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LIVE A <strong>LIFE</strong> AFTER <strong>LIFE</strong>,<br />

<strong>DONATE</strong> ORGANS SAVE LIVES<br />

TM


TM<br />

<strong>DONATE</strong> <strong>LIFE</strong><br />

An initiative for organ donation<br />

‘Beyond Life, There Is Hope For A Better Tomorrow’<br />

The cycle of life and death is a very beautiful, undeniable phenomenon that is in the<br />

hands of a power that is beyond human. But saving lives and giving the gift of<br />

breath is in our power and is completely human. How do we do that? By donating<br />

our organs.<br />

Organ donation is the need of the day and a hope for the brighter future of those<br />

who are not as blessed as most of us. There are those who need an organ to survive<br />

and then there are those who have transcended into a different world and whose<br />

organs could infuse life in many who are still in this world. Our non-profit<br />

organisation, Donate Life, serves as the bridge between the two.<br />

‘Organ Donation Is A Blessing That Stays Long After You Have Passed Away’<br />

As compared to the rest of the world, organ transplants began only in the 1970s in<br />

India. Today, as we stand almost 5 decades away, we still have a very long way to go.<br />

Donate Life is devoted to the world at large, without any commercial motive,<br />

facilitating organ donations between the donors and the recipients.<br />

Nothing in the world can compare with the value of a life-it is priceless. That is<br />

what makes it even more difficult to preserve a life. At Donate Life, we believe in<br />

making the difficult, possible. All our efforts are thus directed in the direction of<br />

increasing the number of organ donors and decreasing the number of deaths<br />

resulting due to non-availability of an organ for transplant-there by saving a life.<br />

CONTENTS<br />

I. INTRODUCTION - 4<br />

II. ABOUT <strong>DONATE</strong> <strong>LIFE</strong> - 6<br />

III. OUR TEAM - 11<br />

IV. THE A TO Z OF ORGAN DONATION - 19<br />

V. HISTORY OF ORGAN DONATION - 20<br />

VI. PROCESS OF ORGAN DONATION - 28<br />

VII. LEGAL SCENARIO - 30<br />

VIII. NEED FOR ORGAN DONATION IN INDIA - 32<br />

IX. MAJOR HURDLES FOR ORGAN DONATION IN INDIA - 34<br />

X. WHY SHOULD YOU <strong>DONATE</strong> ORGANS? - 36<br />

XI. ROLE OF <strong>DONATE</strong> <strong>LIFE</strong> - 40<br />

XII. FIRST KIDNEY, LIVER AND HEART<br />

DONOR FROM SURAT - 44<br />

XIII. FEELINGS OF ORGAN RECIPIENTS - 48<br />

XIV. VIEWS OF DIGNITARIES ABOUT <strong>DONATE</strong> <strong>LIFE</strong> - 54<br />

XV. AWARDS & APPRECIATION - 60<br />

XVI. FAQs - 63<br />

XVII. PRESS COVERAGE - 70


ABOUT <strong>DONATE</strong> <strong>LIFE</strong><br />

‘What We Have Is Material, What We Do Stays Forever’<br />

Donate Life is a non-profit organisation of people who are willing to make the<br />

world a better place to live in. We were established on December 4, 2014.<br />

Under the leadership of Mr. Nilesh Mandlewala who has dedicated his life to this<br />

cause since 2005 and with the support of other founder trustees, it has been our<br />

constant endeavour to contribute to the best abilities to this noble initiative.<br />

There are over 20lakh patients waiting for a kidney transplant in India - 2 lakh<br />

being added to that number every year. The number for various other organs like<br />

heart, liver, eyes are equally shocking. This worrisome situation has strengthened<br />

our resolve to save as many lives as we can.<br />

Till 31st December 2017, we at Donate Life have procured 234 kidney, 94 liver, 16<br />

heart, 6 pancreas, 196 eyes and 4 bones. We have given a new lease of life to 543<br />

people across India & the globe.<br />

Donate Life is the pioneer for the first ever successful cadaver heart transfer and<br />

transplant in Western India. Donate Life is also the pioneer in first ever inter state<br />

heart transplant from Surat, Gujarat to Chennai, Tamil Nadu and Indore, Madhya<br />

Pradesh.<br />

Donate Life is also responsible for carrying out the first-ever bone donation,<br />

successfully from Gujarat.<br />

45% of the cadaveric kidney & liver transplants at Institute Of Kidney Disease &<br />

Research Centre in Ahmedabad, Gujarat, 20% of the heart transplants at<br />

Mumbai's Fortis Hospital have taken place due to the efforts of our organisation.<br />

Also, out of the four heart transplants that have taken place at Ahmedabad's<br />

CIMS hospital, two have been donated from Surat through Donate Life.<br />

We are committed to spreading awareness for the importance of cadaver organ<br />

donation. We were established for two purposes:<br />

To spread awareness and make cadaver donation possible, by increasing the<br />

number of cadaver organ donations in India and facilitating the entire process.<br />

To prevent the alarming number of kidney and liver failure cases that happen in<br />

India and also provide them with a new lease of life.<br />

7


OUR MISSION<br />

‘Not Everyone Has The Chance To Be God For Another; You Do’<br />

We are as determined as soldiers are on a mission. These are our aims:<br />

To spread knowledge and awareness that aids in the prevention of kidney and liver diseases.<br />

To spread awareness about cadaver organ donations in the country among the people.<br />

To facilitate the process of organ donations right from procuring the organs from a donor to making sure that<br />

the recipient gets a new lease of life.<br />

To instill hope among the people for a new life, even after they have given up.<br />

To convince the families of those patients who are declared brain-dead to donate organs and remove fear<br />

from the minds of the people and encourage them to pledge their organs for donation.<br />

To help the people cope with the mental trauma that comes when they are suffering during the diseases.<br />

Networking with hospitals that are capable of handling organ transplantation procedure.<br />

Each and everyone of us at Donate Life contribute our time and energy without any commercial motive,<br />

solely for the benefit of the humanity and large.<br />

OUR VISION<br />

‘With Awareness Comes Knowledge, With Knowledge Comes Change’<br />

Our prime focus has always been and will always be to serve humanity unconditionally. Our vision is to<br />

bridge the gap between the number of people who need organs and the number of people who donate<br />

organs. We want to ensure that the maximum number of people pledge their organs for donation. We<br />

also aim to make the process of organ transplantation smoother and faster.<br />

There are so many people who are declared brain dead and are beyond the scope of revival from that<br />

point. If transferred at the right time, the organs of these patients may help so many people and give<br />

them hope. Through the awareness, we spread and the counselling of the family members of such<br />

patients, we want more people to come forward and voluntarily pledge their organs for donation along<br />

with asking their families to make sure that their wish is complied with after their death. This is how<br />

we can prevent a large number of deaths - with an assurance that the organ of your loved one will live<br />

longer and provide hope to another.<br />

We work in accordance with the Transplantation of Human Organs Act, 1994 and Transplantation of<br />

Human Organs Rules, 1995. We are also registered as a ‘Trust' under Section 80 (G) (5) of the Income<br />

Tax Act, 1961.<br />

9


OUR CORE VALUES<br />

‘You Can Live Twice’<br />

Selflessness<br />

If everyone thought about the world even for a few minutes in the day, half our problems would get<br />

solved right then. We strongly believe in selflessness, and giving it back to the society.<br />

Social Responsibility<br />

We know that the world does not work on it’s own. When the society as a whole takes up collective<br />

responsibility, that is when problems get solved. We have a strong sense of social responsibility<br />

and we strongly uphold it at every step.<br />

Solidarity<br />

Not everyone is born the same, not everyone is born fortunate. We don’t just express solidarity but<br />

also act on it. We want to reduce the suffering in the world and are pro-actively working towards<br />

our goal every day. The world needs love and care. We do our part in it.<br />

Compassion<br />

To be able to counsel a person who is suffering through pain, we need to be empathetic. We don’t<br />

just understand but also feel what they are going through and then counsel them out of their<br />

mental trauma.<br />

Hard-working<br />

Nothing in life comes easy. As an NGO, we face a lot of hurdles everyday and often have to race<br />

against time in order to transfer one organ from one place to another. We work hard as the task at<br />

our hand is to save someone’s life and not let someone’s wish to donate go in vain.<br />

OUR TEAM<br />

‘Your Actions Define You, Not Your Words’<br />

One finger alone cannot do much but five fingers together form a fist. That is the power of a<br />

team and we strongly believe in teamwork at Donate Life.<br />

So far, since the date of our establishment, we have been able to achieve success in carrying<br />

out organ transfers and transplantation only because of our team of founder trustees and our<br />

volunteers who have selflessly devoted time for this cause.<br />

This would not have been possible without the noble Samaritans who have dedicated a lot<br />

more than just time and energy to help humanity.<br />

10


MEET <strong>DONATE</strong> <strong>LIFE</strong>’S TEAM<br />

‘We Are Many, But One’<br />

Mr. Nilesh Mandlewala, Founder & President<br />

There is always one person who lays down the very first brick to<br />

build a new initiative. For Donate Life, Mr. Nilesh Mandlewala was<br />

that person.<br />

Mr. Mandlewala who first was a successful businessman in the<br />

textile industry, later became a renowned social worker and is<br />

known for his contributions to various social activities, having<br />

touched a lot of lives.<br />

Today, he wholeheartedly dedicates most of his time to this noble<br />

cause through Donate Life, with a strong vision and an even<br />

stronger conviction. But what gave birth to Donate Life?<br />

In 1997, his father's kidney had failed. He was taken to Mumbai's<br />

Hinduja Hospital to perform an angioplasty on his kidney. Then<br />

onwards, since 2004, his father had to compulsorily go through<br />

dialysis twice a week, as a result. Only those who go through this<br />

extremely painful procedure know how mentally, physically and<br />

financially draining it is. The suffering of Mr. Mandlewala's father<br />

and his family was too much to bear. They had to undergo a lot of<br />

duress which affected them drastically.<br />

But even during this painful time, Mr. Mandlewala thought that if<br />

he had to go through so many difficulties during dialysis, what<br />

would be the condition of the common man? The average<br />

middle-class common man of India can barely afford that highly<br />

expensive cost of dialysis, let alone cope with the mental trauma<br />

that the entire family goes through when one person in the family<br />

is affected. He wondered that couldn't all the problems faced by<br />

the patients and their families end by organ transplantation?<br />

Just like a butterfly is born only out of a painful struggle in its<br />

cocoon, Mr. Mandlewala started his efforts towards spreading<br />

awareness for the cause of organ donation when his father<br />

underwent such a traumatic period.<br />

Mr. Mandlewala was the Honorary Secretary of The Southern Gujarat Chamber Of Commerce &<br />

Industry (SGCCI) and used to meet a lot of people from various fields. During this time, he met the<br />

President of Gujarat's Chamber Of Commerce, Mr. Chinubhai Shah, who was associated with an<br />

organisation that worked for kidney diseases awareness, called ‘India Renal Foundation'. Impressed<br />

by the knowledge that Mr. Mandlewala had about kidneys and how inclined he was to spread<br />

awareness about the cause, Mr. Shah asked him to join ‘India Renal Foundation'. Mr. Mandlewala<br />

agreed and began educating people about how to take care of their kidney health.<br />

It is during his mission to spread awareness about kidney health, he realised that in a 125<br />

crore-people-strong country, most of the kidney transplants were live donations. The number of<br />

cadaveric donations from brain dead people accounted for only 1-2% of the total donations. He got<br />

know that while the number of people who die due to an accident was around 1.5lakh, those who<br />

were brain-dead or died from a brain stroke were a lot more. 5 lakh people died every year in India<br />

due to non-availability of organs for transplantation!<br />

While it has been a decade that he has been pro-actively promoting the cause of organ donation and<br />

working 24x7 for it - he did not always receive much support. When he had started spreading<br />

awareness, many people would insult him or even get violent when he used to visit the hospital who<br />

had declared a patient as brain-dead and attempted to convince the patient's family to donate the<br />

patient's organs. But nothing has ever stopped him.<br />

It was very difficult to convince the family members of those who were brain-dead to donate the<br />

person's organs for the benefit of others. Mr. Mandlewala did not give up in spite of a number of<br />

obstacles he faced and continued his movement to spread awareness with renewed vigour. He<br />

contacted various neurosurgeons, neurophysicians and ICU in-charges of almost all hospitals in<br />

Surat and convinced them to contact him should they come across a brain-dead patient. The doctors<br />

agreed to support his cause.<br />

12 13


On January 12, 2006, Mr. Mandlewala received a call from Surat's Ashaktaashram Hospital. He rushed<br />

to the hospital without wasting even a single moment. The hospital's neurosurgeon, Dr.Ashok Patel<br />

had declared a patient named Jagdishbhai Shah as brain-dead. It takes a lot of courage to approach<br />

the people who have just lost their loved one and convince them to donate their family member's<br />

organs while they are still recuperating from the loss. But Mr. Mandlewala along with social worker,<br />

Mr. Jitendra Gurjar counselled the family members to donate Mr. Shah's organs.<br />

After Jagdishbhai's family gave their consent, Mr. Mandlewala contacted Dr. Vatsa Patel who knew<br />

about the procedure of organ donation at Ahmedabad's Institute of Kidney Disease and Research<br />

Centre (IKDRC). Dr. Vatsa Patel then contacted Dr. H.L.Trivedi who then immediately sent Dr. Pranjal<br />

Modi and his team to collect Jagdishbhai's kidney. This was the very first time in Gujarat that an<br />

inter-city kidney donation from Surat to Ahmedabad had happened. This was Mr. Mandlewala's first<br />

success story. Then came many others.<br />

In 2013, Surat's Income Tax Commissioner (Appeals) Mr. Sandeep Kumar's (IRS) kidney failed. His<br />

family members were ready to donate their kidneys to him but because they were ailing from<br />

different diseases like blood pressure, kidney stones they could not do so. The doctor who was<br />

performing the dialysis of Mr, Sandeep Kumar - Dr. Ketan Desai and CA Hiren Divan approached Mr.<br />

Mandlewala for a kidney transplant. Sandeep Kumar's dialysis began at Ahmedabad IKDRC. After<br />

some time when Mr. Sandeep Kumar got a cadaver organ donation and underwent a kidney<br />

transplant, he decided to dedicate the rest of his life for the cause of organ donation. Today he is the<br />

Vice-President of Donate Life.<br />

Sometime after this incident, with the support and encouragement of the founder trustees, who are<br />

the renowned personalities of Surat city and country, like the Commissioner of Income Tax,<br />

Chartered Accountants, Advocates and Businessmen namely Mr. Sandeep Kumar IRS, Mr. Rakesh<br />

Jain, Mr. Hemant Desai, Mr. Hiren Diwan, Mr. Ramesh Malpani, Mr. Nirmal Sukh Baijal, other trustees<br />

and hundreds of other volunteers, Donate Life was established on 4th December, 2014. Param Pujya<br />

Didi Maa Sadhvi Ritambharaji who inaugurated Donate Life's initiative.<br />

Mr. Mandlewala's efforts towards organ donation continue even today with more and more people<br />

getting a re-incarnation like experience due to the donated organs.<br />

With his vision, passion, commitment and dedication to organ donation activities, he achieved<br />

several milestones in this field, so far, Mr. Mandlewala and Donate Life have been able to persuade<br />

& procure 234 kidney, 94 liver, 16 heart, 6 pancreas, 196 eyes and 4 bones. We have given a new lease<br />

of life to 543 people across India & the globe.<br />

Also taking it upon himself to educate and spread awareness to more than 9 lac people on Cadaver<br />

organ donation.<br />

His aims in the life are to set up a kidney transplant hospital of international standards at Surat, to<br />

promote the awareness of cadaver organ donations, thereby saving lives. He also wants to open a<br />

skin, bone and tissue bank and work towards hands and lungs transplantation. He is also working<br />

towards the donation of heart-valves of small children.<br />

Everyone either drinks tea or coffee. But Mr. Nilesh Mandlewala sacrificed drinking tea or coffee so<br />

that when someone offers him tea or coffee, he can talk about the cause of cadaver organ donation.<br />

He has taken a vow that will not resume drinking tea or coffee until 1,111 organs are donated. He feels<br />

that is a very small sacrifice he is making towards the cause.<br />

Mr. Mandlewala's wife, children, his deceased friend Anthony Varghese, the trustees of Donate Life<br />

and all the volunteers who have given their contributions to the organisation has made it reach the<br />

peak that it sits on today.<br />

To talk about Mr. Mandlewala's background - he was the president of Southern Gujarat Chamber of<br />

Commerce and Industry (SGCCI) in the year 2009-10. During his tenure as president, SGCCI became<br />

the first chamber in the country to established a Trade and Convention centre of its own which was<br />

inaugurated by the then Hon'ble Chief Minister of Gujarat Shri Narendra Modi on 12th March 2010. He<br />

is a member of Surat Shaher Shanti Samiti and District Legal Services Authority, District Court Surat,<br />

and also a trustee in Traffic Education Trust, Surat. He is Vice President of South Gujarat Productivity<br />

Council (SGPC), Surat. He has worked as a conciliator in Permanent Lok Adalat, District Legal<br />

Service Authority, and District Court Surat. He is also rendering services as Vice President of<br />

Vatsalya Gram Samiti, Surat of Vatsalya Gram Project run by Param Pujya Didi Maa Sadhvi<br />

Ritambharaji with the vision of providing a home to orphaned children, destitute women and lonely<br />

grannies across the globe.<br />

14 15


Mr. Sandeep Kumar, IRS, Vice- President<br />

Mr. Sandeep Kumar is an officer of the 1989 batch of the Indian<br />

Revenue Services (IRS) and belongs to the city of Varanasi. He has<br />

completed his post-graduation in Ancient History from Allahabad<br />

University and has also studied Sanskrit Literature and Hindi<br />

Literature.<br />

In 2013, Surat's Income Tax Commissioner (Appeals) Mr. Sandeep<br />

Kumar's (IRS) kidney failed. His family members were ready to<br />

donate their kidneys to him but because they were ailing from<br />

different diseases like blood pressure, kidney stones they could<br />

not do so. The doctor who was performing the dialysis of Mr,<br />

Sandeep Kumar - Dr. Ketan Desai and CA Hiren Divan approached<br />

Mr. Mandlewala for a kidney transplant. Sandeep Kumar's dialysis<br />

began at Ahmedabad IKDRC. After some time when Mr. Sandeep<br />

Kumar got a cadaver organ donation and underwent a kidney<br />

transplant, he decided to dedicate the rest of his life for the cause<br />

of organ donation. Today he is the Vice-President of Donate Life.<br />

After working in various capacities in the Income Tax Department<br />

at various places like Delhi, Kanpur, Agra, Mumbai, Surat, he is<br />

presently posted as Commissioner of Income Tax at Delhi. During<br />

his career, he has dealt with and solved a number of difficult and<br />

complex cases of revenue. One of his major achievements has<br />

been the handling of Harshad Mehta Security Scam matters<br />

wherein the revenue of about two thousand crore rupees was<br />

collected by him. He has vast experience of dealing the cases of<br />

the film industry and has also contributed the study material on<br />

how to investigate and make assessments of the persons<br />

belonging to the film industry, which was circulated in the income<br />

tax department as a guidance material.<br />

He is an avid reader and has an excellent knowledge of Indian<br />

history and culture. During his free time, loves capturing different<br />

moods of life through a passion for photography, and plays sports<br />

like table-tennis, badminton and cricket.<br />

Despite having his kidney transplanted in August 2013, he has<br />

taken the keen interest in the activity of organ donation with Mr.<br />

Nilesh Mandlewala and has been the motivator for the formation<br />

of Donate Life. He has also been involved in many social activities<br />

and in the upliftment of the poor and downtrodden. His motto of<br />

life is as said by Mahatma Gandhi: "The best way to find yourself is<br />

to lose yourself in the service of others."<br />

Mr. Sandeep Kumar is a strong force that forms the backbone of Donate Life. He has gone through the<br />

process of kidney transplantation himself and understands how difficult it is for a person who goes through<br />

that phase. It is because of his support that the establishment of Donate Life has become possible. As he<br />

underwent a kidney transplant himself, he didn't want others to go through the pain that he felt. It is because<br />

of him that Donate Life could take the first steps to make this world a better place to live in. His spirit of<br />

service is commendable.<br />

Mr. Rakesh Jain, Secretary<br />

Mr. Rakesh Jain is an established businessman and engaged in the<br />

business of chemicals at Surat. He is also a well-known social<br />

worker following the footsteps of his father, Shri Mithalal Jain.<br />

He accompanies Mr. Mandlewala even during odd<br />

hours-sometimes even in the middle of the night-when Donate Life<br />

gets a call from a hospital for cadaver organ donation. He is always<br />

there to make sure that the process of organ donation is done<br />

successfully.<br />

Medicine is something that every human needs in the 21st century.<br />

And rising medical costs are the reason for worry, where most<br />

people cannot afford it. Mr. Jain has been giving services in<br />

providing medical treatments to the needy people.<br />

He is Executive Core Committee Chairman of Southern Gujarat<br />

Chamber of Commerce (SGCCI), Surat. He is also associated with<br />

many trade and social organisations.<br />

Mr. Ramesh Malpani, Treasurer<br />

He is a practising Chartered Accountant at Surat for last 30 years. He was<br />

chairman of Surat branch of Institute of Charted Accountants of India in<br />

the year 1992. He has been associated with a number of social and trade<br />

organizations.<br />

16 17


THE A TO Z OF ORGAN DONATION<br />

Mr. Hemant Desai, Trustee<br />

He is a renowned practising advocate of Indirect Taxes at Surat for last<br />

30 years. He is a trustee of India Charity Trust and Ethics Committee<br />

Medical. He is Chairman of VAT committee in Southern Gujarat<br />

Chamber of Commerce and Industry (SGCCI) since last 4 years.<br />

His zeal for social work and public service has led him to join<br />

Donate Life.<br />

Mr. Desai is available 24x7 whenever Donate Life gets a call for organ<br />

donation. He has been helping Mr. Mandlewala continuously to make<br />

sure that the process of organ donation; right from organ harvesting<br />

to organ transfer is done smoothly. His efforts are valuable to<br />

Donate Life.<br />

Mr. Hiren Diwan, Trustee<br />

A renowned practising Charted Accountant at Surat, Mr. Hiren Diwan<br />

is also a well-known social worker at Surat. He is a past chairman of<br />

Surat branch of The Institute of Charted Accountants of India. He is<br />

a pioneer trustee of the well-known eye hospital "Tarpan". He is the<br />

treasurer of Traffic Education Trust, Surat. He is public-spirited and<br />

is engaged in various social initiatives.<br />

Mr. Nirmal Sukh Baijal, Trustee<br />

He is a businessman and lives in Agra. He has completed his<br />

graduation in commerce from Agra University. He is running the<br />

businesses concerns namely Archie's gallery and Auto CAD centre.<br />

He is a social worker and actively involved in the activities of social<br />

service through various NGOs of the city.<br />

‘Truth is indeed stranger than fiction’<br />

We have heard about organ donation and how we can pledge our organs. We<br />

have also heard about organ transplantation procedures. But how much do<br />

we really know? This A to Z of organ transplantation will make you aware of all<br />

facets of the cause.<br />

In layman's terms organ donation is the process where the organs of a person<br />

a removed with the consent of the donor or after the death of a person, with<br />

the consent of the next of kin. Only healthy organs can be transplanted into<br />

another person.<br />

The very first kidney transplant noted in history was in 1954. Ronald Lee<br />

Harrick, donated his kidney to his twin brother. The surgeon who performed<br />

this procedure, Dr. Joseph Murray, was awarded the Nobel Prize in Physiology<br />

or Medicine for it.<br />

The youngest donor in history is a 100 minute old baby, whose kidneys were<br />

transplanted into an adult in 2015 . While the oldest known donor is a Scottish<br />

woman who was 107 year old when a cadaveric donation happened of her<br />

organs.<br />

There are mainly two types of organ donation - living organ donation and<br />

deceased/cadaver organ donation. Donate Life deals with the latter. Tissue<br />

donation is also a kind of organ donation where one can donate tendons,<br />

valves, veins, skin and bones. You can also donate your eye's cornea. Solid<br />

organ donation happens in cases of brain-death only, whereas tissue organ<br />

donation can happen in the cases of brain-death and in cases of other kind of<br />

deaths.<br />

When it comes to organ transplantation there two kinds, autografts and<br />

allografts. Autografts are when organs or tissues are transplanted in the<br />

same person’s body and allografts are when organs and tissues are<br />

transplanted in two different beings of the same species. There is one more<br />

less common kind called xenograft, where the organs or tissues are<br />

transplanted into different species.<br />

In the following pages, you will learn more about organ donation.<br />

18 19


THE HISTORY OF ORGAN DONATION<br />

THE FIRST ORGANS AND TISSUE<br />

TRANSPLANTS IN THE WORLD & INDIA<br />

The idea of organ donation is not new but unlike today, it was considered to be a myth<br />

back in the ancient times. It was only in the middle of the eighteenth century that the<br />

possibility was realised.<br />

One of the major challenges that the early transplant surgeons faced was the<br />

resistance from the immune system. The immune system is built into our body to<br />

fight ‘alien' components that the body thinks to be harmful. The same happened<br />

when an attempt at transplantation was made. Now the question faced by the<br />

doctors was that how to deal with this issue.<br />

CORNEA:<br />

Austrian ophthalmologist, Eduard Konrad Zirm was an ophthalmologist who performed the first<br />

successful human full-thickness corneal transplant on 7 December 1905. The donor was Karl Brauer,<br />

an 11-year old boy who had iron metal bodies lodged in his eyes. The recipient was Alois Glogar, a<br />

45-year-old day labourer whose corneas were damaged. His one eye had a clear vision after the<br />

transplant but other one had complications.<br />

India's first cornea transplant happened in 1948. Dr. RES Muthayya established the nation's first eye<br />

bank in Chennai's Regional Institute Of Ophthalmology and Government Ophthalmic Hospital.<br />

A few years later, it was discovered that some drugs could lower the body's<br />

guard-thus the immune system. It did put the patients at risk of certain infections<br />

but it also made transplant possible.<br />

In 1960, Dr. Peter Medawar introduced a way of typing tissue (similar to the blood<br />

typing of the 1900s) and soon tissue typing along with immune system suppression<br />

was used to carry out an organ transplant.The invention of an immunosuppressant<br />

drug named ‘cyclosporine' made a major breakthrough in the 1980s. In 1986, 9000<br />

kidney transplants were performed in the United States that a good survival rate of<br />

85% in the first year.<br />

KIDNEY:<br />

On June 17, 1950, Dr. Richard Lawler, performed the first kidney transplant. 49-year-old Ruth Tucker<br />

was the recipient and the donor was deceased. It is said that some 40 doctors watched the surgery<br />

that took one hour to perform. Later the kidney was removed due to rejection, some 10 months later.<br />

But those 10 months, helped Ruth survive for another 5 years on her own kidney.<br />

Another kidney transplant was performed on December 23, 1954 in Boston by Dr. Joseph Murray. The<br />

donor was a living one. The transplant was performed between two identical twins, Richard and<br />

Ronald Herrick. Richard needed a kidney and Ronald's kidney matched as there was no rejection. Dr.<br />

Murray got a noble prize for this, years later.<br />

India's first kidney transplant was done by Dr. P.K. Sen and his team at King Edward Memorial<br />

Hospital, Mumbai in May 1965. The recipient died 11 days later due to complications but the kidney was<br />

working properly until death.<br />

20 21


LIVER:<br />

Dr. Thomas Starzl performed the first ever deceased donor liver transplant in 1967 on a 19-month-old<br />

Julie Rodriguez. He was known as the ‘father of transplantation'.<br />

Julie became the first liver recipient with a survival exceeding one year.<br />

India's first liver transplant happened on November 6, 1998 by Dr. A.S. Soin and Dr. Rajashekar on<br />

42-year-old Bharat Bhushan at Delhi's Apollo Hospital. Bhushan was terminally ill and a corporate<br />

executive was declared brain-dead, whose liver was donated. Bhushan lived for another 13 years.<br />

HEART:<br />

Dr. Christiaan Bernard Denise performed the first ever heart transplant on 53-year-old Lewis<br />

Washkansy on December 3, 1967 in South Africa. Denis Darvall was the donor. Due to the<br />

immunosuppressant drugs that he was given, Washkansy developed double pneumonia and died 18<br />

days later. His new heart had functioned normally until his death.<br />

In India, a group of 20 surgeons led by Dr. P. Venugopal successfully performed India's first heart<br />

transplant at AIIMS, Delhi on August 3, 1994. Devi Ram, a 40-year-old was the recipient and the donor<br />

was a 35-year-old woman. Devi Ram lived on for another 15 years.<br />

PANCREAS:<br />

The first successful pancreas transplantation in conjunction with a simultaneous kidney transplantation<br />

was performed by W.D. Kelly, MD, and Richard Lillehei, MD, from the University of Minnesota in 1966.<br />

Although the transplant was successful and her blood sugar levels had dropped, she died three months later<br />

from a pulmonary embolism. In 1969, the same team did another transplant which had a survival rate of over<br />

a year.<br />

India's first pancreas transplant was done at Post Graduate Institute of Medical Education and Research<br />

(PGIMER), Chandigarh, performed the region's first pancreas transplant in December 2014. Ashok Kumar<br />

(45), a native of Barnala, Punjab was the donor and Anju, a woman in her 30s received the organ.<br />

SKIN:<br />

Some Sanskrit manuscripts say that skin transplants were performed in 3000-2500 B.C. but there is no<br />

evidence of it. The first modern skin transplant was performed by a German surgeon Carl Bunger in 1823. He<br />

was repairing the patient's nose. He did skin grafting using the flesh of the patient's inner thigh.<br />

Some sources suggest that Indian surgeon Sushruta did rhinoplasty in the 2nd century.<br />

WHAT ORGANS CAN BE <strong>DONATE</strong>D?<br />

Not all organs of the human body can be donated.<br />

CHEST:<br />

The following organs in the chest area of the human body can be donated:<br />

i) Heart (Cadaveric only)<br />

ii) Lung (Cadaveric)<br />

ABDOMEN:<br />

i) Kidney (Cadaveric & Living)<br />

ii) Liver (Cadaveric & Living)<br />

iii) Pancreas (Cadaveric only)<br />

iv) Intestine (Cadaveric & Living)<br />

v) Stomach (Cadaveric only)<br />

vi) Testis (Cadaveric & Living)<br />

vii) Uterus & Ovaries ((Cadaveric)<br />

LUNG:<br />

Dr. James Hardy performed a lung transplant in 1963 in Jackson, Mississippi. Dr. Hardy and his team had<br />

done 400 transplant experiments on dog which were not successful. So they decided that the first lung<br />

transplant patient must be someone who was terminally ill. The first patient was a 58-year-old man<br />

with lung cancer. After initial success, the patient died 18 days later.<br />

India's first lung transplant came very recently. In July 2012, 41-year-old Jayshree Mehta when a senior<br />

citizen donated his lungs and a transplant was performed at Mumbai's Hinduja Hospital.<br />

TISSUES, CELLS:<br />

i) Hand (Cadaveric only)<br />

ii) Cornea (Cadaveric only)<br />

iii) Skin (Cadaveric & Living)<br />

iv) Islets of Langerhans (pancreas cells) (Cadaveric & Living)<br />

v) Bone marrow/Adult stem cell (Cadaveric & Living)<br />

vii) Blood Vessels (Cadaveric only)<br />

viii) Heart Valve (Cadaveric only)<br />

ix) Bone (Cadaveric & Living)<br />

x) Blood & Platelets ((Cadaveric & Living)<br />

22 23


TIME IN WHICH ORGANS NEED TO BE<br />

<strong>DONATE</strong>D AFTER DEATH<br />

The medical condition of the person at the time of death can determine what organs and<br />

tissues can be donated and what cannot be. Organs need to be removed as soon as the<br />

person is declared brain-dead. Without the necessary oxygen supply, the organs stop<br />

functioning right.<br />

The approximate amount of time between recovering the tissues/organs and transplanting<br />

them is:<br />

Lung - 4 to 6 hours<br />

Heart - 4 hours<br />

Liver - 24 hours<br />

Pancreas - 24 hours<br />

Kidney - 72 hours<br />

Cornea - 14 days<br />

Bones - 5 years<br />

Skin - 5 year<br />

Heart Valves - 10 years<br />

This is why creating a tissue bank (heart valves, skin, bones etc.) is possible but<br />

creating an organ bank is not. In case of organ transplantation, the process has to<br />

be very quick in order to save a life.<br />

Keeping a brain-dead person on ventilator support helps as the organs continue<br />

receiving oxygen, providing a window of time for doctors to conduct organ<br />

transplantation.<br />

There is a waiting list of people who have asked for an organ - however, in India, the<br />

waiting list is very huge and the number of organ donors are far lesser.<br />

Have you ever imagined how difficult it would be to transport vital organs from one<br />

state to another or even part of a major city to another in the 21st century? Organs<br />

like the heart and lungs give only 4 to 6 hours for the process.<br />

The next section will tell you how organs are transported from one state or city to<br />

another.<br />

24 25


GREEN CORRIDOR SYSTEM<br />

The green corridor system is one way to expedite organ transplants and save lives. In this system, the<br />

traffic department collaborates to transport a vital organ in less than 60-70% of the time that is usually<br />

taken to go from place A to place B.<br />

While this system was first devised to handle medical emergencies, it is widely used for the purpose of<br />

transfer of donated organs.<br />

A ‘green corridor' is a special route that is managed in a way that all the traffic signals that come in the<br />

route of the hospital where an organ is harvested and the hospital where it is to be transplanted, are<br />

green and controlled manually.<br />

By adopting this method, all the red signals on the way are skipped thereby speeding up the travel time<br />

by several minutes - minutes that are enough to save someone's. For instance, in cities like Mumbai,<br />

Delhi, Bangalore, it is extremely difficult to deal with traffic. Should there a need arise to transplant<br />

an organ during the peak traffic hours, it gets extremely difficult and virtually impossible to get to the<br />

destination in time. The earlier an organ is transplanted, the more chances of success.<br />

Green corridor makes sure that there is no organ wastage. It is<br />

an extremely useful system of managing traffic that requires a<br />

very strong coordination among the traffic officials. When a<br />

heart is donated, it needs to be airlifted as it is a race against<br />

time. There is a time of only 4 hours between harvesting and<br />

transplant, in which the transfer must happen. It is extremely<br />

necessary to get the organ to the recipient in time. That is<br />

where green corridor comes in handy.<br />

In India, the concept of green corridor has been in use since<br />

2014. Chennai was the first city to incorporate this concept. An<br />

ambulance carried a heart to save the life of a 21-year old and<br />

covered a distance of 12kms in just 14 minutes in Chennai-<br />

Government General Hospital to Fortis Malhar Hospitals in<br />

Adyar. Otherwise, the time taken for travel would have been<br />

more than 45mins.<br />

This system has also helped save lives in cities of Mumbai,<br />

Gurgaon, Hyderabad, Bangalore, Kolkata, and Indore in the last<br />

two years.<br />

Surat has become the first city in India to have incorporated<br />

the system of black and white notification which make sure<br />

that no time is wasted in created a green corridor. Donate Life<br />

initiates the process by calling the police department, after<br />

which every necessary thing is taken care of to transport the<br />

organ on time. Organs would not have reached the recipient on<br />

time without the support of Surat Police Department and<br />

contribution of the Airport Authority Of Surat in facilitating<br />

speedy takeoffs and landing and also night landing and<br />

takeoffs in a very short time.<br />

26 27


THE PROCESS OF ORGAN DONATION<br />

‘Bring A Smile On Someone’s Face, Keep Them Smiling For Life’<br />

Every time a cadaveric organ donation takes place, there is a specific process that is followed. It is<br />

as following :<br />

PLEDGING BY DONOR<br />

You can pledge to donate your organs after your death with Donate Life. This is a voluntary act. Also,<br />

the donor can communicate his/her wish to donate organs after death to family members and<br />

friends.<br />

VERIFICATION OF DEATH<br />

The very first step is to verify whether the person is brain-dead and there is no scope for revival. Only<br />

the organs of brain-dead patients' are donated.<br />

According to the Transplantation of Human Organs Act, a competent doctor must certify a personas<br />

brain-dead, the process of which is given in Form 10 of the Act. This death has to be certified by:<br />

‘(i) the registered medical practitioner in charge of the hospital in which brain-stem death has<br />

occurred;<br />

(ii) an independent registered medical practitioner, being a specialist, to be nominated by the<br />

registered medical practitioner specified in clause (i), from the panel of names approved by the<br />

Appropriate authority;<br />

(iii) a neurologist or a neurosurgeon to be nominated by the registered medical practitioner<br />

specified in clause (i), from the panel of names approved by the Appropriate Authority; and<br />

(iv) the registered medical practitioner treating the person whose brain-stem death has occurred.'<br />

Who is a brain-dead patient?<br />

Due to a brain stroke or a haemorrhage, due to an injury or illness, a person suffers an irreversible<br />

and catastrophic condition where revival of brain function is impossible. This is known as brain-stem<br />

death. The brain-stem is an important part of the brain that carries out all bodily functions.<br />

The patient's pulse can still be felt and the patient shows signs of life but only because of the fact<br />

that person is put on a ventilator that supplies oxygen to the person's body. The heart and other<br />

organs can continue functioning for a few hours to a few days and this is when organ donation can<br />

take place.<br />

Organs are never harvested at the cost of a person's life. The doctors (usually a neurologist) carefully<br />

examine the patient and conduct an array of tests before declaring a person as brain-dead, at<br />

multiple times.<br />

CONTACTING NGOS LIKE <strong>DONATE</strong> <strong>LIFE</strong><br />

As the awareness for organ donation is very low in India, there is a need for NGOs like Donate Life to<br />

help educate and make people aware about organ donation and convince the relatives to donate the<br />

organs of their family member. In Surat, doctors have fully supported the cause of organ donation.<br />

CONSENT<br />

As the person is dead, the consent of his/ her next of kin or family members is to be obtained to take<br />

the organs for donation. Even if the person in his/her lifetime explicitly stated that the organs should<br />

be donated, the process cannot take place without the consent of the family members.<br />

The concept of consent has been explicitly defined by the Transplantation Of Human Organs Act,<br />

1994. In case of the donation for an unclaimed body/a person dying without any relatives, the<br />

consent for organ donation can be given by a person-in-charge of the management of the hospital,<br />

after 48 hours of a person being declared as brain-dead.<br />

RECOVERY & TRANSFER OF ORGANS FOR DONATION<br />

After the consent has been explicitly obtained, a team of doctors, usually from the hospital that<br />

currently has a patient in-need of the organs, come to harvest the organs from the body of the<br />

brain-dead patient. What organs can be donated and what cannot be is dependent on the condition<br />

and illness of the patient. Consent has to be obtained for each and every organ that is to be<br />

harvested from the patient's body.<br />

Once the organs are harvested from the body of a patient, they are to be taken to another patient<br />

who is need of those organs. Sometimes, the recipient and donor of the organs are in the same<br />

hospital, sometimes they are not even in the same city. Ensuring timely transfer of organs is<br />

extremely important.<br />

TRANSPLANTATION<br />

The recipient who matches with the donor's body specifics in donated the organ(s) by performing a<br />

transplant as soon as possible. The sooner the transplant is done, the higher are the chances of the<br />

organ adapting to the recipient's body. The cost of the process of organ donation is not borne by the<br />

recipient's family and nor is the donor paid any money for the donation.<br />

STORAGE<br />

Some organs are stored for a while before a transplant is performed. Also, tissues like bones can<br />

stay out of the human body for 5 years, so tissues are stored at tissue banks.<br />

Each organ is flushed free of blood after removal from the patient's body with a specially prepared<br />

ice-cold preservation solution that contains electrolytes and nutrients. The organs are then placed<br />

in sterile containers, packaged in wet ice, and transported to the recipient's transplant center.<br />

Many people have benefited from the donated organs in India so far, as many stand waiting for an<br />

organ transplant.<br />

28 29


LEGAL SCENARIO<br />

‘Earth Needs Your Organs More Than Heaven’<br />

The entire process of organ donation is governed by the Transplantation of Human Organs Act, 1994<br />

and the Transplantation of Human Organs Rules, 1995 and their subsequent amendments - the last<br />

for the Act being in 2011 and for the rules being in 2015.<br />

The Act received the assent of the President on 8th July, 1994 with an objective to provide for the<br />

‘regulation of removal, storage and transplantation of human organs for therapeutic purposes and<br />

for the prevention of commercial dealings in human organs and for matters connected therewith or<br />

incidental thereto’.<br />

The matters related to health fall on the State List in India, so every state in India has to adopt this<br />

Act by passing a resolution.<br />

Let’s better understand the law pertaining to organ donation in India, in layman’s terms.<br />

A person is capable of giving consent to organ donation only if he/she is above 18 years of age. If<br />

he/she is a minor, guardians or parents can consent to donating their organs.<br />

The buying and selling of organs are prohibited under the law. If one is convicted of the offence, one<br />

can be sent to upto 10 years imprisonment and be asked to pay a fine of upto ₹20lakhs (was 5 years<br />

and ₹10,000 when the Act commenced). Also, under Section 370 of The Indian Penal Code, a person<br />

who does forced removal or organs (without consent) is liable to be sentenced to jail for 7-10 years<br />

and a fine.<br />

A person who intends to donate organs after his death can in writing and in the presence of two<br />

witnesses, state his wish to do so. After his death, his wish can be carried out.<br />

A competent doctor must certify a personas brain-dead, the process of which is given in Form 10 of<br />

the Act. This death has to be certified by:<br />

‘(i) the registered medical practitioner in charge of the hospital in which brain-stem death has<br />

occurred;<br />

(ii) an independent registered medical practitioner, being a specialist, to be nominated by the<br />

registered medical practitioner specified in clause (i), from the panel of names approved by the<br />

Appropriate authority;<br />

(iii) a neurologist or a neurosurgeon to be nominated by the registered medical practitioner<br />

specified in clause (i), from the panel of names approved by the Appropriate Authority; and<br />

(iv) the registered medical practitioner treating the person whose brain-stem death has occurred.’<br />

This has to be done twice within 6 hours.<br />

Consent of the family members (next of kin) has to be obtained to retrieve organs from a brain-dead<br />

person. In case of an unclaimed body, if it is not claimed for 48 hours after death, the consent to<br />

donate organs can be given by the person-in-charge of the hospital or on his behalf by his employee.<br />

If the body of a person is to be sent for post-mortem, then organs for the purpose of donation can be<br />

harvested before the process begins if the organs are in no way related to the reason for the<br />

post-mortem.<br />

Any hospital that is to be undertake the process of organ donation has to be registered under the<br />

Act. Every hospital has to have a ‘certificate of registration’ by the appropriate state authority. They<br />

must also inform in writing to Human Organ Retrieval Centre about the organ transplantation.<br />

A tissue bank that stores tissues (that include heart valves, bones etc.) also has to be registered<br />

under The Act.<br />

A registry is maintained by the central government of the donors and the recipients.<br />

There is National Organ & Tissue Transplant Organisation (NOTTO), Regional Organ & Tissue Transplant<br />

Organisation (ROTTO) and State Organ & Tissue Transplant Organisation (SOTTO), set up under<br />

the Act. The function of these is to act as the apex centre for activities of coordination and networking<br />

for procurement and distribution of Organs and Tissues and registry, along with setting policies<br />

and creating awareness.<br />

There are qualification listed for the doctors in the Act. For different organs, the qualifications and<br />

experience vary as per the law.<br />

There are a total of 21 forms that deal with consent, death certification, registration etc. in the Act.<br />

30 31


NEED FOR ORGAN DONATION IN INDIA<br />

‘Life Is A Gift, Give One Too’<br />

Numbers speak louder than anything. These alarming statistics about the situation of organ<br />

donation will make you understand the need for organ donation in India.<br />

Approximately 5 lakh people die every year due to non-availability of organs!<br />

Imagine the time lakhs of people face when they are only waiting for death. Every day, they wish for<br />

an organ to be available that can save their lives. But that never happens. Feel their pain.<br />

One person dies of kidney failure every 5 minutes, putting the yearly death due to kidney failures over<br />

1,00,000!<br />

The number of prospective recipients are far greater than the number of donors!<br />

India’s ODR rate is just 0.34!<br />

India’s Organ Donation Rate (ODR) is a very low 0.34. Which means that per million people in India,<br />

only 0.5 people donate their organs. When we compare it to the world - 36 persons per million of<br />

population donated organs in Spain in 2014, 35 donated in Croatia, 27.02 donated in the United States.<br />

Tamil Nadu is considered to be the organ donation capital of India because of its high organ donation<br />

rate. Out of the total number of cadaveric donors in India, the highest were from Tamil Nadu. The<br />

state accounted for roughly 25% of the total donors in India. The ODR of Kerala and Tamil Nadu has<br />

also been high around 2.5.<br />

The approximate number of brain-deaths in India is around 1.5lakh - if every patient<br />

donated their organs, a large number of people could be solved.<br />

There has to be willingness to donate - there are so many numbers of brain-death that happen in<br />

India. However the number of donors are drastically less.<br />

ORGAN<br />

Kidney<br />

Liver<br />

Heart<br />

Cornea<br />

NO. OF PEOPLE<br />

NEEDING ORGANS<br />

NO. OF ORGAN<br />

TRANSPLANTS<br />

PERCENTAGE<br />

2,00,000 4000 2%<br />

1,00,000 500 0.5%<br />

50,000 50 0.1%<br />

1,00,000 25000 25%<br />

More than 50% of the family members either refuse to donate the organs or are not<br />

aware about organ donation in India:<br />

Even if family members of a brain-dead patient are made aware about organ donation they will<br />

refuse to donate organs due to various mindsets and myths. Sometimes, even if the brain-dead<br />

patient in his lifetime wants to donate organs, the lack of communication between the family<br />

members and transplant institute gives rise to hurdles.<br />

Most patients suffering from organ failure live quantity life instead of quality life.<br />

For instance, people suffering from kidney failure have to be on dialysis. That is when they live a<br />

‘quantity life’, suffering from pain and counting their days. While once they get a transplant, their life<br />

becomes a ‘quality life’. There is a need for the latter to happen more than the former.<br />

Alarmingly, these statistics do not improve at a faster rate year after year. But the need for the<br />

people who need organs keep increasing due to unhealthy lifestyles and increasing stress levels.<br />

Thousands of people are added to the wait list every year.<br />

There are only 301 hospitals in India that can undertake organ transplants, out of<br />

which only 148 are registered with NOTTO!<br />

There is only one hospital per 43 lakh people in India to handle organ donation and transplantation!<br />

It is next to impossible for one hospital to handle the needs of such a large number of people.<br />

Also, the population in India is increasing with geometric progression but the facilities are not! Can<br />

one imagine the situation for organ donation after 10 years if concrete steps are not taken<br />

immediately?<br />

According to the World Health Organization (WHO), only about 0.01 percent in India<br />

donate their organs after death, while in Western countries around 70-80 percent of<br />

people pledge their organs.<br />

When compared to other countries in the world, India has a long way to go. But these statistics show<br />

that having a high ODR is possible with the right conviction and awareness, along with training<br />

programmes for transplant personnel.<br />

In India there a belief that we are living in ‘kalyug’ where no one does anything for<br />

another without vested interests.<br />

Organ donation busts the myth that humanity is extinct. Along with the physical needs of India as a<br />

nation, there is a very strong mental need of trust and faith in fellow humans. Organ donation,<br />

inspires and many a times, rekindles the faith of humans in one another. This one of the most primary<br />

needs of organ donation.<br />

32 33


MAJOR HURDLES IN ORGAN DONATION<br />

‘Pass On Your Life’<br />

INFRASTRUCTURE<br />

India lacks in proper infrastructure to transport organs and more importantly, train those<br />

who have to harvest, store and transfer organs. Very few hospitals are registered to<br />

conduct the process of organ transplantation.<br />

Ventilators are crucial to keep the oxygen supply for brain-dead patients working, but not<br />

every hospital is equipped with those. The basic infrastructure to conduct the entire<br />

process smoothly is absent.<br />

Also since vital organs can be retrieved at only at hospitals and not at homes, the right<br />

infrastructure is essential.<br />

FEAR<br />

There are two kinds of fears in the minds of the people in India. One is mental, which<br />

believes that donating organ will condemn the person to hell. And another is that donating<br />

organs will cause immense pain. Both are blatantly wrong.<br />

It is has been a common school of thought across all religions that helping people is<br />

helping God and thus a path to heaven. Organ donation is a help - one that the other person<br />

will remember for life. Thus, going to hell is completely out of question.<br />

The second fear of physical pain can also be dealt with. Once a person is declared<br />

brain-dead, they do not feel pain. Organs are harvested only after proper certification of<br />

death. Some also have a fear of organ rejection after transplantation.<br />

There is also a fear of disfigurement of boy after organs are retrieved. But the truth is that<br />

there is no disfigurement. Organs are retrieved with respect and the body is stitched how<br />

it is after a surgery.<br />

IGNORANCE<br />

Until something drastic doesn't happen to our own family members we do not bother to<br />

think about noble causes to help others. We also refuse to educate ourselves and keep<br />

up-to-date with what's happening today. Ignorance on the part of the people is one of the<br />

major hurdles that does not let the cause of organ donation spread.<br />

LACK OF AWARENESS<br />

Not everyone reads or is aware of the condition of those who die due to non-availability of<br />

organs. There aren't proper awareness programs that can draw the attention of the people.<br />

Even though the situation is better than what it was 10 years ago, it still has not reached the<br />

optimal level.<br />

Even for those who are willing to donate organs, do not know how to do it. They don't know<br />

how to pledge. The efforts by NGOs such as Donate Life has been helpful but more support<br />

needs to be extended to such NGOs.<br />

LACK OF PUBLIC-SPIRIT<br />

Out of the 100% of the Indian population, barely 10% think about the public good and indulge<br />

into causes of public welfare. The idea of charity is limited only till donating money in India.<br />

Donating organs is a far-fetched reality for most.<br />

LACK OF TRAINING PROGRAMMES<br />

Like doctors and nurses need to be trained before they take up a profession, those who<br />

transport organs and oversee the entire process should also be trained. The presence of<br />

proper training programmers could facilitate the process of organ donation and make it<br />

smoother and swifter.<br />

INCREASING POPULATION, DECREASING HEALTH<br />

With the increasing population in India's metro cities (where most of the registered hospitals<br />

are located), there is an ever-increasing traffic that is getting worse day after day.<br />

Transporting organs through this traffic is a huge challenge. Even creating of a green corridor<br />

might not be possible in a bottle-neck traffic route, during the peak hours.<br />

Also, with the high-stress levels and unhealthy lifestyles that lead to various health<br />

complications, the number of people who undergo organ failure are increasing which leads to<br />

a longer, waiting list. But on the other hand, the number of people who are willing to donate<br />

organs are not increasing.<br />

34 35


WHY YOU SHOULD <strong>DONATE</strong> ORGANS<br />

‘Anyone Can Be An Organ Donor’<br />

Because you can!<br />

“Be the change that you wish to see in the world.”<br />

- Mahatma Gandhi<br />

The very first reason as to why you should donate organs is simply because you can. Your<br />

organs are of no use to you after you pass away. While they might change the life of the<br />

recipient to a complete 360 degrees.<br />

Donate simply because you can. Not all good things need a reason.<br />

Heaven doesn’t need your organs, Earth does<br />

Your organs can be a life-changing for a person who is fighting with death. You won't need<br />

your organs in heaven but there are many who would live with your organs on Earth.<br />

You wouldn’t be living, but will still be alive<br />

To keep living in someone else, even after you have died.<br />

“If you want to touch the past, touch a rock. If you want to touch the present, touch a<br />

flower. If you want to touch the future, touch a life.”<br />

- Unknown<br />

Immortality is a collective wish for humankind. Now it is possible. Donate your organs and<br />

live in someone's else' body. How beautiful would it be to be useful to someone even when<br />

you are not in this world anymore?<br />

All religions support the noble cause of organ donation.<br />

“It's not how much we give but how much love we put into giving.”<br />

- Mother Teresa<br />

There is no religion in the world that does not support the cause of helping others. The<br />

importance of helping and sacrificing is emphasized in every religion. This is the greatest<br />

sacrifice you can make.<br />

For instance, the Bhagavad Gita, in Chapter 3, Verse 16, it is written :<br />

‘those who do not accept their responsibility in the cycle of sacrifice established by the<br />

Vedas are sinful. They live only for the delight of their senses; indeed their lives are in vain'.<br />

Choosing quality life over quantity life<br />

“We make a living by what we get. We make a life by what we give.”<br />

- Winston S. Churchill<br />

By donating an organ to someone who is suffering from organ failure, you are not only<br />

freeing them from pain but are also helping them live a quality life. People with kidney<br />

failures have to constantly be on dialysis which leads to quantity life that is filled with pain<br />

and struggles. As soon as the person undergoes a kidney transplant, their life is renewed<br />

with new energy and they begin living a quality life.<br />

Your once choice of helping by donating your organs carries a much bigger weight than you<br />

can imagine.<br />

India needs it - thousands of people die only while waiting.<br />

“It is good to be blessed. It’s better to be a blessing”<br />

- Unknown<br />

No one should die a death while waiting for an organ to be donated that would match their<br />

body's parameters. This kind of death is very drastic. The basic humanity in a person will<br />

make them pledge their organs for donation because India needs to have a higher ODR.<br />

Thousands of people die every year because they do not get an organ in time. A country is<br />

made by its people and the concern they show towards each other.<br />

Don’t wait for someone close to you to die to realise the importance<br />

“What counts in life is not the mere fact that we have lived. It is what difference we have<br />

made to the lives of others that will determine the significance of the life we lead.”<br />

- Nelson Mandela<br />

There are various precedents set that show that we realise the threat or importance of<br />

something only and only after it happens to someone who is close to us. We refuse to<br />

acknowledge it until then, we don't even care.<br />

Don't wait to face the grotesque reality after someone close to faces this issue. It will be too<br />

late then. Pledge your organs today.<br />

36 37


Give a priceless gift<br />

“Plant flowers in others’ gardens and your life becomes a bouquet!”<br />

- Unknown<br />

Can there be a better gift than the gift of life? You not only give a gift to the person who would<br />

receive your organs, but you also give a gift to their family, friends and everyone who is<br />

fortunate to have them in their life. Have you ever thought that what would happen if the<br />

person who needs an organ to survive would be the sole bread-winner of the family? What<br />

after him? What will his/her family do? Think about it.<br />

The chance of being God-like<br />

“The true meaning of life is to plant trees, under whose shade you do not expect to sit.”<br />

- Nelson Henderson<br />

YOU WILL DEFINITELY BRING<br />

ABOUT A CHANGE IN THE WORLD.<br />

Out of the total number of organs donated in the world,<br />

34% comes from Spain, 26% comes from USA,<br />

15% comes from Sweden,<br />

13% comes from U.K and only 0.5% comes from India.<br />

Since our childhood, we have been hearing that life and death is in the hands of God. We can<br />

not decide when to be born and when to die. But in the case of organ donation, you can be<br />

like a God for a person who would have otherwise died, without your organs.<br />

Imagine the joy and the gratitude that your family would feel after your organs help save a<br />

life!<br />

Save upto 8 lives!<br />

“The great use of life is to spend it for something that outlasts it.”<br />

- William James<br />

The organs donated by one person can save the lives of 7-8 people! That is 8 times the joy and<br />

8 new lives! If every brain-dead person donates their organs, the problem of organ scarcity<br />

will be solved to a very large extent. The smile of the faces of those 8 people will be worth a<br />

lot more than you would have earned in your lifetime.<br />

Be a light for others to follow - bring about change.<br />

“Thousands of candles can be lighted from a single candle, and the life of the candle will not<br />

be shortened. Happiness never decreases by being shared.”<br />

- Buddha<br />

How many times in our lives have we heard about people who have made history simply by<br />

being leaders? You have the chance to lead your own organ donation revolution. Tell your<br />

family and friends and form a chain. You will definitely bring about a change in the world.<br />

Out of the total number of organs donated in the world, 34% comes from Spain, 26% comes<br />

from USA, 15% comes from Sweden, 13% comes from U.K and only 0.5% comes from India.<br />

35<br />

30<br />

25<br />

20<br />

15<br />

10<br />

5<br />

0<br />

Spain<br />

USA Sweden India<br />

38 39


ROLE OF <strong>DONATE</strong> <strong>LIFE</strong><br />

‘Someone, somewhere is always in need of help’<br />

Donate Life with the support from hospitals, doctors, Surat civil hospital, Surat police<br />

department, Surat Airport Authority, Surat Municipal Corporation, press and media and our<br />

volunteers has made an impact in the lives of many souls, giving them a new lease of life.<br />

In 2017, Surat achieved a new milestone by donating the 62 kidney in one year. Surat was able to<br />

give a new lease of life to 127 persons across the country by transplantation of 9 heart, 52 kidney,<br />

28 liver, 2 pancreas and 38 eyes was done through the efforts of Donate Life.<br />

Donate Life has and is doing wide-range of efforts to spread awareness about organ donation<br />

and in making the process smoother. This is what we do:<br />

Donate Life bears medical expenses for:<br />

Keeping brain-dead patient in good condition before Cadaver Organ Donation can take place.<br />

We ensure that the blood pressure of the patient is maintained.<br />

Different tests such as RFT, LFT, 2DECO and angiography to know quality of the organs.<br />

Transportation expenses of cadaver donor’s dead body from one city to anywhere in India.<br />

Education expense of children of cadaver donor in cases where the donor was the only earning<br />

member of the family.<br />

We create 360-degree awareness through:<br />

Organising talk shows in schools & colleges<br />

Conducting seminars & exhibitions to create more awareness<br />

Stage street plays to attract public attention<br />

Spreading awareness during various festivals throughout the year<br />

Walkathons for the cause of organ donation<br />

We request various spiritual leaders to help spread awareness about organ donation to their<br />

followers.<br />

We use mediums of radio, television and all kinds of media to promote awareness for the noble<br />

cause of organ donation<br />

We have educated more than 9 lakh people about cadaver organ donation.<br />

We play the role of a bridge between organ donor and recipient.<br />

We do counselling of brain-dead patient’s family and request them to<br />

understand the importance of organ donation.<br />

Also, we network with organ procuring organisations in Gujarat.<br />

(IKDRC-Ahmedabad, ROTTO(Regional Organ & Tissue Transplant Organisation -<br />

Mumbai & NOTTO (National Organ & Tissue Transplant Organisation).<br />

Donate Life felicitates the organ donors’ family members through the hands of<br />

spiritual leaders and dignitaries.<br />

In Gujarat we are the pioneers for the following:<br />

The first ever intercity Cadaver Kidney Transfer and Transplant from Surat to IKDRC,<br />

Ahmedabad in January, 2006.<br />

The first ever interstate Cadaver Liver transfer and transplant from Surat, Gujarat to<br />

Hyderabad, Andhra Pradesh was done in February, 2006.<br />

The first ever Inter State Heart transfer and transplant in Western India was done from Surat,<br />

Gujarat to Mumbai, Maharashtra in Fortis Hospital in December, 2015.<br />

The first ever inter state heart transfer and transplant was done from Surat, Gujarat to<br />

Chennai, Tamil Nadu’s Fortis Malhar Hospital in March 2017 and Indore, Madhya Pradesh’s CHL<br />

Hospital in August 2017.<br />

Also :<br />

The first ever foreigner Heart Transplant in Western India was done from Surat, Gujarat to<br />

Mumbai, Maharashtra in Fortis Hospital in April, 2017.<br />

The first ever Heart Transfer from South Gujarat and Transplant in CIMS Hospital, Ahmedabad<br />

was done from Surat in June, 2017.<br />

First time in Gujarat, bones were procured from brain dead patients through the initiative of<br />

Donate Life.<br />

Till December 2017, 45% Cadaveric kidney and liver transplant in Institute of Kidney Disease<br />

and Research Center (IKDRC) Ahmedabad, Gujarat and 20% Heart Transplant in Fortis<br />

Hospital, Mumbai is done by persuasion and procurement of Cadaver Organ Donation by<br />

Donate Life. Also, out of the four heart transplants that have taken place at Ahmedabad's<br />

CIMS hospital, two have been donated from Surat through Donate Life.<br />

40 41


WHY DO WE DO SUCH ACTIVITIES?<br />

There is no one to bridge the gap between organ donors and organ transplant institute as no one<br />

shows interest. Hospitals, Trauma Centres and Transplantation Institutes are not interested to<br />

play an active role as they might be perceived as interested parties. Also, due to the trauma and<br />

also due to lack of awareness the family members of the brain-dead patient don’t know and think<br />

about organ donation.<br />

This is the point of time when Donate Life steps in and explains the importance to the family<br />

members of the patients and how important it is to donate the person's organs. Once we convince<br />

them, the matter is handed over to the transplantation institute. We assist in all kinds of help that<br />

is needed to successfully conduct organ transplantation and spread smiles on the face of many.<br />

Donate Life also takes the responsibility of the education of the children of brain-dead patients<br />

who belong to economically weaker sections of the society. Also, Donate Life does not accept any<br />

kind of financial donation from the families of those who are the recipients of organs.<br />

TILL DATE WE HAVE GIVEN A NEW LEASE OF <strong>LIFE</strong> TO MORE THAN<br />

543 PEOPLE ACROSS INDIA & THE GLOBE<br />

Years<br />

2006<br />

2007<br />

2008<br />

2009<br />

2010<br />

2011<br />

2012<br />

2013<br />

2014<br />

2015<br />

2016<br />

Till 21st<br />

Dec-2017<br />

Total<br />

No of<br />

Cadaver<br />

7<br />

5<br />

10<br />

6<br />

11<br />

6<br />

2<br />

8<br />

6<br />

17<br />

27<br />

31<br />

136<br />

Cadaver<br />

Kidney<br />

Donation<br />

14<br />

10<br />

20<br />

12<br />

22<br />

12<br />

4<br />

16<br />

12<br />

34<br />

54<br />

Cadaver<br />

Kidney<br />

Transplanted<br />

in Persons<br />

13<br />

9<br />

18<br />

10<br />

20<br />

11<br />

4<br />

14<br />

11<br />

25<br />

47<br />

52<br />

234<br />

Cadaver<br />

Liver<br />

Donation<br />

2<br />

0<br />

4<br />

6<br />

1<br />

4<br />

2<br />

5<br />

6<br />

16<br />

27<br />

Cadaver<br />

Liver<br />

Transplanted<br />

in Persons<br />

2<br />

0<br />

4<br />

6<br />

1<br />

4<br />

2<br />

5<br />

6<br />

12<br />

24<br />

28<br />

94<br />

Pancreases<br />

Transplant<br />

Heart<br />

Transplant<br />

62<br />

272<br />

29<br />

102<br />

2<br />

6<br />

9<br />

16<br />

Which has given New Life & Vision to 543 persons across the country & globe.<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

3<br />

0<br />

0<br />

1<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

1<br />

6<br />

Cornea<br />

14<br />

10<br />

16<br />

2<br />

8<br />

8<br />

4<br />

16<br />

10<br />

24<br />

46<br />

38<br />

196<br />

Bones<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

0<br />

4<br />

0<br />

4<br />

We thank the following for lending us support in our noble cause:<br />

- The donors’ families who have believed in our motto ‘let’s live even after death through organ<br />

donation’<br />

- The doctors and hospitals who have co-operated and understood the need for organ donation<br />

- For the support from Government Medical College, Nursing Association<br />

- Support from Surat Municipal Corporation for undertaking the expenses for the transfer of dead<br />

bodies, which was borne by us before<br />

- Support from the Surat City Police for green corridor notification & for letter from the<br />

Commissioner Of Police of Surat that allows us to carry out our work hassle-free and support from<br />

Airport Authority Of Surat for for providing night landing and take-off facilities<br />

- Support from various media and news outlets for supporting our cause of organ donation<br />

- Support from the volunteers of Donate Life who made this possible<br />

Donate Life’s Future Plans:<br />

To set up Skin, Bone & Tissue Bank which will benefit:<br />

A. Patients suffering from 80% burning of skin<br />

B. Patient suffering from cancer & major fracture<br />

C. Small children suffering from problem of heart valves


FIRST KIDNEY, LIVER AND HEART<br />

DONOR FROM SURAT<br />

Donate Life has helped many people in the past. Till date, we have helped over 543 people across the<br />

globe.<br />

The most important people in the process of organ donation are the donors. They are the unsung<br />

heroes. Here are some donors who have made organ donation a reality.<br />

We honour them.<br />

(These are only a few names - there are a lot many donors, about whom you can read on Donate<br />

Life’s website).<br />

LATE MR. JAGDISHBHAI SHAH - first kidney donor from Surat<br />

On January 12, 2006, Mr. Mandlewala received a call from Surat's Ashaktaashram Hospital. He rushed<br />

to the hospital without wasting even a single moment. The hospital's neurosurgeon, Dr.Ashok Patel<br />

had declared a patient named Jagdishbhai Shah as brain-dead. Mr. Nilesh Mandlewala then<br />

contacted Dr. Vatsa Patel who knew about the process of organ donation.<br />

Dr. Vatsa Patel contacted Dr. H.L.Trivedi who then immediately sent Dr. Pranjal Modi and his team to<br />

collect Jagdishbhai's kidney. This was the very first time in Gujarat that an inter-city kidney donation<br />

from Surat to Ahmedabad had happened. Jagdishbhai's kidney gave a new lease of life to two people<br />

- one was from Rajkot and another in Ahmedabad.<br />

Jagdishbhai Shah, served as an inspiration for Mr. Nilesh Mandlewala as this was the very first<br />

success story that happened due to his efforts. Jagdishbhai's family also played a great role in giving<br />

consent and placing trust in him.<br />

LATE MR. RAJU GOHIL - first liver and kidney donor from Surat<br />

On February 8, 2006, Mr. Mandlewala received a call from Surat's SMIMER hospital where a<br />

23-year-old Raju Gohil was declared brain-dead by the doctor. Mr. Mandlewala convinced Raju's<br />

father, Chimanbhai Gohil to donate his kidney and his father agreed. That is when gastroenterologist,<br />

Dr. Rajiv Mehta called, Mr. Mandlewala and said that if he could convince Raju's father to donate his<br />

liver as well then his patient will get a new lease of life. When, Mr. Mandlewala spoke to Raju's father,<br />

the response that Chimanbhai gave was heart-wrenching. Chimanbhai said, "Donate all organs of<br />

my son that can help someone. I have no problem if someone else gets a new lease of life because<br />

of his organs. I will think that my son is still alive in someone else."<br />

While Raju's kidney and liver were donated, there was no facility in Gujarat to transplant a liver. That<br />

is when a team of doctors lead by Dr. Subbarao of Global Hospital, in Hyderabad, came down and<br />

collected Raju's liver and also transplanted it in another patient who was in dire need of it. This was<br />

the first ever inter-state liver donation from Surat, Gujarat.<br />

LATE MR. JAGDISH PATEL - first heart, kidney and liver donor from Surat<br />

This was in 2015, when Mr. Jagdish Patel's heart was transplanted into the body of Mr. Rajan Desai in<br />

Mumbai. An employee for 52 years of Indian Oil Corporation Ltd. working in Mumbai, never thought<br />

he will get a new heart in his body. This was the first ever inter-state (Surat to Mumbai) green<br />

corridor created for an organ transplant. Donate Life made it possible after the family members of<br />

Mr. Patel agreed to donate his organs. In only 1 hour and 39 minutes the heart was transferred from<br />

Mahavir Trauma Hospital, Surat to Fortis Hospital, Mulund, Mumbai and successfully transplanted.<br />

Chief Cardiac Surgeon Dr.Anvay Mule at Fortis Hospital, Mulund, Mumbai played a very important<br />

role in this. Mr. Patel's kidney and liver were received by Dr.Pranjal Modi from Institute of Kidney<br />

Diseases and Research Centre (IKDRC), Ahmedabad.<br />

LATE MASTER SOMNATH SHAH - first young donor from Surat & Western India too<br />

A 14-month-old Somnath Shah, slipped from the ladder while playing at home with his elder sister<br />

Kusum. Somnath belonged to Mubarakpur village in Siwan district of Bihar. His father Sunil had<br />

moved to Surat a few months back and was working as a supervisor in a power-loom factory in<br />

Udhna, Surat. His CT scan revealed brain haemorrhage and a fractured skull. He was declared brain<br />

dead at Surat's New Civil Hospital. The hospital authorities then contacted Donate Life. Donate Life<br />

counselled his parents to donate his organs and they agreed.<br />

His heart was transplanted into the body of a three-year-old Mumbai girl, Aradhya Mule. His kidneys<br />

helped a 15-year-old boy from Deesa in Banaskantha district.<br />

Somnath Shah became Western India’s youngest donor and still lives on in the bodies of others.<br />

LATE MISS DIZA GOLWALA - first youngest kidney & liver donor girl from Surat<br />

Diza Urvish Golwala, 3.5 years old girl was studying in playgroup at Presidency School in Surat. She<br />

had a convulsion after puking and she was admitted to Nikhil Children Hospital. There Diza fainted<br />

was transferred to Neo Plus I.C.U. She was put on the ventilator due to her inability to breathe. Then<br />

it was diagnosed that her small brain was damaged due to waterlogging. Few hours on the same day,<br />

she was declared brain-dead.<br />

President of Donate Life Mr. Nilesh Mandlewala about Diza's brain death. The team of Donate Life<br />

counselled Diza's family members about the importance of organ donation. On getting consent from<br />

Diza's family members, Mr. Nilesh Mandlewala contacted Dr. Pranjal Modi from Institute of Kidney<br />

Diseases and Research Centre (IKDRC), Ahmedabad to procure the donation of kidney and liver. Dr.<br />

Praful Shiroya from Lokdrashti Eye Bank accepted the donation of eyes.<br />

One of the kidneys received as donation was transplanted into Gokulesh Mohanbhai Odedara, a<br />

resident of Porbandar (Age: 8 years) and the other kidney was transplanted into Ritika Kamleshbhai<br />

Desai (Age: 6), whereas the liver donated by Diza was transplanted into Shrey Patel (Age: 5 years), a<br />

resident of Visnagar.<br />

44 45


LATE MR. NAVNEET CHAUDHARY - first cadaver donor from a government hospital in<br />

Surat<br />

Mr. Navneet Chaudhary met with an accident 29th May 2017 while he was returning to his home from<br />

Vankal to Lavet in the evening. He was transferred to P.P.Savani Hospital at Surat. He had a blood clot<br />

in the brain and thus was shifted to New Civil Hospital where he was declared brain dead.<br />

After Donate Life was contacted and the family members of Mr. Chaudhary were convinced, a team<br />

of doctors from Institute of Kidney & Diseases and Research Centre (IKDRC), Ahmedabad and CIMS<br />

hospital, Ahmedabad came to collect the organs.<br />

Due to the creation of a green corridor, the heart reached Ahmedabad's CIMS hospital in 80 minutes<br />

- covering a distance of 277kms. 23-year-old Kalpesh Jaysukhbhai Katrodia received the heart. Out<br />

of two donated kidneys, one was transplanted into Tilak Shah, age 14 living in Ahmedabad and<br />

another kidney was transplanted into Punit Jalan, age 31 living in Surat. The liver was transplanted<br />

into Valabhai Rathod, age 48 living in Morbi. The transplantation of both kidney and liver was done at<br />

IKDRC, Ahmedabad.<br />

LATE MR. DHANSUKH MITTHALBHAI PATEL - first bone donor from Gujarat<br />

58-year-old Mr. Dhansukh Patel, a resident of Dungri village, Mahuva taluka had been in an accident<br />

when a motorcycle hit him in the outskirts of Dungri Village on May 3, 2016. The doctors could not<br />

save him even after he was operated. His condition deteriorated and he passed away. He was first<br />

admitted to a hospital based in Bardoli and later taken to Asutosh Multi-speciality hospital in Surat.<br />

When Donate Life was contacted by the hospital authorities, his family members were convinced to<br />

donate his organs. Along with his kidney, eyes and liver, his thigh bones and his ribs were donated to<br />

Asutosh hospital's bone bank. His family members thought that even though they lost him, if his<br />

organs could give a better life to someone else, they would be happy.<br />

Mr. Dhansukh Patel became the very first bone donor of Gujarat and even after his death, continues<br />

to set an example for others to follow.<br />

46 47


FEELINGS OF ORGAN RECIPIENTS<br />

"I am extremely thankful to Donate Life. Because of this organisation that Sohelbhai<br />

could undergo a heart transplant. His life has changed and he is feeling very happy. I<br />

request the people to come forward to donate organs so many others like Sohelbhai<br />

may get a second birth. If we help someone, that help will come back to us someday<br />

when we need it. Donate Life under the leadership of Mr. Nilesh Mandlewala is a doing<br />

a great job, I am very grateful to them because without this organisation we would<br />

never know that a heart transplant was possible."<br />

- Family member of heart recipient Mr. Sohel Vohra<br />

"I was going through a lot of trouble, I used to vomit every day. I tried many hospitals<br />

but I couldn't get treated anywhere. Then the doctors at Fortis Hospital said that I<br />

would need a heart transplant. My mother cried a lot and called my father who said<br />

that now everything will happen through God’s wish. The first two hearts I got had<br />

some problems but then a boy gave me the gift of life and his heart was successfully<br />

transplanted into my body. I am going to be eternally grateful to him and his parents…I<br />

say thank you, thank you, thank you to him. My heart came from Surat via air and now<br />

I am able to walk - I even climbed up one floor! I take the blessings of Mr. Nilesh<br />

Mandlewala that he made this possible for me…thank you, thank you, thank you."<br />

- Mr. Rahul Karad, heart recipient<br />

48 49


"I was suffering since 2011…I used to drink only 1 litre of water for four years and had a<br />

lot of trouble walking. I am extremely grateful to Donate Life NGO and Mr. Nilesh<br />

Mandlewala and to Jagdishbhai Patel from Surat who donated his heart to me. I want<br />

to devote a lot of time for this cause of organ donation and I request other people to<br />

also donate their organs. This would not have been possible without the efforts of<br />

Donate Life. It is miracle! Now I am living a normal life."<br />

- Mr. Rajan Desai, heart recipient<br />

"My daughter got a new life because of a heart that came from Surat. She is now living<br />

a normal life. Donate Life is next to God for us…even if we wash their feet and drink<br />

the water, it will be less. Thank you so much, may God give them a lot of strength and<br />

make them successful in all their future endeavours."<br />

- Sharad Anturekar, heart recipient Ravina's father<br />

"I got to know about Donate Life and how the majority of organs were coming from<br />

Gujarat. I was following their awareness events for some time. Recently, my child got<br />

the heart of a 14-month old baby and I have no words to thank the donor's parents and<br />

Donate Life. They are God to me. I am speechless."<br />

- Yogesh Mule, heart recipient Aradhya Mule's father<br />

50 51


VIEWS OF DONOR S FAMILY & FRIENDS<br />

"We are happy that we donated the kidney of my sister-in-law because we can still feel she<br />

is alive as her organs are helping someone live. We feel that by donating her kidney we have<br />

done a good thing. I appeal to the society to donate more and more organs."<br />

- Mr. Ashok Dhola, donor's family member<br />

"I donated the organs of my wife…I thought that her organs are of no use to her now but they<br />

will help someone else. My wife's kidney changed the life of a 17-year-old girl. Organ<br />

donation is not a business, money is not taken or given by anyone. I trust Mr. Nilesh<br />

Mandlewala and it is because of that I think that we should all come forward to donate<br />

organs."<br />

- Mr. Barkat Vadsariya, donor's family member<br />

"We were convinced by Mr. Nilesh Mandlewala to donate organs and he was there with us<br />

for the entire night. If you don't donate organs, they will turn to ashes, it's better to donate<br />

and give someone a second birth."<br />

- Mr. Bhupenda Vatnala, donor's family member<br />

"Mr. Nilesh Mandlewala inspired and counselled me to donate the organs of my son. I felt<br />

that even though my son was going to heaven, his organs could make life better for those on<br />

Earth. I hope that every person joins the cause of organ donation to give a new life. I feel that<br />

the work that is done by Mr. Mandlewala and Donate Life is very deep and important."<br />

- Mr. Jashvant Patel, donor's family member<br />

"Mr. Nilesh Mandlewala counselled me to donate the organs of my father who was put on<br />

ventilator-support and declared brain-dead. I think that is a very noble thing where no<br />

expenses are incurred by the donor and recipient. I and my family are very happy after<br />

donating the organs of my father."<br />

- Mr. Ketul Taratiya, donor's family member<br />

"When we told our mother that our father was declared brain-dead and was put on<br />

ventilator-support, she showed courage and said that it was the last wish of our father that<br />

all of his organs should be donated. It is due to the efforts of Mr. Nilesh Mandlewala that it<br />

was made possible. Today we feel that our father is alive in this world, through someone else.<br />

I want to appeal to others to take the same path as my mother and create awareness about<br />

organ donation."<br />

- Mr. Ajay Vijay Shah, donor's family member<br />

"My friend had been an accident in Valsad and was shifted to Surat as there was a lack of<br />

neurosurgeon in Valsad. He was declared brain-dead. We obtained the consent of his wife for<br />

organ donation via mobile as his family members were not here. Donate Life also helped us<br />

to send the body of my friend back to his village. Mr. Nilesh Mandlewala was with us<br />

continuously and helped us go through every procedure. I request people to join initiatives<br />

like Donate Life for organ donation so that more people get a new life."<br />

- Mr. Subbarao, donor P.V. Ramkrishna Rao's friend<br />

52 53


VIEWS OF DIGNITARIES<br />

VIEWS OF DIGNITARIES<br />

"There is not a greater deed than the donation of an organ by one person<br />

which saving the lives of many others. This organisation has saved many<br />

lives so far. I have also told my family to donate my organs, when I pass away.<br />

You need a strong heart to donate and I congratulate Mr. Nilesh Mandlewala,<br />

the doctors in the hospitals and the brave organ donors along with their<br />

families for participating in this life-saving cause."<br />

- Mrs. Anandiben Patel, Former Chief Minister Of Gujarat<br />

"I am very much impressed after hearing about Donate Life and it's efforts. I got to<br />

know a lot of things for the first time and I appreciate the purity with which Mr.<br />

Nilesh Mandlewala and his team are working for the cause of organ donation.<br />

I am sure that this movement of Donate Life will bring positivity in the society."<br />

- Mr. Dharmendra Pradhan,<br />

Union Minister for Petroleum and Natural Gas<br />

"It is such a beautiful thing that when we won't be there in this world, even<br />

then our heart will beat in the body on someone else. We won't be living, but<br />

we will still be alive. Nileshbhai has helped people across the country and<br />

has become an inspiration - his role in this world is very valuable. All of us,<br />

Indians have seeds of compassion in our hearts but it is Nileshbhai who is<br />

helping those seeds grow into plants. It takes a lot of courage to go in front<br />

of the family who has just lost their loved one and ask them to donate organs<br />

- he has kept his respect second and the noble cause first. It is because of his<br />

unparalleled dedication that there is a smile on the faces of so many people<br />

in the country. We should join Nileshbhai in this initiative and make his<br />

initiative even more powerful. Many many congratulations to him and his<br />

team."<br />

- Param Pujya Didi Maa Sadhvi Ritambharaji<br />

"Donate Life is for the betterment of the future of the mankind, for giving the<br />

gift of life to people. The team of Donate Life are doing a godly act of giving a<br />

second life to the people on Earth. This is very big service to humanity. There<br />

is awareness about blood donation in India but not enough for organ<br />

donation due to a misunderstanding that if you donate your organs in this life,<br />

you wouldn't get the organ in your next birth. This is not the truth. Donate your<br />

organs, so even after you die, your heart can give life to someone else and<br />

your eyes can see through someone else. My best wishes to Donate Life and<br />

I hope that they continue their efforts in the future and keep serving people."<br />

"Nileshbhai has a very different thinking. He is working hard to help those<br />

who are dealing with organ failure and giving them a new lease of life - not<br />

just to the patient but to their entire family. My blessings are with Nileshbhai<br />

and wish that he lives very long. I also hope that he becomes a ray of hope for<br />

the entire society. I request everyone to create awareness about the noble<br />

cause of organ donation."<br />

- Param Pujya Swami Ambrishanandji<br />

- Yoga Guru, Baba Ramdev<br />

"Donate life has come forward to start a new initiative - an initiative that is<br />

here to fulfill Surat's needs. This need cannot be fulfilled only through money.<br />

If a person has crores of rupees but does not get an organ donation on time,<br />

then enjoying a good life would not be possible for him - the support for many<br />

families will get snatched.<br />

Mr. Nilesh Mandlewala, is working selflessly - he is not even a medical<br />

student and this is not his subject but even then he has helped save lives and<br />

families from going through loss and pain. It is because of him that many<br />

people have got a new hope of life. I wish all the very best for the future<br />

endeavours of Donate Life."<br />

- C.R. Paatil, Member Of Parliament<br />

"Mr. Nilesh Mandlewala gave a new identity to Surat and made it an example<br />

for organ donation for the rest of the country. Today, in India, even if a person<br />

wants to donate his heart, there is a lack of a mechanism. It is because of<br />

people like him that the society and the country are functioning. Mr.<br />

Nileshbhai is doing a very good job and is a selfless role model for us. Many<br />

congratulations to him."<br />

- Dr. Subhash Chandra, Member of Parliament, Rajya Sabha<br />

and Chairman, Essel Group & ZEE<br />

"It is an angelic work what Mr. Nilesh Mandlewala and Donate Life are doing<br />

in the field of organ donation. They are saving the lives of people. We<br />

encourage and congratulate the entire team. We are ready to help the team<br />

in every way possible in the society and in Gujarat. Once again, I congratulate<br />

the entire team for how exemplary Surat has been for entire India."<br />

-Mr. Purnesh Modi, MLA, Surat-West Gujarat & Former<br />

President of BJP, Surat<br />

54 55


VIEWS OF DIGNITARIES<br />

VIEWS OF DIGNITARIES<br />

"There is a huge difference in living for yourself and living for others. Mr.<br />

Nilesh Mandlewala has taken up the hard work of living for others by being a<br />

mediator between the donors and the recipients. It is not easy to convince<br />

the family members of a patient to donate organs; I think when Mr.<br />

Mandlewala would be going to create awareness among people, many would<br />

be looking at him like he is their enemy. How difficult would it be for him to<br />

continue his work in this noble cause in spite of all the hurdles. He is<br />

spending a lot of personal resources for a very long time for this cause - and<br />

I hope that he gets all the support he needs. My best wishes are with him and<br />

his organisation."<br />

- Mahendra Patel IAS, Ex Collector Of Surat<br />

"First, Mr. Nilesh Mandlewala used to create awareness about organ<br />

donation alone but now he has set up a trust named Donate Life to help<br />

people. It is a very important and time-essential work to ensure that<br />

the organs are transferred from the donor to the recipient, which Mr.<br />

Mandlewala is doing very well. Mr. Mandlewala told me that we lack<br />

awareness in India as compared to other countries in the world and<br />

more than 2 lakh people are awaiting a kidney transplant. I urge you to<br />

spread awareness and donate organs. I give my best wishes to the<br />

entire team."<br />

- Mr. Ashish Bhatia, IPS, current Add. DG (CID), Gandhinagar<br />

and former Commissioner Of Police, Surat<br />

"To be of help to someone else is considered to be the most important<br />

value in our ancient religious texts. It is a huge thing to give the gift of<br />

life to someone and when Mr. Nilesh Mandlewala & his teams are<br />

working in that direction, selflessly, that increases the responsibility of<br />

all of us towards the cause. When a man gets tired, he just needs a<br />

support, a ray of hope - that is what we have to give to the world. This<br />

initiative is the need of the day and we are all with Mr. Mandlewala and<br />

his team in this initiative. I am proud to say that it is because of the<br />

actions of people like him that we are able to maintain a balance in this<br />

world. My heartfelt congratulations to him and his team."<br />

-Daxesh Thakkar, Former Vice-Chancellor Of Veer Narmad<br />

South Gujarat University<br />

"I want to appreciate Mr. Nilesh Mandlewala's efforts for his hard work<br />

without expecting anything in return. He is giving a new hope to those<br />

who have given up. He patiently explains the need for organ donation to<br />

the family members of a brain-dead patient and ensures that the<br />

complete process of organ donation is done smoothly, whether it is day<br />

or night without getting angry or irritated by all the obstacles he has to<br />

go through. No matter how much appreciation we give to this initiative,<br />

it will be less."<br />

- Mrs. Gunjan Mishra, Chief Income Tax Commissioner,<br />

Surat (2013-14)<br />

"It is a very big noble cause what Donate Life is doing. Even today, organ<br />

donation is a new thing in our country. We all should come forward to<br />

contribute to it. The message you are sending will spread far and wide<br />

and the society at large will benefit."<br />

- Mr. V.M.Pargi, IPS, Former Special Commissioner Of Police<br />

(Traffic & Crime), Surat<br />

"For the first time I saw the enthusiasm in people to support the cause<br />

of organ donation and this has been made possible by Mr. Nilesh<br />

Mandlewala and his team. There is a huge gap between donors and<br />

recipient and we are unable to much about it. If Mr. Mandlewala in<br />

Surat can bridge the gap, why can't we do it across the country? I want<br />

to thank Mr. Mandlewala for doing such commendable work."<br />

- Dr. Vimal Bhandari, Director Of NOTTO<br />

56 57


VIEWS OF DIGNITARIES<br />

VIEWS OF DIGNITARIES<br />

"Mr. Nilesh Mandlewala, who is himself an industrialist, took interest in<br />

the topic of organ donation which was completely unknown to him. He<br />

began his efforts in 2004 and later set up a trust in 2014 to create<br />

awareness in the society. I urge you to pledge your organs, till you are<br />

alive. Due to Mr. Mandlewala's efforts, even the government is<br />

understanding the importance of organ donation and creating green<br />

corridors to transfer organs in time. He has spread awareness through<br />

various mediums like street programmes, celebrity programmes,<br />

taught kids about organ donation etc. Such NGOs are needed today<br />

because they are selfless. He spends the whole night and stands by the<br />

donor's family in every single procedure until the cremation. He is a<br />

strong pillar of support and guidance for the families of the donors and<br />

his efforts eliminate fear from the minds of the people. Donate Life's<br />

contribution is huge and I wish that Donate Life spreads their noble<br />

initiative not just in Surat but across the country. My best wishes with<br />

the organisation."<br />

- Dr. Pranjal Modi, Professor & HOD -Transplantation<br />

and Urology, IKDRC, Ahmedabad<br />

"We have been inspired by Mr. Nilesh Mandlewala and Donate Life. 25%<br />

of our donors have come from Surat and because of their efforts. I have<br />

no words to appreciate the dedication and efforts that have been done<br />

by Mr. Mandlewala. He helps the family of the organ donors in distress<br />

and is always there for them and helps the family even for cremation.<br />

Mr.Mandlewala also extends financial help to the families who are very<br />

poor. Organisations like Donate Life are must in today's world."<br />

"Mr. Nilesh Mandlewala has sent organs not just in cities of Gujarat but<br />

in various places across India. Donate Life is setting an example for us<br />

to follow. The more the activities of people like Mr. Mandlewala<br />

increases, the more will be the awareness. It is an appeal to all of you<br />

to join in the crusade to create awareness."<br />

- Dr. Dhaval Naik, Chief Cardiac Surgeon & Heart-Transplant<br />

Surgeon, CIMS Hospital, Ahmedabad<br />

- Dr. Anvay Mulay, Chief Cardiac Surgeon,<br />

Fortis Hospital, Mumbai<br />

"Since many years we have seen the dedication of Mr. Nilesh<br />

Mandlewala who makes himself available 24x7 for the counselling of<br />

the family members of a brain-dead patient. Now with Donate Life,<br />

trust, this initiative will make a much larger impact. I promise my<br />

support to Donate Life on behalf of all neurologists for this noble cause<br />

of organ donation."<br />

"2006 was when I met Mr. Nilesh Mandlewala. We went to Pardi<br />

hospital at 2 a.m in the night to declare a patient brain-dead. We have<br />

gone to various places in Gujarat to declare a person brain-dead,<br />

receiving support from all doctors for the cause of organ donation. I<br />

want to request everyone that whenever you get to know about a<br />

brain-dead patient near you, then please take a step forward to create<br />

awareness about organ donation and contact Donate Life. The time has<br />

come."<br />

- Neurosurgeon, Dr. Ashok Patel<br />

- Neurophysician, Dr. Anirudha Apte<br />

"Mr. Nilesh Mandlewala has been working as a one-man army.<br />

Though he is a non-medico but his knowledge about organ donation<br />

is exemplary. He does effective counselling of the family members<br />

of the organ donor and he ensures that proper harvesting is done.<br />

Irrespective of their caste, creed or sex, organs have been received<br />

by recipients and a new lease of life is given to them. I am sure that<br />

whatever Mr. Nilesh Mandlewala has done is extraordinary and it<br />

requires special guts and special untiring efforts. His efforts should<br />

be appreciated. This is a service to mankind."<br />

- Mr. Kamlesh Yagnik, President, The Southern Gujarat<br />

Chamber Of Commerce & Industry (2013-2014)<br />

58 59


AWARDS AND APPRECIATION<br />

AWARDS AND APPRECIATION<br />

When our Prime Minister Shri Narendra Modi was<br />

the Chief Minister of Gujarat, he had in a letter<br />

addressed to Donate Life’s founder, Mr. Nilesh<br />

Mandlewala conveyed his heartfelt blessings for<br />

the noble work of saving other’s lives.<br />

Ex- Chief Minister of Gujarat, Smt.<br />

Anandiben Patel had also extended her<br />

support and appreciation for Donate Life.<br />

Honored with Lifetime Achievement<br />

Award at the hands of Mayor Joe Hogset<br />

on 14th August, 2016 in Indianapolis, USA.<br />

Chief Minister of Gujarat, Shri Vijay Rupani,<br />

felicitated Mr. Nilesh Mandlewala at CIMS<br />

hospital, Ahmedabad in January 2018 for creating<br />

awareness for the noble cause of organ donation.<br />

Mr. Nilesh Mandlewala was felicitated by<br />

the Governor Of Gujarat, Shri Navalkishore<br />

Sharma in June 2008 for her contribution to<br />

the cause of organ donation.<br />

Honored by Shri Pranab Mukherjee for<br />

meritorious services to The Southern<br />

Gujarat Chamber of Commerce & Industry<br />

for 2009-10.<br />

60 61


AWARDS AND APPRECIATION<br />

FAQs<br />

Here are some frequently asked questions about organ donation that you will find<br />

helpful to study.<br />

Who can donate?<br />

Anyone can donate. Which organs can be donated depends on the medical<br />

condition of the patient.<br />

Is there disfigurement during organ donation?<br />

The donor's body is not disfigured. Only a small-cut is made like during a surgery.<br />

Honored with ‘Maharishi Dadhichee Sewa Sanman’ at IKDRC,<br />

Ahmedabad through the hands of Swami Sacchidanandji in<br />

2009. Also, felicitated by the Honorable Mayor and Collector of<br />

Surat city for receiving the award in 2009.<br />

Mr. Mandlewala was also recognised in Dr. Subhash Chandra<br />

show that airs on Zee News, for giving Surat a new identity as<br />

the organ donor city. He was interviewed by Dr. Chandra about<br />

his efforts and how he has dedicated his entire life to this noble<br />

cause.<br />

Mr. Mandlewala has been<br />

felicitated on the 7th Organ<br />

Donation Day in New Delhi.<br />

Mr. Nilesh Mandlewala was<br />

featured in popular Gujarat<br />

magazine Chitralekha’s 67<br />

years special issue as one<br />

of the 51 prides of Gujarat<br />

for his contribution in the<br />

field of organ donation.<br />

How can I donate organs?<br />

You can pledge to donate your organs in your lifetime and also inform your family<br />

members about the decision of organ donation. You can also, in writing state your<br />

wish to donate your organs.<br />

Who is a brain-dead patient?<br />

A brain-dead person is a person whose brain-stem is no longer functioning and<br />

where there is no scope for recovery. Brain-dead patients are kept on the support<br />

of a ventilator.<br />

Brain stem is an important part of the brain that sustains life. A brain stem dead<br />

person is an unconscious, dependent patient, who cannot breathe on his own and<br />

is breathing through a ventilator, even though one can feel his pulse, blood<br />

pressure and other sign of life. The lack of functioning of the brain stem is a sign of<br />

death and the rest of the body will eventually stop functioning even if the ventilator<br />

is continued.<br />

It is different between coma patients and brain dead individual. The coma patient is<br />

not dead whereas brain stem death is the irreversible stage beyond coma, as the<br />

person can either regain consciousness nor breathing capability. The heart can<br />

continue to function due to a ventilator for a few hours to few days & it is during this<br />

period that the organs can be retrieved after obtaining consent from the close<br />

relatives. Organs are never taken at the cost of donor's life.<br />

62 63


What is the law that governs organ donation?<br />

The Transplantation of Human Organs Act, 1994 and it's future amendments - with<br />

last being in 2011 along with The Transplantation of Human Organs Rules, 1995 and<br />

it's future amendments, govern the organ transplantations that happen in India.<br />

Do I have to pay to get an organ transplanted?<br />

There are no fees for organ transplantation.<br />

What is the central authority for organ donation in India?<br />

NOTTO (National Organ & Tissue Transplant Organisation) is the central authority<br />

for organ donation in India.<br />

Are organs sold?<br />

Selling and buying of organs in strictly prohibited in India. It is a punishable offence<br />

for which one can be sent to up to 10 years imprisonment and be asked to pay a fine<br />

of up to ₹20lakhs (was 5 years and ₹10,000 when the Act commenced). Also, under<br />

Section 370 of The Indian Penal Code, a person who does force removal or organs<br />

(without consent) is liable to be sentenced to jail for 7-10 years and a fine.<br />

What organs can be donated?<br />

Life-saving organs such as a heart, kidney, pancreas, lungs, liver and intestines can<br />

be donated. Tissues, such as bones, ligaments and tendons, are often needed, so<br />

they can also be donated. Corneas, heart valves and skin may also be donated. For<br />

tissues, a bank can be created.<br />

How are organs stored?<br />

Each organ is flushed free of blood after removal from the patient's body with a<br />

specially prepared ice-cold preservation solution that contains electrolytes and<br />

nutrients. The organs are then placed in sterile containers, packaged in wet ice, and<br />

transported to the recipient's transplant centre.<br />

Is donating organs prohibited by any religion?<br />

All religions support organ donations as it a kind of help that we extend to our<br />

fellow humans. Charity is not prohibited by any religion.<br />

Is it true that organ donors do not get the same medical care as others?<br />

No, this is a myth. All patients are given the same level of medical treatment, organ<br />

donor or not.<br />

How long after death can organs be donated?<br />

These are the times for which different organs can stay out of the human body:<br />

Lung - 4 to 6 hours<br />

Heart - 4 to 6 hours<br />

Liver - 24 hours<br />

Pancreas - 24 hours<br />

Kidney - 72 hours<br />

Cornea - 14days<br />

Bones - 5 years<br />

Skin - 5 years<br />

Heart Valves - 10 years<br />

Whose consent is taken after my death to get my organs donated?<br />

Your next of kin or family is asked to give consent to donate your organs. This is a<br />

norm in India.<br />

Who will receive the donated organs?<br />

There are a few steps for the receiving of organs that are as below:<br />

Name of the recipient has to be registered as a cadaver organ receiver in organ<br />

transplant institute.<br />

There is a committee formed who takes appropriate decision in the selection of the<br />

recipient based on a few criteria such as age, employed or unemployed, time since<br />

dialysis commenced, family donor, any previous transplants etc.<br />

The organs will be transplanted into those patients who need them most urgently.<br />

Recipient selection is based on medical criteria like blood group, the result of<br />

cross-matching and body size. Social and financial status is never a criterion in<br />

64 65


selecting recipients.<br />

Can someone jump the waiting list if they are influential?<br />

No, this is strictly prohibited in India. The criteria are pre-defined and it depends<br />

upon the date of registration and medical condition.<br />

What is directed donation?<br />

Directed donation is when the family members of a cadaver donor request that the<br />

organs are donated to a specific person in the family. However the decision to do<br />

that or not lies with the Authorisation Committee set up under the THOA, 1994.<br />

Are all hospitals equipped to carry out organ transplantation?<br />

No, only those hospitals that have registered as per the law laid down by the THOA<br />

can carry out the procedure of organ transplantation. Removal of organs without<br />

authority attracts a penalty that may lead to permanent de-registration of the<br />

hospital.<br />

Who certifies a person as brain-dead?<br />

As per the THOA, the following can declare a person as brain-dead:<br />

i) the registered medical practitioner in charge of the hospital in which brain-stem<br />

death has occurred;<br />

(ii) an independent registered medical practitioner, being a specialist, to be<br />

nominated by the registered medical practitioner specified in clause<br />

(i), from the panel of names approved by the Appropriate authority;<br />

(iii) a neurologist or a neurosurgeon to be nominated by the registered medical<br />

practitioner specified in clause<br />

(i), from the panel of names approved by the Appropriate Authority; and<br />

(iv) the registered medical practitioner treating the person whose brain-stem<br />

death has occurred.<br />

Is there an age limit for donating your organs?<br />

No, there is no age limit. The organs, at the time of retrieval are tested their for<br />

health. However, those who are under 18 years of age, would need the consent of<br />

their parent or guardian to donate their organs.<br />

Can a person of unsound mind donate organs?<br />

Yes. But in this case as well, the consent of the person's parents or guardians<br />

would be required.<br />

Can I be a donor if I have been rejected to donate blood?<br />

Yes. There may be specific reasons why it has not been possible to donate blood,<br />

such as having anaemia or had a blood transfusion or temporary health condition.<br />

Sometimes a simple thing like a cold or medication that you are taking can prevent<br />

you from donating blood.<br />

What are the two kinds of waiting lists?<br />

According to NOTTO, there are two types of waiting list; one is an urgent waiting list<br />

and another one is a regular waiting list. Urgent listing of patients for cadaver<br />

organ transplant is primarily based on medical criteria, i.e. patient needs organ on<br />

urgent basis otherwise he/she may not survive.<br />

The regular waiting list is also based on medical criteria and these criteria are<br />

different for different organs. Like for kidney transplant, main criteria is time spent<br />

on regular dialysis. Similarly, for other organs, criteria are different.<br />

Can one their status on the waiting list for organ transplantation?<br />

Yes, that system of the waiting list is very transparent. You can know your status.<br />

66 67


Can organs be removed after death, at home?<br />

No, this is not possible. Only hospitals are equipped to handle organ transplants in<br />

a faster and proper way. Time plays a very important role in the process of organ<br />

transplantation.<br />

What is National Registry?<br />

According to NOTTO website, the National Registry is:<br />

I - Organ Transplant Registry:<br />

The Organ Transplant Registry shall include demographic data about the patient<br />

waiting for transplant (Organ/hospital wise waiting list), donor (Living Donor<br />

including Related Donor, Other than Near Related Donor, Swap Donors and<br />

Deceased Donor), hospitals, follow up details of recipient and donor etc., and the<br />

data shall be collected from all retrieval and transplant centers.<br />

Data collection may preferably be through a web-based interface or paper<br />

submission and the information shall be maintained both specific organ wise and<br />

also in consolidated formats.<br />

The hospital or Institution shall update its website regularly in respect of the total<br />

number of the transplantations done in that hospital or institution along with a<br />

reasonable detail of each transplant and the same data should be accessible for<br />

compilation, analysis and further use by authorised persons of respective State<br />

Governments and Central Government.<br />

II - Organ Donation Registry:<br />

The Organ Donation Registry shall include demographic information of donor (both<br />

living and deceased), hospital, height and weight, occupation, primary cause of<br />

death in case of deceased donor, associated medical illnesses, relevant laboratory<br />

tests, donor maintenance details, driving license or any other document of<br />

pledging donation, donation requested by whom, transplant coordinator, organs or<br />

tissue retrieved, outcome of donated organ or tissue, details of recipient, etc.<br />

III - Tissue Registry:<br />

The Tissue Registry shall include demographic information on the tissue donor, site<br />

of tissue retrieval or donation, primary cause of death in case of deceased donor,<br />

donor maintenance details in case of brain stem dead donor, associated medical<br />

illnesses, relevant laboratory tests, driving license or any other document pledging<br />

donation, donation requested by whom, identity of counsellors, tissue(s) or organ(s)<br />

retrieved, demographic data about the tissue recipient, hospital conducting<br />

transplantation, transplant waiting list and priority list for critical patients, if these<br />

exist, indication(s) for transplant, outcome of transplanted tissue, etc.<br />

IV - Organ Donor Pledge Registry:<br />

The National Organ Donor Register is a computerized database which records the<br />

wishes of people who have pledged for organ and tissue donation. A person during<br />

their life can pledge to donate their organ(s) or tissue(s) after their death through<br />

Form 7 and submit it in paper or online to the respective networking organization<br />

and pledger has the option to withdraw the pledge through intimation.<br />

There are many hospitals and organizations those are also maintaining the list of<br />

persons who have pledged organ donation with them, will be passed to National<br />

Organ & Tissue Transplant Organisation for National Register.<br />

Why should you donate organs?<br />

Because you can give a gift of life to someone else who is waiting for it. Because,<br />

after death, the organs will be of no use to you but will be life-changing for the<br />

person who receives your organs.<br />

How can one contribute to the cause of organ donation?<br />

One can, first pledge to donate their organs. Then, support or volunteer with an NGO<br />

like Donate Life. And last but not the least, help create awareness through various<br />

mediums.<br />

68 69


HEALTH TIPS -<br />

KEEPS YOUR ORGAN HEALTHY.<br />

PRESS COVERAGE<br />

1<br />

2<br />

3<br />

4<br />

5<br />

6<br />

Eat Healthy:<br />

Avoid high-salt, high-sugar and high-fat foods that harm your health in massive ways. Eat pure<br />

vegetables and fruits every day and don't eat junk food. Even if it is impossible to go without eating<br />

junk food, keep it at the minimum.<br />

Avoid canned and packaged goods and don't forget to eat local and pick seasonal vegetables and<br />

fruits. Eat multiple times a day, rather than filling your stomach completely in one go.<br />

Drink Sufficient Water:<br />

Drinking water is not just important for kidney health but also for the health of your other body<br />

organs. Drink at least 8 glasses of water per day, without fail. In summers, increase it as per your<br />

capacity.<br />

Lack of water in the body, directly affects the cells. Cells that don't maintain their balance of fluids<br />

and electrolytes shrivel, which can result in muscle fatigue. To put it simply, water carries nutrients<br />

to our cells and carries away the waste from it. Now can judge what the absence of water will do to<br />

your body. There are applications now that remind you do drink water, if you forget.<br />

Avoid Drinking And Smoking:<br />

Alcohol and tobacco directly damage your lungs and liver. Many cases of liver and lung failure<br />

attribute to excessive drinking and smoking in India. Indulge in self-control and take help to<br />

de-addict if necessary before it is too late.<br />

There are many de-addiction programmes that are available in India that you can join for help.<br />

Exercise And Maintain A Healthy Weight:<br />

One study once revealed that obesity increases the chances of a brain stroke. Ensure that your wait<br />

is optimum and if it is not, decrease it. There are weight-loss programmes in India that will help you<br />

shed kilos.<br />

Also, exercising is extremely vital to our body. Studies have shown that exercising can not only help<br />

your muscles and tissues but it also boosts happiness along with improving overall brain health. It<br />

also increases your energy levels - the higher the energy the lesser the chances of a sedentary<br />

lifestyle.<br />

Do Constant Tests:<br />

In India we have a mentality of going to the doctor only after something goes wrong. Keep a habit of<br />

doing annual tests. This will keep you ahead of your disease and it won't catch you off-guard. Also, if<br />

a disease is diagnosed in the early stages, the chances of you being cured are more than otherwise.<br />

Also, monitor your blood pressure and blood sugar levels, regularly.<br />

Do Not Take OTCs Regularly:<br />

OTCs or Over-The-Counter pills like paracetamol tablets (crocin, combiflame etc.) are not be<br />

consumed regularly. They can, in the long run, cause heavy damage to your kidneys if consumed<br />

recklessly.<br />

Also, take care of your mental health as how you feel mentally, affects your all the other bodily<br />

functions drastically.<br />

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Email: info@donatelife.org.in<br />

Web: www.donatelife.org.in<br />

Registration No: E-7652 Dt. 04-12-2014<br />

Donation Exempted U/s. 80(G)5 of I.T. Act 1961<br />

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