Cancer Survivorship Delegate Programme 2017

7-8 NOVEMBER 2017 

THE VILLAGE HOTEL 

BLACKPOOL 

#HNCCONF2017 

Cancer Survivorship Front Cover.indd 1 31/10/2017 13:22

Welcome 

After a very successful 2016 

conference in Liverpool, we hope the 

Head & Neck Cancer Conference 2017 

will be an inspiring and memorable 

experience for everyone who attends. 

The conference will pose questions about ‘Living with 

and beyond cancer’. Inspired by leading national 

and international thinkers, it will explore how, by 

introducing greater passion and understanding into 

the patient’s journey, carers and the people who work 

with them will make informed choices, continue 

learning and aspire to world-class performance. 

We invite 

delegates to 

‘think differently’ 

At a time when health professionals are under ever 

more severe pressures, the conference will examine 

the opportunities for everyone to help improve the Quality of Life. We will explore potential ways 

of enabling all of us to think differently about how we learn and what we can achieve. 

The programme will deliver an exciting mix of keynote speakers, exhibitions and fringe activities 

themed around the strands of ‘Living with and beyond cancer’ and will invite delegates to ‘Think 

Differently’ as a result. Speakers will be invited either to build their presentation around this 

triple-pronged approach or to concentrate on one aspect. Anecdotal and personal experience 

will be encouraged. Wherever possible, speakers have been grouped to explore counter or 

complementary positions within a strand to further engage the audience. The participation of 

patients and carers in all aspects will form an integral part of the conference. 

I would like to thank a truly international line-up of speakers from the USA, Australia and the UK 

who are giving up their time to speak at the conference. 

We all hope you get involved and enjoy your day. Please use #HNCCONF2017 when posting your 

thoughts on Twitter. 

Chris Curtis 

World Head & Neck Cancer Patient Ambassador 

@H_and_Ncancer 

Head and Neck Cancer 

Conference 2017 


Conference 

Presidents Address 

On behalf of myself and the team at 

Blackpool Victoria hospital I would 

like to welcome you to this year’s 

international head & neck cancer 

conference here in Blackpool. 

It is a privilege to serve as President of this inspirational conference. The incidence of head 

and neck cancer in England is the highest in the North west. Our patients tend to present 

quite late to us with advanced disease and this can be associated with poorer outcomes 

when compared to cancer results in other parts of the country. It is befitting then that this 

conference is being held at Blackpool. 

Patients support, and awareness is becoming an important part of the ‘Pathway/Journey’ and 

can help patients from diagnoses through to survivorship in understand and coming to terms 

with cancer. Here in Blackpool we are proud to have the Swallows Charity who support our 

patients and over the last six years this charity has grown to international status and supports 

patients as far as the USA. The charity not only provides patient support and information but 

also has been instrumental in donating equipment to our hospital. This was recognised in the 

recent MBE award presented to Swallows earlier this year. 

All health professionals and patients should understand the issues around living with 

and beyond cancer and the best people to educate us all is our patients/survivors, so the 

next two days will go a long way to educate us all. There have been recent advances in 

the management of head & neck cancer. I look forward to learning about new techniques 

in surgery and radiotherapy with reduced morbidity which can enhance the range of 

treatment options available to us. There will also be an opportunity to hear about aspects of 

management of cancer in Australia and the USA so that we can benefit from their experience. 

I am very grateful to all our speakers, some of whom have travelled a long distance to be with 

us, for their time and effort in sharing their experience of head & neck cancer with us over the 

next two days. 

This should be an exciting conference which I am sure we will all enjoy. 

r 

er 

Mr Ajay Nigam FRCSEd FRCSEng FRCSORL 

Consultant ENT and Head & Neck Surgeon 

& Conference President 2017 


yourcancerjourney.org.uk/conference 


1 

DAY 1 

TUESDAY 7TH NOVEMBER 

TIME 

08.45 

- 

09.45 

Conference Room and Exhibition open 

Registration, Refreshments and Networking 

09.45 

- 

10.00 

Conference Welcome | Chris Curtis (Conference Organiser) 

Head & Neck Cancer Survivor & World H&N Ambassador 

Ajay Nigam (Conference President) | H&N Surgeon 

10.00 

- 

10:30 

Arthur Lauretano (USA) 

Medical Director at Lowell Cancer Centre, H&N Surgeon 

10.30 

- 

10.45 

Phil Parramore | Business Advisor and H&N Cancer Volunteer 

10.45 

- 

11.15 

Dr K Vasudev | Histopathologist Rtd 

11.15 

- 

11.30 

Break 

11.30 

- 

12.00 

Claire Burke (USA) | Oncology Nurse 

12.00 

- 

12.30 

Sajjad Iqbal (USA) 

Rare Cancer Patient Survivor 

12.30 

- 

13.15 

Lunch & Networking Opportunity | Exhibition Halls open 

13.15 

- 

14.00 

Julie McCrossin (Australia) H&N Survivor 

International patient speaker 

14.00 

- 

14:30 

Jo Patterson | Honorary Senior Clinical Lecturer & Speech & 

Language Therapist in ENT 

14:30 

- 

15.00 

Dr Alex Mitchell (UK) | Honorary Senior Lecturer in psychooncology 

of liaison psychiatry 

15.00 

- 

15.30 

Networking and Exhibition (Refreshments) 

15.30 

- 

16.00 

Chris Lewis (UK) | Long term cancer survivor 

16.00 

- 

16.30 

Dr Gillian Knight and Students from Derby University 

HPV Education Film launch 

1630 

- 

17.00 

Naseem Ghazali (UK) | Robotic Surgeon 

17.00 

- 

17.30 

Dr Jiri Kubes, (Prague) 

PhD, Medical Director Pencil Beam Scanning (PBS) 

17.30 

- 

17.45 

Q&A Session | Hosted by Chris Curtis and Ajay Nigam 

Speakers will be invited to join 

17.45 

- 

18.00 

Networking and Exhibition Hall 

7.30pm for 8pm 

Speakers Dinner | The Village Hotel Inspirational Room 


2 

DAY 2 

WEDNESDAY 8TH NOVEMBER 

TIME 

09.00 

- 

09.45 

Exhibition Open 

Registration, Networking and Refreshments 

09.45 

- 

10.00 

Conference Welcome | Chris Curtis (Conference Organiser) 

Head & Neck Cancer Survivor and World H&N Ambassador 

Ajay Nigam (Conference President) | H&N Surgeon 

10:00 

- 

10:30 

Arthur Lauretano (USA) 

Medical Director at Lowell Cancer Centre, H&N Surgeon 

10.30 

- 

10.45 

Phil Parramore | Business Advisor and H&N Cancer Volunteer 

10.45 

- 

11.15 

Dr K Vasudev | Histopathologist Rtd 

11.15 

- 

11.30 

Break 

11.30 

- 

11.50 

Dr Gillian Knight and Students from Derby University 

HPV Education Film launch 

11.50 

- 

12.20 

Claire Burke (USA) | Oncology Nurse 

12.20 

- 

12.50 

Sajjad Iqbal (USA) | Rare Cancer Patient Survivor 

12.50 

- 

13.45 

Lunch & Networking Opportunity 

Exhibition Halls open throughout lunch 

13.45 

- 

13.50 

Presentation of Donation to The Swallows Charity 

13.50 

- 

14.30 

Julie McCrossin (Australia) | H&N Survivor 

International patient speaker 

14:30 

or 

- 

15:00 

Jo Patterson | Honorary Senior Clinical Lecturer & Speech & 

Language Therapist in ENT 

14.30 

- 

15.00 

Dr Rob Hicks (TV Doctor) & Dawn Maher (Blackpool Carers) 

The Role of Carers (breakout session) 

Sponsored by Beaverbrooks Jewellers 

15:00 

- 

15:30 

Networking and Exhibition (Refreshments) 

15.30 

- 

16.00 

Dr Alex Mitchell (UK) | Honorary Senior Lecturer in psychooncology 

of liaison psychiatry 

16.00 

- 

16.30 

Chris Lewis (UK) | Long term cancer survivor 

16:30 

- 

17.00 

Naseem Ghazali (UK) | Robotic Surgeon 

17.00 

- 

17.30 

Q&A Session | Hosted by Chris Curtis and Ajay Nigam 

Speakers will be invited to join 

17.30 

- 

18.00 

Networking and Exhibition Hall 



Quality of Life Definition 

‘The general well-being of a person, defined in 

terms of health and happiness, rather than wealth.’ 

Even when a condition can be totally cured, there is a period of reduced 

quality of life that most of us would just as soon avoid. It is our 

responsibility to improve the quality of life for ourselves and others. A 

healthy lifestyle leads to a better quality of life.’ 

Source: Collins English Dictionary. Copyright © HarperCollins Publishers 

Why Quality of Life post- treatment can be hard to predict… 

The goal of treatment for head and neck cancers is to control the disease. 

However, doctors should also be concerned about preserving the function 

of the affected areas as much as they can, and helping the patient 

return to normal activities as soon as possible after treatment. Rehabilitation 

is a very important part of this process. The goals of rehabilitation 

depend on the extent of the disease and the treatment that a patient 

has received. 

Depending on the location of the cancer and the type of treatment, 

rehabilitation may include physical therapy, dietary counselling, speech 

therapy, and/or learning how to care for a stoma. A stoma is an opening 

into the windpipe through which a patient breathes after a laryngectomy, 

(surgery to remove the larynx). 

Sometimes, especially with cancer of the oral cavity, a patient may need 

reconstructive and plastic surgery to rebuild bones or tissues. 

However, reconstructive surgery may not always be possible 

because of damage to the remaining tissue from the original 

surgery or from radiation therapy. If reconstructive surgery is not 

possible, a prosthodontist may be able to make a prosthesis (an artificial 

dental and/or facial part) to restore satisfactory swallowing, speech, and 

appearance. Patients will receive training on how to use the device. 

Patients who have trouble speaking after treatment may need speech 

therapy. Often a speech-language pathologist will visit the patient in 

the hospital to plan therapy and teach speech exercises or alternative 

methods of speaking. Speech therapy usually continues after the patient 

returns home. 

Eating and swallowing may be difficult after treatment for head and 

neck cancer. Some patients receive nutrients directly into a vein after 

surgery or need a feeding tube until they can eat on their own. A feeding 

tube is a flexible plastic tube that is passed into the stomach through 

the nose or an incision in the abdomen. A nurse or speech-language 

pathologist can help patients learn how to swallow again after surgery. 

When the doctors say, ‘Good news. You are free of 

cancer.’ the hard part of the journey starts. That is why 

the conference title is ‘Living with and Beyond Cancer.’ 


Quality of Life Capture 

“Throughout the conference, storytelling about Quality of Life in 

Your Cancer Journey will be encouraged, through listening to 

world class speakers and being confident to share your experiences. 

Whether you are a Health Professional, patient or carer 

the intention is the same – to capture successes, achievements 

and what can be done in future to improve survivorship rates and 

quality of life still further.” 

I will be introducing, through short sessions on both days, a 

dedicated space in the conference room, “Quality of Life Capture 

Wall” where all present will be encouraged to write, draw and pin 

up their success stories and additional improvements to support, 

products or services that will be needed in future. 

If you are a Health Professional, what have been your greatest 

achievements in supporting Head & Neck cancer patients or carers 

with their Quality of Life? What are you working on now that 

will be recognised as improvements for the future? And lastly, 

what would you like to see if you had an ‘Open Cheque Book’? 

If you are a Head and Neck cancer patient or carer, then what are 

the stories you want to tell about how well you have been supported 

to improve Quality of Life? And what additional support is 

needed that will improve things still further? 

Please do contribute, sharing your achievements, successes and 

what improvements are still required. Our Quality of Life Capture 

Wall will be on show throughout the conference and 

you can add to it at any time during refreshments and 

lunch breaks or at the end of the day. 

Following the event all your views will be reviewed and compared 

to the Success Wall from World Head & Neck Day event. This will 

support the development of a conference review report. If you 

would like to have a copy of the report, please sign the document 

next to the “Quality of Life Capture Wall”. 

I hope you have a thoroughly enjoyable event, making new connections, 

developing relationships and supporting the best possible 

Quality of Life for Head and Neck Cancer patients and carers.” 

Phil Parramore 

GuideDotYou Change Solutions 

www.guidedotyou.co.uk 




Speakers 

Arthur M. Lauretano, M.D., M.S., F.A.C.S. 

Medical Director of the Lowell General Hospital 

Multidisciplinary Head and Neck Centre, and the 

Medical Director for Inpatient Speciality Services at 

Lowell General Hospital. 

Chris Curtis 

World Head & Neck Cancer Patient Ambassador 

Head & Neck Cancer from a patient’s perspective. 

Chris Lewis FRSA 

Founder of ‘Chris’s Cancer Community’ and co-founder 

of ‘Your simPal’ His work has won him many awards and 

has led to him being one of the major patient influencers 

within the cancer sector. 

Clair Burke 

Oncology Nurse USA Claire is a registered nurse with 35 

years of nursing experience in hospitals, home health and 

outpatient settings in the United States. 

Mr. Ajay Nigam FRCS Ed, FRCS Eng, FRCS (ORL) 

Consultant at Lancashire ENT Services, with specialities in 

Ear, Nose & Throat, Rhinology and Head & Neck Surgery. 

Dr Alex J Mitchell 

NHS consultant and honorary senior lecturer in psychooncology 

(a branch of liaison psychiatry). 

Dr Jo Patterson 

Honorary Senior Clinical Lecturer (Newcastle University) 

and Lead Speech & Language Therapist in ENT 

(Sunderland Royal Hospital). 


Speakers 

Dr K Vasudev 

Histopathologist Rtd 

The role of the Histopathologist in the Diagnosis and 

Management of Head & Neck Cancer. 

Dr. Rob Hicks 

Talking about the role of carers 

Dr Rob is one of the UK’s most popular and well-known 

media doctors. 

Dr. Sajjad Iqbal 

Rare Cancer, Patient Survivor of 15 years from New Jersey, 

United States. He is the longest living survivor of salivary 

duct carcinoma. 

Dr Gillian Knight 

Head of Biosciences, Deputy Head of Natural Sciences, 

College of Life and Natural Sciences at University of Derby. 

Julie McCrossin 

International Patient Speaker 

Renowned across Australia for her warmth, humour, 

intelligence and commitment to social justice. 

Naseem Ghazali MSc, DOHNS, FDSRCS, 

FRCS(OMFSS) 

Robotic surgeon at Blackburn Hospital 




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WE ALL HAVE 

A story to tell 

LET’S SHARE 

AND BE INSPIRED 

I have been fortunate enough that 

cancer has not impacted on my family 

or friends for a couple of generations 

since my grandfather’s death, I, like most, 

have struggled with many life challenges. 

Including a failed marriage, a rough 

ride for my three daughters, a hearing 

impairment, unemployed for a good 

spell, lone parenting for a two year spell, 

and significant challenges to re-entering 

employment. 

That said my glass is always well over three 

quarters full, never half empty. 

12th August 2013 I will always class as one of 

my lifetime achievements. 

On that day I started my own business, 

a dream of mine for many, many years. 

Despite many hurdles along the way I am 

resilient, determined, the business survives 

and modestly continues on its growth 

journey. The business model developed 

means GuideDotYou will still be around as I 

go to the grave and I intend it to continue 

through future generations. 

I encourage people to participate in 

activities, socialise, volunteer, and enter 

into sustainable employment or selfemployment 

if they are realistically able. 

Together we can put the emphasis on 

prevention is better than cure and improve 

the quality of life for so many, leading to 

better health outcomes for individuals 

across our diverse population. 

Thank you for attending the conference. I 

know for some of you it’s not easy to do, 

but I applaud you for being here and being 

prepared to share and help others with their 

journey. I look forward to learning from and 

being inspired by you all; and hope you can 

embrace the successes and future plans of 

patients, carers and support organisations. 

Phil Parramore 

GuideDotYou Change Solutions 

www.guidedotyou.co.uk 

Our efforts have been such as to be able 

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including leading to improved self-esteem, 

motivation, improved physical and mental 

health, and reduced psychological distress. 


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Thankyou to all our conference supporters 

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had midweek and the golden rule for 

weekend breaks remains reserve well in 

advance. 

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continue! 

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UK first – a double launch rollercoaster, 

with a £16.25 million investment making 

it possible. 

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resort’s rising success, getting in sooner 

rather than later. As for a baseline to 

build on, the most recent official visitor 

numbers stand at an eyewatering 18 

million annually, which means when 

truth be told the popularity of Blackpool 

with its one third of the nation appeal 

can only be best described as one thing 

and one thing only – Only Fools and 

Horses on sea. 


Cancer Survivorship Front Cover.indd 24 31/10/2017 13:23 

-------

The Swallows Head and 

Neck Cancer Support Group, 

in collabaration with the 

Rosemere Cancer Foundation, 

is launching the UK’s first 

Radiotherapy Mask Art 

Exhibition to raise the profile of 

head and neck cancers. 

We would love you to be involved, either by decorating your own mask or by donating 

your mask for others to decorate. Schools, art colleges and a number of professional 

artists are being invited to take part and the exhibition will be unveiled at the Patients 

Head and Neck Cancer Conference in Blackpool in November 2017. It will then visit the 

Rosemere Cancer Centre and Blackpool Victoria Hospital, before touring England and 

beyond, finishing at the Rosemere Centre for a Grand-Fundraising Evening. On return 

to the UK, the exhibits will be put up for auction and the funds split equally between The 

Swallows and Rosemere. 

If you would like to decorate and enter your own mask simply request to keep it at the 

end of your treatment, decorate it and submit a photograph, along with your contact 

details and any information you would like to share about the inspiration for your 

design, by email to chris@theswallows.org.uk. 

If you would like to donate your mask for others to decorate, please tell your 

radiotherapist and they will ensure that your mask is passed on. If you would also like 

to pass on a short, anonymous biography, that would help greatly to inspire our artists. 

Simply fill in the slip below and pass it to your radiotherapist. 

--------------------------------------------------------------------------------------------------- 

RADIOTHERAPY MASK ART EXHIBITION 2017 

I am Male / Female 

Full Name: 

………………………………………………………………………………………………………………… 

Address: 

………………………………………………………………………………………………………………… 

………………………………………………………………………………………………………………… 

I would like to be informed of exhibition and auction dates and venues please 

I would like to donate my Mask to raise funds 

I would like my Mask returning at the end of the tour 

Telephone ……………………………………………………. Email ……………………………………......………………………… 


OUR BUSY SHOP REQUIRES 

VOLUNTEERS 

Please call and speak to Anne 

WE COLLECT FOR FREE MOST ITEMS ACCEPTED 

SWALLOWS • Clothing ADVERT • Furniture • 

• Household Items • Bric-A-Brac • 

We are pleased to support the 

International 2017 South Head & Shore Neck Conference Carnival 2017 

Who are The Swallows? 

We are the Head & Neck Cancer Support Charity and we are known as the ‘Swallows’ due to the difficulty a lot of 

people have with swallowing once diagnosed with this type of Cancer. The Swallows Charity was formed by 

Head & Neck cancer patients and is based around help, support and providing information for patients, carers 

and their families. 

The 

Swallows 

Head & Neck Cancer Support Group 

Registered Charity Number : 1149794 

Call in at: The Michael Stenhouse Centre, 

68-70 Waterloo Road, Blackpool, FY4 1AB 

For more information call: 

01253 428 940 

www.theswallows.org.uk 

www.facebook.com/theswallowscancersupport 

@swallowsgroup 

www.justgiving.com/theswallows 


Wills and 

Probate 

Safeguarding 

your plans and 

your wishes 

Marsden Rawsthorn’s sensitive and practical approach brings 

you peace of mind. We will help you clarify your plans and ensure 

that your wishes are respected in a compassionate manner. 

Our services can be adapted according to the complexity of your 

matter and the level of advice and support you need. Our large 

team of specialist solicitors can help you with all aspects of Wills, 

Trusts, Powers of Attorney, Court of Protection matters as well as 

Probate and the administration of deceased’s estates. 

We are happy to accommodate home visits or hospital/ 

hospice appointments. 

Preston office 

3 & 4 Faraday Court 

Faraday Drive 

Fulwood 

Preston PR2 9NB 

t: 01772 799600 

f: 01772 651831 

info@marsdenrawsthorn.com 

www.marsdenrawsthorn.com 

@uksolicitors 

Chorley office 

Westmarch House 

42 Eaton Avenue 

Buckshaw Village 

Chorley PR7 7NA 

t: 01257 279511 

f: 01772 651831 


NEW 

Luna 

Better 

Nights 

Better 

Days 

New night-time solution to help you prepare for better days 

Provox Luna has been designed to help you 

have better nights and prepare for better days. 

The Provox Luna HME provides superior 

humidification compared to other HMEs 

and it has a low breathing resistance for easy 

breathing at night. 

The Provox Luna Adhesive is soft and smooth 

and helps to soothe and cool your skin 

while you sleep. 

Use Provox Luna at night to sleep comfortably 

and get ready for an active day. 

Experience the difference! 

• Sleep comfortably 

• Soothe your skin 

• Improve your lung health 

Contact us for more information and a free sample: 

Tel: 011 578 418 97 

Email: sample@atosmedical.co.uk and quote LUNAAD2 

Web: www.atosmedical.co.uk

Cancer Survivorship Delegate Programme 2017

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