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Feature Supporting from the ground up BUILDING REFORM STARTs with support S upporting the goals of the HSE Corporate Plan 2015–2017, the Health Service Reform Programme will enable and support the delivery system in moving to a more integrated care delivery model. All parts of the health service are dependent on each other. To provide a better service to users, the reform programme will support the overall health system in meeting the health needs of the nation in a connected way. How will it happen? THE Reform Programme is based on the objectives of the HSE Corporate Plan and informed and guided by the underpinning strategies, frameworks, policies and reports, developed by DoH, HIQA and HSE. Joe Ryan, Acting Head of System Reform Group, explained how the reform will take place across the health services. “It is vital that these policies, strategies and frameworks are implemented in a joined-up way, so that the health service can deliver the objectives of the Corporate Plan. It is only through a well-organised, programmatic approach, actively supporting and working with all of the service delivery and supporting organisations that the Reform Programme will deliver meaningful benefits for patients and service users,” said Mr Ryan. “To ensure that this happens, the System Reform Group (SRG) has been set up within the Office of the Director General. The SRG will support the entire health service in integrating, managing and coordinating the delivery of the Reform Programme. “Over the coming months, we will be looking to staff to work with us in developing the Reform Programme and to help share the learning from the many valuable and innovative projects across the health service which are helping improve patient outcomes, and achieving the delivery of a more personcentred, connected health and social care service. “The core, guiding principle of the Reform Programme is that all reforms need to be evidence based and clinically-led and must be focused on delivering real benefits to the patient or service user. “As we start to design and implement the programmes over the coming months and years, the Reform Programme teams will ensure that they engage with staff, patients, service users and all stakeholders as we work together to build a better health and social care service.” 36 | health matters | spring 2016
Improving the health and wellbeing of the nation through illness prevention and health promotion is key in having a sustainable health service. This requires us to work with other partners outside the health services, and to be able to listen to people’s needs to find out what services can best help them live to their potential. One in 17 people will develop a rare disease in their life. Keeping People healthy & well We have a responsibility to you to make the best use of our resources. Introducing efficiencies and innovations to improve the service we provide, whilst also supporting, developing and trusting our staff can help us direct resources to where they can have the most impact. providing safe, quality care when and where it’s needed using our resources in the best possible way Directing resources and funding towards identifying and meeting users’ needs, can help reduce the impact of increasing chronic diseases, can support older people to live longer at home, and can increase the number of people treated in the community, rather than in hospitals. This means ensuring that services are integrated and seamless across different parts of the health system. What will be changing? There are a number of programmes in place that will see the establishment of Community Healthcare Organisations (CHOs) responsible for delivering community-based care through local networks, the establishment of Hospital Groups (HGs), and the development of the National Ambulance Service. Clinical Programmes and Integrated Care Programmes are being developed to enable both Hospital Groups and Community Health Organisations to deliver better, more integrated care. The changes to how national functions are organised are being developed in parallel with the development of service delivery organisations as part of the National Centre Programme. All of these are being supported and enabled by interconnected development programmes within HR, eHEalth, <strong>Communication</strong>s, Health Business Services, and Quality & Safety. The Reform Programme is based on the objectives of the HSE Corporate Plan and informed and guided by the underpinning strategies, frameworks and reports, developed by DoH, HIQA and HSE. A snapshot of these is outlined below. If you would like to find out more about the Reform Programme, or have any feedback to offer, please contact the SRG via systemreform@hse.ie The HSE established the new National Rare Disease Office (NRDO), which was officially opened by the Minister for Health Leo Varadkar, in June 2015. It is based at the Mater Hospital, Eccles Street, Dublin. The role of the office is to provide current and reliable information about all rare diseases to people with rare diseases and their families as well as health care providers and researchers. The office is staffed by two information scientists who are supported by two consultants in both Genetic and Metabolic diseases. A rare disease (RD) is defined in Europe as a chronic or debilitating disease that affects less than five in 10,000 individuals. There are at least 6,000 rare disorders currently identified. Collectively, rare diseases directly affect an estimated 6pc of the population with at least 300,000 people affected in Ireland over their lifetime. The NRDO office provides Rare Disease information that includes: • Specific Disease information and Clinical Expertise • Social Care Supports • Patient Support Groups • Rare Disease Research and Clinical Trials in Ireland and across Europe • Rare Disease Policy information • Non-directive information on the availability of Rare Disease Specialists To make reliable rare disease information available within an Irish context, the office focuses on collecting information regarding services and projects that exist in Ireland, through Orphanet Ireland. Orphanet is an international information portal that hosts information on approximately 6,000 rare diseases through www.orpha.net. Information collected by Orphanet includes rare disease summaries, clinical expert centres, medical laboratories, patient organisations, research projects, registries, clinical trials and biobanks; as well as reporting on rare disease prevalence and orphan drugs. The office is keen to increase the number of Clinical Expert Centres in Ireland on Orphanet Ireland as a first step towards Irish participation in European Reference Networks (ERN’s). Services are available through its Freephone Information line, website and email. Please see www.rarediseases.ie If you require information or contact NRDO at rare.diseases@mater.ie or through the Rare Disease Freephone number 1800 240365 /01 8545065 Mon-Thurs 9.30am to 1.30pm. spring 2016 | health matters | 37
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Page 76 and 77: Lifestyle Six of the best FOR A HEA
Page 78 and 79: Lifestyle SKODA OCTAVIA VRS 230 EST

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