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University Hospitals Birmingham NHS Foundation Trust specialist palliative care team now plan to start a six day service in September 2011. It is intended for an audit to be undertaken to ascertain how viable the new changes are although KC reported that a decrease in workload has already been noted especially on Fridays and Mondays\Tuesdays before or after the bank holiday weekends. 3.4 Patient Information Leaflets TG outlined that an agreement had been made to have a section on the Network website for patients and carers and that she had been working with members to take this idea forward. TG reported that she would soon be leaving the Network but that a colleague would be continuing this piece of work. TG was thanked for the work she has undertaken with the group and wished well in her future role. 4. Research JS informed the group that SS was unable to attend today’s meeting to present the item for research and asked for this to be deferred. A discussion was undertaken during this agenda item in relation to the Network organising a half day seminar in October 2011 which would be dedicated to research in palliative care within the Pan Birmingham Cancer Network. JS proposed that presentations from the LCRN\FSF Research post holder and also KA, Research Facilitator at Marie Curie Hospice, and also others from the Network who are currently involved in active research. It is hoped that the seminar will be well attended by members of the group and that discussions would stimulate interest in research and also provide a valuable starting point for increasing palliative care research activity in Pan Birmingham Cancer Network. The proposal for a half day seminar was accepted by those present and the next step will be for MW, JS and LB to identify a date, venue and produce a programme which will be circulated to the group. S:\Cancer Network\Network Site Specific Groups\Supportive and Palliative Care\2011\October\Minutes - 11 July 2011 - Approved.doc Page 4 of 7 ACTION SS\ Agenda MW\JS\ LB
5. Network Board Report\Presentation As part of his role as Chair, JS will be expected to attend the Network Board annually to present the report on the work undertaken by this group, what achievements have been made and what challenges are being experienced. One of the issues that will be raised is in relation to 24\7 and 7\7 provision and the outcome of the visits. Another issue that was felt should be discussed is in relation to staff issues across the Network especially as the Network are low when compared to other Networks. During a discussion it was agreed that other issues to be raised included the concern over the MSCC pathway, non-cancer workload support and the transition of children to adult services. During this item JD took the opportunity to update the group on the development of imaging guidelines for patients with MSCC which had been produced by the Radiology Network Site Specific Group and circulated to this group and the Bony Metastases Network Site Specific Group for consultation. The general comments received indicated that the guidance needed to be more in line with the NICE Guidance which states that the service should be provided 7\7. It was outlined that if this guidance was to be followed then Acute Trusts need to be made aware of the decision and that all patients with MSCC should be managed with appropriate clinical rapidity and that liaison should be undertaken with the Oncology Team at University Hospitals Birmingham NHS Foundation Trust. It was outlined that while in theory this service is acceptable in reality it is not available largely due to the non-provision of oncology support 24 hours, 7 days a week. JS expressed the view that all Acute Trusts in the Network should be aiming to provide a 7 day a week MRI service for patients with suspected MSCC and went on to say that it was unacceptable in his view to continue to transfer often sick patients from one hospital to another (‘out of hours’) in order to have imaging performed that could often be carried out in the original referring hospital provided a 7 day a week MRI service was put in place. Several members of the group also felt that the pathway for suspected MSCC for patients who are not currently in either the Royal Orthopaedic Hospital NHS Foundation Trust or University Hospitals Birmingham NHS Foundation Trust was still not clear – especially ‘out of hours’ when imaging was once again raised as an S:\Cancer Network\Network Site Specific Groups\Supportive and Palliative Care\2011\October\Minutes - 11 July 2011 - Approved.doc Page 5 of 7 ACTION
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