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Minutes of ASE Pediatric and Congenital Heart Disease (PCHD ...

Minutes of ASE Pediatric and Congenital Heart Disease (PCHD ...

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ACTION ITEM: Staff to work with Dr. Eidem to complete the newsletter.<br />

8. Z –Score Project: Drs. Lopez <strong>and</strong> Lai led the discussion <strong>of</strong> this project. Options for collecting data<br />

include using core labs to do all measurements, or having participating institutions do<br />

measurements <strong>and</strong> enter them into a database. Potential funding avenues include NIH <strong>and</strong> the<br />

<strong>ASE</strong> Foundation. Analysis <strong>of</strong> subsets (gender, race, culture) would be important for applying to<br />

NIH. The project could be thought <strong>of</strong> as a product rather than as a straight research project, as<br />

revenue could be produced by it. Labs might participate in exchange for access to data, but<br />

would need to know how much time it would take. There was consensus to proceed with a<br />

proposal that could be used to test the waters for funding. Costs would include funding a<br />

repository for images, analysis <strong>of</strong> data, <strong>and</strong> quality monitoring <strong>of</strong> test sites.<br />

ACTION ITEM: Drs. Lopez <strong>and</strong> Lai will circulate a second draft <strong>of</strong> the proposal. The goal is for<br />

distribution <strong>of</strong> the proposal to the potential funding entities prior to the upcoming <strong>ASE</strong> meeting.<br />

9. Guidelines <strong>and</strong> Writing Groups<br />

� Echocardiography in the NICU writing group – Drs. Mertens <strong>and</strong> Lai noted that this<br />

document has been circulated to the council leadership <strong>and</strong> sent to Guidelines <strong>and</strong><br />

St<strong>and</strong>ards, where suggestions for revisions were made. Those changes have been made<br />

<strong>and</strong> the document is back with Guidelines <strong>and</strong> St<strong>and</strong>ards. Approval within the next few<br />

weeks is anticipated. The document will be co-published with two European societies<br />

<strong>and</strong> AAP.<br />

� Multimodality Imaging Guidelines for Repaired Tetralogy <strong>of</strong> Fallot – an outline for this<br />

paper has been distributed by Dr. Valente. A similar format could be used for this <strong>and</strong><br />

the TGA guideline, but there will be some differences, as the TOF document deals with<br />

post-operative patients only.<br />

� Multimodality Imaging Guidelines for Transposition <strong>of</strong> the Great Arteries – Dr. Eidem<br />

said that a writing group has just been formed, <strong>and</strong> that he will have an outline <strong>of</strong> the<br />

paper ready to be reviewed in June.<br />

10. Laboratory Productivity Survey: Dr. Lai noted that the final draft <strong>of</strong> the survey has been<br />

distributed to council leadership. A list <strong>of</strong> recipients is being compiled <strong>and</strong> will be circulated so<br />

that council leaders can add names <strong>and</strong> help insure that the addresses are correct.<br />

ACTION ITEM: Drs. Lai <strong>and</strong> Allada will work with staff to send out the survey. Results will be<br />

presented at the upcoming <strong>ASE</strong> meeting.<br />

11. Council Statement on Age cut-<strong>of</strong>f for <strong>Pediatric</strong> Echocardiography: There was consensus that the<br />

council is unable to make a recommendation at this time, as more data would be needed <strong>and</strong><br />

there is no current policy on having pediatric cardiologists see all young patients.<br />

12. J<strong>ASE</strong> Pages:<br />

a. June (due 4/18): Dr Lai to prepare after the ACC meeting.<br />

b. September (due 7/18)<br />

c. December (due 10/18)<br />

13. IPod Application: An application has been developed for <strong>ASE</strong> guidelines <strong>and</strong> consensus<br />

documents, <strong>and</strong> a calculator included. Dr. Powell said that the inclusion <strong>of</strong> pediatric Z score data<br />

has been delayed, but that Dr. Colan is willing to allow use <strong>of</strong> the Boston Z score data. We might<br />

want to include more than one set (perhaps Boston, Michigan <strong>and</strong> Washington data). An <strong>ASE</strong><br />

pediatric application that incorporates the top three sets in use would be ideal.<br />

ACTION ITEM: Dr. Powell will discuss this with the IT Committee.<br />

Next Meeting – <strong>ASE</strong> Council Retreat, Friday, June 10, 7 pm to 10 pm

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