Kidney Matters - Issue 5, Spring 2019

More documents

Recommendations

Info

Our dedicated KIDNEY KITCHEN website is launching soon Cooking along with Chef Ripley in our Kidney Kitchen just became even more fun. If you have been cooking our kidney-friendly recipes over the past year, you will know that Chef works closely with the team of experienced dietitians from the British Dietetic Association - Renal Nutrition Group (RNG) to come up with exciting, tasty meals and snacks for every occasion. The bonus is that whilst these recipes aim to keep us as fit and healthy as possible, they are also a great option for everyone else in the family too! From 1st June the Kidney Kitchen launches its very own dedicated website at www.kidneykitchen.org We cook in the Kidney Kitchen every month with Chef and work closely with the RNG to give you the best advice possible on how to keep well with chronic kidney disease (CKD). This means that, as well as an ever-increasing number of cooking demonstrations you can watch and cook along with, over time you will also find useful guidance on topics associated with eating and drinking well with CKD. You will find advice on – • managing diabetes alongside CKD • working towards achieving an acceptable body mass index (BMI) or blood chemistry in order to be listed for a transplant • what foods to avoid post-transplant • which alcoholic drinks to choose The new Kidney Kitchen website will continue to develop and we hope will soon become THE ‘diet and nutrition’ resource for all kidney patients here in the UK and a credible resource for all our hard-working renal dietitians. Share your snaps! #KidneyKitchen Cook along with chef and send in your photos, we love seeing them! Get in touch with your snaps and stories via social media or email info@kidneycareuk.org to see them featured in the Kidney Kitchen. This month the Kidney Care UK team have been cooking up a storm. Let’s cook! Kidney Kitchen 18 Issue 5 Spring 2019 www.kidneycareuk.org
Smart Dialysis with Steve By Professor Paul Stewart, Research Chair in Intelligent Systems at the University of Derby. The iTrend Team left to right: Professor Maarten Taal, Professor Jill Stewart, Dr Tarek Eldehni, Professor Paul Stewart, Lath Gullapudi, Dr Nick Selby Improving patient outcomes with the iTrend (Intelligent Technologies for Renal Dialysis) project. I’m an Engineer, born and bred. So, when Mel Morris, a funder with whom I had been working, suggested I meet with University of Nottingham Nephrologists at Royal Derby Hospital and see whether we could find some common ground, I was intrigued! Meeting with Professor Maarten Taal and Dr Nick Selby, we set about bridging their medical backgrounds with mine in aeronautical and automotive engineering. The outcome was the iTrend project. Now nearing the end of its second year, with a simple aim of improving outcomes for dialysis patients. It’s probably the most exciting project I’ve ever worked on. What’s the project objective? Simple really: to investigate whether we can predict the onset of effects such as hypotension (low blood pressure), and tailor the profile of the dialysis treatment to minimise or avoid the effects. The outcome, if we’re successful, will be to deliver more targeted, personalised treatments which produce fewer negative physical outcomes. The medics are running a patient study collecting real-time blood pressure and other physical data during 4-hour dialysis treatments, which we are analysing to identify physiological ‘fingerprints’ to help design personalised treatments. One thing I didn’t expect at the outset was the creation of ‘Steve’, our experimental synthetic dialysis patient. Steve has a heart, circulation system, and importantly, an ‘arm’ with a fistula fitted, which connects via standard lines to a dialysis machine. This allows us to investigate ‘what if?’ scenarios and explore the basis for further patient studies. A prime motivation for accurate blood pressure measurement arose from the patient study data. Arm-cuff measurements are extremely accurate, but cannot be taken regularly enough to enable predictive intervention to take place. Sophisticated finger-cuffs (used in the study) are available, but are expensive and sensitive to patient movement. ‘Steve’ has allowed us to prototype a cheap, non-invasive and accurate method of measuring systolic, diastolic and beat-to-beat blood pressure. We will be applying for approval for a patient-study to support this within the next few months. ‘Steve’, our experimental, synthetic dialysis patient alleviate the physiological burden sometimes associated with dialysis. Progress on the programme is accelerating as our understanding of the fundamental responses to treatment develop. My next job is to upgrade ‘Steve’ so that he has a variable blood volume and vascular refill rate. This will enable us to study the effects of mismatch between dialysis rate and vascular refill, developing predictive models to modify the treatment regime. For us, the end of project will be a ‘box’ to sit by every dialysis machine, which will ‘personalise’ treatment and achieve the best possible outcome for patients. None of this would be possible without the support of the patients in our study. I’ve been knocked out by their positivity and support for our project, really trying to help. All of this supported by renal medics, staff and a community that is a real pleasure to work with. I hope Kidney Matters will let me report back as we make more progress. The final part of the jigsaw in this project is a highly detailed software model of the human cardiovascular system, and importantly, the nervous system which controls its response. We will be using data from our patient study to fit the model to individual patients and then identify and track changes. This is an example of Message from the editor the application of Artificial Intelligence in the design of personalised models, That would be a yes please, Paul! which should allow targeted Twitter treatment and Instagram to @queenofdialysis www.kidneycareuk.org Issue 5 Spring 2019 19
Page 1 and 2: Kidney The magazine for everyone af
Page 3 and 4: Welcome to KidneyMatters There are
Page 5 and 6: “If it enables you to keep workin
Page 7 and 8: do more. Ben approved three days an
Page 9 and 10: shine in declined, which also affec
Page 11 and 12: Any legislation requires rigorous c
Page 13 and 14: HLA matching After checking for ABO
Page 15 and 16: Nicos explains: “We do not want t
Page 17: with Orzo kidney kitchen with Chef
Page 21 and 22: eligion weeks and the second lastin
Page 23 and 24: Islamic law this is deemed to be
Page 25 and 26: skin An American dermatologist Dr T
Page 27 and 28: Lifting the fog from ‘kidney brai
Page 29 and 30: Transplant Games in Newport, 25-28
Page 31 and 32: your way Volunteer with us at Rocky
Page 33 and 34: Information is like compost; it doe
Page 35 and 36: donation capital of the World “So
Page 37 and 38: Winter Sun in Tenerife “I would d
Page 39: We’re here for you! Help and supp

Kidney Matters - Issue 5, Spring 2019

Create successful ePaper yourself

Delete template?

Save as template?