2013 Conference Program - American Partnership For Eosinophilic ...

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Welcome! Thank you for joining us for APFED’s 11 th Annual Patient Conference! We dedicate this conference to the patients and families living with eosinophil associated diseases, and to the physicians who research and treat these illnesses. This program contains a schedule of events, session descriptions, helpful information about the hotel and the Philadelphia area, copies of the presentations, and other helpful resources. Conference Technology Facebook – Like APFED's official Facebook page (http://www.facebook.com/APFED) and follow us as we post a summary each day about the conference. Twitter Handle - #APFED – For those who will be tweeting or following tweets throughout the conference, please add #APFED to all of your tweets. Wi-fi Access Wi-fi is available in Liberty Foyer. High speed wireless Internet access is also complimentary in all guest rooms. APFED is a nonprofit organization dedicated to patients and their families coping with eosinophil associated diseases. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members. For more information about the programs and services we offer, visit www.apfed.org. Disclaimer All information presented at this conference is for the sole use of the attendees. Permission for the use of these and all associated materials must be obtained from the individual speakers. Information presented here is the opinion of the speakers; any questions that arise as a result of this conference regarding patient care should be directed to your consulting physician. Agenda and speakers are subject to change. 1
APFED’s 11 th Annual Patient Education Conference Schedule at a Glance Registration Times DATE TIME LOCATION Friday, June 28 12:00 pm-7:00 pm Liberty Foyer Saturday, June 29 7:00 am-5:00 pm Liberty Foyer Friday, June 28 Vinyasa Flow Yoga Class 8:00-9:15 am Liberty A Smith Playground for kids 10 & younger 10:00-12:00 pm Smith Playground Expressive Hand, Paint Your Own Pottery 12:30- 2:30 pm Liberty A Exhibits 2:00-5:00 pm Liberty Foyer New Attendee Welcome 2:00-3:00 pm Liberty B Tube Feeding Basics 3:00-4:00 pm Independence Cooking Solutions for Restricted Diets 4:00-5:00 pm Independence Social Mixer for Families (light hor d'oeuvres) 6:30-9:30 pm Liberty Ballroom Saturday, June 29 Continental Breakfast 7:30-8:15 am Liberty Foyer Exhibits 7:30 am-5:00 pm Liberty Foyer Opening Remarks 8:15 am Liberty Ballroom Parent & Child Activities Check-In (see page 9 for agenda) 8:30 am Senate EGID Bootcamp for Beginners & Intermediates 8:30 am Liberty EGID for Advanced Patients 8:30 am Independence Break 9:15 am Liberty Foyer Teen Session Check-In (see page 10 for agenda) 9:15 am Congress Main Sessions 9:30-11:30 am Liberty Ballroom Lunch (box lunch provided) 11:30 am-1:00 pm Liberty Foyer Breakout Session I: School Advocacy: Logistics of Putting a Formal Plan in Place 1:00-1:45 pm Independence A Food Trials and Elimination Diets 1:00-1:45 pm Independence B Adults: Relationships and Chronic Illnesses 1:00-1:45 pm Senate Parenting Strategies, Childhood to Adolescence 1:00-1:45 pm Constitution Break 1:45-2:00 pm Liberty Foyer 2
Page 1 and 2: 11th Annual Patient Education Confe
Page 3 and 4: Photo credit: Rich Grant, Visit Den
Page 5: Presentations Tube Feeding Basics (
Page 9 and 10: Thank you to our Education Partners
Page 11 and 12: 2013 EOS CONNECTION SPECIAL EVENTS
Page 13 and 14: Social Mixer for Families Friday, J
Page 15: APFED’s 11 th Annual Patient Educ
Page 18 and 19: Friday Session Moderators Victoria
Page 20 and 21: ONSITE CONFERENCE CONTACT: LAURA JA
Page 22 and 23: PHARMACIES CVS Pharmacy 826 Chestnu
Page 24 and 25: With so much to experience in the
Page 26 and 27: Independence Hall - Recommended for
Page 28 and 29: hands-on discovery center for child
Page 30 and 31: Reading Terminal Market - Recommend
Page 32 and 33: Tube Feeding Basics Moderators: Vic
Page 34 and 35: J (Jejunostomy Tube) Tube placed di
Page 36 and 37: Resources www.APFED.org www.oley.or
Page 38 and 39: + Cooking Solutions for Restricted
Page 40 and 41: Replacing Wheat Starches and Gums S
Page 42: EGIDs Bootcamp for Beginners and In
Page 48: Rothenberg ME, et al JACI 108:891-9
Page 51 and 52: Liacouras C et al, J Allergy Clin I
Page 54 and 55: Linear furrowing, vertical lines of
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Liacouras C et al, J Allergy Clin I
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Founded in June 2006 Staff of 86
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A. Mendelian disease: A variant in
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----- Nat Rev Genet. 2010 62
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Included all SNPs Pval < 0.001 Top
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Spectrum of disease or unique disea
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Normal Antrum Eosinophilic Gastroen
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Age of patient at time of diagnosis
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100 * 62 84 58 51 39 66 Personal h
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41% of EoE patients 15% of EoE pati
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6/17/2013
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Before After 87
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Adult EoE: How Do Diagnostics and T
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Prevalence of Eosinophilic Esophagi
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How do we diagnosis EoE? • Gold s
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Treatment Options Medical Therapy -
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Sherri Shubin Cohen, MD, MPH Medica
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Intensive Day Hospital Feeding Prog
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Breakout Session I 1:00pm - 1:45pm
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Psychosocial: Strategies to Cope Am
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Research Update Mei-Lun Wang, MD At
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White exudates Rings Normal esophag
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• - • - - • • •
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Asking a Question during Q&A Attend
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APFED Resources for EGID Patients A
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Ryan, 3, EoE patient We’re so gla
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The Neocate ® Family Proven effect
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APFED Membership / Donation Form Mi
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