Tuberous Sclerosis Australia Reach Out Magazine October 2016

5 minutes with
2016 Western Sydney Ironman 70.3 – Jeff and Elliot
Elliott (second from right) riding in
Central West NSW for TSC Heroes
What has inspired you to raise money for people living with tuberous sclerosis?
Elliot: Sally and I became involved in TSA because my daughter Amelia who is now 20 has TSC. We were
involved from an early age, as we found the support from the TSC community invaluable.
Jeff: I became involved in TSA through my daughter Zarah. Zarah was diagnosed with TSC at 6 weeks old and
being our first child, it turned our lives upside down. Like many rare diseases the information available was hit and
miss until we found TSA.
Their goal
$60,000
What are you doing as part of your fundraising effort?
On November 27 we are competing in the Western Sydney Ironman 70.3. We have a team of around 20 people and hope to raise $60,000
for TSA. You can donate to our team on the Everyday Hero fundraising website:
https://give.everydayhero.com/au/tsc-heroes-ironman-70-3
What do you hope to achieve by raising funds for TSA?
We want to raise awareness and raise much needed funds to support families living with TSC. We want to blow the doors off the last total
and reach our new goal of $60,000 and motivate other teams to get involved!
Could you be
a hero?
The TSC Heroes team has raised over $50,000 since
its inception in 2014. Members have run, cycled and
swum to support people living with tuberous sclerosis.
We’ll be there every step of the way to support you
with ideas, uniforms and promotions.
Visit www.tsa.org.au/tsc-heroes
to find out more about our upcoming
events around Australia.