CRC Annual Report 2017

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Directors’ Report - Children’s and Clinical Services Luke’s Story “He is the most determined little boy but he wouldn’t be where he is without the wonderful staff in the CRC”. Luke Carr, 2 34
CRC Annual Report 2017 Luke was born in March 2016. It was an uncomplicated pregnancy and the first few hours after his birth were perfect and without concern. However that all changed in an instant when he was taken to NICU in the middle of the night due to concerns about his bloods which were taken because of a rash he was born with. Three days later he was diagnosed with congenital cytomegalovirus (CMV). Luke has microcephaly, polymicrogyria and cerebral palsy caused by CMV. He spent the first six months of his life in and out of hospital with bronchiolitis and severe anemia as a result of the antiviral medication he was on. At six months old we were invited to the CRC to meet the fabulous social worker Jean and physiotherapist Judith. From that day on barely a week has passed when we haven’t been in for one appointment or another. We started occupational therapy a few months later and also attend feeding and seating clinics. In the last few months we’ve been doing speech therapy and Luke is starting to sign which is great! To us the CRC is such an amazing place. Everything in one place, paediatrician, physio, OT, SLT, social work, orthotics and specialist clinics to name a few. When you have a child who has many appointments in different places it makes such a difference when you can go to one place and all the clinicians can liaise or do joint sessions. The support we have received as a family, emotionally, as well has been invaluable. For a child who we were originally told may never sit unsupported, Luke is now walking and has abandoned his walker! He is the most determined little boy but he wouldn’t be where he is without the wonderful staff in the CRC. Beth and Lorcan Carr. 35
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CRC Annual Report 2017

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