Subgroup of DMWP

UKHCDO Advisory Committee
Chairman Dr Gerry Dolan Nottingham University Hospital
Vice Chairman Dr David Keeling Oxford University Hospitals
Secretary Prof Mike Laffan Hammersmith Hospital
Treasurer Dr Ri Liesner Great Ormond Street Hospital for Children
A representative from each CCC
Basingstoke Dr Savita Rangarajan
Belfast Dr Gary Benson/Dr Christine Macartney
Birmingham Adults Dr Jonathan Wilde
Birmingham Children’s Hospital Dr Mike Williams
Bristol Dr Andrew Mumford
Cambridge Dr Trevor Baglin/Dr David Perry
Cardiff Dr Peter Collins
Edinburgh Dr Julia Anderson/Dr Angela Thomas
Glasgow Dr R Campbell Tait/Dr Elizabeth Chalmers
Great Ormond Street, London Dr Ri Liesner
Kent and Canterbury Dr Gillian Evans
Leeds Dr Michael Richards/ Dr Lishel Horn
Leicester Dr Sue Pavord
Liverpool Prof Cheng Hock Toh/Dr Vanessa Martlew
Manchester Adults Dr Charles Hay
Manchester Children’s Dr Andrew Will
Newcastle Dr John Hanley/Dr Kate Talks
Nottingham Dr Gerry Dolan
Oxford Dr Paul Giangrande
Royal Free, London Dr Pratima Chowdary
Royal London Prof John Pasi
Southampton Dr Rashid Kazmi
St Thomas’, London Dr David Bevan
Sheffield Dr Mike Makris/Dr Jeanette Payne
Plus any WP Chairs
Plus
Representing HCs Dr Tim Nokes
Honorary representative from Dublin Dr Beatrice Nolan/Dr Niamh O’Connell/Dr James
O’Donnell
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Working party rules
1. Working parties are set up for a period of three years, after that they will either lie
fallow or be re-formed for a further three years.
2. When a new Working Party is formed all UKHCDO members will be informed of the
terms of reference and invited to nominate themselves or others to serve.
3. The UKHCDO Chairman will appoint the Working Party Chair who will agree
proposed membership with him. Working party chairs should not have retired from
clinical practice.
4. The Advisory Group needs to approve the terms of reference and the membership of
the Working Party.
5. An individual can be on a maximum of two Working Parties (excluding the Data
Management Working Party)
6. No Working Party should contain more than two Consultants from the same institution.
7. Working Parties must send a copy of all their minutes to the Advisory Group.
8. The Working Party Chairs are responsible for ensuring the procedure for UKHCDO
guidelines is followed or for obtaining permission from the advisory board not to
follow the procedure.
9. If unpublished Working Party data or work is to be presented at a scientific meeting in
poster or oral form the Working Party Chair must seek permission from the UKHCDO
executive Committee.
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Data Management Working Party (continuous)
Chairman Dr Gerry Dolan
Secretary Dr David Keeling
Membership
Lynne Dewhurst National Haemophilia Database
Emma Franklin Haemophilia Nurses Association
Dr Charles Hay National Haemophilia Database
Dr Rob Hollingsworth Software Engineer, MDSAS
Nicola Howe Pan Thames Haemophilia Consortium
Chris James Haemophilia Society representative
Sue Mather North West Specialised Commissioning Team
Ben Palmer Research Analyst Statistician
Heather Williams UK Haemophilia Data Managers Forum
Vacant position Patient Representative
UKHCDO Working Party Chairmen
Dr Peter Collins Inhibitor Working Party
Dr John Hanley Musculoskeletal Working Party
Dr Mike Makris Morbidity & Mortality Working Party
Prof John Pasi Genetics Working Party
Prof Mike Laffan Von Willebrands Disease Working Party
Dr Andrew Mumford Rare Bleeding Disorders Working Party
Dr Elizabeth Chalmers Paediatric Working Party
UKHCDO Working Party Chairmen to send another Working Party Member as a
representative if the Working Party Chair is unable to attend.
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Clinical Outcomes Group Subgroup of DMWP
Chairman Prof John Pasi
Membership
David Allen Patient representative
Dr Gerry Dolan
Emma Franklin Haemophilia Nurses Association
Dr Charles Hay
Dr Rob Hollingsworth National Haemophilia Database
Nicola Howe Pan Thames Haemophilia Consortium
Christopher James Haemophilia Society representative
Sue Mather North West Specialised Commissioning Team
Paul McLaughlin Physiotherapist
Richard Oakley Patient representative
Ben Palmer National Haemophilia Database
Dr Savita Rangarajan
Georgie Robinson Haemophilia Society representative
David Stephensen Physiotherapist
Dr Andrew Will
Active Working Parties
Genetics Working Party (until Sept 2012)
Chairman Prof John Pasi
Secretary Dr Keith Gomez
Membership
Dr Tony Cumming Manchester Molecular Diagnostics
Alan Fryer Joint Committee for Medical Genetics
Prof Mike Laffan Hammersmith Hospital
Dianne Marshall UK RCN Haemophilia Nurses Association
Dr Mike Mitchell Chairman Laboratory Network
Heather Skirton Association of Genetic Nurses and Counsellors
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Inhibitor Working Party (until Feb 2014)
Chairman Dr Peter Collins
Secretary Dr Dan Hart
Membership
Dr Elizabeth Chalmers
Dr Charles Hay
Dr Ri Liesner
Ben Palmer
Dr Savita Rangarajan
Dr Kate Talks
Dr Mike Williams
Morbidity and Mortality Working Party (until Sept 2012)
Chairman Dr Mike Makris
Membership
Dr Gerry Dolan
Dr Carolyn Millar
Dr Henry Watson
Dr Jonathan Wilde
Dr Thynn Yee
Musculoskeletal Working Party (until Oct 2014)
Chairman Dr John Hanley
Membership
Dr David Bevan
Mr Peter Briggs
Dr Pratima Chowdary
Mr Stephen Classey
Dr Desmond Creagh
Dr Gerry Dolan
Prof Simon Frostick
Dr Paul Giangrande
Mr Nicholas Goddard
Mrs Christine Harrington
Dr Angela McKernan
Mr Paul McLaughlin
Dr Jecko Thackill
Dr Jonathan Wilde
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Paediatric Working Party (until June 2015)
Chairman Dr Elizabeth Chalmers
Dr Jayanthi Alamelu
Dr Peter Collins
Dr Mary Mathias
Dr Jeanette Payne
Dr Michael Richards
Dr Oliver Tunstall
Dr Mike Williams
Rare Bleeding Disorders Working Party (until Aug 2015)
Chairman Dr Andrew Mumford
Dr Sam Ackroyd
Dr Louise Bowles
Dr Pratima Chowdary
Dr John Grainger
Dr Jason Mainwaring
Dr Mary Mathias
Dr Niamh O'Connell
Dr Raza Alikhan
Von Willebrand Disease Working Party (until Aug 2015)
Chairman Prof Mike Laffan
Dr Anne Goodeve
Dr David Keeling
Dr Will Lester
Dr Carolyn Millar
Dr James O'Donnell
Prof John Pasi
Dr Campbell Tait
Dr Andrew Will
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Task Forces
Task Force rules
1. Task Forces are set up to complete a clearly defined piece of work such as writing a
guideline. The task should usually be completed within a year.
2. The UKHCDO Chairman will appoint the Task Force Chair who will agree proposed
membership with him.
3. The Advisory Group needs to approve the terms of reference and the membership of
the Task Force.
4. No Task Force should contain more than two Consultants from the same institution.
5. Task Forces must report on their progress to each Advisory Group meeting.
6. Task Force Chairs are responsible for ensuring the procedure for UKHCDO guidelines
is followed or for obtaining permission from the advisory board not to follow the
procedure.
7. If unpublished Task Force data or work is to be presented at a scientific meeting in
poster or oral form the Task Force Chair must seek permission from the UKHCDO
Executive Committee.
Dental Task Force
Chairman Dr Julia Anderson
Membership
Andrew Brewer Consultant Oral Surgeon
Dr Desmond Creagh
Susan Hook Haemophilia Nurse Representative
Chris James Haemophilia Society representative
Dr Jason Mainwairing
Dr Angela McKernan
Richard Oakley Haemophilia Society representative
Anica Phillott Haemophilia Nurse Representative
Dr Thynn Thynn Yee
Albert Yeung Representing the Chief Dental Officer, Scotland
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Other Committees
Triennial Audit Committee
Chairman Dr David Perry
Secretary Helen Brown
Membership
Dr Gerry Dolan
Dr Charles Hay
Chris Harrington Haemophilia Nurse Representative
Robert James Haemophilia Society representative
Dr Tim Nokes
Richard Oakley Haemophilia Society representative
Georgie Robinson Haemophilia Society representative
Vicky Vidler Haemophilia Nurse Representative
Dr Jonathan Wilde
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