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16 | September 27, 2018 | The orland park prairie news<br />

opprairie.com<br />

FROM THE TINLEY JUNCTION<br />

Tinley Park mom jogging to raise<br />

awareness for daughter’s rare<br />

disease<br />

In 2006 there were only 200<br />

known cases of congenital central<br />

hypoventilation syndrome worldwide.<br />

As of 2008, that number had<br />

increased to 1,000, according to the<br />

U.S. National Library of Medicine.<br />

A decade later, advocates still place<br />

that number around 1,200.<br />

Tinley Park native Laura Brown<br />

and her husband Jeff’s 18-month old<br />

daughter, Josie, is one of them. She<br />

was born with a mutated PHOX2B<br />

gene which medical researchers<br />

have discovered helps the body and<br />

brain regulate normal breathing at<br />

the molecular level. Effectively,<br />

Josie’s autonomic nervous system<br />

fails to connect signals that tell the<br />

lungs to pump oxygen. Simply going<br />

to sleep can be fatal.<br />

“There were unexplained periods<br />

of respiratory distress where she<br />

wasn’t breathing right,” Brown recalled.<br />

“It was really scary.”<br />

A “fighter” as described by Laura,<br />

Josie was born five weeks premature<br />

and spent close to five of her first six<br />

months of life in the Pediatric Intensive<br />

Care Unit at Hope Children’s<br />

Hospital. A forward-thinking doctor<br />

correctly predicted Josie’s respiratory<br />

issues, which at this point had<br />

required the use of a ventilation machine,<br />

could be CCHS. An intricate<br />

genetic testing process would later<br />

confirm.<br />

To bring awareness of CCHS<br />

Laura has organized “Jogging for<br />

Josie” in an effort to raise $12,000<br />

for the nonprofit CCHS Network by<br />

partaking in the Chicago Marathon<br />

on Oct. 7. The number was doubled<br />

after reaching her initial goal of<br />

$6,000, or $5 for each of the 1,200<br />

known cases.<br />

“She’s one tough cookie — my<br />

hero for sure,” Laura said.<br />

Reporting by Cody Mroczka, Editor.<br />

For more, visit Tin<br />

leyJunction.com.<br />

FROM THE MOKENA MESSENGER<br />

‘Control beyond the grave’<br />

The old Boy Scout motto, “Be<br />

prepared,” can be applied to many<br />

things in life, and can especially be<br />

applied to death.<br />

Contemplating one’s own mortality<br />

can be an uncomfortable thing,<br />

but facing the questions about what<br />

would happen to those left behind is<br />

essential to ensure that those loved<br />

ones receive what one’s final wishes<br />

wanted them to receive.<br />

That’s why Skye Bergeson and<br />

Richard Rappold held an estate<br />

planning seminar at Mokena Community<br />

Public Library District Sept.<br />

18. Bergeson is a financial advisor<br />

with Edward Jones in Mokena, and<br />

Rappold is an attorney who lives in<br />

Frankfort and practices out of Chicago.<br />

According to Bergeson, an estate<br />

plan should involve the services of<br />

a financial advisor to help manage<br />

assets, a tax professional to keep<br />

an eye on the tax laws to make sure<br />

those assets are protected under<br />

ever-changing tax code, and an attorney<br />

to help keep assets from being<br />

bogged down in court and not<br />

fulfilling one’s wishes in a timely<br />

manner.<br />

Any estate plan should be specific<br />

to an individual, as everyone’s circumstances<br />

and goals will be different;<br />

however, the individual, along<br />

with the estate planning team of the<br />

financial advisor, tax professional<br />

and attorney, should monitor and reevaluate<br />

the plan every six months<br />

to a year, Burgeson said.<br />

Reporting by T.J. Kremer III, Editor.<br />

For more, visit MokenaMessenger.com<br />

FROM THE FRANKFORT STATION<br />

Frankfort library program addresses<br />

healthy habits<br />

It is a disease with no cure and<br />

no prevention, but it is not without<br />

hope.<br />

Hadi Finerty, of the Alzheimer’s<br />

Association, met with seniors Sept.<br />

13 at the Frankfort Public Library<br />

District to address the scary reality<br />

of Alzheimer’s and dementia.<br />

Finerty said most times she gives<br />

the presentation, attendees want to<br />

know if they will get the disease or<br />

if they already have it.<br />

“They’re looking to see what the<br />

signs are and [if] they have any of<br />

the signs,” she said.<br />

The thing is, sometimes there is<br />

not a definite answer to their questions.<br />

While family history and genetics<br />

can play a part in determining<br />

whether someone will be diagnosed<br />

with Alzheimer’s or another form<br />

of dementia in their lifetimes, just<br />

because someone is genetically predisposed<br />

to get the disease does not<br />

mean they will.<br />

Instead of dwelling on statistics<br />

and worrying about it, Finerty said it<br />

is important for people to talk about<br />

it and learn as much as they can.<br />

“Whether that’s talking about it to<br />

your family, talking about it to your<br />

spouse [or] talking about it to your<br />

doctor, talk about it, because everybody<br />

automatically assumes it’s Alzheimer’s<br />

or dementia, and it might<br />

not even be that,” she said.<br />

The general effects of aging can<br />

make it hard to recall details like<br />

names, places or words, but in most<br />

cases people eventually remember<br />

those things if it is just age-related<br />

forgetfulness. With Alzheimer’s and<br />

dementia, she said, it is different.<br />

Reporting by Amanda Stoll, Assistant<br />

Editor. For more, visit FrankfortSta<br />

tion.com.<br />

FROM THE NEW LENOX PATRIOT<br />

After Senior Night score, West boys<br />

golf excited for regional<br />

A back injury kept senior Collin<br />

Phelps from playing golf for 10<br />

days.<br />

Lincoln-Way West’s Senior Night<br />

on Sept. 18 was his first time swinging<br />

a club since suffering that injury.<br />

Against Plainfield East at The<br />

Sanctuary, he didn’t know what to<br />

expect.<br />

“My mentality for today was just<br />

to enjoy it and not care what I shoot<br />

because no one was expecting me to<br />

do good having been out a week and<br />

a half,” Phelps said.<br />

As some golfers may take a round<br />

or two to work back to normalcy on<br />

the golf course, it only took Phelps<br />

a few shots. The four-year varsity<br />

member carded a 38, which is under<br />

his scoring average of 38.5, to contribute<br />

to a winning score of 151-<br />

193 over the Bengals.<br />

“I kept my swing and didn’t really<br />

over swing because my back<br />

still hurts a little bit,” he said. “I just<br />

kept calm.”<br />

The team’s only other senior,<br />

Dylan Adair, fittingly was the medalist<br />

with a 36. Phelps’ younger<br />

brother, Zack, shot a 37, and a 40<br />

was the fourth posted score by both<br />

Jason Lange and Ethan Healy.<br />

West will join a star-studded cast<br />

at the Joliet Central Regional Tuesday,<br />

Oct. 2, at Inwood Golf Course<br />

in Joliet. SWSC leader Lockport,<br />

Lincoln-Way Central, Lincoln-Way<br />

East and Providence are some of the<br />

teams in the nine-school field vying<br />

for the Top 3 spots to advance to<br />

sectionals.<br />

“If they keep up these scores,<br />

we’ll see,” West coach Donna<br />

Thompson said. “I’ll be happy if we<br />

go to sectionals as a team.”<br />

Reporting by James Sanchez, Editor.<br />

For more, visit NewLenoxPatriot.com.<br />

FROM THE LOCKPORT LEGEND<br />

Light pole falls on, injures three<br />

Butler School students<br />

A light pole fell and injured three<br />

fourth-grade students after striking<br />

them while they were at recess Sept.<br />

17 outside Butler School in Lockport,<br />

according to Homer Community<br />

Consolidated School District 33C.<br />

The district posted a message on<br />

its Facebook page Monday afternoon<br />

stating that all three children<br />

were evaluated at a local hospital<br />

and were “okay.”<br />

Homer 33C Superintendent Craig<br />

Schoppe said the incident happened<br />

at approximately 11:40 a.m. in front<br />

of the school.<br />

“The district’s first concern is the<br />

safety and well-being of our students,”<br />

the district said in a statement,<br />

which was provided to The<br />

Horizon on Sept. 19. “Due to the<br />

fact that this involves individual<br />

students, and we are currently investigating<br />

the incident, the district<br />

has no further comment.”<br />

Jeff Scellato, of Lockport, is the<br />

stepfather of one of the children,<br />

Peyton Forrest, who was injured by<br />

the light pole. He said Forrest was<br />

coming out of a door to recess and<br />

observed three children standing on<br />

the base of the pole, and Scellato<br />

said Forrest told him a teacher told<br />

those children to get off.<br />

Forrest was standing further away<br />

from the pole when it then came<br />

down and hit him in his back, according<br />

to what he told Scellato.<br />

The 9-year-old suffered a fractured<br />

rib as a result and was transported<br />

via ambulance to Silver<br />

Cross Hospital, as were the other<br />

two children, Scellato said.<br />

“Thank God no one was killed,<br />

a teacher or student or anybody,”<br />

Scellato said.<br />

Reporting by Thomas Czaja, Contributing<br />

Editor. For more, visit LockportLe<br />

gend.com.<br />

FROM THE HOMER HORIZON<br />

Man charged for anti-Muslim<br />

vandalism in Homer Glen<br />

A man has been charged for vandalizing<br />

a sidewalk with Islamophobic<br />

graffiti Sept. 17 in front of a<br />

Muslim family’s Homer Glen home,<br />

according to a Sept. 20 release from<br />

the Will County Sheriff’s Office.<br />

Patrick J. Goshorn Jr., 26, of<br />

13057 Finch Court in Homer Glen,<br />

was charged with one count of felony<br />

criminal damage to property and<br />

one count of felony criminal damage<br />

to state-supported property by the<br />

sheriff’s office. The case was turned<br />

over to the Will County State’s Attorney’s<br />

Office for review, and the office<br />

announced additional charges of<br />

a felony and misdemeanor count of<br />

criminal defacement to property and<br />

one count of a hate crime, bringing<br />

the total to five charges.<br />

One of the homeowners originally<br />

called police about 8 p.m.<br />

Sept. 17 after discovering the graffiti<br />

outside their home in the 13000<br />

block of W. Sparrow Court, according<br />

to Will County Sheriff’s Office<br />

spokeswoman Kathy Hoffmeyer.<br />

In addition to the graffiti —<br />

which mocked the common Muslim<br />

phrase “peace be upon him” with an<br />

obscene variation — the taillights,<br />

trunk and bumper of the homeowners’<br />

vehicle, a 2013 Toyota, were<br />

covered in brown spray paint, according<br />

to Hoffmeyer.<br />

After appearing in video court on<br />

Thursday, Sept. 20, Goshorn had<br />

his bond set at $100,000, with 10<br />

percent to apply. A condition of his<br />

bond states that if he is able to bond<br />

out, he will be released with an electronic<br />

monitoring device and will<br />

not be allowed to be within 3,000<br />

feet of the vandalized home.<br />

Goshorn’s next court date is<br />

set for Oct. 11 at the Will County<br />

Courthouse.<br />

Reporting by Thomas Czaja, Editor.<br />

For more, visit HomerHorizon.com.

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