MARCUS - OUR LITTLE SUPERMAN
MARCUS - OUR LITTLE SUPERMAN - HeartKids New South Wales
MARCUS - OUR LITTLE SUPERMAN - HeartKids New South Wales
- No tags were found...
You also want an ePaper? Increase the reach of your titles
YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.
Issue 1 2013<br />
NSW/ACT<br />
<strong>MARCUS</strong> - <strong>OUR</strong> <strong>LITTLE</strong> <strong>SUPERMAN</strong><br />
Find us on Facebook<br />
PAGE 6<br />
PAGE 9<br />
PAGE 12<br />
HeartKids Awareness Month<br />
Family Support<br />
Regional Update
2 Issue 4 2013 | Contents<br />
CONTENTS<br />
Editor<br />
David Rose<br />
Design<br />
Treena Appleby<br />
Serena Manwaring<br />
Contributors<br />
Mardi Aplin<br />
Rob & Laura Aspey<br />
Allison Burgess<br />
Bianca Ciccia<br />
Dawn Everingham<br />
Rebecca Johnson<br />
Kim Mackie<br />
David Rose<br />
Karen Sherlock<br />
Deb Taylor<br />
<strong>OUR</strong> CHARTER<br />
WHO WE ARE...<br />
We are a children’s charity who are<br />
concerned with the care of children born<br />
with or who acquire childhood heart disease<br />
(CHD).<br />
<strong>OUR</strong> AIMS ARE...<br />
To provide various forms of support for<br />
parents and families of newly diagnosed<br />
heart children and ongoing support for<br />
parents, children and teenagers with CHD.<br />
WE DO THIS BY...<br />
• Providing opportunities for families and<br />
individuals to network with people in a<br />
similar situation via our regional coffee<br />
mornings, family events, teen camp,<br />
Christmas parties, fundraiser events and<br />
our all important in-hospital family support<br />
coordinators programme.<br />
• Increasing community awareness of the<br />
high incidence of CHD and its continuing<br />
consequences.<br />
• Liaising with medical and health<br />
professionals so that a greater<br />
appreciation may be gained from each<br />
perspective.<br />
• Encouraging and supporting research<br />
programmes aimed at the prevention,<br />
detection and management of CHD.<br />
3 CEO Update<br />
4 Swisse Color Run<br />
5 Christmas at HeartKids<br />
6 Awareness Month at<br />
HeartKids<br />
7 News & Events<br />
8 Member Update<br />
9 Family Support News<br />
10 Marcus’ Story<br />
11 Tour De Ticker<br />
12 Regional News<br />
13 Volunteer Page<br />
14 Bereavement Page<br />
15 Our Team<br />
DISCLAIMER<br />
PLEASE REMEMBER THAT THE OPINIONS EXPRESSED IN ANY ARTICLE HEREIN REPRESENT<br />
PERSONAL EXPERIENCE ONLY. MEDICAL DETAILS ARE SPECIFIC TO EACH INDIVIDUAL<br />
CASE AND MAY NOT BE APPLICABLE TO ANOTHER CHILD. PARENTS WHO REQUIRE MORE<br />
SPECIFIC INFORMATION SHOULD CHECK WITH THEIR CHILD’S OWN CARDIOLOGIST. ALSO,<br />
PLEASE NOTE, THAT THE OPINIONS EXPRESSED IN THE ARTICLES HEREIN, ARE THOSE OF<br />
THE AUTHOR AND DO NOT NECESSARILY REPRESENT THE BELIEFS OR OPINIONS OF THE<br />
COMMITTEE, STAFF OR BOARD MEMBERS OF HEARTKIDS NSW INC. ALL ADVERTISEMENTS<br />
IN THIS NEWSLETTER ARE PAID FOR AND ARE NOT ENDORSED BY HEARTKIDS. PERMISSION<br />
TO REPRINT ANY OF THE PERSONAL STORIES IN THIS NEWSLETTER IS REQUIRED FROM THE<br />
AUTHOR OR HEARTKIDS NSW.
www.heartkidsnsw.org.au 3<br />
CHIEF EXECUTIVE<br />
OFFICER REPORT<br />
FEBRUARY 2013<br />
Since our Spring newsletter HeartKids NSW has successfully delivered our<br />
Christmas campaign and have recently concluded our most successful Awareness<br />
Month campaign yet with significant activity around NSW, raising awareness<br />
through television, radio and print media and of course much needed funds to<br />
contribute to our cause. We were also delighted to have 2 new board members,<br />
Kevin Baker and Jamon Thomas, join our organization, both Heart dads. We<br />
farewell Ronnie Tullipan and thank him for his contributions during 2012. January<br />
2013 was a historic month for our wonderful organisation with the growth of our<br />
in-hospital service provision at Westmead from 2 to 5 days of coverage, as part of<br />
a 3 month trial.<br />
With the announcement of a new board we have spent time reviewing our<br />
strategic objectives through to the end of 2014 and will announce more of these<br />
priorities over the coming months. This new strategy development complements<br />
the continuation of programs such as ‘HeartKids Connect’ providing support and<br />
programs to our regional members with our Roadshow program now visiting<br />
Wagga Wagga and Orange and a second visit to Canberra in late March.<br />
Would you believe it, the Tiny Tickers Ball preparations have already commenced<br />
with the magnificent Westin Hotel confirmed as our new venue. Please mark<br />
Saturday 31st of August in your diary. Early bird tickets will be promoted during<br />
late March so please keep your eye on our website for more detail.<br />
We send out a big thank you to all the runners who raised just over $100K for<br />
HeartKids as part of the Swisse Color Run, and our special friends in Wagga who<br />
raised over $80K for HeartKids NSW with the grueling Tour de Tickers bike ride.<br />
These extra funds will be used to continue our work within our regional program,<br />
increase our support of research and to fund the increased in hospital service<br />
provision. We also send a thank you to our Cuppa supporters who together raised<br />
$17K. THANK YOU!<br />
In closing for this quarter, we farewell Karen Sherlock and thank her for her long<br />
term commitment, 8 years to be precise, to our special cause and hope that we<br />
see her in a member capacity at our family events. We also welcome back Lisa<br />
Chamberlin from extended leave supporting William her HeartKid through his<br />
recent long stay at Westmead Children’s Hospital.<br />
Till next time ….warm regards,<br />
David Rose<br />
Chief Executive Officer<br />
to the following following<br />
supporters of Heartkids NSW<br />
Individual Supporters<br />
Belinda & Ben Johnson<br />
Brian & Christine Knapp<br />
Brooke Davis<br />
Carly Simpson<br />
Chad Dobson<br />
Claire Shrimpton<br />
Dr Sidman<br />
Jane Wilson<br />
John Barrie<br />
Judy Peak<br />
Kathryn Kettlewell<br />
Katie Henry<br />
Lousie & Chad Davidson<br />
Maria Vermunt<br />
Melinda Winkler<br />
Mr & Mrs Lawson<br />
Raelene McLenaghan<br />
Robert Thomas<br />
Susan Alagich<br />
Tiffany Sly<br />
Wilkin Yau<br />
Corporate/School Supporters<br />
Abbott<br />
Avene Cosmetics<br />
Bauer Media<br />
Cakes by Raewyn<br />
Chargrill Charlies Lane Cove<br />
Chargrill Charlies Wahroonga<br />
Collette<br />
Dolci D’oro Chocolates<br />
Doltone House<br />
Dreams in Colour<br />
Fairy Meadow Demonstration School<br />
Glenn Whitehall<br />
Gloria Jean’s Hornsby<br />
Harry’s Café de Wheels Liverpool<br />
Kake Krumbs<br />
Instyle Magazine<br />
Intershape Hair<br />
Luddenham Public School<br />
Palmerston District Primary School<br />
Paul Mitchell Haircare<br />
PixiFoto<br />
Primbee Public School<br />
Ritchie’s<br />
Rotary Club of Canberra<br />
Singleton High School<br />
SJA Accessories<br />
St George Foundation<br />
Supercare Property Services<br />
Swan Chocolates<br />
TCM Steering<br />
The Australasian College of MHM<br />
Educations & Training<br />
The Dark Horse<br />
Vodafone<br />
1st Beecroft Guides<br />
31 District Ladies Auxiliary Punchbowl<br />
ACKNOWLEDGEMENTSTHANK YOU...
4 Issue 1 2013 |<br />
Swisse Color Run<br />
Images (Above): Kim & Dawn from HeartKids with Geoff Huegill and heartkids<br />
William and Leo<br />
Top: Polly & Waz<br />
Below: Hammond & Chamberlin’s<br />
After ‘Colour’<br />
(Right) Top-Bottom: Veronica Brown & Suzi, Geoff Huegill, , Soph’s Team After<br />
Colour, Heartkids Caitlin & Brittany, Team ‘Lionheart Hugh’<br />
HeartKids were delighted to be chosen<br />
as the charity of choice for the first<br />
Swisse Color Run in Sydney. Over<br />
20,000 keen colour enthusiasts signed<br />
up to participate in this fantastic<br />
event on Sunday 10th February. Once<br />
registered, entrants were invited to set<br />
up a fundraising page to raise funds<br />
for HeartKids NSW, we had over 570<br />
fundraisers raising over $100,000!!!!<br />
Everyone had such a great day, Swisse<br />
and their wonderful team of volunteers<br />
did an amazing job ensuring that<br />
everyone was well and truly coloured<br />
both along the 5km route and at the<br />
dance party at the finish line. Here are a<br />
few photos of some of our families who<br />
enjoyed a great day out.<br />
Acknowledgements<br />
Frozen Moments Photography<br />
Glenn Nicholls<br />
J.P Fisher<br />
Rob Griffith<br />
Images (clockwise): Jann from HKA with Stephen HKNSW and colorists,<br />
Pammie Noble’s Team, Miranda & Aidan getting ready to start
www.heartkidsnsw.org.au 5<br />
Sydney Christmas Party<br />
With a change of venue we were ready<br />
for a wonderful Christmas party and<br />
we weren’t disappointed. It was very<br />
hot on the day, over 40 degrees, but<br />
the jumping castles, Looney Lou and<br />
her face painting, food, tables and<br />
chairs were all under a huge cover<br />
and everyone was kept well hydrated<br />
with drinks and ice. Santa made a big<br />
entrance and was mobbed by all the<br />
very excited children who sat patiently<br />
and waited until he called their name<br />
to receive a gift. Dave Rose our CEO<br />
also took this opportunity to officially<br />
present a number of our regular<br />
hardworking volunteers with a plaque<br />
and small token of appreciation. It<br />
was a great opportunity for families to<br />
come together and make new friends<br />
and celebrate the year that was. Many<br />
thanks to the great volunteers from<br />
Johnson Controls and Dawn, Karen,<br />
Kim and Jenny, the staff of HeartKids<br />
who worked very hard to ensure our<br />
Christmas party such a happy and<br />
successful one.<br />
Thanks to Mark Chamberlin from<br />
Mulgoa Bakery for supplying the<br />
beautiful Christmas cake, bread and<br />
puddings for Rouse Hill market.<br />
Rouse Hill Boutique<br />
Christmas Markets<br />
HeartKids Christmas appeal was<br />
a fantastic success raising just shy<br />
of $10,000 for our HeartKids and<br />
families. The team headed out to the<br />
Sydney Boutique Markets at Rouse<br />
Hill on Saturday 15th and Sunday<br />
16th December where our amazing<br />
Christmas volunteers helped to man our<br />
merchandise stall selling heart Christmas<br />
goodies and puddings. We also had a<br />
famous face (Justin Beiber) pop down<br />
to the markets to say hi to our gorgeous<br />
Charlotte who was working at the stall.<br />
A huge thank you goes out to all the<br />
Elves that came down and volunteered<br />
their time this Christmas.<br />
Lord Mayor’s New Years Eve Picnic<br />
Some very lucky HeartKids families attended the Lord Mayors New Year’s Eve Picnic<br />
with this year’s theme being Rock Stars & Pop Princesses. They all had a great time<br />
with entertainment, food, face painting, bikes and games as well as spectacular<br />
views of the nine o’clock fireworks over Sydney harbour. Here’s what some families<br />
had to say about the night.<br />
“We just wanted to thank you (Karen) and HeartKids for a wonderful night at<br />
the New Year’s Eve Lord Mayors picnic. It was such a great event, and the kids<br />
absolutely had a ball (and so did we, we felt like VIP’s). Thank you again, this was a<br />
once in a life time opportunity that HeartKids have given to our family.” Diana Buric<br />
“We just wanted to say a big thank you for the opportunity to attend the Lord<br />
Mayors New Year’s Eve Picnic. We really enjoyed our night and had a great time!<br />
Thanks again” The Klein Family
6 Issue 1 2013 |<br />
Awareness Month<br />
International CHD Day comes to Sydney CBD<br />
Thank you so much to the superstar<br />
volunteers who helped out at our<br />
Awareness Month CBD merchandise and<br />
fundraising day on 14th February. We<br />
had a very successful International CHD<br />
Day, some people call it Valentine’s Day,<br />
and met many amazing people that were<br />
affected by CHD.<br />
Being our first year we are very proud to<br />
Above: Stacey and Bianca, The HeartKids<br />
Valentine’s Day Team<br />
CONGENITAL HEART DISEASE DAY AT CHW<br />
Jenny and Kim man CHW cake stall<br />
Family Support Co-ordinators from The Children’s Hospital at Westmead, Kim<br />
Mackie and Jenny Azzopardi celebrated International Congenital Heart Disease<br />
Awareness Day with an information table and cupcake stall in the Hospital’s<br />
Galleria.<br />
Along with the help of Volunteers Vanessa and Mara, the ladies sold over 250<br />
beautifully decorated and scrumptious cupcakes, macaroons, cookies and cake<br />
pops. An amazing $1054 was made which was then donated to Edgar Stephen<br />
Ward.<br />
Many thanks to Kirsty Cake Angels who organised donations from Charbella Cakes, Melicious Cake House, Get Your Cake On,<br />
Sweet White Box, Creative Cake, It’s a Cake Thing and Cakes By Raewyn. Thankyou from the bottom of our hearts.<br />
Kim and Jenny<br />
have raised just shy of $8000 and raised<br />
our profile speaking on several local<br />
radio stations, and received national TV<br />
exposure on Sunrise Weekends. We look<br />
forward to growing the opportunity and<br />
CHD awareness in 2014.<br />
High Tea<br />
Sunday 24th February saw 102 lovely<br />
ladies enjoy a High Tea at the Swissotel<br />
Sydney. On arrival our guests were<br />
entertained by Glenn Whitehall,<br />
contestant in The Voice 2012 and then<br />
enjoyed a beautiful buffet High Tea.<br />
There was a silent auction, raffle and<br />
lucky door prizes with some beautiful<br />
jewellery, chocolate hampers and<br />
handbags available, along with a goody<br />
bag packed with lots of surprises. We<br />
raised $4700 from the afternoon.<br />
Images: (Above) High Tea at Swissotel (Right)<br />
Glen Whitehall & Bianca Ciacca
Brighton Fundraising<br />
Luncheon<br />
www.heartkidsnsw.org.au 7<br />
On 8th December, 2012 over 100 ladies (and 1 male!) enjoyed a wonderful<br />
fundraising luncheon organised by Maria Vermunt at The Grand Roxy at<br />
Brighton Le Sands. It was a joyous occasion with great food and great<br />
conversation, with over $5K raised by fabulous raffles and ticket sales. Maria<br />
spoke about her son Ellis, his heart condition and his upcoming March 2013<br />
surgery. Kim spoke about HeartKids, her role as FSC and her HeartKid Liam. We<br />
thank Maria and her wonderful supporters, for their contribution towards our<br />
special cause.<br />
Thank You Precision Landscape<br />
Our wonderful supporter Martin Saunders from Precision Landscape<br />
delivered a spectacular garden to Dwane Goodman whom generously<br />
purchased the package at the 2012 Tiny Tickers Ball. We thank all of<br />
the contributors to the prize: Alpine Nursery, Turtle landscape supplies,<br />
Eco Plant, Neverstop Irrigation, Tank Works, Gretchs Turf and of course<br />
Precision Landscape for their generous contributions whilst also bringing<br />
the prize to life!<br />
Zipper Warrior Dinner<br />
To celebrate Awareness month in Newcastle we held our first<br />
Annual Fundraising Dinner at the Belmont 16 Foot Sailing<br />
Club on Saturday 23rd of February 2013. The Belmont 16 Foot<br />
Sailing Club provided a wonderful three course meal, and was<br />
a fantastic location for the event with ceiling to floor windows<br />
overlooking the magnificent Lake Macquarie<br />
Our 60 guests enjoyed a fun filled evening of raffles, games<br />
and auctions.<br />
Kevin Baker (HeartKids Director) was our MC for the night<br />
and shared his journey as a heart parent, and our guest<br />
speaker Amy McDonough provided all with a fantastic insight<br />
of living with a congenital heart defect. We were fortunate<br />
to be joined by state MPs Andrew Cornwell (Member for<br />
Charlestown) and Garry Edwards (Member for Swansea),<br />
as well as Garrys brother, Ken Edwards. As a child, around<br />
fifty years ago, Ken was the only survivor of the first five<br />
open heart surgeries performed at Camperdown Children’s<br />
hospital.<br />
We would like to thank<br />
everybody involved in the<br />
dinner, and we’re hoping to<br />
make it bigger and better for<br />
next year – save the date,<br />
8th February 2014!<br />
Allison Burgess, Kevin Baker<br />
and Rebecca Johnson<br />
Andrew Cornwell, Kevin Baker &<br />
Allison Burgess
8 Issue 1 2013| Member Update<br />
Member Update<br />
Who was in at the Children’s<br />
Hospital Westmead (CHW)?<br />
Charlie Ferguson, Faith Power, & Chloe<br />
Karsten, were all in for surgery.<br />
Sarah Gerlach had her Fontan surgery.<br />
Daniel Appleby had his Glen surgery.<br />
Sam Attwood had his surgery at<br />
Westmead Hospital.<br />
Rijen Shrestha had his surgery and due<br />
to complications had an extended stay<br />
in CHW.<br />
William Chamberlin had his Fontan<br />
surgery and was discharged, but due<br />
to complications was readmitted mid<br />
December and had an extended stay<br />
celebrating Christmas, New Year ,his<br />
6th birthday and a return to school (the<br />
hospital school) on ESW.<br />
Both Rijen and William were discharged<br />
on the same day and we wish them all<br />
the best for a continued recovery.<br />
Emma Peck had her Fontan and was<br />
home in quick time.<br />
Addison Ansell was treated for an<br />
infection in her heart. After an extended<br />
stay she has been discharged.<br />
Jacob Traynor and mum Peta have<br />
finally been discharged from CHW<br />
after a long 6 months. We wish them<br />
all the very best for Jacob’s continued<br />
improvement.<br />
Lachie Burgess had his catheter.<br />
Ronan Bishop had his procedure and<br />
after a complication, made it home in<br />
good time.<br />
Lily Haskins was in for a procedure.<br />
Bodhi Harvey was in for a procedure<br />
and then 1 month later mum Amanda,<br />
dad Chris and big sister Taylor popped<br />
in for a visit to the retreat room and see<br />
Kim.<br />
Ethan Yueng and mum Miki popped into<br />
see everyone in ESW<br />
Levi Mc Cormack, mum Karina and little<br />
sister Keshia came in to help decorate<br />
the ESW Christmas tree. Levi was<br />
admitted for a short stay recently.<br />
Kim bumped into Leonie and Holly<br />
Saunders on their way to the Heart<br />
Centre for Children.<br />
The Jacksons – Craig, Tashan, Memphis<br />
and Cayless popped in to say hi to Kim.<br />
Erin Kennedy and Hannah came by<br />
the retreat room for a quick catch up.<br />
Emily, Jason and Amy Crocker popped<br />
in to see Kim after a check up. Meg and<br />
Kennedy MacKenzie came to the CHD<br />
Awareness afternoon tea on Feb 14th<br />
in CHW. The Holt family with heartkid<br />
Emily also came to say hi.<br />
Who was in at Sydney<br />
Children’s Hospital? (SCH)<br />
Zoe Heyhorn was back and forth to<br />
SCH in November & December, she had<br />
her Gastrostomy removed and started<br />
school this year tube free! Laycee<br />
Davidson was back in December.<br />
We congratulate Zoe Heyhorn on<br />
starting Kindergarten this year!<br />
If you would like to send in a photo of<br />
your HeartKid starting school please<br />
send to dawn.everingham@heartkids.<br />
org.au<br />
Meet Taylor...<br />
Heartkid Will Chamberlin and Karen Weir<br />
with ‘Taylor’<br />
Recently HeartKids NSW was the recipient of a $1000 grant from the Northern<br />
Beaches Social Riders. We had been approached by Karen Weir from Child Life<br />
Therapy at CHW to fund the purchase of a therapy doll, Taylor, which desensitizes<br />
children by letting them see the many different procedures that our heartkids have<br />
to endure. Taylor has a number of velcro faces showing different emotions and also<br />
velcro upper torsos with sternotomy scars and drain holes, pacemaker pockets, an<br />
embroidered heart with cath line and other play sets of nasal prongs, O2 masks, BP,<br />
oxymeter, central line, dressing changes etc.<br />
A number of youngsters are having sessions with Karen and Taylor prior to their<br />
surgery and patients like Will Chamberlin (pictured) enjoyed changing Taylors<br />
dressing in preparation of having his own dressings changed.<br />
HeartKids is extremely pleased to have been able to assist Karen and her work as<br />
anything that can reduce our children’s anxiety about surgery or coming to hospital<br />
is wonderful.
www.heartkidsnsw.org.au 9<br />
Family Support News<br />
Happy New Year to all our families and a<br />
warm welcome to all our new families.<br />
We hope that 2013 is a good year for<br />
everyone. Lots of excited heartkids started<br />
Kindergarten and some made the big move<br />
on to High School this year. What wonderful<br />
milestones for you all to reach, we hope you<br />
enjoy life in your new schools.<br />
At the Children’s Hospital Westmead , the<br />
Edgar Stephens Ward went ’troppo’ for their annual party<br />
day with monkeys and elephants wandering up and down the<br />
corridors looking after our heartkids. As usual Gabbie and her<br />
wonderful staff went all out decorating the ward and even the<br />
Christmas tree was covered in animal print baubles. A great day<br />
was enjoyed by staff, patients and their families.<br />
The switch to afternoon hours 1 to 3pm<br />
every weekday in the retreat room on the<br />
Edgar Stevens ward (CHW) is working well<br />
with many families wandering down after<br />
lunch. For those who haven’t yet met her,<br />
we would like to introduce Jenny Azzopardi<br />
as our 3rd Family Support Coordinator.<br />
Jenny is mum to five children and her<br />
heartkid Dominic is nine years old. She is a<br />
midwife at Westmead Hospital and has also been volunteering<br />
at HeartKids coffee mornings for the last 8 years. Jenny is in<br />
the retreat room Monday and Friday and Kim is in Tuesday<br />
to Thursday. We can also come to your bedside if requested<br />
through your nurse.<br />
New Member Welcome<br />
A big welcome to all of our new members<br />
The Cheung & Yau family from Eastwood, with heartkid Christopher,<br />
who has AVSD and Pulmonary Atresia.<br />
The Goodwin family from Cronulla, with heartkid Lennox, who has<br />
Long QT Type 2 syndrome.<br />
The Johnson family from Jewells, with heartkid Oska, who has TGA,<br />
pulmonary stenosis, and a VSD.<br />
The Henricks family from Kingswood, with heartkid Leo, who has<br />
HLHS<br />
The Chen & Hsu family from Currans Hill, with heartkid Chia-Yu.<br />
The Davis family from Aberglasslyn, with heartkid Mason, who has<br />
VSD, TGA, Situs Solitus, Pulmonary stenosis, PDS, PFO & Dextrocardia.<br />
The Mitchell & Henry family from Stanhope Gardens, with heartkid<br />
Cayden, who has TGA.<br />
The Sly & Allsop family from Cremorne, with heartkid Dempsey, who<br />
has ASD & Ebsteins Anomaly.<br />
The Shrimpton family from Horsley, with heartkid Hugh, who has<br />
Acyanotic Tetralogy of Fallot.<br />
The Davies family from North Nowra, with heartkid Lilly-Rose.<br />
The De Giorgio family from Forestville, with heartkid Charlie, who<br />
has incessant infant ventricular Tachycardia with cardiomyopathy.<br />
The Ball family from Trangie, with heartkid Jazzlyn, who has VSD,<br />
AVSD.<br />
The Wright & Deignan family from Richmond, with heartkid Bentley,<br />
who has TGA.<br />
The Kennedy family from Kellyville, with heartkid Hannah, who has<br />
an Arrythmia.<br />
February was a busy month with lots<br />
going on for Awareness Month. Many<br />
thanks to all who supported HeartKids<br />
at this time. Stay safe and stay well. Kim<br />
(CHW)<br />
As this will be my last newsletter as<br />
one of the family support team for<br />
HeartKids NSW I wanted to say a special<br />
good bye and thank you. I have had many wonderful years<br />
working for HeartKids NSW and I have met many amazing<br />
families with the strongest and bravest HeartKids that I will<br />
remember forever. I am sad to leave my fellow colleagues<br />
who have been the best people to work alongside ever<br />
as well as very special friends! To all the families I have<br />
met please stay in touch and let me know how all those<br />
wonderful children are growing up (you’ll find me on<br />
Facebook) Thank you to everyone for a fantastic eight years.<br />
Take care, Karen Sherlock x<br />
ATTENTION<br />
Please be advised for all families coming into CHW or SCH<br />
HeartKids FSC’s are no longer advised of your admission<br />
and we rely on you contacting us by email, Facebook,<br />
SMS or Phone: CHW/SCH Kim 0406 424 627/ Jenny 0406<br />
424 620<br />
You can tell your nurse you’d like to see someone<br />
from HeartKids and we’ll come by with a care bag and<br />
vouchers.<br />
This is as a result of changes to hospital policies regarding<br />
privacy and confidentiality.<br />
The Kettlewell family from Oakhurst, with heartkid Azriel, who has<br />
Tetralogy of Fallot.<br />
The Lampe family from Sefton, with heartkid Thomas, who has<br />
TGA, VSD and ASD.<br />
The Peters family from Glenwood, with heartkid Thomas, who<br />
has 2nd degree heart block.<br />
The Alagich family from Wheeler Heights, with heartkid Aidan,<br />
who has Tetralogy of Fallot.<br />
The Parker family from Muswellbrook, with heartkid Maelie, who<br />
has Tetralogy of Fallot.<br />
The Thomas family from Oatley, grandparents to Luca.<br />
The Harris-Coulon family from Port Macquarie, with heartkid<br />
Aiden, who has Pulmonary Atresia with VSD.<br />
The Shrestha family from Parramatta, with heartkid Rijen, who<br />
has Aortic Atresia with multiple VCD’s.<br />
The Ansell/Horan family from Wellington, with heartkid Addison,<br />
who has Tetralogy of Fallot.<br />
The Gibbons family from Baulkham Hills, with heartkid James,<br />
who has Tetralogy of Fallot.<br />
The Baldry/Mortlock family from Giralang, with heartkid Kaleb,<br />
who has TGA.<br />
The Cairns family from Warabrook, with heartkid’s Luka-Angel &<br />
Jazziah, who have restrictive Cardiomyopathy.<br />
The Buckley family from Punchbowl, with heartkid Phoenix, who<br />
has DORV, right side isomerism, ASD & VSD.<br />
The Gardiner family from Theodore, with heartkid Jade, who has<br />
DORV with severe pulmonary stenosis.
10 Issue 1 2013| Marcus’ Journey<br />
Marcus’ Journey<br />
It’s surprising how much more<br />
relaxing your second pregnancy<br />
is. All went well during the<br />
pregnancy and Cameron’s<br />
little brother, Marcus, arrived<br />
exactly on his due date<br />
of 16 November 2011 at<br />
Campbelltown Hospital.<br />
He did so well in the first few<br />
hours of life, until later the next<br />
day when he wouldn’t eat and<br />
began breathing too fast. He<br />
was quickly identified as having<br />
a heart problem and would<br />
require immediate transport to<br />
Children’s Hospital Westmead<br />
(CHW).<br />
Marcus spent his first month<br />
of life in the Grace Centre for<br />
Newborn Care where he was<br />
diagnosed with several heart<br />
conditions the major ones<br />
being; critical aortic stenosis,<br />
mitral regurgitation and left<br />
ventricular dysfunction. He<br />
would require various heart<br />
surgeries throughout his life<br />
however immediate action had<br />
to be taken to correct the aortic<br />
stenosis.<br />
He appeared to do well after<br />
the catheter. After only 3 days<br />
at home though he became<br />
unwell again. On 23 December<br />
we said goodbye to our baby<br />
boy, who was gone for over<br />
7 hours and when he arrived<br />
back he was on ECMO and had<br />
a pacemaker.<br />
On Christmas morning we were<br />
told not to get our hopes up,<br />
that there was little chance that<br />
Marcus would make it through.<br />
Very slowly he became a little<br />
better and he was extubated<br />
again and on C-PAP.<br />
Over the course of the next<br />
4 months our roller coaster<br />
journey continued; He would<br />
get better enough to return to<br />
the ward and then he would<br />
become sick again and rushed<br />
back to PICU.<br />
Finally at the end of February,<br />
we were rushed back to PICU,<br />
this time the left ventricle of<br />
his heart was not functioning<br />
properly. A new medication was<br />
started for Marcus and we just<br />
had to wait and hope that the<br />
medication would work.<br />
Marcus remained intubated for<br />
the whole month of March and<br />
was successfully extubated on<br />
1 April 2012 which was also his<br />
100th day in PICU. The staff in<br />
PICU were fantastic and tried<br />
to help make things as normal<br />
as possible by letting us bath<br />
Marcus and take him for walks<br />
around the hospital and in the<br />
park when we could.<br />
After 5 months, Marcus finally<br />
reached 5kgs and he was doing<br />
well enough to go back to the<br />
ward again. On the day that we<br />
were scheduled to go home<br />
Marcus got bronchiolitis and<br />
we spent the next week in the<br />
isolation ward!<br />
On 24 May 2012 we finally<br />
came home. Marcus no longer<br />
needs the bi-pap and even<br />
though he still has 2 heart<br />
medications twice each day he<br />
is finally doing all the things<br />
that little boys get to do. Our<br />
little superman turned 1 in<br />
November!<br />
This has been the hardest<br />
hurdle our little family has<br />
ever faced, however we would<br />
never have made it through<br />
without the endless support<br />
and dedication from our loving<br />
family, friends and dedicated<br />
teams at the CHW.<br />
A special thank you to<br />
HeartKids who have been with<br />
us from the beginning of our<br />
journey and provided us with<br />
information, support, guidance<br />
and financial assistance. As<br />
a token of our appreciation,<br />
our family held a small<br />
fundraising event in Kiama,<br />
the ‘Zippa Dinna’ which raised<br />
over $11,000 for HeartKids!<br />
An incredibly dedicated<br />
organisation, thank you.<br />
Deb Taylor (Heartmum)<br />
Excerpt from original. Please<br />
visit our website for full story<br />
www.heartkidsnsw.org.au
Tour De Ticker<br />
Wagga Wagga Regional Representatives Scott and Katrina Brown decided to do a little<br />
fundraiser to raise some funds and awareness for HeartKids NSW, their original target was<br />
$10,000….now 4 months later the total has exceeded $87,000!!!!<br />
www.heartkidsnsw.org.au 11<br />
“Our 15 amazing riders tackled<br />
the magnificent NSW Snowy<br />
Mountains. Over the 5 days they<br />
were challenged by 670kms of<br />
riding.<br />
Our Team conquered their<br />
own challenges to raise funds<br />
for Awareness, Research and<br />
Support into CHD for Local and<br />
State families.” says Katrina.<br />
CEO David Rose, Operations<br />
Manager Dawn Everingham<br />
and Family Support Coordinator<br />
Kim Mackie visited the team in<br />
Wagga to personally thank them<br />
for their fantastic effort.<br />
The HeartKids team hosted<br />
a thank you cocktail evening<br />
for the team members and<br />
supporters of the Tour de Tickers<br />
event and presented each rider<br />
with a personalised canvas to<br />
thank them for the wonderful<br />
contribution.<br />
The following day HeartKids<br />
hosted a family BBQ in the<br />
beautiful Collins Park, the local<br />
members were treated to a great<br />
day of fun and the chance to<br />
Images (clockwise from above): Tour De Ticker riders, On the road, Scott Brown, Dawn<br />
Everingham (HeartKids NSW), Katrina Brown, Kim Mackie (HeartKids NSW), David Rose<br />
(HeartKids NSW) Bottom photo: Tour De Ticker team<br />
meet and share their stories<br />
with other families in their area.<br />
The inaugural Tour de Ticker<br />
is one of the most successful<br />
community fundraising events<br />
for HeartKids NSW and we<br />
thank the team of riders, their<br />
support crew and especially<br />
Scott & Katrina for their<br />
inspiring efforts.<br />
For more information on Tour<br />
de Ticker go to<br />
www.tourdeticker.com<br />
Above: Jack Campbell recently won<br />
4 gold and 2 silver medals at The<br />
Transplant Games
12 Issue 1 2013| Regional News<br />
REGIONAL NEWS<br />
The Central West and Macquarie Areas joined forces this year for our Xmas party and we all spent the<br />
day together at the Western Plains Zoo in Dubbo. We had a fantastic day with wonderful weather and<br />
I think the monkeys were putting on a show for us all. Some of us rode our bikes, others drove and we<br />
had a buggy for all the food and drinks which also seemed to be a hit with the children who all wanted<br />
to have a ride. It was great to get together with the Macquarie heartkids and their families and for<br />
all the children to make some new friends. We had all morning exploring the Zoo, followed by a BBQ<br />
lunch and fantastic cake pops for desert made by Sue Dean and all the children received a present from<br />
HeartKids. I have to thank the Western Plains Zoo for looking after us and I am so pleased that I had a<br />
chance to meet all the wonderful families in Dubbo. Thank you all for coming.<br />
Stay Healthy<br />
Mardi-Central West Representative<br />
NEWCASTLE CHRISTMAS PARTY<br />
We had a great time at the HeartKids Christmas party, Kiwanis did a wonderful job<br />
putting on a lovely spread. The children had their faces painted and we had a guy who<br />
made anything and everything out of balloons - he was fantastic. There were lots of<br />
games being played by all the kids and parents. Santa delivered some fantastic presents<br />
to all the children who really seemed to enjoy the day.<br />
We met quite a few new families and they were very thankful for such a wonderful day.<br />
Everyone had a great time and it was great to see all the families with their beautiful<br />
children. Many thanks to Kiwanis for all their support.<br />
Rebecca Johnson & Allison Burgess<br />
Newcastle Regional Representatives<br />
NEWCASTLE AWARENESS MONTH COMMUNITY TABLE<br />
Saturday, 16th February brought the Newcastle HeartKids families together to<br />
celebrate Awareness Month. We set up a community table at the Stockland Green<br />
Hills Shopping Centre and were positioned next to Donut King and Michel’s Patisserie<br />
who kindly supplied us with morning coffee. During the day we sold merchandise,<br />
raffle tickets and spoke to many current and new HeartKids families about the support<br />
HeartKids NSW provides our families in and out of hospital.<br />
To celebrate CHD Awareness month we meet with some of our local families for<br />
afternoon tea at the nearby Donut King who supplied us with donuts, milkshakes and<br />
kindly let us use their tables and chairs. I would like to thank the families for coming<br />
along during the day it was lovely meet you all, and a special thanks to the Korbi<br />
family for helping with the community table and for sharing your story with the local<br />
community.<br />
Allison Burgess and Rebecca Johnson<br />
Newcastle and the Hunter HeartKids NSW Representatives<br />
REGIONAL REPRESENTATIVES<br />
Thank you to Amanda Harvey who is stepping down as the Central coast regional representative. Amanda has been a fantastic<br />
regional representative over the past few years and we thank her for all she has done to bring the Central Coast families<br />
together, she has been an amazing support to many members over the years. We now welcome Veronica Brown to the role as<br />
new Central Coast regional representative. Veronica is well known to the families on the Central Coast as she has opened her<br />
home to them for social catch ups on many occasions.<br />
To contact Veronica please call 0409071171 or email veronicab2103@gmail.com.<br />
We would also like to say a big thank you to Tracey Crutcher who is stepping down as the Mid North Coast regional<br />
representative.
www.heartkidsnsw.org.au 13<br />
Volunteer<br />
PROFILE<br />
Name:<br />
Position:<br />
Can you tell us about yourself and your family? I am mum to Damon and Lachlan and fiancé to Kevin Baker. Damon has just<br />
turned 10 years old and has started a new school this year. Lachlan is my HeartKid and he has recently turned 3 years old.<br />
Lachlan has Pulmonary Artesia, VSD and MAPCA’s. He has had three open heart surgeries, a number of cardiac catheters and<br />
many other interventional procedures. Lachlan will also have many more surgeries as he gets older.<br />
Why did you become involved in HeartKids? I became involved with HeartKids because I wanted to find information and<br />
support for Lachlan’s condition and to meet and learn from other families who have had experience with congenital heart<br />
defects.<br />
Why is HeartKids important to you? HeartKids is important to me because it provides me with the opportunity to meet<br />
heart families to share our story, it is an outlet that I can use and trust to advocate and awareness of Lachie’s condition and<br />
the many other heart conditions.<br />
What do you enjoy about your involvement with HeartKids? Sharing Lachlan’s story, learning from and meeting heart<br />
families. I have learnt so much in the past 3.5 years about the variety of experiences many families had have with their<br />
heartkid.<br />
What do you like to do in your spare time? I enjoy sewing, shopping, cooking and taking the kids out on drive days with a<br />
group of Mini (car) owners.<br />
Favourite food: Dark Chocolate<br />
Favourite music: Nora Jones<br />
Early bird or night owl? Neither!<br />
Allison Burgess<br />
Regional Representative – Newcastle<br />
What albums would you take with you on a deserted island? Nora Jones, Fleetwood Mac Rumours, Beatles Red and Blue<br />
album and Beastie Boys Intergalactic.<br />
The last time I laughed out loud was... Watching the BBC “Walk on the Wildside”<br />
Best piece of advice I’ve ever received: We can’t always be responsible for what life throws at us, but we can always be<br />
responsible for how we react to any situation even the most traumatic.<br />
My favourite sound in the world is: The waves crashing on the beach - I find the beach very soothing.<br />
If you could have one superhuman power, what would it be? Teleportation<br />
THANK YOU TO <strong>OUR</strong> VOLUNTEERS<br />
HeartKids NSW would like to thank the following people who have volunteered their time over the past few months:<br />
Jerry Abad, Habib Ajaka, Laurie Alexander, Julia Barker, Jeanette Barrie, Beau Casson, Julianne Chase, Gracie Collison, Camilla<br />
Cuming, Peter Dalla, Akhil Demurari, Kylie Gard, Daniela Gerlach, Robert Gilchrist, Dave Jeffrey, Stacey Keenan, Kiran Kotecha,<br />
Sara-Jane Leon,Irene Lewis, Dragana Malcaus, Alvin Matthews, Alvin Matthews Jnr, Angelina Matthews, Selina Matthews,<br />
Debra McMillan, Debbie Miranda, Kristy Peters, Kristen Renwick, Alex Repin, Deb Taylor, Kye Taylor, George Wells, Karen<br />
Wells
14 Issue 1 2013| Bereavement Page<br />
Our beautiful girl, Macie Jane Aspey was<br />
born at Newcastle Private Hospital on 27<br />
February 2009, it wasn’t until she was 3<br />
days old when she went into respiratory<br />
distress that we realised she was a very<br />
sick baby. She was quickly transported<br />
to John Hunter Hospital then flown by<br />
NETS to Children’s Hospital Westmead.<br />
The first few days went by with a blur,<br />
so many doctors and nurses looking<br />
after her and a lot of new terminology<br />
that we’d never heard of. Macie’s<br />
heart was not formed properly, she had<br />
many issues and was diagnosed with<br />
Hypoplastic Left Heart Syndrome. At<br />
just 5 days old our precious little girl had<br />
her first open heart surgery. It was a bit<br />
of a shock for us when we first saw her<br />
after her surgery but we knew she was<br />
in the best care possible and trusted our<br />
baby’s life with the experienced doctors<br />
and nurses at CHW.<br />
Macie didn’t recover well, she had<br />
several complications from her heart<br />
condition and the next few weeks were<br />
full of ups and downs for her including<br />
more surgeries. We were by her side the<br />
whole time and it was heartbreaking to<br />
see her going through these procedures<br />
but she was a brave girl who took all<br />
that was thrown at her.<br />
After 4 weeks in the Intensive Care Unit,<br />
Macie was transferred to Edgar Stephen<br />
Ward where over the next 3 weeks she<br />
Heart Angel Macie<br />
grew a little bit stronger and we learned<br />
how to care for her so we could take her<br />
home. We both learnt how to put in her<br />
feeding tube and feed her through it,<br />
as she wasn’t strong enough to drink a<br />
bottle on her own.<br />
Finally at 7 weeks of age we were able<br />
to bring our princess home. Looking<br />
after Macie was a full time job, keeping<br />
up with her Cardiologist – Dr Steve<br />
Cooper, Paediatrician – Dr Michael<br />
Lonergan, District Nurse – Michael<br />
Lawler as well as weekly visits to CHW<br />
for check ups, but as the parents of this<br />
special girl we wouldn’t have had it any<br />
other way – if it meant she could be at<br />
home with us and her big brother Cale<br />
we would do anything!<br />
Over the 8 weeks Macie was home, we<br />
cherished her as all parents do their<br />
precious babies, she was probably the<br />
Heart Angels<br />
most photographed baby ever! And we<br />
loved to dress her in beautiful clothes.<br />
Cale loved helping with bath time and<br />
her gave her the nick name “Macie<br />
Girl” – this is how she was known to<br />
everyone.<br />
At 15 weeks of age Macie became very<br />
ill and we rushed her to John Hunter<br />
Hospital and again she was flown by<br />
NETS to CHW. She was unable to keep<br />
up the fight and sadly passed away, our<br />
hopes and dreams for her were crushed.<br />
There is no way we can explain how we<br />
felt at that time and even now nearly<br />
4 years later the grief is sometimes so<br />
overwhelming. I don’t think we will ever<br />
stop grieving for our precious little girl<br />
but we continue to live our lives day by<br />
day with hope and love. We have had a<br />
third child, Tanner MJ Aspey – MJ after<br />
his big sister Macie Jane.<br />
We are so proud of our Macie Girl, she<br />
was such a brave baby girl and she is<br />
always in our thoughts and hearts.<br />
We would like to thank HeartKids for<br />
their support during our stay at CHW,<br />
our time at home with our baby girl<br />
and their continuing support since her<br />
passing.<br />
Rob and Laura Aspey<br />
Rob and Laura have kindly allowed<br />
HeartKids to use Macies’ photograph<br />
on our memorial envelopes, a lasting<br />
legacy from such a short life.<br />
New HeartKid Bereavement Service<br />
HeartKids NSW will soon be able to offer financial help for members with Heart Angels by making a number of “gap”<br />
payments for Medicare approved bereavement counselling services (criteria apply). We hope to have this program running<br />
shortly and will advise when it is available.<br />
We wish to pass on our deepest sympathies to:<br />
The Parnell family in loving memory of Theodore Alexander.<br />
The Ryan family in loving memory of Emma Claire.<br />
We are thinking of all families whose loved ones anniversary falls at this time including these Heart Angels......<br />
Jake Collaros<br />
Ayden Peychers<br />
Willow Spring Lewis<br />
Hamish Howard<br />
Clara Manalo<br />
Phillipa Raine<br />
Andrew Bennett
<strong>OUR</strong> TEAM<br />
HEARTKIDS NSW BOARD 2012/13<br />
Chairperson<br />
Jayne Blake<br />
Vice Chairman<br />
Georgia-Kate Schubert<br />
Secretary<br />
Joe Murphy<br />
Treasurer<br />
Jackie Giles<br />
Public Officer/HR Advisor<br />
Erron Palmer<br />
Directors<br />
Jamon Thomas<br />
Kevin Baker<br />
Stephen Snowden<br />
EMPLOYEES<br />
Chief Executive Officer<br />
David Rose<br />
Dave.rose@heartkids.org.au<br />
0408 501 931<br />
Operations Manager<br />
Dawn Everingham<br />
dawn.everingham@heartkids.org.au<br />
0420 364 125<br />
Event and Fundraising Manager<br />
Bianca Ciccia<br />
Bianca.ciccia@heartkids.org.au<br />
0404 113 049<br />
Administration & Special Projects Coordinator<br />
Lisa Chamberlin<br />
lisa.chamberlin@heartkids.org.au<br />
0406 424 511<br />
Fundraising Coordinator<br />
Natalea Litchfield<br />
natalea.litchfield@heartkids.org.au<br />
0423 737 654<br />
Family Support Coordinator (Westmead)<br />
Kim Mackie<br />
kim.mackie@heartkids.org.au<br />
0406 424 627 or 02 9294 0800<br />
Family Support Coordinator (Westmead)<br />
Jenny Azzopardi<br />
jenny.azzopardi@heartkids.org.au<br />
0406 424 620<br />
REGIONAL REPRESENTATIVES<br />
North Sydney Representative<br />
Donna Hammond<br />
donnahammond2010@gmail.com<br />
0412 924 582 or 9969 4951<br />
Eastern Suburbs Sydney<br />
Vanessa Erickson<br />
mrsvanessae@gmail.com<br />
0407 064 262<br />
Sutherland Representative<br />
Shantelle O’Leary<br />
dare2dance@optusnet.com.au<br />
02 9576 1175<br />
South West Sydney Representative<br />
Kim Phillips<br />
kimandharry@bigpond.com.au<br />
0433 992 092<br />
Newcastle Representatives<br />
Kevin Baker<br />
kevin@mini-mods.com.au<br />
0408 588 565<br />
Allison Burgess<br />
Ally@mini-mods.com.au<br />
0421 332 968<br />
Hunter Representative<br />
Rebecca Johnson<br />
babyethan@live.com.au<br />
0411 441 857 or 02 4966 2783<br />
Mid-west Sydney<br />
Vacant<br />
Central West Representative<br />
Mardi Aplin<br />
lifestudio@bigpond.com<br />
0416 112 885<br />
ACT Representatives<br />
Sarah Henderson-Smith<br />
heartkidsact@gmail.com<br />
02 6242 7551<br />
Mid North Coast Representative<br />
Tracey Crutcher<br />
tr2430@hotmail.com.au<br />
0403 938 540<br />
Mid-South Representative<br />
Vacant<br />
Hills District Representative<br />
Daniela Gerlach<br />
drgerlach@optusnet.com.au<br />
0409 912 496<br />
Central Coast Representative<br />
Veronica Brown<br />
veronicab2103@gmail.com<br />
0409 071 171<br />
Wollongong Representative<br />
Sharon & Michael Rooke<br />
Sharon 0412 642 783<br />
Michael 0418 484 765<br />
smrooke@netspace.net.au<br />
Illawarra South Representative<br />
Vacant<br />
www.heartkidsnsw.org.au 15<br />
Coffs Harbour Representative<br />
David Stevens<br />
d.stevens@rubinstein-taybi.org.au<br />
0435 776 655<br />
Wagga Representative<br />
Katrina Brown<br />
patsy4heartkids@gmail.com<br />
0408 362 044 or 02 6926 6247<br />
New England New England Representatives<br />
Alison and Warren Sullivan<br />
bingun1981@bigpond.com<br />
0427 623 773<br />
CONTACT US<br />
HeartKids NSW<br />
PO Box 170<br />
Westmead Hospital,<br />
Westmead, NSW 2145<br />
www.heartkidsnsw.org.au<br />
02 9294 0800<br />
Yes! I’d like to become a supporter of<br />
Complete this form & post to:<br />
HeartKids NSW PO Box 170, Westmead Hospital<br />
Westmead NSW 2145<br />
HeartKids NSW is a registered charity and our services rely heavily<br />
on the wider community to be volunteers, sponsors and donors.<br />
Please send me more information about HeartKids NSW and in<br />
particular:<br />
Becoming a Volunteer<br />
Leaving a gift in my will<br />
Making a regular gift through my bank<br />
Participating in fundraising events<br />
Gifts can be sent to HeartKids NSW at the above address. Please<br />
complete the credit card authority and post.<br />
If you would like to contact us please call 02 9294 0800 or<br />
E-mail: mail@heartkidsnsw.org.au<br />
I would like to make a donation of $___________<br />
(Thank you, an official receipt will be sent)<br />
Cheque<br />
Visa<br />
Credit Card No:<br />
Money order - Payable to ‘HeartKids NSW’<br />
Mastercard<br />
Expiry Date: / CVC No:<br />
Cardholder Name:<br />
Signature:<br />
Mr/Mrs/Ms<br />
Street Address:<br />
Suburb/Town:<br />
State:<br />
Postcode:
MOTHER’S DAY LUNCH &<br />
PAMPER<br />
Thursday 02nd May 10am-<br />
2pm<br />
Children’s Hospital Westmead<br />
RSVP Jenny Azzopardi<br />
E: jenny.azzopardi@heartkids.<br />
org.au or 0406 424 620<br />
CALENDAR OF EVENTS<br />
CENTRAL COAST COFFEE<br />
MORNING<br />
Tuesday 23rd April 10am-12pm<br />
Springfield<br />
RSVP: Veronica Brown<br />
E: veronicab2103@gmail.com<br />
TINY TICKERS BALL 2013<br />
Save the date - Saturday 31st August, Westin Hotel Sydney.<br />
Earlybird Tickets now available, please go to our website for details<br />
www.heartkidsnsw.org.au<br />
If you would like to help out on the committee for this year’s ball please contact<br />
Bianca Ciccia on 0404 113 049 or bianca.ciccia@heartkids.org.au<br />
NEWCASTLE COFFEE<br />
MORNINGS<br />
McDonalds Edgeworth<br />
24th April, 29th May, 26th June<br />
10.30am<br />
RSVP ally@mini-mods.com.au<br />
or 0421 332 968<br />
HeartKids would like to Thank our SPONSORS & SUPPORTERS for<br />
their generous contributions and support.