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Naturally AUTISTIC<br />
Showcasing the Strength and<br />
Talent of the Global Autistic Community<br />
®<br />
Spring 2017<br />
Cultural Harmonics<br />
A shift in perspective<br />
Autistic Lifestyles<br />
Greetings from Manila<br />
Special Fall 2017 Insert, included<br />
®<br />
<strong>ANCA</strong><br />
naturallyautistic.com
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NATURALLY<br />
AUTISTIC ®<br />
Leonora Gregory–Collura Charlie Collura<br />
Publishers<br />
anca@naturallyautistic.com<br />
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editor@naturallyautistic.com<br />
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layout@naturallyautistic.com<br />
Mailing Address<br />
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Naturally Autistic ® <strong>ANCA</strong> ®<br />
To Subscribe Visit<br />
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Published by Naturally Autistic ® press<br />
Copyright 2017 <strong>ANCA</strong> ® Consulting Inc<br />
All Rights Reserved<br />
ISSN 1923-9890<br />
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Contributors<br />
Bob Delaney<br />
Bob Delaney is a freelance copy editor and fact checker for various book and magazine<br />
publishers. Previously, he served for six years as editor at Squadron/Signal Publications<br />
of Carrollton, Texas, USA. Mr. Delaney was diagnosed with Asperger’s syndrome in 2004.<br />
He lives in St. Louis, Missouri, USA, and his interests include refereeing soccer, scale<br />
modeling, reading, and viewing classic films.<br />
Leonora Gregory-Collura<br />
Leonora Gregory-Collura Dipl. RBS TTC – Co-Founder of <strong>ANCA</strong>® Naturally Autistic<br />
Organizations. A graduate of Elmhurst Ballet School and the Royal Ballet School, UK,<br />
Leonora has 40 years of experience teaching and working with special needs children and<br />
adults, has produced numerous international choreographies and productions related to<br />
promoting the talent and abilities of Autistic People. Diagnosed as autistic in the early<br />
1990’s.<br />
Vell Baria<br />
Charlie Collura<br />
Self-identified, Charlie is a graduate of Sheridan College and McMaster University and is<br />
the co-founder of <strong>ANCA</strong>® Consulting and the non-profit <strong>ANCA</strong>® Foundation. Charlie is an<br />
educator, workshop presenter, writer and consultant. He has thirty years of experience<br />
working with autistic children and adults in the public school, group home, community<br />
and consulting settings.<br />
Vell Baria (Philippines) is a lyric coloratura soprano, concert singer, theater actress,<br />
and autism advocate. Vell was one of the nominees for the 7th INAP Awards 2016 in the<br />
Category of Performing Arts (Adult) and won first place. Vell was also appointed as one of<br />
the <strong>ANCA</strong> World Ambassadors for the Philippines. She won two awards in the 2016 Autistic<br />
Gala Night: “Excellence in Performance” and “Best In Visual Arts.” Vell’s interests includes<br />
modeling for art classes, choral conducting, church music, hairdressing, cosmetology,<br />
independent living, politics, and languages. Vell is also known for recording covers for her<br />
YouTube and onepoint.fm accounts. Vell manages her own Facebook fan page and group, and her official website<br />
vellbaria.wordpress.com.<br />
Liz Pritchard (USA)<br />
A twenty-three year-old autistic graphic artist who raises awareness of various psychological<br />
conditions through original comic books in order to erase the negative stigma<br />
that often surrounds these conditions. Art has always provided a healthy outlet for Liz to<br />
express her frustrations and anxieties when words were too difficult. Liz wants to help<br />
other individuals like herself by helping them find their voice, as art has helped Liz find<br />
her voice. Liz is an <strong>ANCA</strong> World Ambassador representing the United States of America."<br />
Joely Colmer<br />
My name is Joely Colmer, I am 25 and I am a young female Autism Activist, Author and<br />
Motivational Speaker, with a very special gift... I have a disability called Asperger's<br />
Syndrome. Asperger's Syndrome is a gift that hinders me with many hidden hardships<br />
but also walks hand in hand with the very things I love most about myself. Most of all,<br />
Asperger's has allowed me to achieve my dreams of helping others. United Kingdom<br />
Carol Holst<br />
Carol Holst, pianist and harpist, diagnosed with Asperger's at age 52, Mom of an autistic son,<br />
married 30 years. Currently residing in the USA.<br />
Twitter by: <strong>ANCA</strong>_AutismFest<br />
Abelardo Apollo Archie David PhD.<br />
The founder of Philippine-based organizations for differently-abled youth from all walks<br />
of life. His works are widely acknowledged as best practice models, winning recognitions<br />
locally and abroad.<br />
®<br />
<strong>ANCA</strong><br />
World Autism Festival<br />
www.blogtalkradio.com/autistic-people<br />
www.livestream.com/naturallyautisticanca<br />
Photos: 2015 <strong>ANCA</strong>® World Autism Festival archives. Naturally Autistic <strong>ANCA</strong> archives and contributor<br />
archives.<br />
Information contained in Naturally Autistic® is not medical advice and should not be treated as such. Naturally Autistic® and its content<br />
are not intended to provide medical advice, and are not intended to be used to diagnose or assess health conditions or to be substituted for<br />
professional medical advice. You should not disregard professional medical advice or delay in seeking it because of something you have read<br />
in Naturally Autistic®.Naturally Autistic® and its employees, contributors, agents and publisher are not liable or responsible for any loss or<br />
damage arising from reliance on information contained in Naturally Autistic®. Your reliance on any information provided by Naturally Autistic®<br />
is solely at your own risk.<br />
Naturally Autistic® takes no responsibility for the accuracy of statements published in Naturally Autistic®. Naturally Autistic® presents the<br />
information contained herein without any warranty of any kind, express or implied, and is not liable for mistakes, errors, or omissions of any<br />
kind, or for any loss or damage caused by reliance on such information. Naturally Autistic® does not endorse or suggest any particular medical<br />
tests, pharmaceutical products, physicians or other health providers, products, or medical procedures.<br />
www.naturallyautistic.com |<br />
3
Naturally Autistic <strong>ANCA</strong>:<br />
Cultural Harmonics<br />
Cover Photo by: Sergey Sergiyenko<br />
7<br />
15<br />
In this Issue<br />
3 Contributors<br />
5 Editorial<br />
6 Cultural Harmonics<br />
12 Letters to the Editor<br />
Departments<br />
18<br />
Naturally Autistic ® People<br />
14 A Shift in Perspective:<br />
Inspiring Inclusion Through<br />
Illustration<br />
24 <strong>ANCA</strong> ® Workshop Review<br />
28 <strong>ANCA</strong> ® Kicks-Off 2017<br />
Around the World<br />
In Next Issue<br />
2018 Spring Issue<br />
2017 AWAF 7th Annual Event<br />
20<br />
2017 Theme: Cultural Convergence<br />
2017 Nominees,<br />
International Judges,<br />
Presenters & Performance<br />
Artists<br />
4<br />
| www.naturallyautistic.com<br />
Naturally Autistic ® Lifestyles<br />
18 Greetings From Manila<br />
20 My Home; My Fairy<br />
Jam Jar<br />
22 On The Move
From the Co-Founders of Naturally Autistic ®<br />
Welcome to Naturally Autistic ® by Leonora Gregory–Collura<br />
In this third Spring Issue for the<br />
Naturally Autistic magazine and including<br />
the Fall Issues, our 10th issue<br />
of the magazine in total, readership<br />
and contributors continue to fulfill<br />
their dreams as well as appreciate<br />
opportunities to connect and partner<br />
with the global community. Content<br />
submitted is timeless and inspiring!<br />
Each magazine suggests another<br />
global path on this wonderful journey<br />
of emergence, establishing the autistic<br />
culture into the realms of societal<br />
cultures.<br />
The theme for this issue , “Cultural<br />
Harmonics”, was inspired by our guest<br />
lead contributing writer Vell Baria<br />
from the Philippines. Vell was a 2016<br />
Official Nominee for the INAP AWARD<br />
for the performing arts going back to<br />
the Philippines representing her country<br />
as AWARD recipient and <strong>ANCA</strong> ®<br />
World Ambassador. As she states in<br />
the opening paragraph of her article,<br />
“Cultural Harmonics”: “In my definition<br />
and perspective, Harmonics is living<br />
together in universal harmony.”<br />
And in this issue you can hear the<br />
voices of shared experiences exemplifying<br />
this message from the ‘Letters<br />
to the Editor”, using one’s gift to<br />
find opportunities to engage as artist/entrepreneur<br />
Elizabeth Pritchard<br />
writes about in her article, sharing<br />
“My Home: My Fairy Jam Jar” to “On<br />
the Move” from Texas to the Pacific<br />
Northwest - finding places to ‘nest’<br />
and what it means to those of us living<br />
the autistic spectrum. The insights<br />
provided by delegates at the <strong>ANCA</strong> ®<br />
World Autism Festival’s 7th annual international<br />
event shines a contrasting<br />
light on the <strong>ANCA</strong> ® experience where<br />
people convene and have distinct<br />
interconnecting ‘shared human’ experiences<br />
no matter what culture, religion,<br />
or geographic land mass they<br />
venture from. A Message from Manila<br />
invokes this sentiment as do the Workshop<br />
& Trade Show reviews.<br />
I hope you enjoy our timeless magazines,<br />
all of which are now available<br />
online compliments of <strong>ANCA</strong> ® . And<br />
to the delegates attending this year’s<br />
8th annual AWAF event, we look forward<br />
to providing yet another incredible<br />
event filled with opportunities,<br />
fun, and joyous celebrations! So that<br />
you too may continue to raise the<br />
bar in your communities and take the<br />
very special gifts of exchanges experienced<br />
at the festival back home<br />
with you, expanding your horizons as<br />
many before you have done. •<br />
Our Autistic Community by Charlie Collura<br />
In a world filled with noise, misunder-standing<br />
and constant distraction—which<br />
appears to be<br />
spreading at an ever-accelerating<br />
rate—the idea of people from different<br />
cultural backgrounds and life experience,<br />
sharing their understanding<br />
of the world, working together in<br />
peace and harmony appears more<br />
ideological concept than some materially<br />
achievable outcome.<br />
Yet, this cultural harmony involving<br />
elements of peace, conscientiousness,<br />
and a concordance of<br />
words and action is finding expression<br />
among a truly international<br />
community of people—autistic people.<br />
While a dwindling number continue<br />
to roam aimlessly in search of<br />
some solution to what they perceive<br />
as the ‘autism enigma’, the autistic<br />
community continues to bring forth<br />
beauty, creativity and harmony in all<br />
they do.<br />
In the spring of 2017, the autistic<br />
community gathered together in Turkey,<br />
USA, Taiwan and the Philippines<br />
for the <strong>ANCA</strong> ® World Autism Festival<br />
Kick-Off events.<br />
Each gathering and celebration<br />
had a special focus. Otisium in Alanya,<br />
Turkey brought together families,<br />
government officials and community<br />
partners to celebrate autism in sports<br />
and music. AutismHWY in California,<br />
USA, in partnership with the town of<br />
Covina, showcased autistic talents<br />
during the AutismHWY Chalk Festival.<br />
In Manila, Philippines, we witnessed<br />
autistic people opening art<br />
galleries, showcasing art and collaborative<br />
efforts in fashion design;<br />
while in Taipei, Taiwan, in partnership<br />
with 62icon demonstrations of<br />
how autistic artists are creating and<br />
running their own businesses using<br />
their abilities to design everything<br />
from fashion umbrellas to mugs, t-<br />
shirts, aprons, canvas art and much<br />
more. All the while the autistic community<br />
is busy creating ever more<br />
collaborations on present and<br />
future projects, leading the way<br />
to greater cross cultural harmony,<br />
peace, and understanding.<br />
We hope you find inspiration in the<br />
articles, features, and letters to the<br />
editor in this edition of Naturally Autistic<br />
magazine. •<br />
2016 AWAF<br />
www.naturallyautistic.com |<br />
5
Harmonics<br />
CULTURAL<br />
By Vell Baria<br />
(With additional contributions by Yeşim Zorlu,<br />
Katarina Simic and Joely Colmer)<br />
6<br />
The Harmonic Suite<br />
“It’s not too late to share your achievements, as long as<br />
it’s concrete and articulated!” Vell Baria, 2016 INAP Award Recipient<br />
for Performing Arts.<br />
Upon hearing the word “Harmonics,” what comes into<br />
our minds? The word “Harmonics,” or “Harmonic” in singular<br />
term, is originated from the word “Harmonia” in singular<br />
while “Harmonikos” in a plural form meaning “relating<br />
to music” where we harmonized vocally and instrumentally<br />
out of our own chords. In my definition and perspective,<br />
Harmonics is living together in universal harmony. I also<br />
found it more energetic to describe the way we represent<br />
no matter the place we lived in, the religion, the skin color<br />
or the status of life we have for as long as we have abilities<br />
to contribute to the world our positive impact for the world<br />
to Hear, Appreciate, Remember, Mesmerize, Observe, Necessitate,<br />
Inspire and Cherish the Standards of each individual.<br />
Prelude<br />
From the Latin word “prælūdo” meaning “play beforehand.”<br />
I started to think deeply about being involved in<br />
this progressive family where my heart, mind and soul set<br />
to “beforehand” mode of acceptance, as I feel that the<br />
big beginning to a life changing journey made fast approaching.<br />
<strong>ANCA</strong> was introduced to me and my mom by Vico<br />
Cham’s mother, Ms. Catherine Cham, whose experience<br />
in their delegation to <strong>ANCA</strong> in 2015 changed their lives<br />
and motivated them to help out other Autistic potentials<br />
to join the community where there is change. While doing<br />
research on <strong>ANCA</strong>, my mom only knew that <strong>ANCA</strong> is<br />
just an award winning body, but after such realizations, it’s<br />
an organization founded by the married Autistic couple<br />
whose vision is to support Autistic people and promote<br />
connections where it has its name sake for their children,<br />
Anthony and Catherine. For a better detail, this organization<br />
has played such major role in establishing connections<br />
within the Autism community across the world. It is<br />
also their goal to advocate the freedom of exploring and<br />
| www.naturallyautistic.com<br />
sharing talents, time, skills and vision-missions.<br />
By preparing for the Autism Fest, my mom and I got to<br />
know and meet other Philippine delegate-nominees joining<br />
us for the 7th <strong>ANCA</strong> Autism Festival during the delegates<br />
meeting organized by the Cham family discussing<br />
the organization’s history, the Autism festival and the perks<br />
of being one of the festival delegates. During that meeting,<br />
I was so blessed and being supported by the delegation<br />
team after being mentioned that I’ll be performing<br />
for the opening and the awards night with much joy and<br />
confidence.<br />
First Movement<br />
As I introduced myself this time to the international<br />
friends circle, this may not have been an easy part of my<br />
delegation career. It really took much time to get their impression<br />
about you and your expertise for reasons of being<br />
appreciated and well known in the eye. I started to introduce<br />
myself to the <strong>ANCA</strong> family by adding them up on<br />
my Facebook profile to get in touch before meeting them<br />
in person. This was also my chance to share my time in<br />
getting to know them in detail along with communicating<br />
with them online and appreciating their creative status<br />
posts like their achievements, successful things and words<br />
of devotion. Thus, this was my simple way to meet my new<br />
set of <strong>ANCA</strong> Delegate-nominee-batch mates outside my<br />
home turf very well.<br />
To expand their knowledge, I felt blessed to be selected<br />
to be interviewed for the Blog Talk Radio program<br />
hosted by Ms. Leonora Gregory-Collura herself. This gave<br />
me a chance to share my story of living on the spectrum,<br />
my parents’ way of bringing me up, my talents and skills,<br />
and my self-views on self-advocacy on Autism awareness.<br />
This is also a way of knowing me much better in a higher<br />
ground with that kind of feeling that I can’t wait, but excited<br />
to meet them in the festival week and have them as<br />
my new set of international fans as well.<br />
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Second Movement<br />
As a performer, it will not be memorable and successful<br />
without the help of these wonderful people whom I’ve<br />
worked with. All of them have motivated and encouraged<br />
me to get going to be a very good performer and<br />
a responsible person, musically and in general. Especially,<br />
they are new to me in whom I’ve collaborated with two<br />
pianists and a singer.<br />
“I’m so glad we met. Although you can take the stage<br />
with a very short rehearsal during the festival has been<br />
very successful. Both of you are very talented and beautiful.<br />
You’ve been a great partner for Beril. I can see that<br />
you love Beril. Still watching your video I took at the festival.<br />
I hope you will find the opportunity to take the stage<br />
together again. I wish we could make new music together<br />
in Turkey.” Yeşim Zorlu, Mother of 2016 INAP Award Third Place<br />
Recipient and 2016 <strong>ANCA</strong> World Ambassador Beril Zorlu.<br />
With Ms. Leonora’s guidance and help, she appointed<br />
a fellow delegate from Turkey, Beril Zorlu, to accompany<br />
me for both opening and awards nights as the original<br />
plan. However, her mom and her music teacher, pianistvocalist<br />
Dr. Orçun Berrakçay, gave me a short notice that<br />
she would accompany me for the inaugural trade show,<br />
which she did by researching her favorite songs from my<br />
YouTube covers and from both her teacher and her favorites<br />
as well. Especially, we performed “Hotel California” in<br />
the opening, which wrapped up the Region 1–The Americas<br />
nominees presentation. Much to their appreciation in<br />
which the audience could easily relate while doing my incharacter<br />
type of singing while reading the lyrics as if I’m<br />
reading a story.<br />
Working with Beril, I’ve learned that adjustment, understanding<br />
and patience are the best things to do in order<br />
to succeed in such relationships as not only workers and<br />
collaborators, but also friends and siblings in life. In return,<br />
they can give you more help and support as much as they<br />
could do. I came to the realization that one day, Beril and I<br />
will continue to collaborate again on the world stage with<br />
an expansion of many listeners and audiences for greater<br />
appreciation.<br />
On the other hand, after a long day of such prayer and<br />
thinking, my prayer was finally answered. Someone filled in<br />
Beril’s shoes for both main serious works of Johann Strauss’<br />
“Spring in My Heart” and Felix Mendelssohn’s “Hear Ye,<br />
Israel” from the oratorio “Elijah.” These were performed<br />
for both the opening and awards nights, respectively. This<br />
time, it was pianist Katarina Simic, who is not Autistic but<br />
supports the Autism festival with such majestic passion in<br />
spite of her busy schedule as a student.<br />
Working with Katarina is such a happy blessing for me<br />
as I relate it to my experience as a music student back in a<br />
day after a long communication via email. As days went<br />
by, our preparations went smoothly from the flow of the<br />
performance and the interaction between both vocalist<br />
and pianists. This was despite such a short time given to<br />
rehearse personally at the University of British Columbia,<br />
with a short tour the night before the day of preparations<br />
for the Autism festival. I hope to continue collaborating<br />
with her by having an international solo concert singing<br />
more serious classical works and musicals like those two<br />
songs mentioned in front of the Autism community as I promote<br />
music appreciation to the community. I’ve learned<br />
that communication and relating with one another are<br />
factors for successful collaboration.<br />
Let’s see what Katarina has to say about her volunteerism<br />
and experience as one of the performers for the<br />
Autism Fest and the <strong>ANCA</strong> Community: “Volunteering<br />
at <strong>ANCA</strong> as a performer was a special experience. The<br />
festival is highly organized and very professional, providing<br />
many individuals with the opportunity to display their<br />
talents internationally. The atmosphere created by all attendees<br />
and organizers was very warm; I was touched by<br />
the immense appreciation expressed by the festival coordinator<br />
and the singer I collaborated with for taking part<br />
in the festival.<br />
<strong>ANCA</strong> World Autism Festival is already very mature<br />
after its seventh anniversary and I am certain it will<br />
continue to grow for many more years in supporting an<br />
important cause.<br />
Collaborating with Vell was a joy, despite the difficulty<br />
in finding times to rehearse in a short time span with our<br />
contrasting schedules. We both learned from each other<br />
through the process and managed to pull through in the<br />
end. I am very grateful to have been able to have met<br />
Vell, to have made music with her and to have supported<br />
her at the festival. She is a very talented singer who consistently<br />
amazes her listeners.” Katarina Simic, Pianist, Student at the<br />
University of British Columbia taking up Bachelor in Music–Major in Piano and<br />
Minor in Commerce.<br />
Last but not the least is the collaboration with my fellow<br />
vocalist extraordinaire, the <strong>ANCA</strong> veteran Joshua<br />
Cochrane, a child wonder whose vocals communicate<br />
with grace and charm for the listeners. Collaborating with<br />
him for <strong>ANCA</strong>’s host country’s National Anthem “O Canada”<br />
for both the opening ceremony and on the awards<br />
night is a major honor and responsibility by not only singing<br />
it with pride and dignity, but with sincerity. I managed<br />
to blend in with his vocal methods without sticking out and<br />
also started to memorize the last three lines of the National<br />
Anthem in a short time of such rehearsals. As a result, we<br />
were proudly able to blend well with much conviction. This<br />
is also another short time rehearsal following the pianist’s<br />
rehearsals. I realize that I would really like to collaborate<br />
with Joshua in the future duets.<br />
Amid all of this, we also took time for both of us to have<br />
some fun by taking photos and selfies using my younger<br />
sister’s high quality camera. Joshua enjoyed it when taking<br />
photos for <strong>ANCA</strong>’s most important events while I’m on<br />
duty on stage and for photo ops and sometimes for fun<br />
shots. We also came up with the team name: “Peanut Butter<br />
Team.” What a harmonic team, isn’t it?<br />
Third Movement<br />
I made my international debut as a workshop presenter,<br />
which was my major transition as part of my commitment<br />
as an Autism advocate.<br />
Upon meeting the veteran activist and motivation<br />
speaker from the United Kingdom, Joely Colmer, who was<br />
also an INAP award recipient for Community Achievement,<br />
both of us were much blessed after being appointed<br />
to do a bilateral workshop together.<br />
This was the first in <strong>ANCA</strong>’s history to have two different<br />
countries work together on one theme: “Advocacy as<br />
Autistic Women.”<br />
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In preparing for this, we come up with the idea of sharing<br />
our personal struggles, achievements, and other interested<br />
things what will fit into the Autism community’s<br />
experiences and also planned for what our workshop<br />
would look like as we come up with a special workshop<br />
that will catch the attendees’ attention. In my part, I connect<br />
on what Joely presented. In the interactive part, I<br />
was soon inspired by Joely after admitting that mine was<br />
a “sore cheap” since it’s my first time doing the workshop,<br />
especially presenting it on a world stage where she is giving<br />
such words of advice and suggestions to fix my workshop.<br />
I then did the rest, especially including the music<br />
etiquette in my workshop to share my words of advice as<br />
a performer.<br />
Working with Joely became a memorable one where<br />
she displayed her outspoken and forthright personality as<br />
she shared her struggles and accomplishments with much<br />
convincing force of sincerity. This would remind other people<br />
with Autism of their own experiences with struggles<br />
and accomplishments in life in which I was also related in<br />
some areas of her experiences.<br />
Doing this workshop is just like mentoring those people<br />
who are eager to learn and to share! Not only that, it was<br />
also my chance to share what observations and future<br />
visions that I have in mind as they listen. Thus, this was a<br />
dream come true to me after thinking deeply of being<br />
a mentor to the community who is in need of much<br />
understanding of the spectrum. Much to my happiness,<br />
I will feel free to continue being a beloved mentor to the<br />
community.<br />
Let’s see what Joely has to say about our collaborative<br />
moments: “I am blessed to have worked alongside Vell for<br />
many months prior to our first meeting at the World Autism<br />
Festival, where we both hosted <strong>ANCA</strong>’s first ever Bilateral<br />
Workshop on the World Stage, called “Spread your Wings:<br />
The Art of Self Expression and Autism Activism.”<br />
We both have so much passion for Autism Advocacy/Activism,<br />
and self-expression, so that when we were<br />
emailing each other to create our workshop for the first<br />
time, our imaginations flew away. It was a pleasure to get<br />
to know Vell, who is an inspiring “all singing, all dancing,”<br />
Autism Advocate and role model for others, we worked<br />
very well together as a team. We inspired and learned<br />
from each other, and together we worked hard to refine<br />
our ideas, to create a two-hour interactive workshop.<br />
We had a “We are Autism United” jigsaw flag, where<br />
participants were encouraged to express their voice onto<br />
jigsaw pieces about what could help their country’s Autistic<br />
community, and what they like about their Autism. This<br />
was therapeutic and insightful activity that was enjoyed,<br />
and informative, for all. Another popular activity was our<br />
“Disable the Autism Label T-shirt,” where our participants<br />
learnt that no matter what the labels of Autism are, those<br />
labels do not define us as people. We took our literal Negative<br />
label off of our T-shirt, to reveal the positives of Autism<br />
written on the T-shirt underneath. Then, everyone enjoyed<br />
expressing their voice onto the T-shirt, about why they like<br />
their Autism and the positive quirks within their disability.<br />
Together we brought Autistic people together to see the<br />
positives within Autism, but also, to understand that they<br />
too can be activists in kindness, by expressing their voices<br />
through their own passions–or specific narrow interests.<br />
With a speech about <strong>ANCA</strong>, empowerment to express<br />
our hidden voices, Activism, and Autism quirks, from me,<br />
and Vell’s intricate insight into musical etiquette and Autistic<br />
people’s roles within the musical industry, our workshop<br />
was a fantastic success. Many tears were shed, personal<br />
stories of success and empowerment were shared, fascinated<br />
silences embraced our audience with our speeches,<br />
and hopeful smiles glowed throughout, as everyone<br />
chatted and participated in our activities. We have come<br />
home with memories and friends for life. Thank you everyone,<br />
who made it possible. Joely Colmer, 2016 INAP Award Recipient<br />
for Community Achievement and <strong>ANCA</strong> World Ambassador, Autism Activist-<br />
Advocate.<br />
Postlude<br />
As an award recipient, it was my first time winning this<br />
international award, especially to inclusive Autism audiences<br />
worldwide and to non-Autistic people who witnessed<br />
the awards night. Much to their realization, those<br />
people who made such judgements and doubts of my<br />
abilities and those who didn’t believe in my achievements<br />
before were in awe and speechless following my achievement.<br />
I’m also the first nominee for the performing arts in<br />
my home country and an awardee recipient in performing<br />
arts, too. This is a major first in the Philippines to have a<br />
first win in the performing arts category. In spite of my condition,<br />
I started to realize that I was able to pull off my butterflies<br />
in my stomach as I received this award with much<br />
honor and glory for my fellow country people, in which I<br />
began to win such hearts of people following the win.<br />
As <strong>ANCA</strong>’s World Ambassador, I received much praise<br />
and motivation from the <strong>ANCA</strong> community alike especially<br />
from my batch mates in this last year’s Autism festival.<br />
As an ambassador, I started to think to act like a president<br />
since I have so much plans in mind that I am greatly interested<br />
in sharing those plans, like giving both a general<br />
solo concert and fundraising concert were I perform pop<br />
and classical music along with artists with Autism for the<br />
community and to compose more songs. I also loved to<br />
speak to the Congress and Senate about Autism awareness.<br />
As my career as a workshop presenter continues, I<br />
also love to visit special schools and present my workshops<br />
and collaborate with experienced workshop presenters. If<br />
ever I have such theater plays I’m in, I would like to share<br />
it to the community and that will be another and different<br />
way of promoting arts to the Autism community as they<br />
wanted to learn and discover something new in the performing<br />
arts.<br />
Encore<br />
What have I learned so far as a festival delegate,<br />
awardee and ambassador? If you have something to<br />
share, show it. Harvest and command with it and it<br />
will come out as time goes by that people will feel and notice<br />
with much motivation. To gain such support, parents<br />
will be happy if their child with Autism is always ready to<br />
lead other fellows in the spectrum to the right path and it<br />
will go farther than expected to reach their freedom of<br />
success. •<br />
www.naturallyautistic.com |<br />
11
LETTERSTOTHEEDITOR<br />
Editor’s Notebook<br />
Welcome to the Spring 2017 issue of Naturally Autistic. I and the staff of <strong>ANCA</strong> appreciate your<br />
interest in this publication, and we hope you find much to enjoy in these stories by and for the<br />
worldwide Autistic community.<br />
This issue includes letters to the editor from readers from around the world, including Yesim Zorlu,<br />
mother of Beril Zorlu, a young stage performer from Turkey at last year’s International Naturally<br />
Autistic People (INAP) Awards. Articles in this issue include one from Vell Baria, 2016 INAP Award<br />
Recipient for Performing Arts, on her experience performing with other musicians with Autism at<br />
those Awards; another from <strong>ANCA</strong> World Ambassador Liz Pritchard, on the therapeutic effect of<br />
her art; and a piece by Carol Holst, on the challenges a person with high-functioning Autism has<br />
with a cross-country move with her family.<br />
As always, we welcome your comments and story ideas. All of us at Naturally Autistic magazine<br />
hope you enjoy this issue, and look forward to our next issue in Fall 2017.<br />
—Bob Delaney<br />
We are much blessed and<br />
honored to be part of the Autism<br />
festival, which became memorable<br />
for this mother-daughter team.<br />
Dealing with Autism, I never forget<br />
that “God has a purpose” in my life,<br />
which motivated me to be proud<br />
of my Autism because it’s within me<br />
and it will carry throughout my life.<br />
In spite of such challenges with my<br />
parents, especially to mom, in their<br />
mind I am a strong person who is<br />
highly supported with much love. Dealing with my struggles,<br />
I was very edgy and serious about what I feel and<br />
what I think, especially from other people’s points of view.<br />
I never bothered myself with their feelings towards me, but<br />
take it as if it’s nothing at all.<br />
Hearing this <strong>ANCA</strong> organization is such a “mind blowing”<br />
feel for both of us and it changed my life and my<br />
being as a person with Autism. We also feel that we are<br />
out of the nutshell as we get to know other delegates with<br />
such amazing backgrounds as well. It is such a fantastic<br />
feel that we can also listen to their stories, get along together<br />
and even join the fun.<br />
As one of the trade show exhibit members, I feel<br />
blessed to have my way of having fan service in which all<br />
of the delegates are the fans by having them signed in<br />
the guestbook/dedication notebook to keep me motivated<br />
in reaching my dreams and goals. This is a new way<br />
of not just introducing myself in a basic manner, but also<br />
my refined way of approaching them one-by-one and<br />
sometimes by their approach!<br />
I attended workshops made by the amazing workshop<br />
presenters in which I was also one of the workshop presenters.<br />
It was both touching and convincingly unforgettable!<br />
If I were giving a chance to be part of the <strong>ANCA</strong> team,<br />
I will be much honored to be part of it and to lend a helping<br />
hand, especially they’re needing an in-house performer<br />
for the succeeding Autism festivals. I can also take part<br />
as an actress-director in an Autism-related film for awareness!<br />
So just call my name and I’ll be there!<br />
On behalf of my mom and myself, we sincerely thank<br />
<strong>ANCA</strong> for motivating me to shine like a leader and giving<br />
me the chance to share my expertise and skills for other<br />
people to appreciate. This has also changed me as a<br />
person dealing with the spectrum. I’m hoping for more opportunities<br />
to work with <strong>ANCA</strong> as I go on.<br />
Vell Baria<br />
Vocalist, Actress, Songwriter, Advocate<br />
Philippines<br />
My name is Lawana Jones, and I<br />
am the parent of a 28 year old Autistic<br />
daughter named, Marsche.<br />
We live in Rochester, New York USA,<br />
and I am also the Founder & Executive<br />
Director of The Autism Council<br />
of Rochester. I first connected with<br />
<strong>ANCA</strong> in Fall 2016, when I attended<br />
my first INAP Awards in Vancouver,<br />
BC. I was also nominated for the<br />
2016 INAP Community Leadership<br />
Award. The event changed my<br />
life in many ways. First it gave me a renewed passion<br />
and fire, to come home and continue with the work that<br />
I have been doing in my own community over the last<br />
ten years. Secondly I saw up close the love, pride, and<br />
support amongst all of the attendees of the event, and<br />
those of the worldwide Autistic community. And thirdly,<br />
Leonora and Charlie made me feel that I am not alone in<br />
the fight for my family member, and those in the community<br />
that I advocate so strongly for on a daily basis. And<br />
lastly, I was very encouraged to see so many government<br />
officials and delegates from around the globe that<br />
support the work of <strong>ANCA</strong>. This is extremely important<br />
work that we do, and we have to ensure that the world is<br />
aware of the many wonderful gifts, talents and love that<br />
the Autistic community has to share.<br />
Thank you Leonora and Charlie for creating <strong>ANCA</strong><br />
and opening my eyes beyond my own small community<br />
12 | www.naturallyautistic.com
LETTERSTOTHEEDITOR<br />
in New York State, and to the wonderful contributions,<br />
beauty and strength of the Autistic community that can<br />
be found all around the world!<br />
Ms. Lawana Jones, President & Chief Executive Officer<br />
Autism Expert & Certified Autism Specialist<br />
The Autism Council of Rochester, NY, USA<br />
Dear Editor,<br />
My name is Cyndy Pritchard and<br />
my 23-year-old daughter Elizabeth<br />
is on the Autism Spectrum. Like<br />
many girls, she was not diagnosed<br />
until she was 15 years old because<br />
she blended in enough to be<br />
considered a “quirky” neurotypical.<br />
Since her diagnosis, she has<br />
continued to struggle with not only<br />
the stigma of autism but the lack of<br />
understanding the general public<br />
seems to have regarding ASD. I support her in her life’s<br />
mission to educate the public to see the amazing skills,<br />
talents, and achievements of the autistic community. In<br />
2016, we were blessed to read about <strong>ANCA</strong> and learn<br />
about the INAP Awards. Liz was nominated in the category<br />
of Visual Arts. Our visit to the 2016 7th Annual <strong>ANCA</strong><br />
World Autism Festival was amazing and life-changing!<br />
The incredible programs, workshops, and ceremonies<br />
provided an electrifying atmosphere full of energy, hope,<br />
and connections. We felt like we were “home” with such<br />
a positive, loving and supportive group of people. <strong>ANCA</strong><br />
proudly celebrates and respects autistic individuals’<br />
humanity, talent and creativity, and the World Autism<br />
Festival provides a venue to showcase all of their spectacular<br />
gifts to our world. Liz and I made many friends<br />
and were able to connect with autistic families from<br />
different cultures. We are proud and honored that Liz has<br />
been chosen as an Ambassador for the U.S. for <strong>ANCA</strong>.<br />
We are looking forward to participating in the highly<br />
anticipated AutismHWY Chalk Festival on April 1, 2017. We<br />
will also be returning to the 8th Annual <strong>ANCA</strong> World<br />
Autism Festival in Fall 2017 to reconnect with our <strong>ANCA</strong><br />
family and make new friends! Thank you to Leonora<br />
Gregory-Collura and Charlie Collura for all of your persistence,<br />
patience, and passion that has provided such<br />
important, positive information, education and opportunities<br />
for autistic people of all ages. <strong>ANCA</strong> is helping to<br />
build bridges of communication to enlighten society to<br />
the strength and beauty of autistic people and connect<br />
us all!<br />
Hello from Turkey. Hello from Izmir.<br />
The 7th <strong>ANCA</strong> World Autism Festival<br />
was the scene of unforgettable moments<br />
for us. After my twelve hour<br />
trip with my daughter Beril Zorlu,<br />
who won the third prize as a young<br />
stage performer, it was great to see<br />
the Autistic people from around the<br />
world in Vancouver and the beautiful<br />
works they accomplished.<br />
It was great to take part in the<br />
opening ceremony with the consulates<br />
of the countries, to pose on the red carpet, and to<br />
watch the performances on stage in front of my daughter's<br />
world representatives.<br />
We were proud to be in the national press and social<br />
media with our success in our country.<br />
I would like to thank Erdal Ates, who introduced us to<br />
<strong>ANCA</strong>; Orçun Berrakçay, music teacher, who accompanied<br />
us on our journey; Leonora and Charlie; and, the allvolunteer<br />
organization team for their close interest and<br />
affection throughout the organization.<br />
Turkish<br />
Love and greetings, Beril's mother, Yeşim Zorlu<br />
Türkiye’den, İzmir’den Merhaba,<br />
7.<strong>ANCA</strong> world autism festival bizim için unutulmaz anlara<br />
sahne oldu. Genç Sahne Sanatçısı olarak 3.lük ödülü alan kızım<br />
Beril Zorlu ile birlikte 2 saat süren yolculuk sonrası geldiğimiz<br />
Vancouver’da dünyanın dört bir yanından otizmliler ve onların<br />
başardıkları güzel işleri görmek çok güzel oldu.<br />
Açılış töreninde ülkelerin konsolosları ile birlikte yer almak,<br />
kırmızı halıda poz vermek, kızımın dünya temsilcileri önünde<br />
sahne performansını izlemek muhteşemdi.<br />
Ülkemizde de bu başarı ile ulusal basında ve sosyal medyada<br />
yer almak gurur vericiydi.<br />
Bizleri <strong>ANCA</strong> ile tanıştıran Erdal Ateş›e, yolculuğumuzda<br />
eşlik eden müzik öğretmenimiz Orçun Berrakçay’a,<br />
organizasyon boyunca yakın ilgileri ve sevgileri için Leonora<br />
ve Charlie’ye, tüm gönüllü organizasyon ekibine çok teşekkür<br />
ederim...Yesim Zorlu, Izmir Turkey.<br />
Sevgi ve selamlar, Beril›in annesi Yeşim Zorlu, Izmir, Turkey<br />
Cyndy Pritchard<br />
Spencerport, New York USA<br />
www.naturallyautistic.com |<br />
13
A Shift in Perspective:<br />
INSPIRING INCLUSION<br />
THROUGH ILLUSTRATION<br />
By Liz Pritchard<br />
ite comic book characters. I was often misunderstood and<br />
bullied throughout school, and had to change schools several<br />
times because of this. I gradually became withdrawn<br />
and isolated, and it wasn’t until late in the 10th grade that I<br />
started creating comic books about my experiences of living<br />
with high-functioning Autism and mental illness. Art had<br />
always been very therapeutic for me, providing a healthy<br />
outlet for me to communicate and express my thoughts<br />
and feelings when words were too difficult.<br />
My art had begun to manifest into a serious structure<br />
from that point onward. My main goal in creating these<br />
comics is to help erase the negative stigma that often surrounds<br />
these conditions. Art has always been a personal<br />
vehicle that enabled me to get my messages across to other<br />
people. I incorporate my personal experiences into my<br />
work, and providing visuals in place of words gives ideas<br />
and concepts a more tangible quality that others can connect<br />
with. A lot of my art deals with self-doubt, learning to<br />
cope with it, and coming to terms with it.<br />
PIC<br />
PIC<br />
I realized I had a gift for art since I was very young, at<br />
about nine years of age. I’ve been creating art since I<br />
was about three years old. My interest in comic books and<br />
manga has greatly influenced my artistic style, and has<br />
helped me build connections with people who I am still in<br />
contact with to this day. I would often prefer to draw with<br />
pencil on paper, and I always drew pictures of my favor-<br />
Doubt is intangible, but that doesn’t and shouldn’t negate<br />
how real it is to myself and many others. I am currently<br />
in my last year of higher education studying art and psychology.<br />
My goal is to become a professional comic book<br />
artist, and reach many people with my work in hopes to<br />
show others that they are not alone. I would also like to<br />
volunteer working with young children on the Autism Spectrum<br />
through art therapy programs. Animation has always<br />
been a special interest of mine, and I would eventually like<br />
to animate my comic books into a film.<br />
My spatial awareness in visualizing the relationship with<br />
the body of work and how I execute my ideas is natural<br />
14 | www.naturallyautistic.com
PIC<br />
to me. Each composition I create reflects<br />
my psyche, and I present my art<br />
as a representation of how my mind<br />
works—like organized chaos. Each<br />
image I illustrate has layers and a lot<br />
of depth conceptually. I never really<br />
plan ahead with a page, I just let my<br />
subconscious flow out on to the paper<br />
and I see where it takes me.<br />
Many art courses I have taken<br />
have forced me out of my comfort<br />
zone, and this really helped me gain<br />
further awareness of different media<br />
in the art making process. I feel that<br />
my Autism is a gift that enables me to<br />
see the world in a unique way, and I<br />
use this gift to help others by raising<br />
awareness through my work. My art<br />
has layers of different meanings and<br />
messages within each image. When I<br />
create art, I want others to feel inspired<br />
and I want people to feel what<br />
I feel. My comics do not focus on labels,<br />
because focusing too much on<br />
labels detracts from the feelings of<br />
the individual. My work expresses the<br />
feelings of what it’s like living with highfunctioning<br />
Autism and mental illness. I<br />
want others to know that they are not<br />
alone.<br />
Becoming an entrepreneur<br />
evolved when I had begun to realize<br />
the connections other people were<br />
making with my art work. I pushed myself<br />
to learn more about myself and<br />
others. By putting myself out there, I<br />
am able to reach out and connect<br />
with more people. This realization led<br />
to wanting to inspire and help others<br />
through my comics on a much larger<br />
scale, so I had begun self-publishing<br />
my comics and started attending<br />
comic book conventions in various<br />
scenes and locations.<br />
I want whoever reads this to know<br />
that putting yourself out of your comfort<br />
zone is not easy and it’s scary, but<br />
it will definitely help you in the long run.<br />
By pushing yourself, you will gain more<br />
insight and awareness about yourself<br />
and others. By doing so, you may surprise<br />
yourself with how much you can<br />
accomplish! Sometimes when you get<br />
to a low point, you may think you’re<br />
not worthy of what’s best for you, but<br />
you really are. My work focuses on<br />
learning to work with my insecurities,<br />
instead of fighting against them so<br />
much. Part of my journey is learning<br />
to love all of myself, and I hope that<br />
others can do the same—shifting from<br />
fear to love.<br />
I found out about the International<br />
Naturally Autistic People Awards<br />
through my mother, Cyndy Pritchard,<br />
who nominated me. My mother was<br />
researching Autism organizations on<br />
the Internet, and happened to find<br />
the <strong>ANCA</strong> organization. She thought<br />
it would be an incredible opportunity<br />
for me to connect with other autistic<br />
individuals and she was right! The 7th<br />
Annual <strong>ANCA</strong> World Autism Festival<br />
was life-changing for me, and everyone<br />
in this community is so warm and<br />
welcoming. Everyone here at <strong>ANCA</strong> is<br />
on the same page and very accepting;<br />
it’s like home away from home.<br />
Each person I’ve met in this culturally-diverse<br />
forum has incredible talents,<br />
and it was very eye-opening to<br />
see how other cultures and countries<br />
perceive Autism. Each country views<br />
Autism in different ways, but it’s something<br />
we all share and is what helps us<br />
connect with one another.<br />
<strong>ANCA</strong> bridges the gaps between<br />
misconceptions and the truth about<br />
Autism. Autism is what it means to be<br />
genuine, open, and accepting. Autism<br />
is love. As an <strong>ANCA</strong> World Ambassador,<br />
my duty is to promote, connect,<br />
network, and represent what <strong>ANCA</strong><br />
stands for, and I couldn’t be happier<br />
to be a part of this amazing community.<br />
•<br />
Liz Pritchard<br />
Rochester, New York, USA<br />
www.naturallyautistic.com |<br />
15
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Naturally AUTISTIC<br />
Showcasing the Strength and<br />
Talent of the Global Autistic Community<br />
®<br />
Fall 2017<br />
Cultural<br />
Convergence<br />
<strong>ANCA</strong> ® World Autism Festival <br />
September 29-October 4, 2017<br />
Best Western Plus Chateau Granville Hotel<br />
Suites and Conference Centre,<br />
1100 Granville Street, Vancouver B.C. Canada
Styles<br />
Greetings from Manila<br />
By Archie David PhD.<br />
I carry with me fond memories of Vancouver made<br />
special by the inspiring people I have met at the 2016<br />
<strong>ANCA</strong> World Autism Festival (AWAF). The AWAF was truly<br />
a one of a kind gathering where empowered people in<br />
the Autism spectrum, their families and advocates came<br />
not just to convene, but to connect.<br />
Connection was experienced in several fronts. First,<br />
international speakers from different parts of the globe<br />
shared innovative practices and programs with an overarching<br />
objective of helping the audience better empower<br />
their loved ones with Autism. As a professional, I<br />
was certainly able to take with me insights to further<br />
enrich my work at home. Likewise, it was a privilege to<br />
be invited to share some of my work to my international<br />
counterparts. The conference has demonstrated that a<br />
myriad of innovative and exciting bodies of work spring<br />
from less traditional grounds which are wanting to be fully<br />
harnessed and enjoyed.<br />
The trade show was a wonderful gallery of literary<br />
work and visual arts created by the masterful hands of<br />
persons within the spectrum and by their family. Seeing<br />
how unconditionally their families love them is truly inspiring<br />
and heartwarming. The evening gala wherein delegates<br />
proudly garbed their national attire and performed<br />
traditional presentations held deeper meaning than a<br />
cultural celebration.<br />
To me, it was<br />
a colorful symbolism<br />
of a bond<br />
which unifies all<br />
the delegates<br />
of the AWAF—a<br />
global advocacy<br />
for a more inclusive<br />
world.<br />
The movie gallery<br />
which offered<br />
an array of films<br />
not only chronicled<br />
the lives and<br />
story of individuals<br />
who overcame<br />
activity limitations,<br />
they offered to us<br />
a platform for selfreflection.<br />
Despite<br />
all the perceived<br />
obstacles that the<br />
universe seems to hurl against us, aren’t we ultimately the<br />
determinants of our own destiny? Challenges progress to<br />
thoughtful thinking, self-awareness, creation, contribution<br />
and—finally— purpose.<br />
Lastly, the <strong>ANCA</strong> awards were conferred to recognize<br />
individuals whose work has made a palpable impact on<br />
the lives of persons with Autism and their loved ones. I am<br />
deeply humbled to be recognized as among the award’s<br />
recipients. Hearing the work of fellow advocates from all<br />
over the world indeed gives us much hope.<br />
But surely, despite all the amazing work celebrated<br />
and highlighted at the AWAF, much work needs to be<br />
done. This awareness is what fuels the indefatigable<br />
Charlie and Leonora, the creators of <strong>ANCA</strong>, and their son<br />
Anthony, a silent yet most effective advocate, to provide<br />
avenues for our collective voice to be heard and to instigate<br />
positive change first within us, then to the world. •<br />
Archie David, Philippines<br />
18<br />
| www.naturallyautistic.com
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Styles<br />
My Home;<br />
My Fairy Jam Jar<br />
By Joely Colmer<br />
What is a home? It is more than just shelter, more than<br />
a place to survive; it is somewhere you can thrive, in the<br />
comfortable space that is yours. My name is Joely Colmer,<br />
I am 24 years old and I have a gift on the Autistic Spectrum.<br />
I live in England, and I am an award-winning Autism<br />
Activist, author of “AspergerWorld: My Fairy Jam Jar,” and<br />
an <strong>ANCA</strong> Ambassador representing the UK. My Fairy Jam<br />
Jar is my home where I am empowered to be the best<br />
I can be, because my gift of a disability makes me feel<br />
like a little fairy, living inside a quaint jam jar; witnessing<br />
the world from a different angle, deaf to certain language<br />
and happily powerless to escape. You see, with support, I<br />
have grown to love my Fairy Jam Jar.<br />
I have started a terrifying, but incredible, adventure.<br />
You see, I have recently moved out of my parent’s home,<br />
into my own flat; entering an unknown realm of independent<br />
living. Where once I was a struggling and fragile fairy,<br />
who had 15/100 life skills; I couldn’t cook, struggled to<br />
leave the house, and cope with daily disabling shutdowns,<br />
yet now I have flourished. I have gained super powers, my<br />
wings lifting me up, and within months, I have become my<br />
own kind of independent and able, super Fairy.<br />
You see, my Jam Jar is special; it’s tiny, but I love it. This<br />
is because, with help from my family, we have empowered<br />
me for independence, by organising me and my<br />
living space, alongside patiently teaching me life skills.<br />
● I have a wide selection of soft and furry things;<br />
pillows, cushions, blankets, clothes, carpets, etc.<br />
● The walls are mostly bare and lightly coloured.<br />
● I have lists everywhere to help organise me.<br />
● A timetable of what to do for daily life to organise<br />
my time, and what medication I need to take.<br />
● No space or work surface is left cluttered. Instead,<br />
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Styles<br />
PIC<br />
surfaces and the floor are minimalistic; the ‘clutter’ is<br />
organised in clearly labelled boxes and stored out of<br />
sight, so I always know where to find what I need, and<br />
can easily access.<br />
● Daily Gentle exercise, art and music therapy, weighted<br />
blankets, sensory lights, sensory stress balls and routinely<br />
work/Activism.<br />
I cannot express how important it is that living spaces<br />
are tidy and clean. There is nothing more overloading and<br />
overwhelming than living in a space that is unhealthy for<br />
your mind. In this way, mess on the floor, or surfaces, or<br />
having belongings that are disorganised is counter-productive<br />
to those on the Autistic Spectrum like me. When<br />
every detail is noticeable, and distracts you, I’m sure you<br />
can imagine how having loads of stuff, disorganised and<br />
cluttering all space, is incredibly overwhelming, preventing<br />
holistic growth and development.<br />
If I didn’t have these living<br />
arrangements, I would<br />
be having meltdowns every<br />
other minute, with everything<br />
I would try to do<br />
becoming an impossible<br />
task that my problem solving,<br />
lack of connectivity,<br />
shutdowns, social imagination<br />
and poor focus is just<br />
not able to cope with. I<br />
would be unable to leave<br />
the house or develop and<br />
build any new or existing<br />
skills. This is because every<br />
little thing I would try<br />
to do would be so much<br />
harder because I would<br />
be forced to focus on the<br />
mess, and problem solving<br />
issues like where things<br />
are, organising things, that<br />
could be prevented. If a<br />
living space is clean and<br />
organised, then my brain<br />
doesn’t have to focus on<br />
the unnecessary, leaving<br />
room to focus on what as<br />
important—development<br />
and well-being.<br />
In my Autism friendly<br />
little flat, my Jam Jar, I now<br />
feel able, independent<br />
and free, able to leave<br />
the flat when I please, cook, do jobs and live as I wish to.<br />
I can now cope with shutdowns and overloads because<br />
my environment is clear and calming. I feel as if I can just<br />
fly away; can you see my wings fluttering? Inside my Jam<br />
Jar, I have abilities. I have a gift. I am empowered.<br />
I am an Autistic Super Fairy.<br />
P.S…If you wish to discover<br />
more about Asperger’s,<br />
please pre-order my book;<br />
“AspergerWorld: My Fairy<br />
Jam Jar,” which inspires<br />
positive understanding of<br />
the hidden depths and<br />
quirks of the Autistic Spectrum,<br />
from my rare professional<br />
and personal perspective.<br />
Reviewed by<br />
Autism and educational<br />
professionals and those interested in the Autism Spectrum<br />
as “the best book on the subject I have read” and “I<br />
wish I had this book at the start of my Special Educational<br />
Needs Career.” •<br />
Joely Colmer, England<br />
www.aspergerworld.co.uk<br />
www.naturallyautistic.com |<br />
21
Styles<br />
ON the MOVE<br />
By Carol Holst<br />
Ah, yes. A cross country move; employment prospects<br />
uncertain, house unsold, new apartment that we’ve never<br />
seen. And did we mention Autism? Combine these in a<br />
big pot along with some okra and my, do we ever have<br />
gumbo. Sheesh. Now, if you are still reading this you may<br />
wonder what I’m talking about, so I shall stop for a moment<br />
and pull my thoughts together so the remainder of<br />
this little essay is somewhat coherent. Ahem…<br />
My husband and I decided to move from our home<br />
town near Houston, Texas to Washington State after our<br />
son Eric moved there two years prior. We both resigned our<br />
jobs, sold our pickup truck and gave away many belongings<br />
so we could fit possessions and two large dogs into<br />
an SUV and a 17-foot (5.2 m) moving van. Downsizing and<br />
driving 2500 miles (4023 km) to move is a huge undertaking<br />
for anyone, but couple it with Autism (I was diagnosed<br />
at age 52) and my goodness, what a challenge, so they<br />
say. I honestly don’t know how something like this affects<br />
me and Eric (also autistic) differently than other people,<br />
but that’s not the point.<br />
Anyway, here is some advice for surviving such a thing<br />
without going completely bonkers. For one, if parting with<br />
inherited furniture is troublesome, find people you know<br />
who may appreciate your items and the stories behind<br />
them. After all, you won’t see your old friends as often and<br />
they may want to keep something that reminds them of<br />
you. Then donate the rest of your items if practical to do<br />
so, meaning you won’t miss the money you would otherwise<br />
get from a garage sale. We gave some furniture<br />
to some young newlyweds. They painted it, and the new<br />
life they breathed it into<br />
is amazing. I think my<br />
late uncle would be<br />
happy with the results.<br />
Did I mention we have<br />
a lovely view of Mt.<br />
Rainier from our balcony?<br />
So why do we need<br />
bulky furniture? Easy.<br />
We don’t.<br />
Okay, that takes<br />
care of some obvious<br />
things. What about<br />
the not so obvious<br />
things, like the items<br />
that live in cabinets,<br />
closets, the garage,<br />
and places like that?<br />
Find a place to put the<br />
items that need sorting, and clear these items one shelf<br />
from one closet at a time. One of my challenges is photographs<br />
and greeting cards. Going through these things<br />
can trigger strong emotions if you have many small<br />
souvenirs of people who no longer exist in your physical<br />
life. The process of organizing can become overwhelming,<br />
so have a few boxes available for them before<br />
you start. Label the boxes and put them out of the<br />
way when they are full. And when it’s time to unload the<br />
moving van, finding a place to keep them tidy will be a little<br />
easier, until you open one and see the mess. Eek! That’s<br />
22<br />
| www.naturallyautistic.com
Styles<br />
okay, you can organize<br />
them and put the contents<br />
into photo albums<br />
and scrapbooks when<br />
you’re ready.<br />
Gardeners, give your<br />
plants away before<br />
moving. We relocated<br />
to the Pacific Northwest<br />
from a semi-tropical<br />
climate, so my plants<br />
and flowerpots went to<br />
friends who sometimes<br />
send pictures of them in<br />
their new home in their<br />
old climate. Wait until<br />
you get settled before<br />
obtaining new plants,<br />
but if nature is an essential part of your world be sure to<br />
set up a space to enjoy watching the birds, the weather,<br />
things like that to fulfill the need for green flowering babies.<br />
Pack one room at a time. Moving is a great way to<br />
get rid of unessential items from the kitchen and the bathroom.<br />
Keep sensory items handy though, because trust<br />
me, you will need them. Moving is stressful. Find a way to<br />
cope with strong emotions and exhaustion, and rest before<br />
you know you cannot do any more. Whew, just thinking<br />
about this is so tiring…<br />
Ok, one last thing. Food. Keep healthy snacks readily<br />
available. Plenty of water, protein, that sort of thing. Cooking<br />
while getting ready to move is a nuisance, but it’s vital<br />
to keep your body nourished. But this topic is an article on<br />
its own. Speaking of gumbo.<br />
Oh yeah. Exercise…Enough. Happy trails! •<br />
Carol Holst<br />
www.naturallyautistic.com |<br />
23
The <strong>ANCA</strong> World Autism Festival platform showcases individuals and organisations from all over the world providing<br />
cultural experiences & common connections of humanity interactively, at each festival venue. The autistic<br />
experience within the human & cultural experience embodies a universal & diverse language providing:<br />
“A space where you realise you are not alone.” ~ Nina Roy, India<br />
The Annual Regional and International Festivals provide opportunities for society within such mediums as cultural,<br />
artistic, commerce, athletic, technology, leadership & mentorship exchanges.<br />
The Opening Ceremony embodies the annual themes, shines a light on each countries contribution and celebrates<br />
the talent from around the globe, whilst the Trade Show Exhibitors with Open Mic platforms & Performance<br />
Art, experience the interactive time to share their products, services and innovations.<br />
The AWARDS Ceremony highlights the achievements driven by a deep desire to use one’s talent and initiatives<br />
creating an inclusive society for all embedded in cultures of tradition, nature, festivities and vision.<br />
The annual interactive workshop presenters are purveyors of common goals highlighting effective solutions with<br />
shared values and beliefs embedded in humanity and a desire to strive for common bonds, the common good.<br />
Long lasting friendships are made across the globe, partnerships are created with shared life experiences & values,<br />
new ideas and visions are fostered, opportunities emerge…<br />
In this issue we share with you some examples of the experiences from delegates who attended the 2016<br />
AWAF event – here is what they had to say:<br />
“….Autistics are such a brilliant light in this often time isolating and competitive world; my hope, concerning<br />
the 8th annual event in 2017, is that more individuals will be as fortunate as I was to attend, and that<br />
they, too, can take away with them a sense of gratitude and connection….”<br />
—Samantha Craft, M.Ed., Author of Everyday Asperger’s and Community Manage of ULTRA Testing.<br />
WELCOME TO Quat Props<br />
Showcasing the inventive works of Craig Quat, Wales<br />
Introducing the JUGGLE BOARD, the World's first<br />
platform to facilitate inclusive juggling. The JUGGLE<br />
BOARD takes the traditional challenges of juggling &<br />
adapts them to form a fully accessible environment.<br />
Instead of throwing, it uses tracks to control the<br />
balls so you can roll them back & forth. The JUGGLE<br />
BOARD promotes healthy physical activity and social<br />
engagement. Juggling is proven to improve brain<br />
function, increase co-ordination, concentration & be a<br />
great source of active relaxation.<br />
“This is a good activity for my daughter or for a young<br />
child. The board needs two people and uses eyes,<br />
hands, and a pattern. Indeed, this board is very good<br />
for kids; not even for Autistic kids only, but good for all.<br />
After the Festival, I have thought about the board and<br />
come up with some idea. This board can be developed<br />
with an Android system with a small screen to setup a<br />
pattern and for one child to control pattern and speed.”<br />
—Omerjan Bore – AWAF delegate 2016, Canada<br />
“His mathematically patterned way of thinking<br />
creates a powerful flow. The flow people need to<br />
break up old patterns. His fluid thinking and energy<br />
are transferred to those he connects with through his<br />
‘juggling’ work.<br />
Watching the way he quickly differentiates his<br />
alignment with each individual through the patterned<br />
flow he facilitates is incredible. So engaging, helpful and<br />
life changing for people of all ages and stages. Through<br />
24<br />
| www.naturallyautistic.com
movement and fun Craig challenges and sharpens brain<br />
connectivity beyond belief. “Craig sees where someone<br />
is at. Meets them there and dares to take them places<br />
they have not been or yet realized they can master.<br />
Thank-YOU Craig for this game changing work! I also<br />
thank <strong>ANCA</strong> for allowing the opportunity for so many of<br />
us to learn from and meet such an important visionary as<br />
Mr. Craig Quat. One of the many fantastic <strong>ANCA</strong> global<br />
delegates, nominees and recipients gathered at the<br />
2016 AWAF that go far beyond “the norm” for Autistic<br />
people.” —Kelly Green – Interactive Workshop Presenter<br />
& 2016 INAP WARDS Nominee<br />
WELCOME TO Terapia 3C<br />
Coordination, concentration, awareness – Autistic<br />
Psychomotor Therapy (PAT) – Founder, Paul Cojocaru,<br />
Romania<br />
“This is funny for my daughter. We have played in<br />
the festival and also played some times at home. From<br />
his videos, I learned that 3C therapy is not only with the<br />
hands, but also with legs and feet. Again, this is also with<br />
a pattern. It makes the game funny, different and lovely.<br />
This can be a very good game for kids. If it is made with<br />
a computer, it is also very good. After I attended the<br />
World Autism Festival, I come up with this question: Why<br />
is Autistic people/therapy so much related to pattern?<br />
—Omerjan Bore – AWAF delegate 2016, Canada<br />
In conclusion, we believe that the 3C Therapy is a very<br />
interesting methodology for gaining better psychomotor<br />
coordination—which means autonomy for Autistic<br />
People. This methodology has a great potential, and it<br />
surely deserves to be developed and popularized to a<br />
wider audience.—Alessandro e Lisa Perini, Italy – 2016<br />
INAP AWARD recipient, Italian delegation<br />
WELCOME TO Autism HWY.com<br />
“Chalk It for Autism” – Founder, Kelly Green, USA<br />
“Freedom, freedom, freedom, freedom, time is running<br />
out! A line from my favorite Japanese boy band<br />
NEWS’s song “FREEDOM” has something to do in this<br />
workshop by Ms. Kelly Green. I have love for chalks as a<br />
kid, writing something in mind then creating another one<br />
until in my college, I have made this habit again and<br />
taking a photo of it! While attending this workshop, we<br />
were asked to draw what we have in mind. I preferred<br />
to have myself a free-your-mind of doing it, in which I did<br />
put “Chicken love” because of love for chicken in which<br />
she liked as well. I even tried coloring the eagle with<br />
Pentel pens. Apart from my experience, I was so in awe<br />
with other attendees’ creativity! I was also amused with<br />
their creativity in which I was so inspired and envious in<br />
a good way!! What a great start to use chalks for my art<br />
works in the future. So it’s time to put up a graffiti wall with<br />
chalk arts and that will make the world more magical<br />
and free not only for the autism community but to the<br />
world as well!!” —Vell Baria, 2016 INAP AWARD recipient,<br />
workshop presenter & performance artist, Philippines<br />
“…was inspirational, and hearing all of the great<br />
accomp-lishments and connections she’s made is<br />
amazing. Chalk is such an accessible device that can<br />
be used to connect communities together. Art is a<br />
powerful vehicle that can be utilized to connect and<br />
communicate with others, and I’m looking forward to<br />
chalking it up this coming year at the <strong>ANCA</strong> regionals!<br />
—Liz Pritchard, Rochester, New York, USA<br />
“We found very interesting the workshop experience<br />
at the 7th AWAF in Vancouver with Paul Cojocaru,<br />
who showed us the 3C Therapy. We believe that Paul<br />
Cojocaru has conceived a newsworthy and efficacious<br />
methodology which helps people with Autistic Spectrum<br />
Disorder—and not only them, anybody as a matter<br />
of fact—to be more conscious of their psychomotor<br />
coordination, improving it in their daily actions and<br />
effectively increasing their capacity for autonomy.<br />
The methodology consists of specific coordination<br />
exercises that we made and tested ourselves during<br />
the workshop, under the instructions of Paul Cojocaru.<br />
We actually felt that through these exercises we were<br />
working on our central nervous system, it was like a<br />
training helpful for reinforcing the neural connections.<br />
to page 26<br />
www.naturallyautistic.com |<br />
25
from page 25<br />
WELCOME TO Spectrum Singles<br />
A Dating Site For Those on The Spectrum<br />
Founders, Kirsten Fitzpatrick & Olivia Cantu, an autistic<br />
mother-daughter duo launch Spectrum Singles, a site to<br />
connect those on the spectrum! USA<br />
“Thinking of having a date or having new friends? This<br />
workshop has its story to tell and it will tell you benefits<br />
about the art of making friends and have dating more<br />
convenient especially for us living in the spectrum.<br />
I may not be a big fan of so called online dating myself<br />
but I saw many dating sites online that scatters along<br />
different websites. Dating sites are not bad, but needs<br />
attention and such safety like sharing personal details (in<br />
which it’s very basic in general). Speaking of this, not all<br />
people especially our family members and friends who<br />
have no idea about their fellow with “Autism” or lacking<br />
awareness of it.<br />
Their dating site played a major role in shaping the<br />
relationships with many Autistic people who want to<br />
make new friends and even date them for their search of<br />
happiness and to relieve their anxiety in which is the main<br />
goal. I did learn a lot from this mother-daughter team<br />
about this interesting dating site!<br />
—Vell Baria, 2016 INAP AWARD recipient, workshop<br />
presenter & performance artist, Philippines<br />
GENERAL REVIEWS<br />
My description of my experiences with the <strong>ANCA</strong><br />
World Autism Festival Workshops from this past year:<br />
“A number of the workshops at the <strong>ANCA</strong> World<br />
Autism Festival are designed and given by autistics for<br />
autistics, and this enables us to connect with each other<br />
on multiple levels. They don’t have to guess about what<br />
it’s like to be an autistic person, because they are a part<br />
of the autistic community. Presenters who are not autistic<br />
include professionals whose life work is to find ways to<br />
improve quality of life and provide support especially in the<br />
areas of physical activity, coordination, mindfulness, selfadvocacy,<br />
and creative expression —also enhancing<br />
self-awareness, which comes from all of these things.<br />
Some examples of workshops I’ve attended<br />
present excellent examples of creative expression, selfadvocacy,<br />
mind-fulness, and self-awareness were at Vell<br />
Baria and Joely Coelmer’s workshop on empowering<br />
autistic women, and Kelly Green’s chalk art workshop<br />
in which we created art together with chalk. Inna<br />
Sergiyenko’s mindfulness work-shop was very insightful<br />
too, and provided a positive approach in regard to body<br />
and mind awareness and listening to your body.”<br />
—Liz Pritchard, Rochester, NY-USA<br />
Those workshops are so much good, they give me a<br />
lots of ideas on my daughter’s therapy. I am really happy<br />
to attend this festival. I appreciate the World Autism<br />
Festival!<br />
After my daughter diagnosed with autism, I was lost<br />
for a while. Those was my hard times. However, I did work<br />
very hard and my daughter started to change. I had<br />
some hope after seeing the changes, but after attending<br />
the World Autism Festival, I had so much confidence<br />
and much more hope on my daughter’s future. I meet<br />
so many successful Autistic people like Leonora, Charlie,<br />
Tammy Klein, Kirsten, Olivia, Joshua and there was much<br />
more; I couldn’t remember their names. Also, those<br />
workshops are so much good, they give me a lots of<br />
ideas on my daughter’s therapy. I am really happy to<br />
attend this festival. I appreciate the World Autism Festival<br />
—Omerjan Bore – AWAF delegate 2016, Canada<br />
As a delegate myself, I attended amazing workshops<br />
made by delegates who are experts, not only experts<br />
in showing their skills of a single skill but also sharing it to<br />
others like what I did in my performing. I attended four<br />
workshops all in all and I’ll share to you the most important<br />
pointers that I’ve learned from the workshop facilitators.<br />
Vell Baria, Philippines<br />
This event was an amazing opportunity to network<br />
with Autistic professionals from all over the world. We look<br />
forward to possibly collaborating with these individuals<br />
on some projects in the future.<br />
—Kirsten Fitzpatrick, Co-Founder at SpectrumSingles.com<br />
and CEO at Spectrum Media, Inc.<br />
I believe <strong>ANCA</strong> could help more people to fulfill their<br />
dreams, especially the Autistic people and their families!<br />
Thanks <strong>ANCA</strong> for providing the wonderful opportunity<br />
for us. It was our honor to be one of this year’s festival<br />
delegates. In the beginning, Danny felt very nervous<br />
and uncomfortable, because he couldn’t adjust to the<br />
jet lag, the weather, and the food in Vancouver. Luckily,<br />
<strong>ANCA</strong>’s staff and delegates were very nice, friendly<br />
and patient, so he almost got over in the final days. We<br />
want to thank Ms. Leonora Gregory-Collura and <strong>ANCA</strong>,<br />
who gave Danny an Honorary Award representing our<br />
country (Taiwan) as a World Ambassador. Besides, they<br />
helped Danny to hold a solo art exhibit at the Taiwanese<br />
Canadian Cultural Society in Vancouver. <strong>ANCA</strong> helps<br />
Danny to fulfill his dream. I believe <strong>ANCA</strong> could help<br />
more people to fulfill their dreams, especially the Autistic<br />
people and their families!<br />
—Andy Chan, Taiwan (Danny Lee’s Brother)<br />
Connection [2016 AWAF Theme] was experienced in<br />
several fronts.<br />
First, international speakers’ [workshops] from different<br />
parts of the globe shared innovative practices and<br />
programs with an overarching objective of helping the<br />
audience better empower their loved ones with autism.<br />
As a professional, I was certainly able to take with me<br />
insights to further enrich my work at home. Likewise, it was<br />
a privilege to be invited to share some of my work to my<br />
international counterparts. The conference/festival has<br />
demonstrated that a myriad of innovative and exciting<br />
bodies of work spring from less traditional grounds which<br />
are wanting to be fully harnessed and enjoyed.<br />
—Archie David, Philippines •<br />
26<br />
| www.naturallyautistic.com
®<br />
®<br />
®<br />
<strong>ANCA</strong><br />
naturallyautistic.com<br />
<strong>ANCA</strong><br />
®<br />
Naturally AUTISTIC ®<br />
Showcasing the Strength and Talent of the Global Autistic Community<br />
YOU’LL NEVER LOOK AT PEOPLE<br />
THE SAME WAY AGAIN<br />
Naturally AUTISTIC ®<br />
Showcasing the Strength and<br />
Talent of the Global Autistic Community<br />
YOU’LL NEVER LOOK AT PEOPLE<br />
THE SAME WAY AGAIN<br />
Naturally AUTISTIC ®<br />
Showcasing the Strength and Talent of the Global Autistic Community<br />
YOU’LL NEVER LOOK AT PEOPLE<br />
THE SAME WAY AGAIN<br />
CONNECTED:<br />
A Film About Autistic People<br />
EXECUTIVE PRODUCERS CHARLIE COLLURA LEONORA GREGORY-COLLURA; PRODUCED & DIRECTED BY SONIA SUVAGAU – SONIA<br />
PRODUCTIONS INC., ORIGINAL SCORE BY SEBASTIAN HUGENECK; FILMED ON LOCATION IN EDINBURGH,<br />
SCOTLAND BY HANDFACE PRODUCTIONS – PAUL HURLEY PRODUCER, LISA MARSH DIRECTOR<br />
Nominated “BEST DOCUMENTARY” at HIFF<br />
®<br />
<strong>ANCA</strong><br />
naturallyautistic.com<br />
CONNECTED:<br />
A Film About Autistic People<br />
EXECUTIVE PRODUCERS CHARLIE COLLURA LEONORA GREGORY-COLLURA; PRODUCED & DIRECTED BY SONIA SUVAGAU – SONIA<br />
PRODUCTIONS INC., ORIGINAL SCORE BY SEBASTIAN HUGENECK; FILMED ON LOCATION IN EDINBURGH,<br />
SCOTLAND BY HANDFACE PRODUCTIONS – PAUL HURLEY PRODUCER, LISA MARSH DIRECTOR<br />
Nominated “BEST DOCUMENTARY” at HIFF<br />
<strong>ANCA</strong><br />
natura lyautistic.com<br />
CONNECTED:<br />
A Film About Autistic People<br />
EXECUTIVE PRODUCERS CHARLIE COLLURA LEONORA GREGORY-COLLURA; PRODUCED & DIRECTED BY SONIA SUVAGAU – SONIA<br />
PRODUCTIONS INC., ORIGINAL SCORE BY SEBASTIAN HUGENECK; FILMED ON LOCATION IN EDINBURGH,<br />
SCOTLAND BY HANDFACE PRODUCTIONS – PAUL HURLEY PRODUCER, LISA MARSH DIRECTOR<br />
Nominated “BEST DOCUMENTARY” at HIFF<br />
<strong>ANCA</strong><br />
natura lyautistic.com<br />
CONNECTED:<br />
A Film About Autistic People<br />
EXECUTIVE PRODUCERS CHARLIE COLLURA LEONORA GREGORY-COLLURA; PRODUCED & DIRECTED BY SONIA SUVAGAU –<br />
SONIA PRODUCTIONS INC., ORIGINAL SCORE BY SEBASTIAN HUGENECK; FILMED ON LOCATION IN EDINBURGH,<br />
SCOTLAND BY HANDFACE PRODUCTIONS – PAUL HURLEY PRODUCER, LISA MARSH DIRECTOR<br />
Nominated “BEST DOCUMENTARY” at HIFF
<strong>ANCA</strong>® Kick-Off 2017 — around the World<br />
28 28<br />
| | www.naturallyautistic.com
<strong>ANCA</strong>® Kick-Off 2017 — around the World<br />
www.naturallyautistic.com |<br />
29
<strong>ANCA</strong>® Kick-Off 2017 — around the World<br />
30<br />
| www.naturallyautistic.com
62icon.com Official Host of the 2017 AWAF Kick-Off<br />
Taipei, Taiwan, Asia Region #2