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Marfan Syndrome

Marfan Syndrome: Need-to-Know Information for the Teacher

Marfan Syndrome: Need-to-Know Information for the Teacher

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TABLE OF<br />

CONTENTS<br />

1. Introduction and Overview of <strong>Marfan</strong> <strong>Syndrome</strong><br />

Introduction<br />

Overview of <strong>Marfan</strong> syndrome<br />

What is <strong>Marfan</strong> syndrome?<br />

Features of <strong>Marfan</strong> syndrome<br />

Living with <strong>Marfan</strong> syndrome<br />

2. Special Needs of a Student with <strong>Marfan</strong> <strong>Syndrome</strong><br />

Educational and Medical Plans<br />

Medical Issues, Impact on the Student at School, and<br />

Accommodations<br />

Cardiovascular System<br />

Skeletal System<br />

Ocular System<br />

Pulmonary System<br />

Neurological System<br />

Emergencies<br />

Social and Psychological Issues<br />

3. Special Resources for the PE Teacher<br />

Physical Education and Activity Guidelines<br />

Physical Education Goals for Children with <strong>Marfan</strong> <strong>Syndrome</strong><br />

4. Additional Resources<br />

Fact Sheets<br />

Emergency Care Plan<br />

Classroom Activities<br />

Publications (Print, CDs and DVDs)<br />

Other Resources<br />

Bibliography<br />

Credits<br />

Evaluation

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