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The Bleeding Times- Spring 2017

New York City Hemophilia Chapter's print magazine, The Bleeding Times, is now available online!

New York City Hemophilia Chapter's print magazine, The Bleeding Times, is now available online!

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JOIN US FOR A DAY OF<br />

FUN & COMMUNITY<br />

AT THE<br />

12TH NYC<br />

HEMOPHILIA WALK<br />

SUNDAY, JUNE 4<br />

RIVERSIDE PARK<br />

97TH STREET & RIVERSIDE<br />

HEMOPHILIA HURTS!<br />

A Sibling’s Perspective<br />

BY FARAH PAVRI<br />

Hemophilia hurts both physically and emotionally!! Physically it hurts the one that has the disorder, and emotionally<br />

it hurts the affected person and everyone else around them. Everyone is affected emotionally on different levels. As<br />

a sibling, the worst thing for me is that I can’t fight my brother back when we get into a fight :-|. All jokes aside, I have<br />

always wondered what life with hemophilia would be like. I’ve seen my brother suffering since he was a toddler. Ankle and<br />

elbow bleeds were like the common cold or a cough any child at that age would have. However, for the past 3 years, my<br />

brother’s right knee has become his target joint. Sometimes when his knee bleeds, it can get as big as a cantaloupe. All<br />

rivalry is kept aside when I see my brother crying from the pain of his bleeds.<br />

Being a sibling of someone with hemophilia has made me<br />

curious about the topic. I attend seminars and camps with<br />

him, and am always trying to get more information. Because<br />

you never know when it might come in handy. I know I can<br />

never understand the pain my brother goes through, but I can<br />

understand how bad it can be. Whenever my brother can’t play<br />

basketball or walk because his knee hurts, I don’t ride my bike<br />

or play outside because I don’t want him to feel bad or left out.<br />

I wouldn’t want to join a sport that he couldn’t participate in. I’d<br />

rather wait to play with him when he feels better.<br />

Hemophilia or not, I love my brother and wouldn’t trade him<br />

for anything in the world! He’s my little baby :-).<br />

Looking for a new, fresh<br />

perspective on living<br />

with hemophilia?<br />

CREATE YOUR<br />

WALK TEAM TODAY!<br />

http://hemophiliawalk.donordrive.com/<br />

event/newyorkcity<br />

From,<br />

Farah Pavri, Age 14<br />

Introducing your<br />

all NEW guide to<br />

Living With<br />

Hemophilia<br />

See What’s New at<br />

www.LivingWithHemophilia.com<br />

© Bayer. All rights reserved. BAYER,<br />

the Bayer Cross and Living With<br />

Hemophilia are registered trademarks<br />

of Bayer. 1/17. PP-775-US-0526

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