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MARCUS - OUR LITTLE SUPERMAN

MARCUS - OUR LITTLE SUPERMAN - HeartKids New South Wales

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14 Issue 1 2013| Bereavement Page<br />

Our beautiful girl, Macie Jane Aspey was<br />

born at Newcastle Private Hospital on 27<br />

February 2009, it wasn’t until she was 3<br />

days old when she went into respiratory<br />

distress that we realised she was a very<br />

sick baby. She was quickly transported<br />

to John Hunter Hospital then flown by<br />

NETS to Children’s Hospital Westmead.<br />

The first few days went by with a blur,<br />

so many doctors and nurses looking<br />

after her and a lot of new terminology<br />

that we’d never heard of. Macie’s<br />

heart was not formed properly, she had<br />

many issues and was diagnosed with<br />

Hypoplastic Left Heart Syndrome. At<br />

just 5 days old our precious little girl had<br />

her first open heart surgery. It was a bit<br />

of a shock for us when we first saw her<br />

after her surgery but we knew she was<br />

in the best care possible and trusted our<br />

baby’s life with the experienced doctors<br />

and nurses at CHW.<br />

Macie didn’t recover well, she had<br />

several complications from her heart<br />

condition and the next few weeks were<br />

full of ups and downs for her including<br />

more surgeries. We were by her side the<br />

whole time and it was heartbreaking to<br />

see her going through these procedures<br />

but she was a brave girl who took all<br />

that was thrown at her.<br />

After 4 weeks in the Intensive Care Unit,<br />

Macie was transferred to Edgar Stephen<br />

Ward where over the next 3 weeks she<br />

Heart Angel Macie<br />

grew a little bit stronger and we learned<br />

how to care for her so we could take her<br />

home. We both learnt how to put in her<br />

feeding tube and feed her through it,<br />

as she wasn’t strong enough to drink a<br />

bottle on her own.<br />

Finally at 7 weeks of age we were able<br />

to bring our princess home. Looking<br />

after Macie was a full time job, keeping<br />

up with her Cardiologist – Dr Steve<br />

Cooper, Paediatrician – Dr Michael<br />

Lonergan, District Nurse – Michael<br />

Lawler as well as weekly visits to CHW<br />

for check ups, but as the parents of this<br />

special girl we wouldn’t have had it any<br />

other way – if it meant she could be at<br />

home with us and her big brother Cale<br />

we would do anything!<br />

Over the 8 weeks Macie was home, we<br />

cherished her as all parents do their<br />

precious babies, she was probably the<br />

Heart Angels<br />

most photographed baby ever! And we<br />

loved to dress her in beautiful clothes.<br />

Cale loved helping with bath time and<br />

her gave her the nick name “Macie<br />

Girl” – this is how she was known to<br />

everyone.<br />

At 15 weeks of age Macie became very<br />

ill and we rushed her to John Hunter<br />

Hospital and again she was flown by<br />

NETS to CHW. She was unable to keep<br />

up the fight and sadly passed away, our<br />

hopes and dreams for her were crushed.<br />

There is no way we can explain how we<br />

felt at that time and even now nearly<br />

4 years later the grief is sometimes so<br />

overwhelming. I don’t think we will ever<br />

stop grieving for our precious little girl<br />

but we continue to live our lives day by<br />

day with hope and love. We have had a<br />

third child, Tanner MJ Aspey – MJ after<br />

his big sister Macie Jane.<br />

We are so proud of our Macie Girl, she<br />

was such a brave baby girl and she is<br />

always in our thoughts and hearts.<br />

We would like to thank HeartKids for<br />

their support during our stay at CHW,<br />

our time at home with our baby girl<br />

and their continuing support since her<br />

passing.<br />

Rob and Laura Aspey<br />

Rob and Laura have kindly allowed<br />

HeartKids to use Macies’ photograph<br />

on our memorial envelopes, a lasting<br />

legacy from such a short life.<br />

New HeartKid Bereavement Service<br />

HeartKids NSW will soon be able to offer financial help for members with Heart Angels by making a number of “gap”<br />

payments for Medicare approved bereavement counselling services (criteria apply). We hope to have this program running<br />

shortly and will advise when it is available.<br />

We wish to pass on our deepest sympathies to:<br />

The Parnell family in loving memory of Theodore Alexander.<br />

The Ryan family in loving memory of Emma Claire.<br />

We are thinking of all families whose loved ones anniversary falls at this time including these Heart Angels......<br />

Jake Collaros<br />

Ayden Peychers<br />

Willow Spring Lewis<br />

Hamish Howard<br />

Clara Manalo<br />

Phillipa Raine<br />

Andrew Bennett

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