians Contact: Emily Fisher at 617-309-4644 or emily.fisher@joslin.harvard.edu The Tolerance Study Can Glucose Monitoring Improve CGMi Study Description: This study is trying to help us better understand what causes type 1 diabetes to help find new ways to prevent or reverse the disease. The study is being done with researchers at Harvard Medical School and is funded by the Juvenile Diabetes Research Foundation. The study visit includes the completion of questionnaires and a blood draw. Recruiting: Individuals, ages 18 years and older, both with and without type 1 diabetes Contact: Roxanne Phillips at 617-309-2481 or roxanne.phillips@joslin.harvard.edu T1D Exchange Description: The Type 1 Diabetes (T1D) Exchange is a nationwide registry collecting information about children and adults with type 1 diabetes. The purpose of the registry is to gather information about people with type 1 diabetes to help better understand the natural course of type 1 diabetes and the effectiveness of current treatments. Participation in the registry involves completion of a questionnaire about medical and family history including diabetes diagnosis and treatment and laboratory test results. Annual updates of information are also part of the registry. Recruiting: At the Joslin, individuals being followed in the Pediatric, Adolescent and Young Adult Section may be eligible to participate in this registry. Contact: Camille Ratliff at (617) 309-4477 or camille.ratliff@joslin.harvard.edu
VOLUME 8, ISSUE 1 PAGE 5 Snowman on a stick (Adapted from familyfun.com) Yields 12 servings; 17 g carb per serving �� 3 medium bananas �� 12 red grapes �� 1 small carrot cut into thin slivers �� 2 apples �� approx. ½ cup mini chocolate chips �� 24 pretzel sticks �� 12 bamboo skewers For each snowman, you will need three thick slices of banana (about 1/3 of 1 banana), a grape, and a triangular piece of apple (tip: poke a hole in the apple piece with a bamboo skewer first to make it easier to assemble). Slide the fruit onto the skewer, beginning with the 3 banana slices, then the apple and then the grape; garnish with a sliver of carrot for the nose, chocolate chips for the buttons and eyes, and pretzel sticks for the arms. RESEARCH UPDATE Olivia Proffitt was diagnosed with Type 1 Diabetes in July 2011. Following her diagnosis, Olivia, her siblings, and friends held a neighborhood lemonade stand and raised $34.25 to support diabetes research at Joslin. From left to right: Emma Proffitt, Max Verheijen, Liesbeth Verheijen, Olivia Proffitt, Olivia Corina Gencarelli, Carolyn Gencarelli. Mark & Meghan Foisy were ambassadors at the ADA annual Step Out Walk. They have been active advocates for the ADA since 2006 and they will continue to advocate, raise funds and educate through the ADA. Shown here with Vince Wilfork of the New England Patriots. Donation Spotlight and Other Kudos continues on p.6... A number of providers from the Pediatric, Adolescent and Young Adult Section attended the annual conference of the International Society for Pediatric and Adolescent Diabetes in Miami, FL in October, 2011. Dr. Lori Laffel was one of the organizers of the meeting and chaired multiple sessions. Dr. Sanjeev Mehta presented a talk entitled, "Update on Nutritional Management: To Carb Count or Not to Count, That is the Question". Laurie Higgins, RD, presented a workshop called "Continuous Glucose Monitoring: Utility of CGM for Improving Diet, Insulin Adjustment, and Glycemic Control." Dr. Jessica Markowitz presented a poster entitled, "Disordered Eating Behaviors Endorsed by >40% of Youth with Type 1 Diabetes Transitioning to CSII at Baseline and After 6 Weeks; Diminished endorsement of disordered eating behaviors 6 weeks after starting insulin pump therapy.” Dr. Josh Borus presented a poster entitled, "Momentary Sampling Using Personal Digital Assistants (PDAs) to Assess Adherence in Teens with Type 1 Diabetes (T1D): Feasibility, Burden and Acceptability. The conference included participants from all over the world. The conference will be held in Istanbul, Turkey next year. -Jessica Markowitz, PhD and Laurie Higgins, MS, RD, LDN, CDE What do I need to remember to do if my child is sick? �ALWAYS give insulin – the dose may need to be changed with the help of your diabetes healthcare team �Vomiting: always check blood glucose AND ketones (regardless of the blood glucose level) �Have your child drink fluids to prevent dehydration �Check blood glucose every 2- 3 hours �Check blood or urine ketones every 2- 3 hours �Give additional fast-acting or rapidacting insulin based on your diabetes healthcare team guidelines �Call your diabetes healthcare team for support and guidance When should I contact my diabetes healthcare team? �Your child is ill and you need to review Sick-Day Rules �Blood glucose remains elevated and/ or ketones are present �There is persistent illness for over 4-6 hours: frequent diarrhea, vomiting more than once, refusing fluids �Your child has signs of dehydration – dry lips and mouth, sunken eyes, dry skin, and weight loss �You need advice on how much insulin to give �Hypoglycemia resulting from illness or treatment -Ashley Atkins, RN, MSN, CPNP Get Connected The Joslin discussion boards are moderated by Joslin staff and offer a safe place to ask questions about diabetes and to interact with other parents or teens living with diabetes. �� Teens boards: http://forums.joslin.org/ JoslinDiscussionBoards/41.aspx �� Parent boards: http://forums.joslin.org/ JoslinDiscussionBoards/42.aspx �� Joslin Blog: http://blog.joslin.org/ If you would like to find a support group in your area, you can check with your local American Diabetes Association chapter (contact: Anna Floreen, afloreen@diabetes.org) or your local Juvenile Diabetes Research Foundation chapter (contact: Lauren Shields, lshields@jdrf.org). If you are a college student living with diabetes, you may want to join the College Diabetes Network at www.collegediabetesnetwork.org/ to connect with other students living with diabetes.
Page 1 and 2: Newsletter of the Pediatric, Adoles
Page 3: VOLUME 8, ISSUE 1 Teddy Bear Clinic

Winter 2012 newsletter.pub - Joslin Diabetes Center

Create successful ePaper yourself

Delete template?

Save as template?