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2016 issue 11<br />

Going the<br />

extra mile,<br />

WHATEVER<br />

IT TAKES<br />

FITNESS and<br />

<strong>LIFESTYLE</strong><br />

REPORTS<br />

● Tackling cancer’s taboos<br />

● MEETING THE NEED IN THE NORTHWEST WITH<br />

MANCHESTER’S NEW HUB<br />

● The inspirational story behind Chai’s new best-seller


2016 issue 11<br />

Chai Cancer Care<br />

Together Magazine 2016<br />

Contents<br />

A Welcome Message<br />

When Chai was founded 26 years<br />

ago, no one could have imagined<br />

how cancer treatment, care and<br />

support would have changed. We are<br />

regularly bombarded with statistics<br />

about rates for diagnoses and<br />

survival but Chai has always focused<br />

on the person behind the number: the<br />

person we know, the person we love.<br />

Our services have been shaped by<br />

listening to each client’s needs and<br />

by understanding what the impact of<br />

a cancer diagnosis means for them<br />

and their loved ones on a daily basis.<br />

In this issue, you will witness this<br />

knowledge and experience in action:<br />

through palliative and therapeutic<br />

services, which address the effects<br />

of surgery and treatment; group and<br />

fitness activities that build confidence<br />

and health; expert advice we can<br />

all act on to improve our wellbeing;<br />

and counselling support that ensures<br />

clients have a place where they can<br />

ask the impossible questions and<br />

safely express their feelings.<br />

As we continue to respond to the<br />

increase in the number of people<br />

diagnosed with cancer, read how<br />

our expanded Manchester hub is<br />

answering the need for more support<br />

across the north-west. This is a<br />

massive boost to our ability to deliver<br />

services, which are now available at<br />

11 centres across the UK.<br />

We are constantly inspired by the<br />

community’s incredible commitment<br />

to Chai and I’m sure you will be<br />

uplifted and moved by the story of<br />

one family’s remarkable fundraising<br />

project. With no statutory funding,<br />

the delivery of our services depends<br />

on the loyalty and generosity of<br />

our much-appreciated donors,<br />

committees and supporters, and we<br />

count ourselves truly blessed.<br />

Thank you for continuing to keep<br />

Chai in your hearts.<br />

Louise Hager<br />

Chairman<br />

4 Ahead of the curve<br />

Cancer survival rates are increasing but so<br />

is the need for support. Chief Executive,<br />

Lisa Steele reports<br />

6 Chai’s northern powerhouse<br />

Answering an urgent need –<br />

our Manchester centre is<br />

expanding<br />

8 Circle of Light Dinner<br />

– Manchester<br />

Chai’s northern supporters turn out in<br />

force to show their commitment<br />

10 Cancer prevention,<br />

society and you<br />

Professor Peter Sasieni on<br />

simple lifestyle changes that<br />

can make a difference<br />

12 Let’s talk taboos<br />

There’s no need to stay silent about how<br />

cancer has affected you – we’re here<br />

with advice and understanding<br />

16 Shared benefits<br />

New group activities at<br />

the flagship centre include<br />

guided meditation, and<br />

knitting for the novice or<br />

the experienced<br />

17 Service spotlight:<br />

Pet therapy<br />

Discover who’s delivering<br />

unconditional love, on four legs<br />

18 A plateful of love<br />

How Colin Lehmann inspired<br />

his family to write a<br />

cookbook to support Chai<br />

19 Special section:<br />

25th anniversary<br />

Circle of Light Dinner<br />

– London<br />

The night we celebrated a landmark<br />

event in Chai’s history<br />

24 Lymphoma therapy update<br />

Genetic advances are revolutionising<br />

treatments for blood cancer.<br />

Dr Christopher McNamara<br />

26 Believing in better<br />

Chai benefactors Andrew and Orly<br />

Wolfson on why they like organisations<br />

that disrupt and redefine the status quo<br />

28 The F Factor<br />

Exercise is indisputably<br />

important for our health and<br />

wellbeing – Chai can help<br />

clients regain their fitness<br />

CHAI CANCER CARE<br />

Requests the pleasure of your company at<br />

The 2016 Natalie Shipman Memorial Lecture<br />

31 Service spotlight: manual<br />

lymphatic drainage update<br />

Treatment for lymphoedema is now more<br />

effective thanks to new equipment<br />

32 Chai Calendar<br />

Catch up on all the activities, talks and<br />

events that have helped Chai deliver<br />

its services<br />

35 Chai Challenges You!<br />

Sign up for an exhilarating 24-hour<br />

fundraising adventure in the Lake District<br />

36 You’re amazing!<br />

Thanks to everyone for the<br />

ingenious ways they raised<br />

money for Chai in<br />

the past 12 months<br />

39 How you make the<br />

difference/<br />

Ways to give<br />

How we supported three<br />

generations through a<br />

cancer diagnosis.<br />

Plus, easy ways to<br />

donate to Chai<br />

Going the<br />

extra mile,<br />

WHATEVER<br />

IT TAKES<br />

FITNESS and<br />

<strong>LIFESTYLE</strong><br />

REPORTS<br />

President<br />

The Rt. Hon. Lord Young of<br />

Graffham CH DL<br />

Founder Presidents<br />

Susan Shipman<br />

Frances Winegarten z’l<br />

Chairman<br />

Louise Hager<br />

Chief Executive<br />

Lisa Steele<br />

Trustees<br />

Louise Hager<br />

Jonathan Hodes<br />

Lady Kalms MBE<br />

Susan Shipman<br />

Dr Adrian Tookman<br />

Philip Weinstein<br />

Lord Young CH DL<br />

Honorary Patrons<br />

Maureen Lipman CBE<br />

Chief Rabbi Ephraim Mirvis<br />

Medical Patrons<br />

Prof Michael Baum<br />

Prof Michael Brada<br />

Dr Rachel Craig<br />

Prof Michael Douek<br />

Prof Andrew Eder<br />

Prof Rosalind Eeles<br />

Dr Ian Ellis<br />

Mr Daren Francis<br />

Miss Joanna Franks<br />

Prof Anthony Goldstone CBE<br />

Prof Daniel Hochhauser<br />

Prof Gordon Jayson<br />

Mr Amir Kaisary<br />

Dr David Landau<br />

Prof Jonathan Ledermann<br />

Dr Jane Neerkin<br />

Prof Gordon Rustin<br />

Prof Karol Sikora<br />

Prof Albert Singer<br />

Prof Stephen Spiro<br />

Dr Adrian Tookman<br />

Advisory Board<br />

Brian Brick<br />

Jo Coleman<br />

Alan Fell<br />

Jonathan Freedman<br />

Michael Glass<br />

Diane Kenwood<br />

Alexandra Maurice<br />

Robert Prevezer<br />

Marc Samuels<br />

Dr Adrian Tookman<br />

Understanding Cancer’s Complexity –<br />

its implications for the future of new<br />

drug treatments<br />

Keynote Speaker:<br />

Professor Charles Swanton,<br />

Professor of Cancer Medicine,<br />

University College London Hospitals<br />

and Cancer Institute and Senior Group<br />

Leader, The Francis Crick Institute<br />

Date: Tuesday 6th December 2016<br />

Doors open: 7pm<br />

Lecture begins: 7.30pm<br />

Chai Cancer Care<br />

142-146 Great North Way<br />

London NW4 1EH<br />

Admission free, by ticket only<br />

Please call 020 8202 2211 to<br />

reserve a place<br />

● Tackling cancer’s taboos<br />

● MEETING THE NEED IN THE NORTHWEST WITH<br />

MANCHESTER’S NEW HUB<br />

● The inspirational story behind Chai’s new best-seller<br />

This edition of together is generously<br />

sponsored by The Emmes Foundation<br />

Editor: Deborah Wald<br />

Design: Creative & Commercial<br />

© Chai Cancer Care 2016<br />

Cover: Chai’s MAMILs (middle-aged<br />

men in lycra) on the London to Paris<br />

bike ride. See p37 for the full story<br />

2 3<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Chai Cancer Care Together Magazine 2016<br />

AHEAD<br />

of the curve<br />

Back in the 1970s and for much<br />

of the 80s, too, the idea that a<br />

person would need help and support<br />

to get their life back on track after<br />

cancer treatment wasn’t commonplace.<br />

Little attention was paid to long-term<br />

quality of life issues for the person who<br />

survived. It was enough just to have got<br />

through it, never mind the continuing<br />

impact on the patient or their family.<br />

Earlier this year, Macmillan published<br />

Cancer: then and now, a report on<br />

diagnosis, treatment and aftercare from<br />

1970-2016. There was positive news<br />

within: people are now twice as likely<br />

to survive at least 10 years after being<br />

diagnosed with cancer as they were<br />

at the start of the 1970s. More than<br />

170,000 people diagnosed with cancer<br />

in the 70s and 80s are alive today.<br />

Currently, 2.5 million people are living<br />

with cancer in the UK and by 2030,<br />

that figure will reach at least 4 million.<br />

A complex transition<br />

These ‘good’ statistics, and the<br />

implications for the future of cancer<br />

care detailed in Macmillan’s report, are<br />

not news to Chai. We have long been<br />

aware that the combination of medical<br />

and wellbeing advances, and an ageing<br />

population mean that today cancer is<br />

often a chronic rather than a terminal<br />

condition. But, like Macmillan, we<br />

also frequently hear people talk of<br />

having ‘fallen off a cliff’ as they try<br />

to adjust to the complex emotional<br />

and physical after-effects of cancer<br />

treatment. For example, a person living<br />

with or beyond cancer may suffer<br />

other illnesses, such as diabetes, heart<br />

problems or kidney disease. They may<br />

experience nerve pain (neuropathy),<br />

fatigue, digestive and bowel problems,<br />

which result in enduring day-to-day life<br />

changes. Even when cancer leaves no<br />

permanent physical changes, a person<br />

may feel differently about their body.<br />

Chai helps clients deal with the impact<br />

of the many physical and psychological<br />

changes with therapeutic treatments,<br />

nutritional advice, physiotherapy,<br />

fitness and body image support as well<br />

as through our Medical Outpatient<br />

Rehabilitation and Palliative Care and<br />

Clinic, which opened in 2011.<br />

How we approach the care of cancer patients<br />

and their families is changing dramatically.<br />

As we understand more about the impact of<br />

a diagnosis, Chai’s leads the way.<br />

By Chief Executive Lisa Steele<br />

“Cancer changes<br />

relationship dynamics.<br />

Our services address<br />

the physical and<br />

psychological impact<br />

of these changes”<br />

The shift towards cancer survival<br />

does not however mean we are any<br />

less focused on supporting those who<br />

are facing a less positive outcome,<br />

nor less aware of the family members<br />

whose lives are also deeply affected –<br />

in fact 40% of our clients are not the<br />

patient. Cancer changes relationship<br />

dynamics as roles are reversed, familiar<br />

activities are put on hold and economic<br />

pressures build. Our services address<br />

the impact of these changes. We<br />

provide individual, couples and family<br />

counselling, as well as art and music<br />

therapy for those who find it difficult<br />

to articulate their feelings in a usual<br />

counselling setting. A specialist advisor<br />

can help clients with form-filling in<br />

order to claim benefits, including those<br />

that are non-means tested. Chai can<br />

also refer clients to agencies that offer<br />

practical support or volunteers to help<br />

ease everyday pressures: cooking,<br />

keeping on top of bills, shopping,<br />

picking the children up from school…<br />

And if there is a bereavement, Chai<br />

continues to provide services for as<br />

long as they are needed.<br />

In its 26 years, since Chai began<br />

operating as a telephone information<br />

and helpline service, it has pioneered<br />

innovative responses. Just one example<br />

is our ‘Chai in Schools’ programme,<br />

which brings counsellors and therapists<br />

into the school environment to support<br />

pupils who are affected by a diagnosis<br />

in their family. It also gives teachers<br />

essential training in how best to deal<br />

with and respond to the challenges<br />

these youngsters are experiencing.<br />

We foresee pressure on this service<br />

increasing as, sadly, more young<br />

parents are diagnosed. Just one day<br />

recently saw 10 children from three<br />

families register with us.<br />

The expansion of our premises in<br />

Manchester could not be more timely<br />

and enables us to significantly add to<br />

the range and number of services that<br />

will be of benefit to clients across the<br />

north-west region. At the same time,<br />

our Home Support Service continues<br />

to bring vital services to those who are<br />

too unwell to come to us or live far<br />

from a satellite.<br />

Predicting the need<br />

Chai has always strived to stay ahead<br />

of the curve and the Macmillan report<br />

highlights services we already provide<br />

as vital to address the challenges of the<br />

“Chai now provides<br />

upwards of 50 different<br />

services, across a<br />

nationwide network of<br />

satellites and hubs”<br />

future. For though the the years ahead<br />

contain many positive predictions, our<br />

infographic, below, illustrates the surge<br />

in need going forward. By 2020, we are<br />

looking at fulfilling upwards of 20,000<br />

NUMBER OF CLIENTS AND APPOINTMENTS OVER THE YEARS<br />

client appointments – with all that<br />

implies for the running costs we will<br />

have to find.<br />

Whatever the developments in cancer<br />

care, the one constant that does not<br />

change is the impact a diagnosis has on<br />

the patient and their family. We need<br />

to reach more people and let them<br />

know about Chai’s services. We need<br />

to overcome any remaining taboos<br />

about seeking support – it takes just<br />

one phone call or email to access our<br />

multi-levelled support. To meet our<br />

clients’ many and diverse needs, Chai<br />

now provides upwards of 50 different<br />

services, across a nationwide network<br />

of care hubs and satellites.<br />

I am hugely conscious of the task Chai<br />

has up ahead and immensely proud of<br />

the teams of counsellors and therapists,<br />

client services managers, volunteers<br />

and medical advisors who are dedicated<br />

to delivering these services with such<br />

empathy, care and professionalism. ■<br />

Just 10 years ago, Chai was supporting almost 400 clients. That figure will exceed 4,000 in a little over three years.<br />

The increase in diagnoses, along with the more complex care needs of clients means<br />

an inexorable rise in demand for services, with appointments reaching almost 20,000 by 2020.<br />

2006 2011 2015 2020<br />

Number of active clients to the nearest 100 Number of appointments to the nearest 100<br />

4 5<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Chai Cancer Care<br />

THERAPY<br />

ROOM<br />

FAMILY<br />

Chai’s northern<br />

POWERHOUSE<br />

With an expansion<br />

of its presence in<br />

Manchester, Chai<br />

can now give clients<br />

across the north-west<br />

an unparalleled level<br />

of expert support and<br />

care. We take a look<br />

at the exciting new<br />

development<br />

Statistics can be impersonal things.<br />

When one hears the number of people<br />

diagnosed with cancer is rising – more<br />

than 1000 every day by the end of 2016*<br />

– it doesn’t always mean anything…<br />

until you, a member of your family, or<br />

a friend becomes one of those statistics.<br />

The rise in diagnoses is sharply reflected<br />

in the need for Chai’s services in the<br />

north-west. Since its first satellite in<br />

North Manchester in 2009, three more<br />

have launched in order to keep pace with<br />

demand: in South Manchester in 2010,<br />

Liverpool in 2012 and Leeds in 2013.<br />

Based in just three rooms in the<br />

Heathlands Village in North Manchester,<br />

Building for the future in Manchester: l-r,<br />

Sharie Morrison, office administrator; Johanne Harrison,<br />

client service manager, Lewis Harris, physiotherapist<br />

and supplemented by home visits, Chai<br />

has achieved big and small miracles and<br />

now supports more than 340 clients across<br />

the region. But that doesn’t tell the full<br />

story. Chai’s impact ripples far wider<br />

than this core number to a much bigger<br />

circle of friends and family. Manchester<br />

is the fastest growing community outside<br />

London and the need for Chai’s services<br />

is increasing every day. The recent<br />

refurbishment of the existing site has<br />

afforded it the chance to fulfil its ambition<br />

to open a purpose-built centre right where<br />

it is needed most. It sees a dramatic<br />

increase in footage to half an entire floor<br />

and gives Chai the space to provide a<br />

broader scope of services to many more<br />

*Macmillan, 2015<br />

people. The mutual respect that exists<br />

between Chai and its landlords,<br />

The Fed (The Federation of Jewish<br />

Services), ensures both organisations<br />

retain their distinct identities,<br />

independence and most importantly,<br />

the confidence of clients using Chai.<br />

Chief Executive Lisa Steele explains<br />

the thinking behind the expansion.<br />

‘Chai’s reputation for providing a<br />

highly professional service delivered<br />

from the heart now has the potential<br />

to do much more. This will be a place<br />

where clients can come to escape the<br />

world of medical appointments and<br />

treatment, where they will feel safe<br />

and supported in a calm and soothing<br />

environment, and where everything<br />

is focused on their needs.’ Clients can<br />

attend for a single appointment, of<br />

course, but may take the opportunity to<br />

stay on and benefit from other services<br />

available: a counselling session,<br />

therapeutic treatment or group activity,<br />

for example, music or art workshops.<br />

Those living further afield in south<br />

Manchester, Liverpool and Leeds may<br />

FACILITIES AT CHAI’S<br />

MANCHESTER<br />

CENTRE WILL NOW<br />

INCLUDE:<br />

• 3 counselling rooms<br />

• 3 therapy rooms<br />

• A family counselling room<br />

• Fitness suite<br />

• Therapy kitchen<br />

• Children’s play/art/music<br />

therapy room<br />

• Group activities room<br />

We’re creating<br />

a place where<br />

clients can come<br />

to escape the<br />

world of medical<br />

appointments<br />

and treatment”<br />

also decide to book appointments on<br />

days when other scheduled activities<br />

are taking place. (Volunteers provide<br />

transport for anyone needing it.)<br />

‘We know from feedback at the<br />

London flagship centre that Chai<br />

can be a pivot for the person’s week,<br />

providing a positive focus,’ says Lisa.<br />

‘It’s where they can be themselves<br />

with no pretence. Meeting, sharing<br />

experiences and information, and<br />

even laughing with others who have<br />

that bond of understanding can be<br />

comforting and help to reduce the<br />

sense of isolation that one can feel.’<br />

Many of the services that will roll out<br />

are in response to client requests. So<br />

as well as more rooms for individual<br />

and family counselling, there will<br />

be space for therapeutic groups<br />

including BRCA, Breast Buddies,<br />

Prostate, bereavement and carers<br />

support. Physical activities such as<br />

gentle movement, Pilates, yoga, and a<br />

fully-equipped gym, will be offered.<br />

To address the dramatic rise in young<br />

parents being diagnosed with cancer,<br />

priority has been given to an area<br />

for creative therapies – art, music,<br />

play – which are so vital in helping<br />

children and young adults work<br />

through their feelings. While their<br />

child is in their session, the parent can<br />

have counselling, a complementary<br />

therapy, or simply relax. And to<br />

help clients adjust to changed eating<br />

patterns, a nutritionist will host oneto-one<br />

and group nutritional advice<br />

sessions in a new therapy kitchen.<br />

Of course, the realisation of this<br />

‘northern powerhouse of care’ comes<br />

at a price – the running costs are<br />

£450,000 a year – all dependent on<br />

donations. The Manchester ‘Circle of<br />

Light’ dinner held in June went some<br />

way to covering the first year’s costs<br />

(see p8 for the evening’s highlights).<br />

Johanne Harrison, who has been<br />

Manchester’s client services manager<br />

for six years says, ‘Our hope is that<br />

our new presence will encourage<br />

more people to seek us out. We<br />

want to raise awareness and word<br />

of mouth is very successful in doing<br />

that. As a result of the Manchester<br />

dinner in June, more clients have<br />

come forward and have started using<br />

our services. This is an exciting move<br />

for Chai – and it’s a privilege to be<br />

able to make a bigger difference to<br />

the lives of all those who need us.’ ■<br />

It’s a privilege<br />

to be able to<br />

make a bigger<br />

difference to the<br />

lives of all those<br />

who need us”<br />

FITNESS SUITE<br />

6 7<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Chai Cancer Care Together Magazine 2016<br />

Michelle & David Haffner<br />

THE Manchester<br />

CIRCLE OF LIGHT DINNER<br />

Michael & Jacky Edelson<br />

David & Julia Eventhall, Robert & Sally Levy<br />

Sally &<br />

Michael Cohen<br />

Andrew &<br />

Michelle Kingsley<br />

Marion &<br />

Alan Dobkin<br />

Jacky & Anthony Lyons<br />

Pamela & Brian Samuels<br />

Carol, Maxine & Stuart Marks<br />

David &<br />

Michelle Rothburn<br />

Richard &<br />

Michelle Deacon<br />

Karen Phillips<br />

& Lynne Attias<br />

The reason was the launch of the new<br />

Chai Cancer Care centre in North<br />

Manchester: the occasion in June, a<br />

fundraising dinner, only the second in<br />

Manchester in five years. Speaking to<br />

470 guests at the Hilton, Deansgate,<br />

Louise Hager recalled that when Chai<br />

answered the community’s call for its<br />

cancer support services in 2009, there<br />

were just seven clients. Currently, more<br />

than 340 cancer patients and their loved<br />

ones are benefitting from their services<br />

and with satellites in south Manchester,<br />

Leeds and Liverpool, it continues to<br />

respond to the region’s growing need.<br />

In his welcome speech, Stuart Marks<br />

described Chai as the ‘northern<br />

powerhouse of cancer care,’ adding,<br />

‘We need to ensure that we give all those<br />

affected by a cancer diagnosis and their<br />

families a place to go here in our city<br />

that will match everything that gives<br />

Chai in London its global reputation<br />

as the leader in supportive cancer care.’<br />

The new hub will provide expanded<br />

and innovative services to deal with<br />

long-term complexities, and offer vital<br />

support to the families of young parents<br />

diagnosed with cancer.<br />

Thanking the table hosts for achieving a<br />

capacity-filled room, Louise reminded<br />

guests that Chai’s services are funded<br />

entirely by donations and paid tribute to<br />

the generosity, enthusiasm and support<br />

of Gabrielle and Mark Adlestone, and<br />

The Fed, in helping this vital project<br />

come to fruition.<br />

After watching a hugely moving film<br />

testimony from two Manchester-born<br />

Chai clients, Elliot and Tara, guests<br />

pledged an astonishing £275,000<br />

towards the centre’s £450,000 annual<br />

running costs. Two former Chai<br />

Manchester clients, Jane Mechlowitz<br />

and Michal Mocton gave the vote<br />

of thanks and guests enjoyed some<br />

dazzling big band entertainment. ■<br />

Amanda Adshead, Michal Mocton,<br />

Jane Mechlowitz, Lisa Steele, LisaCohen<br />

-Binder, Louise Hager, Clare Spieler<br />

Daliah and David Mechlowitz<br />

Reba & Bernard Tury<br />

Tania &<br />

Leonard Seitler<br />

Sue & Neville Johnson<br />

Gilly & Max Moryoussef<br />

Susan & Andrew Terry<br />

Danny & Noemie Lopian<br />

Eli & Estee Pine<br />

Geoff &<br />

Marcelle Kuhillow<br />

Andrew Sciama, Phil Hodari,<br />

Robert & Lecia Simon Andrew & Karen Chaytow Jack Shalom, Anthony Davis<br />

Mark & Gabrielle Adlestone<br />

8 9<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

Photography: Rob Clayton


Chai Cancer Care Together Magazine 2016<br />

Cancer prevention,<br />

society and you<br />

Unless society takes some radical measures, 50% of us<br />

will get cancer. Even for a ‘glass half full’ person, that’s<br />

a sobering statistic. But it’s within our power to change<br />

the odds, says Professor Peter Sasieni<br />

Peter Sasieni is Professor<br />

of Biostatistics and<br />

Cancer Epidemiology<br />

in the Wolfson Institute<br />

of Preventive Medicine<br />

at Queen Mary<br />

University of London.<br />

He is Director of the Cancer Research UK<br />

funded Cancer Prevention Trials Unit,<br />

and Vice Director of the Department of<br />

Health’s Policy Research Unit in Cancer<br />

Awareness, Screening and Early Diagnosis.<br />

Professor Sasieni’s research encompasses<br />

both cancer screening and prevention (with<br />

particular interest in cervical cancer), as<br />

well as the design and analysis of clinical<br />

trials. He has contributed to more than 200<br />

scientific publications and sits on a number<br />

of advisory and grant award committees.<br />

Theoretically, we could prevent<br />

nearly two-thirds of all cancers. A<br />

realistic challenge would be to prevent<br />

one-third by 2035 – that would mean<br />

over 100,000 fewer people getting<br />

cancer each year in the UK.<br />

Cancer prevention takes place at three<br />

levels: society needs to change the<br />

social and economic factors that affect<br />

lifestyles; individuals need to adopt<br />

healthy behaviours; and safe clinical<br />

interventions need to be offered to<br />

those at greatest risk. Many people<br />

assume that we can only prevent<br />

cancers that are linked to modifiable<br />

behavioural and environmental factors,<br />

but there is much that can be done<br />

medically, even for those with a genetic<br />

predisposition to cancer.<br />

HELP FOR SMOKERS<br />

Tobacco smoking is the most<br />

important risk factor for cancer,<br />

responsible for more than 60,000 UK<br />

cancers each year (19.4% of all<br />

cancers). It is not enough to simply tell<br />

smokers they should stop. Society<br />

needs to help prevent teenagers from<br />

starting and to offer support to adults<br />

to quit. Increased pricing (through<br />

taxation) has been extremely effective<br />

over the years in reducing<br />

consumption. Banning advertising,<br />

particularly those which are aimed<br />

at children, is both morally right<br />

and an effective measure. Outlawing<br />

smoking in enclosed public spaces<br />

and standardised tobacco packaging<br />

legislation also play a role in changing<br />

attitudes so that smoking is no longer<br />

viewed as socially acceptable.<br />

Tobacco control also means supporting<br />

individuals who want to quit. There<br />

have been great advances in both the<br />

advice and psychological strategies<br />

and the pharmacological options<br />

(e.g. nicotine patches) offered by<br />

stop-smoking services and these<br />

significantly increase the likelihood of<br />

quitting. Electronic or e-cigarettes offer<br />

a revolutionary approach that may<br />

have a dramatic impact on cancer risk.<br />

Although controversial, e-cigarettes are<br />

undoubtedly much safer than tobacco<br />

smoking. Many smokers find it easier<br />

to switch to vaping (e-cigarettes)<br />

than quitting, and the introduction<br />

of e-cigarettes has not led to more<br />

children lighting up. E-cigarettes could<br />

have a major role to play in preventing<br />

many of the 60,000 cancers currently<br />

caused by smoking.<br />

HEALTHY – THE<br />

DEFAULT CHOICE<br />

Other behavioural factors<br />

important in the prevention<br />

of cancer include poor diet<br />

(accounting for 9.4% of all cancers<br />

in the UK); being overweight and<br />

obesity (5.5%); alcohol (4.0%)<br />

and lack of exercise (1.0%). As<br />

with smoking, more needs to be<br />

done, both by society to encourage<br />

individuals to default to healthy<br />

choices and by each person to<br />

take responsibility for their own<br />

behaviours. Schools can provide<br />

children with healthy food and<br />

make it difficult to buy unhealthy<br />

options. Similarly, more should<br />

be done in our communities to<br />

consider what we eat and drink at<br />

social occasions. The new sugar<br />

tax to be introduced in the UK is<br />

welcome, but it will only work if<br />

there is a price differential between<br />

taxed and un-taxed products.<br />

“More needs to be<br />

done to encourage<br />

individuals to<br />

default to healthy<br />

choices”<br />

In case you are wondering<br />

what constitutes a healthy diet<br />

(for cancer prevention), you<br />

should have at least five portions<br />

of vegetables and fruit each<br />

day; avoid red and particularly<br />

processed meat; eat plenty of<br />

fibre; and reduce your salt intake.<br />

If you don’t already exercise,<br />

taking half an hour of moderate<br />

exercise at least five times per<br />

week could reduce your risk<br />

of bowel cancer by 25%.<br />

VACCINATION GAINS<br />

Clinical interventions to prevent<br />

cancer may either be offered to<br />

the whole population or targeted<br />

at particular high-risk groups.<br />

The most successful population<br />

intervention is the human<br />

papillomavirus (HPV)<br />

vaccination. HPV is an extremely<br />

common infection that<br />

occasionally causes cervical<br />

cancer (and certain other cancers<br />

too). Vaccination against the two<br />

most important cancer-causing<br />

strains of HPV is already offered<br />

to 12- to13-year-old girls and a<br />

new vaccine that prevents an<br />

additional five strains of the virus<br />

has been licensed. These safe,<br />

effective, vaccines could almost<br />

eliminate cancers of the cervix,<br />

anus, and tonsils. It is unfortunate<br />

that in some circles there is poor<br />

uptake of the vaccine and this<br />

could lead to avoidable cases of<br />

cervical cancer in the future.<br />

SIMPLE AND<br />

SURGICAL OPTIONS<br />

Aspirin could have a substantial<br />

impact on preventing cancer.<br />

Someone aged 50 could reduce<br />

their risk of cancer by about 5%<br />

by taking a mini-aspirin daily<br />

for 15, years with minimal sideeffects.<br />

Continuing after the age<br />

of 65 might prevent up to 9%<br />

of cancers, though it would be<br />

associated with a greater risk of<br />

serious side-effects. Other drugs<br />

(e.g. tamoxifen and aromatase<br />

inhibitors) reduce the risk of<br />

breast cancer by 30-50%, but<br />

are associated with side-effects<br />

so are only recommended for<br />

women at elevated risk.<br />

Finally, surgery can be used<br />

to prevent cancer in those at<br />

extreme risk. Following the<br />

experience of Angelina Jolie,<br />

there is greater awareness of<br />

the use of mastectomy (breast<br />

removal) and oophorectomy<br />

(ovary removal) in women<br />

with genetic mutations (such as<br />

BRCA1 and BRCA2 mutations<br />

which are more common in<br />

Ashkenazi women) for breast<br />

and ovarian cancer. Major<br />

surgery is also used in individuals<br />

with a certain genetic condition<br />

that puts them at extremely<br />

high risk of bowel cancer. The<br />

more common use of ‘surgery’<br />

is to remove pre-cancers found<br />

on either cervical or bowel<br />

screening. In both cases this<br />

can usually be done as an<br />

out-patient procedure without<br />

a general anaesthetic and is<br />

extremely effective. Cervical<br />

screening has been attributed<br />

with preventing 80% of cervical<br />

cancers in regular attendees and<br />

the bowel scope screening could<br />

have a similarly dramatic impact<br />

on cancers in the lower part of<br />

the bowel. ■<br />

The next leap<br />

forward: take<br />

responsibility<br />

• Eat healthily<br />

and undertake<br />

moderate<br />

exercise several<br />

times a week<br />

• Try to maintain<br />

a healthy weight<br />

• If you smoke, try<br />

vaping instead<br />

• Encourage your<br />

daughters to<br />

get vaccinated<br />

against HPV<br />

• Take advantage<br />

of bowel scope<br />

and cervical<br />

screening<br />

• Seek professional<br />

advice if you<br />

have a strong<br />

family history<br />

of cancer<br />

• Discuss taking<br />

aspirin with<br />

your GP<br />

10 11<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Chai Cancer Care<br />

Together Magazine 2016<br />

While cancer may no<br />

longer be life limiting, it<br />

can be life changing. The<br />

side effects of cancer can<br />

be difficult to cope with, let<br />

alone talk about. Both the<br />

patient and their family<br />

can break the silence, with<br />

support from Chai<br />

LET’S<br />

There are a lot of elephants in the room<br />

for a person with a cancer diagnosis,<br />

as well as for their loved ones. Sometimes<br />

a subject is so sensitive it is very difficult<br />

to raise. Or it may seem trivial compared<br />

to cancer itself. Family members may feel<br />

guilty – and stay silent, therefore – about<br />

their own anxieties. After all, they’re not<br />

the one with cancer.<br />

‘Patients mostly want to be asked about their<br />

possible concerns rather than bring them up<br />

themselves,’ says Dr Rachel Craig, Consultant<br />

in Palliative Care Medicine who runs the<br />

Chai Medical Outpatient Rehabilitation and<br />

Palliative Care Service in collaboration with<br />

the Royal Free Hospital and Marie Curie<br />

Hospice. Many of the taboos for both men<br />

and women relate to body image, caused<br />

by the physical and psychological impact of<br />

surgery and treatment. ‘These changes can<br />

make a person feel a great sense of loss and<br />

disorientation as their notion of themselves<br />

alters,’ explains Rachel. ‘It’s important to<br />

ask questions and to accept how difficult it<br />

is for the patient. Living with cancer, or after<br />

treatment, is not the same as living prior to a<br />

diagnosis and people need help to find their<br />

“new normality”. Chai offers a space for these<br />

taboo conversations to take place.’<br />

BREAST SURGERY AND<br />

MASTECTOMY<br />

taboos<br />

The reasons for breast surgery include not<br />

only being diagnosed with cancer, but also<br />

preventative measures against it occurring.<br />

‘No woman wants to hear that she needs<br />

breast surgery. It can make you feel you<br />

are losing part of your womanhood,’<br />

acknowledges Jo Franks, consultant breast<br />

and oncoplastic surgeon and Chai medical<br />

patron. ‘You need time to take stock but<br />

the diagnosis, treatment and post-surgery<br />

decisions all seem to come at once.’<br />

12 13<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

TALK<br />

HAIR LOSS<br />

Not all chemotherapy treatment (or<br />

radiotherapy) causes hair loss but where it<br />

does, the sight of excessive amounts of<br />

hair on the pillow or in the shower can be<br />

shocking, sometimes more so than the<br />

cancer, surgery or treatment. ‘Our<br />

confidence is closely linked to how we<br />

look. Hair loss is a very visual sign of<br />

having cancer and compounds how<br />

emotionally exposed one feels,’ says Chai<br />

hairdressing consultant Simon Barker from<br />

Hair on Broadway in North West London.<br />

He sees clients at the Image Resource<br />

Room at Hendon.<br />

The patient’s own chemotherapy nurse,<br />

along with a Chai counsellor and image<br />

consultant, can give clients psychological<br />

support and practical ways to deal with<br />

hair loss. One option is to cut the hair very<br />

short before treatment, or to wear a soft<br />

hat in bed to collect falling hair. Telling<br />

children what’s happening prepares them<br />

for the changes, too, and lessens their<br />

bewilderment. ‘Many women will opt<br />

for a wig and/or scarves during hair loss,<br />

but everyone’s response is personal,’ says<br />

Simon. ‘One client shaved it all off and<br />

wore nothing. Her attitude was, “I’m going<br />

to decide whether and when I have hair or<br />

not.” It gave her back some control.’<br />

Nursing specialists within an oncology<br />

team help the patient to understand<br />

the process of surgery and to navigate<br />

decisions about reconstructive<br />

surgery. This includes seeing photos<br />

of a mastectomy with and without<br />

reconstruction, handling implants and<br />

considering using their own body tissue<br />

(taken from the lower abdomen, back or<br />

‘love handles’) for the reconstruction.<br />

Jo feels there are psychological<br />

advantages to reconstructing the breast<br />

at the time of surgery ‘because it offers<br />

continuity – you go to sleep with your<br />

breast and you wake up with a new<br />

one.’ For some women, however, this is<br />

not always appropriate or possible, and<br />

their adjustment after surgery will take a<br />

different path. Less often acknowledged<br />

is breast cancer in men who are also<br />

confronted with the consequences of<br />

an altered body. Chai supports every<br />

client through the changes they are<br />

experiencing: relationship counselling<br />

helps individuals and couples discuss<br />

body image, emotional and intimacy<br />

issues; there is a bra-fitting service;<br />

manual lymphatic drainage can help<br />

manage the impact of lymphoedema<br />

(swelling) after surgery; the BRCA<br />

Support Group gives those at high<br />

risk of developing breast cancer an<br />

opportunity to discuss their dilemmas;<br />

and Breast Buddies lets clients at any<br />

stage of breast cancer share their feelings<br />

and experiences in a counsellor-led group.<br />

Living with<br />

cancer, or<br />

after treatment<br />

is not the same<br />

as living prior to<br />

a diagnosis and<br />

people need help<br />

to find their ‘new<br />

normality’”


Chai Cancer Care Together Magazine 2016<br />

STOMAS<br />

Some types of cancer surgery – located<br />

low in the bowel or in the rectum – may<br />

result in the need for a stoma. This is a<br />

surgical opening, attached to an external<br />

bag that collects faecal and/or urinary<br />

matter. The bag is fitted immediately<br />

post-surgery and the patient empties it<br />

regularly, so it’s a fast learning curve. ‘It’s<br />

not easy discussing the implications of a<br />

stoma so every colorectal cancer team has<br />

specialist nurses who give practical<br />

support to help patients overcome their<br />

problems,’ says Daren Francis, Consultant<br />

General and Colorectal Surgeon and<br />

Chai medical patron.<br />

Patient fears might include whether the<br />

bag is showing under clothes, taking<br />

part in sport, intercourse, dietary issues<br />

and whether it will leak or smell [many<br />

products protect against this]. Stoma<br />

nurse Sharon Ferdenzi has more than 30<br />

years’ experience in the colorectal nursing<br />

field: ‘Especially for those who didn’t feel<br />

ill, or who are young, it can be harder to<br />

accept, even though the bag has saved<br />

their life. It is challenging. But – and this<br />

is the crux – there is nothing a stoma is<br />

going to stop you from doing. Getting<br />

back to normal life activities is important.<br />

I encourage people to not put their life on<br />

hold for too long,’ says Sharon.<br />

At whatever point a client chooses to<br />

come, Chai is able to provide practical<br />

advice to deal with the physical<br />

The more<br />

people can<br />

have honest<br />

conversations, the<br />

more they will get<br />

the advice they<br />

need”<br />

consequences of a stoma, as well as<br />

counselling support, which allows<br />

clients to express their feelings and<br />

find new ways to manage their altered<br />

circumstances.<br />

INCONTINENCE<br />

When cancer treatment affects the pelvic<br />

area, incontinence may be a permanent<br />

after effect. ‘The bladder is a muscle and<br />

its role can be disturbed by surgery and<br />

radiotherapy. Nerve endings may be<br />

damaged, compromising muscle power<br />

while internal scar tissue can affect the<br />

function of the bowel, colon and rectum,’<br />

explains Chai’s Gonda Lewis, who with<br />

Graham Silas, provides physiotherapy<br />

and incontinence expertise for both<br />

female and male clients.<br />

The trauma of incontinence can cause<br />

acute social and relationship issues,<br />

sometimes inhibiting sexual function, too.<br />

Worrying about needing the toilet can<br />

be overwhelming. The non-judgemental<br />

environment of Chai encourages people<br />

to seek help for their situation. ‘The more<br />

people can have honest conversations,<br />

and not shy away, the more they will<br />

get the advice they need,’ says Gonda.<br />

While this is generally easier for women,<br />

it comes as a huge relief for men to be<br />

able to talk in confidence to someone.<br />

‘Men are often unaware they have a<br />

pelvic floor,’ adds Graham. ‘I help them<br />

identify these muscles to start engaging<br />

them.’ Psychological techniques, such as<br />

relaxation and distraction are taught, too.<br />

‘We aim to find solutions that fit into a<br />

person’s lifestyle, so they feel physically<br />

comfortable to carry on with their lives.’<br />

INTIMACY<br />

‘Any kind of cancer, and not just that<br />

in the prostate, testicles, breast or ovaries,<br />

can have an enormous psychological<br />

effect on sexual function,’ says Charlotte<br />

Simpson, couples counsellor and<br />

psychosexual therapist at Chai. ‘We need<br />

to acknowledge the losses taking place<br />

and how people may feel vulnerable in<br />

their relationships. For instance, to have<br />

been the breadwinner in the family and<br />

now be the sick person is a significant<br />

shift in roles. There may be guilt over a<br />

diminished physical relationship; fear<br />

of causing pain – even from a simple<br />

hug; and distress at the impact of<br />

these changes.’<br />

Uptake of this specialised service at Chai<br />

is evidence of just how important the<br />

issue is. ‘When you give people a forum<br />

to talk about these things, the relief is<br />

palpable and anxiety is lifted. Working<br />

with a couple can help resolve relationship<br />

worries and discuss new ways to build<br />

intimacy. By starting to accept what has<br />

happened, people are able to feel positive<br />

about their body again,’ says Charlotte.<br />

She can also direct clients toward practical<br />

solutions. For instance, GPs can prescribe<br />

medication and aids for men and women<br />

to manage the problems they encounter<br />

after surgery and treatment.<br />

PROSTATE CANCER<br />

Life after surgery and treatment<br />

for prostate cancer leaves many<br />

men contending with a host of life<br />

changes, among them sexual function,<br />

incontinence and infertility. These are<br />

challenging issues that can cause deep<br />

anguish, fear and embarrassment, often<br />

compounded by their reluctance to open<br />

up about such sensitive topics. Chai<br />

counsellors can help clients express their<br />

feelings and aid candid conversations<br />

with partners. ‘It’s stifling to hold back<br />

these worries,’ says Charlotte Simpson.<br />

‘Talking allows a positive shift to<br />

happen.’ Alongside, building up physical<br />

confidence through physiotherapy and<br />

exercise sessions or dietary advice, can<br />

be a powerful way to re-establish and<br />

improve a person’s self-image.<br />

DEATH<br />

People might think about mortality in<br />

abstract terms, but grappling with the<br />

real prospect of death is quite different.<br />

‘Counsellors at Chai can facilitate these<br />

very sensitive and painful conversations,<br />

whether for an individual or between<br />

loved ones,’ says Chai’s Chief Executive<br />

Lisa Steele. ‘Not everyone wants to talk,<br />

however, and we are always guided<br />

by the client’s wishes. Even if death is<br />

not imminent, say, when a person is in<br />

remission, it is often in the background,’<br />

she continues. ‘It can feel like there is a<br />

maze of “unspokens” going on in the<br />

head of each person affected. These fears<br />

and questions can be eased with expert<br />

support.’ In addition, some people may<br />

have religious or spiritual concerns. Chai<br />

can put them in touch with Rabbis who<br />

are particularly sensitive to clients’ needs<br />

at this difficult time.<br />

It is particularly tough when young<br />

children are affected, although they are<br />

It can feel<br />

like there<br />

is a maze of<br />

‘unspokens’ going<br />

on the head of<br />

each person<br />

affected”<br />

often more straightforward than adults,<br />

says Lisa. ‘They’ll ask, “Is Mummy/<br />

Daddy going to die?” We advise parents<br />

to tell their children at an appropriate<br />

time, in language they can understand.<br />

It can free the parent to view events in a<br />

more open way.’ A response to talking<br />

might be to create a ‘memory box’ of<br />

photos, objects, recordings and letters:<br />

precious keepsakes for the child’s future.<br />

‘It takes courage,’ says Lisa, ‘but within<br />

a safe framework, this becomes a positive<br />

act for everyone involved.’<br />

Chai’s support extends across the age<br />

groups with counselling for families,<br />

adults and teenagers, and art and music<br />

therapy for children. ‘Giving space for the<br />

expression of feelings is cathartic,’ says<br />

Lisa. ‘A person can share their wishes and<br />

hopes for those who remain, so comfort<br />

and reassurance can be shared between<br />

them all. However painful this is to do at<br />

the time, many people gain peace of mind<br />

knowing they have been able to say the<br />

things they wanted to.’ ■<br />

14 15<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Chai Cancer Care Together Magazine 2016<br />

Shared<br />

benefits<br />

A new skill, a stress release, the support<br />

of others who understand… Chai’s new<br />

meditation and knitting groups offer<br />

all this and more<br />

If proof were needed of the value of Chai’s group<br />

activities, the five launched this year are it! As well as<br />

those featured here, Israeli dancing, table tennis and pet<br />

therapy are now offered. Chief Executive Lisa Steele<br />

says, ‘We know how much our clients benefit from Chai’s<br />

caring atmosphere and in an unpressurised group setting<br />

they can access that warmth and find new sources<br />

of enjoyment, when other areas of life are tough.<br />

The group becomes an informal but valuable part of<br />

a person’s support system.’<br />

Knitting<br />

On Tuesday mornings, the knitting group gathers in the<br />

garden room at the flagship centre. After seeing the creative<br />

output of the jewellery and ceramic groups at a Chai sale,<br />

volunteer Norma Ellis was inspired to suggest the idea. ‘I<br />

learned to knit at my grandmother’s knee and I know how<br />

rewarding it has been for me.’<br />

The group includes dyed-in-the-wool knitters as well as<br />

novices. Joyce is the latter: ‘I wish I’d known how to knit<br />

before I had cancer – it would have given me something<br />

Meditation<br />

Shelley Bloom<br />

In group meditation at Chai, Shelley<br />

Bloom helps clients find calm amid<br />

their stress and confusion. ‘When you’re<br />

having treatment and you feel your body<br />

has been given over to science, there’s a<br />

loss of control. Meditation helps rebuild<br />

a connection to yourself,’ she says.<br />

In verbally guided sessions, Shelley uses ancient nonreligious<br />

meditation practices, presenting breathing<br />

techniques, positive affirmations and visualisations. ‘It’s<br />

not so much about emptying the mind as being able to let<br />

thoughts pass through it without impacting it,’ she explains.<br />

‘Minds have a habit of running to the past, were we may<br />

ruminate about what we could have done differently in life.<br />

And they run to the future, towards anxiety and worry.’<br />

With the aim of ‘living in the moment’, Shelley starts by<br />

taking clients through a breathing exercise. ‘The out breath<br />

always is longer because it helps release carbon dioxide, the<br />

less healthy part of the breath process. Exhaling, for someone<br />

who is locked in anxiety, can be very difficult, so helping<br />

clients to focus on it is very valuable.’<br />

During a visualisation Shelley might ask the group to<br />

imagine a container and to put in it anything that feels heavy<br />

and burdensome to them, and then place the box outside the<br />

room. ‘I tell them they can pick up the box with whatever<br />

is in it, as they leave. The process helps people relieve<br />

themselves of some of the strains they are carrying.’ Client<br />

Sandra, says ‘Shelley creates a wonderfully encouraging<br />

environment, which allows everyone to develop at their<br />

own pace,’ while newcomer Julia adds: ‘It helps me not just<br />

through the day, but the whole week.’ ■<br />

to do while lying in bed after<br />

surgery. It’s so good for stress.<br />

Having a focus helps take<br />

your mind off yourself – and<br />

Norma is so very patient.’<br />

While Norma and fellow<br />

volunteer Andrea Goodmaker<br />

instruct, there’s tea, chat and<br />

an informal group therapy<br />

aspect as clients exchange<br />

information about their<br />

experiences. Now Norma<br />

has given the group the<br />

collective goal of making<br />

knitted goodies for the next<br />

Chai Society Gift Sale.<br />

Says Joyce, ‘It’s letting me<br />

share my new skill and give<br />

something back. To be able<br />

to make something with my<br />

hands that supports Chai,<br />

is just fantastic!’ ■<br />

Animal lovers know how good<br />

having a pet around makes<br />

them feel. Now academic<br />

research is proving the therapeutic<br />

benefits for those who are not well,<br />

too. ‘Studies show that spending time<br />

with a pet can help reduce recovery<br />

time after surgery, lessen pain, lower<br />

stress levels, improve mood and make<br />

people feel less isolated – all factors that<br />

impact someone affected by a cancer<br />

diagnosis,’ says Chief Executive, Lisa<br />

Steele. ‘Pet therapy is something we<br />

have wanted to provide for a long time<br />

and with the Pets As Therapy (PAT)<br />

charity helping us, we’ve got the correct<br />

process in place.’<br />

The group setting encourages adults<br />

and children to interact and share<br />

their stories in a non-threatening<br />

calming environment. Chair of PAT,<br />

Anne Cliverd, explains how a dog is<br />

assessed as suitable for the work. ‘We<br />

health-check the dog and we go on<br />

16<br />

Chai Cancer Care For more information, please call Jo Awad on 020 8457 Together 3396 2016 Chai Cancer Care<br />

Pet therapy new<br />

A furry friend: Mr Schnitz, Chai’s first pet therapy dog<br />

a walkabout to make sure they are<br />

calm, follow commands, are good with<br />

people, not given to excitable reactions,<br />

and don’t snatch food, bite or lick.<br />

“Clients come by after<br />

their treatment session<br />

and spend time with<br />

Mr Schnitz. His cuddly<br />

presence gets people<br />

talking about anything<br />

but cancer”<br />

A volunteer dog also has to be patient,<br />

enjoy being patted, often vigorously,<br />

by patients or clients and not be<br />

overly fussed about being handled by<br />

many strangers.’ PAT is well-versed in<br />

selecting their canine volunteers, having<br />

upwards of 5,000 animals on their<br />

nationwide books.<br />

Clearly Mr Schnitz is up to the job.<br />

His handler, Neil Samuels, was a Chai<br />

Meet Mr Schnitz, Chai’s four-legged<br />

volunteer, who is giving clients a<br />

way to improve their wellbeing<br />

client, along with his<br />

family, when, in 2012,<br />

son Alex was diagnosed<br />

at the age of 22, with<br />

non-Hodgkin lymphoma.<br />

Now Neil is a volunteer.<br />

‘Clients come by after<br />

their treatment or therapy<br />

session and spend time with<br />

Mr Schnitz – his cuddly, friendly,<br />

non-judgemental presence gets people<br />

talking to each other; about him, or<br />

other things, anything in fact but cancer.<br />

Everything Chai does is there to help<br />

you feel normal again, that you’re not<br />

out there on your own. Mr Schnitz is<br />

now part of the process – he enjoys it<br />

and he makes people happy, too,’ says<br />

Neil. So approachable is Mr Shnitz,<br />

that he’s even helping a client who was<br />

scared of dogs, to overcome his phobia.<br />

A collective positive experience,<br />

emotional connections among peers<br />

and the simple act of touch are some<br />

of the greatest rewards a PAT dog visit<br />

brings and more canine Chai volunteers<br />

are in training now. Says Ann Cliverd,<br />

‘The animal makes no demands on<br />

you: no questions about how you are,<br />

no comments about you being so brave.<br />

The experience helps take away the<br />

stigma a person may feel. They just<br />

look at you with love.’ Elena who has<br />

had cancer treatment, and her son Sean<br />

recognise all these benefits: ‘Spending<br />

time with Mr Schnitz has become a<br />

wonderful highlight in our week – he<br />

calms, relaxes and comforts us. When<br />

he’s around, the focus shifts away<br />

from everything we’ve been through.<br />

Everyone who meets him comes away<br />

feeling more positive.’ ■<br />

For more information, please call<br />

Debra Clifton on 020 8457 2074 17


Chai Cancer Care<br />

A PLATEFUL<br />

OF LOVE<br />

Colin Lehmann was diagnosed<br />

with pancreatic cancer in January<br />

2015, aged 59. He died just 13<br />

months later. In that period, his wife<br />

Laura began treatment for a rare<br />

form of lymphoma. Yet amid all<br />

this upheaval, Laura’s sister Claire,<br />

daughter Tamar and friends Louise<br />

Gluckstein and Nikki Epstein were<br />

inspired to create a cookbook to<br />

raise money for Chai – as a tribute<br />

to Colin and to reflect the idea that<br />

cooking for others is a gesture of love<br />

AN IDEA TAKES SHAPE<br />

LAURA: I spoke with my sister Claire<br />

every day when Colin was ill and much<br />

of our conversation was about whether<br />

or what he could eat that day. Colin<br />

loved food so it was very distressing<br />

when he could no longer appreciate it.<br />

When things are tough, finding pleasure<br />

in something simple – a bowl of soup<br />

– is such an achievement. Each meal was<br />

about bringing some joy into Colin’s life.<br />

You can’t make it all better, but you can<br />

make it better for a moment. The book<br />

symbolises the idea of giving, which is<br />

so central to Jewish life.<br />

CLAIRE: I went to see Chai in July 2015<br />

with this hair-brained idea of mine,<br />

saying, ‘Look, you don’t know me but I’d<br />

CHAI’S<br />

like to do a cookbook for you.’<br />

I walked out of the meeting with this<br />

mammoth project on my hands! Having<br />

previously worked as a nutritionist, I<br />

knew there were many books on food<br />

and cancer, but I realised how powerless<br />

we feel when we cannot provide food for<br />

the people we love. Equally, how good<br />

we feel when we can share our love for<br />

dear ones through food.<br />

FROM FACEBOOK AND<br />

PHONE TO FINAL PRODUCT<br />

CLAIRE: Our small committee included<br />

close friends, Nikki Epstein and Louise<br />

Gluckstein, my niece Tamar and our<br />

designer Jemma Harrison. Gradually<br />

Plateful of<br />

love<br />

cooking for friends<br />

we gathered in the recipes, across the<br />

generations and across all cuisines –<br />

Indian and Israeli to Peruvian and Polish.<br />

Some have been passed down through a<br />

family, others adapted from contemporary<br />

chefs and a note from the contributor<br />

accompanies each one, straight from<br />

the heart. Louise did a lot of the recipe<br />

testing, and much of the photography<br />

– on her phone! We certainly couldn’t<br />

afford photographers or food stylists.<br />

TAMAR: I looked after fundraising and<br />

discussed sponsorship ideas with Dad<br />

while he was in hospital. A small bequest<br />

from The Lehmann Charitable Trust, of<br />

which Dad was a trustee, took care of the<br />

printing and each person whose recipe<br />

was featured gave a £25 donation, which<br />

covered our other costs. It means every<br />

penny from sales goes directly to Chai.<br />

Jemma, our amazing designer, responded<br />

to a post I put out on Facebook. Fresh out<br />

of art college, she put her heart and soul<br />

into it – for free – and has given the book<br />

a lovely timeless feel. Hopefully it will<br />

sell for years!<br />

ABOUT COLIN…<br />

LAURA: Colin and I met on a UJIA<br />

singles ‘mission’ to Israel in 1990. He<br />

was an incredibly generous man and<br />

an amazing father. I rarely did a night<br />

feed for our children Tamar and Daniel<br />

because that was his special time with<br />

them and it allowed me to rest. His<br />

dedication to the community and charities<br />

was incredible and far wider than we all<br />

imagined. We never knew, for instance,<br />

that he was supporting some schools in<br />

Stamford Hill until several rabbanim came<br />

to his funeral. Colin’s favourite recipe in<br />

the book was the Divine Marble Cake.<br />

Our friend Danielle Ashton was making<br />

it even before we married. It was one<br />

of the few things Colin was still able to<br />

eat and there are many lovely occasions<br />

associated with it.<br />

TAMAR: Dad was one of life’s givers<br />

and made everyone feel important.<br />

To friends, family, clients, colleagues, to<br />

the community and even the doctors and<br />

nurses, he was generous with his time<br />

and advice. All he ever wanted was to<br />

guide me to my own happiness. His goal<br />

was to stay around long enough for<br />

my graduation, and he did – it was<br />

a wonderful day.<br />

CHAI – A PLACE TO TURN<br />

LAURA: Colin and I already supported<br />

Chai but when you encounter a charity for<br />

a personal reason, it makes you even more<br />

passionate about it. Claire and I have both<br />

used Chai’s services and I will do so again<br />

when my current treatment finishes.<br />

TAMAR: Dad insisted on attending the<br />

2015 Chai dinner, saying ‘If you can’t<br />

support charities like Chai when you need<br />

them the most, who will?’ It was difficult<br />

to be upset in front of my parents. Chai<br />

has given me the space to think, talk and<br />

cry. They have listened and helped me<br />

try to cope with the unthinkable…not<br />

something I envisaged I’d be doing at<br />

the age of 22.<br />

A TRIBUTE AND A LEGACY<br />

TAMAR: Dad never saw a physical copy<br />

of the book, but I showed him a PDF<br />

version. By then he was in hospital and<br />

knew he wouldn’t come out. He was so<br />

impressed and he’d be prouder still that<br />

more than 1500 people now own the<br />

book and have supported Chai in the<br />

process. It’s a special family legacy and<br />

ensures Dad’s memory lives on, as we<br />

continue his example, by giving to others<br />

through Chai’s Plateful of Love.<br />

LAURA: I now try to find something<br />

positive, however small, to focus on.<br />

I’m thrilled at the response to the book<br />

and am so proud of my sister and all<br />

the contributors. I’m looking forward to<br />

cooking from it – with my own illness,<br />

I’ve missed that so much.<br />

CLAIRE: The launch in May was<br />

incredibly moving. There was the sadness<br />

of what has happened – our world<br />

thrown upside down, but there’s this<br />

new ‘baby’ that’s come to life, because<br />

of someone we loved. It gave us a focus<br />

other than the illness while we worked on<br />

the book and now holds happy memories<br />

for everyone involved.<br />

Chai’s Plateful of Love – Cooking for Friends,<br />

£20 (to collect from the flagship centre), or £23<br />

(to include P&P). Order online at<br />

tinyurl.com/h4efdcw<br />

18<br />

Chai Cancer Care Together 2016 Chai Cancer Care


Philip Weinstein, Issy & Susan Zuckerbrod,<br />

Louise Hager, Lorraine Weinstein<br />

Loretta & Ronnie Harris<br />

Stephen Rubin OBE & Angela Rubin<br />

Maureen Lipman CBE<br />

Sir Michael & Lady Heller<br />

Steven & Danielle King, Lisa Steele,<br />

Justine & Andrew Lever<br />

Rabbi Joseph Dweck and choir celebrating Chanukah<br />

Lord & Lady Kalms<br />

CIRCLE<br />

OF LIGHT<br />

Gerald Ronson CBE & Dame Gail Ronson<br />

Nick & Maxine Leslau<br />

Emma & Marc Samuels<br />

Graham Edwards, Joan Lipkin-<br />

Edwards, Georgina Black<br />

Andrew & Danielle Rubin<br />

Claudia and Robert Salem<br />

Lord & Lady Young<br />

Karen & Jeremy Hertzog<br />

Loren & Trevor Berkowitz<br />

Sian & Julian Levy<br />

Bianca & Stuart Roden<br />

Top: Alexandra Maurice, Emma Byre,<br />

Jenny Silverman, Amanda Kessler,<br />

Abi Reiss, Sarah Burns<br />

Fabiana & Miguel Abadi<br />

Chai has achieved extraordinary<br />

things in its first 25 years and last<br />

December, 800 guests gathered to<br />

recognize this milestone and pledge their<br />

continued support. London’s spectacular<br />

Roundhouse theatre, bathed in purple<br />

and pink Chai colours, mirrored superbly<br />

the ‘Circle of Light’ theme and proved<br />

a breath-taking backdrop for the event.<br />

Louise Hager paid tribute to Chai’s<br />

founders Frances Winegarten z’l and<br />

Susan Zuckerbrod, its medical and lay<br />

advisors, trustees, staff, fundraisers<br />

and volunteers. Reflecting on Chai’s<br />

purpose, she said, ‘there is no point<br />

talking about the light at the end<br />

of the tunnel. Our mission<br />

is to light the tunnel itself,<br />

and to give individuals<br />

the strength and tools<br />

they so need.’<br />

This message was vividly illustrated<br />

on film by two of Chai’s clients<br />

Elliot, from London and Tara in<br />

Manchester, who spoke unflinchingly<br />

about their cancer experiences and<br />

Chai’s all-embracing family support.<br />

Welcoming everyone, Ronnie Harris<br />

described Chai as ‘an essential community<br />

resource.’ And hearing it receives no<br />

statutory funding, the guests responded<br />

emphatically, donating £1.2m. The<br />

emotional and uplifting evening opened<br />

with an enthusiastic performance from<br />

a choir of pupils drawn from four<br />

schools, where the ‘Chai in Schools’<br />

service is supporting children<br />

affected by a cancer diagnosis in<br />

their family, and concluded<br />

with an upbeat set from<br />

TVs BGT finalists,<br />

Jack Pack. ■<br />

Mark Astaire & Fiorella Massey<br />

Michael & Robyn Stein<br />

Gabrielle & Steven Sharpe<br />

Sharon & Jonathan Goldstein<br />

Carol, Nick & Rachel Sopher<br />

Pat Rosenfield & Lennie Lass<br />

Michael & Jacqueline Meller<br />

Simone & Brian Brick<br />

Naomi & Andrew Fisch<br />

Natalie & David Tahan<br />

Michael & Jenny Ghatan<br />

Gavriel & Yael Green, Sara & Henry Last<br />

Frances Berman & Rochelle Wolfson<br />

Jason & Claire Leek<br />

Susan & Stephen James<br />

Gary & Linda Laurence<br />

Michael & Robyn Stein<br />

Shoshana Manning, Gillian &<br />

Irving Carter, Susie Segal<br />

Karen & Peter Goodkind<br />

Benita, David & Jo Fogel<br />

Albert & Lynda Hay<br />

Melanie & Edward Rom<br />

Blake Ezra Photography


Chai Cancer Care<br />

Together Magazine 2016<br />

Dr Christopher<br />

McNamara is<br />

a consultant<br />

haematologist in the<br />

lymphoma service<br />

at University College<br />

London Hospital.<br />

He completed post-graduate<br />

training in Australia and France<br />

before appointment as consultant<br />

haematologist at the Royal Free,<br />

London in 2004. He moved to UCLH<br />

in 2015. His interests are clinical<br />

trials, radioimmunotherapy and the<br />

interface between the laboratory and<br />

lymphoma patients. He has served on<br />

several guideline development groups<br />

for the European Society of Medical<br />

Oncology, the British Council for<br />

Standardisation in Haematology and<br />

for the national Institute for Clinical<br />

Health and Excellence, where he<br />

served as clinical lead for the national<br />

lymphoma guideline.<br />

Lymphoma<br />

therapy update<br />

We know more than ever about how cancer<br />

of the blood behaves and which treatments<br />

will produce the best outcomes. Consultant<br />

haematologist Christopher McNamara looks<br />

ahead to future developments<br />

Lymphoma is the most common<br />

type of blood cancer affecting<br />

people in the UK. There are many<br />

different types of lymphoma but they<br />

all generally occur when a certain<br />

type of blood cell no longer obeys the<br />

normal control signals that govern the<br />

growth of cells and tissues of the body.<br />

The diseased cells or lymphocytes<br />

aggregate together and typically<br />

spread through vessels connecting<br />

lymph nodes.<br />

A significant amount of research<br />

work has been done to understand the<br />

differences between the different types<br />

of lymphoma. This work, culminating<br />

in a classification system adopted<br />

by the World Health Organisation,<br />

has made important advances in the<br />

way in which lymphoma research is<br />

carried out and in the way in which<br />

people who suffer from lymphoma are<br />

treated. Increasingly, lymphomas are<br />

categorised according to molecular and<br />

genetic changes within the abnormal<br />

lymphoma cells. These genetic changes<br />

influence the way in which the cancer<br />

cells multiply and often how they will<br />

respond to treatment. Understanding<br />

these genetic changes has already led<br />

to significant improvements in the<br />

treatments available for lymphoma<br />

patients and is likely to radically<br />

reform further these approaches<br />

in the future.<br />

“Understanding genetic<br />

changes has already<br />

led to significant<br />

improvements in the<br />

treatments available”<br />

GENES HOLD THE KEY<br />

Many people are surprised when they<br />

hear that the laboratory is the first<br />

and perhaps most important step in<br />

the journey that a lymphoma patient<br />

will begin. The reason for that is<br />

that an accurate diagnosis is critical<br />

for obtaining the best outcome for<br />

a patient; the treatments used, as<br />

mentioned, frequently differ according<br />

to which lymphoma subtype a person<br />

has. It is, therefore, essential that<br />

material from a biopsy be looked at<br />

by an expert pathology doctor. In the<br />

future it is likely that genetic changes<br />

within the first biopsy sample will be<br />

used for all patients to direct which<br />

treatment should be given, even within<br />

the same lymphoma subtype. In<br />

other words, patients with the same<br />

lymphoma subtype will be treated<br />

differently, according to the molecular<br />

changes in their lymphoma.<br />

CHEMO AND<br />

CHEMO-FREE THERAPY<br />

Importantly, the outcome for<br />

lymphoma patients has been improving<br />

in recent times. Twenty years ago<br />

there was concern that, in spite of the<br />

availability of effective treatments, the<br />

overall survival for lymphoma patients<br />

was not improving. That has now<br />

changed. With effective combinations<br />

and information gleaned from properly<br />

conducted clinical trials, effective<br />

therapies that are given to people<br />

with lymphoma today have shown<br />

unequivocally that outcomes have<br />

improved compared with treatments<br />

used as recently 20 years ago.<br />

There is a range of different treatments<br />

available to patients in the UK.<br />

Chemotherapy remains an effective and<br />

generally well-tolerated treatment for<br />

most people. However, it is also fair to<br />

say that there is increasing interest in<br />

‘chemotherapy-free’ based approaches<br />

to managing lymphoma. Frequently,<br />

people affected by lymphoma have<br />

other medical problems, which<br />

preclude intensive treatment or they’re<br />

present at a point in their lymphoma<br />

journey where they are significantly<br />

debilitated and de-conditioned by<br />

the lymphoma itself. This makes<br />

the administration of chemotherapy<br />

sometimes difficult. In addition,<br />

we know from longitudinal studies<br />

that many patients who complete<br />

chemotherapy are affected by long-term<br />

physical, psychological and emotional<br />

problems that are most likely due to<br />

their chemotherapy.<br />

“Treatments by mouth<br />

generally don’t require<br />

admission to hospital<br />

and are very well<br />

tolerated”<br />

Many centres around the world are<br />

interested in this ‘chemotherapy-free’<br />

strategy whereby new drugs other<br />

than chemotherapy are used to induce<br />

a response. A new immunotherapy<br />

involving antibodies directed at<br />

special markers on the surface of<br />

cancer cells called antigens is already<br />

in clinical practice and thousands of<br />

patients have benefited from this<br />

and lives have certainly been saved<br />

as a consequence.<br />

The clinic has also seen the<br />

development of new medicines, which<br />

inhibit signalling inside cancer cells.<br />

These medications have changed the<br />

landscape in some lymphoma subtypes<br />

and are likely to have a significant<br />

impact upon lymphoma therapy in<br />

the future. These treatments can be<br />

taken by mouth, generally don’t require<br />

admission to hospital and are very well<br />

tolerated. They work by penetrating<br />

the lymphoma cell and turning off<br />

the machinery that the cell needs<br />

to survive and prosper.<br />

One of the advantages of these<br />

medications is that they typically<br />

don’t bring with them many of the<br />

chemotherapy-related side effects.<br />

Nausea, vomiting and hair loss are not<br />

common from these drugs and they<br />

often produce very good results, even in<br />

patients who have previously failed to<br />

respond to chemotherapy. It is important<br />

that ongoing research is carried out<br />

to define the longer-term safety and<br />

effectiveness of these agents, but<br />

preliminary studies are very exciting.<br />

There remains a strong desire to<br />

continue to improve the outlook for<br />

people and families not only affected by<br />

lymphoma but also to try and reduce<br />

the short- and long-term side effects of<br />

therapy. Clinical trials that are currently<br />

underway are likely to contribute to the<br />

answer to this question. ■<br />

The next leap forward:<br />

refining treatments<br />

• Molecular differences in<br />

their lymphoma subtype<br />

will mean patients<br />

with the same type<br />

of cancer will receive<br />

different treatments<br />

• Oral treatments<br />

will become more<br />

common<br />

• Advances in<br />

treatments will mean<br />

patients won’t need<br />

to be hospitalised<br />

24<br />

Together 2016<br />

Chai Cancer Care<br />

25


Chai Cancer Care Together Magazine 2016<br />

Believing<br />

in better<br />

The potential to transform lives is a defining factor<br />

in the causes that attract Andrew and Orly Wolfson.<br />

It’s why Chai’s innovative approach to cancer<br />

support means so much to them<br />

One of the joys Andrew Wolfson<br />

has discovered in his 40s, is the<br />

breadth of Jewish festivals. ‘I was very<br />

much a Rosh Hashanah/Yom Kippur<br />

Jew,’ he says. Born into one of this<br />

country’s most philanthropic dynasties,<br />

the Wolfson family’s bequests benefit<br />

countless British, Jewish and Israeli<br />

causes and institutions. His very<br />

orthodox great-grandfather was<br />

Solomon Wolfson, a cabinet-maker<br />

who grew up in the Gorbals in<br />

Glasgow; his great uncle Isaac<br />

re-shaped retail as head of Great<br />

Universal Stores. His father, David was<br />

Next’s chairman during the 90s (a role<br />

now held by his brother Simon) and<br />

both are Tory peers. Andrew ‘probably<br />

didn’t do what was expected’ and his<br />

career took him not into big retail but<br />

niche investment. As MD of Pembroke<br />

VCT, his portfolio of brands include<br />

restaurants Five Guys and Chucs,<br />

fashion designers Bella Freud and<br />

ME+EM, and digital media businesses<br />

Boat International and Rated People.<br />

A largely secular upbringing took him<br />

to Radley College boarding school<br />

during term time, and to the country at<br />

weekends. Now, through his children,<br />

Lily 8 and Charles 7, who attend a<br />

Jewish primary school, he and his<br />

Dutch-born wife Orly, 39, delight in<br />

being a part of Jewish community life<br />

that neither was exposed to as a child.<br />

‘We get Simchat Torah and Shavuot<br />

– which I didn’t know about as a<br />

child,’ says Andrew, 47. ‘Moving from<br />

Hyde Park to Belsize Park and then<br />

Finchley has changed our philosophy<br />

of community.’ Adds Orly, whose father<br />

converted to marry her Israeli mother,<br />

‘We weren’t very involved in Jewish<br />

traditions when I was a child, and I<br />

wanted our children to have a greater<br />

sense of belonging. We’re learning and<br />

celebrating with them and it’s lovely.’<br />

POSITIVE IMPACT<br />

The potential for transformation is<br />

lost on neither. Orly is a trustee of<br />

Beit Halochem UK and has chaired<br />

their annual fundraising dinner for the<br />

last three years. Beit Halochem have<br />

rehabilitation centres across Israel<br />

which provide support for 51,000<br />

disabled soldiers and victims of terror.<br />

Her mother went through several years<br />

of rehabilitation after an accident, so<br />

it’s work that’s close to her heart. ‘A<br />

20-year-old soldier wakes up in a totally<br />

new body and has to re-learn everything<br />

from step one. Beit Halochem helps that<br />

person become a member of society<br />

again, focusing on what they can do,<br />

not what they can’t. Much like Chai,<br />

it’s about not being left on your own.’<br />

RayaCottrell Photography<br />

Orly admits she was nervous about<br />

her first visit to Chai’s flagship centre.<br />

‘When you hear the word cancer, you<br />

feel a bit of a chill; the older you get,<br />

the more stories you hear. We all know<br />

someone who’s been through it. I won’t<br />

forget the day Louise took us around. It<br />

showed Andrew and I that the journey<br />

can be made easier. It’s such a positive,<br />

uplifting place. People want to hide<br />

their fears from their children, parents<br />

and partners. Here, you can share them<br />

and become part of the Chai family<br />

of support. The people involved are so<br />

passionate and inspirational.’<br />

“The couple are drawn<br />

to projects that redefine<br />

or disrupt what is currently<br />

out there”<br />

Meanwhile, Andrew is the founder of<br />

MiSST (Music in Secondary Schools<br />

Trust), which grants funds to schools<br />

Andrew and Orly Wolfson with children Charles and Lily<br />

in challenging areas, to buy classical<br />

instruments and provide instruction so<br />

that whole year groups can participate<br />

in compulsory classical music. This<br />

September there will be 3,500 young<br />

people in the programme. ‘In schools<br />

with 60+ first spoken languages, music<br />

breaks down the barriers of ethnicity,<br />

age, religion and socio-economic group<br />

like no other subject.’ Since 2013, the<br />

scheme has seen one student go to<br />

Oxford to study music, and another join<br />

the National Youth Orchestra. Andrew<br />

blanches, however, at the memory of<br />

his own squandered musical education.<br />

‘I was so lucky. My parents paid for<br />

lessons at primary school and they don’t<br />

know this, but I used to tell my English<br />

teacher that I had a music lesson, I’d tell<br />

the music teacher that I wasn’t feeling<br />

well and I’d go off and play cards in the<br />

loo.’ For sweets, he adds.<br />

Betting on the conventional certainly<br />

isn’t Andrew’s style. He spent one day<br />

at Exeter University before<br />

deciding ‘it wasn’t really my<br />

scene.’ He proposed to Orly<br />

just ten days after meeting<br />

her. For seven of those days<br />

they were apart, as Orly’s<br />

modelling career meant<br />

non-stop travel for brands<br />

such as Escada, Gottex<br />

and Wolford. Andrew flew<br />

to Israel where she was<br />

based, for the second date.<br />

‘It was so exciting, I knew<br />

the rest of my life was going<br />

to change.’ Ten years on,<br />

‘It’s the best decision I ever<br />

made.’ For her part, Orly<br />

was taken with Andrew’s<br />

‘gentlemanly manners and<br />

his humour. He reminded<br />

me of Colin Firth, but a better<br />

version!’ Their contemporaryclassic,<br />

art-filled home is on an elegant<br />

North-west London street, where they<br />

enjoy as much family time as possible<br />

– especially playing sport with the<br />

children. They are expecting their third<br />

child imminently.<br />

‘It is very powerful<br />

discovering for yourself<br />

what a difference a<br />

charity makes. That’s<br />

what happened to us<br />

with Chai’<br />

Both as an entrepreneur and as a trustee<br />

of the Charles Wolfson Charitable<br />

Trust, Andrew is captivated by projects<br />

that ‘do things that redefine or disrupt<br />

what is currently out there and try<br />

and create a new normal’. It’s why<br />

he is drawn to Chai. ‘In its holistic<br />

approach, it gives an extra level of<br />

support on those days when you’re not<br />

in hospital having chemotherapy, but<br />

feel rotten. Not only that, it sustains<br />

all those around the cancer patient.<br />

There’s the security, too, of knowing<br />

that Chai understands Jewish traditions<br />

and values. It’s a fantastic – and vital –<br />

service. It’s acknowledged outside the<br />

community that we go the extra mile to<br />

care for our vulnerable.’<br />

THE YOUNG VOTE<br />

With his passion for creating<br />

opportunities for the next generation (he<br />

is also involved in Access Aspiration,<br />

a work placement charity, and PaJes),<br />

he believes businesses and charities<br />

need to gain the confidence of the<br />

young to win their support. ‘Both<br />

have a responsibility to be transparent,<br />

charities especially with their<br />

fundraising and administration costs.’<br />

He advocates organisations working<br />

together strategically for the longterm<br />

good of the community and sees<br />

Chai’s expansion in an existing Jewish<br />

community building in Manchester as a<br />

good example of this.<br />

‘The home is also an important base<br />

for learning about caring for the needy,’<br />

says Orly. ‘Our mum always taught the<br />

six of us, if you can help someone, why<br />

don’t you? If ever a neighbour had a<br />

problem, she was right there. You build<br />

on that with education. Hopefully our<br />

children see the amount of work that<br />

Andrew does, and the charities I’m<br />

involved with.’ She adds, ‘It is very<br />

powerful discovering for yourself what<br />

a difference a charity makes. Visit the<br />

charity. Meet the people who work<br />

there and the ones who are looked<br />

after. Understand the potential for<br />

your donation – and then you’ll feel a<br />

much stronger connection than simply<br />

attending an annual dinner. That’s what<br />

happened to us with Chai.’ ■<br />

26<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

27


Chai Cancer Care Together Magazine 2016<br />

The F Factor<br />

Could a brisk walk hold the key to<br />

stopping cancer in its tracks? We look<br />

at the latest research linking fitness and<br />

cancer prevention, and discover how<br />

Chai makes getting fit accessible to all<br />

The clearest proof yet that exercise<br />

can improve cancer survival rates<br />

came at this year’s American Society<br />

of Clinical Oncology conference in<br />

Chicago. Research showed mortality<br />

rates for women with cancer who<br />

did the equivalent of three hours<br />

brisk walking a week fell by 46%. By<br />

ONE-TO-ONE AND<br />

OPEN GYM SESSIONS<br />

The gym at Chai’s flagship centre<br />

is impressive by any standard. With<br />

guidance from physiotherapists<br />

Graham, Johnny and Natasha,<br />

clients recovering from surgery<br />

or treatment can build up their<br />

mobility and strength. ‘One-to-one<br />

sessions offer close monitoring<br />

while a person is physically<br />

unsteady and unsure about their<br />

capability,’ says Johnny. Clients can<br />

then progress to open gym sessions,<br />

where groups of three follow their<br />

personalised programmes. ‘The<br />

social aspect is very beneficial,’<br />

adds Johnny. ‘As clients’ fitness,<br />

confidence and knowledge levels<br />

grow, they achieve more than they<br />

ever imagined.’<br />

contrast, obese women<br />

with breast cancer and<br />

high blood pressure<br />

were 69% less likely to<br />

survive. Melinda Irwin of<br />

Yale University, who led<br />

many of the studies, was<br />

unequivocal: ‘Women diagnosed with<br />

breast cancer should be counselled<br />

about weight loss and exercise.’<br />

Men, take note, too. A trial at the<br />

University of Montreal has seen<br />

mortality rates drop by up to 22% in<br />

men with late-stage metastatic cancer<br />

Equipment includes a multi-gym<br />

and leg press to restore muscle<br />

bulk and strength after surgery; a<br />

treadmill, recumbent, vertical bikes<br />

and hand bike, for cardiovascular<br />

work; a Swiss ball for building core<br />

strength and a small trampoline for<br />

improving balance. Free weights<br />

and floor mats provide further ways<br />

for trainers to work with clients.<br />

(when it has spread) who follow a highintensity<br />

exercise programme. A further<br />

1.4 million cases surveyed revealed that<br />

taking significant amounts of exercise<br />

reduces the risk of a whole range of<br />

cancers, including oesophageal, lung,<br />

stomach and colon. ‘The more the<br />

body operates at its optimum, the better<br />

recovery and survival is,’ says Graham<br />

Silas, one of Chai’s physiotherapists.<br />

‘It may seem an impossible demand to<br />

get fit when cancer is the main focus,<br />

but with support from experts who<br />

understand the impact of cancer, we<br />

can make it easier.’ ■<br />

ISRAELI DANCING<br />

As a trained ballet dancer, Sara Last needs<br />

no convincing of the pleasures of music and<br />

movement. ‘Dancing transports me, which<br />

is my hope for Chai clients, too.’ Many<br />

scientific studies show how dance aids the<br />

functions of the circulatory, respiratory,<br />

skeletal, and muscular systems. ‘It’s a<br />

recognised form of therapy, helping people<br />

connect emotionally with their body and<br />

integrate what they have been through,’ says<br />

Sara. Israeli, Greek, and Chassidic dances<br />

are taught but luckily you don’t have to be<br />

an expert mover. ‘People go at their own<br />

pace. By the end of the class, it’s wonderful<br />

to see how people’s body language has<br />

brightened and relaxed.’<br />

“I go into a class feeling<br />

tired and come out<br />

invigorated” Vivienne<br />

YOGA<br />

‘Yoga is a bridge between body and mind, helping us<br />

to balance and adjust to changes in life,’ says Stacey<br />

Landau, a specialist in remedial yoga. Central to<br />

the practice is the breath, which is actively engaged<br />

to calm the mind throughout the class. Clients<br />

begin with a ‘body scan’ noting how they are feeling<br />

physically, before moving on to the yoga postures.<br />

‘Everyone does what they can,<br />

even if they are seated,’ says<br />

Stacey who modifies poses such<br />

as the cobra and downward<br />

dog to make them more<br />

manageable. ‘The postures<br />

build muscle and core strength,<br />

improving balance, flexibility<br />

and alignment,’ Stacey explains.<br />

After a guided relaxation at the<br />

end of the class, clients often<br />

sleep better and have a more<br />

positive overall outlook. ‘When<br />

cancer makes you feel isolated,<br />

a yoga class can give you inner<br />

strength and group support.’<br />

“Yoga sustains me physically<br />

and mentally – it’s my new<br />

normal” Jacky<br />

WALKING GROUP<br />

Chai’s weekly walkers value the<br />

exercise, fresh air and group<br />

contact as part of their re-hab<br />

routine. In collaboration with<br />

Maccabi GB and led by Janice<br />

Arons and volunteer Lisa<br />

Bogush, the group sets out from<br />

Chai to the nearby park, or<br />

follows a pretty route through<br />

Hendon’s streets for an hour.<br />

‘Walking together provides<br />

a lovely, healthy distraction,’<br />

says Janice. ‘If you’re nervous<br />

of going out on your own, this<br />

gives you extra support. With<br />

the chat, it doesn’t even feel<br />

like training!’ Both brisk<br />

walkers and amblers are<br />

catered for. ‘With two of us<br />

on hand, no-one is ever left<br />

behind,’ says Lisa.<br />

“Physical activity<br />

helps with my<br />

breathing and<br />

stamina – and<br />

I love meeting<br />

new people”<br />

Susie<br />

PILATES<br />

This low-impact, restorative<br />

exercise is an option for<br />

men and women at any<br />

stage of cancer treatment<br />

and recovery. In her Pilates<br />

class, teacher Fiona Good<br />

includes gentle, targeted<br />

muscle movements and<br />

weight-bearing exercises<br />

to encourage strength<br />

and endurance. That in<br />

turn helps joints to work<br />

better so stretching is<br />

easier – important for<br />

combatting excessive scar<br />

tissue. ‘Pilates re-establishes<br />

proper muscular firing<br />

patterns and improves body<br />

awareness, which may be<br />

lost as a result of surgery,’<br />

says Fiona. For carers and<br />

the bereaved, too, Pilates<br />

can be a real confidencebuilder.<br />

‘I’m humbled to<br />

witness my clients’ ability<br />

to adapt, as well as the<br />

body’s capacity to heal.’<br />

TABLE TENNIS<br />

This is one of Chai’s newest<br />

activities. Carol Ellman,<br />

who runs the group says,<br />

‘The effect of cancer<br />

treatment on your bones<br />

and muscles can be very<br />

harsh. Movement is critical<br />

to recovery.’ After her own<br />

double mastectomy four<br />

years ago, the shoulder<br />

and upper arm actions<br />

involved in playing table<br />

tennis have helped rebuild<br />

her muscle strength. The<br />

sport also helps maintain<br />

hand-eye coordination and<br />

mental alertness. One client<br />

relishes her weekly matches<br />

despite on-going treatment,<br />

while a widower who was<br />

isolated after his wife died,<br />

values taking part in a<br />

sociable sport. ‘People still<br />

have medical appointments<br />

to go to,’ says Carol, ‘but<br />

when you’re chasing that<br />

little white ball, you don’t<br />

think about anything else!’<br />

“You lose so much<br />

when you have<br />

cancer. Playing<br />

table tennis has<br />

given me back my<br />

confidence” Linda<br />

For more information, please call Jodi Lazarus on 020 8457 3230<br />

28<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

29


Service Spotlight<br />

Manual lymphatic<br />

drainage<br />

update<br />

The phrase ‘living with and beyond<br />

cancer’ covers many scenarios –<br />

and heartening as the rising numbers<br />

of survivors are, the complexities<br />

of the onward journey include<br />

managing many long-term conditions.<br />

Lymphoedema – swelling of the legs,<br />

arms or other parts of the body – is<br />

one that requires continuous care.<br />

It occurs when the lymph nodes,<br />

located in the neck, armpits and groin<br />

area, are removed because they are<br />

cancerous or by damage to the skin<br />

from radiotherapy. Lymph fluid,<br />

which travels around the body<br />

collecting waste material and bacteria,<br />

cannot be expelled if the nodes are<br />

no longer there.<br />

“Chai is at the forefront<br />

of searching out ways<br />

that make a meaningful<br />

difference to clients’ lives”<br />

Tissue surrounding the damaged area<br />

then becomes swollen with fluid,<br />

causing the skin to feel tight and heavy<br />

and inhibiting mobility. Clothes or<br />

shoes may not fit properly and<br />

everyday activities such as gardening or<br />

shopping are more problematic. These<br />

physical compromises, coming on top<br />

Chai has introduced a new type of<br />

specialist treatment to help clients<br />

manage lymphoedema – one of<br />

cancer surgery’s long-term side effects<br />

of the cancer treatment, can be hard<br />

to cope with, leading to a loss of<br />

confidence affecting body image, social<br />

life and relationships. Upsettingly, too,<br />

lymphoedema may appear weeks,<br />

months or even years after surgery.<br />

Chai is at the forefront of searching<br />

out ways that make a meaningful<br />

difference to clients’ lives. With<br />

virtually no NHS resources available<br />

for dealing with lymphoedema, it<br />

recognised the need to support clients<br />

with this life-changing condition. Its<br />

Lymphoedema Clinic at the flagship<br />

centre launched in 2008. Specialist<br />

practitioner Sallyann Kaplan, explains<br />

its multi-faceted approach: ‘We provide<br />

MLD – manual lymphatic drainage – a<br />

very specific, slow, light and rhythmic<br />

massage that works on the network of<br />

vessels in the lymph system. Through<br />

gentle movement, lymph fluid is<br />

guided from the swollen area towards<br />

functioning nodes. We can fit clients<br />

for compression garments (such as<br />

sleeves, gloves, stockings or tights) and<br />

wrap the affected area in bandages<br />

where compression isn’t suitable. We<br />

also teach self-massage and exercises<br />

so there is continuity between visits.<br />

Swimming or yoga is recommended:<br />

movement is essential for the<br />

lymphatic system to function.’<br />

The newest treatment component is<br />

the Physio Touch massage device.<br />

‘The healing process can cause<br />

excessive amounts of scar or fibrotic<br />

tissue to build up,’ says Sallyann.<br />

‘Physio Touch augments the range of<br />

massage techniques we have at our<br />

disposal. It works on a deeper level of<br />

the lymphatic system that is harder to<br />

reach by hand, so it’s very effective in<br />

dealing with localised and older scar<br />

tissue. It’s a pleasant and relaxing<br />

experience, too.’<br />

As for the results, a newer client<br />

noticed a dramatic improvement in<br />

just two months. Some with more<br />

entrenched conditions have felt<br />

greater relief from their long-term<br />

symptoms. But the true impact goes<br />

beyond the physical. Says one, ‘I am<br />

feeling positive and have much more<br />

energy. This is the best I have felt<br />

in years.’ Adds Sallyann, ‘Although<br />

there is no way of repairing the<br />

damage to the lymph tissue, we can<br />

prevent it getting worse. We now<br />

have another way to restore dignity<br />

and quality of life for our clients.’ ■<br />

For more information, please call Jo Awad<br />

on 020 8457 3396<br />

Chai would like to thank the<br />

Outlook Committee for all their<br />

efforts in raising funds for the<br />

Physio Touch machine<br />

30<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

The Chai Calendar<br />

AUGUST 2015<br />

TRUDI BERMAN’S<br />

SPLENDID TEA<br />

A truly scrumptious tea for family and<br />

friends organised by Trudi Berman raised<br />

a fantastic £300 for Chai’s services in<br />

Manchester. ‘I wanted to do this as a thank<br />

you and to show my deep appreciation for<br />

Chai’s support and understanding,’ said<br />

Trudi, who used Chai’s services.<br />

Trudi Berman’s Manchester tea<br />

SEPTEMBER<br />

CHAI SOCIETY ROSH<br />

HASHANAH GIFT SALE<br />

It’s a save-the-date ‘must’ for anyone seeking<br />

special Rosh Hashanah gifts – and the 2015<br />

Chai Society Gift Sale didn’t disappoint,<br />

drawing over 700 shoppers to the flagship<br />

centre last September. Generously sponsored<br />

by Glentree Estates, over 40 stalls offered<br />

up tempting gifts, from hats to honey cakes,<br />

jewellery to Judaica, kosher confectionery to<br />

chic millinery, Maxwell Williams tableware to<br />

tempting eyewear. Expertly organised by the<br />

Chai Society Committee, the event raised<br />

an incredible £36,000.<br />

Amanda Assheton at her bridge stall<br />

OCTOBER<br />

THE NATALIE SHIPMAN<br />

MEMORIAL LECTURE<br />

Shining the spotlight on advances in men’s<br />

cancer, the 25th annual lecture ‘Transforming<br />

the Prostate Cancer Pathway’ was given<br />

by Professor Mark Emberton, Professor of<br />

Interventional Oncology, UCL whose work is<br />

significantly influencing treatment. In the Chair<br />

was Professor Albert Singer, Consultant (Hon)<br />

The Whittington Hospital. The lecture series<br />

commemorates the passing of 8-year-old Natalie<br />

Shipman z’l who inspired her mother Susan to<br />

jointly found Chai with Frances Winegarten z’l.<br />

Lisa Steele, Louise Hager, Prof Mark Emberton,<br />

Prof Albert Singer, Susan Shipman<br />

NOVEMBER<br />

THE CHAI BAKE OFF<br />

Keen bakers showcased their best efforts at<br />

Manchester’s Great Chai Bake Off, organised<br />

by the Chai Lights Committee: Ann Audin,<br />

Fran Horwich, Stephanie Jacobs, Marcelle<br />

Kuhillow, Jakki Pinsley and Reba Tury. Held<br />

at Whitefield Golf Club, a tasty afternoon of<br />

judging saw prizes awarded in best decorated,<br />

best tasting, junior and gentleman baker<br />

categories with more than £1,000 raised for<br />

Chai’s Manchester services.<br />

Junior bake off winner Monty Super and<br />

Mayor of Bury, Michelle Wiseman<br />

Our committees and supporters surpassed themselves over the past<br />

12 months with events that informed, entertained and charmed.<br />

Each one takes thought, organisation and commitment, and<br />

helps to raise funds while increasing awareness of Chai’s services<br />

CHAI FIVE MUSICAL BINGO<br />

A test of musical knowledge prompted a lively<br />

atmosphere and enthusiastic discussion at this<br />

event at the flagship centre. Aided by raffle<br />

prizes that included travel, restaurant and nail<br />

bar vouchers, delighted Committee member<br />

Liz Feiner announced £1,000 has been raised.<br />

BIRMINGHAM WELCOMES<br />

CHAI CANCER CARE<br />

A 70-strong audience attended the launch of<br />

the new Chai satellite service in Birmingham,<br />

the result of Chai working with BJCC trustee<br />

Karen Georgevic and Sharon Grey, Social Care<br />

Manager of the BJCC. Dr David Spooner,<br />

Consultant in Radiotherapy and Oncology<br />

gave a talk on latest cancer advances and took<br />

part in a Q&A session. The service is providing<br />

counselling, physiotherapy and massage.<br />

Lisa Steele, Dr David Spooner,<br />

Karen Georgevic, Louise Hager<br />

CHALLAH BAKE FOR<br />

MITZVAH DAY<br />

Delicious aromas filled the flagship centre<br />

when Year 6 pupils from the Independent<br />

Jewish Day School baked challah for clients<br />

on Mitzvah Day. After their kitchen activity<br />

the children saw the Children’s and Play<br />

Therapy room which supports young clients.<br />

Mia-Sara Rosenfeld, Jacob Gibson, Max<br />

Lanzkron and Avital Cohen<br />

31


Together Magazine 2016<br />

VISITING ISRAELI MINISTER<br />

IS AMAZED BY CHAI<br />

Chai’s Chief Executive Lisa Steele welcomed<br />

Rabbi Yakov Litzman, Israel’s Minister of<br />

Health, to the flagship centre where he toured<br />

the building to see the range of support services<br />

provided to cancer patients, their family and<br />

friends and met Chairman of Chai’s Medical<br />

Advisory Board, Dr Adrian Tookman and Philip<br />

Weinstein, Chai Trustee. Rabbi Litzman was<br />

certainly impressed: ‘We have nothing like this in<br />

Israel. It’s an amazing facility.’<br />

Dr Adrian Tookman, MK Rabbi Yakov Litzman,<br />

PhilipWeinstein<br />

DECEMBER<br />

RAGING BULL PARTY<br />

Chai supporters turned out in their droves for<br />

the Raging Bull Club Night at Camden Town’s<br />

iconic Koko venue. Live music, DJ sets, a laser<br />

show, fire drums and stage dancers made it a<br />

night to remember, raising £3,345 along the way.<br />

JANUARY 2016<br />

THE MAYOR OF BARNET’S<br />

CHARITY BRIDGE LUNCH<br />

Bridge, raising money for Chai and the Mayor<br />

of Barnet hosting – no wonder 110 eager card<br />

players supported this hot ticket event at the<br />

flagship centre. Organised by Carol Ellman and<br />

Angela White, the afternoon included a moving<br />

32<br />

The Chai Calendar<br />

speech from client Wendy Hoffman who<br />

described the impact of hearing she had cancer<br />

and how Chai ‘understood every nuance, every<br />

shade, every stage of the path I was treading.’<br />

The event raised £7,300, which went towards<br />

Chai’s Home Support Service.<br />

Lisa Steele, Carol Ellman, Councillor Mark<br />

Shooter, Wendy Hoffman, Melissa Shooter<br />

FEBRUARY<br />

RAISING AWARENESS<br />

IN ESSEX<br />

‘Cancer Survivorship – Living with and beyond<br />

cancer’ was the theme of a talk presented to<br />

the Essex community by Consultant Clinical<br />

Oncologist Dr Sherif Raouf, at the Redbridge<br />

Jewish Community Centre. He shed light on<br />

the often overlooked after-effects of treatment<br />

and how each patient requires individual<br />

support. Chai’s Essex Services currently<br />

support more than 70 clients.<br />

Rabbi Nissan Wilson, Dr Sherif Raouf<br />

YOUNG CHAI’S<br />

‘SUGAR CHAI’<br />

Three of the UK’s most respected nutrition<br />

and food industry experts were grilled by 60<br />

guests at a Young Chai debate on the Sugar<br />

Tax at the flagship centre. Grappling with<br />

sugar’s reputation were nutritionist Ian Marber,<br />

and entrepreneurs Asher Budwig of Lola’s<br />

Cupcakes and Mitch Minton of Presscription.<br />

From media influence and the NHS to<br />

childhood obesity and lifestyle, no area was<br />

off limits to the trio. The informative evening<br />

raised £1,120.<br />

Young Chai Committee with panellists Mitch<br />

Minton, Ian Marber, Asher Budwig<br />

UPLIFTING MUSIC<br />

AND LAUGHTER<br />

More than 200 guests enjoyed a very special<br />

evening of entertainment including a preview<br />

of singer Eitan Freilich’s new album, at ‘An<br />

Evening of Song and Celebration’. Hosted by<br />

charedi stand-up comic Ashley Blaker, Eitan<br />

dedicated the fundraiser for Chai to his late<br />

father and performed a song written in his<br />

memory. The evening raised £1,500.<br />

Eitan Freilich and his band<br />

Together 2016<br />

BATMITZVAH GIRLS BRUNCH<br />

An enterprising group of girlfriends, who all<br />

met at Hertsmere Jewish Primary School,<br />

decided to celebrate their Bat Mitzvah by<br />

hosting a brunch for 40 of their pals, now at JFS<br />

or Yavneh College. The girls prepared all the<br />

food and drinks themselves and held a raffle,<br />

raising more than £1,000 for Chai.<br />

Amalya Millan, Sofia Forman, Katy Denby,<br />

Allie Bohm, Isabella Becker<br />

MARCH<br />

MANCHESTER LECTURE<br />

The Heathlands Village was the venue for a<br />

talk entitled ‘Prevention and early detection of<br />

breast cancer’ given by Lester Barr, Consultant<br />

Surgeon and Chairman of the Genesis<br />

Breast Cancer Prevention Centre. The lecture<br />

covered pioneering research and the impact of<br />

genetics and environmental issues. Services in<br />

Manchester, Liverpool and Leeds continue to<br />

expand as the number of clients seeking<br />

Chai’s services increases.<br />

PRE-PURIM FRIDAY<br />

NIGHT DINNER<br />

Building on the huge popularity of last year’s<br />

event, the Chai Five Committee returned to Beit<br />

Hamadras Indian Restaurant in Hendon for an<br />

Asian-themed Pre-Purim Friday Night Dinner,<br />

and raised £400.<br />

Chai Cancer Care<br />

APRIL<br />

‘SINGO’<br />

It’s bingo but not<br />

THE LOVE CHAI COMMITTEE<br />

are delighted to invite you to<br />

Singo<br />

as you know it –<br />

instead of numbers<br />

SUNDAY 17TH APRIL 2016<br />

on a card, there<br />

Doors open 19.00 | Event 19.30 - 22.00<br />

Admission fee £30<br />

Venue<br />

Chai Centre, 142-146 Great North Way<br />

are song titles<br />

London, NW4 1EH<br />

Light supper will be served<br />

BYOB (kosher)<br />

to tick off. The<br />

Raffle & Auction on the night<br />

years<br />

To book please click here or<br />

musical evening<br />

contact melanie@chaicancercare.org<br />

at the flagship<br />

centre gave 75 guests some lively entertainment<br />

and introduced many to the breadth of services<br />

and support Chai can give to young families<br />

and newlyweds. With raffle prizes including<br />

a Jimmy Choo handbag and a signed Brazil<br />

football shirt, the Love Chai committee –<br />

Danielle Baron, Nikki Bloom, Miriam Felder,<br />

Stephanie Gerstler, Talia Savitz and Caroline<br />

Tunkel – raised £2,500.<br />

Bingo with a twist!<br />

GOURMET DINNER PARTY<br />

How lucky were the 28 specially invited guests<br />

who enjoyed an exclusive gourmet dinner party<br />

hosted by Gefiltefest founder Michael Leventhal<br />

and his wife Rachel Marcus. Michael’s family<br />

and in particular his mother who is going<br />

through cancer, have benefitted from Chai’s care<br />

recently. ‘They have provided us with wonderful,<br />

much appreciated support,’ he said. The evening<br />

raised more than £2,400.<br />

Rachel Marcus and Michael Leventhal<br />

THE OUTLOOK<br />

IS GREAT!<br />

In the last 16 years, the<br />

Outlook Committee has<br />

raised more than £400,000<br />

for Chai’s vital services. The<br />

creativity and professionalism<br />

of committee members<br />

Elaine Barnett, Sue Freedman,<br />

Fran Goldin, Michele Lees-<br />

Smith, Marilyn Myers,<br />

Sally Needleman, Jackie<br />

Sharpstone and Janis and<br />

Rikki Sher, always ensures<br />

fantastic support.<br />

The Outlook Committee<br />

These are the year’s highlights:<br />

the 13th Annual Outlook<br />

Committee 10k Walk raised<br />

£18,000 with the money<br />

going towards Chai’s<br />

Children, Teenage and<br />

Family Service. The everpopular<br />

Outlook Bridge<br />

Lunch and a fascinating talk<br />

from Erika Judge about her<br />

Kindertransport escape<br />

from Vienna at the age of 12,<br />

raised £2,610 and £3,060<br />

respectively. These last two<br />

events funded vital new<br />

massage equipment to help<br />

ease the long-term effects<br />

of lymphoedema.<br />

33


CHAI CHALLENGES YOU!<br />

MAY<br />

GLASGOW GIRLS<br />

BRIDGE LUNCH<br />

Louise Kramer, Frances Bloom, Lynda Rapport,<br />

Barbara Kay, Linda Reich, Linda Goldberg<br />

Glasgow Girls in London hosted their second<br />

highly successful bridge lunch at the flagship<br />

centre, raising £4,000 to be split between<br />

Chai’s Glasgow service, and several other<br />

Glasgow charities. Committee member<br />

Louise Kramer, said, ‘We look forward to<br />

doing it all again next year!’<br />

Paul Gold, son Elliot and joint winner Juliet Kent<br />

CELEBRATING<br />

SIMONE’S LIFE<br />

When Paul Gold hosted a packed bridge<br />

event at the Ace of Clubs Bridge Club at Mill<br />

Hill Golf Club, he did it wearing the purple<br />

wig his late wife Simone wore during her<br />

chemotherapy treatment. ‘I wanted it to be<br />

a happy event and this was the wig Simone<br />

wore to the bridge club to put people at ease,’<br />

said Paul. The event raised £3,460 for Chai.<br />

The Chai Calendar<br />

JUNE<br />

GOLFERS HIT GOLD!<br />

The 11th Club 18 Chai Golf Tournament took<br />

place at Dyrham Park Country Club where<br />

nearly 100 golfers teed off on the testing<br />

6,428-yard course, competing for one of<br />

four prizes. Despite the cold, grey conditions,<br />

spirits remained high throughout the day<br />

and into the evening when the golfers enjoyed<br />

a cocktail party, dinner and raffle, with prizes<br />

from Hummingbird Motors and Osprey. The<br />

event raised more than £40,000. Michael<br />

Lubliner and Ronnie Gottlieb, said: ‘The<br />

atmosphere was great and the day’s scores<br />

were quite remarkable.’<br />

Michael Lubliner, Ronnie Gottlieb, Lisa Steele,<br />

Louise Hager, Jack Galaun, Trevor Berkowitz,<br />

David Joffe, Jennifer Cohen<br />

JULY<br />

‘COME DINE WITH ME’<br />

There was a novel approach to Shabbat dinner<br />

hospitality when more than 40 guests enjoyed<br />

a meal in five different venues across Hendon.<br />

The event, organised by the Chai Five<br />

Committee, was generously hosted by Rebecca<br />

Attar, Laura Beer, Aviva Braunold, Brochy<br />

Forta, Shoshy Lerner, Richard Lewis, Lauren<br />

Rosettenstein, Hannah Smith, and Maya<br />

Zippel and raised over £900.<br />

JENSON’S ON THE MONEY<br />

10-year-old Jenson Blankstone organised a<br />

table sale in his driveway to raise funds for<br />

Chai’s Liverpool satellite service. Jenson, a<br />

pupil at King David Primary School, raised<br />

£35 selling all the books and toys he had<br />

grown out of.<br />

Jenson Blankstone<br />

AUGUST<br />

GOODIES FOR GOOD<br />

It was a case of ‘flour power’ when friends,<br />

Ella Frankfurt, Atara Fachler, Tehilla Rome<br />

and Liora Dewinter from the Independent<br />

Jewish Day School and Hasmonean Primary<br />

School, put their baking skills to deliciously<br />

good use for Chai. Their baking sale raised<br />

an impressive £150.<br />

Ella Frankfurt, Atara Fachler, Tehilla Rome,<br />

Liora Dewinter<br />

Turn to p39 to see how you can easily<br />

donate to Chai<br />

34<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

24<br />

24<br />

PEAKS IN<br />

HOURS<br />

LIFE CHANGES COMPLETELY WITH A<br />

CANCER DIAGNOSIS – IN JUST ONE DAY<br />

Chai Challenges You! to make a difference – in just 24 hours.<br />

The ‘24 Peaks in 24 Hours’ challenge invites you to become<br />

a ‘Chai Climber’ and scale a total of 13,986 feet of the<br />

most beautiful, rugged and demanding terrain in the Lake<br />

District, including Scafell Pike, England’s highest mountain.<br />

Every penny raised by the ‘Chai Climbers’ will go towards<br />

Chai’s Home Support Service, which brings our services to<br />

those unable to reach our 11 centres across the UK.<br />

Are you tough enough to become a ‘Chai Climber’<br />

and take the challenge?<br />

Women only, minimum sponshorship £2,400<br />

25th-27th June 2017<br />

To find out more visit: tinyurl.com/jg3hahp<br />

To register your interest and to attend our information<br />

evening on Monday 7th November 2016<br />

email: alexandramaurice@chaicancercare.org<br />

or call Alexandra on 020 8457 3394


Chai Cancer Care Together Magazine 2016<br />

You’re<br />

amazing!<br />

Thank you to all the sponsored runners, riders,<br />

climbers – and quirky challengers whose<br />

commitment, effort and generosity to Chai ensure<br />

our services reach everyone who needs us. Your<br />

kindness and loyalty is never taken for granted<br />

Jason Lipman &<br />

Joel Hilton<br />

Lionel & Ben Davis<br />

Jonathan Barr<br />

RELATIVE SUCCESS AT<br />

THE ROYAL PARKS<br />

Brothers-in-law Jason Lipman and<br />

Joel Hilton completed the Royal<br />

Parks Half Marathon in memory<br />

of their Grandpa Ray, who used<br />

Chai’s services, raising £1,960<br />

and £1,580 respectively. Also<br />

running were Lionel and Ben<br />

Davis in memory of friend and<br />

godmother Debra Persey who<br />

benefitted from Chai before she<br />

passed away last year. The father/<br />

son duo raised over £4,900, for<br />

Chai and Macmillan.<br />

RAISING THE BARR<br />

IN NYC<br />

Last November’s New York<br />

marathon was an especially<br />

meaningful challenge for Jonathan<br />

Barr. It came just 10 weeks after<br />

he finished chemotherapy for<br />

testicular cancer and a few months<br />

after his mother Val passed away<br />

from breast cancer. Val, who<br />

volunteered at Chai, and Jonathan,<br />

both used Chai services. ‘Our<br />

family was surrounded by such<br />

kindness and support at Chai.<br />

I’m delighted to give something<br />

back.’ Finishing in 5 hours 5mins,<br />

Jonathan raised £3,230.<br />

Joel Anderson<br />

Tapnack family<br />

Anderson family<br />

WHAT A HAIR DO CAN DO!<br />

Brothers Simon and Max Misrahi raised a staggering<br />

£13,427 when they went platinum blonde to raise<br />

awareness of the impact of breast cancer, and to<br />

support Chai. Hairstylist Robin Pawloski (centre)<br />

transformed their brown locks at Chai’s Image<br />

Resource Room at the flagship centre. The idea came<br />

after their mother Joyce was treated for breast cancer<br />

four years ago. ‘I’m so proud of my boys!’ she said of<br />

the amount raised.<br />

JOEL REACHES HIS PEAK<br />

Twenty years after losing his father to<br />

cancer, Joel Anderson embarked on<br />

the challenge of a lifetime, climbing<br />

Kilimanjaro. ‘Chai’s services were not<br />

available to my family all those years ago.<br />

Now they offer great support.’ Describing<br />

it as ‘gruelling’, Joel’s reward was scaling<br />

all 5985m and raising more than £5,660.<br />

MACCABI GB FUN RUN<br />

A bumper turnout of more than 180<br />

supporters raised more than £12,500 at<br />

this family-friendly event. Among them<br />

the Tapnack family: Dani, Jonny and<br />

children Josh 10, Jacob 7, and Talia 4,<br />

who raised an incredible £1,500. Also<br />

participating were Vered and Marc<br />

Anderson and children Ethan 12, Lia 7,<br />

and Aiden 5. ‘I recently lost a close friend<br />

who was only 42,’ said Vered. ‘She left<br />

behind a husband and four girls. Chai did<br />

a lot for all of them.’ The Fahidi family,<br />

too, came to Chai when mother Nicole<br />

had breast cancer. They raised £1,200.<br />

David Abramson,<br />

Sammy Weinbaum<br />

Emma Borkin<br />

Josh Rom’s<br />

sponsored back<br />

wax – ouch!<br />

David with Ruby (in<br />

buggy) and supporters<br />

Jessica, Ella & Romy<br />

36<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

VITALITY NORTH LONDON<br />

HALF MARATHON<br />

Many people have personal reasons for<br />

supporting Chai. David Abramson’s was<br />

his friend David Goldschmidt. ‘Watching<br />

David’s illness progress was devastating.<br />

Chai made his last year a bit easier. I’m<br />

delighted to run in his honour.’ Friend<br />

Sammy Weinbaum ran in tribute to the<br />

care his mother-in-law received from Chai.<br />

‘It allowed her to be an individual and not<br />

be defined by cancer.’ David and Sammy<br />

raised over £4,650. Also running was<br />

Emma Borkin who raised £500.<br />

THANKS ALSO TOO…<br />

Mitchell<br />

Stanton’s<br />

Capital 2 Coast<br />

cycle raised<br />

£856<br />

Trekathon’s<br />

Suzanne Gold with<br />

her father, brother<br />

and son Ethan<br />

RUNNING FOR LAUREL<br />

By the time Laurel Cohen gave birth to<br />

daughter Ruby in 2015, the joy she and<br />

husband David had at becoming parents<br />

had been shattered by the news that Laurel<br />

had terminal bowel cancer. Laurel was<br />

visited by a Chai counsellor and David<br />

continues to use its services. A year after<br />

Laurel’s death in July 2015, David began a<br />

series of fundraising runs with baby Ruby.<br />

‘We’re doing 10ks as it’s really challenging<br />

when you’re pushing a buggy,’ says David<br />

whose inspiring initiative has raised £2,350.<br />

SINAI GIRLS SWEET IDEA<br />

Sinai school friends Jessica Harris,<br />

Ella Baskin and Romy Lever, all nine,<br />

organised an after-school sweet sale and<br />

raised £90. What a yummy idea!<br />

Middle-Aged<br />

Men in Lycra<br />

BAR AND BAT MITZVAH STARS<br />

Thinking of Chai at the time of their simchas, our wonderful young supporters<br />

Aryeh<br />

Birnbaum<br />

Brook<br />

Goldenberg<br />

Chaim Ostreicher,<br />

Jakob Silber, Yanki<br />

Wolff, Moshe Fachler,<br />

David Regal<br />

Chana & Yitzi Weisz<br />

‘MAMILs’ IN THE SADDLE FROM<br />

LONDON TO PARIS<br />

Middle-Aged Men in Lycra (MAMILs),<br />

Chai physiotherapist, Graham Silas, with<br />

friends Jonny Goldberg, Gideon Kay<br />

and Richard Stephens took on the 350km<br />

London to Paris bike ride in August.<br />

‘Each of us is connected to Chai through<br />

work or because loved ones have used<br />

its services. We wanted to support it and<br />

prove to ourselves - and our wives – that<br />

we still had it in us!’ says Graham. They<br />

found their three days of effort ‘hugely<br />

inspiring’ and raised more than £7,500.<br />

Joel<br />

Toledano<br />

Pearl<br />

Maurice<br />

Zack<br />

Lovat<br />

HASMONEAN’S FIRST GIVE<br />

A team of five schoolboys from<br />

Hasmonean Boys’ School scooped second<br />

prize in the First Give competition,<br />

winning a £250 donation for Chai. The<br />

initiative encourages young people to give<br />

their time, tenacity and talents to improve<br />

their communities. The boys chose to visit<br />

Chai’s flagship to learn about its work.<br />

TZEDAKA GIFT<br />

Chana and Yitzi Weisz brought their<br />

tzedaka money into Chai in January,<br />

along with a truly touching message: ‘We<br />

had no idea how much a simple donation<br />

can help the kids at Chai. The team thinks<br />

of the best toys to buy for the children.’<br />

37


Chai Cancer Care Together Magazine 2016<br />

4 FOR THE CHOP<br />

Who knew plaits were so valuable? Talia Robeson<br />

raised £3,708 and Abigail Benaim almost £1,200 with<br />

their sponsored snips for Chai. Both girls donated their<br />

hair to Zichron Menachem, which makes wigs for<br />

children with cancer. Aurelia Hodes’ new bob made<br />

£1,750, and when Aviva Myerson’s mother, Esther,<br />

began losing her hair because of chemotherapy, she<br />

showed solidarity by being shorn too, raising £900.<br />

Talia Robeson<br />

Aurelia Hodes<br />

Aviva Myerson (right)<br />

and mother Esther<br />

Abigail Benaim<br />

THE BEST WAY TO<br />

RAISE MONEY FOR US<br />

Did you know Chai has its own fundraising<br />

platform? For Chai is a platform dedicated to helping<br />

you publicise your challenge and lets you post<br />

photographs, tell your story and update your sponsors<br />

on your progress and results. Best of all, unlike other<br />

fundraising platforms, it takes no cut from the money<br />

donated so every penny goes direct to support Chai’s<br />

services. It’s simple to get started and absolutely<br />

secure. Just go to chaicancercare.org and click on the<br />

For Chai link in the top right hand corner of the page.<br />

CHAI WOULD LIKE TO<br />

ACKNOWLEDGE OUR WONDERFUL<br />

SUPPORTERS WHO HAVE SET UP A<br />

FUNDRAISING PAGE IN AID OF CHAI<br />

David Abramson<br />

Julie Alexander<br />

Joyce Alexander-Black<br />

Joel Anderson<br />

Gerald Barc<br />

Jonathan Barr<br />

Abigail Benaim<br />

Daphne Berkovi<br />

Henny Bernstein<br />

Russell Black<br />

Emma Borkin<br />

Olivia Bucci<br />

Ian and Linda Burns<br />

Lorraine Burns<br />

Sara Canning<br />

Plateful of Love Cookbook<br />

Committee<br />

Hazel & Laurence Cohen<br />

David Cohen<br />

Jonathan Connick<br />

Karen Cooper<br />

Max Curtis<br />

Melanie Daniels<br />

Sandra Davis<br />

Lionel & Ben Davis<br />

Fahidi Family<br />

Benji Field<br />

Anthony Field<br />

Michelle Finesilver<br />

Zara Finestone<br />

Libby Fisher<br />

Jo Fishman<br />

Frankfurt Family<br />

Suzy Gold<br />

Lesley Gordon<br />

Joel Hilton<br />

Aurelia Hodes<br />

Susan Hyer<br />

Nicola Josephs<br />

Jackie Kramer<br />

Kramer Family<br />

Suzanne Langham<br />

Amber Rose Levene<br />

Michael Leventhal &<br />

Rachel Marcus<br />

Adam Lewis<br />

Jason Lipman<br />

Janine Lowy<br />

Hannah Mark<br />

Adam Marks<br />

Middle Aged Men in Lycra<br />

Hannah Martin<br />

Simon and Max Misrahi<br />

Shelley Molyneux<br />

Aviva Myerson<br />

Olivia Naylor<br />

Evie Nicholls<br />

Gabby Niman<br />

Roger Nyman<br />

Malcolm Persey<br />

Shelley Poll<br />

Lorraine Raphael<br />

Eleanor Richman &<br />

Charlotte Silver<br />

Talia Robeson<br />

Joshua Rom<br />

Linda Rose<br />

Natalie Rosen<br />

Fiona Scott<br />

Andrew Selzer<br />

Noah Shulman-Miller<br />

Judith Spevock<br />

Vivien Spevock<br />

Mitchell Stanton<br />

Tapnack Family<br />

Nikki Tapper<br />

Karen Treep<br />

Sammy Weinbaum<br />

Martin West<br />

Geoff Wynne<br />

10K Walk - Outlook<br />

Committee<br />

How YOU make<br />

the difference<br />

When you come to a<br />

Chai event or sponsor<br />

an intrepid trekker, take on<br />

a challenge or organise a<br />

fundraiser, you’re making a<br />

difference to many lives –<br />

and many generations.<br />

People like Nikky Schofield,<br />

her mother Lucille and<br />

daughter Izzy, who came<br />

to Chai back in 2012, when<br />

Nikky was diagnosed with<br />

breast cancer.<br />

A cancer diagnosis rarely<br />

affects just the patient.<br />

Children, parents, partners<br />

and siblings also have their<br />

world turned upside down.<br />

‘I’m not sure how we would<br />

WAYS TO GIVE<br />

On special occasions<br />

Nominate Chai to mark an event<br />

or celebration, in lieu of gifts<br />

Contact Jacki Stanton<br />

jackistanton@chaicancercare.org<br />

or call on 020 8457 3231<br />

Leave a legacy<br />

An enduring way to support<br />

Chai is with a legacy in your<br />

Will. Visit Jewish Legacy Giving<br />

(jewishlegacygiving.org.uk) to<br />

find out more. If you wish to tell<br />

us of your intention, we would<br />

have got through everything<br />

without Chai’s practical<br />

and emotional support,’<br />

says Nikky.<br />

The rising numbers of cancer<br />

diagnoses in those under 40<br />

and more people living with<br />

the effects of treatment,<br />

mean our services are<br />

continuously expanding and<br />

developing. And it’s thanks<br />

to you that they can.<br />

Your donation gives a child<br />

somewhere to explore their<br />

fragile feelings, you enable a<br />

person to regain their fitness<br />

and feel positive again, and<br />

you help ensure a husband<br />

can cope with his loss.<br />

be honoured to recognise your<br />

generosity during your lifetime.<br />

Contact Lisa Steele:<br />

lisas@chaicancercare.org<br />

or call 020 8457 3392<br />

Donate online<br />

The simplest and quickest way<br />

to donate. Click on the Make a<br />

Donation yellow tab on the top<br />

right hand side of our website.<br />

Call us<br />

For donations over the phone<br />

Call Jacki Stanton<br />

on 020 8457 3231<br />

or Janet Lloyd on 020 8457 2072<br />

Nikky (centre), mother Lucille and daughter Izzy<br />

– three generations supported by Chai<br />

On behalf of each generation<br />

who benefits from your loyalty<br />

and generosity, we give our<br />

heartfelt thanks and gratitude.<br />

By Post<br />

Send cheques or charity<br />

vouchers to:<br />

Chai Cancer Care<br />

142-146 Great North Way<br />

London NW4 1EH<br />

Gift Aid your donation<br />

If you are UK taxpayer,<br />

Gift Aid increases your<br />

donations by 25%. Tell<br />

us when you make your<br />

donation, or download a<br />

Gift Aid Declaration form<br />

from our website.<br />

38<br />

Chai Cancer Care Together 2016 Chai Cancer Care<br />

39


How<br />

does<br />

Chai<br />

care?<br />

Thanks to the generosity of the<br />

community, Chai Cancer Care<br />

provides specialised support to<br />

thousands of people across the<br />

UK who have been affected by<br />

a cancer diagnosis.<br />

To find out more please call our<br />

Freephone Helpline on<br />

0808 808 4567 or visit<br />

www.chaicancercare.org<br />

Advisory Services<br />

Advocacy & Information<br />

Advice Bureau<br />

Financial & Legal Guidance<br />

Image Resource Service<br />

Jewish Perspectives on Cancer<br />

Medical Connections<br />

Nutritional & Dietary Advice<br />

Resources & Information<br />

Counselling<br />

Counselling for Individuals,<br />

Couples & Families<br />

Counselling for Genetic Issues<br />

Music Therapy<br />

Relationship Counselling<br />

Telephone & Skype Counselling<br />

Children, Teenage<br />

and Family Service<br />

Art Therapy<br />

Music Therapy<br />

Play Therapy<br />

Therapies<br />

Manual Lymphatic Drainage<br />

Physiotherapy<br />

Medical Outpatient Rehabilitation<br />

and Palliative Care Service<br />

Complementary Therapies<br />

Acupuncture<br />

Aromatherapy<br />

Foot Care Service<br />

Healing<br />

Hot Stones<br />

Hypnotherapy<br />

Indian Head Massage<br />

Reflexology<br />

Reiki<br />

Therapeutic Massage<br />

Home Support Service<br />

Group Activities<br />

Art Workshop<br />

Computer Lessons<br />

Israeli Dancing<br />

Jewellery Workshop<br />

Knitting<br />

Meditation<br />

Music Workshop<br />

Open/Supervised Gym Sessions<br />

Pet Therapy<br />

Pilates<br />

Table Tennis<br />

Walking Group<br />

Yoga<br />

Support Groups<br />

BRCA Group<br />

Bereavement Groups<br />

Breast Buddies<br />

Groups for Cancer<br />

Patients/Carers<br />

Lifestyle Group<br />

Volunteer Service<br />

Services are available at:<br />

North West London<br />

South London<br />

Essex<br />

Hackney<br />

Southend<br />

Birmingham<br />

Leeds<br />

Liverpool<br />

South Manchester<br />

North Manchester<br />

Glasgow<br />

Clients’ Homes<br />

Chai Lifeline Cancer Care Registered Charity No. 1078956<br />

Together 2016

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