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2001/2002 Annual Report - the Pediatric Oncology Group of Ontario

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<strong>“</strong><br />

LIFE MEANS SO MUCH but we don’t realize<br />

how precious it is until it is taken away.<br />

I took life for granted and then<br />

each breath of life was a struggle.<br />

<strong>”</strong><br />

— Julia Brown, age 15


A MESSAGE FROM THE<br />

PRESIDENT<br />

As POGO fast approaches its 20th<br />

anniversary, it is time to reflect on the goals<br />

and accomplishments of this unique organization<br />

and to anticipate its successes in the<br />

years to come. From humble beginnings as a<br />

well-meaning but seriously underfunded, and<br />

otherwise under-resourced, entity devoted to<br />

improving the care of children with cancer in<br />

Ontario, POGO has grown in stature and professionalism<br />

to enjoy an official role as advisor<br />

on pediatric oncology to the provincial ministry<br />

of health, supported by a dedicated secretariat<br />

and a multi-million dollar annual<br />

budget.<br />

POGO's effectiveness lies, in part, in its<br />

functioning as a supra-institutional body, collaborating<br />

with and supporting the important<br />

work of institutions across this province which<br />

deliver pediatric cancer care (including The Hospital for Sick<br />

Children; McMaster Children's Hospital; Children's Hospital of<br />

Western Ontario; Kingston General Hospital; and Children's<br />

Hospital of Eastern Ontario). Thanks to POGO, each of these<br />

institutions, and the patients and families they care for, have benefited<br />

from increased funding and a province-wide system of<br />

comprehensive care based on the highest standards and practice<br />

guidelines.<br />

Opportunities for further accomplishments abound and will<br />

be enabled by the establishment of partnerships with other<br />

organizations, as envisaged in a formal business plan, and by the<br />

imminent birth of the POGO Childhood<br />

Cancer Foundation (the application for<br />

which is under review at Canada Customs<br />

and Revenue Agency as of press time). By<br />

word of mouth and through the dissemination<br />

of POGO's standards, guidelines and<br />

policy documents, POGO's experience and<br />

expertise has found its way to children with<br />

cancer throughout Canada, and in the USA<br />

and developing countries. With your help,<br />

there is much more we can do to ensure the<br />

best possible care for children everywhere.<br />

I thank the Ministry of Health and Long-<br />

Term Care and the many generous corporate<br />

and private sector donors for the commitment<br />

with which they have supported<br />

POGO's growth so far. We look forward to<br />

their continued partnership as we embark<br />

on the many challenges and opportunities ahead to improve the<br />

circumstances of the children and their families who struggle<br />

with pediatric cancer—in Ontario and beyond.<br />

Dr. Ronald D. Barr,<br />

President<br />

Sudbury Regional<br />

Hospital Corporation<br />

The Credit Valley<br />

Hospital, Mississauga<br />

Children's Hospital<br />

of Western Ontario<br />

University of<br />

Western Ontario<br />

The Hospital<br />

for Sick Children<br />

University of Toronto<br />

The Pediatric Oncology<br />

Group of Ontario<br />

Kingston<br />

General Hospital<br />

Queen's University<br />

Orillia Soldiers'<br />

Memorial Hospital<br />

Children's Hospital<br />

Hamilton<br />

McMaster University<br />

Children's Hospital<br />

of Eastern Ontario<br />

University of Ottawa<br />

Grand River Hospital,<br />

Kitchener Waterloo<br />

Health Centre<br />

POGO: An update 3


INTRODUCTION TO POGO<br />

Each year, over 2,500 of Ontario’s children undergo treatment<br />

or require follow-up care for cancer. Despite decades of<br />

remarkable progress, 25% of children newly diagnosed with<br />

cancer will not survive. In fact, cancer kills more of our children<br />

than any other disease: on average, 2 children die of malignant<br />

disease each week in Ontario.<br />

Investments of human and financial resources, and a high<br />

level of professional collaboration, have resulted in a 75% overall<br />

survival rate for children with cancer. However, when survival<br />

is reached, it can come at a high cost. Quality of life may be<br />

compromised, and children and their families may struggle with<br />

the physical, psychological and socio-economic impacts of the<br />

disease and its treatment<br />

Founded in 1983, the Pediatric Oncology Group of Ontario<br />

(POGO) champions childhood cancer care and control. The<br />

organization seeks to ensure access for all of Ontario’s children to<br />

well coordinated, state-of-the-art cancer care and to ensure that<br />

POGO’S VISION<br />

POGO’s vision, conceived in the mid-1990’s, was translated<br />

into seven strategic initiatives, all substantially on their way<br />

to completion. These are:<br />

1. The creation of a childhood cancer system that allows<br />

the child and family to take advantage of medical,<br />

nursing and behavioural expertise in five specialized<br />

childhood cancer programs when necessary, and<br />

closer to home when safe and appropriate.<br />

2. A standard for acceptable staffing levels and professional-to-child<br />

ratios.<br />

3. The implementation of a provincial network of specialized<br />

After Care clinics, to address the predictable<br />

and often remediable issues of survivors.<br />

4. Mechanisms for easing the enormous financial burden<br />

experienced by families when confronted by the catastrophic<br />

diagnosis of pediatric cancer.<br />

5. The recognition of a pediatric cancer coordinating<br />

body (POGO) linked to the Ministry of Health and<br />

Long-Term Care and other stakeholders, and commitment<br />

to support it.<br />

6. A provincial childhood cancer database electronically<br />

linking the programs that care for children and providing<br />

accurate provincial information on cancer in<br />

the population.<br />

7. Creation of a childhood cancer-focused research unit.<br />

the services needed are available. POGO works on behalf of,<br />

and along with the children and their families to ensure optimal<br />

care, advocating for appropriate clinical, research and educational<br />

resources for caregivers of all disciplines, and generating<br />

standards and guidelines for practice. The organization is a collaboration<br />

of the five specialty pediatric oncology programs in<br />

Ontario—The Hospital for Sick Children (Toronto); McMaster<br />

Children’s Hospital (Hamilton); Children’s Hospital of Western<br />

Ontario (London); Kingston General Hospital; and Children’s<br />

Hospital of Eastern Ontario (Ottawa)—along with a growing<br />

number of partners. The collaboration’s mission is threefold,<br />

focusing on Care, Education and Research:<br />

■<br />

■<br />

■<br />

CARE: POGO seeks to ensure that each child in this<br />

province has equal access to the most current care and that<br />

the full range of needs of these children, their families and<br />

caregivers are met.<br />

EDUCATION: POGO creates regular opportunities for professional<br />

update in this rapidly advancing field.<br />

RESEARCH: POGO promotes and conducts research probing<br />

incidence, trends, program delivery effectiveness and<br />

costs, and quality of survival—an often neglected research<br />

agenda.<br />

A strong partnership with Ontario’s Ministry of Health and<br />

Long-Term Care (MOHLTC) and with the childhood cancer community,<br />

and an unfaltering collaboration among the POGO programs<br />

and professionals, have led to many successes, as a result<br />

of which, POGO is now designated the official source of<br />

advice to the MOHLTC on pediatric cancer care and control.<br />

POGO has built a reputation for recommendations<br />

based on solid provincial data, scientific evidence and significant<br />

clinical experiences.<br />

Thanks to POGO, care for Ontario’s children with cancer has<br />

been enhanced and integrated, and pediatric cancer is, today,<br />

designated a Priority Program by Ontario’s MOHLTC. POGO<br />

and its partner hospitals have created an environment in which<br />

the gaps in care and control are identified, and funds for childhood<br />

cancer care continue to flow from government to the institutions<br />

in which diagnosis and care take place.<br />

POGO is dedicated to building a seamless system for the<br />

care of pediatric cancer patients, supported by practice guidelines,<br />

professional education, accurate information and<br />

research. POGO works hard for the survival of these young<br />

cancer patients and strives to improve quality of life during all<br />

phases of the journey.<br />

4 POGO: An update


REPORT FROM THE<br />

EXECUTIVE DIRECTOR<br />

Looking back to POGO’s<br />

beginnings in the 1980’s, it is<br />

truly astonishing to observe<br />

how far along the road this<br />

collaboration of concerned<br />

professionals and programs<br />

has come toward realizing its<br />

vision of a state-of-the-art<br />

childhood cancer system for<br />

Ontario.<br />

On behalf of children<br />

fighting cancer in our<br />

province, their families, and<br />

the dedicated professionals<br />

who care for them, we thank<br />

you for the many and different<br />

Dr. Corin Greenberg at<br />

the ‘80s-themed Party for<br />

POGO, 2002<br />

ways in which you offer your support—through partnerships,<br />

expert consultations, and much needed financial support. With<br />

your help, POGO is in a position to continue and expand its<br />

scope of work. This work is focused on the improvement of cancer<br />

care and quality of survival for the children of Ontario, professional<br />

education and research.<br />

We are grateful for the steadfast support of Ontario’s Ministry<br />

of Health and Long-Term Care (MOHLTC), of pediatric oncology<br />

professionals, the wider childhood cancer care community, and<br />

the many supporters who share our challenges and victories.<br />

On behalf of POGO’s Board, I would like to thank Dr.<br />

Anthony Melman, Fundraising Chair, our donors, sponsors and<br />

volunteers who have generously contributed to POGO’s<br />

Fundraising Campaigns. Their efforts enabled us to establish the<br />

POGO Chair in Childhood Cancer Control at the University of<br />

Toronto, and with it the position of Medical Director of POGO,<br />

both critical to the advancement of POGO care, education and<br />

research initiatives which, in turn, enhance the care of the children<br />

we serve.<br />

I am pleased to report that POGO is operating on a surplus<br />

basis. For the fiscal year ended March 31, 2001 (the most recent<br />

year for which we currently have audited financial statements),<br />

our financial statements, audited by Schwartz Levitsky Feldman<br />

llp, report total income of $2,600,005 and total expenses of<br />

$1,159,393. POGO’s policy is to allocate a portion of any yearend<br />

surpluses against high-priority needs and programs as<br />

approved by the POGO Board, while retaining a positive fund<br />

balance into the subsequent fiscal year. For detailed financial<br />

statements and to receive audited financial statements for the fiscal<br />

year ended March 2002, please contact Susan Grace at our<br />

office at 416-592-1232.<br />

POGO’s work will continue to focus on Care, Education<br />

and Research. In the year ahead, these directions will lead to:<br />

■ Expansion of the Provincial Pediatric Oncology Satellite<br />

Program (PPOSP), a network of community care centres<br />

which provide components of care closer to the family<br />

home, thereby minimizing the disruption on the lives of<br />

patients and their families;<br />

■ Implementation of a partnership with the Interlink<br />

Community Cancer Nurses, a pediatric community cancer<br />

nursing program which will support children/families when<br />

they return home;<br />

■ Operation of a Financial Assistance Program, created to help<br />

with the enormous financial burden experienced by families<br />

as they struggle with childhood cancer. In addition, the<br />

■ Expansion of the Provincial Pediatric Oncology AfterCare<br />

Program which greatly increases the health system’s capacity<br />

for health monitoring and health promotion for all survivors.<br />

As with all POGO initiatives, the AfterCare program is<br />

designed to help children and families deal with the physical,<br />

psychosocial, cognitive and behavioral challenges associated<br />

with their disease and treatment.<br />

In addition, POGO will convene the 2002 Multidisciplinary<br />

Symposium. This year’s symposium is on <strong>“</strong>Care at the End of Life<strong>”</strong><br />

and deals with palliative care for those children who will not survive.<br />

Our annual conferences bring together cancer care professionals,<br />

researchers and other experts to discuss key dimensions<br />

of advancing frontiers. More than 200 pediatric oncology professionals<br />

are expected to attend.<br />

It is my privilege to report, in the pages that follow, some of<br />

the recent and substantial accomplishments of the enduring and<br />

committed collaboration that has become known as POGO.<br />

Dr. Corin Greenberg<br />

Executive Director<br />

POGO: An update 5


A MEASURE OF OUR SUCCESS<br />

OBJECTIVES & INITIATIVES<br />

Ensure government has expert pediatric oncology advice<br />

Create, sustain and expand a provincial database<br />

Establish a Provincial Pediatric Oncology Satellite system<br />

CURRENT STATUS<br />

• POGO linked to MOH<br />

• Data to support decision making developed<br />

• Rapid policy development enabled<br />

• Blueprint for expansion completed, several steps implemented<br />

• Computerized networking of hospitals implemented<br />

• Key information and analysis achieved<br />

• Four provincial pediatric oncology sites prepared and activated<br />

Major expansion of expert staff in all disciplines<br />

Provincial system of After Care Clinics for survivors of all ages<br />

• Phase l funding secured for all POGO hospitals, Phase ll expansion<br />

approved partially by MOHLTC, Phase III under consideration<br />

• New staff and funding secured for:<br />

- After care clinics<br />

- Satellite system<br />

- Expanded database<br />

- Provincial umbrella POGO office<br />

• Approved and funded, guidelines developed<br />

• In preparation:<br />

- Development of health promotion brochure<br />

Initiate an integrated, comprehensive and provincial system of care<br />

• Funding approved<br />

• Several standards and guidelines completed<br />

Increased opportunities for parent/survivor participation in care &<br />

policy development<br />

• Parent and survivor representation on POGO committees<br />

• Childhood Cancer Resources, guide completed<br />

- 2,000 copies distributed to professionals and families<br />

• Parent education handbook approved and distributed<br />

• POGO originated & co-hosted first FORUM on childhood cancer<br />

Initiated supportive strategies for parents/families<br />

Increased opportunities for professional development and specialization<br />

in pediatric oncology<br />

• Increased compensation for babysitting hours achieved<br />

• Trillium Drug program: qualifying threshold changed<br />

• Proposal developed for the management of effective, expensive<br />

supportive care drugs and chemotherapeutic agents<br />

• Increased access achieved to allied health staff & care coordinators<br />

• Initiated professional development opportunities<br />

• Pediatric oncology nursing curriculum developed & implemented<br />

• Annual POGO Symposia<br />

• Mentoring and abstract review system developed<br />

• Staff education for Satellite practice and AfterCare program<br />

Establish the POGO Research Unit (PRU)<br />

• Ministry commitment for 5 years, ends March, 2003<br />

• First studies underway<br />

6 POGO: An update


CARE<br />

In 1988 and again in 1994, POGO delivered comprehensive<br />

reports to the Ontario Ministry of Health and Long-Term Care<br />

(MOHLTC) on available and missing childhood cancer services. In<br />

these reports and through the strenuous schedule of work that<br />

followed, POGO systematically identified gaps in service; new<br />

approaches to treatment; efficiencies to be realized; serious<br />

understaffing; areas in critical need of strategic investment; and<br />

new ways of delivering service.<br />

The result is a strong partnership with Ontario’s MOHLTC,<br />

POGO and the childhood cancer community, and major steps<br />

towards a coordinated, well-integrated, province-wide system of<br />

care, directed and delivered by affiliated, hospital-based programs<br />

which are in regular contact with each other.<br />

Today, Ontario has a childhood cancer system founded on<br />

state-of-the-art practice guidelines and significant new MOHLTC<br />

funding. The province-wide network is the result of a sustained<br />

and determined collaboration of professionals working with parents<br />

and survivors, and the help and support of three successive<br />

governments led by each of the major political parties.<br />

POGO has sought to enhance the care of the children<br />

through:<br />

■ increasing the numbers of staff available in all pediatric cancer<br />

programs, thanks to increased funding from the<br />

MOHLTC;<br />

■ the creation and ongoing support of the Provincial Pediatric<br />

Oncology Satellite Program (PPOSP), a network of community<br />

care centres established in partnership with POGO hospitals;<br />

■ the implementation of a province-wide network of AfterCare<br />

Clinics to monitor the care and promote the health and<br />

well-being of the nearly 75% of children who survive their<br />

cancer;<br />

■ the publication of <strong>“</strong>Childhood Cancer Resources: POGO's<br />

Guide to Services in Ontario<strong>”</strong>, and development of a searchable<br />

online database of resources available across Ontario—<br />

an initiative funded through a private foundation grant;<br />

■ a search for mechanisms for easing the enormous financial<br />

burden experienced by families when confronted by this<br />

catastrophic diagnosis, in collaboration with the Canadian<br />

Cancer Society, Ontario Division and Ontario’s MOHLTC.<br />

■<br />

■<br />

Plans for the future include:<br />

the provision of reliable funding to POGO’s new partner,<br />

Interlink, a community-based pediatric cancer nursing program,<br />

and integration of this program into the childhood<br />

cancer network in Ontario;<br />

maintaining and updating guidelines that direct care in the<br />

■<br />

■<br />

Provincial Pediatric Oncology Satellite centres;<br />

maintaining and updating guidelines that direct care in<br />

POGO AfterCare Clinics;<br />

the management of a financial assistance fund to help families<br />

with treatment-related out-of-pocket costs.<br />

EDUCATION<br />

Over the years, POGO has worked to identify the challenges and<br />

issues arising from childhood cancer control and from the practice<br />

of pediatric oncology professionals. POGO’s educational<br />

programs are dynamic, interesting learning opportunities<br />

where the experts assemble to identify and examine the<br />

issues and where the exchange of ideas, problem solving,<br />

and research collaborations on the entire childhood cancer<br />

population result. These programs help keep caregivers<br />

abreast of new developments, provide regular opportunities for<br />

contact, consultation and collaboration among colleagues<br />

across the province and country, and stimulate discussion that<br />

advances policy, program, and practice innovation.<br />

■<br />

POGO’s ongoing educational activities include:<br />

MULTIDISCIPLINARY SYMPOSIA: Each year, professionals<br />

who care for children with malignant disease<br />

attend the POGO Symposia in large numbers. These<br />

conferences provide cutting-edge information on caring<br />

for the whole child, and networking opportunities<br />

from which research collaborations and clinical consultation<br />

flow in abundance. POGO Symposia are rated<br />

POGO: An update 7


y participants as an effective way of providing new<br />

information for practice and new ideas for research,<br />

and of colleague-to-colleague discovery and discussion.<br />

POGO Symposia are typically attended by approximately<br />

200 multidisciplinary professionals, representing<br />

more than 25 organizations across Ontario,<br />

Canada and the United States.<br />

■<br />

SPECIALIZED PRACTICE UPDATES: POGO updates<br />

enhance professional knowledge in a rapidly advancing<br />

specialty. A program in 2002, for example, focused on Bone<br />

Marrow Transplantation (BMT) and included Management<br />

of BMT Complications; Psycho-social Impacts of<br />

Transplantation; and Nutritional Needs in the Post-<br />

Transplant Patient.<br />

■<br />

■<br />

ROUND TABLE DISCUSSION FORUMS: Round Tables<br />

are designed to foster the development of clinical policies<br />

and programs supported by consensus.<br />

RESEARCH REVIEW AND CONSULTATION: Members of<br />

the POGO Research Committee assist interested researchers<br />

with the development of posters presenting new research<br />

and innovative programs, and with the development of<br />

research proposals.<br />

■<br />

NURSING CONFERENCES: These conferences, which<br />

occur in alternate years, offer nurses rich and valued opportunities<br />

for professional education, career development, literature<br />

updates and clinical consultation. Recent conference<br />

topics included: State-of-the-Art Nursing; Ethical and<br />

Moral Issues in the Care of Children with Cancer; Integration<br />

of New Information into Bedside Nursing; Education for a<br />

Career in Pediatric Cancer Nursing: the Pediatric Oncology<br />

Nursing Curriculum; and Provincial and National Nursing<br />

Partnerships.<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

RECENT MULTIDISCIPLINARY<br />

SYMPOSIA TOPICS<br />

New approaches to Diagnosis, Treatment and<br />

Rehabilitation of Children With Malignant Disease<br />

Experience and Evaluation: a demonstration of how the<br />

latest research findings may be translated into practice<br />

Beyond Cure: Consequences and Care (focusing on the<br />

major late effects of childhood cancer)<br />

The Challenges and Rewards of Caring for Children with<br />

Cancer<br />

Coping with Stress: Applications to Pediatric Oncology<br />

Practice (addressing professional caregiver concerns<br />

about high levels of burnout, stress and emotional<br />

exhaustion)<br />

Causes of Cancer: Environment vs. Heredity<br />

Bill 109 and the Right to Refuse Treatment<br />

Complementary and Adjunctive Therapies<br />

A Vision of Pediatric Oncology for Ontario<br />

A CHILDHOOD CANCER NURSING<br />

CURRICULUM<br />

POGO's first Nursing Committee identified a pressing need<br />

for a childhood cancer nursing curriculum that would help<br />

nurses develop the skills to address the unique medical and<br />

social aspects of caring for children and families throughout<br />

the childhood cancer treatment journey. POGO secured<br />

funding to develop a Pediatric Oncology Nursing<br />

Curriculum from The Max Bell Foundation and The Richard<br />

and Jean Ivey Fund, and spearheaded its development. In<br />

1994 the program was successfully adopted by the<br />

McMaster School of Nursing in Hamilton, where it grew rapidly<br />

into a training opportunity for childhood cancer nurses<br />

across Canada, and was cloned as the model for the development<br />

of a national, adult cancer nursing curriculum.<br />

POGO NEWS<br />

Periodically POGO publishes a newsletter that summarizes new<br />

advances; analyzes the implications of new policies, legislation<br />

and programs; and reviews upcoming conferences and relevant,<br />

recent publications. The newsletter is read by 2000 pediatric cancer<br />

professionals across North America.<br />

8 POGO: An update


RESEARCH<br />

The POGO Research Unit (PRU) was activated in 1998. In barely<br />

4 years of operation the PRU has developed a strong and unique<br />

research mandate that has attracted 30 research proposals,<br />

involving 82 researchers, from 26 institutions and 19 different<br />

professional disciplines.<br />

The mission of the PRU is:<br />

■ to emphasize the importance of translating new knowledge<br />

into better care for children and better health policy;<br />

■ to stimulate investigations focused on population, program<br />

and system questions, on health economics and on quality<br />

of life and other issues relating to patient outcomes;<br />

■ and to spread the culture of multi-hospital and multi-disciplinary<br />

research collaboration.<br />

The existence of the PRU creates new opportunities for the<br />

exploration of innovative research methods and tools and for mentorship<br />

during the formative phases of research development.<br />

The PRU will promote research that is not typically<br />

undertaken by its partner hospitals, nor funded by major<br />

research foundations, yet critically important to advancing<br />

childhood cancer control. This could include:<br />

■ examination of the incidence and trends in childhood cancer<br />

for the purposes of tracking and forecasting cancer in<br />

children<br />

■ evaluation of programs and models of care delivery<br />

■<br />

■<br />

health-economic investigations<br />

health-related quality of life research<br />

POGO is uniquely able to carry out its selected areas of<br />

research because of the breadth of disciplines it encompasses, its<br />

access to an entire population, and its unique database, POGO-<br />

NIS (Pediatric Oncology Group of Ontario Networked Information<br />

System). It is imperative that the PRU capitalize on the momentum<br />

achieved during the first, low-budget years of existence, and that<br />

its significant potential to contribute to the advancement of pediatric<br />

cancer care and control is fully realized.<br />

Some of the studies to date and their implications are<br />

described below:<br />

A Projection of the Future Demand for Pediatric Cancer<br />

Services and a Determination of the Staffing Funding<br />

Required—POGO researchers analyzed patterns and trends in<br />

cancer incidence among children, and determined the number<br />

of adolescents with cancer cared for outside the pediatric<br />

oncology network, in order to anticipate and ready the system<br />

for the future demand for services. Staffing, funding and health<br />

policy implications were presented to the Ontario Ministry of<br />

Health & Long-Term Care. As a result, funding for teams of multidisciplinary<br />

staff has flowed from government to all the POGO<br />

hospitals across Ontario, in accordance with staff-to-patient<br />

ratios determined by POGO.<br />

An Exploration of the Risk Factors for Childhood<br />

Cancer—A number of studies were undertaken to investigate<br />

the relationship between environmental exposure and the child’s<br />

genetic ability to permit or obstruct the development of childhood<br />

malignancies. These studies addressed the development of<br />

Brain Tumours, Osteosarcoma (one of the most common<br />

tumours of adolescence), malignant Germ Cell Tumours (a poorly<br />

understood category of malignancy), and Neuroblastoma. The<br />

latter study investigates the relationship of Neuroblastoma to<br />

dietary supplementation.<br />

DR. GREENBERG APPOINTED<br />

OFFICER OF ORDER OF CANADA<br />

POGO is proud to announce that Dr. Mark Greenberg was<br />

appointed an Officer of the Order of Canada in recognition of<br />

his work to reduce the trauma of childhood cancer on patients<br />

and their families. As former Chief of Oncology at Toronto's<br />

Hospital for Sick Children and with POGO, he initiated a system<br />

of care that addresses both the medical and psychosocial needs<br />

of patients. Equally involved with international cancer organizations<br />

as with grassroots projects, he is beloved by patients and<br />

respected by students and colleagues as a man of immense<br />

compassion and humanity.<br />

An Investigation of the Pediatric Oncology Nursing<br />

Workforce—POGO nurse researchers surveyed their ranks to<br />

determine the current education levels, experience and age distribution<br />

of childhood cancer nurses, as well as the proportions<br />

of their time spent in care, research, teaching and administration.<br />

This investigation enabled POGO to anticipate shortages and<br />

educational needs, and to develop strategies designed to prevent<br />

nursing shortages experienced in other jurisdictions.<br />

A Series of Studies Probing Quality of Life of Survivors —<br />

Six quality of life studies are underway, investigating the relation-<br />

POGO: An update 9


ship of disease and treatment to the health and psychosocial outcomes<br />

of survivors. These studies will lead to an increased understanding<br />

of the late effects of childhood cancer and its treatment.<br />

They will permit researchers and clinicians to re-evaluate current<br />

treatment approaches and to identify interventions with the<br />

potential to moderate the impact of factors found to impair later<br />

quality of survival.<br />

Future plans for childhood cancer research to be undertaken<br />

by the PRU include:<br />

■ further study of risk factors for childhood cancer;<br />

■ continued pursuit of the most effective ways to deliver care<br />

and to ensure access to care;<br />

■ further development of the culture of collaboration and<br />

research partnerships.<br />

■<br />

■<br />

■<br />

In order to fulfill its mission, the PRU will also focus on:<br />

securing requisite financial and human resources and essential<br />

infrastructure;<br />

further development of the capacity of the POGO<br />

Networked Information System (POGONIS) to support<br />

research;<br />

the full integration of the POGO Chair in Childhood Cancer<br />

Control and the Chair’s research agenda.<br />

POGO FAMILY FUN DAY<br />

Over 150 families attended the 2002 POGO Family Fun Day at<br />

Camp Green Acres this spring. The various POGO fundraising<br />

events have successfully raised money and awareness of childhood<br />

cancer and POGO's work.<br />

DATA DEVELOPMENT<br />

POGO has built and maintains a database and registry of childhood<br />

cancer called POGONIS (Pediatric Oncology Group of<br />

Ontario Networked Information System). The purpose of POGO-<br />

NIS is to monitor the incidence and prevalence of cancer in childhood,<br />

the demand for care, and the long-term effects of malignancy<br />

in childhood and its treatment. This database is a dynamic,<br />

unique, and state-of-the-art repository of information on all<br />

children with malignant disease treated in POGO centres. It is<br />

essential for planning new programs and ensuring that decisions<br />

about where to locate these are informed. The comprehensive<br />

nature of the POGO database has led to:<br />

■<br />

■<br />

■<br />

■<br />

reliable information on the incidence of childhood cancer in<br />

the province;<br />

accurate projections of the number of children to be treated<br />

in future decades;<br />

forecasting the number of staff needed in relation to the<br />

number of patients/ families who will need care;<br />

a clear understanding of where the children live, in relation<br />

to where they are treated.<br />

POGONIS has generated a great deal of interest. Requests<br />

for data are typically received from speakers, researchers, policy<br />

makers and service planners across Ontario and Canada. The<br />

discussions between these applicants and knowledgeable<br />

POGO database staff, often lead to more sophisticated research<br />

questions, exploration of additional implications for pediatric<br />

oncology, and thus greater potential for both knowledge and<br />

the application of that knowledge.<br />

The database was the brainchild of Dr. Mark Greenberg,<br />

now the Medical Director and POGO Chair in Childhood Cancer<br />

Control. The idea was embraced by pediatric oncology programs<br />

which grasped immediately the contribution they could<br />

make to the field by contributing anonymous data on every child<br />

treated. Their commitment to this endeavor has never faltered.<br />

Funding from Ontario’s Ministry of Health and Long-Term Care,<br />

which began in FY 1992-93, permitted the POGO network to<br />

acquire paid data management staff, and enabled the conversion<br />

of the POGO database from a manual to a networked, electronic<br />

information system, greatly increasing its accessibility and<br />

utility for POGO programs and researchers.<br />

POGONIS, coupled with the knowledge capital represented<br />

within POGO's Board and standing committees, is the cornerstone<br />

of POGO’s ability to provide expert advice and planning for<br />

the province.<br />

10 POGO: An update


A MESSAGE FROM<br />

DR. MARK GREENBERG<br />

POGO CHAIR IN CHILDHOOD CANCER CONTROL & MEDICAL DIRECTOR<br />

The POGO Chair in Childhood Cancer Control and the position<br />

of Medical Director of POGO were created as complementary<br />

roles to achieve integration between education and<br />

research into childhood cancer control and the practical<br />

delivery of childhood cancer care across the province of<br />

Ontario in order to enhance care and survival of children<br />

with cancer. The combined mandate of these roles is to develop<br />

evidence-based policies, guidelines and programs for delivering<br />

care to children with cancer—work that encompasses treatment<br />

and cure as well as quality of life and family well-being.<br />

Important responsibilities of the Chair include:<br />

■ developing practice guidelines with the institutions and professionals<br />

who care for children with cancer;<br />

■ working with government to develop new programs;<br />

■ advising on the allocation of scarce health care resources<br />

across the province;<br />

■ facilitating new research programs;<br />

■ consulting on programs to assist families to emerge from the<br />

rigors of treatment as intact as is possible; and<br />

■ enabling survivors to live as normal and productive lives as<br />

is possible.<br />

Much of this is achieved by the creation of programs that<br />

help children with cancer all over the province through diagnosis,<br />

treatment, survival, and even the end of life. My work is a collaboration<br />

with experts in areas such as biological sciences, epidemiology,<br />

health economics and health policy, and includes regular<br />

consultation with patients, survivors, and their families.<br />

Increasingly, I am called upon to share POGO prototypes and programs<br />

with other jurisdictions across Canada and internationally.<br />

The establishment of the POGO Chair in Childhood Cancer<br />

Control has enabled POGO to focus on several important initiatives<br />

to date. These include:<br />

■ The design, development and updating of guidelines for<br />

care in a network of community satellite care centres (the<br />

Provincial Pediatric Oncology Satellite Program, or PPOSP),<br />

designed by POGO, which enable children to receive certain<br />

aspects of their care closer to home. These programs<br />

minimize the disruption lengthy cancer treatment can cause<br />

on the lives of the children and their families. An evaluation<br />

of the effectiveness of this system will be undertaken.<br />

■<br />

■<br />

■<br />

■<br />

The realization of the POGO Research Unit (PRU). This unit<br />

will enhance clinical care, research, and policy development,<br />

which will translate into better care and better outcomes<br />

for the children. Some research is already underway<br />

and the PRU is expected to be fully functioning as soon as<br />

funding is secure.<br />

The development of guidelines and a province-wide system<br />

for the care of survivors of childhood cancer, a significant<br />

proportion of whom have serious long-term complications<br />

after cure. This network of clinics is referred to as AfterCare<br />

Clinics. A research base is built into this care network.<br />

The development of guidelines for the preservation of fertility<br />

of children undergoing potentially sterilizing therapy is<br />

underway.<br />

Advancement of POGONIS, the Pediatric Oncology Group<br />

of Ontario Networked Information System. POGONIS is a<br />

POGO: An update 11


unique population-focused database created to track care and outcomes<br />

of survivors of childhood cancer, evaluate service delivery, and<br />

enable research on the population of patients and survivors. Using<br />

POGONIS, several studies are underway, in which I participate.<br />

These include:<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

■<br />

an evaluation of the impact of incremental funding for childhood<br />

cancer care delivery, secured by POGO, to assess adequacy and timeliness<br />

of care delivered to childhood cancer patients;<br />

a study evaluating the out-of-pocket costs to families of children with<br />

cancer, to fully assess their needs, and aid in the administration and<br />

development of a Family Assistance Program;<br />

studies predicting trends in incidences of childhood cancer, which<br />

will influence planning and resource allocation for Ontario;<br />

an investigation into the impact of changes in diet on the incidence<br />

of childhood cancer;<br />

a study of quality of life of children and families in acute care hospitals;<br />

a study of the determinants of outcomes in childhood medulloblastoma,<br />

a childhood brain tumor. This can uniquely be done in Ontario<br />

because of the population-based data that are available;<br />

a population-based study of the quality of life of survivors of<br />

Childhood and Adolescent Hodgkin’s Disease.<br />

The cancer care community is committed to education which<br />

remains a top priority for POGO and the POGO Chair in Childhood Cancer<br />

Control. I was pleased to convene and co-ordinate continuing education<br />

endeavours, including the POGO Multidisciplinary Symposium in 2001,<br />

"Beyond Cure: Care and Consequences", which focused on survivorship in<br />

childhood cancer, and the 2002 Symposium on <strong>“</strong>Care at the End of Life<strong>”</strong>.<br />

In addition, continuing education programs have been created and delivered<br />

for satellite and community caregivers to better allow devolved care in<br />

the community.<br />

As inaugural Chair holder, I am proud to collaborate with Ontario’s<br />

leaders in childhood cancer control to enhance the care of those afflicted<br />

with childhood cancer. Together, our vision is to provide cutting<br />

edge care, enhance systems that provide that care and ensure precious<br />

resources are used effectively. We are committed to working<br />

with other institutions to advance care, research, education and<br />

knowledge transfer in Ontario, Canada and across the globe.<br />

Thank you for supporting the POGO Chair in Childhood Cancer<br />

Control and recognizing the importance of research and education to the<br />

children we all hold so dear.<br />

Dr. Mark Greenberg<br />

POGO Chair in Childhood Cancer Control<br />

Medical Director<br />

<strong>“</strong><br />

The Chair should make a powerful<br />

difference to the cause of children with<br />

cancer. People will know we’re not here for a<br />

year or three years or five years; people will<br />

know that we’re here for the long, long haul<br />

and this Chair will be the centrepiece of the<br />

<strong>”</strong><br />

POGO effort.<br />

— J. Robert S. Prichard,<br />

Former President,<br />

University of Toronto<br />

12 POGO: An update


A MESSAGE FROM POGO’S<br />

FUNDRAISING COMMITTEE CHAIR<br />

As the Chair of the POGO<br />

Fundraising Committee, it is my pleasure<br />

to report on our fundraising activities.At<br />

the end of 1999, we established the<br />

POGO Chair in Childhood Cancer<br />

Control. As of September, 2002, nearly $3<br />

million has been raised (see report from<br />

the University of Toronto on page 14) in<br />

the Chair endowment fund. This has<br />

been made possible through the generosity<br />

of hundreds of individuals and corporations<br />

who have made donations and<br />

sponsored and attended our fundraising<br />

events. In addition, sponsorship dollars<br />

have subsidized the expenses of the<br />

annual POGO Symposia on Childhood<br />

Cancer which provide valuable continuing<br />

education to pediatric oncology professionals. On behalf<br />

of POGO and the children we serve, I extend my sincerest<br />

thanks to all our supporters. It is heartwarming to witness how<br />

many of you have opened your hearts to such an important<br />

cause.<br />

On behalf of POGO, I would like to congratulate my<br />

daughter and partner in POGO Fundraising, Vanessa Melman<br />

Yakobson, her colleague Judy Kopelow, her friend Carolyn<br />

Ansley, and the volunteers of the POGO Fundraising<br />

Committee for the tremendous success of POGO fundraising<br />

events. The 1st Annual Gala at Casa Loma, the "Spy Casino",<br />

hosted over 500 people for an evening of food, dancing and<br />

casino games, all in support of the POGO Chair. The Camp<br />

Green Acres Family Fun Day for POGO brought out over 150<br />

families for a day of fun and games. In addition to raising<br />

approximately $200,000 for the Chair to date, our various<br />

events have also resulted in important publicity and media coverage<br />

for POGO and our cause.<br />

POGO has benefited from tremendous community support<br />

in 2002, with Cedarvale School, Forest Hill Public School,<br />

the Rocket to Freedom Party, and Golf Town’s Golf Tournament<br />

all organizing events to benefit POGO. Funds raised from these<br />

events will be included in the 2002/2003 report.<br />

I am pleased to report that as of Fall, 2002, the Canada<br />

Customs and Revenue Agency is reviewing our application to<br />

endow charitable status upon the POGO Childhood Cancer<br />

Foundation. Upon receipt of a charitable registration number,<br />

the Foundation will facilitate fundraising<br />

efforts and provide an important source<br />

of additional revenue for POGO. This revenue<br />

will enable POGO to expand the<br />

scope of work it currently does, and help<br />

it to fulfill its mission. Vanessa Melman<br />

Yakobson and Judy Kopelow, currently<br />

acting as POGO’s Development Officers,<br />

will move over to the Foundation, ensuring<br />

a continued efficient and dynamic<br />

relationship with all POGO’s supporters. I<br />

will also play a key role in Foundation<br />

activities and, in that capacity, will call<br />

upon the continued generosity and<br />

determination of our supporters to<br />

ensure excellence in research, education<br />

and front line patient care.<br />

Please accept my heartfelt gratitude for your generous<br />

support of POGO. Thanks to you, children with cancer in<br />

Ontario will get the best chance possible to survive and thrive.<br />

Anthony Melman<br />

Fundraising Committee Chair<br />

POGO: An update 13


UNIVERSITY OF TORONTO<br />

POGO CHAIR IN CHILDHOOD<br />

CANCER CONTROL<br />

(Established at December 7, 1999)<br />

Statement of Endowment Fund<br />

For the Year Ended April 30, 2002 (with comparative figures for the year ended April 30, 2001)<br />

2001-02 2000-01<br />

Book value of endowment<br />

Balance, beginning of the year<br />

Donations (additions)<br />

University matching<br />

Gain on sale of donated shares<br />

Balance, end of the year<br />

$ $<br />

2,215,403.49 1,618,733.15<br />

526,031.36 569,721.59<br />

447.00 25,625.00<br />

— 1,323.75<br />

2,741,881.85 2,215,403.49<br />

Market value of endowment<br />

2,482,992.92 2,084,802.00<br />

FACTS ABOUT CHILDHOOD CANCER<br />

■<br />

Cancer is the leading disease-related<br />

cause of death in Ontario children.<br />

About 100 Ontario children succumb<br />

to cancer every year.<br />

■<br />

Survivorship in the pediatric population<br />

has improved across all diagnoses<br />

during the past 20 years. It is now 75<br />

percent.<br />

■<br />

By the year 2010, it is estimated that<br />

one in 250–400 young adults (aged<br />

15 to 45) will be a survivor of childhood<br />

cancer.<br />

■<br />

Between 1987 and 2000, pediatric<br />

cancer cases have risen 16 percent,<br />

due to the growth in Ontario’s population,<br />

and an absolute increase in the<br />

incidence of certain cancer types.<br />

■<br />

Treatment of childhood cancers are<br />

typically intense, causing severe illness<br />

and complications, and in some cases<br />

resulting in long-term medical consequences.<br />

■<br />

The psychological and social impact<br />

of childhood cancer can be significant.<br />

It may include problems of coping<br />

and adjustment of patient, siblings<br />

and parents, lapsed school<br />

achievement, learning deficits, and<br />

financial distress of the family.<br />

14 POGO: An update


THANK YOU TO ALL OUR SUPPORTERS SINCE 2000!<br />

1015284 Ontario Inc<br />

1100305 Ontario Inc.<br />

1194516 Ontario Inc<br />

1194516 Ontario Inc<br />

677345 Ontario Limited<br />

Bregman Ventures<br />

Agnico-Eagle Mines<br />

Limited<br />

Alan Newton Real Estate<br />

Ltd<br />

Amadeus Capital<br />

Corporation<br />

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Company<br />

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LLP<br />

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(Canada)<br />

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Dr. Sharon Mintz<br />

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Dynamic Fund<br />

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Pogo Events<br />

Global Television<br />

Network Inc<br />

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Inc<br />

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Harrowston Incorporated<br />

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Inc<br />

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Ltd<br />

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Ipros Corp<br />

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J S Robinson<br />

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Lego Canada Inc<br />

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Inc<br />

McKinsey & Company<br />

Incorporated<br />

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Michael Miloff and<br />

Associates<br />

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Inc<br />

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Ltd<br />

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Mr. A Gerold Goldlist<br />

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Mr. Alexander<br />

Mishchenko<br />

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Mr. Allan Young<br />

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Mr. Anthony Munk<br />

Mr. Anthony Puppi<br />

Mr. Anthony R Melman<br />

Mr. Antonio Costa<br />

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Mr. B Borenstein<br />

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Mr. Ben Urovitz<br />

Mr. Benny Hollander<br />

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Mr. Bliss A. White<br />

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Mr. Bryan Rakusin<br />

Mr. Calvin S Goldman<br />

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Mr. Colum McKinley<br />

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Mr. Earl Rotman<br />

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Mr. Ewout Heersink<br />

Mr. F. Banks<br />

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Mr. Gerry W Schwartz &<br />

Ms. Heather Reisman<br />

Mr. Glen Oliver<br />

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Mr. Gordon Kroft<br />

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Mr. Jeffrey N Schwartz<br />

Mr. Jeremy Alter


THANK YOU TO ALL OUR SUPPORTERS SINCE 2000!<br />

Mr. Jeremy Freedman<br />

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Mr. Sean Gilbert<br />

Mr. Seth M Mersky<br />

Mr. Seth Weinstein<br />

Mr. Seymour Haber<br />

Mr. Seymour Rosenblatt<br />

Mr. Shawn D. Porter<br />

Mr. Shawn Richmor<br />

Mr. Sheldon Parks<br />

Mr. Sidney Zigah<br />

Mr. Simmy Mayer<br />

Mr. Stan Raphael<br />

Mr. Stan Segal<br />

Mr. Stan Zukerman<br />

Mr. Stanley H Feldman<br />

Mr. Stanley M Goldstein<br />

Mr. Stephen Codas<br />

Mr. Stephen Florence<br />

Mr. Stephen Karr<br />

Mr. Stephen Pincus<br />

Mr. Steve Katz<br />

Mr. Steve Posen<br />

Mr. Steve Till<br />

Mr. Steven Halperin<br />

Mr. Steven Israel<br />

Mr. Steven L Winokur<br />

Mr. Steven Marks<br />

Mr. Steven Spears<br />

Mr. Terrence G Hibbert<br />

Mr. Thomas O Harbison<br />

Mr. Thomas P Dea<br />

Mr. Thomas Rusnov<br />

Mr. Tim Webster<br />

Mr. Timothy A<br />

Duncanson<br />

Mr. Timothy P Stinson<br />

Mr. Tom Silverman<br />

Mr. Victor Paul<br />

Mr. Vincent Mercier<br />

Mr. W. Stajer<br />

Mr. William H Strong<br />

Mr. William Michael<br />

Ainley<br />

Mr. William P Molson<br />

Mr. Y J Mirza<br />

Mrs. Al Yuffa<br />

Mrs. Ali Taradash<br />

Mrs. Barbara Axel<br />

Mrs. Batia Gortler<br />

Mrs. Bella Rabinowicz<br />

Mrs. Bruna Di Monte<br />

Mrs. Carol Kaplan<br />

Mrs. Carolyn Abugov<br />

Mrs. Carrie Gelkopf<br />

Mrs. Cheryl D Harris<br />

Mrs. Deborah A Rocket<br />

Mrs. Diane Hollander<br />

Mrs. Donna Goldman<br />

Mrs. Doreen B Rakusin<br />

Mrs. Doreen Zucker<br />

Mrs. Eleanor Barlin-<br />

Daniels<br />

Mrs. Ellise G Gasner<br />

Mrs. Evette Seroda<br />

Mrs. Evie Shulman<br />

Mrs. Freda Yermus<br />

Mrs. Frieda Torkin<br />

Mrs. Gail Fenwick<br />

Mrs. Helen A. Craig<br />

Mrs. Helen Litman<br />

Mrs. Irma Robinson<br />

Mrs. Jennifer Rowsell<br />

Mrs. Joan M Schatz<br />

Mrs. Justine E Fernie<br />

Mrs. Karen Bookman<br />

Mrs. Kathryn Grossman<br />

Mrs. Larisa Yakobson<br />

Mrs. Laura Steinhauer<br />

Mrs. Leah Duckman<br />

Mrs. Lee Kraemer<br />

Mrs. Lili A Davis-Burchat<br />

Mrs. Lilia Kharlip<br />

Mrs. Lillian Winton<br />

Mrs. Linda Judelman<br />

Mrs. Lori Goldenberg<br />

Mrs. Louise Glicksman<br />

Mrs. Lynne Morrison<br />

Mrs. Margot Zukerman<br />

Mrs. Marjorie MacKinnon<br />

Mrs. Merill L Kichler<br />

Mrs. Mindy Tayar<br />

Mrs. O Margaret Colman<br />

Mrs. Phyllis Clarfield<br />

Mrs. Phyllis R Brodkin<br />

Mrs. Robyn Greenspan<br />

Mrs. Roslyn Roth<br />

Mrs. Ruth Levine<br />

Mrs. Ruth Trinier<br />

Mrs. S Sugar<br />

Mrs. Sandi Cracower<br />

Mrs. Sandra Ossip<br />

Taradash<br />

Mrs. Sherry Zweig<br />

Mrs. Shirley Rosenberg<br />

Mrs. Stacy Rosenberg<br />

Mrs. Susan Gortler<br />

Mrs. Susan Wineberg<br />

Mrs. Sylvia Bermack<br />

Mrs. Tamara Dawn Finch<br />

Mrs. Tobie Bekhor<br />

Mrs. Valerie Melman<br />

Mrs. Vivien Cohen<br />

Mrs. Vivien T Sharon<br />

Mrs. Yona Barzilay<br />

Ms. Adele Freeman<br />

Ms. Airinda Neto<br />

Ms. Alexandra Halpert<br />

Ms. Alison Green<br />

Ms. Allison Whiteman<br />

Ms. Alka Dhir<br />

Ms. Amie Rocket<br />

Ms. Amy Au<br />

Ms. Amy Greenberg<br />

Ms. Andrea Hirshberg<br />

Ms. Andreana Rust<br />

Ms. Angela Trope<br />

Ms. Anna Di Manno<br />

Ms. Anne Marie DiManno<br />

Ms. Annette Blum<br />

Ms. Asta K. M. Dvorak<br />

Ms. Audrey Ronoff<br />

Ms. Aviva Grinberg<br />

Ms. Barbara Gomperts<br />

Ms. Becky Eisen<br />

Rosenberg<br />

Ms. Bella Slimukoff<br />

Ms. Bernice Litman<br />

Ms. Bernice Penciner<br />

Ms. Bernice Stern<br />

Ms. Betty Lowenstein<br />

Ms. Bianca Israeli<br />

Ms. Bonnie Chandler<br />

Ms. Carla J Nicolson<br />

Ms. Carol J Watt<br />

Ms. Carole J Munro<br />

Ms. Carolyn F Watson<br />

Ms. Carolyn Feldman<br />

Ms. Carolyne L Gosling<br />

Ms. Caryl Baker<br />

Ms. Catherina Mackowski<br />

Ms. Catharine Fennell<br />

Ms. Cathy Kaufman<br />

Ms. Cindy Turk<br />

Ms. Connie Kussner<br />

Ms. Cynthia R<br />

Cooperstone<br />

Ms. Dale Plyley<br />

Ms. Debby Turk<br />

Ms. Deborah M<br />

Bloomberg<br />

Ms. Deborah Smith-<br />

Webber<br />

Ms. Debra Reiskind<br />

Ms.Deganit Levy<br />

Ms. Denise Brudner-<br />

Weingarten<br />

Ms. Diana Dante<br />

Ms. Diana Jordan<br />

Ms. Diane Fennell<br />

Ms. Dorothy Wuls<br />

Ms. Elaine Kunda<br />

Ms. Elania Kirsh<br />

Ms. Eleanor McGrath<br />

Ms. Eleonor Hendershot<br />

Ms. Elizabeth L Delbianco<br />

Ms. Elizabeth Vespasiami<br />

Ms. Elizabeth Wolfstadt<br />

Ms. Ellen P Cosman<br />

Ms. Erin Baker<br />

Ms. Erin J Lemon<br />

Ms. Estelle Feld<br />

Ms. Esther Cheskes<br />

Ms. Esther Green<br />

Ms. Eva Nightingale<br />

Ms. Ewa Yousufzai<br />

Ms. Faith Halman<br />

Ms. Felicia Jacobs<br />

Ms. Fiona Buchan<br />

Ms. Francy Kussner<br />

Ms. Frieda Iscove<br />

Ms. Gail Zalev<br />

Ms. Geri Winemaker<br />

Ms. Gila Ossip<br />

Ms. Gina Arezza<br />

Ms. Gina M Caldarelli<br />

Ms. Glynis A. Henry<br />

Ms. Goldie Litwin<br />

Ms. Grace Lok<br />

Ms. Haley D Field<br />

Ms. Hanna Shlesinger<br />

Ms. Heidi Miller<br />

Ms. Helen Lepek<br />

Ms. Helen Schwartz<br />

Ms. Helen Tannenbaum<br />

Ms. Helena Blum<br />

Ms. Ida Dick<br />

Ms. Indiana Pirau<br />

Ms. Inga Birfer<br />

16 POGO: An update


THANK YOU TO ALL OUR SUPPORTERS SINCE 2000!<br />

Ms. Irene Clarfield<br />

Ms. Isabel Herling<br />

Ms. Isabelle Edgecumbe<br />

Ms. Jaimie Grossman<br />

Ms. Jane Clifford<br />

Ms. Jane Herman<br />

Ms. Janice Brooks<br />

Ms. Janice Feldberg<br />

Ms. Janice Nathanson<br />

Ms. Jennifer Ansley<br />

Ms. Jennifer Badame<br />

Ms. Jennifer E Sipos<br />

Ms. Jennifer Gales<br />

Ms. Jennifer Koffman<br />

Ms. Jennifer Kominek<br />

Ms. Jennifer Lynn Steckel<br />

Ms. Jill Farber<br />

Ms. Jill Flicht<br />

Ms. Joan Pace<br />

Ms. Joan Rosenthal<br />

Ms. Joanne Richmond<br />

Ms. Jodi C Tanenbaum<br />

Ms. Joni Goldlust<br />

Ms. Judy Greenwald<br />

Ms. Judy Wolfe<br />

Ms. Julie A Feldman<br />

Ms. Julie Purkis<br />

Ms. Julie Sindalovsky<br />

Ms. Justine Melman<br />

Ms. Karen A Foley<br />

Ms. Karen Gough<br />

Ms. Katherine Richards<br />

Ms. Kathryn From<br />

Ms. Katy Waugh<br />

Ms. Kelly L. Toms<br />

Ms. Kelly Smith<br />

Ms. Kerry Jameson<br />

Ms. Kerry Smith Sacks<br />

Ms. Kim Alexander<br />

Ms. Kim Carmichael<br />

Ms. Laura Sousa<br />

Ms. Lee B Vernich<br />

Ms. Leslie M Haber<br />

Ms. Lila Satok<br />

Ms. Lily Stoll<br />

Ms. Lina Correi<br />

Ms. Linda Katz<br />

Ms. Linda M Westlund<br />

Ms. Lindsay Jones<br />

Ms. Lisa A Berkovitz<br />

Ms. Lisa Hock<br />

Ms. Lissie Sanders<br />

Ms. Liza Mauer<br />

Ms. Lora Spektor<br />

Ms. Lorelei R Wilkinson<br />

Ms. Loretta Brown<br />

Ms. Lori Anne Alter<br />

Ms. Lori Rosenthal<br />

Ms. Lorie S Ayukawa<br />

Ms. Louisa Hostick<br />

Ms. Louise Dimonte<br />

Ms. Lucy Steinfeld<br />

Ms. Margaret Porter<br />

Ms. Maria Maglietta<br />

Ms. Marilyn Firestone<br />

Ms. Marilyn Gilbert<br />

Ms. Marilyn Taitz<br />

Ms. Marissa Sari Rubinoff<br />

Ms. Marni Lokash<br />

Ms. Marnie Toben<br />

Ms. Marsha Goldstein<br />

Ms. Martha Sud<br />

Ms. Mary Anne Loftus<br />

Ms. Mehre Zuckerman<br />

Ms. Melissa Grossman<br />

Ms. Melissa Muskat<br />

Ms. Micheline Kleiner<br />

Ms. Michelle Abbot<br />

Ms. Missy Maister<br />

Ms. Molly Epstein<br />

Ms. Nadine Tytel<br />

Ms. Nancy Hamilton<br />

Ms. Nancy Kalifer<br />

Ms. Nicole Galimsky<br />

Ms. Norma Baram<br />

Ms. Paula B. Klein<br />

Ms. Paula Birnbaum<br />

Ms. Paula S. Feig<br />

Ms. Paula T Trussman<br />

Ms. Pearl Kronis<br />

Ms. Rachel Egan<br />

Ms. Rachel Fisher<br />

Ms. Rachel Michelle<br />

Braun<br />

Ms. Raissa Shestatsky<br />

Ms. Rebecca Greenberg<br />

Ms. Rena Goldstein<br />

Ms. Rhonda Silverstone<br />

Ms. Riwaz Sepiashvili<br />

Ms. Rochelle Ironstone<br />

Ms. Ronda Green<br />

Ms. Rosalie Naster<br />

Ms. Rosalyn Leese<br />

Ms. Rosanna Beth<br />

Breitman<br />

Ms. Rose Simone<br />

Ms. Rose Straitman<br />

Ms. Rosie Tizzoli<br />

AMGEN<br />

ANDERSEN<br />

Ashford Cleaners<br />

Asta Medica<br />

Auto Control Medical<br />

Baxter<br />

Benjamin's Funeral Home<br />

Borden Ladner Gervais<br />

Boston Scientific<br />

Canadian Cancer Society<br />

CGI<br />

Chestnut Park Realty<br />

Childcan<br />

Cimram<br />

City of Toronto, The Mayor's<br />

Ms. Roslyn Goldmintz<br />

Ms. Rowena Zamora<br />

Ms. Ruth Carbell<br />

Ms. Ruth Greiver<br />

Ms. Sacha S Hayward<br />

Ms. Sally Abrams<br />

Ms. Sandra Brown<br />

Ms. Sankey A. Johnson<br />

Ms. Sara Ehrlich<br />

Ms. Sarah Ryerson<br />

Ms. Sarah A Scott<br />

Ms. Seanna Millar<br />

Ms. Shannon Moore<br />

Ms. Shannon Weir<br />

Ms. Sharon Krikst<br />

Ms. Shawna Page<br />

Ms. Sheldon Barris<br />

Ms. Sheldon Freeman<br />

Ms. Shelly Zimmer<br />

Ms. Sherri Cygelfarb<br />

Ms. Sheryl Berg<br />

Ms. Shirley Korenblum<br />

Ms. Simone Bronfman<br />

Ms. Sophie Zukerman<br />

Ms. Stacey Low<br />

Ms. Stacey Mendelson<br />

Ms. Sue Ferri<br />

Ms. Susan Austin<br />

Ms. Susan E Grace<br />

Ms. Susan Eidelman<br />

Ms. Susan Freedman<br />

Ms. Susan Kendall<br />

Ms. Susan Speigel<br />

Ms. Susan Strong<br />

Ms. Tammy Herzog<br />

Ms. Tanya Giorgio<br />

Ms. Tara Burns<br />

Ms. Terry Grachnik<br />

Ms. Theresa W Mersky<br />

Ms. Tina Brooks<br />

Ms. Tracy Posner<br />

Ms. Vanessa Yakobson<br />

Ms. Victoria Hand<br />

Ms. Wendy Himmel<br />

Ms. Yolanda Fernandez<br />

Ms. Zehavit Markovzki<br />

Ms. Zira Shmorgun<br />

Murphy's Food Sales &<br />

Marketing<br />

Naresh Tejpal<br />

Office<br />

Cover-All<br />

Dominion<br />

EMI Music Canada<br />

Famous Players<br />

Fasken Martineau<br />

Karen Foley<br />

Glaxo Smith Kline<br />

Goodmans<br />

Heathbrige Graham Inc.<br />

Kalles Real Estate<br />

Kiddie Proofers<br />

Knight Bain Seath &<br />

Holbrook<br />

Lego<br />

National Bank Financial<br />

Inc<br />

Nestle Canada<br />

Incorporated<br />

Nestle Nutrition<br />

New Paradigm Learning<br />

Corporation<br />

Newcrest Capital Inc<br />

Old Dutch Food Ltd<br />

Onex Corporation<br />

P & O Global Investment<br />

Inc<br />

Pat Roy<br />

Pediatric Oncology<br />

Group of Ontario<br />

staff<br />

Pilot Insurance Co Inc<br />

PKW Communications<br />

Ltd<br />

Quadrant Marketing Ltd<br />

R E Lax<br />

RBC Capital Markets<br />

Reliance Aerotech<br />

Canada Inc<br />

Rio Can Financial<br />

Services<br />

Rite-Chrome Furniture<br />

Manufacturing<br />

Company Limited<br />

Rocket to Freedom<br />

Charitable Fund<br />

Roots Canada<br />

Royop Properties<br />

Corporation<br />

Rozon Insurance Brokers<br />

Sari Goldberg<br />

Shainey Silver<br />

Shoppers Drug Mart<br />

Shore, Newman & Rose<br />

LLP<br />

Livewire Digital Imaging Inc.<br />

McCarthy Tetrault<br />

Minute Maid<br />

Nestle Canada<br />

Nestle Nutrition<br />

New Balance<br />

Nuline Realty<br />

Old Dutch<br />

Pharmacia<br />

Pilot Insurance Company<br />

Pricewaterhouse Coopers<br />

RBC Royal Bank<br />

Rexall<br />

RH Carter Architects Inc.<br />

Sandylion Stickers<br />

Succession Capital<br />

Corporation<br />

Summit View Homes Ltd<br />

Sun Life Assurance Co of<br />

Canada<br />

TD Bank Financial Group<br />

TD Securities<br />

The Backroom - Designer<br />

Imports Inc<br />

The D H Gales Family<br />

Charitable<br />

Foundation of<br />

Toronto<br />

The Fred A Litwin Family<br />

Foundation<br />

The Howard and Carole<br />

Tanenbaum Family<br />

Charitable<br />

Foundation<br />

The Ira Gluskin & Maxine<br />

Granovsky Charitable<br />

Foundation<br />

The Minute Maid<br />

Company Canada Inc<br />

The Ripplewood<br />

Foundation Inc<br />

Thompson Lightstone &<br />

Co Ltd<br />

Tiffany & Co<br />

Toronto Blue Jays<br />

Baseball Club<br />

Toronto Professional Fire<br />

Fighter's Association<br />

Toronto Stock Exchange<br />

Inc.<br />

Torstar Corporation<br />

Torys LLP<br />

Universal Music<br />

V Squared Sales Inc<br />

Voula Tascone<br />

Wierzbniker Friendly<br />

Mutual Benefit<br />

Wierzbniter Ladie's<br />

Auxiliary<br />

WTF Group<br />

Wycliffe Management<br />

Services<br />

Yo Inc<br />

POGO EVENT SPONSORS & IN-KIND DONATIONS<br />

Scotia Capital<br />

Scotia Mcleod<br />

Secured Courier<br />

Shoppers Drugmart<br />

Tammy Letner Centre<br />

TD Commercial Banking<br />

TD Securities<br />

Tetra Pak<br />

The Bay<br />

Thompson Lightstone<br />

Trillium Childhood Cancer<br />

Support Centre<br />

Unite Communications<br />

Christa Wessel<br />

POGO: An update 17


BOARD OF DIRECTORS<br />

DR. RONALD D. BARR (President)<br />

Chief of Service, Pediatric<br />

Hematology/Oncology<br />

Department of Pediatrics<br />

Children's Hospital, Hamilton Health<br />

Sciences Corporation<br />

DR. MARIANA SILVA (Treasurer)<br />

Head, Division of Pediatric<br />

Hematology/Oncology<br />

Kingston General Hospital<br />

DR. VICTOR S. BLANCHETTE (Secretary)<br />

Chief, Division of<br />

Haematology/Oncology<br />

The Hospital for Sick Children<br />

DR. MARU BARRERA<br />

Child/Health Psychologist<br />

Department of Psychology<br />

The Hospital for Sick Children<br />

DR. BETH CAIRNEY<br />

Pediatric Hematologist/Oncologist<br />

Children's Hospital of Eastern Ontario<br />

MS. MARILYN CASSIDY<br />

Pediatric Interlink Nurse Consultant<br />

Interlink Community Cancer Nurses/<br />

Children's Hospital of Eastern Ontario<br />

MR. WILLIAM FRID<br />

Senior Consultant<br />

Trillium Childhood Cancer Support<br />

Centre<br />

MRS. JANET GAMMON<br />

Nurse Coordinator/Clinical Research<br />

Associate<br />

New Agent & Innovative Therapy<br />

Program, Oncology<br />

The Hospital for Sick Children<br />

DR. MARK L. GREENBERG<br />

Medical Director, Pediatric Oncology<br />

Group of Ontario (POGO)<br />

Senior Pediatric Oncologist, The<br />

Hospital for Sick Children<br />

DR. CORIN GREENBERG<br />

Executive Director<br />

Pediatric Oncology Group of Ontario<br />

(POGO)<br />

DR. JACQUELINE HALTON<br />

Acting Chief, Division of<br />

Hematology/Oncology<br />

Medical Director, Oncology/MDU PSU<br />

Children's Hospital of Eastern Ontario<br />

DR. LAWRENCE JARDINE<br />

Head, Section of Pediatric<br />

Hematology/Oncology<br />

Children's Hospital of Western Ontario<br />

DR. K.H. LUKE<br />

Chief, Hematology/Blood Bank<br />

Division of Lab Medicine<br />

Children's Hospital of Eastern Ontario<br />

STAFF<br />

EXECUTIVE DIRECTOR<br />

Dr. Corin Greenberg<br />

MEDICAL DIRECTOR<br />

Dr. Mark Greenberg<br />

EPIDEMIOLOGIST<br />

Dr. Mohammed Agha<br />

POGO CONFERENCES<br />

Ms. Helen Craig<br />

POGONIS & DATA REQUESTS<br />

Ms. Bruna DiMonte<br />

ADMINISTRATIVE ASSISTANT<br />

Ms. Susan Grace<br />

DEVELOPMENT OFFICER<br />

Ms. Judy Kopelow<br />

DEVELOPMENT OFFICER<br />

Ms. Vanessa Yakobson<br />

CLINICAL PROGRAMS COORDINATOR<br />

Ms. Lesley Collins<br />

POFAP & INTERLINK PROGRAMS<br />

Ms. Vanessa Foran<br />

ADVISORY COUNCIL<br />

MS. JOCELYN LAMONT<br />

Executive Director<br />

Candlelighters Childhood Cancer Trust<br />

of Eastern Ontario and Western<br />

Quebec<br />

Parent of a child with cancer<br />

MRS. SUSAN KUCZYNSKI<br />

Co-Chair<br />

Ontario Parents Advocating for<br />

Childhood Cancer (OPACC)<br />

Parent of a child with cancer<br />

DR. SANDRA NUTTALL<br />

Hospital/Special Projects Consultant<br />

Institutions Branch<br />

Ontario Ministry of Health<br />

MS. NIKKI PARKINSON<br />

Survivor<br />

MRS. SUSAN SMITH<br />

Vice President, Specialty Services<br />

Hamilton Health Sciences Corporation<br />

MS. JILL SPRAWSON<br />

Rebounders Canada<br />

Survivor<br />

DR. IAN WILSON<br />

Pediatrician<br />

POGO Satellite, Grand River Hospital<br />

Kitchener-Waterloo Health Centre<br />

MS. VANESSA YAKOBSON<br />

Survivor<br />

Thank you all for your ongoing commitment and caring.<br />

18 POGO: An update


<strong>“</strong><br />

Congratulations on the next step of your success in<br />

convincing governments to do more in the development of<br />

strategies for pediatric cancer control.<br />

<strong>”</strong>— Bob Rae<br />

Former Premier of Ontario<br />

<strong>“</strong><br />

Through this unique relationship and partnership and our shared<br />

commitment to ensuring that an effective program of childhood cancer<br />

care is developed and maintained in Ontario, the establishment of<br />

the POGO Chair in Childhood Cancer Control is immensely<br />

gratifying. It represents for all of us in this province an unparalleled<br />

opportunity to synchronize the treatment, research and educational<br />

activities across the five tertiary centres and the Universities.<br />

Emphatically, this will result in a strengthened, integrated, more<br />

powerful entity for the care of children with cancer.<br />

<strong>”</strong><br />

— The Honourable Elizabeth Witmer<br />

Former Minister of Health (June 2000)<br />

POGO would like to thank the following<br />

for their contributions to this report:<br />

Printing:<br />

Craig Oldman<br />

Xerox Canada<br />

Graphic Design:<br />

Dave Bourne<br />

Toronto Community News

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