Marfan Syndrome

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CLASSROOM ACTIVITY: CROSSWORD PUZZLE ANSWER KEY L U N G X X X X X G A S I X X X X 5 G E N E N K N N E 6 7 E P E C T U S C H R O M O S O M E U C L O P T 10 O R T H O P E D I S T L 11 C H I Y O T N 12 A O R T I C D I S S E C T I O N X 13 P N H S M A N E N A R 14 15 S E L A R A C H O D A C T Y L Y P C M R I L T O M O 16 F 17 C A R D I O L O G I S T G I N V O A R B U E G N 18 A O R T A S T I D 19 M M I I S L A L S T 20 H E A R T V A L V E S G F I U 21 22 L E N S A R E N T 23 S P I N E N 1 2 3 4 8 9
CLASSROOM ACTIVITY: WORD CLOUDS A “word cloud” is a visual representation of text. Creating word clouds is an easy, fun, and creative way to enforce key points of lessons, reading assignments, or research projects, and to incorporate technology into the classroom. The 21st Century Educational Technology and Learning Blog written by Michael Gordon includes a comprehensive list of how word clouds can be incorporated into the classroom. There are many free online word cloud generators, each with varying features. Tagxedo is one that provides numerous creative options and flexibility. Here’s a word cloud of celebrities and historical figures assocated with Marfan syndrome created by the NMF as an example. Celebrities and historical figures Confirmed to have Marfan syndrome or a related disorder: Jonathan Larson, Playwright Flo Hyman, Athlete Vincent Schiavelli, Actor Euell Gibbons, Naturalist Bradford Cox*, Musician Sir John Tavener*, Composer Suspected of having Marfan syndrome: Abraham Lincoln, U.S. President Mary Queen of Scots, Scottish Queen Niccolò Paganini, Musician Charles de Gaulle, French President Sergei Rachmaninoff, Musician Akhenaten, Pharaoh * Still living
Page 1 and 2: Marfan Syndrome: Need-to-Know Infor
Page 3 and 4: TABLE OF CONTENTS 1. Introduction a
Page 5 and 6: INTRODUCTION Marfan syndrome affect
Page 7 and 8: Features of Marfan syndrome Marfan
Page 9 and 10: 2 Special Needs of a Student with M
Page 11 and 12: Goals Both types of plans share the
Page 13 and 14: MEDICAL ISSUES, IMPACT ON THE STUDE
Page 15 and 16: Skeletal system continued Accommoda
Page 17 and 18: Pulmonary system Medical Issues •
Page 19 and 20: EMERGENCIES First and foremost, chi
Page 21 and 22: SOCIAL AND PSYCHOLOGICAL ISSUES Stu
Page 23 and 24: 3 Special Resources for the Physica
Page 25 and 26: Changes in connective tissue that c
Page 27 and 28: Classification of sports & activiti
Page 29 and 30: Guidelines and modifications for sa
Page 31 and 32: Musculoskeletal System The most obv
Page 33 and 34: Emergencies and how to recognize th
Page 35 and 36: Suggested physical activities and a
Page 37 and 38: Provide instruction in selecting ap
Page 39 and 40: 4 Additional Resources
Page 41 and 42: Marfan Syndrome Facts Continued fro
Page 43 and 44: How to Find Out if You Have Marfan
Page 45 and 46: CLASSROOM ACTIVITY: WORD SEARCH Mar
Page 47: CLASSROOM ACTIVITY: CROSSWORD PUZZL
Page 51 and 52: PUBLICATIONS PRINT Marfan Does Not
Page 53 and 54: PUBLICATIONS ON CD Marfan Syndrome:
Page 55 and 56: PUBLICATIONS ON DVD Marfan Syndrome
Page 57 and 58: OTHER RESOURCES Understanding Genet
Page 59 and 60: Living with Marfan syndrome III. Qu
Page 61 and 62: PRODUCED BY The National Marfan Fou

Marfan Syndrome

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