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Saya Positif Newsprint (English)

Tanah Papua has the highest HIV/AIDS infection rates in Indonesia. The majority of the public in the region still perceives HIV/AIDS to mean suffering, dishonor, and death. The biggest obstacles remaining to receive treatment and preventive care are the stigmatization and discrimination directed at people living with HIV/AIDS or who are at risk of HIV infections. I am Positif, profiles seven individuals who are HIV positive. Contrary to the negative stereotypes, they are strong, healthy, productive, resilient, and hopeful. Their incredible testimonies are not only a source of inspiration but also the evidence necessary to help end HIV/AIDS-related stigmas and discrimination in Tanah Papua. For more information please visit the official website: www.Iampositif.org (English) -www.sayapositif.org (Bahasa Indonesia).

Tanah Papua has the highest HIV/AIDS infection rates in Indonesia. The majority of the public in the region still perceives HIV/AIDS to mean suffering, dishonor, and death. The biggest obstacles remaining to receive treatment and preventive care are the stigmatization and discrimination directed at people living with HIV/AIDS or who are at risk of HIV infections. I am Positif, profiles seven individuals who are HIV positive. Contrary to the negative stereotypes, they are strong, healthy, productive, resilient, and hopeful. Their incredible testimonies are not only a source of inspiration but also the evidence necessary to help end HIV/AIDS-related stigmas and discrimination in Tanah Papua. For more information please visit the official website: www.Iampositif.org (English) -www.sayapositif.org (Bahasa Indonesia).

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CHAPTER 51


52 I AM POSITIF<br />

Resources<br />

HIV/AIDS DOES NOT EQUAL<br />

SUFFERING, DISHONOR, OR DEATH.<br />

It is a treatable illness. As proven by our<br />

friend’s testimony, people with HIV/AIDS<br />

are still able to work, provide and care<br />

for their family, get married, have healthy<br />

children, pursue their goals, and have a<br />

long and fulfilling life. HIV/AIDS is not<br />

the end.<br />

IT IS IMPORTANT TO GET TESTED FOR<br />

HIV. By knowing our status we could get<br />

immediate treatment and prevent passing<br />

the HIV virus to our loved ones. Many<br />

clinics and hospitals in Tanah Papua offer<br />

free HIV test with immediate results.<br />

THE HIV VIRUS IS NOT TRANSMITTED<br />

BY<br />

• Air or water<br />

• Insects, including mosquitoes or ticks<br />

• Saliva, tears, or sweat<br />

• Casual contact, like shaking hands, or<br />

hugging.<br />

• Sharing eating utensils or clothes<br />

• Drinking fountains<br />

• Toilet seats<br />

THE HIV VIRUS IS ONLY TRANSMITTED<br />

FROM BLOOD & BODY FLUIDS<br />

• Having unprotected sexual intercourse<br />

with a partner with HIV<br />

• Contacts with HIV infected blood in<br />

transfusions and needle sharing<br />

• As a baby of an HIV-infected mother,<br />

during pregnancy, labour or delivery,<br />

or through breastfeeding.<br />

PROTECT YOURSELF FROM CON-<br />

TRACTING HIV. Use a condom during<br />

sexual intercourse and refrain from sharing<br />

a needle.<br />

PREVENT TRANSMITTING THE HIV<br />

VIRUS. Disclose your status immediately<br />

to intimate partners and spouse once<br />

diagnosed with HIV and take preventive<br />

measures to stop further transmission.<br />

A pregnant woman with HIV can prevent<br />

passing the HIV virus to her unborn child<br />

by following PCMTCT of Prevention<br />

Mother-to-Child Transmission of HIV<br />

available at pre-natal care clinic.<br />

ARV OR ANTIRETROVIRAL IS THE<br />

ONLY MEDICINE PROVEN TO TREAT<br />

HIV/AIDS. It is available for free at many<br />

nearby clinics and hospitals. ARV suppresses<br />

the HIV virus and maintains the<br />

body’s immune system. Remember that<br />

by taking ARV regularly someone who<br />

is HIV positive can still live a normal and<br />

healthy life.<br />

STAYING HEALTHY WHILE LIVING<br />

WITH HIV REQUIRES EFFORTS. To ensure<br />

a healthy life it’s best to seek assistance<br />

and motivation from the nearest<br />

support group, counselor, and family<br />

members and close friends that you trust.<br />

Also, follow your doctor’s advice, get<br />

routine medical checkups, get plenty of<br />

rest, exercise, eat nutritious food, reduce<br />

smoking and alcohol consumption, and<br />

most importantly take ARV regularly and<br />

on time.


CHAPTER 53


56 I AM POSITIF<br />

Take Action<br />

STIGMATIZATION AND DISCRIMINA-<br />

TION CAUSE NEGATIVE ATTITUDES<br />

AND ABUSE toward people living with<br />

HIV/AIDS or who are at risk of HIV infections.<br />

DISCRIMINATION IS A VIOLATION OF<br />

HUMAN RIGHTS with negative consequences.<br />

• Loss of employment, livelihoods, and<br />

property<br />

• Loss of social status<br />

• Loss of marriage, children, and friends<br />

• Social exclusion or expulsion from<br />

home and community<br />

• Violence<br />

• Physical and psychological abuse<br />

• Denial of medical services<br />

• Lack of care and support<br />

• Suffering and mortality<br />

WE HAVE TO WORK TOGETHER TO<br />

END THE STIGMA AND DISCRIMINA-<br />

TION RELATED TO HIV/AIDS in our<br />

healthcare facilities, school, work, community,<br />

home, and within ourselves.<br />

• Stop discriminatory actions such as<br />

verbal and physical abuse and expulsion<br />

• Stop using negative words to describe<br />

individuals living with HIV/AIDS<br />

• Treat them with respect and dignity<br />

• Provide assistance and support<br />

• Ensure confidentiality of status<br />

• Break the silence and challenge attitudes,<br />

beliefs and behaviors that contribute<br />

to stigma and discrimination in<br />

your community<br />

• Share positive stories of success about<br />

individuals living with HIV/AIDS to<br />

your friends and family<br />

• Learn more about HIV/AIDS by visiting<br />

the nearest clinic or hospital


CHAPTER 57


I COULDN’T HAVE DONE THIS WITH-<br />

OUT THE KINDNESS AND COURAGE<br />

of my friends who trusted me into<br />

their lives to tell their inspiring stories:<br />

Yosua Rumkorem, Reni Purwoningsih,<br />

Wesley Kosai, Meri Itlay, Jhon Mateus,<br />

Ibu Ratna, and Siti Rumkakir. All of you<br />

are heroes. Thank you.<br />

Additional support by:<br />

• Sorong Sehati<br />

• YPKM Wamena<br />

• Klinik Kalvari Wamena<br />

• Open Society Foundations<br />

• Clinton Health Access Initiative<br />

(CHAI) staffs in Tanah Papua<br />

Special thanks to my friends and<br />

colleagues for their help and guidance<br />

during production:<br />

• Joni Wong<br />

• Okky Ardya<br />

• Ulet Ifansasti<br />

• Gembong Nusantara<br />

• Hai Truong at Creative Squeeze<br />

• Nanang Sujana & Leoni Rahmawati<br />

• Kevin WY Lee at Invisible<br />

Photographer Asia<br />

• Muhammad Fadli & Putu Sayoga<br />

at Arka Project<br />

The financial backing for this project<br />

was supported in part by the Catchlight<br />

Activist Grant (formerly PhotoPhilanthropy).

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