Saya Positif Newsprint (English)
Tanah Papua has the highest HIV/AIDS infection rates in Indonesia. The majority of the public in the region still perceives HIV/AIDS to mean suffering, dishonor, and death. The biggest obstacles remaining to receive treatment and preventive care are the stigmatization and discrimination directed at people living with HIV/AIDS or who are at risk of HIV infections. I am Positif, profiles seven individuals who are HIV positive. Contrary to the negative stereotypes, they are strong, healthy, productive, resilient, and hopeful. Their incredible testimonies are not only a source of inspiration but also the evidence necessary to help end HIV/AIDS-related stigmas and discrimination in Tanah Papua. For more information please visit the official website: www.Iampositif.org (English) -www.sayapositif.org (Bahasa Indonesia).
Tanah Papua has the highest HIV/AIDS infection rates in Indonesia. The majority of the public in the region still perceives HIV/AIDS to mean suffering, dishonor, and death. The biggest obstacles remaining to receive treatment and preventive care are the stigmatization and discrimination directed at people living with HIV/AIDS or who are at risk of HIV infections. I am Positif, profiles seven individuals who are HIV positive. Contrary to the negative stereotypes, they are strong, healthy, productive, resilient, and hopeful. Their incredible testimonies are not only a source of inspiration but also the evidence necessary to help end HIV/AIDS-related stigmas and discrimination in Tanah Papua. For more information please visit the official website: www.Iampositif.org (English) -www.sayapositif.org (Bahasa Indonesia).
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CHAPTER 51
52 I AM POSITIF<br />
Resources<br />
HIV/AIDS DOES NOT EQUAL<br />
SUFFERING, DISHONOR, OR DEATH.<br />
It is a treatable illness. As proven by our<br />
friend’s testimony, people with HIV/AIDS<br />
are still able to work, provide and care<br />
for their family, get married, have healthy<br />
children, pursue their goals, and have a<br />
long and fulfilling life. HIV/AIDS is not<br />
the end.<br />
IT IS IMPORTANT TO GET TESTED FOR<br />
HIV. By knowing our status we could get<br />
immediate treatment and prevent passing<br />
the HIV virus to our loved ones. Many<br />
clinics and hospitals in Tanah Papua offer<br />
free HIV test with immediate results.<br />
THE HIV VIRUS IS NOT TRANSMITTED<br />
BY<br />
• Air or water<br />
• Insects, including mosquitoes or ticks<br />
• Saliva, tears, or sweat<br />
• Casual contact, like shaking hands, or<br />
hugging.<br />
• Sharing eating utensils or clothes<br />
• Drinking fountains<br />
• Toilet seats<br />
THE HIV VIRUS IS ONLY TRANSMITTED<br />
FROM BLOOD & BODY FLUIDS<br />
• Having unprotected sexual intercourse<br />
with a partner with HIV<br />
• Contacts with HIV infected blood in<br />
transfusions and needle sharing<br />
• As a baby of an HIV-infected mother,<br />
during pregnancy, labour or delivery,<br />
or through breastfeeding.<br />
PROTECT YOURSELF FROM CON-<br />
TRACTING HIV. Use a condom during<br />
sexual intercourse and refrain from sharing<br />
a needle.<br />
PREVENT TRANSMITTING THE HIV<br />
VIRUS. Disclose your status immediately<br />
to intimate partners and spouse once<br />
diagnosed with HIV and take preventive<br />
measures to stop further transmission.<br />
A pregnant woman with HIV can prevent<br />
passing the HIV virus to her unborn child<br />
by following PCMTCT of Prevention<br />
Mother-to-Child Transmission of HIV<br />
available at pre-natal care clinic.<br />
ARV OR ANTIRETROVIRAL IS THE<br />
ONLY MEDICINE PROVEN TO TREAT<br />
HIV/AIDS. It is available for free at many<br />
nearby clinics and hospitals. ARV suppresses<br />
the HIV virus and maintains the<br />
body’s immune system. Remember that<br />
by taking ARV regularly someone who<br />
is HIV positive can still live a normal and<br />
healthy life.<br />
STAYING HEALTHY WHILE LIVING<br />
WITH HIV REQUIRES EFFORTS. To ensure<br />
a healthy life it’s best to seek assistance<br />
and motivation from the nearest<br />
support group, counselor, and family<br />
members and close friends that you trust.<br />
Also, follow your doctor’s advice, get<br />
routine medical checkups, get plenty of<br />
rest, exercise, eat nutritious food, reduce<br />
smoking and alcohol consumption, and<br />
most importantly take ARV regularly and<br />
on time.
CHAPTER 53
56 I AM POSITIF<br />
Take Action<br />
STIGMATIZATION AND DISCRIMINA-<br />
TION CAUSE NEGATIVE ATTITUDES<br />
AND ABUSE toward people living with<br />
HIV/AIDS or who are at risk of HIV infections.<br />
DISCRIMINATION IS A VIOLATION OF<br />
HUMAN RIGHTS with negative consequences.<br />
• Loss of employment, livelihoods, and<br />
property<br />
• Loss of social status<br />
• Loss of marriage, children, and friends<br />
• Social exclusion or expulsion from<br />
home and community<br />
• Violence<br />
• Physical and psychological abuse<br />
• Denial of medical services<br />
• Lack of care and support<br />
• Suffering and mortality<br />
WE HAVE TO WORK TOGETHER TO<br />
END THE STIGMA AND DISCRIMINA-<br />
TION RELATED TO HIV/AIDS in our<br />
healthcare facilities, school, work, community,<br />
home, and within ourselves.<br />
• Stop discriminatory actions such as<br />
verbal and physical abuse and expulsion<br />
• Stop using negative words to describe<br />
individuals living with HIV/AIDS<br />
• Treat them with respect and dignity<br />
• Provide assistance and support<br />
• Ensure confidentiality of status<br />
• Break the silence and challenge attitudes,<br />
beliefs and behaviors that contribute<br />
to stigma and discrimination in<br />
your community<br />
• Share positive stories of success about<br />
individuals living with HIV/AIDS to<br />
your friends and family<br />
• Learn more about HIV/AIDS by visiting<br />
the nearest clinic or hospital
CHAPTER 57
I COULDN’T HAVE DONE THIS WITH-<br />
OUT THE KINDNESS AND COURAGE<br />
of my friends who trusted me into<br />
their lives to tell their inspiring stories:<br />
Yosua Rumkorem, Reni Purwoningsih,<br />
Wesley Kosai, Meri Itlay, Jhon Mateus,<br />
Ibu Ratna, and Siti Rumkakir. All of you<br />
are heroes. Thank you.<br />
Additional support by:<br />
• Sorong Sehati<br />
• YPKM Wamena<br />
• Klinik Kalvari Wamena<br />
• Open Society Foundations<br />
• Clinton Health Access Initiative<br />
(CHAI) staffs in Tanah Papua<br />
Special thanks to my friends and<br />
colleagues for their help and guidance<br />
during production:<br />
• Joni Wong<br />
• Okky Ardya<br />
• Ulet Ifansasti<br />
• Gembong Nusantara<br />
• Hai Truong at Creative Squeeze<br />
• Nanang Sujana & Leoni Rahmawati<br />
• Kevin WY Lee at Invisible<br />
Photographer Asia<br />
• Muhammad Fadli & Putu Sayoga<br />
at Arka Project<br />
The financial backing for this project<br />
was supported in part by the Catchlight<br />
Activist Grant (formerly PhotoPhilanthropy).