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Silver Linings <strong>#54</strong> | PAGE 1<br />

Autumn 2016<br />

Keeping families close<br />

The Hooke family from Timaru, Tracy,<br />

Roger, and their daughter Grace have<br />

stayed with us since September last<br />

year while Grace has been battling<br />

neurofibromatosis type one, a genetic<br />

disorder which has caused two<br />

tumours to grow in her brain.<br />

Amazing Grace touches many hearts<br />

“She’s a ballbuster, she’s amazing,” says<br />

Tracy Hooke of her fearless daughter Grace.<br />

With her freckled face, fiery personality, and<br />

love of the Disney film Frozen, Grace Hooke<br />

is like most 8-year-old girls.<br />

But this Timaru beauty has had to be braver<br />

than most, battling neurofibromatosis type<br />

one, a genetic disorder causing two tumours<br />

to grow on her brain.<br />

To the devastation of her parents Roger and<br />

Tracy, chemotherapy has not stopped the<br />

tumours from growing, and doctors have<br />

only given Grace a few short months to live.<br />

But this redheaded princess is not going<br />

down without a fight, naming her tumours<br />

‘stinky’ and ‘slimy’ and not letting them get in<br />

the way of her important little life.<br />

“She will not give in, she is stubborn and<br />

she’s touched a lot of people’s hearts,” says<br />

Tracy. “She’s got a wicked sense of humour,<br />

always giggling and laughing, and gives<br />

kisses to everyone.”<br />

Continued on page 2...<br />

<strong>NEWSLETTER</strong> <strong>#54</strong> <strong>IN</strong> <strong>THIS</strong> <strong>ISSUE</strong>:<br />

HOUSE<br />

HAPPEN<strong>IN</strong>GS<br />

PAGE 3<br />

TRIPLETS <strong>IN</strong><br />

SOUTHLAND<br />

PAGE 4<br />

COMMUNITY<br />

AROHA<br />

PAGE 6<br />

NATIONAL<br />

STREET APPEAL<br />

FRIDAY 10 JUNE<br />

VOLUNTEER /<br />

DONATE NOW<br />

RMHSI.ORG.NZ<br />

connect with us www.rmhsi.org.nz | RonaldMcDonaldHouseSouthIsland | RMHSI


Silver Linings <strong>#54</strong> | PAGE 2<br />

From the Chairman,<br />

Paul Deavoll<br />

After serving more<br />

than 800 families in<br />

2015, we welcomed<br />

in the New Year with<br />

the knowledge that the<br />

need for our services is<br />

constant and growing.<br />

When a child is ill it impacts<br />

the entire family. Each day is<br />

often filled with stress, hospital<br />

appointments and worry.<br />

Thank you to the supporters who have chosen to keep<br />

walking alongside our organisation in 2016, helping us to<br />

keep families close so they can focus on what matters most<br />

– the health of their children.<br />

On behalf of the Ronald McDonald House South Island<br />

Board of Trustees, I am humbled by the support we get<br />

from you – our individual, corporate and community<br />

donor support is incredible, whether it be monetary,<br />

in-kind or lending a helping hand around the House and<br />

Family Room.<br />

You are noticed, you are valued and you are making a true<br />

difference to the lives of hundreds of families. With your<br />

help our doors are always open to families in need.<br />

We have an exciting year ahead with Christchurch and<br />

Queenstown Supper Clubs, the Annual Appeal and of<br />

course a full House of families who need our daily support.<br />

We look forward to working with you throughout the<br />

year, so that as a team we can provide comfort, care and<br />

compassion to each and every family needing support<br />

during their child’s road to recovery.<br />

...cover story continued from page 1<br />

Grace and her mum have spent over 120 nights in the House<br />

since September last year, while dad Roger travels to Christchurch<br />

whenever he can get time off work to be close to his girls.<br />

But since getting Grace’s latest prognosis at Christmas time, Tracy and<br />

Roger have put their lives on hold to spend as much time as they can<br />

with Grace.<br />

“The most important thing for the next little while is her,” says Tracy.<br />

The Hooke family have experienced the power of families staying<br />

close during tough times and say they don’t know where they would<br />

be without Ronald McDonald House South Island.<br />

"It is truly a home away from home," says Roger, who can often be<br />

found unstacking the dishwasher in the family kitchen.<br />

“If it wasn’t for this place we don’t know how families would cope, when<br />

you’re already not getting paid and you’ve still got mortgages and bills<br />

to pay, it’s tough.<br />

“But you can come back to the House and your meals are cooked for<br />

you – it’s amazing and such a load off.”<br />

The Hooke’s are certainly one-of-a-kind, promising to come back to<br />

the House and give back to the over 860 families who call Ronald<br />

McDonald House South Island home each year.<br />

“When this is all over for us, and we’ve had some time to grieve, we will<br />

definitely come back here,” says Tracy.<br />

“It’s a place you hear about, it’s a place you hope you never have to<br />

experience, but thank goodness it's here.”<br />

And while the future for the Hooke family is unclear, they are doing<br />

everything they can to make sure Grace’s last days are filled with light<br />

and love.<br />

Crown Limousine’s organised for Grace to be picked up from the<br />

House in a bright pink limo last month, and she was taken on a guided<br />

tour around Christchurch with none other than Frozen Princesses Elsa<br />

and Anna.<br />

And one of Grace’s dreams came true when she got to meet her hero<br />

Kendall Schmidt, the star from the hit Nickelodeon show Big Time<br />

Rush, who travelled all the way from the United States to see her.<br />

But when it comes down to it, all it takes to make Grace smile is a<br />

cuddle and a kiss from mum and dad.<br />

1) This photo was taken when Grace was first diagnosed in September. 2) Eight-year-old Grace is a huge fan of Frozen’s Princess Elsa.<br />

3) The future for the Hooke family is uncertain, but their positive energy has been an amazing presence in Ronald McDonald House South Island.<br />

3


» House Happenings «<br />

Silver Linings <strong>#54</strong> | PAGE 3<br />

1. Hellers’ Brent Ford and his family teamed<br />

up with friends to cook a beautiful meal for<br />

our House families. These budding chefs got<br />

stuck into the kitchen to prepare a delicious<br />

meal of ham on the bone, a huge range of<br />

salads and beautiful rose shaped cakes. They<br />

said it was a great way to get the kids in the<br />

kitchen and spend some quality time together.<br />

2. Our CEO Matt Mark and his family<br />

dressed up in their Bright Sparks aprons<br />

and created a fantastic festive feast for<br />

our families who stayed in the House on<br />

Christmas Day. The Mark family cooks took<br />

over the kitchen to prepare a classic ham,<br />

roast chicken, salad, vegetables and of<br />

course, Christmas pudding! More than 70<br />

guests celebrated Christmas in the House.<br />

3. Our little Superman Logan used his<br />

superpowers to lend a hand to Leith Skinner<br />

who helped cook a delicious BBQ dinner for<br />

our House families. Thanks guys!<br />

4. In celebration of Siddhant’s 1st Birthday,<br />

dad Asoka, mum Ranjeni, Nana Yakkara and<br />

other friends and family decided to make the<br />

families lunch at the House – what a spread<br />

it was!<br />

5. Yummy smoothies and sundaes have<br />

been at the top of the House menu lately,<br />

with Tip Top donating plenty of ice cream to<br />

the House for our families to enjoy, one of<br />

our regular volunteers Manu was especially<br />

grateful for the sweet treat!


Silver Linings <strong>#54</strong> | PAGE 4<br />

» What's going on «<br />

Down South<br />

▲ Mum Sarah with sleeping triplets Zoe, Jake and Kayla. Sarah stayed<br />

in the Ronald McDonald Family Room in Southland Hospital after her<br />

babies were born.<br />

▼ The Miller family just grew by three, Bevan and Sarah and two-yearold<br />

Tessa welcomed triplets Zoe, Jake and Kayla into the world at the<br />

end of January.<br />

Good things come<br />

in three for the<br />

Miller family<br />

They say good things come in three, and for the Miller family this<br />

rang true when mum Sarah gave birth to triplets Zoe, Jake and<br />

Kayla earlier this year.<br />

The three little beauties were born at the end of January, at just over 34<br />

weeks, in Southland Hospital and weighed in at over 4 pounds each.<br />

Sarah found out she was expecting triplets at 8 weeks, and it’s fair to say<br />

the news came as a bit of a surprise to the expectant mother and her<br />

partner Bevan.<br />

Sarah and Bevan were able to stay at the Ronald McDonald House<br />

Family Room in Southland Hospital to be close to their precious trio in<br />

the neonatal unit.<br />

And big sister 2-year-old Tessa was even more thrilled with her baby<br />

siblings, as they happened to arrive on her birthday – which should<br />

make birthdays in the Miller household a busy affair.<br />

The Family Room made up of four overnight bedrooms is directly<br />

connected to the children’s and neonatal units in Southland<br />

Hospital, so families like the Millers can stay just a moment away<br />

from their children.


Teeing off for Tiny<br />

Tim in Timaru<br />

The Welsh family called our House in Christchurch home when their little<br />

boy Tim decided to enter the world three months early.<br />

But more than two years later Timaru parents Jim and Jodi Welsh are<br />

delighted to be raising a fighting fit 2-year-old boy, and in December they<br />

raised $7,800 to give back to the House through a golf tournament.<br />

Silver Linings <strong>#54</strong> | PAGE 5<br />

The Welsh family from Timaru raised $7,800 for Ronald<br />

McDonald House South Island through a special golf<br />

tournament. Two years ago the Welsh’s stayed with us when<br />

their son Tim was born three months early.<br />

“We had many ups and downs with Tiny Tim from Timaru, but staying in<br />

Ronald McDonald House in Christchurch helped our wellbeing by providing<br />

not only meals and a place to sleep and be a family, but also meeting other<br />

families that were facing similar and different challenges,” says Jim.<br />

We are so grateful to the Welsh family and these funds will go an extremely<br />

long way in supporting more families this year.<br />

Special guest Te Radar and Family Room<br />

volunteer Suzette<br />

The gorgeous Rain family at our stall<br />

Edendale show stall<br />

Our supporters Faye and Gordy from<br />

Arrowtown<br />

The Southland community spirit was alive<br />

and well at the Edendale Vintage Machinery<br />

Club ‘Crank-Up Weekend’, with the event<br />

raising the profile of the Ronald McDonald<br />

Family Room, Southland Hospital.<br />

Beautifully arranged and donated hampers<br />

and a lucky dip draw raised more than $600<br />

for the Family Room, and volunteers manned<br />

our stall over the weekend to tell people a<br />

little bit about what the facilities are all about.<br />

Special guest and television personality<br />

Te Radar even popped in to say hello to<br />

the Ronald McDonald House team and<br />

was interested to find out about the Family<br />

Room, which provides families a place to rest<br />

and regroup just moments away from the<br />

neonatal and children’s units.<br />

A big thank you to all our volunteers and<br />

supporters at the ‘Crank-Up Weekend’!<br />

Floral Touch to<br />

Family Room<br />

To keep the wheels turning at Ronald<br />

McDonald House South Island, we rely on<br />

the generosity of our special volunteers.<br />

And Maree McKenzie is a one-of-a-kind<br />

volunteer, who lends a hand in the Ronald<br />

McDonald Family Room, Southland Hospital.<br />

Maree helps out with housekeeping in the<br />

Family Room each week, which is a busy<br />

business with four rooms to keep spic and<br />

span for families, many coming in with brand<br />

new babies from the neonatal unit.<br />

A talented florist, Maree also put together the<br />

hampers for the lucky draws at the Edendale<br />

Vintage Machinery Club Crank Up. The<br />

hampers and lucky dips raised nearly $600<br />

for the Family Room.<br />

The team at Ronald McDonald House value<br />

the support of our dedicated volunteers – we<br />

simply can’t provide our services without<br />

them. If you are interested in becoming a<br />

volunteer and making a real impact, contact<br />

us today!<br />

> Maree McKenzie is a precious volunteer<br />

for the Ronald McDonald Family Room,<br />

Southland Hospital.


Silver Linings <strong>#54</strong> | PAGE 6<br />

» Community Aroha «<br />

1. A big thank you to our friend Steve<br />

Hutson at South City Shopping Mall for<br />

finding two perfect and safe locations<br />

two new ‘Wishing Wells’, Clive Jones<br />

for putting them together and Kamen<br />

Withington at Mainfreight for the free<br />

delivery. Pictured here is Steve and<br />

Anna from our team dropping the first<br />

coin down the well.<br />

2. Some generous Jetstar Airways flight<br />

attendants donated $250 worth of travel<br />

vouchers for our families to use, helping<br />

keep families close!<br />

3. Members of the Sefton Kowai Women’s<br />

Institute created these gorgeous<br />

welcome packs to give to our families<br />

when they arrive at the House, and they<br />

plan to make 60 this year!<br />

4. Our friends at Wishbone have been<br />

generously donating their leftover<br />

products to the House. We are incredibly<br />

grateful to Jamie-Lee (pictured) Carrie<br />

and the team for the delicious daily<br />

salads, sandwiches, wraps, smoothies<br />

and readymade meals!<br />

5. Faced with a Christmas overstock of<br />

thousands of dollars’ worth of toys,<br />

Arrowtown’s Four Square co-owner<br />

Amanda Colmore-Williams generously<br />

donated them to our Family Room,<br />

Southland Hospital – her only rule was the<br />

toys were given to the children to keep!<br />

Whale Watch Kaikoura<br />

serves local whanau<br />

The fantastic team at Whale Watch Kaikoura have been making a difference to the lives of<br />

families who stay with us by being Gold Business Club supporters. While their main focus is<br />

letting people get up close with amazing mammals, Whale Watch Kaikoura general manager<br />

Kauahi Ngapora said because of their community’s distance to Christchurch hospital,<br />

supporting Ronald McDonald House South Island was their way to help local whanau.<br />

“We understand how hard it must be for our families to be away from home while caring for a<br />

seriously ill child, so our kaupapa has always been to lend a hand where we can.”<br />

Day at the<br />

Polo photo<br />

gallery<br />

A Day at The Polo in December 2015 was a<br />

roaring success with more than 550 people<br />

turning out to enjoy the day and raise just<br />

over $100,000 for Ronald McDonald House<br />

South Island.<br />

The Port Hills Polo Club was taken over<br />

by polo punters and ladies dressed to the<br />

nines on December 12, with beautiful food<br />

and drink available while watching the<br />

teams play. A record 58 tables of guests<br />

were filled on the day, the donation raffle<br />

envelopes and live auction proved to be<br />

very successful, as with the silent auction<br />

prizes that were on display.<br />

Our volunteers were a tremendous help on<br />

the day, as were all our guests who all gave<br />

so generously.<br />

Photo Credit: Forever Young Photography Brent Cairns


2016 Events for<br />

Ronald McDonald<br />

House South Island<br />

MAR<br />

» Saturday 19<br />

PlaceMakers Le Race<br />

Take on the challenge of the hills in this epic Christchurch<br />

to Akaroa cycle race! Raise funds for families who need<br />

support at the same time! Go to Give a Little to kick start<br />

your fundraising.<br />

Silver Linings <strong>#54</strong> | PAGE 7<br />

Jo’s hikoi to help<br />

our families<br />

Late last year, Jo Cross was inspired by the families she<br />

met while taking part in the Family Dinner Programme at<br />

the House with the team from her community gym Focus.<br />

“It was heart-breaking to meet some of the families, but I<br />

was inspired by the amazing facilities and how friendly and<br />

open the staff were.”<br />

This sparked Jo to decide<br />

to come up with a creative<br />

fundraising idea – to walk the<br />

length of New Zealand over<br />

42 weeks.<br />

“I wanted to do something<br />

that would challenge me<br />

physically and mentally, but<br />

then I thought why not raise<br />

money for a great cause at the<br />

same time.”<br />

It is a staggering 2081 kilometres from Cape Reinga to Bluff,<br />

and Jo is walking this same distance around Christchurch<br />

with her partner Michael, her family and friends whenever<br />

she can find time in her busy schedule. “It’s been a great<br />

way to get out and see more of Christchurch as well as<br />

catch up with people I haven’t seen for a long time.”<br />

Jo walks up to 5 kilometres every evening after work, and<br />

goes for longer treks in the weekends – aiming to walk<br />

a massive 50 kilometres a week. Although Jo is slightly<br />

nervous about walking during the cold winter months, she<br />

is determined to complete her challenge by 21 October.<br />

“The challenge helped me to become more confident in<br />

myself – my advice to anyone wanting to fundraise is to just<br />

go for it and believe in yourself.”<br />

To donate, visit Jo’s GiveaLittle page,<br />

wwww.givealittle.co.nz/jowalksnz<br />

The team at Ronald McDonald House value the generous<br />

support of people like Jo – they play a huge role in the<br />

difference we can make in the lives of families who stay<br />

with us. If you have a creative fundraising ideas like Jo,<br />

contact us today!<br />

ww.rmhsi.org.nz<br />

“I wanted to do<br />

something that<br />

would challenge<br />

me physically<br />

and mentally.”<br />

APR<br />

MAY<br />

JUN<br />

OCT<br />

DEC<br />

» Saturday 3 - Sunday 4<br />

Wheat and Wheels, Ashburton<br />

» Saturday 7<br />

M Factor Fashion Show, Transitional Cathedral,<br />

Christchurch 7pm<br />

Tickets from ticketmaster.co.nz. Adults $50, Students $25,<br />

Children $20.<br />

» Sunday 5<br />

Christchurch Marathon<br />

Get your stride on for Ronald McDonald House! Join<br />

RMHSI and become a fundraising hero.<br />

» Friday 10<br />

Ronald McDonald House National Annual Appeal<br />

Keep your eyes out on streets all over the South Island<br />

for our collectors. Even better, volunteer to be a street<br />

collector on the day!<br />

» Friday 24<br />

Christchurch Supper Club<br />

A must-do experience! Christchurch’s restaurants, unique<br />

venues and chefs collaborate with us to create a mystery<br />

dining experience. Book your table of 8 now to avoid<br />

missing out!<br />

Corporate - $1,500 + GST | Private - $1,300 + GST<br />

» Saturday 8<br />

Trucking Expo Wigram Airforce Museum<br />

» Thursday 13<br />

Queenstown Supper Club<br />

A must-do experience! The Lake District’s restaurants,<br />

unique venues and chefs collaborate with us to create a<br />

mystery dining experience. Book your table of 8 now to<br />

avoid missing out!<br />

Corporate - $1,200 + GST | Private - $1,000 + GST<br />

» Saturday 10<br />

A Day at the Polo, Port Hills Polo Club, Tai Tapu<br />

Watch heart-stopping polo matches while enjoying a twocourse<br />

meal and a complimentary drink in the summer<br />

setting of a garden marquee. This event sells out every year<br />

– be in quick to secure your table of 10 guests, $800 + GST


Silver Linings <strong>#54</strong> | PAGE 8<br />

New and renewed<br />

Room Sponsors<br />

Trusts and Grants<br />

» Our Families «<br />

Families from all over New Zealand stay at our facilities while their children receive hospital care for many different reasons.<br />

Sometimes they stay for just one or two nights, but some families can be with us for many months.<br />

Here are our family statistics from 2015.<br />

Our most common<br />

diagnoses are<br />

25 % Neonatal<br />

14 % Surgical<br />

Our families<br />

come from<br />

Canterbury 26 %<br />

Southland 19 %<br />

11 %<br />

9 %<br />

8 %<br />

6 %<br />

6 %<br />

Medical<br />

Oncology<br />

Antenatal<br />

Ear, Nose & Throat<br />

Gastrointestinal<br />

West Coast 19 %<br />

Otago 11 %<br />

Nelson 8 %<br />

Marlborough 4 %<br />

OUR PEOPLE:<br />

BOARD OF TRUSTEES<br />

Paul Deavoll (Chairman)<br />

Kipp Alexander (Treasurer)<br />

Bruce Davis<br />

Mark Abbot<br />

Rob Aitken<br />

Janetta Skiba<br />

Stuart Leck<br />

Susan Tansey<br />

Dave Whalley<br />

Jock Muir<br />

YOUNG PROFESSIONALS<br />

Julie Hands<br />

Gareth Reed<br />

CEO<br />

Matthew Mark<br />

HOUSE MANAGER<br />

Zucchi Leonard<br />

FRONT OF HOUSE /<br />

ADM<strong>IN</strong>ISTRATION<br />

Lynley Gibson<br />

Debbie Rusbridge<br />

Mary-Ann Roberts<br />

FUNDRAIS<strong>IN</strong>G AND<br />

MARKET<strong>IN</strong>G MANAGER<br />

Anna Galvan<br />

PARTNERSHIP AND<br />

EVENT MANAGER<br />

Meri Wynen<br />

MARKET<strong>IN</strong>G AND<br />

COMMUNICATIONS<br />

ADVISOR<br />

Phillipa Webb<br />

FUNDRAIS<strong>IN</strong>G<br />

COORD<strong>IN</strong>ATOR<br />

Sue Thomas<br />

ACCOUNTS<br />

ADM<strong>IN</strong>ISTRATOR<br />

Claire Ruru<br />

HOUSEKEEP<strong>IN</strong>G<br />

Kathy Oakes<br />

Irene Ernst<br />

AFTER HOURS<br />

SUPERVISOR<br />

Jan Nottingham<br />

FAMILY ROOM<br />

SUPERVISOR<br />

Helen Walker<br />

OUR<br />

SUPPORTERS:<br />

Designed by TimeZoneOne<br />

Ph: 03 366 5229<br />

www.timezoneone.com<br />

Printed by Spectrum Print<br />

Ph: 03 365 0946<br />

www.spectrumprint.co.nz<br />

Our sincere thanks to Pub Charity<br />

for their generous grant which<br />

funded the design and production<br />

of this newsletter.<br />

Ronald McDonald House South Island<br />

33 Cashel Street (Cnr Cashel and Montreal Streets) | Christchurch 8140<br />

03 377 3311 03 377 3414 admin@rmhsi.org.nz<br />

Ronald McDonald Family Room, Southland Hospital<br />

Kew Road | Invercargill 9840<br />

03 214 8910 familyroom@rmhsi.org.nz

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