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2016 issue 11<br />
Going the<br />
extra mile,<br />
WHATEVER<br />
IT TAKES<br />
FITNESS and<br />
<strong>LIFESTYLE</strong><br />
REPORTS<br />
● Tackling cancer’s taboos<br />
● MEETING THE NEED IN THE NORTHWEST WITH<br />
MANCHESTER’S NEW HUB<br />
● The inspirational story behind Chai’s new best-seller
2016 issue 11<br />
Chai Cancer Care<br />
Together Magazine 2016<br />
Contents<br />
A Welcome Message<br />
When Chai was founded 26 years<br />
ago, no one could have imagined<br />
how cancer treatment, care and<br />
support would have changed. We are<br />
regularly bombarded with statistics<br />
about rates for diagnoses and<br />
survival but Chai has always focused<br />
on the person behind the number: the<br />
person we know, the person we love.<br />
Our services have been shaped by<br />
listening to each client’s needs and<br />
by understanding what the impact of<br />
a cancer diagnosis means for them<br />
and their loved ones on a daily basis.<br />
In this issue, you will witness this<br />
knowledge and experience in action:<br />
through palliative and therapeutic<br />
services, which address the effects<br />
of surgery and treatment; group and<br />
fitness activities that build confidence<br />
and health; expert advice we can<br />
all act on to improve our wellbeing;<br />
and counselling support that ensures<br />
clients have a place where they can<br />
ask the impossible questions and<br />
safely express their feelings.<br />
As we continue to respond to the<br />
increase in the number of people<br />
diagnosed with cancer, read how<br />
our expanded Manchester hub is<br />
answering the need for more support<br />
across the north-west. This is a<br />
massive boost to our ability to deliver<br />
services, which are now available at<br />
11 centres across the UK.<br />
We are constantly inspired by the<br />
community’s incredible commitment<br />
to Chai and I’m sure you will be<br />
uplifted and moved by the story of<br />
one family’s remarkable fundraising<br />
project. With no statutory funding,<br />
the delivery of our services depends<br />
on the loyalty and generosity of<br />
our much-appreciated donors,<br />
committees and supporters, and we<br />
count ourselves truly blessed.<br />
Thank you for continuing to keep<br />
Chai in your hearts.<br />
Louise Hager<br />
Chairman<br />
4 Ahead of the curve<br />
Cancer survival rates are increasing but so<br />
is the need for support. Chief Executive,<br />
Lisa Steele reports<br />
6 Chai’s northern powerhouse<br />
Answering an urgent need –<br />
our Manchester centre is<br />
expanding<br />
8 Circle of Light Dinner<br />
– Manchester<br />
Chai’s northern supporters turn out in<br />
force to show their commitment<br />
10 Cancer prevention,<br />
society and you<br />
Professor Peter Sasieni on<br />
simple lifestyle changes that<br />
can make a difference<br />
12 Let’s talk taboos<br />
There’s no need to stay silent about how<br />
cancer has affected you – we’re here<br />
with advice and understanding<br />
16 Shared benefits<br />
New group activities at<br />
the flagship centre include<br />
guided meditation, and<br />
knitting for the novice or<br />
the experienced<br />
17 Service spotlight:<br />
Pet therapy<br />
Discover who’s delivering<br />
unconditional love, on four legs<br />
18 A plateful of love<br />
How Colin Lehmann inspired<br />
his family to write a<br />
cookbook to support Chai<br />
19 Special section:<br />
25th anniversary<br />
Circle of Light Dinner<br />
– London<br />
The night we celebrated a landmark<br />
event in Chai’s history<br />
24 Lymphoma therapy update<br />
Genetic advances are revolutionising<br />
treatments for blood cancer.<br />
Dr Christopher McNamara<br />
26 Believing in better<br />
Chai benefactors Andrew and Orly<br />
Wolfson on why they like organisations<br />
that disrupt and redefine the status quo<br />
28 The F Factor<br />
Exercise is indisputably<br />
important for our health and<br />
wellbeing – Chai can help<br />
clients regain their fitness<br />
CHAI CANCER CARE<br />
Requests the pleasure of your company at<br />
The 2016 Natalie Shipman Memorial Lecture<br />
31 Service spotlight: manual<br />
lymphatic drainage update<br />
Treatment for lymphoedema is now more<br />
effective thanks to new equipment<br />
32 Chai Calendar<br />
Catch up on all the activities, talks and<br />
events that have helped Chai deliver<br />
its services<br />
35 Chai Challenges You!<br />
Sign up for an exhilarating 24-hour<br />
fundraising adventure in the Lake District<br />
36 You’re amazing!<br />
Thanks to everyone for the<br />
ingenious ways they raised<br />
money for Chai in<br />
the past 12 months<br />
39 How you make the<br />
difference/<br />
Ways to give<br />
How we supported three<br />
generations through a<br />
cancer diagnosis.<br />
Plus, easy ways to<br />
donate to Chai<br />
Going the<br />
extra mile,<br />
WHATEVER<br />
IT TAKES<br />
FITNESS and<br />
<strong>LIFESTYLE</strong><br />
REPORTS<br />
President<br />
The Rt. Hon. Lord Young of<br />
Graffham CH DL<br />
Founder Presidents<br />
Susan Shipman<br />
Frances Winegarten z’l<br />
Chairman<br />
Louise Hager<br />
Chief Executive<br />
Lisa Steele<br />
Trustees<br />
Louise Hager<br />
Jonathan Hodes<br />
Lady Kalms MBE<br />
Susan Shipman<br />
Dr Adrian Tookman<br />
Philip Weinstein<br />
Lord Young CH DL<br />
Honorary Patrons<br />
Maureen Lipman CBE<br />
Chief Rabbi Ephraim Mirvis<br />
Medical Patrons<br />
Prof Michael Baum<br />
Prof Michael Brada<br />
Dr Rachel Craig<br />
Prof Michael Douek<br />
Prof Andrew Eder<br />
Prof Rosalind Eeles<br />
Dr Ian Ellis<br />
Mr Daren Francis<br />
Miss Joanna Franks<br />
Prof Anthony Goldstone CBE<br />
Prof Daniel Hochhauser<br />
Prof Gordon Jayson<br />
Mr Amir Kaisary<br />
Dr David Landau<br />
Prof Jonathan Ledermann<br />
Dr Jane Neerkin<br />
Prof Gordon Rustin<br />
Prof Karol Sikora<br />
Prof Albert Singer<br />
Prof Stephen Spiro<br />
Dr Adrian Tookman<br />
Advisory Board<br />
Brian Brick<br />
Jo Coleman<br />
Alan Fell<br />
Jonathan Freedman<br />
Michael Glass<br />
Diane Kenwood<br />
Alexandra Maurice<br />
Robert Prevezer<br />
Marc Samuels<br />
Dr Adrian Tookman<br />
Understanding Cancer’s Complexity –<br />
its implications for the future of new<br />
drug treatments<br />
Keynote Speaker:<br />
Professor Charles Swanton,<br />
Professor of Cancer Medicine,<br />
University College London Hospitals<br />
and Cancer Institute and Senior Group<br />
Leader, The Francis Crick Institute<br />
Date: Tuesday 6th December 2016<br />
Doors open: 7pm<br />
Lecture begins: 7.30pm<br />
Chai Cancer Care<br />
142-146 Great North Way<br />
London NW4 1EH<br />
Admission free, by ticket only<br />
Please call 020 8202 2211 to<br />
reserve a place<br />
● Tackling cancer’s taboos<br />
● MEETING THE NEED IN THE NORTHWEST WITH<br />
MANCHESTER’S NEW HUB<br />
● The inspirational story behind Chai’s new best-seller<br />
This edition of together is generously<br />
sponsored by The Emmes Foundation<br />
Editor: Deborah Wald<br />
Design: Creative & Commercial<br />
© Chai Cancer Care 2016<br />
Cover: Chai’s MAMILs (middle-aged<br />
men in lycra) on the London to Paris<br />
bike ride. See p37 for the full story<br />
2 3<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Chai Cancer Care Together Magazine 2016<br />
AHEAD<br />
of the curve<br />
Back in the 1970s and for much<br />
of the 80s, too, the idea that a<br />
person would need help and support<br />
to get their life back on track after<br />
cancer treatment wasn’t commonplace.<br />
Little attention was paid to long-term<br />
quality of life issues for the person who<br />
survived. It was enough just to have got<br />
through it, never mind the continuing<br />
impact on the patient or their family.<br />
Earlier this year, Macmillan published<br />
Cancer: then and now, a report on<br />
diagnosis, treatment and aftercare from<br />
1970-2016. There was positive news<br />
within: people are now twice as likely<br />
to survive at least 10 years after being<br />
diagnosed with cancer as they were<br />
at the start of the 1970s. More than<br />
170,000 people diagnosed with cancer<br />
in the 70s and 80s are alive today.<br />
Currently, 2.5 million people are living<br />
with cancer in the UK and by 2030,<br />
that figure will reach at least 4 million.<br />
A complex transition<br />
These ‘good’ statistics, and the<br />
implications for the future of cancer<br />
care detailed in Macmillan’s report, are<br />
not news to Chai. We have long been<br />
aware that the combination of medical<br />
and wellbeing advances, and an ageing<br />
population mean that today cancer is<br />
often a chronic rather than a terminal<br />
condition. But, like Macmillan, we<br />
also frequently hear people talk of<br />
having ‘fallen off a cliff’ as they try<br />
to adjust to the complex emotional<br />
and physical after-effects of cancer<br />
treatment. For example, a person living<br />
with or beyond cancer may suffer<br />
other illnesses, such as diabetes, heart<br />
problems or kidney disease. They may<br />
experience nerve pain (neuropathy),<br />
fatigue, digestive and bowel problems,<br />
which result in enduring day-to-day life<br />
changes. Even when cancer leaves no<br />
permanent physical changes, a person<br />
may feel differently about their body.<br />
Chai helps clients deal with the impact<br />
of the many physical and psychological<br />
changes with therapeutic treatments,<br />
nutritional advice, physiotherapy,<br />
fitness and body image support as well<br />
as through our Medical Outpatient<br />
Rehabilitation and Palliative Care and<br />
Clinic, which opened in 2011.<br />
How we approach the care of cancer patients<br />
and their families is changing dramatically.<br />
As we understand more about the impact of<br />
a diagnosis, Chai’s leads the way.<br />
By Chief Executive Lisa Steele<br />
“Cancer changes<br />
relationship dynamics.<br />
Our services address<br />
the physical and<br />
psychological impact<br />
of these changes”<br />
The shift towards cancer survival<br />
does not however mean we are any<br />
less focused on supporting those who<br />
are facing a less positive outcome,<br />
nor less aware of the family members<br />
whose lives are also deeply affected –<br />
in fact 40% of our clients are not the<br />
patient. Cancer changes relationship<br />
dynamics as roles are reversed, familiar<br />
activities are put on hold and economic<br />
pressures build. Our services address<br />
the impact of these changes. We<br />
provide individual, couples and family<br />
counselling, as well as art and music<br />
therapy for those who find it difficult<br />
to articulate their feelings in a usual<br />
counselling setting. A specialist advisor<br />
can help clients with form-filling in<br />
order to claim benefits, including those<br />
that are non-means tested. Chai can<br />
also refer clients to agencies that offer<br />
practical support or volunteers to help<br />
ease everyday pressures: cooking,<br />
keeping on top of bills, shopping,<br />
picking the children up from school…<br />
And if there is a bereavement, Chai<br />
continues to provide services for as<br />
long as they are needed.<br />
In its 26 years, since Chai began<br />
operating as a telephone information<br />
and helpline service, it has pioneered<br />
innovative responses. Just one example<br />
is our ‘Chai in Schools’ programme,<br />
which brings counsellors and therapists<br />
into the school environment to support<br />
pupils who are affected by a diagnosis<br />
in their family. It also gives teachers<br />
essential training in how best to deal<br />
with and respond to the challenges<br />
these youngsters are experiencing.<br />
We foresee pressure on this service<br />
increasing as, sadly, more young<br />
parents are diagnosed. Just one day<br />
recently saw 10 children from three<br />
families register with us.<br />
The expansion of our premises in<br />
Manchester could not be more timely<br />
and enables us to significantly add to<br />
the range and number of services that<br />
will be of benefit to clients across the<br />
north-west region. At the same time,<br />
our Home Support Service continues<br />
to bring vital services to those who are<br />
too unwell to come to us or live far<br />
from a satellite.<br />
Predicting the need<br />
Chai has always strived to stay ahead<br />
of the curve and the Macmillan report<br />
highlights services we already provide<br />
as vital to address the challenges of the<br />
“Chai now provides<br />
upwards of 50 different<br />
services, across a<br />
nationwide network of<br />
satellites and hubs”<br />
future. For though the the years ahead<br />
contain many positive predictions, our<br />
infographic, below, illustrates the surge<br />
in need going forward. By 2020, we are<br />
looking at fulfilling upwards of 20,000<br />
NUMBER OF CLIENTS AND APPOINTMENTS OVER THE YEARS<br />
client appointments – with all that<br />
implies for the running costs we will<br />
have to find.<br />
Whatever the developments in cancer<br />
care, the one constant that does not<br />
change is the impact a diagnosis has on<br />
the patient and their family. We need<br />
to reach more people and let them<br />
know about Chai’s services. We need<br />
to overcome any remaining taboos<br />
about seeking support – it takes just<br />
one phone call or email to access our<br />
multi-levelled support. To meet our<br />
clients’ many and diverse needs, Chai<br />
now provides upwards of 50 different<br />
services, across a nationwide network<br />
of care hubs and satellites.<br />
I am hugely conscious of the task Chai<br />
has up ahead and immensely proud of<br />
the teams of counsellors and therapists,<br />
client services managers, volunteers<br />
and medical advisors who are dedicated<br />
to delivering these services with such<br />
empathy, care and professionalism. ■<br />
Just 10 years ago, Chai was supporting almost 400 clients. That figure will exceed 4,000 in a little over three years.<br />
The increase in diagnoses, along with the more complex care needs of clients means<br />
an inexorable rise in demand for services, with appointments reaching almost 20,000 by 2020.<br />
2006 2011 2015 2020<br />
Number of active clients to the nearest 100 Number of appointments to the nearest 100<br />
4 5<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Chai Cancer Care<br />
THERAPY<br />
ROOM<br />
FAMILY<br />
Chai’s northern<br />
POWERHOUSE<br />
With an expansion<br />
of its presence in<br />
Manchester, Chai<br />
can now give clients<br />
across the north-west<br />
an unparalleled level<br />
of expert support and<br />
care. We take a look<br />
at the exciting new<br />
development<br />
Statistics can be impersonal things.<br />
When one hears the number of people<br />
diagnosed with cancer is rising – more<br />
than 1000 every day by the end of 2016*<br />
– it doesn’t always mean anything…<br />
until you, a member of your family, or<br />
a friend becomes one of those statistics.<br />
The rise in diagnoses is sharply reflected<br />
in the need for Chai’s services in the<br />
north-west. Since its first satellite in<br />
North Manchester in 2009, three more<br />
have launched in order to keep pace with<br />
demand: in South Manchester in 2010,<br />
Liverpool in 2012 and Leeds in 2013.<br />
Based in just three rooms in the<br />
Heathlands Village in North Manchester,<br />
Building for the future in Manchester: l-r,<br />
Sharie Morrison, office administrator; Johanne Harrison,<br />
client service manager, Lewis Harris, physiotherapist<br />
and supplemented by home visits, Chai<br />
has achieved big and small miracles and<br />
now supports more than 340 clients across<br />
the region. But that doesn’t tell the full<br />
story. Chai’s impact ripples far wider<br />
than this core number to a much bigger<br />
circle of friends and family. Manchester<br />
is the fastest growing community outside<br />
London and the need for Chai’s services<br />
is increasing every day. The recent<br />
refurbishment of the existing site has<br />
afforded it the chance to fulfil its ambition<br />
to open a purpose-built centre right where<br />
it is needed most. It sees a dramatic<br />
increase in footage to half an entire floor<br />
and gives Chai the space to provide a<br />
broader scope of services to many more<br />
*Macmillan, 2015<br />
people. The mutual respect that exists<br />
between Chai and its landlords,<br />
The Fed (The Federation of Jewish<br />
Services), ensures both organisations<br />
retain their distinct identities,<br />
independence and most importantly,<br />
the confidence of clients using Chai.<br />
Chief Executive Lisa Steele explains<br />
the thinking behind the expansion.<br />
‘Chai’s reputation for providing a<br />
highly professional service delivered<br />
from the heart now has the potential<br />
to do much more. This will be a place<br />
where clients can come to escape the<br />
world of medical appointments and<br />
treatment, where they will feel safe<br />
and supported in a calm and soothing<br />
environment, and where everything<br />
is focused on their needs.’ Clients can<br />
attend for a single appointment, of<br />
course, but may take the opportunity to<br />
stay on and benefit from other services<br />
available: a counselling session,<br />
therapeutic treatment or group activity,<br />
for example, music or art workshops.<br />
Those living further afield in south<br />
Manchester, Liverpool and Leeds may<br />
FACILITIES AT CHAI’S<br />
MANCHESTER<br />
CENTRE WILL NOW<br />
INCLUDE:<br />
• 3 counselling rooms<br />
• 3 therapy rooms<br />
• A family counselling room<br />
• Fitness suite<br />
• Therapy kitchen<br />
• Children’s play/art/music<br />
therapy room<br />
• Group activities room<br />
We’re creating<br />
a place where<br />
clients can come<br />
to escape the<br />
world of medical<br />
appointments<br />
and treatment”<br />
also decide to book appointments on<br />
days when other scheduled activities<br />
are taking place. (Volunteers provide<br />
transport for anyone needing it.)<br />
‘We know from feedback at the<br />
London flagship centre that Chai<br />
can be a pivot for the person’s week,<br />
providing a positive focus,’ says Lisa.<br />
‘It’s where they can be themselves<br />
with no pretence. Meeting, sharing<br />
experiences and information, and<br />
even laughing with others who have<br />
that bond of understanding can be<br />
comforting and help to reduce the<br />
sense of isolation that one can feel.’<br />
Many of the services that will roll out<br />
are in response to client requests. So<br />
as well as more rooms for individual<br />
and family counselling, there will<br />
be space for therapeutic groups<br />
including BRCA, Breast Buddies,<br />
Prostate, bereavement and carers<br />
support. Physical activities such as<br />
gentle movement, Pilates, yoga, and a<br />
fully-equipped gym, will be offered.<br />
To address the dramatic rise in young<br />
parents being diagnosed with cancer,<br />
priority has been given to an area<br />
for creative therapies – art, music,<br />
play – which are so vital in helping<br />
children and young adults work<br />
through their feelings. While their<br />
child is in their session, the parent can<br />
have counselling, a complementary<br />
therapy, or simply relax. And to<br />
help clients adjust to changed eating<br />
patterns, a nutritionist will host oneto-one<br />
and group nutritional advice<br />
sessions in a new therapy kitchen.<br />
Of course, the realisation of this<br />
‘northern powerhouse of care’ comes<br />
at a price – the running costs are<br />
£450,000 a year – all dependent on<br />
donations. The Manchester ‘Circle of<br />
Light’ dinner held in June went some<br />
way to covering the first year’s costs<br />
(see p8 for the evening’s highlights).<br />
Johanne Harrison, who has been<br />
Manchester’s client services manager<br />
for six years says, ‘Our hope is that<br />
our new presence will encourage<br />
more people to seek us out. We<br />
want to raise awareness and word<br />
of mouth is very successful in doing<br />
that. As a result of the Manchester<br />
dinner in June, more clients have<br />
come forward and have started using<br />
our services. This is an exciting move<br />
for Chai – and it’s a privilege to be<br />
able to make a bigger difference to<br />
the lives of all those who need us.’ ■<br />
It’s a privilege<br />
to be able to<br />
make a bigger<br />
difference to the<br />
lives of all those<br />
who need us”<br />
FITNESS SUITE<br />
6 7<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Chai Cancer Care Together Magazine 2016<br />
Michelle & David Haffner<br />
THE Manchester<br />
CIRCLE OF LIGHT DINNER<br />
Michael & Jacky Edelson<br />
David & Julia Eventhall, Robert & Sally Levy<br />
Sally &<br />
Michael Cohen<br />
Andrew &<br />
Michelle Kingsley<br />
Marion &<br />
Alan Dobkin<br />
Jacky & Anthony Lyons<br />
Pamela & Brian Samuels<br />
Carol, Maxine & Stuart Marks<br />
David &<br />
Michelle Rothburn<br />
Richard &<br />
Michelle Deacon<br />
Karen Phillips<br />
& Lynne Attias<br />
The reason was the launch of the new<br />
Chai Cancer Care centre in North<br />
Manchester: the occasion in June, a<br />
fundraising dinner, only the second in<br />
Manchester in five years. Speaking to<br />
470 guests at the Hilton, Deansgate,<br />
Louise Hager recalled that when Chai<br />
answered the community’s call for its<br />
cancer support services in 2009, there<br />
were just seven clients. Currently, more<br />
than 340 cancer patients and their loved<br />
ones are benefitting from their services<br />
and with satellites in south Manchester,<br />
Leeds and Liverpool, it continues to<br />
respond to the region’s growing need.<br />
In his welcome speech, Stuart Marks<br />
described Chai as the ‘northern<br />
powerhouse of cancer care,’ adding,<br />
‘We need to ensure that we give all those<br />
affected by a cancer diagnosis and their<br />
families a place to go here in our city<br />
that will match everything that gives<br />
Chai in London its global reputation<br />
as the leader in supportive cancer care.’<br />
The new hub will provide expanded<br />
and innovative services to deal with<br />
long-term complexities, and offer vital<br />
support to the families of young parents<br />
diagnosed with cancer.<br />
Thanking the table hosts for achieving a<br />
capacity-filled room, Louise reminded<br />
guests that Chai’s services are funded<br />
entirely by donations and paid tribute to<br />
the generosity, enthusiasm and support<br />
of Gabrielle and Mark Adlestone, and<br />
The Fed, in helping this vital project<br />
come to fruition.<br />
After watching a hugely moving film<br />
testimony from two Manchester-born<br />
Chai clients, Elliot and Tara, guests<br />
pledged an astonishing £275,000<br />
towards the centre’s £450,000 annual<br />
running costs. Two former Chai<br />
Manchester clients, Jane Mechlowitz<br />
and Michal Mocton gave the vote<br />
of thanks and guests enjoyed some<br />
dazzling big band entertainment. ■<br />
Amanda Adshead, Michal Mocton,<br />
Jane Mechlowitz, Lisa Steele, LisaCohen<br />
-Binder, Louise Hager, Clare Spieler<br />
Daliah and David Mechlowitz<br />
Reba & Bernard Tury<br />
Tania &<br />
Leonard Seitler<br />
Sue & Neville Johnson<br />
Gilly & Max Moryoussef<br />
Susan & Andrew Terry<br />
Danny & Noemie Lopian<br />
Eli & Estee Pine<br />
Geoff &<br />
Marcelle Kuhillow<br />
Andrew Sciama, Phil Hodari,<br />
Robert & Lecia Simon Andrew & Karen Chaytow Jack Shalom, Anthony Davis<br />
Mark & Gabrielle Adlestone<br />
8 9<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
Photography: Rob Clayton
Chai Cancer Care Together Magazine 2016<br />
Cancer prevention,<br />
society and you<br />
Unless society takes some radical measures, 50% of us<br />
will get cancer. Even for a ‘glass half full’ person, that’s<br />
a sobering statistic. But it’s within our power to change<br />
the odds, says Professor Peter Sasieni<br />
Peter Sasieni is Professor<br />
of Biostatistics and<br />
Cancer Epidemiology<br />
in the Wolfson Institute<br />
of Preventive Medicine<br />
at Queen Mary<br />
University of London.<br />
He is Director of the Cancer Research UK<br />
funded Cancer Prevention Trials Unit,<br />
and Vice Director of the Department of<br />
Health’s Policy Research Unit in Cancer<br />
Awareness, Screening and Early Diagnosis.<br />
Professor Sasieni’s research encompasses<br />
both cancer screening and prevention (with<br />
particular interest in cervical cancer), as<br />
well as the design and analysis of clinical<br />
trials. He has contributed to more than 200<br />
scientific publications and sits on a number<br />
of advisory and grant award committees.<br />
Theoretically, we could prevent<br />
nearly two-thirds of all cancers. A<br />
realistic challenge would be to prevent<br />
one-third by 2035 – that would mean<br />
over 100,000 fewer people getting<br />
cancer each year in the UK.<br />
Cancer prevention takes place at three<br />
levels: society needs to change the<br />
social and economic factors that affect<br />
lifestyles; individuals need to adopt<br />
healthy behaviours; and safe clinical<br />
interventions need to be offered to<br />
those at greatest risk. Many people<br />
assume that we can only prevent<br />
cancers that are linked to modifiable<br />
behavioural and environmental factors,<br />
but there is much that can be done<br />
medically, even for those with a genetic<br />
predisposition to cancer.<br />
HELP FOR SMOKERS<br />
Tobacco smoking is the most<br />
important risk factor for cancer,<br />
responsible for more than 60,000 UK<br />
cancers each year (19.4% of all<br />
cancers). It is not enough to simply tell<br />
smokers they should stop. Society<br />
needs to help prevent teenagers from<br />
starting and to offer support to adults<br />
to quit. Increased pricing (through<br />
taxation) has been extremely effective<br />
over the years in reducing<br />
consumption. Banning advertising,<br />
particularly those which are aimed<br />
at children, is both morally right<br />
and an effective measure. Outlawing<br />
smoking in enclosed public spaces<br />
and standardised tobacco packaging<br />
legislation also play a role in changing<br />
attitudes so that smoking is no longer<br />
viewed as socially acceptable.<br />
Tobacco control also means supporting<br />
individuals who want to quit. There<br />
have been great advances in both the<br />
advice and psychological strategies<br />
and the pharmacological options<br />
(e.g. nicotine patches) offered by<br />
stop-smoking services and these<br />
significantly increase the likelihood of<br />
quitting. Electronic or e-cigarettes offer<br />
a revolutionary approach that may<br />
have a dramatic impact on cancer risk.<br />
Although controversial, e-cigarettes are<br />
undoubtedly much safer than tobacco<br />
smoking. Many smokers find it easier<br />
to switch to vaping (e-cigarettes)<br />
than quitting, and the introduction<br />
of e-cigarettes has not led to more<br />
children lighting up. E-cigarettes could<br />
have a major role to play in preventing<br />
many of the 60,000 cancers currently<br />
caused by smoking.<br />
HEALTHY – THE<br />
DEFAULT CHOICE<br />
Other behavioural factors<br />
important in the prevention<br />
of cancer include poor diet<br />
(accounting for 9.4% of all cancers<br />
in the UK); being overweight and<br />
obesity (5.5%); alcohol (4.0%)<br />
and lack of exercise (1.0%). As<br />
with smoking, more needs to be<br />
done, both by society to encourage<br />
individuals to default to healthy<br />
choices and by each person to<br />
take responsibility for their own<br />
behaviours. Schools can provide<br />
children with healthy food and<br />
make it difficult to buy unhealthy<br />
options. Similarly, more should<br />
be done in our communities to<br />
consider what we eat and drink at<br />
social occasions. The new sugar<br />
tax to be introduced in the UK is<br />
welcome, but it will only work if<br />
there is a price differential between<br />
taxed and un-taxed products.<br />
“More needs to be<br />
done to encourage<br />
individuals to<br />
default to healthy<br />
choices”<br />
In case you are wondering<br />
what constitutes a healthy diet<br />
(for cancer prevention), you<br />
should have at least five portions<br />
of vegetables and fruit each<br />
day; avoid red and particularly<br />
processed meat; eat plenty of<br />
fibre; and reduce your salt intake.<br />
If you don’t already exercise,<br />
taking half an hour of moderate<br />
exercise at least five times per<br />
week could reduce your risk<br />
of bowel cancer by 25%.<br />
VACCINATION GAINS<br />
Clinical interventions to prevent<br />
cancer may either be offered to<br />
the whole population or targeted<br />
at particular high-risk groups.<br />
The most successful population<br />
intervention is the human<br />
papillomavirus (HPV)<br />
vaccination. HPV is an extremely<br />
common infection that<br />
occasionally causes cervical<br />
cancer (and certain other cancers<br />
too). Vaccination against the two<br />
most important cancer-causing<br />
strains of HPV is already offered<br />
to 12- to13-year-old girls and a<br />
new vaccine that prevents an<br />
additional five strains of the virus<br />
has been licensed. These safe,<br />
effective, vaccines could almost<br />
eliminate cancers of the cervix,<br />
anus, and tonsils. It is unfortunate<br />
that in some circles there is poor<br />
uptake of the vaccine and this<br />
could lead to avoidable cases of<br />
cervical cancer in the future.<br />
SIMPLE AND<br />
SURGICAL OPTIONS<br />
Aspirin could have a substantial<br />
impact on preventing cancer.<br />
Someone aged 50 could reduce<br />
their risk of cancer by about 5%<br />
by taking a mini-aspirin daily<br />
for 15, years with minimal sideeffects.<br />
Continuing after the age<br />
of 65 might prevent up to 9%<br />
of cancers, though it would be<br />
associated with a greater risk of<br />
serious side-effects. Other drugs<br />
(e.g. tamoxifen and aromatase<br />
inhibitors) reduce the risk of<br />
breast cancer by 30-50%, but<br />
are associated with side-effects<br />
so are only recommended for<br />
women at elevated risk.<br />
Finally, surgery can be used<br />
to prevent cancer in those at<br />
extreme risk. Following the<br />
experience of Angelina Jolie,<br />
there is greater awareness of<br />
the use of mastectomy (breast<br />
removal) and oophorectomy<br />
(ovary removal) in women<br />
with genetic mutations (such as<br />
BRCA1 and BRCA2 mutations<br />
which are more common in<br />
Ashkenazi women) for breast<br />
and ovarian cancer. Major<br />
surgery is also used in individuals<br />
with a certain genetic condition<br />
that puts them at extremely<br />
high risk of bowel cancer. The<br />
more common use of ‘surgery’<br />
is to remove pre-cancers found<br />
on either cervical or bowel<br />
screening. In both cases this<br />
can usually be done as an<br />
out-patient procedure without<br />
a general anaesthetic and is<br />
extremely effective. Cervical<br />
screening has been attributed<br />
with preventing 80% of cervical<br />
cancers in regular attendees and<br />
the bowel scope screening could<br />
have a similarly dramatic impact<br />
on cancers in the lower part of<br />
the bowel. ■<br />
The next leap<br />
forward: take<br />
responsibility<br />
• Eat healthily<br />
and undertake<br />
moderate<br />
exercise several<br />
times a week<br />
• Try to maintain<br />
a healthy weight<br />
• If you smoke, try<br />
vaping instead<br />
• Encourage your<br />
daughters to<br />
get vaccinated<br />
against HPV<br />
• Take advantage<br />
of bowel scope<br />
and cervical<br />
screening<br />
• Seek professional<br />
advice if you<br />
have a strong<br />
family history<br />
of cancer<br />
• Discuss taking<br />
aspirin with<br />
your GP<br />
10 11<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Chai Cancer Care<br />
Together Magazine 2016<br />
While cancer may no<br />
longer be life limiting, it<br />
can be life changing. The<br />
side effects of cancer can<br />
be difficult to cope with, let<br />
alone talk about. Both the<br />
patient and their family<br />
can break the silence, with<br />
support from Chai<br />
LET’S<br />
There are a lot of elephants in the room<br />
for a person with a cancer diagnosis,<br />
as well as for their loved ones. Sometimes<br />
a subject is so sensitive it is very difficult<br />
to raise. Or it may seem trivial compared<br />
to cancer itself. Family members may feel<br />
guilty – and stay silent, therefore – about<br />
their own anxieties. After all, they’re not<br />
the one with cancer.<br />
‘Patients mostly want to be asked about their<br />
possible concerns rather than bring them up<br />
themselves,’ says Dr Rachel Craig, Consultant<br />
in Palliative Care Medicine who runs the<br />
Chai Medical Outpatient Rehabilitation and<br />
Palliative Care Service in collaboration with<br />
the Royal Free Hospital and Marie Curie<br />
Hospice. Many of the taboos for both men<br />
and women relate to body image, caused<br />
by the physical and psychological impact of<br />
surgery and treatment. ‘These changes can<br />
make a person feel a great sense of loss and<br />
disorientation as their notion of themselves<br />
alters,’ explains Rachel. ‘It’s important to<br />
ask questions and to accept how difficult it<br />
is for the patient. Living with cancer, or after<br />
treatment, is not the same as living prior to a<br />
diagnosis and people need help to find their<br />
“new normality”. Chai offers a space for these<br />
taboo conversations to take place.’<br />
BREAST SURGERY AND<br />
MASTECTOMY<br />
taboos<br />
The reasons for breast surgery include not<br />
only being diagnosed with cancer, but also<br />
preventative measures against it occurring.<br />
‘No woman wants to hear that she needs<br />
breast surgery. It can make you feel you<br />
are losing part of your womanhood,’<br />
acknowledges Jo Franks, consultant breast<br />
and oncoplastic surgeon and Chai medical<br />
patron. ‘You need time to take stock but<br />
the diagnosis, treatment and post-surgery<br />
decisions all seem to come at once.’<br />
12 13<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
TALK<br />
HAIR LOSS<br />
Not all chemotherapy treatment (or<br />
radiotherapy) causes hair loss but where it<br />
does, the sight of excessive amounts of<br />
hair on the pillow or in the shower can be<br />
shocking, sometimes more so than the<br />
cancer, surgery or treatment. ‘Our<br />
confidence is closely linked to how we<br />
look. Hair loss is a very visual sign of<br />
having cancer and compounds how<br />
emotionally exposed one feels,’ says Chai<br />
hairdressing consultant Simon Barker from<br />
Hair on Broadway in North West London.<br />
He sees clients at the Image Resource<br />
Room at Hendon.<br />
The patient’s own chemotherapy nurse,<br />
along with a Chai counsellor and image<br />
consultant, can give clients psychological<br />
support and practical ways to deal with<br />
hair loss. One option is to cut the hair very<br />
short before treatment, or to wear a soft<br />
hat in bed to collect falling hair. Telling<br />
children what’s happening prepares them<br />
for the changes, too, and lessens their<br />
bewilderment. ‘Many women will opt<br />
for a wig and/or scarves during hair loss,<br />
but everyone’s response is personal,’ says<br />
Simon. ‘One client shaved it all off and<br />
wore nothing. Her attitude was, “I’m going<br />
to decide whether and when I have hair or<br />
not.” It gave her back some control.’<br />
Nursing specialists within an oncology<br />
team help the patient to understand<br />
the process of surgery and to navigate<br />
decisions about reconstructive<br />
surgery. This includes seeing photos<br />
of a mastectomy with and without<br />
reconstruction, handling implants and<br />
considering using their own body tissue<br />
(taken from the lower abdomen, back or<br />
‘love handles’) for the reconstruction.<br />
Jo feels there are psychological<br />
advantages to reconstructing the breast<br />
at the time of surgery ‘because it offers<br />
continuity – you go to sleep with your<br />
breast and you wake up with a new<br />
one.’ For some women, however, this is<br />
not always appropriate or possible, and<br />
their adjustment after surgery will take a<br />
different path. Less often acknowledged<br />
is breast cancer in men who are also<br />
confronted with the consequences of<br />
an altered body. Chai supports every<br />
client through the changes they are<br />
experiencing: relationship counselling<br />
helps individuals and couples discuss<br />
body image, emotional and intimacy<br />
issues; there is a bra-fitting service;<br />
manual lymphatic drainage can help<br />
manage the impact of lymphoedema<br />
(swelling) after surgery; the BRCA<br />
Support Group gives those at high<br />
risk of developing breast cancer an<br />
opportunity to discuss their dilemmas;<br />
and Breast Buddies lets clients at any<br />
stage of breast cancer share their feelings<br />
and experiences in a counsellor-led group.<br />
Living with<br />
cancer, or<br />
after treatment<br />
is not the same<br />
as living prior to<br />
a diagnosis and<br />
people need help<br />
to find their ‘new<br />
normality’”
Chai Cancer Care Together Magazine 2016<br />
STOMAS<br />
Some types of cancer surgery – located<br />
low in the bowel or in the rectum – may<br />
result in the need for a stoma. This is a<br />
surgical opening, attached to an external<br />
bag that collects faecal and/or urinary<br />
matter. The bag is fitted immediately<br />
post-surgery and the patient empties it<br />
regularly, so it’s a fast learning curve. ‘It’s<br />
not easy discussing the implications of a<br />
stoma so every colorectal cancer team has<br />
specialist nurses who give practical<br />
support to help patients overcome their<br />
problems,’ says Daren Francis, Consultant<br />
General and Colorectal Surgeon and<br />
Chai medical patron.<br />
Patient fears might include whether the<br />
bag is showing under clothes, taking<br />
part in sport, intercourse, dietary issues<br />
and whether it will leak or smell [many<br />
products protect against this]. Stoma<br />
nurse Sharon Ferdenzi has more than 30<br />
years’ experience in the colorectal nursing<br />
field: ‘Especially for those who didn’t feel<br />
ill, or who are young, it can be harder to<br />
accept, even though the bag has saved<br />
their life. It is challenging. But – and this<br />
is the crux – there is nothing a stoma is<br />
going to stop you from doing. Getting<br />
back to normal life activities is important.<br />
I encourage people to not put their life on<br />
hold for too long,’ says Sharon.<br />
At whatever point a client chooses to<br />
come, Chai is able to provide practical<br />
advice to deal with the physical<br />
The more<br />
people can<br />
have honest<br />
conversations, the<br />
more they will get<br />
the advice they<br />
need”<br />
consequences of a stoma, as well as<br />
counselling support, which allows<br />
clients to express their feelings and<br />
find new ways to manage their altered<br />
circumstances.<br />
INCONTINENCE<br />
When cancer treatment affects the pelvic<br />
area, incontinence may be a permanent<br />
after effect. ‘The bladder is a muscle and<br />
its role can be disturbed by surgery and<br />
radiotherapy. Nerve endings may be<br />
damaged, compromising muscle power<br />
while internal scar tissue can affect the<br />
function of the bowel, colon and rectum,’<br />
explains Chai’s Gonda Lewis, who with<br />
Graham Silas, provides physiotherapy<br />
and incontinence expertise for both<br />
female and male clients.<br />
The trauma of incontinence can cause<br />
acute social and relationship issues,<br />
sometimes inhibiting sexual function, too.<br />
Worrying about needing the toilet can<br />
be overwhelming. The non-judgemental<br />
environment of Chai encourages people<br />
to seek help for their situation. ‘The more<br />
people can have honest conversations,<br />
and not shy away, the more they will<br />
get the advice they need,’ says Gonda.<br />
While this is generally easier for women,<br />
it comes as a huge relief for men to be<br />
able to talk in confidence to someone.<br />
‘Men are often unaware they have a<br />
pelvic floor,’ adds Graham. ‘I help them<br />
identify these muscles to start engaging<br />
them.’ Psychological techniques, such as<br />
relaxation and distraction are taught, too.<br />
‘We aim to find solutions that fit into a<br />
person’s lifestyle, so they feel physically<br />
comfortable to carry on with their lives.’<br />
INTIMACY<br />
‘Any kind of cancer, and not just that<br />
in the prostate, testicles, breast or ovaries,<br />
can have an enormous psychological<br />
effect on sexual function,’ says Charlotte<br />
Simpson, couples counsellor and<br />
psychosexual therapist at Chai. ‘We need<br />
to acknowledge the losses taking place<br />
and how people may feel vulnerable in<br />
their relationships. For instance, to have<br />
been the breadwinner in the family and<br />
now be the sick person is a significant<br />
shift in roles. There may be guilt over a<br />
diminished physical relationship; fear<br />
of causing pain – even from a simple<br />
hug; and distress at the impact of<br />
these changes.’<br />
Uptake of this specialised service at Chai<br />
is evidence of just how important the<br />
issue is. ‘When you give people a forum<br />
to talk about these things, the relief is<br />
palpable and anxiety is lifted. Working<br />
with a couple can help resolve relationship<br />
worries and discuss new ways to build<br />
intimacy. By starting to accept what has<br />
happened, people are able to feel positive<br />
about their body again,’ says Charlotte.<br />
She can also direct clients toward practical<br />
solutions. For instance, GPs can prescribe<br />
medication and aids for men and women<br />
to manage the problems they encounter<br />
after surgery and treatment.<br />
PROSTATE CANCER<br />
Life after surgery and treatment<br />
for prostate cancer leaves many<br />
men contending with a host of life<br />
changes, among them sexual function,<br />
incontinence and infertility. These are<br />
challenging issues that can cause deep<br />
anguish, fear and embarrassment, often<br />
compounded by their reluctance to open<br />
up about such sensitive topics. Chai<br />
counsellors can help clients express their<br />
feelings and aid candid conversations<br />
with partners. ‘It’s stifling to hold back<br />
these worries,’ says Charlotte Simpson.<br />
‘Talking allows a positive shift to<br />
happen.’ Alongside, building up physical<br />
confidence through physiotherapy and<br />
exercise sessions or dietary advice, can<br />
be a powerful way to re-establish and<br />
improve a person’s self-image.<br />
DEATH<br />
People might think about mortality in<br />
abstract terms, but grappling with the<br />
real prospect of death is quite different.<br />
‘Counsellors at Chai can facilitate these<br />
very sensitive and painful conversations,<br />
whether for an individual or between<br />
loved ones,’ says Chai’s Chief Executive<br />
Lisa Steele. ‘Not everyone wants to talk,<br />
however, and we are always guided<br />
by the client’s wishes. Even if death is<br />
not imminent, say, when a person is in<br />
remission, it is often in the background,’<br />
she continues. ‘It can feel like there is a<br />
maze of “unspokens” going on in the<br />
head of each person affected. These fears<br />
and questions can be eased with expert<br />
support.’ In addition, some people may<br />
have religious or spiritual concerns. Chai<br />
can put them in touch with Rabbis who<br />
are particularly sensitive to clients’ needs<br />
at this difficult time.<br />
It is particularly tough when young<br />
children are affected, although they are<br />
It can feel<br />
like there<br />
is a maze of<br />
‘unspokens’ going<br />
on the head of<br />
each person<br />
affected”<br />
often more straightforward than adults,<br />
says Lisa. ‘They’ll ask, “Is Mummy/<br />
Daddy going to die?” We advise parents<br />
to tell their children at an appropriate<br />
time, in language they can understand.<br />
It can free the parent to view events in a<br />
more open way.’ A response to talking<br />
might be to create a ‘memory box’ of<br />
photos, objects, recordings and letters:<br />
precious keepsakes for the child’s future.<br />
‘It takes courage,’ says Lisa, ‘but within<br />
a safe framework, this becomes a positive<br />
act for everyone involved.’<br />
Chai’s support extends across the age<br />
groups with counselling for families,<br />
adults and teenagers, and art and music<br />
therapy for children. ‘Giving space for the<br />
expression of feelings is cathartic,’ says<br />
Lisa. ‘A person can share their wishes and<br />
hopes for those who remain, so comfort<br />
and reassurance can be shared between<br />
them all. However painful this is to do at<br />
the time, many people gain peace of mind<br />
knowing they have been able to say the<br />
things they wanted to.’ ■<br />
14 15<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Chai Cancer Care Together Magazine 2016<br />
Shared<br />
benefits<br />
A new skill, a stress release, the support<br />
of others who understand… Chai’s new<br />
meditation and knitting groups offer<br />
all this and more<br />
If proof were needed of the value of Chai’s group<br />
activities, the five launched this year are it! As well as<br />
those featured here, Israeli dancing, table tennis and pet<br />
therapy are now offered. Chief Executive Lisa Steele<br />
says, ‘We know how much our clients benefit from Chai’s<br />
caring atmosphere and in an unpressurised group setting<br />
they can access that warmth and find new sources<br />
of enjoyment, when other areas of life are tough.<br />
The group becomes an informal but valuable part of<br />
a person’s support system.’<br />
Knitting<br />
On Tuesday mornings, the knitting group gathers in the<br />
garden room at the flagship centre. After seeing the creative<br />
output of the jewellery and ceramic groups at a Chai sale,<br />
volunteer Norma Ellis was inspired to suggest the idea. ‘I<br />
learned to knit at my grandmother’s knee and I know how<br />
rewarding it has been for me.’<br />
The group includes dyed-in-the-wool knitters as well as<br />
novices. Joyce is the latter: ‘I wish I’d known how to knit<br />
before I had cancer – it would have given me something<br />
Meditation<br />
Shelley Bloom<br />
In group meditation at Chai, Shelley<br />
Bloom helps clients find calm amid<br />
their stress and confusion. ‘When you’re<br />
having treatment and you feel your body<br />
has been given over to science, there’s a<br />
loss of control. Meditation helps rebuild<br />
a connection to yourself,’ she says.<br />
In verbally guided sessions, Shelley uses ancient nonreligious<br />
meditation practices, presenting breathing<br />
techniques, positive affirmations and visualisations. ‘It’s<br />
not so much about emptying the mind as being able to let<br />
thoughts pass through it without impacting it,’ she explains.<br />
‘Minds have a habit of running to the past, were we may<br />
ruminate about what we could have done differently in life.<br />
And they run to the future, towards anxiety and worry.’<br />
With the aim of ‘living in the moment’, Shelley starts by<br />
taking clients through a breathing exercise. ‘The out breath<br />
always is longer because it helps release carbon dioxide, the<br />
less healthy part of the breath process. Exhaling, for someone<br />
who is locked in anxiety, can be very difficult, so helping<br />
clients to focus on it is very valuable.’<br />
During a visualisation Shelley might ask the group to<br />
imagine a container and to put in it anything that feels heavy<br />
and burdensome to them, and then place the box outside the<br />
room. ‘I tell them they can pick up the box with whatever<br />
is in it, as they leave. The process helps people relieve<br />
themselves of some of the strains they are carrying.’ Client<br />
Sandra, says ‘Shelley creates a wonderfully encouraging<br />
environment, which allows everyone to develop at their<br />
own pace,’ while newcomer Julia adds: ‘It helps me not just<br />
through the day, but the whole week.’ ■<br />
to do while lying in bed after<br />
surgery. It’s so good for stress.<br />
Having a focus helps take<br />
your mind off yourself – and<br />
Norma is so very patient.’<br />
While Norma and fellow<br />
volunteer Andrea Goodmaker<br />
instruct, there’s tea, chat and<br />
an informal group therapy<br />
aspect as clients exchange<br />
information about their<br />
experiences. Now Norma<br />
has given the group the<br />
collective goal of making<br />
knitted goodies for the next<br />
Chai Society Gift Sale.<br />
Says Joyce, ‘It’s letting me<br />
share my new skill and give<br />
something back. To be able<br />
to make something with my<br />
hands that supports Chai,<br />
is just fantastic!’ ■<br />
Animal lovers know how good<br />
having a pet around makes<br />
them feel. Now academic<br />
research is proving the therapeutic<br />
benefits for those who are not well,<br />
too. ‘Studies show that spending time<br />
with a pet can help reduce recovery<br />
time after surgery, lessen pain, lower<br />
stress levels, improve mood and make<br />
people feel less isolated – all factors that<br />
impact someone affected by a cancer<br />
diagnosis,’ says Chief Executive, Lisa<br />
Steele. ‘Pet therapy is something we<br />
have wanted to provide for a long time<br />
and with the Pets As Therapy (PAT)<br />
charity helping us, we’ve got the correct<br />
process in place.’<br />
The group setting encourages adults<br />
and children to interact and share<br />
their stories in a non-threatening<br />
calming environment. Chair of PAT,<br />
Anne Cliverd, explains how a dog is<br />
assessed as suitable for the work. ‘We<br />
health-check the dog and we go on<br />
16<br />
Chai Cancer Care For more information, please call Jo Awad on 020 8457 Together 3396 2016 Chai Cancer Care<br />
Pet therapy new<br />
A furry friend: Mr Schnitz, Chai’s first pet therapy dog<br />
a walkabout to make sure they are<br />
calm, follow commands, are good with<br />
people, not given to excitable reactions,<br />
and don’t snatch food, bite or lick.<br />
“Clients come by after<br />
their treatment session<br />
and spend time with<br />
Mr Schnitz. His cuddly<br />
presence gets people<br />
talking about anything<br />
but cancer”<br />
A volunteer dog also has to be patient,<br />
enjoy being patted, often vigorously,<br />
by patients or clients and not be<br />
overly fussed about being handled by<br />
many strangers.’ PAT is well-versed in<br />
selecting their canine volunteers, having<br />
upwards of 5,000 animals on their<br />
nationwide books.<br />
Clearly Mr Schnitz is up to the job.<br />
His handler, Neil Samuels, was a Chai<br />
Meet Mr Schnitz, Chai’s four-legged<br />
volunteer, who is giving clients a<br />
way to improve their wellbeing<br />
client, along with his<br />
family, when, in 2012,<br />
son Alex was diagnosed<br />
at the age of 22, with<br />
non-Hodgkin lymphoma.<br />
Now Neil is a volunteer.<br />
‘Clients come by after<br />
their treatment or therapy<br />
session and spend time with<br />
Mr Schnitz – his cuddly, friendly,<br />
non-judgemental presence gets people<br />
talking to each other; about him, or<br />
other things, anything in fact but cancer.<br />
Everything Chai does is there to help<br />
you feel normal again, that you’re not<br />
out there on your own. Mr Schnitz is<br />
now part of the process – he enjoys it<br />
and he makes people happy, too,’ says<br />
Neil. So approachable is Mr Shnitz,<br />
that he’s even helping a client who was<br />
scared of dogs, to overcome his phobia.<br />
A collective positive experience,<br />
emotional connections among peers<br />
and the simple act of touch are some<br />
of the greatest rewards a PAT dog visit<br />
brings and more canine Chai volunteers<br />
are in training now. Says Ann Cliverd,<br />
‘The animal makes no demands on<br />
you: no questions about how you are,<br />
no comments about you being so brave.<br />
The experience helps take away the<br />
stigma a person may feel. They just<br />
look at you with love.’ Elena who has<br />
had cancer treatment, and her son Sean<br />
recognise all these benefits: ‘Spending<br />
time with Mr Schnitz has become a<br />
wonderful highlight in our week – he<br />
calms, relaxes and comforts us. When<br />
he’s around, the focus shifts away<br />
from everything we’ve been through.<br />
Everyone who meets him comes away<br />
feeling more positive.’ ■<br />
For more information, please call<br />
Debra Clifton on 020 8457 2074 17
Chai Cancer Care<br />
A PLATEFUL<br />
OF LOVE<br />
Colin Lehmann was diagnosed<br />
with pancreatic cancer in January<br />
2015, aged 59. He died just 13<br />
months later. In that period, his wife<br />
Laura began treatment for a rare<br />
form of lymphoma. Yet amid all<br />
this upheaval, Laura’s sister Claire,<br />
daughter Tamar and friends Louise<br />
Gluckstein and Nikki Epstein were<br />
inspired to create a cookbook to<br />
raise money for Chai – as a tribute<br />
to Colin and to reflect the idea that<br />
cooking for others is a gesture of love<br />
AN IDEA TAKES SHAPE<br />
LAURA: I spoke with my sister Claire<br />
every day when Colin was ill and much<br />
of our conversation was about whether<br />
or what he could eat that day. Colin<br />
loved food so it was very distressing<br />
when he could no longer appreciate it.<br />
When things are tough, finding pleasure<br />
in something simple – a bowl of soup<br />
– is such an achievement. Each meal was<br />
about bringing some joy into Colin’s life.<br />
You can’t make it all better, but you can<br />
make it better for a moment. The book<br />
symbolises the idea of giving, which is<br />
so central to Jewish life.<br />
CLAIRE: I went to see Chai in July 2015<br />
with this hair-brained idea of mine,<br />
saying, ‘Look, you don’t know me but I’d<br />
CHAI’S<br />
like to do a cookbook for you.’<br />
I walked out of the meeting with this<br />
mammoth project on my hands! Having<br />
previously worked as a nutritionist, I<br />
knew there were many books on food<br />
and cancer, but I realised how powerless<br />
we feel when we cannot provide food for<br />
the people we love. Equally, how good<br />
we feel when we can share our love for<br />
dear ones through food.<br />
FROM FACEBOOK AND<br />
PHONE TO FINAL PRODUCT<br />
CLAIRE: Our small committee included<br />
close friends, Nikki Epstein and Louise<br />
Gluckstein, my niece Tamar and our<br />
designer Jemma Harrison. Gradually<br />
Plateful of<br />
love<br />
cooking for friends<br />
we gathered in the recipes, across the<br />
generations and across all cuisines –<br />
Indian and Israeli to Peruvian and Polish.<br />
Some have been passed down through a<br />
family, others adapted from contemporary<br />
chefs and a note from the contributor<br />
accompanies each one, straight from<br />
the heart. Louise did a lot of the recipe<br />
testing, and much of the photography<br />
– on her phone! We certainly couldn’t<br />
afford photographers or food stylists.<br />
TAMAR: I looked after fundraising and<br />
discussed sponsorship ideas with Dad<br />
while he was in hospital. A small bequest<br />
from The Lehmann Charitable Trust, of<br />
which Dad was a trustee, took care of the<br />
printing and each person whose recipe<br />
was featured gave a £25 donation, which<br />
covered our other costs. It means every<br />
penny from sales goes directly to Chai.<br />
Jemma, our amazing designer, responded<br />
to a post I put out on Facebook. Fresh out<br />
of art college, she put her heart and soul<br />
into it – for free – and has given the book<br />
a lovely timeless feel. Hopefully it will<br />
sell for years!<br />
ABOUT COLIN…<br />
LAURA: Colin and I met on a UJIA<br />
singles ‘mission’ to Israel in 1990. He<br />
was an incredibly generous man and<br />
an amazing father. I rarely did a night<br />
feed for our children Tamar and Daniel<br />
because that was his special time with<br />
them and it allowed me to rest. His<br />
dedication to the community and charities<br />
was incredible and far wider than we all<br />
imagined. We never knew, for instance,<br />
that he was supporting some schools in<br />
Stamford Hill until several rabbanim came<br />
to his funeral. Colin’s favourite recipe in<br />
the book was the Divine Marble Cake.<br />
Our friend Danielle Ashton was making<br />
it even before we married. It was one<br />
of the few things Colin was still able to<br />
eat and there are many lovely occasions<br />
associated with it.<br />
TAMAR: Dad was one of life’s givers<br />
and made everyone feel important.<br />
To friends, family, clients, colleagues, to<br />
the community and even the doctors and<br />
nurses, he was generous with his time<br />
and advice. All he ever wanted was to<br />
guide me to my own happiness. His goal<br />
was to stay around long enough for<br />
my graduation, and he did – it was<br />
a wonderful day.<br />
CHAI – A PLACE TO TURN<br />
LAURA: Colin and I already supported<br />
Chai but when you encounter a charity for<br />
a personal reason, it makes you even more<br />
passionate about it. Claire and I have both<br />
used Chai’s services and I will do so again<br />
when my current treatment finishes.<br />
TAMAR: Dad insisted on attending the<br />
2015 Chai dinner, saying ‘If you can’t<br />
support charities like Chai when you need<br />
them the most, who will?’ It was difficult<br />
to be upset in front of my parents. Chai<br />
has given me the space to think, talk and<br />
cry. They have listened and helped me<br />
try to cope with the unthinkable…not<br />
something I envisaged I’d be doing at<br />
the age of 22.<br />
A TRIBUTE AND A LEGACY<br />
TAMAR: Dad never saw a physical copy<br />
of the book, but I showed him a PDF<br />
version. By then he was in hospital and<br />
knew he wouldn’t come out. He was so<br />
impressed and he’d be prouder still that<br />
more than 1500 people now own the<br />
book and have supported Chai in the<br />
process. It’s a special family legacy and<br />
ensures Dad’s memory lives on, as we<br />
continue his example, by giving to others<br />
through Chai’s Plateful of Love.<br />
LAURA: I now try to find something<br />
positive, however small, to focus on.<br />
I’m thrilled at the response to the book<br />
and am so proud of my sister and all<br />
the contributors. I’m looking forward to<br />
cooking from it – with my own illness,<br />
I’ve missed that so much.<br />
CLAIRE: The launch in May was<br />
incredibly moving. There was the sadness<br />
of what has happened – our world<br />
thrown upside down, but there’s this<br />
new ‘baby’ that’s come to life, because<br />
of someone we loved. It gave us a focus<br />
other than the illness while we worked on<br />
the book and now holds happy memories<br />
for everyone involved.<br />
Chai’s Plateful of Love – Cooking for Friends,<br />
£20 (to collect from the flagship centre), or £23<br />
(to include P&P). Order online at<br />
tinyurl.com/h4efdcw<br />
18<br />
Chai Cancer Care Together 2016 Chai Cancer Care
Philip Weinstein, Issy & Susan Zuckerbrod,<br />
Louise Hager, Lorraine Weinstein<br />
Loretta & Ronnie Harris<br />
Stephen Rubin OBE & Angela Rubin<br />
Maureen Lipman CBE<br />
Sir Michael & Lady Heller<br />
Steven & Danielle King, Lisa Steele,<br />
Justine & Andrew Lever<br />
Rabbi Joseph Dweck and choir celebrating Chanukah<br />
Lord & Lady Kalms<br />
CIRCLE<br />
OF LIGHT<br />
Gerald Ronson CBE & Dame Gail Ronson<br />
Nick & Maxine Leslau<br />
Emma & Marc Samuels<br />
Graham Edwards, Joan Lipkin-<br />
Edwards, Georgina Black<br />
Andrew & Danielle Rubin<br />
Claudia and Robert Salem<br />
Lord & Lady Young<br />
Karen & Jeremy Hertzog<br />
Loren & Trevor Berkowitz<br />
Sian & Julian Levy<br />
Bianca & Stuart Roden<br />
Top: Alexandra Maurice, Emma Byre,<br />
Jenny Silverman, Amanda Kessler,<br />
Abi Reiss, Sarah Burns<br />
Fabiana & Miguel Abadi<br />
Chai has achieved extraordinary<br />
things in its first 25 years and last<br />
December, 800 guests gathered to<br />
recognize this milestone and pledge their<br />
continued support. London’s spectacular<br />
Roundhouse theatre, bathed in purple<br />
and pink Chai colours, mirrored superbly<br />
the ‘Circle of Light’ theme and proved<br />
a breath-taking backdrop for the event.<br />
Louise Hager paid tribute to Chai’s<br />
founders Frances Winegarten z’l and<br />
Susan Zuckerbrod, its medical and lay<br />
advisors, trustees, staff, fundraisers<br />
and volunteers. Reflecting on Chai’s<br />
purpose, she said, ‘there is no point<br />
talking about the light at the end<br />
of the tunnel. Our mission<br />
is to light the tunnel itself,<br />
and to give individuals<br />
the strength and tools<br />
they so need.’<br />
This message was vividly illustrated<br />
on film by two of Chai’s clients<br />
Elliot, from London and Tara in<br />
Manchester, who spoke unflinchingly<br />
about their cancer experiences and<br />
Chai’s all-embracing family support.<br />
Welcoming everyone, Ronnie Harris<br />
described Chai as ‘an essential community<br />
resource.’ And hearing it receives no<br />
statutory funding, the guests responded<br />
emphatically, donating £1.2m. The<br />
emotional and uplifting evening opened<br />
with an enthusiastic performance from<br />
a choir of pupils drawn from four<br />
schools, where the ‘Chai in Schools’<br />
service is supporting children<br />
affected by a cancer diagnosis in<br />
their family, and concluded<br />
with an upbeat set from<br />
TVs BGT finalists,<br />
Jack Pack. ■<br />
Mark Astaire & Fiorella Massey<br />
Michael & Robyn Stein<br />
Gabrielle & Steven Sharpe<br />
Sharon & Jonathan Goldstein<br />
Carol, Nick & Rachel Sopher<br />
Pat Rosenfield & Lennie Lass<br />
Michael & Jacqueline Meller<br />
Simone & Brian Brick<br />
Naomi & Andrew Fisch<br />
Natalie & David Tahan<br />
Michael & Jenny Ghatan<br />
Gavriel & Yael Green, Sara & Henry Last<br />
Frances Berman & Rochelle Wolfson<br />
Jason & Claire Leek<br />
Susan & Stephen James<br />
Gary & Linda Laurence<br />
Michael & Robyn Stein<br />
Shoshana Manning, Gillian &<br />
Irving Carter, Susie Segal<br />
Karen & Peter Goodkind<br />
Benita, David & Jo Fogel<br />
Albert & Lynda Hay<br />
Melanie & Edward Rom<br />
Blake Ezra Photography
Chai Cancer Care<br />
Together Magazine 2016<br />
Dr Christopher<br />
McNamara is<br />
a consultant<br />
haematologist in the<br />
lymphoma service<br />
at University College<br />
London Hospital.<br />
He completed post-graduate<br />
training in Australia and France<br />
before appointment as consultant<br />
haematologist at the Royal Free,<br />
London in 2004. He moved to UCLH<br />
in 2015. His interests are clinical<br />
trials, radioimmunotherapy and the<br />
interface between the laboratory and<br />
lymphoma patients. He has served on<br />
several guideline development groups<br />
for the European Society of Medical<br />
Oncology, the British Council for<br />
Standardisation in Haematology and<br />
for the national Institute for Clinical<br />
Health and Excellence, where he<br />
served as clinical lead for the national<br />
lymphoma guideline.<br />
Lymphoma<br />
therapy update<br />
We know more than ever about how cancer<br />
of the blood behaves and which treatments<br />
will produce the best outcomes. Consultant<br />
haematologist Christopher McNamara looks<br />
ahead to future developments<br />
Lymphoma is the most common<br />
type of blood cancer affecting<br />
people in the UK. There are many<br />
different types of lymphoma but they<br />
all generally occur when a certain<br />
type of blood cell no longer obeys the<br />
normal control signals that govern the<br />
growth of cells and tissues of the body.<br />
The diseased cells or lymphocytes<br />
aggregate together and typically<br />
spread through vessels connecting<br />
lymph nodes.<br />
A significant amount of research<br />
work has been done to understand the<br />
differences between the different types<br />
of lymphoma. This work, culminating<br />
in a classification system adopted<br />
by the World Health Organisation,<br />
has made important advances in the<br />
way in which lymphoma research is<br />
carried out and in the way in which<br />
people who suffer from lymphoma are<br />
treated. Increasingly, lymphomas are<br />
categorised according to molecular and<br />
genetic changes within the abnormal<br />
lymphoma cells. These genetic changes<br />
influence the way in which the cancer<br />
cells multiply and often how they will<br />
respond to treatment. Understanding<br />
these genetic changes has already led<br />
to significant improvements in the<br />
treatments available for lymphoma<br />
patients and is likely to radically<br />
reform further these approaches<br />
in the future.<br />
“Understanding genetic<br />
changes has already<br />
led to significant<br />
improvements in the<br />
treatments available”<br />
GENES HOLD THE KEY<br />
Many people are surprised when they<br />
hear that the laboratory is the first<br />
and perhaps most important step in<br />
the journey that a lymphoma patient<br />
will begin. The reason for that is<br />
that an accurate diagnosis is critical<br />
for obtaining the best outcome for<br />
a patient; the treatments used, as<br />
mentioned, frequently differ according<br />
to which lymphoma subtype a person<br />
has. It is, therefore, essential that<br />
material from a biopsy be looked at<br />
by an expert pathology doctor. In the<br />
future it is likely that genetic changes<br />
within the first biopsy sample will be<br />
used for all patients to direct which<br />
treatment should be given, even within<br />
the same lymphoma subtype. In<br />
other words, patients with the same<br />
lymphoma subtype will be treated<br />
differently, according to the molecular<br />
changes in their lymphoma.<br />
CHEMO AND<br />
CHEMO-FREE THERAPY<br />
Importantly, the outcome for<br />
lymphoma patients has been improving<br />
in recent times. Twenty years ago<br />
there was concern that, in spite of the<br />
availability of effective treatments, the<br />
overall survival for lymphoma patients<br />
was not improving. That has now<br />
changed. With effective combinations<br />
and information gleaned from properly<br />
conducted clinical trials, effective<br />
therapies that are given to people<br />
with lymphoma today have shown<br />
unequivocally that outcomes have<br />
improved compared with treatments<br />
used as recently 20 years ago.<br />
There is a range of different treatments<br />
available to patients in the UK.<br />
Chemotherapy remains an effective and<br />
generally well-tolerated treatment for<br />
most people. However, it is also fair to<br />
say that there is increasing interest in<br />
‘chemotherapy-free’ based approaches<br />
to managing lymphoma. Frequently,<br />
people affected by lymphoma have<br />
other medical problems, which<br />
preclude intensive treatment or they’re<br />
present at a point in their lymphoma<br />
journey where they are significantly<br />
debilitated and de-conditioned by<br />
the lymphoma itself. This makes<br />
the administration of chemotherapy<br />
sometimes difficult. In addition,<br />
we know from longitudinal studies<br />
that many patients who complete<br />
chemotherapy are affected by long-term<br />
physical, psychological and emotional<br />
problems that are most likely due to<br />
their chemotherapy.<br />
“Treatments by mouth<br />
generally don’t require<br />
admission to hospital<br />
and are very well<br />
tolerated”<br />
Many centres around the world are<br />
interested in this ‘chemotherapy-free’<br />
strategy whereby new drugs other<br />
than chemotherapy are used to induce<br />
a response. A new immunotherapy<br />
involving antibodies directed at<br />
special markers on the surface of<br />
cancer cells called antigens is already<br />
in clinical practice and thousands of<br />
patients have benefited from this<br />
and lives have certainly been saved<br />
as a consequence.<br />
The clinic has also seen the<br />
development of new medicines, which<br />
inhibit signalling inside cancer cells.<br />
These medications have changed the<br />
landscape in some lymphoma subtypes<br />
and are likely to have a significant<br />
impact upon lymphoma therapy in<br />
the future. These treatments can be<br />
taken by mouth, generally don’t require<br />
admission to hospital and are very well<br />
tolerated. They work by penetrating<br />
the lymphoma cell and turning off<br />
the machinery that the cell needs<br />
to survive and prosper.<br />
One of the advantages of these<br />
medications is that they typically<br />
don’t bring with them many of the<br />
chemotherapy-related side effects.<br />
Nausea, vomiting and hair loss are not<br />
common from these drugs and they<br />
often produce very good results, even in<br />
patients who have previously failed to<br />
respond to chemotherapy. It is important<br />
that ongoing research is carried out<br />
to define the longer-term safety and<br />
effectiveness of these agents, but<br />
preliminary studies are very exciting.<br />
There remains a strong desire to<br />
continue to improve the outlook for<br />
people and families not only affected by<br />
lymphoma but also to try and reduce<br />
the short- and long-term side effects of<br />
therapy. Clinical trials that are currently<br />
underway are likely to contribute to the<br />
answer to this question. ■<br />
The next leap forward:<br />
refining treatments<br />
• Molecular differences in<br />
their lymphoma subtype<br />
will mean patients<br />
with the same type<br />
of cancer will receive<br />
different treatments<br />
• Oral treatments<br />
will become more<br />
common<br />
• Advances in<br />
treatments will mean<br />
patients won’t need<br />
to be hospitalised<br />
24<br />
Together 2016<br />
Chai Cancer Care<br />
25
Chai Cancer Care Together Magazine 2016<br />
Believing<br />
in better<br />
The potential to transform lives is a defining factor<br />
in the causes that attract Andrew and Orly Wolfson.<br />
It’s why Chai’s innovative approach to cancer<br />
support means so much to them<br />
One of the joys Andrew Wolfson<br />
has discovered in his 40s, is the<br />
breadth of Jewish festivals. ‘I was very<br />
much a Rosh Hashanah/Yom Kippur<br />
Jew,’ he says. Born into one of this<br />
country’s most philanthropic dynasties,<br />
the Wolfson family’s bequests benefit<br />
countless British, Jewish and Israeli<br />
causes and institutions. His very<br />
orthodox great-grandfather was<br />
Solomon Wolfson, a cabinet-maker<br />
who grew up in the Gorbals in<br />
Glasgow; his great uncle Isaac<br />
re-shaped retail as head of Great<br />
Universal Stores. His father, David was<br />
Next’s chairman during the 90s (a role<br />
now held by his brother Simon) and<br />
both are Tory peers. Andrew ‘probably<br />
didn’t do what was expected’ and his<br />
career took him not into big retail but<br />
niche investment. As MD of Pembroke<br />
VCT, his portfolio of brands include<br />
restaurants Five Guys and Chucs,<br />
fashion designers Bella Freud and<br />
ME+EM, and digital media businesses<br />
Boat International and Rated People.<br />
A largely secular upbringing took him<br />
to Radley College boarding school<br />
during term time, and to the country at<br />
weekends. Now, through his children,<br />
Lily 8 and Charles 7, who attend a<br />
Jewish primary school, he and his<br />
Dutch-born wife Orly, 39, delight in<br />
being a part of Jewish community life<br />
that neither was exposed to as a child.<br />
‘We get Simchat Torah and Shavuot<br />
– which I didn’t know about as a<br />
child,’ says Andrew, 47. ‘Moving from<br />
Hyde Park to Belsize Park and then<br />
Finchley has changed our philosophy<br />
of community.’ Adds Orly, whose father<br />
converted to marry her Israeli mother,<br />
‘We weren’t very involved in Jewish<br />
traditions when I was a child, and I<br />
wanted our children to have a greater<br />
sense of belonging. We’re learning and<br />
celebrating with them and it’s lovely.’<br />
POSITIVE IMPACT<br />
The potential for transformation is<br />
lost on neither. Orly is a trustee of<br />
Beit Halochem UK and has chaired<br />
their annual fundraising dinner for the<br />
last three years. Beit Halochem have<br />
rehabilitation centres across Israel<br />
which provide support for 51,000<br />
disabled soldiers and victims of terror.<br />
Her mother went through several years<br />
of rehabilitation after an accident, so<br />
it’s work that’s close to her heart. ‘A<br />
20-year-old soldier wakes up in a totally<br />
new body and has to re-learn everything<br />
from step one. Beit Halochem helps that<br />
person become a member of society<br />
again, focusing on what they can do,<br />
not what they can’t. Much like Chai,<br />
it’s about not being left on your own.’<br />
RayaCottrell Photography<br />
Orly admits she was nervous about<br />
her first visit to Chai’s flagship centre.<br />
‘When you hear the word cancer, you<br />
feel a bit of a chill; the older you get,<br />
the more stories you hear. We all know<br />
someone who’s been through it. I won’t<br />
forget the day Louise took us around. It<br />
showed Andrew and I that the journey<br />
can be made easier. It’s such a positive,<br />
uplifting place. People want to hide<br />
their fears from their children, parents<br />
and partners. Here, you can share them<br />
and become part of the Chai family<br />
of support. The people involved are so<br />
passionate and inspirational.’<br />
“The couple are drawn<br />
to projects that redefine<br />
or disrupt what is currently<br />
out there”<br />
Meanwhile, Andrew is the founder of<br />
MiSST (Music in Secondary Schools<br />
Trust), which grants funds to schools<br />
Andrew and Orly Wolfson with children Charles and Lily<br />
in challenging areas, to buy classical<br />
instruments and provide instruction so<br />
that whole year groups can participate<br />
in compulsory classical music. This<br />
September there will be 3,500 young<br />
people in the programme. ‘In schools<br />
with 60+ first spoken languages, music<br />
breaks down the barriers of ethnicity,<br />
age, religion and socio-economic group<br />
like no other subject.’ Since 2013, the<br />
scheme has seen one student go to<br />
Oxford to study music, and another join<br />
the National Youth Orchestra. Andrew<br />
blanches, however, at the memory of<br />
his own squandered musical education.<br />
‘I was so lucky. My parents paid for<br />
lessons at primary school and they don’t<br />
know this, but I used to tell my English<br />
teacher that I had a music lesson, I’d tell<br />
the music teacher that I wasn’t feeling<br />
well and I’d go off and play cards in the<br />
loo.’ For sweets, he adds.<br />
Betting on the conventional certainly<br />
isn’t Andrew’s style. He spent one day<br />
at Exeter University before<br />
deciding ‘it wasn’t really my<br />
scene.’ He proposed to Orly<br />
just ten days after meeting<br />
her. For seven of those days<br />
they were apart, as Orly’s<br />
modelling career meant<br />
non-stop travel for brands<br />
such as Escada, Gottex<br />
and Wolford. Andrew flew<br />
to Israel where she was<br />
based, for the second date.<br />
‘It was so exciting, I knew<br />
the rest of my life was going<br />
to change.’ Ten years on,<br />
‘It’s the best decision I ever<br />
made.’ For her part, Orly<br />
was taken with Andrew’s<br />
‘gentlemanly manners and<br />
his humour. He reminded<br />
me of Colin Firth, but a better<br />
version!’ Their contemporaryclassic,<br />
art-filled home is on an elegant<br />
North-west London street, where they<br />
enjoy as much family time as possible<br />
– especially playing sport with the<br />
children. They are expecting their third<br />
child imminently.<br />
‘It is very powerful<br />
discovering for yourself<br />
what a difference a<br />
charity makes. That’s<br />
what happened to us<br />
with Chai’<br />
Both as an entrepreneur and as a trustee<br />
of the Charles Wolfson Charitable<br />
Trust, Andrew is captivated by projects<br />
that ‘do things that redefine or disrupt<br />
what is currently out there and try<br />
and create a new normal’. It’s why<br />
he is drawn to Chai. ‘In its holistic<br />
approach, it gives an extra level of<br />
support on those days when you’re not<br />
in hospital having chemotherapy, but<br />
feel rotten. Not only that, it sustains<br />
all those around the cancer patient.<br />
There’s the security, too, of knowing<br />
that Chai understands Jewish traditions<br />
and values. It’s a fantastic – and vital –<br />
service. It’s acknowledged outside the<br />
community that we go the extra mile to<br />
care for our vulnerable.’<br />
THE YOUNG VOTE<br />
With his passion for creating<br />
opportunities for the next generation (he<br />
is also involved in Access Aspiration,<br />
a work placement charity, and PaJes),<br />
he believes businesses and charities<br />
need to gain the confidence of the<br />
young to win their support. ‘Both<br />
have a responsibility to be transparent,<br />
charities especially with their<br />
fundraising and administration costs.’<br />
He advocates organisations working<br />
together strategically for the longterm<br />
good of the community and sees<br />
Chai’s expansion in an existing Jewish<br />
community building in Manchester as a<br />
good example of this.<br />
‘The home is also an important base<br />
for learning about caring for the needy,’<br />
says Orly. ‘Our mum always taught the<br />
six of us, if you can help someone, why<br />
don’t you? If ever a neighbour had a<br />
problem, she was right there. You build<br />
on that with education. Hopefully our<br />
children see the amount of work that<br />
Andrew does, and the charities I’m<br />
involved with.’ She adds, ‘It is very<br />
powerful discovering for yourself what<br />
a difference a charity makes. Visit the<br />
charity. Meet the people who work<br />
there and the ones who are looked<br />
after. Understand the potential for<br />
your donation – and then you’ll feel a<br />
much stronger connection than simply<br />
attending an annual dinner. That’s what<br />
happened to us with Chai.’ ■<br />
26<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
27
Chai Cancer Care Together Magazine 2016<br />
The F Factor<br />
Could a brisk walk hold the key to<br />
stopping cancer in its tracks? We look<br />
at the latest research linking fitness and<br />
cancer prevention, and discover how<br />
Chai makes getting fit accessible to all<br />
The clearest proof yet that exercise<br />
can improve cancer survival rates<br />
came at this year’s American Society<br />
of Clinical Oncology conference in<br />
Chicago. Research showed mortality<br />
rates for women with cancer who<br />
did the equivalent of three hours<br />
brisk walking a week fell by 46%. By<br />
ONE-TO-ONE AND<br />
OPEN GYM SESSIONS<br />
The gym at Chai’s flagship centre<br />
is impressive by any standard. With<br />
guidance from physiotherapists<br />
Graham, Johnny and Natasha,<br />
clients recovering from surgery<br />
or treatment can build up their<br />
mobility and strength. ‘One-to-one<br />
sessions offer close monitoring<br />
while a person is physically<br />
unsteady and unsure about their<br />
capability,’ says Johnny. Clients can<br />
then progress to open gym sessions,<br />
where groups of three follow their<br />
personalised programmes. ‘The<br />
social aspect is very beneficial,’<br />
adds Johnny. ‘As clients’ fitness,<br />
confidence and knowledge levels<br />
grow, they achieve more than they<br />
ever imagined.’<br />
contrast, obese women<br />
with breast cancer and<br />
high blood pressure<br />
were 69% less likely to<br />
survive. Melinda Irwin of<br />
Yale University, who led<br />
many of the studies, was<br />
unequivocal: ‘Women diagnosed with<br />
breast cancer should be counselled<br />
about weight loss and exercise.’<br />
Men, take note, too. A trial at the<br />
University of Montreal has seen<br />
mortality rates drop by up to 22% in<br />
men with late-stage metastatic cancer<br />
Equipment includes a multi-gym<br />
and leg press to restore muscle<br />
bulk and strength after surgery; a<br />
treadmill, recumbent, vertical bikes<br />
and hand bike, for cardiovascular<br />
work; a Swiss ball for building core<br />
strength and a small trampoline for<br />
improving balance. Free weights<br />
and floor mats provide further ways<br />
for trainers to work with clients.<br />
(when it has spread) who follow a highintensity<br />
exercise programme. A further<br />
1.4 million cases surveyed revealed that<br />
taking significant amounts of exercise<br />
reduces the risk of a whole range of<br />
cancers, including oesophageal, lung,<br />
stomach and colon. ‘The more the<br />
body operates at its optimum, the better<br />
recovery and survival is,’ says Graham<br />
Silas, one of Chai’s physiotherapists.<br />
‘It may seem an impossible demand to<br />
get fit when cancer is the main focus,<br />
but with support from experts who<br />
understand the impact of cancer, we<br />
can make it easier.’ ■<br />
ISRAELI DANCING<br />
As a trained ballet dancer, Sara Last needs<br />
no convincing of the pleasures of music and<br />
movement. ‘Dancing transports me, which<br />
is my hope for Chai clients, too.’ Many<br />
scientific studies show how dance aids the<br />
functions of the circulatory, respiratory,<br />
skeletal, and muscular systems. ‘It’s a<br />
recognised form of therapy, helping people<br />
connect emotionally with their body and<br />
integrate what they have been through,’ says<br />
Sara. Israeli, Greek, and Chassidic dances<br />
are taught but luckily you don’t have to be<br />
an expert mover. ‘People go at their own<br />
pace. By the end of the class, it’s wonderful<br />
to see how people’s body language has<br />
brightened and relaxed.’<br />
“I go into a class feeling<br />
tired and come out<br />
invigorated” Vivienne<br />
YOGA<br />
‘Yoga is a bridge between body and mind, helping us<br />
to balance and adjust to changes in life,’ says Stacey<br />
Landau, a specialist in remedial yoga. Central to<br />
the practice is the breath, which is actively engaged<br />
to calm the mind throughout the class. Clients<br />
begin with a ‘body scan’ noting how they are feeling<br />
physically, before moving on to the yoga postures.<br />
‘Everyone does what they can,<br />
even if they are seated,’ says<br />
Stacey who modifies poses such<br />
as the cobra and downward<br />
dog to make them more<br />
manageable. ‘The postures<br />
build muscle and core strength,<br />
improving balance, flexibility<br />
and alignment,’ Stacey explains.<br />
After a guided relaxation at the<br />
end of the class, clients often<br />
sleep better and have a more<br />
positive overall outlook. ‘When<br />
cancer makes you feel isolated,<br />
a yoga class can give you inner<br />
strength and group support.’<br />
“Yoga sustains me physically<br />
and mentally – it’s my new<br />
normal” Jacky<br />
WALKING GROUP<br />
Chai’s weekly walkers value the<br />
exercise, fresh air and group<br />
contact as part of their re-hab<br />
routine. In collaboration with<br />
Maccabi GB and led by Janice<br />
Arons and volunteer Lisa<br />
Bogush, the group sets out from<br />
Chai to the nearby park, or<br />
follows a pretty route through<br />
Hendon’s streets for an hour.<br />
‘Walking together provides<br />
a lovely, healthy distraction,’<br />
says Janice. ‘If you’re nervous<br />
of going out on your own, this<br />
gives you extra support. With<br />
the chat, it doesn’t even feel<br />
like training!’ Both brisk<br />
walkers and amblers are<br />
catered for. ‘With two of us<br />
on hand, no-one is ever left<br />
behind,’ says Lisa.<br />
“Physical activity<br />
helps with my<br />
breathing and<br />
stamina – and<br />
I love meeting<br />
new people”<br />
Susie<br />
PILATES<br />
This low-impact, restorative<br />
exercise is an option for<br />
men and women at any<br />
stage of cancer treatment<br />
and recovery. In her Pilates<br />
class, teacher Fiona Good<br />
includes gentle, targeted<br />
muscle movements and<br />
weight-bearing exercises<br />
to encourage strength<br />
and endurance. That in<br />
turn helps joints to work<br />
better so stretching is<br />
easier – important for<br />
combatting excessive scar<br />
tissue. ‘Pilates re-establishes<br />
proper muscular firing<br />
patterns and improves body<br />
awareness, which may be<br />
lost as a result of surgery,’<br />
says Fiona. For carers and<br />
the bereaved, too, Pilates<br />
can be a real confidencebuilder.<br />
‘I’m humbled to<br />
witness my clients’ ability<br />
to adapt, as well as the<br />
body’s capacity to heal.’<br />
TABLE TENNIS<br />
This is one of Chai’s newest<br />
activities. Carol Ellman,<br />
who runs the group says,<br />
‘The effect of cancer<br />
treatment on your bones<br />
and muscles can be very<br />
harsh. Movement is critical<br />
to recovery.’ After her own<br />
double mastectomy four<br />
years ago, the shoulder<br />
and upper arm actions<br />
involved in playing table<br />
tennis have helped rebuild<br />
her muscle strength. The<br />
sport also helps maintain<br />
hand-eye coordination and<br />
mental alertness. One client<br />
relishes her weekly matches<br />
despite on-going treatment,<br />
while a widower who was<br />
isolated after his wife died,<br />
values taking part in a<br />
sociable sport. ‘People still<br />
have medical appointments<br />
to go to,’ says Carol, ‘but<br />
when you’re chasing that<br />
little white ball, you don’t<br />
think about anything else!’<br />
“You lose so much<br />
when you have<br />
cancer. Playing<br />
table tennis has<br />
given me back my<br />
confidence” Linda<br />
For more information, please call Jodi Lazarus on 020 8457 3230<br />
28<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
29
Service Spotlight<br />
Manual lymphatic<br />
drainage<br />
update<br />
The phrase ‘living with and beyond<br />
cancer’ covers many scenarios –<br />
and heartening as the rising numbers<br />
of survivors are, the complexities<br />
of the onward journey include<br />
managing many long-term conditions.<br />
Lymphoedema – swelling of the legs,<br />
arms or other parts of the body – is<br />
one that requires continuous care.<br />
It occurs when the lymph nodes,<br />
located in the neck, armpits and groin<br />
area, are removed because they are<br />
cancerous or by damage to the skin<br />
from radiotherapy. Lymph fluid,<br />
which travels around the body<br />
collecting waste material and bacteria,<br />
cannot be expelled if the nodes are<br />
no longer there.<br />
“Chai is at the forefront<br />
of searching out ways<br />
that make a meaningful<br />
difference to clients’ lives”<br />
Tissue surrounding the damaged area<br />
then becomes swollen with fluid,<br />
causing the skin to feel tight and heavy<br />
and inhibiting mobility. Clothes or<br />
shoes may not fit properly and<br />
everyday activities such as gardening or<br />
shopping are more problematic. These<br />
physical compromises, coming on top<br />
Chai has introduced a new type of<br />
specialist treatment to help clients<br />
manage lymphoedema – one of<br />
cancer surgery’s long-term side effects<br />
of the cancer treatment, can be hard<br />
to cope with, leading to a loss of<br />
confidence affecting body image, social<br />
life and relationships. Upsettingly, too,<br />
lymphoedema may appear weeks,<br />
months or even years after surgery.<br />
Chai is at the forefront of searching<br />
out ways that make a meaningful<br />
difference to clients’ lives. With<br />
virtually no NHS resources available<br />
for dealing with lymphoedema, it<br />
recognised the need to support clients<br />
with this life-changing condition. Its<br />
Lymphoedema Clinic at the flagship<br />
centre launched in 2008. Specialist<br />
practitioner Sallyann Kaplan, explains<br />
its multi-faceted approach: ‘We provide<br />
MLD – manual lymphatic drainage – a<br />
very specific, slow, light and rhythmic<br />
massage that works on the network of<br />
vessels in the lymph system. Through<br />
gentle movement, lymph fluid is<br />
guided from the swollen area towards<br />
functioning nodes. We can fit clients<br />
for compression garments (such as<br />
sleeves, gloves, stockings or tights) and<br />
wrap the affected area in bandages<br />
where compression isn’t suitable. We<br />
also teach self-massage and exercises<br />
so there is continuity between visits.<br />
Swimming or yoga is recommended:<br />
movement is essential for the<br />
lymphatic system to function.’<br />
The newest treatment component is<br />
the Physio Touch massage device.<br />
‘The healing process can cause<br />
excessive amounts of scar or fibrotic<br />
tissue to build up,’ says Sallyann.<br />
‘Physio Touch augments the range of<br />
massage techniques we have at our<br />
disposal. It works on a deeper level of<br />
the lymphatic system that is harder to<br />
reach by hand, so it’s very effective in<br />
dealing with localised and older scar<br />
tissue. It’s a pleasant and relaxing<br />
experience, too.’<br />
As for the results, a newer client<br />
noticed a dramatic improvement in<br />
just two months. Some with more<br />
entrenched conditions have felt<br />
greater relief from their long-term<br />
symptoms. But the true impact goes<br />
beyond the physical. Says one, ‘I am<br />
feeling positive and have much more<br />
energy. This is the best I have felt<br />
in years.’ Adds Sallyann, ‘Although<br />
there is no way of repairing the<br />
damage to the lymph tissue, we can<br />
prevent it getting worse. We now<br />
have another way to restore dignity<br />
and quality of life for our clients.’ ■<br />
For more information, please call Jo Awad<br />
on 020 8457 3396<br />
Chai would like to thank the<br />
Outlook Committee for all their<br />
efforts in raising funds for the<br />
Physio Touch machine<br />
30<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
The Chai Calendar<br />
AUGUST 2015<br />
TRUDI BERMAN’S<br />
SPLENDID TEA<br />
A truly scrumptious tea for family and<br />
friends organised by Trudi Berman raised<br />
a fantastic £300 for Chai’s services in<br />
Manchester. ‘I wanted to do this as a thank<br />
you and to show my deep appreciation for<br />
Chai’s support and understanding,’ said<br />
Trudi, who used Chai’s services.<br />
Trudi Berman’s Manchester tea<br />
SEPTEMBER<br />
CHAI SOCIETY ROSH<br />
HASHANAH GIFT SALE<br />
It’s a save-the-date ‘must’ for anyone seeking<br />
special Rosh Hashanah gifts – and the 2015<br />
Chai Society Gift Sale didn’t disappoint,<br />
drawing over 700 shoppers to the flagship<br />
centre last September. Generously sponsored<br />
by Glentree Estates, over 40 stalls offered<br />
up tempting gifts, from hats to honey cakes,<br />
jewellery to Judaica, kosher confectionery to<br />
chic millinery, Maxwell Williams tableware to<br />
tempting eyewear. Expertly organised by the<br />
Chai Society Committee, the event raised<br />
an incredible £36,000.<br />
Amanda Assheton at her bridge stall<br />
OCTOBER<br />
THE NATALIE SHIPMAN<br />
MEMORIAL LECTURE<br />
Shining the spotlight on advances in men’s<br />
cancer, the 25th annual lecture ‘Transforming<br />
the Prostate Cancer Pathway’ was given<br />
by Professor Mark Emberton, Professor of<br />
Interventional Oncology, UCL whose work is<br />
significantly influencing treatment. In the Chair<br />
was Professor Albert Singer, Consultant (Hon)<br />
The Whittington Hospital. The lecture series<br />
commemorates the passing of 8-year-old Natalie<br />
Shipman z’l who inspired her mother Susan to<br />
jointly found Chai with Frances Winegarten z’l.<br />
Lisa Steele, Louise Hager, Prof Mark Emberton,<br />
Prof Albert Singer, Susan Shipman<br />
NOVEMBER<br />
THE CHAI BAKE OFF<br />
Keen bakers showcased their best efforts at<br />
Manchester’s Great Chai Bake Off, organised<br />
by the Chai Lights Committee: Ann Audin,<br />
Fran Horwich, Stephanie Jacobs, Marcelle<br />
Kuhillow, Jakki Pinsley and Reba Tury. Held<br />
at Whitefield Golf Club, a tasty afternoon of<br />
judging saw prizes awarded in best decorated,<br />
best tasting, junior and gentleman baker<br />
categories with more than £1,000 raised for<br />
Chai’s Manchester services.<br />
Junior bake off winner Monty Super and<br />
Mayor of Bury, Michelle Wiseman<br />
Our committees and supporters surpassed themselves over the past<br />
12 months with events that informed, entertained and charmed.<br />
Each one takes thought, organisation and commitment, and<br />
helps to raise funds while increasing awareness of Chai’s services<br />
CHAI FIVE MUSICAL BINGO<br />
A test of musical knowledge prompted a lively<br />
atmosphere and enthusiastic discussion at this<br />
event at the flagship centre. Aided by raffle<br />
prizes that included travel, restaurant and nail<br />
bar vouchers, delighted Committee member<br />
Liz Feiner announced £1,000 has been raised.<br />
BIRMINGHAM WELCOMES<br />
CHAI CANCER CARE<br />
A 70-strong audience attended the launch of<br />
the new Chai satellite service in Birmingham,<br />
the result of Chai working with BJCC trustee<br />
Karen Georgevic and Sharon Grey, Social Care<br />
Manager of the BJCC. Dr David Spooner,<br />
Consultant in Radiotherapy and Oncology<br />
gave a talk on latest cancer advances and took<br />
part in a Q&A session. The service is providing<br />
counselling, physiotherapy and massage.<br />
Lisa Steele, Dr David Spooner,<br />
Karen Georgevic, Louise Hager<br />
CHALLAH BAKE FOR<br />
MITZVAH DAY<br />
Delicious aromas filled the flagship centre<br />
when Year 6 pupils from the Independent<br />
Jewish Day School baked challah for clients<br />
on Mitzvah Day. After their kitchen activity<br />
the children saw the Children’s and Play<br />
Therapy room which supports young clients.<br />
Mia-Sara Rosenfeld, Jacob Gibson, Max<br />
Lanzkron and Avital Cohen<br />
31
Together Magazine 2016<br />
VISITING ISRAELI MINISTER<br />
IS AMAZED BY CHAI<br />
Chai’s Chief Executive Lisa Steele welcomed<br />
Rabbi Yakov Litzman, Israel’s Minister of<br />
Health, to the flagship centre where he toured<br />
the building to see the range of support services<br />
provided to cancer patients, their family and<br />
friends and met Chairman of Chai’s Medical<br />
Advisory Board, Dr Adrian Tookman and Philip<br />
Weinstein, Chai Trustee. Rabbi Litzman was<br />
certainly impressed: ‘We have nothing like this in<br />
Israel. It’s an amazing facility.’<br />
Dr Adrian Tookman, MK Rabbi Yakov Litzman,<br />
PhilipWeinstein<br />
DECEMBER<br />
RAGING BULL PARTY<br />
Chai supporters turned out in their droves for<br />
the Raging Bull Club Night at Camden Town’s<br />
iconic Koko venue. Live music, DJ sets, a laser<br />
show, fire drums and stage dancers made it a<br />
night to remember, raising £3,345 along the way.<br />
JANUARY 2016<br />
THE MAYOR OF BARNET’S<br />
CHARITY BRIDGE LUNCH<br />
Bridge, raising money for Chai and the Mayor<br />
of Barnet hosting – no wonder 110 eager card<br />
players supported this hot ticket event at the<br />
flagship centre. Organised by Carol Ellman and<br />
Angela White, the afternoon included a moving<br />
32<br />
The Chai Calendar<br />
speech from client Wendy Hoffman who<br />
described the impact of hearing she had cancer<br />
and how Chai ‘understood every nuance, every<br />
shade, every stage of the path I was treading.’<br />
The event raised £7,300, which went towards<br />
Chai’s Home Support Service.<br />
Lisa Steele, Carol Ellman, Councillor Mark<br />
Shooter, Wendy Hoffman, Melissa Shooter<br />
FEBRUARY<br />
RAISING AWARENESS<br />
IN ESSEX<br />
‘Cancer Survivorship – Living with and beyond<br />
cancer’ was the theme of a talk presented to<br />
the Essex community by Consultant Clinical<br />
Oncologist Dr Sherif Raouf, at the Redbridge<br />
Jewish Community Centre. He shed light on<br />
the often overlooked after-effects of treatment<br />
and how each patient requires individual<br />
support. Chai’s Essex Services currently<br />
support more than 70 clients.<br />
Rabbi Nissan Wilson, Dr Sherif Raouf<br />
YOUNG CHAI’S<br />
‘SUGAR CHAI’<br />
Three of the UK’s most respected nutrition<br />
and food industry experts were grilled by 60<br />
guests at a Young Chai debate on the Sugar<br />
Tax at the flagship centre. Grappling with<br />
sugar’s reputation were nutritionist Ian Marber,<br />
and entrepreneurs Asher Budwig of Lola’s<br />
Cupcakes and Mitch Minton of Presscription.<br />
From media influence and the NHS to<br />
childhood obesity and lifestyle, no area was<br />
off limits to the trio. The informative evening<br />
raised £1,120.<br />
Young Chai Committee with panellists Mitch<br />
Minton, Ian Marber, Asher Budwig<br />
UPLIFTING MUSIC<br />
AND LAUGHTER<br />
More than 200 guests enjoyed a very special<br />
evening of entertainment including a preview<br />
of singer Eitan Freilich’s new album, at ‘An<br />
Evening of Song and Celebration’. Hosted by<br />
charedi stand-up comic Ashley Blaker, Eitan<br />
dedicated the fundraiser for Chai to his late<br />
father and performed a song written in his<br />
memory. The evening raised £1,500.<br />
Eitan Freilich and his band<br />
Together 2016<br />
BATMITZVAH GIRLS BRUNCH<br />
An enterprising group of girlfriends, who all<br />
met at Hertsmere Jewish Primary School,<br />
decided to celebrate their Bat Mitzvah by<br />
hosting a brunch for 40 of their pals, now at JFS<br />
or Yavneh College. The girls prepared all the<br />
food and drinks themselves and held a raffle,<br />
raising more than £1,000 for Chai.<br />
Amalya Millan, Sofia Forman, Katy Denby,<br />
Allie Bohm, Isabella Becker<br />
MARCH<br />
MANCHESTER LECTURE<br />
The Heathlands Village was the venue for a<br />
talk entitled ‘Prevention and early detection of<br />
breast cancer’ given by Lester Barr, Consultant<br />
Surgeon and Chairman of the Genesis<br />
Breast Cancer Prevention Centre. The lecture<br />
covered pioneering research and the impact of<br />
genetics and environmental issues. Services in<br />
Manchester, Liverpool and Leeds continue to<br />
expand as the number of clients seeking<br />
Chai’s services increases.<br />
PRE-PURIM FRIDAY<br />
NIGHT DINNER<br />
Building on the huge popularity of last year’s<br />
event, the Chai Five Committee returned to Beit<br />
Hamadras Indian Restaurant in Hendon for an<br />
Asian-themed Pre-Purim Friday Night Dinner,<br />
and raised £400.<br />
Chai Cancer Care<br />
APRIL<br />
‘SINGO’<br />
It’s bingo but not<br />
THE LOVE CHAI COMMITTEE<br />
are delighted to invite you to<br />
Singo<br />
as you know it –<br />
instead of numbers<br />
SUNDAY 17TH APRIL 2016<br />
on a card, there<br />
Doors open 19.00 | Event 19.30 - 22.00<br />
Admission fee £30<br />
Venue<br />
Chai Centre, 142-146 Great North Way<br />
are song titles<br />
London, NW4 1EH<br />
Light supper will be served<br />
BYOB (kosher)<br />
to tick off. The<br />
Raffle & Auction on the night<br />
years<br />
To book please click here or<br />
musical evening<br />
contact melanie@chaicancercare.org<br />
at the flagship<br />
centre gave 75 guests some lively entertainment<br />
and introduced many to the breadth of services<br />
and support Chai can give to young families<br />
and newlyweds. With raffle prizes including<br />
a Jimmy Choo handbag and a signed Brazil<br />
football shirt, the Love Chai committee –<br />
Danielle Baron, Nikki Bloom, Miriam Felder,<br />
Stephanie Gerstler, Talia Savitz and Caroline<br />
Tunkel – raised £2,500.<br />
Bingo with a twist!<br />
GOURMET DINNER PARTY<br />
How lucky were the 28 specially invited guests<br />
who enjoyed an exclusive gourmet dinner party<br />
hosted by Gefiltefest founder Michael Leventhal<br />
and his wife Rachel Marcus. Michael’s family<br />
and in particular his mother who is going<br />
through cancer, have benefitted from Chai’s care<br />
recently. ‘They have provided us with wonderful,<br />
much appreciated support,’ he said. The evening<br />
raised more than £2,400.<br />
Rachel Marcus and Michael Leventhal<br />
THE OUTLOOK<br />
IS GREAT!<br />
In the last 16 years, the<br />
Outlook Committee has<br />
raised more than £400,000<br />
for Chai’s vital services. The<br />
creativity and professionalism<br />
of committee members<br />
Elaine Barnett, Sue Freedman,<br />
Fran Goldin, Michele Lees-<br />
Smith, Marilyn Myers,<br />
Sally Needleman, Jackie<br />
Sharpstone and Janis and<br />
Rikki Sher, always ensures<br />
fantastic support.<br />
The Outlook Committee<br />
These are the year’s highlights:<br />
the 13th Annual Outlook<br />
Committee 10k Walk raised<br />
£18,000 with the money<br />
going towards Chai’s<br />
Children, Teenage and<br />
Family Service. The everpopular<br />
Outlook Bridge<br />
Lunch and a fascinating talk<br />
from Erika Judge about her<br />
Kindertransport escape<br />
from Vienna at the age of 12,<br />
raised £2,610 and £3,060<br />
respectively. These last two<br />
events funded vital new<br />
massage equipment to help<br />
ease the long-term effects<br />
of lymphoedema.<br />
33
CHAI CHALLENGES YOU!<br />
MAY<br />
GLASGOW GIRLS<br />
BRIDGE LUNCH<br />
Louise Kramer, Frances Bloom, Lynda Rapport,<br />
Barbara Kay, Linda Reich, Linda Goldberg<br />
Glasgow Girls in London hosted their second<br />
highly successful bridge lunch at the flagship<br />
centre, raising £4,000 to be split between<br />
Chai’s Glasgow service, and several other<br />
Glasgow charities. Committee member<br />
Louise Kramer, said, ‘We look forward to<br />
doing it all again next year!’<br />
Paul Gold, son Elliot and joint winner Juliet Kent<br />
CELEBRATING<br />
SIMONE’S LIFE<br />
When Paul Gold hosted a packed bridge<br />
event at the Ace of Clubs Bridge Club at Mill<br />
Hill Golf Club, he did it wearing the purple<br />
wig his late wife Simone wore during her<br />
chemotherapy treatment. ‘I wanted it to be<br />
a happy event and this was the wig Simone<br />
wore to the bridge club to put people at ease,’<br />
said Paul. The event raised £3,460 for Chai.<br />
The Chai Calendar<br />
JUNE<br />
GOLFERS HIT GOLD!<br />
The 11th Club 18 Chai Golf Tournament took<br />
place at Dyrham Park Country Club where<br />
nearly 100 golfers teed off on the testing<br />
6,428-yard course, competing for one of<br />
four prizes. Despite the cold, grey conditions,<br />
spirits remained high throughout the day<br />
and into the evening when the golfers enjoyed<br />
a cocktail party, dinner and raffle, with prizes<br />
from Hummingbird Motors and Osprey. The<br />
event raised more than £40,000. Michael<br />
Lubliner and Ronnie Gottlieb, said: ‘The<br />
atmosphere was great and the day’s scores<br />
were quite remarkable.’<br />
Michael Lubliner, Ronnie Gottlieb, Lisa Steele,<br />
Louise Hager, Jack Galaun, Trevor Berkowitz,<br />
David Joffe, Jennifer Cohen<br />
JULY<br />
‘COME DINE WITH ME’<br />
There was a novel approach to Shabbat dinner<br />
hospitality when more than 40 guests enjoyed<br />
a meal in five different venues across Hendon.<br />
The event, organised by the Chai Five<br />
Committee, was generously hosted by Rebecca<br />
Attar, Laura Beer, Aviva Braunold, Brochy<br />
Forta, Shoshy Lerner, Richard Lewis, Lauren<br />
Rosettenstein, Hannah Smith, and Maya<br />
Zippel and raised over £900.<br />
JENSON’S ON THE MONEY<br />
10-year-old Jenson Blankstone organised a<br />
table sale in his driveway to raise funds for<br />
Chai’s Liverpool satellite service. Jenson, a<br />
pupil at King David Primary School, raised<br />
£35 selling all the books and toys he had<br />
grown out of.<br />
Jenson Blankstone<br />
AUGUST<br />
GOODIES FOR GOOD<br />
It was a case of ‘flour power’ when friends,<br />
Ella Frankfurt, Atara Fachler, Tehilla Rome<br />
and Liora Dewinter from the Independent<br />
Jewish Day School and Hasmonean Primary<br />
School, put their baking skills to deliciously<br />
good use for Chai. Their baking sale raised<br />
an impressive £150.<br />
Ella Frankfurt, Atara Fachler, Tehilla Rome,<br />
Liora Dewinter<br />
Turn to p39 to see how you can easily<br />
donate to Chai<br />
34<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
24<br />
24<br />
PEAKS IN<br />
HOURS<br />
LIFE CHANGES COMPLETELY WITH A<br />
CANCER DIAGNOSIS – IN JUST ONE DAY<br />
Chai Challenges You! to make a difference – in just 24 hours.<br />
The ‘24 Peaks in 24 Hours’ challenge invites you to become<br />
a ‘Chai Climber’ and scale a total of 13,986 feet of the<br />
most beautiful, rugged and demanding terrain in the Lake<br />
District, including Scafell Pike, England’s highest mountain.<br />
Every penny raised by the ‘Chai Climbers’ will go towards<br />
Chai’s Home Support Service, which brings our services to<br />
those unable to reach our 11 centres across the UK.<br />
Are you tough enough to become a ‘Chai Climber’<br />
and take the challenge?<br />
Women only, minimum sponshorship £2,400<br />
25th-27th June 2017<br />
To find out more visit: tinyurl.com/jg3hahp<br />
To register your interest and to attend our information<br />
evening on Monday 7th November 2016<br />
email: alexandramaurice@chaicancercare.org<br />
or call Alexandra on 020 8457 3394
Chai Cancer Care Together Magazine 2016<br />
You’re<br />
amazing!<br />
Thank you to all the sponsored runners, riders,<br />
climbers – and quirky challengers whose<br />
commitment, effort and generosity to Chai ensure<br />
our services reach everyone who needs us. Your<br />
kindness and loyalty is never taken for granted<br />
Jason Lipman &<br />
Joel Hilton<br />
Lionel & Ben Davis<br />
Jonathan Barr<br />
RELATIVE SUCCESS AT<br />
THE ROYAL PARKS<br />
Brothers-in-law Jason Lipman and<br />
Joel Hilton completed the Royal<br />
Parks Half Marathon in memory<br />
of their Grandpa Ray, who used<br />
Chai’s services, raising £1,960<br />
and £1,580 respectively. Also<br />
running were Lionel and Ben<br />
Davis in memory of friend and<br />
godmother Debra Persey who<br />
benefitted from Chai before she<br />
passed away last year. The father/<br />
son duo raised over £4,900, for<br />
Chai and Macmillan.<br />
RAISING THE BARR<br />
IN NYC<br />
Last November’s New York<br />
marathon was an especially<br />
meaningful challenge for Jonathan<br />
Barr. It came just 10 weeks after<br />
he finished chemotherapy for<br />
testicular cancer and a few months<br />
after his mother Val passed away<br />
from breast cancer. Val, who<br />
volunteered at Chai, and Jonathan,<br />
both used Chai services. ‘Our<br />
family was surrounded by such<br />
kindness and support at Chai.<br />
I’m delighted to give something<br />
back.’ Finishing in 5 hours 5mins,<br />
Jonathan raised £3,230.<br />
Joel Anderson<br />
Tapnack family<br />
Anderson family<br />
WHAT A HAIR DO CAN DO!<br />
Brothers Simon and Max Misrahi raised a staggering<br />
£13,427 when they went platinum blonde to raise<br />
awareness of the impact of breast cancer, and to<br />
support Chai. Hairstylist Robin Pawloski (centre)<br />
transformed their brown locks at Chai’s Image<br />
Resource Room at the flagship centre. The idea came<br />
after their mother Joyce was treated for breast cancer<br />
four years ago. ‘I’m so proud of my boys!’ she said of<br />
the amount raised.<br />
JOEL REACHES HIS PEAK<br />
Twenty years after losing his father to<br />
cancer, Joel Anderson embarked on<br />
the challenge of a lifetime, climbing<br />
Kilimanjaro. ‘Chai’s services were not<br />
available to my family all those years ago.<br />
Now they offer great support.’ Describing<br />
it as ‘gruelling’, Joel’s reward was scaling<br />
all 5985m and raising more than £5,660.<br />
MACCABI GB FUN RUN<br />
A bumper turnout of more than 180<br />
supporters raised more than £12,500 at<br />
this family-friendly event. Among them<br />
the Tapnack family: Dani, Jonny and<br />
children Josh 10, Jacob 7, and Talia 4,<br />
who raised an incredible £1,500. Also<br />
participating were Vered and Marc<br />
Anderson and children Ethan 12, Lia 7,<br />
and Aiden 5. ‘I recently lost a close friend<br />
who was only 42,’ said Vered. ‘She left<br />
behind a husband and four girls. Chai did<br />
a lot for all of them.’ The Fahidi family,<br />
too, came to Chai when mother Nicole<br />
had breast cancer. They raised £1,200.<br />
David Abramson,<br />
Sammy Weinbaum<br />
Emma Borkin<br />
Josh Rom’s<br />
sponsored back<br />
wax – ouch!<br />
David with Ruby (in<br />
buggy) and supporters<br />
Jessica, Ella & Romy<br />
36<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
VITALITY NORTH LONDON<br />
HALF MARATHON<br />
Many people have personal reasons for<br />
supporting Chai. David Abramson’s was<br />
his friend David Goldschmidt. ‘Watching<br />
David’s illness progress was devastating.<br />
Chai made his last year a bit easier. I’m<br />
delighted to run in his honour.’ Friend<br />
Sammy Weinbaum ran in tribute to the<br />
care his mother-in-law received from Chai.<br />
‘It allowed her to be an individual and not<br />
be defined by cancer.’ David and Sammy<br />
raised over £4,650. Also running was<br />
Emma Borkin who raised £500.<br />
THANKS ALSO TOO…<br />
Mitchell<br />
Stanton’s<br />
Capital 2 Coast<br />
cycle raised<br />
£856<br />
Trekathon’s<br />
Suzanne Gold with<br />
her father, brother<br />
and son Ethan<br />
RUNNING FOR LAUREL<br />
By the time Laurel Cohen gave birth to<br />
daughter Ruby in 2015, the joy she and<br />
husband David had at becoming parents<br />
had been shattered by the news that Laurel<br />
had terminal bowel cancer. Laurel was<br />
visited by a Chai counsellor and David<br />
continues to use its services. A year after<br />
Laurel’s death in July 2015, David began a<br />
series of fundraising runs with baby Ruby.<br />
‘We’re doing 10ks as it’s really challenging<br />
when you’re pushing a buggy,’ says David<br />
whose inspiring initiative has raised £2,350.<br />
SINAI GIRLS SWEET IDEA<br />
Sinai school friends Jessica Harris,<br />
Ella Baskin and Romy Lever, all nine,<br />
organised an after-school sweet sale and<br />
raised £90. What a yummy idea!<br />
Middle-Aged<br />
Men in Lycra<br />
BAR AND BAT MITZVAH STARS<br />
Thinking of Chai at the time of their simchas, our wonderful young supporters<br />
Aryeh<br />
Birnbaum<br />
Brook<br />
Goldenberg<br />
Chaim Ostreicher,<br />
Jakob Silber, Yanki<br />
Wolff, Moshe Fachler,<br />
David Regal<br />
Chana & Yitzi Weisz<br />
‘MAMILs’ IN THE SADDLE FROM<br />
LONDON TO PARIS<br />
Middle-Aged Men in Lycra (MAMILs),<br />
Chai physiotherapist, Graham Silas, with<br />
friends Jonny Goldberg, Gideon Kay<br />
and Richard Stephens took on the 350km<br />
London to Paris bike ride in August.<br />
‘Each of us is connected to Chai through<br />
work or because loved ones have used<br />
its services. We wanted to support it and<br />
prove to ourselves - and our wives – that<br />
we still had it in us!’ says Graham. They<br />
found their three days of effort ‘hugely<br />
inspiring’ and raised more than £7,500.<br />
Joel<br />
Toledano<br />
Pearl<br />
Maurice<br />
Zack<br />
Lovat<br />
HASMONEAN’S FIRST GIVE<br />
A team of five schoolboys from<br />
Hasmonean Boys’ School scooped second<br />
prize in the First Give competition,<br />
winning a £250 donation for Chai. The<br />
initiative encourages young people to give<br />
their time, tenacity and talents to improve<br />
their communities. The boys chose to visit<br />
Chai’s flagship to learn about its work.<br />
TZEDAKA GIFT<br />
Chana and Yitzi Weisz brought their<br />
tzedaka money into Chai in January,<br />
along with a truly touching message: ‘We<br />
had no idea how much a simple donation<br />
can help the kids at Chai. The team thinks<br />
of the best toys to buy for the children.’<br />
37
Chai Cancer Care Together Magazine 2016<br />
4 FOR THE CHOP<br />
Who knew plaits were so valuable? Talia Robeson<br />
raised £3,708 and Abigail Benaim almost £1,200 with<br />
their sponsored snips for Chai. Both girls donated their<br />
hair to Zichron Menachem, which makes wigs for<br />
children with cancer. Aurelia Hodes’ new bob made<br />
£1,750, and when Aviva Myerson’s mother, Esther,<br />
began losing her hair because of chemotherapy, she<br />
showed solidarity by being shorn too, raising £900.<br />
Talia Robeson<br />
Aurelia Hodes<br />
Aviva Myerson (right)<br />
and mother Esther<br />
Abigail Benaim<br />
THE BEST WAY TO<br />
RAISE MONEY FOR US<br />
Did you know Chai has its own fundraising<br />
platform? For Chai is a platform dedicated to helping<br />
you publicise your challenge and lets you post<br />
photographs, tell your story and update your sponsors<br />
on your progress and results. Best of all, unlike other<br />
fundraising platforms, it takes no cut from the money<br />
donated so every penny goes direct to support Chai’s<br />
services. It’s simple to get started and absolutely<br />
secure. Just go to chaicancercare.org and click on the<br />
For Chai link in the top right hand corner of the page.<br />
CHAI WOULD LIKE TO<br />
ACKNOWLEDGE OUR WONDERFUL<br />
SUPPORTERS WHO HAVE SET UP A<br />
FUNDRAISING PAGE IN AID OF CHAI<br />
David Abramson<br />
Julie Alexander<br />
Joyce Alexander-Black<br />
Joel Anderson<br />
Gerald Barc<br />
Jonathan Barr<br />
Abigail Benaim<br />
Daphne Berkovi<br />
Henny Bernstein<br />
Russell Black<br />
Emma Borkin<br />
Olivia Bucci<br />
Ian and Linda Burns<br />
Lorraine Burns<br />
Sara Canning<br />
Plateful of Love Cookbook<br />
Committee<br />
Hazel & Laurence Cohen<br />
David Cohen<br />
Jonathan Connick<br />
Karen Cooper<br />
Max Curtis<br />
Melanie Daniels<br />
Sandra Davis<br />
Lionel & Ben Davis<br />
Fahidi Family<br />
Benji Field<br />
Anthony Field<br />
Michelle Finesilver<br />
Zara Finestone<br />
Libby Fisher<br />
Jo Fishman<br />
Frankfurt Family<br />
Suzy Gold<br />
Lesley Gordon<br />
Joel Hilton<br />
Aurelia Hodes<br />
Susan Hyer<br />
Nicola Josephs<br />
Jackie Kramer<br />
Kramer Family<br />
Suzanne Langham<br />
Amber Rose Levene<br />
Michael Leventhal &<br />
Rachel Marcus<br />
Adam Lewis<br />
Jason Lipman<br />
Janine Lowy<br />
Hannah Mark<br />
Adam Marks<br />
Middle Aged Men in Lycra<br />
Hannah Martin<br />
Simon and Max Misrahi<br />
Shelley Molyneux<br />
Aviva Myerson<br />
Olivia Naylor<br />
Evie Nicholls<br />
Gabby Niman<br />
Roger Nyman<br />
Malcolm Persey<br />
Shelley Poll<br />
Lorraine Raphael<br />
Eleanor Richman &<br />
Charlotte Silver<br />
Talia Robeson<br />
Joshua Rom<br />
Linda Rose<br />
Natalie Rosen<br />
Fiona Scott<br />
Andrew Selzer<br />
Noah Shulman-Miller<br />
Judith Spevock<br />
Vivien Spevock<br />
Mitchell Stanton<br />
Tapnack Family<br />
Nikki Tapper<br />
Karen Treep<br />
Sammy Weinbaum<br />
Martin West<br />
Geoff Wynne<br />
10K Walk - Outlook<br />
Committee<br />
How YOU make<br />
the difference<br />
When you come to a<br />
Chai event or sponsor<br />
an intrepid trekker, take on<br />
a challenge or organise a<br />
fundraiser, you’re making a<br />
difference to many lives –<br />
and many generations.<br />
People like Nikky Schofield,<br />
her mother Lucille and<br />
daughter Izzy, who came<br />
to Chai back in 2012, when<br />
Nikky was diagnosed with<br />
breast cancer.<br />
A cancer diagnosis rarely<br />
affects just the patient.<br />
Children, parents, partners<br />
and siblings also have their<br />
world turned upside down.<br />
‘I’m not sure how we would<br />
WAYS TO GIVE<br />
On special occasions<br />
Nominate Chai to mark an event<br />
or celebration, in lieu of gifts<br />
Contact Jacki Stanton<br />
jackistanton@chaicancercare.org<br />
or call on 020 8457 3231<br />
Leave a legacy<br />
An enduring way to support<br />
Chai is with a legacy in your<br />
Will. Visit Jewish Legacy Giving<br />
(jewishlegacygiving.org.uk) to<br />
find out more. If you wish to tell<br />
us of your intention, we would<br />
have got through everything<br />
without Chai’s practical<br />
and emotional support,’<br />
says Nikky.<br />
The rising numbers of cancer<br />
diagnoses in those under 40<br />
and more people living with<br />
the effects of treatment,<br />
mean our services are<br />
continuously expanding and<br />
developing. And it’s thanks<br />
to you that they can.<br />
Your donation gives a child<br />
somewhere to explore their<br />
fragile feelings, you enable a<br />
person to regain their fitness<br />
and feel positive again, and<br />
you help ensure a husband<br />
can cope with his loss.<br />
be honoured to recognise your<br />
generosity during your lifetime.<br />
Contact Lisa Steele:<br />
lisas@chaicancercare.org<br />
or call 020 8457 3392<br />
Donate online<br />
The simplest and quickest way<br />
to donate. Click on the Make a<br />
Donation yellow tab on the top<br />
right hand side of our website.<br />
Call us<br />
For donations over the phone<br />
Call Jacki Stanton<br />
on 020 8457 3231<br />
or Janet Lloyd on 020 8457 2072<br />
Nikky (centre), mother Lucille and daughter Izzy<br />
– three generations supported by Chai<br />
On behalf of each generation<br />
who benefits from your loyalty<br />
and generosity, we give our<br />
heartfelt thanks and gratitude.<br />
By Post<br />
Send cheques or charity<br />
vouchers to:<br />
Chai Cancer Care<br />
142-146 Great North Way<br />
London NW4 1EH<br />
Gift Aid your donation<br />
If you are UK taxpayer,<br />
Gift Aid increases your<br />
donations by 25%. Tell<br />
us when you make your<br />
donation, or download a<br />
Gift Aid Declaration form<br />
from our website.<br />
38<br />
Chai Cancer Care Together 2016 Chai Cancer Care<br />
39
How<br />
does<br />
Chai<br />
care?<br />
Thanks to the generosity of the<br />
community, Chai Cancer Care<br />
provides specialised support to<br />
thousands of people across the<br />
UK who have been affected by<br />
a cancer diagnosis.<br />
To find out more please call our<br />
Freephone Helpline on<br />
0808 808 4567 or visit<br />
www.chaicancercare.org<br />
Advisory Services<br />
Advocacy & Information<br />
Advice Bureau<br />
Financial & Legal Guidance<br />
Image Resource Service<br />
Jewish Perspectives on Cancer<br />
Medical Connections<br />
Nutritional & Dietary Advice<br />
Resources & Information<br />
Counselling<br />
Counselling for Individuals,<br />
Couples & Families<br />
Counselling for Genetic Issues<br />
Music Therapy<br />
Relationship Counselling<br />
Telephone & Skype Counselling<br />
Children, Teenage<br />
and Family Service<br />
Art Therapy<br />
Music Therapy<br />
Play Therapy<br />
Therapies<br />
Manual Lymphatic Drainage<br />
Physiotherapy<br />
Medical Outpatient Rehabilitation<br />
and Palliative Care Service<br />
Complementary Therapies<br />
Acupuncture<br />
Aromatherapy<br />
Foot Care Service<br />
Healing<br />
Hot Stones<br />
Hypnotherapy<br />
Indian Head Massage<br />
Reflexology<br />
Reiki<br />
Therapeutic Massage<br />
Home Support Service<br />
Group Activities<br />
Art Workshop<br />
Computer Lessons<br />
Israeli Dancing<br />
Jewellery Workshop<br />
Knitting<br />
Meditation<br />
Music Workshop<br />
Open/Supervised Gym Sessions<br />
Pet Therapy<br />
Pilates<br />
Table Tennis<br />
Walking Group<br />
Yoga<br />
Support Groups<br />
BRCA Group<br />
Bereavement Groups<br />
Breast Buddies<br />
Groups for Cancer<br />
Patients/Carers<br />
Lifestyle Group<br />
Volunteer Service<br />
Services are available at:<br />
North West London<br />
South London<br />
Essex<br />
Hackney<br />
Southend<br />
Birmingham<br />
Leeds<br />
Liverpool<br />
South Manchester<br />
North Manchester<br />
Glasgow<br />
Clients’ Homes<br />
Chai Lifeline Cancer Care Registered Charity No. 1078956<br />
Together 2016