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BRAIN GO BOOM!<br />

A book as remembered<br />

.<br />

by a giant, ruptured<br />

brain aneurysm survivor<br />

Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

John Cooper, RN<br />

Page 1 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Brain Go BOOM!<br />

Copyright ©2015 John Cooper<br />

All rights reserved.<br />

This book is protected by copyright. No part of it may be reproduced, stored in a retrieval<br />

system, or transmitted in any form or by any means, electronic or otherwise, including email<br />

forwarding attachments, mechanical, photocopying, recording, scanning or otherwise, without<br />

the prior written authorization of the author.<br />

ISBN# 978-1-4951-5248-1 (eBook)<br />

Warning:<br />

This book is best read with an open mind. It may cause the reader to cry, laugh or possibly<br />

devise their own ideas on how to help others. Helping others may lead to high states of<br />

euphoria which is considered to be highly beneficial to the reader’s wellbeing. BOOM!<br />

Disclaimer:<br />

Neither the information in this book, the author, nor anyone mentioned within this book is<br />

intending to use the information as a substitute for the medical advice of physicians or for selfdiagnosis<br />

or treatment.<br />

Readers who decline to consult a medical professional assume all risks of any or all injuries. The<br />

reader should consult a physician in matters relating to his/her health and particularly with<br />

respect to any conditions that may require diagnosis or medical attention.<br />

This book is a work of non-fiction. I have tried my best to recall events, locales and<br />

conversations. After much research, it was recommended that I refrain from use specific names<br />

in order to maintain anonymity. In some instances, I may have changed the names of individuals<br />

and places; I may have changed some identifying characteristics and details such as physical<br />

properties, direct quotes, occupations and places of residence. Thank you for understanding.<br />

ISBN# 978-1-4951-5248-1<br />

(eBook)<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

This book is dedicated to my daughters.<br />

To my oldest daughter, M, for giving me the inspiration to write this book;<br />

to my youngest daughter, L, for understanding that daddy has a boo-boo in his head.<br />

This book is also dedicated to my wife, Laura, for her unconditional love<br />

and for believing in me; for believing in us!<br />

I love you all, to infinity and beyond.<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Contents:<br />

Mission Statement<br />

Chapter 1: “Now boarding anyone with special needs or children under 5 years of age.”<br />

Chapter 2: The Brady Bunch Helicopter<br />

Chapter 3: “Hey hon, it’s me. They want to do surgery. They’re going to have to take part of<br />

my skull off. I love you. I’ll be alright.”<br />

Chapter 4: The Angel and Johnny Cash<br />

Chapter 5: Big, Beautiful, Blue Eyes<br />

Chapter 6: Cleanup in Aisle 4...Oops, I Did it Again<br />

Chapter 7: Proud<br />

Chapter 8: Now Paging Doctor Robot<br />

Chapter 9: “That’s What Friends Are for...Keep Smiling, Keep Shinning”<br />

Chapter 10: My African Princess<br />

Chapter 11: Am I Having Another Brain Aneurysm?<br />

Chapter 12: “Eleanor, stop buying that Tidy Bowl for the toilet, it’s turning my balls blue!”<br />

Chapter 13: The Race is on With Apollo Ono<br />

Chapter 14: Sugar with Some Rocky and Water Bottles<br />

Chapter 15: No Children Allowed in the ICU<br />

Chapter 16: Time to Pack up and Go Corky<br />

Chapter 17: My New Dwelling<br />

Chapter 18: The Schedule and the Shower<br />

Chapter 19: Walking and Putting Pieces of the Puzzle Back Together<br />

Chapter 20: Finally, I Get to See my Girls<br />

Chapter 21: Visitors Die Down; But it’s Hoagie Time<br />

Chapter 22: I’ve Got my Walking Papers…RED LIGHTS<br />

Chapter 23: Home<br />

Chapter 24: Now Home, New Life, New Rules, and New Challenges<br />

Chapter 25: Church<br />

Chapter 26: The Driver’s License Center (DMV)<br />

Chapter 27: The Party—It Couldn’t Have Come at a Better Time<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 28: Keeping On…Groundhog Day<br />

Chapter 29: “Let’s Talk About Sex, Baby”<br />

Chapter 30: Squirrels!!<br />

Chapter 31: “On the Way to Cape May”<br />

Chapter 32: Johnny’s Getting His Skull Back<br />

Chapter 33: Yellow Lights<br />

Chapter 34: Driving Miss Daisy Never Went Like This<br />

Chapter 35: DABDA: Denial, Anger, Bargaining, Depression, Acceptance<br />

Chapter 36: “Does your cell phone work? Can I borrow it?”<br />

Chapter 37: Let’s Pause for Station Identification<br />

Chapter 38: “Oh Johnny Boy”<br />

Chapter 39: 18 Month Plateau: “That is where you will probably be for the rest your life.”<br />

Chapter 40: Disney Cruise: “Why is Daddy Crying?”<br />

Chapter 41: SSDI<br />

Chapter 42: Aneurysm Support Group<br />

Chapter 43: “Where is Johnny at?”<br />

Chapter 44: The Role Reversal<br />

Chapter 45: “You Need to Write a Book, John”<br />

Chapter 46: Why is it so Complicated to Give Back and Pay it Forward?<br />

Chapter 47: I Had No Idea<br />

Chapter 48: Botulism<br />

Chapter 49: Changes<br />

Chapter 50: Funeral Songs<br />

Chapter 51: Losing Weight, Popping Tags and Concussions<br />

Chapter 52: “99 Bottles of Beer on the Wall”<br />

Chapter 53: My 4 F’s<br />

Acknowledgements<br />

Resources<br />

Closing Note<br />

About John<br />

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Author/Survivor: John Cooper<br />

“I am on my way,<br />

I can go the distance,<br />

I don’t care how far,<br />

Somehow I’ll be strong.”<br />

(Disney’s Hercules movie)<br />

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Author/Survivor: John Cooper<br />

M<br />

Mission Statement:<br />

y original objective in completing the complex task of writing a book after surviving a<br />

giant, ruptured brain aneurysm was to share my version of what happened with only my<br />

family and friends.<br />

As I became further engrossed in reliving and writing my story, I began to realize the great<br />

injustice to me, and possibly others, if I didn’t share this beyond my family and friends,<br />

especially to those who had suffered any sort of brain injury. I am one of the lucky ones;<br />

perhaps this story will speak for those who are not able to or for those who cannot write about<br />

their story. Everyone’s circumstances differ and my purpose became clear: to shed some light<br />

to other families and friends who may not understand what their loved ones may be<br />

experiencing.<br />

The first two-and-a-half years after my surgeries were pure hell! Did it get better? The answer<br />

to this can be found by reading about my journey. I was eerily hesitant about hanging out my<br />

dirty laundry and personal information, but something clicked inside: “This is as real as it gets,<br />

John. It’s not all about you, so share it and put your pride aside.” This book represents my<br />

recollection, opinions and personal view of what happened to me and my family after my brain<br />

injury. Love it or leave it, it’s what happened.<br />

The scope of my objective unexpectedly expanded during my several thousand hours of resting.<br />

Commercials for the Wounded Warrior Project aired. I cried during every commercial and felt a<br />

deep sorrow for each survivor’s story.<br />

I came out on the better end of a brain injury, but why? BOOM! This was my opportunity to<br />

pay it forward. If I offer my book at no charge and, instead, encourage readers to make a<br />

donation to the Wounded Warrior Project, my mission will be complete.<br />

I hope you enjoy reading it. I encourage you to join me in supporting our wounded heroes by<br />

making a donation to the Wounded Warrior Project. Will YOU pay it forward? I believe you<br />

will.<br />

God speed and happy reading.<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter One:<br />

“Now boarding anyone with special needs or children under 5 years of age.”<br />

L<br />

ooking back, I can’t tell if things are clearer, hazier or if I have blocked out certain events<br />

to maintain my own sanity. The past five years have been a complex culmination of the<br />

torments of hell, coupled with some of the most euphoric highs I have ever experienced. If<br />

gingerly mixed into a pie, with the most expensive and exotic ingredients the world has to offer<br />

and baked perfectly at 325 degrees for thirty minutes by Wolfgang Puck himself, no one would<br />

dare take a bite of this disaster—and I mean nobody!<br />

It started off with an early flight home from Orlando to Philadelphia on January 25, 2010,<br />

from “the most magical place on Earth.” You’ve got it, Walt Disney<br />

World.<br />

We are Disney fanatics. My parents live near Orlando and my<br />

mother works for Disney. My wife, Laura, and I and our two daughters,<br />

L age two, and M age eight at the time, ended our fabulous vacation and<br />

kissed my parents goodbye. But, let me backtrack a minute. On the first<br />

day of our trip I had an eerie premonition that this was the last time I<br />

was going to see my father. He had been fighting several health issues<br />

over the last couple years and for most our trip, that strange feeling had<br />

consumed me. It overtook my emotions and I found it very hard to say<br />

goodbye to him that day.<br />

As we boarded Disney’s Magical Express bus at Disney’s Saratoga Springs Resort & Spa<br />

and left for the airport, I wasn’t feeling quite myself. I contracted a bad stomach bug with<br />

diarrhea on that last hot, humid, sticky day and chalked it up to that. And, as luck would have<br />

it, Laura and L were sick too.<br />

On the plane, Laura was sitting across the aisle from me vomiting into the small plastic<br />

air sickness bag while L sat on my lap doing the same. When she missed the bag, the residual<br />

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Author/Survivor: John Cooper<br />

vomit slowly traveled down my legs like warm, slow-moving lava. If it wasn’t for the super<br />

absorbency of my bulky, white, cotton socks it would have oozed its way into my sneakers.<br />

They soaked up the thick, vitreous solution from my daughter’s upper bowels quite well. I felt<br />

horrible and wished that I could switch places with her so I would be the sick one. I kept<br />

rubbing her back and wiping her face while trying to hold her hair back from falling into the<br />

vomit-filled bag—the danger zone.<br />

M sat at the window seat with a look of fear, disgust and angst. She turned away to look<br />

out the window, put her earphones in and played her la, la, la, this isn’t happening game. She<br />

cannot tolerate the site of blood, boogers or vomit. I, on the other hand, was swallowing my<br />

Imodium AD pills like Tic-Tacs to hold back my lower bowels from exploding.<br />

I heard that loud and familiar ping. You know the one; the ping that notifies flight<br />

attendants that the plane has descended below the 10,000 foot altitude indicating we would soon<br />

be reaching our final destination. This is when they tell passengers, “At this time, we ask that<br />

you please turn off all electronics, fasten your seatbelts and place your tray tables and seats in<br />

their upright positions.”<br />

Shortly after that ping, I felt something squish in my head, followed by a horrific<br />

headache and nausea. I did everything in my power to hold back my vomit. I performed deep<br />

breathing exercises and tried to distract myself all the while rubbing L’s back to comfort her. I<br />

was about to cross the line of what had probably never been seen before in aviation history. I<br />

had to take control of what was about to take place. I kept my focus on the dark blue, carpeted<br />

bulkhead wall with the Westwest logo on it. I kept thinking, “You can do this John. We are<br />

descending and it won’t be too much longer.” Fifteen minutes, two bags of my daughter’s vomit<br />

and a pair of vomit-saturated socks later, Laura knew something was wrong. She could see it in<br />

my face. “You just go. I’ll get the bags and the girls!”<br />

BOOM! I bolted off the plane’s walkway like Carl Lewis in the 1984 Summer Olympics<br />

and frantically made my way into the men’s bathroom at the Philadelphia (Philly) Airport. I<br />

kicked open the last stainless steel stall door like a SWAT team member and spewed an ungodly<br />

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Author/Survivor: John Cooper<br />

amount of projectile vomit. It felt like Hulk Hogan was driving a railroad spike with a sledge<br />

hammer into the right side of my skull. For the next ten minutes, I spewed nothing less than,<br />

what seemed to me, a consistent forceful flow of 100 PSI projectile vomit. My obvious goal was<br />

to hit the toilet, but I hit the toilet, the floor, and even the walls. It was everywhere! Not even in<br />

my college- or club-going days did I manage to leave so much carnage in one place.<br />

Think it’s done? Not even close my squeamish readers. With all of that exerted pressure,<br />

I had to quickly change gears and sit down on a toilet for some much needed diarrhea bursts<br />

from the lower G.I. bug I had contracted earlier. I quickly jimmied over to another stall because<br />

there was no way in hell I was using the first stall that I had already decimated. I don’t know<br />

how I held it in while I was vomiting! I quickly jumped up, ran back to the original stall and<br />

continued with another violent vomiting spree for another five minutes. I bounced back to the<br />

other stall again, undid my pants and sat for yet another session of lower bowel bursts. What a<br />

hot mess! As things finally settled down, I cleaned myself up and started to exit. A man about<br />

my age, 39ish, looked at me then yelled out, “Yeah, you can come in. I think he’s all done!” I<br />

told him, “I wouldn’t go in there if I were you.” I was embarrassed and humiliated at the time,<br />

but that was the least of my problems compared to what was next. When I left, I looked around<br />

and tried to find a janitor so I could tip him a $20, but couldn’t find one. Remember this is the<br />

Philly airport.<br />

Laura loaded up the kids and bags in the car. I insisted on driving home because I am<br />

bullheaded, but at that moment I felt better, too. We were driving on Route 476 towards the<br />

Turnpike when very slowly and insidiously I started to go blind. Darkness slowly started to<br />

close in from the outer edges of my eyes until my vision was dangerously limited. It was like<br />

looking out of a yellow #2 pencil eraser head. I was already in the process of pulling over and<br />

stopping when things went completely dark!<br />

I told Laura, “I just can’t see. Can you drive? Just let me lay down; don’t worry about it.<br />

I’ll be fine, I just need to rest.” She was frantic as she continued to drive home. She called her<br />

mother and asked if she could come over to our house and help out. Forty-five minutes later, as<br />

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Author/Survivor: John Cooper<br />

we pulled into our driveway, I opened my eyes and somehow my vision had returned. It was<br />

undoubtedly blurry, but it had returned. My head, however, was killing me.<br />

As Laura emptied the luggage from the car, my mother-in-law was there to help get the<br />

kids settled in. That was the moment she started wearing, what we now jokingly call, her<br />

Wonder Woman Cape. She would wear this for quite some time and still does today. She is the<br />

best mother-in-law anyone could ask for. She is more like a friend to me than anything else.<br />

I refused to go to the Emergency Room (ER), as I had convinced myself that this was a<br />

severe migraine coupled with a stomach virus, so why go? I considered myself to be a sensible<br />

and reasonably educated individual. I graduated college as a Registered Nurse (RN), but not for<br />

one fleeting moment did I think the worst. I thought “Man up sissy pants and just take it.” Most<br />

nurses I know would act the same way. All of my medical knowledge and training went out the<br />

window.<br />

I didn’t sleep that night and somehow ended up on my bedroom floor in the fetal position<br />

and made sure I hopped up before Laura could see me. Growing up, I remembered seeing a<br />

movie around Easter time when Jesus was being nailed to the cross. The Romans pounded<br />

spikes into His hands and feet. I was living this pain, but on the right side of my head. The<br />

feeling of that pounding spike being driven into my skull was more repetitive and the pain’s<br />

intensity was steadily increasing beyond belief. For some reason, I related my pain to the torture<br />

that Jesus experienced. By no means am I trying to compare myself to Jesus. I am merely<br />

giving my personal and excruciatingly painful interpretation of the pain. When a painful surge<br />

came on, I just kept thinking about Jesus and the cross. That pounding and driving pain was<br />

unforgiving.<br />

I finally heeded Laura’s advice and saw my doctor. I told the doctor that it felt like there<br />

was a vice grip with a spike attached to it and it was being cranked down tightly into my skull.<br />

She diagnosed me with a migraine, prescribed Fioricet for pain, and sent me on my way. (By the<br />

way, she is no longer my doctor.) “Good. I’m right, it’s just a migraine.”<br />

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Author/Survivor: John Cooper<br />

At this time in my life, I was a sales rep for a database software company based out of<br />

San Francisco, CA, and my territory stretched from New York City to Washington, DC with<br />

some 135 named accounts. It was a good-paying job with high stress, minimal sleep, and a<br />

packed travel schedule. That day, I was scheduled to be on a conference call so while driving<br />

home from the doctor’s office, I called in. Because I was extremely hypersensitive to light,<br />

especially the sun, I had to completely cover my right eye as I squinted out of my left eye to<br />

drive home, all while listening to what my client in New York City needed from me. My boss,<br />

Bob, said “John, you have to get this sale wrapped up to ensure we get it counted in for this<br />

quarter.” “I will,” was my reply.<br />

Over the next few days, Laura and other family members pleaded for me to go to the ER<br />

and I flat out refused to comply with their requests. I put several calls into my doctor and,<br />

unfortunately, the office nurse repeatedly pushed me off. Despite my insistent requests to speak<br />

directly with my doctor, the nurse would not patch me through. All I wanted was an<br />

authorization to go to the ER because I was under the impression that my health insurance<br />

coverage required one. After all, it’s only a migraine, right? I think it was after my fifth call,<br />

with no returned calls from my doctor, that I gave in and told Laura, “After I take a shower<br />

tomorrow morning, if it’s not better, I promise to go to the emergency room.” This was<br />

Saturday, January 30 th . Mind you, I flew home from Florida on Monday January, 25 th —5 days<br />

earlier.<br />

That Saturday was also the same day of our annual Ancient<br />

Order of Irishman’s Irish Pub Crawl. My best friend, Matt, and I<br />

organized the event in Philadelphia. However, that would not happen<br />

for me that day. I kept thinking about the Pub Crawl the year before<br />

when Matt and I set up a little surprise for the guys. We coordinated<br />

our estimated time of arrival with one of the bar owners. When we<br />

were about fifteen minutes from arriving, we called the bar and asked<br />

the owner to prepare our surprise. We wanted the guys to see<br />

something special upon our arrival: 55 pints of perfectly poured pints of Guinness! Everyone was<br />

blown away and couldn’t believe their eyes. It was a beautiful sight.<br />

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Author/Survivor: John Cooper<br />

The next 2 1/2 days were a bit scattered and sketchy, but please keep in mind that this<br />

book is written from how I remember and how I am recalling the events.<br />

Sunday, January 31 st , 2010, I showed up at my local hospital, Hospital D, and was<br />

immediately sent back for a CAT scan (Computerized Axial Tomography) of my head. As they<br />

laid me down flat for the scan, the blood rushed to my head; I was screaming bloody murder. I<br />

felt like I was in a medieval torture chamber. They completed the CAT scan and before I knew<br />

it, I was whisked away in a loud, bumpy, speeding ambulance to Hospital A. They heavily<br />

medicated me and my memory faded in and out. I was out cold. When I woke up I was more<br />

stoned than Jimmy Hendrix at Woodstock.<br />

I remember that someone shaved my pubic hair before they inserted a catheter into my<br />

groin area. They inserted it into my femoral artery and injected a dye to perform the MRA<br />

(Magnetic Resonance Angiogram). They were checking for leaks or ruptures, as the dye travels<br />

through the arteries. Any abnormalities are picked up on a computer screen. I recall hearing<br />

someone say, “Oh shit!” BOOM! The “Oh shit” they were referring to was from the horrific<br />

image they saw on the screen. There was a giant rupture of the right portion of my MCA<br />

(Middle Cerebral Artery) causing an immense amount of bleeding in the subarachnoid space in<br />

my brain, known as a SAH (Subarachnoid Hemorrhage). The blood was no longer contained<br />

within an artery. It was uncontrollably leaking around the limited real estate of open space<br />

available within in my brain. This, by the way, was the root cause of my projectile vomiting and<br />

my horrific thunderclap headaches; commonly referred to as the worse headache of my life.<br />

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Author/Survivor: John Cooper<br />

Chapter 2: The Brady Bunch Helicopter<br />

I<br />

recall looking up at the underside of two long helicopter blades, one of which drooped down<br />

over me in its stationary position. There are, obviously, more than two blades on any<br />

helicopter, but that’s all I saw. I was carefully wheeled into the helicopter where there was a<br />

strong, heavy fuel odor that lingered (probably from its flight in to pick me up) which smelled<br />

like an old car’s exhaust. I was heavily medicated and I knew that things were not looking good.<br />

I wasn’t scared; I should have been, but I wasn’t.<br />

Someone asked me, “How much do you weigh?” I was thinking, What, is this thing not<br />

going to hold me? “I weigh about 215 pounds and I’m about 6 feet tall.” Did they need to know<br />

this for weight distribution or something? The next thing I recall is taking off as the helicopter<br />

vibrated and shook. I associated it with those vibrating beds I heard about in those cheesy, cheap<br />

motel rooms back in the 1960’s and 1970’s. I had never been on a helicopter nor had I ever<br />

taken any heavy narcotics and been tightly strapped to a gurney. This wasn’t how I wanted to<br />

experience my first helicopter ride. I didn’t know how long the trip was going to be.<br />

During this first part of my journey, while looking at the clear blue sky through the wide,<br />

large back door window, I thought about my life; or I should say, my life thought about me. I<br />

experienced vivid flashbacks. It was as if I was shooting a film and watching it through the<br />

viewer.<br />

My flashback started off with me, my parents and my sister shopping at Sears on<br />

Roosevelt Boulevard and Adams Avenue near my childhood home. If we were well behaved or<br />

didn’t get lost (like me hiding in the large circular clothes racks so my parents couldn’t find me<br />

versus actually getting lost or kidnapped) we got a soft pretzel on the way out. The pretzels were<br />

always soft, warm and salty.<br />

Then, I was at my Nanny Kelly’s house on a Sunday morning, smelling the stale cigarette<br />

smoke and fresh coffee brewing in the kitchen while she told hilarious stories that would make a<br />

grown man pee his pants.<br />

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Author/Survivor: John Cooper<br />

Then, I was rolling Hot Wheels on the linoleum floor in the basement at my Pop-Pop<br />

Cooper’s house on Thanksgiving Day with my cousins Ronny and Chris.<br />

Then, I was seeing myself at twelve years old, playing on my<br />

Uncle Bob’s baseball team, successfully stealing and sliding into<br />

home which helped us win the Devlin League Championship Game 4<br />

to 3 at Summerdale Field.<br />

I next flashed back to that same day when we received a ghastly<br />

phone call from my Aunt Alice that my cousin, Tommy, was in a bad<br />

car accident. He died shortly thereafter. I loved Tommy. He would<br />

spend several hours repainting Hot Wheels with me and taught me<br />

about life through his eyes. I remember his Playboy collection being<br />

quiet amazing. Tommy was a sincere and loving individual. I miss<br />

him. I wondered if I would soon be seeing him and my other family members that died. If my<br />

family and friend’s faces at the hospital were an indication of this, I would have guessed, Yes, I<br />

would be seeing them soon.<br />

I was abruptly awakened from my<br />

flashbacks as the nurse on the helicopter loudly<br />

said, “We’re almost there.” I thought, “Where is<br />

almost there?” and then dozed off. In what<br />

seemed like an instant, I was on the roof proposing<br />

to Laura.<br />

I then flashed back to the delivery room of M’s birth on October 22, 2001 at 9:41 pm.<br />

Natalie Merchant’s “Wonder” was playing in the background. (Incidentally, she was born at<br />

Hospital A where I just flew from.)<br />

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Author/Survivor: John Cooper<br />

Next, I was standing with Laura and holding M in a car seat carrier in a large, cold,<br />

vacant house, but with a great open floor plan. We bought that house and made it our warm and<br />

loving home.<br />

After that, I was at L’s birth saying, “I am your father” in Darth Vader’s voice, while<br />

holding her for the first time.<br />

I pictured my whole family at Christmas and remembered how my girls used to sleep on<br />

my chest when they were infants. I wondered what my kids and wife were doing at that moment.<br />

The helicopter jolted and woke me up. We veered to the left and right several times and<br />

the tail tipped downward. I was looking out the back window and remember thinking, “Holy<br />

crap! I am going to fall out!” It felt like I was in the back seat of the Brady Bunch station wagon<br />

going ninety miles per hour. I recall looking down and noticing some familiar Philly landmarks.<br />

I saw the copper and slate peaks atop the roofs of several churches in the Port Richmond area. I<br />

can see it as vividly today as I did back then, even though I was under copious amounts of<br />

medication.<br />

We decelerated, hovered and teetered right to left from the<br />

gusty winds. As I felt my heart pounding through my chest, the spikedriven<br />

pain in my brain intensified with each quick blade rotation. The<br />

nurse said “We’re here,” and the back door of the Brady Bunch<br />

helicopter flung open. They rolled me out onto the frigid, gusty<br />

rooftop of Hospital J. I peered down and through the metal grate<br />

catwalk and saw the street about ten or fifteen stories below me! I felt like I was going to roll off<br />

the rooftop. I thought, “This would be one hell of a way to die, rolling off this damn roof<br />

strapped to this gurney. Jesus, I hope these guys are holding on tight.”<br />

It was the beginning of February and the wind fiercely whipped around me, but it was a<br />

beautiful, sunny, clear day. The frigid air pierced my nose as I inhaled, even with the oxygen<br />

mask on. They expeditiously rolled me into an elevator, then across the street and into another<br />

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Author/Survivor: John Cooper<br />

building. (I recently visited Hospital J and walked through an alleyway to<br />

take a shortcut. I stopped dead in my tracks. My jaw dropped and this<br />

flashback hit me square in the face. I remember going through these doors<br />

as if it were yesterday. It was the ambulance entrance for patients that are<br />

flown in by a helicopter.) I remember shivering and, from what seemed to<br />

me, the staff was upset that the doors weren’t opening quick enough to get<br />

me in there.<br />

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Author/Survivor: John Cooper<br />

Chapter 3: “Hey hon, it’s me. They want to do surgery. They’re going to<br />

have to take part of my skull off. I love you. I’ll be alright.”<br />

“J<br />

ohn you have a giant, ruptured brain aneurysm. We are going to have to go into your<br />

brain and clip the bleeding artery. We have to remove part of your skull to do this<br />

(Craniotomy). Your skull won’t be put back in right away because of the swelling afterwards.”<br />

I asked the doctor, “How bad is it?” He hesitantly shook his head up and down and with a<br />

smirk-like frown I think he said, “I’m not going to lie, I’ve seen better, John.” My own brain<br />

was literally killing me. In my heavily medicated state I said, “Sure go ahead! Let’s do this.” I<br />

looked around and I didn’t see my wife, or anybody for that matter. Where the hell was<br />

everyone? This is some major stuff here!<br />

Generally, aneurysms are measures by millimeters. When they<br />

are giant, they convert or refer to them in centimeters. I had 50<br />

millimeter by 40 millimeter giant, ruptured brain aneurysm. If you<br />

are wondering what 40 millimeters looks like inside of a brain,<br />

imagine a Grade A large egg; it is approximately 30 millimeters in<br />

length. Now crack that egg and…BOOM!<br />

BOOM!<br />

4 cm x 5 cm<br />

(picture to scale)<br />

4 centimeters = 1.75” and 5 centimeters = 1.97 inches<br />

The doctor handed me my phone and helped me call Laura with the preset number under<br />

my favorites. I told her, “Hey hon, it’s me. They want to do surgery. They’re going to have to<br />

take part of my skull off. I love you. I’ll be alright.” Laura was frantic and insisted that she talk<br />

to the doctor immediately. I can’t remember much right after that. Unbeknownst to me, while I<br />

was in the helicopter, she and the rest of my family were making the painstaking, frantic drive<br />

from Hospital A to Hospital J with a copy of my MRA, CAT scan and other tests. The Brady<br />

Bunch helicopter was just a hell of a lot faster.<br />

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Author/Survivor: John Cooper<br />

Once Laura arrived at Hospital J, she looked very upset—sad, yet, stoic. I looked deep<br />

into her big, beautiful, blue eyes; one second it seemed that she was thinking about all of the<br />

good times we’d had and the next second about how was she going to explain to our daughters<br />

that daddy has died. It’s ironic when you feel horrible for a loved one that is feeling frightened<br />

about your own condition. Of all the moments up to that point, psychologically, that devastated<br />

me the most. I couldn’t do anything to comfort her.<br />

A while later, friends and family began coming in to see me. Frank, a good friend of<br />

mine, came in with a fake Irish shamrock tattoo on his arm and told me rub it for good luck.<br />

That mattered to me because it mattered to him; you could see it in his tear-filled eyes. They<br />

came in one after another, like a 1950’s revolving bank door. Then I started seeing family<br />

members I hadn’t seen in a very long time. They came in and were rubbing my hands and arms.<br />

They were crying and wishing me good luck. I could see the fear in their eyes.<br />

Wait a minute! I may have been heavily medicated, but I knew what was going on. They<br />

were all coming in to say goodbye to me. I was beyond livid. I think it was my poor cousin that<br />

I told to “Get the f*** out of here!” The people who followed got a similar message: “You’re<br />

coming to say goodbye to me, as if I am going to die!” I remember tearing up while repeatedly<br />

saying, “You’ve got this John. You aren’t going to die, Coop. You are not going to die.”<br />

The next thing I remember was waking up the following morning. Just as I was thinking<br />

more optimistically about this life changing surgery, a bearded, Middle-Eastern doctor with a<br />

turban wrapped around his head walked into my room. I’m talking Taliban member, minus the<br />

AK47, but the same accent and appearance. (Okay readers, give me a break here. I was heavily<br />

medicated, my family and friends were doing the funeral march over me and things, quite<br />

frankly, weren’t looking good.) I couldn’t believe it. I asked him, “What are you, the barber?”<br />

Ironically, he was there to mark my head so the surgeons would know the incision and extraction<br />

areas for the surgery. (Funny, it looks like the joke’s on you, Johnny.) He got out his marker<br />

and applied a couple X’s on my head as to where the neurosurgeon would drill and saw to<br />

remove my skull and try to repair the giant, ruptured brain aneurysm. So he was a barber of<br />

sorts. Soon after, I was taken down to surgery.<br />

Page 19 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 4: The Angel and Johnny Cash<br />

W<br />

ho would’ve imagined that I was going to have one-on-one time with both an Angel and<br />

Mr. Johnny Cash?<br />

My angel visited me first. She was<br />

magnificently beautiful. I gazed upon her standing<br />

at the foot of my bed. Her voice was very, very<br />

familiar. I knew her voice. Her hands were soft,<br />

warm and appeared to be young and wellmanicured.<br />

She wore a whitish-yellowish, long,<br />

flowing gown. A blinding bright, sun-like glow<br />

surrounded her from the behind. Her face was<br />

masked by that same glow, which made her unrecognizable. I knew her voice and yet I still<br />

can’t place it to this day. Her gown was blowing inward towards me, but I did not feel a breeze.<br />

I could see myself in the hospital bed looking down and then I was back lying in the bed. She<br />

gently ran her thumb up the soles of my feet and her fingers on the top of my feet several times<br />

while repeating in a soft gentle voice, “Everything is going to be okay, John, everything is going<br />

to be okay, John.” I asked myself who was she?<br />

Once, she completely lifted me off of my bed. She said nothing else during this; neither<br />

did I. I didn’t speak at all. I have never experienced such a high level of tranquility. She then<br />

quietly said, “I have to go now; everything is going to be okay, John.” While facing my<br />

direction, she slowly glided backwards to my right side and disappeared. I’ve never felt so<br />

alone yet peaceful at the same time. I was left with several unanswered thoughts and questions.<br />

Was my time on Earth coming to a close? Moreover, would I be staying here, wherever here is,<br />

and will everything be okay, John?<br />

I was sitting upright in my hospital bed and was awoken by Johnny Cash singing “I Hung<br />

My Head.” He sat on a rolling stool to the right of me about two feet away. He was dressed<br />

sharply in black with the top two buttons of his collared shirt undone. A frosty bottle of<br />

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Author/Survivor: John Cooper<br />

Budweiser sat next to his left foot and a Marlboro Red cigarette hung from the left side of his<br />

wrinkled lips as he sang to me with a clenched, but welcoming, smile.<br />

As with the angel, I was in complete awe. The bright, yellow sun was shining in from the<br />

windows on my right but, unlike the angel, I could see him perfectly. He reached over and<br />

firmly grasped my right hand and told me, “Everything is going to be okay, John.” Catching on<br />

to the pattern here folks?<br />

Sketched by my good friend, Tommy Sullivan<br />

He slid his hand out of mine, reached down with his left hand<br />

and lifted up the Budweiser; he took three long, satisfying gulps. He<br />

then placed his hand on his wooden, chrome-accented guitar and started<br />

playing, “When the Man Comes Around.” As Johnny finished, he<br />

strongly patted my right hand, stood up and said, “Everything is going<br />

to be okay, John.” He then walked backwards to my right, while facing<br />

me, until I could no longer see him. I’m not sure if it was of any<br />

significance, but when they left, neither my angel nor Johnny<br />

Cash had their back to me. They also disappeared to my right side. I became worried. I had<br />

been visited by an angel and now Johnny Cash is playing this particular song to me. So does that<br />

mean I’m going to die and go to heaven (I hope)?<br />

I don’t know the significance of these visits, but what I do know is that these encounters<br />

bear more writing about—much more, in fact. I can only hope that my abridged version has<br />

described it well enough for readers to understand. It would take me entire book to fully<br />

describe those amazing encounters. If you aren’t familiar with the songs Johnny Cash sung to<br />

me, I recommend looking them up on YouTube.<br />

Page 21 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 5: Big, Beautiful, Blue Eyes<br />

A<br />

s my eyes slowly cracked open from my Rumpelstiltskin-like sleep of my ten-day<br />

medically-induced coma, masses of people convened at my bedside. It was a madhouse.<br />

Doctors, nurses, students, lab techs, phlebotomists, x-ray techs, neurologists—you name it, they<br />

came to see me. The first question I remember being asked was “Do you know where you are?”<br />

I answered, “I’m in a Disney hospital.”<br />

I knew who I was. I knew I was married and that I had two daughters, but I didn’t know<br />

where I was or what the hell was going on. Place? Date? President of the United States? No<br />

clue! The days prior to all of this when I first saw my primary doctor had never happened to me,<br />

yet why did I think I was in a Walt Disney World hospital? Like a complex and confusing<br />

puzzle, I am still trying to put those missing pieces together. Some events are vividly clear and<br />

other events are totally erased. It’s as if those days leading up to the aneurysm bursting never<br />

happened. I remember dribs and drabs, but most memories of that family trip to Walt Disney<br />

World are nonexistent.<br />

I looked around and didn’t see any familiar faces. I had the wherewithal to do a quick<br />

nursing assessment of my situation. I could not move my left leg, my left arm nor my left hand.<br />

With my right hand I identified a nasogastric (NG) tube placed in my nose for feeding, a<br />

ventilator tube in my mouth and down my throat to force oxygen to my lungs for breathing, a<br />

Foley catheter in my penis to drain my kidneys, a central IV line for fluid intake, and wires that<br />

coming out of my skull. The pain was nothing like a vice grip or railroad spike. Instead, it was<br />

more like somebody had dropped a bucket of golf balls on my head.<br />

Through the tightly wrapped gauze dressing circling my head, I felt a large depression in<br />

my skull. Slowly sneaking my pointer and middle finger under the dressing, I could only feel a<br />

thin layer of skin, then my brain. It felt like ground meat through cellophane at a grocery store.<br />

I was dumfounded. It felt unnatural. (Why do people depress packaged, ground meat with their<br />

fingers before buying it? Is there a grocery store secret to that?)<br />

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Author/Survivor: John Cooper<br />

I was pissed off! I knew I had a living will. Why are they doing this to me? I was not<br />

going to live like this. I grabbed the NG tube with my right hand and yanked it out. For those<br />

that don’t know, the end of an NG feeding tube catheter is anchored into the stomach with a<br />

balloon of saline solution about the size of a small Super Ball (similar to the ones I used to get at<br />

the Five and Dime and bounce down my driveway of my childhood row home in Philly). As it<br />

came up, I had to pull really hard to get it past the back of my throat, nasal cavity, and then<br />

through my nostril. My eyes teared in pain, but they were more like the tears created when you<br />

are choking on something. I admit it was a quick, self-inflicted asshole move, but I wanted to<br />

get my point across—I was not going to live like this! I think I made my point clear.<br />

The next thing I remember is Laura appearing in front of me. Finally, someone I knew! What a<br />

sight! Her big, beautiful, blue eyes were a welcomed site. Her smile was synonymous with her<br />

tears and everything began to look up. She stoically stood and looked down at me, as if it was<br />

our wedding day. With nothing but pure love beaming out of her big, beautiful, blue eyes she<br />

said, “I love you, John.” I can hardly remember anything she said after. She tried to fill me in<br />

on everything that had occurred over that ten-day stretch of being in a coma. All I remember is<br />

her saying, “I love you, John.” I tried saying it back, but I don’t know if she understood what I<br />

was saying with the ventilator tube in my mouth. I was getting annoyed that she couldn’t<br />

understand me. I thought to myself, “Alright Coop, let’s get up so we can go home now. I just<br />

have to get this ventilator tube out next.”<br />

Page 23 of 167


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Author/Survivor: John Cooper<br />

Chapter 6: Cleanup in Aisle 4...Oops, I Did It Again<br />

L<br />

aura and my nurses were elated when I awoke from my slumber, but not so happy when I<br />

yanked out my feeding tube. I kept pointing to my ventilator tube trying to indicate that it<br />

was next. I was not going to live like this. I recall Laura informing the respiratory therapist that<br />

I was a Registered Nurse. At this point, I wanted to know the vent settings. He assured me that<br />

it was on the minimal assist setting and that it would be removed very soon. “Please don’t try to<br />

remove the tube yourself!” he said. Patients like me can be a nightmare for the staff. And so,<br />

that nightmare began.<br />

I felt my stomach gurgling and bubbling and was very uncomfortable. I pointed to my<br />

abdominal region and I tried my best to lip to my nurse that I needed a bedpan. I was ashamed<br />

that I needed one, but that was my only option. My stomach was cramping up and I was in pain.<br />

I don’t think I had a bowel movement since before surgery, which was almost two weeks ago,<br />

and I wondered if I had I had one in my coma. Keep in mind that I had all of that tube feeding<br />

running through and building up inside of me. There was a bunch going in and nothing going<br />

out. It was a recipe for disaster. I thought, Please understand my lips and get me a damn<br />

bedpan…please!<br />

Instead of a bedpan, a flamboyantly-friendly respiratory therapist came floating in on his<br />

tippy toes; let’s call him Jeff. He reminded me of Jack from the TV show Will and Grace. He<br />

was hilarious, caring and very talkative. He arrived with a small collection cup to obtain a<br />

sputum sample from the deep, cavernous depths of my lungs. That was not the damn bedpan I<br />

asked for! As a nurse, I had collected hundreds of sputum samples via the trachea. I always<br />

hated it. After squirting a few cc’s of saline solution into the trachea tube to break up secretions<br />

in my patients’ lungs, I would watch my them clench every muscle in their body as they gasped<br />

for air. The solution went directly down into their lungs before suctioning. Now, the tables had<br />

turned—I was the patient. After the saline solution shot down into my lungs, Jeff started<br />

suctioning me. It felt like Mike Tyson was punching me in the stomach while a Navy SEAL was<br />

holding me underwater. My head felt like it was going to burst as he suctioned me but,<br />

BOOM!—my ass did instead!<br />

Page 24 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Although seldom discussed, it is a rite of passage for a man to crap himself at least once<br />

in his life. I just happened to perform this act in a hospital bed. It was truly a religious<br />

experience. It was almost better than sex. Scratch that—it was better than sex. Embarrassing?<br />

Hell yes! Instant relief? Hell yes! My poor nurse cleaned me up and gave me a dynamite bed<br />

bath. I felt horrible for her but good for me. Laura had come back in after this episode and the<br />

odor died down a bit. She talked to me for a little while, but I soon found myself needing to go<br />

again. I kept pointing at my stomach, but she couldn’t understand me (damn vent tube!). She<br />

finally understood and went to get the nurse who came in and said, “Oh, don’t worry, you don’t<br />

need a bedpan. You just went.” Well, the second wave came along just as fast as the first wave<br />

and, like the Britney Spears song goes, “oops, I did it again.” This may sound mean but I didn’t<br />

feel bad about the second mishap. After all, I did try and signal to her that I needed that damn<br />

bedpan again.<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 7: Proud<br />

T<br />

here stood my beautiful wife. During one of the top three snow storms in Philadelphia<br />

recorded history, she walked back and forth eight blocks away, through the 25”-30” snowcovered<br />

sidewalks. I think approximately two feet of snow was dumped in one day alone. Mind<br />

you, Laura is only five feet tall.<br />

At one point, she said the taxi services were shut down, and people couldn’t shovel and<br />

remove the snow fast enough from the walkways. After the snow was partially cleared, she was<br />

able to drive in and out of Philly which, at best, is one hour each way on a good day, just to be<br />

at my side. On top of being a mother, she was communicating with all of our friends and family<br />

members, paying our bills and handling everything that occurred during that tumultuous time. I<br />

can’t begin to imagine everything she went through. She occasionally fills me in on some of the<br />

things and I am bewildered as to how she kept it all together.<br />

So, as I said, there she stood in front of me for the first time. She looked as beautiful as<br />

ever; not showing any doubt or hurt over what I had just put her through over the previous tenplus<br />

days. She actually said, “I am so proud of you.” I didn’t get it? I thought, Proud of what?<br />

I just pulled out my NG tube and crapped all over myself. I didn’t understand. God, I love you,<br />

Laura. I tried my best say, “No, I’m proud of you. I love you,” but I wasn’t sure if she could<br />

read my lips with the ventilator tube in my mouth.<br />

Page 26 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 8: Now Paging Doctor Robot<br />

M<br />

y ruptured brain aneurysm was surgically repaired by, what is known in the aneurysm<br />

industry as, clipping. I know this because #1, the doctors told me, #2, I read the post op<br />

report and #3, I watched a video of the surgery. Call me morbid, but I wanted to know what<br />

was done to me.<br />

After “the barber” shaved my head, the neurosurgeons gently (I hope) pulled back my<br />

scalp and then drilled and sawed into my skull (Craniotomy) with a Dremel-like tool.<br />

Approximately twenty-five percent of my skull bone was then removed. To locate the exact<br />

location of the ruptured artery, they carefully (again, I hope) moved part of my brain and<br />

inserted 7 Titanium clips to the ruptured artery. The objective of the clips is to isolate and<br />

prevent further blood flow to the affected artery. In addition to this, they had to reconstruct part<br />

of the artery using bovine intestines and then deflate the aneurysm. After the ten-hour surgery<br />

was complete, I was put into a medically-induced coma to, essentially, give my brain a rest for a<br />

while. The removed skull bone was not replaced during this procedure, as there would be post<br />

surgical swelling of my brain. Skull replacement surgery would have to be done six to nine<br />

months later. Videos of my type of surgery can be found online, but I highly recommend not<br />

viewing them if you are squeamish or have a predisposition of fainting.<br />

On the second day after waking from the coma, I lay motionless in my hospital bed; it<br />

was still dark outside, but probably early morning. From my left field of vision, I saw<br />

something quickly moving towards me. My Angel and Johnny Cash were on my right side, so<br />

was bad news headed my way because something was coming from the left? I couldn’t believe<br />

my eyes. I remember telling myself, Just go back to sleep John, it will go away; then thinking,<br />

Holy crap, it’s getting closer! It started talking and it even knew my name! Okay, someone get<br />

me the hell out of here, STAT! (I’m sure just about everyone has heard this word “STAT”<br />

before, yet some people don’t know its true meaning. In nursing school and Navy Corps school<br />

I learned that its origins are Latin and stand for: Sooner Than Already There; hence, “Get me<br />

the hell out of here, STAT!”)<br />

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It then started talking to me: “Hi John, I’m Dr. Osen. I performed the surgery on your<br />

brain.” It was a rolling, moving robot with a monitor where its face would be. The “face” was<br />

that of my neurosurgeon, Dr. Osen on the live monitor. A camera was positioned on it so he<br />

could view me from wherever he was (which was not in my hospital room!). He was talking to<br />

me live via a remote feed; however, no one was there to explain that to me. I thought I had<br />

crossed over to the third dimension or that I was on Candid Camera. Our short conversation<br />

consisted of him asking me several close-ended questions about how I was feeling. I responded<br />

with a right handed thumb; thumb up for yes and thumb down for no. Then the doctor robot<br />

turned 180 degrees and, with its back to me, quickly rolled out into the hallway. I found out<br />

later that the doctors used this deceptively frightening robot to remotely check in on their<br />

patients. That was some scary stuff my fellow readers.<br />

(I envision the docs recording their patient’s reactions and making their own “funniest<br />

videos.” At the end of each year, at an undisclosed location, they probably crack open a good<br />

bottle of forty-year-old scotch and watch their videos for a fun-filled night of laughter. Doc, if<br />

you’re reading this, can I have a copy of my reaction?)<br />

Later that day, my friend, Billy, came to visit me at the hospital. I told him about the<br />

encounter I’d had earlier that morning. At that time, I guess he appeased me and went along<br />

with it because he later told me that he cried that night because he thought my “brain was fried<br />

and I was a goner.” However, some days later when he was visiting me, he saw that same robot<br />

I had described to him, plugged into the wall down the hallway. Needless to say, he was<br />

joyfully relieved that my brain wasn’t totally ruined.<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 9: “That’s What Friends Are for...Keep Smiling, Keep Shinning”<br />

B<br />

illy, my best friend since I was twelve years old, was always calm, cool and collected in<br />

tragic situations. He could also open up a can of whoop ass, when needed. He was the<br />

second person I remember seeing, and he looked completely drained. He had the deep, dark<br />

circles under his eyes to prove it. I was thinking that I looked better than he did and I hadn’t<br />

even seen myself in a mirror yet.<br />

The night before Valentine’s Day, he went out and bought a card for<br />

me so I could give it to Laura when she visited the next day. He, along with<br />

my other best friends, Matt and Frank, were supporting Laura and doing what<br />

good friends do—just being there. They were there for me and my family at<br />

the drop of a hat. Billy, Matt and Frank drove down to the hospital after work<br />

to make sure I wasn’t alone at night. Laura made sure I wasn’t alone.<br />

Matt fed me my first meal after they removed that damn trachea<br />

tube for the ventilator. I think I had turkey with sweet mashed potatoes. It<br />

was absolutely delicious. I had taken food and several other things for<br />

granted, and have since learned not to. Walking, driving, giving a great<br />

big hug to others and spending quality time with my family. I had never<br />

felt so vulnerable or helpless, but none of that mattered to them.<br />

Remember Frank with the fake shamrock tattoo? His smile was<br />

priceless when I first saw him. It was like a Jesus, do you know what you put<br />

all of through, then a Jesus, I am so glad you are alive, kind of a smile. I am<br />

very lucky and fortunate to have such great friends and brothers.<br />

Page 29 of 167


Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 10: My African Princess<br />

I<br />

forget her name but I remember her smile. For one reason or another, there was a<br />

complication with my central IV line and they had to remove it and insert a new one. After<br />

several failed attempts by several nurses and doctors, I lay exhausted and pain ridden in the<br />

hospital bed with four or five additional needle holes from the failed attempts. I was beat and<br />

some of my veins had collapsed at that point. The staff was in and out, trying everything<br />

possible to get a new line started—tourniquets, slapping my arms and even my legs and feet, all<br />

in an attempt to find at least one good, viable vein.<br />

You know that moment when you think you can’t take anymore? That was this moment.<br />

Then, a familiar face with a great big smile walked into my room. She knew I was exhausted.<br />

I’d seen this resident at least a dozen times and we talked frequently. She had told me her story<br />

of moving from Africa in hopes of completing her lifelong dream of becoming a physician. She<br />

carefully inspected all my veins and located a viable one on my left arm. After she injected<br />

Lidocaine, a local anesthetic, around the site and inserted the new IV on the first shot, she put her<br />

hand in mine and smiled. I said, “You are my African Princess.”<br />

As she was leaving, she asked if she could get me anything. I said, “I could really go for<br />

a root beer. I probably can’t have a real beer, right?” She shook her head no and I nodded off to<br />

sleep. The next thing I heard was the gentle metal clang of a root beer can being placed on my<br />

bedside table. She smiled and said, “I couldn’t find the Pennsylvania root beer that you wanted.<br />

They only had A&W at the store.” I graciously smiled and said, “Thank you.”<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Chapter 11: Am I Having Another Brain Aneurysm?<br />

W<br />

hat the hell is going on? The fierce pain was back! My head felt like it was going to<br />

explode!<br />

“Somebody please help me!” The staff, looking overly concerned, were running in and<br />

out of my room. Doctors and nurses quickly surrounded me. I asked, “Did the surgery not<br />

work?” Dr. Eyebrows said, “Mr. Cooper, what is your pain level from 1-10?” (Mind you I<br />

have a very high tolerance for pain. I walked around with a ruptured brain aneurysm for over<br />

seven days before I went to the hospital.) BOOM! “It’s a 10! What the hell is going on doc?”<br />

“Mr. Cooper, I think you are having vasospasms.” I thought, Oh crap, this could be the end.<br />

Vasospasms are a life-threatening complication which sometimes occurs after my type of<br />

brain surgery. To that point, I was like a survivor of a plane that made a crash landing into the<br />

middle of the Atlantic Ocean. I survived it, but then that same plane was filling up with water<br />

blocking the exit aisles, jamming the doors closed and I can’t get out. That’s how serious<br />

vasospasms are. They are a common side effect after a ruptured brain aneurysm. This<br />

complication was explained to me and my family and was a mini refresher course from my<br />

nursing days. The blood vessels in the brain can go into spasm causing the blood vessels to<br />

constrict, which could cause a stroke, permanent brain damage or even death. Kink the middle<br />

of the hose while someone is trying to wash their car. You know what happens; but, this was<br />

happening with the decreased blood flow in my brain.<br />

Dr. Eyebrows had four or five students with him, as this was a teaching university<br />

hospital. The excruciating pain came on fast and furious with an insidious cycle. To me, the<br />

vasospasms seemed to last about twenty minutes or so, but I wasn’t looking at a clock. The<br />

doctor and the students performed a quick neurological exam. Some of the students nervously<br />

looked concerned as they observed the numerous monitors which were beeping, chirping and<br />

repeatedly sounding off their ear piercing alarms. It was nonstop chaos.<br />

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Out of the blue, Dr. Eyebrows asked one of the students, “Which cranial nerve is<br />

responsible for vision?” Are you kidding me? I felt like I was dying and he was having a quiz?<br />

It was like an episode seen on the TV show Scrubs. At that moment, I visualized a chart I made<br />

back in nursing school for my exam on the twelve cranial nerves. I thought the students weren’t<br />

answering quickly enough so I answered for them. “The second cranial nerve controls vision.”<br />

If it wasn’t for the alarms going off, they probably could have heard a pin drop. The doctor<br />

looked at me baffled and smiled. I said to him, “You got to help me out here doc.”<br />

Somehow, someway, John the nurse awoke with precision and confidence. Now, for all<br />

you nurses out there reading and critiquing this, I can’t remember that exact conversation<br />

verbatim, but it sort of went like this:<br />

Me: “Doc, I need blanket-tey-blank drug IV.”<br />

Students: Looking at me as if I was maybe a drug addict or as if I were working with<br />

Jessie from “Breaking Bad.”<br />

Student: Blah, blah, blah…something about the “increase in intracranial pressure.”<br />

Me: (slow, confident, intrepid—like Walter White): “IV blanket-tey-blank drug for<br />

pain, blanket-tey-blank drug to help decrease my intracranial pressure, and the second<br />

cranial nerve controls vision!”<br />

With one eyebrow up in the air, Dr. Eyebrow looked down at me, both perplexed and<br />

impressed. I couldn’t hold it anymore; I was in too much pain. I gave in and told him, “I used to<br />

be a Registered Nurse.” The light bulb went on over his head and he smiled.<br />

He winked at me and said to his students and my nurse, “Well, you heard him.”<br />

I don’t know what he ordered for the vasospasms or what he actually did; I do know that I felt a<br />

hell of a lot better rather quickly. Over the next few hours the vasospasms subsided, and within a<br />

day, they stopped completely and never returned. I know he had probably ordered something<br />

even before he walked into see me, as vasospasms are a frequent occurrence in the neuro ICU,<br />

especially in cases like mine. Regardless, he fixed me up. Thanks Doctor Eyebrows!<br />

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Chapter 12: “Eleanor, stop buying that Ty-D-Bol for the toilet, it’s turning my<br />

balls blue!”<br />

A<br />

few days had passed when two physical therapists and a young, recent graduate nurse<br />

came in to take care of me. They strapped a temporary protective helmet on my head,<br />

washed me and wrapped me up into a Velcro harnessed suit. It was similar to that of a cocoon.<br />

The suit had hooks and carabineers. They attached them at several pivot points on the suit and<br />

connected me to a ceiling hoist so they could elevate me out of bed and into a reclining chair<br />

next to my hospital bed. As they hoisted me a few feet in the air, something was definitely<br />

wrong. You know when something is wrong and you just know it? I felt a cool breeze in an area<br />

where there shouldn’t have been a breeze.<br />

There I hung, suspended in the air—a 215 pound grown man cradled in a Velcro suit a<br />

few feet above ground level, from the ceiling, getting ready be lowered. I knew what was<br />

wrong. I yelled, “My balls!” and immediately started laughing, as I was reminded about the<br />

story of my grandfather Kelly. I had to share the story with everyone.<br />

When I was younger, I overheard my Nanny Kelly, a woman who<br />

could make a grown man pee his pants, telling the story about how she<br />

turned my grandfather’s testicles blue because she bought blue Ty-D-Bol<br />

to put in the toilet. In his mumbled and grumpy voice, he told my<br />

grandmother, “Eleanor, stop buying Ty-D-Bol for the toilet. It’s turning<br />

my balls blue.” I inherited his low-hanging testicular man sac. I couldn’t<br />

stop laughing, and laughing was rather painful to my brain.<br />

So, there I hung, like a kid’s Mexican piñata, with my testicles swaying to and fro. They<br />

were ready, at any moment, to be crushed by my own weight if I was lowered to the chair. The<br />

young, new, shy and timid graduate nurse was looking up at them from below. This must have<br />

been trial by fire for her. She attempted to gingerly push, readjust and relocate them back into<br />

the Velcro suit before I was lowered. I can only imagine what the hell that looked like.<br />

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Around that same time, visitors walked by my room. They were quickly redirected and<br />

instructed to come back in about five or ten minutes. I only lasted for about an hour in the<br />

bedside chair, talking to my visitors—I was wiped out. The good news was that my testicles<br />

were safely nestled and secured in their proper place. Getting out of bed was one step closer for<br />

my long awaited discharge. I’m sure that my testicles were put into my nursing plan for all<br />

future hoists. Similar to a “fall precaution” sign posted outside of a patients room but mine<br />

probably read “Ball Crush Precaution.”<br />

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Chapter 13: The Race is on with Apollo Ono<br />

T<br />

o that point of my stay at Hospital J, I was only allowed Tylenol with codeine for pain. I<br />

was told, “We want you to be neurologically aware. We don’t want to give you anything<br />

stronger, as it may mask other symptoms.” What other symptoms? A week ago several doctors<br />

manhandled, manipulated and moved my precious grey matter around like a tossed salad. They<br />

poked, prodded, sliced and inserted seven large metal clips directly into my brain. Then to top it<br />

all off, a quarter of my skull was removed. These jokers can’t give me anything stronger for pain<br />

relief? “No, I am sorry we can’t.” Okay then, that’s the answer. Imagine that!<br />

It was a special day; the day I received my official white,<br />

oversized, protective helmet. What a hideous looking thing it was. I<br />

would have to wear this until my missing skull bone, some six to nine<br />

months later, was surgically reinserted via a procedure called a<br />

cranioplasty. When the nurse first put the helmet on my head, I<br />

endearingly said, “I love you Becca” and she appropriately replied, “I<br />

love you Corky,” a reference from the eighties shows Life Goes On.<br />

Ironically, it was the same nurse that had dealt with my “Cleanup in Aisle 4…Oops, I Did it<br />

Again,” incident mentioned earlier. We had a good relationship and laughed frequently. She<br />

was aces in my book.<br />

I was told to wear it, with the exception of being in bed, at all<br />

times. I could only get out of bed with the assistance of that special<br />

pulley lift attached to the ceiling and the Velcro jumpsuit, so I wasn’t<br />

overly concerned about it.<br />

The left side of my body was extremely weak; I could feel pain<br />

but was next to useless. The rest of my body was also very weak from<br />

being in the coma. It was even a challenge to hold a TV remote with my<br />

good hand. One night, the TV was on and I heard one of my favorite songs—the Olympic theme<br />

song. It was the 2010 Winter Olympics and Apollo Ono was warming up for a speed skating<br />

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race. I peered over at my new white helmet on the window ledge about eight feet away and<br />

looked down at the glimmer and shine of the cold looking white floor. This is where the serious<br />

delirium stepped in. It’s called: I.C.U. delirium. My short definition of it was that I needed to<br />

get ready for this race.<br />

I must race Apollo Ono. He had his helmet, so I must get mine. I repositioned my<br />

hospital bed to its maximum upright setting. With all of my might, I pulled myself up with my<br />

right arm into a sitting position and pushed my right leg onto the floor. I was determined to get<br />

ready for the race. I pulled my left leg over with my right arm and with everything I had left in<br />

me, I tried to stand and get out of the bed to obtain my coveted helmet for the race.<br />

When out of nowhere…BOOM! I was abruptly tackled from my left side and pulled<br />

back from my rear of my hospital gown by two people. I was merely seven-and-a-half feet from<br />

my coveted racing helmet when I was stopped cold and denied. People were yelling at me and<br />

all sorts of commotion ensued. “But I must race Apollo!” I hollered again and again. “Not<br />

tonight, John.” The nurses must have administered a sedative because I did not race Apollo Ono<br />

that night. I was a delusional spectator watching him receive his bronze metal and revel in his<br />

victory; a clear and obvious victory which was meant for me. This speed skater/spectator cried<br />

himself to sleep while staring at his new helmet on the window ledge, a mere eight feet away.<br />

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Chapter 14: Sugar with Some Rocky and Water Bottles<br />

I<br />

was within the confines of my room but I was never alone. There was always someone<br />

coming in or going out: visitors, nurses, a roving robot doctor, specialists, the cleaning<br />

people, the meal delivery people. And I always had the background noise of my TV and music<br />

or the occasional “ping” from a text on my iPhone. My room was spotless and the staff was<br />

terrific! The 36” (or larger) high definition TV was definitely appreciated.<br />

Back when I was suffering the immense pain from those torturous vasospasms, I cursed<br />

loudly, like a truck driver with hemorrhoids driving on a pothole littered road. I was in horrific<br />

pain. I recall asking my nurse, “I need a word to say because I don’t want to curse like this.<br />

What should I say?” She looked baffled and replied, “I don’t know, pick out a spice. Try saying<br />

cinnamon.” I tried it and it didn’t work. As a large spasm hit me, I grasped my sheets and<br />

grunted, “Sugar, sugar, sugar.” That seemed to work so, okay, that was my new pain word. A<br />

few minutes later, another big spasm hit me. At the same time a large African-American<br />

cleaning lady came in to empty my trash cans. I gasped, and grunted again, “Sugar, sugar,<br />

sugar.” She endearingly looked at me, smiled and said “Oh, thank you, Mr. Cooper. You have a<br />

great day now.”<br />

Anyone who knows me knows I love the movie Rocky. As a kid<br />

growing up in Philly, it goes without saying that we Philadelphians love<br />

rooting for the underdogs, all the time, every time. I became that underdog.<br />

I knew had to start doing something to get stronger. My physical therapists<br />

kept telling me that when I grew stronger, I would be released to a<br />

rehabilitation facility.<br />

My buddy Matt was visiting that day and I asked him to play the Rocky movie which was<br />

a permanent fixture on my iPhone. I also asked him to fill up some empty water bottles. He<br />

obliged both requests and I started my Rocky routine to rehab. I started with arm curls using<br />

those water bottles as he helped me. We progressed to leg lifts and heavier arm curls. I did this<br />

repeatedly, day after day, on my own and with Laura and my friends. I think Laura may have<br />

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thought I was crazy while another part of her knew that she was getting her never-give-up<br />

husband back. When I didn’t have visitors, I repeatedly played the theme song to Rocky,<br />

“Gonna Fly Now” with my ear buds in, my water bottles close by, doing leg lifts, arm curls and<br />

praying to Jesus on the cross.<br />

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Chapter 15: No Children Allowed in the ICU<br />

D<br />

ay in and day out, I was given the same answer to my question of “When can I see my<br />

girls?” “No children are allowed in the ICU.” Looking back, it was a blessing in disguise<br />

but it didn’t make things any better. Not seeing my daughters pained me. We had our daily<br />

speaker phone conversations, but it could never compare to seeing and holding them. During<br />

one call, I remember both my girls and I were crying. They wanted to see me; they wanted their<br />

daddy home. That call was cut short. I tried to end the conversation on a happy note, but it<br />

didn’t work out well. I was miserable and depression was planting its first seedling inside of me.<br />

This was shortly before FaceTime was available, so there was no way for me to see them. I<br />

could have a live conversation with my roving robot doctor, but not my daughters. I was able to<br />

see pictures of them from Laura’s phone but, again, it’s not the same as seeing them in person.<br />

I would have never wanted my girls to see me so weak, vulnerable and defeated. It was<br />

screwy how I wanted something to happen so badly, yet not wanting it to happen at the same<br />

time. When visitors came in and told me how cute they were and how they were doing, I would<br />

boil up inside; I was not there and they were. One particular day, I felt extremely bitter towards<br />

Laura, of all people. I knew she had just spent quality time with them a few hours before visiting<br />

me. Here was the best woman in the world, trekking back and forth, juggling all of those<br />

challenges and I was pissed off at her because no children are allowed in the ICU. God, I<br />

missed my girls. I just wanted to hug, kiss, tickle and wrestle them.<br />

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Chapter 16: Time to Pack up and go Corky<br />

I<br />

was finally cleared for discharge to a rehabilitation hospital. I had a choice of a few different<br />

hospitals, but my family collectively chose Peat Rehab due to its high ratings and proximity<br />

to home. Peat is rated as one of the top ten rehab facilities in the country. How lucky was I? I<br />

had the best neurosurgical team, along with one of the best rehab facilities. That scenario helped<br />

this rooting-for-the-underdog-Philly-kid.<br />

As they were packing my personal belongings, my charming I-love-you-Becca-clean-upin-aisle-4<br />

nurse came in and put a big piece of medical tape with the name “Corky” on my<br />

helmet. Nurse Becca and I laughed our asses off as she endearingly applied the nameplate to my<br />

helmet. Sorry Corky, but in these situations everyone tries to latch onto some form of laughter,<br />

even if it is at other people’s expense. Obviously, we would have never acted or spoken that way<br />

in public, nor was there any malicious intent.<br />

I saved the “Corky” tape in a journal which Laura had been keeping by my bedside. She<br />

wrote in it daily. Everything related to my hospital stay was in this notebook for me to read:<br />

doctors who came to see me and their prognoses, nurse names, my setbacks, my complications<br />

while I was in the coma, the vasospasms, any progress I made and, most importantly, my healthy<br />

awakening from the coma. Visitors even wrote messages for me while I was in my coma,<br />

sleeping or having off days, like racing Apollo Ono.<br />

It was bittersweet leaving Hospital J and going to the land of the unknown. It was a<br />

frigid, dark, early evening. I must have gotten the rejects from the ambulance company to take<br />

me to my new, temporary home. There was a very large, very overweight, white male with a<br />

pedophile-like mustache. His accomplice was young African-American girl who looked like she<br />

could’ve been a backup singer for the ‘90’s R&B girl group, Salt-N-Peppa. As she was trying to<br />

navigate my gurney into the back of the ambulance, I could tell she didn’t want to mess up her<br />

nails. Fortunately, I had asked for my nominal pain medication, Tylenol with Codeine, before<br />

the ride and I’m glad I did.<br />

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The journey from Hospital J to Peat Rehabilitation Hospital is quite simple. You take<br />

Broad Street North, make a couple of turns and you’re there. Not this driver. The backup singer<br />

took the longest route possible through the half-plowed, snow-ridden streets of Philadelphia.<br />

She loudly pointed out where her grandmother lived and where she went to high school. Mr.<br />

Mustache attempted to strike up several conversations as we went flying over the backstreet<br />

snow mounds during her trip down memory lane. My head was killing me. I looked Mr.<br />

Mustache dead straight in the eyes and asked, “Do me a favor, hop in the driver’s seat and go<br />

North on Broad Street for me, will ya?” Wait for it…wait for it... BOOM! Miss Backup Singer<br />

started laughing and, in a valley girl accent, said, “I can’t believe it. I’m lost.” Mr. Mustache<br />

slowly rose from his deeply imprinted vinyl seat, grunted, held onto the grab bars, and began to<br />

redirect her. He slowly returned to his molded seat and responded to my request, “I’m not<br />

allowed to drive right now. I have a medical condition.” Great! To get my mind off things I<br />

asked him to tell me a joke which he butchered! I don’t think I’ve ever met an overweight guy<br />

that couldn’t tell at least one good joke. I wanted to take off my helmet with the “Corky” label<br />

and put it on his head; instead, I laughed and tried to make him feel good which also made me<br />

feel better, as well.<br />

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Chapter 17: My New Dwelling<br />

M<br />

iss Backup Singer and Mr. Mustache rolled me into my new dwelling. It was like going<br />

from the Ritz Carlton to Motel 6. A strong aroma of bleach lingered in the dimly lit<br />

hallways which were cluttered with wheelchairs and walkers. What the hell did I get myself<br />

into? They pulled me into my new bedroom and positioned my gurney next to the bed. Out of<br />

nowhere, my new my roommate yelled, “I’ve got shit on my balls!” What? He repeated this<br />

loudly, several times, as I was being moved from the gurney onto the bed. Maybe he and I had<br />

some sort of testicular connection? Great, I am in hell! About five or ten minutes later, a nurse’s<br />

aide came in to clean him up.<br />

This was the evening shift, so I understood that there are less people around to help out.<br />

Many times I’d been in that type of understaffed scenario as an RN, but this was not the<br />

welcoming party I expected. Laura and my father were already there because, unlike the Brady<br />

Bunch helicopter, they beat the ambulance driver who had taken her nostalgic tour of<br />

Philadelphia to the rehab. I nearly had a nervous breakdown and did not want to be left alone.<br />

However, within a day, Laura pushed all of the right buttons and I was moved to a new room,<br />

without a roommate.<br />

Day two comprised of rigorous evaluations from the physical, occupational and speech<br />

therapists. They came in one after the other. I was physically, cognitively and emotionally<br />

overwhelmed. I felt like Santiago, in Hemingway’s Old Man and the Sea; out of luck and<br />

struggling to pull that damn marlin onto his boat in one piece.<br />

A therapist arrived to evaluate my cognitive deficits. She asked some basic questions like<br />

the time, day, year, and president of the United States. I aced them because Hospital J asked the<br />

same questions several times a day. Then, she asked more complex questions. “Can you spell<br />

the word world backwards?” I couldn’t do it. “John here is some pennies, nickels, dimes, and<br />

quarters. Can you tell me what each of them is worth?” BOOM! I was only able to get two of<br />

them right. They placed a pile of change in front of me and asked me to add it all up. I couldn’t<br />

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do it. “Can you put these coins in order of value from least to highest value?” Nope, I couldn’t<br />

do it.<br />

Had my second grade memory been erased with this aneurysm? Maybe that roving robot<br />

from Hospital J reprogrammed my brain while I was sleeping? Or was it a temporary or, worse<br />

off, permanent brain damage? I didn’t feel stupid—for the first time, I was struck with horror.<br />

Was this the best I’m going to be moving forward?<br />

Physical therapy came in next and reviewed their plans on how to help me walk again and<br />

get me back to living the best way I could. My mind was still preoccupied with the simple fact<br />

that I didn’t know the value of coins, that I couldn’t figure out how to add coins and that I<br />

couldn’t spell world backwards. Three people hoisted me into a wheelchair and rolled me down<br />

to the open gym area. I quickly assessed the room and compared myself to the other patients. I<br />

created three categories: that patient doesn’t look too bad, holy crap, that patient is royally<br />

screwed, and dead middle, which was somewhere in between. Not being able to walk, count<br />

coins or take care of myself, I put myself in the third category—dead middle.<br />

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Chapter 18: The Schedule and the Shower<br />

B<br />

y the third day, the doctors and therapists had nailed down a comprehensive and concrete<br />

rehab schedule. I had to adhere to their daily care plan and they weren’t very flexible in<br />

deviating from that plan. I felt like I was in Navy boot camp, but now I couldn’t walk or<br />

comprehend the things that were once simple to me. I had to get the hell out of there. The<br />

therapy schedule was posted in my room on a white board. It glared at me and haunted me; there<br />

was no escaping it:<br />

Wake up<br />

Wash face<br />

Brush teeth<br />

Try to wash my undercarriage area<br />

Eat breakfast<br />

…all while in bed.<br />

I would quickly eat breakfast, not only because of the steamy, soggy elements on the<br />

platter, but also because I had physical therapy scheduled in the open pit arena. Next I’d take a<br />

wheelchair ride down to occupational therapy, and then directly off to speech therapy. This<br />

process took about three hours, after which I was rolled back to my room and put into bed for a<br />

very brief break. Again, I was hoisted back into the wheelchair and taken back to occupational<br />

therapy for another longer session. By the end of this session, I was burned out. But then it was<br />

time for lunch and I was rolled into the open area to eat lunch with everybody else.<br />

With each day’s passing, I carefully observed the room. I didn’t stare at those with more<br />

devastating injuries with disgust or angst, I felt more blessed and more fortunate when compared<br />

to own my list of complications and problems. I knew that many of the patients were worse off<br />

than I was. I prayed for them and still continue to do so. Seeing them day after day, it was hard<br />

to not pray for everyone there.<br />

Following lunch, I would go back into the physical therapy pit for another rigorous<br />

session, then on to another speech therapy session, and then back to my room for some down<br />

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time. After this, it was dinner time and I, again, was hoisted back into the wheelchair and taken<br />

back down to the open eating area for dinner.<br />

When I was rolled back to my room for breaks, visitors were allowed to come in and see<br />

me, which they did, so I didn’t really get a break. They could also join me while I was eating.<br />

Close family members were even allowed to attend the therapy sessions. My brain needed more<br />

rest in this place, which never really happened. Rehab is about pushing and motivating patients<br />

to go further and get stronger. I did not miss one therapy session. No matter how butchered I<br />

felt, I didn’t give up or surrender myself to give in.<br />

Upon completion of dinner, I could go back to my room for more privacy with my<br />

visitors. I think their philosophy was that they didn’t want patients eating lunch or dinner in their<br />

room by themselves. They didn’t mind breakfast, but they wanted patients out of their rooms for<br />

lunch and dinner. They were the rules. I was getting annoyed at all of those rules, yet I was not<br />

about to buck the system. The miniature seedlings of depression that started back in Hospital J<br />

were beginning to take hold.<br />

One particular night, it was time for bed and I had a crummy headache. I was allowed to<br />

take half of my normal dosage of codeine—15 milligrams. As I was dozing off, a soft-spoken<br />

black nurse’s aide with a Caribbean accent came in and asked me, “When was last time you had<br />

a shower, John?” “I haven’t had one since before my before my surgery,” I replied. She asked,<br />

“Would you like one?” I couldn’t reply fast enough, “Hell yes!” She and two other people<br />

hoisted me onto a white PVC rolling shower chair and we headed down to the shower room.<br />

It was the first time that a constant flow of water had cascaded over my body in weeks.<br />

Up until then, it was lukewarm bed baths. The nurse’s aide had the shower head on the most<br />

gentle setting and made sure the water didn’t directly hit my skull. As the warm water trickled<br />

down and pooled into my crotch area, I looked down and I couldn’t believe it, I was starting to<br />

urinate right there in the shower chair. It was the most relaxed state I had been in since before<br />

the aneurysm and I couldn’t have been more embarrassed. She didn’t make a big stink about it<br />

and instead said, “Oh, this happens all the time, John; don’t worry about it. Really, don’t worry<br />

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about it.” I asked her if I could have just a few minutes by myself with the warm water hitting<br />

my body. She agreed and closed the curtain.<br />

With my head hanging low, I cried to myself and thought, What has brought me here?<br />

Why had this happened to me? I wished that I had just died. A few minutes passed and she<br />

made the fake knock-knock sound on the curtain. She soaped me up, rinsed me down and dried<br />

me off. I was rolled back to my room and hoisted back into bed. I couldn’t believe that a simple<br />

shower would bear such an impact on me. I know it wasn’t just the shower. A part of me<br />

actually wanted to throw in the towel as I continued asking myself, What has brought me here?<br />

and Why did this happen to me?<br />

As I lay in bed, I stared at my schedule for the following day. I was filled with anger, rage<br />

and more disbelief. What has brought me here? The seedlings of depression were no longer<br />

mere seedlings; they were insidiously starting their next phase.<br />

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Chapter 19: Walking and Putting Pieces of the Puzzle Back Together<br />

A<br />

fter a week of the daily, rigorous physical therapy, I finally stood on my own two feet<br />

without the assistance of others. I further progressed to not using a walker or the handrail<br />

in the hallway. I was really chugging along and exceeding the<br />

doctors’ and therapists’ expectations, as well as my own.<br />

Every night in rehab, I continued my Rocky routine, as started<br />

in Hospital J. I would push myself ten times harder than the<br />

previous day, determined not to give up! Although, the<br />

additional exercises made me extremely physically and<br />

emotionally drained, they also made me stronger. I was<br />

making my come back!<br />

1 st day of standing and<br />

walking without assistance<br />

One particular day, physical and occupational therapy combined my daily tasks at a<br />

therapy session. I was directed to walk down the steps, go to the gift store, buy some mints and a<br />

drink, and then bring back the correct change. I made the journey with my legs but somehow I<br />

came back with the wrong drink, the wrong mints and the wrong change. I went up an extra<br />

flight of steps because I couldn’t remember which floor I was on. It had massively stressed me<br />

out. Yo dummy, how could you forget which floor you left from? Hell, at least I walked it, but I<br />

was scared. Was I going to be walking aimlessly around like this in life?<br />

Looking back, that was an excellent day, but I was emotionally, cognitively and physically<br />

drained. I beat myself up for getting the wrong drink, mints and change and for going to the<br />

wrong floor, but I was proud that I walked the steps by myself. I still don’t know how I received<br />

the wrong change, but it recently dawned on me that it was probably because I purchased a<br />

different name brand of drink and mints. I was one step closer to getting out of there!<br />

Later that day, my parents came to sit with me through one of my therapy sessions. The<br />

occupational therapist tasked me with the activity of copying, sorting, and stapling a stack of<br />

papers. I could tell that it was something she needed for her job. She was multi-tasking at my<br />

expense during the therapy session. I had a brain injury, but wasn’t totally clueless.<br />

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I looked at the four stacks of papers, put them into the copy machine and made twentyfive<br />

copies each. I handed them to my dad and asked him to sort them. After they were sorted, I<br />

gave the stack to my mom and asked her to staple and restack them. Good, job complete! The<br />

therapist peered over and said, “What are you doing John?” I replied, “I’m doing what you<br />

asked me to do.” She explained that she wanted me to do every single step of that task by<br />

myself. I rebutted by saying, “In my previous employment, I would have delegated and assigned<br />

tasks like this to others so I could concentrate and complete more pertinent tasks.”<br />

I think her lesson plan failed with me that day, but I believe she was equally impressed<br />

with my thought process. I knew I couldn’t have copied, sorted, stapled, and stacked everything<br />

the way she wanted it, but I sure knew how to use the resources around me to get the job done. It<br />

was then I identified a reoccurring pattern: I was only able to grasp and correctly complete about<br />

fifty percent of the tasks that were asked of me. That was better than nothing at all, but I<br />

wondered if I would ever get back to one hundred percent?<br />

Following that, my occupational therapist scheduled me for a trial session in the ADL<br />

suite the following day. ADL stands for Activities of Daily Living. The ADL suite resembled a<br />

mini apartment. I had to make my bed, take a shower, make coffee, make toast and use the<br />

stovetop to make scrambled eggs. If I passed this test, I would be yet another step closer to<br />

being discharged! Making the bed was no problem. I had been in the Navy so I did my military<br />

corners—you could’ve bounced a handful of quarters off of that bed. Anyone who has served<br />

our great country would have been impressed with the final result. My left hand was still very<br />

weak and got in the way but I wasn’t going to let that stop me. The shower was a little shaky. I<br />

was still very unbalanced, so I got wet, washed the essentials and quickly got out. It had to be<br />

less than two minutes.<br />

Fresh brewed coffee sounded good at this moment. I gathered the necessary things to do<br />

this, or so I thought. BOOM! I had forgotten the coffee filter and wet grounds scattered the<br />

coffee maker and across the counter. The coffee began streaming from the coffee maker to the<br />

counter and pooled down onto the cold, white, tiled floor. There was only one clean towel and<br />

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one washcloth, so I resorted to using towels in the soiled linen container. I quickly grabbed three<br />

large towels that had been used by the prior patients and cleaned up the mess before anyone<br />

came in. It was disgusting. I had to use dirty towels left over from previous patients, but I was<br />

not going to fail that mission. I scoured my hands like never known to man, discarded the<br />

coffee-drenched towels and moved onto scrambling some eggs. At that point, I was on E (for<br />

empty) and running on fumes. I resorted to my mom’s recipe for scrambling eggs in the<br />

microwave. There was no way in hell I was going to use a stovetop after the coffee fiasco. I<br />

would have burned down the joint.<br />

My mom was the typical Irish-Catholic mother from Philly. She could burn water. She<br />

couldn’t cook, with the exception of her bread crumb topped baked macaroni and cheese. She<br />

redeemed herself by being a great baker. Her chocolate-chocolate cake and chocolate chip<br />

cookies voided out any cooking deficiencies. Along came the unveiling of the new and magical<br />

microwave oven. Our first one resembled our old 1970’s RCA television with the two big dials<br />

and the simulated wood, veneer outer shell. My mom cooked everything in that microwave!<br />

Pardon the flashback; let’s get back to the scrambled eggs.<br />

Scrambled eggs, you can’t screw this up, John. Crack the eggs on the countertop, split<br />

them apart and…crap! Some small shell fragments got mixed in, thanks to my left hand which<br />

was not cooperating with me (and to this day still doesn’t cooperate with me). Stir up the eggs,<br />

pop them in the microwave and on to the toast. Ironically, the toast was perfectly done and not<br />

burnt. I finally sat down at the small, round table and slowly peeled open the foiled lid of the<br />

plastic orange juice container, which I had almost spilled, thanks to my uncooperative left hand.<br />

As my occupational therapist walked in, she said, “Wow things look really great in here<br />

John!” She walked around and evaluated the ADL suite with Laura. She went into the kitchen<br />

and came back out to me.<br />

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Therapist: “No coffee? I thought you liked coffee, John?”<br />

Me: “Yes, I normally do. I’m just not in the mood for it today.”<br />

Therapist: “How was your shower?”<br />

Me: “Great! It was quite refreshing.”<br />

Therapist: “Did someone help you make this bed?”<br />

Me: (I was damn near offended) “No ma’am. I was in the Navy.”<br />

She optimistically mentioned that things were looking great for me getting discharged<br />

sooner than planned. She discussed more activities she wanted to see me to complete later that<br />

afternoon. As she continued talking, I smiled at her while slowly eating my crunchy eggshelllaced<br />

scrambled eggs. With all of my might, I tried to mask and muffle the crunchy,<br />

reverberating, echoing sound from within my mouth. Laura looked over at me when I hit a big<br />

shell and we subliminally and jokingly smiled at each other. It was our little eggshell secret.<br />

Later that afternoon, my therapist handed me a pamphlet and asked me to call the phone<br />

number on the back and order 500 brochures for the hospital. Once again, she was multi-tasking<br />

at my expense. I read through the brochure and started to laugh. The brochure she wanted me to<br />

order was aptly named, Sex after a Stroke. I laughed and said, “How come the people pictured in<br />

this brochure are all like 75 years old?” This also happened to be the time that when my parents<br />

were visiting me. They were looking at me and laughing. We were all laughing together. “Why<br />

aren’t any young people pictured here?” Thank God the brochure didn’t have any overly explicit<br />

pictures, just vague ones, but they were scary enough to make me contemplate how sex was<br />

going to be when I got home.<br />

I continued critiquing the brochure. I couldn’t imagine having sex the way they were<br />

describing it or pictured in the pamphlet. Hmmm, sex after a stroke? According to the brochure,<br />

it sounded dangerous and exciting. If overexerted, it could also be deadly! I couldn’t wait get<br />

the hell out of there and try it! I humorously thought to myself, Hey honey, hold on before we<br />

begin, I have to look at the sex brochure to see if we’re doing it the right way.<br />

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Chapter 20: Finally, I Get to See my Girls<br />

M<br />

y wife walked in, “How would you like to see the girls<br />

tomorrow?” I nearly jumped out of bed with<br />

excitement. I could not wait to see their beautiful eyes and<br />

faces and hug them, touch them and hold their hands. Then a<br />

big dose of fear and reality stepped in. I was concerned about<br />

the way I looked with my big white helmet and I was still<br />

confined to a wheelchair most of the time. I was allowed to<br />

walk during physical therapy sessions, but all other times I was<br />

wheelchair-bound. Laura and I discussed it and how it may<br />

startle them if we met in my hospital room. They were too<br />

young to process or understand that environment, so we decided<br />

that we would meet in the cafeteria.<br />

My heart was overfilled with joy when I saw them.<br />

When they looked at me, I thought as if they were looking and thinking, I think this is daddy,<br />

but I’m not sure. This looks like some guy as daddy, but he’s in a wheelchair with a big white<br />

helmet on his head. When I smiled, it all changed; they knew it was their daddy. At first they<br />

had a hard time keeping eye contact with me. That’s understandable because this wasn’t the<br />

daddy that was always running around acting crazy, tackling, tickling and hugging them.<br />

I hugged them tightly and kissed them both. I didn’t<br />

care that the helmet got in the way. But at the same time, I<br />

couldn’t help but feel like they were looking at a shell of a<br />

man which once resembled the person they called Daddy. I<br />

never wanted to see my kids so badly, yet I never wanted<br />

them to see me so badly.<br />

It was a hard day and an even harder night. When I went back to my empty hospital<br />

room to try and sleep, I started thinking about how life would be when I got home. My girls<br />

would have to see me with my helmet off and my skull looked like someone had carved out<br />

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twenty-five percent of my head. Like at the deli counter: “Number 39!” “Yeah, I’ll take 1½<br />

pounds of the John Cooper skull special, sliced thin.” It was quite scary looking. I was<br />

dreading the thought of how this would play out when I got home.<br />

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Chapter 21: Visitors Die Down; but it’s Hoagie Time<br />

T<br />

he longer you’re in a hospital, the number of visitors and the frequency of visits slowly dies<br />

down. Visits are replaced with a quick call or a text. It’s just how life is. I can’t blame<br />

them nor am I complaining. I just knew I needed to get the hell out of there. After seeing my<br />

girls, I said, “Screw it, I’m going for a walk,” so off I went. I heard my name loudly being called<br />

from behind me and I felt like running, but I had nowhere to go, nor did I have the ability to do<br />

so.<br />

The nurse said “John, you aren’t allowed to walk without someone being with you. You<br />

must be in a wheelchair unless you’re with a physical therapist or a nurse.” She asked me, “Who<br />

said you could do this?” I told her, “Dr. Cooper discharged me from the wheelchair and I am<br />

free to walk the hallways myself.” She ran back to the nursing desk, opened my chart and<br />

couldn’t find this so-called Dr. Cooper. She quickly caught on and wasn’t overly impressed. I<br />

was pretty beat from walking the hallway, so I gave up and took my seat in the wheelchair. She<br />

nearly shoved it up my ass when she pushed me back into my room. All the while, she was<br />

huffing, puffing and cursing under her breath. I know she was extremely mad at my actions. If I<br />

would have gotten hurt, her ass would have been on the line for my stupid act of defiance. Dear<br />

nurse, if you are reading this, I’m sorry.<br />

Around dinner time, my buddy, Billy, came in. In the<br />

hallway, a thirty-year-old male patient was yelling “HOAGIE!”<br />

This patient had also been loudly yelling “MEEEEEE,<br />

MEEEEEE, MEEEEEE” every night for the past week;<br />

however, now it was replaced with “HOAGIE.” It wasn’t necessarily how loud this patient was,<br />

it was how he pronounced it. I dare you to yell this word out loud for five seconds: HOOOOOO-<br />

GEEEEEY!<br />

He repeatedly yelled it for five to ten minutes. Come to find out that his mother had<br />

brought him a hoagie and I’m guessing it was his favorite by his verbal reaction. His mother<br />

said, “Oh shut your damn mouth. I gots you your damn hoagie. I’s gettin’ it open up for you<br />

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right now, so button up.” I think he only said it three more times, then everything went silent.<br />

His mother either hit him or shoved that whole damn hoagie in his mouth because we didn’t hear<br />

from him for the rest of the night. Ironically, Billy and I were both getting hungry for a hoagie.<br />

We laughed our asses off that night and still do today when recalling that time. Occasionally,<br />

we call each other and leave a voice mail message saying nothing but “HOOOOOO-<br />

GEEEEEY.”<br />

It was the funniest day at rehab, with the sex brochures being a close second. Think<br />

about that the next time you have a HOOOOOO-GEEEEEY! May Jesus bless you, Hoagie Man.<br />

I hope you are doing well and continue to keep you in my prayers.<br />

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Chapter 22: I’ve Got my Walking Papers…RED LIGHTS<br />

T<br />

he night before I was discharged, I couldn’t sleep. The adrenalin ran through my veins<br />

with pure joy and excitement—I was going home! As I prepared to walk out of there, I<br />

packed and repacked my things three times that night. After my last repacking, I lost my balance<br />

and almost fell. I caught myself by grabbing the bathroom door handle, but it was a quick and<br />

brutal reality check of what was to come. I found that when I was tired, I was weak and my<br />

balance was less than stellar. It’s still like that today. While pulling myself up from the door<br />

handle, I said, “Enough packing, dummy, get into bed before you hurt yourself.”<br />

I awoke to a sunny and clear day. I was going home today! I slowly got changed and<br />

patiently (who am I kidding—it was more like impatiently) waited for the piles of paperwork that<br />

were headed my way. I refused to eat one more steamy, soggy breakfast, so I skipped it that day.<br />

Soon after breakfast, Laura arrived and in came a doctor and a nurse who reviewed the<br />

monotonous forms, including my discharge plans. It was a daunting task for both Laura and I. I<br />

was getting mentally fatigued, anxious and extremely frustrated. Frustrated like the person that<br />

has thirty six items in the quick checkout line designated for fifteen items or less, then<br />

haphazardly digs through her purse saying, “Hold on, I think I have $0.97 in change, let me<br />

look.” Tick tock, tick tock. Alright already, let’s get the hell out of here! The stack of<br />

paperwork was comprised of a detailed, long-term treatment plan for additional outpatient<br />

speech, occupational and physical therapy. I was not looking forward to any of these. My new<br />

brain just couldn’t comprehend it all and I just wanted to get home. I didn’t want to think about<br />

the weeks or months that lie ahead of me. I said my goodbyes and thank you’s and gave tight,<br />

meaningful hugs to the doctors, therapists and nurses.<br />

They were the best at Peat Rehab—top notch! They have a complete, comprehensive,<br />

caring and professional staff. I’ll never forget the compassion showed towards me when I had<br />

my first shower. I was extremely fortunate to have completed my therapy there. They provided<br />

me with the crucial building blocks needed for a successful recovery.<br />

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With my final signature complete, I was good to go. I stood up to leave and proceeded to<br />

walk out on my own two feet, as I had planned to do since the first night I got there.<br />

Wait for it…BOOM! A hospital protocol foiled my plan. “You must be escorted out of<br />

the hospital in a wheelchair upon discharge,” was a voice I heard from behind. This may not<br />

sound like a big deal to most, but it was an emotional blow that took the wind out of my sails.<br />

Begrudgingly, I sat down in the wheelchair and was escorted to the front door of the hospital. As<br />

soon as the double door slid open from the center, I stood up and quickly and unsteadily walked<br />

the twenty-five feet to the car and jumped in. The escort tried to get me back into the wheelchair<br />

before I got to the car, but I won! I was like a Corky Carl Lewis headed towards my car. As you<br />

can imagine, Laura wasn’t happy with this anarchistic uprising. However, in my eyes, I did get<br />

to walk out of the hospital on my own two feet. That sweet, small victory was mine.<br />

As we pulled away from the hospital and headed home, I was flooded with good and bad<br />

emotions. I couldn’t wait to spend time with my girls and be in my own home, but numerous<br />

what ifs were going through my head and my anxiety was going through the roof. Just writing<br />

about it stresses me out. I held Laura’s right hand as she drove us home. She calmed my nerves<br />

and assured me that, “We are going to get through it.” Notice, she didn’t say, “You are going to<br />

get through it.” She said we. I could see how happy she was which, in turn, made me happy. It<br />

was an emotional, seesaw of a ride home.<br />

We approached a red light; it was a standard, red traffic light. What does one do at a red<br />

light? You stop, look at your mirrors and look out your windows at the cars to the right and left<br />

of you. You check out your surroundings and wait for the green light. At least, that’s what I do.<br />

I was looking forward and I could feel the heat of the driver’s stare in the car to my right. It was<br />

like a laser cutting through ten inches of titanium. He disgustedly looked at me as if I had<br />

leprosy. I quickly turned my head and nervously looked forward with my oversized white strapon<br />

helmet.<br />

Reality quickly set in. I’d been in the rehab hospital with traumatic and acquired brain<br />

injury patients. Most of us had worn those big white protective helmets—that was the norm.<br />

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We would pass one another in the hallway and nod; sort of secretly saying to each other, “Yo,<br />

what’s up helmet head?” “Yo, what’s up with you?” Out in the free world, I was going to be the<br />

target of many insidious gawkers. This was my new normal. I refer to them as “RED LIGHTS,”<br />

and I was going to have one hell of a challenge ahead of me.<br />

I thought to myself, Please turn green, please turn green, please turn green! When the<br />

light finally turned green, I closed my eyes and strongly wished harmful and diabolical<br />

happenings upon the driver of that car. If I had a voodoo doll, it would have been burned and<br />

torn to shreds; to hell with the pins! I don’t ever recall having such a strong hatred towards<br />

another human being. I felt a genuine and unadulterated hatred for that man and thought he was<br />

a disgusting human being. Would I ever be able to move on and get over this?<br />

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Chapter 23: Home<br />

P<br />

ulling in, I remember seeing my girls homemade Welcome Home<br />

Daddy! signs, along with the purchased party-store-version which<br />

the adults had put up for my special homecoming. I was overwhelmed<br />

and flooded with emotions. It was the best feeling in the world to hug<br />

my own girls in my own house, but reality quickly set in yet once again.<br />

Upon this first real big hug at home, my helmet was in the way. I<br />

couldn’t get close enough to them. I couldn’t get an honest cheek to cheek hug. There aren’t<br />

enough words to describe my disappointment and anger. I knew there were going more<br />

disappointments ahead of me, but I was finally home with my family and that’s what mattered<br />

most.<br />

When putting this chapter together I thought it would have been longer and with more<br />

memories, but I just cannot remember much about that day. I was either under too much stress<br />

or I must have blocked out some occurrences during that tumultuous time. I talked to my<br />

psychologist about it because this was really bothering me. She explained that evolutionary<br />

biologist’s research had suggested that patients tend to remember negative thoughts during a<br />

traumatic or life-changing event in order to protect themselves from similar, future events. She<br />

further explained that more mental effort is required in recalling good memories. So in my<br />

current state of mind, while trying to remember and write about it today, I find much solace in<br />

that reasoning.<br />

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Chapter 24: Home: New Life, Rules and Challenges<br />

O<br />

nce home, a lengthy list of can’t do’s was bestowed upon<br />

me. As you may have noticed by now, I don’t like being<br />

told what to do; and better yet, what not to do. Being an<br />

anarchistic in so many aspects of my life, my attitude has<br />

caused me to fail but it has also played an important role in my<br />

success. When combined with my motivation and drive, it’s<br />

Me, the anarchist, back in the ‘80s<br />

either a big win or a devastating failure. My addiction to never give up sometimes carries<br />

deceptive and devastating consequences which, at times, has brought me crashing down to my<br />

knees. However, I will never give up!<br />

Here are a few items I can recall of my Can’t Do List:<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

No driving<br />

No straining<br />

No bending over<br />

No lifting anything over 20 pounds<br />

No getting out of bed without my helmet on<br />

No drinking beer / no alcohol consumption<br />

No long periods of watching TV, using the computer or being on the phone<br />

Mandatory rest periods: 5 – 7 per day for at least 30 – 45 minutes each<br />

Let’s see how I do.<br />

No driving. I think it was about a week since I had gotten home and cabin fever had set<br />

in. As a man, I needed to drive. I needed to get out without someone chauffeuring me back and<br />

forth to therapy. The perfect day presented itself, as Laura, my kids and mother-in-law, Grace,<br />

weren’t home. Since discharged, a family member had always been at the house to help me<br />

make it through the day, as I was not yet self-sufficient.<br />

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I needed to get out, but where should I go? I could only think of one place. The Mart.<br />

Could this be the store where I blend in with others? (Because I am not able to use certain<br />

people, places’ or things’ proper names, I’ll give you a clue of which store this is: the first part<br />

of the Mart’s name is not a ceiling or a floor. It’s more or less the place what you hang pictures<br />

on…on a ****. Put this word in front of Mart and you’ve got it! Please say you got that clue. If<br />

you have a brain injury, I’ll let it slide.)<br />

I hopped in my silver Honda Accord and started her up. I felt like a man again. I was<br />

thinking that maybe it wasn’t the greatest idea, but I had to do it for my own sanity; I had to get<br />

out by myself, alone. It felt great driving my own car. As I made my way towards the Mart, I<br />

approached a red traffic light and then, BOOM!, another RED LIGHT. This time I was<br />

prepared. As I looked out my driver’s side window, there was a man staring at me with a<br />

disgusted look. I revved up my engine, and with my tongue hanging out my left, lower lip, made<br />

a crazy-looking face. After the light turned green, I removed my foot from the brake and took<br />

off like a bat out of Hell. Damn, that felt great! It was total retribution from the first RED<br />

LIGHT encounter on the drive home from rehab. I became engulfed in a lengthy, full-belly<br />

laughing episode. I felt alive! The crazy and funny Johnny is coming back!<br />

I slowly pulled into the Mart’s parking lot, exited my car and walked into the store. I<br />

can’t remember what I purchased but I enjoyed walking around. Remarkably, not many people<br />

looked at me with disgust. Most looked at me with compassion and some sort of understanding.<br />

I was taken back and blown away at the same time. Even before I walked in, I had prepared<br />

myself for the worst. Part of my anxiety of the trip had been smothered out from the RED<br />

LIGHT encounter just prior to my arrival. Was this my new, public safe haven? Or perhaps I<br />

had turned into one of those Mart Martians. You know, those crazy pictures of guys dressed up<br />

like women or the morbidly obese women wearing clothes that are six sizes too small.<br />

I went to the checkout line and the cashier kindly smiled at me. She asked, “Why are you<br />

wearing a helmet?” Because of her sincere voice and kind demeanor, I had no problem telling<br />

her my abridged version. She stopped dead in her tracks. Her eyes started to tear and she<br />

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reached for some tissues. “I lost my father to a brain aneurysm. I’m so glad that you made it<br />

through.” She put my items in that spinney bag thing, handed me my receipt, then came out<br />

from behind the counter and gave me a strong, sincere, heartfelt hug. It was unbelievable! I<br />

thought, Okay, this is turning out to be a great day.<br />

I walked out of the store to my car and put the bags in the trunk. As I was getting in, I<br />

forgot about the damn helmet and BOOM! I banged the right side of my head. Yes, the affected<br />

right side. If not for the protection of the helmet, I would have just received my last hug ever! I<br />

knew I shouldn’t have gone out in the first place and that bang reminded me of how vulnerable I<br />

really was. I kept my eyes straight on the road the entire ride home, even at the red traffic lights.<br />

I made it home before anybody knew I was gone. I was so drained I could barely move, but I<br />

also felt alive.<br />

No straining. You would be amazed at how much you strain throughout the day and<br />

don’t realize it. I was still getting painful headaches for which I took codeine. The major side<br />

effect of codeine is constipation and when you’re constipated you strain and when you strain<br />

with twenty-five percent of your skull missing, it is quite a unique and eerie experience. One<br />

particular day, as I was bearing down, it felt like the right part of my head, which only had the<br />

skin as a barrier between my brain and the outside world, would partially expand outwards. I<br />

placed my hand over my missing skull area when I strained in hopeful expectation that it would<br />

hold things back from dislodging or popping. I don’t know what I was thinking; I just knew this<br />

couldn’t be good. Stool softeners were a complete failure. I thought, Screw this; I knew I<br />

needed to move up to the heavy artillery—the almighty blue, shiny pill—the laxative.<br />

Thankfully, the blue, shiny pill was the solution and the straining subsided. Then came Double<br />

Jeopardy.<br />

No bending over. I am a big proponent of sanitary wipes (aka butt wipes). I firmly<br />

believe that when your butt is thoroughly clean, you simply have a better day. While fighting the<br />

constipation demons, I recall, one particular morning, dropping a package of my precious buttcleansing<br />

wipes on the bathroom floor. They bounced off my foot and slid across the floor. I<br />

looked down. “Really? Come on!” After about ten minutes of straining, all while attempting to<br />

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hold my brain in with my right hand, I stood up and bent over to pick them up. I was at war with<br />

myself and my brain didn’t like it. I nearly passed out before sitting back down on the throne. I<br />

finished my business, washed my hands and barely made it back to bed where I was rendered<br />

useless for the next few hours. That was the kind of stuff I hadn’t expected to deal with every<br />

day. Why would I have thought about it before? However, this particular situation and my<br />

newer circumstances made me think differently.<br />

No lifting over 20 lbs. Lifting mimicked the same results as straining. As I alluded to<br />

earlier, I have an anarchist personality, so it goes without saying that I pushed it a little.<br />

However, when I did, it felt like a water balloon was coming out of the right side of my skull. I<br />

was pretty cautious about not overstepping that boundary often.<br />

Mandatory rest periods, 5 – 7 per day. Now here’s the pièce de resistance…a bad storm<br />

had rolled in and shattered our outdoor glass table top on our deck. The old John would have<br />

said, “Well let’s just go buy a new table—a better table! Hell, let’s go buy a whole new set and<br />

donate the rest!” The new John’s brain wasn’t working so well, so I had to the deal with what<br />

we had. I took out the shop-vac and cleaned up the thousand pieces of broken glass on the deck<br />

(no bending, no lifting, no straining—pfftt, no problem). However, after completing this task, I<br />

was completely drained and had to rest for three or four hours. During that rest, my brain just<br />

wouldn’t turn off and I came up with an idea to fabricate a new tabletop, but I wasn’t sure how to<br />

execute it. The issue was that my brain wasn’t the same as it used to be. I used to be able to<br />

plan, execute and complete tasks like this lickety-split; however, it was a whole new ballgame<br />

and I wasn’t quite ready to play in that game.<br />

Put them all together and… I just could not get this idea out of my head so about two<br />

days later, I began implementing my idea. I had found several 1” x 2” x 8” strips of wood in my<br />

basement and put my brilliant plan to erect a new tabletop into action! I eagerly thought, This is<br />

good. Your brain is starting to work better, John. My plan was to frame out the table and put<br />

the wood strips on top. I would then secure the wood strips to the frame, then sand and stain<br />

them to make it look as if it were a new teak table top. Let me reiterate: I was still thinking and<br />

acting as if I was still the old Johnny, but I was nowhere near it. The old Johnny took over with<br />

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his anarchistic, fast and furious actions. The you can’t tell me what I can and what I can’t do<br />

Johnny. So on a sweltering ninety degree afternoon, I started assembling my newly devised<br />

tabletop. I strained, I bent over, I lifted wood over twenty pounds and even took my helmet off<br />

because it was so damn hot out. As I was inserting the final screws and applying the final coat of<br />

stain on that God-forsaken tabletop, I drank three cold beers. I never cursed so much in my life.<br />

Upon completion, I inspected it and proudly puffed out my<br />

chest like a cave man that had just started a fire. I was proud of my<br />

accomplishment. These therapists were wrong, “I can get back to the<br />

way I once was before!” What did that victory offer me? In retrospect<br />

I can say not much; I was physically, cognitively and mentally<br />

annihilated for five days. I liken it to competing in an Iron Man<br />

Competition with two flat tires during the bike portion, flip-flops<br />

during running portion and wearing a snow suit during the swimming<br />

portion of the race. Looking back, as this is always so easy to do in life, I shake my head and<br />

wonder, What were you thinking John? Laura bought a new table two weeks later. That’s all I<br />

have to say about that.<br />

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Chapter 25: Church<br />

W<br />

hen I awoke from the coma, praying to Jesus on the cross was one of the first things I<br />

did. I prayed to Him first, in thanks for sparing me my life. And secondly, to give me<br />

the strength and ability to overcome what was ahead of me. I prayed several times a day,<br />

especially late at night when I was alone. During the horrific vasospasms, I remember saying,<br />

“Jesus, why have you forsaken me?” This, I believe, goes back to my childhood and the movie I<br />

watched every year before Easter where Jesus was nailed to the crucifix. (Again, I must reiterate<br />

that it is not my intention to compare myself or my pain to Jesus.) The pain was that real for me.<br />

I prayed vigilantly every day.<br />

I prayed in fear and I prayed in anger. I prayed every night in the ICU at Hospital J and<br />

at Peat Rehab while staring up at the ceiling and trying to count the holes in the tiled ceiling<br />

panels, which was enough to make anyone go mad, yet alone a brain injured person. I made the<br />

pact that so many often do: “If you get me out of here, Jesus, I will go to church every Sunday.”<br />

I prayed and I prayed and I prayed.<br />

I was now home and it was time for me to hold up my end of the bargain. I was<br />

confident that church would be a safe haven, even better than the Mart. My gracious neighbor<br />

offered to drive M and I to mass with her family. Overly self-conscious about my appearance<br />

with the big white helmet, I attempted to compensate by being sharply dressed.<br />

I chose to sit in the last, small pew in the back of the church with my daughter, as it only<br />

held three people and offered a miniature closed environment—an easy escape route as certain<br />

noises and situations made me anxious. If need be, I could exit expeditiously.<br />

The first mass I attended, I looked up at Jesus on the massive cross and tears filled my<br />

eyes and quickly rolled down my cheeks. It was an extraordinarily spiritual and powerful<br />

moment. It felt like there was no one else there except for my daughter, Jesus on the cross and<br />

me. I had seen Jesus on the cross thousands of times before but it had never impacted me the<br />

way it did that day. I was stumped, but at peace. As mass went on, RED LIGHTS started staring<br />

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at me and, before long, it was time for communion. M had not received her first communion yet,<br />

but I had always taken her up in front of me to have her blessed by the priest.<br />

As I walked down the aisle to receive communion, BOOM!, there were RED LIGHTS,<br />

RED LIGHTS and even more RED LIGHTS; in front of me, behind me and all to the left and<br />

right of me. M was seeing, feeling and living my pain and humiliation; what did I do to deserve<br />

theses looks? I felt like saying to anyone that looked at me the way they did, “Shame on you,<br />

shame on all you bastards.” I didn’t stop or turn around, but tried to smile and look straight<br />

forward as we continued our journey down the aisle to receive communion. As M and I walked<br />

back to our small church pew in the back of the church, more RED LIGHTS stared and gawked<br />

upon my daughter and I. I wanted to yell, “Keep my daughter out of your ugly looks and<br />

thoughts. Go to Hell!“<br />

We went to our pew and I said my final prayer while staring at Jesus on the cross. I<br />

wasn’t crying that time; I was shaking my big white helmet head back and forth in disbelief. I<br />

told M it was time to go and we left. We waited in the parking lot, on the other side of my<br />

neighbor’s minivan. I figured that it would provide a good height barrier from any additional<br />

RED LIGHTS coming out of mass. I did continue to attend church, but haven’t been back to that<br />

particular church since. Can you blame me? In time of needing support, I got RED LIGHTS<br />

and feelings of condemnation.<br />

I see things more vividly now. I pray at home every night with my daughters. We pray<br />

for everyone that is less fortunate and more fortunate than us. We even pray for those RED<br />

LIGHTS because they are less fortunate than us. I do pity those that think just because they<br />

show up on any given Sunday, put their money in those little white dated envelopes and think or<br />

try to act like they are good people, that they will automatically be granted a free pass into<br />

heaven to meet Jesus. I’m not sure, but I don’t believe it works that way. I feel sorry for them.<br />

Mind you, not everyone in that church was cruel, but there was a remarkable amount of them. In<br />

my eyes, anything more than one is unacceptable, excluding children.<br />

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It infuriated me because although I wasn’t raised in this particular church, I was raised in<br />

this faith. I was raised to help people and go out of my way to make people feel special. I<br />

believe Jesus knows me and sees what I do to help others and when I do show up at the pearly<br />

gates to see St. Peter and meet my Maker and Savior, I won’t have a small, white dated envelope<br />

with cash in it. Instead, I will have my acts of kindness, love and compassion stretched across<br />

my chest. And I can only pray that I’m able to continue to do good for others so I am received as<br />

well as I am describing myself above.<br />

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CHAPTER 26: The Driver’s License Center (DMV)<br />

G<br />

o figure…during my helmet-wearing days, my driver’s license expired. I didn’t want to<br />

get it renewed with my helmet on, but I had to if I was going to drive. So off I went to get<br />

my new picture ID taken. Laura drove me to the DMV that day. After entering the building, I<br />

hesitantly took my number and waited for my turn. Several minutes later, an older woman at the<br />

brink of retirement called my lucky number. She looked as if she should’ve been wearing a<br />

freshly ironed flowered apron at home and making a nice warm homemade apple pie versus<br />

being here. She reminded me of my Nanny Cooper who, unlike my mother, was a great cook in<br />

my eyes.<br />

As I handed my numbered card to her, she looked up at me and said in a sweet and honest<br />

tone, “Oh, did you ride your bicycle in here today?” I couldn’t be mad; I just smiled. But in my<br />

mind I was thinking, Yeah, I rode my frigging bicycle up here to get my driver’s license renewed.<br />

Really? I could tell she was a genuine, sweet woman, so I explained the abridged version of<br />

what happened. She respectfully asked me step back about five feet and instructed me to sit<br />

down to get my picture taken. “John, will you be wearing this helmet the rest of your life or past<br />

the next time your license expires?” “No ma’am. The plan is to get my skull replaced in about<br />

six months and not wear this helmet.” “Okay,” she said, “you are going to have to take the<br />

picture with the helmet off because your picture license lasts for a few years.”<br />

As I removed my helmet, I temporarily forgot about<br />

the massive piece of my missing skull. The kind woman<br />

snapped my picture and, for the first time, I saw myself with<br />

my skull missing. It was like a horror film poster. I looked<br />

disgusting. I wanted to punch the screen. I was grossed out.<br />

With the newer technology they could retake my picture<br />

several times which I had asked to be done. I had the option to choose the best picture but I<br />

didn’t want if any of them. Was I turning into my own RED LIGHT?<br />

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I wanted my skull back. I wanted my old life back. What has become of me? Choose<br />

whichever curse word you want; I wanted to scream it out loud ten times. In the shower at Peat<br />

Rehab I felt sadness but at the DMV, my bottled up rage was near the point of eruption. Laura<br />

and the pleasant, grandmotherly-looking-picture-taking-lady choose the best picture with the best<br />

smile for my new license. She sealed the new picture which felt like it was sealing my fate. This<br />

would be another constant reminder of what my life had become and what I had turned into.<br />

With a warm smile, the kind of smile you can see through someone’s eyes and deep into their<br />

soul, she sincerely said goodbye and wished me good luck.<br />

On the way home, I sat in the car staring down at my horrific driver’s license picture<br />

sitting upon my lap. I did everything I could to not cry or to not violently smash the dashboard<br />

in with my fist. Laura and the homemade-apple-pie-picture-lady were very supportive of me;<br />

but the more I looked at that picture, the more I started to loathe myself and question Why was I<br />

saved? How come I didn’t die from that giant, ruptured aneurysm? If this is how I’m going to be<br />

living from now on, I don’t want any part of this life.” All those emotions had reached a boiling<br />

point. It was a dark period for me. Those seedlings had started to spread at a high rate of speed.<br />

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Chapter 27: The Party Couldn’t Have Come at a Better Time.<br />

I<br />

n a time where total darkness surrounded me, a blinding light suddenly appeared.<br />

Unbeknownst to me, my family and friends were putting a special event together which I like<br />

to refer to as my 40 th Birthday Party. Simply put, it was amazing! They had a band, auction<br />

items, baskets of goodies and various activities for everyone in attendance. I couldn’t believe<br />

how many friends and family members were involved in putting it together.<br />

For the first time since being home, I didn’t feel uncomfortable<br />

wearing my helmet. I did feel a little sad here and there because I noticed<br />

that some people were looking at me and saying to themselves, I feel so sorry<br />

for you, Coop. A lot of people who I hadn’t seen in a long time had<br />

concerned facial expressions. I probably would have reacted the same way if<br />

I hadn’t seen a friend or family member in a long time and then, BOOM!,<br />

they were wearing a big, white helmet and had suffered brain damage. That<br />

must have been a little shocking to them. I was a tired-looking, slower-walking and slowerthinking<br />

Coop which was something that people weren’t accustomed to.<br />

I ran into people I hadn’t seen in weeks, months and even years. Some were there<br />

because I had worked with them, some were friends and some were family. Some were even<br />

people who I had somehow touched them in their life. Everyone had a drink in their hand and<br />

smiles on their faces—including me! It was in that moment I thought to capture the names of<br />

everyone who came to see me so I could remember. I grabbed a black Sharpie marker from one<br />

of the tables and sat down to rest.<br />

I was completely overwhelmed, emotionally drained<br />

and mentally whooped, but there was no way in hell I was<br />

going to leave. My body told me it was time leave, but my<br />

heart said No way! I just needed a break. I didn’t want to<br />

appear weak to anyone, so I succumbed to sitting. Most<br />

people had never seen the beat-down, tired and post-brain-injury-annihilated Coop. I took<br />

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several deep breaths and as people came up to talk to me, I asked them, “This is a special night,<br />

do you want to sign my helmet?” My confidence exploded like a dormant volcano. A<br />

formidable line formed for people to sign my helmet. This was intoxicating because as they<br />

were signing it, we were sharing stories from our past. Some stories made us cry, but for the<br />

most part, we laughed our asses off having true and sincere full belly-laughing episodes. That<br />

blinding light had temporarily put my darkness to rest.<br />

The next thing I know, I’m hearing, “Where’s Coop? We need<br />

Coop up here at the microphone.” My buddies, Billy and Matt, had a<br />

few, very nice words to say about me. Everyone cheered and hollered,<br />

“Speech, speech, speech. Coop, Coop, Coop!” The band got involved<br />

and then Rocky theme song, “Gonna Fly Now” came on. I was<br />

pumped up! They handed me the microphone and I exuberantly sprung<br />

to my feet.<br />

Looking out over all of my beautiful family and friends, I could<br />

only think to say, “Thank you so much for everything. My only hope is<br />

that everyone makes at least one new friend before they leave here<br />

tonight.” I did my best to hold back my tears but when I looked out, I<br />

didn’t see a dry eye in the house. Hell, that wasn’t my intention. My best<br />

friends, my wife and my family came up and hugged me tightly and<br />

within seconds, we were all crying like babies.<br />

I saw my godmother, Aunt Pat, whom I hadn’t seen in a long while. She had flown up<br />

from Florida to attend the party. I was totally drained at this point of the evening, but I wanted to<br />

talk with her and I’m glad I did because it reinforced my belief in the power of prayer. My aunt<br />

was a respiratory therapist in a hospital and she told me of a woman who was a custodial<br />

engineer who had been praying for me. I was exhausted, near brain dead and thinking to myself,<br />

Do you know how many times I’ve heard this tonight? I was extremely thankful for all of the<br />

prayers but I was quickly fading out. This, of course, was not my normal caring thought process,<br />

so I thought again to myself, Okay, let’s get on with the story, Aunt Pat.<br />

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During the same time of my giant, ruptured brain aneurysm, there was a horrific<br />

earthquake in Haiti. Thousands of people died and even more were left homeless. This poor<br />

woman who my aunt worked with had lost her son and many other family members to that<br />

earthquake. However, she heard about me and started a prayer chain with her family in Haiti and<br />

beyond. She had been praying vigilantly for me. I broke down in tears in front of my Aunt Pat<br />

and everyone who was around me. My heart was light and airy, yet heavy, like boulders<br />

recklessly tumbling down a steep, wet mountainside. Here was an anonymous woman from a<br />

third world country that had lost everything near and dear to her and she and her large prayer<br />

group were praying for me. Why me?<br />

It was in that very moment that the why me meanings were changing. The past few<br />

months it was a woe-is-me-why-me? Right then and there, it turned into an honorable-mentalwhy<br />

me? It was a very humbling moment in that crazy, fun-filled night. I cried and hugged my<br />

aunt and told her, “I will pray for this dear woman and her family.” I asked my aunt to thank her<br />

for all of their prayers well wishes.<br />

As the evening went on, friends and family continued<br />

tagging my helmet with messages and signatures. At one point,<br />

I recall the lights slowly dimming and a hefty, beautifully<br />

decorated birthday cake with an edible flag of Ireland on top<br />

was presented to me.<br />

It was then plastered with forty bright, flickering candles. The<br />

band started and everyone followed suit in singing the birthday song. I<br />

think Laura and friends helped me blow out the candles because if I did<br />

it myself, I probably would have had another aneurysm with all that<br />

straining. My friends then handed me a birthday envelope with a<br />

special gift enclosed. Not many will have the opportunity to experience<br />

the amount of love and support I received that evening. The party<br />

couldn’t have come at a better time.<br />

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I felt like George Bailey at the end of the movie It’s A Wonderful Life where Clarence the<br />

Angel wrote a message inside the angel’s copy of Mark Twain’s The Adventures of Tom Sawyer:<br />

Dear George,<br />

Remember no man is a failure who has friends.<br />

Thanks for the wings!<br />

Love, Clarence<br />

A few weeks later, as if this weren’t enough, my brothers at the Ancient Order of<br />

Irishmen held a second birthday party for those that couldn’t attend the first one. As I reflected<br />

upon each of those events, it was almost like attending my own funeral. Many people wonder at<br />

least once in their life, Who would show up at my funeral? I was pleasantly surprised, amazed<br />

and very thankful for having been given the opportunity to experience it firsthand. I know that I<br />

had survived for some reason which was still yet to be figured out; however, I stopped<br />

questioning myself daily. Just like Dory from Disney’s Finding Nemo, I knew that I had to keep<br />

moving forward and “just keep swimming, just keep swimming.”<br />

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Chapter 28: Moving Forward…“Groundhog Day”<br />

W<br />

ithin a week of being discharged from Peat Rehab and for several months following, I<br />

attended rigorous outpatient therapy back at Peat Rehab (I still continue certain<br />

therapies there). They consisted of physical, occupational and speech therapy. They even threw<br />

in a psychologist. I guess it was like a tire sale package deal: buy three, get one free. (By the<br />

way, I never understood that. Buy three tires, get one free? Who the hell buys three tires? You<br />

buy one, two or all four tires. I know and understand the marketing concept, but I find it to be<br />

annoying. I am not impressed with that type of inadequate dummy marketing. I digress…let’s<br />

keep the story going.)<br />

As I was unable to drive, Laura drove me forty-five minutes to and from therapy, two or<br />

three times a week. She would pay close attention and took a copious amount of notes. She<br />

stayed on top of me and made sure I was doing what was suggested by the therapists. That put a<br />

major strain on our relationship. Before the aneurysm, we were equal partners. Now she was<br />

tasked with playing housemaid to me and my brain injury, in addition to holding down the fort<br />

while parenting our two daughters, paying bills, working full-time and being a great mother.<br />

Without my big, beautiful, blue-eyed wife, I would have never made it as far as I have.<br />

Therapy could only get me so far. Laura took it further by pushing and supporting me.<br />

She wanted to see me succeed. She needed me to succeed. I attended a seminar on brain injuries<br />

to learn as much as I could. They discussed that the divorce rate following a brain injury was<br />

well over forty-five percent within three to five years. This is in addition to the forty percent to<br />

fifty percent of the present divorce rate. So, roughly five out of ten will get a divorce. From<br />

those five remaining, two or three will get divorced due to the added stressors put on a marriage<br />

from a brain injury. I am happy to report that we are still married today because she never gave<br />

upon me; she never gave up on us. Do you know how strong a person has to be to overcome<br />

those odds? I do!<br />

I didn’t notice any noteworthy improvements. I noticed a few things here and there, but<br />

not much. Every time I headed down to therapy, I felt like Bill Murray in the movie Groundhog<br />

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Day. Everyone kept explaining to me that in my type of recovery, “If treated like a race, you<br />

must treat this like a marathon, not a sprint. Improvements will be seen over longer periods of<br />

time, not shorter periods of time.” That didn’t sit well with me. I was, and still am, a goaloriented,<br />

Type A, bullheaded, anarchistic son-of-a-bitch. When people said “no” to me, they<br />

obviously didn’t know me. I wanted that damn helmet off and my damn missing skull bone put<br />

back in my head. I didn’t want people doing things for me anymore. I wanted my wife and my<br />

children to have a real man, not a half of a man. I was sick of all those RED LIGHTS. That<br />

“moving forward” and, “just keep swimming” philosophy was adding more weight on my fast<br />

moving downward spiral.<br />

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Chapter 29: Let’s Talk About Sex, Baby...<br />

S<br />

o how was it going to work out? I knew for sure I wasn’t going to reference the pictures<br />

from the brochures I had to order at Peat Rehab. It was just like riding a bike but without<br />

the helmet. There was no way in hell I was I going to have my Corky helmet on for that! Since<br />

it had been such a long time, it lasted about as long as this chapter. It was absolutely fantastic!<br />

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Chapter 30: Squirrels!!<br />

I<br />

t was a tranquil, sunny Fall afternoon in the Cooper household and I was sitting in the living<br />

room with Laura and our daughters when we heard a strange scratching noise coming from<br />

the dining room. We all looked at one another, bewildered, as if to say, “What is that noise?” I<br />

turned around, looked into the dining room, and there he was—BOOM! “Squirrel,” I yelled!<br />

We all jumped up at once! I went one way and lunged<br />

towards the windows in an attempt to scare him out of the<br />

house. Laura went the other way and opened up the front<br />

door. The girls were frantically screaming and jumping up<br />

and down with fear (so was I, but on the inside). In a flash,<br />

the squirrel darted up the steps and ran into M’s bedroom. M and I bolted up the steps, entered<br />

the room and tried to scare him out and back down the stairs so he could exit the front door.<br />

(Mind you, all the while our black-tie Persian cat, Guinness, just sat there and stared at the<br />

squirrel running up the stairs.)<br />

“Alright squirrel, it’s you or it’s me. This is my house!” As I lunged towards him, he<br />

shot down the steps, skipping every three or four steps and raced out the front door. In doing so,<br />

that little bastard pooped a dozen or more little, dry squirrel pellets all over M’s bedroom. I<br />

thought, What the hell just happened? I felt like Clark Griswold in National Lampoon’s<br />

Christmas Vacation movie when the squirrel lunged out of their freshly-cut, farmed Christmas<br />

tree. As we cleaned up the squirrel poop, we scratched our heads and laughed uncontrollably<br />

retelling our own version of what had just occurred.<br />

Then the eerie pause ended our laughing session. “Do you hear something?” “Yes, it<br />

sounds like something is scratching behind the walls or up in the ceiling.” Damn, more<br />

squirrels? We couldn’t see them, we could only hear them.<br />

I quickly made a call to my buddy, Billy, and my Uncle Bob. Within 24 hours I had three<br />

squirrel traps. Bob figured out where they were coming in and installed wire mesh to deter their<br />

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reentry into my domicile. I set the traps up on my back deck with peanut butter crackers and the<br />

next day, I hit the jackpot and caught three. What the hell do I do with them now? I have three<br />

trapped, pissed off, vicious squirrels.<br />

I was raised up in Philly and I‘m not a nature guy by any stretch of the imagination; I’m a<br />

street kid. I respect nature and I recycle and all of that good stuff, but I’m no nature boy. When<br />

I go fishing and catch something, I cut off the hook and put a new hook on the line so I don’t<br />

have to reach inside the fish’s mouth. It’s just not my thing. However, performing manual heart<br />

pumping on someone after their ribs were cracked open (when traditional CPR didn’t<br />

work)…that was a walk in the park for me. Those squirrels were a completely different skill set<br />

for this city boy.<br />

So what was I to do? I called up Billy and Uncle Bob again who both instructed me to<br />

release them a few blocks away from the house. Still not being allowed to drive, no one in my<br />

house minded when I went for my short drive to release them (heck, nobody else wanted to do<br />

it). It was my miniature get out of jail free card to drive a car and drop off some squirrels.<br />

They were angry little creatures of God, not the nice, cute-looking creatures I saw every<br />

morning running up my trees and having fun. These captured varmints were growling at me like<br />

little chihuahuas on crack cocaine. I quickly and squeamishly put them in my trunk, drove a few<br />

blocks away and released them. Day after day I caught squirrel after squirrel. Were the same<br />

ones coming back? I needed to be sure. But how?<br />

The brain-injured, Philly kid in me had a brilliant idea. After catching the squirrels and<br />

while they were still in the cage, I’d spray-paint their tails. I had a bright, fluorescent orange<br />

spray paint in the garage which was really marking paint used on roads. It wears off quickly on<br />

the streets, as far as I knew, so it should eventually wear off the squirrels’ tails, right? My next<br />

couple squirrel catches were sprayed with the fluorescent orange spray paint and released a few<br />

blocks away. And, to my amazement, the same squirrels came back! Those orange-tailed<br />

creatures found their way back to my house! I was dumbfounded. A few more phone calls to<br />

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Billy and Uncle Bob and it was agreed they needed to be released further away—a lot further<br />

away.<br />

About a mile and a half away from my house, there’s a park with a lake. Over the course<br />

of the next three weeks, I would collect my newly trapped, growling squirrels, spray paint their<br />

tails, load them up in my trunk and drive them over to the park for a quick release—and I mean<br />

quick. I would open up the cage door, throw the trap down and watch their bright orange tails<br />

magically disappear into the woods.<br />

I lucked out. In all my releases, no one ever drove by or observed my demented activity.<br />

I would slowly and cautiously scope out my release site area. When my brain gave me the all<br />

clear order, I set them free. Imagine what would have happened if a Park Ranger was observing<br />

a grown man wearing a big, white helmet, pulling out caged- fluorescent-orange-sprayed-tailed<br />

squirrels from his trunk and releasing them into the woods while squeamishly dancing and<br />

yelling “ew, ew, ew,” like a scared little five year old. That would’ve been one hell of a mug<br />

shot.<br />

Thankfully, the squirrels never returned. Word must have got out in the squirrel<br />

community: “You best not mess with the cage-wielding, white-helmeted man.”<br />

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Chapter 31: On the Way to Cape May<br />

C<br />

ape May is one of mine and Laura’s favorite little getaways, especially when we were first<br />

dating. At one point in time we even contemplated buying a house there. Our very first<br />

getaway there I sang one of my favorite Frank Sinatra songs, “That’s Life,” to her and an 85-year<br />

-old woman at the Cool Mug Saloon. A few years later, we walked out of that same bar and<br />

found an older woman sitting on a bench, clearly upset. Ironically, she was reading the front<br />

page of The Philadelphia Inquirer which informed everyone that Frank Sinatra had died.<br />

Everyone, including myself was in disbelief and clearly devastated. We’ve had highs and lows<br />

in Cape May and the lows never cease to stop us from going back.<br />

I received the delightful news that on August 20, 2010, I was scheduled to have my<br />

cranioplasty surgery. This surgery would put my skull plate back in and eliminate the need for<br />

the helmet. We also scheduled our family vacation with our friends to Cape May, NJ that<br />

August. We thought it best to take vacation prior to the cranioplasty surgery due to not wanting<br />

the sun beating down on my incisions or sand from the beach possibly getting in them and<br />

causing infection. We also weren’t sure what the recovery from cranioplasty surgey would be,<br />

so we booked vacation for the beginning of August. I was excited to finally get the chance to get<br />

away with my family and close friends, Frank and Dawn and their daughter, E.<br />

A few months prior to our vacation, I had been hospitalized back at Hospital J to rule out<br />

transient ischemic attacks (TIA). TIAs are mini-strokes caused by a clot. The difference<br />

between a CVA and a TIA is that with a TIA, the blockage is transient or temporary, which may<br />

indicate a person’s likelihood of having a stroke in the near future. The odds were stacked<br />

against me and statistics don’t lie. The chances of me suffering a cerebral vascular accident<br />

(CVA) within five years post-ruptured aneurysm were astronomical.<br />

TIAs are sort of like the check engine light on your car telling you that something is<br />

wrong. Some of the doctors who saw me at Hospital J thought these TIAs may have been<br />

seizure related, so they increased my anti-seizure meds. Increasing my meds or not, it wouldn’t<br />

have mattered. In my eyes, what was about to happen was inevitable.<br />

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We headed down to Cape May, New Jersey, which is a great family-oriented seashore<br />

town. While on the beach, I encountered many RED LIGHTS and did my best to ignore them;<br />

but for a few, I looked over at them and made the crazy-looking face. They looked back at me<br />

scared. For some demented reason, it made me feel better; like I had better control of how I<br />

would allow others to perceive me. It may sound a little sadistic, but I felt like I had better<br />

control over the starring matches.<br />

Wearing the helmet on the humid ninety degree beach felt<br />

like having a large plastic bag wrapped around my skull with a<br />

thick wool winter hat over top of the plastic. The uncontrollable<br />

and profuse sweating left me feeling like a squirrel that had just<br />

been sprayed by a skunk. Sometimes it smelled horribly rancid<br />

and I would use my sanitary butt wipes to freshen and clean up my<br />

skull and the helmet. (I firmly believe that when your butt is<br />

thoroughly clean, you will always have a better day. That<br />

philosophy also applied to my sweat-covered skull and helmet.) I<br />

did not want to miss any part of the vacation with my girls, so I succumbed to sweat and smell<br />

and sheer exhaustion of going to the beach each day.<br />

This way of thinking, however, was about to take a toll on me. One night on vacation, I<br />

woke up around 4 am to go to the bathroom. Something wasn’t right, as I was bumping into the<br />

walls on the way to the bathroom. Standing at the toilet, I looked down and noticed I was<br />

swaying left to right, urinating all over the floor. I couldn’t keep my balance. I brushed it off<br />

and thought I was just extremely tired. I did my best to clean things up and headed back to bed,<br />

but truthfully, I was scared, confused and in clear denial. My blatant disregard didn’t make any<br />

sense.<br />

Hours later, I awoke and things still didn’t seem right. I got up out of bed and limped to<br />

the bathroom. I noticed the left side of my body was numb, my left leg was dragging and I could<br />

barely use my left arm. It felt like someone unplugged the left side of my body. I looked in the<br />

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mirror and couldn’t smile normally. The left side of my lip wouldn’t rise when my right side<br />

did. When I tried to flare my nostrils, only the right side responded to my insistent, voluntary<br />

command. My left side had left me.<br />

I went out to the living room and everyone knew that something was wrong. Dawn, who<br />

is a great nurse, and everyone else wanted to call an ambulance and were insistent I go to the ER.<br />

However, I wouldn’t listen to them. As a nurse, and under normal circumstances, I would have<br />

gone to the ER as soon as possible, but my brain denied me of the much-needed logic and<br />

thought process to do so. Instead, I fought everyone on going to the hospital. I did my best to<br />

put up a front that my left side was fine. However, Laura, Dawn and Frank were onto my game.<br />

It was several hours later from when I first went to the bathroom and noticed something<br />

was wrong. I was still arguing about whether or not to go to the ER. I finally gave in and<br />

everyone agreed that Hospital J would be my best chance. We loaded up the car and headed<br />

back to Hospital J in Philly. However, I continued to fight them before we left and the whole<br />

way there. “I’m fine,” I kept saying, “We don’t have to go. Let’s finish our vacation.” The<br />

event was a big blur to me. The “I’m fine” was very, very far from fine. How far? Let’s call it,<br />

from Earth to Mars far.<br />

Upon arrival at Hospital J, I was triaged at their ER, immediately put in for a CAT scan<br />

and my neurologist and neurosurgeons were called. From my nursing days, I knew that due to<br />

the long period of time that had passed, tissue plasminogen activator (tPA) treatment would be<br />

useless.<br />

The American Stroke Association: tPA works by dissolving the clot and improving blood flow to the part<br />

of the brain being deprived of blood flow. If administered within 3 hours (and up to 4.5 hours in certain<br />

eligible patients), tPA may improve the chances of recovering from a stroke. A significant number of<br />

stroke victims don’t get to the hospital in time for tPA treatment; this is why it’s so important to identify a<br />

stroke immediately.<br />

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Laura and I waited in a room in the ER for the results of the<br />

CAT scan. Finally, the on-call doctor appeared to deliver the results.<br />

Wait for it…wait for it… BOOM! I had suffered a significant stroke<br />

(CVA) to the right portion, the basal ganglia area, of my brain. It<br />

affected my logical reasoning and emotions, along with my left side<br />

motor control and movement. Not only did the stroke affect my<br />

scheduled cranioplasty surgery date, more importantly, it would have a<br />

definite impact on the rest my life. But how?<br />

When arteries are clipped, they form clots. The cause is not definitive. Regardless, I had<br />

a clot which caused a stroke. When clots form and break away, they wreak havoc at their final<br />

destination. With an ischemic stroke, there is a high likelihood of lifelong disabilities or, worse<br />

off, death. I was lucky enough to survive, but the diverse list of lifelong disabilities has impaired<br />

me forever. The basal ganglia is responsible for motor control, regulation of body movement,<br />

higher level cognitive functioning such as memory, reasoning, organizing, planning and mental<br />

flexibility. More times than not, a stroke in this area can lead to unannounced episodes of<br />

laughing, crying and very often depression.<br />

Was this the beginning of the end for me? I reflected on the events of the past eight<br />

months: in January, I suffered a Subarachnoid Hemorrhage caused by a giant, ruptured brain<br />

aneurysm. And now in August, I just suffered an Ischemic Stroke, possibly from a clot that<br />

formed and dislodged itself from one of the aneurysm clips inserted ten months earlier. Out of<br />

the one hundred billion estimated brain cells that I was gifted with, I can’t begin to estimate how<br />

many of my brain cells were killed. They are dead and no longer able to do their necessary jobs<br />

as a result of this stroke.<br />

The American Stroke Association: The typical patient loses 1.9 million neurons each minute in which<br />

stroke is untreated.<br />

The scheduled surgery for replacing my missing skull bone was put on hold, and I was<br />

told that I would need to wear that white, oversized helmet even longer than originally planned.<br />

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At the time, I felt that not having the cranioplasty on the scheduled date was a major bump in my<br />

cobblestoned road to recovery. Long-term it was just a pebble. The gapping sinkholes were not<br />

too far ahead of me.<br />

We had a terrific time in Cape May, minus the stroke. To this day, I still love going there<br />

and since the stroke, we’ve been back several times. I refuse to let an unfortunate occurrence at<br />

a certain location control my destiny. I say to hell with all of that bad, superstitious stuff that<br />

people live their life by. Frank died and then I had a stroke. In my life, the Cape May name is<br />

associated with both of them and who cares? I like Cape May and so does Laura. “On the way<br />

to Cape May, I fell in love with you…”<br />

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Chapter 32: Johnny’s Getting his Skull Back<br />

I<br />

had the date: October 25, 2010 at Hospital J. This time was a little different, though; I had<br />

time to sit and think about it—another brain surgery for the second time that year. I don’t<br />

care how anyone worded it, I was going to have two brain surgeries within ten months of each<br />

other. Think about that for a minute and let it set in… They were going to shave my head and<br />

make another large incision and, as my brain was open to air, they would be manipulating my<br />

precious grey matter and then reinserting my skull bone, all while carefully working around the<br />

seven newly-inserted aneurysm clips. (It’s important to note that Hospital J was keeping my<br />

skull plate “refrigerated.” It was regularly inspected and checked by Hospital J staff. As I<br />

understood it, it was housed with other skull plates that were to be replaced on other patients.)<br />

Not only did I have time to think about this second<br />

surgery, there were aesthetic concerns, too. Because my<br />

aneurysm was what they called a “giant” aneurysm, it was<br />

clamped with very large clips. Two of the seven clips<br />

slightly protrude out of my temple area about a quarter of an<br />

inch, so the concern was if the skull plate would fully cover<br />

the protruding clips. This wasn’t any old Lego play set we’re<br />

talking about here boys and girls. And with my recent stroke, I was starting to think that Lady<br />

Luck wasn’t on my side.<br />

On Friday, October 22 th at 4:00 pm, 3 days before my scheduled surgery, we received a<br />

call from Hospital J. We excitedly took the call, assuming we were going to be told what time to<br />

show up at for Monday’s surgery. Wait for it....wait for it... BOOM! The call went something<br />

like this: “Mr. Cooper, we’re calling to inform you that unfortunately we have to cancel<br />

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surgery. We won’t be able to use your skull bone, as it’s become infected with strep.” I don’t<br />

remember much of what was said after that and handed the phone to Laura. No shit! What the<br />

hell was I going to do? I need my skull bone put back in and I need it now! I was frustrated,<br />

mad and befuddled. I was angry that mine had become infected, but I just wanted them to find<br />

another one and put it in!<br />

As all of this was happening, we were in the process of changing our health insurance<br />

provider and only had about three weeks before my policy changed. I didn’t know what kind of<br />

hoops we were going to have to jump through to make surgery happen. My brain couldn’t<br />

compute what was going on, so Laura hopped right on things and made several calls. There was<br />

so much to be done in order to get a synthetic piece made for my surgery. She lined up the<br />

insurance company, Hospital J neurosurgeons and nurses, the CAT scan scheduler, and probably<br />

many others.<br />

The CAT scan was vitally important so they could obtain the exact dimensional<br />

measurements for the piece of my missing skull bone. From there, a specialized medical<br />

fabrication company would have to make my new synthetic replacement skull plate. They<br />

informed me that the new synthetic skull plate would be much more durable and stronger than<br />

my original skull bone. We technically needed a referral before we could schedule the CAT<br />

scan. However, when the hospital asked Laura about this, she said, “No, we don’t need a<br />

referral,” and she was able to get the staff at Hospital J to move fast. The CAT scan was<br />

scheduled for the following Monday (the date my surgery was supposed to occur).<br />

I thought, This is a good thing. It’s brand new and more durable, just like my new deck<br />

table. Things happen for a reason so stay positive, John. Both the nurse who disclosed the bad<br />

news and Laura handled things expeditiously and got everything needed for a quick resolve. She<br />

was nothing less than exceptional. She rocks; nurses rock!<br />

We were told that synthetics plates can take a week to ten days to create. However,<br />

between Laura and the Hospital J nurse, they were able to get it casted within three days! My<br />

new replacement skull plate was created and my cranioplasty surgery date was scheduled for<br />

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Friday, October 29 th —4 days after my original date. With only two weeks to spare before my<br />

new health insurance policy took effect, we were back on track.<br />

Imagine if you had part of your skull taken out. Wouldn’t you want it back? Maybe I am<br />

deranged or just brain damaged, but a part of me wanted it. I imagine I would’ve sprayed it with<br />

the fluorescent orange marking paint for the squirrels, glued a picture of a RED LIGHT on it,<br />

shellacked that son-of-a-bitch, put it in a picture box frame and thrown that picture frame box in<br />

a tote, sealed it with five rolls of duct tape and neatly kicked it into the furthest back area of my<br />

attic and locked the door. However, even upon my numerous requests, they would not give me<br />

my old skull bone back.<br />

The day of surgery had finally arrived. I showered,<br />

got dressed and looked in the mirror for the last time with the<br />

missing twenty-five percent of my skull. I looked at myself in<br />

disgust and also with pride because I had made it that far. I<br />

carefully donned my big, oversized, white Corky helmet for<br />

the last time and Laura drove us down to the hospital. They<br />

checked me in and soon after I was put on a gurney and administered an IV with a sedative.<br />

That was extremely helpful because I had an impending feeling of doom lurking over me. I told<br />

Laura, my parents and my Aunt Deb (who had all come to see me through the surgery), “This is<br />

just a walk in the park. I’ll see you guys in a few hours.” I didn’t want to appear nervous or<br />

afraid. I wanted them to see the happy, strong-willed, Johnny’s getting his skull back guy. I was<br />

terrified and made my best attempt to keep both them and me at rest and telling myself that<br />

everything is going to be okay, John. I was rolled into the operating room where my<br />

neurosurgeon was waiting for me. She smiled and put me at ease. I was then down for the<br />

count.<br />

I awoke in recovery and remembered seeing Laura, Dawn and Frank. I felt the obvious<br />

pain and once again I was SBH. (Stoned by Hospital). I was never a big supporter of narcotics,<br />

but that blanket-tey-blank drug was some good stuff, my friends. I see why people get hooked<br />

on it. I looked up at all of them and said, “Oh my God, we have to get some of the stuff and do it<br />

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all together. This is so cool. Ask the nurse if you can have some too, so we can all experience<br />

this together.” I was in a euphoric, comfortable state.<br />

This was the true Jim-Morris-from-the-Doors-in-the-desert kind of experience and I<br />

didn’t want it to end. Deep down, I knew that it was the end of my old life and from that point<br />

on I would have to resume working on my new life, or what people were calling my new normal.<br />

I had a new life, but it was littered with disabilities that people could no longer see without my<br />

Corky helmet.<br />

“Just enjoy the ride and relax tonight, Johnny.” Ah, blanket-tey-blank drug… I received<br />

the last dose of the good stuff and was rolled up to the neuro-ICU where I was kept under the<br />

watchful eye of Nurse Ratchet. Every hospital has one, even the great ones. A robust wave of<br />

pain quickly descended upon me; I needed some blanket-tey-blank drug, STAT! Wait for<br />

it…wait for it…BOOM! “I’m sorry, we can only give you codeine because you want<br />

neurologically intact. Anything stronger could mask other symptoms.” You’ve heard that oneliner<br />

before, haven’t you folks? I’m back in the same hospital in the same neuro-ICU and they<br />

have the same protocol. I knew it was going to be one hell of a painful night. If that was going<br />

to be the case for the next few days, I thought I might as well be at home in pain.<br />

I woke up the next morning, put my best game face on, talked to my neurosurgeon and<br />

strongly pleaded my case for my immediate discharge, citing the higher incident rates of<br />

nosocomial infections. She agreed. I looked great and was asymptomatic. If there were any<br />

risks, she wouldn’t have discharged me so quickly. I was both surprised and elated for the<br />

discharge approval.<br />

When Laura arrived, I told her, “I’m going home right now. Let’s get ready.” She was<br />

not as happy as I was and was extremely mad at me. She felt I needed further monitoring in case<br />

something went wrong. I tried to sell her on the idea by saying, “Hey babe, it’s me. What could<br />

go wrong?” She was overly concerned and not at all happy at what I had done. She had every<br />

right to her feelings just as I had every right to think I needed to be home.<br />

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I was given my discharge papers with instructions as to how long to leave the dressing<br />

on, how to take care of the wounds and sutures and what to look for in case of infection. The<br />

discharge instructions also had the same precautions from ten months earlier:<br />

<br />

<br />

<br />

<br />

No straining<br />

No bending over<br />

No lifting anything over 20 pounds<br />

Mandatory rest periods: 5 – 7 per day for at least 30 – 45 minutes each<br />

A few days later Dawn and Frank came over and Dawn, being a nurse, had the honors of<br />

cutting off and removing the tightly wrapped dressings around my head and the remaining gauze<br />

over my large incision site. I had expected far more edema/swelling after surgery, but besides<br />

my swollen head and my black and blue right eye, I looked pretty damn good! No more caved in<br />

skull, no more helmet! Corky has left the building! For the first few days following the surgery,<br />

I would frantically look for my helmet before getting out of bed. Helmet no more—Johnny’s got<br />

his skull back!<br />

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Chapter 33: Yellow Lights<br />

No more helmet.<br />

No more schnooks.<br />

No more RED LIGHT’S dirty looks!<br />

I<br />

was blown away at what was happening. With my new, enormous scar and no helmet,<br />

people started looking at me differently. They looked at me with compassion and their facial<br />

expressions appeared as if they were thinking, Damn, he must’ve been in a bad car accident or<br />

had a bad fall. Every once in a while someone would ask, “What happened to you?” and I<br />

would gruffly respond, “You should see the other guy,” just to mess with them. It was<br />

dumbfounding to see people’s perceptions and assumptions of me without that helmet. While<br />

wearing the helmet, about ninety percent of the public wouldn’t approach me, yet alone ask what<br />

happened. I was happier and started to smile more, but often thought about those individuals still<br />

wearing helmets which brought me down a little. I knew their pain. I lived their pain.<br />

Just a few months earlier, those RED LIGHTS stared at me as if I had leprosy. Now I<br />

was bald with a huge scar on my skull and the same type of people were turning into YELLOW<br />

LIGHTS. As with a yellow traffic light, I noticed that people were approaching me with more<br />

caution and compassion. They weren’t slamming on their brakes as the RED LIGHTS had done.<br />

I recall a few acquaintances that made the RED LIGHT to YELLOW LIGHT transition<br />

right before my eyes. It blew me away at how shallow people could be. Don’t worry assholes, I<br />

forgave you. Hate begets hate; it only holds me back from being a better person. I would be as<br />

bad as them if I didn’t forgive them and move on with my life. I welcome those YELLOW<br />

LIGHTS with open arms and looked forward to the opportunity to turn them GREEN!<br />

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In no way, shape or form is this book meant to tell you what to do or how to live your<br />

life. I am sharing my raw, true life experience to the best of my recollection of events and my<br />

hope is to make anyone who reads this aware of being a RED LIGHT. I encourage you to<br />

always show compassion to others, even if you don’t want to or think you don’t need to.<br />

Whether you meet someone at a traffic light, a walkway, a hallway, a Mart, an elevator,<br />

anywhere, do your best to show compassion because you never know what kind of battles they<br />

are living!<br />

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Chapter 34: Driving Miss Daisy Never Went Like this<br />

S<br />

till unable to drive, I was chauffeured around three times a<br />

week, back and forth to my therapy sessions. But unlike<br />

Miss Daisy, I sat in the front seat of the cars! I was fortunate<br />

enough to have transportation and was able to switch rehab<br />

facilities to one closer to home. I continued my speech,<br />

occupational and physical therapy at Hospital D, which<br />

happened to be the first hospital I went to with my bad<br />

headache. My brothers at the Ancient order of Irishmen had<br />

supported me from day one and continued to do so by driving me to and from therapy. Matt had<br />

an oversized, framed get-well poster made where my brothers wrote their own messages on it.<br />

Matt presented it to me after I awoke from my coma in Hospital J.<br />

My brothers provided roundtrip transportation to my much needed therapy. I didn’t like<br />

being chauffeured around, but I was very thankful for their support. When I was first<br />

hospitalized, they came over and dropped off meals for my family and made sure my walkways<br />

and driveway were shoveled during that two-plus-foot snow storm. They made so many meals<br />

for my family that someone had to bring over an extra freezer to store it all in my garage. Their<br />

bountiful support was mind blowing. Do you see how lucky I am? They’ve been there for me<br />

during the good years and the not-so-good years. And no matter what, they’ve stood by me!<br />

One particular therapy afternoon, I came out of<br />

Hospital D where I had just had a sub-par therapy session.<br />

It was just plain, old crappy. I climbed up into Jack O’s<br />

big, red truck and started dropping F-bombs and cursing in<br />

pure frustration because I believed my progress wasn’t<br />

going as well as I thought it should. Startled, he looked<br />

over at me and slowly pointed to the backseat of his truck.<br />

BOOM! His two-year-old grandson was sitting in a car seat right behind me. The little boy<br />

stared me dead straight in the eyes and looked at his grandfather as if to say, Hey Pop-Pop, who<br />

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the **** is this guy? In all the times that Jack O had taken me to therapy, that cute little bundle<br />

of joy was never back there before. Well, that day he was. I couldn’t apologize enough. I<br />

thought that one of my repetitive, ranting curse words would be one of his grandson’s new<br />

favorite words to say. I was mortified. Jack laughed and confidently reassured me that<br />

everything was okay. “Don’t worry about it, Coop.”<br />

Jack, Denny, Jim, Jerry, Donny and Matt are the type of people that others strive to be. I<br />

wasn’t the most stellar person when it came to remembering people’s names before the<br />

aneurysm, and after the aneurysm this deficit was amplified tenfold. There are so many others<br />

who helped my family and I during this time and I, unfortunately, can’t recall all of their names.<br />

However, unlike my angel’s face, I do know all of their faces. My Ancient Order of Irishmen<br />

brothers continued their regular rotation of driving Miss Daisy to therapy, and I always checked<br />

the back seat before opening my mouth.<br />

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Chapter 35: DABDA: Denial, Anger, Bargaining, Depression, Acceptance<br />

A<br />

little over a year had passed since my aneurysm burst. I was continuing with therapy,<br />

however I did not see much improvement. The constant repetition of, “If treated like a<br />

race, you must treat this like a marathon, not a sprint. Improvements will be seen over longer<br />

periods of time, not shorter periods of time,” was getting old. I couldn’t see it and I never gave<br />

myself any credit for things that did improve. I didn’t cut myself any slack and when I did build<br />

up a small amount of confidence, someone would inevitably say, “Wow, I haven’t seen you in a<br />

while, Coop—you look great! Are you back to work yet?” I would shamefully drop my head<br />

and reply, “No.” Others would take it a step further and say, “Well, you look great! So, why<br />

aren’t you back to work yet?” I wanted to punch them in the face and knock them out cold<br />

which is the complete opposite of how I live my life. At first I felt as if I was over explaining<br />

my brain injury. Then I felt as if I was making excuses for me not being back to work. They<br />

weren’t excuses. They were NOT excuses.<br />

After a while of this question being asked, I began to rudely answer, “This isn’t a frigging<br />

broken leg I have here. Why don’t you do some research on ruptured brain aneurysms, strokes<br />

and the multiple complications and disabilities that people like me deal with on a daily basis?”<br />

That response didn’t help them or me. Some people just couldn’t get it. When they challenged<br />

my answers, I turned into a complete jerk. I felt they weren’t asking me; I felt they were<br />

challenging me. When that occurred, I remember trying to make them feel like an ass because<br />

they were taking the conversation further than then they should have. Ignorance was not an<br />

excuse, nor was me being rude to them. It was all new to me and I didn’t know how to handle it.<br />

Simple partial seizures were occurring more frequently and we couldn’t get the right dose<br />

of medication to straighten them out. After each seizure, I would be wiped out for two or three<br />

days. I was going in circles like a merry-go-round spinning a hundred revolutions a minute. I<br />

was doing my best to hold on, but I crashed and fell apart fell apart. I slowly went back to<br />

smoking and having an occasional drink here and there and, in a flash, I was smoking and<br />

drinking heavily. I realized the seriousness of smoking and drinking as heavily as I was, so I<br />

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started a prescription medication to help me quit smoking and was also prescribed a new antiseizure<br />

medication at the same time.<br />

We have all seen and heard the medication commercials where they state, “People taking<br />

this medication may experience suicidal thoughts. If you experience this, stop taking this<br />

medication immediately and notify your doctor.” A big part of me always thought that was a<br />

bunch of bull. I thought it was just another disclosure to protect the pharmaceutical companies<br />

in case, God forbid, something would happen at the hands of one of the many XYZ<br />

pharmaceutical conglomerates. I’m not knocking them; most of the medications have saved my<br />

life. But a small piece of me wants to knock them because, unbeknownst to me, both the<br />

smoking cessation medication and my new anti-seizure medication had identical side effects<br />

singularly. When the two were put together along with my brain injury, BOOM! All crap hit the<br />

fan. The two medications were at war with themselves and with me and my damaged brain and I<br />

was on losing end. That volatile mixture had me devising plans that I would never imagined<br />

before. These thoughts weren’t good thoughts. I just wanted out of this world. I choose not to<br />

describe my plans but, to be fair, it wasn’t a situation where I would have involved a cop to help<br />

me carry out my mission. I wasn’t going to ruin their life because I wanted to end mine.<br />

You might be asking, You’ve come so far. How could you quit now, Coop? What about<br />

everyone around you? What about your daughters and wife? You may be thinking that I was<br />

being a selfish bastard. I don’t know what you are thinking as you’re reading this, and I can only<br />

convey to you that I was living in a dark, painful and fiery mess of Hell. It was the type of Hell<br />

which I wouldn’t have put the most despicable person from death row in. The only people that<br />

bore witness to my heartbreaking, downward spiraling pain, were my wife, mother-in-law and<br />

her husband because they were there with me on a daily basis. Many others thought I looked<br />

great therefore I must be doing well and should be back to work. Not even close!<br />

I needed help and I didn’t like asking for help so I tried my best to bottle it up and hide<br />

my pain from everyone, including myself. That didn’t work out too well. I had to go<br />

somewhere before I took that step—the step that no one returns from and there’s no going back.<br />

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Chapter 36: “Does your cell phone work? Can I borrow it?”<br />

L<br />

aura was instructed by my doctors to take me to a local clinic for an immediate evaluation.<br />

We checked in to Clinic H and sat in the waiting room with other families who were<br />

waiting with their loved ones to be seen. Out of nowhere the dead-ringer twin sister of Kramer<br />

from the Seinfeld show walked in. Her hair was all sorts of disheveled. She clumsily glided into<br />

the room talking to herself as she scanned the room. Then she spoke; she asked a man across<br />

from us, “Does your cell phone work? Can I borrow it?”<br />

His face said, No, as if in some strange way he knew it wasn’t a good decision; however,<br />

he hesitantly and slowly handed his phone over to her. She quickly jolted and darted out of the<br />

room like the squirrels being released from the cages. If there were ever such a thing as a slow<br />

motion robbery, we had just bared witness to it. I’m sure we all assumed she was going to make<br />

a call but she returned about five minutes later with no phone in site. “Where is my phone?” the<br />

man asked. She didn’t answer; she just looked at him as if it was the first time she had ever set<br />

eyes on him.<br />

Perplexed and in utter disbelief, we all sat looking at each other but mostly had our eyes<br />

on him. He looked pissed off but kept his cool. I give that guy some much deserved credit. He<br />

went out and returned five minutes later with his phone, shaking his head. “She gave it to<br />

somebody else.” All of us were shaking our heads, smirking and quietly giggling and wondering<br />

what the Hell had just happened. Holding back and trying my best not burst into a loud<br />

boisterous laughter, I could barely hold it in. Little did I know that that moment would be the<br />

last time I would laugh or even feel the urge to for quite some time.<br />

It was my turn and I was evaluated and admitted for treatment. After being evaluated, a<br />

doctor prescribed a new anti-depressant medication which he wanted me to start immediately. I<br />

was instructed that I would need to stay between three and five days initially so they could<br />

evaluate the effectiveness of my newly prescribed medication. I was then taken back to a wing,<br />

similar to a hospital setting, and was immediately introduced to my roommate. I should have<br />

called him my cellmate because this facility was more like a jail. We remained in constant<br />

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lockdown mode while confined to our rooms between meals, smoke breaks and open roomed<br />

therapy sessions. My roommate was a gentle giant with an innocent and sincere smile, but he<br />

carried with him a deep, dark, brown set of troubled eyes. For some reason, I felt I could trust<br />

him. The staff checked my bag for contraband and Laura was asked to leave. Visiting hours and<br />

phone call times were strictly enforced. Their rules were about as flexible as a solid six-inchthick<br />

titanium rod. They didn’t bend unless you had a laser on you. My last words to Laura<br />

before she left that night were, “I love you. Now get me the Hell out of here tomorrow! I’m not<br />

playing around. Make it happen. I love you.”<br />

After settling in my room, I strolled down to the common area for dinner and noticed a<br />

familiar face sitting at another table. It was Kramer’s twin sister—the cell phone lady! What the<br />

Hell am I doing here on this wing with her? It was obvious that we had completely different<br />

diagnoses. My quick nursing assessment told me that she was schizophrenic. If we were in<br />

Disney, I would have been a sad Mickey Mouse; she would have definitely been the gluesniffing<br />

Goofy. Okay, John, don’t judge. Let’s see how all of this plays out. Did they just throw<br />

everybody in to the same fishbowl here, I wondered? My guess was that’s exactly what they did.<br />

I’m no mechanic, but if you are putting something together and there are more nuts than screws,<br />

you’re going to have a big problem. I was screwed and they were nuts. Many of you may think<br />

I am being a little overly judgeMENTAL. If you were there, you would undoubtedly take my<br />

side.<br />

In the dining area, there was a cut out section in the kitchen wall area which was<br />

connected to an area where patients could obtain extra food between the scheduled mealtimes.<br />

As I walked into the dining area, a patient ran in out of nowhere, dove in and flipped over the<br />

wall and into the kitchen area. He quickly devoured two bowls of Fruit Loops and a half loaf of<br />

bread as if he hadn’t eaten in a week! His caveman feasting episode lasted less than ten minutes.<br />

When he finished devouring his meal, he exited just as quickly as his Oscar-nominated entrance.<br />

He was like a seagull on the boardwalk in Wildwood, NJ, diving in for a dropped French fry then<br />

quickly flying away and crapping on everyone below. Like Flash Gordon, he was in and out<br />

before I could fully comprehend what the Hell had just happened. A multitude of questions<br />

flooded my mind: Was he locked up in a secured, secluded room like the gimp from the Pulp<br />

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Fiction movie? Did they only let him out to eat? What the Hell is going on in here? All I knew<br />

was that I didn’t like this place.<br />

The days that followed were pure Hell. The only time patients were allowed outside was<br />

when the smokers went out. They had designated times for smoke breaks and everyone kept a<br />

vigilant eye on the clock while waiting for a so-called professional staff member to holler,<br />

“Smoke time!” I went out and smoked as many cigarettes as possible within the allotted twelve<br />

to fifteen minute “smoke time” break. The staff, who I believe were fulfilling their own nicotine<br />

needs, were even out there. I smoked for comfort measures as well as the ability to get out of<br />

that Hellhole, if just for a few fleeting moments. I was the first one out and the last one in as<br />

they slammed the double locked door shut behind me.<br />

I found it ironic and counterproductive considering that the side effect of the one<br />

medications I took to help me stop smoking was the partial catalyst for my admission to Clinic<br />

H. Those drug interactions, along with my insidious fully grown depression seeds upon<br />

admission, were at full bloom. They were weeds that had taken over my life’s garden.<br />

Cigarettes were a hot commodity; however, I didn’t have anything to negotiate with<br />

besides my good looks and charm. I’m joking, but maybe I’m not. Laura and other friends<br />

refused to bring cigarettes in for me. I understood their concern after having the aneurysm and<br />

subsequent stroke but that still didn’t stop me from getting cigarettes. At one of those smoke<br />

breaks, I noticed the exterior barb wired perimeter fence facing a rear parking lot where workers<br />

parked. There were no surveillance cameras in that area, as they were mainly directed at<br />

emergency exits and entrance points. I devised a surreptitious and manipulative plan and<br />

convinced several patients that I would come back after being discharged and repay them tenfold<br />

for letting me bum smokes from them. I told them that I would park my car, signal to them and<br />

throw their new packs and cartons of cigarettes over the fence during one of the many designated<br />

smoke break times. In my mind, it was a well thought out plan; like something out of Hogan’s<br />

Heroes. My Pop-Pop Cooper would have been proud of me. Mission accomplished! I had an<br />

unlimited supply of cigarettes for the remainder of my stay. Now, let’s get back to Hell.<br />

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On the second or third night, it was time for the regimented, “Lights out and bed check.”<br />

I couldn’t sleep so my roommate and I quietly talked. Quiet like when I was a kid at a sleepover<br />

party and the parents told us it was time to get to bed. The conversation slowly led up to why we<br />

were there. He threw a debilitating zinger of a story at me about his childhood and growing up<br />

in Mexico. I slowly started pulling the sheets upwards towards my eyes. The incomprehensible<br />

description of his horrific battering, beating, and abusive childhood was almost impossible to<br />

take in. I couldn’t believe that another human being would ever treat someone like that! I<br />

cannot write about all of the stories and graphic details, but I shall disclose one story in<br />

particular. After watching his mother get beat to a pulp, his father moved onto him. His hands<br />

had been tied and after beating him senseless, he was locked in a dark room for days where his<br />

only so-called hydration and nourishment were self produced in a bucket (#1 and #2). His<br />

father’s actions would go against every Geneva Convention Rule established for holding a<br />

prisoner. His father made Hitler look like the Pope.<br />

I was brought to tears and felt a horrifically sad and inconsolable pain for him. I tried my<br />

best not to let him hear my quiet whimper as we dozed off to sleep. I couldn’t believe what he<br />

had endured and suffered by the hands of his own father. Crying myself to sleep that night was<br />

not comparable to when I cried when I didn’t get the opportunity to race Apollo Ono. That night<br />

was real; it wasn’t ICU delirium. I won’t write it, but to properly close off this chapter of the<br />

story, I wanted to write the F word in caps a hundred times over. This, along with his other<br />

horrific stories are burned into my brain and soul—permanently. I will never forget him or his<br />

stories.<br />

The next morning, he and I headed down to the dining area for breakfast. A female<br />

patient was attempting to pick me up and lure me into her room for some morning sexual<br />

healing. I confidently but respectfully denied her request. Later that day, she flipped and<br />

freaked out. She cleared off all of the tables with her clenched fists and screamed things that<br />

didn’t make sense. She proceeded to punch patients and staff members in the face and began to<br />

slowly move closer and closer to me. Was I next because I had denied her earlier morning<br />

sexual healing request? I quickly recalled that I could not get hit on my head, especially the right<br />

side of my head which was facing her. The two aneurysm clips that protrude out from my right<br />

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temple by about a quarter of an inch are deeply set into my brain. I cannot bang or get hit in that<br />

area because I could suffer further brain damage or die. Yeah, that’s all I needed.<br />

The staff was utterly useless against her flailing arms and her Bruce-Lee-Kung-Fu<br />

moves. My roommate knew about my head from our nighttime discussions and was keeping a<br />

watchful eye on me as she slowly inched closer. The Philly-street-smart-kid in me was<br />

temporarily paralyzed. I sat there eating a mouthful of Fruit Loops (quite ironic, Fruit Loops).<br />

She was closer than I wanted her to be. He slowly moved up behind her and gently gave a strong<br />

bear hug while lifting her up off of the ground. The staff finally stepped in and aggressively<br />

administered some sedative shots. It was like something out of a movie—a very bad movie. She<br />

quickly succumbed to the medicinal effects of the shots and was dragged back to her room.<br />

This guy was a gentle giant. I was glad that we were roommates, but even more so, I was<br />

glad that we got along and he was on my side, constantly watching my six, looking out for me.<br />

He didn’t smoke, but he joined me outside during the smoke breaks. One smoke break, a patient<br />

was aggressively moving towards us. I told him, “Looks like trouble may be brewing.” He<br />

turned around, looked at the patient dead in the eyes with an aggressive stance and that no good,<br />

slimy bastard quickly backed away and slithered into a different part of the smoking area.<br />

Maybe that patient saw that I was different and wanted to take advantage of me? Maybe he<br />

wanted me to be a part of his deranged smoking clique? Who knows; all I know is I had my<br />

giant, Mexican bodyguard, my roommate, the gentle giant with the innocent and sincere smile.<br />

The increase in the anti-depressant medication was showing a dramatic improvement so I<br />

thought, Let’s get the Hell out of here! Each time I was permitted to talk to Laura, I told her the<br />

same: “Get me the Hell out of here. Get me the Hell out of here, now!” I felt like Gene Wilder<br />

in Young Frankenstein when he went into the locked chamber to calm down his Frankenstein<br />

creation. The doctor wanted me in for a few more days of in-patient monitoring but thanks to<br />

Laura, she convinced him that she could do this at home. If she didn’t press the issue, I would<br />

have gone crazy in that place. The following day my discharge orders were put together and I<br />

started packing up my bag. I had a few magazines which Laura had brought in for me. I handed<br />

them over to my roommate and you would’ve thought I gave him $1,000. He acted as if he<br />

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didn’t deserve them. I shook his hand, gave him a great, big, strong hug and walked out of there.<br />

I was walking like one of those speed walkers down on Kelly Drive in Philly who look<br />

absolutely ridiculous. (Why don’t they just jog or run? What’s the point of it?) I was out of<br />

there!<br />

I think about my roommate frequently and I pray for him often. I pray that he has found<br />

a healthier, more supportive environment to live in. As for the packs of cigarettes by the fence,<br />

no way in Hell, did I go back! That was one time in my life I didn’t regret going back on my<br />

word, but I would have definitively gone back if they were for my roommate, the gentle giant.<br />

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Chapter 37: Let’s Pause for Station Identification<br />

I<br />

was mortified for what I had almost done. More importantly, I was ashamed for what I had<br />

put Laura through. I needed to pull myself up from those ashes and change the flow of my<br />

unintentional, self-inflicted, turbulent tides. You may see by now, I wasn’t big on asking others<br />

for help, but there was no way in Hell I was going back there, so I started asking.<br />

We now pause for a brief message about depression:<br />

Since depression is a non-contagious illness, society often gives this disease less<br />

recognition than it deserves. For people who have never suffered from depression, I now realize<br />

it’s difficult for them to understand. Some may view what I went through as being a sign of<br />

weakness and that my lack of energy and loss of ambition were me just being lazy; however, a<br />

person with depression cannot control these behaviors. Those words were not in my vocabulary!<br />

Depression is a treatable disease.<br />

My case isn’t much different from most people with depression, especially after a brain<br />

injury. Even my rehab psychologist didn’t identify my depression. To his defense, I was not one<br />

hundred percent forthcoming during our sessions, most likely because of my pride or the damage<br />

to the basal ganglia area of my brain which controls these emotions. More than likely it was my<br />

pride. Even to my own psychologist I didn’t want to show any signs of weakness. Adding to it<br />

was the adverse reaction of the two medications I was taking. I have since learned to<br />

immediately inform my physicians of any medication changes. Case in point, my medications<br />

had adversely affected each other causing my ferocious, downward spiral. I can’t entirely blame<br />

the medications but I do know the underlining depression mixed with those two medications<br />

almost caused me to take an end to my life. Even after figuring the out the medication aspect of<br />

the depression, my mental health still needed resuscitation.<br />

I did some research about depression and found that in the US alone, it’s estimated that<br />

one of ten people are afflicted with some varying degree of depression. The 2015 U.S. census<br />

report states that are approximately 320,740,000 people living in the US, making it ten percent,<br />

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or approximately 32,074,000 people, who are depressed in one way or another. I’m no rocket<br />

scientist, but this sounds like an epidemic! Which is another term that lends itself to further<br />

explanation.<br />

Something is considered an epidemic only if deaths are caused by a communicably<br />

spreadable disease such as, the flu or Ebola. When the deaths exceed 7.7% of the afflicted<br />

population, it is classified as an epidemic by the CDC. So technically I can’t use the word<br />

epidemic—how about sizable?<br />

When people succumb to depression, again, a treatable illness, most are ashamed. Why<br />

does main stream society look at depression any differently than a giant, ruptured brain<br />

aneurysm or an amputated leg? I think that most of us are selective with our compassion, similar<br />

to our prejudices. In a better world, the compassion and care for someone suffering should not<br />

be determined by their diagnosis, just as I believe no one should be judged by their race, color,<br />

religion or sexual preference.<br />

Unfortunately, there are no definitive solutions for this, but understanding and learning<br />

more about others could be a great starting point. Hell, we have numerous research options<br />

available to us and I propose we start using our phones, tablets and computers to educate<br />

ourselves; so I’m calling you out! Instead of over posting on social media about paying too<br />

much for a meal or how your family pet is smarter than everyone else’s, why not make a plan to<br />

invest seven minutes a day to research something you have no knowledge on? I challenge you to<br />

incorporate this into your daily To Do list.<br />

I would also like to see some basic social stigmas change, such as society breaking the<br />

habit of loosly using exaggerated psychiatric terms and making ASS-umptions. It may sound<br />

like a very large task, but I promise you it’s not. I’m not going to write out an all-encompassing<br />

plan for this, but I can suggest how to start: Use the words mental health versus shrink or nuts.<br />

During my physical, occupational and speech therapies, my goals were accomplished<br />

over longer periods of time with a team approach from the therapists. I have learned how to<br />

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better adapt to my acquired psychological challenges and can proudly say that I’m seeing two,<br />

not one, exceptional mental health doctors. One helps me with my high-level cognitive deficits<br />

while the other is helping me with my anxiety, depression and increasing my mental flexibility to<br />

improve my views, attitudes and reactions to others.<br />

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Chapter 38: “Oh Johnny Boy…”<br />

S<br />

ummer flew by and 2011 was quickly approaching its end. Since I had several seizures<br />

from my ruptured brain aneurysm, as well as the subsequent stroke, I was earnestly<br />

searching for a new neurologist closer to home to help battle those insidious attacks on my brain.<br />

Finding an exceptional neurologist is easier said than done. We didn’t want a good neurologist,<br />

we needed the best. We finally found a terrific, compassionate, knowledgeable and<br />

understanding neurologist named Dr. C. He is still my doctor and has been the most<br />

instrumental physician in my recovery.<br />

On Halloween night, I walked the neighborhood with my girls and the neighbors out<br />

back, the ones that took M and I to that first mass. No one knew what I had gone through that<br />

summer and I wasn’t going to start flapping my chops about it. I was not comfortable in<br />

divulging any details and, quite frankly, I was still ashamed of myself. It wasn’t until I decided<br />

to undergo the fulfilling task of writing this book that I felt confident enough to divulge my<br />

story. Most of my close acquaintances and family members didn’t know the full extent of the<br />

Hell that I/we were living in until they read the unedited version of this book.<br />

Thanksgiving Day dinner, 2011 at Aunt Carolyn’s and Uncle Wayne’s home had finally<br />

arrived. Aunt Carolyn’s dinner makes Emeril Lagasse look like a first day burger flipper at a fast<br />

food joint. We look forward to this day all year long.<br />

Upon arrival, in good standing tradition, the men retreat downstairs with a frosty beer in<br />

hand, talk guy stuff and watch football. We eagerly await the summoning call from the ladies<br />

that the feast is ready. This year was no different. As we sat down at our assigned seats and<br />

reverently listened to Aunt Carolyn’s sometimes-long-but-oh-so-meaningful prayer, I waited for<br />

the let’s dig in signal from her. After the “N” in Amen was uttered, the Viking mind-set stepped<br />

in and we would quickly load up our plates and pass the platters to the right. However, this year<br />

there was a pause after the prayer. Aunt Carolyn said, “Not yet.” Moans from the hungry,<br />

Thanksgiving day crowd went something like, “Why? C’mon! It’s all right here in front of us.<br />

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What’s the holdup?” We were ready to dive head first into that beautiful medley of culinary<br />

perfection.<br />

BOOM! Aunt Carolyn had put together a little song and sang it at the table. Instead of<br />

“Oh Danny Boy,” it was “Oh Johnny Boy!”<br />

I was blown away and I cried like a child; then ate like a stevedore! What is a<br />

Stevedore? My mother-in-law, Grace, throws words like this around all of the time, expecting<br />

everyone to know what the Hell they mean or what they’re in reference to. When we all look at<br />

her befuddled, she slowly explains them as we look at her with one eyebrow up, not knowing if<br />

it’s true or if she’s pulling our leg. She’s got one up in our family for an expansive vocabulary,<br />

and we all love her to pieces. Dear readers, if you don’t know what stevedore is in reference to,<br />

ask around. I want you to feel my pain.<br />

Falling back a chapter, this dinner and song confirmed my station identification; I knew<br />

where I was and realized where I needed to be.<br />

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Chapter 39: 18 Month Plateau: “That is where you will probably be for the<br />

rest your life.”<br />

F<br />

rom the first day of awakening from the coma and the eighteen following months, Laura<br />

and I were told, “You should see a vast improvement within the first eighteen months and<br />

then you will plateau and flatten out. That is where you will probably be for the rest your life.”<br />

Was I expected to give up after eighteen months and accept the statistics? I was not fond of<br />

statistics but considering my prior experiences, I developed a new found respect for them.<br />

The end of that eighteen-month plateau period had met its deadline. Should I just come<br />

to terms with how I was and accept it? Accept the notion that any future attempts for progress<br />

would be futile? There was no way in Hell that statistic was going to be applied to or associated<br />

with my name!<br />

When the world says “give up”<br />

Hope whispers, “Try one more time.”<br />

(Ariel, Disney’s The Little Mermaid)<br />

That statement was ingrained into my new, not-so-improved brain. A large section of my<br />

old brain refused to accept it. I just needed to convince my new brain to come along for the ride.<br />

Statistics don’t lie, right? I was trying to look into that magical glass ball for some much needed<br />

answers, so I engrossed myself in research and searched for similar cases to find any direct<br />

correlations of my case to others. I wanted to better prepare myself for the post-eighteen-month<br />

future deadline. One particular article stood out and although I can’t remember where the article<br />

originated from (thanks to my brain injury), it mentioned: after a person suffers a (SAH), a<br />

Subarachnoid Hemorrhage, there is a 50% chance of a stroke within five years. I already had a<br />

subarachnoid hemorrhage caused by my giant, ruptured brain aneurysm or hemorrhagic stroke.<br />

I’d already had an ischemic stroke, which is when a blood clot blocks part of a vessel in the<br />

brain. So, what was the starting point to begin from for my eighteen-month plateau theory? The<br />

first stroke or the second one?<br />

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When I was about ten years old, my father’s best friend, Mr. M, had a massive stroke.<br />

We frequently visited him at Peat Rehab which, ironically, was where I received my<br />

rehabilitation treatment. It was under a different name at the time, but the same exact facility<br />

(although I don’t recall hearing the “HOOOOOOGEEEEEY man” back then). He had an<br />

ischemic stroke which reduced his mobility, speech and quality of living by about eighty percent.<br />

For over twenty-five years, he kept chugging through life and continued to be a great father and<br />

an important contributor to the church in my old neighborhood before passing away. With my<br />

continued therapy, I still think of him as I pass the outside windowsill seating area where I used<br />

to quietly sit wait to leave. As a young boy, I was scared and now even more scared attending<br />

my own therapy. While his strength gave me the courage to push forward, I was fearful of my<br />

future, at least from my researched findings.<br />

That doomsday cloud followed me daily. After the aneurysm, BOOM!, I became a part<br />

of that statistic and had another stroke. I was extremely fortunate that my second stroke did not<br />

affect me as gravely as Mr. M. Even though I was dealing with several complications from the<br />

second stroke, I knew deep down inside that I had just gotten another free pass. It was like<br />

catching two balls at a Phillies game. The odds that I would survive and be able to live the<br />

quality of life I was living was astronomically against me, but somehow I lucked out.<br />

I sincerely believe that Jesus on the cross performed yet another amazing miracle. I am<br />

left with several debilitating deficits, but I’m here, I’m not giving up and I won’t stop believing!<br />

I believe he saved me and I must do something bigger than myself to show my gratitude. I<br />

wasn’t spared, I was saved. I believe!<br />

A refection of my ability to fight the eighteen-month plateau<br />

theory could never be seen more clearly than on this sign. I am more<br />

fortunate than most; hence, it’s why I’m sharing my memoirs. I<br />

continue to fight and strongly believe that things will get better for<br />

me, while also refusing to believe in that eighteen-month plateau<br />

theory: “This is where you will probably be for the rest your life.” I<br />

have successfully surpassed that period. If you are in a tough bind,<br />

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don’t give in or give up. Learn to ask for help and don’t stop believing in yourself. I have<br />

surmised that when you stop believing in yourself, others will follow suit and stop believing in<br />

you as well.<br />

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Chapter 40: Disney Cruise: Why is Daddy Crying?<br />

A<br />

fter my aneurysm, my first plane ride was back to Walt Disney World of all places. We<br />

were going down to visit my mom and dad and hit the parks. The big surprise was that<br />

they also surprised us by scheduling a three-day Disney Cruise on the brand new Disney ship,<br />

the Disney Dream.<br />

The takeoff and flight went fine; then came the “ping” upon our decent into Orlando. I<br />

felt sick to my stomach and my heart began racing as I stared at the carpeted bulkhead wall with<br />

the Westwest logo, once again. I was thinking that just a mere twelve months earlier, that “ping”<br />

was the sound I would associate with my life-changing event.<br />

As a side note, this was just one of the instances, the “ping” on an airplane, that<br />

contributed to my Post Traumatic Stress Disorder (PTSD), and for which I sought treatment.<br />

Another instance is when I feel like I’m back in the ICU on the ventilator after awaking from my<br />

coma. Although I feel I have a better handle on my PTSD, it continues to haunt me.<br />

Laura held my hand and asked me, “Are you alright?” My lips said, “Yes,” but I felt like<br />

I was about to burst at the seams and fall apart. Just land the plane. Why is it taking so long?<br />

Land this damn plane already! At that moment, I hated that plane. We touched down, gathered<br />

our carry-on luggage and made our way off the plane. The last time I did this I was running off<br />

the walkway like Carl Lewis urgently seeking a bathroom. I exhaled an enormous sigh of relief<br />

and we went on our way to my parent’s house.<br />

The next day, we embarked onto the Disney Dream with high expectations. We were<br />

hoping that this would be our first vacation without something crummy happening to me. Our<br />

last Disney vacation I had the giant, ruptured brain aneurysm. The trip to Cape May resulted in a<br />

devastating ischemic stroke. Christ Almighty, no more; please let things settle down.<br />

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Along with my acquired brain injuries, quirky and<br />

annoying episodes started to occur. Uncontrollable, emotional<br />

episodes of crying and laughter would happen to me. It first<br />

surfaced during this trip while watching the Beauty and the<br />

Beast show at Disney’s Hollywood Studios. There was a<br />

seven- or eight-year-old handicapped girl sitting across from<br />

me. Her voice screeched with happiness and excitement at the show as her arms went flailing<br />

around (it looked like she was having a seizure, but she wasn’t). I looked at her with<br />

compassion, sorrow and understanding. Many others looked at her and her parents like RED<br />

LIGHTS. I wanted to confront them, but I couldn’t during the show.<br />

BOOM! The singing on stage mixed with my emotions for her and her family brought<br />

me into a burst of tears; the kind where your lips are pursed and a big explosion of air<br />

unexplainably shoots out. Some people looked at me. My daughters asked Laura, “Why is<br />

Daddy crying?” She gave them the simple explanation of, “Daddy just gets more emotional<br />

now,” which they seemed to accept.<br />

A few weeks later I saw a commercial about Pseudo Bulbar Affect (PBA). The<br />

commercial went on to explain how certain people may experience involuntary and sometimes<br />

uncontrollable episodes of laughter or crying after suffering a stroke or brain injury. I have<br />

identified certain songs being one of my major triggers for my crying episodes. I believe it’s<br />

because my family constantly played music while I was in my coma. Or, perhaps, I associate<br />

certain songs with happier moments before the aneurysm and stroke. Or, it’s just the irreversible<br />

brain damage. All I know is that I look like a blubbering idiot when it happens.<br />

The National Anthem is another song that brings me to tears, as Veterans are asked to<br />

stand and salute at sporting events. I proudly stand at attention saluting our flag during the<br />

anthem and hope the outburst doesn’t occur, but it always does. I can’t miss the anthem. I<br />

believe that if I miss it before the game, I should just go home. It’s not worth watching the game<br />

without honoring our flag first; I’ve always felt that way. I can’t even sing one of my favorite<br />

songs anymore: Frank Sinatra’s “That’s Life,” without bursting into tears. It even happens at my<br />

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daughters’ school events or when we attend a play or a show. M now jokingly looks over at me<br />

when an emotional part of a movie comes up. She humorously awaits my inevitable whimpering<br />

crying episode.<br />

As for the laughing episodes, it’s hilarious. I was given a new hearty, bellowing and<br />

sometimes screechy new laugh with this PBA. My new laugh sounds like I should be in the cast<br />

in the movie Revenge of The Nerds. The good news is that it seems to be contagious. I think<br />

most people are laughing at my new laugh versus what we were laughing at in the first place.<br />

Even if it’s at my own expense, I enjoy making others laugh and I welcome these episodes<br />

without any regards to my pride, but I haven’t accepted the crying episodes yet.<br />

While in Disney’s EPCOT, I went on the ride, Mission<br />

Space. It was a phenomenal experience for me! Laura,<br />

however, was not happy that I had gone on that ride, let alone<br />

without her. A month after our Disney trip, I had a follow up<br />

appointment with one of my neurosurgeons who revisited the<br />

list of activities I could and could not do. No straining, no<br />

lifting over twenty-five pounds, no contact sports, refrain from<br />

all activities that could cause me to inadvertently bang my head, and by all means necessary,<br />

protect the right side of my head. Laura asked about rides and told her about my Mission Space<br />

escapade. The doctor emphatically stated, “You may only go on rides designated for children up<br />

to four years old!” The protruding two out of the seven aneurysm clips must be protected at all<br />

times. If hit hard enough, it could be BOOM!, lights out for Johnny.<br />

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Chapter 41: SSDI<br />

I<br />

have to do what? Apply for Social Security Disability Insurance? I needed government<br />

assistance? I didn’t want any part of it, but it was a necessary evil. I was mortified,<br />

humiliated and had no sense of self-worth. “Now I have to rely on something other than myself,<br />

to provide for my family?” I felt that it was evil. Evil is a powerful word. I use the word evil<br />

because I felt like I was being pushed back into that eighteen-month plateau theory corner and<br />

told to just give up and take a handout from the government. My pride was slowly being ripped<br />

from my tightly-gripped hands and ever-so-fragile soul. I was just going to be a governmentissued-disabled-check-collector.<br />

I was just going to be a number, another statistic, and I am not<br />

fond of statistics.<br />

After a lot of research on SSDI, we discovered that historically, the first application is<br />

almost always denied, as it was for me. Upon receiving the denial notification, I became enraged<br />

with such a deep-seeded anger, while still deeming it evil. “Do they think I’m faking things<br />

here?” I felt like I was back in the scenario, when people asked me, “Are you back to work yet?”<br />

However, many months later, the second application was reviewed and a court date was<br />

scheduled for the review of my case.<br />

Unfortunately and fortunately I was approved. My friends, Billy, Matt and Frank, drilled<br />

into me that the whole Social Security Disability Insurance program was established for someone<br />

like me. They continually reminded me that I worked hard my whole life and have paid into it.<br />

It was hard for me to accept that my significant brain injury now kept me from working, but they<br />

consistently told me to “just go with the flow.” So, there you have it. I’m still not proud, but<br />

have since resigned to the fact that it is needed. I am extremely thankful that I was approved, but<br />

I still have problems with being on SSDI. My long-term goal is to get off government<br />

assistance, find a new career and get on with my new work life—when I am ready and capable of<br />

doing so.<br />

The looming question in my mind was (and still is), When will I be able to go back to<br />

work? Hell, it seems that if I am capable enough to write a book, I should be back to work,<br />

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right? Wrong. My days vary: I can have two consecutive good days, then, BOOM!, I’m wiped<br />

out for the next two or three days. I still continue to need several rest periods throughout the<br />

day. I do my best to actually shut down and rest and to keep it on a routine schedule but between<br />

doctor appointments and life itself, it’s sometimes impossible to rest when I want or when I need<br />

to. Most of my physicians are forty-five to sixty minutes away. The drive down, the waiting,<br />

seeing the doctor, relaying information to them, taking in what they tell me and then driving back<br />

home can sometimes take three to four hours per visit. I am not so much physically tired as my<br />

brain just doesn’t want to be there for me and my cognitive abilities become severely affected.<br />

And, as I said, when I don’t rest, I pay for it with lack focus, decreased energy and the inability<br />

to function and complete the simplest of tasks. Without rest periods, I am like a big blob of Jell-<br />

O with two legs aimlessly walking around and bumping into walls. In a nutshell, when I don’t<br />

rest, it’s as if my brain were a car battery, broken down on a back country road with nobody<br />

driving past me for hours to help.<br />

It’s taken a while for me to come to terms with my new life and realize that there is only<br />

so much I can do. Life isn’t routine for me anymore and things fall apart right before my own<br />

eyes. It frustrates the Hell out of me, but I am working with my mental health professionals and<br />

other doctors on ways to improve this. I, along with some help from my brain, am doing the best<br />

I can. I am feeling less helpless and more hopeful and optimistic—I won’t stop believing! I am<br />

not a victim that was merely spared; I was saved and I will continue to fight as a survivor for as<br />

long as I am here on this big, blue and green globe called Earth. I have to because I ain’t<br />

quitting!<br />

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Chapter 42: Aneurysm Support Group<br />

I<br />

was happy to learn that Hospital J had a monthly brain aneurysm support group meeting.<br />

Even though it was about an hour ride from my home, I wanted to be part of a group of people<br />

that understood what I was going through. I drove the hour-long ride down to Philly and<br />

attended my first meeting. It was much like the movie version of an Alcoholics Anonymous<br />

meeting. It quickly became my turn. “Hi, everyone. My name is John. It’s been twenty-four<br />

months since my last aneurysm. I had a giant forty millimeter by fifty millimeter right, middle,<br />

cerebral artery (MCA) ruptured brain aneurysm in late January of 2010. Dr. Osen performed a<br />

craniotomy, repaired the ruptured vessel with seven large MRI compatible clips. I was in a<br />

medically-induced coma and suffered vasospasms. About eight months following that, I suffered<br />

a stroke to my right basal ganglia area. I am a Taurus and I like poetry, sunsets and long walks<br />

on the beach.”<br />

I received baffled looks and laughs which is what I was shooting for. I wanted people to<br />

find some sort of humor in our survival. Survival? Up to that point, I was living as a victim and<br />

allowed the aneurysm to define me. Why Me? Why Me? Why Me? A switch turned on and I<br />

started to strongly believe that I was saved for some reason. I had to choose one or the other. If<br />

I was merely spared, I would continue living in the hellish, bubbled life as a victim. If I was<br />

saved, I would be a survivor. Thankfully, Jesus on the cross saved me and I am a survivor.<br />

Every once in a while, Jill, the coordinator, would invite different disciplines of the<br />

medical staff to our monthly meetings. They provided information from their vast array of<br />

experience and specialties in dealing with brain aneurysms. Jill is a truly dedicated nurse and a<br />

very special person. Did I mention nurses rock?! At one particular meeting, a neurosurgical<br />

nurse was the guest. She confidently answered most of our questions, but also said something<br />

which left me upset, perplexed, as well as satisfied. She said, “A neurosurgeon once told me that<br />

since the time of cavemen, our beautiful complex brains have always been encapsulated and<br />

protected by the hard protective cranium/skull. Once it is opened up to air and manipulated<br />

during surgery, things are changed forever and the patient will never be the same as they were<br />

once before.” She also mentioned that “it is worsened if the patient had a brain bleed or SAH,<br />

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because once blood hits brain tissues, it’s a whole different ball game. Blood is actually very<br />

caustic, not while it’s contained within an artery or vein, but, when a rupture occurs and blood<br />

surrounds brain tissue, it can cause further, irreversible damage.”<br />

It was the most powerful and simplistic explanation I had heard to that point.<br />

Individuals cannot be thoroughly evaluated for any particular baseline figures before a rupture<br />

occurs; so no one can thoroughly identify all of their changes. It’s impossible. Why? If an<br />

individual is at the verge of rupturing, or has already ruptured, they would most likely be in<br />

surgery or they would die before they could even be tested. There’s no time to waste because<br />

it’s a life or death scenario. For me, most changes are noticed by my family and friends. I notice<br />

them, but still refuse to thoroughly accept them. I am an anarchist to my injured-governing<br />

brain.<br />

If you had asked me during the first eighteen to twenty-four months following my giant,<br />

ruptured brain aneurysm if I would do it all again, I would have definitely opted out and not<br />

gotten the surgery. I was living in Hell and didn’t know how to cope with my new normal<br />

lifestyle. I agreed to the surgery because of the excruciating pain and my heavily medicated<br />

state. I was a victim and I didn’t want to die. It may sound absurd, but the neurosurgical nurse’s<br />

comment gave me hope when I was experiencing bad days. It gave me a strong and compelling<br />

reason to not further beat myself down into the ground.<br />

The support group meetings went well and I have made many new friends. These<br />

meetings also allowed me to realize how fortunate I am. Some survivors have it worse off than<br />

me. I became a survivor because I had an excellent support system in Laura, family, friends,<br />

Jesus on the cross and this motley crew at the support group meetings. Someday soon I hope to<br />

be that factor in someone else’s life. These groups of individuals with their own unique<br />

scenarios are simply amazing and deserve everything good the world has to offer them.<br />

Months later, a group of student nurses attended the meeting. They wanted to address the<br />

anatomical and physiological aspects of the post-aneurysm patient. The student nurses were so<br />

engrossed with the science of it and not the actual patient. I listed for as long as I could then,<br />

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BOOM!, I lost it. I interrupted everyone’s analysis and opinions then broke out with an<br />

emotional and boisterous call to address the mental health concerns of patients. I cried as I<br />

shared my experience with them. I described how my psychological needs were overlooked by<br />

the medical community. “If I was bleeding, everyone here would know what to do. My mental<br />

health had been profusely bleeding and it was overlooked. I hope when you all become nurses,<br />

you will remember this meeting. Please advise and push your patient, their family members and<br />

doctors to get a mental health consult sooner than later. Thank you for letting me add in my two<br />

cents.”<br />

If anyone is unfortunate enough to fall victim of a life-changing event, I highly<br />

recommend the assistance of a mental health professional. If there is an electrical short in your<br />

house, you call an electrician before a fire occurs. When your check engine light goes on in your<br />

car, you take it to a mechanic. When the glass tabletop shatters, I strongly recommend that you<br />

buy a new one. Being proactive is vitally important. The student nurses were both receptive and<br />

understanding. Even future nurses rock!<br />

At the meetings, we shared our traumatic, sad and riveting life-changing stories. People<br />

described their anger, their fears and their dislikes of their new normal. Through tears comes<br />

laughter. Through pain comes strength. With the meeting room filled every third Wednesday of<br />

the month, I feel at home. I throw jokes around like I’ve known everyone for years.<br />

I informed the group that, “I try arrive to the meetings fifteen minutes early. I eagerly<br />

wait in the parking garage to take my own hysterical attendance report. I can tell who’s going to<br />

the meeting because they press the lock button on their keychain six or seven times: beep beep,<br />

beep, beep, beep, beep! We reassure ourselves while pissing off the world around us. Most of<br />

our short-term memory works like a vacuum cleaner when trying to reach that last piece of<br />

carpet and it turns off, then on for a quick second then off again. Obviously, the chord is barely<br />

in the socket, just like our short-term memory. On that note, why don’t manufacturers make that<br />

damn chord longer? After our meetings, we head back to the parking garage. Unfortunately,<br />

some of us can’t remember what level we parked on (mostly me). Brain injuries can be funny<br />

that way; but you can almost be sure our car doors will be locked.<br />

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Chapter 43: Where is Johnny At?<br />

F<br />

rom outside my first floor bedroom, I consistently heard, “Where is Johnny at?” I was<br />

taking about five, 45 minute rest periods just to make it through the day. After the brain<br />

aneurysm and subsequent stroke, my brain needed rest. This is commonly referred to as<br />

Neurofatigue. I will need them for the rest of my life. My brain tells me when I need to stop and<br />

rest. Unfortunately, it’s usually at the most inopportune times and usually occurs when I am<br />

pushing myself in attempts to achieve more. I don’t know when or how to stop. Laura and I call<br />

it squirrel syndrome. I am running circles around the house, not completing the original task I<br />

set out to do. Add to this the character, “Kramer” from Seinfeld. I come in busting through the<br />

door, looking all sorts of disheveled, searching for the glass cleaner, paper towels, a screwdriver<br />

or whatever is needed for the project I’m involved with. More times than not, I forget what the<br />

Hell I was working on in the first place. We aptly refer to this as “The squirrels have partnered<br />

up with Kramer!” When this happens in the morning, I usually forget to insert the coffee filter.<br />

The coffee-ground-infused-liquid spills all over the counter and down to the floor. I never catch<br />

it in time because I’m running around doing something else. Sometimes it’s hilarious to watch<br />

when the squirrels partner up with Kramer; other times it’s not.<br />

When I did find time to rest, I ASSumed that anyone around me thought I was being lazy<br />

or using my brain injury as a crutch. I still feel like this, but I am trying to retrain my brain to<br />

listen to my and body vice versa. My good days are phenomenal. My bad days consist of me<br />

constantly making excuses for why I am fatigued or why I couldn’t accomplish the simplest of<br />

tasks. They are not excuses! At times I feel that many people, including some family members<br />

and friends, still can’t thoroughly see it; or maybe they can’t thoroughly accept it. If that’s the<br />

case, are they making an excuse?<br />

This is a part of my new normal. This is my new life. Will it get better? I have to<br />

continually remind myself that I have irreversible brain damage; some things will get better and<br />

some things will get worse. My dead brain cells will never return—never! I am slowly starting<br />

to accept this fact while still vigilantly battling my own worst enemy—me. With the help of<br />

Laura, I remain optimistic and continue to improve on better planning and scheduling. Many<br />

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times Laura has looked at my written schedule and said, “Really? Do you think you should clean<br />

both bathrooms, vacuum the whole house, and then help coach soccer tonight? If, and only if,<br />

you feel good, try to wipe down one bathroom, rest, only vacuum the living room and get a good<br />

rest before soccer. I am serious, John.” On the days I am feeling like an anarchist, I overdo it<br />

because the squirrels have partnered up with Kramer. I am usually rendered useless for a couple<br />

days following. I know my limitations but I sometimes feel the part of brain which tells me stop<br />

is buried six feet deep and nonexistent.<br />

Even to this day, I wait until my wheels fall off before taking the initiative to rest; at that<br />

point I am a bastard to deal with. It’s like walking through the Magic Kingdom at 2:30 pm with<br />

three toddlers that haven’t had their nap. A full-blown and monumental meltdown usually<br />

ensues, but I often keep pushing through because I want to go further and get better. I thought<br />

by doing more it would help me achieve my goals quicker. That strain and added pressure was<br />

not working well for me, nor my family. During this time, every task I performed depleted my<br />

energy reserves and I would lose focus.<br />

I began to notice that when I was more focused it was mainly because I had more energy.<br />

However, I also noticed that within two hours of awakening my low gas light would come on<br />

and I’d be running on fumes. I tried several medications to increase my energy, which should<br />

have increased my focus; I was a cooperating living lab rat, of sorts. One medication that was<br />

prescribed for me was to assist motor control and help increase my focus. I believed it worked<br />

because I didn’t rest as much as I should have. That prescribing doctor retired and my newlyassigned<br />

doctor wanted to try something different and prescribed a medication commonly used<br />

to treat attention-deficit hyperactivity disorder (ADHD). Holy crap! I became a supersonic<br />

Kramer squirrel, but with focus.<br />

I felt like the old Johnny. I was up, zooming through the house, cleaning and fully<br />

completing tasks. If anyone had recorded me, it would have looked like a movie on the fast<br />

forward setting. One day, on the coldest day of the year, I noticed that three new trees had<br />

grown out of control outback of my home by the deck. They started as little seedlings but<br />

quickly grew into a mess. Because of the new medication, I had an overabundance of energy<br />

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and was insanely focused. I grabbed my ax and saw and worked diligently chopping down the<br />

three trees and trimming them down into small stacks to be recycled. After chopping down the<br />

first tree, I looked down at my phone and noticed the nineteen degree wind chill factor on my<br />

weather app. Then, BOOM! I stopped momentarily because I realized I was having a brain<br />

seizure.<br />

The brain seizures I experience are called simple partial seizures. They do not involve<br />

me flailing around on the ground or losing consciousness, but do affect the left side of my body.<br />

At onset, my left hand gets a tingling sensation then goes a little numb, similar to a stroke. I had<br />

become accustomed to these, as infrequent as they were, and as a nurse I knew to always time<br />

them. If they lasted more than twenty-five minutes, I would call my doctor or go to the hospital.<br />

All of my seizures generally lasted twenty-one minutes.<br />

Okay, one tree down and two to go. The new medication kicked me into overdrive and<br />

bypassed Common Sense Boulevard. Some things aren’t so common for me anymore and they<br />

don’t make sense either. I was overly focused but failed to understand the extremely dangerous<br />

consequences. That part of my brain was severely damaged.<br />

After a short break, I chopped down the second tree and sawed it into smaller pieces.<br />

BOOM! I had my second seizure. That, too, lasted twenty-one minutes. With two of the three<br />

trees cut down, I took a small break then sorted and finished stacking the braches. I moved onto<br />

the third tree. I was shivering and drained but still energetic and focused enough to complete the<br />

task, or so I thought. I chopped the third tree down and sawed the larger pieces into smaller<br />

ones. Wait for it, wait for it…BOOM! I suffered my third seizure. I didn’t stop. I pulled the<br />

last stack out to the curb and finally retreated into the house to defrost my almost-frozen toes and<br />

hands.<br />

I did it! Yes, the old Johnny is back! Similar to building that damn tabletop, you might<br />

be asking What the hell were you thinking, John? I can’t explain what I was thinking or why I<br />

didn’t stop; I was blindly excited. I still have a problem with identifying my limitations. As far<br />

as limits go, a brain injured person has a speed limit around twenty-five mph in a fifty-five mph<br />

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zone. That day I had been doing around seventy mph. One seizure for every tree and I never felt<br />

more alive. The old Johnny was coming back! Bad news: seizures aren’t good for the brain, and<br />

I knew that. I have a very impulsive brain now. To many people it may appear that I am<br />

blatantly disregarding my brain’s own security system, but I’m not. It is just one of the many<br />

complications associated with the injury.<br />

I wanted that new medication to work at any expense. I was yearning for that old me to<br />

reappear; that go-get-em-never-give-up-S.O.B.-anarchistic-Type-A-never-saying-no-to-someonein-need-smiling-Johnny.<br />

Yet once again I failed to keep all of my doctors informed of this new<br />

medication change. At some point, a finite amount of common sense finally kicked in; that’s<br />

when I called my neurologist, not the prescribing physician. He immediately advised me to stop<br />

taking the supersonic-Kramer-squirrel medication and increased the dosage of my anti-seizure<br />

medication.<br />

It was a terrific dream day turned into a horrific nightmare. I thought there was a newfound<br />

hope with that medication. The next few days I was completely annihilated. I tried to get<br />

back into that new normal mindset by taking several rest periods and trying to listen to my brain,<br />

but I was slowly being pulled down by the grotesquely dark, slimy hands of anxiety and<br />

depression. The realities of living with a severe brain injury were lurking over my every move.<br />

I needed to do a better job of paying attention or I would be back hanging out with Kramer’s<br />

look-a-like twin sister, bumming smokes and eating Fruit Loops.<br />

So, where is Johnny at? I was doing some serious soul-searching and trying to heal. I<br />

needed to identify the more important things in my life; however, identifying and acting on them<br />

didn’t (and still don’t) work well for me. They seem to be in two separate filing cabinets. One<br />

cabinet is always locked and the files in the other cabinet are not in alphabetical order and are<br />

haphazardly scattered about.<br />

I identified that the most important things were being a better husband and father while<br />

coming to understand that my family was more important than me trying to get the old Johnny<br />

back. Instead, there is a new Johnny with a new normal. So, where is Johnny at? He is resting<br />

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and realizing that he will never return to the person that he once was. He needs to rest to figure<br />

out who the new Johnny is and this requires a fair amount of help, patience and rest to do so.<br />

Below is a poem written by a strong aneurysm survivor, Shannon Fry-Jones. It<br />

accurately captures how many brain aneurysm survivors feel about their old and new self. Thank<br />

you for allowing me to share your poem, Shannon. I appreciate it.<br />

How can I explain to those<br />

who could never understand<br />

the person that I was, is gone<br />

this is who I am.<br />

Previously quick to answer<br />

any questions one put forth<br />

so slow with my answers now<br />

I fear I’m losing my self-worth.<br />

The core inside of me remains<br />

loving, good and kind<br />

but the easy-going rest of me<br />

has been left behind.<br />

The memory of an elephant<br />

Used to be inside my mind<br />

this new me forgets everything<br />

and is always running behind.<br />

They say patience is a virtue<br />

I used to have this trait.<br />

It shines through on occasion<br />

but the new me hates to wait.<br />

My mind was always clear<br />

solving problems without fault<br />

the other self took over<br />

and my brain seems an empty vault.<br />

Anger was slow to rise<br />

in the person I used to be<br />

Anger boils and rages<br />

Inside of this new me.<br />

No one can see the confusion<br />

Behind the same face that they adore<br />

But until there’s wreckage in their brain<br />

the only understanding me before.<br />

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Chapter 44: The Role Reversal<br />

I<br />

went from breadwinner to bread eater in my house. I have worked nonstop since I was<br />

twelve years old. I mowed lawns, shoveled snow and detailed cars. I did everything I could,<br />

legally, to make a buck. At fourteen, I worked in my uncle’s factory, which wouldn’t happen<br />

today with all of the new labor laws. While I was a Corpsman in the Navy Reserves, I was going<br />

to nursing school and working full time as a nurse’s aide in an emergency room.<br />

To make extra money, I subjected myself to some quirky things. I signed up for<br />

Centrifuge testing. It was exhilarating and it paid well. After several sessions I think they took<br />

me up to 5.5 G’s while monitoring my vital signs. Years later, I would have never imagined that<br />

my life would be spinning out of control like that centrifuge. I was President of the Student<br />

Nurses Club and by my last semester, I picked up a part-time bartending job on top of everything<br />

else. It wasn’t all about the money; it was more about fun and happiness. Whenever I was<br />

happy and having fun, I was successful; it was an added bonus that I made good money doing so.<br />

I never considered it working or just punching in on a time clock. I made the best of any<br />

situation or predicament I found myself in.<br />

I loved working. I gauged my success not solely by my income, but with my happiness<br />

in the occupation. I took some bold chances and risks by switching my career paths several<br />

times. Why would I switch careers so often? Why not? When I wasn’t happy or felt like I<br />

wasn’t moving in the right direction, I would take a chance and venture onto newer endeavors.<br />

Between ages of twenty-one and thirty-nine, I held the following jobs/titles: Navy Corpsman,<br />

Registered Nurse, Steamfitter’s Union, Warehouse Manager, Construction Project Manager,<br />

Realtor, and Software Sales. I may have forgotten one or two, but I was very fortunate with the<br />

chances I took. Some were calculated moves and some weren’t and they always worked out in<br />

my favor; I made them work out. I poured my heart into everything I was involved in. My<br />

tenacious drive and fear of failure fueled my determination to succeed. I believed in myself and<br />

people believed in me, especially Laura.<br />

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BOOM! Just like that, I lost control of being in charge. I was no longer the breadwinner<br />

and, at first, I felt like a complete and utterly useless person. It proved to be one of my most<br />

challenging career switches. Being a good parent and husband became my career and Laura took<br />

over my breadwinner role—and I didn’t like it. My days of waking up and traveling, scheduling<br />

meetings, making forty calls a day and putting dozens of proposals together were over. My days<br />

now consisted of waking up and being responsible for something much more important—my<br />

daughters. I was the official stay-at-home parent. The pay sucked but the benefits were<br />

undoubtedly worth it. No company could ever match those benefits. I lost the battle, but I didn’t<br />

lose the war.<br />

It took some time, but I fortunately realized it didn’t change the person I had always<br />

been. I am the luckiest man alive. I finally have an opportunity to spend quality time with my<br />

daughters. On the other hand, I didn’t feel like I was being a good role model to them because I<br />

was constantly drained and needed several rest periods a day. I still feel like that on many days.<br />

I wanted my girls to look up to a father that was a hard working, successful man, not an<br />

unemployed, disabled dad who took five rest periods and popped over elevenpills a day.<br />

The role reversal took some getting used to, but I had to dive in head first and take care of<br />

business. It was one of the best things that ever happened to me. It opened up my eyes as to<br />

how fortunate I was and how I survived by being saved and wasn’t merely spared. I wanted my<br />

girls to see that I wasn’t just a stay-at-home-dad. I wanted them to see a strong survivor; a<br />

loving and compassionate father who cries at songs, commercials and movies. I was not the old<br />

daddy nor would he ever return. As Frank Sinatra said, “That’s Life.” I had to learn and teach<br />

myself that the new daddy had the opportunity of being better than the old daddy, it may just be<br />

in a different way. I needed to believe that it was the case; I needed to continually believe in<br />

myself.<br />

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Chapter 45: You Need to Write a Book, John<br />

S<br />

everal friends and family members told me I needed to write a book and share my story. I<br />

couldn’t wrap my brain around the idea. Me write a book? I didn’t think that my story<br />

differed from other survivors of a traumatic life-changing event. I’d never written a book before<br />

and wouldn’t even know where to start. Why should I throw all of my dirty laundry out for<br />

everyone to read? I shelved the idea and wasn’t particularly interested in writing a book…<br />

…Until M came home from school with a book she had written. The sturdy-bound book<br />

was a collection of short stories she had written throughout the school year. The school binds it<br />

and laminates the cover; it looked professionally put together. I was blown away by with her<br />

talented writing skills and her dramatic, in-depth, detailed stories. Reading her book motivated<br />

me and gave me the incentive I desperately needed to start writing Brain Go BOOM!. Thanks<br />

babe, you are my sunshine!<br />

My goals for this book have changed. My original goal was to only share my story with<br />

my family and friends. Then my goals expanded to wanting to share my story with other<br />

aneurysm victims and their family members to help victims realize that they were saved and<br />

they, too, could be survivors and not live as victims. During my numerous daily rests, I would<br />

see countless commercials for the Wounded Warrior Project. Every Wounded Warrior Project<br />

commercial produced blubbering outbreaks and tears from me. And then all of a sudden it<br />

became obviously clear as to what I wanted and needed to do next.<br />

I don’t have fantasies of Brain Go BOOM! selling a million copies or being on the New<br />

York Times bestseller list, as this is my first self-published book (or will it?). With my limited<br />

funds and inability to keep tabs on publication, sales, tracking and distribution, my mission was<br />

simple: have people donate directly to The Wounded Warrior Project.<br />

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Chapter 46: Why is it so Complicated to Give Back and Pay it Forward?<br />

M<br />

y goal is to help raise $10,000 in donations for the Wounded Warrior Project. Reaching<br />

goals after a brain injury is a major milestone; at least, I consider it to be. I created a<br />

website for Brain Go BOOM!, and there I wanted to emphasize that all book proceeds would go<br />

directly to The Wounded Warrior Project. I contacted the organization directly, explained what<br />

I was trying to accomplish and inquired about how to forward the proceeds of my book towards<br />

the organization. It was a lot trickier and more complicated than I thought.<br />

With my brain injury, it was a bit overwhelming trying to decipher all of their terms and<br />

conditions; however, it became apparent that I would need to adhere to their well-established<br />

guidelines. I had to tip-toe around a bit so it would be clear that they weren’t endorsing the<br />

website or the book, which they are not. I then had a plan to create a donation fund of some kind<br />

but, once again, there was too much legal red tape and hoops to jump through (I also lack the<br />

skills I once had in properly managing money). I scratched my head, racked my injured brain,<br />

made several phone calls and sent several emails. Then, I finally made contact with the<br />

appropriate person within their organization. She explained to me the many reasons why I could<br />

not execute my plan the way I originally thought I could.<br />

I was getting frustrated and wanted to yell out, “Doesn’t anybody realize I have a brain<br />

injury? Please let me help you!” I finally realized they were, rightfully so, doing their job and<br />

protecting their organization. Every day people wrongfully use organizations for their own<br />

personal or financial gain and that’s a damn shame. Perhaps they are the same people that have<br />

money in their white-dated envelopes waiting to meet St. Peter at the pearly gates. Well, I’m<br />

not one of those white-dated-envelope-carrying people. I needed to find a way and I would find<br />

a way. To me no means: the answer to your request may not be obvious. I was going to find a<br />

way!<br />

At that moment, the fictitiously large, bright, white light bulb brightly appeared over my<br />

head and the Philly street-smart kid came alive. I will offer my book for free, while encouraging<br />

my readers to make a donation. And, thanks to my First Amendment Rights (passed into law on<br />

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December 15, 1791) my Freedom of Speech and my Freedom of Press, which includes opinions,<br />

would allow me to break through this barrier. So, my opinion is that the Wounded Warrior<br />

Project is a tremendously helpful organization and its members will greatly benefit by your<br />

support with your donation.<br />

The Wounded Warrior Project is in no way associated with nor are they endorsing me or<br />

my book, Brain Go BOOM!. I am not using their organization to promote my story. I thankfully<br />

received permission to post one of their custom banner links on the website which will take you<br />

directly to their website so you can make your donation. So, please, make a donation.<br />

Once the dust had settled, they were extremely understanding and very helpful, even<br />

helping me with the proper legal verbiage that I should use on the website. I can’t thank them<br />

enough for their assistance. They are good people to work with. Again, my opinion is that many<br />

of their members will greatly benefit from your support with your donation. I am confident that<br />

YOU will pay it forward. You can go to their website or go to www.braingoboom.com and click<br />

on the banner ad they have provided for me.<br />

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Chapter 47: “I Had No Idea”<br />

I<br />

forwarded the first forty-four chapters of my book to some family members. To my surprise<br />

and dismay, their verbose reply was, “I had no idea.” Behind the scenes, they had no idea<br />

what I had gone through and what Laura had to do to keep our family together. To their defense,<br />

how would they have ever known? We never broadcasted our problems to others. I was<br />

confused because I thought everybody knew or had some kind of idea about the Hell we were<br />

living. Well guess what folks? Not many people knew.<br />

We lived in our war torn trenches and most days we were low on ammunition. Laura<br />

was constantly with me shooting all of her ammo. At times, she even had to shoot them at me<br />

because I had pushed her past her limits; the limits of which General MacArthur would have put<br />

up his white flag and surrendered early off in WWII. Laura, on the other hand, pushed forward<br />

and demanded more ammunition and demanded more cooperation from her brain-injured<br />

husband. We were losing a lot of battles, but she believed that we could win the war.<br />

She was not going to give up on me. She was not going to give up on us. Laura was<br />

always Watching My Six. She reminded me daily of how important I was to her and our<br />

daughters. I heard several stories about spouses packing up and leaving under far less<br />

circumstances. I’ve even heard about a wife cheating on her husband because her husband<br />

would never return to his pre-injured self. Laura never threw that white towel into the ring with<br />

this Rocky. Now ask yourself: do you think you can dig deep enough and do that for one of<br />

your loved ones for five years and more? Think about it. I can only hope your response is yes.<br />

It takes a very strong person to endure that daily beating of mind, body and soul while<br />

successfully holding down the fort, working full time and being the best wife and mother she<br />

knew how to be. She is a terrific mother and has taught our daughters so much during this. I<br />

can’t mention the list, as it would require me to write a separate book about them all. My<br />

friends, family, and even me, as I write this, had no idea. Numerous people called me their socalled<br />

hero for surviving and never giving up. Conversely, I’m just the survivor that benefited<br />

from my wife’s heroic and selfless sacrifices over these past five, grueling years. She is the true<br />

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hero of this story and deserves the highest award, the Medal of Honor, for her dedication and<br />

commitment above and beyond the call of duty for any wife, friend and mother. I, myself, have<br />

no idea (and may never know) the fullest extent of the sacrifices she made for the victory of this<br />

war. We both have the scars to prove it, but Laura is the one that ferociously went on the<br />

offensive and advanced our position.<br />

The brain injuries made me my own Prisoner of War, but Laura devised several escape<br />

plans for me throughout the years. I still can’t comprehend some of them and they frustrated the<br />

Hell out of me, but they have motivated me to devise my own plans of action to becoming a<br />

stronger and more productive survivor. In a military unit, there is always someone that falls<br />

behind. Usually they aren’t admired and others don’t want to be associated with them. More<br />

times than not, there is one or two within that unit that will go out of their way to ensure their<br />

success because they will need to rely on each other. They don’t know when or where but<br />

eventually they will need each other.<br />

Sometimes things click and I learn from my mistakes. Unfortunately, there are still the<br />

days where I’m stuck in Groundhog Day mode and can’t seem to snap out of it. I make<br />

repetitive mistakes and apologies (or what others may call excuses) on a daily basis. They are<br />

not excuses. I am S L O W L Y relearning the things that were once a part of my pre-injured<br />

brain. Are they mistakes or the results of my brain damage? Anyone with a brain injury can<br />

attest that most of them aren’t mistakes. They are the frustrating results of things gone bad after<br />

suffering a brain injury.<br />

I am proud to say that I am less than that of being my own Prisoner of War and more like<br />

that of a strong wounded survivor in his platoon working on the ultimate escape plan. When, not<br />

if, when we completely make it out, I am sure many more people will continue to say, “I had no<br />

idea.”<br />

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Chapter 48: Botulism<br />

D<br />

uring an occupational therapy session, two-and-a-half<br />

years following my stroke, the therapist noticed<br />

something seriously wrong with my left hand. My reaction<br />

time and coordination varied tremendously compared to my<br />

right hand. This slowly progressed into me not being able open it<br />

fully. It then quickly progressed, starting to cause my fingers to<br />

grip inward. As the months passed, my hand started to cramp more<br />

frequently, so bad that the nails of my 3 fingers (my pinky finger,<br />

ring finger and middle finger) were cutting into my palm. It got to<br />

the point where the pain felt like a constant Charlie Horse. I just<br />

chalked it off as a side effect of the stroke and convinced myself<br />

that I should be happy that I was still alive. That was easier said<br />

than done because the pain had trumped my pride.<br />

Pictures taken March, 2015<br />

While attempting to make light of the painful condition, my daughters and I named my<br />

left hand Gimpy or The Gimp. It was a far cry from what we used to call The Claw. When The<br />

Claw appeared, it meant it was time for tickle matches. I used to open my hands up and put them<br />

over my head and say, “Look out for The Claw,” then quickly lower my hands and tickle them.<br />

My left Claw was dead and the girls couldn’t understand what was happening with it.<br />

Gimpy was, and still is, painful. I am often embarrassed walking around with it. Mind<br />

you, my left hand is incredibly strong, I’ve just lost my fine motor skills. What does this mean?<br />

Tying my own shoes, buttoning a shirt, tying a tie, buttering a piece of toast, opening packages,<br />

doing my girls’ hair and typing on a keyboard are arduous tasks. On bad days, these tasks are<br />

impossible to complete which intensifies my anxiety and depletes my energy reserves.<br />

A considerable amount of the original writing of this book was done by using my iPad<br />

voice dictation. I then made the numerous adjustments and revisions by hen-pecking the rest of<br />

the book with my unaffected right hand, as Siri didn’t fully understand my Philly accent. (I hope<br />

that someone creates an app that understands Philly vernacular.) I was referred to a hand<br />

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specialist and it was explained to me that I had dystonia. “John, it is an involuntary contraction<br />

of your muscles. Instead of, let’s say, a thousand involuntary messages being sent from your<br />

brain to your hand in one minute, you are having something like ten thousand messages being<br />

sent which is causing your fingers, hand and wrist to contract and turn inward.” Why?<br />

That stroke to my right basal ganglia area of my brain was the root cause. It affected my<br />

fine motor coordination and functioning. It was a delayed domino effect of sorts. The sequence<br />

is as follows: subarachnoid hemorrhage caused by a giant, ruptured brain aneurysm, seven clips<br />

surgically inserted to repair it, clot may have formed from a clip, clot breaks away causing a<br />

stroke in right basal ganglia area, depression rears its ugly head, then an overabundance of neural<br />

messages are sent to my left hand.<br />

A new challenge was born: dystonia. This challenge was put on my plate, but I couldn’t<br />

butter the toast on my plate. Where was that name derived from? Dystonia…maybe it’s the<br />

name of long lost city near the Finger Lakes. I’d like to think so. This brain injury gets me off<br />

track and I think about stupid things like that every day.<br />

My hand specialist is one of the best on the East Coast. He recorded some basic hand<br />

tests and took several notes. “What can we do here, doc? It’s annoying, cumbersome and most<br />

importantly painful. Can you just go in to sever and cut out the nerves? My left hand is useless,<br />

besides for carrying grocery bags.” His suggestion startled me, “Botulism injections.” Huh?<br />

Was I in a plastic surgeon’s office? I know that all of my conditions have aged me a bit but did I<br />

look like I needed Botox?<br />

“The Botox injection will provide temporary relief, up to about 3 months, by blocking<br />

those extra messages being sent from your brain down to your hand.” “Okay, sign me up!”<br />

After playing tennis with my insurance company, the ball landed in my court and botulism<br />

injections were finally approved. Some of those injections have worked while others haven’t<br />

worked at all. The process is quite intricate, as my doctor has to identify the exact nerve while a<br />

needle is in my arm, hooked up to a low voltage device which sends small pulses of electrical<br />

signals to locate the correct nerve that is causing Gimpy. When located, the Botulism toxin is<br />

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injected. It is like threading the smallest thread through the smallest needle without glasses.<br />

When he hits the right spot, the dystonia is put to rest for about three months. It is amazing and<br />

so is he. It was a great relief to me and Gimpy.<br />

Here it comes…BOOM! Soon after I started getting the Botulism<br />

shots in my arm, I noticed the dystonia had moved South to my left foot<br />

and my big toe would uncontrollably flex upward.. “You have a<br />

hitchhiker’s toe.” It’s called hitchhiker’s toe because that’s exactly what<br />

it looks like; instead of a thumb, it’s my toe. With this new challenge I<br />

unconsciously began walking on the outside of my left foot, as the<br />

dystonia in my food was copycatting that in my hand and the intermittent<br />

pain simulated a Charlie Horse. Add another item to my new normal.<br />

Pictures taken March, 2015<br />

These new normals and changes are a daily reminder that I have suffered a giant,<br />

ruptured brain aneurysm and stroke, especially, when I am having a bad day. I do my best to<br />

remain positive and stay on track because I believe there is a light at the end of the tunnel.<br />

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Chapter 49: Changes<br />

A<br />

s a Navy Corpsman and Registered Nurse, I consider myself to be a prepared person. I<br />

have always worn a belt in case I unexpectedly need a tourniquet or for self-protection (if<br />

held by the non-buckle end, it turns into a weapon that can be swung towards bad guys). I would<br />

carry a small knife in my car and always carried a pen in case I needed to perform an emergency<br />

tracheotomy. I know this may sound a bit overboard, but that’s how I was; I was always<br />

prepared. I lived life thinking that if something were go wrong, I would be prepared for those<br />

unforeseeable circumstances. However, I could have never prepared myself for a giant, ruptured<br />

brain aneurysm and stroke. I would have never imagined having two brain surgeries, being in a<br />

coma, seeing an angel, not knowing how much a quarter was worth, learning how to walk then<br />

wanting to end my own life.<br />

After my aneurysm, my over-prepared trait was amplified tenfold. I was told by several<br />

physicians and at my support group meetings that certain personality traits are amplified after a<br />

brain injury. Some were good while others weren’t. If a person was jerk before a brain injury,<br />

they could become a bigger jerk after one. The trait most notable in me was being over-prepared<br />

and my over-the-top protectiveness. My family’s security, along with me over analyzing the<br />

uncontrollable events that lay ahead of me had consumed me, and my family was concerned. I<br />

knew I had zero control over them but I was not going into battle without ammunition.<br />

I became neurotic about my home security and my family’s safety. I considered buying a<br />

better, newer gun and putting it in my safe, but I knew that wouldn’t be my best choice for the<br />

reasons stated in earlier chapters; I just wasn’t ready for that. I over-prepared and to this day still<br />

have more booby traps set up than most people could ever imagine. It’s not a DEFCON ONE<br />

setup, but it’s the best my brain-injured-self could muster up. Family members and friends that<br />

know about the booby traps shake their heads in disbelief at the extent of my over exaggerated,<br />

homemade security devices.<br />

I tested out a few mock ups on Laura and my girls. On one occasion, they frantically ran<br />

out of the house while screaming their heads off. BOOM! They wanted Johnny’s head on a<br />

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platter. They were extremely pissed off at me but that’s what worked for the new me; it just<br />

didn’t work for them. In one of my testing scenarios, I took Laura off guard and in reactionary<br />

horror, she grabbed the device, threw it against the garage floor where it smashed into pieces.<br />

For my own safety, I don’t use my family members as test subjects anymore.<br />

My time management skills and abilities were, and still are, a wreck. I had to set alarms<br />

or reminders on my iPhone and iPad to remind me to set more alarms and reminders. It’s what<br />

seemed to work best for me but it mentally drained me. There were a multitude of chimes<br />

ringing from my devices two dozen times a day. It sounds like common sense to set one alarm,<br />

but some things aren’t so common nor do they make much sense either. For some reason, I<br />

unintentionally, and what would appear to many people, ignore the alerts. It’s not an excuse.<br />

If I have to be somewhere at 9:00 am and it takes me a half an hour to get there, with<br />

fifteen minutes to shower and get ready, I go bolting out the door at the very last second. All too<br />

often I am late. So why wouldn’t I start getting ready at 8:00 or 8:15? That part of my brain<br />

doesn’t work very well; it’s as if it’s dead! I battle with this every day. This adds much<br />

unwanted strain on me and my family while also increasing my anxiety to the point where I<br />

don’t want to go out at all. I become depressed because I feel like I’m a failure. It sounds like<br />

common sense, just set you alarms and pay attention John! I have all good intentions of sticking<br />

to my plan and getting out the door on time and yet it just doesn’t happen unless somebody is<br />

yelling at me to get ready. I take everything up to the last minute. I wish it was intentional so I<br />

could address it in a more reasonable manner or just make up some dumb excuse, but it’s not<br />

intentional. It’s a part of my new normal.<br />

It seems as if this new Johnny thrives on some form of self-inflicted pressure. It’s not<br />

like that—I actually hate it. I wrote about eighty percent of this book under pressure. I could<br />

only write when something needed to be done or when we needed to be somewhere. I take<br />

things down to the wire while Laura or the girls yell, “Let’s go! We have to leave in seven<br />

minutes. You didn’t even get a shower yet?” Only after this will I quickly shower, change and<br />

scatter about the house, set up my booby traps and hop in the car. When I finally get into the car,<br />

I run back into the house one or two times because I’ve either forgotten my medications, my<br />

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phone or I needed to recheck things for the fifth time because I have forgotten I’ve already<br />

checked them, BEEP…BEEP…BEEP...BEEP…BEEP…BEEP. It may sound funny reading<br />

about it, but it’s not so funny living it.<br />

It hasn’t changed or gotten any better as the years progress, either. In fact, I fear that it’s<br />

only getting worse. I feel like a scatter-brained looser when I can’t keep the simplest of tasks in<br />

line, like getting out of the house on time. It’s so confoundedly frustrating. Unlike the squirrels,<br />

I just can’t catch them, spray paint their tails and release them by the lake. I just have to move<br />

through the Groundhog Day motions and try to make up for it through other actions.<br />

On the positive side, I am able to do more things now than I could two years after the<br />

aneurysm; however, fifty percent of the time I feel like I’m walking on a tight rope that’s<br />

slathered with thick grease and without a safety net. On my good days I can walk straight across<br />

it without any problems. On my bad days, I am teetering side to side while slowly inching<br />

myself across in my best attempt to reach the end. Every day around 4:00 pm, I fall and crash<br />

hard like an egg cracking open on concrete. I can’t begin to count the number of doctor<br />

appointments since the aneurysm, but on my bad days I know I have canceled at least fifteen or<br />

more because it feels like my brain has left my body. The same applies when I’m trying to meet<br />

up with my friends or family. It’s difficult to commit to a date and time because I have no idea<br />

how I’m going to feel two days later after we have originally planned something. It’s not an<br />

excuse.<br />

The good thing is that my family and close friends know this about me. The bad news is<br />

that I can’t fully accept it and makes me feel as if I am unreliable. When I don’t or can’t rest, I<br />

continually push myself past the breaking point just to know that I did more than the previous<br />

day. Following those days, I’m barely coherent, not focused and extremely agitated. I fall apart<br />

right before my very own eyes. It’s difficult for people to understand unless they’ve had a brain<br />

injury. Not everyone is as accepting as my family and friends are.<br />

On a few occasions, I remember thinking, God I wish I had my big, white, oversized<br />

helmet back on so people could sort of slow things down and remember that I have a brain<br />

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injury. When I am out in public, I can’t stand up and say, “Okay everyone, I have a brain injury<br />

and I need you to slow down and try to understand where I’m coming from.” This even happens<br />

with some family members and friends because they’ve seen such a vast improvement with my<br />

progress. I feel like sometimes they have forgotten about it; it’s not too often, but often enough<br />

to write about. I know they haven’t forgotten but sometimes need a reminder. I feel like they<br />

expect more because I look good and appear to be doing okay. Maybe it’s my own perception of<br />

how things are playing out that particular day?<br />

When I’m tired most people think it’s the usual type of tiredness from lack of sleep or<br />

from pushing myself too hard, physically. There’s a condition for what I have and it’s called<br />

Neurofatigue. My brain’s gas tank is empty. It’s more like a depressive state where my muscles<br />

ache, I’m extremely unfocused and all attributes of common sense are nonexistent. I just need to<br />

go into my bedroom, close the shades and be left alone. I never sleep, I just lie down and watch<br />

TV or open up my iPad, which is counterintuitive because I am depleting even more of my<br />

brain’s energy reserves. It is extremely difficult to lie down and do nothing, not even to relax.<br />

My mind is constantly on the go and I can’t shut it down. I am very fortunate that most of my<br />

family and friends have accepted these changes, and hopefully I am very close to being able to<br />

accept it, as well.<br />

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Chapter 50: Funeral Songs<br />

I<br />

find it appropriate that I shared my funeral songs with you. I believe you get to know<br />

someone better by the music they listen to. What inspires them? What brings back good<br />

memories? What motivates them? Try it yourself with some friends or family members. You<br />

may be surprised at some of their song choices! Throughout my journey, I put together a list and<br />

shared it with one of my best friends, Frank.<br />

My request was that he hold onto the list and use it when the time comes. He assured me<br />

that when the inevitable happens, “I will make sure that all of these songs are played at your<br />

viewing and funeral, but you better not be dying anytime soon.” I told him, “I don’t have any<br />

plans on it.” I was fortunate enough to bear witness to most of the people that would be<br />

attending my funeral from the previous parties. Sort of a scary thought there, huh? Most of<br />

these songs can be best viewed on YouTube:<br />

Song<br />

Artist<br />

At Last (our wedding song)<br />

Etta James<br />

That’s Life<br />

Frank Sinatra<br />

Gonna Fly Now: Rocky<br />

Bill Conti<br />

When September Ends<br />

Green Day<br />

Don’t Stop Believing<br />

Journey<br />

I Hung My Head<br />

Johnny Cash<br />

The Man Comes Around<br />

Johnny Cash<br />

Time To Say Goodbye<br />

Andrea Bocelli<br />

Melt With You<br />

Modern English<br />

If You Leave<br />

OMD<br />

Sunny Side of the Street<br />

The Pogues<br />

Eternal Father<br />

Song I sang in Navy Choir<br />

I Was Only Joking<br />

Rod Stewart<br />

99 Red Balloons 7-Seconds version<br />

Black<br />

Pearl Jam<br />

Bad<br />

U2<br />

Pride<br />

U2<br />

Black<br />

Pearl Jam<br />

What I Got<br />

Sublime<br />

Collide<br />

Howie Day<br />

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Song<br />

My Way<br />

Rooster<br />

All I Ask Of You<br />

Principles Of Lust: Sadness<br />

Does That Make Me Crazy?<br />

Enter Sandman<br />

These Days<br />

All In The Family<br />

Good Times<br />

MASH<br />

Family Guy<br />

You’ve Gotta A Friend In Me<br />

What a Wonderful World<br />

A Nation Once Again<br />

You May Be Right<br />

Brickhouse<br />

I Always Love My Momma<br />

Hurt<br />

Summertime<br />

Wonder<br />

Danny Boy<br />

We’ll Meet Again<br />

You Are My Sunshine<br />

Cups: “When I’m Gone”<br />

Artist<br />

Frank Sinatra<br />

Alice in Chains<br />

Phantom Of The Opera<br />

Enigma<br />

Gnarls Barkley<br />

Metallica<br />

Foo Fighters<br />

Theme Song<br />

Theme Song<br />

Theme Song<br />

Theme Song<br />

From Disney’s Toy Story<br />

Louis Armstrong<br />

Wolfe Tones<br />

Billy Joel<br />

Commodores<br />

The Intruders<br />

Johnny Cash version<br />

DJ Jazzy Jeff<br />

Natalie Merchant<br />

Frank Patterson<br />

Johnny Cash<br />

Elizabeth Mitchel<br />

Anna Kendrick<br />

Whether you call it a life celebration or a funeral, I think they suck. At the cemetery, I<br />

hate looking down into the hole during a funeral with the casket suspended above. I hate it.<br />

I have a special request that my zipper be undone during my viewing because it was hardly ever<br />

zipped up when I was alive. As far as the cemetery goes, I don’t want a ceremony. I am offering<br />

my body up to science, if they want it. If not, I want the funeral director to take my body to the<br />

burial site in a basic casket, drop me off and let the groundskeepers take over from there.<br />

I don’t need or want my body laid to rest in an overpriced fabricated vault. It’s not that I<br />

don’t think I’m worth it; I believe it’s just a big waste of money. I would prefer that the extra<br />

money be earmarked and donated towards a good cause which, in my opinion, would be The<br />

Wounded Warrior Project. I want my family and friends to meet up for several cold pints of<br />

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Guinness and I want it to pour freely for however long they wish. I don’t want people putting<br />

magnetic flags or stickers on their cars and driving in a procession with their hazard lights on<br />

while waiting for that inevitable jerk to break into the line and screw things up for everyone. I<br />

want things to be simple, as my life always wasn’t…<br />

Those are my funeral songs.<br />

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Chapter 51: Losing Weight, Popping Tags and Concussions<br />

A<br />

t 225 pounds, I was out of shape and overweight and didn’t much like what I saw in the<br />

mirror. As if I hadn’t had enough changes, I came to the realization that a much needed<br />

change with my weight was in order. To execute my plan, I joined a gym, cut out sodas and<br />

watched what I ate. I worked out 3 days a week and between March and the following May, I<br />

had lost 55 pounds! People would tell me how good I looked and so I took my weight down<br />

even further to 160 pounds. However, at that weight, I was weak and the same people began<br />

telling me to “eat something” or that I looked “like a POW.” Anarchist John didn’t listen to<br />

them at first, but eventually found that the 170-175 pound range worked out best for me.<br />

My clothes didn’t fit with the weight loss; my waist size went from a 38 to 32 and soon<br />

my pants were literally falling down to the floor. I was never into spending a lot of money on<br />

clothes, even in my younger days. When Laura and I got together, I let her buy my clothes<br />

because she knew how to choose the sharpest looking outfits; sort of like the matching<br />

Garanimals outfits that my mom bought from Sears on the Boulevard but in adult form. Due to<br />

my decrease in income, I soon found myself shopping at the stores I used to donate my clothes<br />

to. One day, I swore I bought the same shirt I had donated months before.<br />

On the first Friday of each month, one store hosted a fifty percent off sale. The line to<br />

get in stretched well over seventy-five people; it was pure mayhem. I would go up on Thursdays<br />

to scout out the place and, upon further inspection, noticed that some women were coming in to<br />

hide their desired choice of clothing on a different rack for the next day’s sale. I saw some<br />

women pulling pants and shirts and relocating them over to the men’s racks. Rather ingenious,<br />

but I thought that was just as bad as, “Popping Tags.” Maybe they only had $20 in their pocket,<br />

so who was I to judge?<br />

I lost weight, had more energy and wanted to get involved with both of my daughter’s<br />

sports. I couldn’t get involved with softball for the risk of getting hit in the head. Six- and 11-<br />

year-old girls playing softball could be a recipe for disaster, so I opted for coaching soccer. I<br />

played soccer as a youth, but coaching thirteen girls on each team proved to be a mind-blowing,<br />

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yet rewarding, undertaking. My best estimate was that one-third of the girls from each team had<br />

some form of ADHD, one-third of the girl’s parents made their daughter sign up and play and the<br />

remaining one-third just wanted to play soccer.<br />

What did they all have in common? Fun! Everyone loves to have fun. My game plan<br />

switched from tactical coaching to crazy coaching. Coaching isn’t as complicated as most<br />

people think when approached this way. Here are my basics on being a coach:<br />

1) Help build the kids’ self-confidence. Make each of them feel as if they are the most<br />

important person on and off the field, while instilling in them that they need to rely on<br />

each other.<br />

2) Establish a routine and set reasonable rules. Kids need, and generally respond well to,<br />

routines. Once they know the routine, their self-confidence usually skyrockets.<br />

3) Run every drill with the kids. When they see that the coach is having fun, they usually<br />

follow suit.<br />

4) Try to be a kid yourself and look at things from their three-foot-high perspective.<br />

5) Teach skills and run drills. Be repetitive, consistent, smile, laugh and have fun.<br />

There were numerous practices and games where I could barely stand up straight. I was<br />

physically and cognitively drained. I felt like hanging up my cleats every other week. It’s not as<br />

if I announced to the kids and parents, “Hey, I had a ruptured brain aneurysm and a stroke, so<br />

take it easy on me.” I didn’t want them to know. I thought, What good would it do? I only<br />

disclosed it to a few other coaches I practiced with.<br />

I recently found a letter I had written after L’s and my second year of coaching in 2012:<br />

I learned something very important this year from a source I would have never imagined<br />

possible. I coached my daughter’s boy/girl soccer team for 5 year olds. There was an array of<br />

different talents and abilities; while some kids had no coordination or athleticism. I was very<br />

proud of my daughter as this was her second season and “she just gets it” with an average of 3<br />

goals a game. Some kids “get it” while other kids just don’t and they need extra guidance. This<br />

is where I came in to help encourage, teach and coach a child.<br />

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I encouraged every child to have the opportunity to score at least one goal during the<br />

season. Sometimes it is nothing short of putting the ball in front of the goal for them to shoot;<br />

but, not for Michael. This shy, skinny, black-haired boy with loud cheering parents from Europe<br />

wanted their son to run with the ball and get a goal, like my daughter. At the first game, he<br />

couldn’t keep up to even kick the ball once. His obvious sadness was overlooked by his<br />

disapproving parents. By the third game he was kicking the ball; always out of bounds, but he<br />

was happy. His parents were pulling their hair out while I was just happy to see him making<br />

contact with the ball. Game 6, he was kicking the ball the wrong way and helped the other team<br />

score. He was overjoyed, but his parents weren’t. I mentioned that he controlled the ball really<br />

well and nobody could catch up to his lightning quick speed. Fast forward to the last game of<br />

the year. The ball was passed to him from the center field circle. He dribbled and kept control<br />

of the ball with both feet while running in the right direction. He stopped, looked behind him<br />

and then took the perfect shot for his first REAL GOAL. Needless to say, Michael was astounded<br />

at his accomplishment. His parents along with me were jumping up and down like we had just<br />

won a lottery.<br />

What did I learn from Michael? After my ruptured brain aneurysm I couldn’t keep up<br />

with my old pace and was very discouraged. As time passed my family and friends coached and<br />

cheered me on so I would stay on course. They reminded me that “slow and steady wins the<br />

race.” I got excited and thought I was going to go back to the old John and like Michael, I was<br />

out of bounds many times. Fast forward from 2010, I am more focused with my eye on my goals,<br />

looking back only to reflect and move forward with patience, diligence and determination to<br />

reach my goals. I can only hope that I am as successful as Michael.<br />

That Fall, October to be exact, we took our daughters back down to Disney World for<br />

their birthdays—Disney, again? Yes, again. During this trip, they wanted to go night<br />

swimming, so we headed down to the pool. The lifeguards made an announcement that they<br />

would be leaving at 9:00 pm, but the kids could still swim in the pool as long as an adult was in<br />

the pool with them. I hopped in and we played for a while, timing each other swimming across<br />

the length of the pool.<br />

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I was on a fast lap when, BOOM!, stars appeared; I swam head first into the wall! I<br />

thought somebody hit me with a 2 x 4 over the top of my head. I slowly stood up, and if it<br />

wasn’t for me standing in the pool, I would’ve fallen over. I thought my new skull had cracked<br />

open. My family stood over me, alarmingly concerned and in utter disbelief. After I composed<br />

myself, I speed walked into the bathroom to check to see if my skull was bleeding. I didn’t want<br />

to lead on as to how much pain I was in. Thankfully, only my hand was bleeding because that<br />

hit the wall the same time my head did. When I came out of the bathroom, my family wanted to<br />

rush me to the emergency room. I adamantly denied their request and said, “I’m fine, I’m fine.<br />

I’m just a little startled.” The last time I said “I’m fine” didn’t work out for me so well. My<br />

head hurt for about five days after but I never lost consciousness so I wasn’t overly concerned.<br />

On that fifth day, we were home from Disney and L’s soccer Olympics were taking place.<br />

She and I laced up our cleats, jumped in the car and off we went. We coaches manned different<br />

stations and tallied up each individual’s scores from that station’s challenge. El was doing great!<br />

I, of course, was doing too much at one time: taking pictures, manning my station; tallying up<br />

points…too many things at once. I always wear soccer cleats to practices and games because I<br />

get better traction and I have less likelihood of slipping or falling. Well, while manning my<br />

station (and tallying up points and probably trying to take a picture), I went to kick a soccer ball<br />

out from behind the net. My cleat got tangled in the goalie net, and as I was stepping backwards,<br />

I flew up into the air and, BOOM!, landed on my shoulders, slamming my head into the ground.<br />

My camera went flying off my shoulder and I actually felt my brain move inside of my skull. I<br />

quickly got up and tried to compose myself like Fonzie from Happy Days and acted as if nothing<br />

ever happened, all while removing the strands of grass imbedded into the back of my head and<br />

shoulders.<br />

I didn’t realize how bad the fall was until we arrived home. L told Laura, “Daddy went<br />

flying up in the air and fell on his head really hard. He went really high mommy.” Two<br />

significant head bangs within a week definitely warranted a call to my doctor. I wasn’t going to<br />

fight this one because I actually felt my brain move and I knew that something wasn’t right. My<br />

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doctor examined me and ordered a CAT scan. The results revealed that there was no active<br />

bleeding, but I had suffered a moderate concussion; not a mild, but not a severe concussion.<br />

The back-to-back head traumas had some longer term affects than I had originally<br />

thought. For twelve months or more, I felt like I was living in slow-motion; not all of the time,<br />

but a good amount of it. I’m still not sure if it is totally resolved yet. One of my doctors<br />

explained that, “With you prior brain injuries, concussions like this could take a very long time<br />

to resolve itself; it may take several months or even years for your brain to bounce back from it.”<br />

So, I lost 55 pounds, had little-to-no clothes that fit so bought slimmer clothes at the thrift<br />

store, and suffered a mild concussion from two good bangs on the head. One step forward, three<br />

steps sideways—not backwards. If you say one step forward, three steps backwards, that’s<br />

where you’ll be—backwards. “It’s okay to have a deviation in your recovery plan, but it doesn’t<br />

mean you have to go backwards. You are allowed go sideways. It’s all about how you look and<br />

deal with it, but you must deal with it.” Thanks Dr. P.<br />

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Chapter 52: “99 Bottles of Beer on the Wall”<br />

F<br />

or four years following the BOOM!, I was on placed on several anti-seizure medications—<br />

eight pills per day to be exact. That’s approximately 11,680 pills or 2,628,000 milligrams<br />

of anti-seizure medications in four years. It took a while for the doctors and I to figure it out, but<br />

that’s what worked for me. Other medications or reduced dosages didn’t work and seizures<br />

would inevitably occur. Happily, this all changed in late 2014. My phenomenal neurologist and<br />

I had a serious sit down about medications and the progress I had made to that point.<br />

The anti-seizure medications, although helpful, left me lethargic and, on some days, next<br />

to lifeless. Laura later explained to me, “You looked like you had a haze over your eyes, as if<br />

you were buzzed these past four years.” We needed to try yet another new anti-seizure<br />

medication. My neurologist slowly increased the new medications dosage, while tapering down<br />

the preexisting ones. The new medication has dramatically changed my life. This, along with<br />

another medication to help increase my energy and focus, has turned my life around. I’ve gained<br />

a little weight with it, but the benefits far outweigh the extra pounds.<br />

The light’s diameter at the end of the tunnel is expanding and becoming brighter. The<br />

track lights are mostly GREEN LIGHTS and the RED LIGHTS are all but gone. The YELLOW<br />

LIGHTS are of my own making and remind me to proceed with caution and take breaks before I<br />

fall apart, no matter who is wondering or questioning “Where is Johnny at?” I am more aware of<br />

my limitations and I try my best to not overdo things. Let me reiterate: I am almost aware of my<br />

limitations and I try. I test myself daily and continue to fail forward fast. On the great days, I<br />

dust off my shoulders and try to learn from my mistakes. I have surpassed that, 18-Month<br />

Plateau Theory and plan to do much more. I am putting my strongest efforts into adjusting to<br />

my new normal life. I do notice improvements. In the not-so-far-off future, I plan to help<br />

mentor brain aneurysm and brain injured victims. I need to share my victories as well as my<br />

defeats. Through offering suggestions and allocating the lessons I’ve learned and by helping<br />

them build a roadmap for recovery, my ultimate goal will be for them to evolve into a survivor of<br />

a brain injury versus a victim of one. I want to get back to my life’s mantra of, “Help people get<br />

to where they need to be in life.”<br />

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This will occur over longer stretches of time and I’ll need to break things down into<br />

several minute tasks which takes more time and cognitive energy. Like the song "99 Bottles of<br />

Beer", I have to do things one at a time…“You take one down and pass it around, 98 bottles of<br />

beer on the wall” and so on. From 99 I think I’m down to about 55 bottles of beer on the wall. I<br />

would love drink as many challenges down as I can. When I get down to about 20 bottles of<br />

beer on the wall, I may have a party with my family and friends so I can do it for real.<br />

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Chapter 53: My 4 F’s<br />

B<br />

eing the stay-at-home-parent gave me ample time to reflect. I asked myself many<br />

questions when I was feeling down, but even more when I wasn’t. That was a change in<br />

the right direction. Some questions will never be answered and I probably shouldn’t be asking<br />

them in the first place. It may sound like common sense because I’ll never get the answers I’m<br />

looking for. So I must continue to “just keep swimming.”<br />

During my rehabilitation, my initial questions and thoughts ranged from “Why me?” to<br />

“If I were back to work, like many people think I should be, I know that we would be better<br />

financially positioned for our future.” Some of these thoughts were eating away at my soul. As<br />

the years have passed, some questions were finally answered and I started believing again. I<br />

have accepted most of the travesty and have started to believe in myself, and it’s showing.<br />

One bright, sunny, mild afternoon, I sat on the back deck and placed my pen and paper on<br />

the newer glass-top table. I looked up to the sky and noticed the perfectly-formed clouds and<br />

their crisp, brilliant, white color. They were positioned as if Jesus himself had cut them out of<br />

construction paper and glued them onto the baby-blue-color-papered sky behind them. I could<br />

see them even more clearly, thanks to the three trees I removed a year or so ago. I began to write<br />

down what had helped in my evolution from being a victim of a giant, ruptured brain aneurysm<br />

to that of becoming a survivor of one. They were my 4 F’s: Family, Friends, Facility and Faith.<br />

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Family:<br />

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Friends:<br />

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Facility:<br />

This picture was taken in front of a wall advertisement at Hospital J. It would be next to<br />

impossible for me to get them together for a picture with me. They are too busy saving lives.<br />

Faith:<br />

My Savior, Jesus, who died on the cross for us and didn’t simply spare me.<br />

(Thanks to my good, old friend, Tommy Sullivan, for sketching the picture below.)<br />

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My four F’s all played their own special and vital role in my journey. It became<br />

everyone’s journey. My entire Family, especially Laura, my daughters, my mother-in-law and<br />

her husband, Ron, because they were there with me every single day; my best Friends Billy,<br />

Matt and Frank; the Facilities, Hospital A, Hospital J, Peat and Hospital D for saving my life,<br />

and for my successful occupational, speech, psychological and physical therapies; and finally my<br />

Faith in praying to Jesus on the cross.<br />

The cards were lined up for me when I finally agreed to go to the ER and then was taken<br />

on the Brady Bunch helicopter. If you’re a blackjack player, it was an ace and a king; if you’re a<br />

poker player, it was a royal flush. I was fortunate enough to have some of the world’s most<br />

recognized neurosurgeons, Dr.Osen, Dr. Sirakam and their team, successfully perform my risky<br />

and delicate brain surgery. They did what was needed to save my life. The nurses on the sixth<br />

and eighth floors at Hospital J’s neuro-ICU kept me alive and the staff at Peat and Hospital D<br />

rehab helped me slowly put the pieces of my new normal life together. My mental health<br />

professionals, Dr. P, Dr. B #1 and Dr. B #2, sat back and peered deeply into my soul as my<br />

neurologist and physiotherapist took their calculated risks on different treatment modalities.<br />

How lucky am I? I would say that I’m the luckiest survivor alive!<br />

I realize it even more so now with my children. I feel like I am transforming into a father<br />

they can look up to and rely on, and am moving on from the half of a man they saw about three<br />

to five years ago. I strive to be the best role model I possibly can be for them. With Laura, I feel<br />

like we aren’t stuck in the trenches anymore. I love her to infinity and beyond. Everyone knew I<br />

needed help in becoming a survivor and Laura was there to make sure it happened. Laura, with<br />

her big, beautiful, blue eyes could somehow peer into the future and see past all of the problems<br />

and shortcomings. She planned around the storms, hopped on the live grenades and managed to<br />

not only keep our family afloat, she made our family flourish. Hallmark could never write the<br />

words or create a card that describes her heroic devotion, dedication, patience, unwinding<br />

strength, compassion and deep-seeded, sincere love.<br />

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Without My 4F’s, especially my Laura, I would have never survived the giant, ruptured<br />

brain aneurysm that made my BRAIN GO BOOM!<br />

“You are stronger than you seem,<br />

Braver than you believe,<br />

and smarter than you think.”<br />

(Christopher Robin to Winnie the Pooh)<br />

THE END<br />

(Or is it?)<br />

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Acknowledgments:<br />

With the deepest and most sincere gratitude, I wish to thank every individual that has<br />

ever crossed my path in life; both good and bad. I have learned what to do and what not to do<br />

from sharing in your stories and experiences.<br />

Thank you to my grandmother, Eleanor Kelly, aka Nanny Kelly. When I was a young<br />

age she punched me hard on my right arm and told me, “You learn more in pain than you do in<br />

happiness, Johnny.” She couldn’t have been more right. I learned a great deal about myself and<br />

others these past five years. It was excruciatingly painful at times, but I learned. I would even<br />

like thank those RED LIGHTS, as they have motivated me to see things differently and to be a<br />

more compassionate, forgiving and understanding person.<br />

Special thanks to my neurosurgeons at Thomas Jefferson University Hospital,<br />

Neuroscience Building, Dr. Rosenwasser, Dr. Tjoumakaris and Dr. Jabbour, for saving my life.<br />

To their surgical teams and the superb nursing staff on the sixth and eight floors, I cannot thank<br />

you enough! I went to one the paramount hospitals on the East Coast for emergency craniotomy<br />

and aneurysm clipping; I stayed there and received first-rate nursing care. I had the best of both<br />

worlds. Nurses rock!<br />

Thank you to Dr. Cho, Dr. Mayer, Dr. Marino, the nurses, the physical, occupational and<br />

speech therapists at Moss Rehabilitation Hospital. Thank you to Donna and the entire outpatient<br />

rehab team at Doylestown Hospital. Thank you to my exceptional, NEW primary care<br />

physician, Dr. Purcell. And last, but definitely not least of my medical doctors, Dr. Cook, who<br />

possesses the insight to take the calculated risks in order for me to thrive as a survivor not a<br />

victim. He grounds me and subliminally motivates me, while reminding me, “You’ve got to cut<br />

yourself some slack, John. You have severe damage to your basal ganglia and right frontal lobe.<br />

Some things that were once easy are now not possible. Give yourself a break.” They believe in<br />

me.<br />

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Thank you to my mental health professionals. Dr. Armstrong who helped me cope with<br />

my P.T.S.D., Dr. Ralph Petrucci who has taught me it’s alright to have bad days or weeks and<br />

that “…it’s okay to go sideways from time to time. I just don’t want to see you going one step<br />

forward then three steps backwards, but it’s ok to go sideways.” Dr. Bach for teaching me that I<br />

don’t have to wake up every day and wonder if I’m going to have another brain aneurysm and<br />

possibly die. Thank you to Dr. Berardinelli who is teaching me that what others may be thinking<br />

about me may be my own misconceptions and that I do posses the ability to change this. Her<br />

reinforcing therapy sessions and giving me take home assignments are working out well. We are<br />

working on it. She has also helped me create my own scheduling system; a system that may not<br />

work for most people, but works for me. They believe in me.<br />

Thank you to all of my fellow brothers at The Ancient Order of Hibernians (AOH)<br />

Division 3 in Doylestown. Thanks to Jack O. and his big red truck with his grandson in the back<br />

seat (again, I am so sorry Jack). To Jerry, Denny, Jim, Donnie for not only taking the lead on<br />

driving me back and forth to ninety percent of my therapy sessions at Doylestown Hospital three<br />

times a week, they also reinforced their own belief and faith that, “You are one of those guys that<br />

will pull out of this hell hole and come out on top.” They believe in me.<br />

Thank you to my closest friends Billy and his wife, Jess, Frank and Dawn and Matt and his wife,<br />

Julie, for standing bedside Laura while I was in a coma and for supporting my family and, most<br />

times, putting our needs in front of your own. Thank you for the countless hours of<br />

conversations and for allowing me to cry on your shoulders. Thanks for the occasional punch in<br />

the gut to wake me up and keeping me on track. Also, thank you to Scott and Jen and Kevin and<br />

Lori. You never acted as if anything was out of the ordinary when I was wearing my big,<br />

oversized, white, Corky helmet. May times you took on the RED LIGHTS that were in my path.<br />

When people stared at me in disgust, there were many occasions when you would be more upset<br />

than I was and you had no problem addressing these people head on. Thank you for making me<br />

laugh and for motivating me to not let my brain aneurysm define who I was. Thank you for<br />

loving me. That’s what friends are for...keep smiling, keep shinning... They believe in me.<br />

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Thank you to Jesus on the cross for not simply sparing me, but for saving me. Thank you<br />

for answering my prayers and sending one of your angles down to me to tell me that “Everything<br />

is going to be okay, John.” I was told that by a family member that there were at least a dozen<br />

prayer chains spanning the globe in my behalf. Thank you for answering their prayers. Please<br />

remember one particular woman, Jesus, the custodial engineer from Haiti. She selflessly started<br />

a prayer chain and diligently prayed for me after she had lost her son and other family members.<br />

Everything near a dear to her was taken after that devastating earthquake in 2010, but not her<br />

faith. Please put her in the EZ PASS lane when it’s her time to enter your pearly gates. She<br />

believed in you and you believe in me.<br />

Thank you for the support from my wife’s company and coworkers, especially, Mike for<br />

allowing Laura to take the much needed time to be with me at home while she was by my side<br />

for surgeries, hospital stays, doctor appointments, setbacks and therapy sessions. I know that<br />

most companies wouldn’t have displayed the extent of heartfelt compassion that they did. Thank<br />

you for being there for Laura. Thank you for understanding our predicament. You believed in<br />

Laura.<br />

Thank you to our nursing coordinator, Jill, and all of the members of the monthly<br />

aneurysm support group meeting at Thomas Jefferson University Hospital. We are a motley<br />

crew, but we all believe in each other and make sure our car doors are surely locked (beep, beep,<br />

beep, beep, beep, beep).<br />

Thank you to Trace Adkins, Mark Walberg and Dean Norris for being celebrity<br />

supporters on the Wounded Warrior Project commercials. (I would like be reimbursed for at<br />

least fifteen boxes of tissues.) The commercials that were aired motivated me and shed some<br />

light on expanding my mission in completing my book, while encouraging my readers to support<br />

The Wounded Warrior Project. Thank you to our wounded veterans and for The Wounded<br />

Warrior Project by working with me and providing me with a link on the website so people may<br />

directly make a donation to you. I believe in them and so should you.<br />

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Thank you to the anonymous Wal-Mart clerk and grandmotherly-looking lady at the<br />

D.M.V. for being YELLOW LIGHTS. Special thanks to the Wal-Mart lady for giving me that<br />

strong heartfelt hug. I really needed it that day. I would have never expected a hug from a<br />

stranger, yet alone a Wal-Mart clerk. Thank you to the all of the people that looked at me with<br />

compassion and understanding.<br />

Thank you to the H-OOOOOO-G-EEEEEY eating patient and my Mexican-bodyguardgentle-giant-of-a-roommate.<br />

You made me realize how fortunate I was and that other people<br />

have it worse off than me, and I must further learn to accept how lucky I really am.<br />

Thank you to Georgina Perticari for taking the time to edit, re-edit and re-re-edit this<br />

book. I greatly appreciate your support, hard work and precious time. Thank you for telling me,<br />

“By reading your book, I felt like I was a fly on the wall following your journey while going<br />

through a box of tissues crying during the sad moments and almost peeing my pants in laughter,<br />

during the funny moments. This is an inspirational story you have written.” Thank you to my<br />

wife, Laura, for finalizing the proofing and editing these past few months. Thank you to my<br />

friend, Joe Hart, for your writing guidance and suggestions. I apologize for not taking your<br />

advice on going with a publishing firm, as my new brain can’t take it all in. Thank you to Brian<br />

Richardson from Greenhouse Films for shooting and producing my “Brain Go BOOM!” video.<br />

And thank you to Brian Stasik from Design Star 3 for designing and printing my business cards.<br />

Thank you for believing in my story. Thank you for believing in me.<br />

To my family: Thank you for being there every day, Grace and Ron. Thank you for the<br />

support and laughter you brought into our house and for forgiving me when I was acting like a<br />

complete fool. Thanks for helping the girls thrive and taking over my roll. There is too much to<br />

mention all that you have done. I love you. Thank you to Drewbie and Chris. Drewbie, you<br />

stepped in and provided the girls with a temporary father figure while I was resting in bed, crying<br />

at commercials. Grace thanks for being there for and for supporting Laura. You helped us<br />

maintain our home as a source of support, understanding and unconditional love. You believe in<br />

us.<br />

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Thank you to my parents for teaching me at an early age to always help others and for<br />

providing me the tools to make a difference in people’s lives. I know that you weren’t able to be<br />

here 24/7 because you live and work in Florida, but your prayers and visits, your words of<br />

encouragement pushed me further to be the person I was meant to be. You said to me, “You<br />

were saved for a reason. You may not know why, but there is a reason.” Well, here you go<br />

mom and dad; I think this book is a good starting point and I know it will make a difference in<br />

other people’s lives. I couldn’t have imagined how they must have felt with the almost certain<br />

likelihood of burying their own son. It’s not supposed to be like that in life. And I knew at the<br />

initial onset and brain surgery that most people were thinking<br />

that I wouldn’t make it out. The odds were strongly stacked<br />

against me but, BOOM!, here I am. However, during the<br />

course of editing this book, my father, Jack Cooper, passed<br />

away. It saddens me that he will never get the opportunity to<br />

read my story in full. But I know in my heart that he is<br />

watching over me and with my mom, they believe in me.<br />

Thank you to my father-in-law, Carl, and his wife, Carol, for making sure their daughter<br />

was not falling apart at the seams and for offering their support and making things easier for us.<br />

Thank you to my sister, Alison, and her husband, Howard, for spreading the word and getting<br />

hundreds of people to pray for us. Thank you for making the 2-hour drive to visit me at the<br />

hospital and rehab. They believe in me.<br />

Thank you to Aunt Deb, Uncle Bob, Ashley, Caitlin, Uncle Wayne, Aunt Carolyn, Greg,<br />

Brad, Uncle Ron, Aunt Sue, Ron, Chris, Aunt Pat, Natalie, Nicholas, Uncle Bob, Aunt Maryann,<br />

Uncle Bud and Aunt Lorraine who visited me and supported me and Laura and our family.<br />

Thank you to all of my friends and all of my family. If I forgot anyone, please realize that it is<br />

impossible for me to mention everyone because of my terrible memory issue from the brain<br />

injury. Thank you for believing in me.<br />

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To my daughters, Emma and Eleanor, you gave me the strength to not quit. You showed<br />

me that I could still be a good Daddy when I was walking around with my Corky helmet, during<br />

my several thousand hours of rest periods and even now, when I walk around with Gimpy. You<br />

taught me how to be a good soccer coach. You laugh with me, not at me, when, I uncontrollably<br />

cry or when I break out with my new Revenge of the Nerds laughing episodes. Your<br />

unconditional love has helped me more than you will ever know. You both possess wisdom far<br />

beyond your years and your ever-loving hearts have never failed me. Thank you for inspiring<br />

me to write this book. Daddy loves you. You both believe in me.<br />

Thank you to my wife, Laura. A mere mention in this acknowledgement can never begin<br />

to express my admiration and love for you. I can’t image what you must have felt like when they<br />

loaded me onto the Brady Bunch helicopter, then finding out an hour later that I might die,<br />

leaving you a widow and our daughters without a father. I can’t wrap my head around it and I<br />

don’t think I ever will. I have no idea of how you got through it all. Every time I saw you, you<br />

never look defeated, you looked beautiful. You would endearingly say, “We will get through<br />

this.” You and our girls are the reason why I survived. When we talk and you tell me stories<br />

about things I don’t remember, I still can’t believe it. I know you broke down and maybe even<br />

had thoughts of calling it quits, but you didn’t. After awakening from the coma and seeing your<br />

big, blue, beautiful eyes for the first time, and every day thereafter, your love has never faulted<br />

nor failed me. Thank you for not giving in and not giving up. Thank you for being the best wife<br />

a husband could ask for and the best mother our two girls could have. I LOVE YOU TO<br />

INFINITY AND BEYOND. You believe in me, you believe in us and I believe in you, I believe<br />

in us!<br />

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Brain Go BOOM!<br />

Copyright ©2015 John Cooper<br />

All rights reserved.<br />

This book is protected by copyright. No part of it may be reproduced, stored in a retrieval<br />

system, or transmitted in any form or by any means, electronic or otherwise; including email<br />

forwarding attachments, mechanical, photocopying, recording, scanning, or otherwise, without<br />

the prior written authorization of the author.<br />

ISBN# 978-1-4951-5248-1 (eBook)<br />

With regards to my Copyright privileges, it is unlawful to send a copy of my protected<br />

book, in any format, to others. I ask that you redirect your friends and family members, to<br />

download their own copy from the website: http://www.braingoboom.com/<br />

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Closing Note:<br />

For those afflicted with a brain injury, our stories will never end. Be it a giant, ruptured brain<br />

aneurysm, a soldier injured by a roadside IED, a car accident, or anyone that has suffered an<br />

acquired or traumatic brain injury, including those stricken and with the often overlooked<br />

depression.<br />

The Battle Buddy Foundation:<br />

With a veteran suicide rate averaging 22 every day, the work to support our nation’s veterans has<br />

just begun once they return home. With over 10 times the amount of veterans lost to suicide than<br />

to combat operations in the same time period, there has never been a more important time to<br />

TAKE A STAND and DO something to support our veterans! Just because they come home,<br />

doesn’t mean we stop supporting them!<br />

That’s about one person, one precious life, every 65 minutes! These numbers are staggering and<br />

downright appalling. Can you live with that? I can’t. I believe that if mental health<br />

professionals are brought into the picture when troops are coming home from abroad or after an<br />

aneurysm or any brain injury occurs, people will have an increased chance of becoming a<br />

successful survivor versus living the life of a victim or, worse yet, taking their own life. It<br />

sounds like common sense but things aren’t so common and many things don’t make much sense<br />

to me anymore. Does this make sense to you? If it does, I urge you do something about it!<br />

We suffered a life-altering injury where many of us were surgically repaired but, BOOM!, many<br />

people still ASS-ume we’re fixed and we should just return to normal. Many times, we are<br />

patched up enough to look presentable to others, while not loathing ourselves when we look in<br />

the mirror. Some things will never get better and some things will.<br />

Do you think I am fixed because I was able write this book? Do you think our veterans are fixed<br />

because they may have received a special wheelchair or a new fancy, bionic-looking prosthetic<br />

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leg? If you read my book with an open mind, you will know the obvious answer to these<br />

questions.<br />

Our families and friends are put through their own set of diverse challenges. They experience<br />

just as much pain, if not more, during this journey. Imagine bearing witness to your loved one<br />

walking that greasy tightrope daily. Every next move is unpredictable while everyone is hoping<br />

that the next day was better than the last. I will never know the pain and anguish my family and<br />

friends endured, nor could they ever imagine mine.<br />

Recently, my mother-in-law confided in me that<br />

people asked Laura how she did it and Laura’s<br />

reply was, “I just knew I had to dig deeper.” Even<br />

following my aneurysm and additional stroke,<br />

Laura didn’t know how much more she could take, but she would “dig deeper.” As she dug<br />

deeper, I refused to quit—most of the time. Many family members and friends saw her brave<br />

acts and followed suit, but she was the one doing most of the heavy lifting.<br />

I know that many other people have gone down or are starting to go down this path. I hope and<br />

pray to Jesus on the cross that they or you have found some solstice in this book. I am very<br />

fortunate to have survived because I have a great support system. If supportive people are hard<br />

to come by in your present environment, please look into attending support group meetings and<br />

search for that positive, supportive role model or mentor. They are out there. There are many<br />

people out there willing to help, you just have to ask for it. All too often, we fail to ask for help<br />

because our pride gets in the way or don’t know how to ask for it. Put your pride to the side and<br />

please start asking for help.<br />

I hope I have provided you with the information and insight to look and treat others differently,<br />

with more understanding, compassion and respect. I hope I have motivated you to revaluate<br />

some of your own preconceptions and have shed some light on any misconceptions you may<br />

have had. By all means necessary don’t be a RED LIGHT, or I have failed my mission. Be that<br />

bigger, better, supportive person and, “just dig deeper.”<br />

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My best effort in starting to help and support others is having completed and sharing my story. I<br />

can’t wait until I get healthier so I may do more. I hope that you will make that difference in<br />

somebody’s life. Don’t start tomorrow, start today! Support is the key that everyone needs to<br />

survive.<br />

I have always set goals for myself and, most of the time, exceeded them. Completing this book<br />

will be a giant achievement. There will be many more good things to come.<br />

From the deepest depths of my soul, I appreciate you taking the time to read my story. I hope<br />

that you laughed, cried and enjoyed being a fly on the wall in following my evolution from being<br />

that of a victim of giant, ruptured brain aneurysm to that of becoming a survivor of one.<br />

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About John:<br />

John Cooper has written a story of man’s desire to fight for his life and survive the best way he<br />

knows how. He shows that with the help and infinite love and support of his family and friends,<br />

survival outweighs the failure to do so. John grew up in the Lawncrest section of Philadelphia.<br />

Just as he held down many jobs and chose to change careers frequently in his adult life, he did<br />

the same thing with schools, as he attended six. He started at Lawndale Elementary, then Saint<br />

Williams, then Melrose Academy. In high school he attended Father Judge, Cardinal Dougherty<br />

and North Penn. He joined the Navy Reserves and attended nursing school at Montgomery<br />

County Community College, where he obtained his nursing (RN) degree.<br />

By all means he was definitely the life of every party, but in a classy way. He would never do<br />

anything to hurt someone. He has crossed the line many times but always in the best effort to<br />

make people laugh and have people see the lighter side of life. He continually goes out of his<br />

way to help others and remains a supportive friend to many. Dangling a dare in front of him was<br />

like waving candy in front of a child. Very rarely did he turn down the opportunity to make<br />

someone laugh, help another person or tackle a challenge head-on. I wouldn’t have expected<br />

anything less of him when he was faced with his brain aneurysm. It was as if a higher power<br />

was daring him to survive. When he was in the coma, we sat at his bedside and never wavered in<br />

the belief that our “Coop” would not return. He resiliently broke through the thick concrete<br />

walls that were directly in front of him. He has the internal and external scars to prove his<br />

survival. His truly inspiring story will show many that, against all odds, he refused to succumb<br />

to quitting or failing. He will never stop influencing and motivating people in his strong and<br />

positive “Coop-like” manner. Brain Go BOOM! is proof of it. He remains crazy and funny,<br />

always willing to help others and has conquered one of the most challenging circumstances a<br />

human being could be faced with. Although he has many more challenging days in front of him,<br />

I know that he will continue being “Coop”.<br />

Written by Frank Afonso<br />

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Resources and References:<br />

The most common signs and symptoms I experienced are listed below, but I urge you to visit the BAF<br />

website for a more detailed list.<br />

The warning signs and symptoms of aneurysm:<br />

Ruptured brain aneurysms usually result in a subarachnoid hemorrhage (SAH), which is defined as<br />

bleeding into the subarachnoid space. When blood escapes into the space around the brain, it can<br />

cause sudden symptoms. Seek Medical Attention Immediately If You Are Experiencing Some<br />

Or All Of These Symptoms:<br />

Sudden severe headache, the worst headache of your life<br />

Loss of consciousness<br />

Nausea/Vomiting<br />

Stiff neck<br />

Sudden blurred or double vision<br />

Sudden pain above/behind the eye or difficulty seeing<br />

Sudden change in mental status/awareness<br />

Sudden trouble walking or dizziness<br />

Sudden weakness and numbness<br />

Sensitivity to light (photophobia)<br />

Seizure<br />

Drooping eyelid<br />

Statistics: Brain Aneurysm Foundation<br />

There is a brain aneurysm rupturing every 18 minutes.<br />

There are almost 500,000 deaths worldwide each year caused by brain aneurysms and half the<br />

victims are younger than 50.<br />

About 40% of all people who have a ruptured brain aneurysm will die as a result. Of those who<br />

survive, about 66% will suffer some permanent deficit.<br />

4 out of 7 people who recover from a ruptured brain aneurysm will have disabilities.<br />

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Following a subarachnoid hemorrhage, most patients will remain hospitalized for a minimum of two<br />

weeks during which time they will be monitored for the development of cerebral vasospasm and other<br />

complications of the hemorrhage.<br />

Mission Statement:<br />

Giant, ruptured brain aneurysm: National Institute of Neurological Disorders and Stroke:<br />

http://www.ninds.nih.gov/disorders/cerebral_aneurysm/detail_cerebral_aneurysms.htm#259603098<br />

Chapter 1:<br />

Migraine: Wikipedia: https://en.wikipedia.org/wiki/Migraine/<br />

Registered Nurse: Wikipedia: https://en.wikipedia.org/wiki/Registered_nurse<br />

CAT scan: Wikipedia: https://en.wikipedia.org/wiki/X-ray_computed_tomography<br />

MRA: Wikipedia: https://en.wikipedia.org/wiki/Magnetic_resonance_angiography<br />

MCA: Wikipedia: https://en.wikipedia.org/wiki/Middle_cerebral_artery<br />

SAH: Mayfield Clinic: http://www.mayfieldclinic.com/PE-SAH.HTM#.VTmgoJMnlIg<br />

Thunderclap Headache: Wikipedia: http://en.wikipedia.org/wiki/Thunderclap_headache<br />

Chapter 2:<br />

Brady Bunch Station wagon: Google:<br />

https://www.google.com/?gws_rd=ssl#q=brady+bunch+station+wagon<br />

Chapter 3:<br />

Craniotomy: Mayfield Clinic: http://www.mayfieldclinic.com/PE-Craniotomy.htm<br />

Chapter 4:<br />

Angels: Wikipedia: https://en.wikipedia.org/wiki/Angel<br />

Johnny Cash: Wikipedia: https://en.wikipedia.org/wiki/Johnny_Cash<br />

Johnny Cash Songs: YouTube: https://www.google.com/?gws_rd=ssl#q=youtube+johnny+cash&spell=1<br />

Chapter 8:<br />

Aneurysm Clipping: Mayfield Clinic: http://www.mayfieldclinic.com/PE-Clipping.htm<br />

Moving Robot: NBC News: http://www.nbcnews.com/id/4946229/ns/health-health_care/t/robot-doctorgets-thumbs-up-patients/#.VSwi05MnlIg<br />

Chapter 11:<br />

Vasospasms: Wikepedia: https://en.wikipedia.org/wiki/Vasospasm<br />

Breaking Bad: Wikipedia: https://en.wikipedia.org/wiki/Breaking_Bad<br />

Chapter 13:<br />

Cranioplasty: Wikipedia: http://en.wikipedia.org/wiki/Cranioplasty<br />

TV Show, Life Goes On: Wikipedia: https://en.wikipedia.org/wiki/Life_Goes_On_(TV_series)<br />

Olympic Theme Song: YouTube:<br />

https://www.google.com/?gws_rd=ssl#q=youtube+olympic+theme+song<br />

Apolo Uno: Wikipedia: https://en.wikipedia.org/wiki/Apolo_Ohno<br />

ICU Delirium: Wikipedia: https://en.wikipedia.org/wiki/Delirium#Critical_illness<br />

SOS signal: Wikipedia: http://en.wikipedia.org/wiki/SOS<br />

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Author/Survivor: John Cooper<br />

Chapter 14:<br />

Rocky: Wikipedia: https://en.wikipedia.org/wiki/Rocky<br />

Rocky Theme Song: YouTube:<br />

https://www.google.com/?gws_rd=ssl#q=rocky+theme+song+gonna+fly+now<br />

Chapter 15:<br />

ICU: Wikipedia:https://en.wikipedia.org/wiki/Intensive_care_unit<br />

Chapter 17:<br />

Pg 35: The Old Man and The Sea: Wikipedia: https://en.wikipedia.org/wiki/The_Old_Man_and_the_Sea<br />

Chapter 26:<br />

It’s A Wonderful Life: Wikipedia: https://en.wikipedia.org/wiki/It%27s_a_Wonderful_Life<br />

Chapter 30:<br />

tPA: The American Stroke Association:<br />

http://www.strokeassociation.org/STROKEORG/AboutStroke/Treatment/Stroke-<br />

Treatments_UCM_310892_Article.jsp<br />

Subarachnoid Hemorrhage: Neurosurgery and Endovascular Associates:<br />

http://www.neuroendomke.com/brain-tumors-other-brain-disorders-and-brain-surgery/subarachnoid-andintracranial-hemorrhages/<br />

Giant, ruptured brain aneurysm: The American Stroke Association:<br />

http://www.strokeassociation.org/STROKEORG/AboutStroke/TypesofStroke/HemorrhagicBleeds/What-<br />

You-Should-Know-About-Cerebral-Aneurysms_UCM_310103_Article.jsp<br />

Ischemic Stroke: The American Stroke Association:<br />

http://www.strokeassociation.org/STROKEORG/AboutStroke/TypesofStroke/IschemicClots/Ischemic-<br />

Strokes-Clots_UCM_310939_Article.jsp<br />

Basal Ganglia: The Ohio State University Wexner Medical Center:<br />

https://patienteducation.osumc.edu/Documents/BasalGangliaStroke.pdf<br />

Chapter 31:<br />

Cranioplasty: Neurosurgical Associates PC: http://neurosurgicalassociatespc.com/cranioplasty/<br />

Nosocomial Infections: Healthline.com: http://www.healthline.com/health/hospital-acquired-nosocomialinfections#Overview1<br />

Chapter 36:<br />

TIA: American Stroke Association:<br />

http://www.strokeassociation.org/STROKEORG/AboutStroke/TypesofStroke/IschemicClots/Ischemic-<br />

Strokes-Clots_UCM_310939_Article.jsp<br />

CVA: American Stroke Association:<br />

http://www.strokeassociation.org/STROKEORG/AboutStroke/TypesofStroke/IschemicClots/Ischemic-<br />

Strokes-Clots_UCM_310939_Article.jsp<br />

Chapter 38:<br />

SAH: Wikipedia: https://en.wikipedia.org/wiki/Subarachnoid_hemorrhage<br />

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Author/Survivor: John Cooper<br />

Chapter 39:<br />

PTSD: Wikipedia: https://en.wikipedia.org/wiki/Subarachnoid_hemorrhage<br />

PBA: Wikipedia: https://en.wikipedia.org/wiki/Pseudobulbar_affect<br />

“That’s Life:” Google:<br />

https://www.google.com/?gws_rd=ssl#q=youtube%20frank%20sinatra%20that%27s%20life<br />

Chapter 40:<br />

Social Security Disability Insurance: Wikipedia:<br />

https://en.wikipedia.org/wiki/Social_Security_Disability_Insurance<br />

Chapter 41:<br />

(MCA) ruptured brain aneurysm: Brain Aneurysm Foundation:<br />

http://www.bafound.org/Understanding_the_Brain<br />

Chapter 42:<br />

Neurofatigue: www.braininjury-explanation.com: http://www.braininjury-explanation.com/unseenconsequenses-of-brain-injury/neurofatigue<br />

ADHD: NIH: National Institute of Mental Health: www.nimh.nih.gov/health/publications/attentiondeficit-hyperactivity-disorder/index.shtml?rf=71264<br />

ADHD Medication: Healthline: http://www.healthline.com/health/adhd/adderall-vs-ritalin#WhichOne?4<br />

Simple partial seizures: Wikipedia: https://en.wikipedia.org/wiki/Partial_seizure<br />

Chapter 45:<br />

The Wounded Warrior Project: http://woundedwarriorproject.org/<br />

Chapter 46:<br />

“Watching My Six:” Urban Dictionary:<br />

http://www.urbandictionary.com/define.php?term=watch+my+six<br />

Medal of Honor: Wikipedia: http://en.wikipedia.org/wiki/Medal_of_Honor<br />

Chapter 47:<br />

Dystonia: Wikipedia: https://en.wikipedia.org/wiki/Dystonia<br />

Basal ganglia: Wikipedia: https://en.wikipedia.org/wiki/Basal_ganglia<br />

Botox: UF Center for Movement Disorders & Neurorestoration:<br />

http://movementdisorders.ufhealth.org/for-patients/clinics/dystonia/botulinum-toxin-injections-fordystonia/<br />

DEFCON: Wikipedia: http://en.wikipedia.org/wiki/DEFCON<br />

Chapter 49:<br />

Funeral Songs: YouTube: http://www.youtube.com/<br />

Chapter 50:<br />

“Popping Tags:” Wikipedia: https://en.wikipedia.org/wiki/Thrift_Shop<br />

Concussion: WebMD: http://www.webmd.com/hw-popup/concussion-traumatic-brain-injury<br />

Chapter 51:<br />

99 bottles of beer on the wall, 99 bottles of beer: Wikipedia:<br />

https://en.wikipedia.org/wiki/99_Bottles_of_Beer<br />

The Ancient Order of Hibernians (A.O.H.) Division 3 http://www.aohdoylestown.com/<br />

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Brain Go BOOM!<br />

Author/Survivor: John Cooper<br />

Closing:<br />

Veterans Suicide Rates: The Battle Buddy Foundation: http://www.tbbf.org/<br />

IED: Wikipedia: http://en.wikipedia.org/wiki/Improvised_explosive_device<br />

Brain Go BOOM!<br />

Copyright ©2015 John Cooper<br />

All rights reserved.<br />

This book is protected by copyright. No part of it may be reproduced, stored in a retrieval<br />

system, or transmitted in any form or by any means, electronic or otherwise; including email<br />

forwarding attachments, mechanical, photocopying, recording, scanning, or otherwise, without<br />

the prior written authorization of the author.<br />

ISBN# 978-1-4951-5248-1 (eBook)<br />

With regards to my copyright privileges, it is unlawful to send a copy of my protected<br />

book, in any format, to others. I ask that you redirect your friends and family members to<br />

download their own copy from the website: http://www.braingoboom.com/<br />

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