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MDF Magazine Newsletter Issue 58 April 2019

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Subscription and contributions to<br />

the magazine<br />

We publish three issues of <strong>MDF</strong> <strong>Magazine</strong><br />

a year and you can subscribe online<br />

to the magazine or by calling your nearest<br />

branch.<br />

If you have any feedback on our publications,<br />

please contact the National Office<br />

by e-mail at national@mdsa.org.za<br />

or call 011 472-9703.<br />

Get all the latest news on the fight<br />

against muscle-wasting conditions and<br />

the latest research updates. It is our editorial<br />

policy to report on developments<br />

regarding the different types of dystrophy<br />

but we do not thereby endorse any<br />

of the drugs, procedures or treatments<br />

discussed. Please consult with your own<br />

physician about any medical interventions.<br />

If you are interested in sharing your inspirational<br />

stories, please let us know<br />

and we'll be in touch to discuss this<br />

with you. The Foundation would love<br />

to hear from affected members, friends,<br />

family, doctors, researchers or anyone<br />

interested in contributing to the magazine.<br />

Articles may be edited for space<br />

and clarity.<br />

<strong>MDF</strong> SA database<br />

If you know people affected by muscular<br />

dystrophy or neuromuscular disorders<br />

who are not members, please<br />

ask them to contact us so that we can<br />

register them on our database. If we do<br />

not have your current e-mail and postal<br />

address, please contact your branch so<br />

that we can update your details on our<br />

database.<br />

How can you help?<br />

Branches are responsible for doing their<br />

own fundraising to assist members with<br />

specialised equipment. Contact your<br />

nearest branch of the Muscular Dystrophy<br />

Foundation of South Africa to find<br />

out how you can help with fundraising<br />

events for those affected with muscular<br />

dystrophy.<br />

Fundraising<br />

Crossbow Marketing Consultants (Pty)<br />

Ltd are doing invaluable work through<br />

the selling of annual forward planners.<br />

These products can be ordered from<br />

Crossbow on 021 700-6500. For enquiries<br />

contact the National Office by<br />

e-mail at national@mdsa.org.za or call<br />

011 472-9703.<br />

<strong>MDF</strong> ::<br />

<strong>MDF</strong> support information<br />

For more information about the Muscular Dystrophy Foundation, the benefits of being<br />

a member and details on how to become a member, call your nearest branch..<br />

NATIONAL OFFICE<br />

E-mail: gmnational@mdsa.org.za<br />

Website: www.mdsa.org.za<br />

Tel: 011 472-9703<br />

Address: 12 Botes Street, Florida Park,<br />

1709<br />

Banking details: Nedbank, current account<br />

no. 19<strong>58</strong>502049, branch code<br />

198765<br />

CAPE BRANCH (Western Cape,<br />

Northern Cape & part of Eastern<br />

Cape)<br />

E-mail: cape@mdsa.org.za<br />

Tel: 021 592-7306<br />

Fax: 086 535 1387<br />

Address: 3 Wiener Street, Goodwood,<br />

7460<br />

Banking details: Nedbank, current<br />

account no. 2011007631,<br />

branch code 101109<br />

GAUTENG BRANCH (Gauteng,<br />

Free State, Mpumalanga, Limpopo<br />

& North West)<br />

E-mail: gauteng@mdsa.org.za<br />

Website: www.mdfgauteng.org<br />

Website: www.muscleriders.co.za<br />

Tel: 011 472-9824<br />

Fax: 086 646 9118<br />

Address: 12 Botes Street, Florida Park,<br />

1709<br />

Banking details: Nedbank, current<br />

account no. 19<strong>58</strong>323284<br />

branch code 192841<br />

Pretoria Office<br />

E-mail: swpta@mdsa.org.za<br />

Tel: 012 323-4462<br />

Address: 8 Dr Savage Road, Prinshof,<br />

Pretoria<br />

KZN BRANCH (KZN & part of<br />

Eastern Cape)<br />

E-mail: kzn@mdsa.org.za<br />

Tel: 031 332-0211<br />

Address: Office 7, 24 Somtseu Road,<br />

Durban, 4000<br />

Banking details: Nedbank, current<br />

account no. 1069431362<br />

branch code 198765<br />

General MD Information<br />

Cape Town<br />

Lee Leith<br />

Tel: 021 794-5737<br />

E-mail: leeleith@mweb.co.za<br />

Gauteng<br />

Robert Scott<br />

Tel: 011 472-9824<br />

E-mail: mdfgauteng@mdsa.org.za<br />

Duchenne MD<br />

Cape<br />

Win van der Berg (Support Group)<br />

Tel: 021 557-1423<br />

KZN<br />

Maxine Strydom (Support Group)<br />

Tel: 031 762-1592<br />

Cell: 083 290 6695<br />

Gauteng<br />

Jan Ferreira (Support Group – Pretoria)<br />

Cell: 084 702 5290<br />

Estelle Fichardt<br />

Tel: 012 667-6806<br />

Christine Winslow<br />

Cell: 082 608 4820<br />

Charcot Marie Tooth (CMT)<br />

Hettie Woehler<br />

Cell: 079 885 2512<br />

E-mail: hettie.woehler@gmail.com<br />

Facioscapulohumeral (FSHD)<br />

Francois Honiball<br />

Tel: 012 664-3651<br />

Barry Snow<br />

Cell: 083 66 66 270<br />

E-mail: barry.snow@worleyparsons.<br />

com<br />

Friedreich Ataxia (FA)<br />

Linda Pryke<br />

Cell no: 084 405 1169<br />

Nemaline Myopathy<br />

Adri Haxton<br />

Tel: 011 802-7985<br />

Spinal Muscular Atrophy (SMA)<br />

Zeta Starograd<br />

Tel: 011 640-1531<br />

Lucie Swanepoel<br />

Tel: 017 683-0287<br />

5

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