MARCUS - OUR LITTLE SUPERMAN
MARCUS - OUR LITTLE SUPERMAN - HeartKids New South Wales
MARCUS - OUR LITTLE SUPERMAN - HeartKids New South Wales
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14 Issue 1 2013| Bereavement Page<br />
Our beautiful girl, Macie Jane Aspey was<br />
born at Newcastle Private Hospital on 27<br />
February 2009, it wasn’t until she was 3<br />
days old when she went into respiratory<br />
distress that we realised she was a very<br />
sick baby. She was quickly transported<br />
to John Hunter Hospital then flown by<br />
NETS to Children’s Hospital Westmead.<br />
The first few days went by with a blur,<br />
so many doctors and nurses looking<br />
after her and a lot of new terminology<br />
that we’d never heard of. Macie’s<br />
heart was not formed properly, she had<br />
many issues and was diagnosed with<br />
Hypoplastic Left Heart Syndrome. At<br />
just 5 days old our precious little girl had<br />
her first open heart surgery. It was a bit<br />
of a shock for us when we first saw her<br />
after her surgery but we knew she was<br />
in the best care possible and trusted our<br />
baby’s life with the experienced doctors<br />
and nurses at CHW.<br />
Macie didn’t recover well, she had<br />
several complications from her heart<br />
condition and the next few weeks were<br />
full of ups and downs for her including<br />
more surgeries. We were by her side the<br />
whole time and it was heartbreaking to<br />
see her going through these procedures<br />
but she was a brave girl who took all<br />
that was thrown at her.<br />
After 4 weeks in the Intensive Care Unit,<br />
Macie was transferred to Edgar Stephen<br />
Ward where over the next 3 weeks she<br />
Heart Angel Macie<br />
grew a little bit stronger and we learned<br />
how to care for her so we could take her<br />
home. We both learnt how to put in her<br />
feeding tube and feed her through it,<br />
as she wasn’t strong enough to drink a<br />
bottle on her own.<br />
Finally at 7 weeks of age we were able<br />
to bring our princess home. Looking<br />
after Macie was a full time job, keeping<br />
up with her Cardiologist – Dr Steve<br />
Cooper, Paediatrician – Dr Michael<br />
Lonergan, District Nurse – Michael<br />
Lawler as well as weekly visits to CHW<br />
for check ups, but as the parents of this<br />
special girl we wouldn’t have had it any<br />
other way – if it meant she could be at<br />
home with us and her big brother Cale<br />
we would do anything!<br />
Over the 8 weeks Macie was home, we<br />
cherished her as all parents do their<br />
precious babies, she was probably the<br />
Heart Angels<br />
most photographed baby ever! And we<br />
loved to dress her in beautiful clothes.<br />
Cale loved helping with bath time and<br />
her gave her the nick name “Macie<br />
Girl” – this is how she was known to<br />
everyone.<br />
At 15 weeks of age Macie became very<br />
ill and we rushed her to John Hunter<br />
Hospital and again she was flown by<br />
NETS to CHW. She was unable to keep<br />
up the fight and sadly passed away, our<br />
hopes and dreams for her were crushed.<br />
There is no way we can explain how we<br />
felt at that time and even now nearly<br />
4 years later the grief is sometimes so<br />
overwhelming. I don’t think we will ever<br />
stop grieving for our precious little girl<br />
but we continue to live our lives day by<br />
day with hope and love. We have had a<br />
third child, Tanner MJ Aspey – MJ after<br />
his big sister Macie Jane.<br />
We are so proud of our Macie Girl, she<br />
was such a brave baby girl and she is<br />
always in our thoughts and hearts.<br />
We would like to thank HeartKids for<br />
their support during our stay at CHW,<br />
our time at home with our baby girl<br />
and their continuing support since her<br />
passing.<br />
Rob and Laura Aspey<br />
Rob and Laura have kindly allowed<br />
HeartKids to use Macies’ photograph<br />
on our memorial envelopes, a lasting<br />
legacy from such a short life.<br />
New HeartKid Bereavement Service<br />
HeartKids NSW will soon be able to offer financial help for members with Heart Angels by making a number of “gap”<br />
payments for Medicare approved bereavement counselling services (criteria apply). We hope to have this program running<br />
shortly and will advise when it is available.<br />
We wish to pass on our deepest sympathies to:<br />
The Parnell family in loving memory of Theodore Alexander.<br />
The Ryan family in loving memory of Emma Claire.<br />
We are thinking of all families whose loved ones anniversary falls at this time including these Heart Angels......<br />
Jake Collaros<br />
Ayden Peychers<br />
Willow Spring Lewis<br />
Hamish Howard<br />
Clara Manalo<br />
Phillipa Raine<br />
Andrew Bennett