March-April - Alexander Graham Bell Association

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VOICES FROM AG BELLtremendous therapeutic effectiveness andbenefits of bilateral cochlear implantsfor children and adults who are deaf andhard of hearing.One of these children was EvanGordon, who was identified withprofound bilateral hearing loss at age 2months after he did not pass a newbornhearing screening. Although he worehearing aids consistently and his parentswere engaged in helping him to developlanguage, observations and assessmentsshowed that he had limited auditoryabilities and significantly limited speechand language development.Evan celebrated his first birthdayby hearing his first sounds through hisbilateral cochlear implants. From thenon, his communication skill developmentwas on a fast track. At 2 years of age, justlike other toddlers, Evan was saying twowordphrases like “Where’s Daddy?” Andno auditory-verbal session ends without arendition of his favorite song, “Wheels onthe Bus.”For Evan—and many other children—bilateralcochlear implants,early identification and interventionare opening up the opportunity toachieve language on par with their peers.Cochlear implants and follow-up servicesare providing the opportunity for manyrecipients to be educated with accommodationsand support in mainstreamenvironments, alongside their siblingsand peers with typical hearing.Despite these advances, there is still atremendous need to educate the public andpolicymakers about this technology andto advocate for access to cochlear implantsand related services under public andprivate health plans. AG Bell will continueto advocate in the year ahead. Lookfor periodic news on AG Bell’s advocacyefforts in upcoming issues of Volta Voicesand in other communications vehicles.Sincerely,Donald M. Goldberg, Ph.D.,CCC-SLP/A, FAAA, LSLS Cert. AVTPresidentQUESTIONS?COMMENTS?CONCERNS?Write to us:ag Bell3417 Volta Place, NWWashington, DC20007Or email us:info@agbell.orgOr online:ListeningandSpokenLanguage.org4 VOLTA VOICES • MARCH/APRIL 2013
Greetings! This marks myinaugural column as editor ofVolta Voices. It is with delightand excitement that our editorialteam looks forward to hearing fromyou with story ideas and articles for futureissues. I encourage you to write aboutwhat you want to read and submit it forconsideration.The March/April issue of Volta Voicesfocuses on advocacy efforts on behalf ofthe community of individuals who aredeaf and hard of hearing. Our featurestory about a young advocate, 16-yearoldGabriel Brainson, describes howthe teenager’s search for better captioningpropelled him to conduct extensiveresearch and ultimately brought him toWashington, D.C., where he advocated forimproved captions in a meeting with theFederal Communications Commission.The accompanying piece, written by JimHouse from Telecommunications for theDeaf and Hard of Hearing, describes howorganized citizen advocacy led to greateravailability of television captions and howsimilar efforts are making captions a realityon the Internet.Our regular column, “Tips forParents,” features Catherine Fries Vaughn,mother of 10-year-old Lily who has bilateralsensorineural cookie bite hearing loss.Catherine wrote “Things the Mother of aChild with Hearing Loss Wishes PeopleKnew,” in which she highlights the importanceof helping children find their voiceand advocate for themselves.In “Auditory-Verbal Therapy inTelepractice: A Practical, Philosophicaland Musical Perspective,” K. ToddHouston and Laura L. Van Antwerp providea powerful case for how telepracticecan assist families in obtaining servicesfrom a Listening and Spoken LanguageSpecialist and how these professionals canuse concepts from other methodologiesto assist parents in becoming their child’sEDITOR’S NOTEImproving Our WorldThrough Advocacyfirst teacher in developing listening andspoken language.The “Hear Our Voices” columnfeatures the story of a teen who shares herjourney growing up with bilateral cochlearimplants, writing a book and serving as amentor for other families.This issue marks the launch of a newcolumn “Up Front of the Back Page” whichwill profile the interesting people thatmake up the AG Bell community of adults,parents, and professionals who share theirinterests, perspective, and knowledge ontheir journey with hearing loss.A short introductory note about myprofessional background. My professionalpath has provided me with aneclectic and diverse bundle of skills andexperiences. I started my career organizingprofessional exchange study toursfor Department of State guests underthe auspices of the International VisitorLeadership Program, part of the U.S.government’s public diplomacy efforts.I then served as a membership managerat a corporate trade association, whichrepresents software and digital contentcompanies where I focused on memberinvolvement and retention. I was aresearcher for a law firm which specializesin corporate compliance for federallyfunded health centers and Head Startprograms, where I provided research anddata analysis as well as content managementfor websites. Most recently, I wasthe marketing, communications andmembership coordinator at the HeartRhythm Society in Washington, D.C.,where I edited and produced the weeklymembership e-newsletter, providededitorial support for print and electronicmaterials, and assisted with the society’spublic awareness campaigns.Please submit your story ideas, articlesfor publication, comments and suggestionsto editor@agbell.org. I encourageyou to visit the Volta Voices section ofthe Listening and Spoken LanguageKnowledge Center to learn more aboutthe many columns, topics of interest, andways that you can write for the publication.AG Bell is actively seeking contributorsfor 2013, and we are eager to hearfrom you.Kind regards,Anna Karkovska McGlewEditor, Volta VoicesVOLTA VOICES • MARCH/APRIL 2013 5
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March-April - Alexander Graham Bell Association

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