Implementation of ECHI in the Czech Republic
6. Danková: Implementation of ECHI in the Czech Republic - echim
6. Danková: Implementation of ECHI in the Czech Republic - echim
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<strong>Implementation</strong> <strong>of</strong> <strong>ECHI</strong> <strong>in</strong> <strong>the</strong><br />
<strong>Czech</strong> <strong>Republic</strong><br />
Extended Core Group Meet<strong>in</strong>g – JA <strong>ECHI</strong>M<br />
14.-15. March 2012<br />
Sarka Dankova, Jiri Holub<br />
Institute <strong>of</strong> Health Information and Statistics <strong>of</strong> <strong>the</strong> <strong>Czech</strong> <strong>Republic</strong><br />
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Content<br />
1. Basic <strong>in</strong>formation, IHIS CR<br />
2. <strong>ECHI</strong> NIT<br />
3. <strong>ECHI</strong> national web<br />
4. Pilot<br />
5. <strong>Implementation</strong> <strong>in</strong>to <strong>the</strong> national DPS<br />
6. Future<br />
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Institute <strong>of</strong> Health<br />
Information and Statistics CR<br />
- The IHIS was established <strong>in</strong> 1960. It is a governmental organization<br />
founded by <strong>the</strong> M<strong>in</strong>istry <strong>of</strong> Health. The <strong>in</strong>stitute is a component <strong>of</strong><br />
State statistical service<br />
- The ma<strong>in</strong> task <strong>of</strong> <strong>the</strong> Institute are:<br />
- <strong>the</strong> management and <strong>the</strong> coord<strong>in</strong>ation <strong>of</strong> <strong>the</strong> NHIS, <strong>in</strong>clud<strong>in</strong>g<br />
fur<strong>the</strong>r development and improvement<br />
- conduct<strong>in</strong>g <strong>of</strong> health surveys;<br />
- <strong>in</strong>ternational collaboration <strong>in</strong> <strong>the</strong> field <strong>of</strong> health statistics<br />
- Activities <strong>of</strong> <strong>the</strong> Institute and tasks <strong>of</strong> <strong>the</strong> NHIS are def<strong>in</strong>ed by:<br />
- Act No.20/1966 Coll. on National Health Care, till 31st March<br />
2012, from 1st April 2012 by Act 372/2012 Coll. on Health<br />
Services<br />
- Act No. 89/1995 Coll. on State Statistical Service<br />
- Act No. 101/2000 Coll. on Personal Data Protection<br />
The Institute consists <strong>of</strong> a central <strong>of</strong>fice and 4 regional <strong>of</strong>fices<br />
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National Health Information<br />
System <strong>of</strong> <strong>the</strong> <strong>Czech</strong> <strong>Republic</strong><br />
- Collection and process<strong>in</strong>g <strong>of</strong> <strong>the</strong> data concern<strong>in</strong>g<br />
health and health care<br />
- Methodological support<br />
- Management <strong>of</strong> health registers which are<br />
concerned with <strong>the</strong> most important diseases and<br />
health problems and conta<strong>in</strong> <strong>in</strong>dividual data<br />
- Dissem<strong>in</strong>ation <strong>of</strong> health <strong>in</strong>formation <strong>in</strong> <strong>the</strong> extent,<br />
which respects personal data protection and<br />
exploitation <strong>of</strong> this <strong>in</strong>formation for research<br />
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National Health Information<br />
System <strong>of</strong> <strong>the</strong> <strong>Czech</strong> <strong>Republic</strong><br />
NHIS provides <strong>in</strong>formation on follow<strong>in</strong>g areas<br />
- state <strong>of</strong> health <strong>of</strong> <strong>the</strong> population<br />
- activities <strong>of</strong> health service establishments<br />
- health service economics<br />
- socio–demographic characteristic <strong>of</strong> <strong>the</strong> population<br />
- liv<strong>in</strong>g and work<strong>in</strong>g conditions<br />
Data <strong>in</strong>cluded <strong>in</strong> NHIS are obta<strong>in</strong>ed:<br />
- through compulsory reports and mandatory notifications,<br />
- from health registers and <strong>in</strong>formation systems<br />
- from sample surveys <strong>of</strong> <strong>the</strong> health state <strong>of</strong> <strong>the</strong> population<br />
- from o<strong>the</strong>r sectors outside health (demographic, social<br />
and o<strong>the</strong>r statistics)<br />
- from <strong>in</strong>ternational databases<br />
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Basic Information<br />
IHIS CR is responsible for implementation <strong>of</strong> <strong>ECHI</strong> <strong>in</strong><br />
<strong>the</strong> <strong>Czech</strong> <strong>Republic</strong>. With<strong>in</strong> <strong>the</strong> National Health<br />
Information System IHIS<br />
- collects many health data, <strong>in</strong>cl. EHIS<br />
- dissem<strong>in</strong>ates health related data and <strong>in</strong>dicators<br />
via publications and DPS<br />
- reports health related data <strong>in</strong>to <strong>the</strong> <strong>in</strong>ternational<br />
databases<br />
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National <strong>Implementation</strong><br />
Team<br />
- NIT was created <strong>in</strong> September 2009, only IHIS and<br />
MoH members<br />
- Enlarged <strong>in</strong> 2010 - 10 members, 3 <strong>of</strong> <strong>the</strong>m from<br />
IHIS, 3 from MoH, 1 from NSI, 1 from health<br />
<strong>in</strong>surance company, 1 from NIPH, 1 from National<br />
Reference Centre<br />
- 1st meet<strong>in</strong>g was held <strong>in</strong> August 2010, second<br />
meet<strong>in</strong>g <strong>in</strong> May 2011<br />
- E-mail communication on relevant topics, news<br />
from <strong>the</strong> <strong>in</strong>ternational meet<strong>in</strong>gs etc.<br />
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<strong>ECHI</strong>M national web page<br />
• http://www.uzis.cz/cz/echim/en/<strong>in</strong>dex.html<br />
• Started <strong>in</strong> April 2010, updated <strong>in</strong> July-September 2011 - new revised<br />
documents were uploaded, <strong>the</strong> <strong>Czech</strong> version <strong>of</strong> <strong>the</strong> shortlist was revised<br />
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Pilot<strong>in</strong>g<br />
• In November 2010 <strong>the</strong> Pilot data Collection has been realized. We have<br />
calculated 14 <strong>in</strong>dicators from different data sources (self reported, annual<br />
report, registers).<br />
• Covered reference year – 2008, 2009, 2010 for some <strong>in</strong>dicators<br />
• For selected <strong>in</strong>dicators we <strong>in</strong>itiated use <strong>of</strong> new data source – data from <strong>the</strong><br />
General Health Insurance Company<br />
– Data are based on <strong>the</strong> adm<strong>in</strong>istrative data - evidence <strong>of</strong> <strong>the</strong> General Health<br />
Insurance System, which accounts more than 70 % <strong>of</strong> population. All cases when<br />
<strong>the</strong> care is provided to <strong>the</strong> patient and <strong>the</strong> given diagnose is reported as <strong>the</strong><br />
reason why <strong>the</strong> care is provided are counted here (ambulatory as well as <strong>in</strong> patient<br />
care). Additionally dur<strong>in</strong>g <strong>the</strong> process<strong>in</strong>g <strong>the</strong> data are filtered <strong>in</strong> order to have<br />
number <strong>of</strong> persons only (<strong>in</strong>stead <strong>of</strong> cases)<br />
– This source <strong>of</strong> data was used for estimation <strong>of</strong> register based prevalence <strong>of</strong><br />
Diabetes, Depression, Asthma, COPD<br />
• The f<strong>in</strong>al dataset was sent to <strong>the</strong> Robert Koch Institute (<strong>the</strong> coord<strong>in</strong>at<strong>in</strong>g<br />
<strong>in</strong>stitute <strong>of</strong> <strong>ECHI</strong> Pilot). Pilot data <strong>in</strong>cl. <strong>the</strong> detailed metadata have been<br />
revised <strong>in</strong> 2011 (change <strong>in</strong> NIT team), completed and sent to RKI <strong>in</strong> <strong>the</strong> mid<br />
October 2011<br />
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National DPS<br />
• First step <strong>of</strong> implementation <strong>of</strong> <strong>in</strong>dicators <strong>in</strong>to <strong>the</strong><br />
national data presentation system has been done <strong>in</strong><br />
November 2011. First, we identified <strong>the</strong> <strong>ECHI</strong> <strong>in</strong>dicators <strong>in</strong><br />
current content <strong>of</strong> <strong>the</strong> national version <strong>of</strong> DPS and,<br />
accord<strong>in</strong>g to <strong>the</strong> recommended <strong>in</strong>structions, we used 3<br />
simple ways <strong>of</strong> "<strong>in</strong>tegration" <strong>of</strong> <strong>ECHI</strong> <strong>in</strong>to our DPS<br />
database:<br />
– A) Add<strong>in</strong>g reference to <strong>ECHI</strong>M <strong>in</strong> Help text and <strong>in</strong>clud<strong>in</strong>g list <strong>of</strong><br />
<strong>in</strong>dicators which match <strong>ECHI</strong> <strong>in</strong>dicators<br />
– B) Includ<strong>in</strong>g "(<strong>ECHI</strong>)" at <strong>the</strong> end <strong>of</strong> titles <strong>of</strong> relevant <strong>in</strong>dicators<br />
– C) In "Select parameters" w<strong>in</strong>dow sav<strong>in</strong>g groups <strong>of</strong> <strong>ECHI</strong> <strong>in</strong>dicators<br />
(<strong>ECHI</strong> "w<strong>in</strong>dows") which can be quickly loaded by users<br />
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National DPS<br />
• Ad B) In total “<strong>ECHI</strong>” has been added to more than 100<br />
<strong>in</strong>dicators <strong>in</strong>cluded <strong>in</strong> <strong>the</strong> database<br />
• some <strong>of</strong> <strong>the</strong>m were marked with <strong>ECHI</strong>* - <strong>the</strong>se <strong>in</strong>dicators<br />
are not exactly same as <strong>ECHI</strong> <strong>in</strong>dicator, but differ slightly<br />
<strong>in</strong> some aspect<br />
– e.g. 20. Standardized death rate (per 100,000 <strong>in</strong>habitants),<br />
malignant neoplasms (ICD-10 codes C00-C97) – <strong>in</strong> <strong>the</strong> national<br />
DPS we have neoplasms <strong>in</strong> total, not only malignant ones<br />
• This version <strong>of</strong> DPS is used for <strong>in</strong>ternal purposes and is<br />
distributed to national (and regional) public health<br />
<strong>in</strong>stitutes and also to everybody, who asks for it<br />
• National DPS which is uploaded on <strong>the</strong> <strong>in</strong>ternet is based<br />
on different s<strong>of</strong>tware and implementation <strong>of</strong> <strong>ECHI</strong><br />
<strong>in</strong>dicators is not so easy here<br />
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National DPS<br />
Mark<strong>in</strong>g <strong>ECHI</strong><br />
<strong>in</strong>dicators<br />
Groups <strong>of</strong> <strong>ECHI</strong><br />
<strong>in</strong>dicators<br />
- Demography<br />
- Mortality<br />
- Hospitalisation<br />
- Neoplasms – M<br />
- Neoplasms – F<br />
- Health Care<br />
- Infectious diseases<br />
<strong>in</strong> total 7 groups <strong>in</strong>troduced, due to <strong>the</strong> limited number <strong>of</strong> items which can be<br />
<strong>in</strong>cluded <strong>in</strong> each group<br />
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Problems<br />
• Problems and difficulties we face at <strong>the</strong> national level are very similar to<br />
problems observed at <strong>in</strong>ternational level<br />
– Problémy na národní úrovni obdobné jako na<br />
mez<strong>in</strong>árodní (pouze pár nadšenců, jen formální<br />
podpora, nedostatek f<strong>in</strong>ancí na zavedení nových dat,<br />
obtížné získaní potřebných dat ze ZP);<br />
– Lack <strong>of</strong> support, support is only formal<br />
– Lack <strong>of</strong> f<strong>in</strong>ances<br />
– Lack <strong>of</strong> experts who could ma<strong>in</strong>ta<strong>in</strong> national activities related to <strong>ECHI</strong><br />
• It is quite difficult to enlarge <strong>the</strong> number <strong>of</strong> <strong>ECHI</strong> <strong>in</strong>dicators covered by <strong>the</strong><br />
national data sources, as we can only exploit exist<strong>in</strong>g data<br />
– For <strong>in</strong>troduction <strong>of</strong> new data collection we need money and legislative support<br />
– Příliš mnoho databází (národní databáze, WHO-HFA,<br />
OECD Health Data, Eurostat – New Cronos, UN, …)<br />
• For <strong>the</strong> national purposes it is not necessary to have only <strong>the</strong> national <strong>ECHI</strong><br />
database (<strong>in</strong>cl. Regional data), but it is also important to have <strong>in</strong>ternational <strong>ECHI</strong><br />
database, where data for given country can be found and various countries can<br />
be compared – Údržba, rozvoj, potřeba expertů<br />
• At <strong>the</strong> <strong>in</strong>ternational level it is still not very clear how detailed data (e.g. For<br />
NUTS2, by SES, by age) will be collected. For number <strong>of</strong> <strong>ECHI</strong> <strong>in</strong>dicators which<br />
are available from <strong>the</strong> <strong>in</strong>ternational databases at agregated level more detailed<br />
data is not available<br />
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Future<br />
• Collaboration with <strong>the</strong> health <strong>in</strong>surance company(ies)<br />
– Follow<strong>in</strong>g <strong>the</strong> data collection made dur<strong>in</strong>g <strong>the</strong> pilot we plan to use regularly<br />
this data source <strong>in</strong> order to compute selected <strong>in</strong>dicators<br />
• Ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g <strong>the</strong> national presentation tools (EHIS web pages)<br />
• Introduction <strong>of</strong> new<br />
web based application<br />
for presentation <strong>of</strong><br />
data – supplement to<br />
national DPS<br />
• Instant Atlas<br />
– To present several<br />
groups <strong>of</strong> related<br />
<strong>in</strong>dicators<br />
– To produce <strong>in</strong>teractive<br />
graphs, maps, tables<br />
– Possibility <strong>of</strong><br />
<strong>in</strong>troduction <strong>of</strong> <strong>ECHI</strong><br />
not currently covered<br />
by DPS<br />
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